NEW SOUTH WALES NF HEALTH PROFESSIONAL DIRECTORY This list of clinics, support services and specialists has been developed based upon the recommendations of families and individuals within the NSW community. This is not intended to be a complete list. As CTF does not have direct knowledge of many of the specialists listed within this document they cannot be considered to be endorsed by us. It is important for everyone impacted by NF to have a good General Practitioner (GP)/family doctor who can make note of any changes over time and can assist with specialist referrals when required. Most importantly you should have a good relationship with your GP, and they should be either willing to go away and do their own learning about NF or be guided by you and your individual needs. It is recommended that children see a paediatrician and ophthalmologist at least once every 12 months for ongoing monitoring and management along with any other specialists your medical practitioner deems appropriate. Many adults with uncomplicated NF may best be served by regular visits to their GP alone for at least annual blood pressure checks and monitoring of any new features of the condition with referral to specialists as required. For those impacted by NF2, Schwannomatosis or complicated NF1 it may be that you/your child is more closely monitored by either a neurologist, neurosurgeon with input from other specialists as needed. You may also like to see a Genetic Counsellor. You can find clinic details here: https://www.genetics.edu.au/genetic-services/general-genetics-clinics#nsw-regionalcentres and related information https://www.genetics.edu.au/individuals-and-families/genetic-conditions The below list is a good place to start as these are specialists who have an interest or knowledge of these conditions. This list is by no means exhaustive and is current as of November 2019, but you can contact us for updates as required. Many people with uncomplicated NF can be managed by their GP.
Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
LOCAL HOSPITAL
Hospital Details Name Prince of Wales Hospital
Location City Randwick
Royal Prince Alfred Hospital
Camperdown
Royal North Shore Hospital
St Leonards
St Vincents Hospital
Darlinghurst
Sydney Children’s Hospital, Westmead
Westmead
Address 320-346 Barker St, Randwick NSW 2031 50 Missenden Rd, Camperdown NSW 2050 Level 3, Car Park, P1/1 Reserve Rd, St Leonards NSW 2065 390 Victoria St, Darlinghurst NSW 2010 Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145
Phone Switchboard (02) 9382 2222
Outpatient Appointments
(02) 9515 6111
(02) 9926 7111
(02) 8382 1111
(02) 6205 2333
Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
SPECIALIST CLINICS Clinic Details Location
Neurogenetics Cnr Hawkesbury at Children’s Rd &, Hainsworth Hospital at St, Westmead Westmead NSW 2145
Doctors/Team of Specialists
For Appointments
NF1
NF2
Paed
Adult
Phone: (02) 9845 1325
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Notes
Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
Qualification
Name
Insitution/Practice
Address
Paedatric & Adult Neurosurgeon
Dr Brian Owler
Wahroonga Clinic
185 Fox Valley Rd, Wahroonga NSW 2076, Australia
Paedatric & Adult Neurosurgeon Adult Neurologist
Dr Brian Owler Dr Tom Wellings
Suite 312 Q Central, 10 Norbrik Drive Bella Vista, NSW 2153 20 Lambton Road Broadmeadow NSW 2292
