Exceptional Family 2016

Exceptional

2016

FREE

Commonwealth Council on Developmental Disabilities

Independence Integration Inclusion Parents Matt Toney and Sabrina Smith of Nicholasville cuddle with their son, Brody, 5.

337 Statewide

ReSouRce LiStingS A Speciality Publication of

Photo by Robin Allen Photography 2016 Exceptional Family KY

1

Family Ky 2016 Exceptional

INDEPENDENCE

INTEGRATION

INCLUSION

Page 30: Statewide Resource List

6 10 12 14 16

CCDD Public Policy

2016 Points of Emphasis Spelled Out

The Way She Rolls

Ms. Wheelchair Launches Her Clothing Line

Happy 25th Anniversary ADA Law Reaches a Milestone

Courageous Kids

Exceptional Summer Camp for Exceptional Kids

Mano Amiga

La Casita Center Serves Louisville Families

Editor..........................John Lynch of Lexington Family Magazine

Graphic Artist...............Tyler Adkins

of Lexington Family Magazine 2

www.lexingtonfamily.com

18 20 22 26 28

Her AIM Is True

‘Build Inclusion’ Helps Foster Natural Supports

Project SAFE

Protecting Kentuckians From Abuse

Career Reflections

Harold Kleinert Considers His Years of Service

A Special Commission

Coordinating Care for Thousands of Kids

HB 144 Commission

Portraits of Advocate and Self-Advocate

2016 “Exceptional Family Ky” is published by Lexington Family Magazine, Central Kentucky’s premier parenting publication.

138 E. Reynolds Rd. # 201 • Lexington, Kentucky 40517 (859) 223-1765 • www.lexingtonfamily.com • info@lexingtonfamily.com

Independence Integration Inclusion

in all aspects of community life.

The Commonwealth Council on Developmental Disabilities is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governorappointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities.

Current CCDD Priorities:

• Education nt • Employme • Health y Supports • Communit surance, • Quality As ination, m r e t e D lf e S and Safety

Get Involved Today Advocate... Volunteer... Provide Support

And consider joining the CCDD Council Info: (877) 367-5332 or visit www.kyccdd.com

Letter from the

C C DD

H

ello and welcome to the Exceptional Family Magazine, 2016 edition.

It is an honor to serve as the Chairperson for the Commonwealth Council on Developmental Disabilities (CCDD).

CCDD is made up of people with disabilities and family members with disabilities, along with allies who work for related state agencies.

We work together to promote self-determination, independence, integration and productivity.

I am proud to be a member of such a diverse community of people who share the common goal of improving the quality of life for Kentuckians with disabilities.

In addition to what I have learned through my own life, I’ve spent most of my life trying to serve the community which I represent.

In my career, I have been blessed to serve as a case manager and a supervisor.

I have enjoyed the many opportunities I’ve had to educate and advocate for myself and for others.

Now more than ever before, folks with disabilities have many opportunities to speak and advocate in their own voices.

There are so many ways to be an active advocate for yourself, your family and your community.

From state boards to school boards, individuals with disabilities and 4

www.lexingtonfamily.com

parents of children with disabilities have many opportunities to serve.

This Exceptional Family Magazine features stories of self-advocates, family members and other allies who are speaking up.

As you read through this year’s magazine, feel free to wonder. Wonder how you can serve, wonder what others can do, wonder what you can learn. n

ChRaosstsity

on

airpers h C D CCD

to How CCDD

become a

member

Members include people with developmental disabilities as well as family members and guardians of people with developmental disabilities.

Council members are expected to attend quarterly meetings that last two to three days, and other events throughout the year.

A member serves a threeyear term and is limited to two terms of service.

Info: www.kyccdd.com or

1-877-367-5332.

Meet the CCDD...

PICTURED LEFT TO RIGHT BY ROW ARE: Stella Beard, Teresa Brandenburg, Camille Collins, Joe Cowan, Evan Charles, Leigh Ann Edwards, Lynne Flynn, Sondra Gilbert, Lela Hale, Melissa Hardison, Roxanne Holbrook, Keith Hosey, Annette Jett, Claudia Johnson, Lindsay Jones, Harold Kleinert, Dina Nelson, Tristan Parsons, Colleen Payne, Margaret Reed, Chastity Ross, Norb Ryan, Brian Samuels Jr., Sherry Sanders, Janell Turner, Anne Weaver

2016 Exceptional Family KY

5

Speaking Up Works

CCDD:

Public Policy Priorities

COUNCIL OUTLINES 2016 POINTS OF EMPHASIS

P

ublic Policy means the laws, regulations and funding priorities that impact people’s lives.

One of the great things about living in a democracy is that we all have opportunities to impact public policy.

Each year, CCDD promotes Public Policy Priorities that reflect our commitment of ensuring people with disabilities have the opportunity to live full and rich lives.

These provide the focus of our work throughout the year. We invite you to join us in working on these priorities, too.

This year is an especially exciting time.

There are several new federal laws that provide opportunities for Kentucky to make systemic changes promoting inclusion in the community and workforce.

Understanding current and proposed changes related to disability policies gives us the chance to make our voices heard by policymakers about what is important to us and our families.

CCDD’s priorities for 2016 are:

1. Implement the ABLE Act (Achieving a Better Life Experience) in Kentucky. l In Kentucky, there are monetary limits on the amount individuals with disabilities can save without affecting critical benefits such as Medicaid. l The U.S. Congress passed the ABLE Act, giving states the

6

www.lexingtonfamily.com

opportunity to establish state programs allowing ABLE accounts that resemble education savings accounts (or “529 accounts”). l Legislation is being considered by the Kentucky General Assembly in 2016, so now is a great time to speak up about this issue.

2

. Promote systemic changes that increase meaningful employment of individuals with developmental disabilities (DD) in integrated settings. l Too many people with disabilities in Kentucky are not working in real jobs of their choosing alongside both people with and without disabilities for at least minimum wage.

Day programs and sheltered workshops should not be long-term placements for anyone who could work for a real wage with appropriate supports. l With the new federal Workforce Innovation and Opportunities Act (WIOA), state agencies, community partners and advocates are ready to make real changes to the education and employment systems in the state to support more meaningful jobs for people with developmental disabilities. l Each year, Kentucky misses out on federal funding for the Office of Vocational Rehabilitation and Office for the Blind because of a lack of state matching funds.

It is imperative that Kentucky fully fund the Office of Vocational

Rehabilitation and Office for the Blind to ensure that they can provide employment supports to promote integrated, competitive employment for all Kentuckians. l The CCDD will work together with other state and national partners to achieve this goal by actively engaging in research, education and advocacy.

3. Ensure Medicaid Waivers promote better community living.

Medicaid Waiver programs are undergoing many changes. Policy makers and people who use these waivers may not fully understand the impact of the changes and/or how to have input on pending changes.

Individuals and families, particularly those new to the waiver programs, need more consistent and accurate information.

Two of the biggest concerns are: l Long Waiting Lists. More than 6,600 people are currently on waiting lists for Medicaid Waivers.

Without waivers to help them access services in their communities, many people remain confined in institutions or in their homes without access to services that will allow them to participate in their communities. l Shifting Employment Costs to Individuals with Disabilities.

The “Participant-Directed Option” enables individuals to have more control in their lives by directing certain aspects of their personal care.

Unfortunately, employment-related l

costs are being shifted to individuals who choose the PDO model.

Unless action is taken, 14,700 individuals with disabilities will be required to pay for employmentrelated costs (including three background checks, drug screening, TB screening & CPR/First Aid training).

This cost (which can be over $700 per employee) will create barriers to using this option. Other models are both more restrictive and more expensive. l Though there are information manuals and training available for agency personnel, support brokers and case managers, many people are concerned that these resources are not being effectively utilized because there is limited mandated training. l The CCDD is committed to working with other community partners to ensure that consumers are informed about services that allow

them to live vital, self-determined lives in an inclusive community.

4. Engage stakeholders to

promote more equitable, inclusive education that will ensure a more meaningful exit from high school into postsecondary education and/or competitive, integrated employment. l Students exiting high school without traditional diplomas are limited in choices regarding postsecondary education and employment.

Families may not always understand the impact of participating in alternate assessments. l The opportunity to participate in meaningful employment in an inclusive setting should be an option for all people with appropriate support.

With the new Workforce Innovation and Opportunity Act (WIOA) and the reauthorization of the Elementary

and Secondary Education Act (ESEA), there is good momentum to improve outcomes for all students. l As discussion about School Choice in Kentucky gains momentum, it will be important to continue to ensure that all students have access to an appropriate education in an inclusive environment. l The CCDD will be actively involved with advocacy groups and agency partners in promoting opportunities for all students.

CCDD’s Policy Agenda will include the following emerging issues: l A lack of medical providers for adults with developmental disabilities l Issues related to appropriate services for people who are medically fragile. l Support research, education and legislation related to medical cannabis. n

CCDD Seeks Comments on New 5-Year State Plan

T

By Adam Jones

he Commonwealth Council on Developmental Disabilities is proud to announce that our new 5-Year State Plan will soon be completed. This plan guides CCDD’s work from Oct. 1, 2016 until September 30, 2021.

The Plan lays out specifically what we hope to accomplish through our work to create positive systems change for people with disabilities.

Over the past year, we have gathered data and input from many sources, including: focus groups, surveys and extensive research.

This information will help us use our resources to address issues of the highest priority according to people with disabilities and their families.

To that end, we would like your feedback. We need to get your input before we can submit this plan to our federal oversight agency, the Administration on Intellectual and Developmental Disabilities.

The Public Review Period is March 1 to May 1, 2016. This provides a 60-day window of opportunity for Kentuckians to evaluate the newly developed goals and objectives, and to share comments to help us improve it.

Please visit our website at www.kyccdd.com to view the CCDD 5-Year Plan.

If you need an alternative format, please call at 1-877-367-5332, and we will be happy to assist in any way we can. n 2016 Exceptional Family KY

7

Speaking Up Works MaryLee Underwood CCDD Executive Director Years of Service 3 years (initially as Public Policy Advisor) What the CCDD Means to Me: I see the CCDD as a powerful change agent that ensures that people with disabilities and their families play a prominent role in developing services and supports that promote independence, integration and self-determination.

Adam Jones Program Administrator & Project Development/ Federal Reporting Years of Service: 15 years What the CCDD Means to Me: The CCDD is a progressive advocate for citizens who are, by far, the most marginalized in our society.

Stephanie Adams Public Policy Coordinator Years of Service 1 year What the CCDD Means to Me: I am so excited to be a part of the vibrant group of people that make up the CCDD. I believe there is amazing energy on the Council around promoting the best opportunities for all people to live the fullest lives possible.

Shelley Runkle

Program Coordinator Years of Service: 12 years What the CCDD Means to Me: I appreciate working with people who have the responsibility to dream and create possibilities that can improve the quality of life for other people. Seeing the power of advocacy and how that leads to real systems change is an amazing thing to be a part of, personally and professionally.

Meet the CCDD Staff The mission of the Commonwealth Council on Developmental Disabilities is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

Tim Moore

Carol Ann Tudor

Receptionist Years of Service 6 years

Internal Policy Analyst III Years of Service 10 years What the CCDD Means to Me: The relationships I develop with our members means a great deal to me. I enjoy spending time getting to know each of them. I love seeing the progression of new members coming out of their shells to being advocates for change!

What the CCDD Means to Me: The CCDD is a great place to work. It offers me the opportunity to experience many things in life like working alongside people with and without disabilities. The opportunities that I have been given are awesome, and I am truly appreciative of them. I am thankful to be a part of the team.

Raymond F. Anderson

Budget Officer Years of Service 10 years What the CCDD Means to Me: Working for the CCDD has given me a better understanding of the barriers that individuals with disabilities encounter and has also given me a feeling of accomplishment through the work of the Council, i.e., effecting changes in policies that affect individuals with disabilities.

CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities.

www.kyccdd.com 8

www.lexingtonfamily.com

ASK FOR PASSPORT–

Nearly 300,000 Kentuckians already have.

MARK-51281-d | APP_7/28/2015

2016 Exceptional Family KY pass5668v1_Expect Fam_8.5x11.indd 1

9

1/13/16 10:31 AM

Speaking Up Works

This Is the

Way She

By Heidi McKenzie

Rolls

Former Ms. Wheelchair Kentucky Launches Her Own Clothing Line – Alter UR Ego

By Heidi McKenzie

A

ugust 4, 2007 is a date that forever changed my life when I became a T-4 paraplegic at the age of 21.

On a foggy night, driving a little too fast on my way home from a mud volleyball tournament, I missed a curve and crashed my car into a tree.

I don’t remember a lot of that day, but I am a believer that things are meant to happen for a reason.

An optimist at heart, I’ve never thought “What if?” I have always focused on what my next move in life will be.

Recovery consisted of having to learn how to breath on my own, speak and eat all over again as well as learning my new normal as a paraplegic.

The hospital stay and intense therapies lasted for four months until I was able to go home.

After getting through the mourning process and coming to terms that I would never walk again, I realized I was exactly where I needed to be.

With the support of my family and friends and even strangers who 10

www.lexingtonfamily.com

prayed for me and sent notes, I knew I had to make the best out of the situation.

Today, I live each day with a smile on my face and I live life to the fullest.

I have come to know myself better and have a voice to show it.

Being able to drive was the biggest part of gaining back my independence.

The feeling of being able to do things on your own again is indescribable.

Society doesn’t realize how precious those little things in life are until those possibilities are stripped away from you.

In 2011, after going back to college, I graduated with a bachelor’s degree in Small Business Management from Morehead State University in 2011.

In 2012, I was crowned Ms. Wheelchair Kentucky after which I became an advocate for those in wheelchairs.

I traveled across the country, sharing my story with Girl Scout troops, college, high school and elementary students, and whoever else would listen to a girl in a wheelchair with a crown, wave, smile and the desire to inspire other people!

I competed in Ms. Wheelchair America and though I didn’t win, it was my first experience with 20-something women in wheelchairs.

It was like we all had this understanding of how we roll.

This also gave me the opportunity to realize many common problems that we all share.

Being the stylish diva that I am, I realized very quickly that finding fashionable, functional clothing was nearly impossible for me and my friends on wheels.

So I set out to create a design so my

Heidi McKenzie, second from right, and friends model Heidi”s new clothing line.

Speaking Up Works friends and I could roll in style with our daily activities in mind.

News, LifeNews.com, EcoSalon, written in Japanese and Portuguese and it even reached MTV Finland and a blogger in Scotland.

This campaign has funded my first production run of men’s and women’s adaptable jeans.

My manufacturer is located in North Carolina and the jeans will be sold online to reach as many people as possible that can benefit from them.

Injury (KCSCI), which is dedicated to educate and legislate change for the SCI community in Kentucky.

As a member of KARRN (Kentucky hat’s when Alter Ur Ego was Appalachian Rural Rehabilitation born. We make you look good Network), I help residents of Eastern so you feel good.

Kentucky find suitable therapies.

I want to make it possible for those I also serve on the board of Build with disabilities to express their Inclusion, Inc., the parent company “alter-ego” through fashion while of AIM! Advocacy & Inclusion on breaking down social barriers. a Mission, which teaches young My first product students about the line is jeans, which power of community I've made fashionable, inclusion and "I want to make it possible for those functional and accessibility. with disabilities to express their comfortable for I feel that I have the men and women in duty to reach out and ‘alter-ego’ through fashion while wheelchairs. help people in any way Length options are breaking down social barriers."

I can. available so when you For fun I like to are sitting your jeans participate in adaptive aren’t riding up. sports.

Pockets are located on the thighs for ne of the rewards of the Two years in a row I went to Empire, easy access, and there is an invisible campaign was an option Colorado to an adaptive sports camp catheter opening for girls to make for those to Pay It Forward, for girls, where I have tried everything things a little easier. where backers were able to buy a from scuba diving, kayaking, go-cart In addition, the jeans are equipped pair a jeans for someone they know racing, tennis, archery, horseback with a tummy control panel because in a wheelchair or someone who can riding, yoga and hand cycling. we can't suck in our bellies, and you benefit from know everybody wants to be able to them. do that!

Those jeans The back waistline is higher than will be used in the front so when you are bending for prizes in over your crack isn’t showing. social media The back waistband is also elastic competitions in and there are straps to help pull your 2016, as well as Men’s and Women’s adaptable jeans for those in wheelchairs jeans up and get all that junk in your given away to trunk. those in need.

In July 2015, I launched a As my kickstarter campaign for my business grows, company, Alter UR Ego: Wheelchair I also work Alter UR Ego features functional, fashionable clothing.

Fashion, Made in the USA, that was part-time at our successfully funded when 465 backers family business, came together and believed in making McKenzie Concrete of KY. As an inclusive company, I intend to Alter Ur Ego a reality!

In addition, I volunteer at Cardinal market to every demographic available After a slow start and only eight Hill Rehabilitation Hospital in because I don’t want anybody left out days left we raised nearly $20,000.

Lexington as a mentor for newly of this opportunity.

Once the media caught the story injured spinal cord patients, inspiring If you’re interested in seeing how it spread like wild fire. Articles were them to try to look for the bright side we roll, sign up for our newsletter at: featured on Yahoo News, Mashable, in any situation. alterurego.co and don’t worry, you can Huffington Post, GOOD Magazine, I’m also a board member of the unsubscribe at any time if we happen Hello Giggles, Digital Journal, Fox Kentucky Congress on Spinal Cord to annoy you! n

T

O

2016 Exceptional Family KY

11

Speaking Up Works

Americans With Disabilities Act: The First 25 Years

T

he Americans with Disabilities Act celebrated its 25th anniversary in the summer of 2015, but the fight for this landmark legislation began long before 1990.

The disabilities rights movement consisted of action as well as the idea that people with disabilities should no longer be pushed out of sight and ignored.

Activists wrote thousands of letters to Congress sharing their stories of

discrimination. Protestors blocked public buses that were inaccessible for wheelchairs.

People organized sit-ins of public spaces. In fact, the longest sit-in to ever take place in a federal building was related to disabilities rights legislation.

The first shift in public policy 12

www.lexingtonfamily.com

came with Section 504 of the 1973 Rehabilitation Act. Section 504 banned discrimination of federal funds on the basis of disability.

This was a start – but there was still a long way to go.

Regulation of the anti-discrimination policy was a complicated process.

But the disability community stayed vocal and active throughout Supreme Court cases regarding Section 504.

A national campaign encouraged people with disabilities to write “discrimination diaries.”

These diaries told the stories of people who were blind, deaf, living with Down syndrome, HIV infections, mental illness or in wheelchairs.

The variety of disabilities was vast, and the need for comprehensive civil rights legislation became clear.

The first draft of the ADA was introduced in 1988.

Testimonies poured in from average citizens, as well as the bill sponsors themselves. One senator spoke of his brother who is deaf.

A congressman from the House of Representatives referenced his own discrimination because of epilepsy.

A veteran who is paralyzed explained that he couldn’t leave his housing project because he couldn’t navigate the street curbs or get on the bus.

A woman who had battled breast cancer could not find work because no one wanted to hire someone with a history of cancer.

These stories spoke loud and clear – and in 1989 the Senate voted in favor of the bill 76-8. People with disabilities were officially protected as a minority class.

“The ADA is a dramatic renewal not only for those with disabilities but for all of us, because along with the precious privilege of being an American comes a sacred duty to ensure that every other American’s rights are also guaranteed,” President George H.W. Bush said at the time.

“This act is powerful in its simplicity.

