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ADAOȱ2012ȱAnnualȱInternationalȱAsbestosȱAwarenessȱConferenceȱAgendaȱ ȱ

Asbestos: An International Public Health Crisis

ȱ ȱ FRIDAY, MARCH 30, 2012 4:30 - 5:30 PM Private Gathering for Family, Patients & Caregivers (By Invitation Only) 6:30 - 8:00 PM

Private Speaker, Honoree, and Sponsor Party (By Invitation Only)

SATURDAY, MARCH 31, 2012 8:00 - 8:30 AM Registration and Continental Breakfast 8:30 - 8:45 AM Welcome and Opening Remarks: Linda Reinstein, ADAO President/CEO and Co-Founder 8:45 - 9:00 AM Dr. Lemen, Dr. Frank, Brent Kynoch, and Christine Winter Session I Asbestos: "An International Public Health Crisis" - Chairperson: Arthur Frank, MD, PhD Linda Reinstein, ADAO President/CEO and Co-Founder, Asbestos - Virtually Invisible, Yet 9:00 - 9:15 AM Absolutely Lethal 9:15 - 9:25 AM Larry Davis, Mesothelioma Patient, Victims Education 9:25 - 9:40 AM Tony Rich, Asbestos: A Photographic Retrospective 9:40 - 9:55 AM Dr. Richard Lemen, International Agency for Research on Cancer (IARC) Dr. Michael Harbut, Asbestos-Related Diseases: Early Signs, Who's At Risk, and What You 9:55 - 10:10 AM Should Tell Your Doctor Dr. Dan Sterman, Novel Treatments for Malignant Pleural Mesothelioma and Other Asbestos10:10 - 10:25 AM Related Cancers” 10:25 - 10:35 AM Ann Samuelson, ADAO Volunteer, Workers' Voices 10:35 - 10:50 AM Celeste Monforton, Asbestos: Still Legal and in Use in the U.S. 10:50 - 11:05 AM Paul Zygielbaum, Victims’ Advocacy: ADAO Product Testing Update 11:05 - 11:20 AM Andy Oberta, Confronting the International Asbestos-Cement Industry 11:20 - 11:30 AM Q&A Session I 11:30 - 11:50 AM Matt Peacock, Keynote Speaker, India’s Toxic Trade U.S. Representative Steve Cohen (D-TN) - Tribute of Hope Award 11:50 - 11:55 AM Actor Steve McQueen - Warren Zevon “Keep me in Your Heart” Memorial Tribute 11:55 AM - 12:00 PM Dr. Arthur Frank -Dr. Irving Selikoff Lifetime Achievement Award 12:00 - 12:05 PM Dr. Richard Lemen - Dr. Irving Selikoff Lifetime Achievement Award 12:05 - 12:10 PM Dr. Joel Shufro - Tribute of Inspiration Award 12:10 - 12:15 PM Associazione Familiari Vittime Amianto (AFEVA) - Tribute of Unity Award 12:15 - 12:20 PM Debbie Brewer - The Alan Reinstein Award 12:20 - 12:25 PM Larry Davis - The Alan Reinstein Award 12:25 - 12:30 PM 11:50 AM - 12:30 PM Awards 12:30 - 1:20 PM Lunch Session II Asbestos: "An International Public Health Crisis" - Chairperson: Richard Lemen, PhD, MSPH Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAOȱ2012ȱAnnualȱInternationalȱAsbestosȱAwarenessȱConferenceȱAgendaȱ ȱ

Asbestos: An International Public Health Crisis 1:20 - 1:35 PM 1:35 - 1:50 PM 1:50 - 2:05 PM 2:05 - 2:20 PM 2:20 - 2:35 PM 2:35 - 2:50 PM 2:50 - 3:25 PM 3:25 - 3:40 PM 3:40 - 3:55 PM Session III 3:55 - 4:05 PM 4:05 - 4:20 PM 4:20 - 4:30 PM 4:30 - 4:45 PM 4:45 - 4:55 PM 4:55 - 5:00 PM

Brent Kynoch, What We Need Now is ENFORCEMENT Christine Winter, Platforms for Asbestos Education,Training, and Partnership Siobhan Doherty, Empowering Asbestos Safety through eLearning Rich Haffey, Protect Yourself and Those You Love Dr .Joel Shufro, Left in the Dust: Ten Years After the Attack on the World Trade Center Fernanda Giannasi, Challenges to a Total Ban of Asbestos in Brazil Panel: Bruno Pesce, Nicola Pondrano, Niccolò Bruna , Eric Jonckheere, and Barry Castleman, Eternit Criminal Trials João Carlos Duarte Paes, Leading by Example - Asbestos Free Cement Q&A Session II Asbestos: "An International Public Health Crisis" - Chairperson: Brad Black, MD Debbie Brewer, Mesothelioma Patient, Victims' Community Alec Farquhar and Sari Sairanen, “A Community and Labour Based Approach to Detecting and Preventing Occupational Disease” Sandy Kinart, Community Support: Hospice Mitch Golant, PhD, Cancer Support Community , Community: Cancer Support Groups Q&A Session III Conclusion

SATURDAY, MARCH 31, 2012 6:30 PM -9:00 PM Saturday Dinner (Entertainment and Silent Auction) SUNDAY, APRIL 1, 2012 9:30-11:30 AM Unity and Remembrance Brunch-Sunday, April 1st Barbara McQueen, Keynote Speaker Leah Nielsen & Stacy Cattran

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


Dear Registrants, Speakers, Honorees, Sponsors, Volunteers and Guests: On behalf of everyone at the Asbestos Disease Awareness Organization, I welcome you to Manhattan Beach for our 8th annual International Asbestos Awareness Conference. This year’s theme is: “An International Public Health Crisis,” and by participating in the 2012 conference and selflessly giving your time, expertise, and support, you are helping to prove this truth. Together, we have worked to make education, community, and advocacy the three pillars that forge an ever-growing base of global support, and you are a critical part of this grassroots movement. This is an exceptionally exciting time for ADAO, as nine different nations have come together for this year’s conference. Looking back at how much has changed since we launched in 2004, I am awe-inspired and increasingly encouraged by the advances we have made together in asbestos disease awareness. It feels great to be back in Manhattan Beach for the first time since 2009, this small town truly knows the meaning of community. There is always someone that will lend a helping hand, and the city council has been a faithful advocate of ADAO, resolutely backing our work. This conference would not be possible without the hard work of so many wonderful people, and I offer my most sincere gratitude to the volunteers, speakers, and honorees here today. Special thanks go out to Executive Assistant Herman Hamilton and our Asbestos Awareness Conference Committee chairs, who have worked for nearly a year to make this event a reality. Brent Kynoch and Tom Laubenthal from Environmental Information Association and Christine and Mark Winters at Independent Asbestos Training Providers have been incredible. Sue Ann Taylor and her Zeel TV team, our ADAO family, rolled up their sleeves to maximize our outreach. Siobhan Doherty has outperformed herself putting together an e-learning module for asbestos safety. Steve McQueen will posthumously receive the Warren Zevon Keep Me In Your Heart award this year; the King of Cool once said, “when I believe in something, I fight like hell for it,” and ADAO is proud to honor his courage by adding this cause to his many affects. We are also thankful to again welcome our National Spokesman for ADAO, Jordan Zevon as we are incredibly honored and lucky to have Jordan’s continued leadership. He brings a true light to ADAO, sharing his compassion and splendid musical talents, and wisdom beyond his years; I feel so blessed to also call him my dear friend. We gather at this time every year because Asbestos Awareness Week offers a beacon of hope for hundreds of thousands of current and future victims of asbestos diseases. 2012 marks our 8th conference, and the 8th resolution passed unanimously by the United States Senate to recognize the importance of asbestos awareness. This year is monumental because for the first time, we celebrate Global Asbestos Awareness Week, welcoming involvement from numerous countries and participants from across the world. We strongly encourage Congress and leaders worldwide to build on the momentum of this week and this conference by promptly enacting a complete ban on asbestos. That is the only way we can hope to eliminate this inexcusable epidemic. Thank you for joining us today. We are a family and this conference is a strong reaffirmation that together, we can create real change. In unity, Linda Reinstein

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


ADAO Science Advisory Board Science Advisory Board Co-Chairmen

Arthur Frank, MD, PhD Richard Lemen, PhD, MSPH

Science Advisory Board Members

Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 • Redondo Beach • California • 90278 • (310) 251-7477 “United for Asbestos Disease Awareness, Education, Advocacy, Prevention, and Community Support” www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Marilyn Amento is ADAO's State Representative for Pennsylvania and Family Tribute Chair. Marilyn is the widow of Joe Amento, Jr. who died of mesothelioma at the age of 53, only 6 months after his first symptom. Joe was exposed to asbestos approximately 40 years prior while visiting his father at one of the several asbestos plants, and playing on asbestos scrap piles in the small borough of Ambler, a Philadelphia suburb. Marilyn has a Master’s Degree in Human Services Management from The Heller School of Brandeis University, and is also the mother of two teens, Joe and Julie. She channels her grief and anger with the asbestos industry by working with ADAO, fundraising, and educating the public about asbestos through her strong Facebook presence. Debbie Brewer was born in Plymouth, England in 1959. She had her first job as a shop assistant in 1976. Since then she went on to get married, twice, and have three children who are her inspiration. In 2006, she lost her beloved dad and was also diagnosed with mesothelioma. This was a shock to the whole family. At the time she was given 6-9 months to live, but was determined to change that. Her daughter, Siobhan, developed a website which allowed Debbie to contact others who were fighting back as well. Through this she met many warriors, and found a research treatment that would stabilize her illness. Debbie continues to support others and works with groups like ADAO to create awareness.

Niccolò Bruna, filmmaker and independent producer, was born in Turin, Italy. Niccolò has been experimenting with the expressive tools of documentary filmmaking since he attended the EICTV School in Cuba in 1998. For the past 14 years, Niccolò has aimed to create quality film productions with human interest and offer a fresh glance on powerful social issues. His films include, My Nigerian sisters, about the difficult conditions of three African girls trafficked to Europe and forced to work as prostitutes, Verso Casa (Homeward), on the difficult return back home in Albania, Nigeria, and Morocco of a group of migrants deported form Europe, Con la Carne de Mi Puerquito (With the meat of my piggy), about the restrictions on food in Cuba, and Tahormina-Taj Mahal, an ironic trip into the Italian-American community of Brooklyn.

Barry Castleman, ScD is an Environmental Consultant trained in chemical and environmental engineering. He holds a Doctor of Science degree from the Johns Hopkins School of Public Health. He has been a consultant to numerous agencies of the US government and other governments, international bodies, and environmental groups dealing with a wide range of public health issues. He has testified as an expert in civil litigation in the US on the history of asbestos as a public health problem and the reasons for failure to properly control asbestos hazards. Dr. Castleman has spent the past 40 years working on asbestos as a public health problem.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Stacy Cattran is a former English teacher who taught in Korea, Tonga, and Canada. After marrying her husband, Dave, and having her first child, she became a stay-at-home mom. Four years ago, Stacy's father was diagnosed with mesothelioma and died two months later. With her three children in school, the time seemed ripe last year to throw herself into the world of anti-asbestos activism. She and her sister organized “A Walk to Remember Victims of Asbestos,” drawing over 500 people on an unseasonably cold day, including ADAO's own Linda Reinstein. Stacy, Leah, and three other women cofounded Canadian Voices of Asbestos Victims. Stacy was most proud of her activism when she helped successfully push for the resignation of an asbestos exporter on the Canadian Red Cross Board of Governors. Larry Davis is a fierce fighter both in the hospital and in Washington DC. Diagnosed in July of 2006, Larry embodies the essence of General Patton’s quote, “lead me, follow me, or get out of my way.” A longtime personal friend and stout ADAO supporter, Larry is a true hero. Both on the hill in DC, and in his home state of Florida, Larry continues to raise awareness, and fund research for a cure. ADAO is truly elated to present the Alan Reinstein Memorial Award to Larry Davis for his commitment to education, advocacy, and support to countless patients and families. Larry also put together the South Florida Miles for Meso Symposium, where friends, physicians, and advocates gather to help spread awareness. He has spent much of his time raising money for mesothelioma research, wanting not only to help himself, but others affected by asbestos-caused ailments. Siobhan Doherty is the Training and Marketing Manager of National Asbestos Training Accreditation Scheme Ltd, a UK based specialist Asbestos Training and consultancy organization that provides services world-wide. Siobhan has worked with the organization for over eight years, and has been actively involved with the Health and Safety Executive, and other stakeholders, in the development of asbestos training standards. Siobhan has been an integral part of the campaign to raise awareness of asbestos on behalf of NATAS, leading the market by way of innovation, namely, NATAS’ Award winning eLearning courses since their inception. She was delighted to receive the coveted British Safety Industry Federation award, for 'Safety Excellence', recognizing major improvements in occupational safety at the Royal Society for the Prevention of Accidents awards. NATAS has developed, along with ADAO and EIA, a free awareness eLearning tool. Siobhan has also project managed the development of an eLearning module to be delivered to the Education industry commissioned by the UK Department for Education for over 10,000 teachers, along with the first UK HSE Training pledge, where over 4,000 hours of free NATAS eLearning was delivered. Alec Farquhar is Managing Director of the Occupational Health Clinics for Ontario Workers. OHCOW is a network of inter-disciplinary clinics in Ontario that focuses on the detection and prevention of occupational injuries and diseases. Alec was formerly Director, Occupational Health and Safety Branch, Ontario Ministry of Labour, responsible for provincial level development of operational health and safety programs, and related partnerships within the prevention system. Prior to that, Alec was Director, Ontario Office of the Worker Adviser (OWA), Ministry of Labour. Alec is a graduate of Princeton Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership University and the University of Toronto, Faculty of Law. Alec has also worked as a community legal worker and staff lawyer in community legal clinics serving injured workers and as senior policy advisor to the Chair of the Workers’ Compensation Board. He has chaired or presented at numerous health and safety and workers’ compensation conferences and learning events.

