NEOPLASIA 3/2012 by MAKNAcancer

Ne plasia ISSUE 03/2012

PP9 1 6 4 /08/ 2012 (030729)

M aj lis K an s er Na si ona l • Na ti ona l Ca nce r Counci l

MAKNA’s MOBILE

SCREENING UNIT LAUNCH Jom Botak : Trek For Cancer Page 10

Page 18

Introducing LuDic - A potential life saving App

Issue 3/2

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Ne plasia

Editorial Line-Up

ia Ne plasia 03/2012 ISSUE ISSUE 03/2012

PP9164/08/2012 (030729) PP9164/08/2012 (030729)

Council • National Cancer Council Majlis Kanser Nasional • Nation al Cancer Majlis Kanser Nasional

Consulting Editor/ Editor Perunding Azzatullina Pawanchik Penyelaras/Coordinator Vemanna Appannah ILE A’s MOBILE A’sMOB MAKN KN NCH G UNIT LAUNCH ENIN UNITLAU SCRE ING EEN SCR

Pen. Penyelaras/Assist. Coordinator Ravivarman Najmi Kamal Amir Kamini Rajendran

Page ber 2012 27th Septem Page 18 ing Unit Launch Mobile Screen For Cancer Jom Botak : Trek Page ?? Jom Botak & Trek For Cancer saving App Page 10 Introducing LuDic - A potential life

Editorial Line-Up

Feature Story

From the President’s Desk

• Trek for cancer

News & Happenings

05-10

18-25

• Jom botak

Penyumbang/Contributors Vemanna Appannah, Kamini Rajendran, Hasan Mohammed Alkaff, Mama Gie, Claudia Halili Rivera, Azzatulina Pawanchik, Imelda , Rohayu Muhamad & Najmi Kamal Amir

• Avachinsky • Mutnovsky

• Three cancerians for cancer gaming marathon

• Gorely

• Pensonic Love in Action 3.0 for cancer

• The making of jom botak: trek for cancer

• Mesyuarat Bursary MAKNA 2012

Health Focus

• Ludic

• Majlis Makan Malam Amal di Grand Riverview Hotel

Cover Story

12-13

• Berjuang Demi Keluarga

14-15

• Kanser payudara mengganggu fizikal dan emosi

Volunteers • MVM life transition

Diterbitkan oleh /Published by Majlis Kanser Nasional (MAKNA) BG 03A & 05, Ground Floor, Megan Ambassy, 225, Jalan Ampang, 50450 Kuala Lumpur Tel: 03-2162 9178 Fax:03-2612 9203 Email:makna@makna.org.my Website: www.makna.org.my

26-33

• Cancer prevention • What is melanoma? • Smoke Free Public Places Survey

International

Dicetak oleh/Printed by Percetakan Jiwabaru Sdn Bhd No. 2, Jalan P/8, Kawasan MIEL Fasa 2, Bandar Baru Bangi, 43650 Bangi, Selangor Darul Ehsan. Tel: 03-8925 6688 Fax: 03-8925 1688

34-37

• Makna sets its feet in Vietnam • Our new office

• Makna’s mobile screening unit launch

Life Goes On

Foto/Photos Aninda Kabir Avik Md Rajibul Hasan

theme song

• US Pro Basketball Alumni tour

Fundraising

Penasihat/Advisors Dato’ Mohd Farid Ariffin Farahida Mohd Farid

16-17

• Two Philippine Cancer Organisations Consider a Future Collaboration with MAKNA

Did You Know? Just For Laughs

38-39 40

Rekacipta/Design MCK Creative Resources Unit 11-2, 2nd. Floor, Jalan PJS 5/30, Pusat Dagangan Petaling Jaya Selatan, 46150 Petaling Jaya, Selangor Darul Ehsan Tel: 03-7781 8280 Fax: 03-7781 8270

IMPORTANT MESSAGE In no way this newsletter be considered as offering medical advice. The content in here is general in nature, and is provided for information purpose only. Never disregard medical advice or delay in seeking it because of something you have read here.

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From the President’s Desk

News & Happenings

ns fo Three Canceria

! n o h t a r a M g n i m a G r e anc r

Dear Friends, I am a proud man.

Don’t that take negatively, I am proud to be a part of an organisation that began out of need and is now fulfilling so many needs. I am proud to have thought of MAKNA and now I am proud that there is a whole new generation that is bringing MAKNA to new levels, reaching more people, serving the under-served. Recently there have been developments that made me swell with pride even more. Our Mobile Cancer Screening Unit was successfully launched by our guest of honour Puan Sri Norainee Abdul Rahman who is our Deputy Prime Minister’s wife, fully supportive of our effort to bring about more awareness in and promote proactive movement towards early cancer detection. As I said in my speech on the day, the cases referred to MAKNA are mostly in the advanced stages and a mere 30% of the total is curable, we will certainly have strengthened statistics through early detection and cure with the introduction of this Mobile Screening unit and I hope this movement in early detection will continue for all types of cancers. I am also extremely indebted to you people who continue to support us in our many fundraising efforts; like the Jom Botak campaign which managed to collect a large sum of money towards helping cancer patients in this country. In addition to the Jom Botak campaign which lasted 3 months, there were other equally worthwhile campaigns like the Cancerians Video Game Challenge, All Stars Basketball Game and many more that help contribute to this journey of support and discovery. As always, thank you to all our donors; may you be a caring organisation or an individual who cares enough to give...Many lives depend on you. As I said earlier, I am proud of our achievements with your help. All the best, Farid.

From Left: Hasan Alkaff, Matheus Trevizoli Barrachi & Claudia Halili Rivera

15 July 2012 - Three international employees from MAKNA organized a video game marathon in an interesting and fun way to raise funds. They played classic video games for 12-hours at MAKNA’s Office in Jalan Ampang, while two webcams broadcasted their performance live, through the internet. Starting from 10 am that morning, they played highly popular games such as Sonic The Hedgehog, Street Fighter Alpha 2 and Bomberman with close friends. Throughout the duration of the game, other internet users were free to share their comments with the players using social media sites. The gamers cum campaigners were Matheus Trevizoli Barrachi from Brazil, Claudia Halili Rivera from the Philippines and Hasan Mohd Alkaff from Saudi Arabia.

The innovative approach of this fundraising campaign is to use a hobby to raise funds for a cause you care about: “Many people run marathons or climb mountains to raise funds for the most different causes. They do it because it is challenging and because they enjoy doing it; we asked ourselves, how could we rise to the challenge and do something we love at the same time? Video game was the answer!” said Matheus Trevizoli Barrachi, Manager of MAKNA’s International Division. It was the first time that such an event is organized in Malaysia, targeting at raising funds for a good cause.

Since the marathon was organized as a birthday celebration for these three amateur “game athletes”, they received friends over to join them, as well as some employees from Lazada Malaysia, the corporate sponsor for this event. Guests were invited to compete against each other in games like F-Zero X, Super Smash Bros. and California Games.

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News & Happenings Challenge is the reason why they chose old-school games over the new ones: “The old games do not have infinite continues, save game or auto saving option like the new ones. You have 3 lives, one continue... maybe two. You lose and you are back to where you started. These games are tough to beat,” explained Matheus. “These games also reminded me of my own birthdays. When I was young, these were the games I would get from my parents as birthday gifts and I would play with my friends during my birthday parties”. Their initial target was to raise RM1,000 amongst their relatives and friends. With the support of Lazada Malaysia, an online retail shop, they managed to launch a raffle for a Samsung Galaxy S Advance, which helped the campaign to surpass its initial target by 300%. The campaign came to an end on August 14th and for every RM 10 donated, the donor was entitled to one raffle entry to win the phone. To read more on the campaign, you can visit their page on www.facebook.com/3cancerians4cancer.

Pensonic Love in Action 3.0 for Cancer In conjunction with its appreciation party, Pensonic teamed up with iN Publishers in Love in Action 3.0 to jointly raise funds for MAKNA. This event was held in Mid-Valley Megamall from the 11th – 15th of July, 2012. Pensonic friends - JJ, Grace Ng, Zizan Nin, Carrie Lee, Amber Chia, Sean Lee, Steve Yap, Chef Dato’ Ismail Ahmad, Sharifah Amani, Kelly Jegan, Alan Yun and Angel Yeoh – contributed to this worthy cause by donating personal items that were auctioned off together with Pensonic appliances. A sum of RM6,400 was raised from this effort and iN Publishers founder Mr. Iko In, generously rounded up that sum to RM7,000. From June – September 2012, Carrefour pledged to contribute RM1 to MAKNA from each Pensonic appliance sold during the said period.

