Circle of Life - Summer 2024

Summer 2024

Volume 17 Issue 1

Say

YES Save Lives A PUBLICATION OF

Inside NJ Sharing Network

Carolyn’s Column For the past 25 years, I have been honored to work alongside our dedicated staff, volunteers, and hospital and community partners. We give hope to those waiting for transplant while offering compassionate care to donor families during their most difficult times of grief.

In 2023, the number of organs recovered for transplant in a single year reached an all-time high of 715, a significant 7% increase over the previous record. It also marked our fifth consecutive year of new organ donation records. Additionally, 44,266 eye and tissue gifts enhanced the quality of life for those in need, an 11% increase over the prior year. The number of New Jerseyans saying ‘YES’ to registering as organ and tissue donors also increased 5% last year! Over a million residents joined the New Jersey Donor Registry in 2023.

But these accomplishments mean much more than just numbers. They represent tangible blessings for recipient families — more time together, more memories to create, and more precious moments to cherish. This issue of Circle of Life features the inspiring stories of local donor families, highlighting the comfort and healing power our mission brings as their loved ones’ legacies live on.

Yet, amidst our progress, challenges persist, particularly in dispelling myths and misinformation surrounding organ and tissue donation. As detailed inside this issue, our outreach efforts prioritize building trust within urban communities through authentic community engagement. Our initiatives extend beyond transplant advocacy to encompass health screenings and nutritional programs for residents across diverse racial, ethnic, and religious backgrounds.

Looking ahead, I encourage everyone to say ‘YES’ to getting involved in our lifesaving mission. Stay connected with us on our website and social media platforms. Together, we will save and enhance more lives than ever before, one ‘YES’ at a time.

Carolyn M. Welsh, MS President and CEO, NJ Sharing Network

Say YES, Save Lives In February, NJSN announced a new thematic goal for team members and the general public.

“Say YES, Save Lives!” is more than just a slogan; it is a bold call to action — a reminder that every ‘YES’ can have boundless impact on others!

Joining Our Lifesaving Mission Patrick Buddle, M.D., and Jay Arisso, Jr. have been appointed to NJSN’s Governing Board of Trustees! Their strong, personal connections to NJSN’s lifesaving mission bring great energy and invaluable leadership.

In 2002, Dr. Buddle made the generous decision to become a living kidney donor to help save the life of his physician colleague. Dr. Buddle has supported NJSN as a member of the Organ Donor Council, the New Jersey State Joint Organ Task Force, and the Educational Advisory Board.

He also served on the Sharing Network Foundation’s Board of Trustees.

Jay is the Lead Pastor of Today’s Church in Elizabeth, NJ, and is a certified Grief Recovery Specialist from the Grief Recovery Institute.

Jay has a long-standing connection to NJSN and organ and tissue donation. His brother became a living kidney donor to help save the life of their father.

In Memoriam Joseph S. Roth, our beloved President and CEO from 1998 to 2022, was a revered leader and visionary in the field of organ and tissue donation and transplantation.

During his 24-year tenure, he transformed NJSN into one of the nation’s foremost organ procurement organizations. Joe was also a driving force behind vital legislation, leaving an indelible mark on the landscape of organ and tissue donation, saving and enhancing countless lives. “Joe was an extraordinary leader who will always be remembered for his many contributions and unwavering commitment to our lifesaving mission,” said Carolyn M. Welsh.

Unlocking Our Potential In April, NJSN team members and community partners came together to celebrate the grand opening of the Joseph S. Roth Simulation Training Center, named in memory of NJSN’s former President and CEO. This state-of-the-art facility marks a new chapter in hands-on learning, providing NJSN clinical teams with the best options available to hone their skills in donor management and family support.

Lori Roth, wife of the late Joseph S. Roth, cuts the ceremonial ribbon during the grand opening ceremony. Lori is joined by (back row) Ciro A. Scalera, NJSN’s Board Chair; Sharyn Sawczak, NJSN’s Vice President of Clinical Utilization and Laboratory Operations; Alison Roth; Jonathan Roth; (front row) Arleen Lipsman; Karen Spano; Carolyn M. Welsh, NJSN’s President and CEO; and Cheryl Feinberg Roth.

Amazing Partners.

Incredible Results.

NJ Sharing Network proudly partners with an extensive network of 54 local hospitals to steward the gift of life.

In 2023, more than 20% of our partner hospitals set individual records for the highest number of transplanted organs or donated tissue in their history. These extraordinary outcomes demonstrate the lifesaving impact of our unified efforts.

• Jersey Shore University

Medical Center in Neptune had the highest number of organs recovered for transplant (74) and most tissue and eye donors (76) of any hospital in NJSN’s service area.

• Cooper University

Hospital in Camden had the highest number of organ donors (28) of any of NJSN’s partner hospitals.

• University Hospital in

Newark had its highest number of organs recovered for transplant (65) and organ donors (25) in its history.

“ Our hospital partners have embraced our collaborative efforts to provide compassionate care to our donor families when they need it most. By working together, we are building relationships and community trust in our mission that will enable us to save and enhance more lives than ever before.”

—Alyssa D’Addio, NJSN’s Vice President of Hospital and Community Services

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Community Champions NJ Sharing Network thrives on the support of elected officials at various levels of government, ranging from local municipalities to state and federal representatives. Their advocacy efforts help raise awareness, drive legislative initiatives, and improve transplantation services locally and nationally. This backing underscores the critical role NJSN plays in improving public health and fostering community connections.

