
1 minute read
Meet the children
A busy day We’ve been overjoyed to open up our hospices, welcoming children and families again. Addy kicked off her hospice session with an indoor snowball fight! Addy, who has Batten’s disease, was feeling tired when she arrived. But after Nurse Mandi helped her tolerate two feeds, Addy enjoyed sensory play with Playmaker Lisa and a foot massage with Complementary Therapist Emma. The five-year-old also baked gingerbread men, played in the den and drove our toy Tesla. Meanwhile, Mum and Dad were able to take a welldeserved rest and spend time with Addy’s brother, Samuel.

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Best friends Sophie and Ava became great friends making slime and playing pranks together when they were at the hospice. They were looking forward to getting together again, but unfortunately Sophie wasn’t able to come out to play as she’d come down with a cold. So, the care team packed up a bag of all the activities they were going to do together and dropped it around to poorly Sophie, so she could join in with Ava on Zoom. The girls made gingerbread houses, chocolate truffles and slime and were just so happy to be able to get together virtually.
On the go There’s never a dull moment with fourteen-year-old Ella, who has Sanfilippo syndrome which means her brain and nervous system are gradually deteriorating. Whether it’s baking, crafting or going out for walks, Ella loves joining in and will occasionally give nurse Celia direct eye contact and a lovely smile. “It’s great for Ella to socialise and have some sensory time,” says Ella’s mum, Sally. “It gives me a chance for a break too, walking the dog or spending time with friends. Julia’s House is like our family and I don’t know how we would have managed without them during the pandemic.”

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