PFF 2024 Annual Report

Research. Investment. Impact.

2024 Annual Report

Letter from our President and CEO DEAR FRIENDS, This year has been a period of remarkable growth for the Pulmonary Fibrosis Foundation and for the entire pulmonary fibrosis (PF) community. As we expanded and invested in research initiatives like the PFF Community Registry and PFF Scholars, we have increased opportunities for engagement through our nationwide Walk program and the PFF Summit 2023. The impact of the Pulmonary Fibrosis Foundation has never been greater, and we are deeply grateful for everyone who has supported us in advancing our mission.

One of our proudest achievements, which took place at the beginning of the fiscal year, was celebrating the 1,600 participants in the Community Registry on its one-year anniversary. We invited patients, caregivers, family members and lung transplant recipients affected by pulmonary fibrosis to be a part of the solution by joining the Registry. As more individuals across the country contribute their data to the Registry, this transformative research tool becomes even more powerful in answering critical questions about the diagnosis and treatment of PF. By the end of the year, enrollment in the Community Registry surpassed 2,000 participants – a milestone that underscores the growing momentum behind our efforts.

We also expanded access to expert, multidisciplinary care by adding seven Clinical Associate sites to the PFF Care Center Network (CCN). These new sites provide care to patients in rural. communities across the U.S., each paired with a larger CCN site.

This collaboration offers patient education, clinical care, and access to research opportunities, including clinical trials, bringing the total number of CCN sites to 88.

Our community came together at the PFF Summit 2023, where we welcomed more than 800 healthcare experts, alongside patients, caregivers, and industry leaders from 43 states and 15 countries. Returning to an in-person format for the first time since the pandemic, the conference offered insightful sessions on precision medicine, genetics and supplemental oxygen, among other important topics. It was an unparalleled opportunity for our communities to connect, share knowledge, and discuss the latest advancements in managing and treating PF and ILD. Throughout the pages of Empowering Every Breath: A Year in Review, you’ll find countless examples of the PFF’s unwavering commitment to education, support, and advocacy. From research to awareness, none of this would be possible without your continued support and involvement. Together, we are driving meaningful change for the pulmonary fibrosis community.

With gratitude,

Scott Staszak President and CEO

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Volunteers, Advocacy and Education: Driving Change and Impact

WEBINAR ATTENDEES

1,684

AMBASSADOR APPEARANCES

HELP CENTER INQUIRIES

59

5,184

The PFF welcomed 13 members of the PF community to its Ambassador Class including patients, caregivers and lung transplant recipients after receiving a record number of applications this year.

These volunteers lent their voices to the PF cause in a number of ways, including presenting at patient education events, and speaking with support groups that serve as lifelines for those navigating the challenges of PF. In alignment with our mission to serve as a trusted resource for people living with PF and ILD, we developed a new education resource on the topic of palliative care. Symptom Management for PF: How Palliative Care Can Improve Quality of Life was created to help patients, caregivers and family members understand more about this specialized medical care.

We also developed a vital new emergency preparedness resource, Preparing for Emergencies: A Guide for People Living with Pulmonary Fibrosis.

This guide is designed to empower members of our community to stay safe and prepared during challenging circumstances such as natural disasters.

EDUCATION MATERIALS ORDERS

618

The PFF’s advocacy efforts resulted in Congress adopting our recommendations for language about the importance of PF research in the report accompanying the Fiscal Year 2024 funding bill for the National Institutes of Health. This demonstrates that Congress recognizes the importance of PF related research.

In addition, the PFF’s advocacy for oxygen reform continued with outreach to members of Congress calling for support for the Supplemental Oxygen Access Reform (SOAR) Act, legislation that aims to ensure that people enrolled in Medicare who need supplemental oxygen can access the correct type and levels of oxygen needed for them to live full and active lives.

The PFF held its fourth annual ILD Day with eight partner organizations during Pulmonary Fibrosis Awareness Month and presented a webinar focused on oxygen as a physiological problem in individuals with ILD and why supplemental oxygen is recommended.

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PFF Ambassador Arturo “Hito” Bazan Found Hope and Purpose Through the PFF I had never heard of pulmonary fibrosis (PF) or interstitial lung disease (ILD) before the spring of 2020.

As a member of the Houston Police Department and an active member of my community, I had the next ten years of my life planned out before retirement.

Unfortunately, like all of us in the spring of 2020, my life was about to be forever changed in multiple ways.

On June 19, 2020, I woke up with a fever and thought I was coming down with a cold or COVID-19. However, my wife Sheryle, a Registered Nurse, quickly realized it was something much worse. I can honestly say that she saved my life because of her quick thinking.

Sheryle used a pulse oximeter on me, and it showed that my oxygen levels were in the 70% range. After seeing my oxygen levels, we quickly drove to the hospital, where I was admitted and diagnosed with COVID-19 and double pneumonia. My vitals kept falling, and no one knew what exactly was happening.

I was induced into a medical coma for two months.

To wake up and realize that I had missed out on two months of my life was heart-wrenching.

I was diagnosed with pulmonary fibrosis resulting from the long-term effects of COVID-19. The doctors told me I would need a lung transplant to survive. I was at the lowest point of my life after hearing my diagnosis, and I thought this would be the end of my life. After I was discharged, I remember being in the parking lot with Sheryle and feeling we had no direction on what to do next. Despite our feelings of hopelessness, we decided together that we were going to fight this disease.

I was unprepared for this disease’s emotional toll on me. I had to retire early from my career as a police officer because I could no longer perform my job.

All of these personal setbacks led me to a feeling of extreme isolation.

My wife found the Pulmonary Fibrosis Foundation (PFF), and we both devoured all the information that the Foundation provided. Before finding the PFF, I was constantly frustrated and depressed because I had never had any health obstacles before my PF diagnosis.

With the support of the PFF, I connected with their Ambassador Program and finally heard that I was not alone in this journey. Listening to the stories of fellow Ambassadors gave me hope. There were people who had the same disease as me, and they were still going on vacations, being active, and living life to the fullest.

Since connecting with the PFF, my family and I have participated in the 2022 and 2023 PFF Walk - Dallas, and I have become a PFF Ambassador. One of the critical things I learned when talking to the other PFF Ambassadors was that I needed to change my mindset about my life. I needed to understand that just because I have PF doesn’t mean that my future is over; it has just changed.