Simultaneously, NJSN’s year-round coverage in local and regional news media outlets provides invaluable exposure, reaching diverse audiences and inspiring individuals to say ‘YES’ to registering as organ and tissue donors. News media features about local stories of hope and recognition of NJSN's achievements not only enhance public awareness but also help foster a culture of compassion and altruism within our communities.

(l-r) Alyssa D'Addio, NJSN’s Vice President of Hospital and Community Services; Ciro A. Scalera, Chair of NJSN’s Board of Trustees; Congressman Thomas Kean, Jr.; and Carolyn M. Welsh, NJSN’s President and CEO

NJ Sharing Network’s year-round coverage in local and regional news media outlets provides invaluable exposure, reaching diverse audiences and inspiring individuals to say ‘YES’ to registering as organ and tissue donors.

(l-r) Kelly Bonventre, NJSN’s Assistant Director of Community Services with Newark Councilman C. Lawrence Crump

Bridging Cultures, Saving Lives One of the many great things about living in New Jersey's melting pot lies in the opportunities it offers for cross-cultural exchange and understanding. The state buzzes with the energy of people from all ethnicities, nationalities, and backgrounds. New Jersey's Hispanic population embodies this spirit of unity with its rich traditions, values, and contributions.

NJ Sharing Network’s team members, volunteers, and partners have fostered meaningful connections in our local Hispanic communities to raise awareness about organ and tissue donation and transplantation. Strong partnerships with

Meaningful connections in our local Hispanic communities help raise awareness about organ and tissue donation and transplantation.

Hispanic advocacy groups, community centers, and religious organizations have built trust and boosted public education initiatives tailored for Hispanic residents.

These activities have also provided platforms for open dialogue to dispel myths and misconceptions.

Spanish-language educational materials, advertisements, and billboards are helping to address language barriers and empowering community members to make an informed decision about donation. Additionally, NJSN maintains strong relationships with Spanish-language news media outlets, enabling the dissemination of compelling stories and messages that foster a culture of donation.

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Summer 2024

Innovations

GAME-CHANGING RESEARCH TO SAVE MORE LIVES

(l-r) Assemblywoman Michele Matsikoudis; NJSN’s Alyssa D’Addio; Assemblywoman Nancy Munoz; NJSN’s Carolyn M. Welsh; and NJSN’s Catherine M. DeAppolonio

News12 NJ’s Della Crews regularly shares stories highlighting the lifesaving need for donation.

Michael J. Goldstein, MD FACS, Director, Division of Organ Transplantation, Hackensack University Medical Center, led his team in a collaboration with Swedish medical device company, XVIVO, for a potentially groundbreaking research initiative. Together, they embarked on our nation’s first pre-clinical experimental study in the use of a perfusion device, called Organ Assist, to study its potential for the rehabilitation of deceased donor kidneys to save more lives.

“NJ Sharing Network has proudly supported Hackensack University Medical Center’s efforts by providing research kidneys for this landmark study,” said Sharyn Sawczak, NJSN's Vice President of Clinical Utilization and Laboratory Operations.

As the study findings await publication in scientific literature, there’s cautious optimism amongst the collaborating partners and the medical community that more lives can be saved in the future through this innovation.

“This technology holds promise for revitalizing deceased donor kidneys and potentially expanding the pool of usable organs for transplant. This can be a game changer at reducing kidney non-use rates and can potentially save many more lives,” said Dr. Goldstein.

For decades, kidneys donated for transplantation by a deceased donor have been transported on ice in coolers until they reach the transplant recipient. While this puts the kidney into a “hibernation” mode, suspending its ability to function, it does not supply the oxygen and nutrients the organ needs and can result in organ damage — limiting the lifespan of the kidney outside the body.

Organs want to be treated the way our bodies “ treat them — warm and protected, with blood and

oxygen. Organ Assist may enable us to keep organs out of the body longer, deliver them more safely to the people who need them, and increase the number of organs available for transplantation.

”

—Michael J. Goldstein, MD FACS, Director, Division of Organ Transplantation, Hackensack University Medical Center

SEEING THE FUTURE

Eversight, NJ Sharing Network’s key partner in restoring sight and preventing blindness, is partnering with Emmecell to advance cell therapies for the treatment of eye disease.

Currently, the only way to restore sight to patients with advanced cases of corneal edema due to endothelial cell dysfunction is by cornea transplant. Emmecell’s latest cell therapy injects healthy corneal endothelial cells obtained from donor corneas into the eye to repopulate the patient’s diseased cornea with functioning endothelial cells, potentially eliminating the need for transplantation.

“One cornea donation can restore vision to a recipient through eye transplantation — a miraculous gift,” said Diane Hollingsworth, President and CEO, Eversight. “If in the future we can provide healthy endothelial cells from a donor cornea for cell therapy, that donor has the potential to restore vision in many more patients, maximizing their gift far beyond a single cornea transplant.”

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In the Community

Community outreach and education play a critical role in our lifesaving mission.

These efforts inspire our volunteers and community members to encourage others to register as organ and tissue donors.

Throughout the year, we are proud to connect with our diverse communities! Check out these great snapshots from our recent programs and events!

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DONATE LIFE MONTH National Donate Life Month is always a special time to raise awareness about the lifesaving impact of organ and tissue donation and transplantation. Throughout April, NJ Sharing Network’s team of dedicated staff, volunteers, and hospital and community partners were unstoppable in their efforts to honor our organ and tissue donors, celebrate those who received a lifesaving transplant, and offer hope to those waiting for the gift of life. Check out these highlights from some of our community awareness events and activities!

