When life-saving care is daily DIY

Jane Davies

The struggles to help Sebastian and his family lead a normal life in the country were just beginning. Tiffany and Mathew have had to battle every step of the way to secure timely, appropriate and qualified care for their son simply because of where they live. Many times they’ve had to travel to Adelaide for treatment that could have been administered locally.

Living with a range of complex health conditions has meant the need for ongoing physical and occupational therapy for Sebastian, which are simply not provided due to the distance from a medical centre. Tiffany has relied heavily on help from friends who have medical qualifications and Facebook groups for day-to-day guidance and support, as well as her own determination to ensure her child receives the best care, but it’s taken a huge emotional toll.

“We have a right to the same health care, but we have to work so much harder to get it,” said Tiffany when we spoke.

Sebastian is now a thriving little boy and Tiffany will always be thankful to the city doctors in Adelaide who saved his life. She continues to fight for the country services that will help Sebastian manage his condition as he as grows up.