ASBESTOS AWARENESS AND PREVENTION CONFERENCE
“Where Knowledge and Action Unite” Washington, D.C.
April 7 - 9, 2017
Conference Event Schedule FRIDAY, April 7
SATURDAY, April 8
Group Potomac River Dinner Cruise 5:00 PM – 9:00 PM
8:00 AM – 5:00 PM "Meet the Artists" Signature Cocktail Reception & Awards Dinner 6:00 PM – 9:00 PM
SUNDAY, April 9
Unity and Remembrance Brunch 9:30 AM – 11:30 AM
Dear Speakers, Honorees, Sponsors, Guests, and Volunteers: On behalf of the Asbestos Disease Awareness Organization (ADAO), I am thrilled to welcome you to our 13th Annual International Asbestos Awareness and Prevention Conference. This year’s conference, “Where Knowledge and Action Unite,” brings together distinguished domestic and international experts and asbestos victims to drive asbestos awareness, prevent asbestos exposure and asbestos-related diseases, and advocate for a ban on asbestos. ADAO is excited to welcome the many speakers, honorees, sponsors, guests, and volunteers to this year’s conference! Since our inception in 2004, we have worked together to strengthen our education, community, and advocacy initiatives, forming a growing base of global support. 2017 conference topics include legislative advancements, prevention techniques, and global advocacy. These topics help our community ensure that exposure to asbestos will not continue to rob the more than 15,000 Americans and 194,000 global citizens of their lives each year. We are excited to roll out the red carpet for our two Keynote Speakers: David McCumber, awarding-winning investigative journalist and c o - author of “An Air that Kills: How the Asbestos Poisoning of Libby, Montana Uncovered a National Scandal” and Jordan Zevon, ADAO's National Spokesperson and Celebrity Board CoChair. We're also thrilled to debut our "Meet the Artists” Signature Cocktail Reception and Awards Dinner, where you'll meet several incredible artists using their talents to raise asbestos awareness. ADAO greets nearly 40 speakers from around the world, countless workers, individuals, family members, and organizations affected by asbestos. This conference would not be possible without the work of so many wonderful and dedicated, volunteers, speakers, and honorees, m a n y o f w h o m a r e here this weekend, in addition to our esteemed Science and Prevention Advisory Boards for their unfailing commitment, our tireless volunteers and State Leadership Team Regional Directors, and our generous sponsors, who allow us to be a voice at the legislative table through their support. Let me also express my sincere appreciation to all those who have selflessly given time, expertise, and support not only for this conference but throughout the year while ADAO implements numerous initiatives. You are truly saving and changing the lives of victims around the world. Our 13th anniversary is a time to celebrate what we have accomplished. It is also a solemn reminder of the dear friends and family we have lost and the fact that asbestos is lethal yet still legal in the U.S. We strongly encourage Congress and leaders worldwide to promptly enact a complete ban on asbestos. That is the only way we can hope to eliminate this inexcusable epidemic and senseless death caused by this deadly substance. Thank you again for joining us today. We are a family and this conference is yet another strong reaffirmation that together, we make change happen. In unity,
Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization
"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Asbestos Awareness and Prevention Conference Agenda FRIDAY, April 7, 2017 2:00 PM - 4:00 PM 4:45 PM - 9 PM
ADAO Leadership Strategic Planning Meetings (By Invitation Only) Potomac River Dinner Cruise
SATURDAY, April 8, 2017: ADAO Conference Opening Remarks 8:00 - 8:30 AM
Registration and Continental Breakfast
8:30 - 8:40 AM
Welcome and Opening Remarks: Linda Reinstein, ADAO President and CEO
8:40 - 8:55 AM
International Messages of Support
Session I - Progress and Challenges from the Frontline (Moderator: Brad Black, MD) 8:55 - 9:05 AM
Hilarie Kearns, Mesothelioma Warrior, "Staying Positive through Setbacks"
9:05 - 9:15 AM
Arthur L. Frank, MD, PhD; Professor of Public Health and Chair Emeritus of the Dept. of Environmental and Occupational Health at the Drexel University School of Public Health, "Anti-Asbestos Work in Developing Nations" Linda Reinstein, ADAO President/CEO, "Progress and Challenges in Changing Political Times"
9:15 - 9:25 AM 9:25 - 9:35 AM 9:35 - 9:50 AM
Richard Lemen, PhD, MSPH; Assistant U.S. Surgeon General (Ret.) and Rear Admiral, USPHS (Ret.), "Mesothelioma, Today, Tomorrow, & Neverâ€? Q&A
Session II - Medical Advancements: Diagnosing and Treating Mesothelioma and Other Asbestos-Related Diseases (Moderator: Raja Flores, MD) 9:50 - 10:00 AM Mike Mattmuller, Mesothelioma Warrior and ADAO State Leadership Team Eastern CoRegional Director, "Fighting for the Future" 10:00 - 10:15 AM Michael R. Harbut, MD, MPH, FCCP; Chief of the Center for Occupational and Clinical Assistant Professor of Environmental Medicine at Wayne State University School of Medicine, "Diagnosing and Treating Asbestos-Related Diseases" 10:15 - 10:30 AM Steven Markowitz, MD, DrPH; Director of the Barry Commoner Center for Health and the Environment at Queens College, City University of New York (CUNY), "Saving Lives with Low-Dose CT Screening" 10:30 - 10:45 AM Edward Emmett, MD; Professor and Director of Academic Programs in Occupational Medicine, University of Pennsylvania School of Medicine, "Disease Prevention: Advancements and Challenges in Outreach and Surveillance" Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
10:45 - 11:00 AM 11:00 - 11:15 AM 11:15 - 11:30 AM 11:30 - 12:00 PM
Marie-Claude Jaurand, PhD; Director of Research at the Institut National de la Santé et de la Recherche Médicale (INSERM), "Developing Researches and their Incidence in Diagnosing and Treating" Tracy McNew, LPN, MPA, Center for Asbestos and Related Disease (CARD), Libby, MT, "Navigating Healthcare and Maintaining Quality of Life" Q&A
12:00 - 12:10 PM
Keynote Speaker: David McCumber, Investigative Journalist and Author of "An Air That Kills," "Death and Duplicity: Why We All Must Keep Fighting to Ban Asbestos" Speakers Group Picture
12:00 - 1:15 PM
Session III - Prevention: What Is It? Where Is It? What Do I Do? (Moderator: Brent Kynoch, President of Kynoch Environmental Management, US) 1:15 - 1:25 PM Quincy Jones, Comedian and Mesothelioma Warrior, "Asbestos is Legal? You Must Be Joking…" 1:25 - 1:40 PM Claire Deacon, PhD; South Africa Occupational Safety and Health, "Preventing Legacy Exposures" 1:40 - 1:55 PM Deirdre Fitzgerald, Inspector II, Spokane Regional Clean Air Agency, "Preserving the Air We Share: Asbestos Enforcement at a Local Level" 1:55 - 2:10 PM Michael Borowick: Assistant Secretary, Australian Trade Union Council (ACTU), "Prevention after an Asbestos Ban" 2:10 - 2:25 PM Mark Catlin, Occupational Health and Safety Director for the Service Employees International Union (SEIU), "Making TSCA Work for Workers and Families" 2:25 - 2:40 PM Peg Seminario, Safety and Health Director, AFL-CIO,"Worker Prevention Programs, Policy, and the Future" 2:40 - 2:55 PM Q&A 2:55 - 3:10 PM
Session IV - Education and Advocacy: Global Ban Asbestos Action (Moderator: Celeste Monforton, DrPH, MPH) 3:10 - 3:20 PM Domani Tripam, US; Mesothelioma Warrior, "Be the Hero You Wish to See in the World" 3:20 - 3:35 PM
4:35 - 4:50 PM
Hassan Yussuff, Canada; President of the Canadian Labour Council (CAC), "Canadian Labour's Efforts in Achieving a Federal Ban" Barry Castleman, ScD, US; Author of the “Asbestos: Medical and Legal Aspects," "Exposure Risk Beyond Factory Walls" Fernanda Giannasi, Brazil; founder of the Brazilian Association of People Exposed to Asbestos (ABREA), "Brazil: Making a Case for the Polluter-Pays Principle" Carmen Lima, Portugal; Waste Information Centre of Quercus, "Portugal: Safety, Management, and Policy" Barry Robson, Australia (VIA SKYPE); President of the Asbestos Disease Foundation of Australia (ADFA), “Closing Message, We are Stronger Together” Q&A
4:50 - 5:00 PM
3:35 - 3:50 PM 3:50- 4:05 PM 4:05 - 4:20 PM 4:20 - 4:35 PM
Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
SATURDAY, APRIL 8, 2017: Awards and Recognition Dinner: 6:00 – 9:00 PM 6:00 - 6:30 PM 6:30 - 9:00 PM
Meet the Artists Signature Cocktail Reception: Earl Dotter, Quincy Jones, Paolo Monico, David McCumber, Tony Rich, and Jordan Zevon Awards Dinner with Performance by Jordan Zevon, ADAO Spokesperson and Musician
The Dioguardi Family, 2017 Alan Reinstein Award
The Mattmuller Family, 2017 Alan Reinstein Award
Linda and Emily Reinstein
Raja Flores, MD, 2017 Dr. Irving Selikoff Lifetime Achievement Award
Richard Lemen, PhD, MSPH; Assistant Surgeon General (Ret.) and Rear Admiral, USPHS (Ret.) Marie-Claude Jaurand, PhD, 2017 Dr. Irving Selikoff Lifetime Achievement Award
Brad Black, MD
Bruce Robinson, MD, 2017 Dr. Irving Selikoff Lifetime Achievement Award
Michael R. Harbut, MD, MPH, FCCP
U.S. Senator Jon Tester, 2017 Tribute of Hope Award
Brad Black, MD
Safer Chemicals, Healthy Families, 2017 Tribute of Inspiration Award
Arthur L. Frank, MD, PhD
Associação Brasileira Dos Expostos Ao Amianto (ABREA), 2017 Tribute of Unity Award
Barry Castleman, ScD
Quincy Jones, 2017 Warren Zevon “Keep Me in Your Heart” Tribute Award
Jordan Zevon, ADAO Spokesperson and Musician
Memorial Tribute to Andrew Schneider - Accepted by Kathy Best
2017 INDIVIDUAL DONORS Diamond Donor
Missy Dorsey Bowles
Patti Brozek and Tony Rich
Daniel Cunningham Memorial Donations Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
The Kearns Family
The Neuenshwander Family
The Von St. James Family
The Mattmuller Family
The Fitzgerald Family
Paul & Yvonne Hall
2017 SPONSORSHIP RECOGNITION Platinum Sponsor
Motley Rice LLC; Accepted by Anne Kearse and Nate Finch
Simmons Hanly Conroy, LLC; Accepted by Perry Browder
Simon Greenstone Panatier Bartlett, P.C.; Accepted by Erin Nowell
Early, Lucarelli, Sweeney & Meisenkothen; Accepted by Jennifer Lucarelli
SUNDAY, APRIL 9, 2017: Unity and Remembrance Brunch : 9:30 â€“ 11:30 AM (Moderator: Ellen Costa, 2017 ADAO Conference Coordinator, Strategy Consultant at Wells Fargo, US) Linda Reinstein, ADAO CEO/President, US Ellen Costa, ADAO Board Member Keynote Speaker: Jordan Zevon, "Making Messages Sing with Art and Advocacy" Paolo Monico, "Putting a Spotlight on Asbestos Awareness through Film" and Screening of "The Mother" Jill Cagle, Mesothelioma Widow and Singer, Performing "The Climb" by Miley Cyrus Candle Lighting, Ellen Tunkelrott, ADAO Board Member Program Concludes
Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees
Brad Black, MD, PhD has been the Medical Director and CEO for the Center for Asbestos and Related Disease (CARD Clinic) in Libby, Montana since 2000. He has been a physician in the Libby medical community since 1977 and became the Lincoln County Health Officer in 1984. Beginning in 1999, he worked closely with Dr. Alan Whitehouse, a Spokane, WA pulmonologist, for 9 years. Since 2000, Dr. Black has had the opportunity to care for thousands of patients and this longitudinal observation of progressive pleural fibrosis has led to a clear characterization of Libby amphibole asbestos disease. CARD continues to provide asbestos health screening and care to a population with significant Libby Amphibole exposure and related diseases. In 2008 he presented at the National Institute of Health/National Cancer Institute about the progressive pleural fibrosis and mesothelioma identified in those exposed to Libby amphibole asbestos. He was instrumental in initiating research on Libby amphibole asbestos health effects. His work has expanded into research leading to an association with pulmonologists and occupational medicine specialists from multiple academic centers around the U.S. In 2010, Dr. Black became an adjunct professor at Mount Sinai School of Medicine in New York City. He has collaborated on a number of professional journal publications, and most recently he participated in a National Institute of Environmental Health Sciences working group that developed a publication on the non- neoplastic, pleural endpoints. Today, Dr. Black continues his dedicated efforts to providing excellent healthcare, outreach, and research for asbestos related diseases. Brazilian Association of the Asbestos-Exposed (ABREA), 2017 Tribute of Unity Award recipient, was started in SĂŁo Paulo state in 1995 by workers from Eternit / Osasco and auto parts industry named thermoid. ABREA aims to give visibility for the asbestos problem, to carry through medical examinations in the exposed ones, to help the victims and families getting compensation, to inform to the population and the consumers about the risks of asbestos exposure and safer substitutes available, and to fight for a comprehensive asbestos ban in Brazil. ABREA is nowadays organized in 5 states of the Brazilian federation and represents thousands of victims in several class actions as well as acting as amicus curiae in several legal actions at the highest civil, constitutional and Labour Courts in the country. ABREA reached the status of a non profit, non governmental organization as well as a public interest group in the 3 levels (national, state of SĂŁo Paulo and in Osasco municipality).
Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Michael Borowick was re-elected as Assistant Secretary of the Australian Trade Unions Council (ACTU) at the ACTU Congress in May 2015, a position he has held since 2010. Previously Michael was an official of The Australian Workers’ Union (AWU) for 20 years, where he was the Victorian Branch Assistant Secretary and a member of the National Executive. Michael began his working life as an electrician, starting his apprenticeship in the building and construction industry. During his time at the AWU, Michael’s strong union values were integral to assisting members from various industries including steel, glass, metal, manufacturing, carpentry, joinery, building, construction, plastics and chemicals. As ACTU Assistant Secretary, Michael oversees all Occupational Health and Safety and Workers’ Compensation matters to ensure all workers have access to safe and healthy workplaces. Michael also represents the ACTU as a Director on the HESTA board, the industry super fund for Health and Community Services, as a member of the National Workplace Relations Consultative Council, Safe Work Australia, Safety Rehabilitation and Compensation Commission, Defence Reserves Support Council and Asbestos Safety and Eradication Council. Jill Cagle is the surviving spouse of Mesothelioma Warrior Robbie Cagle, who lost his 6-year battle with Peritoneal Mesothelioma on 9-11-11 at the age of 46. She is a mother and now grandmother of 3. She is a Christian and her faith in God truly sustains her. She is the lead singer in the Band Backstreet and plays the Fiddle. She makes primitive crafts and candles and she loves to ride her Harley and feel the wind in her hair. She has been associated with ADAO since 2007 and has now started an annual Motorcycle Ride, "Ridin the Wind with Rob" which includes a 110 mile ride, dinner, silent auction, raffles and t-shirt sales to raise funds for awareness and ultimately a CURE of Mesothelioma. Jill and Rob marched on Capitol Hill in 2010 to help get Illinois to sign the National Asbestos Awareness Day Bill and also met with the DOD. She is committed to doing whatever it takes to get this killer 100 % banned. She is truly honored and proud to be a part of this organization. Barry Castleman, ScD is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US on the history of asbestos as a public health problem and the reasons for failure to properly control asbestos hazards. Dr. Castleman has spent the past 40 years working on asbestos as a public health problem.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Mark Catlin is the Occupational Health and Safety Director for the Service Employees International Union (SEIU), representing two million healthcare, service and public workers in the United States and Canada. An industrial hygienist and health and safety activist since 1981, he has been involved with asbestos issues over his entire career, from investigating asbestos problems at work sites, schools and homes to conducting EPA and OSHA asbestos training for thousands of workers and managers. Mark has advocated for strong public policies to eliminate asbestos use and exposure. Ellen Costa has been a volunteer with ADAO since 2012 and is honored to be of service to this very special organization; its mission, founders and supporters. Professionally, she has been in the financial services industry for over 25 years and has served firms in marketing, communications, product management and strategic planning. Her current position at Wells Fargo Home Lending is as a strategy consultant in the financial reform regulatory environment. Inspired by Linda Reinstein’s commitment and passion in making change, influencing political policy and advocating for practical issues on a global level, lead her to involvement with the organization. The awareness, family support and leadership ADAO provides in creating the change needed in this world is truly powerful. Most importantly, she believes in Linda Reinstein and is truly privileged to serve the mission of ADAO. Claire Deacon (South Africa Occupational Safety & Health) has practiced on the field of health and safety since 1982. claire deacon and associates (cd&a) commenced in 2008, trading under OCCUMED cc. Claire obtained a General Nursing Diploma at Groote Schuur Hospital and qualified in Occupational Health at the University of Stellenbosch. She has completed various degrees: a B.Tech in Occupational Health at Peninsula Technikon; BSc Med] in Ergonomics at the University of Cape Town, and a Masters in Nursing at the University of Port Elizabeth She has completed a PhD Construction Management at NMMU, entitled ‘The Effect of the integration of Procurement, Design and Construction in Health and Safety’. Claire is a Professional Construction H&S Agent with the South African Council for Project and Construction Management Professions (SACPCMP) (CHSA 010/2013), one of the first and few women currently practicing in the field with this status. Furthermore, Claire serves as a member of the 4th term Council member appointed by the Minister of Public Works to represent construction H&S in the SACPCMP. In this role, a number of committees and responsibilities are held and participated in. Claire is registered with the South African Nursing Council; is a member of the local Professional Society, the Chartered Institute of Building [CIOB]; and the Ergonomics Society of South Africa [ESSA]. Her present interests are research and development in Occupational Health, construction H&S, family and friends, and attempting to balance work and life. Many research papers have been presented and published nationally and internationally. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees The Dioguardi Family is a 2017 Alan Reinstein Award recipient. After being faced with a death sentence when their patriarch David was diagnosed with mesothelioma in 2011, The Dioguardi Family sought information and advice to aid in their SuperDad's battle. After much research they soon realized that raising awareness and supporting organizations that do so, such as ADAO, was critical to prevention. As part of their continued efforts, both personally and via their non-profit Mesothelioma Heroes Foundation, they have held two neighborhood awareness and fundraising events, participated in ADAO conferences and the Miles for Meso 5K and started a local Mesothelioma Support Group. In conjunction with ADAO, they continue to educate others about their risks of exposure and work towards a complete ban of asbestos. Earl Dotter began photographing coal miners in 1969, then the most dangerous job in America. After which, he focused on other hazardous occupations in the USA. After 30 years of documentation he created the exhibit and book, THE QUIET SICKNESS: A Photographic Chronicle of Hazardous Work in America. He has been a Visiting Scholar at the Harvard School of Public Health since his appointment in 1999. In the year 2000, Dotter received an Alicia Patterson Foundation Fellowship to document commercial fishing. It had become our nation’s most dangerous trade. After 9/11, he photographed the rescue recovery effort at Ground Zero. For that exhibit work he received APHA’s Alice Hamilton Award. Currently, Dotter is following hazardous jobs new immigrants perform in the USA. Edward Emmett, MD graduated in Medicine at the University of Sydney, has an MS degree in Environmental Heath from the University of Cincinnati, and is a specialist in Occupational and Environmental Medicine. He is Professor and Director of Academic Programs in Occupational Medicine at the University of Pennsylvania, Perelman School of Medicine in Philadelphia. From 1988 to 1996 he was Chief Executive of the National Occupational Health and Safety Commission (Worksafe Australia) during which time national standards for asbestos were developed. Recently his particular research focus has been the impact of environmental hazards on communities; his work with communities exposed to the chemical PFOA received the international Community Campus Partnership for Health Award in 2008. As Director of the Community Engagement Core for the Superfund Research and Training Center directed at exposures leading to asbestos-related diseases, he is researching communities including Ambler Pennsylvania, once the world’s largest asbestos-cement manufacturing site.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Deirdre Fitzgerald is an Inspector II with the Spokane Regional Clean Air Agency, where she has worked for the last 15 years. During her time at the Agency she has worked on various programs, including asbestos rule development and implementation. As the Agency’s lead inspector for asbestos, she investigates asbestos complaints and conducts routine inspections of both abatement and general contractors working in Spokane Clean Air’s jurisdiction. Deirdre holds a Masters in Industrial Hygiene (1996) & Bachelor of Science in Public Policy (1998) from Montana Tech. She is a certified AHERA Building Inspector and a certified Asbestos Supervisor & Project Designer. Raja Flores, MD, 2017 Dr. Irving Selikoff Lifetime Achievement Award recipient, is a recognized leader in the field of thoracic surgery for his pioneering efforts in the treatment of mesothelioma. Dr. Flores’ research interests include numerous past projects relating to the multimodality management of malignant pleural mesothelioma. He helped pioneer the use of intraoperative chemotherapy for mesothelioma, and led a multi-center trial designed to improve patient outcomes. He changed the surgical management of pleural mesothelioma cancer with a landmark study comparing extrapleural pneumonectomy and pleurectomy/decortication. An expert in his field, Dr. Flores has appeared on many national and local television news reports to discuss mesothelioma. With over 150 related publications to date, his energies and commitment to the plight of mesothelioma patients remains paramount. Arthur L. Frank, PhD, MD is a physician board certified in both internal medicine and occupational medicine and currently serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Health at the Drexel University School of Public Health in Philadelphia. He is also a Professor of Medicine (Pulmonary) at the Drexel College of Medicine. He also holds a position at Drexel as Professor of Civil, Architectural and Environmental Engineering. A life-long academic, Dr. Frank has previously taught at Mount Sinai, the University of Kentucky and in the University of Texas System. He has served many governmental agencies in the US and has carried out research and has been a governmental advisor internationally. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published a great deal of work on the hazards of asbestos, and clinically cared for asbestos affected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material. His research interests have been in the areas of occupational cancers and occupational lung diseases, as well as agricultural safety and health. For thirty-seven years he held a commission in the U S Public Health Service (active and inactive) and served on active duty both at the NIH and at NIOSH. Arthur is the ADAO Science Advisory Board Co-Chair.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Fernanda Giannasi is a Civil and Safety Engineer and ex-Labor Inspector for the Ministry of Labor and Employment for 30 years, currently retired and acting as an expert advisor for the Labour Prosecutors (Federal Labour Public Ministry) as well the asbestos victims’ solicitors. She is the coordinator of the Virtual Citizen Ban Asbestos Network for Latin America, founder of the Brazilian Association of People Exposed to Asbestos (ABREA) and Fellow of the Collegium Ramazzini. She serves as an expert witness in judicial cases related to asbestos, nuclear and other toxic chemicals as Mercury, POP´s (Persistent Organic Pollutants). She also led thousands of workers who have filed lawsuits against the asbestos industry. In charge of a Federal Labor Inspector, she staunchly defended the public interest on workers’ safety and health and was pressured by the asbestos lobby in Brazil and Canada, and endured all kind of pressures, harassments including death threats, offensive campaigns and criminal charges by her detractors. Despite of these, she has been awarded in Brazil and internationally in Canada (Ray Sentes Award), USA by the American Public Health Association (APHA) and the International Society for Environmental Epidemiology (ISEE), and Japan by the Tajiri Muneaki Memorial Fund. She was recently awarded by both the State of São Paulo Appeal Court and the High/Supreme Labour Court with the Judiciary Order of Merit. She is internationally well known and highly respected for her proficient and perseverant campaigning to save lives from asbestos. Fernanda Giannasi is the personification of the fight against asbestos in Brazil. Not for nothing is she called ‘The Brockovich of Brazil’. Michael R. Harbut, MD, MPH, FCCP is Chief of the Center for Occupational and Environmental Medicine: Clinical Assistant Professor, Wayne State University, School of Medicine, Detroit, Michigan. An internationally known expert in the diagnosis and treatment of environmental and workplace diseases, Dr. Harbut has been named co-Director of the National Center for Vermiculite and Asbestos Related Cancers. He is the coauthor of the American Thoracic Society’s 2004 Recommendations for the Diagnosis and Treatment of Non-Malignant Disease Caused by Asbestos Exposure. Dr. Harbut is a past chair of the occupational and environmental health section of the American College of Chest Physicians, and has served on the Board of Directors of the Mesothelioma Applied Research Foundation. Dr. Harbut brings his expertise to address the need for early diagnosis and aggressive treatment of asbestos related diseases Marie-Claude Jaurand, PhD, 2017 Dr. Irving Selikoff Lifetime Achievement Award recipient, is Emeritus Director of Research at the Institut National de la Santé et de la Recherche Médicale (INSERM). She received her Ph.D. in Biophysics in 1981, at the University Pierre et Marie Curie (Paris VI) on the interaction between asbestos fibres and cell membranes and liposomes. Dr Jaurand formerly worked on the physico-chemical properties of asbestos fibres accounting for their toxic potency. She further developed alternative methods to animal experiments, especially using pleural mesothelial cells, target cells in asbestos-related diseases. In this domain, she investigated the mechanisms of action of asbestos on mesothelial cells. Her research mainly focused on genotoxicity. Later she moved to researches on the biology of human Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees mesothelioma, developing models of asbestos-induced mesotheliomas. Presently her research focuses on the molecular biology of malignant mesothelioma. In 1991 she organized, with Pr Bignon, the First International Mesothelioma Conference where the International Mesothelioma Interest Group (IMIG) was founded in collaboration with Dr B. Robinson. Between 1980-1990, Dr. Jaurand stayed in laboratories abroad: ICP (Pr De Duve, Brussels, Belgium) and US laboratories NIEHS (Dr. R Crystal, Washington D.C.; Dr. J.C. Barrett, NIEHS-RTP, Research Triangle Park). From 1999-2002, she was the head of the E9909 INSERM team "Oncogenesis of Respiratory and Urogenital Tumours", at the Paris XII University. She further moved to INSERM laboratory “Genomics of Solid Tumours” where she is currently working. Dr Jaurand has written numerous book chapters, edited books and published over 200 research contributions. She organized several International Conferences on the In vitro effects of dusts. She was a member of different scientific committees at INSERM and University and still in cancer associations. She participated to and is currently involved in several workshops and advisory panels on health effects of fibres and airborne particles. Quincy Jones, 2017 Warren Zevon “Keep Me In Your Heart” Tribute Award recipient, is a talented, versatile comedian and mesothelioma patient who is spreading asbestos awareness through his hysterical stand-up comedy. Since his diagnosis, he has been defying all odds to make his dream of hosting a one-hour comedy special come true and prove cancer doesn’t define us. His Kickstarter campaign to fund this special led to an appearance on The Ellen DeGeneres show, which landed him this HBO comedy special “Burning the Light.” Quincy is being honored with the Warren Zevon “Keep Me In Your Heart” Memorial Tribute for using his gift and his story to shine a spotlight on mesothelioma and asbestos-caused diseases. Annamarie Kearns is a Mesothelioma Warrior from West Jordan, Utah. She was diagnosed in 2014 after she found herself unable to walk 5 steps without having to stop and catch her breath. Since her diagnosis with mesothelioma, Annamarie has faced several rounds of chemotherapy and aggressive