Hackensack Meridian Health and NJSN teamed up for a special Donate Life Month Celebration at American Dream Mall. Emceed by Z-100’s Danielle Monaro, the event included a lively panel discussion with NJSN’s President and CEO Carolyn M. Welsh, and Hackensack University Medical Center’s Dr. Michael Goldstein, director of abdominal transplant, and Dr. David Serur, medical director of renal transplant. Attendees also enjoyed hearing personal stories from transplant recipients and donor family members as well as a musical performance by the New Jersey Symphony Chamber and the Midland Park High School band.

Jersey Shore University Medical Center’s (JSUMC) Garden of Life ceremonies brought together dozens of organ and tissue donor family members to honor the memory of their loved ones.

The names of the donors were engraved in bricks that are now part of Garden of Life. JSUMC’s garden was inspired by John Tozzi, MD, whose young daughter, Alexandra, was killed in a car accident in 2004. Known as "Zan" to family and friends, she helped others live on as an organ donor.

NJSN’s DLM Flag Raising Ceremony brought together staff, Board members, local elected officials, and community partners. The sunshine and beautiful weather added to the great energy and pride felt throughout the event.

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Summer 2024

NJ Sharing Network's youth education programs provide students with the knowledge and tools they need to make informed decisions about registering as organ and tissue donors. These interactive activities also help encourage a spirit of giving and service, ensuring that NJSN’s mission continues to thrive in the future.

INSPIRING THE NEXT GENERATION

• DONATE LIFE CLUBS •

NJSN's Donate Life Clubs create awareness about donation and inspire students to register as organ and tissue donors.

Kudos to the six new Donate Life Clubs at The Academy of Medical Sciences at Belleville High School, County Prep High School, Indian Hills High School, Millburn High School, Montville High School, and West Windsor-Plainsboro High School that were formed in 2024. They join already active clubs at Middlesex Academy for Allied Health and Biomedical Sciences, Piscataway High School, Wall High School, and Westfield High School for a total of ten clubs!

A special “DLC Summit” was recently held at NJSN’s headquarters to share ideas. Interested in starting a club at your high school? Contact Ametra Burton at aburton@njsharingnetwork.org.

• NATIONAL RECOGNITION •

Donate Life America (DLA) presented its prestigious 2023 Excellence in Youth Education Award to Piscataway High School’s (PHS) Donate life Club (DLC). Divakaran Manimaran, president and founder of the PHS DLC, led the club’s efforts in organizing various events and activities on-campus and in the local community. The impact of these efforts was multiplied by the creative development of social media pages, printed flyers, advertisements, and a local news media editorial. Other efforts mobilized students to share ‘real talk’ discussions with family members and community residents to help dispel many myths and misconceptions about organ and tissue donation and transplantation. (left-to-right) Gary Imhoff, NJSN's Sr. Manager of Social and Digital Strategy; Divakaran Manimaran; Joseph Yaccarino, NJSN Community Services Coordinator; and Divakaran’s mother, Kothai Perumal.

• LEARNING FROM THE BEST •

Liberty Science Center welcomed nearly 350 students to explore, engage, and experience the healthcare field during its “MiniMed Extravaganza.” Students spoke with NJSN’s Dr. Tushar Patel to learn about the importance and impact of organ and tissue donation and transplantation. We wish Tushar the best of luck as he begins his residency at the University of Florida - Pensacola.

• HIGH SCHOOL SCHOLARSHIPS •

Seven New Jersey high school students were awarded scholarships from the Sharing Network Foundation for their passion and dedication to raising awareness of organ and tissue donation and transplantation. The Class of 2024 graduates were presented with their scholarship awards at NJSN’s headquarters in New Providence. The Foundation’s scholarships are made possible thanks to the Daniel S. Buckiewicz Scholarship Fund, Hearts for Emma Partner Fund, Jim Rhatican Scholarship Fund, Missy’s Miracle Scholarship Fund and Riley’s Path Scholarship Fund.

This year’s recipients were Nathaniel Attardi of Wall High School, LJ Hines of Newark Academy, Delia Perretta of Ramapo High School, Anika Bhatnagar of Middlesex Academy for Allied Health and Biomedical Sciences, Divakaran Manimaran of Piscataway High School, Jack Miller of Robbinsville High School, and Kimmy Kenny of Brick Township High School.

• HEALTH SCIENCES SCHOLARSHIP •

The Sharing Network Foundation is pleased to announce the availability of an inaugural scholarship for current college students studying health sciences. The DEADLINE is June 30, so apply today!

Visit SharingNetworkFoundation.org/Scholarship-Health-Sciences.

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CONNECTIONS EVERYWHERE • A HEARTFELT CONNECTION •

Laurie Williams of Long Branch has been counting her blessings every day since she received the gift of life a decade ago through a lifesaving heart transplant at Newark Beth Israel Medical Center (NBI). A mother of eight with 17 grandchildren, she now proudly shares her story as a NJ Sharing Network volunteer.

“NJ Sharing Network has always been there to support me and my donor family. I will never forget that, and I will do everything I can to encourage people to register as organ and tissue donors to help save more lives,” said Laurie.

Earlier this year, Laurie shared her inspiring story with NJSN staff during a special “Connect to Purpose” presentation.

Her words inspired team members, especially Marcella Leggio, Hospital Services Manager, who recognized Laurie because she was high school classmates with four of Laurie’s children at Pope John XXIII Regional High School. Marcella recalled a particular incident that epitomized Laurie's kindness and generosity.

"We were all at one of our high school baseball games, and a foul ball went through my car windshield. I couldn't drive the car, so Laurie drove me home even though I lived more than an hour away. She is an incredible woman, and they are an incredible family. I am thankful beyond words that Laurie received the lifesaving gift she needed,” said Marcella.

