19 minute read
Managing bladder and bowel issues
and Bowel Issues MANAGING BLADDER
IN NURSERIES, SCHOOLS AND COLLEGES
PROBLEMS WITH BLADDER AND BOWEL CONTROL ARE AMONG THE MOST COMMON MEDICAL CONDITIONS THAT CHILDREN AND YOUNG PEOPLE EXPERIENCE
They are thought to affect over 900,000 people aged between 5 and 19 years of age, although this is likely to be an underestimate. Due to embarrassment, stigma and the mistaken belief that they children will grow out of the problems, many families do not ask for help.
There have been lots of press reports in the last few years about increasing numbers of children starting school in nappies.
Sometimes it is thought that families are not trying to toilet train their children. However, this is rarely the case. Most families do all that they can to support their child’s development but may not have any knowledge or experience with toilet training. They may have been advised to wait until their child is ready, without being given any information about what this means. There is some evidence that toilet training later than used to happen in previous generations, may be causing an increase in the number of children who have difficulties with continence (being able to stay clean and dry). Some children may have an underlying problem that makes toilet training more difficult such as constipation, sensory differences or a physical or learning disability. For primary aged children problems with bladder or bowel control may arise as the result of an underlying condition. Bedwetting, needing the toilet at short notice (appearing to leave it to the last minute), needing to go more frequently than is typical, or constipation may all impact on school. As bladder and bowel conditions are not talked about very often, there is a lack of understanding that these affect children of all ages. Therefore, teachers may understandably think that the child who is fidgeting because they need the toilet is just not concentrating or has behaviour problems. They may also think that the child who is asking to go to the toilet frequently is trying to escape from classroom routines or difficult work.
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For older children and teenagers, management of bladder and/ or bowel difficulties in school and college may be especially challenging. There is an expectation that they will use the toilet at break times only, with some schools and colleges even locking toilets at other times. Many young people report feeling isolated. They worry that telling others about their problem may result in bullying, or that teachers will not understand that they have a medical condition. The need to hide the problem and the difficulty of getting to the toilet as and when they need can affect mental health as well as learning. Over the last few years, the national charities Bladder & Bowel UK and ERIC, the children’s bladder and bowel charity, have had numerous calls to their helplines from worried parents, carers and school staff.
We have also had conversations with school nurses and children’s continence nurses who all told us that there was a lack of understanding of the causes of the problems and a lack of awareness of the role schools can and should play in supporting those affected by these conditions. The schools are very keen to help but need support.
Consequently, Bladder & Bowel UK and ERIC have come together and written a new document to fill the gap. ‘Managing Bladder and Bowel Issues in Nurseries, Schools and Colleges Guidance for School Leaders, Proprietors, Governors, Staff and Practitioners’ was published on 8th October 2019 and is available on the charities websites. It aims to be a comprehensive guide for education settings to help them to understand the numbers of children affected, the causes of the problems and what they can and should be doing to help. It includes the relevant legislation for the four countries of the UK, a sample intimate care policy, a sample care plan and a comprehensive index of continence conditions as well as a directory of sources of help.
To download a copy visit:https:// www.bbuk.org.uk/wp-content/ uploads/2020/01/ManagingContinence-Problems-inSchools-2019.pdf
Bladder & Bowel UK also have a confidential helpline for those who have bladder and/or bowel issues, for their families and for the professionals who support them at email bbuk@disabledliving.co.uk or on telephone number 0161 607 8219.
Bladder & Bowel UK have more information about toilet training, day and night time wetting, constipation and other children’s and adults’ bladder and bowel health issues, on their website at www.bbuk.org.uk.
This article was written by Davina Richardson, Children’s Specialist Nurse at Bladder & Bowel UK.
DON’T MISS THE FUTURE ISSUES OF KIDZ TO ADULTZ MAGAZINE
As well as being distributed at each of the Kidz to Adultz shows, you’ll find each new issue online, so you can always keep up to date with what’s new and read all the interesting articles.
Just visit... www.kidzexhibitions.co.uk
a thing of the past? IS UNDIGNIFIED FLIGHT TRAVEL
Ciara Crawford, an award-winning designer explains how her time working as a concept developer from an aircraft company led her to design a product to enable passengers to have a dignified flight experience. At the moment there is a lack of focus on the accessibility of aircraft or aircraft seats for people with reduced mobility. Most aircraft seat designs are focused on making the seats smaller and closer together, reducing the amount of independence and freedom for passengers with reduced mobility. This inspired the ROW 1 Airport Wheelchair System for aircraft accessibility.
