Enable Scotland 2018

Forget can’t - think can!

2018

www.enablemagazine.co.uk

EXCLUSIVE

NICOLA STURGEON

The Government plans to halve disability employment gap

YOUNG CARERS

The importance of friendship

UNIVERSITY ADMISSIONS GAP Are Scottish universities as accessible as possible?

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THE BIG DEBATE

Should CBD oil be available on the NHS?

15/05/2018 15:42

expert hand, human touch

When it comes to a serious personal injury, every moment of your recovery is important. Widely regarded as the number one personal injury law firm*, we help you get the best possible financial settlement, medical care and rehabilitation so you can focus on what really matters to you.

08000 23 22 33

irwinmitchell.com

@IMScotland

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*Sources: The Legal 500 2017, Chambers and Partners 2018 Irwin Mitchell Scotland LLP is a separate Scottish legal practice regulated by the Law Society of Scotland.

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enable Forget can’t - think can!

THE SCOTTISH ISSUE PUBLISHER Denise Connelly denise@dcpublishing.co.uk EDITOR Laura Hamilton laura.hamilton@dcpublishing.co.uk FEATURES WRITER Lorne Gillies lorne.gillies@dcpublishing.co.uk DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk PRODUCTION ASSISTANT Lisa McCabe lisa.mccabe@dcpublishing.co.uk

SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk Peter Milne peter.milne@dcpublishing.co.uk ENABLE MAGAZINE www.enablemagazine.co.uk DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG Tel: 0844 249 9007

COVER PRICE £3.00

Welcome Welcome to the second edition of Enable Scotland!

Scotland may be a wee country, but there’s a lot going on – especially in the disabled community.

For the Scottish edition of Enable, we caught up with First Minister Nicola Sturgeon at the disability congress in Glasgow about the Scottish Government’s commitment to halving the disability employment gap. She announced that the government will set up a fund of £1 million to help employers support disabled people into sustainable and meaningful employment – an exciting development.

This year is an interesting one for disability and politics. We talk to Karen Gray about the great debate around CBD or cannabis oil, and how she believes it should be legalised so her five-year-old son Murray can benefit: doctors in Europe believe that it can drastically reduce the symptoms of epilepsy. Wheelchair user Mark Cooper tells us about his long struggle to make pubs disclose their accessibility so he can go out with his friends. His hard work paid off though, and from this year onwards anyone opening a pub has to put on the plans what their accessibility is, encouraging everyone to keep disability at the forefronts of their minds, and actions.

Accessibility, as usual, is one of the most important issues that disabled people face. Scotland’s universities have come up against criticism that they are not doing enough to help support disabled students get into higher education. We look at the recruitment system and find out what needs to be done to give parity to prospective students with disabilities.

Enjoy reading!

EDITOR’S PICKS...

13 INSIDE THE LIFE OF A YOUNG CARER Being a young carer is hard work.

We talk to a teen about how she manages her schoolwork and caring duties.

19 THE JOURNEY TO FOSTERING We talk to a couple who foster about their learning curve.

30 MANAGING YOUR MONEY The world of benefits can be tricky to navigate as it changes constantly – we’ve put together a guide so you know what’s what.

SAY HELLO We love hearing from readers so reach out on Twitter @enablemagazine

Laura Hamilton, Editor

SUBSCRIBE TO ENABLE If you can’t wait until the next Enable Scotland, our bi-monthly national edition of Enable can be delivered direct to your door, for £25 for two years or £15 for one.

Head to www.enablemagazine.co.uk/ subscribe, or call us in the office on 0844 249 9007.

Enable Magazine

@enablemagazine

@enablemagazine

©DC Publishing Ltd 2018. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication. Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.

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CONTENTS

What’s care and support

cannabis oil into the limelight and argues that it should be available on the NHS for people like her son Murray who has epilepsy.

about the importance of care and support after you’ve had a spinal cord injury. From support to activities, SIS has 50 years of experience.

THE LIFE 13 INSIDE OF A YOUNG CARER

24

Being a carer is a lot of responsibility, no matter what age you are. If you’re one of Scotland’s 44,000 young carers, it can be an isolating experience. We talk to one teen about how she copes.

JOURNEY TO FOSTERING 19 THE We chat to a foster parent about what

made her want to change career, welcome a young child into her home, and what fostering taught her about herself.

26

interview

CONVERSATION WITH 10 IN NICOLA STURGEON

Our exclusive with the First Minister – we talk about the government’s ambition to halve the disability employment gap, and the new fund for employers to recruit more disabled people.

20

people

YOUR GLASS 17 RAISE Accessibility isn’t always on the

menu when you go out to socialise.

Wheelchair user and campaigner Mark Cooper’s efforts have changed the law in Scotland when it comes to accessibility in pubs.

6

life DISABILITY EVENTS IN SCOTLAND There’s plenty on – from plays and comedy gigs at the Fringe, to conferences and workshops and even days out at museums and science centres.

GREEN MEDICINE DEBATE 29 THE Mum Karen Gray has brought medicinal

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22

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social

DISABILITY ON THE STAGE We catch up with Edinburgh-based Lung Ha Theatre Company for people with learning difficulties about its programme of exciting plays and why acting is an important release for people with disability.

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sport

GET YOUR SWEAT ON Disability is no barrier to exercising and you may be surprised at the variety of sports and exercise options that are out there. From the beautiful game to archery, there’s no excuse for not breaking a sweat.

employment and education

GETTING YOUR FOOT ON THE CAREER LADDER Inclusivity in the workplace is important for everyone, and we all need to know our rights and responsibilities. We round up the need-to-know info and some handy organisations to go-to when you need advice.

DISCUSSING THE DISABILITY ADMISSIONS GAP 20% of Scotland’s population identifies as disabled, so why isn’t this reflected in our universities? We look at the admissions process and how much work needs to be done to make it more inclusive.

finance

MANAGING MONEY No one likes to talk about money, which is why we do it for you. Benefits and allowances can be hard to navigate, so we run through the rules.

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PICS: © PETER DIBDIN

ESCAPE 9 SWEET We chat to Spinal Injuries Scotland

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FORD MOTABILITY AT HARRISONS, DALKEITH & CUPAR FORD HELPING YOU GET MOBILE

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Standard EU Test figures for comparative purposes and may not reflect real driving results. Official fuel consumption figures in mpg (l/100km) for the Ford range: Urban 37.2-83.1 (7.6-3.4), Extra Urban 44.1-94.2 (6.4-3), Combined 40.4-88.3 (7-3.2). Official CO2 emission figures 181-82g/km.

Vehicles shown for illustration purposes only. Finance is subject to status to over 18s only, guarantees and indemnities may be required. Terms and conditions apply. Offer available to Motability customers only. Subject to availability at participating Ford Dealers for Motability vehicles. Cashback will be offered at time of delivery. Company Registration Number SC324402. This programme is subject to the standard conditions of the Motability Scheme hire agreement. Full written details and quotations available on request from a Ford Authorised Dealer of Motability Operations Limited. Motability Scheme vehicles are leased to customers by Motability Operations. Motability Operations Limited is authorised and regulated by the Financial Conduct Authority under reference number 735390. To qualify you must be in receipt of the Higher Rate Mobility Component of Disability Living Allowance (DLA), the Enhanced Rate Mobility Component of Personal Independence Payment (PIP).

