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Diabetes Research Institute Foundation Annual Report 2019

Page 1

powering progress

toward a cure

2019 annual report


Philanthropy powers the progress toward a cure

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singular goal to discover a biological cure for diabetes

8,495

donations large and small to DRIF in FY 2019

6,302

generous donors this year who share our mission

$250

119

researchers and staff collaborating across disciplines to find a cure

40

scientific projects underway at the DRI simultaneously to fast-track progress

24

medical centers in 12 countries collaborating with the DRI

million invested in leading-edge diabetes cure research since 1971

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3 areas for a

Biological C Site

Engineering a Home for Islets Investigate areas within the body that can house transplanted islets and support beneficial components for the cells’ long-term health and protection from the immune system.

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Sustain

Ensuring Islet Cell Survival Develop safe and effective immunotherapies to stop autoim munity and/or shield islets from attack without the need for harsh drugs.


How will we cure diabetes? By targeting the major research areas needed to restore insulin production.

Cure Supply

Creating More InsulinProducing Cells Create a reliable and plentiful supply of insulin-producing cells or regenerate a patient’s own islets.

As one of the largest and most comprehensive research centers in the world, the DRI houses teams of scientists, engineers, and clinicians with the expertise required to tackle this disease from many angles. This integrated approach, combining technology and medicine, drives the vision behind theDRI BioHub, a multidisciplinary, three-pronged strategy to cure diabetes. The BioHub strategy builds upon decades of cure-focused research and addresses critical challenges that stand in the way of a biological cure. It is based upon the premise that: • If we need to transplant insulin-producing islet cells to replace those that are destroyed by the immune system, then we must engineer a mini-pancreas in a Site within the body to house the cells. • I f we are to Sustain the survival of the transplanted islets, then they need protection from the immune system rejection, as well as from the autoimmune attack that initially caused the onset of the disease. • I f we can halt autoimmunity through safe and effective immunotherapies, then we may Sustain natural insulin production before all the insulin-producing cells are lost. • If we can halt autoimmunity, we may regenerate a person’s own insulin-producing cells, creating a natural Supply within the body. • If we need more insulin-producing cells for transplant, then we must create an unlimited Supply for millions of people with diabetes who can benefit. These three principal research avenues, collectively referred to as the “Three S’s” – Site, Sustain, Supply – are being pursued simultaneously by the DRI’s investigators and global collaborators in a waste-no-time approach.


Events The Diabetes Research Institute Foundation brings together a community that is passionately committed to our mission through our many fundraising events. Joining together to support the cure-focused work of the Diabetes Research Institute inspires all of us. We are deeply grateful to the countless people who led and supported these fun and exciting events.

Donaldson Organization Golf Outing

Empire Ball

More than 250 players came together at Winged Foot Golf Club in Mamaroneck, NY, for a friendly competition of golf on this legendary course. A lively cocktail reception, dinner and awards ceremony, mixed with a live auction and prize drawings, capped the successful day.

The annual Empire Ball, presented by the Real Estate Division of the Diabetes Research Institute Foundation, took place at The Grand Hyatt Hotel and honored three of the industry’s most esteemed individuals. That evening, several of New York City’s most iconic towers glowed in blue, the internationally-recognized color of diabetes, to #LightTheSkyforDRI.

Haute Tea Bountiful florals and colorful hats adorned guests at the Young Society of Love and Hope’s 7th annual Haute Tea ladies’ luncheon at the St. Regis Bal Harbour. Emceed by CBS4’s Entertainment and Lifestyle Reporter Lisa Petrillo, the glamourous affair honored a long-standing family of supporters.

All In For A Cure “All In for a Cure” Texas Hold‘em Poker Tournament at The Grand Havana Room, brought together more than 200 attendees, who enjoyed a night of fine wines, spirits and cigars, while taking in breathtaking views of Manhattan.

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A Gift Of Love…A Gift Of Hope Organized by the ladies of the Palm Beach Auxiliary, more than 300 guests flocked to the Polo Club in Boca Raton, FL, for their annual luncheon and card party that kicked off with a unique boutique featuring tons of fashionable items.

Carnival For A Cure Children of all ages (including adults!) had a blast at Dave & Buster’s in Westbury, NY, with state-ofthe-art arcade games, mouthwatering treats, live music, a delicious lunch buffet and more. The fun event also featured exciting prize drawings, a silent auction and a 50/50 grand prize drawing.


Donaldson Organization Golf Outing

Haute Tea

All In for a Cure

A Gift of Love...A Gift of Hope

Empire Ball

Carnival for a Cure


Love and Hope High Rollers

DREAMS in the City

Labor of Love Weekend

Out of the Kitchen

Don Strock Diabetes Golf Classic


Love And Hope High Rollers Night The Love and Hope legacy continued with High Rollers Night at the Eden Roc Hotel on Miami Beach. Filled with the love of family and friends together with the hope of finding a cure, the Love and Hope Committee hosted a fun evening of dinner, dancing and lots of luck!

