Enable March/April 2023

The UK’s leading disability and lifestyle magazine

enablemagazine.co.uk

March / April 2023

PROSTHETICS ON THE FRONTLINE

A SHARED CONNECTION

The project helping amputees in Ukraine

WITH US NOT FOR US

Calling for a more inclusive future this World Down Syndrome Day

Nicky Campbell and his daughter Kirsty discuss their ADHD diagnoses

Welcome

Get ready to enjoy Enable Magazine’s 70th issue

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COVER PRICE £3.00

PUBLISHER Denise Connelly denise@dcpublishing.co.uk EDITOR Emma Storr emma.storr@dcpublishing.co.uk EDITORIAL CONTRIBUTORS Jane Hatton Tim Rushby-Smith Alisdair Suttie DESIGN AND PRODUCTION Lucy Baillie lucy.baillie@dcpublishing.co.uk

s we embark on a new season, the Enable team are celebrating our 70th issue! As always, the pages of the March/April issue are packed with informative, important and exciting content starting with our lead interview.

On page 10 broadcaster Nicky Campbell and his daughter Kirsty discuss both having an ADHD diagnosis but with differing experiences. This issue, we’re highlighting the disability community’s fight for their rights as we celebrate World Down Syndrome Day on page 18, demand global action on care on page 13, and highlight Sophie Morgan’s new air travel campaign on page 81.

Also inside, Women’s Aid and Refuge help highlight where to turn if you are experiencing abuse on page 30; we share solutions to help you get a good night’s sleep on page 40; and on page 56 discover how benefits are changing with the new tax year.

Plus, columnist Tim Rushby-Smith discusses what we can learn about accessibility from Tokyo on page 29; we meet the founder of pill case brand Tabuu, Lucy Rout, on page 64; and shine a light on what to expect from the upcoming National Careers Week on page 78. All of this and much more inside.

SALES Marian Mathieson marian.mathieson@dcpublishing.co.uk ENABLE MAGAZINE www.enablemagazine.co.uk

DC Publishing Ltd, 198 Bath Street, Glasgow, G2 4HG Tel: 0844 249 9007

WINNER VOTED CONSUMER PUBLICATION OF THE YEAR ©DC Publishing Ltd 2023. All rights reserved. No part of this publication may be reproduced or used in any way without prior written permission from the publisher. The views expressed in this magazine are not necessarily those of DC Publishing Ltd. The publisher takes no responsibility for claims made by advertisers within the publication.

Every effort has been made to ensure that information is accurate; while dates and prices are correct at time of going to print, DC Publishing Ltd takes no responsibility for omissions and errors.

Get in touch

@enablemagazine Emma Storr | Editor editor@dcpublishing.co.uk

EDITOR’S PICKS...

22 PROSTHETICS ON THE FRONTLINE As the world marks one year since Russia’s fullscale invasion of Ukraine, one project is supporting amputees in the country.

26 KNOWING YOUR GUT Few people know how their gut is linked to physical and mental health. In their new show, the Mac Twins are helping the public to understand gut health.

WIN

A spring gardening bundle on page 38

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What’s inside

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Interview 10 A SHARED CONNECTION Nicky Campbell and his daughter Kirsty open up about their different experiences of ADHD.

Health Cover story

Spotlight 22 ON THE FRONTLINE OF AMPUTEE SUPPORT The project aiding amputees in Ukraine.

Cover story

30 OPENING DOORS TO SUPPORT Women’s Aid and Refuge highlight where to turn if you are experiencing abuse.

Care 13 TAKING GLOBAL ACTION ON CARE Exploring the issues affecting social care systems around the world.

Motoring 58 REVIEW: MG4 Discover what this comfortable and affordable car has to offer.

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16 CAMPAIGNING FOR BETTER ACCESS Improving equipment in sexual health clinics and doctor’s surgeries.

20 UNDERSTANDING PREGNANCY AND FIBROMYALGIA The new study adding to fibromyalgia research.

26 KNOWING YOUR GUT We meet the Mac Twins to learn about gut health and their hit show, Know Your Sh!t.

40 A HOLISTIC APPROACH TO SLEEP Solutions to help you get a good night’s sleep, contributing to better mental and physcial health.

