SUMMER 2014
ADVANCING PANCREATIC CANCER RESEARCH AND PATIENT CARE
PEDAL POWER: TOUR DE PIER ACCELERATES IN YEAR 2 [ 25 ] ADVANCES IN MANAGEMENT OF PANCREATIC CANCER [ 6 ] PURPLE & WHITE FIGHT NIGHT IS A KNOCKOUT [ 16 ]
N L U R A L A’s O R IGIN E EN W O L HAL
5K/10K
OR RUN K L A W
Cure Fun Run n a C s id and K
HELP CARVE OUT A CURE FOR PANCREATIC CANCER
register at
LACancerChallenge.com
or call 310.473.5121
Benefiting the Hirshberg Foundation for Pancreatic Cancer Research
CONTENTS SUMMER 2014
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25 6 MEDICAL & RESEARCH UPDATES Read about the scientific updates that were presented at our 10th Annual Agi Hirshberg Symposium, an annual event formatted exclusively for patients, families, caretakers and those that have been touched by pancreatic cancer.
11 2014 SPECIAL EVENTS Interested in finding a local event in your area that supports our research? Check out our calendar where you will find events hosted by folks just like you. We will having you walking, running, playing golf, fishing, kicking and even listening to music – all in an effort to raise much needed funds.
12 PATIENT & FAMILY SUPPORT Learn what services we offer through our Patient & Family Support Program, including the complimentary Care Chronicles Symptom Management Workbook we provide to patients in need.
14 "YOU CAN H.E.L.P." FUNDS SPOTLIGHT Here we feature two unique stories about families that created funds as a way to support our relentless pursuit of a cure in honor or memory of someone.
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16 EVENTS SPOTLIGHT We are fortunate to have passionate supporters who choose to create awareness and raise funds by hosting events in their community. In this section we highlight a few recent activities that include everything from great food to live music, and even a socially conscious fashion show.
22 HIRSHBERG TRAINING TEAM Have you ever imagined yourself running 26.2 miles? Have you dreamed of doing more to support pancreatic cancer research? Two members of our endurance training program share their personal stories and experiences and may just inspire you to get off the couch and dust off your running shoes.
25 TOUR DE PIER Our newest and fastest growing fundraiser is making waves and raising money for three wonderful cancer charities. Read about the successful event that brings one of the hottest indoor fitness activities – stationary cycling – to the gorgeous outdoors of Manhattan Beach. See why our motto is “Ride in place. Move Charity Forward.”
About the Foundation Founded in 1997, the Hirshberg Foundation for Pancreatic Cancer Research is a national, nonprofit organization dedicated to advancing pancreatic cancer research, and providing information, resources, and support to pancreatic cancer patients and their families.
Directors & Trustees Agi Hirshberg, President & Founder Lisa Manheim, Director Jon Hirshberg, Trustee Michael Berliner, Trustee Stephen C. Prince, CPA Michael Scott, ESQ Lisa Fletcher, Trustee
Scientific Advisory Board Vay Liang W. Go, MD, Chair Laszlo G. Boros, MD Murray Korc, MD Laurence J. Miller, MD Stephen J. Pandol, MD Howard A. Reber, MD Lee S. Rosen, MD Diane M. Simeone, MD CREDITS STUDIO LAUNCHPAD: Cover Design
IMAGES STEVE GAFFNEY, front cover, pp. 25, 27 ANGELA DAVES HALEY, pp. 3, 5-9, 10, 22, 27, back cover LEONARD MONJE, pp. 4, 12 DOUG HOESCHLER, pp. 26, 27
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HIRSHBERG FOUNDATION FOR PANCREATIC CANCER RESEARCH 2990 S. SEPULVEDA BLVD. , SUITE 300C LOS ANGELES, CA 90064 (310) 473-5121 (P) (310) 473-5107 (F) WWW.PANCREATIC.ORG
WWW.PANCREATIC.ORG
WELCOME!
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t is with great excitement that I present to you our brand new magazine title: 'Momentum.' This word encapsulates our commitment to finding a cure for pancreatic cancer, captures our progress since our inception in 1997, and symbolizes our passionate determination to keep moving forward.
As always I appreciate the chance to update you on our research and activities, and in this issue I have especially positive news to communicate. It is extremely gratifying for me to share with you an optimistic story from our recent conference. For the past decade the Hirshberg Foundation has sponsored an annual symposium at UCLA. This year the event, held in collaboration with the UCLA Center for Pancreatic Diseases, focused on patient and family concerns over diagnosis, or fear of diagnosis. In addition to our regular medical updates, former cancer patients who have been living cancer-free for between 2 and 12 years addressed the audience. The panel of speakers, organized by Dr. Howard Reber, then took questions.
Imagine the excitement when a gentleman stood up and announced that he was a 23 year survivor of pancreatic cancer! There was stunned silence for a moment, and then all the guests burst into applause. The positive energy that filled the room still brings tears to my eyes; picture the encouragement this declaration gave to people about to start treatment. Our feedback was overwhelmingly positive and we will continue to showcase heroes who are not featured in the press. How thrilling to live a long cancer-free life after a diagnosis of pancreatic cancer, which often amounts to a death sentence. In this issue you will find details of our signature events that raise funds while creating aware-
ness and camaraderie among our supporters. We also feature some unique third-party fundraising events, organized by people from across the country to honor loved ones. We are constantly amazed by the creativity and initiative of the special functions our supporters arrange – these are the lifeline of our foundation! On behalf of the patients who come to us for guidance I thank you for your personal financial commitments to the Hirshberg Foundation. Your support enables us to advance scientific discoveries and provide crucial assistance to families who are coping with a pancreatic cancer diagnosis. Thanks to you, we can keep up the 'Momentum!' Most sincerely,
Pancreatic Cancer Survivors at the Hirshberg Foundation Symposium
YOU CAN HOPE OR YOU CAN HELP™
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ADVANCES IN MANAGEMENT OF PANCREATIC CANCER
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ebruary 8, 2014 marked the 10th Annual Agi Hirshberg Symposium on Pancreatic Cancer: Advances in the Management of Pancreatic Cancer. This annual event, held at the UCLA Faculty Center brought together pancreatic cancer specialists to discuss advances in surgery, post-surgery management, chemotherapy, nutritional challenges patients may face, and integrative care for psychological well-being during treatment. The program was formatted exclusively for patients, families, caretakers and those that have been touched by pancreatic cancer to receive informed updates in lay-terms from leading doctors and researchers. The Symposium also featured a panel of six patients who discussed their personal experience with pancreatic cancer.
the Hirshberg Foundation and UCLA, specifically that all speakers and the patient panel were connected to UCLA.