From Right: Mr. Nels

on Chew & Mr. Siva

- Store Director of

Carrefour presentin g

a mock cheque to

MAKNA

g Executive Director of Pensonic hers & Mr. Nelson Chew - Marketin From Right: Mr. Iko - Founder of iNPublis , MAKNA cheque to Mr. Vemanna – Senior Manager Holdings Berhad presenting mock

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News & Happenings

US Pro Basketball Alumni Tour 16 July 2012 Basketball fans were in for a treat when The Professional Basketball Alumni Association (PBAA) All Stars gave them a jaw dropping show by outplaying the Westport Malaysia Dragons selection 96-81 at the Malawati Stadium in Shah Alam.

Photos by Aninda Kabir Avik

MESYUARAT BURSARY

MAKNA 2012

Pada 11 dan 12 September yang lalu, bertempat di Selesa Beach Resort, Port Dickson, MAKNA telah melangsungkan Mesyuarat Bursary yang ketujuh. Inilah kali pertama mesyuarat tersebut diadakan selama dua hari berbanding tahun-tahun sebelumnya. Kakitangan MAKNA bahagian Bursary telah menjadi tulang belakang dalam merealisasikan program ini berdasarkan kepakaran dan pengalaman dalam menganjurkan program tersebut.

From left : Horace Grant, Nate Robinson, Scottie Pippen & Jason William with Westport Malaysia Dragon This inaugural game which is brought together by its organizer Xballer, featured some of the best ex-NBA stars, including Scottie Pippen, Dennis Rodman, Mitch Richmond, Horace Grant and recently retired Jason Williams among others. Coaching these former All-Stars is All-Time 50 Greatest NBA Player and Hall of Famer, Elvin Hayes. The tour had charity at heart and raised funds for four pre-selected charity bodies namely the Paralympic Council of Malaysia, National Kidney Foundation, Hospis Malaysia and MAKNA. MAKNA received a total of RM2,000 from this tour.

Mesyuarat ini turut dimeriahkan dengan acara sukaneka pada sesi petang dan pada malam kemuncak pula, peserta diraikan dengan makan malam bertemakan hari raya. Pelbagai aktiviti pada malam tersebut yang telah berjaya mencuit hati para hadirin.

Di samping bertujuan mengeratkan hubungan antara pekerja MAKNA dan Pegawai-Pegawai Kerja Sosial Perubatan, agensi jemputan dan syarikat pembekal, mesyuarat ini juga memperlihatkan kesungguhan serta kepekaan pihak MAKNA terhadap menyediakan bantuan kepada para pesakit kanser. Mesyuarat yang diadakan dua tahun sekali ini dihadiri oleh Pegawai Kerja Sosial dari 38 hospital, lima agensi jemputan dan sembilan syarikat pembekal. Antara isu utama yang telah diutarakan ialah Bursary online system yang memberikan kemudahan kepada Pegawai Kerja Sosial untuk menghantar kes permohonan melalui internet. Bursary online system ini memerlukan cadangan dan sokongan daripada pihak Jabatan Kerja Sosial Perubatan untuk dilaksanakan dengan sempurna.

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Fundraising

Majlis Makan Malam Amal

Grand Riverview Hotel

Mr. Vincent Chua, General Manager, Grand Riverview Hotel & Dr. Zulkifli Mustafa, Representative from MAKNA

Baru-baru ini, Grand Riverview Hotel Kota Bharu telah menganjurkan Majlis Makan Malam Amal yang berlangsung pada 12 September 2012. Majlis yang bertempat di hotel tersebut bertujuan mengutip dana melalui jualan tiket makan malam yang mana keseluruhan kutipan dari jualan meja telah diserahkan kepada MAKNA. Sasaran awal kutipan adalah berjumlah RM50,000 namun pihak penganjur telah berjaya mengumpulkan sebanyak RM58,000. Pada majlis tersebut, empat orang kanak-kanak menghidapi kanser di bawah bantuan MAKNA juga telah dijemput selaku tetamu khas. Selain diberikan penginapan percuma di hotel tersebut, kanak-kanak ini juga telah dikejutkan dengan hadiah istimewa yang mereka sendiri

harapkan sebelum ini. Selain menjamu selera, para tetamu juga turut dihiburkan oleh artis-artis undangan khas seperti Datoâ€™ Fauziah Daud, Farahin, Nubhan dan ramai lagi. MAKNA amat terharu dengan keprihatinan Grand Riverview Hotel Kota Bharu dalam membantu perjuangan kami. Juga tidak lupa kepada pihak Jamu Mak Dara, Firefly dan semua pihak yang telah menyumbang untuk menjayakan majlis ini.

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Cover Story

MAKNA’S MOBILE SCREENING UNIT LAUNCH 27th September 2012 By: Kamini Rajendran

Honorary guests of the day at the site of the trailer flanked by IKM nurses

YABhg Puan Sri Norainee along with Dato’ Farid officiating the launch of the trailer The women of Malaysia now have better access to breast cancer screenings with the introduction of MAKNA’s Mobile screening unit. The mobile screening unit positioned as the first and largest in the country is a self-contained breast screening unit on wheels featuring advance digital mammography and an exam room for clinical breast examinations. It was funded in part by donations from MNRB and Yayasan Tenaga Nasional Berhad. The unit was officially launched on the 27th of September 2012 at Cempaka Damansara School and was graced by the Deputy Prime Minister’s wife, Puan Sri Noorainee Abdul Rahman who advised all women in Malaysia to go for a cancer screening test as early as possible. “I always believe that prevention is better than cure and all women should understand the risks of a late diagnosis. I go for a cancer screening every year,” said Puan Sri. The first of its kind, the mobile screening unit provides convenient and safe breast screenings to women throughout the region and is staffed by an all-female team of nurses and licensed radiographers. Fully certified by the Malaysian Ministry of Health, the main objective of such a unit is to not

Photos by Rajibul Hasan

only provide breast screening services but simultaneously stress on the importance of early detection of breast cancer.

From Left: En.Mohd Din Merican of MNRB, Dato’ Farid, YABhg Puan Sri Norainee and Puan Adelina of TNB

The pilot project kicked off on the 30th of March 2011 with an estimated 4119 people being screened over the course of one year. Of the total, 1246 were mammogram screenings and 2873 were clinical breast examinations catered for both men and women. The strong numbers prompted the team at MAKNA to officially launch its mobile screening unit to ensure visibility to the general public, helping them realise the existence of such a unit. “The cases referred to MAKNA are mostly in the advanced stages and a mere 30% of the total is curable, we will certainly have strengthened statistics through early detection and cure with the introduction of this unit”, said Dato Farid, President of MAKNA in his speech. MAKNA’s mobile screening unit will reach out to women over the age of 40 that are under-served and have limited access to mammography screenings due to work schedules, time constraints or those living in remote locations. Talks, education materials and breast self-exam teaching for both

male and females will be offered at the screenings. MAKNA has teamed up with community organizations to schedule mobile screenings at strategic locations in both urban and rural areas to groups of women in the pertinent category. This program offers cost effective screening mammograms or no cost when applicable. This goes to show MAKNA’s commitment to improving access to care for the communities around Malaysia.

common form of cancer affecting women. The numbers goes to show the importance of early detection and the mobile screening unit is an exemplary platform to do so. “Being the organization to spearhead such a ground-breaking program, our only hope is to better inform people about the tell-tale signs and symptoms of breast cancer and to have the confidence to act on it. It is what I would want for everyone. So, keep in mind, don’t get scared, get checked”, added Dato’ Farid.