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Disability events

in Scotland When it comes to disability, there’s a lot happening throughout Scotland.

From support, to education and theatre productions, there’s plenty to keep you busy. We’ve rounded up our picks of what’s going on

support

and child, and another adult can go free.

INDEPENDENT LIVING SCOTLAND

ROBERT BURNS BIRTHPLACE MUSEUM

26-27 SEPTEMBER SEC, GLASGOW

Independent Living Scotland is Scotland’s premier event focusing on health, care and mobility. Attracting decision makers as they look to touch, test and compare the newest products ahead of purchase, Independent Living Scotland brings together Scotland’s healthcare professionals, suppliers and consumers under one roof. It’s a great event to go to if you need information about anything from care to products.

www.independentlivingscotland.org

educational GLASGOW SCIENCE CENTRE

9-11AM, 17 JUNE, 15 JULY, 19 AUGUST (AND ONGOING SUNDAYS) GLASGOW SCIENCE CENTRE, GLASGOW

If you have autistic children then going on days out to science centres and museums might not be possible.

Glasgow Science Centre (GSC) offers autism-friendly hours once a month. It’s the same fun of GSC but with much less hustle and bustle on a Sunday morning!

GSC is an exciting place, teeming with loud sounds and bright lights so the centre lowers the volume and softens the lights to allow adults and children with autism to enjoy their visit without additional stress. It’s £9.50 for an adult

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www.glasgowsciencecentre.org

3PM – 5PM, ONGOING, FIRST TUESDAY OF EVERY MONTH ROBERT BURNS BIRTHPLACE MUSEUM

Newly refurbished, Robert Burns Birthplace Museum is an interesting look at our national poet’s life and legacy for children and adults alike. The museum dedicated to Rabbie Burns is proud to be welcoming and inclusive to all audiences; its aim is to encourage and enable as many people as possible to enjoy their collection. Whilst the interactive and audio visual elements are a fantastic way for many to engage with the exhibition, some visitors find it overwhelming and for this reason the museum creates accessible opening times for two hours in the afternoon of the first Tuesday of every month. All audio visual aspects will be switched off and it will be autism friendly. An additional bonus – carers go free. www.burnsmuseum.org.uk

SUMMER SKILLS WORKSHOP

10.30-12.30PM, 24-27 JULY ECAS, EDINBURGH

Bobath Scotland, a charity that helps support children and adults with cerebral palsy, is holding a series of summer skills workshops for young people between the ages of 16-26. It’s a fantastic opportunity to meet other young people with cerebral palsy, learn some new skills and have fun. The

aim of the workshops are to develop confidence and life skills in an enjoyable and social environment. If you are given a place in the workshops, you will receive a getting to know you a call prior to the group so that Bobath can identify your individual needs and what you want to get out of the workshop. You have to attend all four days of morning workshops – and the spaces are limited so get in touch now. www.bobathscotland.org.uk

culture GUERILLA ASPIES

1PM, 2-4 AUGUST LAUGHING HORSE, EDINBURGH

The Edinburgh Fringe is the biggest festival in the world and it takes over

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LIFE

the capital city for the summer months.

There’s truly something for everyone and all sorts of performances are on all over the city. Neurodiversity is such a buzzword at the moment, especially for anyone who is autistic. Back for its fourth year with new neurodiverse images and stories, Paul Wady continues to pioneer a unique genre. The spoken word artist doesn’t consider his autism to be a disability and talks about building a community of autistic people.

A great show for autistic people – and everyone else! www.tickets.edfringe.com

PROPHETS OF IMPERFECTION

5.10PM, 3-4, 6-11 AUGUST SURGEONS HALL, EDINBURGH

Inspired by Star Wars and superheroes,

two Dutch comedians look at the past, present and future of life with disabilities. They may not be Guardians of the Galaxy, but they are Prophets of Imperfection. Marijn de Vries, who calls himself Captain Cane, and Bannie Cheff who calls himself Brace Boy, take a whimsical, but often serious, look at disability. And also crisps. www.tickets.edfringe.com

THE REASON I JUMP VARIOUS TIMES, 11-23 JUNE NATIONAL THEATRE SCOTLAND

This is a theatrical production with a difference – it’s a special journey through the world of 13-year-old Naoki, a non-verbal Japanese boy where you can meet the magical gardeners of his outdoor maze. It’s based on Naoki’s reallife book The Reason I Jump, a one-of-a-

kind memoir that demonstrates how an autistic mind thinks, feels, perceives, and responds. In this innovative adaptation, the book becomes an experience, a mysterious journey through a beautiful outdoor maze designed by renowned Dutch collective Observatorium.

There, you will encounter the stories and insights of Naoki’s gardeners and become immersed in his playful world.

The National Theatre of Scotland worked with award-winning Scottish artist Graham Eatough and it was created with, and is performed by a group of artists with autism ranging from early teens to 60 years old. It’s a unique opportunity to think about the many different ways that human beings experience life. www.nationaltheatrescotland.com/ production/the-reason-i-jump

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15/05/2018 12:35

Insignis Powered Standing Frame

From sitting to standing...

• To receive an exclusive introductory offer please quote ENABLE2018

For over 20 years the Insignis Powered Standing Frame has provided therapeutic and psychological benefits to people in wheelchairs, or who have difficulty standing or who cannot stand at all.

The Insignis Powered Standing Frame has: • Steel lifting arms to lift in an arc, minimising strain on knees and hips • A padded knee support cushion • A chest rest and back support for straighter posture • A table top (tasks can be done standing) • A metal frame, making it compact, strong and easy to keep clean • A reliable motor to last for many years The Standing Frame comes in two sizes: 18” (45cm) and 22” (55cm) wide Designed in Scotland and made in the UK – making support for the frame and for clients readily available.

It is available for purchase or (short-term) lease.

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without limitations for 50 years • Suitable for singles and

couples who have disabilities or mobility issues • Situated in the beautiful

seaside town of Nairn on the Moray Coast • Full en-suite – No single

supplements

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• Fully accessible with ground

floor wheelchair adapted rooms and a host of aids available • Evening entertainment • Optional afternoon excursions • Discount for carers • Early bird discounts • Groups discounts for groups

of 10 or more Thurlow Road, Nairn IV12 4EZ Tel: 01667 453298 Email: info@lovatlodgehotel.co.uk

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ILF Scotland opens new fund for young disabled people!

ILF Scotland has opened an exciting new fund for young disabled people. The Transition Fund supports those aged between 16 and 21, offering short term grants to provide opportunities that facilitate their participation and inclusion within their communities.

Ryan Cuzen, a successful applicant, said: “This fund is a positive step forward and a gate opener for young disabled folk in transition to improve their lifestyle, to get out and about and to develop community social skills.

I wanted to be able to try new adult orientated activities, like mixed martial arts, and the fund has given me the chance to do this.”