Arthur L. Frank, PhD, MD is co-chair of ADAO's Science Advisory Board and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has been interested in the health hazards of asbestos for more than 35 years. He has published a great deal of work on the hazards of asbestos, and clinically cared for asbestos effected patients. He has lectured internationally about the problems of asbestos, and worked in many settings looking at the diseases caused by this material.

Fernanda Giannasi, ABREA, Civil and Safety and Heath Engineer, has been a Federal Factory Inspector in Brazil since 1983. During that time she has become a specialist in issues relating to asbestos, nuclear energy and other toxins and carcinogens such as silica. Having been exiled to Osasco in 1995, Ms. Giannasi became aware of a number of cases of asbestos disease amongst the local population. In collaboration with former workers from the Osasco asbestos-cement factories, whom she came to know during her inspections of Eternit’s plant during the 1980s, she began an investigation into the incidence of asbestos-related diseases in the city. She was a founding member of an organization – ABREA – that was set up in 1995 to act as the voice for Brazil’s asbestos victims. For her work on behalf of Brazil’s asbestos victims, she has received death threats and been sued by Brazilian asbestos stakeholders. Various groups in Brazil, the U.S., Japan, and Canada have also honored her.

Freddi Segal-Gidan, PA, PhD is the director of the Rancho los Amigos/USC California Alzheimer’s Disease Center. She is a physician assistant with over three decades of extensive clinical experiences, most of which has been spent caring for older adults with chronic illnesses. She received her doctorate in gerontology as part of the first class of doctorate trained gerontologists in the country from the USC Leonard Davis School of Gerontology. Dr. Segal-Gidan holds appointments as assistant clinical professor in the department of neurology at the USC Keck School of Medicine and at the USC School of Gerontology. She is actively engaged in clinical care, research and training of health professionals, and a strong advocate for geriatric training of all health care providers.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Mitch Golant, PhD is a health psychologist and Senior VP of Research & Training for the Cancer Support Community (CSC). CSC was formed in 2009 as a merger between The Wellness Community and Gilda’s Club, and is now the largest provider of psychological and emotional support for people affected by cancer. He has traveled throughout the world introducing CSC’s Patient Active Concept to international thought-leaders and psychosocial oncologists. He has been with CSC for over 28 years, where he supervised and trained CSC’s professional clinical staff and has facilitated over 6,000 support groups for people with cancer. He also trained over 400 professionals nationally and internationally in CSC's Patient Active Support Group model. Dr. Golant is widely recognized as a pioneer in the use of information technology in cancer education and support through the delivery of online support groups. He has presented globally on CSC’s Patient Active programs and evidence-based research. Currently, he heads CSC’s Cancer Survivorship Research & Training Institute, the first community-based survivorship research institute in the United States. He has previously served on the Board of Directors for the American Psychosocial Oncology Society. In October 2011, he received the Los Angeles County Psychological Association’s Distinguished Service to the Profession of Psychology Award.

Rich Haffey is co-founder and President of Mystic Air Quality Consultants, which is celebrating its 25th year of service to Connecticut and Southern New England. Rich spends most of his business time teaching occupational health and safety classes, predominantly asbestos EPA accredited courses for abatement specialists and consultants. He is recognized by his peers for broadening the scope of these courses to include the most urgent contemporary domestic and international issues and concerns: economics and geopolitics of the asbestos trade, initiatives to ban asbestos, public health imperatives to protect citizens impacted by asbestos use, advocacy for fairness to employers, employee rights, and justice for the asbestos injured and their loved ones. Rich is accredited and licensed in Connecticut as an Asbestos Inspector and Management Planner, Abatement Project Designer and Monitor. Mystic Air’s client base includes governmental facilities, colleges, schools, day care programs, health care providers, property management firms, commercial and industrial companies, and contractors. Herman Hamilton is the Executive Assistant with ADAO. After becoming familiar with the medical and legal aspects of Asbestos through his neighbor and longtime friend of 30 years, Dr. Barry Castleman, Herman joined ADAO in January of 2005 as the Veterans Representative. Presently, Herman assists Linda in the day-to-day operations of ADAO and amongst his many duties, he has been a liaison for other like-minded asbestos groups. He also works with Congressional staffers to set up meetings regarding ongoing legislation. His proudest accomplishment has been his work to defeat the Asbestos Trust Fund. The goal he would like to achieve the most is the passage of legislation for a total ban of Asbestos. Outside of ADAO, Herman has served on the Board of Directors of Legal Aid Bureau of Maryland for the past 12 years and counting.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Michael R. Harbut, MD, MPH, FCCP is Chief of the Center for Occupational and Environmental Medicine: Clinical Assistant Professor, Wayne State University, School of Medicine, Detroit, Michigan. An internationally known expert in the diagnosis and treatment of environmental and workplace diseases, Dr. Harbut has been named co-Director of the National Center for Vermiculite and Asbestos Related Cancers. He is the co-author of the American Thoracic Society’s 2004 Recommendations for the Diagnosis and Treatment of NonMalignant Disease Caused by Asbestos Exposure. Dr. Harbut is a past chair of the occupational and environmental health section of the American College of Chest Physicians, and has served on the Board of Directors of the Mesothelioma Applied Research Foundation. Dr. Harbut brings his expertise to address the need for early diagnosis and aggressive treatment of asbestos related diseases.

Eric Jonckheere is President of ABEVA, Belgium, and an airline captain. “Asbestos became part of my life since I was born. My grandfather Paul, was part of the upper management of Eternit. This multinational corporation is a major asbestos-cement producer in Belgium with factories in many other countries, mainly in Africa and Central America. My father joined Eternit in 1953; he contracted his mesothelioma and died in 1987. During his entire career spent at Eternit, he believed he would earn a living and not lose his life. He trusted the ever reassuring messages from management. In 2000, Francoise, my mother, then my brothers Pierre-Paul (2003) and Stephane (2009) all succumbed to mésothéliomas. They never worked at the plant. On Novemnber 28th, Belgium saw its first court case by an environmental victim of asbestos against Eternit. The victim won! Eternit has appealed. This case was made possible because Francoise refused to give immunity to Eternit by not accepting the “silence-money.” Sandra Kinart is a wife, mother, and grandmother. As Chair of the Victims of Chemical Valley (VOCV) for the past 2 years, and a member for 8 years, her focus has been victims and their families of Mesothelioma and Asbestos, eliminating the export of Asbestos from Canada and the world, education and advocacy. Sandy is also a board member of the Occupational Health Clinic for Ontario Workers (OCHOW), which advocates for safe work environments. Sandy is also a volunteer at St. Joseph’s Hospice in Sarnia, where she facilitates a bereavement group, works with the Complimentary Therapies program, the Caregiver program and helps at the switch board by directing incoming calls and clients.

J. Brent Kynoch, Kynoch Environmental Management, Inc. (KEM) was formed in 1996 to provide value engineered consulting services within the asbestos abatement industry. Since 1996, KEM has earned a reputation as one of the leading consultants in asbestos inspection, assessment, abatement design, and management. J. Brent Kynoch has been a leader in the asbestos abatement industry since 1984. KEM’s licensed Asbestos Inspectors and Management Planners have provided extensive service in support of federal AHERA and NESHAP regulations. Over the years, they have successfully provided asbestos consulting for historic restorations, hospital renovations, and AHERA school abatement Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership projects. With their experience in asbestos testing and management for the federal agencies, the Department of Defense, and architecture and engineering firms, they have earned a reputation for diversity and dependability. Doug Larkin is the Communications Director and Co-Founder of Asbestos Disease Awareness Organization (ADAO) – which works to help raise awareness about asbestos related diseases, while serving as a global community for asbestos victims and their families. Doug holds a B.A. in political science from Muskingum University, New Concord, Ohio. Doug is the President & CEO of Larkin Communications, a strategic communications and public affairs firm based in Washington, DC. He has worked on numerous successful legislative campaigns on behalf of large technology companies and national trade associations. In addition, he is considered an expert in corporate communications, brand identity, as well as message development and dissemination. Doug has also worked as the press secretary and the communication director for Congressman Kevin Brady (R-08-TX). Rep. Brady is the Republican Deputy Whip and a senior member of the House Ways & Means Committee. “Congress and the media respond to compelling stories. It’s through your stories and donations to ADAO, that enables us to advocate a strong message for present and future victims of asbestos related disease.” Doug has worked tirelessly behind the scenes garnering the attention of the media and advocating for the rights of asbestos victims and their families. Doug’s father-inlaw, William D. Shields, was exposed to asbestos, and died from mesothelioma. Richard Lemen, PhD is a former Assistant Surgeon General of the United States and also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. He has been a practicing epidemiologist for more than forty years, and has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. He has also testified on behalf of asbestos victims; Dr. Lemen is a world-renowned author, speaker, and lecturer on this topic.

Barbara Minty McQueen is the widow of American film star Steve McQueen, and is a former model and photographer. She is also the author of Steve McQueen: The Last Mile, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. McQueen has hosted several art exhibits of her work with shows in London, Tokyo, San Francisco, Nashville, Phoenix and Idaho, where she resides.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Celeste Monforton, DrPH, MPH is a professorial lecturer in the Department of Environmental and Occupational Health at the George Washington University's School of Public Health and Health Services. Her research includes assessment of worker health and safety laws and policies, and their effectiveness in protecting workers from illnesses, disability and death. She has published articles on strategies used by economic interests to manipulate scientific evidence to create uncertainty about health risks in order to delay protective regulatory action. Prior to her academic appointment, Dr. Monforton was a federal employee at the U.S. Department of Labor’s Occupational Safety and Health Administration (OSHA, 1991-1995) and Mine Safety and Health Administration (MSHA, 1996-2001). Dr. Monforton served on the special panels appointed by the West Virginia Governor to investigate the January 2006 Sago coal mine disaster that took the lives of 12 workers, and the April 2010 disaster at Massey Energy's Upper Big Branch mine that killed 29 workers. Dr. Monforton is an active member of the American Public Health Association, and she has served in a leadership position with the organization’s Occupational Health and Safety Section. Leah Neilson is a caterer/stay-at-home mom/anti-asbestos advocate. After losing her father to mesothelioma, Leah was shocked to learn that asbestos was still being mined in Canada and exported to more than 60 countries. With her sister Stacy, she has been actively working to bring an end to the Canadian asbestos industry. On October 1, 2011, Leah and Stacy organized “A Walk to Remember Victims of Asbestos” in Sarnia, Ontario. Leah resides in Utah with her husband and two sons who are supportive of Leah's activism even though they have to eat cold sandwiches for supper on busy days. When her youngest asked her how much longer she was going to talk about asbestos, Leah told him “until asbestos is banned in Canada.” Andrew F. Oberta, MPH, CIH, The Environmental Consultancy, is an internationallyrecognized expert on asbestos control with over thirty years of experience in the field. He provides consultation and training services for managing asbestos-containing materials, and expert witness services for asbestos litigation, as well as asbestos training and information technology products. Mr. Oberta holds the unique combination of Aeronautical Engineering and Master of Public Health degrees. He is certified in Comprehensive Practice by the American Board of Industrial Hygiene and is licensed as an Asbestos Consultant in Texas. He is a Past-President of the Environmental Information Association, serves as Chairman of the ASTM Task Group on Asbestos Management, and is the author of the ASTM Manual on Asbestos Control. João Carlos Duarte Paes was previously Director of Asbestos Mining, from 1972 to 1992, having worked with the Brazilian Government to approve the ILO/162 Convention, and as an observer at UNO, in the preparation of the agenda for Rio 92. He is President of ABRA, Associação Brasileira do Amianto (Brazilian Asbestos Association). Currently, he is President of ABIFibro, having been elected in 1996. In 1999, facing the strong evidences, he became conscious of the harmful effects caused by asbestos, supported the prohibition of its use in Brazil, counting on technology and safe alternative fibers in the production of fibrocement, this being the target of ABIFibro.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Matt Peacock has worked as a journalist for more than 30 years, mostly for the Australian Broadcasting Corporation. He began his career as a current affairs television researcher, before becoming a reporter with the ABC Radio Science Unit, where in 1977 he produced a pioneering series of programs about the dangers of asbestos, later published as a book, Asbestos: Work as a Health Hazard. He has worked for a wide range of ABC radio and TV programs, including as chief political correspondent in Canberra, and has been posted in Washington, New York, and London. He also worked in Australia’s Northern Territory specializing in indigenous affairs and co-founding an Aboriginal video production house. Matt is Adjunct Professor of Journalism at Sydney’s University of Technology (UTS), and has authored numerous newspaper and magazine articles, as well as the book Killer Company, a history of Australia’s largest asbestos manufacturer, which has been dramatized for the TV series Devil’s Dust.

