Inclusive Indy 2020

THE

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Indy’s Child

ON IEPs

fun for

A SUMMER CAMP

where to find inclusive experiences in Indy

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FOR EVERY CHILD

ALL!

CONTENTS 20

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22 departments

features

IN EVERY ISSUE

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When the Caregiver Needs TLC

10

Maddox's Mission

12

Turning a Minus into a Plus

16

IEP 101

20

Summer Camps for Every Child

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Let's Talk!

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Sensory-Friendly & Inclusive Experiences

06 Letter from the Editor 08 Say Cheese! Special Snapshots

SPONSORED CONTENT

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INvestABLE Indiana

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Inclusive Activities for All

Giving Hoosiers with disabilities the ability to save

All are welcome at Carmel Clay Parks & Recreation.

Inclusive Indy Premier Issue

Tips for taking care of yourself as a parent of a child with special needs.

Meet Maddox O'Connor, our cover kid with a big heart and a mission for helping people.

A Q&A with Jared Hiner, the dad behind Kammy's Kause, the world's largest fundraiser supporting 4p-.

Learn the ins and outs of an Individulaized Education Program (IEP).

You'll find inclusive day and overnight camps all over Indiana.

How to talk to typically developing kids about kids with special needs.

LETTER FROM THE EDITOR

WORDS BY NICOLE SIPE

Publisher Mary Wynne Cox mary@indyschild.com

Marketing + Sales Development Trisha Brand trisha@indyschild.com

Editor Nicole Sipe nicolesipe@indyschild.com

Production Manager Karen Ring karen@indyschild..com

There’s Room for Everyone at the Table What does being inclusive mean to you? If we go by the definition that’s listed in the Merriam-Webster dictionary, being inclusive means “including everyone, especially allowing and accommodating people who have historically been excluded.” I think that sounds right, but I like this description that I read online, too: “To be inclusive means everyone has a place at the table.

No one is excluded, marginalized or left out. Everyone has something to offer.”

movie theatre where talking, dancing and making noise is encouraged. You can play with your kiddo at a playground that is specifically designed with children of all abilities in mind. It’s uplifting to see these kinds of examples of inclusiveness happening all around us in Indy.

Our aim with Inclusive Indy is to be one more voice in our city that is embracing this positive force for good. We want to be a resource and cheerleader for families with special needs, and we hope that you join us at our table, where there is room for everyone.

One of the great things about Indianapolis is that more businesses, communities and individuals are coming together to embrace inclusivity — especially with regard to people who have special needs. You can access fidget tools and weighted blankets at Indianapolis Colts games. You can take your child to watch a sensory-friendly film at a local

EDITOR

Inclusive Indy Premier Issue

Digital Publisher + Events Wendy Hasser wendy@indyschild.com

Business Development Brooke Litherland brooke@indyschild.com

Editorial + Audience Development Tessa Judge tessa@indyschild.com

Billing billing@indyschild.com

Contributing Writers Jane Hornett, Maggie Loiselle, Steffy McCourt, Jennifer Thompson

Calendar of Events calendar@indyschild.com

NICOLESIPE@INDYSCHILD.COM

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Creative Director Katie Clark katie@indyschild.com

Indy Grands is published yearly. Copyright 2019 by Midwest Parenting Publications, LLC. All rights reserved.

Reproduction without permission is strictly prohibited.

Distribution of this magazine does not constitute an endorsement of products, commentary or services herein.

IN EVERY ISSUE

say cheese!

SPECIAL SNAPSHOTS We asked for photos of Indy Kids for our debut issue of Inclusive Indy, and our inbox was full of beautiful, smiling kiddos of all abilities!

Here are just a few of the photos that warmed our hearts.

Maddox (7)

Hannah (19) Paisley (4)

Trenin and Kaiden (both 3.5)

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Inclusive Indy Premier Issue

Ethan (10)

Addy (10)

WORDS BY JENNIFER THOMPSON

when the Caregiver Needs TLC Tips for taking care of yourself as a parent of a child with special needs.

Hoffman has learned that “having a sound mind, body and spirit helps keep me sane,” she says. “I’m certainly a work in progress, but I’m finally figuring it out.”

As parents, we learn early on that self-care is important. We hear things like, “Sleep when they sleep” and “Rest — the laundry will still be there.” But the question is: how? How does a busy parent make time for self-care when being pulled in so many directions?

Carving out time for yourself will ultimately benefit your entire family. If it doesn’t seem possible, start small, even if it’s retreating to a quiet place for just 20 minutes a day.

Westfield resident Jenna Hoffman discovered that her youngest daughter, Londyn, had special needs when she was not hitting milestones. At age one and a half, Londyn learned to army crawl and didn’t begin walking independently until her third birthday. Despite undergoing multiple genetic tests, Hoffman still has no answers.

While the specialist is convinced that Londyn has a rare genetic condition, they are still unsure as to what it is. Because of this, Hoffman calls her their special unicorn.

Over time, Hoffman has learned the importance of taking time to recharge her batteries. But it hasn’t always been easy.

“You have to find time for you,” Hoffman says. “If it’s waking up at 5 a.m. just to have an hour to yourself with your warm cup of coffee in hand — and yes, drink it all while sitting — or time to get to the gym, read a book, write in your journal or whatever it may be, you need that time because once the day starts, mommin’ doesn’t stop for 12 hours, minimum.”