surgeries. Annamarie is an active volunteer with ADAO, and shares her story in hopes of spreading awareness about the dangers of asbestos exposure and to advocate for an asbestos-free future. Brent Kynoch is the Managing Director of the Environmental Information Association, headquartered just outside of Washington, DC in Chevy Chase, MD. He has been the Managing Director of the Association since 1996, but previously had served EIA in other volunteer roles on the Board of Directors as an officer, and ultimately as the President of EIA in 1988 and 1989. EIA has spent over 30 years at the forefront in providing its members with the information needed to remain knowledgeable, responsible and competitive in the environmental health and safety industry. When Mr. Kynoch changes his hat to his “paying job,” he is the President of Kynoch Environmental Management, Inc., (KEM) an environmental Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees engineering and industrial hygiene firm also headquartered in Chevy Chase, MD. KEM provides innovative environmental solutions to general contractors, owners, property managers and the commercial real estate community to address concerns associated with asbestos, lead, indoor air quality, mold, PCBs, mercury, LEED compliance and environmental management systems. Mr. Kynoch began his career in the environmental business in 1984, when he founded his first company, AAS Environmental, which was sold in 1999. Mr. Kynoch is a graduate of Vanderbilt University, where he received a degree in mechanical engineering. He is called upon frequently as a speaker, as a writer and as an expert regarding environmental contaminants. He has testified before both the US House of Representatives and the US Senate regarding asbestos, and has written numerous articles on asbestos management and control. Doug Larkin is the Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum University, New Concord, Ohio. Doug is the Director of Communications for the Paralyzed Veterans of America (PVA), a congressionally chartered veteran service organization committed to helping all veterans secure rehabilitation, benefits, accessibility and a career. Previously, Doug was the President & CEO of Larkin Communications, a strategic communications and public affairs firm based in Washington, DC. He has worked on numerous successful legislative campaigns on behalf of large technology companies and national trade associations. In addition, he is considered an expert in corporate communications, brand identity, as well as message development and dissemination. Doug has also worked as the press secretary and the communication director for Congressman Kevin Brady (R-08TX). Rep. Brady is the Republican Deputy Whip and a senior member of the House Ways & Means Committee. “Congress and the media respond to compelling stories. It’s through your stories and donations to ADAO, that enables us to advocate a strong message for present and future victims of asbestos related disease.” Doug has worked tirelessly behind the scenes garnering the attention of the media and advocating for the rights of asbestos victims and their families. Doug dedicates his service to William D. Shields, a family member who was exposed to asbestos, and died from Mesothelioma. Richard Lemen, PhD is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years, and has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. He has also testified on behalf of asbestos victims; Dr. Lemen is a worldrenowned author, speaker, and lecturer on this topic.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Carmen Lima is a coordinator of the Waste Information Centre of Quercus - Portugal, who dedicate is work in education, advocacy, political of asbestos and waste management. She holds a degree in Environmental Engineering, a Postgraduate course in Environmental Management and Sustainable Construction, a Masters in Sustainable Planning and Construction. He is currently undertaking a PhD in Environmental Engineering, working on "Priorities in Asbestos Risk Management" in materials and equipment for construction in Lisbon. She is a member of the Portuguese Technical Commission for Asbestos and participated in the hearing for the "Opinion on the Elimination of Asbestos in Europe", published by the EESC. She organized asbestos awareness activities in Portugal, Cape Verde and for the “Portuguese Lung Foundation”. David McCumber is the editor of The Montana Standard. Previously, he was Washington Bureau Chief for Hearst Newspapers, and has led newsrooms large and small over a career spanning nearly 50 years. He was managing editor of the Seattle Post-Intelligencer for the last nine years of that newspaper's print existence, during which the paper won several national awards for investigative and narrative journalism. McCumber is the author of three nonfiction books: "X-Rated: The Mitchell Brothers (Simon & Schuster), made into a film starring Charlie Sheen and Emilio Estevez; Playing off the Rail: A Pool Hustler's Journey (Random House); and The Cowboy Way: Seasons of a Montana Ranch (Avon). He is the co-author, with investigative reporter Andrew Schneider, of the book “An Air that Kills: How the Asbestos Poisoning of Libby, Montana Uncovered a National Scandal” (Putnam), based on a story Schneider broke while working with McCumber at the Seattle P-I. During his time at the San Francisco Examiner, where he was Sunday editor, city editor and an assistant managing editor, he edited Hunter S. Thompson's weekly column for about three years. He subsequently served as the editor of two of Thompson's books. He was the founding editor and publisher of the magazine Big Sky Journal. McCumber was a finalist for a Pulitzer Prize in 1984 for a series of stories he directed and helped to write on a defense-industry scandal in Tucson, Arizona. Tracy McNew, LPN, MPA is the Clinical Care and Research Manager at the Center for Asbestos Related Disease (CARD) in Libby, Montana. She has been working at CARD for over 7 years and has built strong ties to the Libby community. She is married and has a daughter in third grade. Tracy has been a nurse for nearly 20 years and enjoys the unique opportunities to make a difference in people’s lives at CARD. CARD’s role in the community of Libby includes screening, outreach, advocacy, and holistic care for patients with asbestos related illnesses. CARD strives to meet medical needs of patients while also providing case management, education, and assistance navigating support programs. Tracy works one on one with patients as part of CARD’s lung cancer screening program and also manages clinical and research staff providing services to patients Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees
Steven Markowitz, MD, DrPH, an occupational medicine physician, directs the commoner Center for Health and the Environment (CCHE at Queens College, City University of New York. He is Adjunct Professor of Preventive Medicine at Mount Sinai Scuool of Medicine. He received his B.A. from Yale University, With the United Steelworkers, Dr. Markowitz directs the Workder Health Protection Program, a national medical screening program for Department of Energy nuclear weapons workers that has used low dose CT scanning to screen over 11,000 workers for early lung cancer detection since 2000. Dr. Markowitz and CCHE currently partner with Make the Road New York to address occpational hazards that Latino day laborers face when performing Hurricane Sandy clean-up work. Dr. Markowitz is Editor-in-Chief of the American Journal of Industrial Medicine and the Associate Editor of a major textbook, Environmental and Occupational Medicine. Jessica Mattmuller, 2017 Alan Reinstein Award recipient, joined the ADAO family in 2012, after her husband Mike was diagnosed with mesothelioma at just 29 years old. Together, Mike and Jess have poured incredible energy into fighting for an asbestos-free future. Jessica is a graphic designer who lends her talents to ADAOâ€™s digital campaigns. Along with their beautiful new daughter, Riley Jean, the Mattmuller family serves as a beacon of hope and a source of support for the ADAO community.
Mike Mattmuller, 2017 Alan Reinstein Award recipient, is a Mesothelioma Patient and Eastern Co-Regional Director of ADAOâ€™s State Leadership Team. He born in Mayfield Heights, OH, but now lives in Westminster, MD and works as a civil engineer. Since being diagnosed with mesothelioma four years ago at age 29, Mike and his wife, Jessica, have become strong advocates to ban asbestos and promote research for a cure. Mike has shared his story at several Congressional Briefings and in meetings with the EPA. Mike and Jessica had their first baby, Riley Jean, in June 2016. Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the Milken Institute School of Public Health at George Washington University. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests, Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees including the asbestos industry, to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action and compensation. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 1991-1995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton served on the special panels appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers, and the April 2010 disaster at Massey Energy's Upper Big Branch mine that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association, and serves in a leadership position with the organization’s Occupational Health and Safety Section. Paolo Monico is an Italian-American filmmaker based in New York. He is a member of the Directors Guild of America and in the past 20 years, he has been a character animator, a cartoonist, a storyboard artist, an assistant production designer, an assistant director, a director and a father. He has directed a TV movie and more than 150 commercials for clients like CocaCola, MTV, Honda, Playstation, Procter & Gamble, Volkswagen, Vodafone and many others. Some of his ads have been featured on Shots Magazine or shortlisted at the Cannes Advertising Film Festival. In 2015, he wrote, directed and produced his first short film, THE MOTHER, starring Mary Testa, Boris McGiver, Michele Hicks and Sylvia Kauders. The multi-award-winning film is a loveletter to his father who passed away in 2002 from mesothelioma. L. Christine Oliver, MD, MPH, MS is President of Occupational Health Initiatives, Inc. She is an Associate Clinical Professor of Medicine at Harvard Medical School and an Associate Physician in the Department of Medicine (Pulmonary and Critical Care Division) at the Massachusetts General Hospital in Boston. Board certified in internal medicine and in preventive (occupational) medicine, Dr. Oliver’s primary specialty is Occupational and Environmental Medicine, with an emphasis on occupational lung disease. She is the Co-Director of Occupational and Environmental Medicine at the Massachusetts General Hospital. There she evaluates and cares for patients with a variety of occupational and environmental diseases, including asbestos-related diseases, occupational asthma, interstitial lung disease associated with exposure to beryllium and silica, and building-associated illness. Dr. Oliver is a Fellow of the Collegium Ramazzini and has done research and published in the area of occupational lung disease, with a focus on asbestos-related disease. She has lectured frequently on this topic, including more recently the determination of risk for asbestos-related lung cancer. Dr. Oliver is responsible for medical surveillance of a group of public school custodians employed by the City of Boston and exposed to asbestos during the course of that work. She conducted research on health and safety hazards for construction workers on Boston’s Big Dig. She consults on medical-legal issues and provides expert witness testimony. Dr. Oliver has testified before Congress on issues related to asbestos and other workplace exposures. She was Chief Medical Consultant to the Commissioner of the MA Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Department of Industrial Accidents responsible for implementation of medical aspects of the 1991 workers’ compensation reform law in Massachusetts. Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in 2003. She co-founded the Asbestos Disease Awareness Organization in 2004, and now serves as President and CEO. Reinstein has been a strong political voice for justice in every major asbestos-related issue. Reinstein, a highly sought-after international speaker, has frequently served as a Congressional witness and presented at the Department of Labor (OSHA), British House of Commons, United Nations Congress, American Public Health Association, and to other audiences around the world. Recognized as an expert with more than 35 years of nonprofit experience in building and sustaining grassroots organizations, Reinstein specializes in developing, implementing, and leveraging integrated social media campaigns. Recently, Reinstein was asked to create social media educational materials and facilitate a workshop in Asia. Focused on national and international occupational and environmental disease prevention, Reinstein’s proficiency in the powerful advocacy space of online media has greatly increased the effectiveness of ADAO’s core mission of education, advocacy, and community support actions. She has won many prestigious awards including the Global Impact Award (2013), from the Independent Asbestos Training Providers; Bruce Vento Hope Builder Award (2011), from the Mesothelioma Applied Research Foundation; the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime (2010); and the Heart and Soul Award in from the Manhattan Beach Women in Business Association (2005). Tony Rich has literally served “in the trenches” as an industrial hygienist and environmental technician in the consulting field for the past 20 years, specializing in asbestos-related work, including: inspection surveys, abatement monitoring/sample analyses, project management, regulatory compliance, and worker training. He has also received microscopy training from McCrone Research Institute for identification of bulk asbestos via polarized-light microscopy (PLM). Through the course of his occupation and personal endeavor, Tony has developed an extensive and compelling collection of asbestos-related photographs, product materials, artifacts, historical books, industry documents, film archives, and other related media which have been utilized in a multitude of applications for various organizations worldwide, including, but not limited to: product and material research, asbestos awareness education blogs, informational presentations, corporate and governmental training programs, regulatory guidance documents, science and trade publications, university textbooks, museum exhibits, and even as legal evidence. Barry Robson, the President of ADFA, became a Union delegate of the Waterside Workers Federation in 1970 and was elected as Senior Vice President of that Union in 1988. In 1995 he was elected Assistant Branch Secretary of the Maritime Union of Australia, a position he held until Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees retirement from the workforce in 2003. From 1991 to 1995 he was a Councilor on Blacktown City Council. He became a delegate to ADFA in 1996 and was appointed President in 2002 and elected President in 2003, a position he holds today. He has been appointed to the following, Asbestos Research Institute in 2004, Federal Government Asbestos in Telstra Infrastructure in 2013 and Federal Asbestos Safely and Eradication Agency (ASEA) in 2013. Barry has been awarded three Life Memberships, Maritime Union of Australia, St Marys Baseball Club and Blacktown Mt Druitt Cardiac Support Group. Dr. Bruce Robinson, 2017 Dr. Irving Selikoff Lifetime Achievement Award recipient, graduated in Medicine from the University of Western Australia and during his career worked and studied in the UK and the USA. Bruce has published over 160 scientific papers, three books and over thirty invited book chapters. Professor Robinson is recognized internationally for his work in the field of asbestos-induced cancer. He published the world’s first blood test for the diagnosis, monitoring and early detection of mesothelioma, conducted the first cancer immuno-gene therapy trial using vaccinia-cytokine vectors and initiated seven other world-first tumor therapies. Bruce has also made a number of other major discoveries regarding how the body’s immune system fights against cancer which have formed the basis of many grants, papers and clinical trials. Professor Robinson’s research work has been extensively recognized and he is the recipient of a number of awards, including the Wagner Medal in 2004, presented by the International Mesothelioma Interest Group to the individual whom they vote as having made the greatest contribution to mesothelioma research internationally. He has also received the Premier’s Science Award in 2004, presented to the individual judged to have made significant achievements and leadership in science, as well as the Gordon Ada Invited Lecture in 2004 for outstanding contribution to the field of tumor immunology. He has also received the Eric G Saint Award in 1996 for contributions to research into asbestos-related diseases, and the Young Investigator Award of the Thoracic Society in 1986 for ‘the most outstanding scientific work by an investigator under 36′. Safer Chemicals, Healthy Families, 2017 Tribute of Inspiration Award recipient, is an incredible coalition staffed by a seasoned group of organizers that makes up Kitchen Table Campaigns team. They emphasize public education and strategies that blend traditional grassroots organizing with online communications, rapid response articles to new science and policy updates and building coalitions that merge diverse organizations and businesses. Safer Chemicals, Healthy Families has been instrumental in writing and passing the Lautenberg Act, a landmark piece of legislation which strengthens the U.S. Environmental Protection Agency’s capacity to regulate toxic chemicals.