Bruno Pesce is the asbestos litigation coordinator of AFeVA, and former Secretary of the CGIL Union in Casale Monferrato from 1979 to 1994. In the early 1980s he promoted the first actions inside and outside the plant, and networked to unite Trade Unions, environmentalists, Local Authorities and victims’ relatives in the struggle against asbestos. When Eternit went into receivership in 1986 Pesce opposed any attempt of re-opening the plant employing asbestos, and he started a struggle that led to the first criminal lawsuit against the top management of Casale Eternit in 1993. In 1987, Bruno promoted the first epidemiological study in Casale, in 1988 he founded AFeVA and campaigned for what was to become Law 257 that banned asbestos in Italy in 1992. He helped plan the decontamination for the city of Casale, and aided in the collection of compensation (about $12 million) for formers Eternit workers.

Nicola Pondrano was a worker at the Eternit plant of Casale Monferrato from 1974 to 1979. He personally experienced the difficult conditions of the asbestos workers. Soon he became the CGIL union representative for health, safety and the environment. In 1979, he was appointed head of the local INCA, the CGIL's welfare society, thus starting a fruitful cooperation with MDs such as as Dr. Daniela Degiovanni and scientists that fought for the recognition of many cases of asbestos related diseases and deaths among the workers. He promoted the first public conference on the asbestos risks in 1984 in Casale. Nicola is cofounder of AFeVA and campaigner for the Law 257 that banned asbestos throughout Italy (enacted in 1992). He is currently CGIL branch Secretary for Casale Monferrato.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Linda Reinstein is the President/CEO and Co-Founder of Asbestos Disease Awareness Organization (ADAO). Reinstein became an activist when her husband, Alan, was diagnosed with mesothelioma in 2003. She co-founded the Asbestos Disease Awareness Organization in 2004, and now serves as President and CEO. Reinstein has been a strong political voice for justice in every major asbestos-related issue. Reinstein, a highly soughtafter international speaker, has frequently served as a Congressional witness and presented at the Department of Labor (OSHA), British House of Commons, United Nations Congress, American Public Health Association, and to other audiences around the world. Recognized as an expert with more than 35 years of nonprofit experience in building and sustaining grassroots organizations, Reinstein specializes in developing, implementing, and leveraging integrated social media campaigns. Recently, Reinstein was asked to create social media educational materials and facilitate a workshop in Asia. Focused on national and international occupational and environmental disease prevention, Reinstein’s proficiency in the powerful advocacy space of online media has greatly increased the effectiveness of ADAO’s core mission of education, advocacy, and community support actions. She has won many prestigious awards including the Bruce Vento Hope Builder Award (2011), from the Mesothelioma Applied Research Foundation; the highest level of the Presidential Volunteer Service Award for her 4,000 hours of volunteerism during her lifetime (2010); and the Heart and Soul Award in from the Manhattan Beach Women in Business Association (2005). Laurie Rice, the newest member of the Board of Directors, is an associate at the criminal defense law firm of Bird and Bird in Torrance and also volunteers at the Los Angeles County Bar Domestic Violence Project assisting victims in obtaining temporary restraining orders. Born and raised in Los Angeles, she received her B.A. in Art History from UCLA and a M.A. in special education from CSUN. She taught deaf and hard of hearing students for five years before attending Loyola Law School. A former Deputy District Attorney, Laurie met her husband Stuart in the Compton court house as opposing counsel and took a long hiatus from the law while raising their two children and actively volunteering in the community. Tony Rich has served as an industrial hygienist and environmental technician in the consulting field for the past 18 years, specializing in asbestos-related work, including: inspections, abatement monitoring, project management and regulatory compliance, air sample analyses, and worker training. He has also received training from McCrone Research Institute for the microscopical identification of bulk asbestos via polarized-light microscopy (PLM). Through the course of his occupation and personal endeavor, Tony has developed an extensive and compelling collection of asbestos-related photographs, product materials, artifacts, historical books, industry documents, and other associated media. In promotion of asbestos awareness advocacy, Tony has made available many of the asbestos-related digital images, provided asbestos product materials for research and educational purposes, and created asbestos training display aides for various organizations worldwide (including an exhibit in Washington D.C.).

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Ann Samuelson is from the Oregon Coast. As a daughter of a mesothelioma victim, Ann advocates for those whose lives have been impacted by asbestos-related diseases. Ann has served as a County Commissioner, is current Chair of the NW Regional Education Service District, and is on the Board of Directors of her local Chamber. Ann is a Real Estate Broker in Oregon, and for the past two years Ann has volunteered with ADAO, specifically with the social networking campaigns for education, advocacy, and building community within our networks. This is her first year as a presenter at the ADAO National Conference.

Sari Sairanen is National Health and Safety Director at the Canadian Autoworkers Union, responsible for the content of health and safety training programs, submissions for better laws, information on workplace substances, the establishment of programs to eliminate hazardous workplace conditions, and the publication of the Health and Safety & Environment Newsletter. Sari comes to the National union from the Airline division which represents members from coast to coast to coast in Canada. Sari began her union activism as a health & safety representative in a call center where she confronted ergonomic and working condition issues such as computer workstations, task design, stress, electronic monitoring and asbestos exposure.

Joel Shufro has been NYCOSH’s executive director for most of its 31-year history. Under his leadership, the organization has grown from having a part-time staff of one and no members to an organization with 11 staff workers and a membership of about 200 local unions and 300 individuals. Most individual members are legal and medical professionals, academics, and rank-and-file workers. As part of Joel’s work at NYCOSH, he serves on numerous advisory boards, including at the Mt. Sinai-Irving J. Selikoff Center for Occupational and Environmental Medicine; the Bellevue/NYU Occupational and Environmental Medicine Clinic; the World Trade Center Worker and Volunteer Medical Screening and Treatment Program; and the NJ-NY Hazardous Waste Consortium. Joel also serves as a representative of the New York City Council on the New York City Right to Know/Hazardous Substance Advisory Board. Joel has recently been recognized twice by the national EHS Today magazine as one of the 50 most influential figures in health and safety. His other honors include the Stand Up for Justice Award from the Young Korean American Service and Education Center (now the MinKwon Center); the Lorin Kerr Award by the Occupational Health Section of the American Public Health Association; and the Man of the Year Award by the Advisory Board of the Mt. Sinai Occupational and Environmental Health Clinic. Joel has a Ph.D in American History; an M.A. in Occupational Safety and Health; and an M.A.T. in Social Science Education.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Daniel Sterman, MD is an Associate Professor of Medicine and Associate Professor of Medicine in Surgery and Chief of the Section of Interventional Pulmonology and Thoracic Oncology in the Division of Pulmonary, Allergy & Critical Care Medicine at the University of Pennsylvania Medical Center in Philadelphia, Pennsylvania. He is also the Co-Director and Co-Founder of the PENN Mesothelioma and Pleural Program (PMPP). His clinical interests are related to the treatment of thoracic malignancies, specifically the synergy of advances in molecular medicine and novel technologies in Interventional Pulmonology. His research interests are in the translation of laboratory discoveries from the bench to the bedside: conducting human clinical trials of gene therapy, virotherapy, and other immunebased therapies for lung cancer, mesothelioma, and other pleural malignancies. He was President, of the International Mesothelioma Interest Group (IMIG) from 2004-06 and is President-Elect of the American Association of Bronchology and Interventional Pulmonology (AABIP). He has been a member of the ACCP since the mid-1990’s and a Fellow of the American College of Chest Physicians for over 10 years. He has been a practicing pulmonary and critical care physician in the Commonwealth of Pennsylvania since 1996, and has been active in regional and state-wide meetings and organizations, including several years on the Board of Directors of the Laennec Society of Philadelphia. Ellen Tunkelrott Webmaster, is a Contract and Grant Administrator for the original Think Tank, and resides in Redondo Beach, California. She became friends with Linda and Alan Reinstein through local community volunteer activity. Linda and Ellen collaboratively brainstormed the virtual non-profit site www.asbestosdiseaseawareness.org, and Ellen developed the original site based on the concepts and direction from those sessions. She has a B.A. in Psychology from California State University, Long Beach, and an MBA from Loyola Marymount University. She is a Certified Paralegal and is licensed by the County of Los Angeles as a Legal Document Assistant. She is self-taught in web design and development. In her spare time, Ellen is an avid photographer, gardener and is a magician member of the prestigious Academy of Magical Arts, located in the world renowned Magic Castle in Hollywood, California.

Christine Winter is the chairperson of the IATP (Independent Asbestos Training Providers) a nonprofit member organization for UK asbestos training providing companies. The organization’s core ethos is the raising of awareness through education and promoting the prevention of asbestos related diseases through its support of global charities and organizations. In 2005, Christine began publicizing and promoting the work carried out by ADAO in UK industry publications, her role encompasses communications and given Christine’s qualities and skills in this area she communicates with many organizations from Government to Labour Unions and Corporate Companies, always building a consensus as to the human suffering caused by exposure to asbestos being prevented, not only nationally but globally. Key Quote: “Asbestos destroys individuals, families and communities.”

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 ADAO Conference Biographies: Speakers, Honorees, and ADAO Leadership Jordan Zevon ADAO's tremendous National Spokesperson is a teacher, singer, and songwriter. Jordan was executive producer for his father, Warren Zevon's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon which is available from CDBaby.com. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases.

Paul Zygielbaum is a veteran business executive whose career spans the aerospace, electric utility, electronic communications and biomedical device industries. He holds masters degrees in engineering and business administration. Paul has published technical papers, articles and reviews in the fields of aerospace research, energy technology, and medicine. He is a co-founder and chief operating officer of C8 MediSensors, a corporation developing non-invasive medical sensors. An experienced community volunteer, Paul has chaired the Sonoma County Human Services Commission and served on the boards of his local United Way and other organizations. Since his 2004 diagnosis with malignant peritoneal mesothelioma, Paul and his wife, Michelle, have become activists in grass-roots campaigns to ban asbestos, to protect the rights of asbestos-related disease victims and their families, and to improve medical treatment and seek cures. Paul and Michelle have three grown children and four grandchildren.

"Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." ~ Margaret Mead

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 路 Redondo Beach 路 California 路 90278 路 310.251.7477 www.AsbestosDiseaseAwareness.org


2012 Emerging Leaders Update Paving the Way for Future Asbestos Awareness Advocacy By Emily Reinstein

For most young adults under the age of 30, asbestos and mesothelioma aren’t the most pressing thoughts in our everyday lives. However, with the help of ADAO’s talented interns and volunteers this past year, our generation is now becoming more aware of the horrors caused from asbestos. Even though none of the ADAO interns have lost a loved one to asbestos, they are all shocked by asbestos’s grim affects on the international community. Each one of them has a passion for the work we do as they see the importance of preventing exposure, increasing awareness, and banning asbestos in the United States. ADAO’s emerging leaders come from Turkey, India, and the U.S., demonstrating the power of our international reach and connections. We have grown up as tech-savvy young adults, fluent in the language of our generation, consisting of Facebook wall posts, tweets, and text messages. Although we use these communication tools to connect with our friends and share about our lives, ADAO has also helped us learn how to expand our reach through digital technology. The community of passionate victims, widows, and individuals has grown exponentially through social media platforms, as it is now easier to connect and share with people all around the world in an instant. By tapping in to our generation’s tools for communication, ADAO has been able to greatly expand within the past four years of using social media by strengthening our network, building a unified online community, and disseminating information to our followers. I believe that my generation is passionate about change, and banning asbestos and preventing exposure are certainly issues that are worthy of our time and effort. I am proud to be a part of such a progressive generation, filled with thinkers, doers, and dreamers. For me personally, my world has been altered by my father’s death, but by using the strength and wisdom I’ve gained from my experiences with ADAO, I am able to honor his memory by making a positive impact in the lives of others. ADAO has given young volunteers and interns a way to use our passion to influence people to change laws, rethink opinions, and come together to solve problems. I hope that the other leaders in the asbestos awareness community feel the same sense of pride and power that I have felt through my involvement with ADAO, and I am confident that our generation will be able to make a lasting impact on legislation and help raise awareness on a global level.