“It will ensure that people with disabilities are given the basic guarantees for which they have worked so long and so hard: independence, freedom of choice, control of their lives, the opportunity to blend fully and equally into the rich mosaic of the American mainstream.” n

Everything You Wanted to Know About the Did You Know... l That a service animal can only be a dog or miniature horse; that it must be on a leash at all times; and that it can go anywhere that its owner goes? l That people with disabilities must have the same opportunities to vote as the general population? l That transportation companies are required to provide accessible means of transportation for customers with disabilities? l That churches are exempt from the ADA – unless they are used as a polling place on Election Day? l That students with disabilities have the right to the same education and educational opportunities and materials as students without disabilities? l That employers have to amend policies that may be discriminatory to employees with disabilities? l That people with disabilities must be able to access all government services that are offered online? This means that all applications, forms, notices, announcements, etc. that are on a government website must be in an accessible format.

l That if parking is provided, then accessible parking must be provided and marked with signage, but not necessarily marked with paint on the pavement? l That accessible seats in concert halls, arenas, theaters, etc. must be dispersed among all the seats in the venue and that they must have companion seats, as well? l That the ADA applies to employers with only 15 or more employees? l That employers have to provide all reasonable accommodations that help employees with disabilities do their jobs? l That the Kentucky Assistive Technology Network and Area Technology Centers can help citizens with disabilities acquire and pay for assistive technology? l That any disability that limits any major life activity or bodily function is covered under the ADA? l That any entity that is open to the public must be physically accessible in regard to ramps, doors, restrooms, etc.? l That courtrooms and jails must be accessible? n Jennifer Hicks Kentucky ADA Coordinator | www.ada.ky.gov

2016 Exceptional Family KY

13

Speaking Up Works

Center for Courageous Kids

By John Lynch

T

he first time Kim WhittinghillSmith dropped off her daughter, Sophie, at The Center for Courageous Kids summer camp, she was convinced that Sophie wouldn’t stay.

Then, 12, Sophie had never been away from her parents. Because of a loss of oxygen at birth, Sophie has cerebral palsy, moves around in a power wheelchair, has impaired speech and needs round-the-clock care.

“As we drove away that day, I kept expecting to get a call from the camp to come get Sophie,” Kim said.

The Center for Courageous Kids (CCK) sits in the rolling hills of Scottsville, outside Bowling Green. As Kim and Mike drove to Bowling Green where they planned to spend the night, a funny thing happened.

No call from the camp.

So, they drove home to Goshen outside of Louisville and called the camp the next day.

“How’s Sophie doing?” Kim asked nervously.

The answer surprised her.

“Sophie was doing great and having the time of her life,” Kim said.

That came as no surprise to those at the camp. Since 2008, CCK has served nearly 22,000 seriously ill children and family members, providing a priceless experience – a week of summer camp where the only agenda is fun, fun, fun.

“Oh, it’s such a great place,” said Kim, whose daughter is now 17 and has attended camp every summer since her first.

“This is a place where she can be a normal kid, and it gives her an opportunity to do something with her peers. It’s such a blessing for our family.”

CCK is like no other place in 14

www.lexingtonfamily.com

Since it opened 2008, The Center for Courageous Kids, which sits on 168 acres in Scottsville, Ky., has served nearly 22,000 children and their families at a one-of-a-kind summer camp.

Kentucky. Sitting on 168 acres, CCK is a world- class medical camping facility designed specifically for children living with medical challenges who cannot attend a traditional camp.

The camp includes a state-of-the-art medical center, a helipad, equestrian center, bowling alley, indoor swimming complex, gymnasium, climbing wall, boating and fishing dock, four camper lodges, dining hall, theater and countless other fun activity areas.

O

perating year-round, the Center offers two programs: During the school year, Family Weekend Retreats serve up to 30 families per weekend when the whole family can participate in camp activities together.

“When we spent the family weekend together,” Kim said, “it really improved my comfort level.”

volunteers – 19 and older – who fill 2,400 volunteer slots.

The camp also hires 70 college interns each summer, who come from 23 different universities and as far away as Colombia, Scotland and Spain.

Many are pre-med or education majors.

For seven weeks of the summer, each counselor is assigned to two children.

They all live together in four lodges with 32 children and 26 counselors in each lodge in rooms that sleep eight.

Two other weeks of the summer are for non-ambulatory and medically fragile children whose parents stay at

M

urtie oversees all aspects of CCK and can trace his connection to the The second program consists of camp to – of all things summer camp sessions that serve up to – his military career. A colonel in the 128 kids ages 7 to 15 per week.

Army, he served as aide de camp during Each camping week is illness specific, Operation Desert Storm in Iraq to allowing campers to live and play with General Norman Schwarzkopf. children facing the same physical Ten years later in 2001 when Murtie challenges. One of the byproducts of was set to retire from the Army, he the week is invaluable positive peer consulted the general. Murtie wanted a pressure. letter of recommendation. Instead, he “When you get these kids together, got a new career. they teach each other,” said Roger “He asked me to visit a Camp Boggy Murtie, CCK’s President and Executive Creek in Florida and that changed my Director. life,” Murtie said.

“If a 7-year-old is afraid The camp for children of needles, for instance, with disabilities had been friends show him how to do started by two of the most it and his confidence goes off unlikely business partners – the chart. Same thing with Schwarzkopf and actor Paul learning how to change your Newman. own catheter.

But both had a heart for “These kids start children with disabilities and blooming.” started the camp.

That’s the most gratifying After one weekend at the part of the job, said Murtie, camp, Murtie fell in the love adding that working at the with the mission, and the camp is more of a calling course of his post-military life than a profession. was set.

“We can’t cure children of When Mrs. Campbell came what they have but we can to visit the camp, Murtie was put a smile on their face and her guide. She then hired him Sophie Smith shares a happy moment during a week at summer camp. give them an experience they to help her launch CCK. can’t have at any other camp.

Murtie has never looked “For the week they are here, they get the camp. The counselor-child ratio for back. When asked what the camp means the chance to be normal.” those camps is 1 to 1. to him, Murtie said, “Do you know the Amazingly, the camping experience movie ‘The Great Santini’? That was me.” is free to every child. That’s thanks to ophie, along with children “The Great Santini” is the account by the woman who started CCK as a nonfrom 43 states and 10 foreign author Pat Conroy of his relentlessly profit enterprise – the late Betty Turner demanding military father. countries, count the days until Campbell. camp begins. She loves the “I was a high-strung, type-A person, Her father Cal founded the Dollar zero-grade entry pool, bowling, making but the Center has made me a better General company and after Mrs. crafts, fishing and canoeing. person,” Murtie said.

Campbell visited a similar camp in Plus, mom and dad know she is safe “Being around the kids, it didn’t take Florida, she donated $20 million to while having all that fun. me long to de-stress. I became more launch a camp that would serve the patient, tolerant, compassionate. I’m a “The doctors and nurses on staff are children of Kentucky and Tennessee. kinder, gentler person. The kids bring so capable,” Kim said. “And the young CCK is debt free and is funded by that out in you. adults who volunteer have a passion proceeds of Mrs. Campbell’s estate and “This has been a transformational for the campers. The same volunteers donations from individuals, businesses, experience for me. There are still way return year after year and they put foundations, health partners and more children we need to serve. their heart into this.”

“But because of the work we do here, Along with 30 year-round employees, others with a heart for children who are medically fragile.

I sleep better at night.” n CCK is staffed by 1,000 unique

Speaking Up Works

S

2016 Exceptional Family KY

15

‘ManoAmiga’

Louisville’s La Casita Center Provides Helping Hands For Latino Families & Their Children With Disabilities

I

By Danielle Komis Palmer

t nearly broke Raquel Covarrubias’s heart when the pediatrician told her the news.

After all, the nurses at the hospital had said her newborn baby Erick was fine.

But here she was, three weeks after his birth, faced with the news that her baby had Down syndrome, and she didn’t know where to turn.

During that time, Covarrubias, husband Daniel Ortega, and child Edgar Ortega, along with baby Erick, finally found a place where they no longer felt so alone.

The Louisville-based nonprofit, La Casita Center, welcomed them with open arms and connected them with others who had children with special needs in Louisville’s Hispanic/Latino community.

Thanks to the Una Mano Amiga

offered family groups at Family Health Centers.

The program has been helped by Dr. Fernanda Nota, of the U of L Department of Pediatrics, and Dr. Julia Richerson with the Family Health Center.

The program offers support groups for families and one for mothers.

A support group for fathers will be started this year.

The goal is to - Raquel Covarrubias educate, empower and support its members.

The program currently serves about “We create a safe space to try to see 60 families. what their needs are.”

Because the community is young, Una Mano Amiga was launched in many of the children with special needs 2013 by the Commission for Children that La Casita Center serves are young with Special Health Care Needs in children, babies and toddlers. partnership with the Department of The special needs vary widely across Pediatrics of the University of Louisville the families, with some children and La Casita Center. experiencing learning disabilities, In 2015, the program expanded and Support Group, the Ortegas – and many families like them – were connected to other Spanish-speaking families who have children with special needs.

“Here they feel safe and welcome and belong to a community that accepts and supports them,” La Casita Director Karina Barillas said.

‘For us, it’s been a blessing to know we’re not alone.’

16

www.lexingtonfamily.com

Speaking Up Works autism and Down syndrome among other disabilities.

Some children have one diagnosis, while others may be coping with many.

Families hail from Latino countries, with the largest number coming from Mexico. Others come from Cuba, Brazil, the Dominican Republic, Guatemala, Honduras and Puerto Rico.

“We are supporting them in getting access and diagnosis and understanding it,” Barillas said.

She noted that there are many helpful, local services available, but that administrators often had trouble reaching this segment of the community, typically because of the language barrier.

“We don’t want to reinvent the wheel,” Barillas said. “We’re a liaison between the families and the mainstream.

“We’re just helping them find the services that are already there.”

F

or Covarrubias and her husband, the group has been a lifeline.

The couple is from Mexico and has lived in the United States for about 10 years.

“For us, it’s been a blessing to know we’re not alone,” Covarrubias said, through Barillas as her interpreter.

“It’s helped me accept my child’s condition because at first it was very hard to accept.”

Erick is now 15 months old, and his mother stays home with him.

She helps perform therapy on him and takes him to speech, and physical and development intervention therapy each week while his father is at work.

It’s not easy. If you don’t stimulate and push him, Erick won’t progress, Covarrubias said.

Slowly but surely, he’s moving more and just starting to crawl.

Babies with Down syndrome typically experience delays in certain areas of development while often achieving the same milestones as other children,

just on their own timetable.

It’s been very helpful coming to La Casita, Ortega said, where the family group meets.

“Every time we come here we get to see people who are experts in Opposite: Daniel the areas,” he Ortega with his said. son, Erick.

“Any questions we want to Top, Daniel answer they tell Ortega and Raquel us.”

Covarrubias with Thanks to their children Erick the center, Covarrubias and Edgar. feels more empowered.

Right: Karina She knows what Barillas is the rights Erick has director of La in school.

Casita Center.

She also knows how to speak up when she’s uncomfortable with someone doing therapy, like when he was being held in a way she didn’t like by a therapist.

Barillas noted that in the Latino culture, being polite and showing respect is so valued it can make it challenging for parents to speak up in a situation where they are unhappy or uncomfortable.

They fear that they will appear disrespectful.

Covarrubias also knows now that she can request an interpreter.

Although she understands and speaks some English, the nature of therapy and its use of anatomical expressions make it especially difficult to operate in a second language.

She noted that her new knowledge has also helped her be more effective in managing the education at school of her 5-year-old son Edgar.

She admits that working with Erick can be tiring, but that with the help

of her husband, and the support and helpful information from La Casita Center groups they both attend, it is more manageable now.

Plus, seeing Erick’s smile always cheers her up.

“Now we feel he’s a big blessing because he’s united us much more,” she said.

Added Ortega: “He’s enchanting. He’s always smiling.”

Ortega said he noticed a marked improvement in his wife’s attitude and happiness once she found the support at La Casita Center.

“I realized the change and realized how at ease she was when she came home with the new information for the whole family,” he said.

“We would never want for this place to be closed. It supports us and makes us feel not alone.”

Danielle Komis Palmer is a freelance writer based in Louisville. n 2016 Exceptional Family KY

17

Speaking Up Works

Her

AIM is

True

Lexington Mom Helps Launch ‘Build Inclusion’ To Create Natural Supports

By Annette Jett

A

s social beings, we need others to survive and thrive. For many of us, friendships are formed naturally with little effort.

We meet someone and connect through our common interests. After discussing our likes and dislikes, wants and needs, desires, hopes and dreams, we decide over time whether we will form a lasting bond.

However, for individuals with disabilities, these natural supports can be more difficult to attain.

According to the National Core Indicators study of individuals with disabilities receiving care through the Supported Community Living Waiver, Kentucky falls sorely behind national averages when building natural supports.

In 2012-2013, only 48% of Kentuckians with disabilities reported having friends who are not family and/or paid staff, compared to 76% nationally.

What prevents the building of natural supports? Barriers to communication, perceptions, accessibility and inclusion all play a part.

Ten years ago, words like disability, advocacy, inclusion, natural networks and accessibility were not part of my regular vocabulary.

Actually, they weren’t even on my radar. Most people don’t think about these things until they impact them directly.

Thankfully, that all changed with the birth of our first child, Gracie. In our case, the diagnosis was rare, Agenesis 18

www.lexingtonfamily.com

of the Corpus Callosum (ACC), meaning that our daughter was missing the middle piece in her brain that connects the right and left hemispheres.

Little was known about ACC at that time, and manifestations of the syndrome, which can include autisticlike symptoms, vary considerably.

Gracie, now 10, is an active fourthgrader in a public school in Lexington.

Her IEP plan and strong adaptive skills help her overcome global delays and learn at her own pace.

Much of her disability is hidden except that she wears a brace on her right leg and a smaller one on her left foot because of balance and mobility issues associated with ACC.

A

t the time of her diagnosis, there were no local parent groups to call on, and no children nearby whom we knew of with the same disability.

We felt lost in our new world filled with unknown territories.

As a family, we put much research

Annette Jett with husband, Frank Bickel with their children, Charlie and Gracie. into our daughter’s diagnosis, as well as the medical and community supports that she needed.

By the time our daughter was 4, and her younger brother, Charlie, was 2, we realized that navigating these systems was a full-time job.

With complete abandon, I made a mid-life career change as a caterer and restaurateur to caregiving and professional advocacy.

My journey took me back to school, to the Human Development Institute (HDI) at the University of Kentucky.

While completing the Graduate Certificate in Developmental Disabilities offered there, I was catapulted into an amazing network of like-minded mentors and colleagues all committed to improving the rights of individuals with disabilities.

It was there that I learned that among emerging issues perhaps none is more important to the disability community than the creation of natural supports and improvement of accessibility.

To the 30% of Kentuckians considered to have a disability, these concepts are often a precursor and solution to

other, larger issues such as housing, transportation, employment, health and quality of life.

Recognizing this, I, along with fellow parents, self-advocates and industry professionals created Build Inclusion, Inc. in 2014, with the intent of facilitating natural networks and community access for individuals with disabilities through education, engagement and employment.

The company earned non-profit status in 2015 and delivers services in a crossability environment.

Our flagship program to date is AIM! Advocacy & Inclusion on a Mission, which teaches young students about concepts related to disability, as well as the power of advocacy and intentional inclusion.

A call to action, AIM! is generally delivered during a week-long event at elementary schools but can also be adapted to afterschool, scouting, church and leadership programs.

Approximately 15% of public school students in Kentucky have a disability that requires modifications or accommodations through an Individualized Education Plan (IEP) or a 504 Plan.

C

hildren are curious about their classmates. Often, they don’t understand their behaviors, or their physical, emotional or learning differences.

This can result in children making their own assumptions about their peers, which ultimately can block the formation of friendships that happen naturally for their counterparts without disabilities.

During AIM! events, self-advocates and industry professionals are on hand to debunk the myths and stigmas surrounding disability by encouraging questions and conversations in a safe and informative environment.

The theme “exclusion isn’t always intentional, but inclusion must be” is emphasized throughout the program, and the curriculum is designed to

“

HOW DO YOU PARTICIPATE IN THIS MOVEMENT? Look for or create integrated opportunities that encourage intentional inclusion and provide necessary supports from leaders, team members and peers.

help students, staffs, families and community members form positive perceptions as they learn about topics ranging from adaptive recreation, universal design, assistive technologies, empathy versus sympathy, selfdetermination, disability etiquette and more.

The ultimate goal is to create a culture change among our youngest generation of future leaders.

O

f course, you do not have to formally participate in an AIM! program to carry out the principles of its mission, and you do not have to be a parent, sibling or selfadvocate to be impacted by disability.

As a community, we all have a responsibility to look out for each other and to use our gifts and talents to build each other up.

How do you participate in this movement? Look for or create integrated opportunities that encourage intentional inclusion and provide necessary supports from leaders, team members and peers.

When Gracie started cheerleading in the same inclusive league where her brother played basketball, she looked forward all week to her Friday night practices.

As parents, we were formally dismissed at the door of the practice room where we waited patiently in the lobby until we were called back in to review what they had learned that

night.

The first time Gracie went in alone, I felt nervous. What if she fell? What if they didn’t understand what she was communicating? What if…??

She held her own. She learned the cheers and even made a few friends.

Her coach set the tone for the rest of the team to treat her with the same respect and dignity that they showed all of the other girls.

Gracie participated fully in the halftime shows and the after-game parties.

Just like at school, accommodations were made for her as needed (like providing a chair when sitting and rising from the floor became too difficult).

Gracie learned a lot there. Her dad and I have learned even more. We learned to allow her choices and to encourage her self-determination.

We learned to let go, even if just for a little while, and to expect great things, not only from our children, but from our community.

Annette Jett, MBA, is a Parent Advocate and Community Inclusion Specialist and the Executive Director of Build Inclusion, Inc. She also is a member of the Commonwealth Council on Developmental Disabilities.

She resides in Lexington with her husband Frank Bickel, and their two children, Gracie, 10, and Charlie, 8. Info for Build Inclusion or to book an AIM! event: www.buildinclusion.org. n 2016 Exceptional Family KY

19

Project SAFE:

Speaking Up Works

A Decade of Protecting Kentuckians With Disabilities From Abuse

By John Lynch

T

his is what it was like a little more than a decade ago before the formation of Project SAFE, a statewide network of collaborators who provide services for people with disabilities who are victims of sexual assault or domestic violence.

If a woman with Down syndrome, for example, was sexually assaulted and went to a rape crisis center, folks there had no training in dealing with people with disabilities so they would refer her to an agency for those with disabilities.

In turn, those folks, citing their lack of knowledge about sexual assaults, would refer her back to the rape crisis center.

The result? This woman would receive no services at all.

That all started to change when Project SAFE (Safety and Accessibility For Everyone) formed in 2005. In the decade since, the multidisciplinary network of agencies from domestic violence centers, law enforcement and numerous disability agencies have raised awareness, improved accessibility, trained service providers and transformed the culture for victims with disabilities.

Project SAFE has no physical location but consists of these networks of collaborating agencies.

How does it work? In nuanced, subtle but profound ways, according to Beth Metzger and Meg Savage, Project SAFE co-chairs.

Metzger is a disability rights advocate with Kentucky Protection and

Advocacy, and Savage is legal counsel for the Kentucky Coalition Against Domestic Violence.

Savage cites a typical example of Project SAFE in action.

She received a call on a recent Sunday afternoon from a director of a domestic violence shelter, saying that a woman with disabilities showed up with service dogs.

“I can’t allow anyone in here with animals,” the director said. “What am I supposed to do?”

Savage investigated the law, specifically the Americans With Disabilities Act and the Federal Fair Housing Act, ascertained that the animals were therapy dogs and informed the shelter director that she was required to accept the woman and her dogs.

