intouch Spring/Summer 2026
Supporting independence with occupational therapy How our services are changing lives
Your spring and summer wellbeing guide
CEO message
Welcome to our Spring/Summer edition of Intouch magazine. As we move towards the end of another year, this edition is an opportunity to reflect on the many ways people across our community continue to demonstrate resilience, determination and connection. Throughout this magazine, you’ll read stories from people living with MS who are navigating challenges, embracing opportunities and finding support that helps them move forward. Whether through peer support, employment assistance, accommodation, allied health services or education programs, these stories highlight the importance of timely support. This year marks a significant milestone for MS Plus as we celebrate 70 years of supporting people living with MS and other neurological conditions. While our organisation has evolved over seven decades, our purpose remains unchanged: helping people access the services, information and community they need to live well. Connection is a theme throughout this edition. Marianne and Marie’s friendship through our Peer Talk program demonstrates the value of speaking with someone who truly understands your experience. We also share insights from our occupational therapy
team, whose work helps people build confidence, maintain independence and participate in activities that matter most.
Contents Spring and summer wellbeing guide
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You’ll also find practical information to support your wellbeing during the warmer months. For many people living with MS, rising temperatures can present challenges. Our spring and summer wellbeing guide, along with advice from Nurse Amy, offers strategies to manage heat sensitivity, stay active and enjoy the season with confidence.
Christine’s story
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Ask Nurse Amy
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Supporting independence every day
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Marianne and Marie’s story
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How our services are changing lives
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Jenny’s story
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Santo’s story
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Looking ahead, we remain focused on delivering services that make a difference. Outcome data from our allied health and employment services demonstrates the impact specialised neurological care can have on wellbeing, independence and quality of life.
Symptom spotlight
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Protecting access to MS treatments
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Travel and MS
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What’s on
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None of this would be possible without the support of our clients, volunteers, donors, partners and staff. Together, we continue to build a stronger, more connected community. As summer approaches, I hope you find inspiration and practical ideas within these pages, and wish you and your loved ones a safe and enjoyable holiday season. John Blewonski Chief Executive Officer
Publisher: MS Plus ABN: 66 004 942 287 Editor: Amanda Willimott Advertising: intouch@msplus.org.au ISSN: 1833-8941 Contact us 1800 042 138 (free call) connect@msplus.org.au msplus.org.au/contact-us Donate now donatenow.msplus.org.au Opening hours 8:30am to 5:00pm, Monday to Friday Need an interpreter? Call the Telephone Interpreter Service (TIS) on 131 450 or visit tisnational.gov.au Follow us
Disclaimer: Information and articles contained in Intouch are intended to provide useful and accurate information of a general nature for the reader but are not intended to be a substitute for legal or medical advice. MS Plus is not recommending medical or legal advice and readers must seek their own as may be appropriate. Advertising disclaimer: MS Plus does not endorse any one product or service over another, nor do we receive any commission on sale of items. Consumers are encouraged to discuss the options for exchange or return at the time of purchase with a specific supplier because MS Plus is not liable in the event the product is not satisfactory.
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Your spring and summer wellbeing guide Longer days and warmer weather can bring more opportunities to get outdoors, stay active and connect with others. For people living with MS and other neurological conditions, however, hotter temperatures can also present some challenges. With a little planning and selfawareness, it’s possible to enjoy the season while supporting your health and wellbeing. Keep your cool One of the most common concerns during warmer weather is heat sensitivity. Many people living with MS find that symptoms such as fatigue, weakness, balance difficulties, blurred vision or concentration issues become more noticeable when their body temperature rises. While this doesn’t cause additional damage, it can make day-to-day activities more difficult and uncomfortable. The key is to listen to your body and pace yourself. Try to plan outdoor activities for the cooler parts of the day, such as early morning or late afternoon. Lightweight clothing, wide-brimmed hats, cooling towels and portable fans can all help keep you comfortable when temperatures climb. Staying hydrated is equally important, so be sure to drink water regularly throughout the day, even if you don’t feel thirsty. Keep moving your way
Swimming and aquatic exercise can be particularly appealing during the warmer months. Water provides natural cooling while reducing stress on joints and muscles, making it a comfortable way to stay active. If outdoor activities aren’t practical, consider exercising indoors where air conditioning or fans can help you manage your comfort.