Whenever I engage with the PFF, I leave in the best mood. I always feel relieved that I learned something new and, most notably, that I have hope.

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Ten Years of Expert Pulmonary Fibrosis Care

Care Center Clinical Associate The CCN has grown significantly from a collection of nine medical centers in 2013 to 88 sites across the U.S. today that advance the understanding and treatment of PF and ILD. These medical centers offer multidisciplinary expertise, conduct pioneering ILD research and provide educational events and resources for the PF community.

Seven Clinical Associate sites joined the CCN this year, each partnered with a Care Center site to collaborate on diagnosis, treatment, and research. The first group of these new members included medical centers across the Northern Plains and southwest regions, areas previously underserved by the CCN.

The CCN Rural Health Outreach Committee also provided resources to patients and providers in community areas that are far from a CCN site in the form of position statements. This year, the PFF teamed up with the Pulmonary Hypertension Association to develop a position statement for both patients and healthcare providers on the relationship between pulmonary hypertension and ILD. Through new partnerships and expanded outreach, the CCN is at the forefront of combatting these devastating diseases. The PFF’s commitment to growing the Care Center Network promises improved outcomes and a brighter future for all those affected.

With the introduction of a new membership category, Clinical Associate, the CCN is expanding its reach to transform the landscape of PF care by reaching patients in rural communities.

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Uniting the Community and Sharing Stories through Fundraising Since its inception the PFF Walk has raised over

$5 million with over10,000 participants.

The PFF’s 14th annual Broadway Belts for PFF! shattered previous records and raised

$516,000.

Our annual fundraising appeal brought in over

$291,000.

In its seventh year, the PFF Walk brought families and friends together in cities across the country – Pittsburgh, New York City, San Francisco, Chicago, Washington D. C. and Dallas.

For those in different areas of the country, National Walk Day provided an opportunity for people to create their own experiences in their hometowns. This year, we created a special new “Mission Moment” to recognize all members of the PF community – people living with PF, caregivers and family members as well as those who lost a loved one.

The PFF’s 14th annual Broadway Belts for PFF! shattered previous records and raised $516,000 to support patients and their loved ones. This year’s sold-out event took place at Sony Hall and attracted more than 1,000 virtual attendees. During the event, PFF Ambassador, Dionn Tunis shared her story of being diagnosed with myositis-associated ILD at age 42. She had to quit her job as a social worker, begin using supplemental oxygen, and move back in with her parents. Although she was used to helping others through her work, Dionn learned to ask for help from her family and the PFF. She began pulmonary rehabilitation, joined a support group and became a pulmonary fibrosis advocate.

As part of the Broadway Belts for PFF! celebration, the Hales Family Foundation was honored with the Ralph Howard Legacy Award in memory of the late Thomas Hales.

This Spring, we shared the story of PFF Ambassador, Sam Kirton, in our seasonal fundraising appeal. Sam was diagnosed with idiopathic pulmonary fibrosis in 2017. Like many people, Sam had never heard of pulmonary fibrosis before his diagnosis. Fortunately, he received care at a PFF Care Center Network site and received education and support as part of his treatment.

Sam joined support groups through the PFF, which helped him prepare for the lung transplant he received in 2021. His gratitude and sense of responsibility led him to volunteer for the PFF as co-lead of the PFF Lung Transplant Community Support Group and to launch a support group near his home in Virginia. Sam believes that by working together as one team, the PF community is unstoppable.

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A Path to Hope and Healing: Jennifer’s Story I discovered the PFF Walk in 2018, two months after losing my mother, my hero, Kathy Paul, to pulmonary fibrosis (PF).

Her passing was a devastating shock to our entire family. You see, Mom also had an autoimmune disease, Sjögren’s Syndrome, and its effects were clearly visible to us. But what we couldn’t see was how PF was scarring her lungs and taking her breath away.

National Walk Day is a special opportunity to raise funds and build awareness for PF wherever you live. Walking for Mom gives me a profound sense of comfort and accomplishment.

We continue the fight against PF, knowing our participation makes a real difference. This Walk reminds me of two important truths: the Pulmonary Fibrosis Foundation (PFF) is making great strides on behalf of patients, and none of us is alone on this journey.

I wish I had known about the PFF when Mom was diagnosed with pulmonary fibrosis in 2013. She told us about her diagnosis, but we rarely discussed it. I realize now that she didn’t want our family to know how sick she was. Mom was always positive – a cheerleader for everyone else. Now, through the PFF Walk, we channel her positivity and grace, cheering for patients and families nationwide.

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PFF Community Registry Surpasses Milestone Enrollment

By the end of the year, enrollment in the Community Registry surpassed 2,000 members of the PF community. This milestone included achieving participation by people in all 50 states.

The PFF’s priorities remain clear: faster and more accurate diagnoses, better treatments and a cure for PF and ILD. The path to reach these goals is through research and the PFF Community Registry is the most efficient tool we have for providing researchers the data they need.

Along with patient data, the Community Registry is the first of its kind to include caregiver and family member data, including data from those who have lost a loved one.

To mark the one-year anniversary of the Community Registry, the PFF celebrated the 1,600 patients, caregivers, family members and lung transplant recipients who enrolled in this major research initiative.

The anniversary also provided an opportunity for recruitment to encourage more members of the PF community to join and strengthen this research tool by contributing their data. The PFF showcased the voices of Registry participants to demonstrate the need to fast-forward medical research and improve the lives of patients and their families for today’s and future generations.

As the Registry continues to grow, the data becomes increasingly valuable to researchers as they will be able to see how survey responses change or remain the same over time. Once we have thousands of engaged participants completing each survey, we will be able to conduct new research and find answers quickly.

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Embrace your breath: Pulmonary Fibrosis Awareness Month

Every September, the pulmonary fibrosis community comes together around the world to raise awareness of the disease, its symptoms, and the importance of seeking support by celebrating Pulmonary Fibrosis Awareness Month (PFAM).

2023’s theme was “Embrace Your Breath.” The Pulmonary Fibrosis Foundation showcased how the PFF community can stand together in the fight against this disease with daily social media content highlighting your stories, portraits, donations, lung poses, and PF spirit.