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Margaret (Peg) Seminario is Director of Occupational Safety and Health for the AFL-CIO. She has worked for the AFL-CIO since 1977, and since 1990 has been responsible for directing the AFL CIO's program on safety and health. She is a nationally recognized occupational safety and health leader and expert with extensive experience in safety and health policy, regulation and legislation. At the AFL-CIO, Peg has led the federation’s efforts to seek improved safety and health protections for workers, participating in dozens of rulemakings before the Occupational Safety and Health Administration, and organizing broad-based campaigns on the Right-to-Know about chemical hazards and ergonomic protections. She was one of the leaders in labor’s efforts to enact the 9/11 Health and Compensation Act to provide healthcare and compensation to responders sick from exposures at the World Trade Center. Ms. Seminario is the AFL-CIO’s lead organizer of Workers Memorial Day, observed annually on April 28 to remember workers killed, injured and diseased on the job and to highlight the need for improved job safety protections. Peg has served on numerous federal agency and scientific advisory committees and participated in international safety and health work through the ILO, the OECD and international trade union organizations. She holds a M.S. degree in industrial hygiene from the Harvard School of Public Health and a B.A. in biological sciences from Wellesley College. U.S. Senator Jon Tester, 2017 Tribute of Hope Award recipient, is a thirdgeneration Montana farmer, a proud grandfather and a former schoolteacher who has deep roots in hard work, responsibility and accountability. Jon was elected to the Montana Senate in 1998, and in 2005, he was chosen to serve as Montana Senate President. Jon was elected to the U.S. Senate in 2006 and again in 2012. In the U.S. Senate, Jon is a champion of responsible energy development, sportsmen’s issues, clean air and water, Indian nations, women’s access to care, and quality health care for all of America’s veterans—no matter where they live. Jon serves on the Veterans’ Affairs, Homeland Security, Indian Affairs, Banking and Appropriations Committees.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Domani M. Tripam became involved with ADAO after her “SuperDad” was diagnosed with mesothelioma in 2011. She is passionate about educating others about their risks of asbestos exposure and ways to protect themselves and their families as well as supporting ADAO in their efforts to create change for all who have been affected by asbestos. Her family formed Mesothelioma Heroes Foundation, a non-profit organization dedicated to raising awareness of asbestos and funds for mesothelioma research, of which she previously served as President and a Board Member. After losing her SuperDad to mesothelioma in July of 2016, Domani has renewed her commitment to raising awareness and supporting ADAO's efforts to finally ban asbestos once and for all. Domani is an administrative and marketing services professional with over 30 years of senior level administrative experience in various industries including analytics, consulting, market research, event fundraising, legal, financial and professional services, executive recruiting, consumer products and corporate real estate. Ellen Tunkelrott, Member of the ADAO Board of Directors, is a Senior Contracts Administrator, MBA, CFCM for a small aerospace and defense company in Los Angeles. She resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. Ellen is also a commissioned Notary Public for the State of California. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world-renowned Magic Castle in Hollywood, California. Hassan Yussuff was elected president of the Canadian Labour Congress in May 2014, becoming the first person of colour to lead Canada’s labour movement. Since his election, Hassan has led Canada’s unions to a number of significant victories. Making workplaces and public spaces safer has been a key priority for Hassan. He was exposed to asbestos as a mechanic in his early working life, and as a union activist learned that asbestos-related diseases are the number one cause of workplace-related deaths in Canada. As CLC President, Hassan campaigned hard for a comprehensive ban on asbestos, a ban we won in December 2016. As well as his work in Canada, Hassan is a prominent international activist. In 2016, he was elected for a second term as president of the Trade Union Confederation of the Americas, an organization uniting 56 national organizations representing more than 60 million workers in 23 countries.
2017 ADAO Conference Biographies: Keynote Speakers, Presenters, Performers, and Honorees Jordan Zevon, ADAO's tremendous National Spokesperson, is a teacher, singer, and songwriter. Jordan was executive producer for his father, Warren Zevon's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases.
ADAO Board and Leadership ADAO Board of Directors Ellen Costa Doug Larkin Ellen Tunkelrott Linda Reinstein Laurie Rice ADAO Leadership ADAO President/CEO: Linda Reinstein ADAO Communication Director: Kim Cecchini ADAO National Spokesperson/Honorary Celebrity Board Co-Chair: Jordan Zevon ADAO Celebrity Board Co-Chair: Barbara McQueen ADAO Executive Assistant: Herman Hamilton Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
ADAO Science Advisory Board Science Advisory Board Co-Chairs Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH Science Advisory Board Members Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD L. Christine Oliver, MD Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
ADAO Prevention Advisory Board Prevention Advisory Board Co-Chairs Brent Kynoch Christine Winter Prevention Advisory Board Members Mark Catlin Claire Deacon Tom Laubenthal John Newquist Tony Rich Mark Winter Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
ADAO State Leadership Team Eastern Region – Marilyn Amento & Mike Matmuller (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont, New Jersey, New York, Pennsylvania, South Dakota, Delaware, District of Columbia, Florida, Georgia, Maryland North Carolina, South Carolina, Virginia, West Virginia)
Midwestern Region– Heather Von St James & Domani Tripam (Indiana, Illinois, Michigan, Ohio, Wisconsin, Alabama, Kentucky, Mississippi, Tennessee, Iowa, Kansas, Minnesota, Missouri, Nebraska, North Dakota)
Western Region – Ann Samuelson & Paul Zygielbaum (Arkansas, Louisiana, Oklahoma, Texas, Arizona, Colorado, Idaho, New Mexico, Montana, Utah, Nevada, Wyoming, Alaska, California, Hawaii, Oregon, Washington)
13th International Asbestos Awareness and Prevention Conference Committee Agenda & Sponsors
Kimberly Cecchini and Sara Tiano
Friday Dinner Cruise
Marilyn Amento, Jessica Mattmuller, and Domani Tripam
Brent Kynoch and Christine Winter
Board Co-Chairs Science Advisory Board
Dr. Arthur Frank and Dr. Richard Lemen
Co-Chairs Social Media
Dr. Celeste Monforton
Sue Ann Taylor, Zeel TV
Volunteers & Conference
Bob Kuzmick, Richa Patel, Cortney Segmen, Emily
Reinstein, and Betty and Robin Tucker
2017 Conference Honorees The Brazilian Association of the Asbestos-Exposed (ABREA), will receive the Tribute of Unity Award for their relentless efforts to protect public health, ban asbestos, and increase public awareness about the danger of asbestos. U.S. Senator Jon Tester of Montana will receive the Tribute of Hope Award for his steadfast commitment to protecting the civil rights of asbestos victims and furthering our progress toward a national federal ban. Safer Chemicals, Healthy Families will be presented with the Tribute of Inspiration Award for their unrelenting efforts to protect public health and the environment from asbestos and other toxic chemicals through their tireless advocacy in Washington, DC. Raja Flores, MD, will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases. Marie-Claude Jaurand, PhD, will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of her tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases. Bruce Robinson, MD, will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases. The Dioguardi Family will be recognized with the Alan Reinstein Award for their commitment to education, advocacy, and support to countless patients and families.
The Mattmuller Family will be recognized with the Alan Reinstein Award for their commitment to education, advocacy, and support to countless patients and families.
Quincy Jones will be recognized with the Warren Zevon â€œKeep Me In Your Heartâ€? Memorial Tribute for his commitment to spreading asbestos awareness through his hysterical stand-up comedy. Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization
"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2005 – 2016 ADAO Honorees & Keynote Speakers 2016 Asbestos Awareness Conference Honorees – Washington, D.C. Dr. Phillip Landrigan, Dr. Irving Selikoff Lifetime Achievement Award Dr. Christine Oliver, Dr. Irving Selikoff Lifetime Achievement Award Asbestos Safety and Eradication Agency, The Tribute of Unity Award The Collegium Ramazzini, Tribute of Hope Award Earl Dotter, Tribute of Inspiration Award Clarence Borel, Warren Zevon “Keep me in Your Heart” Tribute Award The Amento Family, Alan Reinstein Award Christine Winter, Alan Reinstein Award Paul Brodeur and Dr. Eudice Goldberg Keynote Speakers 2015 ADAO Asbestos Awareness Conference Honorees – Washington, D.C. International Mesothelioma Interest Group (iMig), Tribute of Hope Award Troi Atkinson, Warren Zevon "Keep me in Your Heart" Award Congressman Bruce Vento, Warren Zevon "Keep me in Your Heart" Award (2014) Dr. Jorma Rantanen, Dr. Irving Selikoff Lifetime Achievement Award American Public Health Association (APHA), Tribute of Unity Award The Brazilian Labour Public Ministry, Tribute of Inspiration Award Ellen Patton, Alan Reinstein Award Dr. Jorma Rantanen and Sue Vento, Keynote Speakers 2014 ADAO Asbestos Awareness Conference Honorees – Washington, D.C. The Honorable Henry Waxman, U.S. House of Representatives, Tribute of Hope Award Congressman Bruce Vento, Warren Zevon "Keep me in Your Heart" Award Dr. David Egilman, Dr. Irving Selikoff Lifetime Achievement Award Dr. Ken Takahashi, Dr. Irving Selikoff Lifetime Achievement Award National Association for the Defense of Asbestos Victims (Andeva), Tribute of Unity Award Bill Ravanesi Tribute of Inspiration Award Janelle Bedel, honored posthumously, Alan Reinstein Award Heather Von St. James, Alan Reinstein Award Lou Williams, Alan Reinstein Award Keynote Speaker: Rear Admiral Boris Lushniak, Acting U.S. Surgeon General
2013 ADAO Asbestos Awareness Conference Honorees – Washington, D.C. The Honorable Lois Capps (D-CA), U.S. House of Representatives, Tribute of Hope Award Jordan Zevon, "Keep me in Your Heart" Award Dr. Celeste Monforton, Dr. Irving Selikoff Lifetime Achievement Award International Association of Heat and Frost Insulators and Allied Workers, Tribute of Unity Award Karen Banton, Tribute of Inspiration Award Rob Cagle, Alan Reinstein Award Mavis Nye, Alan Reinstein Award Dr. Aubrey Miller, Keynote Speaker 2012 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Steve Cohen (D-TN), U.S. House of Representatives, Tribute of Hope Award Actor Steve McQueen, Warren Zevon "Keep me in Your Heart" Award Dr. Arthur Frank, Dr. Irving Selikoff Lifetime Achievement Award Dr. Richard Lemen, Dr. Irving Selikoff Lifetime Achievement Award Associazione Familiari Vittime Amianto (AFEVA), Tribute of Unity Award Joel Shufro, Tribute of Inspiration Award Debbie Brewer, Alan Reinstein Award Larry Davis, Alan Reinstein Award Matt Peacock, Keynote Speaker 2011 ADAO Asbestos Awareness Conference Honorees – Atlanta, GA The Honorable Max Baucus, United States Senator, Tribute of Hope Award Ron Cyrus, Warren Zevon "Keep me in Your Heart" Award Dr. Guadalupe Aguilar Madrid, Dr. Irving Selikoff Lifetime Achievement Award Environmental Information Association, Tribute of Unity Award Sugio Furuya, Tribute of Inspiration Award Julie Gundlach, Alan Reinstein Award Dr. Linda Rae Murray, Keynote Speaker 2010 ADAO Asbestos Awareness Conference Honorees Honorees – Chicago, IL The Honorable Richard Durbin, United States Senator, Tribute of Hope Award Army Archerd, Warren Zevon "Keep me in Your Heart" Tribute Memorial Award Dr. Hedy Kindler, Dr. Irving Selikoff Lifetime Achievement Award Center of Asbestos Related Disease (CARD), Tribute of Unity Award Fernanda Ginnasi, Tribute of Inspiration Award June Briet, honored posthumously, Alan Reinstein Memorial Award Jordan Barab, Keynote Speaker
2009 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Barbara Boxer, United States Senator, Tribute of Hope Dr. Stephen Levin, Dr. Irving Selikoff Lifetime Achievement Award Peg Seminario, AFL/CIO, Tribute of Unity Award Pralhad Malvadkar and Raghunath Manwar, Tribute of Inspiration Award Dominick Marzicola, honored posthumously, Alan Reinstein Memorial Award Andrew Schneider, Keynote Speaker 2008 ADAO Asbestos Awareness Conference Honorees Honorees – Detroit, MI Dr. Aubrey Miller, Tribute of Hope Barry Castleman, Dr. Irving Selikoff Lifetime Achievement Award Canadian Auto Workers, Tribute of Unity Award John Thayer, Former US Capitol Tunnel Worker Supervisor and Asbestos Victim, Tribute of Inspiration Award John McNamara, honored posthumously, Alan Reinstein Memorial Award Terry Lynch, Keynote Speaker 2007 ADAO Asbestos Awareness Conference Honorees – Philadelphia, PA The Honorable Patty Murray, United States Senator, Tribute of Hope Dr. Michael Harbut, Dr. Irving Selikoff Lifetime Achievement Award Patrick Martin, Member of Canadian Parliament, Tribute of Unity Award Paul Zygielbaum and Michelle Zygielbaum, Tribute of Inspiration Award Les Skramstad, honored posthumously, Alan Reinstein Memorial Award Dr. Peter Orris, Keynote Speaker 2006 ADAO Asbestos Awareness Conference Day Honorees – New York City, NY The Honorable Harry Reid, United States Senator, Tribute of Hope Award Paul Brodeur, Dr. Irving Selikoff Lifetime Achievement Award Dr. Yasunosuke Suzuki, Selikoff Lifetime Achievement Award James Fite, Tribute of Unity Award The Honorable Chuck Strahl, Member of Parliament, Canada, Tribute of Inspiration Paul Brodeur, Keynote Speaker 2005 ADAO Asbestos Awareness Conference Honorees – Washington, DC Gayla Benefield, Tribute of Hope Award Laurie Kazan-Allen, Tribute of Unity Award Jill Vaughn, Tribute of Inspiration Award
The Asbestos Disease Awareness Organization expresses our sincere gratitude to the past and current U.S. Surgeon Generals for issuing official asbestos awareness statements. U.S. Surgeon General Dr. Vivek H. Murthy (2016): “Because of its use in so many products, asbestos is still of special concern for anyone who works in construction – or who might be in a position to disturb asbestos found in older homes, buildings or equipment.” U.S. Surgeon General Dr. Vivek H. Murthy (2015): “National Asbestos Awareness Week is..a good time to remind Americans about the health dangers of asbestos exposure… because of its use in so many products, asbestos is still of special concern.” Acting U.S. Surgeon General Dr. Boris Lushniak (2014), at 2014 ADAO International Asbestos Awareness Conference: “The asbestos issue is not a thing of the past. It continues to this day.” U.S. Surgeon General Dr. Regina Benjamin (2013): “Anyone who disturbs asbestos is at risk…Preventing the damage caused by asbestos is important to help keep Americans healthy and safe…The greater the exposure to asbestos, the greater the chance of developing harmful health effects.” Acting U.S. Surgeon Dr. Steven Galson (2009): “Asbestos can be dangerous if it is inhaled. Activity that disturbs asbestos causing these small fibers to float in air increases the chances of inhalation and the contraction of asbestos-related diseases.”