The symposium began with opening remarks from Agi Hirshberg and a brief history of the Hirshberg Foundation’s 16 years of working towards a cure. Dr. Vay Liang W. Go, Chief of the Hirshberg Scientific Advisory Board, explained that the 10th Annual Scientific Symposium was held in conjunction with the 44th Annual American Pancreas Association to celebrate a decade of Seed Grant Program achievements. Dr. Go highlighted the partnership between
The program concluded with a panel discussion of six cancer-free persons’ perspectives and their journey with pancreatic cancer. The panel was moderated by Dr. O. Joe Hines and included a question and answer session where current patients were able to ask questions of the panel and doctors in a comfortable environment. The Symposium ended with a delicious healthy lunch in the UCLA Faculty Center.
The program continued with Dr. Howard Reber who talked about surgical management of pancreatic cancer, followed by Dr. Bennett Roth who discussed digestive complaints and common nutritional issues post surgery. Dr. Lee Rosen then informed the audience about the array of chemotherapies available to patients before and after surgery. Nutritional Specialist Carolyn Katzin spoke on the dietary challenges and their affect on the overall well-being of pancreatic cancer patients. The last speaker was Barbara Clerkin, RN with a review of various patient resources and supports systems essential to navigating a diagnosis.
Videos of each presentation can be viewed on our website
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[ SYMPOSIUM ]
Dr. Hines; Susan Marquis, Dean; Laurie MacCaskill; Samuel Toovy, DDS
Dr. Reber & Doug Carlson (patient)
SYMPOSIUM OPENING REMARKS FROM THE CHAIR OF THE HIRSHBERG FOUNDATION’S SCIENTIFIC ADVISORY BOARD During the last 10 years, we have made major advances in the management of pancreatic cancer. Among these advances are the following:
Dr. Vay Liang W. (Bill) Go, MD
• Identification of high risk individuals to be screened
• Development of targeted chemotherapy and prevention
• Improved imaging modalities
• Over 30 major research institutions supported by the Foundation’s seed grant program in the US and overseas have contributed to these advances
• Increased diagnoses of locally and resectable tumors to 20% with a 5 year survival of 25-35% Pancreatic cancer deaths are projected to continue rising from the 4th to the 2nd leading cause of cancer deaths in the US by 2020. Projections estimate that pancreatic cancer deaths will double by 2030. In spite of this, the National Cancer Institute dedicated less than 2% of its over $5 billion budget to pancreatic cancer in 2013. Your dedication and contribution to
YOU CAN HOPE OR YOU CAN HELP™
foundations such as the Hirshberg Foundation that support pancreatic cancer research is extremely valuable in the continued fight against this disease. Ms. Agi Hirshberg has charged the Foundation’s Scientific Advisory Board to continue our work. Please stay connected to our mission.
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SURGICAL MANAGEMENT OF PANCREATIC CANCER
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r. Reber reviewed the current principles underlying the management of pancreatic cancer. In 2014 over 46,000 new cases Dr. Howard Reber are expected to occur in the USA, and almost 40,000 people will die. The incidence of the disease continues to increase by about 1% a year, and by the year 2020, deaths from pancreatic cancer will be second only to those from lung cancer in this country. 85% of new cases are advanced at the time of diagnosis (designated Stage III or IV disease) and these patients are rarely operated upon. Even those with Stage I or II disease (termed “early”) who are candidates for resection, have more advanced disease than is evident. Thus, although some of these patients are cured by surgical resection and chemotherapy, the median survival of most of them is less than 2 years because the cancer recurs. The specific
features of each of the common operations for pancreatic cancer were explained. The standard Whipple operation or the Pylorus preserving Whipple are done for tumors in the head of the pancreas; a distal pancreatectomy that includes the spleen is done for body and tail of pancreas cancers. The operations today are done quite safely with so-called operative mortality rates at UCLA less than 1%; the 5-year survival rates are over 30%. Some time was spent describing the current management of patients with Stage III disease where the tumor is locally advanced and involves some of the major blood vessels. These patients are treated with chemotherapy and some of them respond so well to that treatment that the tumor regresses to the point where surgery and even cure becomes possible. Dr. Reber explained that further major advances in how the surgery is done are unlikely, but that improvements in survival are likely as surgery is combined with newer drugs or advances that permit earlier diagnosis.
DIGESTIVE AND NUTRITIONAL ISSUES FOLLOWING SURGERY FOR PANCREATIC CANCER
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he most common surgical procedure employed in treating pancreatic cancer is the Whipple Procedure. This involves resection of the head of the pancreas along with the adjacent duodenum, gall bladder, distal bile duct and oftentimes the lower portion of the stomach. Frequently, the stomach may be spared with what is called a pylorus preserving Whipple. (Please see web site for a diagram of the surgery).
ally transient. Rarely, medications are needed to help improve emptying. Exclusion of Dr. Bennett Roth “leaks” at sites of anastomoses (connection sites of two organs) is mandatory if persistent delays in emptying occur.
