The New Jersey Online and Telephone Support Group 2015-2016 Directory by Michael Adam Reale

The New Jersey Online | Telephone Support Group Directory

2015 â&#x20AC;&#x201C; 2016 Compiled and edited by

Michael Adam Reale, Information Services Supervisor With special appreciation to the staff and volunteers of Self-Help Services, a department of Saint Clareâ&#x20AC;&#x2122;s Health System, a member of Catholic Health Initiatives. Staff:

Aimee Braca-Deo, Program Administrator Wendy Rodenbaugh, Information and Referral Assistant Barbara White, State Program Coordinator Volunteers:

Barbara Blumenfield Pat de la Fuente Howard Learner

Baiba Ozols Dr. Paul Riddleberger, PhD Elaine Romito

In New Jersey: 1-800-FOR-MASH | Outside of NJ dial 973-989-1122 www.NJgroups.org

TABLEOFCONTENTS

ALS (Lou Gehrigâ&#x20AC;&#x2122;s Disease) Androgen Insensitivity Ankylosing Spondylitis Anophthalmia Anosmia | Parosmia Arachnoiditis Arteriovenous Malformation Arthritis Ataxia Benign Fasciculation Syndrome Brain Injury | Brain Tumor | Coma Breast Implant Support Cancer Cavernous Angiomas | Cavernous Malformation Celiac|Gluten Intolerance Chiari Malformation Chordoma (Rare Tumor) Chromosomal Anomalies Chronic Fatigue Syndrome Cleft Palate | Cleft Lip Congenital Adrenal Hyperplasia Congenital Central Hypoventilation Corticobasal Ganglionic Degeneration Cowden Syndrome | BRRS Cystic Fibrosis Dentatorubral Pallidoluysian Atrophy Diabetes Encephalitis Erectile Dysfunction and Impotence Fibromyalgia Gastrointestinal Stromal Tumor Guillain-Barre Syndrome Heart Disease Hemifacial Spasm Hemophilia Hip Replacement Hypothyroid Infertility | Childlessness Inflammatory Bowel Disease|Irritable Bowel Syndrome Iron Disorders Kallmann Syndrome (Hypogonadotrophic Hypogonadism) Kawasaki Disease Klinefelter Syndrome Life Threatening | Chronic | Terminal Illness 3

Liver Disease Meningioma (Brain Tumor) Menopause Meyer-Rokitansky-Kuester-Hauser Syndrome MoyaMoya Disease Mullerian Anomalies Myositis Myotonia Congenita | Myeloproliferative Disease Orthopedic (Knee, Hip, Back, Shoulder) Ostomy Painless | Nonischemic Priapism Parkinson’s Disease Parry-Romberg Syndrome Peter’s Anomaly Peyronie’s Disease Polymicrogyria Premenstrual Dysphoric Disorder Primary Lateral Sclerosis Prosopagnosia - Face Blindness Prune Belly Syndrome Respiratory Disease | Emphysema Schizencephaly Severe Combined Immunodeficiency Disease Short Bowel Syndrome Sjogren’s Syndrome Skin Disorders Spinal Cord Tumor Strabismus (Cross-Eyed) Stroke Thrombophilia Thyroid Townes-Brocks Syndrome Tracheo Esophageal Fistula Trigeminal Neuralgia | Tic Douloureux Trimethylaminura Trisomy Urea Cycle Disorders Valley Fever Vascular Birthmarks Vestibular Disorders MENTAL HEALTH Anxiety Attacks | Phobias | Agoraphobia Depression|Bipolar Disorder|Post-Partum Depression Eating Disorders 4

Families of Persons with Mental Illness Maladaptive Daydreaming Mental Health (General) Mental Health Consumers Obsessive-Compulsive Disorder Procrastination Trauma and Post Traumatic Stress Disorder MISCELLANEOUS Bullying Crime Victims | Offenders Financial | Bankruptcy Housing | Foreclosure Religion | Clergy LGBTQIA Veterans | Military Youth | Students

ABUSE

CHILD ABUSE isurvive Online. Founded 2001. Provides mutual support for adult survivors of child abuse and their loved ones. Forums include: physical, sexual, verbal, emotional and ritual abuse survivors. Offers both open and private chat rooms. Website: http://www.isurvive.org E-mail: isurvive@hush.com SEXUAL ABUSE | INCEST | RAPE After Silence Online. Provides support for rape, sexual assault and sexual abuse survivors via message boards and chatrooms. Website: http://www.aftersilence.org Betrayed Boys - Betrayed Alone, United Together Online. Provides support for male survivors of childhood sexual abuse. Welcomes partners, children, parents, siblings and friends. Chatrooms, discussion boards and resources. Website: http://www.betrayedboys.com E-mail: admin@betrayedboys.com isurvive Online. Founded 2001. Provides mutual support for adult survivors of child abuse and their loved ones. Forums include: physical, sexual, verbal, emotional and ritual abuse survivors. Offers both open and private chat rooms. Website: http://www.isurvive.org E-mail: isurvive@hush.com Pandoraâ&#x20AC;&#x2122;s Project Online. Founded 1999. Provides support, education and resources to sexual violence survivors and their supporters. Operates an online support group, message board and chatroom for rape and sexual abuse survivors. Offers a Sexual Assault Lending Library, which lends materials on sexual violence and recovery, free of charge. Newsletter, literature and national conference. Website: http://www.pandorasproject.org and http://www.pandys.org/forum Support for Partners Online. Support for partners of those who have been sexually abused and traumatized. E-mail to access website. Website: http://www.supportforpartners.org E-mail: steve@supportforpartners.org

ADDICTIONS

ALCOHOL ABUSE Addiction Survivors Online. Provides peer support communities for those with drug/alcohol addiction, family and friends. Website: http://www.addictionsurvivors.org Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com Wings of Sobriety Telephone. Support for flight attendants, pilots and anyone associated with flying to recover from drugs and alcoholism. Meets Wed., 3:00pm and Sat., 9pm (EST). Conference call number 1-877-336-1839. International Access is 636-651-0008. The access code for both numbers is 7146709. CODEPENDENCY | DYSFUNCTIONAL FAMILIES Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com No More Mr. Nice Guy Online. Support for individuals who are tired of â&#x20AC;&#x153;impersonating a doormatâ&#x20AC;? and who are constantly seeking approval. Website: http://www.nomoremrniceguy.com/forums

DEBT | OVERSPENDING Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com Debt-Anon Telephone Support Group 12-Step. Fellowship of family members and friends dealing with compulsive debting. Meets Sun. at 1pm (EST). Call 712-432-0385 access code 74951#. Website: http://www.debtanon.org E-mail: debtanon.Telephone.meeting@gmail.com DRUG ABUSE Addiction Survivors Online. Provides peer support communities for those with drug/alcohol addiction, family and friends. Website: http://www.addictionsurvivors.org Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com Wings of Sobriety Telephone. Support for flight attendants, pilots and anyone associated with flying to recover from drugs and alcoholism. Meets Wed., 3:00pm and Sat., 9pm (EST). Conference call number 1-877-336-1839. International Access is 636-651-0008. The access code for both numbers is 7146709.

GAMBLING ADDICTION Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com Gamblers Anonymous Telephone Meeting Conference Call A weekly open meeting for those who are compulsive gamblers, who believe they have a gambling problem and who have a desire to stop gambling. Meets Wed., 9-10:30pm (EST). Dial in up to 15 minutes prior to the start of meeting. Call 559-762-1300 Conference ID: 611704 and then press #. GAMING ADDICTION Gamer Widow Online. Message boards for partners, family and friends of people who play computer games compulsively. Several forums for specific types of games, such as multiplayer online role play, fantasy and action/fighting games. Website: http://www.gamerwidow.com On-Line Gamers Anonymous Online. 12 step fellowship of people sharing their experience, strength and hope in order to help each other recover from the problems caused by excessive and/or obsessive game playing (computer, video, console, online games). Also offers support for families and friends (Olg-Anon). Scheduled separate chat room meetings for gamer and family members, as well as face-to-face meetings. Literature on starting new groups. Website: http://olganon.org INTERNET ADDICTION Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com The Internet Addiction Support Group Online. Founded 2004. Moderated group which provides a safe place on the web for those who feel addicted to the Internet to share their thoughts, feelings and concerns with one another. A place where loved ones of online addicts can find support, validation and guidance. Focused on the healing that comes through sharing of oneâ&#x20AC;&#x2122;s difficulties in the recovery process. Sponsored by the Center for Internet Addiction Recovery. Website: http://groups.google.com/group/internet-addiction-support or

http://health.groups.yahoo.com/group/internet-addiction and http://netaddiction.com E-mail: internet-addiction-owner@yahoogroups.com OVERWEIGHT BSCI Telephonic Support Group Telephone. Provides secure, welcoming setting for people who have had, are considering having weight-loss bariatric surgery or who just want to lose weight. Discussions include the latest in bariatric surgery, supplements, and other topics. Registration is not required, just call in. Meets 1st Mon., 8pm (EST); 2nd Tue., 7:30pm (EST); 3rd Thurs., 2pm (EST); 5th Wed., 7pm (EST). Call 712-4329998, enter BSCI Participant Code #602024 (toll charges may apply). Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com O-Anon Telephone. 12-step. Fellowship for families and friends of people with eating disorders: bulimia, compulsive overeating and anorexia. Sharing experiences, strengths and hopes with one another while dealing with feelings such as despair felt as loved ones self-destruct. Literature available upon request via mail. Meets Sun., 7pm (EST). Conference call number 712-432-0900. After the prompts, enter the access code 637445 followed by the # sign. Write: PO Box 34642, San Antonio, TX, 78265. SEX | LOVE ADDICTION Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com Porn Addicts Anonymous (PAA) Online. 12-Step. Fellowship for those seeking recovery from an addiction to pornography. Literature and meeting starter packets. Website: http://www.pornaddictsanonymous.org

SMOKING Crossroads Phone Meetings * Provides Christian support by phone to those who are in recovery. Crossroads is for Christians (or people who want to learn about Jesus Christ) seeking an opportunity to grow with other Believers who have experienced the pain of getting caught up in the cycle of addiction. We are Non-Denominational, and welcome anyone seeking recovery through a faith based approach. Please visit our website for meeting times, and instructions on how to participate. Call 206-350-7889. Website: www.crossroadsphonemeetings.com Smokerâ&#x20AC;&#x2122;s Helpline Online. Community dedicated to helping people quit smoking. Site provides online support, information on local face-to-face community support groups plus phone help. Website: http://sg.stopsmokingcentre.net/support WhyQuit.com Online. Provides support and education for cold-turkey nicotine cessation. Site provides links to other online support groups that provide help and support to individuals seeking to quit smoking as well as free educational materials. Website: http://whyquit.com/whyquit/linkskbb.html

BEREAVEMENT

BEREAVEMENT (General) Drowning Support Network Online. 600+ members. Founded 2002. Moderated group offering peer support to those who have lost loved ones in drownings or other aquatic accidents, including cases without physical remains. Water rescue/recovery personnel are also welcome. Promotes prevention programs and water rescue training. Website: http://groups.yahoo.com/groups/drowningsupportnetwork/info Grief Healing Discussion Groups Online. Various interactive support forums for persons grieving the loss of a loved one. Groups include: anticipatory loss, loss of child/grandchild, loss of partner, and many more. Website: http://www.griefhealingdiscussiongroups.com Grief Support Online. Provides support and encouragement for anyone grieving the loss of a loved one. Message boards include: loss of child, parent, partner, adult child, family and friends, pet, sibling, loss to suicide, homicide, caregivers and dealing with terminal illness. Website: http://www.forums.grieving.com Rainbow Bridge - Pet Loss Grief Support Online. Support for persons grieving the loss, or impending loss, of a beloved pet. Message board, chat room, Pet Loss Candle Ceremony, and other resources. Website: http://www.petloss.com