It is estimated that 1 in 4 Malaysian will be affected by cancer at some point of their lives with breast cancer being the most

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Life Goes On

KANSER PAYUDARA Mengganggu Fizikal Dan Emosi

BERJUANG DEMI DEMI

KELUARGA

Dari kacamata seorang ayah Nama : Madhiyalagan Umur : 24 tahun Pekerjaan : Masih belajar sambil berkerja sebagai pengajar

Nama Pesakit : Shanti Ponnusamy Umur : 46 tahun Pekerjaan : Berkerja di (F.O.S) Soalan 1) Sedikit maklumat berkenaan dengan pesakit? Nama pesakit ialah Shanti. Dia merupakan adik bongsu ibu saya. Dia berkahwin pada tahun 2007. Malangnya, suaminya meninggal dunia dua tahun yang lepas. Dia tidak mempunyai zuriat dan selama ini tinggal bersama dengan nenek dan seorang lagi makcik saya (adik pertama ibu saya). 2) Maklumat berkenaan sejarah penyakit pesakit? Pada bulan April tahun ini, saya telah mendapat tahu yang makcik saya mempunyai ketulan di buah dadanya. Disebabkan segan, dia tidak memberitahu sesiapa sehingga ianya sudah terlambat. Apabila saya mendapat tahu, saya telah terus membawanya ke Hospital Pantai yang berdekatan dengan rumah saya. Saya memilih hospital tersebut kerana makcik saya biasa ke sana. Apabila doktor memeriksa makcik saya, dia memberitahu saya yang besar ketulan itu lebih kurang 3cm-4cm. Makcik saya terpaksa dibedah iaitu mastektomi. Pembedahan telah dijalankan pada 12 April 2012. Setelah membuat pembedahan, Doktor telah memberitahu saya yang sel-sel kanser makcik saya sudah mula merebak/metastasis ke nodus limpa. Setelah makcik saya pulih dari pembedahan, kita telah dihantar ke HUKM untuk kimoterapi. Setelah selesai kimoterapi di HUKM, dia akan bermula dengan Radioterapi pula. Semasa makcik saya di bawah pemerhatian HUKM, melalui Imbasan Tulang (BONE Scan), doktor telah mendapat tahu yang kansernya telah merebak ke tulang. Hampir semua tulang di badannya telah dijangkiti kanser sekunder. 3) Perasaan bila mendapat berita keadaan pesakit? Secara terus terang, sebelum doktor periksa, dalam minda saya sudah ada sangsi yang makcik saya ada kanser. Jadi, sebelum diberitahu oleh Doktor, saya telah bersiap sedia dari segi mental supaya tidak menunjukkan muka sedih ataupun muka risau kepada makcik. Pada pendapat saya, ia adalah penting untuk seseorang pesakit itu percaya yang dirinya boleh sembuh. Dia perlu keyakinan. Saya tidak mahu merosakkan keyakinan tersebut dengan riak wajah saya.

Soalan

Photo by Aninda Kabir Avik 4) Alternatif yang pertama terfikir untuk dilakukan bersama pesakit? Disebabkan keadaannya yang sudah masuk ke peringkat tiga, saya tidak memikirkan mana-mana alternatif yang lain. Saya telah terus memujuk makcik saya untuk membuat pembedahan dan ikut arahan doktor sepenuhnya. 5) Apa yang anda faham berkenaan kanser payudara? Kanser payudara adalah salah satu jenis kanser yang paling kerap dihadapi oleh wanita. Kanser ini telah meragut nyawa ramai wanita dan ia tidak mengenal umur. Bagi seseorang wanita, risiko untuk mendapat kanser adalah semenjak dia akhil balikh sehingga dia tua. Namun begitu, masih terdapat cara untuk memerangi kanser payudara melalui pengesanan awal. 6) Perasaan semasa menjaga pesakit mendapatkan rawatan? Apabila melihat cabaran yang dihadapi oleh makcik saya, saya dapati diri saya menjadi tertekan. Saya juga sedih apabila melihat dia menangis. Akan tetapi, saya selalu berhatihati agar saya tidak menunjukkan kerisauan saya ataupun kesedihan saya kepadanya. 7) Apakah cabaran yang dihadapi apabila menjaga pesakit kanser? Cabarannya ialah apabila makcik saya pulang dari kimoterapi. Dia selalu ada komplikasi yang berbeza dari kimoterapi dan saya selalu berusaha untuk mengatasi masalah tersebut. Cabaran yang paling kerap dihadapi ialah pembahagian masa. Saya masih belajar dan bekerja separuh masa sebagai tenaga pengajar. Untuk mencari masa untuk membuat kerja kursus kolej saya dan menjaga makcik saya adalah cabaran yang paling besar yang dihadapi oleh saya. 8) Apakah harapan anda terhadap pesakit? Semoga dia berjuang sepenuhnya. Tidak kira apa yang diberitahu oleh sains, kekuatan hati yang menentukan kesemuannya. Saya berharap dapat kuatkan lagi azamnya supaya dia boleh bersama dengan saya dan keluarga kami untuk masa yang lama.

1) Sedikit maklumat berkenaan dengan pesakit? Sebelum mendapat tahu berkenaan penyakit yang di alaminya, Norhaliza adalah seorang yang ceria dan suka mengusik malah dia juga seorang yang peramah dan suka berbual. Akan tetapi setelah mendapat tahu bahawa dia menghidap kanser payudara, dia menjadi seorang yang sensitif dan mudah terasa hati. Oleh demikian, setiap perbincangan atau gurauan yang melibatkan dia kami perlu memikirkan perasaan dia agar dia tidak terasa rendah diri. 2) Maklumat berkenaan sejarah penyakit pesakit? Keluarga sebelah ibu saya (Opah Norhaliza) mempunyai sejarah penyakit barah. Ibu saya menghidap barah pundi kencing, adik bongsu saya pula menghidap barah leher sementara anak buah saya menghidap barah payudara dan ibu kepada anak buah saya pula menghidap barah rahim. Keluarga sebelah isteri saya pula ada juga penghidap barah bermula dari anak saudara yang berusia lingkungan 9 tahun menghidap barah hati, dia telah pun meninggal dunia manakala kakak kepada isteri pula menghidap barah usus, beliau juga telah meninggal dunia akibat lambat dikesan. 3) Perasaan bila mendapat berita keadaan pesakit? Perasaan saya sangat terkejut apabila diberitahu oleh isteri bahawa anak saya (pesakit : Norhaliza) terpaksa menjalani pembedahan membuang ketumbuhan yang telah disahkan barah. Perasaan menjadi sedih sekali lagi apabila setelah sebulan dibedah bagi membuang ketulan, kami diminta untuk hadir ke hospital bagi mendengar keputusan dari pakar bedah dimana anak saya terpaksa dibedah sekali lagi kerana barah yang dihadapi itu sangat agresif, saya melihat anak saya sangat kecewa dengan apa yang didengarnya dan menangis. Tambah pula pada hari doktor menyatakan hasrat perlu dibedah sekali lagi, hari itu adalah hari lahir Norhaliza. Saya sekali lagi diuji apabila anak saya dimasukkan ke hospital dan terpaksa dibedah akibat kesan negatif kimoterapi. Para doktor menghubungi saya yang mana pada ketika itu saya berada di Pulau Pinang bersama keluarga untuk menghantar anak lelaki saya belajar di UITM Pulau Pinang. Doktor tersebut mengatakan supaya semua ahli keluarga perlu berkumpul kerana Norhaliza berada dalam keadaan tenat disebabkan jangkitan pada perut akibat kimoterapi tetapi saya bersyukur pada masa itu ada sahabat baiknya bernama Farhan yang menghantar dan menjaga anak saya dari mula dan sentiasa menunggu dia semasa membuat pembedahan pada perut. Semasa saya pulang ke Kuala Lumpur dalam keadaan tergesa gesa, saya dapat melihat sahabatnya itu sentiasa berdoa agar anak saya kembali sihat seperti dahulu. Sebenarnya saya berasa amat sedih dengan apa yang menimpa anak saya tapi

redha dengan ketentuan Ilahi kerana mungkin ini adalah ujian buat kami. 4) Alternatif yang pertama terfikir untuk dilakukan bersama pesakit? Memberi semangat supaya anak tidak rasa terluka dengan keadaan dirinya selepas pembedahan dan membiarkan apa sahaja aktiviti sihat yang dilakukan oleh anak saya seperti mendengar motivasi dan bertemu dengan rakan rakan yang senasib dengannya. Saya juga membiarkan anak saya bercuti bersama sahabatnya dan mengikut sahabatnya pulang ke kampung untuk menyaksikan keindahan perkampungan di tempat lain. 5) Apa yang anda faham berkenaan kanser payudara? Bagi saya barah payudara boleh terjadi kepada sesiapa sahaja tidak kira lelaki ataupun perempuan tetapi saya tidak sangka di mana anak saya sendiri menghidap sakit ini dan terpaksa melalui bermacam rintangan untuk meneruskan kehidupannya. 6) Perasaan semasa menjaga pesakit mendapatkan rawatan? Cuba bersabar dengan kerenah anak dan menganggap perkara tersebut perkara biasa, walaupun anak saya menjadi seorang yang mudah terasa hati apabila percakapan kami itu menguris perasaannya. Saya juga membiarkan anak saya untuk membuat apa yang dia gemari supaya dia tidak rasa dirinya tidak sempurna seperti orang lain. Perasaan risau ada timbul juga apabila anak saya tidak mampu membuat pekerjaan berat tetapi anak saya tetap ingin membuat pekerjaan berat seperti mengangkat barang atau mengosok baju. Ini kerana anak saya telah menjalani pembedahan pada tangan kanannya akibat barah, tangan kanannya sudah tidak sekuat dulu, nasibnya agak baik apabila rakan serumahnya iaitu Farhan sudi menolong meringankan bebanannya. 7) Apakah cabaran yang dihadapi apabila menjaga pesakit kanser? Norhaliza mudah terasa hati dan menjadi seorang yang menyendiri serta tidak boleh menerima apa-apa cabaran sekeliling. Dia menjadi pemarah dan mula mengamuk serta sanggup bergaduh dengan sesiapa saja yang menghina dia. Saya sentiasa menasihatinya agar perlu bersabar dan sentiasa mengingati Allah SAW agar dia yang dulunya seorang yang lembut tidak menjadi pemarah. 8) Apakah harapan anda terhadap pesakit? Saya amat berharap agar anak saya akan sembuh dan kembali ceria seperti dahulu, walaupun dia tahu dirinya tidak seperti dahulu, sekurang-kurangnya penyakit tersebut akan hilang dan tidak akan berulang lagi.