Laurie and Marcella’s unexpected reunion is a poignant reminder of the enduring bonds and connections that tie us together in life’s amazing journey.

• THE GIFT OF SIGHT •

Nancy Nusbaum of Dover has an amazing journey to transplant that is filled with great irony.

While working with The Seeing Eye for 35 years and teaming with her husband Martin to raise 21 guide dog puppies, Nancy experienced firsthand the impact of vision loss on individuals’ lives. She took pride in supporting The Seeing Eye’s noble mission to enhance the independence, dignity and self-confidence of people who are blind.

When Nancy was in her mid-30s, a routine eye exam revealed that she was facing her own struggle with congenital corneal disease, affecting both of her eyes.

“I never imagined that I was visually seeing things differently than everyone else,” said Nancy. “But I never understood why so many people loved the color blue because it simply appeared to be a dusty, Every day, I reflect on the generous grayish color to me.”

Unfortunately, Nancy’s vision deteriorated over the years until she approached the brink of spirit of my two cornea donors and complete vision loss. However, hope prevailed as successful corneal transplants were performed on the sacredness of their gifts. Their both eyes. As the bandages came off post-surgery, Nancy's world transformed from ‘a gray smokebrave and beautiful souls are always filled room’ to ‘a vibrant, colorful landscape.’ Her journey to full vision took about nine months, during which she marveled at the rediscovery of the world. with me as I now see wonderful Nancy vividly recalls the day she saw the true color of blue for the first time. “Martin and I were shapes, colors, and how beautiful the driving when I saw another car on the road. I shouted, ‘Wow! What color is that car? It’s incredible!’ My sky is.” — Nancy Nusbaum husband calmly responded, ‘That's blue, Nancy.’ I had never seen how vivid the color blue is until that moment. It was breathtaking.”

Now retired from The Seeing Eye, Nancy embraces life to the fullest — gardening, stargazing, teaching Yoga, and cherishing moments with her beloved dogs. She also devotes her time advocating for NJSN, aiming to inspire others to give the gift of life.

“

• HOOKED BY FATE •

At the 5K in New Providence, two families were brought together by a shared mission and an extraordinary connection.

Lorie Rodimer's team, “Tyler's Tight Lines,” honors the enduring spirit of her beloved son, Tyler J. Rodimer, a young man full of passion who tragically passed away at the age of 23. An avid outdoorsman, Tyler found solace in fly fishing.

Lorie struck up a friendly conversation with Dennis DeAppolonio, a member of the “Let’s Flamingle for KEB” 5K team, which honors the memory of organ donor Katie Elizabeth Baldwin. They quickly learned that Dennis shares Tyler's love for fly fishing. Dennis was drawn to Tyler's story by this common bond and, in the weeks following the 5K, Dennis tied a fly in Tyler’s honor. Aptly named “The Tyler,” the fly became a symbol of the two families’ connection.

Dennis also carried “The Tyler” with him for a fly-fishing excursion for bonefish. In a twist of fate, “The Tyler” brought Dennis luck, as he reeled in not only bonefish but an angel fish — a poignant nod to Tyler’s enduring legacy.

Inspired by this amazing catch, Dennis crafted a shadowbox, housing “The Tyler,” which he proudly gifted to Lorie.

Overwhelmed by the gesture, Lorie finds solace in the knowledge that Tyler’s spirit lives on. “It reminds me that even in life's darkest moments, there are angels among us,” said Lorie.

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VOLUNTEERS

DOING

BIG

THINGS

• REACHING NEW HEIGHTS •

Jenny Godnick, a living donor and powerful advocate for NJ Sharing Network, joined a remarkable group of 18 living kidney donors from throughout the nation to climb three volcanoes in Guatemala in early December, accumulating over 12,000 vertical feet in elevation!

The One Kidney Climb, organized by the Kidney Donor Athletes (KDA), focused on busting the myth that living kidney donation negatively impacts your health. By completing challenging and difficult physical activities, KDA members show the world what you can do post-kidney donation. Jenny’s journey was featured on FOX5 News NY, News12 NJ, and in many local newspapers and online media outlets.

Jenny’s selfless commitment to caring for others began with My life has been infinitely better since her military career, where she donating my kidney to Steven. Thanks showed bravery and compassion to NJ Sharing Network and KDA, I in the U.S. Army Reserve. After have connected with amazing organ retiring as a Major following 20 donors and transplant recipients who years of service, her dedication to helping others only grew stronger. have enriched my life by sharing stories Jenny made the decision to and understanding the great need become a living kidney donor to for organ and tissue donation and save the life of her brother-in-law, transplantation.” — Jenny Godnick Steven, who was suffering from kidney disease. Jenny’s donated kidney saved the life of a woman from New York as part of a 24-person donation and transplantation chain. The chain continued just a few days later, on April 28, 2014, when Steven’s life was saved thanks to his successful kidney transplant surgery.

“My life has been infinitely better since donating my kidney to Steven,” said Jenny. “Thanks to NJ Sharing Network and KDA, I have connected with amazing organ donors and transplant recipients who have enriched my life by sharing stories and understanding the great need for organ and tissue donation and transplantation.”

“

• SHORELINE CREATIONS •

Kori Anderson, a liver transplant recipient, and longtime NJSN volunteer, is known for putting her creative energy to work to raise awareness for our lifesaving mission. The Belleville resident made a powerful connection and friendship with Karen Chalmers, whose life was saved thanks to major colon surgery in 2017. Karen is a talented sand artist who has the remarkable skill of turning ordinary grains of sand on the beach into extraordinary masterpieces.