There is a reason why we are instructed by flight attendants to put on our own oxygen masks before assisting dependents with their own. We can’t take care of others unless we are properly taking care of ourselves. For parents who are overwhelmed with life’s many demands, this can be particularly challenging. Like many, it took Hoffman some time before she fully realized the necessity of self-care.

“Prior to this realization, I was worn out with no energy or focus, my patience was low, and my back would get sore from carrying Londyn around,” Hoffman says.

“With multiple weekly appointments and the other kids’ sporting activities, it seems like we're always on the go. During specialist appointments, you really need to be alert to ask all the questions you need, as well as be able to soak in everything they tell you.”

Make a list of things you love to do, and try to block off time in your schedule to do those things. As the saying goes, “If mama ain’t happy, ain’t nobody happy.” The better you feel, the more you will be able to pour into your loved ones. It is important for your family to see what self-care looks like. Caring for yourself sets a good example for your family and teaches them the importance of self-care early on in life.

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MADDOX’S MISSION MEET MADDOX O’CONNOR, OUR COVER KID WITH A BIG HEART AND A MISSION FOR HELPING PEOPLE. WORDS BY STEFFY MCCOURT

Maddox O’Connor’s ability to read at the age of 6 coincided with being able to decipher a man’s sign that he saw while on his way to an appointment at Riley Children’s Hospital in Indianapolis.

The man’s sign was simple: Homeless.

“Mom, I didn’t eat my Nutella sandwich. Can I give it to him?”

Maddox asked his mom.

He takes 30 medications every day. And he wears supplemental oxygen, so he can’t be as carefree as a typical child.”

All of this was nothing that Maddox ever asked for. Which is why he implored his mother to stop her car when he read the man’s sign: Homeless.

“I understand what they feel,” Maddox said.

“How?” asked his mother.

Shawn O’Connor, Maddox’s mom, pulled over.

Maddox is now 9 years old and lives with his family in Fishers. With bright blue eyes and a mop of blonde hair, Maddox likes baseball and his PlayStation. He loves Jesus and church camp. When he grows up, he wants to be an astronaut. He also has a form of Muscular Dystrophy called Mitochondrial Disease.

The Muscular Dystrophy Association describes Mitochondrial Diseases as “diseases (that) affect the mitochondria — tiny energy factories inside almost all our cells.” The disease causes muscular and neurological problems, including muscle weakness, seizures, hearing loss, and trouble with balance and coordination, among other symptoms.

Maddox began visiting Riley Children’s Hospital when he was 8 weeks old. He was diagnosed when he was 2 years old.

“His life is very different in a lot of ways,” says Shawn, Maddox’s mom.

“Basic everyday things like eating, walking, exerting energy in any way — even breathing — are more difficult for him. He can only go to school part time. He’s hooked up to a feeding pump 17 hours per day.

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“I know what it’s like living in a world I never asked to live in.”

When Maddox delivered his first sandwich, his reason was simple: He wanted the man to feel happy. Then, Maddox started to bring an extra lunch each time he went to Riley Children’s Hospital. For weeks, Maddox fed the same man lunch. Then, more people started showing up. Maddox noticed that they were sharing that one lunch.

He told his mom they needed to make more. She asked him how many more lunches. Enthusiastically, he told her “a million.”

“How about 300 every three months?” she asked.

“I will get back to you,” Maddox replied.

Three days later …

“God said I will get enough for 500 bags, so that’s how many we have to do,” Maddox told his mom.

“Okay, buddy. This is your faith, so we will go with whatever you and God decide,” she replied.

PHOTO CREDITS HPK CREATIVE ARTS

Maddox began collecting items for these bags through an Amazon Wishlist on his Facebook Page, Maddox’s Mission. He decided to call the bags Blessing Bags.

“He talks to them like they have been life-long friends,” Shawn says.

“They just need love,” Maddox says.

Besides becoming an astronaut, Maddox also wants to open a homeless hotel when he grows up.

He does not want people who are experiencing homelessness to “worry about food or being loved,” Maddox says.

“I put stuff they need in them,” Maddox says. “Like toothpaste and soap and food. I also put a note in all of them to tell them that they are loved and important. So, they remember even when I’m gone — they are not alone.”

Maddox’s notes are carefully written on colorful pieces of construction paper. They say things like “Your life matters,” “You are loved by Jesus and Maddox’s Mission,” “Hey! You matter in this world! Love Maddox’s Mission.”

Maddox passes out the Blessing Bags when he visits Riley Children’s Hospital one to three times each week. Just like he told his mom he would, he distributes

500 bags every three months. He has also started to collect clothing, coats and blankets. He passes these out at homeless camps a few times each month.

“The Blessing Bags mean so much to our entire family,” Shawn says.

“Maddox loves doing it, because it helps him show that Mito doesn’t win. That despite his situation, he can still do good things for other people. And he loves the relationships that he makes.”

At first, Maddox’s interactions were brief. He would hand over the bags through the window of the car. They would have a brief conversation, and then Maddox would head on to Riley. As he continued his mission, however, he asked his mom to get out of the car. He wanted to talk to the people to whom he was giving the Blessing Bags.

“Maddox has taught me more in his 9 years than I could ever have taught him in a lifetime,” Shawn says. “It’s inspiring to see this little person who has every right to be angry, sad or upset, but instead he wakes up every morning with a smile on his face, ready to be a better person than he was the day before. He is the epitome of strength, determination and faith.

