Washington Days

400 ADVOCATES RAISED THEIR VOICES IN DC FOR THE INHERITABLE BLOOD DISORDERS COMMUNITY.

Earlier this month, nearly 400 advocates from 45 states and Puerto Rico met with legislators to discuss the important policies affecting our community during NHF’s Washington Days This annual event is an opportunity for individuals living with an inheritable blood or bleeding disorder to share their personal story and advocate for support of federal hemophilia programs through the Centers for Disease Control and Prevention (CDC) and the Health Resources and Services Administration (HRSA).

And this year was more important than ever.

Insurers continue to create health plan strategies that create barriers to access for individuals with rare or chronic disorders These strategies put additional and unnecessary costs on individuals and families living with a rare disorder.

Without the advocacy of your fellow community members, harmful policies can bankrupt families. Your support helps us advocate beyond Washington Days to continue to fight for equitable, affordable, and life-changing treatments for our community

Check out Justin's Washington Days experience!