Spring and summer are great times to stay active. Regular movement can support strength, mobility, balance, flexibility and overall wellbeing for people living with MS and other neurological conditions. The good news is that being active doesn’t have to mean pushing yourself to the limit. Gentle activities such as walking, swimming, stretching, yoga, gardening or cycling can be adapted to suit your abilities and energy levels.
If you’re looking for support, MS Plus Wellbeing Centres offer physiotherapy and exercise physiology appointments both in person and via telehealth. Our experienced clinicians can work with you to develop an exercise program tailored to your needs, goals and abilities, including activities you can safely do at home to help maintain strength, mobility and confidence throughout the year.
Pace yourself Fatigue often remains a significant challenge, even during enjoyable seasonal activities. Prioritise rest breaks, spread larger tasks across several days and avoid overcommitting your schedule. Summer social events, holidays and family gatherings are important opportunities to connect with others, but adjust plans or leave early if you need to conserve energy. Make time for what matters The warmer months can also provide an ideal opportunity to focus on your overall wellbeing. Spending time with friends and family, enjoying nature, pursuing hobbies and maintaining a healthy routine all contribute positively to your physical and emotional health. Small, achievable goals can help you stay engaged and connected without feeling overwhelmed. 3
From hospital to home: Christine’s story even. Now I can take my own jumper off,” she says. Lidcombe Home features modern hotel-style apartments for both respite and long-term accommodation, designed with accessibility in mind. The property adjoins MS Plus’ Lidcombe Wellbeing Centre, providing access to a range of services including physiotherapy, dietetics, continence support and NDIS support coordination and plan management under the same roof.
When Christine moved into MS Plus’ supported accommodation at Lidcombe Home after an extended hospital stay late last year, it had a profound impact on her health and wellbeing. “We knew that some of the things Christine had experienced before she came here were quite traumatic, but since she has been here, we’ve seen she is more motivated to participate in activities and the interests she had in the past are starting to come back alive,” says Badri Pokhrel, Lidcombe Home’s Manager Residential & Respite Services. Reflecting on how far she’s come since a difficult stay in hospital, Christine, who was diagnosed with MS in 2014, says that leaving hospital and moving to the hotelstyle, supported independent living accommodation in Sydney’s inner west has been life-changing. “I got dehydrated and ended up in hospital only weighing 41kg after a week without food and water. Now I’m 67kg and feeling much better. I was in hospital for five months before I came here,” she says. “It’s been really good so far, it’s comfortable and the management are great. I’ve just started going to the gym. At hospital I didn’t have hand dexterity, I was struggling to be able to hold a cup to my mouth 4
The transition from hospital to Lidcombe Home was a holistic process involving Christine’s neurologist and family. “Christine’s sister was responsible for coordinating the transition, she had information from Christine’s neurologist to reach out to MS Plus to explore these options. I met with her dad and sister and we began the conversation. When we met with Chris, she had a good look at the pictures and understood the transition and how we could make it successful,” says Badri. The central location means it’s also easy for Christine’s family to regularly visit, keeping her connected with her family and community. “My family has been very good in supporting me and helping me to find this place. I was definitely looking forward to getting out of hospital, so it was a very good day when I first came here,” she says. Christine has settled in so well that she’s well known for her baking – particularly her famous rocky road. “I can’t walk past the apartment without having a slice of her baking!” says Badri. “Christine had experienced a lot of psychological distress prior to coming to Lidcombe Home, but seeing her now with a positive mindset, wanting to try things and do things has been a great outcome for all of us.”
Accommodation designed for you More people are discovering the benefits of purpose-built accommodation and flexible respite supports for people living with MS and other neurological conditions. Supported Disability Accommodation (SDA) vacancies are available at Lidcombe, Watsonia and Beverly Hills, while short-term accommodation is available at Lidcombe and Watsonia. Whether you’re looking for a long-term home, a short stay, or the chance to develop new goals and a new community, our experienced teams provide personalised support in welcoming, accessible environments. Eligible respite clients can access an exclusive travel allowance of up to $2,000 to help make their stay possible. Vacancies available now. No waitlist. Call 1800 042 138 or visit msplus.org.au/accommodation
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Ask Nurse Amy: Staying cool and confident this summer “Planning ahead and being prepared can help restore your confidence so you can continue enjoying the warmer months.” These temporary symptoms are sometimes referred to as a ‘pseudo-relapse’ and do not mean there is new damage or progression of your MS. Symptoms usually improve after you rest and cool down, although this may take longer for some people.
