Websites and Help Lines

Websites and Help Lines

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Dial from any phone to be connected with resources in either San Mateo or Santa Clara Counties. Resource specialists provide free non-emergency community, health and disaster information and support. Other languages: multiple.

AARP (888) 687-2277 or (202) 434-2277

www.aarp.org Website provides information relevant to the selection of assisted living facilities, nursing homes and other home options.

ADA National Network (800) 949-4232

www.adapacific.org A public site for getting answers to questions about ADA laws.

American Stroke Association (800) 553-6321

www.strokeassociation.org/STROKEORG/ A service coordinated by the American Stroke Association. Provides information regarding stroke, how it affects the lives of stroke survivors and their families, and how to find a support group and how to subscribe to the Stroke Connection Magazine.

Aphasia Hope Foundation Online aphasia resource

www.aphasiahope.org Their mission is to promote research into the prevention and cure of aphasia and to ensure all survivors of aphasia and their caregivers are aware of and have access to the best treatments available.

Americans with Disabilities Act (ADA) and Americans with Disabilities Act Information Line (U.S. Department of Justice-Civil Rights Division) (800) 514-0301 (Voice) (800) 514-0383 (TDD)

www.ada.gov ADA specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 9:30 a.m. to 5:30 p.m. or on Thursday from 12:30 p.m. to 5:30 p.m. (Eastern Time). Other languages: Spanish.

Brain Aneurysm Foundation

www.bafound.org Patient, caregiver, research and educational resources.

Brainline

www.brainline.org Resources for preventing, treating and living with traumatic brain injury (TBI) and PTSD.

California Department of Rehabilitation

(916) 324-1313 Voice

(916) 588-5807 (TTY)

www.dor.ca.gov

Center for International Rehabilitation Research Information and Exchange (CIRRIE) (716) 844-8638

Locate international research in all areas of rehabilitation.

Center on Knowledge Translation for Disability & Rehabilitation Research (800) 266-1832

www.ktdrr.org The Center makes it easier to find, understand, and use the results of research that can make a positive impact on the lives of people with disabilities.

Children’s Hemiplegia & Stroke Association

www.chasa.org

City of Palo Alto (Disability Resources) (650) 329-2100

www.cityofpaloalto.org/gov/depts/csd/family/ disability

www.PacificStrokeAssociation.org support@psastroke.org – (650) 565-8485 15

Clinical Trials

www.clinicaltrials.gov Provides regularly updated information about federally and privately supported clinical studies of human participants.

Different Strokes

www.differentstrokes.co.uk/ Peer support for younger stroke survivors as a means to active recovery.

Disability Benefits 101

www.db101.org Tools and information on health coverage benefits and employment.

Eldercare Locator

www.eldercare.acl.gov

(800) 677-1116

Nationwide information on community assistance for seniors. Open 9 a.m. - 8 p.m. EST Monday-Friday. Other languages: Spanish.

Health Insurance Counseling and Advocacy Program (HICAP) - The Medicare Counseling Program San Mateo HICAP (650) 627-9350

www.hicapsanmateocounty.org/

Santa Clara HICAP (408) 350-3200, option 2

www.mysourcewise.com/

HICAP Toll Free Number: (800) 434-0222

The Health Insurance Counseling & Advocacy Program (HICAP) is a state-sponsored, volunteer-supported program that provides free counseling to people with Medicare about their benefits, rights and options, and other health insurance related questions. HICAP provides unbiased information to help you make an informed decision for your individual health care needs. Schedule an appointment with a HICAP counselor who is registered with the California Department of Aging in your area to help you understand or assist you with the following Medicare topics/issues: • Medicare Part A & B benefits • Supplemental options: Medigap Policies,

Medicare Advantage Plans and Part D

Program • Coordination of benefits with Employee

Group Health Coverage, Retiree Plans &

Medi-Cal • Billing questions & Appeals • Long Term Care Insurance Policies

Internet Stroke Center

www.strokecenter.org Non-profit educational service to advance understanding of stroke research and provide current information about stroke. Includes Stroke Trials Registry, a collaborative project that connects investigators and patients.