Kori travelled to Oregon to meet up with Karen, and they unleashed their creativity on the sandy shores of Oregon, crafting a breathtaking sand art design that serves as a poignant reminder of the lifesaving impact of organ and tissue donation and transplantation! The design featured the Donate Life logo in the middle surrounded by uplifting designs and inspiring messages of love, hope, and gratitude.

COMMUNITY MEETUPS Join us at our NJSN headquarters in New Providence to learn more about organ and tissue donation, connect with other members of the donation and transplantation community, become an NJSN Certified Volunteer and learn how you can participate in our community programs! To sign up for upcoming dates, visit NJSharingNetwork.org/Events.

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Cover Story

The

Power Of

/yes /adverb a single word that changes lives

In the pages ahead, we delve into the remarkable stories of several organ and tissue donors and their loving families, all of whom embraced the opportunity to make a positive difference by saying ‘YES’ to saving lives. Their selfless acts have left an indelible mark on the lives they touched and remind us about the timeless power of generosity.

Our organ and tissue donors turn moments of sorrow into rays of hope.

Through their gifts, they have sparked new beginnings into the lives of others.

Each story, a tale of resilience, compassion, and kindness, serves as a testament to the infinite potential for good that exists within us all.

Let us take a moment to reflect on the positive ripple effects of our lifesaving mission and the enduring legacy of those who have given so generously… and it all starts with a single YES!

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“

The collaboration, compassion, and teamwork by all of the partner organizations was quite amazing. The process was seamless, despite the complicated logistics. I am so grateful that thanks to these efforts, Gretchen was able to help others – just as she wanted.

”

— Dr. Francis L. Weng, father of tissue donor Gretchen Weng

Gretchen Weng with her cat, Freckle.

A PRECIOUS GIFT

O

n October 17, 2023, Gretchen Weng, a spirited 15-year-old, peacefully passed away at home from brain cancer, surrounded by her loving family. Until the week before her passing, Gretchen continued to embrace life’s simple joys, such as playing board games with her family and sharing laughter with friends.

Gretchen’s life had taken an unexpected turn when she began experiencing symptoms of dizziness and unsteadiness, shortly before the start of 9th grade. A visit to the pediatrician led to a devastating diagnosis — Gretchen had a rare, incurable brain tumor known as diffuse intrinsic pontine glioma (DIPG). Over the next year, Gretchen underwent experimental therapies and bravely weathered the many side effects and the ups and downs of cancer care.

After her cancer continued to spread, Gretchen made the difficult decision to stop further treatment. Instead, she focused on her comfort and quality of life and on spending her remaining time with her family, friends, and beloved cats. A few weeks before she passed, Gretchen expressed a desire to help others, even in her passing-- she asked her parents, Dr. Jenny H. Kim and Dr. Francis L. Weng, about

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the possibility of organ and tissue donation.

“I think Gretchen had heard me talk about donation, as part of my work as a kidney transplant doctor,” said Dr. Weng, Chief of the Renal and Pancreas Transplant Division at Cooperman Barnabas Medical Center. “My wife and I feel strongly about choosing to donate and help others in any way we can, knowing that ‘you can’t take your organs and tissue with you.’”

On the day she passed, Gretchen was able to donate her corneas for transplant, and her brain tissue was also recovered for research. These lifesaving gifts were made possible by the powerful, longstanding partnerships among NJ Sharing Network, Eversight, Children’s Hospital of Philadelphia (CHOP), and the Children’s Brain Tumor Network (CBTN) and its Swifty Foundation’s Gift from a Child Initiative (GFAC).

“It really means a lot to us, knowing that this terrible situation still led to some good,” said Dr. Weng.

NJSN’s key partnership with Eversight changes lives every day by restoring sight and preventing blindness through the healing power of donation, transplantation and research.

“When I first got the call from NJ Sharing Network, I knew my goal was to make the whole process seamless for Gretchen’s family,” said Ashley Vanderdonck, Clinical Partner Relations Director, Eversight. “All partners involved sprang into action to make her final gifts possible. I am incredibly proud of how well everyone worked together to ensure clear, timely communication and swift action in partnership with the Children’s Brain Tumor Network to honor Gretchen’s legacy and transform lives.”

Gretchen’s left cornea was donated to a research project led by Ali Djalilian, MD, in Chicago. Her right cornea restored sight to a

1-year-old girl in Berkley, Mich.—a lifechanging gift for a toddler and her family.

Beth Frenkel, Clinical Research Project Manager at CHOP’s Center for Data-Driven Discovery in Biomedicine, also reflected on how the partners quickly came together to support the Weng family.

“The gift of brain tissue is one of the most precious things someone can give because of the potential it has to help research improve quality and duration of life. Our collaborative efforts that day not only ensured that Gretchen’s donations could occur, but also made sure it happened in the time frames that optimized her gifts. Most importantly, we all worked together to support Gretchen’s family,” said Frenkel.

Patti Gustafson, Executive Director at Swifty Foundation, is forever grateful to the Weng family for choosing to donate Gretchen’s brain tumor tissue for research.

“It says so much about the Wengs that as they faced their loss and tragedy, they were thinking about how they could help others.

Researchers need this precious tissue to discover why current treatments are failing our children. As a mom who also lost a child to this disease, my heart goes out to the Weng family. I hope they will find comfort in knowing Gretchen is still contributing to this world,” said Gustafson.

Gretchen’s life journey, though brief, was marked by her courage and her commitment to making a positive difference. Her family hopes that Gretchen’s legacy lives on, through her gifts and the lives she has touched.