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Volunteers

MAKNA VOLUNTEER MANAGEMENT

(MVM) LIFE TRANSITION Registration is your Birth Non-performance is your Death Your current asset is a Work

of HEART Your fixed asset is a SINCERE SOUL Your fixed deposit is COMMITMENT Your current account is CREATIVITY DESIRE Your investment is PATIENCE Your interest earned is LOVE Your dividend is ACHIEVEMENT

NAZRI BIN SALLEH NELAYAN

Your capital is BURNING

Your Stock in Trade is CHARACTER

& MORALS Your bonus issues are BEHAVIOUR & VALUES Your General Reserve is FRIENDSHIP & COACHEE Your auditor is YOUR VOLUNTEER COACH YOUR BEST AWARD is to learn...

“A meaning to LIFE” Note:

L - Love is the most powerful force in life

I - ‘I Can’ is one of the most powerful affirmation F - Faith is our greatest asset E - Encouragement is our greatest shot in the arm

From Left: Nazri Bin Salleh(Patient), En.N.Hashim B. AB.Rahman(Pengarah LKIM Cawangan Perlis), YB. Mat Bin Hassan(ADUN Kawasan Kuala Perlis), & Pn. Norizan Yahya (Breast Cancer Survivor & Perlis Volunteer Leader). Nazri bin Salleh, KP 710308-09-5111 di bawah Bursary MAKNA ialah seorang nelayan yang berdaftar dengan Lembaga Kemajuan Ikan Malaysia (LKIM) Negeri Perlis. Pada Julai 2011 beliau telah disahkan mengidap AML – Acute Myeloid Leukaemia. Susulan itu, beliau telah dirujuk ke Hospital Pulau Pinang untuk menjalani pemeriksaan susulan dan rawatan kimoterapi 2 kali sebulan. Malangnya ibu Nazri disahkan mengidap kanser rahim dan masih menerima rawatan di Hospital Tuanku Fauziah Kangar, Perlis. Lebih menyedihkan lagi, isteri beliau juga mengidap kanser, iaitu kanser payudara, tetapi enggan menerima rawatan di hospital kerana masalah kewangan dan hanya merawat secara tradisional di kampung. Nazri mempunyai 3 orang anak yang masih bersekolah. Beliau tidak berdaya ke laut untuk menangkap ikan selepas menjalani kimoterapi. Elaun sara hidup nelayan beliau sebanyak RM200.00 sebulan telah ditamatkan sejak Oktober 2011 kerana beliau gagal hadir sendiri menerima elaun. Ini disebabkan beliau berada di Hospital Pulau Pinang menerima rawatan kimoterapi.

Gagal mendapat kelulusan sewajarnya, pada 10/07/2012 sekali lagi saya berusaha merujuk kes beliau kepada ibu pejabat LKIM di Kuala Lumpur, bahagian elaun sara hidup nelayan dan telah dapat bercakap sendiri dengan pegawai bertanggungjawab. Setelah berbincang dan memohon budi bicara agar elaun Nazri dapat disambung. Akhirnya pada 15/7/2012 elaun sara hidup beliau dibayar semula melalui akaun bank, sementara tunggakan dibayar semasa majlis penyerahan elaun sara hidup nelayan di Dewan Sekolah Menengah Kuala Perlis pada 29 Ogos 2012 yang di sempurnakan oleh Yang Berhormat ADUN Kuala Perlis. Diharap dengan elaun itu nanti dapatlah Nazri sekeluarga menyambut bulan Ramadan al Mubarak dan Hari Raya Aidilfitri tahun ini lebih bermakna. Lembaga Kemajuan Ikan Malaysia ( LKIM ) juga telah meluluskan peruntukan untuk membaiki rumah beliau yang uzur itu. Syukur, kini kerja-kerja pembaikan sedang giat dijalankan. (Oleh: Puan Noranizan Yahya, Volunteer Leader, Perlis)

Bagi pihak kanser ‘support group’ Negeri Perlis, saya berusaha melanjutkan kes beliau ke Pejabat Lembaga Kemajuan Ikan Negeri Perlis dan membuat rayuan kepada ibu pejabat Lembaga Kemajuan Ikan Malaysia (LKIM) di Kuala Lumpur bersama-sama surat akuan doktor. Kelulusan elaun sara diri beliau masih digantung sementara.

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Feature Story

A Tale of the

Rainbow

Continued...

JOM BOTAK: TREK FOR CANCER 1 June - 14 August 2012 By Vemanna Appannah, Senior Manager MAKNA

Photos by Aninda Kabir Avik & Rajibul Hasan

After a victorious trek to the Everest Base Camp in April/May 2011, we, the Rainbows once again donned our trekking gear and set off for another challenging mission, that is to scale, trek and conquer the treacherous but beautiful mountain tops and volcanoes of KAMCHATKA, Russia as an effort to continue raising funds for our operations in support of cancer patients. Aptly titled ‘Jom Botak’, our mission to this part of Russia began on the 1st of August and ended on the 12th of August 2012. Jom Botak is a 3-month campaign (June – August) which simply means “Go Bald”, attracted more than 450 individuals who had their heads shaven for free by hairdressers from A Cut Above. It was a simple yet meaningful way to show cancer patients that they are not alone in their fight against cancer, a display of solidarity that received huge support from people of all walks of life, parents to children, teachers, students, celebrities, radio announcers and cancer survivors themselves. For many, it was an emotion revived as they themselves have taken the perilous journey of cancer, one way or another.

Going bald for cancer is nothing new; cancer organisations around the world encourage people to voluntarily do it, but what we want to covey to the public is: come and join us, stand up to cancer, we may not know how long the journey is going to be, but we stand united in the healing process. One of our strongest supporters is ASTRO radio who helped champion the cause and this consequently led their front line radio announcers Rex, Richard, Ross & Ram to go bald in support of cancer.

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Feature Story

Avachinsky Volcano

Feature Story

The reason why Kamchatka was chosen as the destination of choice for the trek is to parallel the cancer experience. In some cases, cancer cells can remain undetected in the body for a long time and one never knows when it will vent and this is somewhat very similar to the workings of a VOLCANO... we can never truly predict when it will erupt. Just like in life, every step taken is a step further into an unknown outcome and so, our expedition into this unfamiliar and unpredictable territory is meant to exhibit a ray of hope for all cancer patients. Volcanic eruption takes time to recover; this is then reflected through the the challenging life journey that cancer patients go through. Kamchatka is so unique that it is known to the world as the place where FIRE MEETS ICE. A place less explored but steadily gaining popularity, Kamchatka is flanked by large VOLCANIC BELTs comprising around 160 volcanoes, of out which 29 are still active.

Just a few days before leaving to Kamchatka, Dato’ Arunan Selvaraj had a slip disc. Sadly, the team had to leave without him, he stayed to look after the running of the project while we braved the volcanic journey. The trek was not an easy one as it came with a series of challenges. Trekking in the Arctic tundra region during summer, the sudden change of weather and geographical danger is something we were warned about. The Arctic tundra contains areas of stark landscape and stays frozen most of the year. Temperature in summer (Jun – Sept) rises to about 20°C and can drop to 5°C. In the duration of our trek, we braved 3 active volcanoes namely, Avachinsky, Mutnovsky & Gorely.