The result? A domestic violence victim with disabilities Domestic Violence Hotline received the services Kentucky Coalition Against Domestic Violence (800) 799-SAFE she needed. www.kcadv.org

Ky. Domestic Violence Programs & Rape Crisis Centers Rape Crisis Hotline Kentucky Association of Sexual Assault Programs (800) 656-4673 www.kasap.org

RCC-Bluegrass Rape Crisis Center (800) 656-HOPE (4673) DV-GreenHouse17 (800) 544-2022 RCC & DV-The Center for Women & Families Crisis (844) BESAFE1 RCC-Silverleaf Sexual Trauma Recovery Services (877) 672-2124 DV-SpringHaven, Inc (800) 767-5838 RCC-New Beginnings Sexual Assault Support Services (800) 226-7273 DV-Owensboro Area Shelter & Information Services (OASIS) Crisis (800) 882-2873

RCC & DV-Women’s Crisis Center (800) 928-3335 RCC & DV-Women’s Crisis RCC-Pathways Rape Victims Center Buffalo Trace Services Program (Ashland & Morehead) (800) 928-6708 (800) 562-8909 DV-DOVES of Gateway (800) 221-4361 RCC-Pathways Rape Victims Services Program (Ashland & Morehead) (800) 562-8909 DV-Safe Harbor/FIVCO (800) 926-2150 RCC-Mountain Comprehensive Care Center’s Healing Program for Survivors of Sexual Assault & Domestic Violence (800) 422-1060 DV- Turning Point Domestic Violence Services (800) 649-6605

RCC-The Rising Center (800) 375-7273 RCC-Adanta Sexual Assault RCC-Cumberland River RCC-Purchase Area Sexual RCC & DV-Sanctuary, Inc. DV-LKLP Safehouse Resource Center (ASARC) Behavioral Health (800) 766-0000 Assault & Child Advocacy Center (800) 928-3131 RCC-Hope Harbor, Inc. (800) 633-5599 Rape Victim Services (800) 928-7273 (800) 656-HOPE (4673) DV-Bethany House (800) 656-HOPE (4673) DV-Merryman House DV-Barren River Area Abuse Shelter, Inc DV-Cumberland Valley (800) 585-2686 Safe Space (BRASS) (800) 755-2017 Domestic Violence Services (800) 928-1183 (800) 755-5348

20

www.lexingtonfamily.com

C

omplicated Project SAFE cases often involve multiple agencies with numerous moving parts. Metzger shares a dramatic example.

A case manager of a woman diagnosed with an intellectual disability feared that the woman was being victimized by her caregiver.

In fact, the caregiver

Speaking Up Works had held the woman captive for 14 years, deprived her of medical care and prostituted her every day while cashing her SSI checks.

The woman had been raped untold number of times and became pregnant from one of the assaults.

The hospital noted that the new mom was malnourished (weighing only 80 pounds), had medical issues and a mouthful of rotten teeth.

The baby was placed in emergency foster care, and the new mother was denied visitation rights.

Her so-called caregiver pulled the woman out of the hospital against medical advice. When police arrived, they placed the woman in protective custody.

Fearing that the woman was not treated as a victim, the case manager called Metzger, who investigated and determined that the woman was a victim of human trafficking.

“She had been victimized a second time,” Metzger said, “because none of the professional agencies up there were talking to each other.”

Jeff Edwards of Protection and Advocacy, a Project SAFE collaborator, traveled to Northern Kentucky, convened all relevant parties and spelled out the full scope of this woman’s situation.

Almost immediately, the woman received medical care and additional needed services, and she moved into a group home.

Even better, a local attorney provided services pro bono to clear obstacles so that the woman could visit with her baby who was in foster care.

The result was a happy mother-child reunion – a reunion that wouldn’t have happened if not for Project SAFE.

T

he facts around disability and sexual abuse are sobering.

People with disabilities are anywhere from two to five times more at risk for abuse, and women with disabilities are four times more likely to be sexually assaulted than other women.

Even worse, 90% of women with developmental disabilities are sexually abused in their lifetime. Only 3% will report it.

“Domestic violence and rape are stigmatized as it is and when you add in disabilities, it’s even worse,” Metzger said.

Added Savage: “That’s why local collaboration is so important.

People need to get services in their community.”

Currently, two active collaborations have been formed in Louisville and Northern Kentucky, and Project SAFE is actively looking for more local collaborations.

That’s a goal of the Project’s Executive Committee, which has scheduled four network meetings this year: March 23 in Louisville, June 15 in Northern Kentucky, Sept. 21 in Frankfort for the annual summit and Dec. 14 for the final quarterly meeting.

Executive Committee members represent the following agencies: Kentucky Coalition Against Domestic Violence; Kentucky Protection & Advocacy; Commonwealth Council on Developmental Disabilities;

“90% of women with developmental disabilities are sexually abused in their lifetime.”

Meg Savage left, and Beth Metzger

Kentucky Association of Sexual Assault Programs, the state ADA, Department for Behavioral Health/Developmental & Intellectual Disabilities.

Plus, the state Attorney General Office of Victim Services, Department of Juvenile Justice, and Division of Protection & Permanency.

One of the Project’s big successes so far came in 2012 when the state ADA office traveled to every domestic violence shelter and rape crisis center in the state to ensure they were ADA compliant.

If not, Project SAFE helped to arrange for training.

Although so much more needs to be done, Metzger and Savage are gratified by the Project’s success in its first 10 years.

“When we celebrated our 10th anniversary it was a testament to the personal commitment of the people in Project SAFE who made the time to make this work,” Savage said.

“It has made me a better resource, and we have seen that Project SAFE has been woven into the fabric of so many statewide agencies.”

Metzger acknowledged the personal impact the Project has had on her.

“This has made me a better advocate and a better human being,” she said.

“It has increased my empathy and been so empowering to know that we can connect people with disabilities who have been victimized with the services they need.” n 2016 Exceptional Family KY

21

Speaking Up Works

Harold Kleinert:

I

started my career as a teacher of were excluded students with severe emotional from public school simply and behavioral disorders at a because of the fact of their state institution in the fall of disability.

1969.

In the mid-1970s, I taught And the most important work in a public school for students with that I have ever done, I have done significant disabilities, but it was a as a teacher – first, of students with school for students with significant significant disabilities, and second, disabilities only. as a teacher of graduate students in The opportunities for interactions education and related fields. and friendships with peers without I have learned the real meaning disabilities, so essential in the lives of of teaching – which is not that our our students, were simply not available students become almost as good as at that time. we, or even that they become as good And I also saw the full impact of the as we, but that if we truly teach passage of our great “Nothing in well, they will become better national special than we are. education law – then education And the true definition of called PL94-142, is more a good teacher is one who the Education for prepares students to do much All Handicapped fundamental more than he or she could have Children Act. than the ever done.

The law was passed That is equally true for all

by Congress in 1975 ability to of our students, whether they but actually went communicate”. have significant intellectual into full effect in the disabilities or whether they fall of 1977. are working toward the highest That year, I had started teaching in professional degree in their field. a public school in east-central Illinois, My career has spanned the modern and into my classroom that first school history of the field. day walked seven students, ages 14-19.

In addition to my first job as a For each of them, it was their first teacher in a state institution, I day in a public school! also taught in a separate school for I went on to teach students with students with severe disabilities significant disabilities in Danville founded by a parent advocacy in the 1980s while I was working organization. on my doctorate in education at the In the 1960s and early ‘70s, parents University of Kentucky. had no other choice but to establish As I witnessed the power of their own schools, because at that friendships among my students and time students with severe disabilities the other high school students at that 22

www.lexingtonfamily.com

Harold Kleinert is flanked by his wife, Dr. Jane O’Regan Kleinert, and his daughter, Elizabeth Coady Brownstein

school, I realized that students with significant disabilities could fully belong to their school communities, and that they could be valued in their own right as friends and fellow students by their classmates without disabilities.

A

fter I earned my doctorate, I started work at the University of Kentucky at the Human Development Institute (HDI) on a Systems Change Project for Students with Severe Disabilities.

The focus of that project was to work with schools throughout Kentucky in closing separate schools for students with significant disabilities.

The goal was to enable those students to attend regular schools with other students in their communities.

We also saw the first work to truly include students with significant disabilities not just in the life of the school, but to fully participate in core content, academic classes.

I continued to work at HDI during those years, becoming Training Director, and then Executive Director in 2000.

O

ne of the projects that I have most enjoyed during that time has been our Kentucky Peer Support Network Project, which is

Harold Kleinert funded by the Commonwealth Council on Developmental Disabilities.

The objective is to work with schools throughout the state to develop peer networks and peer supports.

Networks of three to six and a student with a significant disability meet once a week to plan activities they can do together as friends.

Peer supports (two-three students without disabilities) provide ongoing support to a student with a significant disability so he or she can participate in all activities of a general education class.

On June 30 of 2015, I officially retired as Director of HDI, though my work on the Kentucky Peer Support Network Project continues.

Yet I also know that what we have achieved since the 1960s is nowhere near enough, not even close, not by a long shot.

And there are two things that remain deeply unfinished in my own work.

The first is a focus on students with the most severe disabilities.

Along with Dr. Jacqui Kearns of the Human Development Institute and my wife, Dr. Jane Kleinert, a Communication Disorders faculty member in the UK College of Health Sciences, we have conducted research that shows that nationally up to 10% of students with the most significant disabilities are leaving school without a reliable mode of communication.

That means they have no way to express their needs, wants and dreams.

Nothing in education is more fundamental than the ability to communicate.

And 40 years after the passage of our great national law entitling all children the right to attend public school, a significant percentage of students are not achieving this most essential of all life outcomes.

Secondly, I would simply note the importance of the very first moment in

which a family receives a diagnosis.

As more and more parents receive a diagnosis of a developmental disability prenatally, at birth or soon after birth, it is absolutely essential that we be there with balanced, accurate and upto-date information about what life will be like for that family and for that child.

That is the true beginning of family support, and it is one of the most important moments in the lives of families.

That is why I value so greatly the opportunity I’ve had to work with our National Center for Prenatal and Postnatal Resources, also based at HDI. Families deserve the knowledge of the full possibilities of life for their children from the very first moment of diagnosis.

We have a commensurate obligation to ensure that the supports necessary to achieve those possibilities will always be there for the future. n

CAROUSELKIDZ A program to fit your child’s special needs

Legacy

KY One Health

one The

• One-on-one gymnastics and dance lessons • Small group gymnastics and dance class • Aid/assistant program For more information contact Heath at

hunderwood@legacyallsports.com

to turn to for peace of mind.

We offer the most comprehensive array of clinical behavioral health services in the region for children, adolescents and their families. From general psychiatry to the most complex treatment, our highly skilled professional staff provide compassionate care in a safe and secure environment. For more information or to schedule a no-charge assessment, call 502.451.3333.

KentuckyOneHealth.org/OurLadyOfPeace

859-977-8862 261 Ruccio Way • Lexington www.legacyallsports.com

2016 Exceptional Family KY

Pub: Exceptional Family Magazine Size: 4"x5"

23

Client: KentuckyOne Job No: KYLO-50737

Speaking Up Works

By John Lynch

A

ll Abilities Drama Camp, created for youth and adults with and without disabilities, is in the process of planning for its seventh year in existence in Lexington.

This camp started as a small, not-forprofit experience, dreamed up by adults who realized a need based on their philosophy of inclusion.

The camp’s director, schoolteacher Anna Brannen, asked a small group of educators with various skill sets and a passion for inclusion to help create a camp that would allow every individual involved to feel accepted, valued and loved.

This core team, which included Andrea Nielsen and Julie Sharon, Brannen’s fellow teachers at Jessamine Early Learning Village, realized immediately that a need for this kind of camp existed.

In collaboration with St. Elizabeth Ann Seton School, the camp was established at the school.

As core team members planned for the camp, they realized they would need numerous volunteers and supporting staff. The first stop for these volunteers was the staff at the Jessamine Early Learning Village.

Special educators, preschool and kindergarten teachers and

paraprofessionals all chose to volunteer a week of their summer to help make this dream a reality.

Other volunteers were recruited, including teenagers. High school students earned volunteer hours by providing support and interaction with the campers.

As children signed up for camp, the staff contacted their families to learn how best to support their children.

In July of 2010, the first All Abilities Drama Camp occurred, culminating in an inspiring musical performance based on the story of Volunteers and campers bond while having fun “The Hungry Caterpillar.”

Each year, the staff works to embrace the gifts of the campers volunteers who allow a dream to and volunteers, providing them become reality. Heart, determination opportunities to express themselves and hard work are all part of the through the arts, all while accounting formula that makes AADC a success. for the differing skills, personalities and Teen volunteer Kyleigh Davis said it abilities of all involved. best.

Campers with and without disabilities, “I love camp because it’s so unique. It’s ages 5 and up, work together toward the awesome to see kids with and without performance. special needs work together to create At the beginning of the week, campers everything they need to put on a play,” choose their preferred job in the play – she said. “It’s also a ton of fun to hang music, background/props or acting. out with the kids throughout the week.”

During the week, campers within their Fellow teen volunteer Sara Haag, a cochosen group experience teamwork, leader of the dance group, echoed those inclusion and various learning styles. sentiments.

Participants gain “I love camp because it teaches all appreciation of the arts, that everyone is capable of anything,” as well as self-esteem she said. for being a contributing “It doesn’t only teach the kids this member of the but it teaches the volunteers too. All culminating performance.

Abilities Drama Camp is the highlight Interactions of respect of my year and I look forward to it every and encouragement for all summer.” campers are modeled by Info: Visit the Facebook page, blog at staff. www.allabilitiescamp.blogspot.com or Each year, AADC occurs Year after year dedicated staff and volunteers return to help thanks to the amazing email at aadramacamp@gmail.com. n 24

www.lexingtonfamily.com

The Arc of Kentucky is statewide grassroots organization that works to ensure a quality life for children and adults with intellectual and developmental disabilities. We do this by focusing our efforts on P.E.O.P.L.E!

P protecting rights encouraging E inclusion optimizing O supports promoting P choice L lifting expectations E educating communities Over sixty years of advocating, supporting and empowering people with disabilities & their families

The Arc of Kentucky

706 E. Main Street Frankfort

502-875-5225 1-800-281-1272 www.ArcofKY.org ArcofKY@aol.com

opportunity, recovery, growth...

we help people get there

Providing behavioral health, intellectual & developmental disabilities, and substance abuse services to the citizens of Central Kentucky for over 45 years.

24-Hour Crisis Line: 1-800-928-8000 2016 Exceptional Family KY

25

Commission for ch Speaking Up Works

Commission for Children

Coordinating Care for Thousands of Kids

W

hen Jackie Richardson interviewed for the Executive Director’s job four years ago for the Commission for Children with Special Health Care Needs (an agency within the Cabinet for Health and Family Services), it took no time to realize that her professional and personal life had prepared her perfectly for the position.

She was the ideal candidate.

Previously, she had served as the Chief of Staff at Louisville’s Department of Public Health and Wellness, she worked as the CFO for the Louisville Zoo and was the Internal Auditor of Operations for the City of Louisville.

She checked all the boxes for professional leadership.

And as the mother of three daughters, including twins with Down syndrome, she had used the Commission’s services without realizing it.

The twins, now 17, had hearing issues when they were young.

Although Down syndrome isn’t a diagnosis covered by the program, the

Jackie Richardson with her twin daughters Bailee, left, and Lynsey

T

twins were able to receive audiology services for hearing issues Audiology is only one of a myriad of services that the Commission provides for Kentuckians under 21 years old with special health care needs.

With 12 clinics statewide and partnerships with a broad range of healthcare providers, the Commission touches many lives – 82,000 services to 9,400 unduplicated clients in 2015.

Those services include conditions ranging from asthma and cerebral palsy to heart problems to spina bifida.

The Commission’s clinics are positioned so that no one in Kentucky is more than 90 minutes away from service.

In its clinics, doctor’s offices or other health-care settings, the Commission provides services ranging from physical, occupational and speech therapy to surgery, medication management and dental care.

Perhaps its most valuable service is health-care coordination. As Richardson pointed out, the Commission helps patients with appointments, prescriptions, transportation and access to other services they need.

“We make sure there is no gap in services. We are the gap fillers,” Richardson said.

And the Commission, which works with Medicaid and private insurers, provides these services on a sliding fee scale for those who qualify.

Three of four patients who receive services have Medicaid. In addition, a child must meet the Commission’s medical

he Commission for Children with Special Health Care Needs has a unique program to provide support to parents of children with disabilities.

The Family to Family Health Information Center (F2F HIC) is led by parents of children with special needs who, as parents themselves, have experienced first-hand the maze of services and programs designed to help their children.

The F2F HIC helps parents and families understand and access the available programs and services their children need through 26

www.lexingtonfamily.com

eligibility criteria.

Recent innovations have expanded the Commission’s reach. Its Family to Family Health Information Center program trains parents to be consultants so they can assist other families. (Please see accompanying story).

The fastest-growing area of service is neurology, which accompanies the increasing number of children diagnosed with cognitive issues.

A pilot program for children with autism was so successful last year, care will now be provided statewide.

Another area of emphasis is helping children when they age out of the program. Starting at the age of 14, patients receive information about vocational rehabilitation, group homes and links to adult health-care providers because “we know these children are capable of living fulfilling lives,” Richardson said.

“We want children to have the highest quality of life possible.”

With all the positives the Commission provides, Richardson knows that more Kentucky children could benefit from its services.

“Our objective is to reach as many children as we can,” said Richardson, who cites the Commission’s outreach programs to schools and community events.

“Who are we missing? Who are we are not serving? Is there a barrier to care? We are always looking at these issues to make sure the state’s children get the care they deserve.”

Info: 1-800-232-1160 ext. 2039. n

education and peer support.

The F2F HIC also assists families and individuals with special health care needs and the professionals working with them by providing information about resources and options so that everyone involved can make informed decisions.

F2F HICs promote access to community-based, self-directed services. F2F HIC also offers workshops and trainings, and encourages collaboration between families and professionals to improve services.

hildren

With Special Health Care Needs Hear! Hear! for Commission Clinic

W

hen I was contacted by the Commission for Children with Special Heath Care Needs (CCSHCN) about doing this article, my first thought was, “Seriously, it is the holidays and I don’t have the time to do this.” But after a brief second of thinking, I agreed.

Why? For the people who are exactly where I have been and at times still am... overwhelmed and don’t know what to do or who to contact.

So, here I am sharing a little piece of my story with a smile on my face and a tear in my eye in hopes that this will help someone find the help he/ she needs.

On July 23, 2004, when I was 23, my husband, Brady, and I welcomed a beautiful baby girl into the world – Gabriella “Gabby” Lee Anderson.

It was the greatest and scariest experience all at the same time. Brady and I decided that we didn’t want prenatal testing done and found out after birth that Gabby had Down syndrome.

At Gabby’s 3-month checkup, she still hadn’t passed any of the hearing tests she had been given.

“I am going to refer you to the Commission for Children with Special Health Care Needs,” the pediatrician told us. “I am going to call and see when the next hearing clinic is.”

Fifteen minutes later he returned and said: “They have a clinic this afternoon.

If you could go over to their office now and fill out the paperwork, that would make it easier this afternoon.”

I went to my car and cried. I looked at myself in the rearview mirror and thought, “Great. Another doctor.”

I called Brady and asked him to come and help me Brady and Beth Anderson of Somerset with with Gabby so I could get their children Gabby, 11, and Hayden , 5 everything completed.

Gabby looked at us and said with a I was terrified as I walked into the laugh, “I can hear you.”

Commission for the first time.

It has been an amazing journey to I had never heard of the organization hear her speech flourish from only a few (even with my background in child care people understanding her to everyone and a college degree in Early Childhood knowing exactly what she is saying.

Education), but I quickly learned that I Through my years with the CCSHCN was in great hands.

I have had the honor of working closely The people there were warm, with the Parent Advisory Council, welcoming, and helped me get the Family 2 Family and the Strategic paperwork done as quickly as possible.

Planning Progcess.

I actually look forward to working I am not the only person to have a with this wonderful group of people to relationship with the CCSHCN. Gabby is get the best care possible for Gabby. always excited to go see everyone.

It took a few years but after having They always involve her in all the tubes and different types of hearing discussions of her care and plans of tests, we learned that Gabby had mild action, which is a major step toward hearing loss. She was going to need her independence as she gets closer to hearing aids. adulthood.

It was exciting to see her response.

For that, and so many other things, When we put the aids in for the I am grateful CCSHCN is a part of our first time, I looked at my mom and lives. n whispered, “Hopefully, this will help.”

The backbone of the F2F HIC is the group of support parents available to mentor other parents and family members of children with special needs.

A support parent is a veteran parent or primary caregiver of an individual with special health care needs who is willing to help other families in situations similar to those they have faced.