Deepthi Cauligi graduated from University of Southern California in May 2011 with a Bachelor’s Degree in Communication. Her experience in the field of Public Relations has helped her contribute to the Asbestos Disease Awareness Organization (ADAO). By working as a Communication and Public Relations Intern, she has assisted in writing blogs, press releases and organizing the social media calendar. “I have learned so much about asbestos and the dangers it poses to those near asbestos. As an Indian, I am horrified to learn about the asbestos trade in India. Linda has given me the opportunity to be a part of the national movement where people around the world are uniting to make this world free of asbestos and asbestos-related diseases.”

John Peter Gudenzi is a recent graduate of the University of Southern California, where he earned his liberal arts degree with a double major in English and Philosophy. John's greatest aim is to become a true Renaissance man, a feat not easily achieved. When he is not writing music, Mr. Gudenzi spends his time writing fiction, writing poetry, drawing, sporting on the athletic field, playing Mario Kart, critically watching films, or reading. John is very interested in the cosmos, especially after finishing Stephen Hawking's thought provoking work, “The Theory of Everything.” He has been accepted into a graduate program at King's College of London, but the high cost of tuition has hampered his decision making process. ADAO's work has purpose, and John aims to help ban asbestos. He believes we will look back, and wonder how foolish we were to knowingly use a lethal substance for the production of goods. Sinem Delal Kankotan was born in the town of Tunceli, Turkey, where she lived until moving to Istanbul in 1993. She is currently a student of Economics and Administrative Sciences øzmir. She is hoping to soon enter a Master’s program in law, focusing on International Law and Human Rights. Sinem got to know ADAO via the 19th Annual World Congress in østanbul, where she knew as soon as she heard about Linda and ADAO that they were like-minded individuals. Sinem is very interested in social policies and loves to put a smile on people’s faces.

Meagan Jensen joined ADAO as an intern in June of 2011. She received her B.A. in History from UC Santa Barbara and is currently a second year law student at the UC Davis King Hall. Meagan’s passions lie in international and environmental social justice issues and she has used her legal education to focus on these concerns while working with ADAO. While with ADAO Meagan was given the opportunity to do everything from speech drafting to blog writing to meeting with asbestos victims in Washington, D.C. Meagan is grateful to ADAO for the education and support it provides around the world, and is proud to have had the chance to have been a part of, and learn so much from, this fantastic organization.


Elise Law started with ADAO in December 2010 while attending USC’s Marshall School of Business. Since then, Elise has worked weekly as an intern doing marketing, fundraising, strategy, and event coordination. Elise has been extremely proud to work at ADAO. The organization means so much to so many people around the world and, under Linda’s leadership, has been able to affect large-scale change with the most limited resources. Elise will be sad to leave ADAO, but will be joining the Brand Marketing team at Taco Bell upon graduation in May.

Jessica Like served as the Director of Development at ADAO in 2010. She has long been a strong supporter of ADAO’s mission and raising awareness of asbestos-related diseases. At ADAO, she had an opportunity to make a national impact and had an opportunity to participate in meetings with some of the nation’s most influential political and health leaders. Since that time, Jessica has pursued her MBA at the University of Southern California, Marshall School of Business. In September 2012, she will join Deloitte’s Human Capital Management Consulting practice.

Catie Olson is the newest addition to ADAO. She started lending her artistic abilities at the beginning of March 2012 by helping out with graphics and typesetting for the new program. She recently moved cross-country to California from a small town on the South Shore of Massachusetts. She attended college at Bridgewater State University where she received her Bachelors of Fine Arts and Graphic Design. She is currently working at a local printing shop and is back in school taking web design courses at CSU Dominguez Hills. Outside of art and design, Catie enjoys concerts, traveling, cooking, or simply relaxing at the beach

Emily Reinstein is the daughter of ADAO Co-Founder, Linda Reinstein, and is currently a freshman at the University of Southern California studying International Relations. Since the age of ten, Emily has worked with her mother and other volunteers to expand ADAO. After helping to build ADAO’s social media network through Facebook and other platforms, as well as co-founding the Emerging Leaders Program, she has seen the importance of international cooperation and the involvement of the younger generation as we move forward.

Spencer Wolgang began working with ADAO in September of 2011. He is a recent graduate of Boston University with a B.A. in Political Science with a concentration on International Political Systems. Spencer will be attending law school in the fall where he plans to concentrate his studies on Human Rights and International Law. When not working for ADAO, Spencer is an avid hockey player.


April 1, 2009

Statement from Acting Surgeon General Steven K. Galson about National Asbestos Week In recognition of ‘National Asbestos Awareness Week,’ I urge every American to become aware of the public health issues of asbestos exposure and the steps they can take to protect their health. In recent decades, because of concern about asbestos’ health effects, production and use has declined substantially. Most individuals exposed to asbestos, whether in a home, in the workplace, or out-of-doors will not develop disease- but there is no level of asbestos exposure that is known to be safe and minimizing your exposure will minimize your risk of developing asbestos-related disease. Asbestos is the name given to a group of fibrous minerals that occur naturally in the environment. Low levels of asbestos are commonly in the air as fibers enter the environment from natural rock outcroppings, products that contain asbestos, former asbestos mining and milling operations, and from disturbance of asbestos-containing material. It is when we are exposed to much more concentrated levels of asbestos that we should be concerned. Therefore, it is important for all Americans to be aware of asbestos levels in their environment. Asbestos can be dangerous if it is inhaled. Activity that disturbs asbestos causing these small fibers to float in air increases the chances of inhalation and the contraction of asbestos-related diseases. Disturbance is what leads to exposure. Do not attempt to touch or remove asbestos by yourself. Only people professionally trained and certified to safely handle asbestos should remove it. Once breathed in, asbestos fibers can remain in the lungs for years and even decades. Inhalation of asbestos fibers can cause inflammation and scarring of the lungs, changes in the lining of the chest cavity around the lung, and certain cancers. Remember that tobacco smoke greatly increases your risk of lung cancer if you have also been exposed to asbestos. If you think you have been exposed to asbestos, I encourage you to speak to your health care provider. Your provider can tell you if any of your health problems might be caused by asbestos exposure. To learn more about asbestos and asbestos related diseases, please visit: http://www.atsdr.cdc.gov/asbestos/ http://www.cdc.gov/niosh/topics/asbestos/ http://www.epa.gov/asbestos/http://www.surgeongeneral.gov/news/pressreleases/pr20090401.html

ADAO salutes the United States Senate for “urging the Surgeon General to warn and educate people about the public health issue of asbestos exposure.”


Senate Resolution 389 IN THE SENATE OF THE UNITED STATES 112th CONGRESS 2nd Session

Designating the first week of April 2012 as ‘National Asbestos Awareness Week’ Whereas dangerous asbestos fibers are invisible and cannot be smelled or tasted; Whereas the inhalation of airborne asbestos fibers can cause significant damage; Whereas asbestos fibers can cause cancer such as mesothelioma, asbestosis, and other health problems; Whereas asbestos-related diseases can take 10 to 50 years to present themselves; Whereas the expected survival time for those diagnosed with mesothelioma is between 6 and 24 months; Whereas generally little is known about late stage treatment of asbestos-related diseases and there is no cure for such diseases; Whereas early detection of asbestos-related diseases may give some patients increased treatment options and might improve their prognoses; Whereas the United States has substantially reduced its consumption of asbestos, yet continues to consume almost 1100 metric tons of the fibrous mineral for use in certain products throughout the United States; Whereas asbestos-related diseases have killed thousands of people in the United States; Whereas exposure to asbestos continues, but safety and prevention of asbestos exposure already has significantly reduced the incidence of asbestos-related diseases and can further reduce the incidence of such diseases; Whereas asbestos has been a cause of occupational cancer; Whereas thousands of workers in the United States face significant asbestos exposure; Whereas thousands of people in the United States die from asbestos-related diseases every year; Whereas a significant percentage of all asbestos-related disease victims were exposed to asbestos on naval ships and in shipyards; Whereas asbestos was used in the construction of a significant number of office buildings and public facilities built before 1975; Whereas people in the small community of Libby, Montana suffer from asbestos-related diseases, including mesothelioma, at a significantly higher rate than people in the United States as a whole; and Whereas the establishment of a `National Asbestos Awareness Week' would raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure: Now, therefore, be it Resolved, That the Senate -1) designates the first week of April 2012 as “National Asbestos Awareness Week”; 2) urges the Surgeon General to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health; and 3) respectfully requests the Secretary of the Senate to transmit a copy of this resolution to the Surgeon General. The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · www.adao.us


2012 ADAO Partners

Environmental Information Association


PLATINUM SPONSORS

Asbestos Disease Awareness Organization sincerely thanks our official 2012 Sponsors for their steadfast commitment to the prevention of asbestos-related diseases through their generous donations.

GOLD SPONSORS


ADAO Conference Event Hosts Continental Breakfast Host Saturday, March 31

Conference Lunch Host Saturday, March 31

Unity and Remembrance Brunch Host Sunday, April 1


2012 ADAO Sponsors – PLATINUM SPONSORS –

– GOLD SPONSORS –

– SILVER SPONSORS – Early, Lucarelli, Sweeney & Strauss Levy, Phillips & Konigsberg LLP – BRONZE SPONSORS –

The International Association of Heat and Frost Insulators and Allied Workers The Nemeroff Law Firm

– FRIENDS OF ADAO – Marliyn Amento, in loving memory of Joe Jill Cagle, in loving memory of Rob Debra Farnsworth, in loving memory of Jeff ADAO does not make legal or medical referrals, nor do we endorse its corporate sponsors, their policies, products or services.


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You’re Invited

Don’t miss out on this o n ce - i n - a - l if et i m e event to ask questions and see one of the most powerful documentaries of the year!

You’re invited to a FREE screening of “Dust: The Great Asbestos Trial” Thursday, April 4 at 7:00 PM! The screening will take place at the University of Southern California’s School of Cinematic Arts and will be followed by a panel discussion featuring Niccolò Bruna (Director), Dr. Michael Renov (Professor of Critical Studies and SCA Vice-Dean), and Linda Reinstein (President/CEO of ADAO).

In conjunction with USC, ADAO is hosting a screening and panel discussion as part of Global Asbestos Awareness Week, taking place from April 1 - 7. “Dust: The Great Asbestos Trial” follows the stories of two women as the Eternit trial in Turin, Italy unfolds, resulting in one of the most landmark decisions ever for a case of this nature.


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April 7, 2012

April 1, 2012

Light a candle in Unity, Hope & Remembrance

Please join ADAO for our annual worldwide candlelight vigil in honor and memory of those who have died from asbestos exposure, to support the families and friends who are grieving, and to find strength from those whose mission is to have a world free of asbestos.