2,741meters

The Rainbows were made up of a team of 7 volunteers; Dato’ Dr. Arunan Selvaraj – the team leader, Benjamin Goon, Samhan Adnan, Subramaniam Gunasegaran, Mohammad Yahya, Prakash Malaiyappan, Eugene Lee and I, the project coordinator.

Trek For

Cancer

Photos by the Trekkers This active volcano experienced small eruptions in 1991 & 2001. Towering above Petropavlovsk, Kamchatka’s largest city, it is one of Kamchatka’s most active volcanoes. It typically erupts every few years to decades, often producing ash flows and lahars. It provides a 360 degree view out to the Pacific Ocean and many surrounding peaks and volcanoes. The collar of the summit holds a steaming crater.

Alpine Trekking Guides, Grigory Mintsev (left) & Yegor Shuvayev (right) Prakash (in purple) & Martha Madsen (from Explore Kamchatka)

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Feature Story

Gorely is one of the most active volcanoes in southern Kamchatka and is located 75 km SW of Petropavlovsk. It is a blend of several overlapping strato-volcanoes with many summit and flank craters. Activities in historic times were mainly small to medium-sized ash and steam eruptions. Located about 70 km SW of Petropavlovsk-Kamchatsky, Mutnovsky comprises four overlapping strato-volcanoes and summit craters of up to 1.3 km wide. The amazing crater of the active volcano sees boiling mud pots, jetting fumaroles putting out steam, and multi-colored mineralized walls. Note: May 24, 2012, The National Geographic featured a photo of Mutnovsky as Photo of the Day.

Mutnovsky Volcano 2,322 meters Gorely1,829meters Dangers in Kamchatka:§ Brown Bears – while they do not view you as a source of food, it is better to keep a good distance from one. § Earthquakes – located in the ring of fire that surrounds the Pacific. § Treacherous geothermal fields, rivers and lakes – it is very easy to fall kneedeep into boiling mud or burn yourself in a very hot creek. § Explosive Volcanoes – active and explosive, there is no predicting when the volcanoes will next erupt!

From left : Subramaniam, Mohammad Yahya, Benjamin Goon, Vemanna, Samhan Adnan, Eugene Lee & Prakash

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Feature Story

The Making of Jom Botak: Trek for Cancer Theme Song

What our supporters say: “I was inspired by Lance Armstrong’s spirit and recovery, and his huge gamble to bring his life back to being a sportsman after he was diagnosed with cancer” – Rex, LiteFM Radio Announcer

A music video was launched mimicking a truly Malaysian concept, the instruments used in the making of the song are the sape, sitar, gu zheng, flute, Western Violin, Indian Classical Violin and piano was sung in 4 languages namely Bahasa Malaysia, Mandarin, Tamil and English.

The video was put together with the participation of over 50 local celebrities and they are Dato’ Yasmin Yusoff, Amber Chia, Hans Issac, Thanuja Ananthan, Salamiah Hasan, Atilia Haron, Datin Seri Manimala N. T. Rajah, Soo Wincci, Jojo Struys, Kelvin Lau, Ras Adiba Radzi, Jehan Miskin, Genevieve Sambhi to name a few, and many more along with cancer survivors, caregivers and volunteers. The five minute theme song was put together by Malaysian Indian artist MK and was composed and produced by husband-and-wife team Boy and Matilda Radge, directed by Sree Sonic Image and edited by SwagaDee. Like cancer, music knows no boundaries hence it was deemed the best way to enhance the visibility of this campaign. The music video was played in Lotus Five Star Cinemas and ASTRO TV Hits 705 during the campaign period. Thank You Sponsors and Donors! Together we raised RM 275,000 and this number would not have been possible without your support. Once again, THANK YOU from all of us at MAKNA.

“It felt uneasy at first, but us going bald has become an icebreaker when meeting people, that’s how we spread the word about cancer and the campaign” – Ross, LiteFM Radio Announcer “A cancer patient thanked me for trying to understand and for supporting the cause. I am glad because at least they know that there are people who empathise and they are not alone when they fight their battles” – Richard, Lite FM Radio Announcer “I asked my father’s permission and he consented as it was for a good cause” – Deepa Darshini 21, Student, HELP University NOTE: FOR TWEET MESSAGES, TURN TO PAGE 43

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Health Focus Alcohol use

At least one-third of all cancer cases are preventable. Prevention offers the most cost-effective long-term strategy for the control of cancer. Tobacco

Alcohol use is a risk factor for many cancer types including cancer of the oral cavity, pharynx, larynx, oesophagus, liver, colorectum and breast. Risk of cancer increases with the amount of alcohol consumed. The risk from heavy drinking for several cancer types (e.g. oral cavity, pharynx, larynx and oesophagus) substantially increases if the person is also a heavy smoker. Attributable fractions vary between men and women for certain types of alcohol-related cancer, mainly because of differences in average levels of consumption. For example, 22% of mouth and oropharynx cancers in men are attributable to alcohol whereas in women the attributable burden drops to 9%. A similar sex difference exists for oesophageal and liver cancers (Rehm et al., 2004).

Cancer

Prevention

Tobacco use is the single greatest avoidable risk factor for cancer mortality worldwide, causing an estimated 22% of cancer deaths per year. Tobacco smoking causes many types of cancer, including cancers of the lung, oesophagus, larynx (voice box), mouth, throat, kidney, bladder, pancreas, stomach and cervix. About 70% of the lung cancer burden can be attributed to smoking alone. Second-hand smoke (SHS), also known as environmental tobacco smoke, has been proven to cause lung cancer in non-smoking adults. Smokeless tobacco (also called oral tobacco, chewing tobacco or snuff) causes oral, oesophageal and pancreatic cancer.

Physical inactivity, dietary factors, obesity and being overweight Dietary modification is another important approach to cancer control. There is a link between overweight and obesity to many types of cancer such as oesophagus, colorectum, breast, endometrium and kidney. Diets high in fruits and vegetables may have a protective effect against many cancers. Conversely, excess consumption of red and preserved meat may be associated with an increased risk of colorectal cancer. In addition, healthy eating habits that prevent the development of diet-associated cancers will also lower the risk of cardiovascular disease. Regular physical activity and the maintenance of a healthy body weight, along with a healthy diet, will considerably reduce cancer risk. National policies and programmes should be implemented to raise awareness and reduce exposure to cancer risk factors, and to ensure that people are provided with the information and support they need to adopt healthy lifestyles.

Infections Infectious agents are responsible for almost 22% of cancer deaths in the developing world and 6% in industrialized countries. Viral hepatitis B and C cause cancer of the liver; human papilloma virus infection causes cervical cancer; the bacterium Helicobacter pylori increases the risk of stomach cancer. In some countries the parasitic infection schistosomiasis increases the risk of bladder cancer and in other countries the liver fluke increases the risk of cholangiocarcinoma of the bile ducts. Preventive measures include vaccination and prevention of infection and infestation.

Environmental pollution Environmental pollution of air, water and soil with carcinogenic chemicals accounts for 1–4% of all cancers

(IARC/WHO, 2003). Exposure to carcinogenic chemicals in the environment can occur through drinking water or pollution of indoor and ambient air. In Bangladesh, 5–10% of all cancer deaths in an arsenic-contaminated region were attributable to arsenic exposure (Smith, Lingas & Rahman, 2000). Exposure to carcinogens also occurs via the contamination of food by chemicals, such as afl atoxins or dioxins. Indoor air pollution from coal fires doubles the risk of lung cancer, particularly among non-smoking women (Smith, Mehta & Feuz, 2004). Worldwide, indoor air pollution from domestic coal fires is responsible for approximately 1.5% of all lung cancer deaths. Coal use in households is particularly widespread in Asia. More than 40 agents, mixtures and exposure circumstances in the working environment are carcinogenic to humans and are classified as occupational carcinogens (Siemiatycki et al., 2004). That occupational carcinogens are causally related to cancer of the lung, bladder, larynx and skin, leukaemia and nasopharyngeal cancer is well documented. Mesothelioma (cancer of the outer lining of the lung or chest cavity) is to a large extent caused by work-related exposure to asbestos. Occupational cancers are concentrated among specific groups of the working population, for whom the risk of developing a particular form of cancer may be much higher than for the general population. About 20–30% of the male and 5–20% of the female working-age population (people aged 15–64 years) may have been exposed to lung carcinogens during their working lives, accounting for about 10% of lung cancers worldwide. About 2% of leukaemia cases worldwide are attributable to occupational exposures.

About 20–30% of the male and 5–20% of the female working-age population (people aged 15–64 years) may have been exposed to lung carcinogens during their working lives, accounting for about 10% of lung cancers worldwide.