DEATH OF A CHILD | FETAL LOSS BabyCenter Online. Includes a large variety of online groups providing support and information. Groups include: Getting Pregnant; Pregnancy, Breastfeeding; Birth Clubs; Grief and Loss; High Risk Pregnancy; Preschoolers; Parents of Teens and Tweens; among many others. Website: http://community.babycenter.com/groups Grief Support Online. Provides support and encouragement for anyone grieving the loss of a loved one. Message boards include: loss of child, parent, partner, adult child, family and friends, pet, sibling, loss to suicide, homicide, caregivers and dealing with terminal illness. Website: http://www.forums.grieving.com A Heartbreaking Choice Online. Resource for parents who have had to terminate a wanted pregnancy due to prenatal news such as severe birth defects or risk to the well-being of the mother. Parental stories, private discussion forums, and other related information. Website: http://www.aheartbreakingchoice.net E-mail: info@aheartbreakingchoice.net The Triplet Connection Online. Founded 1983. Support for parents who have lost one or more children in multiple births. Website: http://www.tripletconnection.org/triplet_forum/dcboard.php SUICIDE SURVIVORS Grief Support Online. Provides support and encouragement for anyone grieving the loss of a loved one. Message boards include: loss of child, parent, partner, adult child, family and friends, pet, sibling, loss to suicide, homicide, caregivers and dealing with terminal illness. Website: http://www.forums.grieving.com Parents Of Suicide-Friends Of Suicide Online. 750+ members. Founded 2000. Provides online support to anyone grieving the death, by suicide, of someone else. Offers moderated e-mail mailing list, private chatroom, retreats and various memorial projects. Website: http://www.pos-ffos.com E-mail: arlynsmom@cs.com WIDOWS | WIDOWERS Grief Support Online. Provides support and encouragement for anyone grieving the loss of a loved one. Message boards include: loss of child, parent, partner, adult child, family and friends, pet, sibling, loss to suicide, homicide, caregivers and dealing with terminal illness. Website: http://www.forums.grieving.com

Well Spouse Association - First Friday Formers Telephone. Provides support for those whose spouse or partner is deceased. All WSA Support Group participation requires Supporting Membership dues of $30/yr., but no one is turned away for lack of funds. Meets 1st Fri., 9pm (EST) Contact group facilitator in advance, via the website, for the phone number in which to call. For additional information write: Well Spouse Association, 63 West Main St, Suite H, Freehold, NJ 07728. Call 1-800-8380879. Website: http://www.wellspouse.org/telephone-support-groups2.html Email info@wellspouse.org Widowed Village Online. Support for widows and widowers. Connects peers with each other for friendship and sharing. Discussion forums, blogs, groups, chat room, events, videos, etc. Website: http://www.widowedvillage.org WidowNet Online. 2350 members. Founded 2004. Support and understanding for any widow, widower or person who has suffered the death of a partner. Open to those with recent or remote losses, and regardless of creed, nationality or sexual orientation. Website: http://health.groups.yahoo.com/group/widownet E-mail: widownetowner@yahoogroups.com or magnolia.bee@gmail.com Young Widow Bulletin Board - Chapter Two Online. Provides a forum for young widows and widowers to connect with others. Exchange experiences, information and support. Provides listing of local support groups also. Website: http://www.ywbb.org or http://www.ywbb.org/supportgroups.shtml

DISABILITIES

AMPUTATION | LIMB DIFICIENCY LimbDifferences.org Online. Founded 1981. A comprehensive resource for families and friends of children with limb differences. Establishes contact with other families of children with limb differences through its forum. Website: http://www.limbdifferences.org AUTISM | ASPERGER SYNDROME Down Syndrome and Autistic Spectrum Disorder Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome and autism-spectrum disorder. Website: http://groups.yahoo.com/group/ds-autism Email: ds-autism-owner@yahoogroups.com Families of Adults Afflicted with Asperger Syndrome Online. Offers support to the family members of adult individuals with Asperger syndrome. Bulletin board, e-mail list and resources. Website: http://www.faaas.org E-mail: faaas@faaas.org 13

GFCF Kids (Gluten-Free and Casein-Free Diets) Online. 15,000+ members. Founded 1998. Discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their childrenâ&#x20AC;&#x2122;s diets. Website: http://health.groups.yahoo.com/group/gfcfkids E-mail: gfcfkidsowner@yahoogroups.com OASIS @ MAAP Online. Interactive webpage providing information and support for Autism and Asperger syndrome and related disorders. 2-day free trial, $35 annual dues. Includes local, national and international support groups, research papers and descriptions. Message boards, chatrooms, research projects, links to evaluators and other Asperger syndrome online resources. Forums for families affected by Asperger syndrome and Autism and the professionals working with them. Website: http://www.aspergersyndrome.org E-mail: info@aspergersyndrome.org Parenting Autism Online. 500+ members. Founded 1999. Support for those parenting a child with autism. Deals with the day-to-day joys and challenges. Website: http://health.groups.yahoo.com/group/parenting_autism Email: parenting_autism-owner@yahoogroups.com BLIND | VISUALLY IMPAIRED Congenital Glaucoma Network, The Online. Founded 2011. Provides support, facilitates discussion and promotes awareness of congenital and childhood glaucoma internationally. Website: http://congenitalglaucomanetwork.com Leberâ&#x20AC;&#x2122;s Congenital Amaurosis eGroup Online. 841 members. Founded 1999. Provides a listserv for everyone interested in sharing and sourcing information relating to this genetic disorder. Website: http://groups.yahoo.com/group/lca E-mail: lcaowner@yahoogroups.com Pars Planitis Forum Online. Provides support via an online forum for parents of children with Pars planitis (intermediate uveitis), an inflammatory eye disease that is potentially blinding. Website: http://parsplanitisforum.yuku.com Uveitis Online Support Group Online. Provides support via a discussion board for anyone living with ocular inflammatory disease. Provides information on coping to enhance your repertoire of coping skills so you can take control of your inflammatory eye disease. Website: http://uveitissupport.yuku.com DISABILITIES (General) | SPINAL CORD INJURY Cauda Equina Syndrome Support Group (CESSG) Online. Founded in 1999. 120+ members. Provides mutual support for individuals with Cauda Equina Syndrome (CES), a neurological condition regarded as a form of spinal cord injury. Site has a chat-room, message board and information on illness. Website: http://caudaequina.org/chat.html Email: cessgboard@yahoo.com 14

Quad-List Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a SCI (spinal cord injury) forum. Forum is for anyone who suffers a partial or full loss of function of all four extremities of the body. Website: http://www.makoa.org/quadlist.htm or http://www.facebook.com/quadlist E-mail: jlubin@eskimo.com (Jim Lubin) Regard Online Online. Founded 1989. A UK-based organization of lesbian, gay, bisexual and transgender (LBGT) people who are disabled. Offers information, suggestions and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices. Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline E-mail: secretary@regard.org.uk INTELLECTUAL DISABILITIES | DOWN SYNDROME Down Syndrome and Autistic Spectrum Disorder Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome autism spectrum disorder. Website: http://groups.yahoo.com/group/ds-autism E-mail: dsautism-owner@yahoogroups.com Regard Online Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices. Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline E-mail: secretary@regard.org.uk LEARNING DISABILITY | ATTENTION DEFICIT DISORDER ADD Connect Online. Community offering support and education for anyone affected by attention deficit disorder. Online groups include: adults with ADD, parents, couples, women, professionals, treatments, ADD and depression or anxiety, and many more. Also offers webinars, ADDitude e-newsletter, YouTube videos, resources, literature and Facebook page. Website: http://addconnect.com Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com

PARENTS | SIBLINGS OF DISABLED | ILL CHILDREN SibNet Online. 1500+ members. Founded 1998. Provides support for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters. Website: http://groups.yahoo.com/group/sibnet E-mail: sibnet-owner@yahoogroups.com

FAMILY|PARENTING

CAREGIVERS CancerCare Telephone Support Group for Caregivers * Professionally-run. Provides support for caregivers of those diagnosed with cancer. Meetings weekly, call for more details. Program is free, pre-registration is required. Call Rick Dickens, LCSW 212-712-6126. E-mail: rdickens@cancercare.org. Caregiver Online Group Online. Support for caregivers, families and partners of adults with disorders such as Alzheimerâ&#x20AC;&#x2122;s, stroke, brain injury and other chronic debilitating health conditions. Offers a safe place to discuss the stresses, challenges and rewards of providing care for a loved one. Website: http://www.caregiver.org Family Caregivers of Older Adults Telephone. Provides support for caregivers of older adults. Meets 2nd Tues. Registration is required. Register on website for phone-in number and access code. For additional information call Michelle Smith 703-324-5484, TTY 711. Website: http://tinyurl.com/CaregiverTSG E-mail Michelle.Smith2@fairfaxcounty.gov Well Spouse Association - Current Well Spouses Telephone. Support for current well spouses who live a life of uncertainty with their ill partner. The illness can be very unforgiving and can intrude upon their spousal relationship at any time. All WSA support group participation requires Supporting Membership dues of $30/yr., but no one is turned away for lack of funds. Meets 4th Sat., 9pm (EST) Contact Group fasciliator in advance, via the website, for the phone number in which to call. For additional information write: Well Spouse Association, 63 West Main St, Suite H, Freehold, NJ 07728. Call 1-800-838-0879. Website: http://www.wellspouse.org/telephone-support-groups.html Email info@wellspouse.org

Well Spouse Association - Current Younger Well Spouses Telephone. (45 and under) Support for young spouses who are caregivers. Open to Spouses and partners. 1st month Phone Discussion -- 2nd month WSA Chat Line. All WSA Support Group participation requires Supporting Membership dues of $30/yr., but no one is turned away for lack of funds. Meets 1st Fri., 9pm (EST) Contact group facilitator in advance, via website, for the phone number in which to call, or which Chat Room in which to go. For additional information write: Well Spouse Association, 63 West Main St, Suite H, Freehold, NJ 07728. Call 1-800-838-0879. Website: http://www.wellspouse.org/telephone-support-groups3 Email info@wellspouse.org Well Spouse Association - Holistic Spousal Support Telephone. Provides mental, emotional and spiritual support for spousal caregivers in an educational, confidential and spiritual environment. It will assist well spouses in dealing with grief, shame and anger and the many issues that come along with caregiving. All WSA Support Group participation requires Supporting Membership dues of $30/yr., but no one is turned away for lack of funds. Meets 1st and 3rd Wed. 8pm (EST). For additional information write: Well Spouse Association, 63 West Main St, Suite H, Freehold, NJ 07728. Call 1712-432-3066 and use conference code 424749 to log in. Website: http://www.wellspouse.org E-mail info@wellspouse.org Well Spouse Association - Separate Lives Telephone. Provides support for those whose ill spouse or partner is separated / divorced / living in nursing home. All WSA Support Group participation requires Supporting Membership dues of $30/yr., but no one is turned away for lack of funds. Meets 1st Mon., 9 pm (EST) Contact group facilitator in advance, via the website, for the phone number in which to call. For additional information write: Well Spouse Association, 63 West Main St, Suite H, Freehold, NJ 07728. Call 1-800-838-0879. Website: http://www.wellspouse.org/telephone-support-groups5.html Email info@wellspouse.org CHILDBIRTH | BREASTFEEDING BabyCenter Online. Includes a large variety of online groups providing support and information. Groups include: Getting Pregnant; Pregnancy, Breastfeeding; Birth Clubs; Grief and Loss; High Risk Pregnancy; Preschoolers; Parents of Teens and Tweens; among many others. Website: http://community.babycenter.com/groups Preeclampsia Foundation Online. Organization dedicated to providing support, funding research, raising public awareness and education for those whose lives have been touched by preeclampsia and other hypertensive disorders while pregnant. Forums. Website: http://www.preeclampsia.org

