Message from the Executive Director

As I write my message for the 100th issue of the Quarterly, I am aware of the challenges we have all faced over the past few months. Although our lives have changed significantly due to the COVID-19 pandemic, there is one constant that I know remains: The IPPF is committed to improving the lives of all those affected by pemphigus and pemphigoid (P/P).

We know that many in the IPPF community are concerned about the spread of COVID-19, and we hear you. As we continue to learn more about the health implications of the pandemic, the IPPF will continue to provide valuable resources needed to manage your disease and life. Our staff is committed to providing you support through our peer health coach program, exploring the research of new treatment options, advocating on behalf of our community, and accelerating diagnostic times. What you may not realize is that we accomplish all of this with just four full-time and six part-time employees. Though our commitment is international in scope, the IPPF operates as a small nonprofit organization that has helped thousands of people over the past 25 years.

In this 100th issue, you will see many facets of our work on your behalf. We count on volunteer support from advocates, patients, researchers, and students to share their stories and move our initiatives forward. Their commitment, along with your support, allows us to continue to spread awareness of P/P, advocate for improved therapies, and continue to help us search for a cure.

As we move forward during these uncertain times, the IPPF remains vigilant in achieving our mission. Remember, if you need us, we are here for you. Our community is strong, and together there is hope.

Marc Yale IPPF Executive Director and MMP Patient marc@pemphigus.org