%(%3[MPPPMKLXJMZIGERHPIWXS Remind us of love Give us courage

Heal our grief Honor our memories

Strengthen our pledge to continue


KEYNOTE SPEAKER Matt Peacock Saturday, March 31, 2012 Matt Peacock, an award-winning journalist with the Australian Broadcasting Company, has contributed work to a range of newspapers, magazines and books; he has also worked for TV and radio news programs. Mr. Peacock has been a chief political correspondent in Australia, and has been a foreign correspondent in London, Washington, and New York. For more than 30 years, Mr. Peacock has chronicled the harrowing story of asbestos: from the factories where workers frequently had asbestos ‘snowball’ fights, and the Australian mines where Aboriginal children played in the toxic tailings, to the millions of homes worldwide where asbestos continues to threaten the lives of home renovators. Matt Peacock understands there is no boundary to the problems of asbestos. Mr. Peacock is an adjunct Professor of Journalism at Sydney’s University of Technology, and is the author of the book Killer Company, a history of Australia’s largest asbestos manufacturer, which is being dramatized for the TV series Devil’s Dust. Along with the ABC, Mr. Peacock produced a stunning documentary, India's Toxic Trade, which follows the continued use of asbestos in roofing and other products in India. “Matt Peacock’s perseverance and commitment to truth and justice is powerfully inspirational. Matt’s compelling documentary, India's Toxic Trade, has helped people around the world understand the human cost and grave dangers of asbestos,” said Linda Reinstein, President and co-founder of ADAO. “He has spent three decades raising awareness about the dangers of asbestos and bringing the guilty to justice. I am honored to know Matt and call him a friend.” In 1973, Mr. Peacock began his career as a trainee with Australia’s first TV current affairs program, This Day Tonight, before joining ABC Radio National’s Science Unit, where he produced a pioneering radio series on the asbestos industry. For many years, Mr. Peacock worked for the prime-time radio current affairs programs AM, The World Today and PM, focusing on politics, environment and science. He also reported from outback Australia, where he specialized in rural and remote issues including Aboriginal affairs and founded the TV production house Remote Area Media. We are truly honored to have Matt as this year’s keynote speaker. His commitment to exposing the dangers of asbestos and the criminals who profit from it reflects ADAO’s mission – a world free of asbestos and asbestos-related diseases. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


KEYNOTE SPEAKER Barbara Minty McQueen Sunday, April 1, 2012

Barbara Minty McQueen, the widow of American film star Steve McQueen, is a former model and photographer. She is also the author of Steve McQueen: The Last Mile, which documents the three-and-a-half year relationship between the two and includes candid photographs from 1977 to 1980. ADAO is honored to have forged a wonderful new friendship with Barbara. Steve McQueen, a movie icon remembered fondly as the King of Cool, will be honored with the Warren Zevon ‘Keep Me in Your Heart’ Memorial Tribute Award. Barbara’s life was forever changed when Steve was diagnosed with mesothelioma, and she, like so many of us, had to navigate through the pain and confusion of this terrible asbestosrelated disease with inadequate information and few resources. Despite her tragedy, Barbara has persevered, and ADAO is excited that she will be joining us at the conference as a keynote speaker. “I am so touched to accept the ‘Keep Me in Your Heart’ Memorial Tribute Award on my late husband’s behalf,” said Barbara, “Steve’s death was a long and painful ordeal, and my heart goes out to those who have been exposed to asbestos as well as their loved ones. We’re all in the same family and I commend ADAO for the great work they do on behalf of asbestos awareness.” Barbara’s wonderful book chronicles the last mile of Steve’s cool life: she opens up her world with hundreds of pictures and stories of the too-brief time she spent with her husband. Fate, chance, and luck bring people together. ADAO never thought we would become friends with ‘Barbi’ McQueen, an unbelievably beautiful woman, but our lives crossed paths, and we are fortunate to have fostered a friendship with her. Jordan Zevon, son of Warren Zevon, stated, “I am proud to present Barbara McQueen with the “Keep Me in Your Heart” Memorial Tribute Award. I am grateful to her for adding both Steve’s and her name to our ADAO family as we continue to work to end the threat of the disease for future generations.” Barbi was gracious enough to open up her heart to ADAO and become a part of our growing voice against asbestos. I look forward to our first mile together in the battle against mesothelioma.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization

2005 – 2011 ADAO Honorees 2011 ADAO Asbestos Awareness Conference Honorees Honorees – Atlanta, GA The Honorable Max Baucus, United States Senator, Tribute of Hope Award Dr. Guadalupe Aguilar Madrid, Selikoff Lifetime Achievement Award Environmental Information Association, Tribute of Unity Award Sugio Furuya, Tribute of Inspiration Award Ron Cyrus, Warren Zevon "Keep me in Your Heart" Award Julie Gundlach, The Alan Reinstein Award 2010 ADAO Asbestos Awareness Conference Honorees Honorees – Chicago, IL The Honorable Richard Durbin, United States Senator, Tribute of Hope Award Center of Asbestos Related Disease (CARD), Tribute of Unity Award Dr. Hedy Kindler, Selikoff Lifetime Achievement Award Fernanda Ginnasi, Tribute of Inspiration Award Army Archerd, Warren Zevon "Keep me in Your Heart" Tribute Memorial Award June Briet, honored posthumously, The Alan Reinstein Memorial Award 2009 ADAO Asbestos Awareness Conference Honorees – Manhattan Beach, CA The Honorable Barbara Boxer, United States Senator, Tribute of Hope Dr. Stephen Levin, Selikoff Lifetime Achievement Award Peg Seminario, AFL/CIO, Tribute of Unity Award Pralhad Malvadkar and Raghunath Manwar, Tribute of Inspiration Award Dominick Marzicola, honored posthumously, The Alan Reinstein Memorial Award 2008 ADAO Asbestos Awareness Conference Honorees Honorees – Detroit, MI Dr. Aubrey Miller, Tribute of Hope Barry Castleman, Selikoff Lifetime Achievement Award Canadian Auto Workers, Tribute of Unity Award John Thayer, Former US Capitol Tunnel Worker Supervisor and Asbestos Victim, Tribute of Inspiration Award John McNamara, honored posthumously, The Alan Reinstein Memorial Award 2007 ADAO Asbestos Awareness Conference Honorees – Philadelphia, PA The Honorable Patty Murray, United States Senator, Tribute of Hope Dr. Michael Harbut, Selikoff Lifetime Achievement Award, Patrick Martin, Member of Canadian Parliament, Tribute of Unity Award Survivor Paul Zygielbaum and Michelle Zygielbaum, Activists, Tribute of Inspiration Award Les Skramstad, honored posthumously, The Alan Reinstein Memorial Award 2006 ADAO Asbestos Awareness Conference Day Honorees – New York City, NY The Honorable Harry Reid, United States Senator, Tribute of Hope Award The Honorable Chuck Strahl, Member of Parliament, Canada, Tribute of Inspiration Paul Brodeur, Selikoff Lifetime Achievement Award Dr. Yasunosuke Suzuki, Selikoff Lifetime Achievement Award James Fite, Tribute of Unity Award 2005 ADAO Asbestos Awareness Conference Honorees – Washington, DC Laurie Kazan-Allen, Tribute of Unity Award Gayla Benefield, Tribute of Hope Award Jill Vaughn, Tribute of Inspiration Award Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization www.AsbestosDiseaseAwareness.org


2012 ADAO Honorees U.S. Representative Steve Cohen (D-TN) will be presented with the Tribute of Hope Award for his steadfast commitment and determination to ban asbestos. Presented by Doug Larkin. Actor Steve McQueen, who lost his life to mesothelioma, will be honored posthumously with the Warren Zevon “Keep me in Your Heart” Memorial Tribute. Presented by Jordan Zevon. Dr. Arthur Frank, will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing asbestos awareness to eliminate diseases and unending support of the Asbestos Disease Awareness Organization. Presented by Dr. Brad Black. Dr. Richard Lemen, will be recognized with the Dr. Irving Selikoff Lifetime Achievement Award in honor of his tireless dedication to increasing asbestos awareness to eliminate diseases and unending support of the Asbestos Disease Awareness Organization. Presented by Dr. Barry Castleman. Joel Shufro, NYCOSH will be presented with the Tribute of Inspiration Award for his tireless efforts to protect workers occupational safety and health, especially in regards to asbestos exposure. Presented by Celeste Monforton. Associazione Familiari Vittime Amianto (AFEVA) will receive the Tribute of Unity Award for their tireless efforts, both nationally and internationally, to protect human rights and seek justice for victims and their families. Presented by Fernanda Giannasi. Debbie Brewer, a mesothelioma patient, will be recognized with The Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families. Presented by Emily and Linda Reinstein. Larry Davis, a mesothelioma patient, will be recognized with The Alan Reinstein Award for his commitment to education, advocacy, and support to countless patients and families. Presented by Emily and Linda Reinstein. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


Tribute of Hope Award U.S. Congressman Steve Cohen When his close friend, singer-song writer Warren Zevon, died of mesothelioma in 2003, Congressman Steve Cohen realized the hidden dangers of asbestos. The following year, Steve was one of the first politicians on the national scene to join with ADAO in fighting to raise awareness. Since then, he has been one of our strongest advocates in Congress, fighting tirelessly for legislation that would ban asbestos in the United States. To honor Steve’s longtime support and steadfast commitment to protect Americans from asbestos exposure, ADAO is proud to present him with this year’s Tribute of Hope Award. ADAO applauds the Representative from Tennessee, who focused national attention on asbestos issues by introducing a resolution that supports establishing the first week of April as National Asbestos Awareness Week. In the resolution, Steve wrote that the special designation seeks to “raise public awareness about the prevalence of asbestos-related diseases and the dangers of asbestos exposure.” His actions have been met with gratitude by those who have been adversely affected by asbestos, “We are grateful to Steven and the U.S. House of Representatives to have the opportunity to help raise the level of public awareness and further unite doctors, scientists, and public health advocates during National Asbestos Awareness Week,” said Linda Reinstein, co-founder of ADAO. “Since our original meeting with Steve, and our subsequent years of working closely with him, we have seen progress. He has been a great advocate in convincing others that asbestos prevention and education will save lives and dollars” Cohen, who serves the 9th Congressional District of Tennessee, is the Democratic Regional Whip for the region encompassing Arkansas, Louisiana, North Carolina, South Carolina, and Tennessee. Speaker Nancy Pelosi paid him the ultimate compliment by referring to him as the “conscience of the freshman class” in 2008. Prior to his election to Congress, Cohen served in the Tennessee State Senate for 24 years. He has a B.A. degree from Vanderbilt University and a J.D. from the University of Memphis Cecil C. Humphries School of Law. The fight against asbestos has been one of his most passionate causes during the past eight years. “The U.S. is one of only two countries that have not imposed a ban on asbestos manufacturing and it is imperative that those who have been exposed learn the dangers,” he said. “Many have no knowledge of it at all. Mesothelioma, which took Warren, who still had so much more to contribute, is just one of the diseases it causes. The thing we have to get across to Congress and the rest of the country and the world is that these diseases are preventable.” Steve has vowed to continue to support legislation that brings awareness to the asbestos problem in America. His resolve and fighting spirit make him a perfect choice for this year’s Tribute of Hope Award. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Warren Zevon “Keep Me in Your Heart” Award

Steve McQueen: The King of Cool By Marshall Terrill

Who was Steve McQueen? A complex individual to be sure. He was a movie star. He was a boy from the wrong side of the tracks. He was a loving father and husband. He was a male chauvinist. He was notoriously cheap and tightfisted. He gave generously and anonymously to charity. He was mistrustful to the point of paranoia. He was a loyal friend. He had a weak spot for old people and children. He hated men in suits. He was ashamed of his education. He outsmarted every movie executive in Hollywood with his Ph.D. from the streets. He was patriotic and served in the Marines. He was disciplined and hardworking. He created havoc on movie sets. He paid regular visits to the Boys Republic in Chino, California, in hopes of inspiring them to become productive citizens. In the sixties and seventies, Steve McQueen was the biggest movie star in the world and the alpha male of his generation. He riveted audiences in countries as disparate as Britain, Japan, Germany, Russia, Cuba and France with his tough guy persona. His style consisted of an unlikely combination of willfulness, unpredictability, strength and vulnerability. He was cinema’s King of Cool, and no one since has taken his crown. McQueen was a complex, contradictory man who lived the same way he drove his motorcycles and cars: fearlessly, ruthlessly and at top speed. He may not always have known where he was heading, but he always made sure to take himself as far as he could. The biggest movie star of the Beatles generation met his match, and ultimately, his last bride in Barbara Minty, a top international model at the time. During this period, McQueen settled comfortably into middle age and was intent on finding peace – and himself – on his own terms. The two shared a loving and contented life in the small agricultural and aviation town of Santa Paula, California, until he was diagnosed with mesothelioma in December 1979. A year-long battle with cancer ensued but Barbara was there by his side every step of the way. His life ended on Nov. 8, 1980, but his legacy is stronger than ever. He has endured because he appeals to everyone. Steve McQueen was one of the most contradictory people in popular culture, a true divided soul, and yet he achieved the impossible. He has unified cinema fans, motoring, car and aviation enthusiasts, men and women, young and old, and even members of the fashion world. This weekend, his death brings worldwide attention to mesothelioma and asbestos awareness. His widow, Barbara McQueen, who witnessed the final countdown and endured unspeakable horrors in her husband’s final hours, has turned his sadness into triumph. Barbara, I admire your courage by stepping into the spotlight and sharing your heartfelt story, painful as it may be. By accepting the Warren Zevon “Keep Me in Your Heart” Memorial Tribute Award on behalf of Steve McQueen, you have made the magical leap from human being to humanitarian. I know you will wear that badge with honor and with a lot of pride. Ya done good, kid… and keep the waterworks to a minimum! Marshall Terrill Author of Steve McQueen: The Life and Legend of a Hollywood Icon, Steve McQueen: A Tribute to the King of Cool & Steve McQueen: Portrait of an American Rebel