With your help, we spread awareness and reached over 130,000 people online! #BlueUp4PF Unique buildings or landmarks in communities across the country joined in PFAM through the #BlueUp4PF activity by changing their evening lights to blue.

Blue buildings were shared on social media during September Portraits of PF Every day a short story was shared from people living with PF, caregivers, lung transplant recipients, those who have lost a loved one, and healthcare professionals. These heartfelt stories help others understand the many journeys’ people affected by PF have experienced.

Lung Pose New this year, the lung pose challenge invited those in the PF community to strike a pose to raise awareness.

Participants took a photo of themselves striking the lung pose by joining their second knuckles together and place them over their chest. This symbolizes the lungs. These photos were then shared on social media.

30 Facts In 30 Days Each day on social media a fact about PF or ILD was shared to spread information about this disease.

Followers then liked, shared, or commented on the post to increase engagement.

ILD Day On Wednesday, September 13, 2023, the PF community celebrated the third annual ILD Day. In honor of this day the PFF hosted a very special webinar presentation, Breathing Better with Supplemental Oxygen.

Over 750 people registered for this one-hour presentation.

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Meet the PFF Scholars!

Each year, the Pulmonary Fibrosis Foundation accepts applications from researchers who are studying pulmonary fibrosis. After a peer-review process and acceptance, each researcher is awarded a $100,000 research grant.

The PFF Scholars program is designed to help talented researchers obtain independent funding to continue their studies. Each PFF Scholars class tackles some of the most urgent questions about pulmonary fibrosis. Our goal is to accelerate the Scholars’ research and support them in securing more substantial grants to continue their impactful work.

ASRES BERHAN, PHD Postdoctoral Scholar in the Division of Pulmonary, Critical Care and Sleep Medicine University of California, San Diego This proposal is funded by The Hastings Foundation Dr. Berhan is investigating the phenotypic plasticity of idiopathic pulmonary fibrosis (IPF) vs normal human alveolar epithelial cells (AEC) using a threedimensional (3D) organoid model together with single cell multiome analysis to elucidate mechanisms that regulate AEC plasticity in IPF. He hopes to identify novel signaling pathways and potential drug targets to treat IPF by bridging the fields of pulmonary fibrosis, lung bioengineering and regeneration.

$100,000 RESEARCH GRANTS PER SCHOLAR

FIVE PFF SCHOLAR GRANTEES

KSENIJA BERNAU, PHD Associate Scientist in the Division of Allergy, Pulmonary and Critical Care Medicine University of WisconsinMadison

This proposal is funded by Boehringer Ingelheim Pharmaceuticals, Inc. Dr. Bernau’s research combines her expertise in molecular biology of pulmonary fibrosis and molecular imaging with a long-term goal of developing novel probes for improved diagnosis and assessment of pulmonary fibrosis disease activity.

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ANNA GERSTEN, MD Interstitial Lung Disease Team Johns Hopkins

MATTHEW MCCARRA Instructor, Division of Pulmonary, Allergy, and Critical Care Medicine Stanford University School of Medicine

This proposal is funded by The Buckeye Foundation, the Chuck and Monica McQuaid Family Foundation, and Ms. Holly Harralson Dr. Gersten’s research focuses on understanding the palliative care needs in patients with pulmonary fibrosis and studying novel approaches to address these currently unmet needs.

This proposal is funded by The Hastings Foundation Dr. Mathew McCarra’s research interests include lung stem cell biology with a focus on defining the expression of telomerase at the cellular level given the clear association of telomerase mutations with fibrotic lung disease. His overarching goal is to use findings at the bench to develop novel therapeutics that will improve the quality and longevity of the lives of his patients with interstitial lung disease.

STEPHEN GURCZYNSKI, PHD Assistant Professor, Department of Microbiology and Immunology University of Michigan

This proposal is funded by Boehringer Ingelheim Pharmaceuticals, Inc. Dr. Gurczynski has begun to study how coronavirus infection alters tryptophan metabolism and how those alterations can feed pro-inflammatory networks leading to exacerbations of interstitial lung disease. Dr. Gurczynski’s long term goals are to utilize the results of this research to develop treatments targeting specific enzymes responsible for these pro-inflammatory metabolic alterations.

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Meet the PFF Board of Directors The Pulmonary Fibrosis Foundation is proud to have a committed Board of Directors to help guide the activities that support our important mission. Members of the Board are actively involved in the PFF’s activities and participate in fundraising, promoting awareness, and advocating for the pulmonary fibrosis community.

The PFF’s Directors lay the groundwork for the Foundation’s strategic vision and contribute significantly to resource development. A central focus of the Board of the Directors is fundraising.

David McNinch CHAIR Laurie Chandler, CFP VICE-CHAIR, TREASURER Patricia (Pat) Rosa, M. Ed. SECRETARY

Martin Attwell

Heather Kagel

Kenneth C. Fang, MD

Pankaj “PJ” Kamani

Terence F. Hales

Devi Kumar-Nambiar, JD, MBA

Julie Halston

Wayne T. Pan, MD, PhD, MBA

Jeff Harris

William T. Schmidt

Susan S. Jacobs, RN, MS

MEMBERS EMERITI Retiring members of the PFF Board of Directors who have made exceptional contributions to the Foundation are honored with the status “Member Emeritus.”

Daniel M. Rose, MD Chairman Emeritus

Thomas E. Hales

Colleen Attwell

Mike Henderson Chairman Emeritus

Joseph Borus, Esq.