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To find out more information about the Transition Fund, the full eligibility criteria and how to apply, please go to ILF Scotland’s website

www.ilf.scot

17/05/2018 16:29

CARE AND SUPPORT

Sweet escape with Spinal Injuries Scotland With over 50 years of experience guiding people with spinal injuries of various levels, Spinal Injury Scotland (SIS) is a hub of knowledge and expertise. From volunteering opportunities, thrilling activities and even a state of the art holiday location: SIS clears the path for spinal cord survivors and their loved ones

A

spinal injury can turn life upside down: it can feel like a dark and lonely time. SIS, alongside its dedicated volunteers who have experienced spinal cord injury first hand, provide a listening ear for members, and it all starts on the hospital ward.

PIC: © ROSS BARBER PHOTOGRAPHY

SUPPORT “The NHS fully endorses our participation.

We take part in rehabilitation classes at Queen Elizabeth Hospital’s spinal unit explaining what the family members of someone with a spinal injury may have to do each day,” explains Marianne Prentice, fundraising coordinator for SIS. “We also have links with Glasgow Caledonian University. Our peer support volunteers have been attending the student nurses’ lectures to share their experiences of how they found the care given to them by nurses and what a difference it makes when it’s

Sometimes service users just need someone to talk to who has experienced it for themselves

personal.”

Complementing the important work the SIS team do on the medical ward, dedicated volunteers provide crucial lived experience to provide comfort and relief for patients. Marianne adds: “Sometimes service users just need someone to talk to who has experienced it for themselves, who knows what the rehabilitation means: that it can be quite gruelling. And also someone who knows that it can be important to have a sense of humour – sometimes quite a dark sense of humour.”

ACTIVITIES Outside the hospital SIS continues its dedicated work. Recovering from a spinal cord injury – whether requiring the use of a walking stick or power wheelchair – can feel as though hobbies you once had are no longer possible. Hosting an annual BBQ event at Castle Semple in Lochwinnoch, NHS staff support people to come to the event to socialise and get a taste of accessible activities.

“People have got the opportunity to try sailing, hand biking and kayaking. Castle Semple has also invested in mountain trikes so there will be something new for people to try this year. There’s a really nice story about some people who tried the hand cycling at the BBQ day and have since set up their own hand cycling group over

in Edinburgh. The event is growing and growing,” enthuses Marianne.

Adapting to a spinal cord injury can put going on holiday on the back burner.

However, set between the breathtaking views of Loch Lomond and within easy reach of Glasgow city centre, Clober Farm offers an escape for SIS members (and non-members). The fully equipped threebedroomed apartment includes facilities ranging from pressure care mattress, ceiling hoists wet room and more, all encompassed in a listed building.

The guidance from SIS for spinal cord injury survivors is paramount. Dedicated staff and volunteers are waiting to support you from the hospital and beyond.

i

FIND OUT MORE

Visit Spinal Injuries Scotland via www.sisonline.org or call 0141 427 7686 or Freephone 0800 013 2305

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IN CONVERSATION WITH

NICOLA STURGEON

First Minister Nicola Sturgeon has announced a new fund of £1 million to aid employers recruit and support disabled people into employment. Laura Hamilton caught up with Scotland’s top politician for an exclusive chat about the Scottish Government’s new plans

SOCIAL SECURITY BILL Recent research by Scope showed that disabled people pay a financial penalty of £570 monthly. But in Scotland, it was significantly higher: disabled people in Scotland pay £632 extra a month. The welfare cuts implemented

by Westminster disproportionately affected people with disabilities and it’s something that Holyrood is aware of and trying to change.

“I think it’s time for us to support disabled people and not penalise them,” says Nicola Sturgeon. “Reducing costs and helping disabled people to reach their

potential drives the thinking behind the Social Security Bill, but also much of the thinking behind our work to reduce the disability employment gap,” she says.

“Getting more disabled people able to be in employment, earning and being independent is important as are policies like extending personal care to the under-65s. So there is a whole package of policies that are designed to make the lives easier for people with disabilities.”

The government launched the Social Security Bill earlier this year, which devolved powers to Scotland regarding social benefits. Holyrood now has control over 11 benefits, including disability living allowance, personal independence payments and carer’s allowance.

EMPLOYMENT Currently, the number of disabled people in employment in Scotland is around 42% according to the Scottish Government, as opposed to over 80% for nondisabled people. It’s a statistic that needs improving, and part of the problem lies with employers.

“Often employers will say that they would like to employ people with disabilities but perhaps don’t know what responsibilities that puts on them and how to go about that,” explains Nicola, who points out that employers have specifically asked for extra support.

“This is very much a practical fund that’s designed to give the employers the advice

10

Disabled people in Scotland pay £632 extra a month

and support that they need.”

It’s important to focus on the fact that the reason that disabled people aren’t in employment is not necessarily their fault.

Not only are many disabled people keen to get into the workplace, they are workready and have the necessary skills – it’s the employers who aren’t ready.

“Often, the reasons why people with disabilities don’t get into employment isn’t to do with the abilities of the disabled person. It can often be to do with the attitudes and perhaps misplaced fears that employers have. If we can take down those barriers we’ll go a long way to meeting our ambition,” Nicola says. Many stereotypes unfortunately still persist about workshy disabled people, and it’s something that needs to be eradicated.

One of the groups with the lowest employment rate is autistic people, who have difficulties in the recruitment process and finding sustainable

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INTERVIEW

I think it’s time for us to support disabled people and not penalise them

opportunities, but have skills and talents that employers desperately need. “As we take forward our policies, we want to make sure that they benefit all people with disabilities, but also understand where there are particular barriers, and for people with autism that can often be the case,” says Nicola. “It’s important that we have general policies in place but they are very targeted to particular conditions as well, if those conditions present a particular barrier for people.”

TARGET It’s a high target: the Scottish Government aims to halve the disability employment gap. As 20% of Scotland’s population is disabled, it’s a significant part of the populace. While it’s important for disabled people to gain meaningful and

sustainable employment, employment, but it’s also good the Scottish Government for society and our economy is also cognisant of the as a whole.” huge opportunities As Brexit looms on Currently, the organisations are the horizon, the shape number of missing by ignoring of Scotland is set disabled people the disabled to change. We may workforce. lose workers from in employment “It’s ambitious, the EU indefinitely, in Scotland is it’s challenging and it only makes and it won’t happen sense that we use the around 42% overnight,” admits resources that we have.

Nicola. “Nobody is “If we under-use the talents pretending that it will be an of a significant proportion of easy target to meet, but it’s the our population, then that impacts right thing to do. It’s the right thing to do on all of us. We don’t do as well as we for two reasons: because it helps people otherwise could,” says Nicola. “While this with disabilities benefit from employment is first and foremost about helping people and all that it brings and the way the rest with disabilities, I think it’s important to of us take for granted. The self-esteem, underline the fact that it’s good for all of the additional income, the independence us if we support people with disabilities to that comes from being in meaningful make the most of their own potential.”

www.enablemagazine.co.uk

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14/05/2018 16:45

The Carers Act Young Carers Statement

Are you a young person under the age of 18 who helps look after someone?

(Mum, Dad, Sister, Brother or Grandparents)

If you are, you may be a young carer

North Lanarkshire Young Carers Project can help

Telephone 01698 258801 actionforchildren.org.uk

It’s the best move we made Whether you’re looking for a more manageable home or a new place to live, why not give us a call.

0131 273 4000 www.bield.co.uk Providing housing for older people throughout Scotland.