“

We will never stop honoring Gretchen and her gifts. We cherish her memory and remain forever grateful for the incredible legacy she has left behind.

”

— Carolyn M. Welsh, NJSN’s President and CEO

FOREVER IN OUR HEARTS

E

dward Damirr Ross, 29, known affectionately as Damirr, had an Tragically, on November 21, 2023, Damirr’s life was cut short effervescent energy, charisma, and charm that made others want to unexpectedly. Yet, even in death, his legacy of giving continued be around him. through the gift of organ donation. His family made the generous You could feel his energy when he walked into a room,” said Dana decision to donate his heart, liver, kidneys, and pancreas, to save the Drummond, his mother. “He didn’t have to say a word - his radiant lives of people of all ages and backgrounds in New Jersey, New York, smile was always memorable. We could always count on him to listen Boston, Florida, and California. and give the best advice when we needed it most.”

“During that difficult time in the hospital, we remembered Damirr’s From his earlier days, Damirr had a thirst for knowledge and a sneaker story when we thought about the possibility of organ love for learning. He excelled academically, earning honors upon donation. We knew it was the right thing to do. He would be so proud graduating from Lenape High School in Medford. “He was an avid that he continues to be a star as his legacy lives on,” said Dana. reader and was equally dedicated to his physical health and loved to Dana is also thankful for the care they received from the Cooper work out,” said Dana.

University Medical Center and In recent years, Damirr’s NJ Sharing Network teams. greatest joy was spending time “They were sincere and with his two young children, compassionate every step Jace and Jouri. Although Jace of the way. We appreciate is only three years old, he everything they did for us. proudly recites the complex It blew my mind when we names of dinosaurs that his learned that less than one father taught him while they percent of people are able to told each other bedtime be organ donors. It made us stories. Jouri, who is one year realize just how special Damirr’s old, also enjoys listening to gifts would be,” said Dana. her big brother Jace tell her Lars-Kristofer N. Peterson, beautiful bedtime stories.

MD, Emergency Medicine, Beyond his love for Cooper University, expressed family, he was known for his his gratitude to Dana and all of compassionate heart and Damirr’s family members. willingness to help those in “Their generosity and need. One particular example courage in participating in of his generosity stands out organ donation are testaments in his mother’s memory. to their resiliency and the She recalls a time when he bright light that Damirr encountered an old friend that brought to the world. His he had not seen in many years. impact will continue through “It bothered him to see that them and the gifts he made to his friend was going through the organ recipients,” said Dr. a difficult time. In a selfless Peterson.

Edward Damirr Ross with his son, Jace. gesture, he gave away his own While Dana and her family sneakers to help his friend. It continue to struggle with their didn’t shock me at all because that’s loss, they still feel Damirr’s presence just the kind of person Damirr was — in many ways, sharing smiles and We hope Damirr’s story will always thinking of others first,” said laughter when they reminisce about encourage others to consider registering Dana. something he said or did.

“

as organ and tissue donors. It was the best decision we could have made as a family. The good that came out of this is far beyond what we could have ever imagined.

”

— Dana Drummond, mother of organ donor Edward Damirr Ross

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A LOCAL LEGEND LEAVES AN UNFORGETTABLE LEGACY

“

Although our family was suffering, we were brought some hopeful news and comfort when we learned Rob would be able to give the gift of life to others. I am sure Rob would be thrilled to know that he helped save lives as an organ and tissue donor. It seems fitting that, even in his passing, Rob continued to help people.

”

— Kristina Ambrosino, wife of organ and tissue donor Robert Ambrosino

I

n the tight-knit towns of Sparta and Dover, one man’s legacy continues to echo through the halls of the schools where he taught, the fields where he coached, and the stages where he performed.

Robert (Rob) Ambrosino, a lifelong resident of Sparta affectionately known by many locals as “The Mayor,” was more than just a teacher, coach, and musician; he was a pillar of the community who touched people’s hearts with his infectious smile and kindness.

“Rob’s positive attitude had a way of rubbing off on others,” said Kristina Ambrosino, Rob’s devoted wife. “It was his goal to help

others reach their potential and succeed. That is what brought him the most joy.”

From his days as a standout football player at Sparta High School to his tenure as a beloved teacher and coach at Dover High School, Rob’s passion for life inspired generations of students, athletes, and community members to pursue their dreams.

His dedication extended beyond the classroom and playing field; he was also a talented musician who shared his love of music with the community through open mic nights and performances at local venues.

Tragically, Rob’s vibrant life was cut short in September 2021, when he suffered a severe brain aneurysm. The news sent shockwaves throughout the communities Rob called home, leaving his family, friends, and students reeling with grief.

However, amidst the darkness, a glimmer of hope emerged as Rob’s legacy of giving continued on through

“

organ and tissue donation. Thanks to Rob’s selfless decision to register as an organ and tissue donor, he saved the lives of four people, offering them a second chance to live life to its fullest.

Rob’s heart, liver and kidneys gave others a second chance at life, a testament to his generosity and caring spirit. His lung and pancreas donations will support vital research, and his tissue gifts of corneas, bone, skin, and tendons will enhance the lives of many others.

“While we were in the hospital, I was just numb with pain and grief. But our family is forever grateful to NJ Sharing Network and Overlook Medical Center because they were so helpful and supportive,” said Kristina. The outpouring of support from the community further underscored Rob’s influence on those around him. From heartfelt tributes and fundraisers to the overwhelming response on social media, the love and admiration for Rob was tangible in the weeks and months that followed.