Dave Steffy Stephen A. Wald, PhD

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Financials SOURCES OF REVENUE

STATEMENT OF FINANCIAL POSITION AS OF JUNE 30, 2024

35% Other Revenue

Audited Numbers Total Assets $ Total Liabilities

15,320,155 3,865,441

Total Net Assets $

11,454,714

STATEMENT OF ACTIVITIES YEAR ENDED JUNE 30, 2024 Audited Numbers Total Revenue Unrestricted $ Temporarily Restricted

11,049,867 (907,755)

Total Expenses

10,142,112 10,422,647

Change in Net Assets

(280,535)

$

65% Public Support

ALLOCATION OF EXPENSES

SOURCES OF REVENUE

20% Fundraising

Public Support $ Other Revenue

6,605,471 3,536,641

65% 35%

Total Revenue

10,142,112

100%

$

ALLOCATION OF EXPENSES Audited Numbers Program Services by Category Education $ Legislative Advocacy Outreach and awareness PFF Care Center Network PFF Patient Registry PFF Summit Program Support Research Grants Support Groups

856,356 211,715 843,940 646,622 1,527,128 1,213,499 800,895 902,682 336,695

Program Services Total Management and General Fundraising

7,339,532 969,502 2,113,613

71% 9% 20%

10,422,647

100%

Total Expenses

$

9% Management and General 71% Program Services

The full audited financial statements are available online at pulmonaryfibrosis.org or can be requested by calling 888.733.6741.

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PFF 2024 Donors $250,000 AND GREATER

George Carroll

Grier Twiddy

Boehringer Ingelheim

Clarke & Laurie Chandler

Chris Warren

Chuck & Monica McQuaid

CVSHealth

Genentech

The Daryl Steven Roth Foundation

Weill Cornell Medical College & Graduate School

H & A Trust

Ashley Donoso

The Winfield Foundation

Bill & Connie Doty

The Estate of Glaten Charles Wood

$100,000–$249,999 Amgen, Inc. The Hales Family Foundation, Inc. The Hastings Foundation The Estate of Grace Placente Pliant Therapeutics

Patricia Fox Barbara Fronczak

$5,000–$9,999

Leo & Susan Giguere

Alphanet, Inc.

INOVA Health System

Ben Anderson

Insmed Incorporated

ATyr Pharma, Inc.

K. Wendell and MaryAnn Reugh Family Fund

Baylor Scott and White Health

Pankaj & Sonal Kamani

Christian Genevieve Bennett & Family

Larry Kanter

Paul & Susan Bergna

Karen A & Kevin W Kennedy Foundation

Philip Bolas

The Paul Barimas Estate Bristol-Myers Squibb

Vern Kertis

Gregory Byrd

Patricia Campbell

Kimberly A. Becker 2020 Trust

Bruce & Patty Cameron

CSL Behring

Fred & Virginia Krauss

Amy Case, MD

Doug & Gay Lane Charitable Foundation

Larry L. Luing Family Foundation

The Charlotte and Jamil Azzam Foundation Kanaly Trust

Steffy Family Foundation Fund

Mannkind

Tvardi Therapeutics

McWethy Family Foundation

Chicago Mercantile Exchange Group, Inc.

United Therapeutics Corporation

Merck & Co., Inc.

Jeffrey & Pamela Choney

The Estate of Margaret Vaugh

John Mezzo

Mark Cochran

Montefiore Medical Center

Brendan Coleman

$10,000-$49,999

Nissanoff Family Fund

Creative Planning

AbbVie

Northwestern Medicine

CVS Health Foundation

Accredo

The Oakes Family Charitable Fund

Draper & Kramer, Inc.

AllianceRx Walgreens Pharmacy

Orsini Pharmaceutical Services, Inc.

Kenneth Fang

Liz Armstrong

PureTech Health

Freddie Mac

Martin & Colleen Attwell

William Ripberger Jr.

Eric Gibson

Avalyn Pharma

Linda Rosecan

Ana Gross

Peter Barrett

Vinil & Nikita Shah

Jeff & Jennifer Harris

William Barry

Theresa Simko

Randy Harris

Broadway Cares/Equity Fights Aids

William Smead

Carolyn Hicks

The Bruce R. and Madelyn G. Snyder Foundation

Shomala Tambyraja

Jeff & Annabell Ho

Three Lakes Foundation

Holson Family Foundation

Wayne Burkhead

Trevi Therapeutics

Kimberly Hossa

The Valhalla Fund $50,000–$99,999

Liquidia Corporation

Bonner Family Private Foundation

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PFF 2024 Donors Robert & Judith Hughen

Thomas Jefferson University

James Johnson

Johnson & Johnson Matching Gifts Program

Scott Thompson

Daniel Jorndt

Trinity Health

Jujamcyn Theaters

The Kobrand Foundation

Paul Ulland

Ashutosh Kadakia

Devi Kumar-Nambiar

UC San Francisco

Willie Kemp

Susan Lotty

UPMC

John Kirkpatrick, MD

Marcia and Ned Kaplin Foundation

Vermeer of Michigan

Linus Koopmeiners

Martin Family Foundation

Weill Cornell Medicine Pulmonary and Critical Care

Diane Laboda

John & Janice Massaua Mary McConney

Nadya Lachman Chuck & Jennifer Lawless

Cori McKenzie

$2,500–$4,999

Michael & Peggy Lipson

David McNinch

Abbott Laboratories

Robert Wendell Logan

Michael P. Savoca Memorial Foundation

Jane Adams

Sally & Gail Martens

Rachel Allen

Meld Financial

Julie Andrews & Family Autumn Armstrong, MD

Lawless Advisory Group at Mesirow Financial

The Bachman Cassera Family

Microsoft Matching Gifts Program

Bank of America Charitable Foundation

Mother Mary Breathe Easy, Inc.

NeRRe Therapeutics New York Presbyterian Hospital

Ray Bishop

Gregory Muir

Novartis Pharmaceuticals Corporation

Sandie Blake

NVIDIA

Boar’s Head

Robert Nycum

Wayne Pan

Boeing Company Gift Match/ BPAC Program

Michael Oddo

The Vinodini Ramanujachar Family

Brndjar Giving Fund

Jonathan Roberson

Andrew Paradis

Dan & Zoë Bubany

Rosa Family Charitable Foundation

The Lesley Pattison Family

Mark Burke

Rosenthal Family Foundation

Jason Calacanis

Pfizer Foundation Matching Gifts Program

Alan & Pam Schwed

Anna Campo

Mark Plourde

Charles Sehlke

John & Mary Agnes Carroll

George & Nancy Poulsen

Charles & Pam Sehlke

Fletcher Foundation, Inc.

Harvey Resnick, MD

Erin Soggs

Loraine Gardner

Linda Runyon

The Spenser Group

Herbert Gedge

Nick Scandalios

Henry M. Staley Charitable Trust

Alice Hales

Schmidt Kaeser Family Fund

Scott Staszak & Laure Dussubieux

Lisa Hall

Ellen Sides

Bill Stevens

Julie Halston

Barbara Smith

Stoelting Co.