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Health Focus

WHAT IS

MELANOMA?

Radiation Ionizing radiation is carcinogenic to humans. Knowledge on radiation risk has been mainly acquired from epidemiological studies of the Japanese A-bomb survivors as well as from studies of medical and occupational radiation exposure cohorts. Ionizing radiation can induce leukaemia and a number of solid tumours, with higher risks at young age at exposure. Residential exposure to radon gas from soil and building materials is estimated to cause between 3% and 14% of all lung cancers, making it the second cause of lung cancer after tobacco smoke. Radon levels in homes can be reduced by improving the ventilation and sealing floors and walls. Ionizing radiation is an essential diagnostic and therapeutic tool. To guarantee that benefits exceed potential radiation risks radiological medical procedures should be appropriately prescribed and properly performed, to reduce unnecessary radiation doses, particularly in children. Ultraviolet (UV) radiation, and in particular solar radiation, is carcinogenic to humans, causing all major types of skin cancer, such as basal cell carcinoma (BCC), squamous cell carcinoma (SCC) and melanoma. Globally in 2000, over 200 000 cases of melanoma were diagnosed and there were 65 000 melanoma-associated deaths. Avoiding excessive

exposure, use of sunscreen and protective clothing are effective preventive measures. UV-emitting tanning devices are now also classified as carcinogenic to humans based on their association with skin and ocular melanoma cancers. It is obvious that some preventive measures like eliminating tobacco, alcohol from our lives and try to lead a healthy lifestyle by eating well and exercising can go a long way in helping you be cancer-free.

Source: WHO

The most dangerous form of skin cancer, these cancerous growths develop when unrepaired DNA damage to skin cells (most often caused by ultraviolet radiation from sunshine or tanning beds) triggers mutations (genetic defects) that lead the skin cells to multiply rapidly and form malignant tumours. These tumours originate in the pigmentproducing melanocytes in the basal layer of the epidermis. Melanomas often resemble moles; some develop from moles. The majority of melanomas are black or brown, but they can also be skin-colour, pink, red, purple, blue or white. Melanoma is caused mainly by intense, occasional UV exposure (frequently leading to sunburn), especially in those who are genetically predisposed to the disease. If melanoma is recognized and treated early, it is almost always curable, but if

it is not, the cancer can advance and spread to other parts of the body, where it becomes hard to treat and can be fatal. While it is not the most common form of skin cancer, it is the most fatal. Moles, brown spots and growths on the skin are usually harmless — but not always. Anyone who has more than 100 moles is at greater risk for melanoma. The first signs can appear in one or more atypical moles. That’s why it’s so important to get to know your skin very well and to recognize any changes in the moles on your body.

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Any change in size, shape, colour, elevation, or another trait, or any new symptom such as bleeding, itching or crusting points to danger.

The borde rs of an early mela noma tend to be uneven. The edge s may be scalloped or notched.

Hav ing a var iety of colo urs is ano the r wa rni ng sign al. A num ber of diff ere nt shades of bro wn, tan or blac k cou ld app ear. A mel anoma ma y also bec ome red , blue or some oth er colo ur

Mela noma s usu all y are larger in diamete r th an th e siz e of th e era ser on yo ur pe nc il (1/4 inc h or 6 mm ), bu t th ey may someti me s be sm aller wh en firs t detected .

Health Focus

Moles in people belonging to melanoma-prone families are subject to change at certain times of life. They may get larger or show alterations in color or elevation, so for those periods, they are described as being active. While the reasons for these changes are not fully known, there could be a hormonal component: Moles are more active at puberty and during pregnancy. Many — but not all — physicians advise high-risk individuals not to take hormonal medications, such as oral contraceptives or hormone replacement therapy. Individuals with atypical mole syndrome can improve their chances of early detection by increasing the frequency of skin self-examination and by visiting a physician more often for a full-body skin exam. The clinician may take photographs to document whether there are new moles or changes in older ones.

Smoke Free Public Places Survey By MAKNA

The National Cancer Council (MAKNA) conducted a nationwide survey tackling the issues of second-hand smoking and what the public truly perceive. We are happy to inform that Malaysians are not only well-informed, but are taking a stand against second-hand smoking and its repercussions on one’s health and the health of those around them. We can see from the results that the public are open for tighter control on smoking regulations and that more awareness of second-hand smoking would be welcomed. 1 - I believe that second-hand smoke is a serious threat to my health in my workplace

Strongly Agree Agree

Neither Agree nor Disagree

Am I At Risk?

Disagree

Strongly Disagree

Everyone is at some risk for melanoma, but increased risk depends on several factors: sun exposure, number of moles on the skin, skin type and family history (genetics). Both UVA and UVB rays are dangerous to the skin, and can induce skin cancer, including melanoma. Blistering sunburns in early childhood increase risk, but cumulative exposure also may be a factor. People who live in locations that have more sunlight are more at risk. There are two kinds of moles: normal moles — the small brown blemishes, growths, or “beauty marks” that appear in the first few decades of life in almost everyone — and atypical moles, also known as dysplastic nevi. Atypical moles can be precursors to melanoma, and having them puts you at increased risk of melanoma. But regardless of type, the more moles you have, the greater your risk for melanoma.

Yes The general public strongly believe second-hand smoking is a serious threat to health

2 - Do you know that non-smoking adults die of lung cancer as a result of breathing second-hand smoke?

13%

Yes

87%

Yes

The general public strongly believe non-smoking adults are seriously affected by second- hand smoking

As with all skin cancers, people with fairer skin (who often have lighter hair and eye colour as well) are at increased risk. Once you have had melanoma, you run an increased chance of recurrence. People who have or had basal cell carcinoma or squamous cell carcinoma are also at increased risk of developing melanoma. Heredity plays a major role in melanoma. About one in every 10 patients diagnosed with the disease has a family member with a history of melanoma. If your mother, father, siblings or children have had melanoma, you are in a melanoma-prone family. Each person with a firstdegree relative diagnosed with melanoma has a 50 percent greater chance of developing the disease than people who do not have a family history of the disease.

3 - Are you bothered by other people smoking around you?

15%

83%

No (Continue To Question 5)

Yes (Continue To Question 4)

Yes

The general public is bothered by other people smoking around them

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Health Focus 6 - Which of the following best describes me?

4 - How does second-hand smoke affect you 8 - I have a physical reaction. (Headaches, Stining eyes, nausea, etc.)

7 - I have medical / health complications affected by second-hand smoke. (Heart disease, respiratory disease, allergies, etc)

6 - I feel the need to get away from my work because for a breath of fresh air. 5 - I have difficulty sleeping at night due to smoke-related symptoms. (Nasal congestion, etc)

12% 13%

I am an ex-smoker I am a smoker who would like to quit I am a non-smoker

75%

4 - I have difficulty concentrating on my work because I am annoyed by the

75%

Of people responded to this survey are non smokers.

presence of second-hand smoke.

3 - I feel that my productivity at work is negatively affected by presence of second hand smoke

2 - I feel uncomfortable asking people who smoke not to smoke around me. 1 - I sense tension between smokers and non-smokers

People may select more than one checkbox, so percentages may add up to more than 100%

Yes

The general public wants fresh breath of air for good health and they concent highly disturbed with people smoking around them.

5 - Which smoking policy would you support

1 - Smoking is restricted to certain areas outside and designated areas inside that are separately vented to the outside.

2 - No Smoking inside building and smoking is restricted to certain areas

7 - This is what they had to say. If public area were to become smokefree indoors and outdoors, where likely would you seriously consider?

1 - Playground 2 - Stairway, Cafe, Childrenâ€™s Place 3 - Car Park 4 - College 5 - Field 6 - Restaurant 7 - In the house 8 - Mamak Stalls 9 - Completely ban smoking 10 - Hotel 11 - Public Toilet 12 - Bus station, in the bus 13 - Working Place, Inside Building 14 - Shopping malls 15 - LRT Station 16 - Food Court, Kopitiam

outside the building.

3 - Complete ban on smoking in workplace. (Including in buildings, vehicle and outside property)

People may select more than one checkbox, so percentages may add up to more than 100%

To workplace smoking & smoking to be restricted to certain areas.

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International

MAKNA sets its feet in

Vietnam! Cancer Statistics in Vietnam Demographics

Cancer Incidence

The socialist republic of Vietnam is a crowded single partystate. With an estimated 91.5 million inhabitants as of 2012, it is the worldâ€™s 13th most populous country, of which the Viet or Kinh ethnic group constitute nearly 85.8% of the population. Approximately 85% of the Vietnamese identify with Buddhism, though not all practice the religion on a regular basis.

