Are you the missing piece of the puzzle that can help shape their care?

✃

Yes, I’d like to help our local children Here is my gift of: £10

£20

£52

Other £

you k n a h T

for making this vital care accessible to every local family who needs us. The demand for our service is growing and they are relying on your support more than ever before.

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Leanne (Johnathon’s mum)

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Please return your donation form in an envelope to: FREEPOST Julia’s House (No stamp or further address required) Or donate online at juliashouse.org/together

This is how your donation could help

£10

could provide a specialist therapy toy for a child who finds communication challenging

£20 could provide 30 minutes of sensory play to help a child’s development

£52

could pay for an hour of emergency care to help and comfort a desperate family

Julia’s House Head Office Ground Floor, Allenview House, Hanham Rd, Wimborne, BH21 1AS | 01202 644220

Are you the missing piece of the puzzle that can help shape their care?

(The Wiltshire Julia’s House Hospice building is in Devizes)

Registered Charity No. 1067125

juliashouse.org/together

Registered Charity No. 1067125

Together We Care Appeal

Dear Neighbour, r

se

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il

This is why I am writing to you today. As a nurse for Julia’s House, I would like to introduce you to some of these children who live on your doorstep and I’d like to let you know how you can help them if we all join together.

Your missing piece of the puzzle will help shape the future of their care and together we can make a real difference.

Thank you and best wishes,

Neil

Julia’s House Nurse Julia’s House Senior Team Nurse

Thank you

Ted doesn’t get invited to parties or go to other people’s houses like his siblings do. When he goes to the hospice, it’s like his own special place, which is huge for a 12-year-old boy – to actually have somewhere to belong. Our nurses and carers know Ted’s got a character and how to entertain him. He gives the biggest smiles!

COMFORT TOGETHER Aurelia and Aurora

Isla-Rae

With no other regular support network around them, Mum, Lucy, says Julia’s House nurses and carers are like a trusted friend at the end of the phone. Our care is life-changing for them.

When Isla-Rae and her twin sister were born very early both girls needed to be resuscitated. It looked like little Isla wasn’t going to make it - she had severe brain damage.

LISTEN TOGETHER

Before their first birthday, Isla’s lungs collapsed and now she needs oxygen at home. She also has dystonia which makes her muscles go really tense.

Isabella is a sassy, loud and sociable little girl who likes to go shopping and get her nails done. She was born with chronic lung disease and is attached to oxygen day and night to help her breathe. Her ventilator alarm will sound loudly if ever anything goes wrong. It’s scary for Mum when that happens.

Life is extremely difficult for parents Lucy and Nik having two children with cerebral palsy. They can easily end up feeling quite down and exhausted.

‘I get anxious about leaving Isla and trusting people… but with Julia’s House, I know she’s in safe hands and I can relax.” Mum, Lucy

When Aurelia and Aurora’s parents, Tom and Lucy, first found out they were expecting twins, they were elated, but they were born with the same rare heart condition as their mother. Neither of them were breathing when they were born and were not expected to reach 30 days old.

Even now doctors say the girls are living on borrowed time. They are very fragile and tire easily but they are still here fighting! They’re complete characters and love to do everything together. It has been a tough, exhausting and emotional journey so far for the family.

BREATHE TOGETHER

But this is all thanks to people like you. With only 8% Government funding, we rely almost entirely on the generosity of the local community to raise the £1.5m needed each year to make our vital service possible in Wiltshire. Can you help us today with a donation so that we can continue to offer this lifeline for families who are local to you?

BELONG TOGETHER Ted was born with an incredibly rare and terminal condition called Aromatic Amino Acid Decarboxylase Deficiency, which is like a childhood Parkinson’s disease. He’s one of five children in the UK to have it and he needs an incredible amount of care.

But Johnathon needs a lot of complex care, which can only be given by someone who is trained to care for him.

When I visit Johnathon at his home it’s the only rest his family gets. He loves our activities of messy play and baking. He’s cheeky and fun, playing pranks on us when he thinks we’re not looking!

You see, Julia’s House children’s hospice has the only hospice building in Wiltshire, although our vital service spreads much further than this, offering a helping hand to these families, wherever and whenever they need it the most. We’re there for the whole family not just for holidays, but every day and in an emergency - at the hospice, out in the community or in their home. They will depend on our special care when the unthinkable happens at the end of their child’s life and through the unbearable years that follow.

We understand that many are facing financial challenges right now, however, any gift you are able to give will make a huge difference to so many lives. You can either return the attached form or donate online at juliashouse.org/together.

Ted

Johnathon has CHARGE syndrome.

He was born with his tummy connected to his lungs and doctors said he was unlikely to ever make it home. After a lot of time in hospital and years of heart surgery it’s wonderful that, 12 years on, Johnathon is still here today - with his family.

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There are children living in the heart of your community right now who are seriously ill and their families are struggling to cope. When there is a child who will not get better, the whole family feels the strain of their complex care and support is vital for getting through each difficult day.

PLAY TOGETHER

Johnathon

Isabella doesn’t eat or drink - she has her water and milk through a tube attached to her tummy. Life can be quite isolating for her family because it’s difficult to leave the house with all of Isabella’s heavy oxygen equipment.

Isabella

The only break mum, Erica, ever gets is when our nurses and carers visit and it’s a relief for her to have another adult to talk to.