North Devon Hospice Annual Review 2011-2012

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> Image by Grant Stringer from the UK National Sandcastle Competition

Annual Review 2011-2012 being there for all the family

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Dear friends, This year’s Annual Review showcases some of the services delivered to patients and their families throughout North Devon.

North Devon Hospice started some 28 years ago, providing nursing support in people’s homes throughout the community and working out of a two-up-two-down on Vicarage Lawn in Barnstaple. We have continued to place our efforts towards going ‘back to our roots’ which aims to provide even more care where people want it, which is most often at home.

The start of the ‘back to our roots’ journey saw us integrate the Community Palliative Care team this year from North Devon District Hospital. They provide vital night time care in the homes of our patients, supporting both them and their families towards the end of their journey. Investing in this essential care and support is so valuable to so many people, that is why our vision going forward is to continue delivering even more care at home.

I am often humbled by the people we support, the stories I hear and the generosity of the local community in helping to make our care and support possible. It is only thanks to this amazing support that we are able to do what we do, and continue our mission of providing specialist care and support where people need it.

Thank you so much.

Angela Webb Chairman of North Devon Hospice << Alongside ‘In the Making’ workshops for patients, carers and their families, the garden sculpture workshop brought people together in a peaceful and therapeutic environment. Each person painted their own wooden post, many having their own personal meaning and significance. The sculpture can be appreciated by all at the hospice gardens.

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“I’d like to think that I can help someone else, touch their life” “Well you’ve touched my life mate, you really have” An exchange between two patients

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Being there for the journey When someone is diagnosed with a life-limiting illness, life as you have known it changes forever.

Through counselling, spiritual care, self help techniques and group work, the Supportive Care team has offered men, women, children and families the time and the space to look at what is happening in their lives and the opportunity to explore what this means for them. They have supported over 1,200 people during the past 12 months.

When coping with the challenges of illness, hospital appointments, treatments and all the uncertainty, nourishing and relaxing experiences are important.

Pamper days and complementary therapies for patients and carers help people through a difficult time and can also relieve physical symptoms as well as the side effects of treatments. Creative art workshops allow room for self expression and provide opportunities to make treasured keepsakes.

Talking with those in a similar situation is also extremely important, which is why Day Hospice continues to be popular with patients. Held every Tuesday, Wednesday and Thursday, Day Hospice offers people the chance to spend the day together and enjoy the company of others facing the same challenges.

It is a comforting and supportive environment, where laughter is shared and there are many different activities on offer. This may help patients gain a sense of purpose and boost self-esteem. Last year there were more than 1,000 Day Hospice attendances. << When a father expressed concerns that his 7 year old son may not remember him or have anything to remember him by, the â&#x20AC;&#x2DC;Something for Youâ&#x20AC;&#x2122; day was organised. A day of workshops enabled patients to make something special for their loved ones.

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â&#x20AC;&#x153;We will never forget the help and kindness you have given us through these really distressing times.â&#x20AC;?

A son and daughter shortly after losing their mother

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Being there in the community At home Our care and support has been provided free of charge in the homes of our patients and their families for over 28 years and today, it is still where the majority of care takes place.

During the day Working alongside local GP practices and District Nurses, our Clinical Nurse Specialists offered symptom control, emotional support and advice to those in our care; making over 5,000 visits to patients and their families throughout North Devon and travelling 55,675 miles to reach them.

Throughout the night Our Support Workers continued to provide personal care and support to patients who were nearing their final days and were there for 171 patients, their families and carers during their difficult time. During the last year we have invested in growing our support teams, ensuring more people can be supported.

<< Every year on Instow beach, local gig boat teams guide a wicker raft out to sea at our remembrance event, Floating Bye. Each gerbera flower carries a message for a loved one.

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Being there with 24 hour care The Bedded Unit In the tranquil setting of the Bedded Unit, patients and their families can spend meaningful time together, supported by a team of healthcare professionals including doctors, nurses, allied health professionals and volunteers.

For the 171 patients admitted, the Bedded Unit provided symptom management and end-of-life care for patients and their families with complex palliative and end-of-life care needs. For the majority of patients who were admitted, most returned home after their symptoms were managed. For patients who spent their final days with us, the Bedded Unit provided a safe and caring environment, where all the family could access care and support.

The Hospital The expertise and specialist palliative care associated with our Bedded Unit is reflected in the Specialist Palliative Care Team based at the North Devon District Hospital. The team continues to provide specialist palliative and end-of-life care to patients with life-limiting illnesses and their families, as well as advice and support to other healthcare professionals.

<< People from across the community take part in the annual â&#x20AC;&#x2DC;Great Devon Dangleâ&#x20AC;&#x2122; near Hartland to raise money for patient care.

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Being there alongside our healthcare partners Awareness and education is an essential part of integrated hospice care.

Last years education programme delivered over 120 training sessions and 40 study days, ranging from introductory sessions to a â&#x20AC;&#x2DC;Specialist Approaches to Palliative Care and Care of the Dyingâ&#x20AC;&#x2122; module, which contributes to the Plymouth University Health Studies degree.

Working in partnership with the Northern Devon Health Care Trust, NHS Devon, University of Plymouth and other hospices throughout the region, we provide education and training free of charge to a wide range of people, from District Nurses to Care Home employees.

With thanks to NHS Devon for sponsoring some of the education courses in end-of-life care.

<< Community fundraiser John, completing the challenging Ultimate Wipeout event.

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Community Itâ&#x20AC;&#x2122;s amazing what you can achieve when you work together.

Everyday, in all that we do, our volunteers continue to make such a difference.