BIELD HOUSING & CARE . Registered Office: 79 Hopetoun Street . Edinburgh . EH7 4QF Tel: 0131 273 4000 . Fax: 0131 557 6327 . info@bield.co.uk . www.bield.co.uk . Scottish Charity SC006878

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17/05/2018 16:33

CARE AND SUPPORT

INSIDE THE LIFE OF A

YOUNG CARER Young carers play a vital role in caring for a loved one, all whilst balancing the difficult task of growing up. It can be a challenging yet rewarding position to take in your family.

We speak to one young carer to find out what it’s really like

C

aring for a loved one can include cleaning the house, making dinner, distributing medication and arranging hospital appointments. According to the Scottish Government there are 44,000 young carers in Scotland helping their loved ones – and many more may not even realise that they’re carers.

Identifying as a young carer or not realising they’re in a caring role, the big question remains: what is it like being a young carer?

YOUNG CARERS

“As it’s been my whole life I don’t really know anything different so I can’t say what it is like: it's my life. It can be hard sometimes and it can be emotionally and physically difficult because you can’t go out with friends. It’s challenging

sometimes to talk to people because you don’t know how they’ll take it,” explains Jamie-Louise Murray.

A bubbly, enthusiastic young woman who cares for her mother and father, Jamie-Louise takes her caring role in her stride, and it is clear that she has a very nurturing personality. Jamie-Louise who is about to turn 14, faces responsibilities that many young people don't have to take into consideration.

Young carers carry out similar tasks as adult carers. Heather Noller, policy and parliamentary officer for Carers Trust Scotland, says: “Young carers do a lot of the same things as adult carers – practical tasks such as cooking and housework, physical or personal care including helping someone to get dressed or get out of bed, helping to give medicine or collect prescriptions,

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17/05/2018 16:50

CARE AND SUPPORT or emotional support like talking to someone who is distressed or upset.”

Similarly, managing the family budget or caring for siblings can also be required of young carers.

MULTITASKING

It can be hard at the best of times for young people to balance their social lives with school and homework. Adding caring into the mix can be extremely stressful and demanding of a young person, however, Jamie-Louise understands the necessity of caring for herself and prioritising her time.

“You have to think about what is the most important and least important – usually homework is down at the bottom.

We need some time for space: we need even five minutes and you have to either prioritise homework or five minutes to yourself at night or in the morning,” says Jamie-Louise. “You need five minutes to yourself or you just get overwhelmed with everything.”

The number of young carers in Scotland is an alarming figure, and this is before taking into consideration the number of young people who don’t identify – or don’t realise – they are carers. It's for this reason their hard work and dedication to care should be celebrated at any opportunity.

Even so, carers still face challenges and there are lots of misconceptions about what a young carer does.

Jamie-Louise adds: “Some people are not as supportive as they should be – especially teachers at school. They don’t really know what is going on. If I don’t do a piece of homework they’re not very supportive a lot of the time.” Having a strong guidance system in place, especially at school, is imperative to ensure that young people are in good stead to achieve their hopes and aspirations in the same way their peers can.

GUIDANCE

“Young carers benefit from the support provided by young carer services, who provide opportunities for young carers to be free from their caring responsibilities, meet other young carers, access one-toone support, take part in activities, clubs and breaks from caring, and most of all have fun,” explains Heather. Jamie-Louise attends a Young Carers group and sees the benefits of sharing her experience with her peers.

Caring for both her mother and father, Jamie-Louise and her family take everything day by day. When it comes to assistance and support for Jamie-Louise, she heads to Young Carers for a break from

caring. But it's not just a well-deserved rest; she gets to connect with other young people who have the same experiences, talk and listen.

Attending the weekly group, JamieLouise has two hours a week to step away from her caring. She says: “You get to go out places. People in this group know how caring affects you and that also builds your confidence. I didn’t have many friends and now that I go to Young Carers I have. I have true friends that know what I’m going through.”

Having a close knit friendship group that understands what it's like to be a young carer is vital for those who identify as young carers. Other friends may not be able to relate to their lives and may not be as understanding.

“Try and find one person that you can confide in and this person needs to be a true friend. You have to talk, otherwise you will just explode,” advises Jamie-Louise.

Caring provides young people with an opportunity to connect with parents on a level that many peers may not. On the other hand, it can cause isolation, stress and feelings of loneliness. Juggling the responsibilities of caring, going to school and growing up can be challenging but their hard work and dedication is a testament to their caring natures.

You need five minutes to yourself or you just get overwhelmed with everything

i

MORE INFORMATION

Carers Trust Scotland www.carers.org

Shared Care Scotland www.sharedcarescotland.org.uk Care Information Scotland www.careinfoscotland.scot

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17/05/2018 16:50

Deafblind Scotland’s new state of the art Learning and Development Centre was officially opened

by HRH the Princess Royal on the 19th October, 2017. It is the only centre specifically designed for deafblind people.

With advanced technology designed to help people who have lost both sight and hearing, the centre is acoustically neutral with sound and light absorbing surfaces. The space includes an arts facility, IT high-tech room and a recording studio.

Deafblind Scotland offers a variety of services such as communication and linguistic access advice, accessible activities, navigating self-directed support, information and formatting services, welfare rights support, accredited training and a specialist guide/communicator service.

Please contact Deafblind Scotland for further information –

0141 777 6111

info@dbscotland.org.uk 1 Neasham Drive, Kirkintilloch G66 3FA

The local sight loss charity for the west of Scotland

IS YOUR DISABILITY GETTING YOU DOWN? WOULD YOU LIKE TO TALK ABOUT IT? If you are between 12-25 and have a physical disability and would like to talk in confidence to someone who will listen and not judge you, maybe we can help

TalkTime Scotland is the first charity in Scotland to offer free oneto-one professional counselling via phone or video link to anyone aged 12-25 with a physical disability or long-term health condition.

Our counsellors are professionally qualified and very experienced at working with young disabled people. If you would like to find out more or book an initial session, please get in touch on 07774 210104 or email us on talktimescotland@gmail.com Feedback from previous clients “My counsellor was wonderful” “I think this charity is brilliant and I felt very lucky to have benefitted from its great work”

www.talktimescotland.co.uk Mobile: 07774 210104 Email: talktimescotland@gmail.com Scottish Registered Charity SC045158

015_SCO18_ADV.indd 15

“A warm voice at the end of the phone and very resourceful. Thanks so much for the wealth of information.” Mary, aged 76

Telephone helpline Independent living support Social and recreational activities Technology training and advice Emotional and practical support for patients Reading techniques and mobility rehabilitation Support for families and children with sight loss For help and advice call our Information Line

0141 332 4632 Help us make a difference today by donating to our life-changing services: Text "VISY23 £5" to 70070. www.visibility.org.uk

@wearevisibility

Scottish Charity Number SC009739

17/05/2018 16:27

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17/05/2018 16:42

PEOPLE

Raise a glass Having a cheeky wee pint shouldn’t involve worrying about accessibility. We talk to intrepid campaigner and wheelchair user Mark Cooper who has changed the law regarding information about accessibility in pubs across Scotland

M

ark Cooper was on a night out in 2009 when the seed was sown for his disability access campaign.