“We were amazed by the amount of food and meals that were delivered to our house,” said Kristina. “It reminded us of how many lives Rob touched.”

Rob’s story also motivated many to follow in his footsteps and register as organ and tissue donors themselves.

“Rob set the bar high as a positive example for others to follow,” said Kelly Bonventre, NJSN's Assistant Director of Community Services, and a resident of Sparta. “He reminds us of the impact one person can have on the lives of countless others.”

At Overlook Medical Center and throughout Atlantic Health System, we are proud to be partners with NJ Sharing Network to make lifesaving gifts possible.

”

— Stephanie Schwartz, MHSA, FACHE Senior Vice President, Atlantic Health System and President, Overlook Medical Center

Rob "The Mayor" Ambrosino

14 Circle of Life

Summer 2024

THE LITTLE GIRL WITH THE BIG SMILE: ZOEY’S LEGACY LIVES ON

I

n the heart of New Milford, a remarkable young girl named Zoey generosity, Zoey’s kidneys, corneas, and tissue would go on to save and Komninos left an unforgettable impact on everyone she encountered, enhance the lives of many, embodying her spirit of kindness. even in the face of her lifelong battle with cerebral palsy and epilepsy.

“Throughout Zoey’s life, she inspired so many people. Our entire Born to Melanie and Jimmy Komninos, Zoey brought boundless family agreed that if Zoey could tell us what she wanted to do, she joy and love into their lives, alongside her older sister Hailey and would never hesitate to give the gift of life to help others,” said Melanie. younger brother Dimitri. Though nonverbal, Zoey’s infectious smile and “We are extremely grateful for the compassionate care we received unmistakable giggle lit up every room she entered. She communicated from NJ Sharing Network and Hackensack University Medical Center. with remarkable clarity, using her facial expressions and adaptive They provided us with support and comfort when we needed it most.” communication switch device to voice her The Komninos family now proudly thoughts and feelings. advocates for organ and tissue donation, “Zoey had plenty of spunk and a sassy sharing Zoey’s story in the hopes of My heart is in awe of the personality. She was never shy about inspiring others. showing us how she felt,” said Melanie. “She “Zoey’s journey may have ended, but compassion and generosity loved music and was always fascinated her love and courageous spirit will live on of the Komninos family. when listening to others tell stories. forever in the hearts of those who knew It was such an honor to Her love for life always shone through, her,” said Melanie. “We hope that Zoey’s even during the many times she was story encourages people to register as collaborate with hospitalized.” organ and tissue donors to give others a Hackensack University Medical In December 2021, Zoey’s journey took second chance to live life.”

Center to coordinate a a heartbreaking turn as she passed away “The gift of life was made during the at the age of 16. The Komninos family’s Komninos family’s darkest moment. Donor special flag raising on grief was immeasurable, yet amidst the families are the candle in the darkness that what would have been darkness, a glimmer of hope emerged. continues to give hope to those awaiting a Zoey's 17th birthday.

Zoey’s family made the generous decision second chance at life," said Veronica Myers, that enabled Zoey’s legacy to live on as NJSN Hospital Services Manager.

— Veronica Myers an organ and tissue donor. Through their NJSN Hospital Services Manager

“

”

Zoey Komninos

Komninos family members and loved ones attended a special flag raising ceremony held on the campus of Hackensack University Medical Center to honor Zoey’s legacy as an organ and tissue donor on what would have been her 17th birthday.

NJSN.org

Circle of Life 15

To Honor, To Remember, To Give Hope

TO HONOR LaVise McCray's life changed in March 2023 when she received a kidney transplant at Hackensack University Medical Center. Now, the retired Jersey City Public School teacher is on a mission to spread the message of hope through organ and tissue donation.

“I share my kidney transplant journey on social media and with everyone that I meet to inspire others to be a symbol of hope and encourage people to register as organ and tissue donors,” said LaVise. “My faith journey

TO REMEMBER Organ donor Samantha Jillian Chapman, was a vibrant threeyear-old from Warren, whose cheerful nature touched all who knew her. Her donated heart, liver, and kidneys saved the lives of others.

Samantha’s parents, Stefanie and John Chapman, recall how she was her twin brother Owen’s fierce protector, never taking a bottle or snack without making sure he had one too. She also loved her “big bro” Nathan and their mini monster truck rides in their yard.

Stefanie and John have found a source of

has had many triumphs and many challenges, but I never gave up.”

LaVise's journey to transplant was filled with challenges. “I knew I was getting weaker and weaker, but I prayed to God for a miracle,” said LaVise. “It was a Friday night at 6:30 p.m. when my phone rang.

The caller said, ‘Hi LaVise, are you ready?’

I had no clue at first what they were talking about, but the next words changed my life forever. They said, ‘Your kidney is ready.’”

As she looks ahead, LaVise is filled with gratitude, cherishing each moment and living life to its fullest. She is dedicated to “paying it

16 Circle of Life

team, my loving family and friends, and my generous organ donor hero who gave me the gift of life.

”

— LaVise McCray, kidney transplant recipient

forward” by supporting NJ Sharing Network's lifesaving mission and inspiring others to register as organ and tissue donors.

“Samantha was such a loving and outgoing

hope amidst their child. I am sure that when she grew up, grief thanks to she would have said ‘Yes’ to registering as the miracle of an organ and tissue donor. donation and — Stefanie Chapman, transplantation.