Voices

29 GO GO TOKYO! Tim Rushby-Smith considers what we can learn from accessibility in the city.

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Life

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18 WITH US NOT FOR US Influencing change as we Cover story approach World Down Syndrome Day. 24 BAKE FOR DEMENTIA Get into the kitchen and fundraise for people affected by dementia.

33 WE’VE GOT THIS Eliza Hull talks about her book of essays from disabled parents.

35 CELEBRATING AUTISM ACCEPTANCE How to get involved as World Autism Acceptance Week approaches.

43 EMBRACING ADAPTIVE YOGA How one teacher used her experiences to influence an adaptive practice.

44 RECIPE: SPICY HALLOUMI BAKE NHS GP and chef Dr Rupy shares a recipe from his new book.

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WIN

WIN A SPRING GARDENING BUNDLE ON PAGE 38

46 HELLO SPRING Plan the perfect day out with our spring picks.

49 THE DIARY Events to keep you busy this March, April and May. 61 PRODUCT ROUNDUP Mobility and kids’ products to aid daily life.

62 THE POWER OF ASSISTIVE TECHNOLOGY Discover products and solutions to maintain and improve independence.

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82 SHINING A GOLDEN TORCH ON BRAIN INJURY Author Thomas Leeds opens up about the inspiration behind his debut children’s book.

Travel 51 ACCESS TO TRAVEL Putting a spotlight on barriers in travel and a new centre inciting change.

81 RIGHTS ON FLIGHTS Sophie Morgan’s new campaign to improve air travel.

Finance 54 CALLING FOR COST OF LIVING SUPPORT As the current crisis continues, what more needs to be done?

56 MONEY UPDATES How benefits are changing with the new tax year.

75 ASKING FOR WHAT YOU NEED Jane Hatton encourages readers to ask for adjustments.

Employment

76 A WELCOMING WORKPLACE Feel accepted at work with Registers of Scotland.

64 REMOVING THE TABUU IN BUSINESS Entrepreneur Lucy Rout opens up about launching her business.

70 INCLUSION IN THE WORKPLACE How Raytheon UK are creating an inclusive environment.

72 NEURODIVERSITY AT WORK Ensuring you thrive in your career.

78 YOUR FUTURE CAREER Considering your next steps.

Education

67 PREPARING FOR HIGHER EDUCATION Get planning and discover where to access support. enablemagazine.co.uk enablemagazine.co.uk

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enable news

News Enable Magazine celebrates 70th issue Sophie Morgan and Lauren Steadman, and covered important topics like the need for better access to cervical screenings; embracing neurodiversity in the workplace; the passing of the Down’s Syndrome Bill; stem cell transplants to treat MS and more. Most recently, Enable Magazine was voted Consumer Publication of the Year 2022 at the PPA Scotland Awards 2022, recognising disability in the mainstream.

FIRST COMPLEX NEEDS COLLEGE OPENED IN SCOTLAND ON 8 FEBRUARY, THE Minister for Higher Education, Further Education, Youth Development and Training, Jamie Hepburn, formally opened Scotland’s first complex needs college.

Corseford College, located near Johnstone in Renfrewshire, first opened its doors to students in September 2022 and is now halfway through its inaugural year. The Scottish Government and the Scottish Funding Council pledged £316,000 towards the project in partnership with West College Scotland, helping with the development and operation of the college which is spearheaded by care and support charity, Capability Scotland who invested a further £250,000. With 15 current students,

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it is hoped that the college is just the first in a series of campuses around the country.

Speaking to Enable Magazine on the day, the Minister said: “It’s incredible to be here and see the college open, and more importantly, see how much these young people are thriving. It’s a key step in advancing inclusive education in this country.”

ORGANISATIONS TEAM UP TO CREATE THE CARER POVERTY COALITION

A GROUP OF 93 national and local organisations across the UK have teamed up to form The Carer Poverty Coalition. The new group, which includes Carers UK, Age UK, the Motor Neurone Disease Association and more, will be campaigning around four key areas: ending poverty amongst carers by advocating for policy change; calling for reforms to the benefits system to better support carers financially in the short-term and long-term; calling for better systems to support carer to continue with paid work; building awareness of carer poverty and the impact of the current cost of living crisis on unpaid carers.