Heat sensitivity is common in MS, but you can still enjoy the warmer months. Planning ahead, using cooling strategies and pacing yourself can make warmer weather much more manageable, so you can continue enjoying activities, barbecues, beach trips and summer events. Feeling anxious about summer is understandable, especially if you’ve experienced symptoms worsening due to heat in the past. Planning ahead and being prepared can help restore your confidence so you can continue enjoying the warmer months. Why does hot weather make my MS symptoms and fatigue worse? Heat sensitivity is common in MS. MS damages the myelin, which is the protective coating around nerves. Even a small rise in body temperature can temporarily make signalling through affected nerves less efficient, and everyday activities may require extra effort. On top of this, hot nights can disturb sleep, and social activities or changes in routine can also add to fatigue. This can lead to a temporary worsening of symptoms, including increased fatigue, weakness, balance difficulties, or cognitive symptoms such as ‘brain fog’.
How can I stay active during summer? Try exercising during the cooler times of the day, such as in the morning or evening, or in an airconditioned space. Short periods of activity with planned rests may be easier than one long session. Pre-cooling with a cool shower, cold drink, cooling cap or vest may also help. Stop and cool down if you start to feel any symptoms emerging. What should I consider when socialising? Look at the location ahead of time. Is there shade? Is there an air-conditioned indoor space? Is there somewhere to sit? Where are the bathrooms? How will I get there and where can I park? Decide what you will bring to help keep you cool, such as iced drinks, something to sit on, or portable shade if needed. Give yourself permission to arrive late, leave early and/or rest to help conserve energy. What are the best ways to keep cool? It’s often easier to stay cool than to cool down once you’ve become overheated. Stay indoors during the hottest part of the day. Close blinds before your home heats up.
Wear loose, lightweight, lightcoloured clothing especially when outdoors. Carry cold or iced water. Seek shade or an air-conditioned location where possible. Cooling vests, neck wraps, damp towels, cold packs and cool showers can all be useful. During extreme heat, reconsider or adjust plans where needed. Mobility equipment, handrails and dark surfaces can become very hot in the sun, so be mindful and keep them shaded where possible. Sun safety should be a consideration Using a broad-spectrum SPF 50+ sunscreen, along with UVprotective clothing, a hat and sunglasses, and seeking shade where possible, can help protect you from harmful UV rays. Some medications also increase sensitivity to the sun, so check with your pharmacist if you are unsure. What should I do if my symptoms worsen? Stop and rest somewhere cool. Loosen or remove unnecessary clothing and use cold water or damp cloths to help you cool down. After resting and cooling down, if you have any new or persistent symptoms lasting more than 24-48 hours, you should let your medical team know. If you experience severe symptoms, such as vision loss, fainting, collapse, significant weakness, or you are unable to safely manage at home, you should seek urgent medical review. Have questions about managing MS in the heat? Our MS nurses can discuss your individual circumstances, symptoms and concerns, and help you find practical strategies that work for you. Call the free MS Nurse service on 1800 042 138. 5
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Supporting independence every day Occupational therapists help people build the skills, confidence and strategies they need to live as independently as possible. From managing everyday tasks at home to staying engaged at work and in the community, our OTs support people to achieve what matters most to them. We asked three members of our OT team to share their insights and practical tips. What does occupational therapy look like in practice? For Karthik, it’s about helping people work towards the goals that matter most to them. “At the end of the day, my focus is to maximise independence for my participants,” he says. That might mean prescribing mobility equipment such as walking frames or wheelchairs to improve community access, or helping someone find easier ways to manage daily activities at home through fatigue management and energy conservation strategies. Jordan describes it as finding practical solutions that make everyday life easier. “The right strategy, equipment or environmental change can help a person maintain their independence, feel more confident and continue doing the things that matter to them.” One example is meal preparation. Jordan works with people to identify barriers and develop strategies such as reorganising the kitchen, using adaptive equipment, preparing meals in stages or planning tasks around periods of higher energy. For Emily, maintaining social connection and community participation is a key focus. “Supporting engagement in community activities can be explored with the OT, such as joining a new social club or
activity like a pottery class or a coffee catch up club,” she says. She often supports people with mobility and fatigue challenges by recommending assistive technology and equipment that enables them to continue getting out, connecting with others and doing the activities they enjoy. Common challenges, practical solutions Fatigue was a challenge all three therapists highlighted. Jordan helps people identify which activities use the most energy and develop strategies such as pacing, planning and prioritising tasks. Emily often works with people to find the right assistive technology, whether that’s a shower chair, cooling attire or adjustable bed, ensuring they have choice and confidence in the solutions they use. Karthik also recognises the impact neurological conditions can have on family relationships and caregiving responsibilities. “The family unit is a key component to maintaining physical, emotional and mental health,” he says, highlighting the importance of finding sustainable ways to support both individuals and their carers.