Support parents offer caregivers the opportunity to connect with someone who understands the challenges they face and how to address those challenges.

The F2F HIC program is funded through a federal grant awarded to the Commission for Children with Special

Health Care Needs from the Health Resources and Services Administration.

Parents and caregivers interested in finding a mentor or volunteering to become a support parent can contact: Western Kentucky: Sondra Gilbert // Sondra.gilbert@ky.gov 1600 Breckenridge Street, Owensboro 42301 / (270) 852-5533 (877) 687-7038 ext. 2125 Eastern Kentucky: Debbie Gilbert / DebbieA.Gilbert@ky.gov 310 Whittington Parkway, Louisville 40222 (502) 429-4430 ext. 2069 // (800) 232-1160. n 2016 Exceptional Family KY

27

HB 144 Commission: Faces of Advocacy Member Lynn Braker: Advocate

HelpThose Who Need a Hand-Up,

Not a Hand-Out

I knew in that moment I was sitting in the right seat.

Those of us on the Commission are appointed by the Governor to represent individuals with disabilities.

Lynn Braker of Nicholasville, pictured with son, Anderson, 3, and her We are there to husband, Tom, is a business owner and member of the Commission. see clearly when and where our citizens, who at times are unable to s one of the newest members speak for themselves, need assistance of the HB 144 Commission and special programs to afford them the known as the Commission quality of life they deserve. on Services and Supports We need to remind ourselves that we for Individuals with Intellectual and are not in charge of how we are created Developmental Disabilities, my eyes or why, but that everyone is valuable have been opened even further and my heart strings stretched beyond measure. and has a purpose.

This Commission embodies that idea, I am the mother of 3-year-old and the work it does is needed.

Anderson Braker, who happens to have The Commission consists of state Down syndrome. departments aiding in the lives I am Kentucky Ambassador for the of people with intellectual and National Down Syndrome Society. A developmental disabilities as well as resident of Nicholasville, I’m also a service providers, family members, business owner – Remedy Staffing of business owners and, most importantly, Lexington, which employees thousands self-advocates. of Kentuckians every year.

To include the very people affected So I have seen the faces of people in by the actions of the committee makes need, people who are not afforded the sense and is so refreshing. same rights, and people who despite all It’s just one more platform for them their efforts don’t have it easy in life. to show the world that people with Yet, I sat at the first meeting of this disabilities are still beautiful and Commission with tears running down capable, and make such an amazing my face while listening in shock to the difference in all of our lives. story of one mother, pleading for help The only way we can represent with her son. effectively is to hear the voices of This mother loves her son like every mothers, fathers, caregivers, providers other parent but feels lost, afraid and and those with intellectual and alone in her current circumstances.

A

28

www.lexingtonfamily.com

developmental disabilities themselves.

For the past three years, my advocacy work has focused on the “Achieving a Better Life Experience Act.” Along with U.S. Senators and Congressmen of Kentucky, the ABLE ACT has been approved at the federal level. We now need to pass this muchneeded bill in Kentucky to enable people with disabilities to earn and save money in a tax free savings account without losing their SSI and Medicaid benefits.

Did you know that the maximum SSI check for a person with Down syndrome in the state of Kentucky at the age of 18 is $733 per month?

If that were a paycheck, it would be equal to making $4.58 per hour.

People collecting this much-needed support cannot survive on it alone.

They are not millionaires. Most live in poverty.

M

y goals for my son, Anderson, are like all other parents.

I want him to live independently and provide for himself.

I want him to go to work every day like I do and contribute to an organization.

I want him to have self pride and be useful.

I want him to feel accomplished and be able to afford more than just the bare necessities in life.

I am extremely proud and honored to serve on the Kentucky Commission on Services and Supports for Individuals with Intellectual and Developmental Disabilities and to be a part of passing an incredibly historic change in the lives of people who are never asking for a hand-out but a hand-up. n

HB 144 Commission: Faces of Advocacy Member Andrew Venetianer: Self-Advocate

‘I’m on the Commission to Make a Difference'’

I

am 32 years old, and I live in Louisville with my Family Home Providers, the Smith family.

I have been diagnosed as having PDD (Pervasive Developmental Disorders), ADHD and mild intellectual disability.

I attended the Binet School in Louisville and was recognized as one of 44 outstanding high school graduates.

I currently receive SCL (Supports for Community Living) services through REACH of Louisville, Kaleidoscope, SCL other agencies and Jewish Family and Career Services.

I have been on the ARC of Kentucky Board and enjoy being involved in all of the activities.

I won the Suzy Riffe Memorial Award for being an outstanding advocate for the IDD community.

I have been involved in political advocacy at different levels over the past seven years.

I was involved with Kentucky Youth United (no longer in existence), a foster care advocacy program for nearly a year.

During my time with KYU, I helped work on creating bylaws and working on a Foster Youth Bill of Rights in addition to attending a rally at the capital.

I have participated in 874K Rallies and ADA Rallies at the Capitol. I have

met with my state Senator and Representative as well as others, including former state Rep. Jimmy Lee. I was appointed to the HB 144 Commission by the Governor starting September 2015.

Why I want to be on the Commission I want to be on the Commission because I believe I can make a difference to the state of Kentucky by putting the issues on the table that need to be addressed.

Why I feel the Commission is important The purpose of HB 144 Commission is to bring the issues of individuals with IDD with different waivers to be discussed at the Adam Venetianer of Louisville is determined to state level. These issues need to be advocate for others while on the Commission. discussed more thoroughly.

What it means to me to be on and my ADT (Adult Day Training) the Commission programs.

It means a lot. When I was appointed What I want from the Commission I was excited that I was on the I want to see individuals with IDD get Commission that can make a difference, the services they so desperately require. not just for me but the state of I want to see services provided around Kentucky. the state, not just in urban areas but in That’s why it means a lot to me and all areas. others with IDD including those I I want to see services based on what attended the Binet School with and individuals need and want. n those I spend time with daily at home

HB 144 Commission Opportunities

I

f you want to hear the latest developments in disability-related services or share your ideas for improvement, the HB144 Commission is an ideal place to start.

The HB 144 Commission is formally known as the Kentucky Commission on Services and Supports for Individuals with Intellectual or Other Developmental Disabilities. It was created in 2000, when Kentucky’s General Assembly passed House Hill (HB) 144.

The HB 144 Commission was created to advise the Governor and the General Assembly concerning the needs of persons with an

intellectual disability and other developmental disabilities.

The Commission consists of people with disabilities and family members, like those featured in these two articles.

Key state agencies that provide related services are also represented.

HB 144 Commission meetings are held quarterly in Frankfort. For 2016, meeting dates are March 3, June 2, Sept. 8, and Dec. 8.

All meetings are open to the public. Each meeting includes presentations about “hot topics” such as changes to Medicaid Waivers, and time for public comments.

Info: visit: http://dbhdid.ky.gov/ddid/commission.aspx# n 2016 Exceptional Family KY

29

Brody Toney, 5, is the son of Sabrina Smith and Matt Toney of Nicholasville

Family Ky Family Ky Exceptional

• Exceptional general •

Ky STRIDE

150 Maryland Ave., Winchester Ky 40391 (859) 744-3183 facebook www.kystride

Resource List 2016

1795 Alysheba Way, Suite 2102 Lexington, Ky., 40509 / (859) 543-0061 Robert L. McClelland is an elder law attorney and guardian in the Lexington firm of McClelland & Associates, PLLC. He is a member of the Special Needs Alliance, a national alliance of special needs attorneys who focus their practice in benefits planning and caring for those with special needs family members.

Family Ky Exceptional Commonwealth Council on Developmental Disabilities

32 Fountain Place Frankfort, Ky., 40601 (877) 367-5332 / (502) 564-7841 www.kyccdd.com The mission of the CCDD is to create systemic change in Kentucky that empowers individuals to achieve full citizenship and inclusion in the community through education, capacity building and advocacy.

CCDD is a dynamic mix of people with unique backgrounds and experiences. Members include 16 governor-appointed individuals with disabilities and family members of individuals with disabilities, as well as representatives from major state agencies that serve people with developmental disabilities.

Attorney Robert McClelland McClelland & Associates, PLLC 30

www.lexingtonfamily.com

Attorney Karen L. Perch 2333 Alexandria Drive, Lexington, Ky., 40504 (859) 224-0513 / www.perchlaw.com Karen Perch and her staff are dedicated to helping clients with their legal matters regarding Wills, Living Wills, Powers of Attorney, Trusts, including Special Needs Trusts, Qualifying Income Trusts (Miller Trusts) and Family Trusts and Estate Administration

All Abilities Drama Camp Embracing the gifts of all campers through the arts by celebrating difference skills, personalities and abilities aadramacamp@gmail.com www.allabilitiescamp.blogspot.com

ALMOSTfamily/CAREtenders Kentucky Home Health Offices

Multiple locations www.patientcare.com/locationdetail.php?u=Kentucky

Alter UR Ego Adaptable clothing for people in wheelchairs to be fashionable and functional. For kids, teens and plus sizes. / alterurego.co

Arc of the United States The national organization of and for people with intellectual disabilities and related developmental disabilities and their families.

(800) 433-5255 / (202) 534-3731 info@thearc.org / www.thearc.org

The Arc of Kentucky 706 East Main Street, Suite A Frankfort, Ky., 40601 (502) 875-5225 / (800) 281-1272 arcofky@aol.com / www.arcofky.org The Arc of Kentucky believes that individuals with intellectual and developmental disabilities are contributing members of schools, work places, churches, synagogues, neighborhoods and their communities. The Arc values services and supports that enhance the quality of life through interdependence, friendship, choice, and respect for individuals with intellectual and developmental

Funding for Leadership Development CCDD Leadership Fund Ad

Commonwealth Council on Developmental Disabilities Supports Leadership Development for Individuals With Developmental Disabilities & Their Families

Do you have a great idea for how to build leadership skills? l Are you a person with developmental disabilities (DD)? l Are you a family member of a person with DD? l Are you part of an organization that wants to provide leadership training? l

Please Note That CCDD Prioritizes Opportunities Where: (1) Self-advocates provide leadership training to others with DD who are interested in becoming leaders.

(2) Training is related to leadership, self-advocacy, self-determination and/or systems.

CCDD’s Leadership Development Project & Conference Sponsorship Project Info: www.kyccdd.com // 1-877-367-5332 // carol.tudor@ky.gov 2016 Exceptional Family KY

31

Resource List 2016 disabilities. The Arc’s website includes resources, projects, events, etc. pertinent to individuals with intellectual and developmental disabilities and their families.

The Arc of Kentucky Local Chapters PLANS - The Arc of Christian County P.O. Box 1257, Hopkinsville, Ky., 42241 (270) 889-8300 / (270) 885-5889 The Arc of Owensboro 721 Jackson Strett, Owensboro, Ky., 42303 (270) 685-2976 The Arc of Barren County PO Box 205, Glasgow, Ky., 42142 (270) 791-3162 The Arc of Warren County 4250 Old Glasgow Rd., Scottsville, Ky. 42164 (270) 816-7213 The Arc of Logan County 443 Hopkinsville Road, Russellville, Ky., 42276 (270) 726-2218 The Arc of Breckinridge County P.O. Box 37, Harned, Ky., 40144 The Arc of Hardin County P.O. Box 2013 Elizabethtown, Ky., 42702 (270) 737-1140 Louisville Metro Arc 2510 Meadowlark Dr., Prospect, Ky., 40059 (502) 228-8660 The Point Arc 104 W. Pike Street, Covington, Ky., 41011 (859) 491-9191 The Arc of Lake Cumberland P.O. Box 1584, Somerset, Ky., 42501 (606) 679-4782 The Arc of Madison County P.O. Box 1863. Richmond, Ky., 40476 The Arc of Central Kentucky 3320 Tates Creek Road, Suite 200 Lexington, Ky., 40504 (859) 351-0728 The Arc of Southeastern Kentucky P.O. Box 183, Wayland, Ky., 41666 (606) 205-3121 The Arc of Floyd County P.O. Box 253, Betsy Layne, Ky., 41605 (606) 478-9803

Build Inclusion, Inc. www.buildinclusion.org An organization created by parents, self-advocates and industry professionals to facilitate natural networks and community access for individuals with disabilities through education, engagement and employment.

32

www.lexingtonfamily.com

Best Buddies Kentucky 1151 South Fourth Street, Louisville, Ky., 40203 (502) 736-0838 www.bestbuddieskentucky.org Best Buddies Kentucky, founded in 2009, is dedicated to establishing a global volunteer movement that creates opportunities for people with intellectual and developmental disabilities such as Down syndrome, autism and traumatic brain injuries.

Big Brothers Big Sisters of Kentuckiana 1519 Gardiner Lane Louisville, Ky., 40218 (877) 588-2300 / (502) 587-0494 www.bbbsky.org The mission of BBBS is to help all children reach their full potential through professionally supported one-to-one mentoring relationships.

Camp Discovery A three-day all female camp designed to teach women in wheelchairs physical fitness and form lasting relationships. Sports such as wheelchair tennis, SCUBA diving and horseback riding as well as whole body wellness such as art therapy, nutrition classes, cooking and massage are all incorporated throughout the weekend. www.campdiscoveryco.com

The Center for Courageous Kids 1501 Burnley Road, Scottsville, Ky.,42164 (270) 618-2900 www.courageouskids.org jobryan@courageouskids.org The Center for Courageous Kids (CCK) is a medical camp where children with disabilities or lifethreatening illnesses will experience what a real camp is like, in a setting that is physically safe and medically sound. The camp offers children who are typically watching rather than participating, the opportunity to fully engage in camp activities that focus on their abilities. Illness specific summer camps for children (7-15) and illness specific family weekend retreats, free of charge.

(502) 589-6620 / Toll Free (888) 813-8497 webinfo@calky.org / www.calky.org

Center for Accessible Living - Murray Location 1051 N. 16th Street, Suite C, Murray, Ky., 42071 (270) 753-7676 / Toll Free (888) 261-6194 calmur@calky.org / www.calky.org

Center for Accessible Living - Northern Kentucky Location P.O. Box 12304, Covington, Ky., 41012 (859) 940-3843 rthompson@calky.org / www.calky.org The Center for Accessible Living is an innovative leader in empowering all people to achieve their goal of independent living while involving the entire community.

Independence Place, Inc. Dave Wickstrom, Executive Director 501 West 6th St., Suite 250 Lexington, KY 40508 (859) 266-2807 / Toll Free (866) 266-2807 www.ipky.org Independence Place is a non-profit, consumer driven, non-residential Center for Independent Living, serving people with disabilities of all ages. The mission is to assist people with disabilities to achieve their potential for community inclusion through improving access and equal opportunity.

Southeast Kentucky Center for Independent Living JoEllen Hale, Executive Director 212 East Clover Street, Suite 1 Harlan, Ky., 40831 (606) 573-0510 / sekemail@hotmail.com

Children’s Home of Cincinnati

Center for Accessible Living - Louisville Location

5050 Madison Road; Cincinnati, Ohio 45227 (513) 272-2800 Cincinnati, Ohio, 45227 www.thechildrenshomecinti.org The Children’s Home of Cincinnati is a private, non-profit social service agency that improves the lives of children and their families through services in four areas: adoption, early childhood, education and mental health. The Home serves children of all ages and their families, including adoptive children, new parents needing support and guidance, children with special education needs, and children with mental health diagnoses.

Jan Day, CEO 501 S. 2nd Street, Suite 200, Louisville, Ky.,40202

Christian Appalachian Project

Kentucky Centers for Independent Living: Disability Resource Initiative Marilyn Mitchell, Executive Director 624 Eastwood Street, Bowling Green, Ky., 42103 Toll free (877) 437-5045 / initiative@dri-ky.org www.resources4independence.org

Resource List 2016 Lexington Location 2610 Palumbo Drive, Lexington, Ky., 40509 (859) 269-0635 / (866) 270-4227 www.christianapp.org CAP is a Kentucky-based, non-profit Christian organization committed to serving people in need in Appalachia by providing physical, spiritual and emotional support through a wide variety of programs and services.

Community Action Kentucky 101 Burch Court, Frankfort, Ky., 40601 (800) 456-3452 / www.kaca.org Community Action Kentucky (CAK) is a statewide association representing and assisting the 23 community action agencies as they work to empower individuals and families to attain greater economic success.

Court Appointed Special Advocates for Children CASA of Kenton County 303 Court Street, Suite 707, Covington, Ky., 41011 (859) 392-1791 / www.casaforkidsnky.org Court Appointed Special Advocates or CASA

volunteers are everyday citizens appointed by judges to advocate for the safety and well-being of abused and neglected children. Last year in Kentucky, more than 700 CASA volunteers advocated for the best interest of more than 3,000 children in 42 counties.

Easter Seals Kentucky At Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 / www.cardinalhill.org

Easter Seals West Kentucky 801 N. 29th St. / Paducah, Ky., 42001 (270) 444-9687 / www.eswky.easterseals.com

Handi Capable Guide Services P.O. Box 421, Grand Rivers, Ky., 42045 (270) 362-0970 / (270) 559-6876 www.handicapable.net

Home of the Innocents 1100 E. Market St., Louisville, Ky., 40206 (502) 596-1000 / info@homeoftheinnocents.org www.homeoftheinnocents.org

Home of the Innocents is the region’s open arms to kids in crisis, providing therapeutic, loving care to children who are victims of abuse, abandonment and neglect. It’s also home to children who have autism and other behavioral health diagnoses; who are medically fragile; and families with exceptional needs. Open Arms Children’s Health is the Home’s healthcare facility offering pediatric medical, dental, hearing, vision and pharmacy.

Hospice of the Bluegrass 2312 Alexandria Drive, Lexington, Ky., 40504 (859) 276-5344 / (800) 876-6005 www.hospicebg.org Hospice of the Bluegrass provides physical, emotional and spiritual care for adult and pediatric patients with life-limiting illness, and their families, at home, in nursing facilities and at Hospice Care Centers. Support and bereavement services extend to family members and anyone in the community experiencing grief. Hospice of the Bluegrass provides care in 32 central, northern and southeastern Kentucky counties.

CCDD Quarterly Meetings

CCDD 2016 Calendar

• Feb 11-12 • May 12-13 • Aug. 11-12 • Nov. 3-4

Clarion Hotel, 1950 Newtown Pike, Lexington Holiday Inn East, 1325 South Hurstbourne Lane, Louisville Clarion Hotel, 1950 Newtown Pike, Lexington Holiday Inn East, 1325 South Hurstbourne Lane, Louisville

HB 144 Commission Meetings (All meetings in Frankfort) March 3 // June 2 // Sept. 8 // Dec. 8

Statewide Project SAFE Quarterly Network Meetings • March 23 • June 15 • Sept. 21 • Dec. 14

Louisville Northern Kentucky (Annual Summit) Frankfort Frankfort

Other 2016 Dates • March • March 17-18 • April 11-13 • May 26 • June 21-23 • October • Oct. 27-29

Developmental Disabilities Awareness Month The Arc of KY Annual Conference, Louisville National Disability Policy Seminar, Washington, D.C. Old Frankfort State Hospital Cemetery Clean-Up, Frankfort National APSE Conference, Cincinnati National Disability Employment Awareness Month The Arc of the US National Convention, Orlando 2016 Exceptional Family KY

33

Resource List 2016 Human Development Institute University of Kentucky 126 Mineral Industries Building Lexington, Ky., 40506 (859) 257-1714 www.hdi.uky.edu HDI’s mission is to promote the independence, productivity and inclusion of people with disabilities and their families throughout the life span. Established in 1969, HDI is a unit of the Office of the Executive Vice President for Research at the University of Kentucky and part of a nationwide network of University Centers for Excellence. The Centers were established by federal legislation to promote teambased approaches to provide services for individuals with disabilities and their families.

HDI and its sister agencies, the Commonwealth Council on Developmental Disabilities and the Kentucky Division of Protection & Advocacy, form the state’s Developmental Disability Network.

Kerrinton’s Heart, Inc. P.O. Box 911074, Lexington, Ky., 40591 (859) 509-9857 / www.kerringtonsheart.org Dedicated to the education, support and encouragement of children with heart disease, their families and caregivers.