Out Of The Kitchen Not your average meat and potatoes meal, Out of the Kitchen tempted the taste buds of 300 discriminating and daring gastronomers. The hottest chefs in Miami cooked a three-course dinner tableside at the St. Regis Bal Harbour for this exploration of flavors and ingredients.

DREAMS In The City At this chic soiree, guests from New York City’s business, social and celebrity circles come together at Cipriani for a sumptuous dinner, fabulous entertainment, specialty cocktails, and highly rated wines by Wine Spectator, an exciting silent auction and more to raise funds toward a cure.

Don Strock Diabetes Golf Classic Players of all levels plus many Miami Dolphins and NFL alums hit the green for the 36th Annual Don Strock Diabetes Golf Classic, one of the longest running celebrity/amateur charity golf tournaments in the community. The continued support of NFL alumni and the South Florida produce and shipping industries make the annual tournament a great success.

Labor Of Love Weekend North America’s Building Trades Unions (NABTU), the DRI Foundation’s most dedicated partner and largest contributor, held its annual Labor of Love Weekend in Philadelphia. The men and women of the Unions participated in many activities, like golf, bowling, Texas Hold’em and more as part of their ongoing commitment to support the DRI’s research.

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Team DRI Team DRI are people of all ages from all over the world who take on independent fundraising events and projects to help support the cure-focused work of the DRI’s scientists. They rally family, friends, colleagues, businesses large and small, schools, and more. We thank all of them for their courage, creativity and commitment to a cure!

Rod Gilbert DRI Golf Classic

Night Out For A Cure

This annual day on the course honors the memory of Anthony John Vitale and Helaine Shari White and brings together a community committed to finding a cure for diabetes. New York Rangers legend Rod Gilbert is perennially on hand for the tournament and evening activities at Pine Hollow Country Club in East Norwich, NY.

It’s adult time (for the DRI)! More than 400 attendees enjoyed a memorable Night Out for a Cure with food, drinks and an amazing performance by the Alpaca Gnomes at The Warehouse @ The Fairfield Theatre Company in Fairfield, CT.

Ride For The DRI/Tour Of The Hamptons Team DRI riders joined the Massapequa Park Bicycle Club - Tour of the Hamptons Ride, pedaling through picturesque farmlands, beaches, and historic towns in the east end of Long Island, NY, while raising much-needed funds for the DRI.

C3: Collaborate, Celebrate, Cure Held on November 14, World Diabetes Day, the 2nd Annual C3: Collaborate, Celebrate, Cure event surpassed its fundraising goal for the second year. Members of the insurance industry, their friends and business associates came together at Capitale in NYC for a night of entertainment, an awards ceremony, live auction and more.

The Pep Walk & Family Fun Day Sponsored by Walgreens, the walkathon and health fair included music, bounce houses, face painting, consultations with Walgreens pharmacists and more.

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Shell Key West Challenge Since its inception in 1989, the annual Shell Key West Challenge has brought together Shell employees, jobbers, and vendors for three days of outstanding fishing and fun off the coast of Key West. Each year, the tournament raises thousands of dollars for the DRI.

Cooking For A Cure The Crescent Beach Club in Bayville, NY, was alive and “cooking” as guests enjoyed a dinner, dancing, prize drawings and more while raising funds for the DRI. The event honored The View Grill Executive Chef Jeanine DiMenna, who has hosted this intimate event at her restaurant since 2004.

Sportsmen For Charity Head for the hills! Shot gun and sporting clay enthusiasts tested their skills at this exciting event, which included a live auction and sweepstakes featuring some great gifts at the Pawling Mountain Club in Pawling, NY.


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Research Funding is Critical The mission of the Diabetes Research Institute Foundation — to provide the DRI with the funding necessary to cure diabetes now — is a testament to the belief that tomorrow is not soon enough to cure this disease. Funding from the DRIF — your donations — is critical for ensuring that DRI scientists can jump-start new ideas, leverage philanthropic dollars into significant grant awards, and continue innovative research projects that remain focused on a cure.

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Financial Summary Diabetes Research Institute Foundation Statement of Activities for the Year ended June 30, 2019

Through the support of private philanthropy, the Diabetes Research Institute Foundation has funded six chairs totaling almost $15 million.

Support and Revenue

The J. Enloe and Eugenia J. Dodson Chair in Diabetes Research

Contributions Reimbursement Contracts Special Events, net of expenses Investment Income Total Support and Revenue

4,370,517 222,516 3,399,614 (939,805) $8,932,452

Total Program Services Support Services Administration and General Fundraising

Martin Kleiman Endowed Investigatorship Daniel H. Mintz Visiting Professorship

6,060,163 777,514 $6,837,677 1,859,581 1,989,300

Total Support Services

$6,837,677

Change in Net Assets

(1,754,106)

Net Assets, Begining of Year

28,847,423

Net Assets, End of Year

Mary Lou Held Chair for Diabetes Research

Ricordi Family Chair in Transplant Immunobiology

Expenses and Fund Balances Program Services Research (provided to the Diabetes Research Institute) Community Education

Stacy Joy Goodman Chair in Diabetes Research

$27,093,317

Fundraising Percentage Fundraising Expenses as a Percentage of Support and Revenue

22.3%

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National Board Chairman

William J. Fishlinger

Immediate Past Chairman Harold G. Doran, Jr.