There are consequences to this surgery that can be divided into early post-operative events and nutritional and digestive issues that ensue over time. The early issues include delayed emptying of the stomach, which can occur in 15-25% of patients and is usu-
Long-term nutritional and digestive problems include weight loss, diarrhea,“dumping”, inadequate pancreatic enzyme production, diabetes and mineral and vitamin deficiencies.
WWW.PANCREATIC.ORG
CHEMOTHERAPEUTIC MANAGEMENT
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r. Rosen thanked the foundation for inviting him to speak on the role of current chemotherapy in the management of pancreatic cancer. He discussed the role of the oncologist after pancreatic surgery and their approaches to the management of patients. He highlighted the use of case studies for various chemotherapeutic treatment options. These options include surgery, radiation therapy, chemotherapy, or a combination of all approaches. Dr. Rosen cited various case studies to illustrate his point that in pancreatic cancer therapy one size does not fit all. Chemotherapeutic management depends on the stages of the disease, the patient’s performance status, the molecular characteristics of the tumor and the drugs to be used alone or in combination, and the cost of therapy. He emphasized that a team approach is essential in treating patients with pancreatic cancer. The current chemotherapeutics in use have all been the result of clinical trials in either phase II or phase III on patients with
[ SYMPOSIUM ]
metastatic disease and they may or may not be applicable to early localized disease. He highlighted again the use of case studies for various chemotherapeutic treatment options. Lastly, Dr. Lee Rosen Dr. Rosen presented the goal of a personalized therapeutic approach based on molecular targeting agents and the exciting future and preliminary results of various agents in different stages of clinical trials as well as vaccine development. He emphasized that the future of management of pancreatic cancer is prevention, but before we can reach that strategy, advances continue to be made in surgical adjuvant therapy and chemotherapy.
NUTRITIONAL CHALLENGES TO PANCREATIC CANCER PATIENTS: ANXIETY AND DEPRESSION, SURGERY, CHEMOTHERAPY AND RADIATION
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lthough most of us are aware of which foods are healthy, after a diagnosis of pancreatic cancer it becomes particularly challenging to select a diet that provides nourishment and pleasure. Barriers include lack of appetite, nausea and changes in bowel regularity. Remedies include addressing underlying anxiety and staying as physically active as possible. Poor digestion is a frequent symptom and is best addressed by choosing foods containing soluble fiber found in foods such as oatmeal, apple sauce or in some supplements. This has the added benefit of helping to regulate blood glucose levels by reducing the glycemic load of the meal or snack. Soluble fiber is also helpful in reducing the incidence of “dumping syndrome” which is a source of anxiety for many patients. Pro-
YOU CAN HOPE OR YOU CAN HELP™
tein and hydration are foundational aspects of a healthy diet. Good Carolyn Katzin, MS, CNS sources of protein include fish, lean meat and poultry, eggs and nut butters. Some unexpected nutritional challenges may arise around potential drug-nutrient interactions. An example is curcumin, a bioactive principal found in the spice turmeric with anti-inflammatory health benefits. As a dietary supplement this may potentiate some chemotherapy regimens, for example gemcitabine. Fish oil, DHA and EPA may also interact with paclitaxel. It is wise to advise your health care — continued 9
Nutritional Challenges to Pancreatic Cancer Patients — continued
team of any supplements that may be taken to be aware of a potential for interactions which may result in adverse symptoms. Some more foods with protective bioactive nutrients include vegetables from the cruciferous or cabbage family, those from the allium or garlic family and berries, especially black raspberries. A diet that has protein at each meal, several vegetables such as broc-
coli or kale and garlic or chives with a serving of organic berries would help with healing from treatment. Exercise also helps as it lifts the spirits and improves oxygen uptake. At the Simms/Mann Center we help patients fine tune which foods, supplements and activities are best suited to them. Our goal is to reduce anxiety, improve digestion, enhance wellness and quality of life.
PANCREATIC CANCER: PATIENT RESOURCES AND SUPPORT SYSTEMS
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t is not every day that a person is acutely faced with their mortality. Those who are given the diagnosis of pancreatic cancer find themselves in this situation. It is not uncommon to have the necessary tools in one’s toolbox for the journey with pancreatic cancer. The statistics for five year survival are daunting. At the UCLA Center for Pancreatic Disease, even with our five year survival rate of 34% for those patients that have a pancreatic resection and adjuvant chemotherapy, the survival statistic is concerning. There are some tools, strategies and supports that when employed can and will help the patient, family and significant others on this journey with pancreatic cancer. Many patients feel as if they have been “punched in the stomach” upon diagnosis. Because of this feeling of loss of control, it is essential that the patient gain some sense of control. This can be accomplished by advocacy. Either the patient as his/her own advocate, or identifying someone who is willing to be the patient’s advocate. As part of this advocacy, there are a few strategies that will benefit the patient as he or she goes from diagnosis, to treatment, to recovery and survivorship and in some cases palliative/hospice care. Diligent record keeping is essential on this jour-
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ney. Since this is about the patient, keeping an organized binder Barbara Clerkin, RN, MPHh with all of your medical records allows you to present yourself for second opinions without too much effort and ease the task of coordination and continuity of care. It also gives the patient a sense of control within the context of his or her medical care. The Hirshberg Foundation offers such a binder, The Bellah Care Chronicles, and can be requested by calling the office. Community Resources such as the Simms/Mann Center, American Cancer Society, the Hirshberg Foundation, and Cancer Support Community are excellent in providing a wide array of support from individual and family counseling, financial assistance, nutritional counseling, and networking with other pancreatic cancer patients. Often the initial feeling of being alone is assuaged once a patient discovers these community resources. Although the journey of pancreatic cancer can have many hoops to jump through, the journey is made easier with the available resources and support systems that you can add to your toolbox.