Samantha's mother “When we were at Samantha’s bedside in the hospital, we thought of other beyond her immediate loved ones, touching parents who lost their child,” said Stefanie. “If communities far and wide. She reminds us to Samantha’s life could have been saved through embrace life with love and gratitude. organ donation, it would have meant so much “When her brothers are old enough to to us. We immediately realized we wanted to understand, they will take pride in knowing help others live on. It wasn’t a difficult decision.” that their sister is a hero who gave the gift of Samantha’s impact now stretches life to others,” said Stephanie.

”

TO GIVE HOPE Seven-year-old Sheila Martell from New Providence, is a pure bundle of energy.

Despite battling a rare liver condition since birth, she is always running around the playground with her friends after school, splashing in the town pool, or building sandcastles on the beach.

“Sheila is the happiest kid. You would never know all that she has been through by looking at her. She really loves life and is so resilient,” said her mother, Moira Martell.

Sheila’s challenging journey has been

alive today thanks “toI am my amazing medical

marked by numerous hospital visits, surgeries, and ongoing medical care. Last year, she was hospitalized as her condition worsened, and she is now on the liver transplant waiting list.

Yet, amidst the uncertainty, Sheila remains hopeful and positive.

She rehearses what she plans to say to the medical team when she enters the transplant center for her surgery, ”Hi, I’m Sheila, and I’m here for my new liver.”

The Martell family and their many friends created a 5K Celebration of Life team, appropriately called “It's Sheila's World.” They

to do whatever “weWecanwant to stay strong and

raise awareness about the importance of organ and tissue donation for Sheila and for everyone waiting for a lifesaving transplant.

— Chris Martell, Sheila’s father

”

enjoyed sharing stories with others whose lives have been touched by organ and tissue donation and transplantation.

Summer 2024

Raising Funds & Awareness

RALLYING TOGETHER!

I take extraordinary pride in our Foundation team and our Board of Trustees who are always unified and energized in supporting our lifesaving mission through public education, family support, and clinical advancement. Our Foundation has reached an incredible milestone of raising $20 million in philanthropic contributions since inception!

This remarkable feat is a testament to the generosity of our donation and transplantation community. Together, we will continue to fund programs that educate and inspire others to enthusiastically say YES to saving lives!

Amanda Tibok, Executive Director, Sharing Network Foundation

OUR NEW BOARD OFFICERS

At our 2023 Fall Meeting, we welcomed a new slate of Foundation Board Officers: Ronald Oswick, succeeding Christopher Bautista as Chair; Lakisha Bray and Michael Rizzo, our new Vice Chairs; and Sandy Erwin, stepping into the role of Secretary/Treasurer.

Pictured (left to right) Sandy Erwin, Lakisha Bray, Ronald Oswick, and Michael Rizzo

A TALE OF GIVING

Title Page

A Gift of Life: A Story of Organ and Tissue Donation, is a touching children’s picture book written by author Rachelle Burk and funded by the Sharing Network Foundation. This special book follows a young boy after the loss of his father and his legacy as a hero through organ and tissue donation. Beautifully illustrated by Benjamin Hummel, a two-time liver transplant recipient, it's a story of hope, love, and the incredible impact one can make by giving the gift of life.

by Rachelle Burk illustrated by Benjamin J Hummel

5K CELEBRATION OF LIFE

We were thrilled to see thousands of people come together to share love and hugs during our 5K Celebration of Life events in Ocean Grove and New Providence. Special thanks to presenting sponsors Hackensack Meridian Health and RWJBarnabas Health and to all who participated and offered their generous support. To see memories from the 5K events, please check our website at sharingnetworkfoundation.org/5K. Fundraising for the 2024 5K season remains open through August 31, 2024 NJSN.org

GOLF CLINIC AVAILABLE

JOIN TEAM LIBERTY

July 5 - 10, 2024

SharingNetworkFoundation.org

To learn more about the Transplant Games and Team Liberty, visit GoTeamLiberty.org Circle of Life 17

691 Central Avenue New Providence, NJ 07974 800-742-7365 • 908-516-5400 NJSN.org

WHO WE ARE

NONPROFIT ORG U.S. Postage

PAID Union, NJ

Permit No. 931

NJ Sharing Network (NJSN) is the federally designated non-profit organization responsible for the recovery of donated organs and tissue for transplant in the Garden State. NJSN provides hope for nearly 4,000 New Jersey residents currently waiting for a lifesaving transplant, and it is part of the national recovery system for the over 100,000 people on the national waiting list.

NJ Sharing Network is a designated Organ Procurement Organization (OPO) by UNOS; accredited by AOPO, ASHI, AATB, and CAP; and registered with the FDA and NJ and NY State DOH. NJSN is a member of Community Health Charities.

Talk of the Town

This April, NJ Sharing Network launched the second phase of its impactful outdoor advertising campaign across various communities in New Jersey with the goal of encouraging more people to register as organ and tissue donors.

The latest campaign features vibrant “Say YES, Save Lives” and in Spanish “Di SI Salva Vidas” messaging displayed on buses, billboards, and PATH trains throughout the state. Eye-catching bus wraps can be seen in Newark, Jersey City, Paterson, Camden, Edison, and Trenton, while billboards are present in Newark, Elizabeth, and Camden.

Additionally, 460 posters adorn 230 PATH train cars, maximizing visibility and reaching a wide and diverse audience!

If you see one of our advertisements, please snap a photo and email it to us at socialmedia@NJSN.org.

To register as an organ and tissue donor visit NJSN.org.

CONNECT WITH US

To receive an electronic copy of our Circle of Life magazine, join our mailing list at NJSN.org.

If you no longer wish to receive information from NJ Sharing Network, please email info@njsharingnetwork.org.

Questions or comments? Reach out to: editor@njsharingnetwork.org.