Top tips Karthik’s tip: Count your spoons Think of your daily energy as a limited number of “spoons”. Prioritise tasks into mustdo, should-do and can-wait categories, and schedule regular breaks throughout the day. Jordan’s tip: Rest before you’re exhausted Planned rest breaks are often more effective than pushing through until fatigue takes over. Pacing helps you use your energy more effectively. Emily’s tip: Rethink what independence means Asking for help doesn’t mean losing your independence. Delegating some tasks or accessing support can free up energy for the activities that are most meaningful to you. Find out how occupational therapy can help you To learn more or book an appointment, visit msplus.org. au/occupational-therapy
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The power of peer support: Marianne and Marie’s story “It’s hard to find somebody with MS especially living in a rural town so you can feel like you’re on your own and isolated from help. For me, 99 per cent of the people in Wagga Wagga where I live don’t have a clue about MS. People often say to me ‘you look good’ and they can’t understand that I don’t feel good,” she says. “It’s so important to have contact with somebody going through the same battle that you are who isn’t judging you, and understands there are things you physically can’t do, which some others don’t understand because I look OK.” Marie was diagnosed with MS in 2019 and was connected with Peer Talk through her support team.
The friendship between Marianne and Marie is like any other friendship. They touch base regularly to talk about their lives, their families and what they’ve been up to. Sometimes, but not always, they’ll talk about their shared experience with MS. Marianne and Marie met last year through MS Plus’ one-on-one phone support program Peer Talk, a peer support program which Marianne is a volunteer for. “We’ve been talking since about May last year and we’ve formed such a close and happy relationship that I would be devastated if we didn’t speak anymore,” says Marianne. “We talk about anything and everything. Marie does hydrotherapy on Tuesday and Thursday mornings so we work around that. There isn’t a set day or time that we get together, but we normally talk two or three times a month,” she says. For Marie, having the support of Marianne who also lives with MS, is greatly appreciated after regularly encountering people who don’t understand MS or how it impacts her. 8
“I told people that I need somebody I can communicate with that understands what I’m going through, and am really grateful that I’ve met Marianne through the program,” she says. For Marianne, volunteering as a mentor is as beneficial to her as it is for the people she supports. “I started getting involved with MS Plus as a volunteer during COVID. At first I started supporting a virtual group and the people I met are still part of my life and like family now,” she says. “From there, I set up a local group here in Tamworth and was asked if I wanted to try one-on-one volunteering. I was given access to training which is really important because in the past I’ve spoken to people where I’ve been concerned about their wellbeing and the training has helped me know how to navigate that. “I have six or seven people I speak to on a regular basis, and it’s a lovely way to spend the day. I always feel on a high after we’ve spoken.” To learn more about Peer Talk and MS Plus’ other Peer Support programs for people, families and carers affected by MS, visit msplus.org.au/peersupport.
More than a conversation Connect with someone who truly understands Living with MS can sometimes feel isolating. MS Plus Peer Support connects people through shared lived experience, creating opportunities to talk openly, ask questions and feel understood by someone who has walked a similar path. For those looking for personalised support, Peer Talk offers one-on-one phone conversations with a trained peer volunteer. Over a series of scheduled calls, participants can share experiences, explore challenges and gain confidence in a supportive, judgement-free environment. Benefits of peer support Reduce feelings of isolation Build confidence and selfmanagement skills Learn practical tips from lived experience Feel reassured and understood Develop meaningful connections and friendships Improve overall wellbeing and resilience Interested in connecting with a peer? Contact us on 1800 042 138 or visit msplus.org.au/ peersupport to learn more.