Dr. Irving Selikoff Lifetime Achievement Award

Arthur Frank, PhD, MD Dr. Arthur L. Frank’s great dedication in the fight against asbestos is unmatched. Not only has Dr. Frank, who has earned a PhD and an MD, created an invaluable reservoir of clinical knowledge about the devastating health effects of asbestos, he has also openly and bravely opposed the significant financial and political clout of the asbestos industry. His exemplary and tireless efforts over the past 35 years on behalf of asbestos victims have earned him our respect, gratitude, and admiration. It is our pleasure to present him with ADAO’s Dr. Irving Selikoff Lifetime Achievement Award. Dr. Frank has shown a great dedication to increasing asbestos awareness, and has continually supported the Asbestos Disease Awareness Organization. It seems especially appropriate to present this award to Dr. Frank, because he worked with Dr. Selikoff, fighting the dangers of asbestos together for more than 12 years. He is co-chair of ADAO's Science Advisory Board, and serves as Professor of Public Health and Chair of the Department of Environmental and Occupational Medicine at the Drexel University School of Public Health in Philadelphia. Trained in both occupational medicine and internal medicine, Dr. Frank has studied the health hazards of asbestos for nearly four decades. He has cared for asbestos patients, fought on their behalf in a variety of public and political settings, and has published a significant amount of work on the hazards of asbestos. Taking his powerful message to the world, he has lectured internationally on behalf of all those who have suffered from asbestos. Dr. Frank became interested in medicine as a high school student, and published his first paper on cancer in college, “Medicine was a way to study the interactions of exposures and the development and treatment of disease,” he said. In July of 2002, he began his career at Drexel after holding a commissioned office at the US Public Health Service for 37 years, where he served in both an active and inactive status. He has been a part of ADAO since 2005, “I met Linda in Japan at an asbestos meeting, and I thought ADAO seemed like a meaningful and important group. I decided right then and there to commit my time to help ADAO make a difference.” When asked about a memory with Dr. Irving Selikoff, Dr. Frank recalled their first meeting in 1968. Dr. Selikoff was giving a lunchtime talk on his work with asbestos, and Dr. Frank was captivated by Dr. Selikoff’s impressive style and passion for his work, “Dr. Selikoff’s talk that day still resonates for me, more than 40 years later.” Dr. Frank aims to help ADAO reach the goals of advancing treatment for asbestos related diseases, educating the public, and helping bring about a total ban on asbestos in the USA. ADAO is extremely grateful for Dr. Frank’s steadfast commitment to working for a future without asbestos, and we are proud to present him with the Dr. Irving Selikoff Lifetime Achievement Award.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Dr. Irving Selikoff Lifetime Achievement Award

Richard Lemen, PhD ADAO is proud to announce that Dr. Richard Lemen, former Assistant Surgeon General of the United States and outspoken opponent of asbestos-caused diseases, will be presented with the Dr. Selikoff Lifetime Achievement Award. Dr. Lemen, who worked with Dr. Selikoff on critical asbestos issues, has been a true hero in the fight against asbestos. ADAO is honoring his resolute dedication to increasing asbestos awareness and eliminating asbestos-caused diseases. “When I first met the ADAO team at the National Press Club in Washington DC, I knew that the organization would make a difference, and I asked to become involved,” said Dr. Lemen. “That was about eight years ago, and every interaction with ADAO since has been very successful. We will continue this campaign to rid the world of asbestos so that asbestosrelated diseases will become unknown to future generations just as smallpox has. We can and will eradicate these diseases.” Dr. Lemen has been a practicing epidemiologist for more than forty years. He also served as the Acting Director and the Deputy Director of the National Institute for Occupational Safety and Health before his retirement. Dr. Lemen’s work has been widely published, and he has taught graduate level courses on environmental and occupational health issues, including asbestos, at the Rollins School of Public Health at Emory University. “I met Dr. Selikoff shortly after coming to work for the government in 1971,” said Dr. Lemen. “I guess he saw in me a young public health service officer who had similar interests to eradicate asbestos-related diseases. From that time on I worked very closely supporting his work at Mt. Sinai. When I investigated the problems at the Pittsburgh-Corning plant in Tyler, TX we became even closer, because that was the same plant that was moved from Patterson, NJ where he had studied workers. I was privileged to become an early Fellow of the Collegium Ramazzini, of which he was President, and through that association we traveled the world spreading the news that asbestos-related diseases could and would become a disease of history.” In 1991, Dr. Lemen was awarded the Distinguished Service Medal, the highest award bestowed by the US Public Health Service, and in the same year he was awarded the Surgeon General's Exemplary Service Medal. Dr. Lemen has served on a number of international panels and committees, including the World Health Organization, to evaluate the cancer risks of a variety of manmade chemicals. He holds a Ph.D. in Epidemiology from the University of Cincinnati, and studied occupational medicine, toxicology and epidemiology at Illinois, Minnesota and Missouri universities. In 1970, Dr. Lemen began his occupational safety and health career with the Missouri Public Health Division where he investigated various disease clusters. ADAO is proud to honor Dr. Lemen. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Tribute of Inspiration Award Joel Shufro Few people are as well-known and respected in the health and safety industry as Joel Shufro, Executive Director of the New York Committee for Occupational Safety and Health (NYCOSH). Joel is a leader in the battle to keep American workers safe from toxins – especially asbestos. His efforts have undoubtedly saved the lives of thousands of hard-working people. ADAO is pleased to present Joel with this year’s Tribute of Inspiration Award for his steadfast efforts in protecting workers’ occupational safety and health. He has been NYCOSH’s executive director for most of its 31-year history. Under his leadership, the organization has grown to a membership of more than 200 local unions and 300 individuals. The national EHS Today magazine has recognized him twice as one of the 50 most influential figures in health and safety. A highlight of this year’s conference will be his presentation: Left in the Dust: Ten Years After the Attack on the World Trade Center. Joel’s interest in occupational safety and health began when he taught at Empire State College, SUNY from 1972-1977, “I learned from my students about workplace hazards and their struggles to eliminate those hazards,” he said. “My students educated me about the importance of the issue. It was clear to me from the outset that the struggle for workplace safety and health is ultimately a struggle to transform our society so that human health is given greater priority than corporate profits.” In 1980, Joel became the sole staff member for NYCOSH, the New York Committee for Occupational Safety and Health. He remembers the hard work he put into the organization during its early stages, “Although I was paid for one day, I actually worked seven,” he recalled. The organization has worked fervently over the last three decades training tens of thousands of workers and recently held the first conference on the health hazards of working with asbestos. In the wake of the 9/11 attacks, NYCOSH worked intensely to keep as many people in the surrounding area, including workers engaged in the rescue, safe from asbestos and other toxic chemicals released in the air. “Our first concern was ensuring workers were provided with respirators, protective clothing, and training,” Joel said. NYCOSH also prepared and distributed fact sheets about the hazards the emergency response workers, and the surrounding community, would face. NYCOSH and ADAO plan to work together to continue the improvement of occupational safety. “To protect workers from being injured on the job or from contracting occupational illnesses, we must build a broad based coalition of organizations concerned about health and safety issues in both the workplace and the community,” Joel said. “The health and well-being of working people are dependent upon having decent jobs, living wages, good schools, affordable public transportation and health care. Fundamentally, it is the role of organizations like NYCOSH and ADAO to engage together in the struggle to restructure our society to place the health of our communities first.”

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org




Tribute of Unity Award Associazione Familiari Vittime Amianto (AFeVA) Associazione Familiari Vittime Amianto (AFeVA) will receive the Tribute of Unity Award for their unflagging efforts, both nationally and internationally, in protecting human rights and seeking justice for victims and their families. AFeVA was founded in 1988 with the aim of gathering victims and their families out of an industrial asbestos dispute started by a local labor union in the early 80s. The victims of asbestos caused complications and the whole community needed a grass-roots movement that would be able to boost the struggle for decontamination, justice, and scientific research on asbestos related diseases. The chairmanship of the group was given to Mrs. Romana Blasotti Pavesi, a passionate activist who has lost both her husband and daughter to asbestos caused diseases. AFeVA has strongly supported the movement against asbestos in Italy, aiding in the success of crucial legislation and court rulings. Some notable achievements include: In 1992, after three years of sits-ins in front of the Parliament building in Rome, demonstrations, and petitions, Act 257, which banned asbestos throughout Italy, was approved. The Act was a big success, but it provided no funding for victims. In 1998, the decontamination project for 48 villages and towns in the Casale District commenced, thanks to public funding. To date, decontamination has been completed on all public buildings, including the former Eternit plant, which was demolished in 2006, exactly a century after it had been built. In place of the plant there will soon be a public park and a project of urban reconversion named EterNot. AFeVA's goal of achieving justice for victims and decontaminating the local environment have been firmly pursued over the years and partly fulfilled. However, AFeVA continues to work diligently on the challenges that lie ahead: establishing a national fund for asbestos victims, fighting against mesothelioma, and drafting new European policies on asbestos. Today, AFeVA has more than 1700 families as members. AFeVA noted its proudest moment as “The remand for the Eternit trial on July 22nd, 2009, and all that followed, until the sentence. This moment meant that all that we fought for the last 35 years wasn't our fantasy but the effect of criminal behavior. The 16-year jail sentences at the Eternit trial represent justice for all the victims, and it is a deterrent for all companies worldwide still making profit with asbestos today. It's a strong contribution for an upcoming global ban of asbestos.” When asked about the group’s goals, AFeVA stated, “Our vision was, is, and will be a total effort to eradicate the tragedy of asbestos, pursuing the goal in three areas: justice to establish the past responsibility of the epidemic, research to provide a scientific answer to the victims now, and decontamination for the future of all people.”

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Memorial Award

Debbie Brewer In November of 2006, Debbie Brewer was diagnosed with mesothelioma. The news was all the more devastating because she knew no one else who suffered from the disease. Her feeling of isolation was intense and almost overwhelming. While there was a growing amount of information about the pathology of the disease on the internet, there was little information on how to deal with the great emotional toll that comes with diagnosis. What Debbie wanted more than anything was to talk to someone who could relate. That is what Debbie does for others now. In the years following her diagnosis, she resolved to build a community for those suffering the same emotional issues. Today, she helps thousands of people through her website and other outreach activities. ADAO is recognizing Debbie with The Alan Reinstein Award for the critical support she offers to others. Her commitment to education, advocacy, and personal support to countless patients and families is extraordinary. “I know how important it is for people to talk to others who are going through the same emotional rollercoaster,” she said. “My website is for anyone who is affected by mesothelioma – whether they are patients, care-takers, family, or friends – to share their stories and find support.” She has built a mesothelioma support community where she introduces new members to helpful Facebook groups and navigates the personal side of the disease. In 2007, Debbie first began utilizing the internet to help pull people together, “I didn’t really know what to expect when I first started using Facebook, but over time, I met a lot of people in my position.” Her online community, now called the Meso Warriors, was named to inspire and show the strength of the members fighting mesothelioma. “It was a name we found in an article written by Mary Hesdorffer, and I thought it was perfect. My proudest achievement is that we are using Mary's Meso Warrior phrase to its fullest potential. They are the most inspiring two words I have found.” She continues to support others and work with groups like ADAO to create awareness. “I am proud to be a part of something so strong that the world is starting to listen,” she said. “And I am most proud of the support I get every single day. I have met so many wonderful and courageous people who give me the strength to fight on. ADAO, especially, has been very instrumental in giving a voice to the Meso Warrior. The strength felt with this group is worldwide. It’s extremely satisfying to see how something so sad has been turned into an incredibly positive and determined message. We are making a difference.” Those close to her know Debbie as a kind, upbeat, intelligent and impressively motivated woman. She is extraordinarily generous, always has the right thing to say, and is revered by those who work at her side. She is also remarkably brave, and is always willing to speak the truth. Debbie believes that by sharing our stories we raise awareness, and she has built a great community for us to do that. She is a true Meso Warrior.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


Alan Reinstein Memorial Award

Larry Davis Larry Davis is a fierce fighter who exemplifies courage, both in his personal life and in Washington DC. Diagnosed with mesothelioma in July of 2006, Larry has maintained an unbeatable spirit. He embodies General George Patton’s quote, “Lead me, follow me, or get out of my way!” Larry takes no prisoners. He has vigorously worked above and beyond the call of duty to help fight the battle against asbestos. A longtime personal friend and strong ADAO supporter, Larry is a true hero. Whether on the Hill in DC or in his home state of Florida, Larry continues to raise awareness on the dangers of asbestos. ADAO is truly elated to present the Alan Reinstein Memorial Award to Larry Davis for his commitment to education, advocacy, and support to countless patients and families. Asbestos greatly altered Larry’s life. Like most people, he never realized how harmful the magic mineral could be. Over the past few years, Larry has talked to every politician who would listen about creating a ban on the use of asbestos in the United States. Larry has also put together the South Florida Miles for Meso Symposium, where friends, physicians, and advocates gather to help spread awareness. He has spent much of his time raising money for mesothelioma research. When he was told that he didn’t have much time left, Larry didn’t quit. Quite the opposite. He chose to live every minute of every hour of every day. He became an avid runner, logging more miles in a day than most of us run in a year; Larry turned his back on the darkness that tried to cloud him, and took control of his life. Larry is dedicated to his health, which has led him to eat well and exercise, despite the tumors that have developed in the lining of his abdominal cavity. Through his strong and positive outlook on life, Larry has defied the diagnosis that gave him a short time to live. He remains a hero in his incredibly brave fight against his own ailments, and in the war against asbestos. Larry Davis has taken the fight against mesothelioma to the streets, and has made a difference in many, many lives.

