Becoming a strong disability self-advocate

As an individual with autism, I’ve come to understand and appreciate the importance of strong self-advocacy skills. Though the world is changing and reasonable accommodations are more commonplace, that is not true everywhere. Individuals with disabilities still may struggle to access appropriate services and integrate into their communities, among other hurdles.

The following are important skills and activities of which I believe every selfadvocate should be aware. When we have an understanding of our wants and needs, we are better able to advocate for change in our communities to create a more inclusive world for everyone. VOTE COMPETENTLY — Research how politicians view policies and practices that affect those with disabilities. Some examples include special education laws and access to health insurance. I disagree with the expression, “It’s not polite to talk politics.” Issues that affect our very right to exist, as full members of society, should be discussed openly and competently — difficult conversations are still worth having.

— I think it is fair to say that most people who underestimate those with disabilities aren’t bad people, they’re just misinformed. Many self-advocates speak at conferences and take an active By Nathan Morgan

role in providing training opportunities for medical and therapeutic providers. Others share about their disability through social media and video blogs. Even if it’s just within your own group of friends or family, sharing about your disability breaks myths and creates better understanding and, therefore, a more inclusive community. BE PROACTIVE — Many businesses have started to have sensory-friendly shopping times and events. If you know that there are certain times that might be too crowded and overwhelming for you, try going to stores and restaurants at less busy times. Are there places you frequent that could be doing a better job of providing accommodations or activities for people with disabilities? Call them and provide kind, constructive feedback. Many businesses are finding that being inclusive helps their bottom line and helps you as a shopper — everybody wins.

WEAKNESSES) — Self-discovery is very important for every self-advocate. Everyone, regardless of whether they have a disability, has their own unique strengths and weaknesses. I have found that journaling about daily activities helps me to identify my strengths and weaknesses. It helps me to reflect on my day; on what went well and what could have gone better. Talking to a counselor also can be enlightening. Having unbiased feedback from a supportive person can be very helpful. Self-discovery gives us a better understanding of where we might need supports and where we have unique gifts to share.

AND CONNECT — There are many types of group models (e.g. support, structured activity, advocacy) for people with disabilities. Discussing important topics with people who have a shared background is empowering. It is also a good way to learn what strategies others are using to navigate their daily lives.

If you are having trouble finding groups to connect with, the Milestones free Autism Helpdesk can help you find a list of community-based groups in your area. Give Milestones a call at 216-464-7600 ext. 200 or complete an intake form at milestones.org/helpdesk.

Nathan Morgan, MSSA, LSW, is an autism self-advocate and the early intervention/school age coordinator at Milestones Autism Resources, located in Warrensville Heights. Passionate about providing autism education to families and to the community at large, Nathan is active in sharing his experiences as an individual on the spectrum at events, on panels and through his writing. Nathan has a BA in psychology and Japanese, and an MSSA from Case Western Reserve University.