Harold D. Wright and Hazel C. Wright Foundation

Bernald Smith

Tampa General Hospital Temple University Health System

Mike & Donna Henderson

The D. Southerland Family

Terrapin Station Foundation, Inc.

Doug & Susan Jacobs

David D. Spaulding

Adam & Jennifer Mills Agha Mirza The Nederlander Organization Matt Nemeth

Linda Olson

Gil & Vicki Moutray

Bert & Susan Oyama

Smith, Gambrell & Russell, LLP

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PFF 2024 Donors Stephen Strasser

John Bishop

Coats Family Foundation

Donna Talbott

Andreas Boeckl

Randall Cochran

Claire Tardy

Thomas & Jean Boltz

Rebecca Cohen, MD

David Teague

Greg Bottorff

Janice Coker

Betty Thomas

The Boutros Family Foundation

Colin Coleman

Todd Tullis

Claira Jean Boyd

Margaret Collins

United Charitable Evans FUNdation

Howard Boyd Tolley

Frank & Barbara Colucci

Susanne Brabrand

Compass Group - Bobby Kutteh

United Health Group (NJ)

Debbie Brackenridge

Stephen & Frances Conley

Robert & Debra Wacker

Marla S. Brady

John Wagner

Virginia Brady

Constellation Energy Group Foundation

The Estate of Nancy Lee Webb

Nicholas Braun

Jane Cooper

Leonard Weiser-Varon

Breckinridge Charitable Fund

Bernard Costello

Nipul & Nita Zalavadia

Judy Breen

Bernard Coulie, MD, PhD

Mary Ann Brinda

Laura Cox

$1,000–$2,499

Margery Brittain

Dorothy Coyle Raclaw

AbbVie Foundation Employee Engagement Fund

Benjamin Brown

Gayle Crowell

Suzanne L. Bruhn

Edward Culhane

Alton Absher

Joseph Buccilli

Brenda Cummings

Patrick & Katy Ahern

Adam Burke

Keith Cummings

Allstate Giving Campaign

The Burke Family Charitable Gift Fund

John Curnutte

American Legion Riders Chapter 283

Charlie Bustin

Robert Dalrymple

Barbara Calvo

Robert Dalsemer

Amesbury Industrial Supply Co.

Canarelli Family Foundation

Sonye Danoff, MD

Marty & Katie Andreou

James Carroll

Constantine Danos

Iqbal Anwar

Ted & Laura Cassera

William & Virginia Darr

Kathryn Artis

David & Ruth Castle

Roberta de Asis

AutoZone

Kristi Cavaliere

Joseph DeCraene

Bill Baert

Cencora

Eric Dedrick

Brian Bailey

Chartwell Law

Michael Delaney

Ali Bajwa

Mary Cilia

Cheri DePoy

Frances Bangert

Alan Cirilli

Bharat Desai

John & Faith Barbato

Jo Carol Clark

Claire C. Desai

The Bay State Federal Savings Charitable Foundation

Mary Clark

Paul & Jennifer Deutsch

Ron Clark

Diamond Hill Investments Charitable Fund of The Columbus Foundation

American Express Charitable Fund

Stephen Bayne Harry Beardsley Elizabeth Beck Tim Bishop

Class of E10 Peter Classi Don Clausen

Neva Curoe

Ron DiDonno Vince & Maria DiMura 17

PFF 2024 Donors Carlinda Dirks

Harry & Lynne Hallowell

Seth Klein

Vincent DiSimone

Mary E. Halston

Kenji Kojima

Gene & Bernie Doherty

Hampshire Fire Protection Co., LLC

Megan Koster

Chris Doughty

Sandra Harasym

Stephen Krane

DRC Holdings, LLC

Lauren Harmon

Christine Kulina

Peter Drench & Anne Ferguson

Andrew Harris

Prakash Kulkarni

Carlos Echeverria

Jay Hartington

Mark La Prade

Jerry Enos

Dawson & Audrey Heck

Gail E. Labbe

Eric and Marijke’s Charitable Giving Fund

Judy Henderson Butler

Manju Lal

Louis Henry

Jeanne Larcombe

Evans Construction Consulting

Michael Higgins

Joseph A. Lasky, MD

Darrel Everman

Derry Holland

Kristin Lazatin

Maura Fennell

Ken & Becky Honeywell

David J. Lederer, MD, MS

Melanie Fenner

Trina Hope

Bob Lee

Carol Feula

Howland Family Foundation

Carolyn Lee

Linda Fisher

Amy Huitt

Deb Lewis

Donna Flewellyn

Bill & Margaret Ismon

Teresa Lim

Forst Foundation, Lincoln Investment’s Charitable Foundation

Christopher James

Susan Lindeboom

Doug & Holly Jensen

Richard & Mary Lou Lindholm

Jennifer Jones

William Line

Phil & Shirley Jones

Christopher Lissner

Ronald Justus

David & Susan Lohr

Linda Kadan

Vincent Lombardi & Ellen Fineberg

Siddhartha Kadia & Anjou Parekh

Cathleen Lonergan

Heather Kagel

Warren & Denise Loveland

Dhruti Kalathia

Sharon Luikaart

The Bakul Kamani Family

Stephen & Sara Lundin

Naynesh Kamani

Larry & Shannon Lynn

Google Matching Gift Program

Sameer Kamani

Joyce MacDonald

Grand Chapter of North Dakota Order of the Eastern Star

Sanjay Kamani

Rebekah Magalis

Snehlata Kamani

John Maitner

Gregory Flood and Linda Korbus Giving Fund

Robert Kaner

Christine Maloney

Ethan & Nicole Kaufman

Robert & Jean Markley

Richard Grissinger

David Kavanaugh

Andrew Marks

Scott Gunnison

Glenn & Christine Kelly

Margery Martin

John Gutgsell

Nicole Kennedy

Michael Mason

Paul Guyre

Elena Khan

John Maynes

Gloria Habiger

Luanne Kip

Eric McCarty & Eric Perry

Dennis Hageman

Kiwanis Club of the Five Towns

Robert McCeney

Amy Fracasso Mark Frank Paul & Judy Freedman Anne Friday Beck GAF Materials The Gaffney Foundation Andy Galbreath Nichola Galentine Anthony & Donna Gentile

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PFF 2024 Donors Grant & Bonnie Mcgee

Surekha Shah

Agnes McGrail

The Ralph and Susan Knopf Charitable Fund

Ruthie McNeil

Jayalakshmi Ramanuja

Sue Shumaker

Saurin, Hema, Misha & Nishay Mehta

Randall Family Charitable Fund

Jan Simmons

Divy Ravindranath, MD

Dhirendra Singh

Robin Meissner

Theresa L. Reed

The Toby & Arun Singhania Family

Metro Services Group

Theresa Reid

Skyline Construction, Inc.