He shows me daily, in a world where so many bad things happen, that it’s possible for even the smallest person to be a light.”

Inclusive Indy

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WORDS BY NICOLE SIPE

turning a Minus

into a Plus

A Q&A with Jared Hiner, the dad behind Kammy’s Kause, the world’s largest fundraiser supporting 4p-.

Kamdyn “Kammy” Hiner was born with 4p-, also known as Wolf-Hirschhorn Syndrome.

When Kammy was born, there was very little known about this extremely rare disorder, and so Kammy’s dad, Jared Hiner, leaned on the support that he found in the hundred or so families that belonged to the 4p- Support Group (4p-supportgroup.org).

Kam didn’t walk until she was 6 years old, but she has always been verbal. It can be hard for others to understand her sometimes, but knowing her makes it a little easier to understand her. She’s an 18-year-old girl, so her sarcasm and attitude are super heavy!

Shortly after Kammy’s first birthday, Jared, a musician, decided to create a music festival — Kammy’s Kause — in his hometown of Fortville, with all proceeds going directly to the support group that meant so much to him and his family.

When Kam was born, the doctors didn’t know much about the disorder.

We were given a page’s worth of information at the hospital. They told us, after she was born, that she probably wouldn’t live to be a year old, and that if she did, there was a good chance that she would be devoid of any personality, and that she wouldn’t be able to walk or talk or feed herself.

Now in its 17th year, Kammy’s Kause is an all-day music festival with 14 local bands, Kammy’s Ride (a 100-mile escorted motorcycle ride), a kidzone, food trucks and more. We wanted to learn more about the people behind the festival, so we talked to Jared about his life as a dad of a child with special needs, and about Kammy, the inspiration for it all.

I imagine that not many people know about 4p-.

Can you tell us about it and the kinds of challenges that Kammy faces?

With 4p-, there are physical and mental delays. It’s a pretty broad spectrum when it comes to the kids’ abilities.

Some can walk and carry on conversations, and others are in a wheelchair and require around-the-clock care.

That’s one of the challenges to a diagnosis of 4p-. You really don’t know where your child may land on that spectrum.

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What did the early days of the diagnosis look like?

Through reaching out and talking to the families in the 4p- Support Group, we started to realize that some of their kids were 8, 9 years old — some in their teens and 20s. We quickly realized that the medical field didn’t have all the answers, and that we shouldn’t weigh ourselves down with the negative aspects of the syndrome.

She loves going anywhere where she can socialize. We are constantly out and about. I’m extremely blessed that with Kam, she wants to go out and say hi to everyone.

Tell us more about Kammy! What kinds of things does she like?

Just to be real, there are days that absolutely suck. There are days that just rip your entire heart out. There are days when you want to question the universe because you are wondering why your kid has to go through this battle. But then there are days when your kid takes her first step — that’s a day you waited six years for. Or the day when she says her first word, which we didn’t know whether she would ever speak. Being a parent of a child with special needs, or a parent of an atypical child, those milestones seem to make everything else disappear.

Kammy has the biggest personality.

She’s a very positive influence on most around her. She lights up a room.

She’s always laughing and smiling and wanting to show people things by taking them by the hand. She loves to be around people, especially if there are little kids and babies around.

Do you have any parting words for parents with kids with special needs?

For all the parents out there: Continue to be strong, even though the days are tough. Continue to be the light that your child needs. Always believe in them and always push them to do more.

Kammy’s Kause takes place on Saturday, July 18 at Landmark Park in Fortville.

For more information or to make a donation, visit kammyskause.org.

PHOTO CREDIT HPK CREATIVE ARTS

Inclusive Indy

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SPONSORED CONTENT

INvestABLE Indiana:

Giving Hoosiers with disabilities the ability to save Individuals with disabilities encounter barriers and challenges that many others don’t. As a result of the Achieving a Better Life Experience (ABLE) Act of 2014, states can now create savings programs for individuals with disabilities, giving Hoosiers with disabilities the chance to open savings and investment accounts without affecting eligibility for assistance programs, such as Medicaid or SSI. The funds in these accounts can be used to pay for qualified disability expenses.

INvestABLE Indiana has set out to knock down financial barriers for individuals with disabilities, opening the door to financial stability and freedom.

INvestABLE Benefits Plans through INvestABLE are beneficial on many fronts. From tax advantages to ease of use and everything in between, INvestABLE is committed to ensuring that all qualifying individuals get the most out of their dollars. Benefits include, but are not limited to: · Special tax advantages.

Earnings on investments on federally tax-deferred and withdrawals from accounts are federally tax-free when used for qualified disability expenses.

· No impact on current benefits.

You will continue to be eligible for Medicaid, no matter your account balance, plus balances under $100,000 are excluded from the SSI resource limit.

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· Legal fees · Financial management · Employment training and support · Assistive technology · Personal support services

· User-friendly.

INvestABLE accounts can be opened with as little as $25 and can be accessed by phone or online through a PC, tablet, or phone.

PLUS, the Ugift® feature lets anyone contribute money to your account.

Qualifications Now come the big questions: Do I qualify? What counts as a qualified disability expense? INvestABLE spells it out simply.

You can open an account for yourself or an authorized person can open an account on your behalf if: · Your disability was present before the age of 26, and · You experience blindness as determined by the Social Security Act, or you are entitled to receive SSI or SSDI benefits or have a similarly severe disability with a written diagnosis from a licensed physician.

