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Bladder and Bowel UK Newsletter

has been healthcare the 1950’s. en Awards.

Care Home Newsletter

July 2018

CELEBRATING 70 YEARS OF THE NHS Stories from our Specialist Nurses

DONKEYS AND BBUK What's the connection?

KIDS WEARABLE TECH Self management of continence problems

FESTIVAL SEASON Top tips for your patients

Charity number: 224742


Explore our key features 70 years of the NHS - BBUK share their stories..........................................................4 Autism and bowel problems - is there a link?..............................................................7 Tips for travelling with a continence problem...............................................................8 Updating your CPD - dates for your diary...................................................................11 Kids wearable tech - an IMPRESS project.................................................................12 Bladder and Bowel UK's Enuresis Award...................................................................14 Pelvic floor exercises for young people......................................................................16 B. Braun donates ÂŁ500 to BBUK................................................................................17 Loo of the month.........................................................................................................21

Disabled Living Have a Top UK Disability Blog

Bladder and Bowel UK are proud to feature on Disabled Living's blog. Disabled Living are pleased to announce that we have been listed on Feedspot's Top 10 UK Disability Blogs. Popular features include: advice on equipment & training, disability travel, bladder and bowel topics and so much more. Content is also created from those listed in our Supplier Directory, contributors who have knowledge of disabilities, Redbank House, Bladder Bowel UK, Kidz to Adultz Exhibitions and their exhibitors. Click here to see Disabled Living in second place!


Celebrating 70 Years of the NHS BBUK Team Share their Journey with You The National Health Service turned 70 on 5th July 2018. It’s the perfect opportunity to celebrate the achievements of one of the nation’s most loved institutions, to appreciate the vital role the service plays in our lives, and to recognise and thank the extraordinary NHS staff – the everyday heroes – who are there to guide, support and care for us, day in, day out.

Karen Irwin Just a Part of Karen's NHS Journey I started my NHS career in 1986, a Lancashire lass, travelling down to the lovely city of Canterbury, to undertake my training. We had small nursing sets back then, with only nine in my January intake, with new students starting every two months. On completing my training I moved home, back up north, and started my nursing career working in neuro surgery and neuro medicine. I later moved to a post in community nursing services to gain my district nursing and postgradate academic qualifications. It is through this role as a district nurse, I developed a passion for continence. I would always volunteer to undertake the district nursing continence assessments, bu these were not only just on my case load, but also for my colleagues. I remained hopeful my nursing career would one day lead to a position in the continence world! Many of you may remember Ian Pomfret, Continence Advisor at Chorley, who I would always ask: “Any jobs Ian?" (He would probably say, I mithered him!) A job became available and I was successful joining his team as Continence Promotion Nurse in 1995, for residential and nursing homes. A dream come true! This role enabled me to have not only a super mentor, but provided me with a sound introduction to continence care, developing my

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skills and knowledge, to become an educator, increasing my academic qualifications and be involved with other projects in an area that I knew I would stay in until the day I retire. The service I set up was nationally recognised and highly commended in the final of the Nursing Time Awards. Through Ian, I had my first introduction to the work of PromoCon, or BBUK as we are now known. PromoCon were asked to produce a video about promoting continence, to help support those caring for people, with continence problems; a teaching aid that could be incorporated into training. Sue Johnston, who many of you may remember from from the television programme 'The Royal Family', agreed to participate as the presenter.


So how was this put together? A script was first needed and I volunteered to be filmed, delivering a training session, based on the training I delivered to the care homes in my own Trust at that time. This was then used as a basis for the video script, all good fun and wonderful to see the end product in video format, which is probably now more a historical / archive piece! Along the way, I have held other continence positions, working with like minded, passionate colleagues in the NHS and beyond. With these teams, I have celebrated the success of being recognised nationally, for the work and services we have provided in this area of care. Not everyone gets excited about this area of healthcare in the same way as us continence, bowel nurses and other professionals do. A slight change in career direction, still within the speciality,

led me to join the team at PromoCon – now Bladder and Bowel UK about 5 years ago, progressing to the position of Service Manager. I continue to maintain my NHS clinical specialist nurse practice within the Pelvic Floor service at University Hospital of South Manchester NHS Foundation Trust. Having a dual role working across both third sector and NHS practice provides diversity to my roles. Today we are seeing more cross over with NHS / Social and third sector services, all working together to improve the care and services for our patients and their families / carers. Karen Irwin, Service Manager/Specialist Nurse