FOSTER PARENTS | CHILDREN FosterClub Online. Support for young people in the foster care system to connect in a safe monitored environment. Information relating to foster care, message boards, social networking, publications, teen conference and workshops. Website: http://www.fosterclub.com MARRIAGE | FAMILY After the Affair Online. Discussion forum to help persons recover after an extramarital affair. Website: http://members3.boardhost.com/affair PARENTING | GRANDPARENTING BabyCenter Online. Includes a large variety of online groups providing support and information. Groups include: Getting Pregnant; Pregnancy, Breastfeeding; Birth Clubs; Grief and Loss; High Risk Pregnancy; Preschoolers; Parents of Teens and Tweens; among many others. Website: http://community.babycenter.com/groups GrandsPlace Online. Support for grandparents who are parenting children. Website includes chat-rooms, message boards and resources. Website: http://grandsplace.org E-mail: kathy@grandsplace.org Parent Empowerment Network Online. Founded 1996. E-mail support group for parents with disabilities. Website: http://www.disabledparents.net Young Mommies Homesite Online. Support for young moms and pregnant women in their teens and twenties. Message board forums, chatroom, articles, due date calculator, teen pregnancy stats and stories, freebies and helpful resources. Website: http://www.youngmommies.com PARENTS OF CHILDREN WITH BEHAVIORAL PROBLEMS Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com SEPARATION | DIVORCE Parents Against Parental Alienation Online. E-group for parents dealing with parental alienation. Group seeks to promote shared parenting, and expand personal, community and cultural strategies in responding to parenting problems arising from divorce. Website: http://groups.yahoo.com/group/parentsagainstparentalalienation E-mail: parentsagainstparentalalienation-owner@yahoogroups.com

SINGLE PARENTING SearchMothers.com Online. Support, community, resources, and insights for single mothers. Website: http://searchmothers.com/msgboards E-mail: info@searchmothers.com Single Family Voice Online. 19,000 members. Founded 1997. Community of single parents sharing support, information and understanding. Forums for many situations including mothers, fathers, twins, grandparents, interracial, military, teens, divorced, etc. Website: http://www.singlefamilyvoices.com Single Parents Network Online. Provides an online discussion forum support boards, information and resources. Focus is on our children and their future. The Network is about connecting together the single parent resources so that collectively people can make single healthy choices as individual parent. Website: http://singleparentsnetwork.com/community.html STEPPARENTING Bonus Families Online. 850+ members. Founded 2002. Support for extended families, their children, parents, former and current partners. Message boards, newsletter and events. Website: http://www.bonusfamilies.com/support-group.php E-mail: jennifer@bonusfamilies.com StepTogether Online. Founded 1998. Provides virtual support for step-families. Message board is a place to get advice, share stories, and find solutions. Website: http://www.steptogether.com/messageboard.html E-mail: steptogether@steptogether.org

HEALTH

AIDS | HIV Letâ&#x20AC;&#x2122;s Kick ASS (AIDS Survivors Syndrome) Online. Founded 2013. 1 group in San Francisco. Support for individuals with AIDS Survivor Syndrome. Help in healing wounded AIDS warriors. Group has several online and social media venues. Website: http://letskickass.org; Facebook: https://www.facebook.com/AIDSSurvivorSyndrome; Twitter: @LetsKickASS_org; Meetings schedules on events page: LetsKickASS.com/events; Meetup: http://www.meetup.com/Lets-Kick-ASS/members/92505202; BetaBlog sponsored by the San Francisco AIDS Foundation: http://betablog.org/kicking-ass-meet-tez

POZ/AIDS Community Forums Online. 500+ members. Information and support for people with HIV/AIDS, their friends, family, caregivers and others concerned about HIV/AIDS. Support via forums. Website: http://forums.pos.com and http://www.poz.com ALS (Lou Gehrigâ&#x20AC;&#x2122;s Disease) ALS Support Forum Online. Provides a free community of support for anyone directly or indirectly affected by ALS (Lou Gehrigâ&#x20AC;&#x2122;s disease) and MND (motor neuron disease) including caregiver support. Website: http://www.alsforums.com ANDROGEN INSENSITIVITY Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums ANKYLOSING SPONDYLITIS KickAS.org Online. 6153 members. Support and information for persons with ankylosing spondylitis and related disorders. Provides inspiration, friendship and humor. Message board. Separate forums for affected persons, families, friends and affected teens. Website: http://www.kickas.org Myelodysplastic Syndromes Foundation Online. Unmoderated forums for patients and professionals dealing with myelodysplastic syndromes, a group of bone marrow diseases. Also has referrals to treatment centers. Website: http://www.mdsfoundation.org ANOPHTHALMIA Microphthalmia Support Group Online. 635 members. Founded 2000. Support, education and understanding for those with microphthalmia (abnormally small eyes) and their families. Website: http://groups.yahoo.com/group/microphthalmia E-mail: microphthalmia-owner@yahoogroups.com ANOSMIA | PAROSMIA Anosmia Online. Founded 1999. Provides mailing list and resources for people with anosmia (lacking the sense of smell). Website: http://groups.yahoo.com/group/anosmia E-mail: anosmiaowner@yahoogroups.com

ARACHNOIDITIS Circle Of Friends With Arachnoiditis (COFWA) Online. 1758 members. Founded 1998. Provides a place for support, caring, sharing of information and friendly conversations for persons with arachnoiditis. Website: http://www.cofwa.org Yahoo: http://health.groups.yahoo.com/group/cofwa E-mail: admin@cofwa.org;cofwaowner@yahoogroups.com ARTERIOVENOUS MALFORMATION AVM Survivors Online. 30,000+ members across 33 communities. Provides support, information and network for individuals with Arteriovenous Malformation. Website: http://www.avmsurvivors.org E-mail: info@bensfriends.org ARTHRITIS Living with PSA (psoriatic arthritis) Online. Provides support and education to persons with psoriatic arthritis. Also has resource information. Website: http://www.livingwithpsoriaticarthritis.org/forum ATAXIA Friedreichâ&#x20AC;&#x2122;s Ataxia Parents Group (FAPG) Online. Support for parents and guardians of children with Friedreichâ&#x20AC;&#x2122;s Ataxia or other childhood onset ataxias. Website: http://www.faparents.org INTERNAF Online. Provides support via an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia. Open to patients, families and friends. Also has links to yahoo support group and other worldwide support groups Online. Website: http://internaf.org Living with Ataxia Discussion Forum Online. 1400 members. Provides support for persons living with ataxia. Offers chat room, forum. blogs and information for patients and their caregivers. Website: http://www.livingwithataxia.org BENIGN FASCICULATION SYNDROME About BFS Online. Supportive community for persons suffering from BFS (benign fasciculation syndrome). Offers support, information and public education about BFS. Website: http://www.aboutbfs.com/forums

BRAIN INJURY | BRAIN TUMOR | COMA Brain Talk - Brain Injury Tele-Conference Support Group Telephone. Provides support and education to survivors of traumatic brain injuries through telephone groups and teleconferencing. Provides coping strategies for those who are not able to travel to on-site groups. Teleconference group meets 2nd and 4th Thurs., 7-8pm. Call Bill DeAngelo 678-880-0411 (EST) or 1-800-451-9108. Website: http://www.georgiabraintalk.com BRAIN TRUST Healing Exchange Online. Founded 1997. Mission is to exchange support and information among people affected by brain tumors and related conditions including patient-survivors, families, caregivers and health professionals. Online support groups cover a large range of brain tumors, acquired injuries and other special interest. Website: http://www.braintrust.org E-mail: info@braintrust.org Cerebellarmutism Support Online. 300+ members. Support group of parents, friends and medical practitioners of children with brain tumors (medulloblastoma, astrocytoma, ependymoma, rhabdoid, choroid papilloma as well as others) who suffered from cerebellar mutism and posterior fossa syndrome after brain tumor removal. Members can access a 52 page web based resource guide for children with brain tumors. Website: http://groups.yahoo.com/neo/groups/cerebellarmutism/info E-mail: cerebellarmutism-owner@yahoogroups.com DIPG Online. 630+ members. Support for parents, family and friends of children diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), a brainstem glioma (tumor). Medical professionals are also welcome. Website: http://groups.yahoo.com/neo/groups/dipg/info E-mail: dipgowner@yahoogroups.com Itâ&#x20AC;&#x2122;s Just Benign Online. Provides information, support, advocacy, resources and a means of communication for those diagnosed with benign brain tumors. Discussion groups, message boards, social events, videos and speaking engagements. Website: http://www.itsjustbenign.org E-mail: itsjustbenign@gmail.com LGgliomakids - Low Grade Glioma Kids Online. 500+ members. Support group for parents of children with low grade gliomas of any time, including juvenile pilocytic astrocytoma (JPA), pilomxyoic astrocytoma (PMA), pleomorphic xanthoastrocytoma (PXA), fibrillary astrocytoma, oligodendroglioma or ganglioglioma, including those with multifocal or disseminated low grade gliomas. Group welcomes all location to include: brainstem, cerebellar, thalamic, hypothalamic, cerebral, tectal plate and optic pathway. Website: http://groups.yahoo.com/neo/groups/lggliomakids/info E-mail: lggliomakids-owner@yahoogroups.com

PBT Parents of Angels Online. Provides support for parents who are facing end of life issues with a child who has a brain tumor and to provide extended support for parents of children who have passed away after battling a brain tumor. Website: http://groups.yahoo.com/neo/groups/pbtangels E-mail: pbtangelsowner@yahoogroups.com BREAST IMPLANT SUPPORT Breast Implant Support Forum Online. 3250+ members. Support forum created to help women who have become ill from having saline or silicone implants. Provides information, support, information on explants (removal of implants) and detoxing after removal. Website: http://www.breastimplantsupport.org Saline Support Online. 2200+ members. Founded 2000. For women who have experienced health problems related to having saline or silicone gel breast implants. Discussion of emotional struggles and effective health therapies. Website: http://groups.yahoo.com/group/salinesupport E-mail: salinesupportowner@yahoogroups.com CANCER CancerCare Telephone Support Group for Caregivers * Professionally-run. Provides support for caregivers of those diagnosed with cancer. Meetings weekly, call for more details. Program is free, pre-registration is required. Call Rick Dickens, LCSW 212-712-6126. E-mail: rdickens@cancercare.org. CancerMatch Online. Professionally-run. Support network for those diagnosed with cancer and cancer survivors. Site gives the user the ability to create circles of individuals with common diagnosis, write one’s own journey through blog, use built-in communication services to meet or mentor others, live chat group or person-to-person chat, post face-to-face events or attend other members’ events, create and lead one’s own live chat or support group. Website: http://www.cancermatch.com E-mail: darryl@malecare.org Caring for Someone with Cancer Telephone Group Telephone. Professionally-run. Phone-based group provides support for family and friends of patients with cancer. Meets 1st Tues., 4-5:30pm, via toll-free conference call phone line. Pre-registration required via e-mail or phone. Call Cancer Help Line 1-800-369-6918 or Patient and Family Support Services 603-650-7751. Website: http://cancer.dartmouth.edu/support_services/caring_someone_phone.html Email: cancersupport@hitchcock.org The Colon Club Online. Provides support and education for individuals with colorectal cancer. Raises awareness of the symptoms that indicate colon cancer and provides financial assistance to young adults undergoing treatment for colon cancer. Website: http://www.colonclub.com E-mail: info@colonclub.com 23

