Krusenberg 2016 Program

Melanoma Patient Network Europe Krusenberg 2016 Access to Innovation in MELANOMA 24th- 27th November 2016 Uppsala, Sweden

MPNEhubs workshop 2016 for European Melanoma Advocates www.melanomapatientnetworkEU.org

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MPNE Krusenberg 2016 Workshop for MPNEhubs Location Krusenberg Herrgård Krusenberg 436 755 98 Uppsala Sweden TEL 0046-18 18 03 00 Coordinates: GPS-koordinater Latitud: N 59° 44′ 8″ Longitud: E 17° 38′ 58″ Latitud: 59.73558245943259 Longitud: 17.649586782639698 X: 6625424 Y: 1603732

Organizer MPNEsupport Fjällbo Selknä 152 75597 Uppsala Sweden

Responsible Bettina Ryll Gilliosa Spurrier Violeta Astratinei

Organising team Bettina Ryll, Gilliosa Spurrier, Violeta Astratinei, Kay Curtin, Tom van der Velde, Iain Galloway

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Program Thursday, 24th November 2016 Arrival 16.00- 18.00 Introduction to the workshop Get to know your colleagues! with Tom van der Velde 19.00 Dinner at Krusenberg Herrgård

Friday, 25th November 2016 Workshop Day 1 Risk Sharing Agreements and HTA 8.00- 9.00 Breakfast 9.00- 10.30 Risk sharing agreements- Session 1 Panos Kanavos, LSE 10.30- 11.00 Coffee 11.00- 12.30 Risk sharing agreements- Session 2 Panos Kanavos, LSE 13.00- 14.30 Lunch 14.30- 15.30 Advocacy Session Reports from various Melanoma initiatives in 2016 15.30- 16.00 Coffee 16.00- 17.30 An introduction to HTA Sarah Garner, NICE, UK 3

17.30- 18.30 An introduction to health journalism What are journalists looking for?

Anna Wagstaff and Simon Crompton, Cancerworld 19.30 Dinner at Krusenberg Herrgård

Saturday, 26th November 2016 Workshop Day 2 Mapping access to Melanoma drugs in Europe 8.00- 9.00 Breakfast 9.00- 10.30 Session 1 Introduction to the mapping exercise, clarification of materials and platform to be used 10.30- 11.00 Coffee 11.00- 12.30 Session 2- practical work: mapping 13.00- 14.00 Lunch 14.30- 15.30 Session 3- Advocacy Session Speakers TBC 15.30- 16.00 Coffee 16.00- 17.30 Session 4- practical work: mapping 17.30- 18.00 Summary of the day and completion of the platform 19.00 Julbord Join us for Julbord, the traditional Swedish Christmas Dinner 4

Sunday, 27th November 2016 Workshop Day 3- advocates only

Advocacy 8.00- 9.00 Breakfast please make sure you check-out 9.00- 10.30 Session1 10.30- 11.00 Coffee 11.30- 12.30 Discussion Agenda will be shared closer to the event 12.30 Workshop Summary Bettina Ryll, MPNE 13.00- 14.00 Lunch and Departure

Safe travel home and we hope to see you again soon!

We rely on your feed-back to make events as relevant as possible for you- so please don’t hold back!

Reimbursement of travel expenses after the event against travel receipts and a completed reimbursement form. You will receive the reimbursement form by email.

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MPNE faculty Gilliosa Spurrier, Mélanome France and MPNE Violeta Astratinei, Stichting Melanoom, Melanom Romania and MPNE Bettina Ryll, MPNE Kay Curtin, Tom van der Velde, Melanoompunt.be Iain Galloway, MPNE ocular

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Good to know The Swedish currency is SEK 1 Euro = 10 SEK Cash machines can be found in the arrival area at the airport.

Weather Please prepare for the Swedish weather and check the weather report before travelling- we might already have snow.

Closest Airport Stockholm ARLANDA is Sweden’s main airport and ca 30 min drive away from Krusenberg Herrgård.

Transfers Arlanda Airport to Krusenberg The best way to reach Krusenberg is by Taxi. Please try to join others and print this program with the Hotel details including GPS coordinates and a phone number to the Hotel as Krusenberg is not far but not that easy to find.

Krusenberg to Arlanda airport The Hotel will be able to assist you with arranging the transfer.

IncidentalsThe workshop budget covers workshop participation, accommodation and meals; please note that you will be responsible for all other incidentals and extra nights.

Contact during the workshop best via our Slack platform, otherwise: Bettina Ryll +46-722297272 Gilliosa Spurrier +33-676318349 Violeta Astratinei +31-646699527

We thank for their support

program version 11th November 2016

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