Key Assets Kentucky 961 Beasley Street # 110, Lexington, Ky., 40509 (859) 226-5022 www.keyassetskentucky.com Key Assets provides support for specialized foster parents who care for children with developmental delays or autism.

Key Services 124 West Main Street, Mt. Sterling, Ky., 40353 (859) 497-3800 / www.keyassetskentucky.com Key Services was created to support children and adults with disabilities within the community. Key Services helps individuals become involved in their community while conquering their goals.

NuMotion Louisville Location 11380 Bluegrass Pkwy, Jeffersontown, Ky., 40299 (502) 266-9061 Lexington Location 973 Beasley St., Ste. 110, Lexington, Ky., 40509 (859) 225-3624 Bowling Green Location 1017 Shive Lane, Ste. E, Bowling Green, Ky., 42103 (270) 904-4934 www.numotion.com With a strong local focus, NuMotion aims to be the most responsive and innovative complex wheelchair 34 www.lexingtonfamily.com

company with which to do business.

Pathways P.O. Box 790, Ashland, Ky., 41105 (606) 329-8588 / (800) 562-8909 www.pathways-ky.org

Kentucky Association of Sexual Assault Programs, Inc.

1900 Richmond Road, Lexington, Ky., 40502 (859) 266-2101 www.shrinershospitalsforchildren.org Shriners Hospitals for Children has a mission to provide the highest quality care to children with orthopaedic or neuromusculoskeletal disorders and diseases within a compassionate, family-centered and collaborative care environment.

Social Security Administration

P.O. Box 4028, Frankfort, Ky., 40604 (502) 226-2704 / erecktenwald@kasap.org www.kasap.org KASAP’s mission is to speak with a unified voice against sexual victimization. KASAP is funded in whole or in part with public funds.

www.ssa.gov

Redwood

Special Olympics Kentucky

71 Orphanage Road, Ft. Mitchell, Ky., 41017 (859) 331-0880 / www.redwoodnky.org A non-profit organization funded by United Way, Redwood guides children and adults with multiple and severe disabilities to achieve independence and reach their highest potential throughout their lives, by providing enriching educational, therapeutic and vocational services.

105 Lakeview Court, Frankfort, Ky., 40601 (502) 695-8222 / (800) 633-7403 www.soky.org Special Olympics is the world’s largest program of sports training and competition for children and adults with intellectual disabilities.

Recreation Involvement Fund Commonwealth Council on Developmental Disabilities 32 Fountain Place, Frankfort, KY 40601 (877) 367-5332 / www.kyccdd.com

ResCare 9901 Linn Station Road, Louisville, Ky., 40223 (800) 866-0860 / www.rescare.com Provides supports to people with developmental, cognitive and intellectual disabilities. Services include group homes, supported living, in-home, Telecare, foster or companion care and vocational and habilitation.

Ronald McDonald House Charities of the Bluegrass 1300 Sports Center Drive, Lexington, Ky., 40502 (859) 268-0757 / www.rmhclexington.com This charity exists to create and support programs that directly improve the health and well-being of children and to strengthen families by keeping them together in times of medical need.

Shriners Hospital for Children Spina Bifida Program (Orthopedica clinic only, will refer for pediatric and adult care)

Special Needs Adoption Program DCBS/Adoption Services 275 East Main Street, 3C-E, Frankfort, Ky., 40621 (800) 928-4303 / www.chfs.ky.gov/snap

Superior Van & Mobility 1180 E. New Circle Road, Lexington, Ky., 40505 (859) 253-1832 / www.superiorvan.com 4734 Rockford Plaza, Louisville, KY, 40216 (502) 447-8267 Superior Van & Mobility provides mobility solutions for the consumer and commercial transportation industry. Member of the National Mobility Equipment Dealers Association and a participant in NMEDAs Quality Assurance Program, which is recognition reserved for the highest quality mobility dealers.

United Way of the Bluegrass 100 Midland Ave., Suite 300 Lexington, Ky., 40508 211 Information Line (859) 233-4460 / Fax (859) 259-3397 www.uwbg.org

United Way of Kentucky P.O. Box 4488, Louisville, Ky., 40204 (502) 583-2821 / Fax (502) 292-5673 www.uwky.org

Metro United Way 334 East Broadway, Louisville, KY 40202 (502) 583-2821 / 211 Information Line info@metrounitedway.org / www.metrounitedway.org

WHAS Crusade for Children 520 West Chestnut Street, Louisville, Ky., 40202

Autism KY Protection & Advocacy

The Autism Society of the Bluegrass serves as resource and support for families in Central KY who care about someone with autism.

Society

Monthly Meetings Monday of Held the last each month ichael’s 6:30 at St. M urch Episcopal Ch te Dr. n fo lle 2025 Be Lexington

April 2016 e Conferenc

Reso ur Lend ce ing Libra ry

Annual “Bluegrass Autism Walk”

Call or visit our website for more information.

http://asbg.org • (859) 457-7605

In Pioneers in clusion and KY Proud Farm

599 Lima Dr Lexington, KY 40511

859.255.4056

GrowingTogetherPreschool.org info@GrowingTogetherPreschool.org

to Preschool in the Blu

egrass.

There are some ideas we want every preschool to copy.

2016 Exceptional Family KY

35

Resource List 2016 (502) 582-7706 www.whascrusade.org The WHAS Crusade for Children, Inc., established in 1954, raises money for agencies, schools and hospitals to better the lives of children with special needs. An independent board of interdenominational ministers known as the Crusade Advisory Panel decides how donations are distributed each year.

• assistive • technology

KATS Network Coordinating Center Charles W. McDowell Center 8412 Westport Road, Louisville, KY 40242 (800) 327-528

Carl D. Perkins Vocational Training Center 5659 Main Street , Thelma, KY 41260 (606) 788-7080 / www.cdpvtc.ky.gov

Redwood Assistive Technology Center

Autism Society of the Bluegrass

71 Orphanage Road , Ft. Mitchell, KY 41017 (800) 728-9807 / www.redwoodnky.org

Western Kentucky Assistive Technology Center (WKATC) Wendell Foster’s Campus 815 Triplett Street , Owensboro, KY 42302 (800) 209-6202 / www.wkatc.org

Kentucky Assistive Technology Service (KATS) Network Coordinating Center

Autism Society of Greater Cincinnati

www.katsnet.org/publications/ other/stateservices

KATS Funding Guide

Autism Society of Kentuckiana

Kentucky State Services Directory

Kentucky Assistive Technology Loan Corporation www.katlc.ky.gov

Kentucky Department of Education Exceptional Children Page www.education.ky.gov

Kentucky Assistive Technology Guidelines www.kysig.louisville.edu/pdf/ atguide.pdf

Kentucky’s Assistive Technology Matrix www.kysig.louisville.edu/matrix

www.lexingtonfamily.com

Support Group 453 Rookwood Parkway, Lexington, Ky., 40505 (859) 299-9000 / sspragens@inbsightbb.com www.asbg.org Autism Society of the Bluegrass ASBG (established in 1991) is a chapter of ASA. Its mission is to provide education, advocacy and support to families, educators and health providers affected by ASD in the Bluegrass.

P.O. Box 58385, Cincinnati, Ohio, 45258-0385 (513) 561-2300 / www.autismcincy.org ASGC works to promote awareness and education about autism. ASGC provides information packets, support groups for families and individuals, newsletters and public speakers.

www.katsnet.org

www.katsnet.org/funding

36

Wendell Foster Campus

901 S. Third Street , Louisville, KY 40203 (502) 992-2448 / www.entech.spalding.edu

Bluegrass Technology Center

KATS Network Locations:

Western Kentucky University Clinical Education Complex 104 Alumni Avenue, Bowling Green, Ky., 42101 (270) 745-4KAP (4527) www.wku.edu/kellyautismprogram 815 Triplett St., Owensboro, Ky., 42303 / kap. owensboro@wku.edu (270) 852-1438 / (270) 663-1460 (270) 683-4517 www.kap.wku.edu/web-forms/contact_us

Enabling Technologies of Kentuckiana (enTECH) at Spalding University

817 Winchester Road, Suite 200 Lexington, Ky., 40505 (859) 294-4343 / (800) 209-7767 www.bluegrass-tech.org BTC is a non-profit, grassroots organization that assists individuals who have disabilities, their families and service providers in connecting with various technologies and services that provide the gateway to greater independence, productivity and quality of life. BTC is a member of the Alliance for Technology Access, The Eastern Regional Center for the Kentucky Assistive Technology Service (KATS) Network.

The Kelly Autism Program

• autism •

P.O. Box 21895, Louisville, Ky., 40221-0895 Rebecca Thompson, Kentucky Resident Contact (502) 263-5708 / www.ask-lou.org

Families for Effective Autism Treatment 1100 E. Market Street, Louisville, Ky., 40206 (502) 596-1258 / www.featoflouisville.org

Kentucky Autism Training Center University of Louisville Autism Center at Kosair Charities 1405 E. Burnett Avenue, Louisville, Ky., 40217 (502) 852-4631 / 800-334-8635 ext. 852-4631 www.louisville.edu/education/kyautismtraining

Lexington Adults With Aspergers Meet Up Group Kay Wright / (859) 266-5739 The Church of St. Michael the Archangel 2025 Bellefonte Drive, Lexington, Ky., 40503 sspragens@insightbb.com

Resource List 2016 Weisskopf Child Evaluation Center 571 South Floyd St., #100, Louisville, Ky., 40202 (502) 588-0907 www.louisville.edu/medschool/pediatrics/clinical/wcec Provides center-based and outreach diagnostic evaluations and treatment to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults.

• down • syndrome Down Syndrome Association of Central Kentucky P.O. Box 910516, Lexington, Ky., 40591-0516 (859) 494-7809 / www.dsack.org DSACK exists to celebrate the Down syndrome community, support individuals with Down syndrome and their families, educate the Central Kentucky community and assist in local and national research efforts. DSACK celebrates that all people are beautiful, capable and loved. Serves Central and Eastern Kentucky.

Down Syndrome Association of Greater Cincinnati 4623 Wesley Avenue, Suite A, Cincinnati, Ohio 45212 (513) 761-5400 / www.dsagc.com By providing families with support, inspiration and information, the Association helps individuals with Down syndrome achieve their maximum potential. Including individuals with Down syndrome in neighborhood schools, community activities and the business world benefits individuals and their respective communities.

Green River Area Down Syndrome Association – Owensboro and surrounding area GRADSA’s mission is to enable families enriched with Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome.

(270) 925-0195 / www.gradsa.org

Down Syndrome of Louisville 5001 South Hurstbourne Parkway Louisville, Ky., 40291 / (502) 495 5088 Down Syndrome of Louisville is a non-profit organization founded in 1977 whose mission is to improve the lives of persons with Down syndrome and their families by providing support, information,

education, and advocating for their rights and concerns, enabling individuals to reach their full potential. info@downsyndromeoflouisville.org www.downsyndromeoflouisville.org

• education • Kentucky Adult Education

PO Box 1611, Bowling Green, Ky., 42101 info@dssky.org / www.dssky.org

Council on Postsecondary Education 1024 Capital Center Drive, Suite 250 Frankfort, Ky., 40601 (502) 573-5114 V/TTY / (800) 928-7323 V/TTY www.kyae.ky.gov

Down Syndrome Association of Western Kentucky

Creative Learning Center Woodland Early Learning Center

Down Syndrome Association of South Central Kentucky

DSAWY promotes public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in our community. Generally, meetings are on the 3rd Monday of the month at the Heartland Worship Center in Paducah.

Holly English / (270) 559-9026 upsandowns@dsawk.com / www.dsawk.com

National Down Syndrome Congress (NDSC) The NDSC provides up-to-date information on topics of interest to people with Down syndrome, family members, friends, professionals and interested others. The Center works to promote the availability of and accessibility to a full range of opportunities and/ or resources that meet individual and family needs.

(800) 232-6372 / (770) 604-9500 info@ndsccenter.org / www.ndsccenter.org

National Down Syndrome Society (NDSS) The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

(800) 221-4602 / info@ndss.org www.ndss.org

• epilepsy • Epilepsy Council of Greater Cincinnati 895 Central Avenue, Suite 550 Cincinnati, Ohio, 45202 (513) 721-2905 / (877) 804-2241 efgc@cincinnatiepilepsy.org www.epilepsy-ohio.org

Epilepsy Foundation of Kentuckiana Kosair Charities Centre 982 Eastern Parkway, Louisville, Ky., 40217 (502) 637-4440 / (866) 275-1078 www.efky.org

575 Woodland Avenue, Lexington, Ky., 40508 (859) 255-3444 www.cclc.com/center/ky/woodland-early-learningcenter

The Council for Exceptional Children (888) 232-7733 / TTY (866) 915-5000 www.cec.sped.org The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.

Eastern Kentucky University Office of Services for Individuals with Disabilities 521 Lancaster Avenue Whitlock Building, Room 361, CPO 66 Richmond, Ky., 40475 (859) 622-2933 / www.disabilities.eku.edu Provides equal access to University resources, coursework, programs and activities by serving qualified individuals, and advocating for equal access for all individuals who qualify.

Kentucky Chapter Contact Information: Barbara Washington: bwashington@murraystate.edu www.kycec.org

Kentucky Education Agency Rural Representative Capitol Plaza Tower 500 Mero Street, Frankfort, Ky., 40601 (502) 564-4474 / www.education.ky.gov

Kentucky Education Rights Center 256 Abbey Road, Versailles Ky., 40383 (859) 983-9222 / kerc@edrights.com www.edrights.com

Kentucky State Department of Education Melissa Terrell / (502) 564-4770 500 Mero St., 6th Floor CPT, Frankfort, Ky., 40601 2016 Exceptional Family KY

37

Resource List 2015 www.education.ky.gov

The Kidz Club 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 225 N. 25th Street, Louisville, Ky., 40212 (502) 365-2426 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 2200 Regency Road, Lexington Ky., 40503 (859) 224-0799 www.thekidzclub.com The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun and social setting. Transportation can be provided.

Medicaid and private insurance accepted. There are no costs to the child or their family.

Music for Life: Music Therapy and Music Education Patricia Guobis, M. M., MT-BC (502) 767-8308

Kentucky State University Disability Resource Center Room 220 of the Student Center Or Room 429 of the Academic Services Building 400 E. Main Street, Frankfort, Ky. (502) 597-5076 / diane.robinson@kysu.edu www.kysu.edu

Morehead State University Disability Services 204E ADUC, Morehead, Ky. 40351 (606) 783-5188 / e.day@moreheadstate.edu www.moreheadstate.edu/disability This office ensures that the university’s programs, activities, services and the campus itself are accessible to all students and visitors.

Northern Kentucky University Office of Disability Services Northern Kentucky University Nunn Drive / University Center Room 101, Highland Heights, Ky., 41099 (859) 572-5401 / www.disability.nku.edu NKU provides learner-centered assistance and resources to students with disabilities in their transition to Northern Kentucky University.

38

www.lexingtonfamily.com

Special Needs Homeschooling A blog written by a mother with special needs children, the author provides resources she has found helpful in homeschool her children. www.specialneedshomeschooling.com

University of Kentucky Disability Resource Center 725 Rose St. Multidisciplinary Building, Suite 407, Lexington, Ky. (859) 257-2754 www.uky.edu/StudentAffairs/DisabilityResourceCenter Resources for prospective and current students and parents.

University of Louisville Disability Resource Center 119 Stevenson Hall, Louisville, Ky. 40292 (502) 852-6938 / askdrc@louisville.edu www.louisville.edu/disability UofL provides support for students with documented disabilities by promoting equal access to all programs and services.

Western Kentucky University Student Accessibility Resource Center Downing Student Union, First Floor, 1074 1906 College Heights Blvd.

Bowling Green, Ky., 42101 (270) 745-5004 / www.wku.edu/sarc WKU coordinates services and accommodations for students with documented disabilities.

Public School Parent Resource Centers Cabinet for Health and Family Services 275 E. Main St. Frankfort, KY 40621 (502) 564-4986 Nearly all public schools in the state have Parent Resource Centers, which are divided into 11 Regions.

The mission is to remove nonacademic barriers to learning as a means to enhance student academic success. The Centers are also places where families of children with special needs can receive parent-toparent counseling on special education issues and concerns. Families are welcome to visit and preview materials from the lending library, which has many books, videotapes and periodicals related to disability.

The staff can connect parents to resources and support groups and also help with online research.

Region 1: Coordinator Teresa Dixon Counties Served: Ballard, Caldwell, Calloway, Carlisle, Christian, Crittenden, Graves, Fulton, Hickman, Hopkins, Livingston, Lyon, Marshall, McCracken, Muhlenberg, Todd, Trigg

Region 2: Coordinator Dianne M. Arnett Counties Served: Butler, Daviess, Hancock, Henderson, Logan, McLean, Ohio, Simpson, Union, Warren, Webster Region 3: Coordinator Naela Imanyara Counties Served: Jefferson Region 4: Coordinator Betty Pennington Counties Served: Boone, Campbell, Carroll, Gallatin, Henry, Kenton, Oldham, Owen, Shelby, Trimble Region 5: Coordinator Paul Cookendorfer Counties Served: Anderson, Bourbon, Clark, Franklin, Grant, Harrison, Jessamine, Madison, Mercer, Nicholas, Pendleton, Scott, Woodford Region 6: Coordinator Tammy Gay Counties Served: Bullitt, Boyle, Casey, Clinton, Cumberland, Garrard, Lincoln, Marion, McCreary, Nelson, Pulaski, Russell, Spencer, Taylor, Washington, Wayne Region 7: Coordinator Doug Jones Counties Served: Bath, Boyd, Bracken, Carter, Elliott, Fleming, Greenup, Johnson, Lawrence, Lewis, Martin, Mason, Menifee, Montgomery, Morgan, Robertson, Rowan Region 8: Coordinator Teresa Combs Counties Served: Breathitt, Estill, Knott, Lee, Leslie, Letcher, Owsley, Perry, Powell, Magoffin, Wolfe Region 9: Coordinator Maxine Reid Counties Served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley Region 10: Coordinator Mary Jennings Counties Served: Fayette, Floyd, Pike Region 11: Coordinator Sherrie Baughn Martin Counties Served: Adair, Allen, Barren, Breckinridge, Edmonson, Grayson, Green, Hardin, Hart, Larue, Meade, Metcalfe, Monroe.

SHEP Supported Higher Education Project Human Development Institute 1525 Bull Lea Rd Suite #160 Lexington Ky., 40511 (859) 977-4050 / www.shepky.org The Supported Higher Education Project of Kentucky is based on the understanding that education for all students is a lifelong endeavor. For too long, students with intellectual disabilities have been overlooked as their peers have graduated from high school and moved on to postsecondary settings.

• schools •

VSA Arts of Kentucky

P.O. Box 3320, Bowling Green, 42102 (270) 904-7019 / www.vsartsky.org

Exceptional Family Magazine Is House Ad ???????

Free!

Free!

Free!

To Request Free Copies for You, Your School or Organization

Human Development Institute Free resources and programs across the lifespan for individuals with disabilities and their families:

HDI

• A comprehensive, updated Disability Resource Manual in English and Spanish and a new Recreation Resource Guide • Fall and Spring Statewide Seminar Series • Resources for new and expectant parents about genetic conditions • School programs such as peer support networks • Programs for school districts to improve postschool outcomes for youth and young adults with disabilities • College opportunities for students with intellectual disabilities • Training in supported employment, health and wellness, and full community participation • Graduate Certificate in Developmental Disabilities, offered both on-campus and on-line

Call (859) 223-1765 Click www.lexingtonfamily.com Email john@lexingtonfamily.com

Learn more about how we serve families and individuals with disabilities www.hdi.uky.edu

Child Dev. Center

Now Accepting Pre-School Applications for the 2016-2017 School Year

2016 Exceptional Family KY

39

Resource List 2016 is accredited by the National Association for the Education of Young Children.

Preschool pioneered the first Kentucky Proud preschool program in the state.