While his friends had checked the venue had an accessible entrance, the disabled toilets were down a flight of stairs: Mark had to leave the pub to look for a toilet he could use and then return.

“It’s not the lack of accessibility – it’s about poor information,” he says and that’s what he wanted to address. He approached Edinburgh City Council for a list of accessible pubs in Edinburgh, but first he had to show that he wasn’t the only person with the problem. When his Facebook group blew up, Mark had proof that this was a pressing issue.

“I wanted to turn a local campaign into a national one, so I approached Capability Scotland (www.capability-scotland.org.uk) who provided a platform,” says Mark. From there, together they took it to the Scottish Parliament and the government.

TEETHING PROBLEMS Mark’s amendment states that people in Scotland applying for a liquor premises licence (i.e. a pub) will now have to provide a disability access and facilities statement along with their application. This forces publicans to think about accessibility from the beginning and will hopefully gently encourage them to make their venues more accessible.

It originally brought mixed opinion.

Some disabled people thought that the campaign didn’t go far enough, and publicans thought that the idea was a good one, but wouldn’t support it as they

were worried they would open themselves up to criticism for not being completely accessible.

Another problem was how long it took – it was only passed in March 2018.

“The Scottish Government was unsure if it could legislate on disability as it comes under the Equality Act and is dealt with at Westminster,” says Mark. But after eight long years, it’s now the law.

LEGACY Mark Cooper As Mark points out, making pubs disclose their accessibility options from the get-go is something that will Mark wants his legislation make a huge difference, rolled out on a national not just to disabled level across the whole people, but people My favourite pub UK. “What I’d really like with small children, is The Granary in for politicians to see too – and anyone with Leith because it does isScotland as an example accessibility issues. good food, drink, is and follow it,” he says. “I “What I hope for is to accessible and does don’t see why I should create a more inclusive a good pub quiz be able to find out about society, where disabled disabled facilities in and non-disabled people Scotland, but not in England. can socialise without I have unintentionally created thinking about access,” he says. an inequality when I’ve been trying “The first thing I think of when I to fix one.” Westminster has chosen not to get invited out is if there is a toilet, rather implement the amendment, despite being than being happy to see my friends. I recommended by a House of Lords report would love for people to think about for the 2003 Licensing Act. adjustments in a different way.” Mark Mark suggests big chain pubs like points out that many venues might be JD Wetherspoon pre-empt legislation unaware of its own accessibility options. changes and disclose its accessibility Large print menus are a small way, he options nationwide. The onus is currently notes, to be more accessible that many on disabled members to independently venues could incorporate easily. “There review accessibility options – but that’s are reasonable adjustments that do not slowly changing. include a sledgehammer and money.”

www.enablemagazine.co.uk

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14/05/2018 16:47

Do you live in Edinburgh and the Lothians?

Ecas is an Edinburgh based charity set up to support people with physical disabilities. We run a range of therapeutic, social and learning activities for adults which include: • • • •

Swimming IT Seated Tai Chi Yoga

• Music for Fun • Reading and Creative Writing • Arts and Crafts

No previous experience is necessary and all materials are provided. We can also provide support with transport costs.

Be inspired at The Lighthouse Levels 1-6 accessible by lift Visit our exhibitions, Mackintosh Centre & Viewing Platform for incredible views across Glasgow

Opening hours Monday – Saturday 10.30am-5pm Sunday – 12 noon-5pm Free Entry

Ecas’ Grants Fund is open to people of all ages. Grants are available to help assist individuals with increased costs associated with a physical disability.

For further information, please contact Ecas on (0131) 475 2344 or email info@ecas-edinburgh.org or visit our website: www.ecas-edinburgh.org

The Lighthouse 11 Mitchell Lane Glasgow G1 3NU www.thelighthouse.co.uk 0141 276 5365

Company limited by guarantee in Scotland No. 102790. Registered Charity Number: SCO14929

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18/05/2018 16:58

CARE AND SUPPORT

G

NAMES HAVE BEEN CHANGED TO PROTECT IDENTITIES

rant and Rhona Mitchell* decided to take a route into foster care after Grant was made redundant.

“I suggested we could look after people’s dogs when the owners were on holiday and then we looked into fostering. Grant was keener on the fostering than looking after dogs,” laughs Rhona. “That’s when we started to look in to it seriously.”

WELCOME HOME In November 2016, after an intensive application process, Grant and Rhona became foster carers. Working with Aberlour, the couple received an immense amount of guidance and training from the service – which is dedicated to supporting the lives of children, young people and families across Scotland.

Several months after becoming foster carers, Mark* joined their family. At first there had been some difficulties in placing Mark due to his additional needs, which include epilepsy, autism, global developmental delay and incontinence issues. However, Mark soon settled into his home with Grant and Rhona.

“Even though he’s 10, he has the parents for putting their kids into care functioning age of three. He still likes because some of the parents can’t cope Thomas the Tank Engine, Peppa with children with disabilities, Pig and Minions. The house especially if they’ve got their is full of toys,” says Rhona. own problems. ” Through their time With the support of Seeing a together the couple have Aberlour, Grant and Rhona child come on seen the progression have not only learned Mark has made as he more about themselves, and develop so grows up. “Seeing a child gained new skills and much is so come on and develop so experience, but have also rewarding much is so rewarding. To welcomed the joy and love know that a lot of it is down of a new member of their to yourself is amazing,” she family. It has been an exciting says. adventure so far with a lot more to come.

LEARNING Becoming a foster carer means you The joy of watching Mark grow and learn, become a safety blanket for a child and caring for someone with a disability or young person in need of love and can be a golden opportunity to realise nurturing care. For those thinking of going more about yourself and others. Both into fostering it is imperative to work Rhona and Grant learned so much about closely with the fostering service to ensure themselves. She explains: “We had to you are matched with a person that you dig deep and discover patience. I think can provide the accurate support for, going through the fostering process you “Think carefully because it’s not for have to get to know yourself quite well, everybody,” advises Rhona. “Everybody too, and not be judgemental in any way. has their strengths and weaknesses and It’s important not to judge the children’s they have to take that into consideration.”

Entering the world of fostering can be a whirlwind of excitement and apprehension. Taking the step to foster a child with a disability can be an even larger learning curve – but completely worth the adventure

The journey to

Fostering i

FIND OUT MORE

For more information on Aberlour or to show your interest in fostering visit, www.aberlour.org.uk or call 0800 0856 150

www.enablemagazine.co.uk

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17/05/2018 16:51

EMPLOYMENT AND EDUCATION

Getting your foot on the

Career Ladder Inclusivity in the work place still has a long way to go, but things are slowly changing. Funds are being pushed into disability employment to discover untapped talent and get more people into employment. We look at the organisations to turn to for guidance

Inclusion Scotland

www.inclusionscotland.org As a Disabled People’s Organisation (DPO) – which means it’s led by people who identify as disabled – Inclusion Scotland is a charity campaigning to get equality across the board for the disabled community.

Supporting disabled people into meaningful work is the focus of Inclusion Scotland’s project We Can Work, which aims to make more jobs accessible for disabled people. Funded by the Scottish Government, there is a wide array of internships available which offer useful experience and the opportunity to network with important contacts.

