Bladder & Bowel UK March Newsletter 2019

Bladder & Bowel UK Newsletter March 2019

EMPOWERING FAMILIES The NHS 10 Year Plan

REVISION OF CONTINENCE PRODUCT GUIDELINES Hot off the press

LOOK GOOD FEEL GOOD AWARD Do you want to be a judge?

HOW DOES IT FEEL TO BE IN THE DOCK? Watch our new film

Charity number: 224742

Explore Our Key Features

Empowering families.....................................................................................................................4 New promotional film for 'In the Dock'...........................................................................................7 Revision of Continence Product Guidelines..................................................................................9 The 22nd 'Look Good, Feel Good Award'....................................................................................11 talkhealth - Online Clinic for Bowel Issues & IBS.........................................................................12 Loo of the Month..........................................................................................................................14

Proud to Support the BBUK Helpline

The NHS 10 Year Plan - Empowering Families

The NHS 10 year plan calls for a ‘fundamental shift’ in the way that the NHS works alongside patients and individuals. It highlights the need to create genuine partnerships between professionals and patients and it commits to training staff to be able to have conversations that help people make the decisions that are right for them.

There is also a commitment to increasing support for people to manage their own health. This forms part of a broader cultural change, moving towards what they have described as ‘shared responsibility for health'. Shared responsibility is not the same as personal responsibility, which places the onus on people to ‘look after themselves’ and ‘use services responsibly’. The starting point is that most people already take responsibility for their own health and care. However, the belief is that more could be done to reduce over-dependency on services and to draw on people’s own expertise. There is acknowledgement that this is easier for some people than for others.

Previous work undertaken within a children’s bladder and bowel service identified the 4

benefits of empowering families to self manage a range of paediatric continence problems (Rogers 2012).

If families have a good understanding of the problem their child is experiencing and have the appropriate information to self manage that problem, they are more likely to support their children throughout the process, resulting in improved outcomes.

Information can be obtained from a variety of sources. Clerici et al (2012) reported several benefits to using digital social media and noted that online videos are a more effective way of sharing health information than written text.

They also reported that it was easier for patients to describe their experiences and first hand impressions of their disease, using videos they had seen on YouTube.

Li et al (2012) also discussed the advantages of digital media to deliver specifically targeted videos to population groups, who find using this information and resources is easier than with written text.

Other benefits of social media found by Thielst were that using social media based videos rather than text interventions can have increased impact on patient empowerment and patient engagement, for a variety of health behaviours.

The authors also noted that for those with poor literacy skills, video provides a userfriendly approach to sharing and understanding health information.

To that end Bladder and Bowel UK are developing a range of short YouTube videos to help inform families about common childhood bladder and bowel problems. The first 2 videos which discuss the causes and treatment of bedwetting are available to view online at:

Additionally, videos, especially ones using animation, can help reach ethnic population groups. Thielst (2011) reported that social media can help patients find information when they are diagnosed with a condition that requires ongoing treatment and management.

The author noted that social media technologies can be used to reduce the utilization of health services and improve both patient responsibility and acceptance.

Causes of Bedwetting https://youtu.be/6RHEZv4hTcQ Treatment of Bedwetting https://www.youtube.com/watch? v=WE4Y8I6f_3Y June Rogers MBE Children's Specialist Nurse

Visit Bladder & Bowel UK's Online Shop

We are delighted to be working in partnership with Complete Care Shop to provide you with a comprehensive online shopping facility for equipment and products to make life easier.

Complete Care Shop has over 250,000 in stock items at competitive prices offering you choice from a wide range of manufacturers including disposable pads, pants, urinals, bedding protection, disposal and reusable bed and chair pads, wipes, gloves and a whole lot more.

The main advantage of purchasing via the Bladder & Bowel UK website, is the opportunity for you or your clients to speak to Continence Specialists for free impartial help and advice, ensuring unnecessary purchases are not made.

Visit: www.bbuk.org.uk/online-shop/ or call: 0161 607 8219

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Watch Our New Promotional Film 'In the Dock' with an Expert Witness

Click here to watch the video via our website

A Workshop for Healthcare Professionals - Bladder & Bowel Specialists, this includes you!

There are different scenarios which could end up with someone being summonsed as a witness.

Whether it is a coroner's court or a civil negligence case this workshop will help you to understand what will be required and how to improve your practice so that a court appearance will be less intimidating. Using real life scenarios, expert witnesses and solicitors will lead you through the process and highlight areas you can improve and share good practice in.

On this interactive day you will work on a project which culminates in you appearing in the dock in front of a Judge and Jury. Find out how to protect yourself in your reporting and recording at work, what your responsibilities are and how to be confident in your work and not be afraid of being taken to court.