KORE Academy Porter Memorial Church 4300 Nicholasville Road, Lexington. Ky., 40515 (859) 971-7129 / www. koreacademy.org School for children with learning differences: Grades 3-12.

The Langsford Center 9402 Towne Square Ave, Cincinnati, Ohio, 45242 (513) 531-7400 2520 Bardstown Road,

Child Development Centers of the Bluegrass 290 Alumni Drive, Lexington, Ky., 40503 (859) 218-2322 / www.cdcbg.org Four-Star rated preschool for children with and without disabilities. Services provided include assessment, evaluations, and speech, physical and occupational therapy.

Academy for Individual Excellence 3101 Bluebird Lane, Louisville, Ky., 40299 (502) 267-6187 / www.aiexcellence.com

The dePaul School 1925 Duker Avenue, Louisville, Ky., 40205 (502) 459-6131 / www.depaulschool.org

Growing Together Preschool, Inc. 599 Lima Drive, Lexington, Ky., 40511 (859) 255-4056 www.growingtogetherpreschool.org Growing Together Preschool, Inc. has been offering nurturing child care and early childhood education to children with and without disabilities in an inclusive environment since 1982. Services include developmental assessment, health screening, evaluations, IEP and IFSP. Staff members have experience working with children of varying abilities and advantages, and integrating recommended therapeutic practices into the classroom. Program 40

www.lexingtonfamily.com

Louisville, Ky., 40205 (502) 473-7000 2805 N. Hurstburn Pkwy. Ste. 103, Louisville, Ky., 40223 (502) 245-1706 / www.langsfordcenter.com

The Lexington School’s The Learning Center 1050 Lane Allen Road, Lexington, Ky., 40504 (859) 278-0501 / www.thelexingtonschool.org The Learning Center provides a unique and essential service to children with language-based differences by offering an alternative to traditional classrooms. By creating a teaching environment that eliminates the major obstacles to learning, students are able to close the gap between achievement and their potential. Teacher-student ratios of 1:4 allow for individualized instruction in the core areas of greatest need. In addition, low student teacher ratios will be maintained in other subjects such as science, social studies, computer skills, specials and social skills.

Meredith Dunn School 3023 Melbourne Avenue, Louisville, Ky., 40220 (502) 456-5819 / www.meredithdunnschool.org

Pitt Academy 7515 Westport Road, Louisville, Ky., 40219 (502) 966-6979 / www.pitt.com

Sharon School 200 Oak Tree Lane, Nicholasville, Ky., 40356 (859) 509-6892 / sharonschool@msn.com

Homeschool for students with attention deficit disorders, Asperger’s and learning disabilities.

The Sphinx Academy 1591 Winchester Road #101 Lexington, Ky., 40505 (859) 309-6372 / www.sphinxacdemy.com New and innovative secondary school for grades 7-12. Combines Montessori, homeschooling and special education.

Sproutlings Pediatric Day Care & Preschool Kosair Charities Center 3800 Tom Larimore Lane, Masonic Home, Ky., 40041 (502) 753-8222 / www.SproutlingsDayCare.com Sproutlings is a dual-licensed program and has spaces for medically fragile children and children in traditional day care or preschool. Staffed by Registered Nurses, Certified Nursing Assistants, Teachers and Teacher Aides and caring for a wide variety of medical conditions. Medicaid and private insurance is accepted.

Stewart Home School 4200 Lawrenceburg Road, Frankfort, Ky., 40601 (502) 227-4821 / www.stewarthome.com Discover a residential school that offers lifelong learning, a postsecondary experience, the opportunity to attain a GED, vocational training and countless social and recreational activities among friends from all around the world.

Summit Academy of Louisville 11508 Main Street, Louisville, Ky., 40243 (502) 244-7090 / www.summit-academy.org

• kentucky • resources Cabinet for Health and Family Services Commission for Children with Special Health Care Needs www.chfs.ky.gov/ccshcn The Commission for Children with Special Health Care Needs has received a grant from the federal Health Resources and Services Administration to create Family to Family Health Information Centers throughout the commission offices. The centers will be staffed by mentors who are parents of children with special needs and will provide support to families of individuals with special needs. Parents and caregivers have the opportunity to connect with another parent or caregiver with a similar situation or special health

Resource List 2016 care need.

Locations:

Central office / Louisville 310 Whittington Parkway, Louisville, Ky., 40222 (502) 429-4430 / Toll Free (800) 232-1160 Serving Bullitt, Carroll, Gallatin, Henry, Jefferson, Oldham, Owen, Shelby, Spencer, Trimble counties and statewide.

Ashland 5850 US 60, Summit Plaza, Box 11 Ashland, Ky., 41102 (606) 929-9155 / (800) 650-1329 Serving Boyd, Carter, Elliott, Floyd, Greenup, Lawrence and Magoffin counties.

Barbourville 110 Johnson Lane, Barbourville, Ky., 40906 (606) 546-5109 / (800) 348-4279 Serving Bell, Clay, Harlan, Jackson, Laurel, Rockcastle, Knox and Whitley counties.

Bowling Green 2040 Louisville Road Bowling Green, Ky., 42101 (270) 746-7816 / (800) 843-5877 Serving Allen, Barren, Butler, Christian, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Todd and Warren counties.

Elizabethtown 580 B Westport Road, Elizabethtown, Ky., 42701 (270) 766-5370 / (800) 995-6982 Fax (270) 769-5121 Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson and Washington counties.

Hazard 103 Town and Country Lane, Suite M Hazard, Ky., 41701 (606) 435-6167 / (800) 378-3357 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry and Wolfe counties.

Lexington 333 Waller Avenue, Suite 300, Lexington, Ky., 40504 (859) 252-3170 / (800) 817-3874 Serving Anderson, Bourbon, Boone, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Grant, Harrison, Jessamine, Kenton, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, and Woodford counties.

Morehead 214 W. First Street, Morehead, Ky., 40351 (606) 783-8610 / (800) 928-3049 Serving Bath, Bracken, Campbell, Fleming, Lewis, Mason, Menifee, Morgan, Montgomery, Pendleton, Robertson, and Rowan counties.

Owensboro 1600 Breckenridge Street, Suite 1200 Owensboro, Ky., 42303 (270) 687-7038 / (877) 687-7038

Serving Daviess, Hancock, Henderson, Hopkins, McLean, Muhlenber, Ohio, Union and Webster counties.

Paducah 400 Park Avenue, Bldg. D, Paducah, Ky., 42001 (270) 443-3651 / (800) 443-3651 Serving Ballard, Caldwell, Calloway, Carlisle, Crittenden, Fulton, Graves, Hickman, Livingston, Lyon, Marshall, McCracken, and Trigg counties.

Prestonsburg 5000 Ky. Route 321, Prestonsburg, Ky., 41653 (606) 889-1761/ (800) 594-7058 Serving Floyd, Johnson, Magoffin, Martin and Pike counties.

Somerset Professional Plaza, 401 Bogle St., Suite 104, Somerset, Ky., 42503 (606) 677-4120 (800) 525-4279 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor and Wayne counties.

Children’s Law Center Covington Office: 1002 Russell Street, Covington, Ky., 41011 (859) 431-3313 / (866) 386-8313 info@childrenslawky.org Lexington Office: c/o Imani Family Life Center 215 W. Short Street, Suite 205 Lexington, Ky. 40507 (859) 431-3313 Provides free legal services for children with educational disabilities, and performs research and policy work, training and education in this area. rbdiloreto@childrenslawky.org www.childrenslawky.org

Kentucky Department for Behavioral Health, Developmental and Intellectual Disabilities Preadmission Screen and Resident Review 275 E. Main Street, Frankfort, Ky., 40621 (502) 564-4527 / (502) 782-6217 PASRR mandates a preadmission screening and resident review for all persons applying for admission to or residing in a nursing facility. www.dbhdid.ky.gov/kdbhdid

Commonwealth Developmental Disabilities Planning Council Department for Health Services 275 East Main Street, Frankfort, Ky., 40601 (Cabinet address) www.autismlink.com/listing/kentucky-developmentaldisabilities-planning-council

The Commonwealth Council on Developmental Disabilities, the Kentucky University Center for Excellence (the Interdisciplinary Human Development Institute), and Kentucky Protection & Advocacy collectively gather input from consumers, family members, service providers, and policy makers to determine the primary issues affecting the lives of people with disabilities in Kentucky.

Disability Specific Web Resources www.disabilityresources.org The web site has a listing of several services available on the Internet.

Family to Family Health Information Centers Western Region Sondra Gilbert / Sondra.GIlbert@ky.gov (270) 852-2918 / (877) 687-7038, ext. 2123 Eastern Region (Including Louisville) Debbie Gilbert / DebbieA.Gilbert@ky.gov (502) 429-4430 / (800) 232-1160 www.kyf2f.com Located at the offices of the Commission for Children With Special Health Care Needs, Family to Family HICs are family-run centers that assist families of children and youth with special health care needs and the professionals who serve them. The goal is to help keep children healthy by promoting regular medical care. F2F HICs help families make more informed choices by providing support, information,resources and training. F2F HICs promote access to community based, self-directed services that are available to children with special needs.

Hart-Supported Living Program (502) 564-6930 www.chfs.ky.gov/dail/hartsupportedliving The Hart-Supported Living program is for Kentuckians with disabilities to request grants so they can live in, contribute to and participate in their communities. Any Kentuckian with a disability recognized under the Americans with Disabilities Act (ADA) is eligible to apply for a Hart-Supported Living grant.

Homecare Program Department for Aging and Independent Living 275 E. Main Street, 3E-E, Frankfort, KY 40621 (502) 564-6930 / www.chfs.ky.gov/dail/homecare The Homecare Program helps older adults who are at risk of institutional care to remain in their own homes by providing supports and services to ensure daily needs are provided. This is 2016 Exceptional Family KY

41

Resource List 2016 accomplished primarily by coordinating the help of caregivers and provider agencies.

Kentucky ADA Office 500 Mero Street, Capital Plaza Tower Frankfort, Ky. 40601 (502) 564-3850 / (877) 423-2933. www.ada.ky.gov The State Office of the Americans with Disabilities Act provides technical assistance, consultations and training to government agencies and programs regarding the Americans with Disabilities Act. Technical assistance and training areas include: employment, programs, services, and facilities.

The Office also responds to inquiries by local governments, businesses and individuals throughout the Commonwealth.

KATS (Ky. Assistive Technology Service Network Coordinating Center) 200 Juneau Drive, Suite 200, Louisville, Ky., 40243 (502) 489-8285 / Toll Free (800) 327-5287 www.katsnet.org The KATS Network is the Kentucky Assistive Technology program operating within its lead agency, the Office for the Blind, Education Cabinet. It consists of a statewide network of organizations and individuals connecting to enhance the availability of assistive technology devices and services to improve the productivity and quality of life for individuals with disabilities. In addition to the Coordinating Center located in the McDowell Center in Louisville, there are four regional AT resource centers and two partner satellite centers that are participating members of the KATS Network serving Kentucky.

(Paintsville) (606) 788-7080 ext. 86630 darrin.breeding@ky.gov

Pennyroyal MH / MR Board Terri Ross, Site Coordinator (Paducah) (270) 538-6844

Joy Vessels, Site Coordinator (Louisville) (502) 992-2448

Kentucky Assistive Technology Loan Corporation 275 East Main Street, Mail Drop 2 E-K Frankfort, Ky. 40621 Toll Free (877) 675-0195 / Fax (502) 564-6745 www.katlc.ky.gov The Kentucky Assistive Technology Loan Corporation (KATLC) offers low interest loans for qualified applicants with disabilities who need assistive technology. Working with its lending partner, Fifth Third Bank, KATLC can provide loans for modified vehicles, hearing aids, adapted computers, mobility devices, augmentative communication devices or any other type of equipment or home modification that will improve the quality of life or increase the independence of Kentuckians with disabilities.

Kentucky Cabinet for Workforce Development Connecting Kentucky to employment, workforce information, education and training. www.kcc.ky.gov

Project CARAT

Supported Employment

CARAT enables underserved individuals with disabilities in the Appalachian region of Kentucky by collecting, refurbishing and redistributing assistive technology (AT) and durable medical equipment (DME) through a collaborative network of partners.

The goal of Project CARAT is to make Assistive Technology and Durable Medical Equipment more accessible to those who need it in rural Kentucky.

In order to make this happen, Project CARAT is partnering with agencies across the state. www.katsnet.org/projectCARAT To Request Equipment or for Donation Info: ProjectCARAT Hotline Toll Free (800) 327-5287 / info@projectCARAT.org

Assists persons with disabilities to find and maintain employment. www.ovr.ky.gov/programservices/se

Sheila Levy, Outreach Coordinator (502)254-3195 ext. 233 sheila.levy@ky.gov

Darrin Breeding, Site Coordinator 42

www.lexingtonfamily.com

Serving Ballard, Calloway, Carlisle, Gallatin, Graves, Hickman, Livingston, McCracken and Marshall counties.

Kentucky Children Insurance Program (K-CHIP) (877) 524-4718 / chfs.kchip@ky.gov www.kidshealth.ky.gov/en K-Chip’s mission is to provide free health insurance coverage to low income, uninsured children in Kentucky. The K-CHIP staff understands that access to health care is very important and that preventive care is a large part of health care.

Kentucky Comprehensive Care Centers http://dbhdid.ky.gov/cmhc/centers.aspx Four Rivers Behavioral Health 425 Broadway, Suite 201, Paducah, Ky., 42001 (270) 442-7121 / 24-hour Line (800) 592-3980

1507 South Main Street Hopkinsville, Ky., 42241 (270) 886-2205 Serving Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenburg, Todd, Trigg counties.

River Valley Behavioral Health, Inc. 1100 Walnut Street, P.O. Box 1637 Owensboro, Ky., 42301 (270) 689 6500 Serving Davies, Hancock, Henderson, McLean, Ohio, Union, Webster counties.

Lifeskills P.O. Box 6499, Bowling Green, Ky., 42102 (270) 901-5000 Serving Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren counties.

Communicare, Inc. 107 Cranes Roost Court, Elizabethtown, Ky., 42701 (270) 765-2605 www.communicare.org Serving Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington counties.

Seven Counties Services, Inc. 101 W. Muhammad Ali Blvd., Louisville, Ky., 40202 (502) 589-8600 Serving Bullitt, Henry, Jefferson, Oldham, Spencer, Shelby, and Trimble counties.

NorthKey Community Care 502 Farrell Drive, P.O. Box 2680 Covington, Ky., 41011 (859) 578-3200 / Toll Free (877) 331-3292 www.northkey.org Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton.

Comprehend, Inc. 611 Forest Avenue, Maysville, Ky., 41056 (606) 564-4016 Serving Bracken, Fleming, Lewis, Mason, Robertson counties.

Pathways, Inc. 1212 Bath Avenue, Ashland, Ky., 41101 (606) 329-8588 Serving Bath, Boyd, Carter, Elliott, Greenup, Lawrence, Menifee, Montgomery, Morgan, Rowan counties.

Mountain Comprehensive Care Center 120 S. Front Avenue, Prestsonburg, Ky., 41653 (606) 886-8572 Serving Floyd, Johnson, Magoffin, Martin, Pike counties.

Ky. River Community Care

Key Assets (2)

d.b.a Key Services

KEY SERVICES was created to support children and adults with disabilities within the community. We help individuals become involved in their community while conquering their goals. Our goal is to help others realize endless opportunities.

Low Interest Loans for Assistive Technology Do you or someone you know have a disability?

• Michelle P. Wavier • New Supports for Community Living 2 Waiver • Life Skills Coaching • Community Rehabilitation Program • Autism Resources

To apply call toll free (877) 675-0195 or online:

Are you in need of a van lift, computer, communication device, wheelchair ramp, hearing aides or other assistive technology ?

KATLC.KY.GOV

124 West Main St. Mt. Sterling, KY Mt. Sterling Office: (859) 497-3800

Call for current interest rates Loans can range from $500-$25,000

www.keyassetskentucky.com

House Ad: All in the Family Win Pa

s Trip ld Go Fie Topage 6

Ava ta

ge

r

5

FREE 10 May 20

fie ld trip activit

y guide 2015 | 2016

e

azin nting Mag y’s Pare m Kentuck Central ingtonFamily.co www.Lex

Hapopthyer’s Day n son

M MER CA

SUM

2016

Kentucky Central Serving years for 12 parents

2016

In May

nk ne Fra n to An nnectio fayette Home sts vs. Wills ent’s Co e La s, Tru e Resid rs Make Th dern Funeral y Villag bo , Mo  Wesle nside NeighInterest Rates  Garde Bonds and ily.com tonfam Care, lexing ng-Term rs 18 YeaFREE Plus: Lo ilies For

ional

Except

a publication of

inside: ‘My Favorite Field Trip’: 4 Teachers Student Perspective

|

FREE Share Their Picks

www.LexingtonFam

ily.com

151 Field Trip Destinations

Serving

Placenta Encapsulation Baby Name Matching Game Lactation Cookie Recipe Acupuncture & Pregnancy

.indd

SARG

ky Fam Kentuc

October 2014

1

16 Cover

A Smashing Go od Time Birthday Party Issue

cil ealth Coun Commonwental Disabilities lopm on Deve

Sponsored By

Local Resources

Cover.indd 1 1/18/2016 10:35:41 AM

of na Smith and Sabri son, Brody, 5.

Matt Toney Parents le cuddle with their y Photograph Nicholasvil Robin Allen Photo by

3STAT3EW7IDE RESOURCE

LISTINGS ation of

lity Public

A Specia

Inside Family Favorites Annou nced Limit Junk Food in Schools Private School Open Houses

370

Things To Do In October

rating Our Celeb

17

rv in

Se

519

dence Indepen n io at r g te In n Inclusio

Year

inside

Baby Bump 2016

Central

th

g C en t r al KY F

2015

ALL the

ISSUES your family faces

: on ty s un cu Co 16 Fo ott ge Sc Pa

s To Do

193 Thing

Central Kentucky’s Maternity Guide

of

for

6 Ide 201

inside

gister e to Re Still Tim Kids for Your PS!

FREE

A Publication

u RCe g

ilies

FOX

her mbo with 5. nifer PaluAnna,, 5 terr Jen ughte t r aste dcas adc ad dau hter da 56 Bro hn, 3,, and n,, 3 John

Resou

am

M

l Aging u f s s e c Suc y’s Kentuck Central

4 PM

3:39:1

10/27/

p 859.223.1765 f 859.224.2470 138 E Reynolds Rd. #201 Lexington, KY 40517

Request YOUR Free Copy at

LexingtonFamily.com 2016 Exceptional Family KY

43

Resource List 2016 P.O. Box 794, 178 Community Way Jackson, Ky., 41339 (606) 666-9006 Serving Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe counties.

Cumberland River Comprehensive Care P.O. Box 568, Corbin, Ky., 40702 (606) 528-7010 Serving Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley counties.

Adanta MH / MR Board 259 Parkers Mill Road, Somerset, Ky., 42501 (606) 679-4782 Serving Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne counties.

Bluegrass.org 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 / www.Bluegrass.org Serving Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott and Woodford counties.

Kentucky Department of Education: Division of Exceptional Services 500 Mero Street, 18th floor, Frankfort Ky., 40601 (502) 564-4970 Sammie.lambert@education.ky.gov www.education.ky.gov/specialed/Pages Oversees funding, special education programs, data collection, personnel development, monitoring of school districts, curriculum development and more.

Kentucky Coalition against Domestic Violence 111 Darby Shire Circle, Frankfort Ky., 40601 (502) 209-5382 / www.kcadv.org In addition to providing a safe, secure environment for victims/survivors and their children, programs now also offer a variety of support services to residents and non-­residents including legal/court advocacy, case management, safety planning, support groups, individual counseling, housing assistance, job search and children’s groups.