All passengers should have an enjoyable and dignified flight experience, but for some travellers with reduced mobility, this is not the case. I have applied design to help such flyers, resulting in the ROW 1 airport wheelchair system.
The ROW 1 airport wheelchair system can take the passenger from the check-in desk at the airport, to their destination. It allows the passenger to use one seat for the whole journey, cutting down the amount of seat transfers they must do. The seat is parked onto and strapped into the existing aircraft seat to allow for quick and easy boarding and disembarking. The process is quick and simple, eliminating the concerns passengers have of being watched while boarding and being lifted by crew members into their seats.
It has been designed as simple as possible, it contains adjustable handles, armrests, and wheels for easy manoeuvring.
The design also features an automatic steering system that is controlled by the user. This allows for people with
reduced mobility to make their way through the airport alone if they would like.
After spending some time working as a concept developer for an aircraft company, and noticing the lack of focus on accessibility in the aircraft industry, I was inspired to design the Row 1 concept, with the aim of bringing independence and accessibility to a minority of passengers, which may otherwise be overlooked.
The design concept plays on the ideas of universal design/ design for all, as I believe that everybody should have the same flight experience.
I have won the title of Emerging Product Designer of the Year 2019 and the Row 1 concept has won a platinum prize award in transportation, aircraft and aerospace in the European Product Design Awards. The Product Design Award, in partnership with the European Parliament, recognizes the efforts of talented designers who aim to improve our daily lives with a practical and beautiful creation, designed to solve a problem and make life easier. The European Product Design Awards are open to designers from all over the world with entries from over 60 countries. I am delighted to have accepted the award at the Brody Studios in Budapest on October 3, 2019.
CHILD SEXUAL ABUSE – MAKING INQUIRY FINDINGS ACCESSIBLE TO ALL
The Independent Inquiry into Child Sexual Abuse has developed the Truth Project to be accessible to individual needs, making reasonable adjustments to ensure that survivors with a disability can play a crucial role in preventing all children from being abused in future.
For example, the Inquiry has established a service for survivors who are Deaf or hard of hearing, providing dedicated sign language videos and the option to attend a private session with Deaf facilitators. New research from the Independent Inquiry into Child Sexual Abuse has found almost half of victims and survivors who have come forward to its Truth Project have an illness or condition that affects their lives.
More than 4,000 survivors have now shared experiences with the Truth Project in England and Wales. Of these, 3,646 personal accounts have been analysed for research. Nearly half (47 percent) of survivors described a condition that limits their ability to carry out dayto-day activities, including blindness, problems with hearing, mobility and memory.
Helping to build a fuller picture of the impact of childhood abuse, figures released earlier this month by the Office for National Statistics revealed that 7.5 percent of adults have experienced sexual abuse before the age of 16, and those with a disability were twice as likely to have experienced sexual abuse than those without a disability (13.4 percent and 6.6 percent respectively).
The Truth Project heard that almost all survivors who shared their account were impacted by the abuse, with over a third (38 percent) talking about depression, and almost one in 10 describing a physical injury as a direct consequence of the abuse. Today, the Inquiry is also publishing a further 80 accounts shared with its Truth Project. This includes Kayden, who was diagnosed with a physical and learning disability, and then sent to a boarding school where he was abused, and Orla, who can hear but was sexually abused in a Deaf school. The Inquiry has developed the Truth Project to be accessible to individual needs, making reasonable adjustments to ensure that survivors with a disability can play a crucial role in preventing all children from being abused in future. For example, the Inquiry has established a service for survivors who are Deaf or hard of hearing, providing dedicated sign language videos and the option to attend a private session with Deaf facilitators. Chris Tuck, a member of the Inquiry’s Victims and Survivors Consultative Panel, said:
“Speaking as a survivor of child sexual abuse, the Truth Project provided a safe and supportive place for me to share my experience and help contribute to change.
I now live with PTSD, and physical pain related to mental distress, something which affects the way I live my life every day. If we are to protect children in the future, it’s important that we hear from everyone who has experienced abuse, to better understand the lasting impacts and help prevent it from ever happening again.”
Survivors of child sexual abuse who would like to share their experiences in writing, over the phone or in person can get in touch with the Inquiry's Truth Project.
For further information visit www.truthproject.org.uk or email share@iicsa.org.uk
On average it costs three times more to raise a disabled child, than a child without a disability.
Tree of Hope supports families to fundraise for the medical therapy, equipment and treatment that enables a child to thrive.
We enable families to fundraise under a registered charity, giving access to corporate donations, Gift Aid, access to trusts and foundations and giving donor reassurance. Plus fundraising and emotional support on the end of the phone when families need it.
www.treeofhope.org.uk
“Tree of Hope has helped my family’s dream become possible’’ Sue, Mother of Ella
Ella’s family raised £12,000 for a life changing piece of equipment that Ella uses daily to strengthen her muscles and improve her respiration which enables her to participate more in family life.
