Collecting with disabled people

On the importance of providing accurate information.

“My family member has difficult veins to access, and they have Down Syndrome, which can make the collection a bit challenging. We came to the collection clinic because we were told they have a vein finder. We confirmed this information three times before making our appointment. When we arrived, there was no vein finder. As a carer, it is so frustrating to be told incorrect information, particularly for my family member who is challenged to give blood. I am worried that the traumatic event could jeopardize future attempts for them. Thankfully blood was collected manually but I am still upset we were told many times a vein finder was available, but staff never produced it”

Here are several things we must do:

• Speak directly to the person, as well as any carers or family members • Not assume we know about a person’s disability by their appearance (for example, assuming because they have facial difference, that they also have a mental disability)

What helps

Asking the patient where they would like the blood collected from and/or listening to their advice as they

may know their body well. They may have had many blood tests before and may know what works well for them.

Engaging with them. It is important not to communicate only through a carer, if present, but to communicate with and involve the patient.

Using assistance where required. You may need assistance with keeping a limb in a stable position or using a different site for collection if usual sites are not accessible for example, amputated limbs or muscle constrictions.

Being patient and respectful. Don’t rush people, take the time to ensure they are comfortable with the procedure and always treat patients with respect.

What hinders

Not acknowledging people’s knowledge of their body.

They may know their body well and what works for them for collections. Use their advice, combined with your own expertise to carry out the collection.

Making assumptions. Do not make assumptions about a person based on their appearance or disability.

Asking questions about them, as if they weren’t there.

Engage with the patient and include them in your communication.