Citing the value that unpaid carers bring to society as a whole but particularly the economy, the coalition will highlight the impact caring has on people’s financial situation in hopes of inspiring change.

PIC: © CONNOR MOLLISON

THE MARCH/APRIL 2023 issue of Enable Magazine marks a big occasion for the whole team: it’s our 70th issue!

Since the magazine’s launch in 2011, Enable has been helping to share reallife stories from the disability community and highlighting topical issues affecting disabled people.

Through 70 issues of the magazine, the Enable team have interviewed big names like Doddie Weir; Jonnie Peacock;

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News

ACCESS CARD RECEIVES ROYAL APPROVAL The Access Card is recognised at venues in the UK and abroad, including Buckingham Palace, Alton Towers, The London Eye, The Louvre museum and Disneyland Paris. Martin Austin MBE has been an amputee since his diagnosis of cancer as a teenager and lead the development of the card. Martin says: “This is the highest and most prestigious award that can be granted to a business in the UK and we are very proud to now be displaying The Queen’s Award emblem.”

NEW REPORT CALLS FOR LEGISLATIVE CHANGE ON EMERGENCY EVACUATION MEASURES EVAC+CHAIR, A GLOBAL leader in emergency evacuation chair manufacturing, is calling for lifesaving evacuation equipment to become a legal requirement after a new report found that the safety of the UK workforce is at risk. The report, entitled Risky Business, found that four in five businesses were unsure about their responsibilities.

Of the 500 respondents, 82 per cent wanted the government to provide more clarity on their responsibilities surrounding fire safety, while 67 per cent agreed that evacuation equipment should be a legal requirement. The report comes after disabled campaigners launched a legal challenge against the government in 2022 for failing to implement the Grenfell Tower inquiry’s call for evacuation plans for disabled people in high-rise buildings.

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Asda launches inclusive children’s clothing range THIS SPRING, CHILDREN’S FASHION is becoming more inclusive and accessible as supermarket Asda launches an adaptive clothing range. The first of its kind in a UK supermarket, the range aims to support independent dressing for children and young people with disabilities. Made up of 24 pieces in total, it is aimed at three to 16-year-olds.

The items include features like hidden hook and loop fasteners on necklines; higher backs and longer legs; holes to make dressing easier for people who use feeding tubes; soft threads and removed labels.

Clothing from the new range has been made in line with the main kidswear collection and was developed with the help of 14-year-old Ava Joliffe, an award-winning deaf and blind artist from Preston. The dedicated range is part of the Easy On Easy Wear collection which has previously included school uniforms.

PIC: © GEORGE AT ASDA

A DERBY-BASED SOCIAL enterprise has been formally presented with The Queen’s Award for Enterprise, recognised in the Innovation category for the development of the Access Card scheme. The organisation, Nimbus Disability, is run by disabled people, for disabled people. Held by more than 100,000 people in the UK and beyond, the card uses bespoke software to translate users’ disability, impairment or access requirements into easy-to-understand symbols, showing the barriers a person faces.

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*Model shown is Aygo X Pure (MY22) 1.0 VVT-I Auto at £0 Advance Payment. Subject to availability. Available as part of the Motability Contract Hire Scheme. Please note that a total of 60,000 miles over three years are allowed on the Motability Contract Hire Scheme. Offer valid between 1st January 2023 and 31st March 2023. Motability Scheme vehicles are leased to customers by Motability Operations Limited (Registered Company No.1373876), City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. To qualify you must be in receipt of the Higher Rate Mobility Component of Disability Living Allowance (DLA), the Enhanced Rate Mobility Component of Personal Independence Payment (PIP), the War Pensioners’ Mobility Supplement (WPMS) or the Armed Forces Independence Payment (AFIP) and applications must be made with participating dealers between 1st December 2023 and 31st March 2023. Prices are correct at time of print, are subject to availability and may change. Official fuel consumption figures in mpg (1/100km): combined 54.7 (5.2) to 56.5 (5.0). Combined CO2 113 - 117 g/km. Figures are provided for comparative purposes; only compare fuel consumption and CO2 figures with other cars tested to the same technical procedures. These figures may not reflect real life driving results. All models and grades are certified according to the World Harmonised Light Vehicle Test Procedure (WLTP), which replaces the New European Driving Cycle test procedure (NEDC). All CO2 figures quoted are NEDC equivalent. All mpg figures quoted are WLTP figures. Please visit www.vehicle-certification-agency.gov.uk/fb/wltp.asp or contact your local Toyota Centre for more information.

