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Calumet Memorial Park District Pumpkin Decorating
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Friday, October 20 See Calendar of Events for details!
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Thursday • October 19 • 2017
12-Year Old Helping to Fund Search for Cure for Sister’s Deadly Disease
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Highland, IN • 9615 Indianapolis Boulevard • (219) 924-7840
Twelve-year old Garland Benson is raising funds to help defeat Batten disease, a rare, fatal, inherited neurological disorder which threatens his 15 year-old sister Christiane’s life.
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Garland Benson, a freckled-face 12-year-old with a winning smile, is on a mission—one that’s very personal, but could have far-reaching implications. He just needs a little help from 100,000 friends and strangers. Here’s why: Garland’s 15-year-old sister, Christiane, has juvenile Batten disease, a rare, fatal, inherited neurological disorder. It’s the same disease that was responsible for the July deaths in Utah of three siblings over the course of three days. Children with the incurable disease suffer progressive vision loss, commonly followed within a couple of years by seizures and, as time passes, the loss of motor functions and speech. That’s followed by premature death, usually in the late teens or early 20s. In 2008, the parents of Garland and Christiane, Craig and Charlotte Benson, formed the non-profit Beyond Batten Disease Foundation (www.beyondbatten.org) with the goal of helping find a cure. Through research funded by the foundation, progress is now being made on a treatment that, although not a cure, could slow down the disease’s progression, perhaps buying time for young people like Christiane. The foundation is trying to raise $6 million that’s needed to help hurry that research along by getting it through an expensive validation and development process so that it can receive FDA approval for clinical trials. Enter Garland, a boy with a big heart for his sister and an understanding that small gifts can add up to extraordinary amounts if the multiplication factor is large enough. “I decided to raise $1 million of that $6 million on my own,”
he says. “If I can get 100,000 people to give $10 each I’ll have $1 million. I think we can easily do that.” With his goal clear, Garland confidently set out in March to achieve his objective—and do whatever he could for his sister and other young people who have Batten disease. Many donors have left heartfelt messages for him, such as: “Garland, you are the sweetest, best brother a girl could have.” “You inspire me to make a difference.” “Thank you for blessing your sister and so many others.” Garland quickly found that his self-imposed undertaking wasn’t quite as easy as he hoped, but he has persevered and so far has raised about $90,000. His optimism isn’t faltering yet. “I think it would be amazing if we find a cure,” Garland says. Although Batten is genetic, and families can have more than one child with the disease, Garland does not have it. He’s not a carrier either, so he can’t pass it on to his children. Despite the disease, Christiane is a cheerleader, has joined her family on ski trips and on horseback-riding adventures, and continues to be an inspiration for her younger brother. “It’s really cool how she can do all that stuff and not be able to see,” Garland says. “But what I’d really like is for her to be able to lead a normal life like me.” Those who want to donate can text the word HERO to 501051 and $10 will be added to their next cell phone bill. Donations can also be made through Garland’s donor page on the Beyond Batten Disease Foundation’s website, at beyondbatten. donorpages.com/TeamBeyondBatten/GarlandBenson/. One person at a time, he will surely reach his goal.
Calumet Memorial Park District to Host Pumpkin Decorating & Haunted Hayrides
Hammond, IN • 6747 Indianapolis Boulevard • (219) 844-9919 South Holland, IL • 235 W. 162nd Street (Route 6) • (708) 339-3111 Calumet City, IL • 1700 Sibley Boulevard • (708) 891-2470
Full Service Oil Change
• 10 Minute Oil Change ! • Only Quality Oil Brands!
Offer Expires 11/18/17 Limits Apply
The oil you use matters! Unlike others, Grease Monkey only uses oil brands you know & trust. 720 East 162nd St., South Holland, IL M-F 8-6, Sat. 8-5, Sun. 11-4
FREE
Slice of Pl. Cheesecake, Cup of Soup, Med. Pop or French Fries with Single Sandwich or Dinner Only
Not Valid With Any Other Offers. Must Present Coupon. Limit 1 Coupon Per Person, Per Visit. Expires 11/4/17
17816 Torrence Ave. Lansing, IL 60438 (708) 895-1500 (708) 895-4900 Fax Hours: Mon-Thurs 10am-2am Fri-Sat 10am-3am / Sun 11am-12am
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Carpet Cleaning for over The Calumet Memorial Park District’s Pumpkin Decorating for ages 12 and younger will be held on Friday, October 20 and Saturday, October 21 at the Burnham Woods Golf Course, 14201 Burnham Ave. in Burnham. The fee is $3 and includes all materials. Participants can drop in anytime between 4:00 and 5:45 PM. For further information, please call (708) 868-2530.
The Calumet Memorial Park District’s annual Haunted Hayrides will be held from 6:00 until 8:00 PM on Friday, October 20 and Saturday, October 21 at the Burnham Woods Golf Course, 14201 Burnham Ave. in Burnham, IL. The fee is $3 per rider. Ages 12 and younger must ride with an adult. For more information please call (708) 868-2530.
25 Years
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708-429-6200