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How our services are changing lives: Measuring what matters In 2026, MS Plus strengthened its understanding of the difference specialised neurological care makes in people’s lives. By listening to clients and measuring outcomes, we can see the real impact of our services on health, wellbeing and independence. The results are encouraging. More than half of Allied Health clients improved across every area measured by the Neuro-QoL quality of life survey, which assesses the physical, mental and social impacts of neurological conditions. Key results included: 60% of clients reported reduced fatigue after Allied Health. 50-70% reported reduced anxiety and depression and improved wellbeing after receiving Allied
Health or Employment Support. Over 90% of exercise physiology and physiotherapy clients reported improved mobility. For many, the greatest benefits came from accessing multiple services delivered by professionals who understand neurological conditions. Clients who attended multiple Allied Health sessions showed the highest rates of improvement across eight of the nine Neuro-QoL domains.
client or family stress. 79% said our services improved community participation. Eight in 10 felt respected and supported to achieve their goals. Eight in 10 reported a better understanding of their symptoms and how to manage them.
One client shared:
The right support helps people stay connected to work, family and community. Employment Support is ranked number one out of 17 providers in its segment for client satisfaction.
“Your service has made a significant difference to my life, and myself and my family will always be grateful.”
Behind every statistic is a person gaining confidence, independence and connection through specialist neurological care.
Client feedback continues to shape and improve our services. In 2026:
Want to learn more?
76% said our services reduced
Read the full story at msplus.org.au/news.
Help put MS nurse care in reach of everyone who needs it People with MS who have access to an MS nurse experience lower disability, less severe symptoms and a better quality of life. Yet 1 in 3 people with MS don’t have access to this life-changing care. This Christmas, your gift will help our nurse team expand its service to provide more support, education and care for people living with MS. Please donate today and help ensure more people can access specialist MS nurse care in the year ahead.
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From world records to resilience: Jenny’s life with MS Jenny Doan’s resume is more colourful than most. A three-time Guinness World Record holder including the longest marathon hula hooping session for 100 hours. She has also cycled through 21 countries, is an in-demand motivational speaker, and is CEO of Shh!t Happens, a disability-led toilet paper company with a large social impact.
Not long after she was discharged from hospital, she was diagnosed with MS. “It was a life-changing moment and I realised there was no changing it. I kept wondering, what do I do with my life here?” Speaking to an MS Plus nurse gave her answers to questions and “made me feel reassured that I wasn’t on my own,” and a peer support group of people around her age helped Jenny to understand more about her disability and adjust to a new normal. “I had been an athlete with Guinness World Records and seeing that wasn’t what my body was like anymore was very jarring to me, but I found there was a lot in the psychological space that was delayed relative to the physical symptoms.” These days, Jenny is CEO of Shh!t Happens, an environmentallyfriendly toilet paper business that donates toilet paper to people with disabilities experiencing financial hardship.
But one of her greatest achievements might be learning to navigate life with MS following her late 2024 diagnosis and using her various platforms to raise awareness and amplify lived experience. “In late 2024, I was working full-time and doing motivational speaking as
a side hustle. I was feeling a lot of fatigue,” Jenny explains. “While I was training for chin-ups, my hands started opening while I was hanging from the bar which was really concerning. My doctor told me to go to the emergency department,” she recalls.
“A big part of the business is shining a light on the fact that so many people struggle with invisible disabilities that we can’t see, understand or know how to accommodate. I think we can all make a difference by being a bit more thoughtful about what other people might be going through.”
Newly diagnosed? You’re not alone Being diagnosed with multiple sclerosis can bring a mix of emotions and questions. You may be wondering what comes next, where to find reliable information, and who to turn to for support. That’s why we offer Navigate MS, a free two-part program designed specifically for people who are newly diagnosed. The program provides information on MS as 10
well as practical strategies and tips from an experience MS nurse to help build resilience and adjust to life with MS. We also offer a singlesession version for family members, partners, friends and carers who want to learn more about supporting someone living with MS. If you have questions at any stage, our Connect team is here to listen and help point you in the right direction and connect you
with services and support. You can also speak with one of our MS nurses, who provide expert information about MS, symptom management and treatment options. Looking for information in your own time? Visit our Resource Hub, packed with articles, webinars, fact sheets and practical tools to help you better understand life with MS.