Davina Richardson

Children's Continence Nurse - Why would you want to do that? This was the question that I was asked when I told my manager that I had applied for a job as a Children’s Continence Nurse. She believed, as did so many others I spoke to at that time, that the job was simply about handing out nappies! At the time, I was working in the community supporting children with complex needs, life-limiting and life-threatening conditions. That was varied, demanding and interesting work, but I had a fixed-term contract that was ending and I needed to find something else. Initially I was not interested in the advertised continence role and felt there was no point in applying, as I did not have any of the specialist knowledge and skills required. It was only when a friend who was a school nurse said she thought it would be an interesting role that I looked further into it and realised how many of my existing skills, knowledge and experience were transferable.

What I loved about working with children with complex needs was getting to know them and their families over a period of time and then using my understanding of the impact of their health condition on them, to suggest ways of reducing the negative impacts. I enjoyed problem solving, the degree of autonomy that working in the community afforded, and the way that I was able to 5


offer support that made a difference to lives. What I discovered was that none of that is any different working within continence. In fact, the potential to improve quality of life in an area where there is significant psychological suffering due to embarrassment and social stigma is huge. For me the added bonus of working in a specialist area is that I have been able to develop in depth knowledge about conditions that cause so much, often hidden, suffering to people of all ages and abilities and I am able to use this to support individuals as well as trying to have a wider impact through education and resource development. Through my work with Bladder and Bowel UK I am able to support individuals, parents, carers, young people and professionals who contact our helpline for support and advice; deliver education to a wide range of people including at professional study days such as our annual symposium and paediatric education day, to family support groups organised by other charities, to families, carers and professionals who attend the Kidz to Adultz events organised by my colleagues at Disabled Living, the charity that encompasses Bladder and Bowel UK, and influence good quality care through publishing articles in professional journals and providing information through the development of our leaflets and resources, which are all available on our website at www.bbuk.org.uk. Alongside this work I am able to represent the needs of children and young people on the Paediatric Continence Forum, a national lobbying group for improved continence services for children and young people; I am an on the Executive of the Association for Continence Advice (ACA) and sit on their Education

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Committee as well as editing their quarterly magazine. There is also the opportunity to influence change at a national level through responding to national consultations, such as the recent one from the Nursing and Midwifery Council on the role of the Nursing Associate, Davina in deep and through involvement in the conversation with production of RightCare style David Drew MP patient journeys and national guidance such as the Guidance on Provision of Continence Containment Products to Children and Young People, which is available here: bbuk.org.uk/professionals/professionalsresources There is also the opportunity to influence change at a national level through responding to national consultations, such as the recent one from the Nursing and Midwifery Council on the role of the Nursing Associate, and through involvement in the production of RightCare style patient journeys and national guidance such as the Guidance on Provision of Continence Containment Products to Children and Young People. Working in the specialism of children’s continence is rewarding and exciting. It is not what I anticipated doing when I first started my training as an RGN/RSCN in the days when the NHS was much younger than it is now and there were fewer concerns about resources, but I would not change any of my journey to this role or any of the years I have spent undertaking it. Where's next? Hopefully I will remain in this specialism for many years to come and continue to highlight the need for excellent continence services for all and I hope that I will see the day when no one asks "Why would you want do that?" when someone talks about specialising in continence care. Davina Richardson, Children's Specialist Nurse


June Rogers MBE Celebrating 50 Years of Being a Nurse As the NHS celebrates its 70th year I find myself celebrating 50 years since I first became a nurse! During that time I have seen a raft of changes – some not so good although most were for the better. Working as a nurse has given me lots of opportunities I may not otherwise have had. I have become an author and public speaker presenting papers as far apart as Boston, Singapore and Dubai. I was very fortunate in my early career to have managers who were forward thinking which allowed me to develop my role from a Special School Nurse to working primarily with children and young people with bladder and bowel problems. In the early 1990’s I set up one of the countries first nurse led paediatric continence services which led to me being awarded an MBE in 1997. Since then I have gone on to win a number of nursing awards. To the right is a picture from the front cover of Primary Health Care from 1992, with a very young me as a school nurse, which was then celebrating 100 years of school nursing. How time flies... June Rogers MBE, Children's Specialist NurseÂ

Autism & Bowel Problems Is there a link?