Duodenal Cancer Group Online. Support for individuals with Duodenal cancer, a rare cancer found in the upper portion of the small intestine. Group offers a sharing and supportive community, education, awareness as well as resources and research facilitation. Website: http://groups.yahoo.com/neo/groups/duodenalcancer/info Email: duodenalcancer-owner@yahoogroups.com The Group Loop Online. 1800+ members. Support for teens with cancer and their parents. Weekly scheduled online support groups with professionals, discussion boards, resources, information and news about many types of cancers and their affect on teens. Website: http://www.grouploop.org HER2 Support.org Online. 3,500 members. Founded 2001. Mutual support and information for breast cancer patients who over express the HER2 gene. Open to patients, caregivers, families, and spouses. Members can get free information from regional oncology nurses (call 1-866-449-HER2). Website: http://her2support.org/vbulletin I Had Cancer Online. 10,000 members. A cancer support community that empowers individuals to take control of life before, during and after cancer. Community support allows cancer fighters, survivors, and their caregivers to be support from those who understand. The Site allows members to search the community by type of cancer, age, year diagnosed and more. Also provided are real discussions, a blog and more. Website: http://www.ihadcancer.com E-mail: info@ihadcancer.com Living Beyond Breast Cancer Telephone Group Telephone. Professionally-run. Phone-based group which provides support and education for women who are beyond their initial treatment for breast cancer. Meets Wed., 5-6:30pm (8-week cycles), via tollfree conference call phone line. Pre-registration required via e-mail or phone. Call Cancer Help Line 1-800-639-6918 or Patient and Family Support Services 603-6507751. Website: http://cancer.dartmouth.edu/support_services/breast_cancer_group.html E-mail: cancersupport@hitchcock.org Lung Cancer Support Community Online. Provides an online support forum for individuals with lung cancer. Sponsored and maintained by the LUNGevity Foundation. Write LUNGevity Foundation, 435 North LaSalle Street, Ste 310, Chicago, IL 60654. Call 312-464-0716; Fax: 312-464-0737. Website: http://lungevity.org/l_community E-mail: info@lungevity.org Melanoma Telephone Group Telephone. Professionally-run. Phone-based group provides support for any stage of melanoma. Meets 1st Tues., 5:30-7pm, via toll-free conference call phone line. Pre-registration required via email or phone. Call Cancer Help Line 1-800-639-6918 or Patient and Family Support Services 603-650-7751. Website: http://cancer.dartmouth.edu/support_services/melanoma_support_group.html Email: cancersupport@hitchcock.org 24

Mesothelioma Telephonic Support Groups Telephone. Offers mesothelioma telephone support groups for patients, families and caregivers. Groups include peritoneal, chemo, caregivers, grief, extrapleural pneumonectomy (EPP)/pleurectomy decortication (PD) and spousal support. Registration required. Call 703-879-3820 (Mary Hesdorffer). Website: http://www.curemeso.org E-mail: mary@curemesso.org (When emailing let Mary know your connection to the disease and the mesothelioma support group of which you wish to participate.) Metastatic Breast Cancer National Telephone Support Group Telephone. Provides support for women with metastatic breast cancer. Discuss issues pertaining to the diagnosis, treatment and post-treatment with women who have breast cancer. Meets 1st Mon. 8pm (EST). For instructions to register for this teleconference call Support Connection in advance. Call 1-800-532-4290 or 914-926-6402. Ovarian Cancer National Toll-Free Telephone Support Group Telephone. Provides support for women with ovarian or gynecological cancer. Discuss issues pertaining to all stages of diagnosis, treatment and post-treatment with women who have ovarian or gynecological cancer. Meets 2nd Wed., 8pm (EST). For instructions to register for this teleconference call Support Connection in advance. Call 1-800-532-4290 or 914-9626402. Radiotherapy Damage Support Group Online. A support/discussion group for people who have suffered damage by radiotherapy treatment for cancer. This is often termed late radiation damage, as it becomes evident some time after radiotherapy has finished. Physicians and other interested persons are also welcome. Website: http://uk.groups.yahoo.com/group/radiotherapydamage E-mail: radiotherapydamage-owner@yahoogroups.co.uk Rare Cancer Alliance Online. Provides support for individuals who have rare cancers via Facebook discussion group, online forums, survivor stories and more. Publishes online e-newsletters, helps people to connect to local support groups and forums also provide information. Website: http://www.rare-cancer.org The Reluctant Brotherhood â&#x20AC;&#x201C; Advanced Guys Call * Telephone. Provides support for men with prostate cancer who are in treatment. Meets 1st and 3rd Mon., 8-7pm (EST) To participate call: 323-920-0091 with the access code is 763 8947. For more information call John Teisberg 651-222-9832. Website: http://www.thereluctantbrotherhood.com/support_group.html The Reluctant Brotherhood â&#x20AC;&#x201C; New Guys Call * Telephone. Provides support for men who are new to prostate cancer or are living with low risk cancer. Meets 2nd and 4th Mon., 8-7pm (EST) To participate call: 323-920-0091 with the access code is 763 8947. For more information call John Teisberg 651-222-9832. Website: http://www.thereluctantbrotherhood.com/support_group.html 25

Thymic Cancer Online. 350+ members. Support group for all patients with thymicrelated cancers and thymomas. Website: http://health.groups.yahoo.com/group/thymic E-mail: thymicowner@yahoogroups.com Women’s Words Gynecological Cancers Telephone Group Telephone. Professionally-run. Phone-based group provides support for women with ovarian, cervical, endometrial and fallopian cancers. Meets 1st Tues., 1-2pm, via toll-free conference call phone line. Pre-registration required via e-mail or phone. Call Cancer Help Line 1-800-639-6918 or Patient and Family Support Services 603-650-7751. Website: http://cancer.dartmouth.edu/support_services/women_words_gynecological_ca ncer_group.html E-mail: cancersupport@hitchcock.org Young Adult Surviving Glioblastoma (YASG) Online. Provides support and inspiration to young adults in their teens, twenties, thirties and forties who are diagnosed with GBM (glioblastoma multiforme), the most common primary and aggressive brain cancer. Website: http://www.yasg.org CAVERNOUS ANGIOMAS | CAVERNOUS MALFORMATION Angioma Alliance Forum (Multilingual) Online. Founded 2002. Provides emotional support and information for persons affected by cerebral cavernous angiomas (also known as cavernous malformations or CCM). Also provides online newsletter, and peer matching. Call 571-306-2873. Website: http://www.angioma.org Click on “Community Forum.” CELIAC | GLUTEN INTOLERANCE Celiac Disease Online Support Group Online. A community of people whose lives are affected by celiac disease and gluten intolerance. Family and friends welcome. Meets Mon. 9-10pm (EST) (Scheduled Moderated Chat) and Wed. 8-10pm (EST) (Unmoderated Chat). Wait in chat room for others to arrive. Website: http://forums.delphiforums.com/celiac/start CHIARI MALFORMATION Chiari Connection International Online. Provides emotional support for Chiari and related disorders. Website: http://www.chiariconnectioninternational.com E-mail: chiariconnectioninternational-owner@yahoogroups.com CHORDOMA (Rare Tumor) Chordoma Support Group Living in Hope Online. 190 members. Founded 2001. Opportunity for anyone affected by chordoma (a rare, slow growing malignant tumor that usually occurs in the spine, tail bone or base of the skull). Website: http://chordomasupport.org 26

CHROMOSOMAL ANOMALIES Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums Chromosome Ring 14 Support Group Online. Provides support for parents of children with Ring Chromosome 14 Syndrome, a rare human chromosome abnormality which causes a number of serious health issues, most notably recurrent treatmentresistant seizures and intellectual disability. Website: http://www.facebook.com/groups/ring14 CHRONIC FATIGUE SYNDROME CF Alliance Online. Offers support and free international services specifically for Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia (FM) and related illness sufferers of all ages, including their families, friends and caregivers worldwide. Online support via yahoo group, pen-pals, information and more. Website: http://www.cfalliance.org E-mail: webmaster@cfalliance.org Chronic Epstein-Barr Virus Support Forum Online. Support for individuals struggling with chronic Epstein-Barr virus. Groupâ&#x20AC;&#x2122;s mission is providing mutual support, conquering chronic Epstein-Barr virus and broadening the medical communityâ&#x20AC;&#x2122;s awareness. Website: http://www.cebv.org/forum Fibromyalgia Forum and Support Group Provides discussion forum and support group for individuals with fibromyalgia, chronic fatigue syndrome and chronic pain. Share information and helpful tips. Website: www.fibromyalgiaforums.org CLEFT PALATE | CLEFT LIP Adopt Cleft Online. Members 2100+. Founded 2000. Support for families who have, or want to, adopt children with cleft palate and/or cleft lip internationally. Website: http://groups.yahoo.com/group/adoptcleft E-mail: adoptcleftowner@yahoogroups.com cleftAdvocate Online. Resource for educational materials, cleft/craniofacial team information, emotional support and more. Local and regional family networking for parents, kids, teens and adults. Hosts the North American Craniofacial Family Conference for individuals and families dealing with all craniofacial conditions, including acquired facial differences (trauma, illness and disease). Website: http://www.cleftadvocate.org 27

COGENITAL ADRENAL HYPERPLASIA Adrenal Hyperplasia Network Online. Provides support for persons with Congenital Adrenal Hyperplasia (CAH), particularly adults and teenagers. Website: http://www.ahn.org.uk Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums Congenital Adrenal Hyperplasia Dot Com Online. Provides support via message boards for parents of children with Congenital Adrenal Hyperplasia. Website: http://www.congenitaladrenalhyperplasia.org CONGENITAL CENTRTAL HYPOVENTILATION Congenital Central Hypoventilation Network (CCHS) Online. Founded 1990. Mutual support for families caring for a child who has congenital central hypoventilation syndrome. Provides online discussion board for families and patients, physician directory, equipment information, moderated online mutual help activities, and other information. Facilitates and supports CCHS research. Holds family educational conferences every three years - see website for news on conferences. Family directory for CCHS families in the USA and around the world available to families via website. Website: http://www.cchsnetwork.org CORTICOBASAL GANGLIONIC DEGENERATION CBD (Corticobasal Ganglionic Degeneration) Support Network Online. 1580 members. Founded 1998. Support for anyone affected by corticobasal degeneration (a rare neurological disorder characterized by cell loss in the brain). Offers education, information and support. Networks members together for emotional support. Website: http://health.groups.yahoo.com/group/cbgd_support E-mail: cbgd_supportowner@yahoogroups.com COWDEN SYNDROME | BRRS PTEN World Online. Founded 2011. Provides support for individuals with Cowden Syndrome/BRRS, their families and medical providers. Members support one another via profiles and in discussion forum. Website: http://ptenworld.com

