Clinical connection Summer 2011

Healthcare Professional News & Updates

Dear Colleague, As an national leader in developmental disabilities and rehabilitation, we see so many patients here at Kennedy Krieger Institute after they’ve been unable to find answers anywhere else.

For patients struggling with rehabilitation challenges and life-altering conditions, we work constantly to ensure that hope remains for a fuller life and more complete recovery—a goal reflected in every program and clinic we develop. We also pride ourselves on our comprehensive and interdisciplinary range of services.

Whether it’s treating complex behavioral, developmental, or physical issues, our specialists are here to help you and your patients to succeed, thrive, and function at home, at school, and in their communities. If you have a patient struggling with a physical or developmental disorder, spinal cord injury, or traumatic brain injury, there’s a good chance that someone at Kennedy Krieger can help.

To learn more about what we offer, please take a look at the back of this publication for a full listing of our programs and departments.

For patient referrals, call our toll-free referral line at 888-554-2080.

Sincerely, Gary W. Goldstein, MD

Every child is born with great potential.

Shouldn’t every child have the chance to achieve it?

Referring Patients

To support the needs of physicians and health professionals, our care management team is available to identify and provide information on appropriate clinical programs, handle referrals, obtain consultations with Institute physicians, and schedule appointments for patients.

Call 443-923-9403 to reach our Physician Referral Line or visit www.referrals.kennedykrieger.org for information and resources for physicians and healthecare professionals. For general information, call toll-free at 1-888-554-2080.

Keep reading for more information: • Institute opens pediatric sports concussion clinic • Program provides education, evaluation, and support for struggling students • Neuropsychological evaluations for deaf and hard-of-hearing patients • Research study opportunities for patients and their families • Access resources for developmental disabilityrelated services • Upcoming professional events • Complete listing of programs, clinics, and services Also, see our enclosed Overview of Programs and Services for more details about what Kennedy Krieger has to offer.

Program News and Updates

Occupational Therapy

Learning Disorders

Pediatric Seating Clinic

EducationAL Evaluation

Clinic provides improved mobility and independence

Education program provides evaluation and support for struggling students The Center for Development and Learning provides learning disorder evaluations for children and young adults. These evaluations provide a diagnosis, determine appropriate interventions, and monitor the progress of students in kindergarten through grade 12 who are experiencing academic delays and struggles. We also offer evaluations for young adults who are considering or attending college or post-secondary educational institutions. Our comprehensive evaluations include: • Findings and interpretation • Recommendations for appropriate accommodations • Referrals • Academic resources Additionally, the clinic offers consultations for parents and caregivers seeking advice or sug-gestions about school placement or IEP issues.

Children who struggle to move need more than just a standard wheelchair: They may need specialized mobility equipment.

The Seating Clinic at Kennedy Krieger helps people with special needs find seating systems to optimize their mobility while ensuring safe and effective positioning. Our specialists are experts in determining which solutions best meet the needs of our patients. We also provide specialized evaluations for complex medical equipment including: • Adaptive strollers • Custom manual • In-home positioning chairs wheelchairs • Gait trainers • Wheelchair seating • Walkers components • Recreational mobility • Bathing equipment equipment • Toileting equipment During an initial evaluation, therapists work with the family and rehabilitation equipment specialists to determine the most appropriate seating and mobility equipment.

The Seating Clinic sees both existing Kennedy Krieger patients as well as individuals coming from outside the Institute who wish to just use the clinic’s services. We also offer a seating clinic specifically for patients with spinal cord injuries.

Neurorehabilitation

Sports Concussion Clinic New clinic addresses pediatric brain concussions Built on the expertise of Kennedy Krieger’s nationally recognized brain injury program, the Institute recently launched a Sports Neurorehabiltiation Concussion Clinic. Intended to address the needs of patients with mild traumatic brain injuries (concussion) who do not need intensive rehabilitation, the clinic treats children and adolescents, between ages 5 and 18 years. By quickly evaluating children soon after a concussion, we strive to help them return to daily activities, such as school and athletics, as soon as possible. We also offer training and support for families trying to help their children return to normal activities.

Our approach and services include: • Diagnosing concussions • Evaluating physical and cognitive symptoms • Developing a treatment plan

• Providing follow-up care • Determining when athletes can safely resume play

Neuropsychology

Community

Providing Resources for Patients and Families

Evaluation Services for the Deaf and Hard of Hearing Kennedy Krieger provides comprehensive neuropsychological evaluations and consultations to deaf and hard-of-hearing children, their physicians, families, schools, and other agencies. Our Deafness Related Evaluations clinic is staffed by a team that includes three psychologists and neuropsychologists who are fluent in American Sign Language.

Based in our neuropsychology department, this clinic is one of the country’s largest and most specialized programs for assessing children who are deaf or hard of hearing.

