December 2022
IN THIS ISSUE Happy Holidays Year-End Giving NHF Celebrates 75 Years Get Moving A Marathon Recap A Successful Shoesday Thanks to You Young Hope Society Join today!
Seasons Greetings! I would like to take a moment to wish you a happy and warm holiday season! As we close on 2022, the National Hemophilia Foundation (NHF) is reflecting on what an exciting year it was for our strong, brave community.
A Fellowship for the Future Judith Graham Pool
In just a few months, we’ll release the National Research Blueprint, the culmination of a years-long effort to understand the community’s most pressing needs and how to achieve them. In the past year, we hosted our first ever Health Equity Summit, which led to a whitepaper that identified gaps in ensuring every community member can receive equitable access to treatment and care. Thank you for your partnership, your input, and your continued support. We look forward to taking the next steps with you in 2023. Len Leonard A. Valentino, MD President and CEO
Please consider giving back to NHF
Visit: hhemophilia.org/give to make a gift!NHF
JOIN US AS WE CELEBRATE 75 YEARS! In 2023, the National Hemophilia Foundation (NHF) reaches its jubilee year with a special 75th anniversary celebration. To note this historic milestone, NHF is launching a year-long campaign entitled “The Red Thread,” which will trace NHF’s long history of providing the inheritable blood and bleeding disorders community with resources and programs related to advocacy, education, and research. Established in 1948, the National Hemophilia Foundation has long been one of the nation’s leading organizations dedicated to serving patients and families living with inheritable blood and bleeding disorders such as hemophilia, von Willebrand disease, ultra-rare platelet disorders, and more. “This is an amazing moment to not only reflect on NHF’s impact to advance research, health care legislation, and other impacts throughout our 75-year history, but to also look forward to the organization’s next chapter,” said NHF president and CEO, Dr. Leonard A. Valentino. “The more inclusive we become for all bleeding and blood disorders, the more progress we can make in creating an equitable health care system for our community’s vocal and passionate advocates.” In celebration of this momentous milestone, NHF will have a variety of celebratory events, content, and programming throughout the year as part of “The Red Thread” which will tie together the organization’s history and achievements throughout the years. Please check our social media channels and hemophilia.org to get involved!
NHF GETS
Moving On November 6th, the Red Tie Runners took the streets of New York and completed the 2022 TCS New York City Marathon. Together, the team raised over $30,000 for the inheritable blood and bleeding disorders community. Our team was comprised of runners from all over the country – DC, Texas, Colorado, and more. We also welcomed our first international runner all the way from the UK! Congratulations to all our runners and thank you for choosing NHF! Interested in running the 2023 United Airlines NYC Half Marathon? We saved a spot for you! Email Riley Breen, rbreen@hemophilia.org, to learn more.
These Shoes Were Made for Giving
...and it's all thanks to you!
Your collective generosity on Giving Shoesday helped us raise over $25,000 to support individuals and families affected by inheritable blood and bleeding disorders! This holiday season, we're grateful that you choose to walk alongside NHF and our friends in the community as, together, we move towards a world without blood disorders.
Are you
a young professional with philanthropic ambitions?
Join our Young Hope Society! The Details
The Perks
YHS is a group for professionals between the ages 21 and 40 who want to support the inheritable blood and bleeding disorders community alongside their peers.
Professional development workshops Speaker Series featuring dynamic leaders from various fields
It's free to join, and all are welcome!
Networking opportunities
Coaching for volunteering, fundraising, + advocating
Make an impact on the community and your resume! Sign up today!
A FELLOWSHIP FOR
the future
Established by NHF in 1972, the Judith Graham Pool (JGP) Postdoctoral Research Fellowships have provided decades of support for basic science and pre-clinical research in bleeding disorders. The premier fellowship was named in honor of Dr. Judith Graham Pool, who in 1965 discovered a method of extracting clotting factor from human plasma to formulate cryoprecipiate. Her breakthrough opened the door to a series of research developments that revolutionized treatment for hemophilia, ultimately leading to its management through recombinant replacement factor and current extended half-life therapies. Since the program's inception, NHF has funded many scientists whose projects have produced vital insights into hemophilia and other bleeding disorders. JGP projects have resulted in the development of safe concentrates, enhanced methods of testing and screening, and a framework for advances in gene therapy. As one JGP fellow said, “The fellowship set me down a path as a committed physician scientist. The research is so interesting and important.” Your continued support ensures we have a long legacy of scientists committed to research that will pave the way for better treatment and cures for inheritable blood disorders. Haven’t made your JGP 50th anniversary donation yet? Give today at hemophilia.org/JGP. NHF thanks the generous donors and NHF chapter whose support of JGP is changing lives.