WWW.PANCREATIC.ORG
UPCOMING SPECIAL EVENTS August 23, 2014
2nd Annual FOSTER the Cure Golf Classic Sioux City, IA
August, 2014
6th Annual Dal Bon Golf Tournament Auburn, CA
August, 2014
2nd Annual Style-A-Thon Thousand Oaks, CA
October, 2014
4th Annual Pursuit of Wellness 5k
October, 2014
Brentwood, CA
6th Annnual Kick P. C. Soccer Match
November 9, 2014
8th Annual Cottonfest (Bluegrass Concert)
November 27, 2014
Mission Viejo, CA
October, 2014
Waynesburg, PA
Etowah, TN
4th Annual Mission Viejo Turkey Chase
4th Annual Thrill in Da-Ville Race Dawsonville, GA
Dorset, VT
7th Annual Kevin Miya Golf Classic
August 30, 2014
November 8, 2014
5th Annual Dale H. Burton Alligator Walk Winston-Salem, NC
November, 2014
Annual Fore-A-Cure 50/50 Raffle High Point, NC
December, 2014
2nd Annual Fishing for a Cure Lake Casitas, CA
FOR EVENT DETAILS, VISIT WWW.PANCREATIC.ORG/EVENTS YOU CAN HOPE OR YOU CAN HELP™
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PATIENT AND FAMILY SUPPORT THE CARE CHRONICLES SYMPTOM MANAGEMENT WORKBOOK By Allison Miller, Patient & Family Services
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s part of our Patient and Family Services Program, the Hirshberg Foundation partnered with The Care Chronicles team to create a symptom management workbook uniquely designed for pancreatic cancer patients. Currently, health professionals are recommending that patients keep a diary or journal at home detailing symptoms and side effects they experience throughout treatment, but few options have been available until now. Thanks to the generous support of our donors, we are able to offer this workbook free of charge to patients. The Care Chronicles Symptom Management Workbook was created with love in the spirit of hope, strength and wellness for patients and caregivers living this journey of a pancreatic cancer diagnosis. The goal in designing this workbook was to motivate and empower individuals throughout treatment – to improve the quality of their lives and the lives of their loved ones by openly communicating with their medical health team. This Workbook includes the vital components
for managing care at home and beyond the doors of a doctor’s office. Each book provides a thorough health profile, calendar, medication logs (and dry erase pen), daily worksheets for symptom management, an address book, a scan results section and more. If you are a patient or caregiver and would like to receive a complimentary workbook, please contact Allison Miller at (310) 473-5121. If you would like to make a donation to support this program so that future patients can receive this valuable tool free of charge, please visit www.pancreatic.org
HOW WE HELP When you receive the diagnosis of pancreatic cancer, there are so many questions... What do we do first? Who should we see? Where do we start? Our office staff is here to help answer those questions for you. We provide the following information: doctor referrals across the United States, nutritional information, financial aid information, emotional support information for patients, families and caregivers. Please contact Allison Miller at (310) 473-5121 or email her at amiller@pancreatic.org Allison Miller
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[ CONNECTING WITH PATIENTS ]
CONNECTING WITH PATIENTS
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ince our inception in 1997, The Hirshberg Foundation has been dedicated to providing information, resources and financial aid to patients and families. It is always a pleasure for us to stay in touch with the families and patients that we have supported. We enjoy having them as part of our ‘foundation family’ and love to see them at our local events. We were fortunate to have met Ljubica Stankovic this past February as she joined over 20 other patient/ survivors at our 10th Annual Symposium held at UCLA. Her surgeon, Dr. Anand Annamalai was also in attendance. In March 2013, Ljubica was diagnosed with pancreatic cancer, had a Whipple procedure in April, and by June was starting 6 months of treatment. Her postoperative regimen consisted of 6 rounds of chemotherapy (Gemzar and 5FU), 6 weeks of radiation as well as a biweekly pancreatic cancer vaccine which was part of a phase III clinical trial. She completed her last treatment on Christmas Eve 2013, but still continues to receive monthly vaccine “boosters”. Jelena Trifunovic, Ljubica’s daughter, contacted us for our Patient and Family Support Program while her mom was in the hospital. I helped provide Jelena with local resources for when her mom was discharged. Jelena and I have shared emails from time to time through this journey and she has been so wonderful at keeping us updated on how her mom is doing and participating in Hirshberg sponsored events. Jelena says, “We are very grateful for each day. Within our family, my mom has earned the nickname ‘Jaka Baka’, which in Serbian means ‘brave grandma.’ We have gained an incredible, invaluable network of
YOU CAN HOPE OR YOU CAN HELP™
Ljubica Stankovic and grandson Filip
friends through the Hirshberg Foundation and Cancer Support Community.” Since completing her treatment, Ljubica has been focusing on her diet, trying out new healthy recipes and drinking plenty of tea. In addition to acknowledging the exceptional doctors that provide her with top-notch care, she adds, “Most importantly, Filip Trifunovic, my two-and-a-half year old grandson, is my natural healer!” Ljubica is looking forward to vacation, spending time with family and friends, and more grandkids! “It’s not easy…but every morning my motto is ‘Life is beautiful!’” To find out more about the Patient and Family Services we offer, please contact Allison Miller at (310) 473-5121.
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YOU CAN H.E.L.P. FUND SPOTLIGHT A TRIBUTE TO A HERO, CAPTAIN JOHN D. MAZZOCCO
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urt Sandoval, an ABC 7 Eyewitness News anchor in the Los Angeles area, is an active supporter of the Hirshberg Foundation. He met Lori, the wife of a fire department captain who had just lost his battle with pancreatic cancer, and put her and her family in touch with us. As a tribute to John, Lori’s family created a You Can Help Fund to spread awareness and to raise funds for pancreatic cancer research. The Hirshberg Foundation is honored to share John’s story and look forward to involving Lori, the kids and the Santa Clarita firefighting community into our family at future events. John was a hero in more than one way. He put his life on the line every day to help protect the city of Santa Clarita as well as Los Angeles County over the years as a firefighter, paramedic, engineer and as
Captain at Fire Stations 111 and 73. He was a dad to two beautiful boys and the loving husband to Lori. September 2013 through December 2013, John was not only fighting fires, he was also fighting pancreatic cancer. As a family they enjoyed traveling to many locations where John shared with the boys a love for different experiences, cultures, history and above all, to have compassion for their fellow man. Appreciating what the world has to offer and not living in a bubble were lessons regularly passed down. Whether good or bad experiences, there were many "Mazzocco Adventures".