Capability Scotland

www.capability-scotland.org.uk Providing care, education and employment services for disabled children and adults, Capability Scotland is your go-to destination for practical support and advice on getting into the world of work.

Services from Capability Scotland are suitable for those looking for

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work and people in employment who may be uncertain about their future.

Providing regular one-to-one meetings, as a job seeker you can receive help with CV writing and preparing for interviews as well as attending employment workshops to build confidence, and job coaching. Everyone has skills to bring to the workplace, Capability Scotland provides a safe place for you to enhance and develop your expertise.

Remploy

www.remploy.co.uk A UK-wide organisation, Remploy is a leading name in finding sustainable employment for disabled job seekers. Just like Capability Scotland, the company will guide you whilst you look for work and when you are in employment – they are there every step of the way. Remploy has already helped over 150,000 disabled people get into work and with its expertise, guidance and encouragement, you could be next.

UNDERSTAND YOUR RIGHTS As the Scottish Government continues to be proactive in its bid to get more disabled people into work, it’s more important than ever to know your employment rights.

When going through the recruitment process an employer can only make limited enquiries about your disability. Such queries should only be to determine if you can carry out a task that will be an essential part of your role, discover if you can take part in an interview and to decipher if any adjustments need to be made for your interview.

Any adjustments you require should be accommodated. ‘Reasonable adjustments’ should be in place to ensure disabled employees or job seekers are not put at a disadvantage.

If you think your rights have not been met during the recruitment process, this is discrimination as stated in the Equality Act 2010. The law protects everyone in areas including: application forms to interview arrangements, job offers, terms of employment, promotion, transfer and training opportunities, plus much more.

Armed with this knowledge and relevant disability focused careers support, it’s only a matter of time before the nine to five life calls your name.

For more information visit www.gov.scot or www.gov.uk

www.enablemagazine.co.uk

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15/05/2018 17:01

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Committed to equal opportunity Audit Scotland is an independent public body responsible for auditing Scotland’s public organisations, to check that public money is spent properly and provides best value for money.

We are committed to equal opportunity and to a culture that respects difference. As an employer, and in our audit role, we play a leading part in the promotion and application of diversity and equality.

Visit www.audit-scotland.gov.uk/careers to learn more about working with us.

Glasgow Edinburgh Aberdeen Inverclyde London Birmingham Exeter Leeds Liverpool Newcastle Plymouth Southport Truro Cardiff

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Parkside Guest House Edinburgh getaway for disabled people Relax in our recently refurbished, accessible, five bedroom guest house, close to the city centre.

• peaceful residential area • nearby attractions • local accessible transport • room service • specialist care staff • onsite night concierge • respite stays available For more information email parksidebooking@leonardcheshire.org or call 01383 630386 leonardcheshire.org/parksideguesthouse

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17/05/2018 16:45

DISCUSSING THE

DISABILITY ADMISSIONS GAP

Everyone in the world deserves an education. However, Scottish universities are failing to represent the disabled community. How can the admissions process become more inclusive for Scotland’s disabled students?

F

urther education is a whirlwind of excitement and new possibilities.

The promise of independence, the adrenaline of leaving the family home to study for your future career, not to mention all the interesting new faces you will meet and befriend. But first, you have to get into higher education.

There is a significant pitfall for disabled students looking to study in one of the 19 Scottish universities and it has nothing to do with exam results. In fact, it all has to do with the university admissions process lacking inclusivity.

(UN)ACCESSIBLE ADMISSIONS Further education providers in Scotland use contextual admissions to identify successful applicants. This means that universities are actively looking to support those from diverse backgrounds to be able to attend university. At present, disability is not considered on most of Scotland’s universities’ application forms.

The One in Five campaign is challenging universities to make the contextual admissions process support those who identify as disabled. Since the Scottish referendum, One in Five (founded by Jamie Szymkowiak and Pam DuncanClancy) has been encouraging change in Scotland to empower the disabled community, in particular within politics.

Now, the team has its sights on working towards accessible university admissions.

DISABILITY SPOTLIGHT Jamie explains: “We’re demanding that disability also be used as an indicator in the contextual admissions. Disabled people do face barriers within education.

Not just university, but throughout their school lives; either the increased

22

chances of being bullied as a disabled person compared to their non-disabled classmates, and the impact that can then have on their schooling.”

Present factors within contextual admissions include coming from a care background or going into further education from a disadvantaged background that could have impacted on a person’s grades. As Jamie details, disability can cause barriers in a young person’s education and may limit their opportunities to get into further education.

NUS Scotland Disabled Students’ Officer Lainey McKinlay agrees: “Education can transform lives, but we need to make sure that it is accessible to all. Universities are rightly and increasingly, making use of contextualised admissions when considering underrepresented groups. However, too often disability is overlooked in this process. We need to see existing work built on – and we support any measures by Scotland’s universities to better recognise the

The One in Five campaign is challenging universities to make the contextual admissions process support those who identify as disabled

barriers that disabled applicants face.”

Statistics revealing the number of disabled students attending Scottish universities makes for unfortunate reading. As inclusivity and acceptance trickles through high profile industries with more calls to get people with a physical, learning disability or mental health issues into work, improved representation in the media, and more, it’s a disappointment that more Scottish universities don’t provide a platform for those who wish to go into further education. Coming from a disadvantaged background is no barrier, and disability shouldn’t be either.

REPRESENTATION “In 2015/16 only 11.5% of full-time university students undertaking their degree declared a disability. If disabled people are 20% of the Scottish population, there is a big admission gap. As the name in our campaign One in Five suggests: we would be looking for universities to have one in five of their students declaring themselves as a disabled person,” says Jamie. Currently there is only one university in Scotland that has significant representation of disabled students.

Of Open University Scotland’s most recent admissions, 21% of students declared themselves as disabled – it should be noted that Open University Scotland has an open admissions policy instead of contextual admissions. There is no denying that disabled people are vastly underrepresented in the Scottish university system and contextual admissions are causing this divide: more needs to be done for inclusivity in education, which is a right for everyone.

www.enablemagazine.co.uk

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14/05/2018 16:54

EMPLOYMENT AND EDUCATION

Further education is a fantastic adventure for everyone leaving the four walls of their high school; disabled people should not feel like they can’t fulfil their hopes and dreams at university if that is their goal. “From a personal perspective, as a disabled person who has gone to university, I found university to be one of the most life fulfilling phases in my entire life,” adds Jamie. “It encouraged me to be more independent… It is hard to gauge the impact it actually had on my life so any disabled student who is considering going to university or college, I would absolutely say go for it.”

Jamie and Pam have written letters to the universities who do not class disability as a contextual indicator to

clarify the work that needs to be done to allow disabled students to get into further education. One read: “We appreciate that universities are taking steps to widen access to Higher Education; nonetheless, considering an applicant’s disability will reduce the disability admissions gap and ensure that disabled people in Scotland can meet their full potential.”

Since October 2017, The University of Aberdeen, Edinburgh Napier University, Heriot-Watt University and University of the West of Scotland have disability as a contextual indicator. But there’s still more work that needs to be done for Scotland’s disabled students.

Contextual admissions help ambitious and capable students who may not

have achieved the best grades due to personal circumstances. Now is the time and university is the place to provide additional support for disabled students to achieve parity.

