Stephanie mackay presentation april 2016 final

THE EMPLOYMENT ODYSSEY: A VIEW FROM THE CLIFF

PRESENTED BY STEPHANIE MACKAY, CHIEF INNOVATION OFFICER, COLUMBUS

MILLENIALS—THE POST-ADA GENERATION • 1975 Education for all Handicapped Children Act (Public Law 94-142) changed the integration of children into education, the building block for a future • 1990 American with Disabilities Act guaranteed equal access for individuals with disabilities • 2004 IDEA (Individuals with Disabilities Education Act) updated original Public Law 94142)

DISABILITY STATISTICS • 1 in 5 individuals in the general population has a disability • 1 in 10 families is impacted by developmental disabilities • 1 in 11 adults ages 16-64 is not in the workforce

LABOR STATISTICS 2014-15 Labor rate participation rate ages 16-64 (either employed or looking for employment (www.dol.gov/odep/): •

68.3% participation rate by adults without disabilities

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19.2% participation rate of adults with disabilities

Unemployment rate: •

4.5% unemployment for adults without disabilities

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12.1% unemployment for adults with disabilities

Not counted in the labor force: •

10,000,000 with disabilities who aren’t counted

3 generations after 94-142 and ADA, true unemployment rate is 65-90% depending on disability

FEDERAL REGULATIONS THAT PROTECT, FUND, BEFUDDLE FEDERAL AGENCY

SERVICES

Department of Justice

ADA (10 Federal agencies ensure compliance)

Public Education

Special Education, Vocational Rehabilitation, Ticket to Work, Pathways to Careers

Department of Labor

14C wage protection; FMLA

Health and Human Services

Medicaid funding for IDD support

Dept. Agriculture

SNAP, EBT, WIC

HUD

Section 8 Housing

Social Security Administration

Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI)

Transportation

Public transportation

Executive Branch

President’s Committee for People with Intellectual Disabilities, WIOA, Section 503

FEDERAL TO FAMILY Federal funding, statutes, rules, compliance State match, distribution, compliance, case management Local distribution through counties and municipalities Services provided through school districts, social services agencies, nonprofits Families receive services and supplement based on need, income, etc.

THE LIFECYCLE OF A FAMILY WITHOUT A DISABILITY Family & Child

Public Education (ages 6-18)

Acquisition of Family Income and TaxSupported Services Employment = Paycheck, benefits, taxes, continuing education

THE LIFECYCLE OF A FAMILY WITH A DISABILITY Family & Child

Redistribution of Family Resources for Caregiving

Public Education (ages 6-22) Government Entitlements & Social Services

LIFE FROM 0 TO 22 Ages 18-22

Ages 0-5 Socialization through family Medical care Childhood development Pre-school

Ages 6-17 Socialization through family and peers Medical care Childhood development Public education

Socialization with peers Medical care Post-secondary education Employment

THE CLIFF Ages 23+ Ages 0-5 Diagnosis Medical intervention Behavior intervention Family support Case management Caregiving Insurance

Ages 6-22 IDEA/IEPs Medical care/behavior intervention IDD support services VR support services SSDI and/or SSI Insurance/Medicaid Guardianship Special needs trusts Family finances Sibling relationships Caregiving costs Case management FMLA

Independent living dependent on family circumstances Safety net through entitlements Preparation for employment through limited resources

A FAMILY THAT FACED THE CLIFF

See their stories at: https://www.youtube.com/user/columbuscommunity

CAN WE LEVERAGE INNOVATION? Family with a disability

Government entitlements & social services

Family without a disability

Employment = Paycheck, benefits, taxes, continuing education

Can we find innovation in this space?

LEVERAGING INNOVATION IN UTAH TO SHIFT THE PARADIGM •

Nearly 0% unemployment in Utah and business leaders need to tap into an emerging labor force

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2% of population with ASD

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Government leaders want to respond to the need

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State funding agencies are talking to each other and service providers

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Social Impact Investing is being operationalized

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Social Impact Bonds are shifting funding paradigms

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Activist parents are being heard and taking action

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Conservative state with entrepreneurial business climate (e.g.

“Silicone Slopes”)

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University research and resources in cross disciplines

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Co-location of services geographically

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A strong ethic of service operationalized at all levels of society

FOCUS ON SUSTAINABLE, INNOVATIVE, TRANSFORMATIVE SOLUTIONS Nonprofits

Government

Employers

Family Funding sources

Research

Education