Captain John Mazzocco with his wife Lori and their sons
To read more about Captain John Mazzocco, visit http://www.pancreatic.org/fund/captainjohnmazzocco
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[ FUNDRAISING ]
MY SISTER'S CARAMEL CRUNCH By Jeff Morse
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or my Aunt Lisa, love was always a pantry staple in her kitchen- it was the magical addition that gave a certain flavor and aroma to her recipes. She happily shared her delicious creations with others, but her caramel crunch was a recipe she carefully protected. Upon her passing our family wanted to honor her memory by dedicating funds from sales to shine a light on a cause that has personally impacted our lives. Lisa’s dream of bringing her famous Caramel Crunch to the public was a positive, joyful way we could celebrate her life and continue her legacy. The experience of partnering with the Hirshberg Foundation has been a blessing all around. It opened a door that’s allowed us to connect on a more personal level with members of the community who support this cause as well. To have a conversation with a complete stranger, have them
YOU CAN HOPE OR YOU CAN HELP™
open up about their stories, both personal and inspiring, has really been humbling. It gives you the reinsurance you need to keep fighting, keep moving forward, and never give up. The experience of interacting with pancreatic cancer survivors and people who have lost loved ones has had a positive impact on my life forever. Our company remains committed to do everything we can to help share awareness. Contributing funds that will benefit pancreatic cancer research and provide support for patients & families has inspired me to not only become a better person, but it has giving me the knowledge I need to help bring awareness to the fight against this disease. If Lisa were here she would say, My Sister’s Caramel Crunch is a collective effort by many people whom are making sure we do our part in helping those in need. Can-
Jeff Morse
cer is a growing disease and has impacted many families. It must be stopped and the only way is for all to join together. She would be proud to represent such a great cause. This is a part of her legacy. We will continue to speak positive and encouraging words to those who need it; remembering that life in not guaranteed so cherish every moment. The Hirshberg Foundation is definitely an organization and cause that we’re proud and thankful to be associated with!
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EVENT SPOTLIGHT: PURPLE & WHITE FIGHT NIGHT
EDITORIAL NOTE: Hosted at Taj II in the Fashion District of New York City, Purple & White Fight Night evolved into a unique collaboration, a love of fashion and an unyielding pursuit for a cure. The event benefited the Hirshberg Foundation for Pancreatic Cancer Research and the Lung Cancer Foundation of America (LCFA). Ashley and friend Danyelle have become passionate advocates fighting back against a disease that has personally impacted their lives.
Awareness is hope and hope never quits! Ashley Janover & Danyelle Silverstein
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By Ashley Janover
urple and White Fight Night was set to start at 8pm but when I arrived at the venue and peaked my head around the curtain at 7:45pm there was a line outside the door. I knew in that very moment that the evening was going to be a success.
at 41 years young after a 2 year battle with Lung Cancer. By raising money for the advancement of research and creating awareness amongst those who do not understand the seriousness of this disease we are making a genuine difference in their memory.
Every year my advocacy group “Team Hope” throws an annual charity event. I do everything that I can to raise as much funds as possible and entertain the crowd. The term “fight” in Purple & White Fight Night represents a tenacious drive to fight back against a disease that has forever changed our lives. My mother’s name was Betheny Janover and she passed away from pancreatic cancer on September 24th, 2011 at the age of 54. She was diagnosed with Stage 3 Pancreatic cancer and survived a year. Danyelle lost her father
This year the event was a socially conscious fashion show, a concept I truly believe in. I knew that if I wanted to incorporate a fashion show, it would have to be a socially conscious brand. All items must be made in NYC, ecofriendly. We featured designer Daniel Silverstein’s current line. He strives to create a collection that melds his personal design aesthetic with the zero waste design techniques he has developed. At the height of the evening over 200 attendees were enjoying Daniel’s designs, pop-up shops, and a
lavish auction & raffle. Dress code: Cocktail Chic! Right before my partner Danyelle and I gave our speeches we ran into the ladies room and walked in a stall together. We gave each other a big hug, took a deep breath and each exchanged a couple of words about how proud our parents would be if they could see what we had done for them. In that very moment, I knew Danyelle felt all the pain I had experienced over the last 3 years. My friend had also lost her best friend, her father. We understood each other, and I was instantly at ease. Giving my speech was a particularly extraordinary part of the evening. It was only then when I saw all the faces in the crowd; my friends, family, and everyone who came in from out of town to show their support. I wanted everyone
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[ FUNDRAISING ]
and support in that very instant.
to understand about pancreatic cancer and how unique the Hirshberg Foundation is. At the end, when I thanked my mom I saw everyone’s eyes fill with tears and I thought to myself, “wow, I am
not the only who is honoring this woman and I’m certainly not the only one who was in some way affected by this disease.” The moment was powerful and I felt an overwhelming abundance of love
My mother was my very best friend and she always told me that through hardships, rejection, and mistakes, success will come. Three years after losing her we’ve succeeded in raising thousands of dollars towards the advancement of research. I remain inspired every day to maintain my relationship and dedication to the Hirshberg Foundation. Moving forward, Purple & White Fight Night will be even larger, include more people, present bigger prizes, and double the money raised for pancreatic cancer!
Betheny Janover and daughter Ashley *Thank you to Daniel Silverstein and sponsors Picks for Peace, Creeds of Love, Canopy Brand Group, The Wild Ivy, and Trusted Nutrients for supporting our philanthropic efforts.