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A SHARED CONNECTION Broadcaster Nicky Campbell and his daughter Kirsty share more than a familial connection: they both have a diagnosis of ADHD. Now, the duo are hoping to raise awareness of the need for understanding and why it’s important to seek support

W

hen broadcaster Nicky Campbell was 60-years-old, he was diagnosed with ADHD, but the move to see a specialist and get a diagnosis didn’t come solely from his own quest for answers, his daughter Kirsty, who is one of four girls, urged him to go. Kirsty was 15-years-old when she received an ADHD diagnosis herself, something which changed her academic life almost overnight.

She had recognised traits in her dad and wanted him to have the same understanding and support that she was privy to.

Their story might not be new to you: in September 2022 Kirsty joined her dad on his podcast, Different, alongside Iain Lee who, like Nicky, has ADHD and bipolar. The episode gave an insight into living with ADHD, but also fuelled the fatherdaughter duo’s appetite to raise awareness of the need for support.

happen all of the time to my family or even my dogs.

“I started speaking to someone about those feelings and they said ‘actually, I think you might have ADHD’. After I got a diagnosis it completely changed the way I was in school and with everything.”

Nicky and Kirsty’s experience of being so close and sharing a diagnosis while their condition affects them both in different ways speaks to how unique an ADHD diagnosis can be. Luckily, after his own diagnosis Nicky had an expert close by to help him navigate this new information.

“When I got that diagnosis I already had Professor Kirsty Campbell from the University of ADHD there,” jokes Nicky. “She has all of the information and understands everything about it, and she always used to say to me you definitely have ADHD.”

TRANSFORMATIVE

Armed with their own experiences, Nicky and Kirsty are always keen

Before Kirsty received a diagnosis, focusing in school and achieving academic success felt near impossible, but within weeks of starting tablets that help her focus, her grades improved. She went on to do extremely well in her GCSEs and is now studying at university.

“When I was at school I think I was always seen as quite disruptive because I was loud and I didn’t really have a filter, I really struggled to focus,” reveals Kirsty. “I used to sit there and not know what was happening. I had bad anxiety which can come with ADHD and I used to think something bad was going to

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DIFFERENT

We need the system to improve because otherwise, people won’t be able to get support and thrive

to highlight that ADHD can present differently in each individual, and that currently we need better access to the diagnosis pathway and support.

“It is sometimes seen as a sort of blanket term, but it can be so different for everyone,” highlights Nicky. “We both have this hyperfocus when we start working, but I get lost all of the time, for example if I’m looking for the bathroom in a big building, whereas Kirsty doesn’t really have that.”

“When I focus it’s like everything around me is going really fast like a time lapse, and actually that’s not a disadvantage for me because of my work, it actually suits my job perfectly,” adds Nicky. “I think I’m lucky that I’m doing something that my brain works with, because a lot of people aren’t that lucky, especially if they don’t get a diagnosis until they’re older and have been struggling in a career that doesn’t work for them.”

Kirsty has peers who also have ADHD and as she studies at university, she has seen the different ways that people cope with the pressures and stress of life in higher education, as well as seeing a change in herself as she learns more about her ADHD. “I’m at university with a girl that I’ve known all through school, since I was really young, and she has seen the whole progression I’ve been through,” explains Kirsty. “I definitely gravitate towards other people with ADHD, especially at uni. The more you speak to other people it helps you understand more about yourself and also the differences that are there.

You can help each other to manage things and to talk about it.”

enable

interview

PIC: © BBC PICTURES / JON SUPER

Kirsty and Nicky

Nicky and his daughters

CONVERSATION

The conversation around neurodiversity and inclusion is growing thanks to people in the public eye speaking out about their experiences and helping to diminish any remaining stigma around diagnoses like ADHD. While this is the case, there’s still more work to do to inform people, and Nicky and Kirsty are taking this a step further as the hosts of this year’s Celebrating Neurodiversity Awards from Genius Within.

