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Reaching by direct mail 9,000 homes and businesses in North Grenville and Merrickville/Wolford www.ngtimes.ca
Vol. 6, No. 50
The Voice of North Grenville
December 12, 2018
Mission for Mya
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by David Shanahan We were just watching the Christmas Parade in Kemptville when one entry caught our eye. When we asked the woman walking the parade what the story was, she said something which made us want to find out more. Tanya is the mother of Mya, a 10 year-old girl who attends Holy Cross school and is suffering from "NF2", known formally as Nuerofibromatosis 2. What Mya has gone through because of this condition is astonishing. We
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spoke with Mya’s step-father, Craig Gerlach, and he told us something about what Mya has gone through. “Mya has over 30 tumours in her body all on nerve endings, which makes them extremely difficult to operate on, the majority of which are in her brain and on her spine. She has had a major brain surgery to remove a 5cm x 5cm x 10cm mass attached to the bottom of her frontal lobe which changed her personality and has also created some difficulties with learning which we work hard to help her overcome as best
been with Mya through an we can. NF1 affects 1 in 3000 average of two appointments people while NF2 affects 1 a month to see her many docin 30000 people, meaning tors, such as ophthalmologists NF2 research will be about for her vision loss, neurolo10 years behind NF1 or at gists for the tumours which least this is what has been are now causing hearing isexplained to me by people sues and have forced her to in the research community. wear hearing aids and will All people with this disease force another surgery in the and their families go through future, ears nose throat spephases of hope and despair cialists again for various ailwith a lot of prayer thrown ments tumour related, she has in. Treatments are limited, a psychiatrist at CHEO they somewhat archaic, and good see regularly as part of the doctors who have any back- disease, and life experiences ground in NF are almost have caused an extremely nonexistent.” Craig and Tanya have continued on page 2
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