Learning is one of our basic rights.

We’ve come a long way since the days where university was only for the privileged, and it’s time this continues down to incorporate disability, too. i

FIND OUT MORE

NUS Scotland www.nus.org.uk

One in Five www.oneinfive.scot

www.enablemagazine.co.uk

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14/05/2018 16:54

SOCIAL

DISABILITY on the STAGE Disability arts had a rough start to the year after Creative Scotland revoked funding for several projects. Despite the short period of uncertainty, one Edinburgh-based theatre company is providing a haven for disabled actors to prosper

PICS: © PETER DIBDIN

They are actors and performers first, and they happen to have a disability

L

ung Ha Theatre Company has been bringing new writing, devised productions and beloved theatre classics to life on the stage since 1984.

Working with adults who have learning disabilities of various levels, Lung Ha Theatre Company provides an opportunity for creativity to soar, and great theatre.

PROFESSIONALISM “We’re the only place in Scotland where people with a learning disability can make theatre at the highest level,” explains Maria Oller, the company’s artistic director. “We audition everyone every year, so people get a one-year contract with us. Anyone can audition: you don’t need to have any previous experience but you need to have a real urge and a hunger for acting, learning and commitment.”

The team at Lung Ha Theatre Company produces new work, together with adapted versions of plays to the highest level possible. Recently, the group performed a new version of the classic play Three Sisters (originally by Anton Chekhov and adapted

by Adrian Osmond), which saw the group co-produce with Finnish music institution

24

Sibelius Academy of The University of The Arts, Helsinki.

Integrating musicians from Finland in the Three Sisters play is just one way that performers create a unique experience for their audience.

VISION After Creative Scotland removed funding for disability arts (before reversing its decision), the importance and necessity of companies such as Lung Ha is more important than ever.

Maria says: “The performers are artists in their own right. For them to have a platform to create, be creative, and be seen and heard by a wider audience is necessary.

They are actors and performers in the first place, and they happen to have a disability.

That’s not the drive for them, they want to learn and want to develop.

The performers increase their confidence and realise they can also work with nondisabled and professional actors through acting. They become more confident outside the theatre because they know what they are capable of, and they pride themselves on stepping out of their comfort

zone. It’s not as scary as it feels at first.”

BELONGING Bringing ideas to reality, building on their creative talents and skills, and acting at workshops provided by Lung Ha Theatre Company; performers develop a sense of ownership by the curtain call.

Maria concludes: “They own the show by the time we’re opening it. It’s their show; they take responsibility for it and for developing it.”

It’s also hard work. Each actor commits up to 30 hours per week of rehearsals in the run up to the show. There are also detailed discussions on which play to perform and auditions mean that disability art is flourishing with talent; and that’s just in one theatre company. Creativity should always be allowed to develop and Lung Ha Theatre Company is there every step of the way. i

MORE INFORMATION

If you’re committed to the stage, find out more from Lung Ha Theatre Company by visiting www.lungha.com and join the conversation on Twitter #LungHaMatters

www.enablemagazine.co.uk

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14/05/2018 16:55

YOU COULD BE PART OF SCOTTISH BALLET’S DANCE HEALTH PROGRAMME:

Dance is good for everyone’s health

To find out more about our range of weekly community classes, our dementia-friendly, Time to Dance programme, and our Dance for Parkinson’s sessions, please contact education@scottishballet.co.uk

025_SCO18_ADV.indd 25

17/05/2018 16:24

GET YOUR SWEAT ON ARCHERY

It’s time to shake off winter and get active. Whether you’re a fan of fitba and want to get into a team sport, or prefer some solo exercise time, there’s plenty happening across Scotland for you to take part in

BOWLS

Disability sport is certainly not boring. Indulge your inner Robin Hood by grabbing a bow and arrow and hitting the archery range. Archery is a very inclusive sport and clubs across Scotland cater to all disabilities. Disabled archers and non-disabled archers play side by side, and there are events and championships to get involved in.

Bowls is one of the most accessible and social sports, and you’re never far from a bowling green in Scotland. If you want to make friends, then bowls could be the sport for you as gathering round the club house at the end of the match is an essential part of the game. All bowling clubs are fully inclusive, so whatever your needs are, they are equipped to match it.

See www.scottisharchery. org.uk for more details and to find a club near you.

Contact your local club for details of open days and how to join at www.bowlsscotland.com.

BADMINTON

Para-badminton is the latest sport to make it into the Paralympic family and it will be making its debut at the Olympic and Paralympic Games Tokyo 2020, so there’s just under two years to get into the swing of things. Whether you’re a wheelchair user or have partial mobility, para-badminton is a fun game and the whoosh of the shuttlecock is extremely satisfying. There are plenty of clubs across Scotland, and if you become a member of Badminton Scotland, you’re entitled to enter competitions and get free tickets to events.

CURLING The sport that Scotland is best at is also one of the most accessible sports out there – and don’t worry, it’s not just played in winter. There are 22 curling rinks in Scotland and all of them have wheelchair access.

You can use a regular wheelchair on the ice, although a team member may have to hold it steady while you throw your stones. Teams are usually made up of four people and both male and female players are required for big competitions, and fun leagues are open to beginners.

If you’re interested in a taster session, visit www.trycurling.com.

Visit www.badmintonscotland.org.uk for more details.

Whether you’re a wheelchair user or have partial mobility, para-badminton is a fun game to play... and extremely satisfying 26

www.enablemagazine.co.uk

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14/05/2018 17:00

SPORT

Questions Always check with your GP before undertaking a new fitness regime.

Your doctor will have lots of helpful information.

SAILING If you’re keen to sail the seven seas, or just want to potter about on a boat, then check out Sailability Scotland, which lists the sailing clubs in Scotland offering sailing for people with disabilities. There are five clubs across the country that you can join, and monthly events to go to. Scotland’s Sailability centre of excellence at Castle Semple Centre, Lochwinnoch is committed to helping the sailing community become more inclusive.

Visit www.sailabilityscotland.org for more details

YOGA

Mental The benefits to exercising are not just physical - keeping active makes for a healthy mind and can help with depression.

If you’re looking for an activity that connects your mind with your body, then give yoga a go. Yoga is open to any ability, and all stretches and poses are modified to your own ability – you don’t need to be a yogi in neon yoga pants to take part. If you’re feeling stressed, yoga relaxes you and teaches you mindfulness. Yoga classes are currently on trend, and can sometimes be expensive and in high demand, but there are specialist classes for people with disabilities. Yogability is run by a team of yoga teachers who give free lessons to people with disabilities and their carers, and it runs classes across Scotland.

Check out www.yogability.org.uk for more details.

Yogability is run by a team of yoga teachers who give free lessons

FOOTBALL If you’re raring to get back onto the pitch, then there are plenty of options for you. As you can imagine, there are lots of teams and friendly matches across Scotland. There’s football friendlies for every disability, or mixed abilities, and even Powerchair Football (www.thespfa.org) which is a fast growing and fun sport.

Check out www.parasport.org.uk/ find-a-club to find the closest one to you. If you wanted, you could play football every night of the week.

