Upcoming Oley Events

Using Your Story as a Catalyst for Change

MARCH 29, 2024 • 6:00 PM / 9:00 PM

(Rescheduled from March 22 to March 29.)

We recognize that each patient carries a unique narrative of resilience, strength, and triumph over adversity. The goal of this interactive workshop is to empower patients to articulate their stories in a way that has the potential to have a significant impact on a systemic level. By emphasizing the shortcomings in the healthcare system and illustrating the personal implications, we will work together to create narratives that contribute to the larger discussion around changing that system.

Tips, Tricks, Policies & Protocols for Traveling with Nutrition Support

APRIL 26, 2024 • 6:00 PM / 9:00 PM

Travel is a topic we’ve covered a number of times, and that is because we have such a diverse membership population, some of whom have traveled the world and some of whom might be traveling with a tube for the first time.

We’ll use part of the time to share some basic tips and tricks we’ve gathered along the way, but also dive deeper into the difference between domestic and international travel, driving versus flying, pharmacy policies, and other things that may be helpful to know, especially with the 2024 Oley Annual Conference less than two months away!

Webinars

Advocacy 101: Making Your Voice Heard from the Doctor’s Office to Capitol Hill

MARCH 26, 2024 • 11:00 AM

Join Amelia Williams from Young Adult Rare Representatives in a webinar packed with advocacy tools. Learn how to amplify your voice in healthcare settings and influence policy decisions at state and federal levels. Discover different advocacy avenues, hear Amelia’s journey firsthand, and gain practical advice to kickstart your advocacy journey. Don’t miss your chance to ask questions and take the first step towards impactful advocacy.

Register today!