YOU CAN HOPE OR YOU CAN HELP™
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EVENT SPOTLIGHT: TEAM RAVISHING ROSE LUNCHEON & JEWELRY SHOW
so painful to lose her and I never want anyone to have to go through something like that again. That is why I continue to do everything I can to fight pancreatic cancer. She can no longer fight but I can.
By Jennifer Grohs
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y amazing mother, Rose Ratcliff, was 54 when she developed back pain and was diagnosed with pancreatic cancer. We never gave up hope that she could beat it and we even talked about her going to my children's weddings. Unfortunately, she passed away from this disease. She continues to inspire me every day in the way I choose to raise my kids and conduct myself. It was
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My wonderful friend Corina Madilian inspired me to host the luncheon and jewelry trunk show at my home. Hosting at my home gave me the chance to have a nice meal with my friends and do some good for a great cause. I loved doing this event with our Single Stone On Mission Street, a fine jewelry boutique. The team there is a wonderful group of girls who I consider friends with fabulous taste! The designers for the jewelry line Jemma Wynne are very creative and make beautiful pieces of jewelry. Having the jewelry
there just brought in a fun element to the day. Some of my favorite moments from the event included seeing my friends adorned with beautiful jewelry and smiling. I felt so blessed and fortunate to have friends come together to support a cause that is so close to my heart. There were a lot of smiles. The most important part of the experience was listening to Agi and learning new information. I feel that I know a lot of information because I watched my mother suffer through pancreatic cancer, but those who have not had that experience do not have as much knowledge about pancreatic cancer. Power is knowledge and I was so happy to see my friends learning more about the disease.
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[ FUNDRAISING ]
EDITORIAL NOTE: We are grateful for Corina Madilian and the team at Single Stone on Mission Street for partnering with Jennifer Grohs and sharing their impressions of the event, below.
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e at Single Stone had such a great time hosting the jewelry trunk show to support Jennifer Grohs and a cause that has impacted her life. Our motivation for hosting these types of events stems from wanting to build relationships with the people in our community; the best way to do this, we have found, is to support organizations that are close to their hearts. Jennifer has been a great friend to us for several years, and it meant so much for us to give back
to her in some way. Most importantly, it was rewarding for us to honor Jennifer’s mother, who lost her battle with pancreatic cancer.
Agi Hirshberg, Jennifer Grohs and Sarah Banks
One of the most poignant moments of the afternoon was when Agi spoke to the group about pancreatic cancer, sharing both her personal story and the research that her organization is behind. I think for many of the guests, this was the first time they had been
to a fundraiser about pancreatic cancer research, which highlights what Agi meant when she said that this cause is hugely underfunded. Knowing that The Hirshberg Foundation is pushing for cancer detection in new and innovative ways showed us all that this is a cause worth taking the time to volunteer for and to donate money to.
HOST AN EVENT IN YOUR COMMUNITY! This year has been especially exciting for 3rd Party Special Events. Loved ones affected by pancreatic cancer are making a difference across the country with fundraisers both big and small. From luncheons to bake sales, golf tournaments to 5k’s, fashion shows to game days- if you’re passionate about it we’re ready to help you plan it! PLAN YOUR OWN SPECIAL EVENT
Contact: Sarah Banks Email: SBanks@Pancreatic.org
FUNDRAISING IDEAS Pick Your Passion
Hobbies & Activities
• • • •
• • • •
Fashion Show Concert or Music Performance Dinner Gala Jewelry or Clothing Trunk Show
Poker or Casino Night Game Day Bowl A Thon Cooking Class
Sports Events
Outdoor Fun
• Run or Walk • Golf Tournament • Fishing Tournament
• Car Wash • Garage Sale • Picnic
Phone: (310) 425-5672
YOU CAN HOPE OR YOU CAN HELP™
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EVENT SPOTLIGHT: 2ND ANNUAL RUN / WALK FOR BILL EDITORIAL NOTE: On Saturday, March 2, 2014 the 2nd Annual Run/Walk for Bill raised $10,000 for pancreatic cancer research! This was our 2nd year honoring the memory of Bill Dunbar, a husband & father, friend, an avid runner, and member of the Manhattan Beach community for 14 years. Family, friends and community came out to the Manhattan Beach Pier to enjoy a 5k overlooking the ocean along the beach side path. It was a beautiful morning, fantastic turnout, and an amazing day to raise awareness. By Jan Dunbar
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y husband Bill enjoyed running and was happily recruited many years ago to join an early morning exercise group. He bonded with his fellow runners and formed many great friendships. When he was diagnosed with cancer in July 2012, running became a thing of the past. But the many stories of triumphs over injuries, aging and each other lived on. Bill’s journey with cancer was a short one. After many rounds of chemo, transfusions, and countless medications he passed away from pancreatic cancer at home in February 2013. Despite doing all I could to provide love, support, and comfort, there was the over-
Jan Dunbar
whelming feeling of helplessness in the face of a deadly disease. Shortly after Bill passed, a dear friend and fellow runner organized the first run/walk in his honor. Hundreds of loving friends came out to pay their respects. It was very heartwarming, and a fitting tribute to a wonderful man. When Ross asked to perpetuate the event this March, I was thrilled. It occurred to me that I may have found a way to combat the helplessness. I had been spinning a lot and met Jon Hirshberg in class. I read about his story and the history of the Foundation. I knew immediately that supporting the Hirsh-
berg Foundation would be our way of helping others fight cancer. The turnout at this year’s event showed that many others felt as strongly about supporting efforts to combat cancer while honoring those who have passed. For me and my kids, this event has turned our personal tragedy into a cause for good. What a great day it was! Friends and supporters came out of the woodwork for a beautiful stroll on The Strand. We shared hugs and stories; we laughed and we cried. And it all felt right. I hope to continue this tradition for years to come, to raise awareness and funds to make death from pancreatic cancer a thing of the past.