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Support to keep working: Santo’s story cognitive functionality, emotional functionality and fatigue… which all adds up to help maintain my ability to keep my job.” Santo says the service has also helped him access a range of wellbeing supports. “My right hand is weaker than it used to be, and I used to be a musician, so experiencing this weakness had a significant impact on my emotional wellbeing. I’ve been provided referrals to and funding for psychological and mental health supports as well as a physiotherapist that specialises in dealing with people with MS. “All of these things have had a role in helping me maintain my independence.” The help Santo has received from MS Plus’ Employment Support Service has helped to keep him in work, three decades after he was diagnosed with MS. “MS is unpredictable and as the years have gone by, my physical functional impacts have deteriorated and the hidden symptoms of cognitive functioning and fatigue have had a huge impact,” he says. “I’ve been involved with MS Plus’ Employment Support Service for around 15 years and the help I’ve received has been exceptional. Not a week goes by when my occupational therapist Stephanie misses reaching out to me by a phone call, email or text message.” MS Plus’ Employment Support Service supports clients with MS and other neurological conditions to navigate every stage of their working life, with help ranging from the design and implementation of strategies to better manage symptoms through to access to equipment and external supports. For Santo, that support has been constant through the good times, and the challenging times. “Stephanie has supported me with
“I’ve been involved with MS Plus’ Employment Support Service for around 15 years and the help I’ve received has been exceptional.” workplace visits and meeting with my managers and team leaders. She’s provided me with funding for ergonomic equipment like a specialised computer mouse, and special seating because my right hand side is physically weaker than my left,” he says. “I’m a bit of a perfectionist at work, but I’ve had periods where I struggle, forgetting things and that has led to inconsistent productivity and quality outcomes. Stephanie has given me all sorts of advice and strategies and organised meetings with managers where we can work out a program to get me back on my feet. “That can look like designing checklists or refining procedures, as well as support to manage
Santo splits his work week between working from home and a day or two in the office. Help to learn how to manage his physical symptoms, and communicating his needs with his employer, have been two of the biggest benefits he’s received from Employment Support Service. “I experience severe restless leg syndrome and sometimes get neuropathic pain during the day, and if I have a disturbed sleep it is more challenging for me to be up in the morning. “Stephanie’s helped with suggestions and strategies, which might be justification for why I need a 20-minute break instead of a five-minute break in the morning, or an extended lunch break. She’s gone above and beyond to get on top of things before it’s too late. “Over the years, as my circumstances and functionality changes, my neurologist, health team and support team like Steph have a major impact on my ability to keep going. I want to continue working for as long as I can, like a lot of people I’ve got a mortgage and bills to pay, so having this support to keep on top of things is just exceptional.” 11
Recognising the signs Depression is more than simply feeling down. Some common signs include:
SPOTLIGHT
Symptom: Depression and emotions Living with MS can affect more than your physical health. It’s common to experience a range of emotions, including sadness, frustration, grief or anxiety, particularly after diagnosis or during periods of change. Depression is also more common among people living with MS than in the general population.
Persistent feelings of sadness or emptiness Loss of interest in activities you usually enjoy Changes in sleep or appetite Difficulty concentrating or making decisions Increased fatigue, low motivation or feelings of worthlessness Because symptoms such as fatigue and difficulty concentrating can also be caused by MS itself, depression can sometimes be difficult to recognise. Small steps that can help While professional support is important, there are also practical ways to support your wellbeing: Stay connected with family, friends and support networks
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Get outside for fresh air and sunshine when possible Keep active in ways that work for you Consider keeping a diary to identify mood patterns and triggers Practise mindfulness or relaxation techniques If you’ve been feeling low for more than a couple of weeks, speak with your GP, neurologist, MS nurse or a mental health professional. Seeking support is a sign of strength, and with the right help, depression can be effectively managed. MS Plus’ nurses provide free, confidential support and can help you understand your symptoms, explore management strategies and connect with additional services if needed. To speak with an MS nurse, call MS Plus on 1800 042 138.
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Protecting access to MS treatments: Advocacy in action The decision also reinforced the value of collaborative advocacy, demonstrating the important role that people living with MS, healthcare professionals, advocacy organisations and policymakers can play in shaping positive outcomes for the community. What happens next? While the immediate concern regarding access to Ocrevus and Kesimpta was addressed, discussions about MS medicines are continuing.
At MS Plus, we’re committed to supporting people living with MS through specialist services and support. We also work closely with MS Australia, our national advocacy and research peak body, to help ensure people living by MS have access to the treatments, services and support they need to live well.
worked closely with government representatives, policymakers and key stakeholders to highlight the importance of maintaining access to these therapies. MS Plus supported these advocacy efforts by helping raise awareness within the community and encouraging people to stay informed about developments.