Dry Like Me have been talking about poo issues when potty training children. They spoke to one of our Children's Continence Nurses, June Rogers and asked her about the links between autism and bowel problems. View the video here. 7


Travelling with a Continence Problem

General suggestions Contact the airline or travel company to discuss your individual needs before booking/travelling. Think about what you need to carry with you, such as medicines and products. You may need to have a letter from your doctor to be allowed to carry them through security. Contact the transport operator before you travel, if you are worried about luggage or body searches and possible exposure of your continence products. Ask the operator if you can board early, to ensure you have time to get settled with everything you may need during the flight easily accessible. Disposable continence pads Disposable pads can take up a lot of space. Consider trying more absorbent pads so that you need to take fewer of them, or smaller pads that take up less space. Make sure you obtain the products you are going to need for your trip well ahead of your travel date. A vacuum pack bag can help to reduce the amount of space pads take in your luggage Consider using other products e.g. Men could consider using a sheath instead. Booster pads inside your usual product may increase absorbency for long journeys and could be removed part way through the journey. 8

Would you be able to manage washable products while away? These take up less space. Ask your product provider whether they are able to deliver direct to your holiday destination, or send a supply ahead yourself, but take some in your luggage, in case there is a problem and they do not arrive. Ensure you have some spare products in your hand luggage in case your main luggage is lost or delayed and divide your pads between your luggage and that of a travelling companion if you are happy to do so.


Contact the airline to see if there are luggage restrictions or if continence products would be exempt as are some other categories of equipment, such as wheelchairs. Remember you will have less to bring home with you as most of the pads will have been used. If you are worried about leakage, consider having a chair protector for the flight Consider the climate of where you are travelling. Dampness can affect the absorbency of pads; heat can affect the adhesive tapes, for example on sheaths. Catheters Catheters are not the right option for everyone, but might be easier to manage on a flight. Consider discussing with your healthcare professional whether this would be an appropriate or safe option for you. An indwelling catheter might be an option during travel for someone who usually uses intermittent catheterization. Managing catheters on flights Consider having a urinal, such as a uribag to empty catheter bags into. A travelling companion can then take it to the toilet to empty this for you. Ensure that you carry spare catheters, bags and any other equipment you may need with you. Ensure you have some spares, in case of delays etc. Divide your catheters and supplies between your hand and hold luggage and consider giving some to a travelling companion, in case of luggage delay or loss. Have hand sanitizer and wet wipes in case access to a sink and soap is limited. Obtain a medical validation or travel certificate from your catheter provider. It will explain in different languages why you are carrying catheters and also has a section urging officials to be discrete.

• Consider using ready-to-use hydrophilic catheters if you are travelling in countries with poor water quality.

Accessing the toilet Try to book a seat near the toilet and on an aisle. Consider using a pad inside close fitting. underwear, in case you cannot get to the toilet quickly enough. Think about taking wet wipes with you and having a small bag with one change in it and easily accessible throughout the flight Consider using a urinal or urine director if you struggle to move easily. Be aware that you may become a bit numb if you are sitting on the plane for a long time and plan a toilet visit for a set time, even if you are not sure you will need it then. Be aware that some people find that they are more likely to leak larger amounts of urine when the plane starts to descend. Consider planning a toilet visit just before that time. If you are not sure what the toilet facilities are like at your arrival airport consider a toilet visit before decent begins and access to toilets on board is restricted. Clothing Wear clothing that is comfortable and easy to rearrange when accessing the toilet. Elastic waists, drop front pants (ones that have poppers or Velcro on the side seams can be easier to manage.