CYSTIC FIBROSIS Cystic Fibrosis.com Online. Support and information for persons with cystic fibrosis and their families. Website: http://forum.cysticfibrosis.com DENTATORUBRAL PALLIDOLUYSIAN ATROPHY Dentatorubral Pallidoluysian Atrophy (DRPLA) Network Online. Founded Support and information for persons affected by dentatorubral pallidoluysian atrophy, a rare genetic disorder, that leads to physical and cognitive difficulties. Website: https://www.facebook.com/groups/144167217964 DIABETES Children with Diabetes Online. 800+ members Mutual support and information for parents of children of all ages (toddlers through young adults) with any type of diabetes. Also open to adults with diabetes, grandparents, friends, siblings, and spouses. Website: http://forums.childrenwithdiabetes.com Diabetes International Online. 1600 members. Founded 1999. Moderated mailing list for people interested, in or suffering from, diabetes. Offers support and education for problems related to diabetes and different ways to get and keep diabetes under control. Website: http://health.groups.yahoo.com/group/diabetes_int E-mail: diabetes_int-owner@yahoogroups.com Diabetes Support/Encouragement Group Online. 3200 members. Founded 1998. Support for anyone interested in diabetes, both type 1 and 2. Opportunity to share eating plans, exercises, medications, insulin concerns and related topics. Website: http://health.groups.yahoo.com/group/diabetes E-mail: diabetesowner@yahoogroups.com Type-2-Diabetes Online. 3300+ members. Founded 2000. Supportive, friendly online community for individuals with, or caretakers of individuals with, type 2 diabetes. Topics include daily trials and tribulations, diet, what works and doesnâ&#x20AC;&#x2122;t work. Website: http://health.groups.yahoo.com/group/type-2-diabetes E-mail: type-2-diabetesowner@yahoogroups.com ENCEPHALITIS Encephalitis Global Online. An alliance connecting encephalitis survivors and caregivers around the world. Strives to raise awareness aiming to promote swift diagnosis, to alleviate unnecessary suffering and to prevent untimely death. Website includes a guide for newly diagnosed persons, links, downloadable information pamphlet and an active discussion forum. Website: http://www.encephalitisglobal.org E-mail: admin@encephalitisglobal.org

ERECTILE DYSFUNCTION AND IMPOTENCE Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums Erectile Dysfunction Support Forum Online. A safe-place for men to discuss their erectile dysfunction. Erectile Dysfunction (ED) affects millions of men in the United States, yet it is one of the least discussed and least treated conditions among men. EDForum.org is a peer-lead online support group and information sharing community. Group administrator is Darryl. Website: http://edforum.org Gay Men with Erectile Dysfunction and Impotence Forum Online. Provides support and information sharing through their discussion forum group community. Works to help gay men help each other about Erectile Dysfunction. Website: http://www.gayed.org Large Penis Support Group (LPSG) Online. Founded 1999. Community support dedicated to relieving as much pain and suffering from those individuals who suffer from a condition called painless or nonischemic priapism or megalophallus. Offers moderated message boards, articles, blogs and more. Talk with others who face the same circumstances of having nonischemic priapis (megalophallus) which can be a very difficult condition with which to live. Site offers opportunities for men to share concerns, embarrassment, to help ease problems of having a megalophallus such as physical discomfort; erectile dysfunctions, intimacy issues that bring pain instead of pleasure; erections leading to lightheadedness or dizziness (which may be the result of medication or a co-existing condition) and other issues. One need not suffer alone; joining with others can help make this problem seem less difficult. Open to spouses and partners. Website: http://www.lpsg.org E-Mail: help@lpsg.com The Peyronie’s Disease Society Online. 1500+ members. Provides support for men with Peyronies Disease, sometimes called Induratio Penis Plastica (IPP), is actually a scarring condition that results in deformity of the penis (typically, onset of a bent or curved penis). Website: http://www.peyroniessociety.org; http://www.peyroniessociety.org/wormensforum.htm (Women’s Forum); and http://www.peyroniesforum.net (Men’s Forum) E-mail: admin@peyroniessociety.org and christine@peyroniessociety.org (Women’s forum moderator)

Retarded Ejaculation Disorder (RED) Support Group Online. A safe place to share experiences with this disorder, causes, success stories with therapy and/or treatment, coping and how it affects daily life. Retarded Ejaculation Disorder (RED) or Delayed Ejaculation is the inability for a man to ejaculate, a rare disorder affecting less than 23% of males. Website: http://groups.yahoo.com/neo/groups/retarded_ejaculation_therapy/info E-mail: retarded_ejaculation_therapy-owner@yahoogroups.com FIBROMYALGIA CF Alliance Online. Offers support and free international services specifically for Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia (FM) and related illness sufferers of all ages, including their families, friends and caregivers worldwide. Online support via yahoo group, pen-pals, information and more. Website: http://www.cfalliance.org Fibromyalgia Forum and Support Group Provides discussion forum and support group for individuals with fibromyalgia, chronic fatigue syndrome and chronic pain. Share information and helpful tips. Website: www.fibromyalgiaforums.org LivingWithFibro Online. Provides a community of support for patients affected by fibromyalgia, as well as family and friends. Site includes groups, blogs, forums and more. Website: http://www.livingwithfibro.org Men With Fibromyalgia Online. 700+ members. Support, fellowship and information for men with fibromyalgia. Opportunity to learn, share, listen, offer and receive support. Spouses and loved ones welcome. Offers forum and chatroom. Website: http://www.menwithfibro.com E-mail: admin@menwithfibro.com GASTROINTESTINAL STROMAL TUMOR GIST Support International Online. International. Provides support and education for persons with gastrointestinal stromal tumors, their family, friends and caregivers. Write: GIST Support International, 12 Bomaca Dr., Doylestown, PA 18901. Call 215-3409374. Website: http://www.gistsupport.org GUILLAIN-BARRE SYNDROME Guillain-Barre Support Online. Support for persons struggling with Guillain-Barre. Opportunity to connect to others to know that you are not alone. Open to patients, spouses, parents, siblings and friends. Chat room and message board. Website: http://www.guillainbarresupport.org

HEART DISEASE Congenital Heart Information Network Online. Offers support, information and resources to families of children with congenital heart defects, acquired heart disease and adults with congenital heart defects. Also open to interested professionals. Website: http://www.tchin.org Wired4Life Online. Community provides support, education, friendship and a sharing safe-haven for women with implanted cardiac devices. Groups (including five private/secret groups on Facebook), newsletter (6x per yr.) which includes implanted device education, Heart Smarts column written by a cardiac nurse/wired sister, member stories and more. Website: http://wired4life.net E-mail: dawnhuberty@wired4life.net WomenHeart Online. Support for women with heart disease, their family and friends. Website: http://www.womenheart.org E-mail: mail@womenheart.org Pacemaker Club Online. Founded 2000. Support community that helps pacemaker and implantable cardioverter defibrillator (ICD) recipients meet, share information and support each other. Website: http://www.pacemakerclub.com Facebook: http://www.facebook.com/pacemakerclub E-mail: info@pacemakerclub.com Sudden Cardiac Arrest Association Online. Founded 2005. Support for persons who have suffered sudden cardiac arrest, have an implantable defibrillator, provide emergency or medical treatment related to cardiac arrest, are family or caregivers of someone who suffered a cardiac arrest, or are interested in reducing sudden cardiac arrests. Website: http://suddencardiacarrest.org Click on “Resources” then “Online Community.” HEMIFACIAL SPASM Hemifacial Spasm Association Online. 805 members. Founded 2001. An international support community of individuals who had or are presently suffering from hemifacial spasm (HFS) and are eager to provide information, understanding and support to other individuals and their families coping with hemifacial spasm. Website: http://www.hfs-assn.org HEMOPHILIA Hemophilia & Bleeding Disorders Support Group Online. A place to find Hemophilia support, information and resources via groups ‘LINKS’ section. Open to parents and families of children with bleeding disorders, such as Hemophilia and VWD. Website: http://groups.yahoo.com/neo/groups/bleeding-disorders/info and http://tkcdac.tripod.com/bleeding-disorders/index.html E-mail: bleedingdisorders-owner@yahoogroups.com

HIP REPLACEMENT Totally Hip Online. Founded 1997. Support to help relieve the fear of total hip replacement surgery, share experiences and offer morale as well as spiritual support to patients. Helps answer questions on hip replacement. Also discuss other joint problems. Click on “discussions” in the welcome statement for the message board. Website: http://www.totallyhip.org HYPOTHYROID Hypothyroid Disorder Support Group Online. Provides support for people suffering from hypothyroid disorder. A place to share experiences, coping strategies, alternative treatments and causes of a hypothyroid. Website: http://groups.yahoo.com/neo/groups/hypothyroid/info E-mail: hypothyroidowner@yahoogroups.com INFERTILITY | CHILDLESSNESS Fertile Thoughts Online. Provides support for anyone affected by infertility. Offers large variety of topics including: general infertility, secondary infertility, over 35, grief, polycystic ovarian syndrome, adoption, and many more. Website: http://www.fertilethoughts.net INFLAMMATORY BOWEL DISEASE | IRRITABLE BOWEL SYNDROME Crohn’s Forum Online. Mutual support and information for persons with Crohn’s disease and related conditions, and their families. Groups include: Crohn’s colitis, uninsured persons, young adults, parents, gay/lesbian, irritable bowel, and treatmentspecific, among others. Website: http://www.crohnsforum.com IRON DISORDERS Iron Disorders Online Discussion Group Online. Provides a modestly censored yet open venue through which patients can share experiences with other patients, sometimes healthcare professionals participate. Website: http://www.irondisorders.org/online-discussion-group E-mail: sclary@irondisorders.org KALLMANN SYNDROME (Hypogonadotrophic Hypogonadism) Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums 33

KAWASAKI DISEASE Kawasaki Disease Foundation Online. National partnership of parents, patients and professionals dedicated to advancing Kawasaki issues. Family matching for support. Symposiums. Online discussion forum. Website: http://www.kdforum.org KLINEFELTER SYNDROME Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums XXYTalk.com: Intâ&#x20AC;&#x2122;l Support Forums for Klinefelter Syndrome Online. Offers support by providing the means for individuals with Klinefelter Syndrome, XXY and variants to interact with one another. Website: http://www.xxytalk.com LIFE THREATENING | CHRONIC | TERMINAL ILLNESS Grief Healing Discussion Groups Online. Various interactive support forums for persons grieving the loss of a loved one. Groups include: anticipatory loss, loss of child/grandchild, loss of partner, and many more. Website: http://www.griefhealingdiscussiongroups.com LIVER DISEASE PSC-Support Online. 2000+ members. Founded 1998. Support for patients or family members of patients with primary sclerosing cholangitis, a chronic cholestatic liver disease characterized by periductal inflammation of both intrahepatic and extrahepatic bile ducts. Website: https://groups.yahoo.com/neo/groups/psc-support/info Email: psc-support-owner@yahoogroups.com MENINGIOMA (Brain Tumor) Meningioma Mommas Online. Founded 2003. Forum offers hope, information and friendship to those newly diagnosed, as well as long term survivors, of meningioma brain tumors. Website: http://www.meningiomamommas.org MENOPAUSE Power Surge Online. Provides support and information for women going through menopause. Online interactive chats and message boards. Website: http://powersurge.invisionzone.com 34

MEYER-RIKITANSKY-KUESTER-HAUSER SYNDROME Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums MOYA-MOYA DISEASE MoyaMoya Disease Internet Support Online. Provides support for family members and individuals with MoyaMoya disease. Write: MoyaMoya.com, PO Box 9602, Wichita, KS 67277. Call 316-516-4525 (DJ). Website: http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl MULLERIANANOMALIES Mullerian Anomalies of the Uterus Online. Support, information and education for persons with Mullerian anomalies of the uterus such as bicornuate, septate, unicornuate, hypoplastic and didelphys uteria. Message board. Website: http://groups.yahoo.com/neo/groups/mulleriananomalies/info MYOSITIS Myositis Online Support Group Online. Provides a community of support for patients affected my myositis. Site includes groups, blogs, forums and more. Website: http://www.myositissupport.org MYOTONIA CONGENITA | MYELOPROLIFERATIVE DISEASE MPD-Net Online network. 1800 members. Founded 1989. Support network enabling persons with myeloproliferative disease to share their experiences and problems. Publishes materials pertaining to MPD, newsletter, phone support, conferences, information and referrals. Online listserv to exchange e-mails about the disease. Website: http://www.mpdinfo.org Myotonia Congenita Online. Founded 2001. Forum for people with myotonia congenita as well as their friends and families. Ask questions and share tips for living with myotonia congenita. Website: http://www.myotoniacongenita.org

