PROGRESS: SUPPORT SERVICES

A diagnosis of lymphoma or chronic lymphocytic leukemia (CLL) can bring about many different emotions and numerous questions, whether you are newly diagnosed or seeking help with long-term survivorship. The Foundation offers a wide range of support services for people with lymphoma and their loved ones, through the Lymphoma Research Foundation (LRF) Helpline. In 2022, trained Helpline staff provided individualized information on types of lymphoma, diagnostic tests, treatment options, potential side effects, and the latest in research to more than 10,000 patients and caregivers..

LRF Helpline

Throughout the past year and the entire pandemic, Helpline staff members provided a range of free services, including providing patients and caregivers with a list of questions to ask their healthcare team and conducting customized clinical trial searches through the LRF Clinical Trials Information Service. Through the Lymphoma Support Network that has a membership of over 7,000, both patients and caregivers were connected with others who have gone through a similar experience. Patients and caregivers were also connected with financial assistance resources and other referrals for existing unmet medical and financial needs.

Focus on Lymphoma Mobile App

Mobile health technology is becoming an increasingly popular way to empower patients to take charge of their health by offering an easy way to track symptoms, record appointments, log lab results, and access educational resources. LRF has been leading the way in mobile health technology since the launch of its first-of-its-kind mobile app, Focus on Lymphoma, in 2013. The award-winning app was designed to help patients and caregivers better understand and manage their disease through comprehensive information tailored to the user’s specific lymphoma subtype. It provides tools to help users record/take notes during doctor sessions and track medications, blood results, and symptoms. Building upon the success of Focus on Lymphoma, LRF updated its app this fall, providing a new look and enhanced tools to manage a lymphoma diagnosis. The new update makes it easier for app users to access their information securely across multiple devices through login capabilities and integration with Google. It also features several valuable tools, including a medication tracker, which provides a seamless way for users to track prescriptions through integration with the Food and Drug Administration’s (FDA) National Drug Code Directory, and individualized support through a direct connection to the LRF Helpline.