Qualified disability expenses include, but are not limited to: · Education · Health and wellness · Housing

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· Transportation

confident in their choices. Offering a wide range of investment and savings options for every goal and comfort level, Hoosiers can breathe a little easier and trust in their financial security with INvestABLE.

· Funeral and burial expenses · Basic living expenses Please note that account withdrawals for non-qualified expenses will be taxed at the account owner’s tax rate and subject to a 10% federal tax penalty and applicable state taxes. If you’re unsure about whether your withdrawal qualifies or not, INvestABLE staff can answer any of your questions and help you make informed decisions.

For more information about INvestABLE Indiana (the "Member Plan"), call (888) 609-3457, or visit in.savewithable. com to obtain Plan Disclosure Documents, which include investment objectives, risks, charges, expenses, and other important information about the Member Plan. Please read and consider the Plan Disclosure Documents carefully before investing.

Big Picture The motivation behind the nation-wide ABLE Act and Indiana’s own INvestABLE is that folks with disabilities should be able to save as much as possible to be able to afford their daily and medical expenses, without losing access to any public assistance programs. INvestABLE understands that when all individuals are on the same financial playing field while maintaining access to quality care, our communities as a whole thrive.

INvestABLE also knows that the thought of saving and investing can be very intimidating. But with simple, easy-to-understand plans, individuals with disabilities can feel

Before investing in any ABLE program, you should consider whether your home state offers an ABLE program that provides its taxpayers with favorable state tax or other benefits that are only available through investment in the home state's ABLE program.

The Member Plan is sponsored by the state of Indiana and administered by Indiana ABLE Authority. The Member Plan is intended to be a qualified ABLE plan offered through the National ABLE Alliance. Ascensus College Savings Recordkeeping Services, LLC, the Program Manager, and its affiliates, have overall responsibility for the day-to-day operations, including investment advisory, recordkeeping and administrative services.

WORDS BY JANE HORNETT

IEP 101 Learn the ins and outs of an Individualized Education Program (IEP).

If your child needs special education, one of the things you will become very familiar with is your child’s IEP, or a written statement of the educational program that is designed to meet a child’s specific needs. Here is an overview about this vital document.

What is a teacher of record?

A teacher of record is the person responsible for overseeing your child's IEP, making sure that it is being implemented daily and that progress is being made for your child.

What is an IEP? An IEP is an Individualized Education Plan and is a legal document. The IEP is created by a specific team in your child's school, along with parents and anyone at the school's district level, such as the director of special education.

How long does an IEP last?

This document will be your child's IEP for their entire education, and if needed, through college.

Who qualifies for an IEP?

What is a case conference?

A child is eligible for an IEP if they are age 3 and older, and are diagnosed with a disability that impedes their learning. For children younger than 3, consider First Steps (in.gov/fssa/ddrs/ 4685.htm), an early intervention program that provides services to infants and toddlers who have developmental delays or disabilities.

This is your child's annual meeting to prepare for or review any changes to current goals, transitions and updates on services.

Services can include things like speech, occupational therapy, physical therapy and more.

What is the goal of an IEP?

The goal is to help set your child up for progress and success. You and your child’s team establish and review your child's goals and report on progress. It is the team and the school's legal responsibility to implement all goals within the IEP.

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What is a case conference committee?

This is your team that helps establish goals and progress in your IEP meetings. Oftentimes, this will consist of your child's main teacher, speech teacher, teacher of record, principal and anyone you request to attend your meeting.

When and why should I call an emergency case conference?

This conference is typically requested by the parent to the teacher or teacher of record at your child's school. This is typically requested when you believe that your child's school is not following the IEP or not making progress on their IEP goals. Parents can request this at any time. Typically, your school will respond quickly and a meeting is set up within the week.

Many parents use trained parent advocates so they can be more focused on discussing their child and truly understanding what is going on during the meeting. A trained parent advocate helps facilitate the conference meeting with focus on the child to update goals and request more progress updates.

9 IEP TIPS 1. Prioritize your child's needs and goals.

2. Bring medical reports.

3. Know your child's current academic level.

4. Talk to your child's teacher and teacher of record.

5. Review your child’s current IEP, if you have one.

What is a trained parent advocate, and why do I need one?

A trained parent advocate is someone who understands all areas of an IEP, understands the basic special education laws, and helps you facilitate your IEP meeting so that appropriate goals and progress can be made. If your child is exhibiting behaviors that are impacting their learning, a trained parent advocate often helps determine what additional evaluations or assessments can be done to understand the root cause of the behaviors.

6. Know who is attending your case conference.

7. Bring a trained parent advocate to the case conference.

8. Know what services are available, and be confident enough to ask.

9. Know that YOU are your child's best advocate. You are in charge and have the final approval with your committee.

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Inclusive Activities for All All are welcome at Carmel Clay Parks & Recreation.

As a parks and recreation organization, Carmel Clay Parks & Recreation is dedicated to the members of our community. That includes offering recreation opportunities — through our parks, facilities and programming — for everyone.

We deeply believe that ability and age don’t play a factor in anyone’s right to recreational opportunities. In fact, it’s one of our core values to “Include All.” In our organization, we do that through adaptive programming and modifications.

Every single program CCPR offers is inclusive — that’s right, every single one! That includes recreation programming, summer camps, half-day camps and extended school enrichment before- and after-school programming at Carmel’s 11 elementary schools. If you or your family member would like to participate in a program or use our facility but need a modification, let us know! We try to accommodate every request in order to make modifications to meet your needs.

