Javiera Arenas, Emma Eriksson

Designing for transitions in cancer Transdisciplinary Design Thesis

Emma Javi & Eriksson Arenas

Frank’s Story Clip

Transitions a : passage from one state, stage, subject, or place to another. b : a movement, development, or evolution from one form, stage, or style to another.

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desk research interviews design principles on site observations

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SURVIVORSHIP

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TRANSITIONS PATIENT JOURNEY Spring

research report

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design sprints first prototypes

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protoypes

sprint presentations

interviews TD thesis exhibit

feedback interviews Spring

testing PFACQ feedback protoypes testing

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protoypes

sprint presentations

interviews TD thesis exhibit

feedback interviews

testing PFACQ feedback protoypes testing

interviews

sprint Winter

design opportunities

design opportunities

we begun to map the ecosystem

who are we designing for

WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge

CLINICS Oncology Chemotherapy Radiation Radiology Surgery

DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS

what space or moment are we designing for

WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge

CLINICS Oncology Chemotherapy Radiation Radiology Surgery

DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS

interaction points

WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge

CLINICS Oncology Chemotherapy Radiation Radiology Surgery

DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS

WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge

CLINICS Oncology Chemotherapy Radiation Radiology Surgery

DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS

WAITING ROOMS Oncology Chemotherapy Radiation Radiology Post surgery discharge

CLINICS Oncology Chemotherapy Radiation Radiology Surgery

DEPARTMENTS AT THE HOSPITAL Social work Integrative medicine Psycho oncology Rehabilitation Sexual Health & Fertility Survivorship PROGRAMS Patient & Caregiver Education Patient to Patient PFACQ Caregiver to caregiver EXTERNAL PATIENT SUPPORT HOME, WORK PLACE & SCHOOL MEDICAL EDUCATION INSTITUTIONS

interaction points

3 interventions

1. the system

1. the system 2. patient and the patient journey

1. the system 2. patient and the patient journey 3. moments of transition in patient journey

1. the system

Address Diversity of Cancer Experience Provide Manageable and Sticky Information Ease Emotional and Physical Adjustment

Fatigue Nausea Lymphedema Hair Loss Weight Gain Pain Menopausal Symptoms Skin Conditions Insomnia Fluid Retention Appetite Loss Dehydration Infection

Fatigue Nausea Lymphedema Hair Loss Identity Social support Sexuality Weight Gain Pain Menopausal Symptoms Grieving Planning Life style Skin Conditions Insomnia Fluid Retention Appetite Loss Dehydration Infection

Fatigue Nausea Lymphedema Hair Loss Identity Social support Sexuality Weight Gain Pain Menopausal Symptoms Grieving Planning Life style Skin Conditions Insomnia Fluid Retention Returning to work Bills Insurance Appetite Loss Dehydration Infection

Fatigue Nausea Lymphedema Hair Loss Identity Social support Sexuality Weight Gain Pain Menopausal Symptoms Grieving Planning Life style Skin Conditions Insomnia Fluid Retention Returning to work Bills Insurance Appetite Loss Dehydration Infection Stress Anxiety Self Esteem Depression

How can we group all this?

Physical Lifestyle Administrative Interpersonal Emotional

Information from

hospitals perspective

Here is info on integrative medicine

Information is

inconsistent

I wish I would have known earlier

Intervention Nยบ1 Clip

game language categories

game language categories

game language categories

size slope material

size slope material

size slope material

Intervention Nยบ1 App Clip

2. patient and the patient journey

Emphasize Progress & Acknowledge Milestones Address Diversity of Cancer Experience Facilitate Giving Back and Getting Back

no consistent way of communicating the patient journey

lack of shared language across

FORWARD set expectations

BACKWARD Reflect back

FORWARD

The most challenging thing about the cancer experience is that almost every patient journey will look different.

Evolution of Patient Journey Clip

TREATMENT PREPARATION & PLANNING

DIAGNOSIS

POST TREATMENT

TRANSITION FROM MSKCC

PERIODIC MONITORING

Intervention Nยบ2 Patient Journey Clip

EXPLICIT

T I C I L P IM

EXPLICIT

IMP LIC IT

ripple effect from design

T I C I L P IM

EXPLICIT

by design intervention

IMP LIC IT

3. moments of transition in patient journey

Emphasize Progress & Acknowledge Milestones Facilitate Giving Back and Getting Back

Will it work?

mmm yes!

Patients ringing the bell after last radiation treatment

designing a ritual

TREATMENT PREPARATION & PLANNING

DIAGNOSIS

POST TREATMENT

TRANSITION FROM MSKCC

PERIODIC PERIODIC MONITORING MONITORING

1st meeting

5 years out PERIODIC PERIODIC MONITORING MONITORING

5 years out

1st meeting PERIODIC PERIODIC MONITORING MONITORING

5 years out

1st meeting PERIODIC PERIODIC MONITORING MONITORING

In the last 5 years I have learned…

5 years out

1st meeting PERIODIC PERIODIC MONITORING MONITORING

In the last 5 years I have learned…

5 years out

1st meeting PERIODIC PERIODIC MONITORING MONITORING

In the last 5 years I have learned…

5 years out

1st meeting PERIODIC PERIODIC MONITORING MONITORING

In the last 5 years I have learned…

1st meeting

Advice

5 years out PERIODIC PERIODIC MONITORING MONITORING

1st meeting

Talisman

5 years out PERIODIC PERIODIC MONITORING MONITORING

TRANSITION FROM MSKCC

PERIODIC MONITORING

Intervention Nยบ3 Periodic Monitoring Ritual Clip

Bye!

Designing for transitions in cancer

Emma Eriksson erike588@newschool.edu Javi Arenas arenj525@newschool.edu

Thanks!