COMMUNITY EVENTS AND RESOURCES

WHAT IS THE JOIN US REGISTER?

Our life-saving research wouldn't be possible without the valuable contributions of research participants.

We' ve partnered with JoinUsRegister to encourage more Australians to sign up to be matched with medical & health research. Learn more & register at https://www.joinus.org.au/ 02

R U OK? DAY (THURSDAY 8 SEPTEMBER)

You don’t need to be an expert to have an R U OK? conversation. Listening and giving someone your time might be just what they need to help them through. Ask R U OK? No qualifications needed. Your genuine support can make a difference. Learn more at ruok.org.au

THE 2ND AUSTRALIAN SICKLE CELL SCIENTIFIC CONFERENCE: 10TH SEPTEMBER 2022

The conference focuses upon increased awareness among all stakeholders about the disease, and data collection for national surveillance database.

Wesley Conference Center 220 Pitt St, Sydney Register Here 04

FREE WEBINAR ON HOW TO PREPARE FOR YOUR NEXT STRATEGIC PLAN: 2 SEPTEMBER 2022

A strategic plan for a non profit organisation can be like a treasure map of hope – helping you to keep focus on what you want to achieve in the future. It helps you to take stock of where your organisation is now, what you have done well, and the new things you have learnt that work to keep your organisation moving toward your goals. This live and interactive session will help you to prepare for your planning process and create a framework for your next strategic plan. Register Here

The Health Technology Assessment (HTA) Consumer Consultative Committee (CCC) is hosting a symposium titled “Conversations for Change” for health consumers and health consumer and patient organisations with an interest in HTA. This free, virtual event will be held: Tuesday 18 October: 1.30pm –5.30pm (AEST), and Wednesday 19 October: 10.30am – 2.30pm (AEST) If you would like to be added to the mailing list for this event, please email HTAconsumerengagement@health.gov.au

Rare Connect is helping individuals that are looking for others living with the same rare disease that have posted their call in the General Discussion community or asked us to help in finding others. Generally, these are ultra-rare diseases and/or there's no support group for them that we know of (pictured below). If you have any information or know others affected by these conditions, please let them know here.

FAMILY ENGAGEMENT IN RESEARCH COURSE

Healthy Trajectories, our campus Child and Youth Disability Research Hub, has partnered with CanChild, Kids Brain Health Network and McMaster University to deliver their Continuing Education Family Engagement in Research (FER) Course. The course runs from September 19th – November 27th, with four live online sessions on either Wednesdays or Thursdays from 9:30-11:30am (AEST). Apply for the course here. For further information about the course content, please email: fer@mcmaster.ca