“I think one of the great things about these awards and interviews like this is that people might see them or read it and this will resonate with them,” enthuses Nicky. “After doing a phone in on the radio about ADHD I had a mother get in touch

and say everything we talked about sounded like her son and where could she get support. I think that shows the power of public conversation so hopefully we can keep doing that.”

The hybrid event will be held in person and streamed online on 28 September this year, as the awards celebrate the achievements of neurodivergent thinkers and the organisations that support them.

By speaking out, using their platform and engaging with the media, celebrities and public figures are helping to destigmatise ADHD and other areas of neurodiversity, and from her own experiences, Kirsty believes there has already been positive change.

“Without that diagnosis so many

people can’t reach their potential,” stresses Kirsty. “I love my ADHD because it’s part of me and I don’t see it as a negative. I also know that I was so lucky to have support all around me and how powerful that can be.

“There’s still this huge disparity where girls and women aren’t diagnosed as much or get a later diagnosis, so we need to understand that ADHD presents differently in people. We need the system to improve because otherwise, people won’t be able to get support and thrive.”

FOR MORE INFORMATION Find out more about the awards at www.geniuswithin.org, and keep up with Nicky on Instagram and Twitter @NickyAACampbell

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enable care

TAKING GLOBAL ACTION ON

care

By 2050, one in six people in the world are projected to be aged 65 and older, but unless we see dramatic changes to the social care system in the UK and abroad, the system will be unable to keep up with the needs of an ageing population

E

urope has one of the highest proportions of older people around the world, and the UK is no exception. In less than 10 years, almost 22 per cent of the population will be aged 65 and over, and this comes with its own set of unique challenges. The 2021 census highlighted that the UK has one of the oldest housing stocks in Europe, often leaving older people in inappropriate homes, and currently, our social care system isn’t fit for purpose for older and disabled people.

The growth of ageing populations around the globe, paired with a declining number of people working

in social care and insufficient funding, means that we need something to change. The Global Ageing Network (GAN) - an international network of leaders in ageing services, housing, research, technology and design – is calling for global action.

REPORT

In an effort to explore the impact these issues will have and the need for action, GAN have released the new report, Call to Governments: Ageing and Long-Term Care. Written

by GAN members from the Czech Republic, America, Canada, The Netherlands and Scotland, the report lays out shared challenges and

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enable care opportunities facing countries around the world as people live longer. The demand for this report is based on the fact that at least half of older adults are expected to need long-term care services during their lives.

Donald Macaskill, chief executive at Scottish Care, was involved in its creation.

“The report really tries to argue that for a sizeable number of the world’s population, the way in which they are supported and cared for falls well short of what it needs to be,” reveals Donald. “It considers some of the main challenges facing us on a global scale, and in each country, these are obviously diverse and different too, and then identifies the steps that can be taken in order to address some of those challenges.”

The results of the report make one thing clear: there is a stigma around ageing that isn’t unique to one country or continent.

“There is this unhealthy stereotype around ageing that has been cast upon society,” offers Donald. “There’s a failure to recognise that people of an older age have an immense amount to contribute, they have untapped skills to offer their communities. The first thing we want to see is a more positive outlook around older age.

“We need to change both the language

and the message around ageing. While everybody contributed different things, it was astonishing to see the degree to which these problems were the same.”

This isn’t just a human issue where people’s attitudes need to change: it is also an issue that affects our economy and the overall care provided by the social care sector.

“The challenge for our economy is to properly value social care, the challenge to our political leadership is to take the heat and listen to the critical importance of ageing care and older people in general,” stresses Donald.

The report paints a clear picture with one message for policymakers and governments around the world: it’s time to step up and fix social care.

APPROACH

The first step in creating countries and economies that value and work for a larger ageing population is ensuring social care systems are equipped to deal with this demand.

“The biggest challenge facing social care is a workforce challenge and this is true in virtually every country in the world, even countries where there are many more younger people than we have,” explains Donald. “Even in countries where there is a high proportion of younger people, we are

simply not managing to recruit and to retain our workforce. If you properly reward and recognise the role of social care as critical then it’s much easier to recruit and retain workers.”