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• Dark coloured clothing makes leaks less visible. • Loose fitting clothing is easier to remove. Consider having a spare set of clothing and a plastic bag in your hand luggage in case of leaks. Fluid intake Ensure that you drink enough. Plenty of water will prevent dehydration, help to protect against urinary tract infections and ensure that urine remains dilute. Concentrated urine can irritate the lining of the bladder and increase wetting. Avoid tea, coffee, hot chocolate and alcohol. All of these increase urine production. Avoid fizzy drinks as these can irritate the ladder lining.

Bowel issues Try to stick to your usual diet routines when travelling to avoid feeling bloated, nauseous or uncomfortable. Digestion and body clocks can be upset by crossing time zones. Try to move as much as you can, particularly on long flights. This will help with both circulation and digestion. Discuss with your health care professional whether an enema or suppository a few hours before the flight would be an appropriate way for you to try and avoid a bowel motion during the flight. Additional information If you have further questions or any concerns, then contact your health care professional. Or you can contact us by email at: bladderandboweluk@disabledliving.co.uk or by telephone: 0161 607 8219. Davina Richardson, Children's Specialist Nurse


Dates for your diary Adult Bowel Education Day Date: Tuesday 25th September Venue: Redbank House, Manchester Price: £25

Topics include: Physiotherapy Led Healthy Bowel Clinic (BBUK Bowel Care Award Winner 2018) RCN Guidance on Management of Lower Bowel Dysfunction including DRE and MRF - update Constipation Treatment and Management Spinal Injury Bowel Management Expert Patient Experience

Paediatric Continence Promotion Day Date: Tuesday 16th October Venue: Redbank House, Manchester Price: £25

Topics include: • Constipation • The Psychological impact of incontinence • Working with schools in Durham • Enuresis Award winners • Using data to support service development This day has a company exhibition with all the latest Children’s and Young People continence products

The cost for both events is £25 payable at time of booking. If you would like to join us for either of these days or become a member of either of our education groups (adult bowel or paediatric) please email bladderandboweluk@disabledliving.co.uk . UK National Annual Symposium 2019 Date: Wednesday 6th March Venue: USN Bolton Arena, Arena Approach, Horwich, Bolton, BL6 6LB Price: £30 This day has three concurrent education streams: Adult Bowel, Adult Bladder, Paediatric. The symposium offers an extensive company exhibition. Booking is essential, as it will get sold out!

For further details on any of the study days please contact us on Tel: 0161 607 8219 or email bladderandboweluk@disabledliving.co.uk or see our website. A booking form and payment must be received prior to the event to secure your place. We are also taking bookings for companies to attend all these events.

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Kids Wearable Tech Project Summary

This project aims to improve support for primary school aged children affected by continence problems in self managing their condition with the level of discretion they aspire to and expressed at our Kids Toilet Talk workshop in September 2017, particularly at school and in leisure pursuits outside the family home. Leeds University, in collaboration with the Devices for Dignity Medtech Co-operative’s TITCH Network, based at Sheffield Teaching Hospitals NHS Foundation Trust and the Bristol Medical School at Bristol University, seeks to develop a mobile device app targeted at the 5-9 years age group. This is intended to be a piece of free downloadable software which responds to the specific requirements of these younger children, their parents and healthcare professionals. Software that is capable of customisation in tune with the marked changing aspirations naturally occurring through the course of child development across this age range, and incorporating adjustable parental control appropriate to a child’s increasing independence. Through collaboration with TITCH the project will be undertaken in conjunction with the newly formed NIHR Children and Young People MedTech Co-operative (CYPtech) which will add its considerable scope and networks to the project. Equally so recent work by Bristol University towards developing a similar app for young people aged 10 upwards will inform this project with invaluable resource and allow the scope of work to encompass both northern (Leeds/Sheffield) and southern (Bristol) regions of the UK with all collaborators actively involved in the research. The research will begin in late June 2018 with an online survey of user requirements which will then be bolstered by a participatory workshop in August for ~15 children in the 5-9 age group. Following feedback from this event and the online survey results a wireframe for the app will be developed by design specialists for virtual testing by potential users during September. From this point onwards the aim will be to develop a trial version of the app software, and to then invite the same group of children to an event in December to try out the app in smart watches in a fun setting such as the Thackray Medical Museum in Leeds. During this project we would like to receive feedback from clinicians on the design development, particularly at the milestone stage when the wireframe has been designed and tested and near the end of year when a trial version of the software has been developed. Research Team Dr Peter Culmer – IMPRESS Principal Investigator P.R.Culmer@leeds.ac.uk Dr Carol Joinson – Reader Developmental Psychology, Bristol Medical School Carol.Joinson@bristol.ac.uk Mrs Sarah King – IMPRESS Project Manager S.King@leeds.ac.uk Mr Nathaniel Mills – TITCH Network Project Manager Nathaniel.Mills@sth.nhs.uk Dr Katie Whale – Research Fellow Bristol Medical School Katie.Whale@bristol.ac.uk Ms Gem Wheeler – TITCH Network Research Designer gem.wheelerdesign@gmail.com 12