Senate Resolution 98 IN THE SENATE OF THE UNITED STATES 115th CONGRESS 1st Session
Designating the first week of April 2017 as ‘National Asbestos Awareness Week’. Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage; Whereas asbestos fibers can cause cancer (such as mesothelioma), asbestosis, and other health problems; Whereas symptoms of asbestos-related diseases can take between 10 to 50 years to present themselves; Whereas the projected life expectancy for an individual diagnosed with mesothelioma is between 6 and 24 months; Whereas generally, little is known about late-stage treatment of asbestos-related diseases, and there is no cure for asbestos-related diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve the prognoses of those patients; Whereas the United States has substantially reduced the consumption of asbestos in the United States, yet the United States continues to consume tons of the fibrous mineral each year for use in certain products throughout the United States; Whereas asbestos-related diseases have killed thousands of people in the United States; Whereas while exposure to asbestos continues, safety and prevention of asbestos exposure has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of asbestos-related diseases; Whereas thousands of workers in the United States face significant asbestos exposure, which has been a cause of occupational cancer; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana, suffer from asbestos-related diseases, including mesothelioma, at a significantly higher rate than people in the United States as a whole; and Whereas the designation of a “National Asbestos Awareness Week” will raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the Senate -1) designates the first week of April 2017 as ‘National Asbestos Awareness Week’; 2) urges the Surgeon General of the United States to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health; and 3) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Office of Surgeon General. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us
ADAO National Spokesman Jordan Zevon Jordan Zevon, ADAO's National Spokesman, is a talented American singer, musician, and songwriter. After his father, Warren Zevon, died from Mesothelioma in 2003 Jordan was moved to work with the Asbestos Disease Awareness Organization (ADAO), and he has dedicated a tremendous amount of time and talent to help raise awareness about the dangers of asbestos. As a passionate advocate, Jordan has traveled to Washington DC countless times to join ADAO in meetings with Congress and key administration staff. He was instrumental in his leadership role of ADAO’s product testing that uncovered dangerous asbestos fibers in a children’s toy. He also regularly presents before the press and on behalf of ADAO to help educate the public about asbestos dangers and share his personal story. He has donated his wonderful musical talents at ADAO and non-ADAO events, and participated in public service announcements – beautifully advocating through his wonderful gift. He also performed at this year’s Miles for Meso event helping to raise crucial funds for ADAO’s education efforts. Jordan’s musical career is impressive. He was executive producer of his father's final album, The Wind and also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan released a self-titled EP and the full-length album, “Inside’s Out” featuring, “The Joke’s On Me” which he performed on The Late Show with David Letterman. Presently, Jordan is hard at work on his new album “Strictly From Hunger.” Jordan's immeasurable commitment to asbestos victims, coupled with his musical gifts, has provided a united voice that will continue to raise public awareness about the dangers of asbestos exposure and asbestos-related diseases. Thank you Jordan for your years of dedicated support, inspirational story, and beautiful songs.
ADAO Celebrity Board Co-Chair Barbara McQueen Barbara McQueen and Jordan Zevon lead the Asbestos Disease Awareness Organization’s (ADAO) national Celebrity Board efforts and have brought an even stronger voice to ADAO’s message through their work. Barbi is the widow of American film star, Steve McQueen, in addition to a former model and photographer. She is also the author of Steve McQueen: The Last Mile Revisited, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. Since its publication, ADAO has presented Barbi’s book to experts and organizations in more than 10 countries, helping spread awareness about asbestos and asbestos-related diseases. She has also hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides. Since 2011, Barbi has been working with ADAO. It was an honor to recognize Steve McQueen with the 2012 Warren Zevon “Keep Me in Your Heart” Memorial Tribute, which Barbi accepted on behalf of her late husband, delivered a keynote speech, and led a book signing at the conference Tribute Dinner, “Steve McQueen: The King of Cool.” Barbi has been a strong supporter of ADAO and advocate on behalf of asbestos victims and their families, even traveling to Capitol Hill with ADAO to speak out against asbestos and in support of prevention and a ban. Special thanks to Barbi for her support over the years! Her voice truly makes a difference.
2016 ADAO Summary of Accomplishments The Asbestos Disease Awareness Organization (ADAO) was founded by the Larkin and Reinstein families in 2004. ADAO is the largest independent organization dedicated to preventing asbestos-related diseases through education, advocacy, and community support. With more than 40,000 people in our network, ADAO remains on the front line to shape global policy, increase public awareness of the risks associated with asbestos exposure, and advocate for a ban. As a leader in social media advocacy, we further strengthened our network of victims, physicians, researchers, public health practitioners, and labor union members by utilizing a variety of social media platforms, including Facebook, Twitter, LinkedIn, and YouTube. ADAO also increased it's credibility in the field by maintaining our presence on Wikipedia and presenting at more than 6 conferences around the world. Every accomplishment is possible because of the generosity of volunteers, sponsors, and donors who fuel our work and further our cause. We are proud to present our 2016 accomplishments, and look forward to even greater success in 2017! 2016 Education Initiatives: In an effort to educate the public about the dangers of asbestos exposure, ADAO: •
Distributed 12 monthly and 1 special edition eNewsletters with recent asbestos-related news and events to a global audience
Hosted ADAO’s 3-day 12th Annual International Asbestos Awareness Conference: “Where Knowledge and Action Unite,” which brought together nearly 40 expert speakers and over 100 patients, physicians, researchers, educators, and public health advocates from 12 countries to discuss updates on the prevention, detection, and treatment of asbestos-related disease and global advocacy for an asbestos ban
Held our 9th and 10th Congressional Staff Briefings: “Asbestos: Impact on Consumer Safety, Public Health, and Asbestos Victims’ Civil Rights” and “Asbestos: Impact on Public Health, Consumer Safety, and the Environment”
Continually updated ADAO’s website highlighting asbestos-related news and events and housing extensive educational resources, including an Asbestos Video Library of conference videos and educational presentations
Hosted several #ENDMeso online Twitter Chat about prevention, health, safety, and civil rights
2016 Advocacy Initiatives: In order to advocate for an international ban on asbestos use and the mining and export of this known carcinogen, ADAO:
Partnered with a coalition of 450 major nonprofits to give testimony and provide detail for the docket for EPA consideration under TSCA reform
Ensured the passage of U.S. Senate’s 12th Annual Resolution, which designated April 1-7, 2016 as “National Asbestos Awareness Week”
Championed the 5th U.S. Surgeon General’s Asbestos Awareness Week warning statement
Served as a media resource and/or quoted in The Hill, the San Francisco Chronicle, Inside EPA, BNA, and E&E News Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
Became a contributing writer to the Huffington Post
Published numerous Op-Eds in The Hill, Roll Call, and Bloomberg BNA
Collaborated with health and safety experts, trade unions, and environmentalists with guest blogs to raise asbestos awareness and action
2016 Community Initiatives: In an effort to provide a community of support for those affected by asbestos, ADAO: •
Expanded Global Asbestos Awareness Week, which raises public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure by partnering with UK-based PR firm the McOnie Agency
Published and shared more than 200 “Share Your Story” submissions from patients and families around the world who have been devastated by asbestos-related disease.
Sponsored Earl Dotter’s travelling photographic exhibit, “BADGES: A Memorial Tribute to Asbestos Workers,” at numerous educational and occupational health conferences
Partnered with filmmaker Paolo Monico on his multi-award winning short film THE MOTHER, which artistically highlights the widespread dangers of asbestos exposure
Utilized ADAO’s Facebook Page, Facebook Group pages, and Twitter presence to provide an interactive medium for those seeking a space to share, connect, or access information
Continued the virtual running team for “Miles for Meso” Mesothelioma Awareness Day; raising a record $40,000 in donations as the designated beneficiary of the event
Published numerous video and blog interviews with mesothelioma patients and experts
2016 Speeches and Presentations ADAO was delighted to strengthen partnerships and spread awareness through presenting at numerous national and international conferences and events, including:
“Asbestos: From Our Homes to The Hill, ” Environmental Information Association (EIA) Conference, March 8, 2016
“Asbestos: The Human Cost of Inaction” The Global Health & Innovation Conference, Yale University, April 16, 2016
“Challenges and Progress in Preventing Asbestos Exposure,” UK’s Action Mesothelioma Day, July 1, 2016
“The Fight to Ban Asbestos in the United States,” Brazil October 6, 2016
“Harnessing the Power of Social Media Advocacy,” National Meeting of Asbestos Victims and Relatives, Brazil, October 8, 2016
“The Fight to Ban Asbestos in the United States,” ASEA’s Asbestos Awareness and Management International Conference, Adelaide, Australia, November 14, 2016
Asbestos Disease Awareness Organization is a registered 501(c)(3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 Tribute of Hope Award U.S. Senator Jon Tester U.S. Senator Jon Tester of Montana is the 2017 recipient of the Tribute of Hope Award for his steadfast commitment to protecting the civil rights of asbestos victims and furthering progress toward a national federal asbestos ban. Senator Tester was elected to represent Montana in the U.S. Senate in 2006 and reelected in 2012. Senator Tester’s support of asbestos issues is especially important, as his state of Montana is home to the small town of Libby — the site of one of the greatest asbestos disasters in U.S. history. “The resiliency of the community of Libby has been a motivator for me to ensure my colleagues work to protect our environment and communities from asbestos exposure. No community should have to go through what Libby has gone through and Congress can work to prevent it,” Senator Tester said. In fact, the Tribute of Hope honoree says it’s the Libby community that keeps him hopeful. “Many people have played important roles in preserving this community like Dr. Black and others at the CARD clinic, as well as many business men and women, public servants, and health care workers. Also, the great work of journalists like David McCumber and the late Andrew Schneider, who saved countless lives with their reporting, showed that a community can hold a company accountable for their actions. Some look at Libby and see a tragedy, I look at Libby and see hope.” As the U.S. Environmental Protection Agency (EPA) begins risk assessment and regulation of asbestos under the newly reformed TSCA, Senator Tester had this message for the EPA: “No amount of profit can outweigh the safety of entire communities. We now know the hazards of asbestos. We need to make sure it is a priority to prevent thousands of asbestos-related deaths every year. We owe it to our children and our children’s children to work together and protect future generations from this known life-threatening chemical.” ADAO is grateful to have such stalwart champions like Senator Jon Tester advocating for asbestos victims and environmental justice. We congratulate the Senator on earning the Tribute of Hope Award, which he truly deserves for the incredible work he does that keep the flames of hope alive for asbestos victims in Montana and across the nation. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
“Keep Me in Your Heart” Memorial Tribute Award Quincy Jones Quincy Jones, a talented, versatile comedian and mesothelioma patient, is recognized with the 2017 Warren Zevon “Keep Me In Your Heart” Memorial Tribute for his commitment to spreading asbestos awareness through his hysterical stand-up comedy, and spreading joy and light in the process. Since his diagnosis in 2015, Quincy has been defying all odds to make his dream of hosting a one-hour comedy special come true and prove cancer doesn’t define us. His campaign on Kickstarter.com to fund this comedy special led to an appearance on The Ellen DeGeneres show, which landed him this HBO comedy special “Burning the Light.” The title refers to stand up comedians who refuse to leave the stage even when they see the light signaling their time is up. Quincy says this is how he faces his battle with mesothelioma. “I don’t let cancer define me, I don’t let cancer confine me,” he said. Despite the attention and new audiences Quincy’s work has brought to our issue, he was surprised to be recognized for what he’s been doing. “I feel honored, I feel amazed because I am helping out. You don’t do stuff to with anticipation for getting awards for it. So for me its been like ‘Oh, I’ve been doing comedy and just trying to keep a positive message and spread a message of positivity and love and the ADAO is honoring me for it’. I feel great!” Like so many asbestos victims, Quincy had no idea asbestos was still legal in the U.S. and such a global threat. “I would like to let members of Congress know that ‘We The People’ know that you guys have a difficult job, but it is not difficult to know right from wrong. I don’t get what’s the hold up on banning something that is deadly,” Quincy said. Quincy has seen huge achievement in his career — from The Ellen Show and HBO special to meeting President Obama and Vice President Biden. He continues to write daily and is working toward big goals. But what Quincy claims as his proudest achievement so far is something all Mesothelioma Warriors can relate to: “My greatest accomplishment is that I keep going.” ADAO would like to congratulate Quincy on receiving ADAO’s 2017 Warren Zevon “Keep Me In Your Heart” Memorial Tribute and thank him for using his gift and his story to shine a spotlight on mesothelioma and asbestos-caused diseases. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
Dr. Irving Selikoff Lifetime Achievement Award Dr. Raja Flores Raja Flores, MD is recognized with the 2017 Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases through his unending support of the Asbestos Disease Awareness Organization (ADAO). Dr. Flores is the Chairman of Thoracic Surgery, Ames Professor of Cardiothoracic Surgery at Mount Sinai Medical Center in New York City. His research interests include numerous past projects relating to the multimodality management of malignant pleural mesothelioma. He helped pioneer the use of intraoperative chemotherapy for mesothelioma, and led a multi-center trial designed to improve patient outcomes. He changed the surgical management of pleural mesothelioma cancer with a landmark study comparing extrapleural pneumonectomy and pleurectomy/decortication. Dr. Flores called Dr. Irving Selikoff “a giant in the field of asbestos-related diseases,” and said Dr. Selikoff “singlehandedly influenced legislation which in turn saved many more lives than I could have ever saved through surgery alone.” One thing that makes Dr. Flores such a special physician is that he has a real, compassionate understanding of what asbestos victims face. “We are also fighting against the greed of the people who are in a position to prevent many of these dreadful cases. The only thing wrong that the individual workers ever did was to make an honest living and try to take care of their families. These are hard working blue-collar guys who have been neglected. I speak their language and I fight their fight.” Dr. Flores explains that his own children and family have helped him to become a compassionate physician. “My family has given me the greatest insight into the patients’ family members and how they are affected when the center of your family gets stricken with this disease. It allows me to not only help them surgically but emotionally through this process.” Expressing great optimism for the future of treating mesothelioma and other asbestos-related diseases, Dr. Flores shared, “I hope for us to find a cure for this disease surgically I can see that we are within millimeters of curing this disease. We just need something to get us past that threshold.” ADAO congratulates Dr. Flores on all of his important and powerful achievements and thanks him for the time and energy he puts into raising awareness about asbestos. ADAO recognizes Dr. Flores for continuing Dr. Selikoff’s important work and advocacy and believes she is highly deserving of receiving this prestigious Dr. Irving Selikoff Lifetime Achievement Award.