Kentucky Education Rights Center, Inc 256 Abbey Road, Versailles, Ky., 40383 (859) 983-9222 / kerc@edrights.com www.edrights.com

Kentucky First Steps State Lead Agency 275 E. Main St., HS2W-C, Frankfort, Ky., 40621 (877) 417-8377 www.chfs.ky.gov/dph/firstSteps/How+to+Contact+L ocal+Point+of+Entry+Offices 44

www.lexingtonfamily.com

First Steps is a statewide intervention system that provides services to children with developmental disabilities from birth to age 3 and their families.

Administered by the Department for Public Health in the Cabinet for Health and Family Services, First Steps offers comprehensive services through community agencies and service disciplines.

Children who participate in early intervention have significant improvement in development and learning. Helping to decrease the problems early in a child’s development can reduce or prevent costly educational programs in the future.

McLean, Ohio, Union, Webster

Barren River District Point of Entry

Lake Cumberland District Point of Entry

P.O. Box 6499, 380 Suwannee Trail Bowling Green, Ky., 42103 (270) 901-5749 / (800) 643-6233 Counties served: Allen, Barren, Butler, Edmonson, Hart, Logan, Metcalfe, Monroe, Simpson, Warren

Big Sandy District Point of Entry 104 South Front Avenue, Prestonsburg, Ky., 41653 (606) 886-4417 / (800) 230-6011 Counties served: Floyd, Johnson, Magoffin, Martin, Pike

Bluegrass District Point of Entry

Kentuckiana District Point of Entry 312 Whittington Parkway, Suite 020 Lousiville, Ky., 40222 (502) 429-1249 / (800) 422-0087 Counties served: Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer, Trimble

Kentucky River District Point of Entry 115 Rockwood Lane, Hazard, Ky., 41701 (606) 439-1325 / (800) 328-1767 Counties served: Breathitt, Knott, Lee, Leslie, Letcher, Owsley, Perry, Wolfe 259 Parkers Mill Road, Somerset, Ky. 42501 (606) 678-2821 / (800) 378-2821 Counties served: Adair, Casey, Clinton, Cumberland, Green, McCreary, Pulaski, Russell, Taylor, Wayne

Lincoln Trail District Point of Entry 108 New Glendale Road, P.O. Box 2609 Elizabethtown, Ky., 42702 (270) 737-5921 / (800) 678-1879 Counties served: Breckinridge, Grayson, Hardin, Larue, Marion, Meade, Nelson, Washington

343 Waller Avenue, Ste 201, Lexington, Ky., 40504 (859) 271-9448 / (800) 454-2764 Counties served: Anderson, Bourbon, Boyle, Clark, Estill, Fayette, Franklin, Garrard, Harrison, Jessamine, Lincoln, Madison, Mercer, Nicholas, Powell, Scott, Woodford

Northern Kentucky District Point of Entry

Buffalo Trace District Point of Entry

735 North Drive, Hopkinsville, Ky., 42240 (270) 886-5186 / (877) 473-7766 Counties served: Caldwell, Christian, Crittenden, Hopkins, Lyon, Muhlenberg, Todd, Trigg

611 Forest Avenue, Maysville, Ky., 41056 (606) 564-3919 / (800) 335-4249 Counties served: Bracken, Fleming, Lewis, Mason, Robertson

Cumberland Valley District Point of Entry P.O. Box 568, Corbin, Ky., 40702 (606) 523-0229 / (800) 509-9559 Counties served: Bell, Clay, Harlan, Jackson, Knox, Laurel, Rockcastle, Whitley.

FIVCO District Point of Entry 5850 U.S. 60, Box 11 Summit Plaza Ashland, Ky., 41102 (606) 929-9155 / (800) 650-1329 Counties served: Boyd, Carter, Elliott, Greenup, Lawrence

Gateway District Point of Entry P.O. Box 290, Owingsville, Ky., 40360 (606) 674-3204 / (800) 942-4358 Counties served: Bath, Menifee, Montgomery, Morgan, Rowan

Green River District Point of Entry 1501 Breckenridge Street, Owensboro, Ky., 42301 (270) 852-2905 / (888) 686-1414 Counties served: Daviess, Hancock, Henderson,

718 Columbia Street, Newport, Ky., 41071 (859) 308-5963 / (888) 300-8866 Counties served: Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen, Pendleton

Pennyrile District Point of Entry

Purchase District Point of Entry 425 Broadway, Suite 204, Paducah, Ky., 42001 (270) 442-6223 / (800) 648-6599 Counties served: Ballard, Carlisle, Calloway, Fulton, Graves, Hickman, Livingston, Marshall, McCracken.

Kentucky IMPACT Program 275 E. Main St., 4W-G, Frankfort Ky., 40621 (502) 564-4456 Kentucky IMPACT is a statewide program which coordinates services for children with severe emotional disabilities and their families. IMPACT serves children and youth of all ages.

Kentucky Division of Protection and Permanency 275 E. Main St., 3E-A, Frankfort, Ky., 40621 (502) 564-6852 / Fax (502) 564-4653 www.chfs.ky.gov/dcbs/dpp If you believe a child is being abused, neglected or is dependent, call the Protection and Permanency

Resource List 2016 office in your county or the Toll Free Child Protection Hot Line. 1-877-KYSAFE1 or 1-877-597-2331.

Kentucky Office of Victims Advocacy The Office of Victims Advocacy works to ensure crime victims are treated with respect and dignity as their case proceeds through the criminal justice system.

(800) 372-2551 www.ag.ky.gov/criminal/victims/pages/mission

Kentucky Protection & Advocacy 5 Millcreek Park, Frankfort, Ky., 40601 (800) 372-2988/ (502) 564-2967 www.kypa.net Mission is to protect and promote the rights of Kentuckians with disabilities through legally based individual and systemic advocacy, and education.

Staff includes professional advocates and attorneys.

Kentucky PTA P.O. Box 654, Frankfort, Ky., 40602-0654 (502) 226-6607 / kentuckypta@bellsouth.net www.kypta.org

Kentucky Self-Advocates For Freedom krchristianwoman@yahoo.com KYSAFF is a statewide organization directed

by Kentuckians with disabilities and committed to working in partnership with all interested parties to promote equal rights, inclusion, self-advocacy, support and education in all realms of life. The goals are: Speak Up: Self-Advocates speak up for themselves and teach, coach and support others to speak up for themselves.

Your Rights: Self-Advocates are encouraged to know and exercise their rights.

Education: Self-Advocates are encouraged to inform and educate the general public about rights, needs and issues regarding people with developmental disabilities.

Involvement: Participate in decision-making forums regarding policies that impact people with developmental disabilities.

Raise Funds: Advocate for funding for services and supports on behalf of people with developmental disabilities.

Kentucky Special Parent Involvement Network, Inc. (KY-Spin) 10301-B Deering Road, Louisville, Ky., 40272 (502) 937-6894 / (800) 525-7746 Fax (502) 937-6464 / www.kyspin.com KY-SPIN, Inc. is a non-profit organization dedicated to promoting programs that enable persons with

disabilities and their families to enhance their quality of life. Fully 85% of all program income goes to direct services to families.

The Kentucky Office of Vocational Rehabilitation www.ovr.ky.gov

Office of Vocational Rehabilitation Central Office Cabinet for Human Resources Building 275 E. Main Street, Mail Stop 2E-K Frankfort, Ky., 40621 / (502) 564-4440

Bowling Green (270) 746-7489 / (800) 4436055 (800) 246-6193 (TTY)

Elizabethtown (270) 766-5121 / (866) 8830001

Florence (859) 371-9450 / (877) 3719451

Bluegrass/Lexington (859) 246-2537 / (888) 211-7276

Middletown/Louisville (502) 254-3195 / (866) 304-1958

Whitesburg (606) 633-2568

West Liberty (606) 743-7978 / (800) 440-2530

Louisville (502) 595-4173 / (800) 456-3334

Madisonville (270) 824-7549 / (888) 640-2713

Owensboro (270) 687-7308 / (800) 241-5821 (TTY) (888) 640-2811

Paducah (270) 575-7304

Ashland (606) 920-2338

Carl D. Perkins Center (800) 443-2187

Kentucky Youth Advocates 11001 Bluegrass Parkway, Suite 100 Jeffersontown, Ky. 40299 (502) 895-8167 / (888) 825-5592

www.kyyouth.org

The Charles W. McDowell Rehabilitation Center Kentucky Office for the Blind 8412 Westport Road, Louisville, Ky., 40242 (502) 429-4460 / www.blind.ky.gov

Pathways to Careers and Special Programs Donnalie Stratton, Program Consultant Capitol Plaza Tower, Room 2113 500 Mero Street, Frankfort, Ky., 40601 (502) 564-4770 / www.education.ky.gov

Personal Care Attendant Program Department for Aging and Independent Living 275 E Main St., 3E-E, Frankfort, Ky. 40621 (502) 564-6930 Ext 3477 www.chfs.ky.gov/dail/pcap Attendant services are provided for people 18 and older with functional loss of two or more limbs and who have the ability to hire and supervise an attendant. Services include assistance with personal care, housekeeping, shopping, travel, self-足care procedures, meal preparation, and other daily activities.

2016 Exceptional Family KY

45

Resource List 2016 Programs for Children with Disabilities Division of Extended Learning Office of Academic and Professional Development (Ages 3 through 5) 500 Mero Street, Capitol Plaza Tower, 17th Floor; Frankfort, Ky., 40601 / (502) 564-4770 www.kde.state.ky.us

First Steps Program (Ages Birth through 2) 3717 Taylorsville Road, Louisville, Ky., 40220 (502) 459-0225 / (800) 442-0087 Fax (502) 452-9079 www.chfs.ky.gov/dph/firststeps Early Intervention Program for Infants and Toddlers with Developmental Delays: Ages Birth to 3.

R.E.A.C.H of Lousiville 501 Park Avnue, Louisville, Ky., 40208 (502) 585-1911 / www.reachoflouisville.com

Seven Counties Comprehensive Care Services Appointments: (502) 589-1100 (800) 264-8799 / www.sevencounties.org A community behavioral health and developmental services center serving Bullitt, Henry, Jefferson, Oldham, Shelby, Spencer and Trimble counties. The vision of Seven Counties Services is that all persons affected by mental illness, developmental disabilities, addictions and abuse live satisfying, productive and valued lives. Website includes a 93-page Resource Book called “Build Your Future.”

United Partners in Kentucky www.up-in-ky.com UP in Kentucky is a functional, non-compensated partnership to enhance each other’s work on behalf of children, youth and young adults with disabilities and their families. The intention is to collaborate with each other, reduce duplication of effort and help determine and influence policies.

• learning • differences The Curious Edge – The Reading Room Working with children with dyslexia (859) 899-EDGE (3343) 401 Lewis Hargett Circle, Suite 120 Lexington, Ky., 40503 www.thecuriousedge.com

Learning Disabilities Assn. of Kentucky 46

www.lexingtonfamily.com

2210 Goldsmith Lane, Suite 118 Louisville, Ky., 40218 (502) 473-1256 / (877) 5871256 www.LDAofky. org This comprehensive mental health professional program includes the “co-morbid” disorders often found with individuals with learning disabilities, including Anxiety, Depression, Obsessive Compulsive Disorder, Anger Control/Bipolar Disorder, and ADHD.

The International Dyslexia Assn. – Ky. Branch P.O. Box 255, Wittensville, Ky., 41274 (502) 612-5095 / www.idakentucky.org

Dyslexia Solutions Inc. (502) 499-2744 / cbaumert@readfluent.com www.readfluent.com

Dyslexia Association of the Pennyrile 583 A Noel Avenue Hopkinsville, Ky., 42240 (270) 885-5804 / www.hopkinsvilledyslexia.org

LD Online The world’s leading website on learning disabilities and ADHD. www.ldonline.org/ldresources/local_org/kentucky

Ohio Valley Branch of the International Dyslexia Association 317 East Fifth Street, Cincinnati, Ohio, 45202 (513) 651-4747 / www.cincinnatidyslexia.org A non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia. This Branch was formed to increase public awareness

of dyslexia in the Southern Ohio, Southeast Indiana, Kentucky and Huntington, West Virginia areas.

Progressive Educational Program, Inc. Joni Strickland, Director of Tutoring Service and Karen Cress, Certified Dyslexia Tester.

212 Venture Way, Somerset, Ky., 42503 (606) 677-2514 www.progressiveeducationalprogram.com Specializing in tutoring children with Dyslexia

• medical • Associates in Pediatric Therapy 1900 Midland Trail, Suite 1 and 2 Shelbyville, Ky.,40065 Louisville Area: (502)-633-1007 Lexington Area: (859)-899-2022 Indiana Area: (812)-542-2771 www.kidtherapy.org ATP’s unique appeal is that it offers a family approach with multiple pediatric services including Occupational Therapy, Speech Therapy, Physical Therapy, Nutrition, Developmental Intervention, Audiology, and Mental Health Services with Family Therapists and Psychologist’s to the patient and family in a team approach. ATP strives to provide therapy in a variety of locations that is appealing to

Resource List 2016 the patient and family. Offices are located in Bullitt County, Shelby County, Jefferson County, Fayette County, & Oldham County. ATP partners with other pediatric facilities such as All About Kids to provide therapy in a fun and rewarding environment where the child can feel normal.

Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100 Louisville, Ky., 40222 (502) 493-0609 / www.biak.us

Cardinal Hill Rehabilitation Hospital www.cardinalhill.org Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 Cardinal Hill Home Care 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7148

Cardinal Hill Rehabilitation Center/Easter Seals of Louisville 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781

Cardinal Hill of Northern Kentucky 31 Spiral Drive, Florence, Ky., 41042 (859) 525-1128

Charles L. Shedd Kentucky Association 4801 Sherburn Lane, LL1, Louisville, Ky. 40207 (502) 656-4453 / www.sheddtutoring.org The Shedd Program provides educational remediation through highly structured teaching methods and materials utilizing a multisensory approach and one-to-one instruction.

Cincinnati Children’s Hospital Center for Infants and Children with Special Needs Cincinnati Children’s Hospital Medical Center MLC 7009 3333 Burnet Avenue, Cincinnati, Ohio, 45229 (513) 636-4200 / (800) 344-2462 TTY (513) 636-4900 www.cincinnatichildrens.org/svc/alpha/c/specialneeds

Dental Care in Northern Kentucky for Special Needs Donated Dental Services / (888) 765-6789

Early Periodic Screening Diagnostic and Treatment Special Services (EPSD) Department of Medicaid Services, Children’s Health Services (800) 635-2570 / TTY (800) 775-0296 www.chfs.ky.gov/dms/epsdt The EPSDT Screening Program provides routine physicals or well child check-ups for Medicaid eligible children at certain specified ages. EPSDT can also provide speech/language, physical and/or occupation therapy, and specialized durable medical equipment for children who qualify and need those services.

Frazier Rehab Institute 220 Abraham Flexner Way, Louisville, Ky., 40202 (502) 582-7400 www.kentuckyonehealth.org/rehabilitationcarefrazier

Health Point Family Care, Covington 1401 Madison Avenue, Covington, Ky., 41011 (859) 655-6100

Home and Community-Based Waiver (HCB Waiver) (502) 564-5707 / www.chfs.ky.gov/dms/hcb The Home and Community-Based Waiver program provides Medicaid coverage to eligible persons who are aged or disabled, who would otherwise require nursing facility level of care.

Services include but are not limited to the following: assessment and reassessment, case management, homemaker services, personal care services, respite care, minor home adaptations, attendant care, and adult day health care.

Horn and Associates in Rehabilitation Greatstone Office 2412 Greatstone Point, Lexington, Ky., 40504 Todds Road Office 4127 Todds Road, Lexington, Ky. 40509 (859) 224-4081 / (859) 224-4261 www.horntherapy.com HRA offers assessments and intervention from a multi-disciplinary team including physical therapy, occupational therapy, speech-language pathology, psychology, developmental intervention, social work and case management. HRA provides independent evaluation and intervention services. HRA addresses concerns of the individual, family and referral sources including physicians, schools and other agencies.

Families are encouraged to participate through evaluations and therapy, and a focus is placed on providing services that can generalize into academics, home, community and job settings.

Kentucky Children’s Hospital University of Kentucky, 800 Rose Street, Lexington, Ky., 40536 (859) 257-1000 / (800) 333-8874 www.ukhealthcare.uky.edu/KCH Established in 1957, UK HealthCare consists of the medical, nursing, health sciences, public health, dental and pharmacy patient care activities of the University of Kentucky, and in several off-site locations.

Kentucky Transitions (Money Follows the Person Demonstration Grant) Kentucky Department for Medicaid Services Division of Community Alternatives 275 East Main, 6 W-B, Frankfort, Ky., 40621 (502) 564-0330 www.chfs.ky.gov/dms/MFP Using funding from the Money Follows the Person Demonstration Grant, the Department for Medicaid Services assists eligible individuals to transition from institutional settings back into the community.

Michelle P. Waiver (502) 564-4527 www.chfs.ky.gov/dms/mpw A Medicaid program that helps people live in the community, or go back to the community after living in an institution. The Michelle P. Waiver is for anyone with an intellectual or a developmental disability who is eligible to receive services at an ICF/ID (Intermediate Care Facility – Intellectual Disability), like Oakwood, Hazelwood, or Cedar Lake Lodge.

The Kidz Club 7140 Preston Highway, Louisville, Ky., 40219 (502) 368-9318 225 N. 25th Street, Louisville, Ky., 40212 (502) 365-2426 527 Watson Road, Erlanger, Ky., 41018 (859) 727-0700 2200 Regency Road Lexington, Ky., 40503 (859) 224-0799 www.thekidzclub.com The Kidz Club is a prescribed pediatric extended care facility that provides skilled nursing care for children who are medically fragile in a day care setting. Kidz Club children range from having highly complex medical conditions to kids that simply need to be monitored or have medication delivered. The Kidz Club provides educational enrichment, therapy follow-through, field trips and activities in a fun 2016 Exceptional Family KY

47

Resource List 2016 and social setting. Transportation can be provided.

Medicaid and private insurance accepted. There are no costs to the child or their family.

Julie Kraska, OTR/L Kraska & Associates, Inc. 437 Lewis Hargett Circle Suite 120 Lexington, Ky., 40503 / (859) 219-0956 Private practice providing occupational and speech therapy services. Family-centered approach.

Areas of specialty include sensory integration, sensory processing disorder, fine motor/handwriting, dyspraxia, autism, Asperger’s, articulation, phonological disorders, reading programs.

Marshall Pediatric Therapy 105 Windhaven Drive, Suite 1 Nicholasville, Ky., 40356 (859) 224-2273 / Fax (859) 224-4675 www.mptcares.com Offers occupational and speech therapy for Lexington and surrounding counties. The practice accepts EPSDT, most private insurance plans, participates with Kentucky First Steps, and offers payment plans and provides need-based scholarships from ages birth to 21.

and disease management programs. To learn more about Passport Health Plan, please visit our website, www.passporthealthplan.com., or call our Member Services department at 1-800-578-0603. TDD users should call 1-800-691-5566.

Safe Kids Fayette County Coalition Kentucky Children’s Hospital 800 Rose St., Lexington Ky., 40536 (859) 323-1153 www.ukhealthcare.uky.edu/safekids Safe Kids Fayette County is a program of Kentucky Children’s Hospital in Lexington and one of more than 650 grassroots coalitions in all 50 states and 17 countries, the District of Columbia and Puerto Rico that brings together health and safety experts, educators, corporations, foundations, governments and volunteers to educate and protect families. Safe Kids Fayette County Coalition is a member of Safe Kids Worldwide, a global network of organizations dedicated to preventing accidental injury. Efforts are needed because as many as 90% of accidental injuries can be prevented.

Safe Kids Coalition Kentucky

502 Farrell Drive, P.O. Box 2680 Covington, Ky., 41011 (859) 578-3200 / Toll Free 877-331-3292 www.northkey.org Serving Boone, Campbell, Carroll, Gallatin, Grant, Kenton, Owen and Pendleton.

Paving the way to a community healthy in mind and spirit – that’s what NorthKey Community Care is working toward in the Cincinnati and Northern Kentucky areas with a comprehensive continuum of mental health, developmental disability and substance abuse care.