Medical conditions we have helped with include.. Cerebral Palsy, Autism, SWAN, Cancer, Global Development Delay and Cystic Fibrosis
Registered Charity in England and Wales No. 1149254 Scotland SCO42611
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WORLD DOWN SYNDROME DAY 21 st March 2020
HERE’S THE EASY WAY TO FIND WHAT YOU ARE LOOKING FOR...
The Disabled Living Supplier Directory provides information about companies and organisations that provide equipment, products and services to support disabled children, adults and older people.
You’ll fi nd the Supplier Directory on our website
www.disabledliving.co.uk
Scan for website EPILEPSY CARE SEIZURE DETECTION Medpage Limited T/A Easylink UK T: 01536 264 869 | E: sales@easylinkuk.co.uk W: www.easylinkuk.co.uk MedPageLtd/ @MedPageltd MEMORY & LEARNING AIDS GPS LOCATION TRACKERS WIRELESS VIDEO CAMERAS APNOEA BREATHING MONITORS HEALTH FITNESS SMARTBANDS RADIO CONTROLLED SECURITY Wi-Fi CONNECTED MONITORING AUTISM CARE Visit Medpage on Stand D1 Kidz to Adultz North Bring this add to our stand and receive a 15% discount on Show sale items With over 250,000 items in stock at competitive prices, we are offering you choice from a wide range of manufacturers including mobility aids, daily living products, and continence suppliers together with telecare and telehealth equipment. Shop online with Disabled Living for equipment and products to make life easier ...in partnership with What’s the advantage? The main advantage of purchasing via the Disabled Living website, is the opportunity for you or your clients to speak to Occupational Therapists or Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made.
www.disabledliving.co.uk/online-shop Telephone: 0161 607 8200 Charity number: 224742 With over 250,000 items in stock at competitive prices, we are offering you choice from a wide range of manufacturers including mobility aids, daily living products, and continence suppliers together with telecare and telehealth equipment. What’s the advantage? The main advantage of purchasing via the Disabled Living website, is the opportunity for you or your clients to speak to Occupational Therapists or Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made. The best of both worlds... shop online and get free professional advice
Over 250,000 items in stock at competitive prices
Medpage Limited has traded in the healthcare industry for over 35 years, specialising in developing technologies to aid care of people with Epilepsy, Austism, Dementia and Senior Care. Epilepsy Medpage have manufactured seizure detecting products for over 25 years. Our products are sold worldwide with an unrivalled reputation for accurate, affordable seizure detection. Autism Medpage actively promotes the use of Assistive Technology to aid people living with Autism. Our range of products can help with: Communication, Visual Scheduling, Motivation & Reward, Video Modelling and Independent Living. Dementia At the Alzheimer’s Show in London, Medpage launched the MemRabel 2i, a device that introduces the potential of Smartphone technology to create daily schedules, medication and important appointment reminders. Senior Care With a rapidly ageing population and lack of public funding to maintain adequate care for the elderly, independent living are the buzz words for this decade. Medpage are well placed to offer self-carer and professional carer technology solutions for: Home safety, falls detection, Alzheimer’s support aids and home carer support products. www.disabledliving.co.uk/online-shop Telephone: 0161 607 8200 Charity number: 224742 When you shop online with Disabled Living for equipment and products to make life easier you or your clients can speak to Occupational Therapists or Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made. Large choice from a wide range of manufacturers Mobility aids, daily living products, and continence supplies Telecare and telehealth equipment Why not take a look today at www.disabledliving.co.uk/online-shop Telephone: 0161 607 8200
Mascot Mk2: Hannah Bespoke, precision padding The considered choice in specialist adjustable beds for younger people Delivering quality, value and peace of mind • Market-leading paediatric bed specialist • Widest range of adjustable beds and cot beds • Beds available from stock • Assessments based provision with experienced Trusted Assessors • Safe, robust and long-lasting quality products • Outstanding value for money • 14-day Suitability Guarantee • Fully inclusive 3-year warranty • Working in partnership with Newlife • Will beat any like for like quote The considered choice because it is future proofed, saving money when needs change. The only fully modular bed that can be retrospectively changed from 4 to 8 doors with options to increase the height up to 120cm Olaf SEE US ON STAND C4 AT KIDZ MIDDLE NEW! Freephone: 0800 834654 Email: info@theraposture.co.uk www.theraposture.co.uk Mascot Mk2: Hannah Bespoke, precision padding adjustable beds for younger people Delivering quality, value and peace of mind • Market-leading paediatric bed specialist • Widest range of adjustable beds and cot beds • Beds available from stock • Assessments based provision with experienced Trusted Assessors • Safe, robust and long-lasting quality products • Outstanding value for money • 14-day Suitability Guarantee • Fully inclusive 3-year warranty • Working in partnership with Newlife • Will beat any like for like quote The considered choice because it is future proofed, saving money when needs change. The only fully modular bed that can be retrospectively changed from 4 to 8 doors with options to increase the height up to 120cm Olaf