What are Adaptive Programs and Who are They For? Every season, we offer dozens of adaptive programs ranging from sports to wellness to social events.

Adaptive programs are designed

to spend time with friends and develop social skills.

Adult Programs Adult programs are goal based and designed for individuals 18 years and older. The purpose of our adult programs, like Culinary Creations and the 5K Training Program, are to help participants set, work toward and meet a goal.

Adaptive Events specifically for individuals with disabilities. We offer programs for individuals ages 6 months and older.

Programming is available to everyone, not just residents of the City of Carmel and Clay Township.

How Have We Developed our Adaptive Programming?

CCPR employs a team of experienced Certified Recreational Therapists to develop and facilitate adaptive programs. Programming is broken into age-appropriate groups and based on developmental needs.

Here is the full breakdown:

Preschool Programs These programs are designed for ages 2 to 5. They largely focus on sensory development and

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exploration. Programs like Little Swimmers and Puddle Splashers encourage participants to explore the world around them through sensory exercises.

Youth Programs These skill-based programs are designed for ages 6-12. These programs, like Biking Basics and Youth Hoopers, help participants develop gross motor skills and the social skills they need to work with their peers.

Teen Programs These social and fitness-based programs are designed for ages 13-17. Programs like Muscle-Up teach exercise skills and confidence.

Social programs, like Bowling and Teen Night Out, are opportunities

Every season, we offer a variety of events for all ages and abilities, including sensory-friendly events.

Adaptive Open Swim in the winter allows individuals with disabilities and their families to enjoy our indoor activity pool free of distraction. In the fall, we offer sensory-friendly trick-or-treat. In the summer, we offer Adaptive Open Flow, where we open our FlowRider® surf simulator at The Waterpark just for individuals with disabilities and their families to enjoy. During these sensory-friendly events and programs, participants enjoy time together with family and friends in inclusive and relaxed spaces.

Learn more and register at carmelclayparks.com/programs/ adaptive.

PHOTO CREDIT

CARMEL CLAY PARKS & RECREATION

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Inclusive Indy Premier Issue

Inclusive Indy

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WORDS BY TESSA JUDGE

summer camps for Every Child

You’ll find inclusive day and overnight camps all over Indiana.

We firmly believe that every child should be able to experience the joys of summer camp, no matter what. The excitement, the memories, the friendship bracelets — no one should be left out for any reason.

Luckily, we have numerous opportunities right here in Indiana for kids with special needs to feel that pure joy that’s specific to the camp experience. Whether you’re looking for just a day camp or ready to send them off to an overnight camp, you’ve got options.

Please note that this list has been compiled as a resource for our community. Indy’s Child does not specifically endorse any of these camps.

With different camps throughout the summer meeting a variety of physical and cognitive disabilities — plus round-the-clock medical staff ready for anything — hundreds of kids are able to enjoy summer camp.

Easterseals Crossroads Camps Locations vary

Camp Millhouse 25600 Kelly Rd., South Bend campmillhouse.org 574-233-2202 Camp Millhouse works for a world in which people with special needs are able to live to their full potential. Serving campers of all ages and varying disabilities, this camp makes everyone feel valuable and capable.

Camp Gather on the Move

Camp Red Cedar

Rhodius Park, 1720 W. Wilkins St., Indianapolis

campredcedar.com

indy.gov/activity/indy-parks- day-camps 317-327-7275 Hosted by Indy Parks & Recreation, this camp provides therapeutic recreation for teens ages 14-18 with physical and/or intellectual disabilities. Activities are designed to help kids become more self-sufficient in their daily living while also having fun.

3900 Hursh Rd., Fort Wayne 260-637-3608 With 57 acres of land, plus a 10-acre lake with sandy beaches, Camp Red Cedar allows kids and adults of all abilities to break down barriers through recreational activities, outdoor education, interaction with horses, and much more.

Camp Riley at Bradford Woods 5040 State Road 67 N., Martinsville bradwoods.org/campriley 765-349-5121

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eastersealscrossroads.org 317-466-1000 Easterseals offers several options for fun, educational and accommodating camps throughout the summer, designed to promote and maintain the skills learned during the school year.

Jameson Camp 2001 Bridgeport Rd., Indianapolis jamesoncamp.org 317-241-2661 Located on 130 acres of land, Jameson Camp specializes in serving kids with emotional and social challenges, including autism, obsessive compulsive disorder and ADHD. It’s also the only camp in Indiana that offers a special camp session for kids affected by HIV/ AIDS.

SpringHill Camps 2221 W. State Road 258, Seymour springhillexperiences.com/ inclusion 812-497-0008

Hoosier Burn Camp 12635 W. Tecumseh Bend Rd., Brookston hoosierburncamp.org 765-567-0115 Hosted at Camp Tecumseh, Hoosier Burn Camp provides a week-long camp experience for burn survivors. Activities are designed to let kids have fun while addressing the social and emotional impacts of burn injuries.

Campers bond and build lifelong friendships over their shared experiences as well as traditional camp activities.

While not explicitly a special needs program, parents can work with an Inclusion Coordinator to find the right care for their child. Providing everything from special housing and transportation to one-on-one support, kids with disabilities can still enjoy everything the camp has to offer.

While we wish we could list in detail every single camp catering to special needs in Indiana, we simply don’t have the space! Check out this list for even more camps to find the right one for your family.