ORTHOPEDIC (Knee, Hip, Back, Shoulder) Totally Hip Online. Founded 1997. Support to help relieve the fear of total hip replacement surgery, share experiences and offer morale as well as spiritual support to patients. Helps answer questions on hip replacement. Also, forum to discuss other joint problems. Click on bulletin board at website for message exchange. Website: http://www.totallyhip.org OSTOMY OstomySupport Online. 600+ members. Founded 2000. Support and education for people with any kind of ostomy, or those who are facing the possibility of an ostomy in the future. Family and friends welcome. Opportunity to freely share ideas, frustrations and experiences. Website: http://health.groups.yahoo.com/group/ostomysupport E-mail: ostomysupport-owner@yahoogroups.com PAINLESS | NONISCHEMIC PRIAPISM Large Penis Support Group (LPSG) Online. Founded 1999. Community support dedicated to relieving as much pain and suffering from those individuals who suffer from a condition called painless or nonischemic priapism or megalophallus. Offers moderated message boards, articles, blogs and more. Talk with others who face the same circumstances of having nonischemic priapis (megalophallus) which can be a very difficult condition with which to live. Site offers opportunities for men to share concerns, embarrassment, to help ease problems of having a megalophallus such as physical discomfort; erectile dysfunctions, intimacy issues that bring pain instead of pleasure; erections leading to lightheadedness or dizziness (which may be the result of medication or a co-existing condition) and other issues. One need not suffer alone; joining with others can help make this problem seem less difficult. Open to spouses and partners. Website: http://www.lpsg.org E-Mail: help@lpsg.com PARKINSON’S DISEASE Parkinson’s Disease Telephone Group Telephone. Professionally-run. Phone-based group which provides support and education for people with Parkinson’s disease and their family, both vets and non-vets are welcome. Meets 2nd Tues., 1-2pm (EST) via toll-free phone. Call 1-800-952-4852 and, when prompted, enter pin 54321 followed by the pound sign (#). PARRY-ROMBERG SYNDROME The Romberg’s Connection Online. Founded 1997. Offers mutual support for persons affected by Parry Romberg’s syndrome (aka progressive facial hemiatrophy)and their families. Parry-Romberg syndrome is a rare disorder causing atrophy to usually one half of the face. Website: http://www.therombergsconnection.com E-mail: rombergs@hotmail.com 36

PETER’S ANOMALY Peter’s Anomaly Support Group Online. Support for families of children with Peter’s anomaly. Offers message board and forum. Also many useful links. Website: http://www.petersanomaly.org (click link “enter forum click here”) PEYRONIE’S DISEASE The Peyronie’s Disease Society Online. 1500+ members. Provides support for men with Peyronies Disease, sometimes called Induratio Penis Plastica (IPP), is actually a scarring condition that results in deformity of the penis (typically, onset of a bent or curved penis). Website: http://www.peyroniessociety.org; http://www.peyroniessociety.org/wormensforum.htm (Women’s Forum); and http://www.peyroniesforum.net (Men’s Forum) E-mail: admin@peyroniessociety.org and christine@peyroniessociety.org (Women’s forum moderator) POLYMICROGYRIA Polymicrogyria (PMG) Support Group Online. Support for families and relatives of children with Polymicrogyria (PMG), a rare brain disorder of neuronal migration resulting in structurally abnormal cerebral hemispheres. Most children with Polymicrogyria, but not all, have some degree of global developmental disabilities or delays, seizures, feeding difficulties, respiratory problems and motor dysfunction. Website: http://groups.yahoo.com/neo/groups/polymicrogyria/info and http://homepage.ntlworld.com/foliot/liss/index.html E-mail: polymicrogyriaowner@yahoogroups.com PREMENSTRUAL DYSPHORIC DISORDER PMDD Survivors Online. Closed Facebook Group. Support for women who are suffering from Premenstrual Dysphoric Disorder (PMDD), a severe form of premenstrual syndrome. Symptoms of PMDD include severe mood swings, anxiety, sleep disruptions, irritability and others. Website: https://www.facebook.com/groups/pmddsurvivors E-mail: emmajcobley@yahoo.com PRIMARY LATERAL SCLEROSIS ALS Forums Online. 550+ members. Support, information and sharing of experiences for persons with amyotrophic lateral sclerosis (Lou Gehrig’s disease) and motor neuron diseases, their families and friends. Also includes primary lateral sclerosis, progressive muscular atrophy and multifocal motor neuropathy. Website: http://www.alsforums.com

PLS Friends Online. Opportunity for persons with primary lateral sclerosis or hereditary spastic paraplegia, progressive neuromuscular disorders, to share information and support via an online discussion group. Fosters support and an exchange of ideas among PLSand HSP patients, their relatives, caregivers and health care professionals. Website: http://health.groups.yahoo.com/group/pls-friends Email: PLS-FRIENDS-owner@yahoogroups.com PROSOPAGNOSIA – FACE BLINDNESS Faceblind: Face Blindness - Prosopagnosia Online. Support for individuals with prosopagnosia or face blindness. Prosopagnosia is the inability to recognize/identify familiar people. Family, friends, researchers, counselors, faculty and students are welcome. Website: http://tech.groups.yahoo.com/group/faceblind E-mail: faceblind@yahoogroups.com or blankface@earthlink.net PRUNE BELLY SYNDROME Prune Belly Syndrome Network Online. Online community that provides support, information, access to website content, newsletters, updates, private forum, events and more. Call 855-275-7276. Website: http://prunebellysyndromenetworkinc.camp9.org RESPIRATORY DISEASE | EMPHYSEMA COPD International Online. Provides support to persons diagnosed with COPD (Chronic Obstructive Pulmonary Disease) as well as their caregivers via message boards, chatrooms and e-mail discussion groups (including a quit smoking group). Gives information on local community support groups, guides on how to start and run a local community COPD group. Website: http://www.copd-international.com COPD Survivors Online. Provides support for patients diagnosed with COPD which includes emphysema and/or chronic bronchitis. Website: http://health.groups.yahoo.com/group/copdsurvivors and https://groups.yahoo.com/neo/groups/copdsurvivors2/info E-mail: copdsurvivors-owner@yahoogroups.com and copdsurvivors2@yahoogroups.com COPD Support, Inc. Online. Support and sharing of ideas and experiences for persons with COPD (Chronic Obstructive Pulmonary Disorder) and their caregivers. Mailing list, chatroom, forum and Facebook page. Groups include: patients, caregivers, stop smoking, exercise, “Watch” program for those who live alone, and “Smiles of Sunshine” to cheer those who are not well. Website: http://www.copd-support.com E-mail: management@copd-support.com

EFFORTS Online. Support for persons afflicted with emphysema. Offers information on local support groups. Forum for sharing ideas and help in dealing with emphysema. Listserv. Advocacy for research. Write: EFFORTS, PO Box 20241, Kansas City, MO 64195-0241. Call 1-866-END-COPD. Website: http://www.emphysema.net/bindex.html SCHIZENCEPHALY Schizencephaly Support Group Online. Support group for persons with Schizencephaly, a rare developmental disorder of the brain, their parents, families and healthcare providers. Website: http://groups.yahoo.com/neo/groups/schizkidzbuddies/info and http://schizkidzbuddies.com E-mail: schizkidzbuddies-owner@yahoogroups.com SEVERE COMBINED IMMUNODEFICIENCY DISEASE SCID Email Listserv Support Group Online. Provides support for individuals with Severe Combined Immunodeficiency (SCID), aka “bubble boy disease”, a primary immune deficiency. Website: http://www.scid.net SHORT BOWEL SYNDROME ShortBowel Support Online. Providing support by connecting people and helping patients, family members and healthcare professionals learn about short bowel syndrome (SBS). Website: http://www.shortbowelsupport.com SJOGREN’S SYNDROME Sjogren’s World Online. 826 members. Founded 1999. Caring internet community built for people who have Sjogren’s Syndrome (a chronic, slowly progressive autoimmune disease that affects the exocrine glands) to meet and share experiences, personal knowledge and to disseminate information to improve quality of life. Discussion forums, instant messaging, live chats and e-mail lists. Website: http://www.sjogrensworld.org SKIN DISORDERS SkinCell Forum Online. 16,000 members. Founded 2006. Support and information for persons dealing with any type of skin disorder (palmoplantar pustulosis, psoriasis, eczema, rosacea, etc.) Website: http://www.skincell.org/community SPINAL CORD TUMOR Spinal Cord Tumor Association Online. Peer-run mutual support community on the web. Provides support via teleconferences with guest speakers, message boards and information. Website: http://www.spinalcordtumor.org E-mail: sctassociation@yahoo.com 39

STRABISMUS (Cross-Eyed) Eyes Apart Strabismus Support Online. Support for adults, teens, and parents of children with Strabismus (squint, crossed eyes, lazy, or amblyopia). Website: http://health.groups.yahoo.com/group/eyesapart E-mail: eyesapartowner@yahoogroups.com STROKE Stroke Support Network Online. Provides support for stroke survivors and caregivers of adult stroke. Support group is available 24/7/365. Website: http://www.strokenetwork.org Stroke Talk for Young People Online. 400+ members. Founded 2002. Support, information and tips for the younger stroke survivor (stroke or TBI happened before age 55). Families and caregivers welcome. Website: http://health.groups.yahoo.com/group/stroketalkforyoungpeople and https://www.facebook.com/groups/strokeforFBsupport and https://www.facebook.com/groups/unitedstrokeandbraininjury Email: stroketalkforyoungpeople-owner@yahoogroups.com THROMBOPHILIA FVLeiden.org Online. Helping persons affected by thrombophilia, a genetic condition which increase the tendency of the blood to clot, by serving as a portal to a wide array of diverse and up-to-date information, education, treatment, research, peer support via FVLeiden Email Forum Discussion Group. Website: http://www.fvleiden.org THYROID Hashimotoâ&#x20AC;&#x2122;s Thyroiditis - Integrative Online. 700+ members. Founded 2003. A place to share information and support for those with Hashimotoâ&#x20AC;&#x2122;s Thyroiditis. Website: http://health.groups.yahoo.com/group/thyroiditis E-mail: thyroiditisowner@yahoogroups.com TOWNES-BROCKS SYNDROME Townes-Brocks Syndrome International On-line Support Network Online. Founded 2004. Provides support for people affected by Townes-Brocks syndrome, a rare genetic disorder present at birth. Group welcomes all interested in sharing information and support with others affected by this disorder. Website: http://www.good-health-network.com/generaltbs/safflower Yahoo: http://groups.yahoo.com/neo/groups/townes-brocks-syndrome/info