Our next workshop Date: Thursday 25th April 2019 Venue: Manchester Cost: ÂŁ65 + VAT (includes light lunch and refreshments) Please visit our website to book your place and for more information: www.disabledliving.co.uk/training/our-workshops/in-the-dock-with-an-expert-witness/

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Revision of Guidance Document - Provision of Continence Containment Products to Children and Young People Guidance for the Provision of Continence Containment Products to Children and Young People

A consensus document 2016 reviewed and revised 2019

HOT OFF THE PRESS!

HOT OFF THE PRESS!

Guidance for the provision of continence products to children and young people 2016 (reviewed and updated 2019)

Bladder & Bowel UK launched a national guidance document about the provision of continence containment products for children and young people in September 2016, which has now been reviewed and updated.

Whilst it is recognised over 750,000 children and young people suffer with bladder and bowel problems on a daily basis, access to appropriate care is patchy and inconsistent. Some areas provide a comprehensive children's continence service, while others have little more than a 'free nappy' service. The latter is a potential waste of resources to the NHS, but, can be discriminatory to those children with disabilities who are not supported to attain continence in the same way as their peers. This also has potentially dangerous consequences as there is a risk of underlying serious and treatable co-morbidities being missed.

The guidance document was developed by clinicians with expertise in children's continence, combining consensus of best practice with available evidence and was extensively reviewed. It has been approved by a number of national organisations and aims to facilitate a consistent and equitable approach to the provision of continence containment products.

View the document on our website www.bbuk.org.uk/wpcontent/uploads/2019/03/Guidance-forthe-provision-of-continence-containmentproducts-to-children-2019.pdf 9

The 22nd ‘Look Good, Feel Good’ Award 2019 Call for Judges

We would like to invite ACA (Association for Continence Advice) members, attending this year’s ACA conference in Harrogate to come forward and judge the joint ACA/BBUK 'Look Good, Feel Good Award'.

This award highlights new products that contribute to improving quality of life for people with bladder and/or bowel problems.

It aims to encourage designers to also consider reliability discretion and ease of use, as well as quality and innovation at an early stage in the development of new products.

Judging will take place on the first day and winners will be announced during the lunch break on the second day of the conference.

Contact the BBUK team for more information email: bladderandboweluk@disabledliving.co.uk

Judges can be Specialist Nurses, Allied Health Professionals (both adult and paediatric clinicians) and charity representation.

Only products exhibited at the ACA Conference, that have been launched in the last year, or have not been exhibited at an ACA Conference previously are eligible to apply for the award.

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talkhealth - Online Clinic on Bowel Issues & IBS

From 8th – 19th April 2019 talkhealth will team up with The Allergy & Free from Shows, Action Against Allergy, Bladder & Bowel UK, Bowel & Cancer Research and ERIC to present an 'Online Clinic on Bowel Issues & IBS'.

This is part of a series of online clinics, run throughout the year, with a panel of leading medical and charity experts available during the period to help answer your concerns.

Clinical experts will be available to answer questions on issues surrounding bowel incontinence, bowel cancer, constipation, IBS and any other bowel issues.

During the clinics, there is an “Ask the Expert Day” with talkhealth organising a Q&A session, which is hosted by leading charities and NHS Trusts, offering the opportunity to speak directly to experts online.

For more information please visit: www.talkhealthpartnership.com/online_clinic s/online_clinic_on_bowel_issues_and_ibs_2 019.php

BBUK Just Can't Wait Cards

NEW For your patients

FREE pocket sized plastic card BBUK confidential helpline Available from BBUK - a charitable service Order your supply of cards from: bladderandboweluk@disabledliving.co.uk www.bbuk.org.uk

Registered Charity No: 224742

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2nd Edition of Kidz to Adultz Magazine The 2nd edition of our Kidz to Adultz Magazine is now live online!

The 44 pages are packed with interesting articles including: Campaining Against Cuts My Autism Journey Low Cost Clothing Adaptations Self Care for Parent Carers A Parent's Guide to Moving & Handling PLUS MUCH MORE! Take a look at the new magazine via: https://issuu.com/disabledliving/docs/kidz_to_adultz magazine_march_2019?e=26748259/68597590

Continence Product Section of Disabled Living's Supplier Directory

There is a section on the Disabled Living Supplier Directory dedicated to continence and stoma products.

In addition there are a wide range of categories providing information about companies and organisations that provide equipment, products and services to support disabled children, adults and older people.

Access to the Supplier Directory is via the right hand side of the BBUK website: bbuk.org.uk

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Loo of the Month - Mount Kilimanjaro

Tourist toilets at summit base camp of mount Kilimanjaro at sunset, Africa

Get in Touch with Us

For more information please visit: www.bbuk.org.uk

Bladder & Bowel UK Head Office - Disabled Living, Burrows House, 10 Priestley Road, Wardley Industrial Estate, Worsley, Manchester M28 2LY Email: bladderandboweluk@disabledliving.co.uk Tel: 0161 607 8219

Part of Disabled Living Website: www.disabledliving.co.uk Email: info@disabledliving.co.uk Tel: 0161 607 8200