Lotte Home and Away ON STAND C4 AT KIDZ MIDDLE NEW! Freephone: 0800 834654 Email: info@theraposture.co.uk www.theraposture.co.uk Mascot Mk2: Hannah Bespoke, precision padding adjustable beds for younger people Delivering quality, value and peace of mind • Market-leading paediatric bed specialist • Widest range of adjustable beds and cot beds • Beds available from stock • Assessments based provision with experienced Trusted Assessors • Safe, robust and long-lasting quality products • Outstanding value for money • 14-day Suitability Guarantee • Fully inclusive 3-year warranty • Working in partnership with Newlife • Will beat any like for like quote The considered choice because it is future proofed, saving money when needs change. The only fully modular bed that can be retrospectively changed from 4 to 8 doors with options to increase the height up to 120cm Olaf
Lotte Home and Away AT KIDZ MIDDLE NEW! Mascot Mk2: Hannah Bespoke, precision padding The considered choice in specialist adjustable beds for younger people Delivering quality, value and peace of mind • Market-leading paediatric bed specialist • Widest range of adjustable beds and cot beds • Beds available from stock • Assessments based provision with experienced Trusted Assessors • Safe, robust and long-lasting quality products • Outstanding value for money • 14-day Suitability Guarantee • Fully inclusive 3-year warranty • Working in partnership with Newlife • Will beat any like for like quote The considered choice because it is future proofed, saving money when needs change. The only fully modular bed that can be retrospectively changed from 4 to 8 doors with options to increase the height up to 120cm Olaf SEE US ON STAND C4 AT KIDZ MIDDLE NEW! Mascot Mk2: Hannah Bespoke, precision padding The considered choice in specialist adjustable beds for younger people Delivering quality, value and peace of mind • Market-leading paediatric bed specialist • Widest range of adjustable beds and cot beds • Beds available from stock • Assessments based provision with experienced Trusted Assessors • Safe, robust and long-lasting quality products • Outstanding value for money • 14-day Suitability Guarantee • Fully inclusive 3-year warranty • Working in partnership with Newlife • Will beat any like for like quote The considered choice because it is future proofed, saving money when needs change. The only fully modular bed that can be retrospectively changed from 4 to 8 doors with options to increase the height up to 120cm Olaf SEE US ON STAND C4 AT KIDZ MIDDLE NEW!
Freephone: 0800 834654 Email: info@theraposture.co.uk www.theraposture.co.uk Home and Away Need a free emergency cot or bed loan? We provide the Emergency Equipment Loan Services on behalf of Newlife, call us for more details Need a free emergency cot or bed loan? We provide the Emergency Equipment Loan Services on behalf of Newlife, call us for more details Freephone: 0800 834654 Home and Away Freephone: 0800 834654 Email: info@theraposture.co.uk www.theraposture.co.uk Home and Away Lotte
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Need a free emergency cot or bed loan? We provide the Emergency Equipment Loan Services on behalf of Newlife, call us for more details Scan for an information guide YOUR INDEPENDENCE, OUR COMMITMENT Theraposture Limited, Kingdom Avenue, Northacre Industrial Park, Westbury, Wiltshire. BA13 4WE. Open: Monday – Friday, 8:30am–5:30pm. Answerphone messages can be left at all other times PROUD TO WORK WITH THE NEWLIFE FOUNDATION FOR DISABLED CHILDREN YOUR INDEPENDENCE, OUR COMMITMENT Theraposture Limited, Kingdom Avenue, Northacre Industrial Park, Westbury, Wiltshire. BA13 4WE. Open: Monday – Friday, 8:30am–5:30pm. Answerphone messages can be left at all other times PROUD TO WORK WITH THE NEWLIFE FOUNDATION FOR DISABLED CHILDREN Email: info@theraposture.co.uk www.theraposture.co.uk Need a free emergency cot or bed loan? We provide the Emergency Equipment Loan Services on behalf of Newlife, call us for more details Scan for an information guide Need a free emergency cot or bed loan? We provide the Emergency Equipment Loan Services on behalf of Newlife, call us for more details Scan for an information guide