Dr. Irving Selikoff Lifetime Achievement Award Marie-Claude Jaurand, PhD Marie-Claude Jaurand, PhD is recognized with the 2017 Dr. Irving Selikoff Lifetime Achievement Award in honor of her tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases. Dr. Jaurand is the Director of Research at the Institut National de la Santé et de la Recherché Medical (INSERM) in France, and formerly worked on the physicochemical properties of asbestos fibres. She further developed alternative methods to animal experiments, especially using mesothelial cells, in order to investigate the mechanisms of action of asbestos on pleural cells. Dr. Jaurand’s research mainly focused on genotoxicity. Later she moved to develop research on the biology of human mesothelioma. She organized the First International Mesothelioma Conference at which the International Mesothelioma Interest Group (IMIG) was founded. Dr. Jaurand counts her pioneering position with IMIG among her greatest accomplishments to date. Dr. Jaurand first met Dr. Selikoff in 1990, in New York at the meting he organized on The Third Wave of Asbestos Disease. “Dr. Selikoff was an inspirer of my work on asbestos and I have respect for the work he did along his scientific life, which covered both fiber exposure and human health, and socio-economic issues,” Dr. Jaurand said. “I am among those who have been alerted by the data that he and his team published. I hope that my scientific life also progresses to improve knowledge of asbestos toxicity and of mesothelioma.” Working on asbestos disease issues in France, a country, which banned asbestos long ago, has given Dr. Jaurand unique insight into asbestos policy and the prevention work that must continue even after a ban. “Even thirty years after ban the diseases remain. Measures should be taken as soon as possible and this also means that a continuous surveillance is needed on all asbestos-related diseases.” International leaders like Dr. Jaurand, who are willing to share their experience and expertise with other countries, are invaluable to the global ban asbestos movement. “The [more] information the movement will get on asbestos linked situations and preconized solutions on an international basis, the [more] arguments it can give and the most convincing it will be,” Dr. Jaurand said. ADAO congratulates Dr. Jaurand on all of her important and powerful achievements and thanks her for the time and energy she puts into raising awareness about asbestos. ADAO recognizes Marie-Claude for continuing Dr. Selikoff’s important work and advocacy and believes she is highly deserving of receiving this prestigious Dr. Irving Selikoff Lifetime Achievement Award. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
Dr. Irving Selikoff Lifetime Achievement Award Dr. Bruce Robinson Bruce Robinson, MD, is recognized with the 2017 Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing awareness about the hazards of asbestos and to eliminate its associated diseases.
The University of Western Australia.
Recognized internationally for his work in the field of asbestos-induced cancer, Dr. Robinson counts Dr. Irving Selikoff among his professional heroes, praising his “incisive and carefully done research, which pioneered the field.” He is a Professor of Respiratory Medicine at the School of Medicine and Pharmacology QEII Medical Centre Unit at the
Professor Robinson published the world’s first blood test for the diagnosis, monitoring, and early detection of mesothelioma, conducted the first cancer immuno-gene therapy trial using vaccinia-cytokine vectors, and initiated seven other world-first tumor therapies. He has made a number of other major discoveries regarding how the body’s immune system fights against cancer that have formed the basis of many grants, papers and clinical trials. When presented with his accomplishments, though, Professor Robinson is sure to share the credit. “I am proud of the team that has worked together for many years in the National Centre for Asbestos Related Diseases in Perth – a brilliant group of talented and dedicated individuals that has undertaken all of this work.” Professor Robinson started his career studying immunological lung diseases, but a sense of duty and a proactive attitude led him to focus more specifically on asbestos diseases. “When a tsunami of cases came through our hospital doors (we have the highest incidence of mesothelioma in the world) plus the sense of hopelessness about the lack of treatment, I decided to rededicate my efforts towards mesothelioma,” he said. Professor Robinson has high hopes for the future of treating asbestos-caused diseases. “Immunotherapy is going to work,” he said. “We are about to start a new clinical trial based on identifying the mutations in mesothelioma and giving vaccines to patients that consist of these mutations, with the goal of forcing the immune system to mount an attack on the tumor.” ADAO would like to congratulate Professor Robinson on receiving ADAO’s 2017 Dr. Irving Selikoff Lifetime Achievement Award and thanks him for all of his important and powerful achievements and for his time and energy into raising awareness about asbestos. ADAO recognizes Professor Robinson for continuing Dr. Selikoff’s important work and advocacy and believes he is highly deserving of receiving this prestigious award. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 Tribute of Inspiration Award Safer Chemicals, Healthy Families Safer Chemicals, Healthy Families (SCHF) is presented with the 2017 Tribute of Inspiration Award for its unrelenting efforts in Washington, DC to protect public health and the environment from asbestos and other toxic chemicals. The Safer Chemicals, Healthy Families coalition is staffed by a seasoned group of organizers that make up the Kitchen Table Campaigns team, which work to improve public health and well-being through research, analysis, public education and advocacy. SCHF emphasizes public education and strategies that blend traditional grassroots organizing with online communications, rapid response articles to new science and policy updates and building coalitions that merge diverse organizations and businesses. SCHF has been instrumental in writing and passing the Lautenberg Act, a landmark piece of legislation that strengthens the U.S. Environmental Protection Agency’s capacity to regulate toxic chemicals. One of the greatest strengths of Safer Chemicals, Healthy Families has been its capacity to build, sustain, and guide an unbelievable network of partners. The coalition boasts of more than 450 diverse and fragmented member organizations that the SCHF team has managed to mold into a cohesive unit with unforgiving advocacy power. The entire team exhibits incredible vision, discipline, and organization in their ability to keep all organization members on the same page and fighting together. Throughout the passage of the Lautenberg Act reforms, EPA prioritization, and the early stages of TSCA implementation, they have kept the coalition up-to-date with regular strategic conference calls and have helped organize direct action efforts. But, in true collaborator fashion, Safer Chemicals, Healthy Families is quick to pass the credit when asked about being honored with the Tribute of Inspiration Award. “Safer Chemicals Healthy Families really should be honoring ADAO. The real life stories that your activists have been so generous in sharing, coupled with the scientific evidence that you bring to your Congressional briefings are two of the keys to stopping a very weak TSCA reform bill, and helping to deliver a law that, while far from perfect, gives EPA new important tools, responsibility and authority to protect our communities from dangerous chemicals.” ADAO would like to congratulate and thank Safer Chemicals, Health Families for all of the strides it has made to protect Americans and the environment from asbestos and other harmful toxins through smart advocacy and strong collaborations. Your contributions to the ban asbestos movement in the U.S. are invaluable, and ADAO is honored to be a coalition member and partner in prevention. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 Tribute of Unity Award Associação Brasileira dos Expostos ao Amianto The Associação Brasileira dos Expostos ao Amianto (ABREA) — the Brazilian Association of People Exposed to Asbestos — is the recipient the 2017 Tribute of Unity Award for its relentless effort to protect public health, ban asbestos, and increase public awareness about the danger of asbestos. ABREA was founded in São Paulo, Brazil, in 1995 by former asbestos workers from several Brazilian companies. ABREA’s mission is to: expose Brazil’s asbestos problem; conduct medical examinations of asbestos victims; help asbestos victims and families receive compensation; inform consumers about the risks of asbestos exposure and recommend safer substitutes; and fight for a comprehensive asbestos ban in Brazil. ABREA is organized in 5 Brazilian states and represents thousands of asbestos victims in several class action lawsuits. The association also acts as amicus curiae in legal actions in Brazilian Courts. ABREA is a non-profit, non-governmental organization as well as a public interest group in local, state and national levels. According to ABREA President, Fernanda Giannasi, ABREA’s incredible work is inspired by “the indignation in knowing that there are people and families suffering and dying of asbestos-related diseases, completely abandoned because of the greed of certain individuals as well as the lack of social commitment of most of our policy makers.” ABREA has succeeded in creating a wide social coalition to combat asbestos in Brazil, rallying judges, prosecutors, politicians, unionists, religious groups, victims, families, journalists and academics. The organization has successfully pushed 7 of 9 asbestos-cement companies to switch to safer substitutes and works to get asbestos victims the highest possible compensation. Expanding unity, ABREA held its first international conference in 2016, which was funded via the “polluter pays principle”, hosting the national gathering of asbestos victims and their families. “The international solidarity and mutual support are fundamental to empower the grassroots to fight locally against the asbestos lobby,” said Fernanda Giannasi. ADAO strongly supports ABREA’s efforts and is proud to call them a partner in the effort create a world free of asbestos to improve the world’s health. We salute ABREA for its leadership, innovation, and commitment to protecting public health, and congratulate them on its Tribute of Unity Award!
