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Coping as a carer
from Emphasis Summer 2022
by PHA UK
Do you care for or support someone with PH?
This is your chance to be part of an important new study into coping.
We’re working with researchers to investigate the impact of PH on individuals and their caregivers, and whether ‘self-compassion’ can be a helpful way of coping.
The word self-compassion can mean different things to different people. For some, it means treating themselves with kindness, care and understanding. Self-compassion may be especially important when we are experiencing difficulties in our life.
The results of this study will be used to help us better understand how people cope with the impact of PH and inform possible treatments in the future.
Please note, the term ‘caregivers’ is used to describe anyone who supports someone living with PH. This could be a partner, family member or friend, and the support you provide could be emotional, physical, or practical.
This research is being conducted in collaboration with Nottingham Trent University and Cardiff University and is being led by clinical psychologist Dr Gregg Rawlings.
Dr Rawlings has worked with PHA UK on similar research studies, including developing the valuable selfhelp programme on page 24, which has now been made available to everyone. This study into compassion and PH is for you if: • You are over 18 and live in the UK • You provide unpaid care for or support someone with pulmonary hypertension
What’s involved?
You will first be asked to read a Participant Information Sheet that will provide you with more information about the study. You will then be asked to complete a consent form before a series of questionnaires asking you about your demographics and experiences of anxiety, depression, quality of life, self-compassion, and ‘caregiving burden’.
The questionnaires should take approximately 20 minutes to complete.
Find out more or volunteer to take part at bit.ly/compassion_PH
Please sign up before 5pm on 15th August 2022. If you have any questions please contact Dr Gregg Rawlings, at Gregg.Rawlings@NTU.ac.uk