The Michael W. Haley Foundation

Cindy Reierson

Sara Slocum

Friends at Mike Morse Law Firm

Ronald & Mary Retzke

John & Patricia Smeaton, MDs

Philip Miller

Terry Riccardi

Elinora Smith

Michael & Cheryl Mullikin

Brad Rice

Phyllis Sneyers

Barbara J. Murphy

Brian Rieger

Jean Soman

Cathiann Murray

Elizabeth Ritchey

Richard Spencer

John Murray

Kari Roberts

Robert St. Germain

Sam Naficy

Diane Robinson

John L. Stauffer, MD

Scott Nagle

Marcelloo Rodio

Kathryn Stevens

Neena Nandagopal

John Rome

Donna Stone

Nordstrom Employee Charitable Match Program

Candace Rubin

The T. J. Stone Family

Brian Ruder

Northwell Health

Sarah Strasser

Kathleen Rulon

Karen Nuzzo

Vicki Sandburg

Sudha and Ramesh Parekh Charitable Fund

Susan Oakley

Sandra Santana

Jean Suh

John Oates

Lekshmi Santhosh

Daphne Sullivan

Liam O’Connor

Anonymous

John & Nancy Sullivan

Nels Olson

Wilhelmina Savoca

Riley Swineheart

Tom Panoplos

Peter Schafer, PhD

Sandra Tansman

Bill Parsons

Steve & Susan Schnoll Family

Joel Tenenbaum

Hiren & Patti Patel

Olin Schocket

Thomas Family Charitable Trust

Mridula Patel

Mark Schornack

Curt Thompson

Rajal Patel

Rebecca Schrantz-Lilly

Judy Thompson

Pamela Payne

Dwyta Schroeder

Jay Thornhill

Sandra Perusich

Mark & Diane Schwed

Leslie Tolle, MD

Ruth Phelan

Craig & Christine Scott

Sue Torres

Jan Pickett

John Scott

Patrick Toscano

Abigail Pinkele

Mary Scott

Cal & Michele Trevenen

The Poppi Fund

Carolyn Scroggin

The Tully Family

Cindee Porter

Margaret Severson

Patti Tuomey, EdD

Susan Potenza

Hemang & Bindiya Shah

Diane Turner

Paula Pratt

Manisha Shah

USAA

Sam & Becky Sherstad

Matt Prichard & Family 19

PFF 2024 Donors Verizon Foundation

Marsha Anderson

Norman Borden

Vicore Pharma AB

Polly Andres

Willard & Jean Boyer

Vigilant Wealth Management

Paul Armstrong

Ashley Bradt

Paul Vikner

Col. Robert Armstrong, USAF, RET

Gene Brannen

Visa

Jesse Atkins

Joseph Brantley

Laureen Von Elm

Jennifer Bratta

Barbara Wagner

Automatic Data Processing, Inc. (ADP)

Jim Watson

AZ Auto Air

Denise Breeden

Austin & Barbara Waugaman

Roberta Bair Watts

Martin Brennan

Kenneth Weaver

Baker Family Foundation

Courtney Brody

David Wells

Daniel & Lara Balach

Dale & Trixie Brommerich

The Wesley-Granacki Family

Jennifer Ballard

James Brown

Sharon Weston

Eric Barnes

Karen Brown

Melissa Wheeler

Sheri Baron

Kathryn B. Brown

Michael Whitcraft

Pina Barry

Mark Brown

Teresa White

Patricia Bartels

Colette Brust

Jane Williams

Matthew Bates

Patrick & Peggy Buckley

James Williamson

Peter Baumbusch

Building Envelope Systems, LLC

Leon Wilson

Steve Baumgart

Roy & Katherine Bukstein

William Wilt

Dolores Bechtell

Amy Burckhardt

Jake Wolenberg

Alan & Melanie Beck

Billy Burgess

Harriet Wolf

Richard Bedell

John Burgess

Janea Woodruff

David Begala

Luciana Burgess

Chris Wright

Frank Begemann

Joe Burke

Charlton Yu

Katie Belissary

Tami Burns

Matthew Zaglin

Laura Bell

Henry Burr

Shuguang Zhu

Lee Ann Bell

Julie Burruss

AriAnne Berberian

Celeste Burton

Sean Besser Hank

The Family of Henry J. Busch

Lynn Bienas

Michael Callahan

Matt & Dani Bilberry

Campbell Scientific, Inc.

Bill and Sue Cutri Fund of The Pittsburgh Foundation

Timothy Canning

$500–$999 Rose Acuff Allan and Meline Pickus Foundation Omar Alvarado Judy Alvord Amesbury Dental Associates Benno & Phaedra Amormino Wanda Amos Andy Anderson Kyle Anderson

Barbara Bishop Scott Bishop Blume Intergenerational Family Fund Christine Boeckl Janet Bolendz The Book Group

Breath Matters

Jim Cardon Matthew Carmolli Rodney Carr Nancy Carson Donna Cassera DiFerdinando Nancy Cerecedes Emilia Cerrillo 20

PFF 2024 Donors Bruce Champion

Pam Davis

Ralph & Beverly Evans

Hal Chapman

Sunny Dawn

Kathy Faria

Phillip Chase

Jon DeArment

Rev. Reid D. Farrell

Lily Cheung

Jim Deichen

Robert Farrell

Kimberly Chismark

Kathy Deichen

Sherri Farrell

Stephen Choe

Delamar West Hartford

Sam Fatis

Dorothy Christie

Elizbeth Feldman

Reginald Cichocki

Delta Dental Plan of New Hampshire

Robert Cirillo

Patrick DePoy

Jerolyn Ferrari

Cisco Systems, Inc.