2017 Alan Reinstein Award
The Mattmuller Family The Mattmuller Family is recognized with the 2017 Alan Reinstein Award for their commitment to education, advocacy, and support to countless patients and families. Jessica and Mike Mattmuller joined the ADAO family in 2012, after Mike was diagnosed with mesothelioma at just 29 years old. Together, Mike and Jess have poured incredible energy into fighting for an asbestos-free future. Jessica is a graphic designer who lends her talents to ADAO’s digital campaigns. Mike has traveled to Washington, DC on several occations to share their moving story with Congress. He also serves as Co-Director for ADAO’s State Leadership Team Eastern Region. Along with their beautiful new daughter, Riley Jean, the Mattmuller family serves as a beacon of hope and a source of support for the ADAO community. Mike’s diagnosis couldn’t have come as more of a shock to the then-newlyweds. They were so young, and asbestos was the last thing on their minds. “We had seen the commercials on TV but didn't understand what it truly was. Also we thought it was a disease that affected older people.” The two have since made boosting awareness and working toward a ban their joint mission. The birth of their daughter in 2016 motivated them to fight even harder to protect today’s children and future generations. “It truly has put everything into perspective and you realize what is really important in life. It scares you more though because you worry more about the future for your child. We need to get asbestos banned now so that we can save future generations from the pain and suffering we've endured that no one should have to.” Volunteers are the heart and soul of ADAO — from the time and energy they generously dedicate to the personal stories they share, and there are no finer examples of superstar volunteers than Mike and Jess Mattmuller. When asked how they felt to be honored with this award, they responded that they were “are deeply humbled, grateful and honored,” but truly — it is we who are humbled, grateful, and honored to know and work beside these two wonderful advocates. ADAO would like to congratulate the Mattmullers on receiving ADAO’s 2017 Alan Reinstein Award and thank them for all of their contributions and efforts for the benefit of asbestos victims around the world. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org
2017 Alan Reinstein Award
The Dioguardi Family The Dioguardi Family is recognized with the 2017 Alan Reinstein Award for their commitment to education, advocacy, and support to countless patients and families. The Dioguardi Family, after being faced with a death sentence when their patriarch, David, aka “SuperDad”, was diagnosed with mesothelioma in 2011, sought information and advice to aid in SuperDad's battle. After much research they soon realized that raising awareness and supporting organizations that do so, such as ADAO, was critical to prevention. As part of their continued effort, both personally and via their non-profit Mesothelioma Heroes Foundation, they have held two neighborhood awareness and fundraising events, participate annually in ADAO conferences and the Miles for Meso 5K, and founded a local Mesothelioma Support Group. In conjunction with ADAO, they continue to educate others about the risks of exposure and work toward a complete ban of asbestos. “If we help one family avoid exposure and, thus, avoid this horrible disease, our efforts will have been worth it,” the family said of their foundation and advocacy work with ADAO. “If we help one family faced with mesothelioma find a treatment that extends their quality of life, our efforts will have been worth it. If we help fund one piece of research that leads to a new or better treatment, our efforts will have been well worth it.” The Dioguardis say SuperDad is and always will be their source of inspiration and strength for their tireless advocacy. “His positive attitude, courage and strength in the face of a very difficult diagnosis inspired us to help others. In fact, David himself wanted to help others affected by this disease in any way he could and welcomed any opportunity to educate others about their risks of asbestos exposure. He truly led by example, as he did in so many aspects of his life.” Sadly, SuperDad, a retiree from the Chicago Police Dept. and the Cook County Sheriff's Dept., lost his battle with mesothelioma in July 2016. Like so many Americans and people around the world, the Dioguardis were totally unaware of the dangers of asbestos before David’s diagnosis. They said they only knew “what we saw on TV. We didn't realize that we are ALL at risk of exposure every day, both in our homes and at our jobs. We also didn't realize how an exposure at a very young age could result in mesothelioma as many as 50 or more years later as happened with David.” ADAO would like to congratulate the Dioguardis on receiving ADAO’s 2017 Alan Reinstein Award and thank them for all of their contributions and efforts for the benefit of asbestos victims around the world.
Asbestos Disease Awareness Organization sincerely thanks our official 2017 Sponsors for their steadfast commitment to the prevention of asbestos-related diseases through their generous donations.
ADAO Conference Sponsors •
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EARLY LUCARELLI SWEENEY MEISENKOTHEN
ADAO Conference Event Hosts
Conference Lunch Saturday, April 8
Unity and Remembrance Brunch Sunday, April 9
LONG AGO, WE PLANTED OUR ROOTS IN ASBESTOS LITIGATION
CAUSES, NOT JUST CASESÂ®
Asbestos & Mesothelioma Occupational Disease Chemical Flavoring Exposure Wrongful Death & Catastrophic Injury Medical Drugs & Devices Aviation and Transportation Vehicle Defects & Recalls
. . . AND WE KEEP GROWING.
Saluting 2017’s honorees and supporting ADAO’s continued efforts toward improved rights and protections for asbestos victims
1.800.923.4237 401 9th St. NW, Suite 1001, Washington, DC 20004 SC | RI | CT | NY | WV | DC | LA | MO Nathan D. Finch (DC, VA) and Anne McGinness Kearse (DC, SC, WV) are the attorneys responsible for this communication.
ADAO 2017 Conference Events
The Asbestos Disease Awareness Organization sincerely thanks
for Hosting the Friday Night Potomac River Dinner Cruise
in loving memory of Tom
Photographer Dave Friedman
A letter to S Steve teve I think about y much unfinishe ou every day. We still have d h Meso stole y business, even after all th ave so ou es many others. r life, our life together a e years. nd A world will cha DAO and an educated, co too nge this very n soon......Love cerned , Barbi
“ My dad was everything to me and most of all he was my best friend. His character, trustworthiness and dedication made him a wonderful role model. If only money could bring better health, he would be with us today. I support ADAO and their efforts to ban asbestos. We all must work together in this fight. ADAO has my continued support in making everyone aware of this deadly disease.” — Billy Ray Cyrus
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the Warren Zevon â€œKeep me in Your Heart â€? Memorial Tribute and the ADAO for their continued e f f ort s i n r a i s i n g p u b l ic awa r e n e s s on the dangers of asbestos e xposure
In Loving Memory of Alan Reinstein 1939 â€“ 2006
Unforgettable Husband and Father Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past ten years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is for-ever etched across our hearts, and we feel your love.
Linda and Emily
Bill Shields 1943-2004
Husband, Father, Friend
You are never forgotten and you were an inspiration in founding ADAO â€“ so that all victims may have a voice. Your spirit still soars on the wings of a seagull, and our memories will always keep you alive in our hearts, minds and souls forever. From your loving family and friends
Love and Miss You In Memory of Clarence Borel
1912-1970 I still miss you each day. Your kindness, thoughtfulness and love of God will be with me always. I appreciated the advice you would have for me. You were a great example as a husband and father. You were respected and looked up to by every man we ever worked with. Miss you, Bracy
In Memory of Joe Amento, Jr. June 19, 1950 - July 26, 2003 Ambler, PA There are many things I miss about my Dad. One thing is the smell of him when he walked through the backdoor. I also miss his optimism. He was also happy and always told me, no matter how bad the situation that everything was going to be alright. I also miss having fun with him. He always made me laugh whenever I was unhappy; he always let me win no matter how much my Mom disagreed to it. There are also experiences I never got to share with my Dad. We never played a real game of tennis together (I learned recently that he was a tennis coach). I’ve been taking tennis lessons, and it would be great to have him as my tennis coach. He taught me to play chess when we were visiting my Great Our Family Picture, Christmas 2002 Uncle Jimmy. I have learned so much about chess in the 5 plus years since he’s been gone. I’d bet that if we played chess today, he would probably move his Queen right next to my Rook so that I could take it. I miss you Dad. Love, Your Son, Joe (2009)
What can I say about my Dad? I could go on for eternity explaining to you how amazing my Dad was. He still is. I swear he is an angel sent from heaven above to be with us. I still can't get over how lucky we were to have him. I did't deserve to have his goodness. I couldn't have asked for a better father. He was a saint. I can imagine him now: St. Joseph Amento, Jr. My Dad was the best father and husband in the world. Although I only knew Dad for 8 years of my life, I have to say those were the greatest years of my life. He made me who I am today. Sometimes I still think how unfair it is, how utterly wrong it is to have him gone. I know heaven really needed him up there but couldn't heaven have waited until he walked me down the aisle? I can imagine it. He'd be whispering in my ear, "My baby doll." We'd both be crying as he led me to the man of my dreams. I know my husband-‐to-‐be would have felt as if my Dad were his Dad too because my Dad made everyone feel that way. He had room in his heart for everyone. He did. He would have gladly shared his love with everyone. He was such a good man. He would have opened his arms to the asbestos CEOs and forgiven them for killing him. I'm not even kidding. My Dad was the best baseball player ever. He was even better than Mickey Mantle and Scott Rolen. He was a better basketball player than Michael Jordan and Yao Ming combined. He was a better coach than anyone I have ever known. I can't remember when there wasn't a huge smile on his face when he was coaching. He never stopped helping kids and giving them advice. He never ever yelled at kids. I think he'd rather stop playing baseball himself then ever do that. Baseball was his all time favorite sport and he taught me even when he was sick. I swear I was better when I was 8 years old than I am now. I still play softball in his memory and I know he is cheering me on. He taught me all there is to know about softball and I was a pro when I was 8. He was the perfect coach and I know that there was not one time that any kid was ever mad or afraid of him. My Dad never played favorites during a game. He played every person
equally even when some of the other kids weren't very good. He'd say at first base you were doing great. He gave the whole team confidence. I love you, Dad, and I miss you. Love, Your Daughter, Julie (2009)
Larry Davis 2012 The Alan Reinstein Award Honoree
Larry has boldly and tirelessly worked to ban asbestos and fund research for a cure. His Miles for Meso events have taken the fight against mesothelioma to the streets, and has made a difference to many lives in the United States and around the world.
A life ended way too soon. Husband, Father, Lover and Friend Our lives will never be the same. I will love you forever. ~ Lisa ~
John was just getting ready to retire when he got the death sentence that he had asbestos caused mesothelioma. After the shock of the news, we tried to make the most of the time and spent every minute of every day together.
05/04/1946 ~ 09/22/2013 DIAGNOSED 08/10/12
Today, I still miss his touch, holding hands, feeling his arms around me and that kiss each morning to start the day. Asbestos has ended Johnâ€™s life ~ & in some ways, it has ended my life as well. There is an emptiness that will always be present in my life and I will forever miss my wonderful, loving husband. Not a day passes that he isnâ€™t on my mind. My heart aches every single day and I am lost without him. I love you John & I will miss you everyday for the rest of my life.
A Lifetime Away The leaves have fallen from the trees And summer days are gone. Lingering twilight in the chilling breeze And the end of the robin's song.
June 21, 1956 â€“ October 17, 2009
All of my life I searched for you Not knowing it until that day When you appeared out of the blue After almost a lifetime away. Somehow we knew that time would fly And yet we embraced our love. We had time to laugh and sometimes cry And we thanked our Father above. We now had hope for each new day And each other to comfort at night. You always had something tender to say And made everything seem all right. When sickness came and would not leave With courage I watched you fight. We prayed each day and tried to believe That somehow it would be all right. But time was slipping away... Faster each day, it seemed. With dignity and grace you continued to pray And at night, of Heaven, we dreamed. Heaven is where you are, its true, Above the storm clouds and rain, Where the sky is so eternally blue And there is no more sickness or pain. Time is passing still faster each day And at night I miss holding your hand, But I remember you taught me to pray And to believe in the Promised Land. The trees will be dressed in leaves so new And summer days will re-appear. Twilight will become the eternal blue And the robin will sing so clear. It is a great comfort to know that you Are not really so far away, And you will appear out of the blue, After almost a lifetime away. ÂŠ By Anonymous
Raymond F. Hoover diagnosed March 12, 2008 with malignant pleural mesothelioma due to asbestos exposure.
Don McNamara 1951
IN MEMORY OF DON & ALL AFFECTED BY ASBESTOS He had a laugh you'll never forget...loved to joke & give people a hard time but was always there for friends family & strangers. Carrie McNamara
TODD HALL Lexington, KY 1967-2006
In Todd’s memory, his family initiated legislation for September 26th to be recognized as Mesothelioma Awareness Day annually in KY. KY SB62 passed in 2010.
Todd was most known for his loving and genuine personality. He was always willing to lend a hand to those in need, never expecting anything in return. Todd possessed an infectious smile and led an adventurous life. Mesothelioma ended his zest for life and adventures much too soon, leaving a void for those who loved him. He battled mesothelioma valiantly. Thanks to ADAO for the opportunity to promote the ban of asbestos in Todd’s memory. Nothing is as tragic as losing someone you love to a preventable disease. Todd’s Family & Friends
John Schaffer 1941 â€“ 2016
The world lost a most wonderful person December 4, 2016 and I lost my wonderful, loving husband all because of Mesothelioma cancer caused by asbestos. He fought the fight for 2 1/2 years, never giving up, enduring so much, even though some days I know it was so hard for him and he worried about me and not himself. That is just how John always was. When he started getting worse in November and he went on home hospice care, we both knew that our time together was soon coming to an end. His heart was strong and he did fight it - they say that a dying person always holds out for only one person, and that person was me - we had such a great loving marriage. I told him over and over that everything would be okay - the morning he died, he opened his eyes wide and mouthed the words, "I love you" - I kissed him goodbye and he died in my arms. This is something that I will never forget and it is very hard facing each day without him. I miss him so much. More and more people are diagnosed with this horrible cancer every day and it just has to stop.
Gordon Bankhead 1943 – 2011
“Have I Told You Lately That I Love You” Remembering Seven Seventeen Love, Emily
Stan “Swede” Grimberg Union Plumber Local 290/Oregon Mesothelioma Warrior
April 18, 1929 - June 6, 1982
“You are on my shoulder, encouraging me always to move forward, look ahead, work hard, and make the best of what I’m given. I will tell your story Dad, so that other tradesmen and women will not suffer, and their sons and daughters will not lose their parents to deadly asbestos. By volunteering with ADAO I honor you, your fighting spirit, and the injustice our family has endured.” Love you, always and forever your daughter,
n n A
In Loving Memory
JAN EGERTON 1960 - 2014
A true Mesothelioma Warrior who inspired, supported others and continued to raise awareness while fighting her own battle. Jan is sadly missed by her soul mate and much loved husband Gary. She was an adoring Mummy to Lexi and Bear, a beloved Sister and Auntie and a wonderful friend to many others around the world. An angel who is loved so much - spread your wings â€“ and fly now that you are without pain.
Remembering Kenny Beer 1950 - 2011
Not a day goes by that we don’t think of you You brought happiness to every life you touched. We shared our love of family & friends…….our passion for golf, fine wine and our great joy in spending time together…… we had so much more life to live. Our family’s center…… forever loved & missed Love always Marli & Stewart, The Beer & Stewart families Together we can make a difference by supporting the Asbestos Awareness Disease Organization….. thanks for all you do to raise awareness and your dedication to the fight to ban asbestos use worldwide.
Giuseppe Manfredi Former AFeVA President
1949 â€“ 2016
Giuseppe taught us courage and love for life. With his experience with asbestos illness, he showed the dignity of the victims and supported those affected by the same tragedy. Respectfully,
Giuliana Busto AFeVA President
IN LOVING MEMORY JALAL (JJ) SEGMEN
MESOTHELIOMA WARRIOR 06/21/1955 – 08/31/2007
ð Your gentle face and patient smile With sadness we recall, You had a kindly word for each And died beloved by all. The voice is mute and stilled the heart That loved us well and true, Ah, bitter was the trial to part From one so good as you. You are not forgotten loved one Nor will you ever be, As long as life and memory last We will remember thee. We miss you now, our hearts are sore, As time goes by we miss you more. Your loving smile, your gentle face, No one can fill your empty place.
