QuickStart Pisa 2016 Program

Communication QuickStart Workshop 2016 Pisa 10- 12th June 2016 A joint ACM/ MPNE workshop

A Communication Workshop for European Melanoma advocates Join us in Pisa!

Communication QuickStart Workshop 2016 a joint ACM- MPNE project

Location Residence Le Benedettine Lungarno Sidney Sonnino, 18, 56125 Pisa, Italy Phone: +39 050 28257

website

http://en.residence.unipi.it/home_en

Organizers MPNEsupport Org. 802492-1069 Fjälbo Selknä 152 75597 Uppsala, Sweden www.melanomapatientnetworkEU.org

Associazione Contro il Melanoma ONLUS Via Roma, 67 56126 Pisa, Italy www.associazionecontromelanoma.it

Responsible Antonella Romanini Bettina Ryll

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa

Welcome to Communication QuickStart A joint ACM/ MPNE event

Successful communication is crucial to our work as Melanoma advocates: We communicate with patients, carers, advocates, clinicians, regulatory and HTA bodies, the general public, the pharmaceutical industry, the press and over various channels: in writing, presenting and over diverse media channels such as blogs, forums, videos and twitter.

This QuickStart workshop is for European Melanoma advocates who are looking for deeper understanding about communication to explore with colleagues how this can help us to become even more effective Melanoma advocates.

We are looking forward to meeting you!

Antonella, Nevio and Bettina

Also- breaking news from the ASCO meeting 2016

ASCO 2016 program http://am.asco.org/

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa

Program Final version

Friday 10th June from 4pm Arrival and opportunity to catch up with your European advocacy colleagues in real life! If you can’t wait till June- you’ll receive an invite to a dedicated Slack group to connect before.

6pm – 7.30pm Welcome and introduction to the workshop Short introductory round for participants 8pm Dinner in Town

Saturday 11th June 8am Coffee 9:00 - 11.00am An introduction to Melanoma from prevention to current treatments - An overview of the challenges melanoma presents to lay people, patients and advocates.

Antonella Romanini – Pisa, Italy -

Primary prevention and secondary prevention models in Pisa Nevio Dubbini – Pisa, Italy

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HappySun : a friendly App for increasing UV light awareness and modifying life style Emilio Simeone – Livorno, Italy

11.00 - 11.30am Coffee 11.30 - 12.30am How do we effectively communicate Luca Mori – Pisa, Italy

Words, emotions and communication in the brain Pietro Pietrini – Lucca, Italy

12.30 - 14.00pm Light Lunch

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa

14.00 - 15.30pm Effective communication: everyday and clinical settings psychology.

Capture attention and convey essential messages in an effective way Claudio Gentili – Padova, Italy

Knowledge Management – Making sure we know what you know Rob White – London, UK

15.30 - 16.00 Coffee 16.00 - 18.30pm The interaction between man and machine: challenges and limits: We don’t only communicate with other people- but also with machines.

Relevant topic considering that we mostly communicate via social media!

Nicoletta Calzolari Zamorani – Pisa, Italy

Improving Medical Communication with Language Technologies Giulia Venturi – Pisa, Italy

8pm Dinner in Town

Sunday 12th June 8am Coffee 9.00 - 10.30am Breaking news from ASCO 2016 Antonella Romanini – Pisa, Italy

10.30 - 11.00am Coffee 11.00 - 12.00am Experienses from secret blogging to public apperance Kari Anne Fevang – Tønsberg, Norway

Use of the Internet to build tailored health interventions Alberto Piras – Milan, Italy

12.00 - 13.30pm Light Lunch and goodbye

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa

Our speakers Calzolari Zamorani, Nicoletta

Dubbini, Nevio

Fevang, Kari Anne

Research Associate and former Director of the CNR Institute of Computational Linguistics, of ILC-CNR, Pisa. Italy. Honorary Doctorate in Philosophy at Copenhagen University. ACL Fellow for “significant contributions to computational lexicography, and for the creation and dissemination of language resources�.

Coordinating many international projects/strategic initiatives.

President of ELRA, ICCL member, chair of ISO/TC 37/SC 4, vice-president of META-TRUST. General Chair of LREC (since 2004), COLING 2016, COLING-ACL-2006. Co-editor-in-chief of the Journal Language Resources and Evaluation, Springer.

More than 400 publications.

Data scientist, Ph.D. in Applied Mathematics. He has extensive experience in data analysis, statistics, mathematical modelling and software. He has worked in both business and academic contexts, in a broad range of sectors, including healthcare, IT, educational, humanities, social and life sciences. Within the biomedical sector, he has dealt with statistical and epidemiological analyses, design of experiments, behavioral tests, time series, survival curves, clinical trials and mathematical modelling. He has authored about 20 papers appeared in peer reviewed journals and conference proceedings, edited a volume, and has delivered about 20 talks in international conferences.