This year, treatment access became a strong focus of advocacy when concerns were raised about the future availability of two vital MS medications, Ocrevus (ocrelizumab) and Kesimpta (ofatumumab), through the Pharmaceutical Benefits Scheme (PBS).
The MS community responded by sharing stories and experiences that demonstrated the real-world impact these treatments can have. These voices helped reinforce the importance of maintaining affordable access to effective therapies and ensuring treatment decisions remain centred on individual clinical needs.
Ocrevus and Kesimpta are high-efficacy therapies used by many Australians living with MS. Concerns emerged that proposed PBS pricing arrangements could potentially affect the ongoing availability of these medications through the PBS. The possibility of reduced access created uncertainty for many people living with MS and highlighted the importance of ensuring Australians continue to have access to a broad range of affordable treatment options. Advocating for choice and access In response, MS Australia
The Australian Government has announced a rapid review of MS medications, which is examining treatment options and access arrangements for people living with MS. MS Plus welcomes this review and, through our peak body MS Australia, continues to support efforts that ensure affordable access to a broad range of effective treatments. Importantly, all PBS-listed MS medicines, including Ocrevus and Kesimpta, remain available while the review is underway. As the review progresses, MS Australia will continue advocating on behalf of the MS community and encouraging people with lived experience to contribute to consultations where appropriate. Ensuring the voices of people living with MS are heard remains an important part of the process. Staying informed
In July, the Australian Government announced that Ocrevus and Kesimpta would remain available through the PBS.
Access to treatment is a vital issue for many people living with MS and their families. While the review continues, MS Plus will continue to support advocacy efforts that promote choice, affordability and access to effective treatments.
The announcement was welcomed by MS Plus, MS Australia and the broader MS community. For people currently using these medications, it provided reassurance that access would continue while broader discussions about MS medicines take place.
We encourage our community to stay informed and follow developments as they occur. For the latest updates on the review and future advocacy opportunities, follow MS Plus’ social media accounts, and visit the MS Australia website at msaustralia.org.au.
A welcome outcome
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Travel and MS: Don’t put a ceiling on what’s possible For Andrew, a successful trip isn’t about seeing everything. “It’s about the experience. Sometimes it’s standing in front of a landmark you’ve always wanted to visit or sharing a moment with your family. Those are the things you remember.” He also encourages people not to dismiss support when it’s available. “If assistance is offered and it helps you keep enjoying the trip, take it.” Don’t put a ceiling on what’s possible
For many people living with MS, travel can bring mixed emotions. Alongside the excitement of seeing new places often comes uncertainty: Will I manage the flight? What happens if I need to change plans? Can I keep up? MS Plus Connect Coordinator Andrew knows those feelings well. Diagnosed with MS 30 years ago, Andrew recently travelled through Europe with his wife and children. While the trip came with challenges, it also reinforced an important lesson: travel may look different after diagnosis, but it can still be rewarding, meaningful and memorable. Travel looks different, not impossible Before his diagnosis, Andrew travelled much like many young people, enjoying the freedom of seeing the world.
Today, he says the biggest challenge isn’t necessarily the logistics, it’s believing you can still do it. “I think having MS can knock your self-confidence a bit,” Andrew says. While travel may require more planning, Andrew believes that doesn’t mean ruling it out. “There might be some parts of a trip you choose not to do, and that’s okay. The important thing is not putting a ceiling on what you think is possible.” Making the most of the journey Travelling with MS has taught Andrew the value of pacing himself and being flexible. On a recent trip, there were times when steep streets, long walking tours and historic sites without lifts made things difficult. Occasionally, he decided to skip part of an activity and conserve his energy for something else.
When Andrew reflects on travelling with MS, one message stands out. “There’ll probably be challenges, but don’t let those challenges be the reason you never go.” Some experiences may require a different approach. Others may take a little longer. But with realistic expectations, flexibility and confidence, travel can still create lasting memories. “You’re seeing places you’ve always wanted to see, sharing experiences with people you love and proving to yourself what is still possible.” Andrew’s travel lessons: Travel may require more planning, but it’s still achievable. Pace yourself and allow flexibility in your itinerary. Accept support when it’s offered. Focus on the experiences that matter most. Don’t compare your trip to anyone else’s.
