Road Trips

I return to M5 from the ICU — except now I am part of the clandestine V5 clinic (an ‘M’ contains a ‘V’ hiding in plain sight). My diet changes: I can now eat more kinds of foods. This is all just practice for my cover story; I don’t actually digest any of it.

But to be compliant, I should avoid foods rich in phosphate, never eat foods that could contain bacteria, keep my sodium intake low, and so on. Basically standard practices for a liver and kidney transplant patient. A living person’s biome needs to be balanced, and without a liver and kidney monitoring and adjusting to what you are consuming… tests, diet changes, and medications take their place.

It is critical that I understand all of this to keep my cover, especially because one of the addiction-recovery meetings I go to focuses on liver and kidney issues. For me to attend, I need to know a bunch of tests, activities, and experiences that an end-stage patient would know. This is beyond just dialysis, and includes regular testing of all kinds of things. Some of these tests collectively produce a MELD (model for end-stage liver disease) score. This determines your priority for a transplant, so my score has to match needing dialysis, but not be so high that a transplant (or death) would be imminent. I pick 21 as my normal MELD score, and my test results are set up to match that. In California, a 21 (out of 40) means it will take years before I am offered a transplant.

The layers of lies are to keep vampires relatively secret. My normal doctor (Dr. J.), is outside Amasa, so she does not know anything is unusual… except for the story of catastrophic liver and kidney failure.

• May•

I am not allowed on roofs — because — in spite of being a

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‘vampire’ — I am not particularly coordinated, strong, fast, or anything special. When I am discharged from V5 and Amasa, I am in worse shape than I was before going into the ER in March, let alone the years before when I was fairly athletic. I get up and move very slowly, and I can’t get up at all without help if I sit on a couch or the floor… or fall. I can make sudden movements sideways, when I had no intention of doing so. I am not a ninja vampire. This is common for people who spend a month in the hospital: your body atrophies every day you spend in that comfortable bed. So my physical condition is consistent with my hospital stay. If I did fall off the roof, a lot of inconvenient questions would come to those who saw it… or saw me after it.

But I am recovering very quickly. My physical therapy sessions end after only three of them. I shuffle along faster in my walkers: I have both two-wheeled (for inside) and four-wheeled (to go the distance and bring a chair to boot) walkers that I need less and less every day. Hemodialysis is very draining initially, but within a month I can drive myself to the sessions. My family is freed from watching and helping me 24x7, and they can get on with their lives as I get on with mine.

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