RUGBY Wheelchair rugby is a fast paced, full contact team sport open to both men and women and to most levels of disabilities. Caledonia Crusher Wheelchair Rugby is based in Glasgow and trains weekly at the Emirates Arena. There are no restrictions to anyone who would like to join training for the fitness benefits, but playing competitively is only open to players with a disability that affects their arms and legs.

If you want to attend a session, visit www.caledoniancrushers.co.uk.

If you want to see what sports are out there, visit www.disabilitysportfinder.org.uk

www.enablemagazine.co.uk

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15/05/2018 17:02

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17/05/2018 16:24

LIFE

The Green

MEDICINE DEBATE After Karen Gray’s five-year-old son, Murray, was diagnosed with Myoclonic Astatic Epilepsy (MAE) last December his seizures increased from three a day to 50. Karen is calling the government to provide medicinal cannabis on the NHS to help alleviate Murray’s seizures; and provide solace for other families

W

atching a loved one suffer due to illness or disability can be heart wrenching, even more so if that loved one is your child. Murray is like any other young boy his age; however, he experiences debilitating tonic clonic and absence seizures.

Having researched the potential benefits of medical cannabis (known as Cannabidiol or CBD oil), Karen believes that it’s the safest route for Murray to go down to reduce his number of seizures. Since posting a video of Murray experiencing a seizure Karen has been inundated with support for making CBD oil available on the NHS. MEDICINE Medicinal cannabis includes the compound found in cannabis plants: CBD. It doesn’t contain any of the synthetic materials, but it can reduce seizures. Northern Irish 12-year-old Billy Caldwell lived with severe epilepsy, experienced multiple seizures daily and was at risk of death. After taking CBD oil, his seizures reduced from 100 a day, and he has been seizure free for almost a year.

Billy was the first person to get CBD oil prescribed on the NHS, but it’s still not approved on NHS Scotland.

Karen discusses: “We use morphine, and morphine is medical heroin, and that’s a strong, dangerous drug so I don’t understand why we can’t just use the cannabis plant to make it safe for everyone: especially for kids.”

NETHERLANDS Karen took Murray to the Netherlands to get medical cannabis from a country where it has been legalised. “I researched medicinal cannabis in the Netherlands and it’s just a simple case of getting a prescription, going to the pharmacy and giving them it, but I need him monitored.

I can’t do that over here because the doctors won’t help me, their hands are tied,” she says.

“I want to push so that we can get it in the UK and we don’t have to split the family up for a few months,” Karen says.

RESEARCH Karen is in contact with a few women in the UK whose children have MAE. She wants NHS consultants to prescribe CBD and monitor the children to make sure it’s safe and the doses are consistent, as the NHS does in Northern Ireland.

“At the moment I could give him CBD, but nobody is going to guide me: do you trust the dosages?” says Karen. “It needs to be regulated. If Murray were an adult I would just go for it, but because he’s a little boy I’m not going to do it. I Morphine is will keep fighting for this, medical heroin, and I will do it until we and that’s a get it.” So far, the Home strong, dangerous Office has said CBD oil can only be used for drug research purposes and not medically, but Karen keeps fighting for her son.

www.enablemagazine.co.uk

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FINANCE

MONEY The benefits system can feel like a confusing maze to navigate at times. You might not know what you’re eligible for, unsure of support available and where to go. We’ve done the hard work for you with our guide on welfare EMPLOYMENT AND SUPPORT ALLOWANCE

At times disability or illness can affect your ability to work. Employment and Support Allowance (ESA) is on hand to provide financial assistance for those under State Pension age, not getting Statutory Sick Pay or Statutory Maternity Pay, and not receiving Jobseeker’s Allowance.

There are three types of ESA that people can apply for. The ‘new style’ ESA is for those who live in a Universal Credit full service area and is similar to contributory ESA. Usually people get contributory ESA if they’ve paid enough National Insurance (NI) contributions and NI credits – if you get them – can be recognised, too. Finally, income related ESA is for those who have not paid enough NI contributions and how much you get depends on your circumstances.

DISABILITY LIVING ALLOWANCE

This tax-free benefit is for children aged under 16 and provides financial support for young people living with a disability or long-term ill health. The rate of Disability Living Allowance (DLA) is between £22.65 and £145.35 per week – depending on

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the level of assistance required. Children must meet all the eligibility needs before a parent or guardian can claim.

an extra £64.60 a week. Keep in mind that Carer’s Allowance can affect benefits that you and the person you care for get.

PERSONAL INDEPENDENCE PAYMENTS (PIP)

ATTENDANCE ALLOWANCE

In recent years the government has changed the benefits system and PIP has gradually been replacing DLA. Those aged 65 or over on 8 April 2013 will continue to receive DLA but everyone else aged 16 and over will now have to claim PIP, which has not been without criticism.

Claimants should expect to be assessed by a health professional to determine the level of help you receive, these results will regularly be reviewed. For those aged 16 to 64 the rate of income ranges from £22.65 and £145.35 a week. Understanding PIP can be confusing but Citizens Advice is on hand to see you right during the application process.

CARER’S ALLOWANCE

For those receiving PIP or the middle and upper rate of DLA, then your carer could receive Carer’s Allowance. If you or someone you know is caring for a family member, friend, neighbour or partner in their own home, for at least 35 hours a week, then they may be eligible to receive

If you’re living with a disability severe enough then Attendance Allowance can help with any additional costs. There are two different rates of benefit available for claimants: like all benefits, it depends on the level of care you require. To be eligible to receive either £57.65 or £85.60 a week you need to be physically or mentally disabled and aged 65 or over.

i

FIND OUT MORE

The Scottish Government

www.mygov.scot/benefits

Advice Scot

www.advice.scot

Money Advice Scotland

www.moneyadvicescotland.org.uk

Citizens Advice

www.citizensadvice.org.uk/benefits

Turn2us

www.turn2us.org.uk

www.enablemagazine.co.uk

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The Thistle Assistance Card is available in a variety of formats and languages. For more information and to have a physical card sent to you please visit or call your region:

www.sestran.gov.uk 0131 524 5150

www.tactran.gov.uk 01738 475775

www.hitrans.org.uk 01463 719002

Start using TODAY - Search for Thistle Assistance Card and download now!

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17/05/2018 16:42

ACCESS 2018 THE REASON I JUMP The Children’s Wood on North Kelvin Meadow, Glasgow 11-23/06/2018

MIDSUMMER

The Hub, Edinburgh 02-26/08/2018

Assembly Roxy, Edinburgh 01-27/08/2018

FIRST SNOW / PREMIÈRE NEIGE CanadaHub @ King’s Hall, Edinburgh 01-26/08/2018

SCOTLAND WIDE 28/09–28/10/2018 Tramway, Glasgow 01-22/09/2018 The Lyceum, Edinburgh 11/10-03/11/2018 Eden Court, Inverness 07-10/11/2018

A radical new festival of international performing arts marking Scotland’s Year of the Young People

For full details of all accessible performances for these productions please visit nationaltheatrescotland.com To speak to someone regarding our access performances please call 0141 221 0970 or email access@nationaltheatrescotland.com

nationaltheatrescotland.com National Theatre os Scotland is core funded by the Scottish Government. The National Theatre of Scotland, a company limited by guarantee and registered in Scotland (SC234270) is a registered Scottish charity (SC033377).

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18/05/2018 14:24