Visit Bladder and Bowel UK's Online Shop

Visit: www.bbuk.org.uk/online-shop/ or call: 0161 607 8219

We are delighted to be working in partnership with Complete Care Shop to provide you with a comprehensive online shopping facility for equipment and products to make life easier. Complete Care Shop has over 250,000 in stock items at competitive prices offering you choice from a wide range of manufacturers including disposable pads, pants, urinals, bedding protection, disposal and reusable bed and chair pads, wipes, gloves and a whole lot more. The main advantage of purchasing via the Bladder and Bowel UK website, is the opportunity for you or your clients to speak to Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made.


Bladder and Bowel UK Enuresis Award

Bladder and Bowel UK are delighted to have received support from Slater and Gordon to be able to launch the first ever Enuresis Award with a £500 prize. In addition the prize includes expenses to attend and speak at the Bladder and Bowel UK Children’s Education Day on 16th October at Redbank House, St Chad’s Street, Manchester. Why have an Enuresis award? Enuresis used to be considered a benign condition that was self-limiting. However, we now know that children and young people, do not always outgrow the problem and those who are most severely affected are least likely to spontaneously recover. In addition, it causes reduced self-esteem and self-confidence; may be associated with other bladder and bowel problems; disturbs sleep which has a knock-on effect on daytime behaviour and learning; and negatively affects social opportunities, such as sleepovers and school trips. To raise awareness of bedwetting the International Children’s Continence Society and the European Society for Paediatric Urology launched World Bedwetting Day in 2015. Bladder and Bowel UK have worked with others to promote this event and disseminate information. 14

However, we felt that an award would not only help to further the aims of World Bedwetting Day, but would help to recognise the work of those children’s health care professionals who work tirelessly to support children, young people and their families with this condition. Why apply for an award? Working in the field of healthcare today is difficult and demanding. Barely a day goes past without a headline about the lack of resources or some failure in health services. We feel it is time to celebrate all the hard work that is going on, particularly in an area that is associated with significant stigma and embarrassment for patients. Winning an award, not only brings the immediate benefits of the prize – in this case money to spend any way you would like, but also is an opportunity to validate


achievements, share good practice, inspire others and positively promote and advertise services. Decision makers are often more supportive of service development when external assessors have recognised exceptional practice. So there are many less apparent benefits! What about the Enuresis Award? The Bladder and Bowel UK Enuresis Award 2018, aims to recognise an individual or team, working within the NHS, or independent sector, who is able to demonstrate that they have made a difference to the care of children or young people with bedwetting. It is designed to highlight good practice and disseminate this to other health care professionals to enhance patient care. The work submitted needs to either be linked with World Bedwetting Day, or demonstrate how outcomes for children or young people with bedwetting have been improved.

How to apply Send your competed application form and 500 word summary of the work you have undertaken by email to: bladderandboweluk@disabledliving.co.uk or post to: Bladder and Bowel UK, Disabled Living, Burrows House, Priestley Road, Worsley, Manchester M28 2LY. Entry forms and more detailed information are available here. Closing date 30th July 2018 For more information about Bladder and Bowel UK and Disabled Living’s services and resources go to: www.bladderandboweluk.co.uk www.disabledliving.co.uk

Continence Product Section of Disabled Living's Supplier Directory

There is a section on the Disabled Living Supplier Directory dedicated to continence and stoma products. In addition there are a wide range of categories providing information about companies and organisations that provide equipment, products and services to support disabled children, adults and older people. Access to the Supplier Directory is via the BBUK website. 15


Pelvic Floor Exercises for Young People

A new video about pelvic floor exercises for young people. A few years ago the Association for Continence Advice (ACA) produced an award winning leaflet for young people titled “Your Pelvic Floor� leaflet. The aim of was to educate teens about pelvic floor muscle training and why this is necessary and important, with the hope that they would see this as part of a holistic approach to keeping themselves healthy. The leaflet is still available from the ACA, relevant and widely used.