Alyssa Deresky

Francine Fielding

Karen Clark

Apurvi Desai

Kathleen Fields

Nina Clarke-Freitag

Cheryl DeVincentis

Gina Finelli

Tona Clayton-Sarniak

Mary Deweese

Paul Finley

Alice Click

Mary Ellen Dick

Tish Fisackerly

A. Rhoda Cohen

Steven Dinger

Edward Foley

Richard Cohen, MD & Libby Cohen

Suneeta Diwaker

Fox Run Management, LLC

Heather Collins

DNV, INC.

Dave Friedman

Margaret Conroy

Dave Dodds

Maria Furman

John & Ruth Cook

Joseph Doose

Garris Evans Lumber Co., Inc.

The Estate of Shelley Lynn Cook

Michael Dorf & Maury Collins

Norman Geils

Philip Cooper, DMD & Kathleen Cooper

Doris and Martin Hoffman Family Foundation, Inc.

Nicholas Georgopoulos

Sue Cordero

Charlie Dozier

Mary Beth Cormier

Norman & Elizabeth Duffett

Gregory P. Cosgrove, MD

Lynne Duffey

Alan Cravitz

Christine Dumich

Robert Creighton

Sandra Duvic

Sylvia Cuiman

Douglas & Marcia Dworkin

Golden Oaks Sr. Golf Team Match Players

Lee Cundiff

Daniel Dwyer

Susan Goldslager

Scott & Kathleen Cunningham

Dynasty Elevator

Barry Goldsmith

Cheryle Curtis

Jerry & Kathleen Eberhardt

Seth Goodchild

Curtis Cusinato

Gayle Edison

Thomas & Diane Gooding

Ronald Dailey

Jeannine Edmundson

Rena Goss

Liam Daly

James Eiting

Kenneth & Marie Gould

Jon Darveau

Donn Eley

Gould Insurance

Larry Darveau

Tara Ellicott

Graco

David and Molly Pyott Foundation

Emmanuel Insurance

Camilla Graham

Misti Davidson

Sharon Eon

Richard & Sally Graham

Ryan Davidson

EP Wealth

Grainger Matching Charitable Gifts Program

Barbara Esau

Kelly Fellbaum

Judy Gerald Flip & Carol Gianos Brett Gierak Margaret Godby Laurie Goldberg

21

PFF 2024 Donors Great Island Realty

Mary Hoskins

Richard Keefer Jr.

Jack Green

Deborah Howard

Laura Kelley

Nora Greife

Jon Hubbard & Linda Nielsen

The Fahad Khan Family

Jim & Lacie Groen

April Hughes

Claudia Kiachian

Sharon Grunst

Hans Hull

Teri Kidwell

Tom Grzebinski & Mike Lorigo

Aldo & Christine Iacono

Brian King

Guggenheim Investments

ICF

Laura Kittleson

Teresa Guzman

Gilbert Infinger

Debbie Klein

Ronald Hageman

Intel Corporation

Tom Klein

Dale & Kathie Hagge

Diane Ireland

James & Lynne Kloek

Stephen & Pamela Hagwood

Dan & Dot Ivey

Ben & Jacqui Knowles

Terence Hales

Carlo Izzo, DDS

Doxa Korolis

Steve & Kayleen Hall

Ellen Izzo

Kevin Kotar

Kathleen Halston

J. Crew Group, LLC

Marilyn Koval

Carol Hamblin

Nancy Jackson

Greg & Michele Kozar

Lava Hansen

Jeff & Margaret Jacobs

Alan & Martha Kruckemyer

Derek Harris

Ruth Ann Jacobson

L3Harris Technologies

Barbara M. Harron

Karl Jaeger

John Lane

Susan Hartong

Lawrence James

Lawrence W. Leff Giving Account

Carol Haskins

Edward Jamieson

Leaf Trading Cards, LLC

Jim Hatch

Lauren Janosy

Dan Lee

Hawthorne Residential Partners

Peter Janovsky

Eric Lefebvre

Jake Heggie

Chris Jenson

Juliet Leftwich

Patricia Henley & Family

Paul Leisner

Ellen Henning

John D. and Catherine T. MacArthur Foundation

Leanna Herget

Gary Jones

Abby LePage

Hewlett Packard Enterprise Foundation

Katherine Jones

Stanley Levin

Richard Jones

Liberty Mutual

Neil Hildick-Smith

JP Morgan Chase Foundation

Maggi Liebig

Suzanne Hill

Marzena Jurek

Andrew H. Limper, MD

Jeff & Cindy Himmel

Laura Justo

Roy & Debra Lindburg

Christopher Hockett

Vipul & Kanan Kalathia

Margie Lindsey

Bill & Barbara Hodsden

Michaela Kalff

Mark Lindsey

Brian & Erin Hoesly

Anjali Kamani

William Lindsey

Carol Hoffman

Snehal Kamani

Joshua Lisle

Emily Hollembaek

Linda Kane

Shirley Liu

David Hooker

Laurence P. Karper, MD

Mark Livak

Habeeb Hooshmand

Carl Kaub

Igor Lotsvin

Charles Horstmann

Jad Kebbe, MD

Carolina Lowe

Rebecca Lemon

22

PFF 2024 Donors Richard Luck

Ione Milhoan

Allie Pang

Mary Jo Lund

Miller and Long

Rajal Parbadia

Basil & Leslie Lyden

David Miller

Santiago Paredes

The Lyerly Family

Jim & Diane Miller

Bevin Parker

Barbara Lynn

Susan Miller

Kevin Patel

Tim Machajewski

Joshua Minix

The Mehul & Nehal Patel Family

Scott Mack

Kimberly Mischke

Toby Patel

Raul Madrid-Zepeda

Ruby Mochidome

Megan Pavelich

Merritt Maduke

Bharti Modi

Kristen Pazik

Colin Magowan

Roma Modi

PEC United Charities, Inc.