Bill was such a great spirit and loved the outdoors. We used to run together quite a bit and ran this route frequently. Bill will always have a positive impact on things I do. A horrible disease took him too early and this is a way to help others. This was a small way to remember. — Ross Kay, Family friend & organizer for Run/Walk for Bill
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WWW.PANCREATIC.ORG
[ FUNDRAISING ]
EVENT SPOTLIGHT: PURPLE PALOOZA AT MICKIE FINNZ By Brittany Knott
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n June of 2012 I lost my mother Linda Knott from pancreatic cancer. She was diagnosed only 3 months before that, it all happened so quickly and we didn't see it coming. My mom was the most loving, giving, humble person I've ever known and she has passed on those qualities to me. She was a great mother and I hope to do her justice in trying to make a difference. I've always been motivated to help my community and make a difference, but losing my mom to this disease has motivated me to focus my philanthropic efforts with the Hirshberg Foundation. With the support of friends and family I’ve helped raise awareness for pancreatic cancer and we’ve raised thousands of dollars through Team Mudslide at the LA Cancer Challenge! On Friday, April 11th we held Purple Palooza, a night of live music, great food, and a fun auction & raffle! I teamed up with Mickie Finnz Fish House in
Redondo Beach to host since they’ve been so great helping us raise money before and they truly care about their community. I’m also a proud member of philanthropic organization Chive On South Bay who helped me rally support. It was a great collaboration since we share a passion for philanthropy and just being good people overall. Seeing just how many people came out to the event, and witnessing the outpouring support from the Hirshberg Foundation are a few of my favorite moments. Being able to play live music and share the stage with one of our favorite bands, Tres Hombres, all night was fun too! The most important part of the experience was making sure that people understood what the Hirshberg Foundation was about and how important it is that we continue to fight to find a cure for this terrible disease. Hosting an event for the Hirshberg Foundation would have made my mother proud.
L to R: Michelle Opfer, Richard Ruelas, Brittany Knott, Katie Krynen and Stepanie Hall
YOU CAN HOPE OR YOU CAN HELP™
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HIRSHBERG TRAINING TEAM
2014 marked the 29th ASICS Los Angeles Marathon and the fifth consecutive year that our Hirshberg Training Team (HTT) participated as an official charity. Regardless of the extra sleep lost to daylight savings time and the extreme unexpected heat, all of our runners had a triumphant day. Our team of 36 managed to raise over $54,000 – enough to fully fund a Seed Grant to a promising young researcher – and brought our thirteen year total to over half a million dollars raised.
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any of our team members tell us that one of the most rewarding aspects of our program is the long-lasting friendships that are forged between our runners as they train. This year, due to those friendships, we had 16 HTT alumni back for another year, five of whom were running for their third year straight! Our dedicated team is not just motivated by friendship; they’re passionate about spreading pancreatic cancer awareness. Our members spent months training for either the 26.2-mile race or the 13.1-mile relay at
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our Marina del Rey or Pasadena meeting spots. Not all got to enjoy a mild Los Angeles winter; four of our members were out training in the snow and rain across the country. In addition to training, they were actively fundraising to meet their commitment of raising at least $1,000 each for pancreatic cancer research. As we hear year and again, the experienced guidance from our coaches at Club 26.2 is another invaluable aspect of our program. From the weekly emails to the training run snacks, to having a smiling friendly face on the course at just the right mo-
ment, our coaches make all the difference. With our team out on the course, the Purple People Party was back at Mile 21 raising awareness and cheering on runners. Our amazing group of volunteers was cheering their hearts out, waving purple pompoms and shaking purple cowbells. The Cheer Station is not only a highlight for the race participants; it brings our pancreatic cancer community together to celebrate raising funds and our passionate pursuit of a cure.
WWW.PANCREATIC.ORG
[ ENDURANCE TRAINING PROGRAM ]
RUNNING
CHANGED MY LIFE By Alicia Easter
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hen I decided to join the crazy club of people who run marathons, I thought, "why not run in my new hometown of Los Angeles?" At first I didn't realize that the LA Marathon was on my mother's birthday weekend, but once I did, I knew I had made the right decision. I was going to run my first marathon in honor and memory of my beautiful mother who lost her battle to pancreatic cancer twelve years ago. It is important to me to find creative ways to heal from her loss, and I am able to find that in running. Training for the marathon humbled me time and time again. It's a challenge because sometimes you just don't want to go on a training run, but you know you'll regret it. Signing up for a marathon makes you accountable and raising funds reminds you why you decided to run. I dedicated 8 months of my life to raising money and training hard (even when I didn't want to) in order to be able to run my best race on marathon Sunday. I couldn't have done it without the support from my amazing family; they under-
It is important to me to find creative ways to heal from her loss, and I am able to find that in running. stand my need to give back and leave the world a better place. I also recently lost my chosen big brother, Hayden Blanchard, to cancer and his battle motivated me to never give up. Running the LA Marathon changed my life. By raising funds and committing to this experience, I saw how much I could inspire others to do the same and that felt incredible. I cried at the finish line because it was such an emotional day. I had just completed something I never thought I would do! It was a magical day filled with love, support, hope and determination. I made new friends and had a lot of fun running the streets of LA. Most importantly, I learned a lot about what I am capable of and believe that this is only the beginning!
Training for the 30th Edition of the LA Marathon, to be held Sunday, March 15, 2015, starts in October 2014. For more information visit our website, www.HirshbergTrainingTeam.com or call us at 310-473-5121.