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


ADAO National Spokesman Jordan Zevon Jordan Zevon, ADAO's tremendous National Spokesman, is a teacher, singer, and songwriter. After his father, rock musician Warren Zevon, passed away from mesothelioma in 2003, Jordan, his half-sister, Ariel, and longtime Zevon collaborator Jorge Calderón accepted Warren's two posthumous Grammy Awards for Best Rock Vocal Performance and Best Contemporary Folk Album. Jordan was executive producer of his father's, final album The Wind. He also co-produced Enjoy Every Sandwich: The Songs of Warren Zevon, which features an all-Star cast of singers and musicians. Jordan recently released his own EP entitled Jordan Zevon, which is available from CDBaby.com. Jordan has dedicated a tremendous amount of time and talent to help raise awareness about the dangers of asbestos. A passionate advocate, he works tirelessly with ADAO. Jordan has traveled to Washington DC countless times to join ADAO in meetings with Congress and key administration staff. He was instrumental in his leadership role of ADAO’s product testing that uncovered dangerous asbestos fibers in children’s toys. He regularly presents before the press, and on behalf of ADAO to help educate the public about asbestos dangers and share his personal story. He has donated his wonderful musical talents at ADAO and non-ADAO events, and participated in public service announcements – beautifully advocating through his wonderful gift. Jordan's immeasurable commitment to asbestos victims and concerned citizens has provided a united voice that will continue to help ensure that their rights are fairly represented and protected, while raising public awareness about the dangers of asbestos exposure and often deadly asbestos related diseases. The Asbestos Disease Awareness Organization is grateful Jordan is part of our family. Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization

"United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" www.AsbestosDiseaseAwareness.org


H r u o Y

By Warren Zevon

p e Ke

n I Me

t r ea

Shadows are falling and I'm running out of breath

You know I'm tied to you like the buttons on your blouse

Keep me in your heart for awhile

Keep me in your heart for while

If I leave you it doesn't mean I love you any less

Hold me in your thoughts, take me to your dreams

Keep me in your heart for awhile

Touch me as I fall into view

When you get up in the morning and you see that crazy sun

When the winter comes keep the fires lit

Keep me in your heart for while

And I will be right next to you

There's a train leaving nightly called when all is

Engine driver's headed north to Pleasant Stream

said and done

Keep me in your heart for while

Keep me in your heart for while

These wheels keep turning but they're running

Sha-la-la-la-la-la-la-li-li-lo

out of steam

Keep me in your heart for while

Keep me in your heart for while

Sha-la-la-la-la-la-la-li-li-lo

Sha-la-la-la-la-la-la-li-li-lo

Keep me in your heart for while

Keep me in your heart for while

Sometimes when you're doing simple things

Sha-la-la-la-la-la-la-li-li-lo

around the house

Keep me in your heart for while

Maybe you'll think of me and smile

Keep me in your heart for while

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Steve McQueen

Photographer Dave Friedman

1930-1980

A letter to S Steve teve I think about y much unfinishe ou every day. We still have d h Meso stole y business, even after all th ave so ou es many others. r life, our life together a e years. nd A world will cha DAO and an educated, co too nge this very n soon......Love cerned , Barbi


RON CYRUS

“ My dad was everything to me and most of all he was my best friend. His character, trustworthiness and dedication made him a wonderful role model. If only money could bring better health, he would be with us today. I support ADAO and their efforts to ban asbestos. We all must work together in this fight. ADAO has my continued support in making everyone aware of this deadly disease.” — Billy Ray Cyrus


s a l u t e s f r i e n d

o u r

a n d

b e l o v e d

c o l l e a g u e

Army Acherd o n

r e c e i v i n g

the Warren Zevon “Keep me in Your Heart � Memorial Tribute and the ADAO for their continued e f f ort s i n r a i s i n g p u b l ic awa r e n e s s on the dangers of asbestos e xposure

IN MEMORIAM


In Loving Memory of Alan Reinstein 1939 – 2006

Unforgettable Husband and Father Sweetly, we remember how you lived your life so deeply and without regrets. You loved us unconditionally. The broken shards of the past six years soften amongst 25 years of bliss and have become a cherished mosaic of memories. Our love for you is forever etched across our hearts, and we feel your love.

Love,

Linda and Emily


Bill Shields 1943-2004

Husband, Father, Friend

You are never forgotten and you were an inspiration in founding ADAO – so that all victims may have a voice. Your spirit still soars on the wings of a seagull, and our memories will always keep you alive in our hearts, minds and souls forever. From your loving family and friends





Larry Davis 2012 The Alan Reinstein Award Honoree

Larry has boldly and tirelessly worked to ban asbestos and fund research for a cure. His Miles for Meso events have taken the fight against mesothelioma to the streets, and has made a difference to many lives in the United States and around the world.


   

 

   

 Always Remembering Our YESTERDAYS & Missing Our TOMORROWS..

We love you and miss you so very much. Love, Your Girls






         

There are so many things that I would like to say about this wonderful man but there is just not enough room. He was my Soul Mate: a very dedicated and loving husband, friend, father, son, brother and most recently a grandfather. He absolutely loved to fish, ride his Harley and play golf. Rob could tell a story like no one else I know. He was such a people person and never met a stranger. He had a smile and one of those personalities that just lit up a room. Loved lending a helping hand. In fact, the night before he was placed in hospice care, he was DJing for a benefit. The courage that he displayed through 6 years of mesothelioma and too many chemo treatments to count, was such an awesome example for others and a true testament to his life. Encouraging others till the end he affected and infected so many people’s lives. Rob was an advocate for fighting this disease and the total ban of asbestos. This disease took his life but it never ever took his spirit and passion for living. He never gave up. I believe he would want to say to those battling this nasty disease:

Don’t give up!! Live Every Day!! Love with your whole heart!! Keep fighting for a ban and a cure!! and as only he could say...

“It’s All Good!!!" Rob, You will be missed more than words can describe. See you in heaven. Love, Jill


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Stan “Swede” Grimberg Union Plumber Local 290/Oregon Mesothelioma Warrior

April 18, 1929 - June 6, 1982

“You are on my shoulder, encouraging me always to move forward, look ahead, work hard, and make the best of what I’m given. I will tell your story Dad, so that other tradesmen and women will not suffer, and their sons and daughters will not lose their parents to deadly asbestos. By volunteering with ADAO I honor you, your fighting spirit, and the injustice our family has endured.” Love you, always and forever your daughter,

n n A


IN LOVING MEMORY

Todd Hall January 12, 1967 â&#x20AC;&#x201C; December 4, 2006 Mesothelioma Victim Lexington, Kentucky

Toddâ&#x20AC;&#x2122;s asbestos exposure was non-occupational. The best medical help nationally failed to save his life. He was respected for his honesty and integrity. His word was a guarantee. He lived according to these values and Influenced others to do the same. Todd made friends with people from all walks of life, Mattering not who they were, but what they were. He was loyal and dedicated to family and friends. He displayed a zest for life and an adventurous spirit, Never satisfied with routine. Todd lived life as a participant, not as a spectator. Loved and Missed by Family and Friends


We miss our dearest friend,

Alan Reinstein

We are so proud of Linda & Emily for carrying on the fight to make others aware of this horrible disease

In Memory of Alan Reinstein â&#x20AC;&#x201D; My Friend and Colleague â&#x20AC;&#x201D; In Honor of Linda & Emily Reinstein for their wonderful work!

Love, Carole Schlocker and Ellis Levin


Ronald H. Diana 1946 -2005 Son, Brother, Husband, Father, Friend


Congratulations!! From Jill “^j^illypooo” Vaughn To ADAO, Linda Reinstein, Doug Larkin and all volunteers who make this conference a success. As a Meso survivor, a phone volunteer at MDAnderson Network and Bloc Cancer Center for over 20 years, I have had the wonderful opportunity to meet many Meso families. The Mesothelioma Listserv on ACOR’s ǁĞďƐŝƚĞ ŚĂƐ ĂůƐŽ ďĞĞŶ Ă ŐƌĞĂƚ ƐŽƵƌĐĞ ŽĨ ŝŶĨŽƌŵĂƟŽŶ͕ ƐƵƉƉŽƌƚĂŶĚŵĞĞƟŶŐŽĨůĂƐƟŶŐƌĞůĂƟŽŶƐŚŝƉƐĨƌŽŵƐŚĂƌing in the War on Meso. My husband Bud and I would like to honor the Caregivers and Meso Warriors who ĂƌĞĮŐŚƟŶŐ͘ŶĚ͕ƚŽƚŚĞŵĞŵŽƌLJŽĨƚŚŽƐĞDĞƐŽĨƌŝĞŶĚƐ that have gone on before us …

"Another songbird falls silent on Earth, And in the heavens another star Blinks into existence In the evening skies To help light the way for the rest of us."

ŚƩƉ͗ͬͬďŝƚ͘ůLJͬnjƚDϱĚ


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If you or a loved one have been affected by asbestos and asbestos-related diseases, please share your story. These stories provide hope and comfort to those in similar situations and can spread awareness of asbestos in order to save lives.     


Remembering Steve Levin WE ARE DEEPLY SADDENED BY THE LOSS OF DR. STEPHEN M. LEVIN, KNOWN TO US AS “STEVE.” HE WAS OUR DEAR FRIEND AND COLLEAGUE, AND WE MISS HIM. STEVE WILL BE REMEMBERED FOR HIS MANY CONTRIBUTIONS IN OCCUPATIONAL AND ENVIRONMENTAL MEDICINE, BUT TO US HE WILL MOST BE REMEMBERED FOR HIS PIONEERING WORK IN ASBESTOS RELATED DISEASES IN LIBBY, MONTANA. HIS LOSS WILL BE DEEPLY FELT BY THE LIBBY COMMUNITY AND ESPECIALLY BY THE CENTER FOR ASBESTOS RELATED DISEASE (CARD). He was a beacon, shining the light to guide us through troubled waters. I miss him more than words can say. —Laura Linker (Mount Sinai School o f Medicine) A special man in a complex world, compassionate and committed until the end. —Tanis Hernandez (CARD) He was the spark that ignited our every day work. —Jamie Szeinuk (Mount Sinai School o f Medicine)

Such principled people as Steve in a prestigious position are extremely rare in this world. We can at least fill a part of the void that he has left behind. — Brad Black (CARD)

The kind of mentor he My husband's gift of compassion and sense May G-d bless our friend was, is the kind of of justice welded his astute understanding who was as an anchor in mentor I want to be. a turbulent world. of medicine with his need to do the right —Alisa Koval —Michael Harbut thing for the Libby people. (Mount Sinai (Wayne State University) —Robin Dintiman School o f Medicine)


THE INTERNATIONAL ASSOCIATION OF HEAT AND FROST INSULATORS AND ALLIED WORKERS Is proud to support

The ADAO on the occasion of their 8th Annual Asbestos Awareness Conference and in their efforts to end Asbestos exposure and find a cure. We would like to take this opportunity to recognize the late

Dr. Stephen Levin He was a long-time friend of our organization as well as a respected physician, nationally recognized researcher and expert in the field of asbestos-related diseases and other occupational lung disorders. Under his leadership as Medical Director of the Mount Sinai - Irving J. Selikoff Center, the New York facility became one of the nationâ&#x20AC;&#x2122;s pre-eminent institutions specializing in occupational medicine. He was a tireless advocate for the Insulators Union, working closely with officers, members and their families on early detection and treatment protocols for mesothelioma and other asbestos-induced illnesses. His legacy will long be remembered by the many lives he touched and the future generations who will benefit from his efforts on their behalf.