A/Prof Antonio Fernandes
Bella Vista Clinic Clinic in Broadmeadow Plastic Reconstructive Hand & Cosmetic Surgery Camden Clinic
Dr Paul Stalley
St Vincents and Westmead Ch's Hospital
125 Ourimbah Rd, Mosman NSW 2088
Dr Paul Stalley
St Vincents and Westmead Ch's Hospital Department of Clinical Genetics (Liverpool Hospital)
126 Ourimbah Rd, Mosman NSW 2088
Kogarah Genetic Counselling Royal North Shore Hospital Westmead Private Hospital Opthamologist in Drummoyne Department of Clinical Genetics (Westmead) Westmead Adult Hospital Genetics Clinic Wagga Wagga Northwest Health 76 Prince Medical and Orange Dermatology
St George Hospital (Clinical Genetic Service), Gray St, Kograh, 2217 Reserve Rd, St Leonards NSW 2065 Suite 10, Westmead Private Hospital Westmead NSW 2145 Level 3/135 Victoria Rd, Drummoyne NSW 2047
Adult Plastic Surgeon Adult Plastic Surgeon Bone/Soft Tissue Sarcoma Bone/Soft Tissue Sarcoma
A/Prof Antonio Fernandes
Clinical Geneticist
Dr Alison Colley
Clinical Geneticist Clinical Geneticist ENT Specialist Eye Surgeon
Dr Rani Sachdev Dr Yemima Berman Dr Melville da Cruz A/Prof Ross Benger
Genetics Genetics GP GP GP
A/Prof Meredith Wilson Dr Kristi Jones Dr Phillip Knowles Dr Mamunur Rashid Dr Christie Beveridge
Limb Reconstruction Surgeon Cancer Geneticist Clinical Geneticist Clinical Geneticist
Dr. Tim O'Carrigan Dr Kathy Tucker Prof. Kristi Jones Dr Yemima Berman
Clinical Geneticist
Dr Sue-Faye Siow
Sydney Bone and Joint Clinic (SW Sydney) Hereditary Cancer Service Department of Clinical Genetics Department of Clinical Genetics National Health and Medical Research Council
Suite 3, 92 Bathurst Street 35 Elizabeth Street Camden NSW 2570
Clinic B, Reception 112 (near lift B)Level 1 Clinical Services Building, Elizabeth Stree
Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145 Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145 Ave, Nsw 2650, Wagga Wagga NSW 2650 Shop 15, New England Highway Tamworth NSW 2340 95 Peisley Street, Orange NSW 2800 Suite 303 2 Technology Place Macquarie University 2109 Sydney Childrens Hospital Randwick Childrens Hospital at Westmead Genetics Clinic at Royal North Shore Hospital
Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
Clinical geneticist Clinical Geneticist Clinical Geneticist clinical geneticists Clinical Genetics Clinical Genetics Clinical Genetics Clinical Genetics
Ms Ashely Crooke Dr Bernadette Hanna Dr Sarah Sandaeadura Dr Tracy Dudding-Byth Dr Annabelle Enriquez Dr Dulani Siddhisena Dr Sarah Josephi-Taylor Dr Clara Chung
Clinical Genetics
Dr Sondhya Ghedia
Dermatologist Dermatologist Endocrinologist Genetic Counsellor Genetic Counsellor Genetic Counsellor
Prof. Gayle Fischer Dr Rebeacca Saunderson Dr Ammar Wakil Ms Katie Nelson Domonic Ross Ms Rachael Stenhouse
Genetic Counsellor Genetic Counsellor Genetic Specialist GP Immunologists Lecturer/Researcher Limb Reconstruction Surgeon
Dept of Clinical Genetics, Royal North Shore Hospital The Children's Clinic Children's Hospital at Westmead Hunter Genetics Liverpool Hospital Hunter Genetics Dept of Clinical Genetics Liverpool Dept of Clinical Genetics, Royal North Shore Hospital
Dr Lesley Andrews Dr Jane Flemming Dr Karl Baugmart Rosie O'Shea