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HIRSHBERG TRAINING TEAM CONTINUED RUNNING WITH A PURPOSE. RACING TOWARDS A CURE. By Adam Pollack
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n April 9, I was joined by thousands of fellow runners at the LA Marathon to do something big: run a marathon. We were all there with different goals in mind: to win, to complete the distance, and others to raise funds and awareness for a charity of choice. If we spoke a few years ago, I would have told you that I run marathons to beat my best time. This time was different. This past November, my father was diagnosed with Stage 3 pancreatic cancer. Living across the country meant that there wasn't much I could do on a daily basis, and I desperately wanted to be able to do something. I felt scared and hopeless. I turned to a personal passion, marathon running. I quickly signed up for the Hirshberg Training Team (HTT), they registered me for the LA Marathon, and I hopped into training. I knew at that point my goal was different. “I wasn't going to try to be the fastest or the strongest, but rather to increase awareness of pancreatic cancer and to fund research to find better treatment options and an eventual cure.� I felt proud every time I walked out the door for a training run wearing my purple HTT shirt. I felt a real sense of purpose. Of course, training had its challenges. You have to make sacrifices: run when you don't feel like it, go to bed early because you're just exhausted from that long run, and go out in bad weather. My most memorable long training run took place during a terrible rain storm, which was not forecast to happen for another
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day. It started out as a drizzle and 5 miles into the run, it was pouring. The wind was blowing at my Adam Pollack face, the rain was stinging my skin, and I was cold. I went back and forth on whether or not I would continue the run or just take the bus home and call it a day. I thought about my goal: to raise awareness and funds for the Hirshberg Foundation. I knew personally that days are like this for cancer patients and their families. Some days are sunny and warm, while others are dark and gloomy. In either case, I knew that so many people still had to continue on with their lives, even on those difficult days and I could too. I didn't know how much further I could run, but all I needed to do was put one foot in front of the other. The rain persisted; it even got worse. But my attitude had changed. Things were in the right perspective. The wind was pushing me back but I had a huge smile on my face. It could be worse. Not all days are easy when fighting this disease. However, the knowledge that I was out there to fund the research necessary to discover a cure, was enough. The dream that someday others won't have the same fight, makes those difficult days more bearable. It gives me hope, which is exactly what I needed.
WWW.PANCREATIC.ORG
PEDAL POWER: TOUR DE PIER ACCELERATES IN YEAR 2
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aising a half-million dollars is an amazing accomplishment for any fundraising event, but for the team behind the award-winning Tour de Pier, it was a dream come true. Held on the Manhattan Beach Pier on May 18, the 2nd Annual Tour de Pier hosted 1,200 riders cycling on stationary bikes while taking in a Southern California iconic ocean view, with many riders participating in honor or memory of a loved one. Only in its sophomore year, the award-winning Tour de Pier raised $530,000 for three cancer charities: the Hirshberg Foundation for Pancreatic Cancer Research; Cancer Support Community and the Livestrong Foundation surpassing last year’s fundraising efforts by 48%. “We have had an unexpected and extraordinary year,” said Heath Gregory, co-
founder of Tour de Pier. “The fact that we have accomplished so much in a short time proves that we have more valuable work to do in raising awareness and money for cancer research and finding a cure,” he added. “Due to the success of the past two years, we have already begun planning bigger and exciting things for next year’s Tour de Pier.” PMS 2685
PMS 267
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PMS 3115
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Led by some of the South Bay’s best instructors from FitOn Studios and Spectrum, riders rode through one of four 50 minute sessions with energizing music and loads of excitement each hour, including a visit by the LA Lakers Girls, the San Diego State University Dance Team and the House of Blues Gospel Choir. According to Lisa Manheim, co-founder of Tour de Pier, one of most memorable parts of the day was kept a secret to most of the planners of the — continued
YOU CAN HOPE OR YOU CAN HELP™
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Tour de Pier — continued
event. “We were fortunate enough to arrange for five airplanes to perform a “fly-by” over our event. To see the planes flying in formation, to hear the roar of the crowd and to feel the energy it created was just spectacular.” In addition to cycling, the family-fun event also had a Health & Fitness Expo and a Kids Fun Zone with tot-sized spin bikes.
ics. On For each session, the participating charities chose an honorary rider to ride from the main stage on a custom painted Spinner Blade bike that was created especially for Tour de Pier. They were painted by acclaimed modern artist Sage Vaughn, an LA-based painter and illustrator who donated his talents to paint bikes that reflected the battle against cancer.
Olympic champions and professional athletes banded together to donate their time and sweat in supporting the Tour de Pier. Celebrity riders included Olympic Gold Medal Water Polo Winner Heather Petri; Olympic Cyclist Tony Cruz; Gold Medal Volleyball Winner Eric Fonoimoana; 7-time US Ocean Ironman Champion Craig Hummer and NFL Quarterback Matt Leinart.
After a hugely successful inaugural year, the founders of the event took the Tour de Pier across the coast and held two satellite events. In April, we partnered with Soul Cycle in Greenwich CT for our first event which sold out in 72 hours. In June, the second satellite event was held at the iconic Chelsea Piers Sports Center in New York City. The 3rd Annual Tour de Pier is scheduled for Sunday, May 17, 2015 at the Manhattan Beach Pier. For more information, please visit www.tourdepier.com.
All of the event participants rode on brand new Spinner Pro bikes provided by Madd Dogg Athlet-
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WWW.PANCREATIC.ORG
[ TOUR DE PIER ]
YOU CAN HOPE OR YOU CAN HELP™
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HIRSHBERG FOUNDATION FOR PANCREATIC CANCER RESEARCH
2990 S. SEPULVEDA BLVD. SUITE 300C • LOS ANGELES, CA 90064 (310) 473-5121 • (310) 473-5107 (FAX) • WWW.PANCREATIC.ORG
LET’S CROSS THE FINISH LINE
NON-PROFIT ORG U.S. POSTAGE PAID LOS ANGELES, CA PERMIT NO. 548
TOGETHER Run the L.A. Marathon (or two-person marathon relay) with us and we will help you cross the finish line with our personalized training program. Every step you take towards the finish line helps us cure pancreatic cancer. www.HirshbergTrainingTeam.com ASICS LA MARATHON MARCH 15, 2015