Learning Ally (800) 221-4792

www.learningally.org Learning Ally is a nonprofit volunteer organization which serves students who cannot read standard print effectively because of blindness, visual impairment, dyslexia or other learning challenges.

National Alliance for Caregiving (NAC)

http://www.caregiving.org/resources/ The National Alliance for Caregiving is a nonprofit coalition dedicated to improving quality of life for friend and family caregivers and those in their care, by advancing research, advocacy, and innovation. The NAC recognizes that family caregivers provide important societal and financial contributions toward maintaining the well-being of those in their care. They conduct research, do policy analysis, develop national best-practice programs, and work to increase public awareness of family caregiving issues.

www.PacificStrokeAssociation.org support@psastroke.org – (650) 565-8485 16

National Center for Parents with Disabilities - Through The Looking Glass (510) 848-1112

www.lookingglass.org/ Through the Looking Glass is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.

National Council On Aging (800) 677-1116 (202) 479-1200

www.ncoa.org

National Institute of Neurological Disorders & Stroke

www.ninds.nih.gov/disorders/stroke/stroke_ rehabilitation.htm Provides information on stroke and its effects, rehabilitation, preventing another stroke, and resources and research.

National Rehabilitation Information Center (800) 346-2742

www.naric.com Disability and rehabilitation oriented information organized in a variety of formats designed to make it easy for users to find and use.

Network of Care

SAN MATEO COUNTY www.sanmateo.networkofcare.org Online directory of services related to aging, disabilities, caregiving and more. SANTA CLARA COUNTY www.santaclara.networkofcare.org Online directory of health services, library news and more. Our Parents: A Place for Mom and Dad www.ourparents.com/assisted_living/california Our Parents is a free and unbiased service focused on helping families with aging parents find the best senior care solution that meets their loved one’s unique needs, be it an inhome caregiver, an assisted living facility, or a nursing home.

Real Time Health

www.portal.realtimehealth.com/ A digital health network, specializes in patient narrative communication. First-hand stories of those who have been diagnosed with stroke and other medical conditions improves overall understanding of what it is like to live with stroke on a daily basis. Pacific Stroke Association was proud to partner with Real Time Health to create two segments on stroke: Stroke in Mid-life and Stroke in Later Years. Both are available online or via the Real Time app.

SMC-Connect

www.smc-connect.org Online searchable database of services available in San Mateo County.

Senior Focus-Wise and Well Heart Smart Program (650) 696-3660

www.sutterhealth.org/mills-seniors Senior Focus Health Promotion Programs (for those 60 years of age and older): Wise and Well Program - a community-based heart disease and diabetes screening and health education program; and Diabetes Empowerment Education Program (DEEP) - a six-week diabetes self-management workshop series. Must have diabetes or prediabetes to participate. For more information please email: juroskj@sutterhealth.org or call: (650) 6963660.

Sourcewise

www.mysourcewise.com

Stroke Awareness Foundation (408) 961-9815

www.strokeinfo.org

Stroke Network

www.strokenetwork.org Provides on-line support to adult stroke survivors and their caregivers. A Caregivers Handbook can be downloaded free.

www.PacificStrokeAssociation.org support@psastroke.org – (650) 565-8485 17

Stroke Survivor Strategies

stroke-survivor-strategies.blogspot.com Gadgets, tips and tricks to cope with challenges after a stroke. Blog posts include information on personal care, practical ideas for shopping and chores, safety, exercise and communication.

Well Spouse Association Northern California Contact: (408) 879-0123

www.wellspouse.org Well Spouse, a not-for-profit membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner.

World Institute on Disability (510) 225-6400

www.wid.org World Institute on Disability (WID) works to fully integrate people with disabilities into communities around them via research, policy and consulting efforts. WID provides international news and information on employment, health, independent living, and technology.

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www.PacificStrokeAssociation.org support@psastroke.org – (650) 565-8485 18