In some countries around the world, including in the UK, there is a view that higher immigration could be a solution to the social care workforce crisis.

While this is the case, taking a global view of the issue highlights that this could cause further problems in some countries.

“We don’t want to dilute developing countries of their critical workforce,” emphasises Donald.

Currently, job roles in the sector can come with a stigma that it is lowskilled, gruelling work, when in reality it is the opposite. The affect this has on public perceptions is acting as an additional barrier to providing a social care system that truly works.

“Social care has to be seen as a key sector to the wellbeing of any community or nation and should not be seen as a sector which costs the economy,” states Donald.

In light of the report and its findings, Donald wants to see three big changes: recognition that social care supports are necessary, not an added extra; proper investment in the social care workforce; recognition that voices in the sector, and those of people accessing social care, are fundamentally important.

This includes the voices of the UK’s vital but under-recognised workforce: unpaid carers.

“We do not sufficiently value informal, unpaid carers,” stresses Donald. “For millions of unpaid carers there is a failure to be recognised and valued for the critical role that they do. They save the nation millions of pounds each year, but more importantly, they enable people to remain independent.”

The report and the recommendations that follow it continue to build on the argument for a more modern, better funded social care system in the UK and in countries around the world, but also highlights the immediate need to implement changes before a growing ageing population causes the system to collapse.

FOR MORE INFORMATION Find out more and read the full report online at www.scottishcare.org

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SDMotionDrive Joystick power for your manual wheelchair The SDMotion Drive converts your manual wheelchair into a joystick controlled electric powered chair with a range of approx 16 miles. Easy to operate with 5 speed levels and individually adjustable driving modes to put you in total control.

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GET IN TOUCH

enable health

CAMPAIGNING FOR

BETTER ACCESS Over the next two years, a new campaign is calling for improved access to sexual and reproductive health services for disabled people

I

n the UK, barriers exist that can affect people’s long-term sexual health, relationships and access to essential tests like cervical screening.

The lack of accessible sexual health clinics and inclusive equipment at doctor surgeries around the country isn’t a new issue, and work has been done to try and create change up to now, but as 2023 began Dorset-based organisation SWAD got ready to tackle the problem and call for change.

At the beginning of February 2023, SWAD, which stands for Sex With A Difference, launched the Better Access for Better Access campaign. Fronted by the charity’s founder and CEO, Lorraine Stanley, the campaign’s goal is to have a minimum of one hoisting system and a set of leg supports for at least one examination couch in every sexual health clinic and GP surgery in the UK. Running until 31 December 2024, if successful the campaign could see an increase in the number of disabled people accessing cervical screenings and reproductive healthcare.

“My health and my life are just as important to me, as a non-disabled person’s life is to them,” highlights Lorraine. “There are over 14 million disabled people in the UK at the moment. If even a quarter of those people are sexually active, but can’t access the professional services provided by the healthcare sector, I see that as being an unacceptable situation.”

NEED

Currently, many healthcare providers want to provide better, more accessible services, but don’t understand how to improve or what equipment is necessary to do so.

Better Access for Better Access is backed by these facts, but also by personal experiences. Lorraine herself has previously discussed the barriers she has faced to accessing cervical

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Lorraine Stanley

screening, and through SWAD’s work, she has supported people who have continually highlighted these issues.

“From my own lived experience, it took three years from receiving my cervical screening invitation to actually being able to have it,” reveals Lorraine.

“The delay was caused due to a lack of examination tables with appropriate leg supports and handles.

“Luckily, my results were clear, but if there had been cancerous cells present, the delay could have resulted in my having to have a more invasive treatment.”

IMPORTANCE

The campaign will centre around social media, using the hashtag #BA4BA to promote its message. Whilst working towards the deadline, SWAD will also engage with key groups around the country to help them understand and

highlight the importance of equitable access to these services.

From existing networks like the NHS Integrated Care Systems, Sexual Health organisations and GP networks to disabled people’s organisations, the groups engaged in the campaign have to be as wide-ranging as the impact will be if the measures are implemented. Alongside these, the charity is calling on the public to help highlight the need for this essential equipment. By utilising the hashtag, anyone can aid in spreading the word about the campaign and fighting for change.