Vietnam is a developing country with a national cancer incidence of at least 150,000 new cases per year and has to deal with many challenges in cancer control. The reason is partly explained by a shortage of treatment facilities and poor quality of health statistics. According to the International Agency for Cancer Research and the International World Health Organization, the cancer incidence and mortality rate in Vietnam can be verified in the charts shown here:

Health Care System The healthcare system in Vietnam is a mixed public-private provider system, in which the public system still plays a key role in healthcare, especially in prevention, researching and training. There are more than 1030 hospitals in Vietnam and approximately 7 doctors for every 100,000 people (in 2011). The statistics show that Vietnam perhaps still lacks good health facilities and does not have enough hospitals to serve the sick. According to Vietnam News, Ho Chi Minh Cityâ€™s officials were quoted in April 2012 to have said that the city needs investments of some US$750 million to reduce overload at hospitals for the 2012-2015 period.

Within the healthcare system, the social health insurance scheme (SHI) has played an increasing role in terms of coverage and financing. The current SHI comprises three sub-schemes: the compulsory SHI, the voluntary SHI and the SHI for the poor. Under the current regulations, compulsory participation is applicable to all active workers and retired people in the public sector, as well as salaried workers in the private sector regardless the size of the enterprises they are employed by. In addition, some groups of people, such as foreign students in Vietnam, the elderly (90 years old and above), veterans and dioxin victims are also included in this scheme. In particular, the poor have also been included to the compulsory scheme since 2005.

Vietnamese Doctors from the National Cancer Hospital in a Anti-Tobacco Policy week-long workshop organised and sponsored by MAKNA, in collaboration with MoH Malaysia. Estimated age-standardised incidence and mortality rates: For Women

Estimated age-standardised incidence and mortality rates: For Men

Vietnam has proposed a strategy for National Cancer Control from 2010 to 2020 and although it has not yet been implemented, the country has already taken action in cancer prevention and control under the guidance of the National Cancer Hospital. MAKNA established a partnership with the National Cancer Hospital of Vietnam in 2009 and has being actively supporting the development and implementation of the National Strategy for Cancer Control by providing assistance in the creation of the National Cancer Registry in Vietnam and the enhancement of public Anti-Tobacco policies.

GLOBOCAN 2008 (IARC) Section of Cancer Information (30/7/2012) The front gate of the National Cancer Hospital in Hanoi. GLOBOCAN 2008 (IARC)Section of Cancer Information (30/7/2012)

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International

Our New

Office!

Two Philippine Cancer Organisations Consider a Future Collaboration with Puan Farahida at the door of our office, with the MAKNA Malaysia plaque on the wall.

MAKNA

A look at our new office.

Through the efforts of MAKNA’s International Division and its Liaison Officer in Vietnam, Dr. Tran Thran Huong, MAKNA was offered a five-year rental-free office space at the Hung Viet Cancer Hospital in Hanoi. With the opening of our office in Vietnam this year, we hope to start a new age of collaboration with Vietnam, introducing new services that will help poor cancer patients in that country more directly. The office space was generously offered by Dr. Vu Hoang Nguyen, Chairman of the hospital, who met us on June 18th to formalise the offer. MAKNA will also have access to its own Conference Room which we will share with the Bright Future Fund, our new partners in Vietnam. The offices of both organisations are co-located in the hospital, on its 12th floor. On 18th June 2012, at 14:00, at the Conference Room of the Ministry of Health of Vietnam, a Memorandum of Understanding between MAKNA and the Bright Future Fund of Vietnam was signed. The Fund was founded by Vietnam’s Vice-Minister of Health, Dr. Nguyen Thi Xuyen, to support poor cancer patients.

Our Address in Vietnam: Hung Viet Cancer Hospital 34 Dai Co Viet Street, 12th Floor Le Dai Hanh, Hai Ba Trung Hanoi, Vietnam

Collaboration with Bright Future Fund in Vietnam The two organizations have exchanged words of support to each other’s activities, and promised to collaborate in future projects. The terms and conditions for the participation of each project will be negotiated separately by both organizations when required. A steering committee comprising members of MAKNA and members from Bright Future will be composed. This committee has an objective to plan for common projects and define the roles and responsibilities of each party involved. Additionally, MAKNA is planning to create new positions for our office in Hanoi, in order to actively carry out Cancerrelated activities in Vietnam.

Dr. Thi Xuyen (left), Deputy Minister of Health in Vietnam, and Dato’ Mohd Farid Ariffin (right) sign a MoU establishing the collaboration between MAKNA and Bright Future, in the Ministry of Health of Vietnam.

MAKNA’s undertaking to help more cancer stricken people in Southeast Asia is on track, as four representatives from two renowned Cancer organisations visited MAKNA in Kuala Lumpur in what was a fruitful four days visit beginning 10th till 14th of September 2012. From Philippine Cancer Society (PCS), the International Division welcomed Dr. Rachael Rosario, the Executive Director, Dr. Angela Crisostomo, a member of their Board of Trustees, and Mr. Allan Crisostomo, while Ms. Grace Mateo, a Project Manager, represented the Cancer Institute Foundation (CIF) of the Philippine General Hospital in Manila. The state-owned National University Hospital is recognised to be the largest hospital in the Philippines, known to cater to indigent patients. The four delegates were introduced to MAKNA and its services by Mr. Matheus Barrachi on their 2nd day in our capital city. The presentation in MAKNA’s HQ was followed by a visit to the Ministry of Health where Dr. Nor Saleha Ibrahim Tamin of the Cancer Unit, Disease Control Division, gave them a brief overview on the Malaysian National Cancer Registry.

As they expressed their interest in adopting MAKNA’s mobile screening unit initiative, the delegates were given a short introduction to the mobile mammogram unit by MAKNA’s Senior Diagnostic Radiographer, Ms. Malathi A/P Alagu. She later took them on a tour of the unit after which they dropped by the Pusat Perubatan Universiti Kebangsaan Malaysia (PPUKM), where Dr. Nik Muhd Aslan Abdullah showed them around the Institut Kanser MAKNA, specifically the Oncology Ward and the Radiotherapy Unit. Their third day culminated in a dinner with Dato’ Farid Mohd Ariffin, Founder and President of MAKNA and Prof.Emeritus Dr Cheong Soon Keng, Vice President of MAKNA. On their last day, one of the Senior Executives of MAKNA, Ms. Azhana Abdul Jalil, gave the delegates a presentation of the Bursary Programme while the rest of the morning was a discussion between MAKNA and the delegates. High in priority is the possible collaboration of the three organisations in the foreseeable future that is hoped to make a profound impact in Philippines’ cancer care, control and prevention.

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Did You Know?

DID YOU KNOW? 1.

Great Britain was the first county to issue postage stamps, on 1 May 1840. Hence, UK stamps are the only stamps in the world not to bear the name of the country of origin.

Only one of the Seven Wonders of the World still survives: the Great Pyramid of Giza.

111,111,111 x 111,111,111 = 12,345,678,987,654,321

ANSWER: 1.

C. Thomas Edison Thomas Edison’s Pearl Street Station electrified a one-square-mile (2.6-square-kilometer) area of Lower Manhattan beginning September 4, 1882, providing power to illuminate his new electric light bulbs. The world’s first electric power plant operated until it was destroyed by fire in 1890

A. Transformers Power plants produce electricity at high voltage so it can be moved over long distances efficiently, with minimal transmission losses. Transformers are needed throughout the system to step down the voltage so it can be used in households and businesses.

B. On purpose, in an effort by Edison to demonstrate the danger of high-voltage electricity. Edison staged the electrocution of a Luna Park Zoo elephant (one already slated for euthanasia), to show the dangers of competitor Westinghouse’s alternating current (AC) system. In the end, though, the long-distance-transmission advantages of AC won out over Edison’s direct current.

D. All of the above Power failures can be caused by coastal sea salt deposits on power line insulators, by animals contacting wires, and by coronal mass ejections from solar storms that originate in sunspots. Most power companies report that weather is the leading source of outages

8. 3.

D. It is produced by another energy source. Electricity is considered a secondary energy source because it is produced by the conversion of another energy source, such as coal, natural gas, nuclear power, wind, or solar energy.

A. Brazil, November 2009 Lightning storms triggered a major failure at Itaipu Dam and its grid, disrupting electricity for 87 million people in Brazil and Paraguay for about seven hours. The North American outage affected 50 million people, China’s affected 30 million, and Europe’s affected 10 million.