Daniel Cunningham 1949 – 2016
Dan is the love of my life, and his recent loss is a painful memory of how much I miss him. Dan fought a long and painful battle with mesothelioma with such grace and a “never give up” spirit. He is a shining example to his children, grandchildren, family, and friends who also love and miss him. Love and peace!
ADAO pays tribute to the bravery and strength of…
Michael Bradley 1984 -‐ 2014
“Not only am I fighting asbestos related cancer, but I am putting myself on the frontline in the battle against the mining and use of asbestos.” -‐ Michael
“Three years ago today I took my son Michael Bradley to the hospital in awful pain. This was the start to a long painful journey that ended April 24, 2014. Michael suffers no more. Our pain remains. All because of asbestos that was preventable. I love you Michael.” -‐ Sandra Neuenschwander, February 14, 2015
Robbie Cagle Meso Warrior July 22, 1965 – September 11, 2011
There are so many things that I would like to say about this wonderful man but there is just not enough room. He was my Soul Mate: a very dedicated and loving husband, friend, father, son, brother and most recently a grandfather. He absolutely loved to fish, ride his Harley and play golf. Rob could tell a story like no one else I know. He was such a people person and never met a stranger. He had a smile and one of those personalities that just lit up a room. Loved lending a helping hand. In fact, the night before he was placed in hospice care, he was DJing for a benefit. The courage that he displayed through 6 years of mesothelioma and too many chemo treatments to count, was such an awesome example for others and a true testament to his life. Encouraging others till the end he affected and infected so many people’s lives. Rob was an advocate for fighting this disease and the total ban of asbestos. This disease took his life but it never ever took his spirit and passion for living. He never gave up. I believe he would want to say to those battling this nasty disease:
Don’t give up!! Live Every Day!! Love with your whole heart!! Keep fighting for a ban and a cure!! and as only he could say...
“It’s All Good!!!" Rob, You will be missed more than words can describe. See you in heaven. Love, Jill
Susan Hall 1941 â€“ 2016
Susan Hall: mother, grandmother, wife, friend, nurse, volunteer, activist, folkie, great birthday card giver Haileybury, Montreal, Newfoundland, Tanzania, Nepal, and Winnipeg.
Dorothy, for the Birthday Brunch gang
Winona Belle Esposito 05/19/24~~~06/30/09 Life was good for my Mom. We talk everyday, sometimes more than once. Mom had her children, grands, great grands and great great grands that would visit her in Spencer, MA. On February 21, 2007 my Mom was diagnosed with Mesothelioma caused from asbestos. We had never heard of Mesothelioma and we certainly learned with her first visit to her oncologist that chemotherapy would begin and there was no cure to this horrible disease. My mom was living in MA and I was in VT. It was a 3 hr drive one way and I was the one responsible for taking Mom to appointments. After awhile it was too much and I decided to move her to Vermont. This was a huge change for her after living her whole life in MA away from all her family. I did what was in the best interest of my Mother and her quality of life. I have a lot to be thankful for ~ my Mom showed me love, how to garden, to respect nature, to sew and to cook ~ all the things a loving Mother teaches her children. Sometimes we would go into the woods to look for “lady slippers” so Mom could transplant them into her beautiful shade gardens. I loved to listen to Mom’s stories of her childhood as well as learn about her heritage. My Mother was everything to me and not a day goes by I don’t think of her in one way or another. Every time I hear a bird, as she would whistle with them, or see a frog of some sort I am reminded of my wonderful Mom. There is a hole in my heart and a void that will never be filled.
Stephen W ride 1947 â€“ 2016
Soulmate, father, brother, uncle, friend, artist, photographer, traveler, crossword solver, walking encyclopedia and Meso Warrior for nearly 7 yearsâ€Śwe hold you in our hearts forever, with love. Love,
I nLo v i ngMe mo r yo f Bi l lBo o ne
Bi l lBo o n e ; h u s b a n d , f a t h e r , t a l e n t e da r t i s twi t hag r e a t s e n s eo fh u mo rwh oi sd e e p l y mi s s e d . . .
Lo v eAl wa y s , Et t a , Do n n a , Ki m, Ra ya n dPa r k e r
Bill was a wonderful husband, soul mate, best friend, best dad of 3 grown sons, big brother to 9 siblings, favorite uncle to many nephews & nieces, and beloved grandfather. He loved collecting Coca-Cola memorabilia and was an avid collector of Ford Motor Co. artifacts, where he retired in 2012 after 46-years of dedicated service. Bill spent many trips scouting for pieces to add to his collections and so looked forward to spending retirement years traveling the country and the world and sharing many adventures with his wife, 3 sons and granddaughter. However, that was not meant to be; he was diagnosed with cancer in May-2013 with surgery in July-2013 and 3 chemo treatments in August-2013. He passed away in Sept-2013. He was funny, loving, and the kindest person you could ever hope to know. We dearly miss him and will forever love him until we can be with him again someday. You are forever in our hearts Bill. All our love, Dearest family & friends
Andrew Schneider 1942 â€“ 2017
Andrew Schneider was a preeminent investigative journalist who was relenteless in covering asbestos issues, famously exposing the Libby, Montana crisis. Our lives have been forever changed because of his tenacity, fearlessness, and his pen. As a true legend, he will live on through his work and remain in our hearts. As Dr. Richard Lemen said, "Well done, Andy, the life you chose and lived has made our world a better place.â€? With love and sadness,
The ADAO Family
The Asbestos Disease Awareness Organization thanks
Barbara Minty McQueen for her commitment to ADAO, support on the Hill, and generous donation of autographed copies of her beautiful photographic memoir Steve McQueen:
The Last Mile Revisited.
Visit www.barbaramintymcqueen.com to view photos of Barbara with her late husband Steve McQueen and order copies of her book.
Asbestos Disease Awareness Organization sincerely thanks
HEATHER VON ST. JAMES’
MICHAEL’S MISSION to Strike Out Meso
Rockin’ for Meso for generously supporting our education, advocacy, and community support efforts Alone we can do so little; together we can do so much. ~ Helen Keller
The Asbestos Disease Awareness Organization is the Proud Sponsor of Earl Dotter’s “BADGES: A Memorial Tribute to Asbestos Workers” Exhibit Honoring U.S. Senator Barbara Boxer, Ban Asbestos Champion
Posters on Sale in Support of the Asbestos Disease Awareness Organization
Thank you, Sarah McOnie and the McOnie Agency!
Your support for the 2017 Global Asbestos Awareness Week (GAAW) helped make it the best year for education and awareness. Hear Asbestos. Think Prevention.TM Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 (310) 251-7477 www.AsbestosDiseaseAwareness.org
We specialise in industrial, occupational health, safety and environmental public relations. This year we have joined forces with ADAO to support the excellent work done to raise awareness of the dangers of asbestos by promoting “Hear Asbestos? Think Prevention!” around the world via our international network. Awareness can only be achieved through good communication and partnerships – we are thrilled to be joining the conversation with ADAO.
corporate communication media relations crisis communications public affairs social media reputation management internal communications
The Asbestos Disease Awareness Organization sends our sincere appreciation to nearly 1,000 Miles for Meso racers, donors, and volunteers who generously gave to support our education, advocacy and community support efforts. Save the date for the 9th annual Miles for Meso race on September 30, 2017.
A national effort to protect families from toxic chemicals.
The Asbestos Disease Awareness Organization (ADAO) thanks Safer Chemicals, Healthy Families (SCHF), for their powerful advocacy work in Washington, DC. SCHF works tirelessly to protect Americans and the environment from asbestos and other harmful toxins, and was instrumental in passing the Lautenberg Chemical Safety Act in 2016.
Led by Executive Director Andy Igrejas and Legislative Director Liz Hitchcock, SCHF brings together a coalition of more than 450 nonprofit orgnaiztions to form a unified adocacy front. ADAO is proud to be a member of the SCHF coalition, and thanks Andy, Liz and the whole team for their collaborative efforts. saferchemicals.org
The Canadian Mesothelioma Foundation is proud to be part of the Asbestos Disease Awareness Organisation 13th annual conference. We welcome all the conference delegates and offer best wishes for an interesting and productive meeting.
Ban Asbestos Canada is proud to stand in solidarity with the Asbestos Disease Awareness Organisation to call for an asbestos-free world.
Congratulations to all the 13th annual conference delegates, activists and honorees for their dedication, work and support in the movement towards an end to the use of asbestos. banasbestoscanada.ca
THANK YOU, ADAO, FOR LEADING THE CHARGE AGAINST ASBESTOS!
(Y'all Are Our Heroes)
- A Case for Women
Women Helping Women Transform Their Lives Through Powerful Legal Action ACASEFORWOMEN.com
The Brazilian Asbestos Victims Association (ABREA) salutes the ADAO 13th Annual International Asbestos Awareness and Prevention Conference participants and congratulates the honourees for their outstanding contributions to an asbestos-free world and justice for the victims worldwide.
-Your friends and partners at ABREA
Asbestos Diseases Foundation of Australia is proud to be part of the th 13 Annual International Asbestos Disease Awareness Organization Conference
Asbestos Diseases Foundation of Australia (ADFA) is a not-for profit organisation working to provide support to people living with asbestos related diseases, family members, carers and friends. ADFA is a community based group founded by Trade Unions, victims, families of victims, and concerned citizens to meet the needs of people affected by asbestos related disease and has a long history of being engaged in advocacy work within the Australian community. www.adfa.org.au
ENVIRONMENTAL INFORMATION ASSOCIATION The Associationâ€™s multi-disciplinary membership will collect, generate and disseminate information concerning environmental health hazards to occupants of buildings, industrial sites and other facility operations.
EIA Salutes the work of our partner organization, ADAO And we wish you the best of luck in your 2017 endeavors. We appreciate the partnership between our organizations, and look forward to working together to bring an end to the needless dangers of asbestos exposure.
The Environmental Information Association, with its beginnings as the National Asbestos Council, has spent over 30 years at the forefront in providing the environmental industry with the information needed to remain knowledgeable, responsible, and competitive in the environmental health and safety industry.
EIA is holding its 34th Annual Conference, March 25-29, 2017 at the Rosen Shingle Creek in Orlando, Florida! The EIA National Conference is the best source of technical information for Environmental Health and Safety Professionals, in the areas of Asbestos, Lead, IAQ, Mold and EMS/ESA. ENVIRONMENTAL INFORMATION ASSOCIATION 6935 Wisconsin Avenue, Suite 306 Chevy Chase, MD 20815 www.eia-usa.org Phone: 888-343-4342 Fax: 301-961-3094 Email: email@example.com
“Hear Asbestos. Think Prevention.”™ Global Asbestos Awareness Week (April 1-7) brings experts, trade unions, activists, advocates, and asbestos victims together to raise awareness in efforts to prevent exposure and eliminate deadly asbestos-caused diseases. Day ONE – April 1: World Health Organization and Elimination of Asbestos-Related Disease “I Will Not Die in Vain” – Day One Ambassador: Lou Williams, Australia Day TWO – April 2: Art-Based Advocacy Puts Asbestos Awareness in the Spotlight “I fight on for all our Meso Warriors past, present and future.” — Day Two Ambassador: Mavis Nye, UK Day THREE – April 3: Preventing Asbestos Exposure || “Hear Asbestos. Think Prevention.” “We Live Each Day with Passion and Fun” – Day Three Ambassador: John Panza, Ohio, US Day FOUR – April 4: Asbestos Awareness Week Champions of Change “The Value of My Life in Dollars and Tears” – Day Four Ambassador: Heather Von St. James, Minnesota, US Day FIVE – April 5: International Workers’ Memorial Day – April 28 “Staying Positive” – Day Five Ambassador: Mike Mattmuller, Maryland, US Day SIX – April 6: APHEDA Campaign “Asbestos: Not Here, Not Anywhere” “Someone Pulled the Emergency Brake!” — Day Six Ambassador: Sara Babin, France Day SEVEN – April 7: Candle Light Vigil to Honor and Remember Asbestos Victims Worldwide “Love is Stronger than Cancer” – Day Seven Ambassador: Daniel Pineda, Colombia
GBAN GLOBALBAN ASBESTOSNETW ORK COMMUNI CATI ON. COLLABORATI ON. ACTI ON s oci almedi acommuni t y
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www. gban. net www. f acebook. com/gbanAs bes t os
e s a e s i D s o t s e y c b s a A c r o o v F d d A , e t i n n o i t U a c â€œ u d E t r , â€? o s s p e p n u e S r y a t i n Aw u m m o &C
The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318, Redondo Beach, California, 90278 (310) 251-7477 Registered 501(c) (3) nonprofit organization
cooking is love Keeping Families Together
– A Recipe for Life – Start with a loaf of HOPE Add a dash of RESILIENCE Season with a pinch of ENDURANCE To live with the challenges of an asbestos-related disease Sprinkle liberally with DETERMINATION And a handful of SPIRIT Cover with COURAGE And always serve on a bed of FAITH Nestled in a platter of LOVE * Poem courtesy of the Center for Asbestos Related Disease
To receive a copy of our new cookbook, please contact firstname.lastname@example.org
If you or a loved one have been affected by asbestos and asbestos-related diseases, please share your story. These stories provide hope and comfort to those in similar situations and can spread awareness of asbestos in order to save lives.Â
ADAO’s 13th Annual International Asbestos Awareness and Prevention Conference http://bit.ly/1salI6Y