The Resource Finder at Kennedy Krieger is a free service that connects people with needs related to developmental disabilities and related disorders to government and community resources. Geared toward our Maryland clients, Resource Finder offers a comprehensive listing of developmental disabilityrelated services and providers using a database to identify professional services (such as physical therapy, occupational therapy, psychology, speech language pathology, etc), durable medical equipment providers, tutors, child care resources, specialists, and more.

Visit www.resourcefinder.kennedykrieger.org.

Research Studies

Help Your Patients and Families Learn About Research Study Opportunities Kennedy Krieger’s scientists and researchers are leaders in the worldwide effort to prevent and treat disorders of the brain, spinal cord, and musculoskeletal system. Through the years, our work has yielded answers that have revolutionized patient care.

Our research studies include the following fields: • Autism spectrum disorders • Behavioral disorders • Bioinformatics • Genetics • Learning disabilities • Metabolism • Molecular neuroscience • Musculoskeletal system • Neurocognitive disorders • Neuroimaging • Neuropsychology • Rehabilitation • Spinal cord injury and paralysis • Sturge-Weber syndrome

Professional Events & Training

Professional Training Series Center for Autism and Related Disorders “Advanced Training in Sensory Systems: Translating Evidence into Practice” Sept. 29 3901 Greenspring Ave. Baltimore, Md. 21211 Register at www.sensorytraining2.kennedykrieger.org.

11th Annual Autism Conference Center for Autism and Related Disorders “Autism Through the Lifespan” Oct. 20 and 21 Crowne Plaza Hotel Timonium, Md. 21093 Register at www.autismconference.kennedykrieger.org.

To find a full listing of Kennedy Krieger events, visit www.professionalevents.kennedykrieger.org.

To learn more about our research and training initiatives and recruiting studies, visit www.kennedykrieger.org/research.

For more information, visit www.kennedykrieger.org or call 888-554-2080.

NON-PROFIT U.S. POSTAGE

PAID

PERMIT #7157

707 North Broadway Baltimore, Maryland 21205

BALTIMORE MD

Patient Care Programs & Services Inpatient Pediatric Units Feeding Disorders Unit Neurobehavioral Unit (NBU) Rehabilitation Unit—Brain Injury, Pain Management, Post-orthopedic Surgery, and Spinal Cord Injury Outpatient Centers, Programs, and Services International Adoption Clinic Albright Clinic Aquatic Therapy Program Assistive Technology Clinic Ataxia Telangiectasia Clinic Audiology Clinic Center for Autism and Related Disorders Behavior Management Clinic Bone Disorders Program Botulinum Toxin Treatment Program Brachial Plexus Clinic Brain Injury Program Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine Child and Family Support Program Child and Family Therapy Clinic Community Rehabilitation Program Constraint-Induced and Bimanual Therapy Program Cranial Cervical Clinic Center for Development and Learning Developmental Cognitive Neurology Clinic Pediatric Developmental Disorders Clinic Down Syndrome Clinic Environmental Health Clinic Family Center Pediatric Feeding Disorders Program Fetal Alcohol Spectrum Disorders Program Focused Interdisciplinary Therapy Program Fragile X Clinic Healthy Lifestyles Therapy Program Center for Holoprosencephaly and Related Malformations Intrathecal Baclofen Program

Limb Difference Clinic Movement Disorders Program Center for Genetic Muscle Disorders Neurobehavioral Outpatient Program Neurogenetics Clinic Neurology and Developmental Medicine Program Neurology Clinic Clinical Neurophysiology Clinic Clinical Neurophysiology Laboratory Neuropsychology and Developmental Psychology Clinic NICU Follow-up Clinic Nutrition Clinic Occupational Therapy Clinic Orthopedic Clinic Osteogenesis Imperfecta Clinic Pediatric Pain Management Clinic Physical Therapy Clinic Psychiatry Clinic Pediatric Psychology and Consultation Clinic Pediatric Rehabilitation Clinic Seating Clinic Sleep Disorders Clinic and Laboratory Social Work Outpatient Mental Health Clinic Specialized Transition Program (STP) Speech and Language Clinic Philip A. Keelty Center for Spina Bifida and Related Conditions International Center for Spinal Cord Injury Sports Neurorehabilitation Concussion Clinic Hunter Nelson Sturge-Weber Center Continuums of Care Continuums allow patients to be seen through all phases of treatment, including 24-hour inpatient programs, day treatment, home- and community-based services, and outpatient programs.

They include Pediatric Feeding Disorders, Neurobehavioral Disorders, and Pediatric Rehabilitation (brain injury, pain management, post-orthopedic surgery, spinal cord injury).

Need additional information or can’t find what you’re looking for? For a complete and current listing of all diagnoses, disorders, programs, and services, visit www.kennedykrieger.org.