TRACHEO ESOPHAGEAL FISTULA EA/TEF Child and Family Support Connection, Inc. Online. Provides information and support for families of children with esophageal atresia and tracheoesophageal fistula. Offers pamphlets, brochures and discussion forum. Website: http://eatef.org TRIGEMINAL NEURALGIA | TIC DOULOUREUX Trigeminal Neuralgia (TN) - Online Support Group Online. Provides support, information and friendship for individuals with Trigeminal Neuralgia, friends and family. Website: http://www.livingwithtn.org E-mail: info@bensfriends.org TRIMETHYLAMINURA Trimethylamanuria Information Online. 875+ members. Moderated group which provides support for individuals with Trimethylaminuria (TMAU), a metabolic disorder where the body lacks enough enzyme to breakdown (aka Fish Odor Syndrome). Website: http://groups.yahoo.com/neo/groups/trimethylaminuria/info TRISOMY Trisomy 18 Foundation Online. Support for parents and families of a child diagnosed with Trisomy 18. Message board and chatroom. Website: http://www.trisomy18support.org E-mail: t18info@trisomy18.org UREA CYCLE DISORDERS MdDS Friends Online. A moderated online support group for individuals with Mal de Debarquement Syndrome, a vestibular disorder, meaning literally â&#x20AC;&#x153;disembarking sicknessâ&#x20AC;? because the effect gives the illusion of movement of dry land. Website: https://www.facebook.com.groups/124894594239599 TRUE Kids (Transplanted to Resolve Ure-cycle Enzyme-deficiency) Online. Mutual support and information for families of transplanted children with urea cycle disorder. Website: http://www.true-kids.org VALLEY FEVER Valley Fever Survivor Support Groups Online. Support for people with Valley Fever. Promotes information that will ensure public awareness for this disease. Website: http://www.valleyfeversurvivor.com/support.html E-mail: voiceforaction@valleyfeversurvivor.com VASCULAR BIRTHMARKS AVM Survivors Online. Provides support, information and network for individuals with Arteriovenous Malformation. Website: http://www.avmsurvivors.org E-mail: info@bensfriends.org 41

VESTIBULAR DISORDERS Living Dizzy Online. Support for individuals with vestibular and balance disorders such as vertigo, Meniere’s Disease and other conditions with a view toward being informed. Website: http://groups.yahoo.com/neo/groups/livingdizzy/info E-mail livingdizzy-owner@yahoogroups.com

MENTALHEALTH

ANXIETY ATTACKS | PHOBIAS | AGORAPHOBIA Anxiety Social Net Online. Provides online support via a social media site for individuals who are struggling with anxiety and/or depression. Website: http://www.anxietysocialnet.com Dental Fear Central Online. Founded 2004. Support for anyone with an extreme phobia of dentists or specific dental fears. Website: http://www.dentalfearcentral.org International Emetophobia Society Online. Support for people who suffer from emetophobia (an irrational fear of vomiting) to help them with their fears and share experiences and coping skills. Forums and chat rooms (both private and open). Website: http://www.emetophonia.org Panic Survivor Online. Support group for persons who suffer from anxiety, panic attacks, social anxiety, generalized anxiety, post-traumatic stress disorder, obsessivecompulsive disorder, hypochondria or any other form of anxiety. Focus is on recovery and day-to-day survival with a “can do” attitude. Website: http://panicsurvivor.com Social Anxiety Anonymous Telephone. Conference call support group for individuals with social anxiety. Meets Sun. and Wed., 9pm; Sat., 1pm (EST). Call 218-895-3918 and, when prompted, enter pin 1234 followed by the pound sign (#). Social Anxiety Disorder and Social Phobia Support Online. Support for those who suffer with social anxiety and social phobia. Website: http://www.socialanxietysupport.com Taking Flight - Fear of Flying Support Online. Founded 2007. Created by and for fearful fliers who are working on their own recovery. Supportive forum for persons who wish to overcome, or better deal with, their fear of flying. Provides resources and tips to deal with fears. Website: http://www.takingflight.us

DEPRESSION | BIPOLAR DISORDER | POST-PARTUM DEPRESSION Anxiety Social Net Online. Provides online support via a social media site for individuals who are struggling with anxiety and/or depression. Website: http://www.anxietysocialnet.com Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com Online PPMD Support Group Online. A community of women who are affected by postpartum mood disorders. Website: http://www.ppdsupportpage.com EATING DISORDERS National Organization for Males with Eating Disorders (NAMED) Online. Seeks to provide mutual support to males with eating disorders primarily by providing 3 separate online mutual support groups or forums: Men with Eating Disorders Support Group (age 18+); Boys with Eating Disorders Support Group (under age 18) and the Concerned Others Support Group. NAMED also seeks to educate the public on the issue and to serve as a resource for information on the subject. If needed, call 1-877780-0080, to educate the public on the issue and to be a resource of information on the subject. Website: http://www.namedinc.org E-mail: chris@namedinc.org O-Anon Telephone. 12-step. Fellowship for families and friends of people with eating disorders: bulimia, compulsive overeating and anorexia. Sharing experiences, strengths and hopes with one another while dealing with feelings such as despair felt as loved ones self-destruct. Literature available upon request via mail. Meets Sun., 7pm (EST). Conference call number 712-432-0900. After the prompts, enter the access code 637445 followed by the # sign. Write: PO Box 34642, San Antonio, TX, 78265. Something Fishy - Eating Disorders Online. Support for parents, partners, siblings, family members, co-workers and friends with eating disorders such as anorexia, bulimia, overeating and binge-eating. Website: http://www.something-fishy.org (Click on â&#x20AC;&#x153;Online Supportâ&#x20AC;? on your left) FAMILIES OF PERSONS WITH MENTAL ILLNESS Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com

SibNet Online. 1500+ members. Founded 1998. Provides support for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters. Website: http://groups.yahoo.com/group/sibnet E-mail: sibnet-owner@yahoogroups.com MALADAPTIVE DAYDREAMING Wild Minds Network Online. Provides support for individuals with Maladaptive Daydreaming, (MDD), when one feels more empowered during daydreams, starting to enjoy daydreaming better than reality, when daydreaming is starting to interfere with oneâ&#x20AC;&#x2122;s day-to-day activities. Website is a network of individuals seeking to advance the psychological community through their own personal journeys. Website includes groups, chat, blogs, notes and more. Website: http://wildminds.ning.com MENTAL HEALTH (General) The Icarus Project (Sponsored by the JFC) Online. Support for individuals living with and/or affected by experiences that are often diagnosed and labeled as psychiatric conditions. By joining together as individuals and as a community, the intertwined threads of madness, creativity, and collaboration can inspire hope and transformation. Website has forum / message board, resources, and links to face-to-face support groups. Write: The Icarus Project , c/o FJC, 520 8th Avenue, 20th Floor, New York, NY 10018. Email: nycicarus@gmail.com Website: http://www.theicarusproject.net Wild Minds Network Online. Provides support for individuals with Maladaptive Daydreaming, (MDD), when one feels more empowered during daydreams, starting to enjoy daydreaming better than reality, when daydreaming is starting to interfere with oneâ&#x20AC;&#x2122;s day-to-day activities. Website is a network of individuals seeking to advance the psychological community through their own personal journeys. Website includes groups, chat, blogs, notes and more. Website: http://wildminds.ning.com MENTAL HEALTH CONSUMERS Depersonalization Disorder Symptom Forum Online. A forum for the mutual support of individuals who struggle with Depersonalization Disorder. Individuals with this disorder struggle with alienation from surroundings (de-realization), lack of ownership of feeling, feelings of automation, lack of agency, not feeling in charge, disembodiment feeling, perceptual distortions of the body, heightened self observation, emotional numbing, anomalies in subjective recall, visual distortions, mind emptiness/no thoughts/thousand mile stare, impaired Spatial-Temporal Reasoning (changes in experience of time; in sense of duration; to perspective of time/temporal disintegration). Website: http://www.dpselfhelp.com/forum

Mosaic Minds, Inc. Online. Founded 1999. Seek to provide support via forums and an online clearinghouse of information for those whose lives are impacted by the more extreme form of dissociation called “Dissociative Identity Disorder” (DID), formerly called “Multiple Personality Disorder” (MPD). Website: http://www.mosaicminds.org/forums Rageaholics Anonymous - Stop the Madness Meeting * Telephone. 12-Step. Support for individuals who seek to keep their compulsive and destructive anger under control. Meets Mon., 11am, Wed., 9:30pm, Fri., 11am (EST). Conference Call 605488-2100, Access Code: 830554#, Back-up Call-in 951-262-7373 will ask for original phone number and then the access code. Website: http://www.rageaholicsanonymous.org E-mail: info@rageaholicsanonymous.org Rageaholics Anonymous - The Positives Meeting * Telephone. 12-Step. Support for individuals who seek to keep their compulsive and destructive anger under control. Meets Tues., 9:30pm, Thurs., 1pm, Sat., 4pm (EST). Conference Call 605-488-2100, Access Code: 830554#, Back-up Call-in 951-262-7373 will ask for original phone number and then the access code. Website: http://www.rageaholicsanonymous.org E-mail: info@rageaholicsanonymous.org Schizophrenia.com Online. Community dedicated to providing information, support and education to the family members, caregivers and individuals whose lives have been impacted by schizophrenia. Website: http://www.schizophrenia.com OBSESSIVE-COMPULSIVE DISORDER OCD and Parenting List Online. Over 2500+ members. Mutual support and information for parents of children with obsessive-compulsive disorder through an email discussion group and professional advisors who respond to questions. Also has an extensive listing of web links. Website: http://health.groups.yahoo.com/group/ocdandparenting E-mail ocdandparentingowner@yahoogroups.com Panic Survivor Online. Support group for persons who suffer from anxiety, panic attacks, social anxiety, generalized anxiety, post-traumatic stress disorder, obsessivecompulsive disorder, hypochondria or any other form of anxiety. Focus is on recovery and day-to-day survival with a “can do” attitude. Website: http://panicsurvivor.com PROCRASTINATION Procrastinators Anonymous Online. Provides support to individuals for online, phone and face-to-face meetings. Sharing of experiences and recovery from chronic procrastination. Website provides meeting materials and additional information. Website: http://procrastinators-anonymous.org

TRAUMA AND POST TRAUMATIC STRESS DISORDER Gift from Within Online. (WOMEN ONLY) Offers a one-on-one post traumatic stress disorder (PTSD) e-mail/penpal support network, where victims of specific trauma can be matched with survivors of similar PTSD. Audio-visual resources available. One-time donation of $5 requested. Write: Gift from Within, Attn: Joyce, 16 Cobb Hill Rd., Camden, ME 04843. Call 207-236-8858; Fax: 207-236-2618. Website: http://www.giftfromwithin.org E-mail: joyceb3955@aol.com or pattipott@aol.com Survivors of Motor Vehicle Accident Support Group Online. Provides support and encouragement to individuals who have been impacted by a motor vehicle accident. Website: https://www.facebook.com/pages/survivors-of-motor-vehicle-accidentsupport-group/206315732726045

MISCELLANEOUS

BULLYING Bullying.org Online. Website provides links to online support groups, help with starting a local face-to-face support group, newsletters, online courses, peer presenters and more. Website: http://www.bullying.org (To find a support group click on ‘I WANT TO SHARE’ then ‘SUPPORT GROUPS’ and/or ‘BECOME AN ONLINE MENTOR’) E-mail: help@bullying.org HeartStrong Network Online. Founded 1998. Provides support for those in the LBGTQI community who were mistreated during their attendance at any religious educational institution. Helps empower those who are still struggling to survive as well as those who have survived these institutions and who have come to love themselves in spite of their spiritual abuse and disciplinary actions taken against them. Those interested in participating in the HeartStrong Network project may register online or write. Write: HeartStrong, 478 E Altamonte Dr., Ste 108 #714, Altamonte Springs, FL 32701. Website: http://www.heartstrong.org (Click on HS Network then click on “register”) E-mail heartstrong@heartstrong.org JFO (Just Fight On) Online Support Group Online. Provides support for people who are being bullied at work. All members are vetted prior to being given access to the group. JFO is a ‘closed group’ to provide a safe environment to share sensitive information. International membership. E-mail to request to join. Website: www.jfo.org.uk E-mail: support@jfo.org.uk Tipton Against Kid’s Being Bullied! Online/Model. Provides support for individuals who have a child or knows of a child who is being bullied. Group will also help those who are not in the Tipton, IA area. Website: https://www.facebook.com/groups/155113894626999 46

