MSA Trust Impact Report 2024 - 2025

MSA Trust Impact Report for 2024-25 This Impact Report summarises how The MSA Trust worked to support people affected by MSA in the 2024 – 25 year.

As ever we are very grateful to all of you who have helped us during this time, through your fundraising, volunteering or general support to our MSA community.

What we achieved in the year...

Supported more people affected by MSA than ever beforepeople living with MSA and Carers, Family and Friends.

1,453 2,277

Supporting and reaching more people affected by MSA

165 in total -

more than one group meeting every other working day

78

regional in-person MSA Support Groups

87

Digital Support groups, carers groups, coffee mornings

136 MSA clinics

attended by our Healthcare Specialists

We remain the only organisation solely focussed on the needs of people affected by multiple system atrophy (MSA). Our support ranges from responding to MSA-related concerns, to emotional and financial help and guidance.

I n conjunction with the organisation Rare Minds, we continued to test out counselling interventions to support people affected by MSA. W e were able to assist over 50 families in exceptional hardship or need through our limited welfare grants support.

O ur Social Welfare Service supported 1,151 people, enabling them to be awarded nearly £400,000 in benefit entitlements.

2 2,412 individual enquiries supported by our Healthcare Specialists

“Thank you for completing my PIP review for me. At times I have struggled with providing information over the phone, but you have always been so very patient and efficient, it really is incredible. “ – user of our Social Welfare Service

Raising MSA as a priority and building awareness 5 3 training events provided for nearly 900 Healthcare professionals O ur 2025 MSA Trust Research Symposium attracted world renowned researchers with 150 attendees O ur MSA Study Day was attended by over 170 participants with 100% positive feedback

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“Your deep knowledge of my condition gives me confidence in my desire to live the best life I can for as long as possible. Thank you for bringing light to the darkness” – person diagnosed with MSA.

How we aim to make a difference We remain committed to finding the cause and cure for MSA through research. In the meantime, we are dedicated to ensuring the best possible support for our MSA community. We aim to

help people control their lives by providing accredited information, social welfare guidance, voice banking service, and emotional and practical support through our team of MSA Health Care Specialists.

promote wellbeing and reduce isolation through our Support Groups, pilot counselling initiatives, and our memorial and Sarah’s Wood events. promote wider awareness of MSA through our training for Healthcare professionals, social media, our website and our volunteer network.

Your Fundraising in Numbers We rely entirely on voluntary donations such as yours, to provide our free support services for everyone impacted by MSA. Thank you to to all those who contributed.

In the 2024 - 25 year, we are so grateful to the :

848 donors who gave generously 236 supporters who participated

in an event for MSA Trust.

Overall, our community fundraisers have raised over £158,246 this year. From charity golf tournaments to raffles and prize draws, bake sales, and charity gala – they have done it all!

10 incredible runners took on the London Marathon, and 15 runners

represented Team MSAT at the Great North Run. Their hard work helped raise awareness of MSA on the track and contributed to our overall mass-participation event fundraising total of £259,201 for the entire year, raised by supporters taking on marathons, walks, treks, and more.

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Hope for the future – MSA Research We continue to fund the latest innovative research into MSA with the hope that one day we fulfill our vision of a world without multiple system atrophy.

MSA Trust Income and Expenditure for 2024 – 25 Please note that this information is provided from the end of year management accounts, and the full audited accounts will be available on our website from Dec 2025. Also note that the information does not include the legacy income or the research expenditure, which is reported separately in the annual report.

Total Operational Income £1,141,385.15

O ur research funding supported eight vital MSA research projects totalling nearly £610,000 O ur 2025 Research Symposium attracted world renowned researchers with 150 attendees, enabling sharing of knowledge and new collaborations to be born.

W e ran two MSA Community Research Webinars, bringing together eminent MSA researchers and our MSA Community to share highlights of latest developments in research.

D r Linda Lei was successful in receiving our Myra Morris Clinical Research Training Fellowship in collaboration with the Association of British Neurologists. Funding this fellowship allows Dr Lei to research clinical and biological markers that may help diagnose MSA earlier.

Thanks to thoughtful supporters who left gifts in their Wills that funded this Fellowship and provides hope for future generations.

To find out more

1%

9%

Charitable Trust income Community Fundraising Event income

3%

10%

In Memoriam Other Donations

18%

MSA Trust Operational Income 2024-25

14%

Gift Aid Merchandise Income

25% 20%

Corporate Giving

Total Expenditure £1,150,280.89 2% 3% Audit, accountancy

& prof fees

2%

5%

Cost of Raising Funds Information and

patient support Office costs PR, marketing & merchandise

17%

MSA Trust Operational Expenditure 2024-25

Staff costs Welfare fund

69%

www.facebook.com/MSATrust1

www.msatrust.org.uk

www.linkedin.com/company/multiple-

0333 323 4591

system-atrophy-trust

fundraising@msatrust.org.uk

www.instagram.com/msatrust

The Multiple System Atrophy Trust is a charity registered in England as a limited company.

Company Registration No: 7302036. Registered Charity No. 1137652 (England & Wales) and SC044535 (Scotland)

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