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2023 action pointsthe campaign continues…
The NKF has made great strides in the second year of the Increasing Home Dialysis Campaign as you will have read in the update.
We still have some way to go, but now we have the Regional Renal Networks set up across the country we will work with them all ensuring the patient voice is heard and that people being given the choice to dialyse at home is at the top of the agenda.
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The 20% target is well underway for some, but for others there is still a struggle.
1 This two year on report will be published and publicised at the NKF’s pre World Kidney Day Parliamentary Event on 8th March 2023. The local and national media will be alerted via a press release.
2 This report will be circulated to the four devolved Governments requesting a response.
3 The NKF will continue to work with all of the Regional Renal Networks.
4 The NKF ask the Regional Renal Networks to provide an update in autumn regarding where they are with all of the units in their regions with increasing home dialysis.
5 The NKF will share this report with all KPAs and ask them to raise this with their Clinical Directors/Leads.
6 The NKF will seek to run a session about home dialysis and peer support at UK Kidney Week in 2023.
7 The NKF Home Dialysis Peer Support Service is very valuable to all who have used it, we will continue to increase the presence of this service throughout the UK, enabling people who are thinking of going onto home dialysis to speak to someone with lived experience.
8 There is currently a cost of living crisis, the NKF will continue to campaign to ensure people who dialyse at home are reimbursed for their utility costs.
9 The NKF will ask the Regional Renal Networks to tell us what their procedures are for ensuring everyone who goes onto home therapies is informed about reimbursement for their utilities and what the backup procedures are if there is a machine failure at home.
10 The NKF will produce a recording of a patient preparing the machine and needling themselves for home haemodialysis, and taking themselves off of the dialysis machine and a patient performing peritoneal dialysis.
11 The NKF are holding a Parliamentary Reception in March 2023, the APPKG will continue to raise awareness of home therapies and kidney disease.
12 The Clinical Directors/Leads will be asked to take action from this report and update the NKF of their plans to increase home dialysis during 2023.