C. It opens the circuit Flipping a light switch on closes, or completes, the electrical circuit. This closed loop or complete path allows electricity to flow through the light bulb.

B. Kilowatt-hours Electricity use is generally measured in kilowatthours, the amount of energy used over time—that’s how the electric company figures your monthly bill. An ampere is a measure of electric charge, and a volt is a measure of electric potential difference

C. Brazil The Rio-Madeira HVDC (high voltage direct current) project will link two new hydropower plants in northwestern Brazil with São Paulo, the nation’s main economic hub. At a length of more than 2,500 kilometers (1,553 miles), it will be the longest electric transmission link in the world.

10.

C. 20 percent About 1.3 billion people, or 20 percent of the world’s population, are living without any access to electricity in 2012, according to the International Energy Agency.

What Do You Know About Electricity? Source : http://environment.nationalgeographic.com/environment/energy/great-energy-challenge/electricity-quiz/

Which of these scientific pioneers is credited with establishing the first electric power plant? A Benjamin Franklin B Michael Faraday C Thomas Edison D Nikola Tesla Why was an elephant electrocuted in New York in the early days of electric service? A By accident, when Edison’s power plant at Luna Park Zoo at Coney Island malfunctioned. B On purpose, in an effort by Edison to demonstrate the danger of high-voltage electricity. C In an experiment by Edison to test the principles of directcurrent transmission. D Edison defended himself against a rampage while stringing transmission wire at Luna Park Zoo.

Why isn’t electricity considered a primary energy source? A It is not as powerful as other energy sources. B It is not the most common energy source. C It was not the first energy source discovered. D It is produced by another energy source.

How does flipping a switch turn a light on? A It steps up the voltage. B It generates an electromagnetic field. C It opens the circuit. D It closes the circuit.

What units do electric companies generally use to measure how much power you use? A Amperes B Kilowatt-hours C Kilowatts D Volts

What devices on the electric grid allow the high-voltage electricity that travels long distances on power lines to be transmitted to homes and businesses at the lower voltages needed for applIances? A Transformers B Circuits C Turbogenerators D Synchrophasors Which of the following can cause disruptions to electricity service? A Sea salt B Squirrels C Sunspots D All of the above

Which of the following major power blackouts left the most people in the dark? A Brazil, November 2009 B United States and Canada, August 2003 C China, January and February 2008 D Western Europe, November 2006

In 2012, the world’s longest electric transmission line was under construction in what country? A China B Denmark C Brazil D South Africa

10 How much of the world’s population has no access to electricity? A 5 percent B 10 percent C 20 percent D 30 percent

Write down your score: Answer : On page 39

/10

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Just For Laughs

2012 PROGRAMMES SCHEDULE AS OF 2 Nov 2012 - UPCOMING EVENT Nov 2 2 3 3 3-4 4 4 4 5 5 5 5 5-9 6 6 7-8 7 9 - 10 9 10 10 11 11 - 12 12 - 18 12 - 25 13 14 15 16 16 17 17 - 18 18 19 20 21 22 23 27 28 29 - 30 30 30 - 4 Dec 1 3 10 - 13 22 - 23 2013 MARCH 31-Mar-13

EVENT Community Outreach Programme & Events Exhibition & MPAC Community Outreach Programme & Events Exhibition & MPAC Mobile Screening & Exhibition Community Outreach Programme & Events CA Exhibition & Fundraising (V) Hospital Support Group Mting & Fundraising Community Outreach Programme & Events Hospital Support Group Mting & Fundraising TALK & EXHIBITION (KKS) MAKNA Hospital Support Group Meeting MPAC Community Outreach Programme & Events Hospital Support Group Mting & Fundraising Community Outreach Programme & Events CA Exhibition & Fundraising (V) Mobile Screening & Exhibition Community Outreach Programme & Events Community Outreach Programme & Events Volunteer Support Group & Fundraising Fundraising (Zumba) &Events Community Outreach Programme & Events MPAC MPAC Community Outreach Programme & Events Community Outreach Programme & Events Community Outreach Programme & Events Community Outreach Programme & Events Volunteer Support Group & Fundraising CA Exhibition & Fundraising (V) CA Exhibition & Fundraising (V) Community Outreach Programme & Events Community Outreach Programme & Events Community Outreach Programme & Events Community Outreach Programme & Events Community Outreach Programme & Events Community Outreach Programme & Events MAKNA Cancer Research Award 2012 Hospital Support Group Mting & Fundraising Mobile Screening & Exhibition MPAC MPAC EVENT “Night Walk” by UITM Puncak Alam & Fundraising MAKNA Hospital Support Group Meeting Mobile Screening & Exhibition Interstates(V) Leader(Only) Meet & Fundraising

LOCATION Sarawak Cultural Village Kuching UNITEN Sri Aman Sarawak DEMC HOSPITAL Hypermarket @ Klang Valley Kampung Melugu Skim, Sri Aman SRK.Taman Kenari Kulim Kedah Klinik Pakar Hospital Sultan Abdul Halim Sg.petani Kedah Hospital Umum Sarawak Kuching Day Care, Hospital Ipoh Perak SMK Wangsa Melawati Hospital Raja Permaisuri Bainun Ipoh, Perak MINISTRY OF FINANCE Rumah Sumbang Sarikei Event Hospital Taiping Perak Taman Bintang,Bintangor Sarikei Malaysia Marine and Heavy Engineering Sdn. Bhd Karnival Kelip-Kelip, Kuala Selangor Kampung Sentosa Salim Sibu Rumah Merikan Rantau Panjang Sibu Hospital Tuanku Fauziah Kangar Perlis Banito Futsal Centre Kota Kinabalu Gereja Katolik Jugah Sibu DIGITAL MALL, PJ GIANT BANDAR KINRARA Kampung Tutus Hilir Mukah Kampung Telian Tengah Mukah Mukah Sarawak Rumah Along Batang Rajang Kapit Hospital Pulau Pinang Rumah Sewa Kampung Baru Kapit Tanjung Aru First Beach Kota Kinabalu Sabah Rumah Penghulu Mamat Nanga Gaat Kapit Hospital Kapit Balai Polis Sarikei Rumah Bada,Sg Kunang Bayong, Sri Aman Grand Margherita Hotel Kuching Hospital Umum Sarawak Kuching Academy of Sciences Malaysia. Day Care IPPT Kepala Batas Penang Putrajaya AUTOMOTIVE INDUSTRIES KSL CITY MALL LOCATION Zoo Negara Hulu Kelang, Ampang, Selangor Hospital Raja Permaisuri Bainun Ipoh, Perak Bentong, Pahang Cameron Highland Perak

EVENT MAKNA Founder’s Run

LOCATION Padang Merbok, Kuala Lumpur.

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Pusat Kanser PPUKM - MAKNA MONTHLY STATISTICS 2012 Report for Month End 30 September 2012

Tengku Ampuan Afzan Oncology Ward Wad Onkologi Tengku Ampuan Afzan Number of Patients Admitted at Oncology Ward Bilangan Kemasukan Pesakit di Wad Onkologi

Female Total

Bone Marrow Transplant Ward Wad Pemindahan Sum-Sum Tulang Number of Patients Admitted at BMT Ward Bilangan Kemasukan Pesakit di Wad BMT

Number of Patient Days at Oncology Ward Bilangan Pesakit di dalam Wad Onkologi

Month

Male

Female Total

Month

Male

January

February

January

579

January

March

February

675

February

April

March

732

March

May

April

668

April

June

May

598

May

July

June

498

June

August

July

460

July

September

107

August

368

August

September

438

September

October

November

December TOTAL

413

394

Month

Total Cases

October

November

807

December

TOTAL Radiotherapy Services Centre Pusat Perkhidmatan Radioterapi

Number of Patients/Cases at Radiotherapy Services Centre Bilangan Pesakit/Kes di Pusat Perkhidmatan Radioterapi

Month

January February March April May June July August September

Cases

(Patient Days)

No of New No of Treated No of Treated Patients

Patients

Cases

870

836

1029

875

785

975

829

784

712

Number of Transplant Patients Bilangan Pesakit Pemindahan Sum-Sum Tulang

Month

TOTAL

5016

Total

Month

Patients

(Patient Days)

January

February

March

April

May

111

June

July

August

September

114

November

December

402

451

7695

Total Cases

January

October

TOTAL

Number of Patient Days at BMT Ward Bilangan Pesakit di dalam Wad BMT

October

TOTAL

CONTINUE FROM PAGE 25

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