Led by Kentucky Department of Health 333 Waller Avenue, Lexington, Ky., 40504 (859) 323-6194 / www.safekids.org Barren County Barren River District Health Department 318 West Washington, Glasgow, Ky., 42141 (270) 651-8321, ext. 13 Louisville and Jefferson County Kosair Children’s Hospital 315 E. Broadway, Louisville, Ky., 40202 (502) 629-7335 River Cities Communities King’s Daughters Medical Center 2201 Lexington Avenue, Ashland, Ky., 41101 (606) 408-4000

Passport Health Plan

SKY Pediatric Dentistry

NorthKey Community Care

5100 Commerce Crossings Drive Louisville, Ky., 40229 (800) 578-0603 EST / TDD (800) 691-5566 Member Services 7 a.m.-7 p.m. (EST) Monday-Friday www.passporthealthplan.com Passport Health Plan is a Medicaid managed care plan that has been coordinating health services to qualified members since 1997. Passport is community-based and provider-sponsored, and the only non-profit Medicaid health plan available to members in Kentucky. The mission is to “improve the health and quality of life of our members,” which Passport follows every day through exceptional customer service, a large provider network, and case 48

www.lexingtonfamily.com

Dr. Mandy Ashley DMD, MsEd, MS 727 US-31 W. Bypass, Suite 101 Bowling Green, Ky., 42101 / (270) 715-5437 www.skypediatricdentistry.com Dentistry for children and teens with special needs.

Square One Specialists in Child and Adolescent Development 6440 Dutchmans Parkway, Louisville, Ky., 40205 (502) 896-2606 / info@squareonemd.com www.squareonemd.com Comprehensive Evaluations: Medical, psychological, psychiatric, educational, and speechlanguage evaluations are offered to help understand

differences that impact children’s and adolescents’ development, behaviors, and emotions.

Robert A. Underwood, Ph.D. & Byron White, Psy.D: Edelson and Associates, PSC 7511 New La Grange Rd. Louisville, Ky., 40222 (502) 423-1151 www.edelsonandassociates.info Neuropsychological, ADHD, Learning Disability, Autism and Psychological Disorder Evaluations.

University of Louisville Kosair Children’s Hospital 231 E. Chestnut Street, Louisville, Ky., 40402 (502) 629-6000 / www.kosairchildrenshospital.com Kosair Children’s Hospital is a 253-bed teaching facility and serves as a referral center for central and western Kentucky, and southern Indiana. The hospital is also the primary pediatric teaching hospital for the University of Louisville health sciences program.

Each year there are approximately 8,000 admissions, 50,000 Emergency Department visits and 10,500 outpatient clinic visits.

Dr. F. Allen Walker Creative Psychiatry P.L.L.C. 10200 Forest Green Blvd., Suite 401 Louisville, Ky., 40223 (502) 384-ADHD (2343) / www.louisvilleadhd.com drwalker@louisvilleadhd.com

• mental health • 360 Mental Health Services Dr. Tim Houchin 1096 Duval Street, Suite 210 Lexington, Ky., 40515 (859) 948-9471 / tim@360mentalhealth.com www.360mentalhealth.com Dr. Tim is one of only 203 physicians triple board certified in child/adolescent psychiatry, general psychiatry and forensic psychiatry. He believes in a holistic, 360-degree approach to evaluating and treating both children and adults.

Acquired Brain Injury (ABI) Waiver (502) 564-5198 / Toll Free (866) 878-2626

Acquired Brain Injury Kentucky Branch 275 E. Main Street, 6W-B, Frankfort, Ky., 40621 www.chfs.ky.gov/dms/Acquired+Brain+Injury This program is designed to provide intensive services and support to adults with acquired brain injuries as they work to re-enter community life.

Resource List 2016 bluegrass.org 1351 Newtown Pike, Lexington, Ky., 40511 (859) 253-1686 24-hour crisis line (800) 928-8000 www.bluegrass.org Bluegrass.org has served the 17-county Bluegrass Area for more than 45 years, assisting individuals and families in the enhancement of their emotional, mental and physical well-being by providing behavioral health, intellectual/developmental disabilities and substance abuse services.

The Kentucky Assn. of Regional Programs 152 West Zandale Drive, Suite 201 Lexington, Ky., 40503 / (859) 272-6700 www.sites.google.com/site/kentuckycmhcs A state association whose members are 11 of the 14 community mental health centers in Kentucky.

KARP can connect citizens to their local community mental health center for information about services and support.

Cedar Lake 7984 New LaGrange Rd., Louisville, Ky., 40222 (502) 327-7706 / www.cedarlake.org Cedar Lake is a private, not-for-profit association that incorporated out of common concern for persons with mental retardation and the lack of adequate residential facilities within the area. Cedar Lake was founded in 1970 by Louisville-area parents of persons with intellectual disabilities. Cedar Lake Lodge began providing campus services in 1974, and added “community-based” service options, Cedar Lake Residences, in 1989. Collectively, Cedar Lake operations employ more than 300 staff members and have an annual operating budget in excess of $15 million, providing services to approximately 200 individuals with intellectual and developmental disabilities.

Division of Developmental and Intellectual Disabilities 275 E. Main Street 4CF, Frankfort, Ky., 40621 (502) 564-7702 / TTY (502) 564-5777 www.dbhdid.ky.gov/ddid It is the mission of the Division of Developmental and Intellectual Disabilities to empower each person to realize his or her place in the community as a citizen of Kentucky. To accomplish this mission, DDID will partner with and support persons with intellectual or developmental disabilities, families, advocates, stakeholders and government agencies.

Mental Health America of Kentucky 216 E. Reynolds Road, Lexington, Ky., 40517

(502) 893-0460 / (888) 705-0463 mhaky@kih.net / www.mhaky.org

NAMI Northern Kentucky

Mental Health Association of Northern Kentucky

NAMI Owensboro

912 Scott Street, Covington, Ky., 41011 (877) 361-4518 / (859) 431-1077 www.mhanky.org

NAMI Kentucky (National Alliance for the Mentally Ill) c/o Somerset Community College 808 Monticello Street, Somerset, Ky., 42501 (606) 451-6935 / (606) 451-6936 (800) 257-5081 / namiky@bellsouth.net www.ky.nami.org

NAMI Bowling Green Larry Gregory / (270) 796-2600 gregnamibgky@hotmail.com

NAMI Buffalo Trace (Maysville) Sharon Darnell / (606) 584-2716 ndarnell@maysvilleky.net

NAMI Cumberland River Wayne Bullock / (606) 256-9250 nami.mtvernon@crccc.org

Dorothy Best, Executive Director / (859) 392-1730 dbest@namiky.org Frannie Griffith / (270) 689-1999 griffdog17@bellsouth.net

NAMI Paducah Balinda Hudson / (270) 443-3448 namipaducah@yahoo.com

NAMI Somerset Maggie Krueger, President / (270) 384-1134 maggiekureger@windstream.net

NAMI Winchester Brenda Harrington / (859) 749-3702 bebe1@bellsouth.net

Traumatic Brain Injury (TBI) Trust Fund (502) 564-6930 / toniaawells@ky.gov www.chfs.ky.gov/dail/braintrust This program offers flexible, funding and support for people with traumatic brain injuries. The fund supports supplemental community based efforts to meet the special needs of individuals with brain injury.

NAMI Danville Cherine Clark / (859) 209-0023 cherinecarter@gmail.com

NAMI Hazard Donia Shuhaiber / (859) 537-6869 Namihazard@yahoo.com

NAMI Heartland Steve Alexander / (270) 351-3730 steve.alexander@hardin.kyschools.us

NAMI Henderson/Webster County Beverly Jones / (270) 854-6264 bjones.nami@att.net

NAMI Hopkinsville Sherri Turner / (513) 317-6932 sbsturner@gmail.com

NAMI Lexington Phill Gunniing Executive Director / (859) 272-7891 pgunning@namilex.org

NAMI Louisville Michael Gray, Executive Director / (502) 588-2008 michael.gray@namilousville.org

NAMI Madisonville Beth Clark / (859) 986-6309 elizabethaclark@catholichealth.net

NAMI Morehead Carol Mauriello / (606) 356-9194 camauriello@moreheadstate.edu

NAMI Nelson County Gary Barr, President / (502) 471-4064 Gary.barr@ge.com

• parent support • Kentucky Partnership for Families and Children, Inc. 207 Holmes Street, Frankfort, Ky., 40601 (502) 875-1320 / (800) 369-0533 kpfc@kypartnership.org / www.kypartnership.org KPFC’s vision is that all families raising youth and children affected by behavioral health challenges will achieve their fullest potential. KPFC’s mission is to empower families affected by behavioral health challenges to initiate personal and systems change.

The Council on Developmental Disabilities 1151 South Fourth Street, Louisville, Ky., 40203 (502) 584-1239 / Fax (502) 584-1261 info@councilondd.org / www.councilondd.org The mission of The Council is to initiate positive change on behalf of individuals with developmental disabilities. The Council serves people with developmental disabilities of all ages through all stages of life, connecting families to resources and services and providing training and support.

Resources focus on lifelong education and empowerment of constituents. The Council provides support, resources and information to families; advocates on behalf of people of all ages with intellectual and developmental disabilities; initiates

2016 Exceptional Family KY

49

Resource List 2016 changes in laws and regulations that improve public policies, funding and perceptions of people with ID-DD; provides specialized trainings to families (Medicaid waiver, financial planning, guardianship); and offers six-week LEAD (Leadership Education & Advocacy Development) training for parents on special education laws, Individualized Education Plans and principles of advocacy.

Weber Gallery Weber Gallery specializes in bringing professional artists and artists with disabilities together in integrated exhibitions. Weber Gallery, a program of The Council on Developmental Disabilities, provides an inclusive art venue for talented local, regional and national artists, with a vision toward the inclusion and empowerment of artists with developmental disabilities. Hours: 10 a.m.-4 p.m., Monday-Friday or by appointment.

The Molly Johnson Foundation P.O. Box 215, Fisherville, Ky., 40023 (502) 724-0067 www.themollyjohnsonfoundation.org The Molly Johnson Foundation was created to assist families of children with special needs in a variety of ways, including financial help, supplying medical equipment, home accommodations and travel expenses for services. The Molly Johnson Foundation desires to make a difference in the lives of these families in the best way possible.

• speech • hearing & language Heuser Hearing Institute 111-117 E. Kentucky Street, Louisville, Ky., 40203 (502) 515-3320 / www.thehearinginstitute.org Heuser Hearing Institute (HHI) is a multi-specialty nonprofit campus promoting the needs of children and adults with disorders of hearing and balance.

Our organization has been serving Louisville and many of the surrounding Kentucky and Indiana communities since 1948.

Kentucky Commission on the Deaf and Hard of Hearing 632 Versailles Road, Frankfort, Ky., 40601 (502) 573-2604 (V/TTY) / (800) 372-2907 (V/ TTY, in Kentucky only) kcdhh@mail.state.ky.us / www.kcdhh.org

Kentucky School for the Deaf 303 South Second Street, Danville, Ky., 40422 (859) 239-7017 / www.ksd.k12.ky.us Ensures that deaf and hard of hearing children and youth have educational opportunities to develop their potential to become educated, life-long learners and productive citizens.

Kentucky Speech-Language-Hearing Association (KSHA) 838 E. High Street, Suite 263 Lexington, Ky., 40502 (800) 837-2446 / khsaoffice@khsa.info www.ksha.info The mission is to enhance the provision of quality services to persons with communication disorders and their families. KSHA provides broad-based education opportunities, public awareness and policy development initiatives, and by supporting professionals in speech-language pathology and audiology by promoting the highest standards for service providers.

St. Rita School for the Deaf 1720 Glendale Milford Road Cincinnati, Ohio, 45215 (513) 771-7600 / www.srsdeaf.org

• service dogs • 4 Paws for Ability University of Kentucky UK4PAWS@gmail.com www.wix.com/lmbrig2/4-paws-at-uk www.facebook.com/4PawsatUK

Lexington Hearing and Speech Center

Kentucky Working K-9 Academy

350 Henry Clay Blvd. Lexington, Ky., 40502 (859) 268-4545 / www.lhscky.org Provides diagnostic, therapeutic and educational services for individuals with hearing, speech and language impairments.

Service Dogs for the Disabled 4856 Lilac Road, Leitchfield, Ky., 42754 (270) 259-3647 www.awos.petfinder.com/shelters/KY250

Kentucky Association of the Deaf P.O. Box 463, Danville, Ky., 40423-463 www.kydeaf.org

50

www.lexingtonfamily.com

Pawsabilities Unleashed 1410 Versailles Road, Suite 5/6/7 Frankfort, Ky., 40601 866-262-7010 / info@pawsibilitiesunleashed.org www.pawsibilitiesunleashed.org

We provide assistance dogs to people with seizures, hearing issues, panic attack, autism, post traumatic stress disorders, mobility needs and more.

• spina bifida • Cardinal Hill Rehabilitation Hospital 2050 Versailles Road, Lexington, Ky., 40504 (859) 254-5701 Cardinal Hill Center for Outpatient Services 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7125 Cardinal Hill Home Care 2050 Versailles Road, Lexington, Ky., 40504 (859) 367-7148 Cardinal Hill Rehabilitation Center/Easter Seals of Louisville 9810 Bluegrass Parkway, Louisville, Ky., 40299 (502) 584-9781 Cardinal Hill of Northern Kentucky 31 Spiral Drive, Florence, Ky., 41042 (859) 525-1128

Spina Bifida Association of Kentucky Kosair Charities Centre 982 Eastern Parkway, Box 18, Louisville, Ky., 40217 (502) 637-7363 / (866) 340-7225 sbak@sbak.org / www.sbak.org SBAK is a resource center that provides free services and programs to children and adults with Spina Bifida and their families. The mission is to promote the prevention of Spina Bifida and to enhance the lives of all affected. Have you had your recommended daily dose of Folic Acid? Remember, 400mcg of Folic Acid taken before pregnancy can reduce the risk of having a child with Spina Bifida by 70%.

Shriners Hospital for Children Spina Bifida Program (Orthopaedic clinic only) 1900 Richmond Road, Lexington, Ky., 40502 (859) 266-2101 www.shrinershospitalsforchildren.org

• vision • Silver Circles, Inc. Catherine C. Barnes, Director & Irlen Diagnostician 2396 New Shepherdsville Road Bardstown, Ky., 40004 (502) 348-7551 / www.silvercirclesinc.com The Irlen Method uses colored overlays and precision tinted filters, worn as glasses, to reduce or

Resource List 2016 eliminate perceptual difficulties and light sensitivity.

Office for the Blind 275 E. Main Street, Frankfort, Ky., 40601 (800) 321-6668 / (502) 564-4754 www.blind.ky.gov

staff members are also parents of visually impaired children.

• other • organizations

Family Eyecare Associates & Children’s Vision and Learning Center

Cardinal Hill Adaptive Recreation

Dr. Rick Graebe 105 Crossfield Drive, Versailles, Ky., 40383 (859) 879-3665 / (855) 686-2020 www.myfamilyvision.com Family Eyecare Associates and Dr. Rick Graebe offer the best available eyecare for the entire family.

This includes computerized exams for children and adults; and quality eyeglasses, sunglasses and contact lenses. In addition to general optometric services, Family Eyecare offers unique programs such as Vision Therapy for children experiencing difficulty with reading and/or underachievement at school. Children in these programs average more than a 3-year improvement in performance in 10 to 15 weeks.

KARRN (Kentucky Appalachian Rural Rehabilitation Network)

Kentucky School for the Blind Division of the Kentucky Department of Education Office of Special Instructional Services 1867 Frankfort Avenue, Louisville, Ky., 40206 (502) 897-1583 / www.ksb.k12.ky.us A K-12 public school serving Kentucky students who are blind and visually impaired, offers Short Course program (1-12 weeks) of specialized instruction available to students throughout the school year. Summer school programs are offered in June and July.

Visually Impaired Preschool Service (VIPS) Greater Louisville 1906 Goldsmith Lane, Louisville, Ky., 40218 (502) 636-3207 / (888) 636-8477 www.vips.org VIPS-Central Kentucky P.O. Box 23961, Lexington, Ky., 40523 (859) 276-0335 / (888-254-8477) www.vips.org The mission of Visually Impaired Preschool Services, Inc. is to offer appropriate services to infants, toddlers and preschoolers who are visually impaired or blind and to their families; and to maximize each child’s development potential through direct services, advocacy and community education. VIPS staff includes certified teachers who specialize in early childhood education, visual impairment, O&M, and special education. Several

Promotes healthy and active lifestyles for people with physical disabilities through education, exposure to adaptive equipment and adaptive recreation experiences in the community.

(859) 254-5701 / cindy.jacobelli@cardinalhill.org www.cardinalhill.org/programs/adaptive-recreation

A collaborative team comprised of individuals impacted by neurological conditions, providers who serve them, members of communities in which they live, advocates, educators, and researchers who investigate these conditions. www.karrn.org / phkitz1@uky.edu

KCSCI (Kentucky Congress on SCI) The KCSCI is a group of individuals with spinal cord injuries who are dedicated to educate & legislate change for the SCI community in Kentucky. www.facebook.com/KCSCI

Toyota Bluegrass Miracle League Plays at Shillito Park in Lexington North Lexington YMCA / (859) 258-9622 www.ymcacky.org/main/toyota-bluegrass-miracleleague/ www.facebook.com/Toyota Bluegrass Miracle League A baseball program for youth and adults with special needs. The leagues play on a specially designed field located at Shillito Park in Lexington.

The all-accessible field is the only one of its kind in Kentucky with leagues in both spring and fall.

LYSA’s TOPSoccer Program 404 Sporting Court, Lexintgton, Ky., 40503 (859) 223-5632 / www.lysa.org/tops TOPSoccer (The Outreach Program for Soccer) is a community-based soccer program designed to meet the needs of athletes with physical, developmental, and/or intellectual disabilities. Player participation and development are key elements of the program. TOPSoccer is designed to improve the overall fitness, self-esteem and social skills of your athlete.

Legacy All Sports 261 Ruccio Way, Lexington, Ky., 40503 (859) 977-8862 / www.legacy-gymnastics.com Carousel Kidz is a program to meet your child’s special needs with one-on-one gymnastics and dance lessons.

Central Kentucky Riding for Hope P.O. Box 13155, Lexington, Ky., 40583 (859) 231-7066 / lauriston@ckrh.org www.ckrh.org Operated at the Kentucky Horse Park Under the guidance of trained teachers, volunteers and medical people, disabilities are challenged and new abilities are created. The program has proved successful in helping people with a wide range of disabilities develop self-esteem, confidence, coordination and a sense of achievement while learning horsemanship and track riding principles.

Cerebral Palsy K.I.D.S. Center Kids Center for Pediatric Therapies 982 Eastern Parkway, Louisville, Ky., 40217 (502) 635-6397 / www.kidscenterky.org Since 1959, the Kids Center has served families of children with Down syndrome, spina bifida, cerebral palsy, autism, seizure disorders, and a number of other developmental conditions.

Crohn’s & Colitis Foundation of America Kentucky Chapter P.O. Box 573, Prospect, Ky., 40059 (877) 283-7513 / Kentucky@ccfa.org www.ccfa.org/chapters/kentucky/

National Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Avenue, Suite 200 Louisville, Ky., 40206 / (502) 451-0014 www.nationalmssociety.org www.nationalmssociety.org/Chapters/KYW/Aboutthis-Chapter/Staff

TASH Disability Advocacy Worldwide An international association of people with disabilities, family members, other advocates and professionals working for a society in which inclusion of all people in all aspects of society is the norm.

(202) 540-9020 / www.tash.org

TASH, Kentucky Chapter Located in Louisville Leslie Lederer / (502) 239-4805 www.tash.org/chapters/kentucky-tash/

2016 Exceptional Family KY

51

Associates in Pediatric Therapy Advancing Patients to Their Next Therapeutic Level

Speech Therapy, Occupational Therapy, Physical Therapy & Mental Health Offices located in Louisville, Lexington, Southern Indiana & the surrounding areas.

502.633.1007 or 859.899.2022

Kidtherapy.org