Incontinence is never normal and we are increasingly aware of the social and psychological implications, particularly for young people. Therefore, the pelvic floor leaflet and video are a way of normalizing prevention and allowing future generations access to education on this topic.

However, it was felt that to increase the educational impact for this age group, the leaflet should be replicated in a digital format that young people could access easily without the need to go through healthcare professionals. Therefore, a video of the information in the leaflet has been produced and was launched at the ACA conference in May.

The ACA ask that information about the leaflet and video are shared widely and have noted that all age groups seem to find the leaflet helpful. Leaflets are available direct from the ACA. The video is available at: https://youtu.be/v731EXFR2k4

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Thank You to B. Braun

BBUK were delighted to be presented with a cheque for £500 from B. Braun's 'Giving Something Back Campaign'. As part of an ongoing aim to help improve the lives of patients and make a positive impact in our local communities, the B. Braun Emerald Prescription service offer a charitable donation to two chosen charities each year. Since the campaign started in 2012, they have supported a wide variety of charities and made significant donations to help these organisations carry on the great work they complete on a daily basis. Sarah Marubbi, Product Manager at B. Braun said: "Each year we choose charities that have a link to the work we are doing via the conditions B. Braun products help assist. So this year we are delighted to help Bladder & Bowel UK, who make such a difference to people’s lives." Emerald‘s main aspire to make people’s lives as convenient as possible. They are able to achieve this by providing you with a personalised and reliable home delivery service. Their deliveries include ostomy and continence products, which are delivered in an unbranded packaging so that they maintain they discreet service. Once your prescription has been ordered, Emerald is sure to have your products with you within 48 hours. Their dedicated team over friendly customer service Monday until Friday.

Karen Irwin, Service Manager highlighted: "The team at Bladder and Bowel UK aim to make a positive impact on people’s lives, and we are delighted to receive this charitable donation from B. Braun Emerald Prescription Services." We create strong relationships with people and organisations throughout the UK who are as committed as our wider team to making a difference for people with bladder and bowel problems. Our Specialist Nurses and Product Specialists have developed an extensive amount of knowledge and experience to help you and your patients. Thank you B. Braun for choosing Bladder and Bowel UK. 17


What Do Donkeys Have to do with BBUK? Donkeys to Innovators Celebrating 120 Years of Disabled Living

Bladder and Bowel UK is a service of our charity, Disabled Living. Throughout 2017 Disabled Living celebrated 120 years of providing services which led to the opening of the exhibition. The Lord Mayor of Manchester and the Ceremonial Mayor of the City of Salford raised a toast to Disabled Living in officially opening our exhibition. The exhibition comprises a timeline highlighting our heritage, together with the opportunity to view some of our archived materials. It celebrates 120 years of independence and innovation by our charity. Ana Osborne from the Heritage Lottery Fund and Kui Man Gerry Yeung OBE DL, President of Disabled Living, also gave a speech. Throughout the year, we’ve made a series of short films primarily about the services we have provided. Another film was produced by young people with disabilities and additional needs. They interviewed older people and discussed their aspirations for the future. Cherylee Houston (Izzy Armstrong from public, social media tweeters, and new volunteers Coronation Street) worked with the young people that have been amazed by the facts we’ve during their filming adventure. discovered. Through our marketing, events, and word of mouth, we’ve really generated a lot of We also interviewed a number of people who engagement with our history. shared their memories of our charity. These oral history interviews are available to listen to via Debra Evans, Chief Executive of Disabled Living SoundCloud. said: We’ve had staff members, community curators, designers, printers, oral history experts, film makers, archivist, Heather Roberts, and creative cultural consultant, Claire Turner involved in the project. And we’ve also had members of the 18

I’ve enjoyed meeting new people and hearing their stories. It’s amazing to see how one story leads onto another story. There’s so many fascinating facts I’ve come across throughout this project. Thank you to everybody who has made From Donkeys to Innovators a huge success.