CRIME VICTIMS | OFFENDERS CASA (Shoplifting) Teleconference Support Group Telephone. Provides support for individuals with interest in recovery from their shoplifting behavior. Meets Thurs., 910pm (EST). Call 1-712-432-3900 use Conference ID 201983, followed by the # key. Kleptomaniacs Anonymous Telephone Support Group 12-Step. Telephone. Provides support for persons interested in recovery from their shoplifting/stealing behavior. Meets Tues. and Thurs., 7-8:30pm (EST). To participate in group call: 712432-3900 and use Conference ID 335389, followed by the # key. For more information contact The Shilman Center, PO Box 250008, Franklin, MI 48025. Call for information 248-358-8508 Website: http://www.kleptomaniacsanonymous.com/support.htm E-mail: joaniehp@gmail.com Prison Talk Online. Support for families of inmates. Also offers support to the incarcerated. Offers mutual support, education and advocacy. Website: http://www.prisontalk.com/forums FINANCIAL | BANKRUPTCY Bankruptcy Support Group | Bankruptcy America Online. Support for individuals who have or are experiencing bankruptcy. Discussion groups. Website: http://www.bankruptcy-america.com/bankruptcy-support-group HOUSING | FORECLOSURES National WAMU Homeowners Support Group Online. Provides support for those who have suffered from distressed mortgages and foreclosures (WAMU is now owned by JP Morgan/Chase). Website: http://www.nationalwamuhomeownerssupportgroup.com E-mail: crharrington@cox.net RELIGION | CLERGY The Clergy Project Online. 600+ members. Founded 2011. Confidential online and discussion forum community for current and former religious leaders who do not supernatural beliefs and are struggling with issues. Members can freely discuss the challenges they face on leaving the ministry and establishing a new life. E-mail: clergy@mail.clergyproject.org Facebook: http://www.facebook.com/pages/theclergy-project/203725383030148 Website: http://www.clergyproject.org

Ex-Christian.Net Online. 11 groups, 603 members in 11 cities and 3 countries. Provides support for former Christians and encouragement for individuals interested in de-converting from fundamentalism. Website provides Podcasts, BlogRoll, Forums and even a place to share your story (experiences.) Website: http://new.exchristian.net Meetup: http://exchristian.meetup.com (Links to groups internationally) Yahoo: https://groups.yahoo.com/neo/groups/Ex-ChristianSupport/info HeartStrong Network Online. Founded 1998. Provides support for those in the LBGTQI community who were mistreated during their attendance at any religious educational institution. Helps empower those who are still struggling to survive as well as those who have survived these institutions and who have come to love themselves in spite of their spiritual abuse and disciplinary actions taken against them. Those interested in participating in the HeartStrong Network project may register online or write. Write: HeartStrong, 478 E Altamonte Dr., Ste 108 #714, Altamonte Springs, FL 32701. Website: http://www.heartstrong.org (Click on HS Network then click on â&#x20AC;&#x153;registerâ&#x20AC;?) E-mail heartstrong@heartstrong.org Religious Recovery (telephone support group) Telephone. 13-Step. Provides support for those in need of healing from religious organizations or religious individuals. Organization neither promotes nor denounces any religion and it is not a religious organization. Meetings vary, 7-8pm (EST) Check Facebook page for dates, times, and links to RSVP and reserve your spot: https://www.facebook.com/pages/Religious-Recovery/598915013454248 or contact Wayne or Patrick. E-mail: Wayne@ReligiousRecovery.org Patrick)Patrick@ReligiousRecovery.org Call/Text: 513-205-1057 Website: http://www.religiousrecovery.org Walk Away from Fundamentalism Online. Provides a support forum for those who have left or are in the process of leaving fundamentalist Christianity. Website: http://forum1.aimoo.com/walkaway LGBTQIA Affirmation New York City: LGBT Mormons, Familes, and Friends Group Online. 58 members Supports LGBTQ/SSA Mormons and their families, friends and Church leaders in seeking to live productive lives consistent with their faith or heritage. It provides a loving, inclusive community for all LGBTQ/SSA people, regardless of how they identify in their sexual orientation, gender identity, or faith. Join to participate in face-to-face support meetings. Website: https://www.facebook.com/groups/affirmationNYC E-mail: Todd.Richardson@affirmation.org

Asexual Visibility and Education Network (AVEN) (MULTILINGUAL) Online. Provides support for persons who are asexual, older asexual persons, demisexual persons, their partners, friends and family. Website has forums, chat, pen-pals, information and check for local area meet-ups. Website: http://www.asexuality.org Email: info@asexuality.org Asexuals_Anonymous Online. Provides support for individuals who identify as asexual. Serves as a place to talk, lend support, and answer questions to the best of the group’s ability. Site also has resources, archived material, etc. Website: http://asexualsanonymous.tumblr.com Bodies Like Ours | Intersex Information and Peer Support Online. 1000+ members. Primarily provides support via forums. Group seeks to end the shame and secrecy that surrounds people born intersexed and/or with atypical genitals through community and peer support. Separate messages-boards for CAH (congenital adrenal hyperplasia). AIS (Androgen Insensitivity Syndrome), MRKH (Meyer-RokitanskyKuester-Hauser syndrome), Klinefelters syndrome, chromosomal anomalies and more. Website: http://www.bodieslikeours.org/forums HeartStrong Network Online. Founded 1998. Provides support for those in the LBGTQI community who were mistreated during their attendance at any religious educational institution. Helps empower those who are still struggling to survive as well as those who have survived these institutions and who have come to love themselves in spite of their spiritual abuse and disciplinary actions taken against them. Those interested in participating in the HeartStrong Network project may register online or write. Write: HeartStrong, 478 E Altamonte Dr., Ste 108 #714, Altamonte Springs, FL 32701. Website: http://www.heartstrong.org (Click on HS Network then click on “register”) E-mail heartstrong@heartstrong.org I’ll Walk With You Parent Group Online. Provides support for parents who are committed to staying active in the church while supporting and affirming their LGBT children. Group is primarily restricted to parents and grandparents, but other family members are considered as well on a case by case basis. It is a group that is moderated. Group is ‘secret’ which means that nobody outside of the group will know you are in the group or be able to read your posts there. To gain access to this group you must contact one of the admins, and send them a friend request so they can add you. Contact Greg Searle: https://www.facebook.com/greg.searle.71 or Christy Searle: https://www.facebook.com/christy.searle LDS Family Fellowship: Parents, Families & Friends of LGBT/SSA Mormons, Online. 982 members. Provides support for a diverse collection of Mormon families engaged in the cause of strengthening families with LGBT members by sharing our witness that gay, lesbian, bisexual and transgender (LGBT) Mormons can be great blessings in the lives of their families and that families can be great blessings in the

lives of their LGBT members. Website: https://www.facebook.com/groups/134605330021674 LGBTQ, Family and Allies - Mormon Stories Support Community Online. 1,223 members. Provides support for LGBTQ individuals, their family and allies. Website: https://www.facebook.com/groups/lgbtmormonstories The Lord My Pasture Will Prepare (Created and sponsored by Affirmation) Online. Provides support and fellowship for LGBTQ people who desire to attend the LDS church and are in or seeking a same-sex relationship or are affirming of such relationships. Group is private (secret), meaning only members can read the posts and see whoâ&#x20AC;&#x2122;s in the group. To join this Facebook group please friend the Prepare Group Moderator via facebook: https://www.facebook.com/prepare.groupmoderator Orthodox Parent Phone-In Support Group Telephone. Provides support and advocacy for Orthodox Jewish parents with LGBT children. Participants should feel free to use a pseudonym for confidentiality. Registration is required. Individuals interested should e-mail group contact for brief intake and to receive the call-in number and instructions. Meets 1st Wed., 9pm (EST). Website: http://www.eshelOnline.org/next-phone-in-parent-support-group E-mail: info@eshelOnline.org Regard Online Online. Founded 1989. A UK-based organization of lesbian, gay, bisexual and transgender (LBGT) people who are disabled. Offers information, suggestions and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices. Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline E-mail: secretary@regard.org.uk VETERANS | MILITARY Iraq and Afghanistan Veterans of America (IAVA) Online. Provides online mutual support networks just for military veterans of the wars in Iraq and Afghanistan. Also links veterans with resources and local events, and advocates for needed support of troops, veterans and their families. Website: http://iava.org Marine Moms Online Online. Discussion forum offers support, information, questions, answers and chatroom for loved ones of U.S. Marines, recruits, poolies and other military personnel. Website: http://www.marinemomsOnline.net (Yahoo) http://groups.yahoo.com/group/mmo1 E-mail: (Linda) alaney42@aol.com Military.com Online. Provides information, discussions, forums, benefits, education, resources, etc. for military personnel in Army, Marines, Navy, Air Force, Coast Guard, National Guard and their spouses. Website: http://www.military.com 50

Veterans of Modern Warfare Online. Provides mutual support and advocacy for individuals who served in the Persian Gulf War and the Wars in Iraq and Afghanistan (from 1990 and onward). Website: http://vmwusa.org YOUTH | STUDENTS Conduct Disorders Parent Message Board Online. 7080 members. Founded 1995. Support for parents of a child with one of the many behavior disorders such as attention deficit hyperactivity disorder, oppositional defiance disorder, bipolar disorder, conduct disorder, depression, anxiety and substance abuse. Parents of children all ages welcome. Website: http://www.conductdisorders.com HeartStrong Network Online. Founded 1998. Provides support for those in the LBGTQI community who were mistreated during their attendance at any religious educational institution. Helps empower those who are still struggling to survive as well as those who have survived these institutions and who have come to love themselves in spite of their spiritual abuse and disciplinary actions taken against them. Those interested in participating in the HeartStrong Network project may register online or write. Write: HeartStrong, 478 E Altamonte Dr., Ste 108 #714, Altamonte Springs, FL 32701. Website: http://www.heartstrong.org (Click on HS Network then click on â&#x20AC;&#x153;registerâ&#x20AC;?) E-mail heartstrong@heartstrong.org TeenHelp Online. Founded 1998. Support for young people with any issue through a network of peers and volunteer support staff. Online community of e-mail support, scheduled real-time chat meetings, blogging journal system and moderated message board. Resources, articles and assistance in starting new groups available. Website: http://www.teenhelp.org E-mail: contact@teenhelp.org

DISCLAIMER

The New Jersey Self-Help Group Clearinghouse produces this directory of support groups annually. Information, phone and email contacts, locations, facilitators, meetings days and times are always changing. New groups are added and disbanded groups removed. Therefore, we advise you not to depend solely upon entries in this directory past one full year of its publication. At, or before that time, please call us to inquire about the availability of the next director edition. At any time you may also call our helpline, through which we distribute the most up-to-date information on support groups and helplines.

SELF-HELP GROUP CLEARINGHOUSE HELPLINE: NJ RESIDENTS CALL 1-800-367-6274 | OUTSIDE NJ CALL 973-989-1122

The New Jersey Self-Help Group Clearinghouse is a program of Saint Clareâ&#x20AC;&#x2122;s Health System and is made possible by funding from the NJ Division of Mental Health and Addictions Services.