MPNE autumn workshop 2015 program

Melanoma Patient Network Europe Reading Scientific Papers 27th- 29th November 2015 Krusenberg Herrgård Sweden

MPNE autumn workshop for European Melanoma Advocates www.melanomapatientnetworkEU.org

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MPNE autumn workshop Scientific papers for European Melanoma advocates

Location Krusenberg Herrgård Krusenberg 436 755 98 Uppsala Sweden TEL 0046-18 18 03 00 Coordinates: GPS-koordinater Latitud: N 59° 44′ 8″ Longitud: E 17° 38′ 58″ Latitud: 59.73558245943259 Longitud: 17.649586782639698 X: 6625424 Y: 1603732

Organizer MPNEsupport Fjällbo Selknä 152 75597 Uppsala Sweden

Responsible Bettina Ryll Kristin Bryon

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Program Friday, 27th November 2015 14.00- 15.30 Visit to the Uppsala Monitoring Center Introduction to the joint UMC/ MPNE project (working title: MMIMMelanoma patients Monitor Innovative Medicines) Transfer from Uppsala to Krusenberg Herrgård 18.00- 19.30 Welcome at Krusenberg Herrgård Introduction to the workshop Review of MPNE activities in 2015 and plans for 2016 Bettina Ryll, Gilliosa Spurrier How do PAs access scientific literature?

Open access and tools available to PAs. Violeta Astratinei 20.00 Dinner at Krusenberg Herrgård Meet the other workshop participants.

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Saturday, 28th November Workshop Day 1 How to read a scientific publication in Melanoma Faculty: John Haanen, NKI Amsterdam, Netherlands 8.00- 9.00 Breakfast 9.00- 10.30 Setting the scenebackground and context for the publication John Haanen 10.30- 11.00 Coffee 11.00- 12.30 Results- what does the publication really show?

John Haanen 13.00- 14.30 Lunch 14.00- 15.30 Discussion and Conclusion John Haanen 15.30- 16.00 Coffee 16.00- 17.00 Cut the jargon.

Writing summaries that people read and understand.

Kristin Bryon 17.00- 17.45 Immune Therapies in Melanoma and what is coming next?

John Haanen 19.30 Julbord Join us for Julbord, the traditional Swedish Christmas Dinner

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Sunday, 29th November Workshop Day 2 How to make scientific information accessible for our patients?

8.00- 9.00 Breakfast please make sure you check-out 9.00- 10.30 Social media strategy How to use social media to systematically reach Melanoma patients.

Alfonso Auguarón 10.30- 11.00 Coffee 11.30- 12.30 Discussion Call to action- how do we as network reach more Melanoma patients in Europe?

Moderator Roald Nystad 12.30 Workshop Summary Bettina Ryll, MPNE 13.00- 14.00 Lunch and Departure

Safe travel home and we hope to see you again soon!

Thank you for your feed-back, we want to organize events that are as helpful as possible for European Melanoma advocates.

Reimbursement of travel expenses after the event against travel receipts and a completed reimbursement form.

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External faculty John Haanen Nederlands Kanker Instituut John is Head of the Medical Oncology department at NKI-AVL, the Netherlands Cancer InstituteAntoni van Leeuwenhoek Hospital) in Amsterdam in The Netherlands.

John is one of the leading Melanoma oncologists and has in fact dedicated his entire career to Immunotherapies in cancer. He works both as a scientist (NKI and as a Professor of Translational Immunotherapy of Cancer at Leiden University Medical Centre (LUMC)) and as a medical oncologist and his department is one of the very few in Europe offering a TILs (Tumorinfiltrating Lymphocytes) program.

Alfonso Auguarón Myeloma Patients Europe Alfonso, our colleague from Myeloma Patients Europe, is a Computer Engineer by training and got involved in patient advocacy after his own diagnosis with Hodgkin Lymphoma in 2008.

Alfonso’s passion is to optimally use resources and knowledge for the benefit of patients. He has extensive social media experience to foster collaboration and exchange and is the coordinator of the newly founded WeCan (informal Workgroup of European Cancer patient Advocacy Network) initiative.

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MPNE faculty Kristin Bryon, MPNE Gilliosa Spurrier, Mélanome France and MPNE Roald Nystad, FØFLEKKREFTFORENINGEN and MPNE Violeta Astratinei, Stichting Melanoom, Melanom Romania and MPNE Bettina Ryll, MPNE

MPNE

www.melanomapatientnetworkeu.org melanomefrance.com foflekkreft.no www.kanker.nl/organisaties/stichting-melanoom

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Good to know The Swedish currency is SEK 1 Euro = 9.4 SEK Cash machines can be found in the arrival area at the airport.

Weather Please prepare for the Swedish weather and check the weather report before travelling- we might already have snow.

Closest Airport Stockholm ARLANDA is Sweden’s main airport and ca 30 min drive away from Krusenberg Herrgård.

Transfers Arlanda Airport to Uppsala Please arrange your own transport from the airport to the Uppsala Monitoring Center.

Details are available in the separate logistics flie as shared on slack.

UMC to Krusenberg We will arrange a transfer from Uppsala to Krusenberg Herrgård after our visit to UMC. Arlanda Airport to Krusenberg The best way to reach Krusenberg is by Taxi. Please try to join others and print this program with the Hotel details including GPS coordinates and a phone number to the Hotel as Krusenberg is not far but not that easy to find.

Krusenberg to Arlanda airport The Hotel will be able to assist you with arranging the transfer.

IncidentalsThe workshop budget covers workshop participation, accommodation and meals; please note that you will be responsible for all other incidentals.

Contact during the workshop: Kristin Bryon +46-730370724 Bettina Ryll +46-722297272 Gilliosa Spurrier +33-676318349 Violeta Astratinei +31-646699527 Roald Nystad +47-90773769

We thank for their support

program version 17th November 2015

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