Stress-free travel: Tips from experience
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Want to learn more about travelling with confidence while living with MS?
Lessons from his recent international travels
This December, Andrew will share practical insights from his own travel experiences, including tips, considerations and lessons learned along the way, including:
Strategies for managing symptoms while away
Tips for planning and packing
Useful travel resources and supports Advice on advocating for your needs when travelling
Whether you’re planning a weekend getaway or an overseas adventure, you’ll gain practical insights to make your journey enjoyable. Date: 2 December 2026 Time: 12.30pm to 1.15pm (AEDT) Location: Online webinar Cost: Free Book: www.trybooking.com/DKDLR
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What’s On
Register for an upcoming program today msplus.org.au/programs
Upcoming programs and events Making Sense of MS Research A virtual event with Brett Drummond, MS Researcher/ Scientist from MSTranslate, exploring the latest in MS research, equipping you with up-to-date knowledge and practical takeaways. Date: Fri 27 Nov, 12pm, free
Peer Links Online facilitated three or fourweek programs. Guest speakers join throughout the program to share tips and strategies. Examples of Peer Link topics include women’s health, men’s health, and working with MS. Dates: Various dates available
Online and in-person Peer Support Groups Our groups bring together people who share similar experiences or life stages to talk, learn and support each other in a safe, inclusive space. Dates: Various dates available
Navigate MS: Living Well with a New Diagnosis Two online sessions of 60 minutes each will include expert content, an opportunity to learn from others’ experiences and a chance to ask questions. The sessions will be facilitated by an MS Plus nurse advisor.
resources and answer any questions you may have. The sessions will be facilitated by an MS nurse and cover topics such as understanding MS, navigating the health system, where to access support and how to look after yourself while supporting someone else. Dates: Various dates available
FACETS: Fatigue management for MS Whether you’re trying to keep up with the kids, ease fatigue at work or want to get more out of your day, FACETS provides practical strategies and approaches. Participants must have an MS diagnosis and a minimum level of mobility. Dates: Various dates available, 6 x 90-minute weekly sessions
Stay Active Stay active, independent and healthy with our exercise physiologist-led online group classes. These sessions will help you stay active and build confidence for daily life, whether that’s being able to enjoy activities, keeping up with the kids or being more confident moving around at home. Keeping active can also help with managing fatigue and promote pain management. Dates: Various dates available, 6-week online program
Exercise groups NSW To book, phone 1800 042 138 Boxing Fridays 9am–10am 80 Betty Cuthbert Dr, Lidcombe Lidcombe Yoga (chair-based) Wednesdays 10.30am 80 Betty Cuthbert Dr, Lidcombe Dance for Health* (chair-based) Mondays 10.30am 80 Betty Cuthbert Dr, Lidcombe East Gosford Exercise Group* Wednesdays 10.30am (school term only) East Gosford Lions Hall Marrickville Yoga* Tuesdays 9am Addison Road Community Centre, 142 Addison Road, Marrickville
ACT To book, phone 1800 042 138 Be better balanced Tuesdays 9.30am (circuit-based class) Thursdays 10am (chair-based class) Gloria McKerrow House 117 Denison St, Deakin Wheels in motion (chair-based class) Thursdays 11.00am Gloria McKerrow House, 117 Denison St, Deakin
Dates: Various dates available
Eat Smart
Navigate MS: For Family & Friends
Led by a qualified dietitian, discover how simple, everyday food choices can help you feel more energised, improve digestion and become part of your routine.
VIC
Dates: Various dates available, 4-week program
* This class is not run or managed by MS Plus.
Over one 60-minute session, an MS expert will guide discussions, provide information, links to
For queries relating to exercise groups in Victoria, phone 1800 042 138
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Short-term stays that support your wellbeing Whether you require additional support, a temporary stay, or an opportunity to focus on your health and wellbeing, our short-term accommodation at Lidcombe Home (NSW) and Watsonia Home (VIC) offers comfortable accommodation, personalised support and opportunities for social connection.
At Lidcombe Home, you can also work with our wellbeing team to develop a personalised exercise program during your stay, then continue building on your progress at home or through telehealth appointments. Travel assistance of up to $2,000 may be available to help cover the cost of getting to and from our accommodation.
Book your stay and experience the benefits of short-term accommodation msplus.org.au/accommodation 16