Watch Our Donkeys To Innovators Film

Watch Our Donkeys to Innovators Film

SEPTEMBER 2017

Please click here to subscribe to our YouTube channel.

Listen to Our Oral History Interviews

Click here to listen to people share their memories of our charity. 19


Don't Get Caught Short at Festivals!

The festival season is upon us and for many people, accessing the toilets can be a problem, even without having a bladder or bowel problem. Alongside the usual public toilets that are available, many festivals nowadays advertise additional toilet services, e.g. “VIPee Loos�, that will require pre-payment to access the facilities, that can include hot running water, sinks, mirrors, dryers and some with attendants on hand. So it may be helpful, if you are asked by your patients about toilet facilities at festivals, to have a look on the actual festival website, to see what range of toilet facilities are offered, paid and none paid.

distance from facilities, toilet points, types of toilets e.g. portable, compost toilets, long drops, wheelchair accessible toilets, thus enabling people to try and pre-plan their visit to the festival.

There also a number of handy portable / travel urinals that can be obtained or purchased, these include: The Travel John, She Wee, Male and Female Travel Urinal, Uriwell, Disposable Urine Bags, Female Urinal Guide, disposable toilet seat covers, to name a few.

Browse a range of urinal bottles and other continence products via our online shop.

It may also be useful to carry small packs of tissues / wipes, antibacterial hand gel, and a small torch for night time use. Other useful tips can be also be accessed on the individual festivals websites for camping

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For further product information or further advice contact us here at Bladder and Bowel UK on 0161 607 8200.


Loo of the Month Outdoor Toilets at a Festival in Southampton

Connect with us on social media As you know Bladder and Bowel UK is active on the Twitter, LinkedIn and Facebook social media networks, if you have anything that you wish us to share for you just get in touch, or tag us in. Please follow us, like us and connect with us!

@Bladder-and-Bowel-UK

@BladderBowelUK

Bladder and Bowel UK

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Disabled Living's Services

Watch Our Donkeys to Innovators Film

Disabled Living is a charity which provides impartial information and advice about products, equipment (assistive technology) and services for disabled children, adults, older people, carers and the professionals who support them. We have a range of services which you can access via our helpline, through the website or at our Kidz to Adultz Exhibitions. Equipz The team comprise occupational therapists, trusted assessors, moving and handling specialists, physiotherapists, nurses, continence specialists who together with knowledgeable information co-ordinators offer practical solutions to what may seem like unmanageable problems. The staff, respond to enquiries throughout the UK, primarily via our helpline and website, with some people opting to make an appointment to visit the Disabled Living Centre based in Manchester for a free equipment assessment. Helpline: 0161 607 8200 Bladder and Bowel UK The team provide information and advice for children, young people and adults with Bladder and Bowel problems. We provide a confidential helpline managed by a team of specialist nurses and knowledgeable information staff. In addition, the website offers a wide range of downloadable free resources. Helpline: 0161 607 8219 Kidz to Adultz Exhibitions Disabled Living organise the largest FREE UK exhibitions totally dedicated to disabled children, young adults, their families, carers and the professionals who support them. With over 100 exhibitors at each event, offering a ’One Stop Shop’ for equipment products and services to enhance the quality of life. We deliver 5 events throughout the UK in: Farnborough, Bristol, Coventry, Manchester and Edinburgh. Training Disabled Living provides a comprehensive training programme for professionals and carers. Most of our courses are accredited by Open Awards and others provide CPD opportunities. Our training courses can be ‘tailor made’ to suit your organisations requirements and can be delivered throughout the UK for more detailed information on the courses we provide please visit the Disabled Living website.

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www.disabledliving.co.uk

0161 607 8200


Get in touch with us

For more information please visit: www.bbuk.org.uk

Bladder and Bowel UK Head Office - Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester M28 2LY Tel: 0161 607 8200 Email: info@disabledliving.co.uk Website: www.disabledliving.co.uk

BBUK Newsletter July 2018  
BBUK Newsletter July 2018