Kari Anne is a Norwegian Medical Engineer. For years, she has been responsible for maintaining medical equipment, having in-depth knowledge of hospitals and the machinery to support doctors and patients. This made her a skilled patient when she discovered that a Melanoma had developed in 2014. In Dec 14 she was diagnosed stage IV, and was told at the local hospital that she would never recover, and that medication was not available to her because of the cost. Kari Anne enrolled in a phase-1 study at the Norwegian cancer hospital with a vaccine, UV1 and ipilimumab. Halfway into the study, severe sideeffects forced her to go off the vaccine. She had partial remission, and now stable decease. She has been blogging privately since the diagnosis, and on the official Melanoma-day May 11th, she told her story on national broadcaster. With her energy slowly returning, she is now for the first time sharing her experience with the international community.

Gentili, Claudio He graduated in Medicine and Surgery at the University of Pisa Medical School, where he also obtained his Ph.D. in Neuroscience. He received the Master Degree in Psychology, from the University of Pavia in 2009. From 2010 he was Assistant Professor in Clinical Psychology, University of Pisa. In September 2015 he became Associate professor of Clinical Psychology at University of Padua. His main research topics are biological correlates of abnormal psychology, clinical psychophysiology of mood, neurobiology of face perception, and FMRI resting state correlates of personality traits. He has authored more than 50 papers published in international peerreviewed journals.

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa

Mori, Luca Luca Mori is a communication consultant, dealing with social media strategies, political communication and conflict management. He is also active as a researcher, having worked on individual perceptions, social representations and social dynamics in the areas of history of philosophy and political philosophy. He graduated in Philosophy in 2000 and obtained his Ph.D. in 2005, both at University of Pisa. He has authored about 110 among papers and book chapters, and has delivered about 10 talks in international conferences.

Pietrini, Pietro Psychiatrist and professor of Clinical Biochemistry and Molecular Biology. In 1989 he moved to the United States, where he spent over ten years first at the Laboratory of Neuroscience and then at the Cognitive Neuroscience Section of the National Institutes of Health (NIH) in Bethesda, Maryland. After 15 years of full-professor at the University of Pisa Medical School, where he directed the Laboratory of the Clinical Biochemistry Laboratory and the Clinical Psychology Branch, in November 2015 he became Director of IMT School for Advanced Studies in Lucca, a public graduate school and research institute. His research interests are in the fields of the brain bases of mental functions in humans.

Piras, Alberto

Alberto is CEO @ BravePotions, a start-up company whose mission is to help kids living better experiences in medical examination or treatments, through smart communication and gamification strategies. He has obtained his degree in Management at Bocconi University in Milan, and then has had a number of experiences in the healthcare sector, at an international level.

Romanini, Antonella

AR trained as oncologist at the National Cancer Institute of Genova, Italy, and at Sloan Kettering Memorial Cancer Center in New York. Author of over 80 scientific papers published in peer reviewed journals, Antonella is responsible for the Melanoma, Sarcoma and Rare tumors Unit at Santa Chiara University Hospital in Pisa, Italy, since1996 and founder and president of the “Associazione Contro il Melanoma ONLUS� since 2004. When asked what she would consider as her major achievement in life she answered "I have done nothing important in my life except for enjoying it and caring for cancer patients".

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa

Simeone, Emilio

Venturi, Giulia

Emilio is an example of an applied researcher having turned himself in a serial hi-tech start-upper. Emilio has over 15 years of experience in the field of environmental monitoring techniques, atmospheric modelling, optical remote sensing. He obtained a degree in Physics from the University of Pisa and a PhD in Applied Optics from the University of Florence, and he is author of over 10 international papers and of 4 patents. In 2001 he founded Flyby, an Italian SME exploiting satellite Earth Observation imagery to develop innovative services for new market sectors like renewable energy, tourism and healthcare.

In 2012 he founded i-EM, a company devoted to exploitation of big data for smart grid and renewable energies management. i-EM won the EnelLab 2013 competition for the most innovative Italian and Spanish start-ups in the energy field and is now participated by ENEL SpA. In 2015 he founded siHealth Ltd, a mobile health company exploiting Earth Observation satellite data and personal diagnostic data to provide personal decision support solutions for an healthy life style and health diseases prevention.

Giulia Venturi received a Ph.D in Computational Linguistics from the University of Torino (Italy) in 2011 with a dissertation entitled “Language and law: a computational linguistics perspective” aimed at detecting and measuring differences and similarities between the language of law and the ordinary language with a view to NLP Domain Adaptation. She currently has a Postdoctoral Fellowship at the Institute of Computational Linguistics “Antonio Zampolli” (ILC) of the National Research Council (CNR) in Pisa and she is member of the ItaliaNLP Laboratory (www.italianlp.it). Her main research interests include the study of the impact of non-canonical languages peculiarities on automatic text processing with a specific focus on the sublanguages of domain-specific text (e.g. legal and biomedical texts) and on the learner language (both L1 and L2 learners).

White, Rob Rob White graduated in Physics and after a short spell working for the Ministry of Defence transferred to the Finance Sector working in IT, where he has remained ever since. Today he works for a leading Wall Street Bank and is the head of Database Product Engineering in Europe. He has worked with MPNE since 2013 helping the organisation to grow and sustain itself. Rob has an MBA and specialises in Strategy, Knowledge and Operational management.

The event was funded by ACM MPNE- annual budget with contributions from Amgen, BMS, MSD, Novartis and Roche

Melanoma Patient Network Europe Associazione contro il Melanoma O.N.L.U.S.

QuickStart 10th-12th June 2016, Pisa