CENTRAL INDIANA

NORTHERN INDIANA

Camp Can Do

Camp REYOAD

300 E. Main St., Whiteland

8531 E. Epworth Forest Rd., North Webster

jcasg.com/camp-can-do 317-676-4222 For teens with autism spectrum disorders

Camp Create U at Outside the Box, Inc. 3940 E. 56th St., Indianapolis otbonline.org/programs/summercamps | 317-253-6658 For kids with (and without) developmental disabilities

Camp Delafield 8140 Union Chapel Rd., Indianapolis diin.org/camp-delafield 317-222-6635

impact2818.org/camps 888-628-2818 For individuals ages 16+ with intellectual disabilities

Summer Purdue (SuPur) Friends Camp Lyles-Porter Hall, Purdue University, West Lafayette web.ics.purdue.edu 765-496-0204 For kids ages 9-12 with autism spectrum disorders

SOUTHERN INDIANA Camp Yes And

For kids ages 7-12 with learning disabilities

900 E. 7th St., Bloomington

Embracing Abilities Summer Camp

For teens with autism (verbal)

6734 E. US Hwy 36, Avon

Reach High Summer Camp

embracingabilities.com/summercamp | 317-825-8326 For kids with developmental disabilities

Noble Summer Day Camps Various locations mynoblelife.org/services/ youth-services/day-camps 317-254-6621 For kids, teens and young adults with (and without) developmental disabilities

Unlocking the Spectrum Summer Camp

yesand.indiana.edu 812-855-6508

2101 W Tapp Road, Bloomington reachhighconsulting.org 812-330-4460 For individuals ages 2-18 with autism spectrum disorders

Summer @ CIP Indiana University Bloomington Campus cipworldwide.org/summer/ summer-program-locations 877-566-9247 For teens and young adults with high-functioning autism, learning disorders and more

8646 Guion Rd., Indianapolis unlockingthespectrum.com 317-334-7331 For kids with autism spectrum disorders Inclusive Indy

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WORDS BY MAGGIE LOISELLE

Let's Talk!

How to talk to typically developing kids about kids with special needs.

For parents, there are few situations that can cause such a sweat-inducing jumble of emotions — from embarrassment and frustration to oh-crap-I-forget-how-toexplain-this-right — than when your child stares (or, worse, points) and loudly asks, “Mommy, what’s wrong with that boy?”

Explaining disabilities and special needs to children can seem overwhelming, especially in the middle of the grocery store. But the tools you need are likely things you already practice as a parent. Those include encouraging questions, giving age-appropriate information and modeling the compassion you’d like your child to show others.

“The great thing about young kids is that they’re very blunt, and that’s OK,” says Mike Foddrill Jr., executive director of the United Cerebral Palsy Association of Greater Indiana, and a father with cerebral palsy. “We want to encourage them to ask questions, to go up and talk to that child who’s using a walker or a wheelchair, to have that conversation.”

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Here are some tips to keep in mind when explaining disabilities and special needs to children.

Give Age-appropriate Information

Encourage Questions

When it comes to discussing those with disabilities or special needs, target the information to your child’s maturity level.

Even though you might be mortified at the inopportune time your child chooses to ask about a girl using a wheelchair or a boy with Down syndrome, it’s important not to chide them for being curious, experts say.

“There’s always been a push to tell kids, ‘Don’t stare. Don’t ask about that,’ but that’s really not ideal,” says Stephanie Garner, program coordinator for Down Syndrome Indiana and a mom to a 6-year-old daughter with Down syndrome. “If they have questions, the best thing we can do is answer them. It’s part of how we help them to see beyond the disability.”

Experts say it’s best to address a child’s question in the moment and validate what they asked. For example: “I see you noticed the little girl in the shopping cart with no hair. Everyone’s hair grows in different ways,” and then either find a place to talk more or assure them that you’ll talk more about it when you get home (and then follow up).

For 2 to 5 year olds, keep it very simple with very basic language.

You may also want to explain that disabilities are not contagious.

Starting around 6, you can explain things a little more in-depth, emphasizing that all children have their own strengths and things that are harder for them.

Although you may have trouble remembering the correct vocabulary to use when your kid has a spur-of-the-moment question, avoid words like “sick” or “wrong,” and try “typical” instead of “normal.”

“It’s important when you’re talking to your kids about disabilities that you don’t make it this big, sad thing,” Garner says. “[My daughter] Lily is amazing and funny and sweet and silly. Yes, she has Down syndrome, but that’s just a little piece of who she is.”

Focus on Similarities Highlighting how your child and a child with a disability or special need are alike can be a helpful tool, experts say. Similarities can be obvious: “You both have eyes, a nose and a mouth!” Or a common interest: “I wonder if he likes ‘PAW’ Patrol’ like you do?” Or it can lead to a deeper discussion about common feelings and emotions.

“Parents can explain that kids may walk or talk or communicate differently, but everyone wants the same thing: they want friends, they’re trying to figure out their homework, they’re trying to get along with their brothers and sisters,” Foddrill says. “Differences on the outside don’t mean differences on the inside.”

Of course, you can say all the right things � encouraging questions, giving age-appropriate information and focusing on similarities -- but as with anything you do as a parent, what your child will learn about disabilities and special needs really comes down to how they see you act around those who are different than you.