North Shore Private Hospital Dept of Dermatalogy Kanwal Specialist Consulting Rooms Royal North Shore Hospital St George Hospital Sydney Dept of Clinical Genetics Dept of Clinical Genetics, Royal North Shore Hospital Genetic Counsellor at Royal North Shore Hospital Nelune Comprehensive Cancer Centre Kolling Institute Medical Clinic in Wahroonga Kolling Institute
Dr. Tim O'Carrigan
Sydney Bone and Joint Clinic (SW Sydney)
Ms Lucinda Freeman Stepahnie White
Royal North Shore Hospital The Children's Clinic, Bondi Junction NSW 2022 " " Hunter Genetics, PO Box 84, Waratah, Newcastle Nepean Hospital, PO Box 63 Penrith NSW 2751 10 Olscen Crescent, Warners Bay, 2282 1 Cambden St, Newton, 2042 Liverpool Hospiatl Level 3E Admin Royal North Shore Hospital Pacific Suite 7, Level 4 North Shore Private Hospital ST LEONARDS, NSW, 2065 Royal North Shore Hospital Suite c16 Pacific Highway Kanwal, NSW, 2259 Reserve Rd, St Leonards NSW 2065 Level 1, Prichard Wing. Phone: (H) (W). St George Hospital Royal North Shore Hospital, St Leonards Royal North Shore Hospital, St Leonards Royal North Shore Hospital The Bright Alliance Building Barker St Randwick NSW 2031 Level 7 Kolling Institute, 288 Burns Bay Road 10/176 Fox Valley Rd, Wahroonga NSW 2076 Level 7 Kolling Institute, 288 Burns Bay Road Level 1, Suite 20, 42 Parkside Crescent Park Central, Campbelltown NSW 2560 Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
Neurogeneticist Neurogeneticist Neurologist Neurologist Neurologist Neurologist Neurologist Neurologist (NF1 & NF2) Neurosurgeon
Daralyn Hodgson Dr Hannah Jones A.Prof. Mark Hersch Dr Stephen Redell Dr Katrina Morris Dr Louise Allport Professor Jonathan Sturm Raymond Garrick Dr Mark Dexter
Neurosurgeon Neurosurgeon
Dr Michael Biggs Professor Robert Heard
The Children's Hospital at Westmead Neurogenetics Children's Hospital at Westmead St George Hospital Sydney Sydney Neurology Sydney Neurology St George Hospital Sydney Neurology Services St Vincents Clinic Westmead Private Hospital Suite 8 Royal North Shore Hospital & North Shore Private Gosford Private Hospital
Neurosurgeon & Specialist Spine Surgeon
Dr Jonathon Ball
North Shore Consulting Rooms
66 Pacific Hwy, St Leonards NSW 2065
Neurosurgeon & Specialist Spine Surgeon
Dr Jonathon Ball
North Shore Private Hospital
3 Westbourne St, St Leonards NSW 2065
Neurosurgeon & Specialist Spine Surgeon Oncologist Oncologist Oncologist Ophthalmologist Ophthalmologist
Dr Jonathon Ball Dr Mark Wong Dr Mathilda Wilding Dr Mark Wong Dr John Grig Dr Maree Flaherty
Royal North Shore Hospital Westmead Hospital Westmead'd Children's Hospital Medical Oncology Westmead Save Sight Institute Children's Eye Centre
Reserve Rd, St Leonards NSW 2065 109 Mulga Rd, Oatley NSW 2223 Darcy Street, Westmead, New South Wales, 2145, Australia Westmead Hospital 166-174 Hawkesbury Rd Westmead NSW 2145 South Block, Sydney Eye Hospital, 8 Macquarie Street, Sydney NSW 2000 73 Darcy Rd, Wentworthville NSW 2145
Ophthalmologist & Neurologist Opthalmologist
Dr Dennis Lowe Dr A K Sharma
Dr Lowes Rooms Riverina Eye Care Surgery
Level 1 / 82 Elizabeth Street Sydney, NSW 2000 98 Best St, Wagga Wagga NSW 2650
Cnr Hawkesbury Rd &, Hainsworth St, Westmead NSW 2145 Cnr Hawkesbury and Hainsworth St, Sydney, 2138 1 South Street Kogarah NSW 2217 Lvl 4, 94 Mallett Street,Camperdown NSW 2050 Lvl 4, 94 Mallett Street,Camperdown NSW 2051 Gray St, Kogarah NSW 2217 Suite 4, Level 1, 7 Mingara DRIVE, TUMBI UMBI, 2261 438 Victoria St, Darlinghurst NSW 2010 Suite 8 Westmead Private Hospital Westmead NSW 2145 North Shore Private Hospital, 3 Westbourne St, St Leonards NSW 2065 55 Hills St, Gosford NSW 2250
Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
Orthopaedics/Oncological Surgeon(Neuromusculor) A/Prof Ian Woodgate
Hip Knee Tumour Surgery
Suite 1C, Level 6/75 Crown St, Woolloomooloo NSW 2011
Otolaryngology - Head and Neck Surgery (ENT) Otolaryngology (CIs) Otolaryngology (CIs) Paedatric Endocrinologist
Dr Nigel Biggs Professor Bill Gibson Professor Bill Gibson Dr Bruce King
St Vincents Clinic Healthy Hearing and Balance Care Sydney Cochlear Implant Centre John Hunter Hospital
438 Victoria St, Darlinghurst NSW 2010 Suite 1204, 1 Newland St, Bondi Junction NSW 2022 Building 39, Old Gladesville Hospital, Punt Road Gladesville NSW 2111 Lookout Rd, New Lambton Heights NSW 2305
Dr Robert Smith
John Hunter Children's Hospital
Lookout Rd, New Lambton Heights NSW 2305
Dr Ian Kennedy
24 Blenheim Street Randwick NSW 2031
Dr Richard Webster Dr Helen Young
Ian Kennedy Practice Dept of Neurology, Childrens Hospital, Westmead Neuropathy Diagnostiv and Management Clinics Childrens Hospital Westmead Childrens Hospital Westmead
Paediatric Oncologist Paediatrician Paediatrion
Dr Geoffrey McCowage Dr David Newsom Prof. Aaron Schindeler
Cnr of Hawkesbury Road and Hainsworth Street Cancer Centre for Children Westmead NSW 2145 Albury-Wodonga Paediatric Group 432 David Street Albury NSW 2640 Bioengineering & Molecular Medicine laboratory at The Children’s Hospital at Westmead
Plastic & Reconstuctive Surgeon Plastic Surgeon
Dr Peter Hayward Dr Darrell Perkins
Plastic surgeon Plastic Surgeon Psychologist Psychologist
Dr Ilias Kotronakis Dr Peter Hayward Dr Jennifer Lorenzo Melissa Rouel
Paedatric Neurologist Paedeatric Opthalmologist Paediatric Neurologist Paediatric Neurologist Paediatric Neurologist Paediatric Neurologist
Dr Simone Ardern-Holmes Mr Manoj Menezes
Dr Peter Hayward's Surgery Dr Darrell Perkins Surgery St George Private Hospital, Kareena Private Hospital Westmead Private Hospital Childrens Hospital Westmead Kids Neuroscience Centre
Childrens Hospital at Westmead The Children's Hospital at Westmead Childrens Hospital at Westmead
Suite 5, 34 Woodriff St, PENRITH, 2750 14 Kensington St Kogarah, NSW 2217 Suite 5.07 15 Kensington Street KOGARAH, NSW, 2217 Hainsworth St, Westmead NSW 2145 Corner Hawkesbury Rd and Hainsworth Street, Westemad, NSW, 2145 Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534
Researcher
Emily Vasiljevski
Student of Master of Genetic Counselling Surgeon Neuro-Psychologist Opthalmologist Neurologist
Ms Mei Yi Wong
Psychologist
Dr Sean Flanagan Dr Stephanie Malarbi Prof John Grigg Dr Walid Matar Dr Belinda Barton
PHD Candidate at Kids Research University of Sydney ENT Surgery, St Vincent's Hospital Campus Murdoch Childrens Research Institute Save Sight Institute Dept of Neurology, St George's Hospital Children's Hospital Education Research Institute
Childrens Hospital at Westmead
Ground Floor, 67 Burton St, Darlinghurst, St Vincent's Hospital Royal Children's Hospital Sydney Eye Hospital 28 Gray St, Kogarah, NSW 2217 Childrens Hospital at Westmead
Children’s Tumour Foundation of Australia Suite 2, 451 Lyons Road West Five Dock NSW 2046 | PO Box 454 Five Dock NSW 2046 P 02 9713 6111 | F 02 9712 8524 | E info@ctf.org.au | W www.ctf.org.au ABN 26 148 815 534