Dipa Makim

Ray & Susan Mooers

Connie Perry

Catherine Manning

Edmund Moore

Harmon Perry

Barbara Maring

John Morris

Pamela Peterson

Jill Marks

Robert & Marsha Morris

Betsy Phillips

Nancy Marsh

Claudia Rose Muir

Susan Phillips-Gray

Richard Marshall

Sheila Muller

Katy Pokorny

Frank & Regina Martens

Edward & Karen Murchie

Portsmouth Regional Hospital

Antoinette Martinez

Daniel Murray

Myles Pratico

Monica Martinez

David Myers

Premera at PTO, Inc.

Douglas Martocci

David & Andi Mysza

Progressive Insurance Foundation

David W. Marzilli

Jon Nelson

Pyles Financial Services, LLC

Christopher Mason

Randy & Amy Nelson

David Quinalty

George Massaua

New Castle Congregational Church

Raga Partners

Brett & Lindsay Masterson

Mistey Nguyen

The Farbod Rahaghi Family

Thomas Maul

Azka Niaz

Chandra Ram

Helen Maybaum

Maxine Nicholls

Karl Rathjen

Patrick McCann

Christine Nilluka

Raytheon Technologies

John McClellan

Winifred Nishimine

John Rebele

Daniel & Sarah McCue

Nick Nissen & Kathy Magliato

John F. Rebele

Elaine McCurry

Travis Norman

Ross & Shelly Rebraca

Scott & Karen McGowan

Novara Law

James & June Reed

Tom McKittrick

Jeff Ohe

Douglas Reinbold

The Terry Mcnabb Family

Hilary Olson

Carl Resnick

Gary McNeil

Carol Osterman

Wendy Reynolds

M. Lynn Meadows

Linda Osterman

Charlotte Rhoden

Bernie Medvedev

Jane Ovitz

Eileen Richardson

Mary Mellon

Duane Oyen

John Riley

David Meyer

Istvan & Laura Palagyi & Family

Cary Robinson

Marilyn Mezzo

Nayankishor Pandya

Robin Roby 23

PFF 2024 Donors Rochester Lodge #21 AF & AM

Bob & Susan Sigel

Thomas Thatcher

Debra Rodkin

Gregory Silva & Cynthia Camp

Krishna Thavarajah, MD

Jesse Roman, MD

Ravi Singh

Joe Thomas

David Rosenzweig

Sharon Sklar

Cory & Suzanne Thorstenson

Robert H. Ross & Patricia Lahrmer Ross

Jeffrey Smiejek

Kimberley Threadgill

Kevin Smith

Thrivent Choice

Julie Rossignol

Winthrop Smith

Catherine Todd

Elizabeth Ruane

Jane Sondergeld

Robin Tomlin

Joel Rumm, DVM & Mary Jean Carbone

Sonia and Asheet Parekh Family Charitable Foundation

Theresa Tozier

Sarah Rumph

Ron Sorini

Julia Runyon

Thomas Trissl

Barbara Sourjohn

Stephen Russell

David Tubman

Southern Management

Edwin Sakamoto

Steve Tucker

Marilyn Spencer

Salamone’s Restaurant, Inc.

Mary Turner

Mary Alice Stadum

Nancy Sanchez

Scott Turner

Ashley Stanley

Rosemarie Sansone

Julie Upham

Molly Stassfurth

Paul & Beth Sartori

Scott Upham

Charles Stealey

Fabio Saturni

Nancy Utz

Bill Stedman

Scott Saunders

Meghan Valle

Karel Steiner

Shane Savant

Christine Vasquez

Gary Stetz

Johanna Schaub

Teresa Vasquez

David Stewart

Scott Scherer

Marissa Vawter-Lee

Jerry Stewart

Maria Schillaci

Pat Verhoeven

The Stewart Title Foundation, Inc.

Fred Schroeder

Verisign Cares

Phyllis Stibler

Patti Schuch

Dorothy Vernimb

John Stigi

David Schulte

Sandra Viner

Susan Stoker

Bruce & Roni Schwartz

VMware Foundation

Kathryn B. Stone

Seacoast Volkswagen

Lois Vorhis

Jeffrey Stone

Lukas Sehlke

Michael & Tammy Vrabel

Marcia Seremet

The Stratton Family Charitable Fund

Courtney Wallace

Paula Severson

Becky Suttles

Maria Seward

Donald Swanson

Lewis Shaw Susan Shelton

Nathan Swingley & Amanda Swingley, DO

George Shepherd

Meredith Taylor

The Sherwin-Williams Company

Ross Taylor

Whetherly Shipman

Candace Terrill

Jessica Shore

Texas Coast Interests, Inc.

The D. Sibley Family

Texas Instruments Foundation

Kathryn Trebonsky

Gerry Wallace Steve Ward Bruce Wardinski Amy Wardzala Irene Wardzala Tammy A. Warren John Wasserman & Esther Starrels Sharon Watson Byron Webster 24

PFF 2024 Donors Nicole Welch

Ramona Winarski

Martha Wentworth

Kathleen Wittau

THE ALBERT ROSE LEGACY SOCIETY

Doug Wenzel

Linda Kay Witters

Estate of Ana Gross

Elizabeth Wertheim

Witt’s Food, Inc.

Estate of Lisa Hooker Shultz

Lois White

Dawn Womack

Estate of Denise Kay Harris

Kevin Whitley

Alice Wyland

Kimberly A. Becker Trust

Charles Whittington

Michael Yannell

Glaten Wood

Thaddeus Wiitanen

Mark Yoder, MD

Floyd Mayes

Art Wilkonson

Susan Yturraspe

Alice and Steve Purlington

James A. Williams

Mark Zacharias

Robert Williams

Hasmukh & Rinkal Zalavadia

Lois Wilson

Zausmer PC

Michael Wilson

25

223 W. Jackson Blvd., Suite 350 Chicago, IL 60606 Phone: 844.TalkPFF 844.825.5733 help@pulmonaryfibrosis.org pulmonaryfibrosis.org

OUR MISSION The mission of the Pulmonary Fibrosis Foundation is to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis. Until this goal is achieved, the PFF is committed to advancing improved care of patients with PF and providing unequaled support and education resources for patients, caregivers, family members, and health care providers.

844.TalkPFF (844.825.5733) | help@pulmonaryfibrosis.org pulmonaryfibrosis.org