They generously gave 147,605 hours of their time last year.

Within those precious hours we saw friendships, listening ears when someone needed to talk, chatting over lunch, laughter, creative flair in the charity shops, marshals at events like Nightwalk, behind the scenes support in our offices, volunteer drivers who were there to take patients to and from the hospice, painters and carpenters to help maintain the premises, fantastic caterers and bakers, artists who invited patients to workshops to embrace their creativity, gardeners, counsellors who were confidants and advisors, and so much moreâ&#x20AC;Śthank you.

Unity is priceless

<< The ever popular UK National Sandcastle Competition is supported by teams of volunteers who, year on year, help make this a fun day for all the family.

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â&#x20AC;&#x153;Before I was in the shadows.

The group has brought me into the lightâ&#x20AC;?

A patient refering to our patient support group

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Being there because of you Last year, just over 20% of our income came from those who thought of us in their will.

We are always so touched and so very grateful to everyone who includes us in their wishes. Being remembered in someoneâ&#x20AC;&#x2122;s will means that we can continue caring for patients across the community and supporting the people who love them. Speaking to people who we know have included us in their will, we have found that they do this because they have comfort from knowing that they have left a legacy of continued care to the community of North Devon.

After thinking of your family and friends, if leaving a gift is something you or your friends may consider, we would be grateful to hear from you.

Thank you.

<< Nightwalk is a special evening of community spirit and getting together for women across the area.

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Income

%

NHS Devon Fundraising Legacies Lottery Shops Investments & other

26 26 29 8 6

Income

£3,972,008

5

Expenditure

%

Care Fund generation Education Governance

79 16 3 2

Expenditure

£3,825,586

This summary of financial information is based on the statutory accounts for the year ending 31st March 2012 audited by Thomas Westcott. The Trustees’ Report is available from the North Devon Hospice website or by a request in writing. To be consistent with previous years lottery and retail is shown as net income.

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Strengthening our charity During the past 12 months we have continued to explore ways to save money and reduce our costs, with notable outcomes. With the delivery of care and support at the heart of everything we do, we have directed funds into growing frontline services to meet the needs of the community. a Expanded frontline nursing and care services a Recognised at the Third Sector Awards and the Care

Quality Awards

a 100% compliance with the Care Quality Commission a Installation of free solar panels, saving us around ÂŁ4,000 a every year on electricity, thanks to the national fund, Energyshare

a Consolidation of energy supplies with estimated

saving of up to ÂŁ15,000

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We would like to thank everyone who has contributed to North Devon Hospice, as it is only through your support, time and money that we are able to continue supporting and caring for people with life-limiting illnesses throughout North Devon.

We would also like to give particular thanks to our governing board of volunteers:

Our President

Board of Trustees 2011-12

Right Reverend Robert Evens, Bishop of Crediton

Chairman, Angela Webb Vice Chair, Barbara Bollom Treasurer, Stephen Scoffield Alison Dyer (appointed October 2011) Andrea Rowe Andrew Jackson (appointed October 2011) Barbara Sheppard (stepped down March 2012) Christopher Clapp David Trueman (stepped down March 2012) Dr. Eric Holmes (stepped down January 2012) Kenneth Clarke Mike Ford Paul Hevingham (appointed October 2011) Philip Loft

Vice Presidents David Morgan David Whitely Gavyn Davies OBE Geoffrey Cox QC MP John Riley Lady Stucley Mark Parkhouse DL Nick Harvey MP Philip Jewell Ron Ley The Hon. John Rous DL

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Summary of services for the community Supportive Care Whether it is through a creative workshop, a support group, receiving a complementary therapy or confidentially talking with a member of the team; men, women, children and families can explore what they need to sustain them through challenging times and live well in spite of them.

Day Hospice Within the comfortable and safe environment of Day Hospice, a community of patients share time together where each member is strengthened by knowing they are not alone. Every day is relaxed, with opportunities to take part in activities or simply rest.

Community Nursing Working in partnership with healthcare professionals throughout North Devon, the Community Nurse Specialist team, care for and support patients and their carers at home, ensuring they are supported throughout their journey.

24 hour Care in the Community The Community Palliative Care Service provides mainly night time support for patients as they reach the final days; enabling people to be at home with their loved ones. As the hospice looks to service provision in the coming year, this type of end-of-life care will be available during the day time as well.

The Bedded Unit From the 7 Bedded Unit at Deer Park, specialist medical care is available to patients to ensure their symptoms are brought under control and to support those who visit us for care at the end of their journey.

Hospital based Specialist Palliative Care Working from North Devon District Hospital, the team offer support for patients whilst they are in hospital and ensure the care and treatment is integrated with all the appropriate services. << The North Devon Marathon celebrates just some of our spectacular views, this one being from the water station marshalled by some of our amazing volunteers.

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Working in the homes of our patients across the community Lynton

Combe Martin

Working with GP practices & District Nurses Working with Nursing Homes & Residential Homes Working with Hospitals & Community Hospitals North Devon Hospice Deer Park Hospice Shops

Ilfracombe

Woolacombe

Chelfham

Heanton

Braunton

Barnstaple

Instow

Landkey Swimbridge

Northam Abbotsham

Bideford

South Molton

Alverdiscott

Hartland

Great Torrington

High Bickington

Bradworthy

Chulmleigh Shebbear

Holsworthy

Black Torrington Beaworthy

North Devon Hospice, Deer Park, Barnstaple, Devon EX32 0HU www.northdevonhospice.org.uk / 01271 344248 Registered charity no. 286554

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