“You have to be a good role model,” Garner says. “You have to be inclusive yourself if you want your children to be accepting, too.”

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WORDS BY NICOLE SIPE

SENSORY-FRIENDLY

& Inclusive Experiences Each year, more places around central Indiana are realizing the importance of making everyone feel welcome, and that includes people with special needs.

Here are just some of the many institutions and attractions in Indy that have embraced people with special needs and sensory sensitivities.

provided in the building that are supervised by trained staff. Other accommodations include blind and low-vision services, ASL interpretation and assisted listening, and mobility access.

THE ARTS

Butler University’s Lilly Hall, 4603 Clarendon Rd., Indianapolis

ArtMix

icchoir.org/choir-divisions/ special-needs

1505 N. Delaware St., Indianapolis artmixindiana.org Based in Indianapolis, ArtMix offers community art classes for people of all ages and abilities, and provides an inclusive environment with programs that create opportunities for learning, self-expression and socialization.

Classes are led by professional teaching artists, who guide students through the art-making process.

Civic Theatre

Inclusive Performances 3 Center Green, Carmel For guests with social, cognitive and physical challenges, Civic Theatre offers performances and accommodations to make all guests feel welcome. Inclusive performances allow guests to talk and leave their seats during the performance, and designated quiet areas are

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Indianapolis Children’s Choir Jubilate, A Choir for Children with Special Needs

Jubilate is a non-audition-based choir for singers with special needs in grades 3 through 9. In a fun and inclusive environment, children will learn proper singing techniques, music theory and sight-reading, part-singing and the social skills involved in being a member of a musical ensemble. The choir meets one day a week for 45 minutes.

Indiana Repertory Theatre Inclusive Performances

140 W. Washington St., Indianapolis irtlive.com/accessibility The IRT offers multiple sensoryfriendly performances throughout the season for select productions, including A Christmas Carol during the holidays. At every performance, the IRT offers accessibility options for guests, including audio enhancement or neckloop devices, abbreviated large print programs and sensory supports.

SPORTS & MOVEMENT

DeVeau’s School of Gymnastics Adapted Gymnastics 9032 Technology Dr., Fishers deveaus.com/classes/ adapted-gymnastics For children ages 6 to 10, DeVeau’s Dynamos is an adapted gymnastics class that introduces children with special needs to the world of gymnastics, including tumbling, balance beam, vault and trampoline. Children will learn new movements to increase their flexibility, balance, strength, power and endurance.

Indy Parks & Recreation Adaptive Programs

Carmel Clay Parks & Recreation Adaptive Programs Various locations in Carmel carmelclayparks.com/programs Whether you’re looking for opportunities to dance, play sports or try karaoke, Carmel Clay Parks & Recreation has something for everyone with special abilities.

The catalog of options is constantly changing with specialized opportunities for different age groups; search keyword Adaptive on their website to find programs offered.

Various locations in Indianapolis apm.activecommunities.com/ indyparks Indy Parks & Recreation offers many adaptive programs at various park locations throughout Indianapolis. Individuals with special needs can participate in activities such as water aerobic exercises, dance parties, sensoryfriendly skate sessions and more.

Search keyword Adaptive on their website to find all the programs offered.

Indy Stars Gymnastics Adapted Gymnastics 8070 Georgetown Rd., Indianapolis indystars.net Indy Stars provides a gym experience where children of all

abilities can come together and achieve excellence in a comprehensive program of recreational and competitive gymnastics, cheer, tumbling and dance.

Joseph Maley Fitness

the abilities of the players, places kids on teams not by age but by ability, and determines success by happiness and fun, not by score.

Stony Creek Swim Center

Adaptive Athletics

Special Abilities Swim Classes

7128 Lakeview Pkwy. West Dr., Indianapolis

Locations in Carmel, Geist and Noblesville

josephmaley.org/programs/ jmfitness

stonycreekswimcenter.com/ swim-lessons/specialty-classes

This adaptive athletics program gives all athletes opportunities to participate in various activities, which can be adjusted to meet their unique playing aptitudes. Mentors are paired one-on-one with each athlete to teach the techniques, skills and safe practices associated with each sport.

Stony Creek Swim Center has USSSA-certified special-abilities instructors who have completed in-depth training, and are highly qualified to teach children with unique physical, emotional and mental differences, including autism spectrum disorder, Down syndrome and cerebral palsy.

Classes meet for 30 minutes once a week.

STAR Soccer Adapted Recreational Soccer

TOPsoccer

Northwest corner of 650 & 800 N., Brownsburg

Adapted Recreational Soccer

hendrickssoccer.net

5616 S. 700 E., Whitestown

STAR Soccer (Success Through Adaptive Rec) adapts the game of soccer for children with special needs, and give kids the ability to participate in the same soccer programs that their siblings participate in. This unique soccer program adapts each program to

This soccer program is designed to bring the fun of soccer to all players, ages 8 and older, who have a mental or physical disability. The goal of TOPsoccer is to enable young athletes with disabilities to

zysa.org/page/show/3993498topsoccer

become valued and successful members of the Zionsville Youth Soccer Association, Indiana Soccer and U.S. Youth Soccer families.

The program is free for all athletes who qualify.

MOVIES AMC Theatres Sensory Friendly Film Program Various locations in Indianapolis amctheatres.com/programs/ sensory-friendly-films AMC offers unique movie showings where the lights are turned up, the sound is turned down, and visitors are invited to get up, dance, walk, shout or sing! The Sensory Friendly Film program is available on the second and fourth Saturday (family-friendly) and Wednesday evenings (mature audiences) of every month. Check website for local theatre listings and specific show times.