JAMES A. GROGAN General President

JAMES P. McCOURT General Secretary-Treasurer

INTERNATIONAL VICE PRESIDENTS William Mahoney Kenneth Schneider Fred DeMartino Terry Lynch Doug Gamble Terry Larkin Greg Revard Mark Selby Vince Engel INTERNATIONAL REPRESENTATIVES Robert Hall

Eugene Leclerc

Tom Haun

Affiliated with the AFL-CIO, Building and Construction Trades Department, Metal Trades Department and Canadian Labour Congress


in loving memory of :[LWOLU43L]PU4+

NYLH[S`YLZWLJ[LKMVYL]LYYLTLTILYLK from ADAO


$DURQ'H/XFD In Remembrance

Aaron passionately supported Asbestos Disease Awareness Organization during these past years and his strong voice will be missed forever


MARCO GIORCELLI In Remembrance Mesothelioma Victim

Casale Monferrato, Italy

ASBESTOS DISEASE AWARENESS ORGANIZATION








WE SUPPORT ADAO’S EFFORTS TO BAN ASBESTOS.

Platinum 2012 Sponsor

P ROT ECT ING W H AT ’ S R IGHT®


Dear Linda and Doug: We are honored to support ADAO. Asbestos is so much bigger than just one person or one lawsuit. Your work has helped many people around the globe and gives hope to those whose lives have been harmed by asbestos. Thank you so much for standing up and making the voices of asbestos victims heard. What you do truly makes the world a better place. Keep ďŹ ghting the good ďŹ ght.

R u ssell W. B u d d

facebook.com/Fight.Mesothelioma

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w w w. m e s o t h e l i o m a n e w s . c o m

Dallas, TX (main office), Los Angeles, CA, Miami, FL, Austin, TX, Baton Rouge, LA

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1.866.855.1229


Motley Rice attorneys have a long history ďŹ ghting for the rights of workers and their loved ones who have suffered due to asbestos-related diseases.

We proudly support the Asbestos Disease Awareness Organizationâ&#x20AC;&#x2122;s international efforts toward improved rights and protections for asbestos victims.

www.motleyrice.com 1.800.923.4237 28 BRIDGESIDE BLVD. MT. PLEASANT, SC 29464 SC | RI | CT | NY | WV | DC | CA

Kimberly Barone Baden (CA, SC) and Anne M. Kearse (SC) are the attorneys responsible for this communication. Motley Rice LLP operates the California office.





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HOUSTON

DALLAS

PITTSBURGH

55 WAUGH DRIVE SUITE 850 HOUSTON, TX 77007 281-378-5970

2626 COLE AVE. SUITE 450 DALLAS, TX 75204 214-774-2258

600 GRANT STREET SUITE 660 PITTSBURGH, PA 15219 214-774-2289


A WORLD OF THANKS TO

for your ceaseless devotion to ending the global asbestos epidemic Yours truly, Carolin K. Shining DeBlase Brown Eyerly LLP

DeBlase Brown Eyerly LLP 10990 Wilshire Boulevard, Suite 1060, Los Angeles 90024 For more information: info@dbelegal.com 310-575-9955 Follow us on twitter at @carolinshining and @dbelegal


The Mesothelioma Applied Research Foundation congratulates the Asbestos Disease Awareness Organization for its national and international advocacy to ban asbestos and raise awareness of the tragic effects of this dangerous substance.

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On July 12-13, the Meso Foundation will host its 9th Symposium.


The only two ways to end asbestos-caused diseases are prevention or a cure

www.AsbestosDiseaseAwareness.org


Asbestos Disease Awareness Organization

Victoria Franzinetti honors interpreter

for her contribution to the international collaboration during the criminal trial of the asbestos magnates in Italy

Turin, Italy Vicky began by providing excellent translation during the testimony of Dr. Barry Castleman to the court in Turin. She went on to maintain communications and provide press coverage with English summaries, as the trial progressed, to activists around the world. She was also quite willing and able to provide the means of communication between the leaders of the people of Casale Monferrato and others involved in the technical and legal aspects of the case with the outside activist world (usually involving translation). The day the judges rendered their verdict, she worked with the people from Casale to arrange for there to be an auditorium set up for foreign asbestos victims and others, complete with headphones and simultaneous translation into English and French (by Vicky and her associates).

Vicky, you are a global heroine!


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e s a e s i D s o t s e y c b s a A c r o o v F d d A , e t i n n o i t U a c â&#x20AC;&#x153; u d E t r , â&#x20AC;? o s s p e p n u e S r y a t i n Aw u m m o &C

The Asbestos Disease Awareness Organization 1525 Aviation Boulevard, Suite 318, Redondo Beach, California, 90278 (310) 251-7477 Registered 501(c) (3) nonprofit organization

www.AsbestosDiseaseAwareness.org


11th International Conference of the International Mesothelioma Interest Group

CEU PROGRAM FOR NURSES offered in addition to the regular program

Wednesday, September 12

Mark your calendar to attend this important mesothelioma meeting! Join us in Boston, September 11 â&#x20AC;&#x201C; 14, 2012

Submit your abstract now! abstract submission deadline | may 18, 2012

www.iMig2012.org important dates Online Abstract Submission Opens

March 2012

Online Registration & Accommodation Opens

April 2012

Abstract Submission Deadline

May 18, 2012

Travel Grant Application Deadline

May 18, 2012

Author Notification of Acceptance

June 22, 2012

Early Registration Deadline

July 6, 2012

Late/Onsite Registration Deadline

August 10, 2012

Co-sponsored by AATS


ENVIRONMENTAL INFORMATION ASSOCIATION The Associationâ&#x20AC;&#x2122;s multi-disciplinary membership will collect, generate and disseminate information concerning environmental health hazards to occupants of buildings, industrial sites and other facility operations.

EIA Salutes the work of the ADAO And we wish you the best of luck in your 2012 endeavors. We appreciate the partnership between our organizations, and look forward to working together to bring an end to the needless dangers of asbestos exposure.

Th e E nv i r on me nt al I nformat i on Association, with its beginnings as the National Asbestos Council, has spent almost 30 years at the forefront in providing the environmental industry with the information needed to remain knowl edg eabl e, r es ponsi bl e, and competitive in the environmental health and safety industry. ENVIRONMENTAL INFORMATION ASSOCIATION 6935 Wisconsin Avenue, Suite 306 Chevy Chase, MD 20815 www.eia-usa.org Phone: 888-343-4342 Fax: 301-961-3094 Email: info@eia-usa.org


Demonstrating Auditing and Regulatory Requirements for

INDEPENDENT ASBESTOS TRAINING PROVIDERS

In support of ADAO’s initiative of the Global Asbestos Awareness Week on April 1–7, 2011

Independent Asbestos Training Providers (IATP) www.iatp.org.uk


CURE magazine salutes the ADAO for their continued efforts on behalf of patients, survivors and caregivers.

Order your FREE copy of CURE magazine’s Understanding Mesothelioma—a comprehensive resource for patients and caregivers who are seeking information on mesothelioma. Featuring information on: > Causes of mesothelioma > Symptoms and diagnosis > Information on finding a specialist

> Treatment options > Side effects > Coping strategies > Legal issues

> Legislation > Caregiving > and more!

Visit curetoday.com/shop to order your free copy today! CU is a FREE quarterly magazine that combines science with humanity to empower cancer patients and CURE their caregivers with the latest information on every aspect of cancer—from the technical and the scientific, the to the social and the emotional.

cure media group In print, in person and online, CURE makes cancer understandable curetoday.com


cooking is love Keeping Families Together

– A Recipe for Life – Start with a loaf of HOPE Add a dash of RESILIENCE Season with a pinch of ENDURANCE To live with the challenges of an asbestos-related disease Sprinkle liberally with DETERMINATION And a handful of SPIRIT Cover with COURAGE And always serve on a bed of FAITH Nestled in a platter of LOVE * Poem courtesy of the Center for Asbestos Related Disease

To receive a copy of our new cookbook, please contact info@asbestosdiseaseawareness.org


NEW YORK COMMITTEE FOR OCCUPATIONAL SAFETY & HEALTH

In Appreciation for ADAOâ&#x20AC;&#x2122;s Shared Commitment to Protecting the Safety of Workers In solidarity, New York Committee for Occupational Health & Safety (NYCOSH) 116 John Street - Suite 604 New York, NY 10038 212-227-6440

www.nycosh.org


With gratitude to Asbestos Disease Awareness Organization for its national and global efforts in advocacy, community, and education!

In unity and solidarity, ZeelTV www.zeeltv.com


1-7 APRIL 2012


SAVE THE DATE os Awareness C onfere Asbest nce e g n e c R t y t Cr yst Hya a l C it y n, Virginia M rlingto A

arch 2 2-24, 2013

Asbestos Disease AwarenessOrganization (ADAO) www.AsbestosDiseaseAwareness.org


8th Annual International Asbestos Awareness Conference Leadership March 30 – April 1, 2012 ADAO BOARD OF DIRECTORS Linda Reinstein Doug Larkin Freddi Segal – Gidan, PA, PhD Doug Larkin Linda Reinstein Laurie Rice Ellen Tunkelrott SCIENCE ADVISORY BOARD Co-Chairs: Arthur L. Frank, MD, PhD and Richard Lemen, PhD, MSPH Brad Black, MD Barry Castleman, ScD Raja Flores, MD Michael Harbut, MD, MPH, FCCP Hedy Kindler, MD

AAC COMMITTEE CHAIRPERSONS Agenda & Sponsors Communications Conference Liaison Executive Assistant Family Tributes Intern Intern Intern National Spokesperson Photographer Remembrance Service Videographer

Linda Reinstein Doug Larkin Suzanne Dupree Herman Hamilton Marilyn Amento Elise Law John Gudenzi Spencer Wolgang Jordan Zevon Emily Reinstein Laurie Rice Sue Ann Taylor, Zeel TV

Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


The Asbestos Disease Awareness Organization (ADAO) was founded by asbestos victims and their families in 2004. ADAO is the largest U.S. independent organization dedicated to preventing asbestos-related diseases through education, advocacy, and community support. 2011 ADAO Summary of Accomplishments

EDUCATION: s

ADAO editorial featured in December National Lung Cancer Awareness report, 2011

s

Monthly newsletters published with most current news articles and up-to-date events

s

ADAO International Asbestos Awareness Conferences: DC, NY, PA, MI, CA, IL, GA

s

Keynote address at the Environmental Information Association’s 2011 National Conference and Exposition

s

The Casale International Conference in Italy as part of ADAO’s continued global collaboration

s

XIX World Congress on Safety and Health at Work in Istanbul, Turkey

s

American Public Health Association 139th Annual Meeting and Exposition in Washington, DC

s

Asian Ban Asbestos Network (A-BAN) conference in India

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Developed and presented social media workshop at Asian Network for the Rights of Occupational and Environmental Victim’s Annual Conference in India

ADVOCACY: s

Published North American Declaration for the Elimination of Asbestos-Related Diseases Petition

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Supported Senate’s passage of Seventh Annual Resolution establishing “National Asbestos Awareness Week” April 1 - 7

s

Keynote address at the Walk to Remember Victims of Asbestos in Sarnia, Canada

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Collaborated with Senate leadership on S. 847 “Safe Chemicals Act of 2011”

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Expanded collaborative efforts on the Global Ban Asbestos Network (GBAN)

COMMUNITY: s

Developed and Launched “Global Asbestos Awareness Week” April 1 - 7, 2011

s

Organized live stream of Breathtaking documentary on MediaSocial

s

Candlelight Vigil to Remember Victims of Asbestos in collaboration with OHCOW, Walk to Remember Victims of Asbestos, Victims of Chemical Valley

s

Published international collection of “Share Your Stories”

s

Expanded social media presence on Facebook, Twitter, and LinkedIn Asbestos Disease Awareness Organization is a registered 501(c) (3) nonprofit organization "United for Asbestos Disease Awareness, Education, Advocacy, and Community Support" 1525 Aviation Boulevard, Suite 318 · Redondo Beach · California · 90278 · (310) 251-7477 www.AsbestosDiseaseAwareness.org


2012 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

2012 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program 8th Annual Asbestos Disease Awareness Organ...

2012 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program  

2012 Asbestos Disease Awareness Organization International Asbestos Awareness Conference Program 8th Annual Asbestos Disease Awareness Organ...

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