The IPPF Guide to Pemphigus and Pemphigoid: Information for Those Living with Pemphigus and Pemphigoid

We’re excited to share a new resource with our community: The IPPF Guide to Pemphigus and Pemphigoid (https://www.pemphigus. org/patient-resources/). The guide is intended to provide medically-reviewed information relevant to the most common questions people have when first diagnosed with pemphigus and pemphigoid (P/P), as well as educational information about ongoing disease management and treatment options.

Through this guide and other IPPF resources, we hope to empower the community with essential knowledge that can make living with P/P much more bearable. In addition to English, Spanish and French translations of the guide are available to read and download on our website.

“At this stage in your disease journey, there’s a good chance you are feeling many emotions and worrying about what this all means for your future. This is normal, as it’s common for people diagnosed with any chronic illness to experience depression, stress, anxiety, anger, confusion, and/or fear. Trying to understand pemphigus and pemphigoid and their treatments can be overwhelming, not to mention figuring out how factors like diet, sleep, and lifestyle may play a part in your individual experience. With this in mind, I assure you that the IPPF is here to support you on this journey,” wrote Patrick Dunn, IPPF Executive Director, in the publication’s introduction.

*The information in the guide has been reviewed by the Education and Patient Support working group of the IPPF’s Medical Advisory Council. The IPPF does not endorse any drugs, treaments, or products in this guide. Information is provided for informational purposes only. Because the symptoms and severity of pemphigus and pemphigoid vary among individuals, discuss all drugs and treatments with a patient’s physician(s) for proper evaluation, treatment, and care.