Regal Theatres

Regal’s My Way Matinee invites everyone to experience a movie with the lights turned up and the volume turned down. This is a safe space where guests are free to express themselves by singing, crying, dancing, walking around, talking or shouting while enjoying the latest films. All screenings for sensory-friendly movies begin at 10:30 a.m. on the second and fourth Saturday of the month for a special discounted ticket price.

Studio Movie Grill Special Needs Screenings 3535 W. 86th St., Indianapolis studiomoviegrill.com/Movie/ Special-Needs-Screenings Studio Movie Grill’s Special Needs Screenings are designed for families raising children with special needs.

Movies are shown with the lights up and the volume lowered, and children are free to move around, talk or even dance in the aisles during the movie. Sensory-friendly screenings are free for children with special needs and their siblings (parental guidance is always suggested). Adult tickets are available at before-noon price.

My Way Matinee Regal Village Park, 2222 E. 146th St., Carmel regmovies.com/static/en/us/ promotions/my-way-matinee Inclusive Indy

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OUTDOORS

Lucas Oil Stadium 505 S. Capitol Ave., Indianapolis lucasoilstadium.com/attendingan-event/accessibility

The Ice at Center Green Sensory-friendly Skate Days 10 Center Green, Carmel theiceatcentergreen.com/events During the winter months, Center Green in Carmel transforms into a giant outdoor skating rink!

Sensory-friendly skate days happen throughout the season, and are designed for children with autism spectrum disorder, sensory processing disorder or any type of special need. Admission and skate rental is free for the whole family, and wheelchairs are welcome on the ice at these events.

ATTRACTIONS & PLACES TO PLAY Bankers Life Fieldhouse 125 S. Pennsylvania St., Indianapolis bankerslifefieldhouse.com/ arena-information/accessibility People with sensory sensitivities can enjoy watching a sporting event or concert at this Indy venue, which has been certified as a sensory-inclusive space. Guests can check out a sensory bag at no cost, which includes noise-cancelling headphones, fidget tools, verbal cue cards and weighted lap pads.

Carter’s Play Place 17219 Foundation Pkwy., Westfield cartersplayplace.com A truly inclusive play place for children of all abilities, Carter’s offers specialized play equipment in their indoor play area, as well as occupational therapy services for all ages.

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The home of the Indianapolis Colts is now certified as a sensory inclusive venue. Lucas Oil Stadium provides sensory bags — which include weighted blankets, noise-cancelling headphones and fidget tools — to guests who might feel overwhelmed by the noise and activity of the game or event they are attending. The stadium also provides designated quiet spaces around the venue.

The Children’s Museum of Indianapolis

Conner Prairie

Sensory Friendly Morning + Estridge Family Park

SENSES Gym

3000 N. Meridian St., Indianapolis

13400 Allisonville Rd., Fishers

1115 East, IN-44, Shelbyville

childrensmuseum.org/visit/ accessibility/sensory-resources

connerprairie.org/explore/ things-to-do/sensory-friendlyhours

sensesgym.org

The biggest children’s museum in the world has resources on its website that help prepare children with autism or sensory sensitivities for their visit. Parents can download a map (or pick one up at the concierge desk) that shows areas of the museum that are sensory-heavy, as well as those that might be less stimulating.

Chuck E. Cheese Sensory Sensitive Sundays

Various locations in Indianapolis chuckecheese.com/events/ sensory-sensitive-sundays Every Sunday morning, Chuck E. Cheese opens its doors two hours early to offer a sensory-friendly experience at participating locations. Guests will find fewer crowds and a quieter restaurant environment, dimmed lighting, music turned down or off completely, limited character appearances, as well as full access to all the games and a full food menu.

The first Sunday of every month is sensory-friendly at Conner Prairie.

Exhibit components that make noise are turned off, all quiet spaces can be utilized and staff trained in sensory-friendly practices are on hand in case anyone needs assistance. Also, in spring 2020, Conner Prairie will debut the reconstructed Estridge Family Park, a fully inclusive playground designed with guests of all abilities in mind.

Kid City

Sensory Friendly Fridays Greenwood Community Center, 100 Surina Way, Greenwood greenwood.in.gov Each week, hours are designated for children with special needs to play at Kid City in a comfortable and accepting environment. From 6-8 p.m. each Friday, children with autism, children with sensory sensitivities, and children with physical disabilities and their families can enjoy this STEAMfocused activity center.

An exciting and safe alternative to typical playgrounds, SENSES is designed especially for kids who have autism, are on the autism spectrum, have sensory processing disorders, ADHD, Down’s syndrome, Asperger’s syndrome, and all children who need and can benefit from sensory recreation.

SkyZone Sensory Hours

10080 E. 121st St., Fishers skyzone.com/programs/ sensory-hours SkyZone’s Sensory Hours are meant for jumpers who might need more guidance on the courts. Each jumper is allowed one friend, family member or caretaker to jump alongside them at no additional cost!

Urban Air

Sensory Friendly Play 14450 Mundy Dr., Noblesville urbanairtrampolinepark.com Urban Air’s sensory-friendly hours on the first Sunday of each month are specifically designed for children with autism and special needs to enjoy time at the park without loud music and flashing lights. Parents jump with their kids for free.