Vice Chairs John C. Doscas Bonnie Inserra

Treasurer

Richard Tonkinson

Secretary

Bruce A. Siegel

Chief Executive Officer Sean Kramer

Directors

Marlene Berg Ronald Maurice Darling, Jr. Piero Gandini Marc S. Goldfarb Esther Goodman Marc S. Goodman Lindsey Inserra Eleanor Kosow Sandra Levy Sean F. McGarvey Ramon Poo Charles Rizzo Stephen Rizzo Ricardo Salmon Tom Santiago David Sherr Jill Viner Bruce Waller

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Regional Board FLORIDA REGION

NORTHEAST REGION

Chairman

Chairman

Directors

Executive Committee

Sari Addicott Crystal Blaylock John Calles Florence Elbaz Bruce Fishbein Sabrina Gallo Amy Greenwald Scott Greenwald Andria Holtz Steve Klein Tammy Klein Arianna Lamosa Sandra Levy* Rosa Schechter Marco Selva James Sensale Miriam Sensale Doug Tannehill Jim Tomsula Julie Tomsula Richard P. Tonkinson*

William J. Fishlinger* Marc S. Goldfarb* Barbara Hatz Bonnie Inserra* Meryl R. Lieberman Allan L. Pashcow Charles Rizzo* Bruce A. Siegel*

Barbara Singer

John Carrion

Directors Samantha Shanken Baker Alexandra Calame Diane L. Cohen Delia DeRiggi-Whitton Peter L. DiCapua Douglas R. Donaldson Lindsey Inserra* Jonathan Tepper Bruce Waller* Roberta Waller Wendy Waller

* Also member of National Board of Directors

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DRI Foundation Staff Sean Kramer, MBA CEO Kelly Dunphy Chief Operating Officer Bianca Gebelin Chief Development Officer Tom Karlya Senior Vice President, Philanthropy and Union Liaison Jill Shapiro Miller Senior Vice President, Leadership Gifts and DRI Liaison

Dena Prior Regional Events Associate Director, Florida

Sarah Mehan Leadership Gifts & DRI Liaison Associate

Jill Salter Associate Director, Philanthropy Operations

Yashie Vindell Events Associate

Jessica DeBlois Philanthropy Officer Nicole Otto Philanthropy Officer DeirdrĂŠ Hector Regional Events Manager, Northeast

Lori Weintraub, APR Senior Vice President, Marketing and Donor Communications

Oneida Osuna Finance Manager

Jennifer Joyce National Director, Philanthropy

Karen Paraboo Operations Manager

Samantha Davis Director of Finance

Natalia Cruz Philanthropy Associate

Shaby Rosales Director, Human Resources

Marisol McKay Finance Associate

Lauren Schreier Senior Director, Marketing and Donor Communications Amy Epstein Regional Events Director, Northeast Sheryl Sulkin Regional Events Director, Florida

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Gabrielle Zunde Philanthropy Associate Shontanese Simmons Philanthropy Assistant & Office Admin Myleen Rivera Data Entry Clerk


Honorary Board Lynne and Martin Baron Diane and Bernard Beber, M.D. Barbara Berman Juan Elias Calles Ambassador Paul Cejas John Drury Annie Esformes Linda and Jay Finkelstein Bernard Fogel, M.D. Jeanine Forman Ham Samuel J. Fox Lisa and Mark M. Freedman C. Thomas Gallagher Douglas Gallagher Gladys and Martin Gelb Linda and Barry Gibb Dwina Gibb Yvonne Gibb Lawrence E. Glick Jay N. Goldberg Bella Goldstein Jane Goodman Senator Bob Graham Lawrence Howard, M.D. Fana and Abel Holtz Lola Jacobson Martin P. Klein Robert Leichtung Charlotte Milgram Martha Mishcon Marge Kleiman Mintz Stephen Muss Judy and John P. Newell, III Edward James Olmos Michelle Robinson Blanche Rosenblatt Donna Shalala Kathy Simkins Serena Simkins Oscar Sotolongo Ferne and Daniel Toccin Dottie and Jack S. Weiss Lenny Wolfe

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National Office/Florida Region 200 S. Park Road, Suite 100 Hollywood, FL 33021 T: (800) 321-3437 P: (954) 964-4040 F: (954) 964-7036 New York Office/Northeast Region 259 West 30th Street, Suite 402 New York, NY 10001 P: (212) 888-2217 F: (212) 888-2219 The Diabetes Research Institute Foundation is an independent 501(c)(3) not-for-profit corporation. DiabetesResearch.org


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