FOR MORE INFORMATION Discover more about the Better Access for Better Access campaign at www.swaddorset.org

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WITH US NOT FOR US

This World Down Syndrome Day, it’s time to celebrate people with Down’s syndrome and include them in conversations about their future

O

n 21 March, people around the world will come together to mark an important event, bringing awareness and change to the lives of approximately 47,000 people in the UK. World Down Syndrome Day (WDSD) gives this opportunity each year, with the 21st day of the third month selected to signify the trisomy: the extra copy of chromosome 21 that people with Down’s syndrome have.

OUR VOICE

In the lead up to the day, and all year-round, members of the Down’s Syndrome Association’s (DSA) Our Voice group are collaborating to create positive change. The group is made up of people with Down’s syndrome who work as part of the organisation, meeting each week to discuss important topics and to co-produce projects together.

Aimee and Angus are part of the Our Voice group and are ready to see people with Down’s syndrome celebrated and included. Aimee has two volunteering jobs with organisations focused on saving the planet, and Angus works with a developer’s society and is an actor.

“There’s a lot of encouragement in Our Voice,” enthuses Angus. “It’s good when other people bring their projects to get involved in and learn how to talk to you. One topic we’ve talked about is mental health for the NHS.”

It’s good to speak up. We have the right to say no. We have the power!

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As WDSD approaches, Aimee told us what it means to her, she says: “It’s good to celebrate the people who have Down’s syndrome. For example, everyone involved with the DSA.”

Aimee

WITH US NOT FOR US

A huge part of the day is to advocate for the rights of people with Down’s syndrome, and this year’s theme aims to highlight this fight. On 21 March, people with Down’s syndrome will ask the public and organisations around the world to stand With Us Not For Us. The theme recognises the need for a human rights-based approach to disability, with the view that disabled people have to be treated fairly and given the same opportunities as anyone else.

“It’s good to speak up. We have the right to say no,” explains Aimee. “We have the power!”

This theme also highlights that everyone’s needs, likes and dislikes are unique to them.

“Everyone who has Down’s syndrome is different,” emphasises Aimee. “Some people use a wheelchair, or have hearing loss, or can’t see as well. Different people have different needs. I have a green band so that people know I have a learning disability when we go to the airport – it means we can skip the queue.

“It would be good if everyone everywhere knew about Down’s syndrome. I have trouble seeing small writing. In the world it would be useful to have bigger writing, for example for ingredients or in books.”

For Angus, the meaning behind this theme focuses on inclusion and visibility.

“People who have Down’s syndrome should be more confident and more visible,” he explains.

“This [theme] means trying to get

Angus

people talking about it. You should ask questions to people who have Down’s syndrome.”

Angus hopes that more awareness and change could create better chances to socialise and make friends, and that people are given opportunities that fit their individual needs.

The impact of this day will be long-lasting, starting conversations around the world, but the hope is that this chance to celebrate and become informed means a better future for people with Down’s syndrome everywhere.

“It’s down to us to make the future.

[To] make our own future,” concludes Aimee.

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Ross

ROCK YOUR SOCKS Anyone can help mark WDSD by sporting a colourful everyday item: socks. The underwear has become a global symbol for Down’s syndrome. The condition is caused by an extra copy of chromosome 21 in someone’s DNA, and when you look closely, chromosomes are shaped like tiny socks. Each year, the Rock Your Socks campaign from Mencap (www.mencap.org.uk), the UK’s learning disability charity, takes place to mark WDSD. This year, the charity has partnered with British company Stand Out Socks to encourage people to wear their funkiest pair and celebrate people with Down’s syndrome. The company

was inspired by Ross Laing who has Down’s syndrome. Like many people, Ross struggled to find work and so his big brother, Christian, wanted to create a company where he could be an integral part of the business. After Ross wore a pair of bright socks to celebrate Down Syndrome Awareness Month in October 2021, the idea came to fruition.

To mark WDSD, Ross has chosen two colourful designs to raise vital funds for Mencap, with £3.21 per adult sock and 50p per child sock donated. Speaking about the importance of the day, the two brothers said: “We believe that Down’s syndrome and other

disabilities should be celebrated.

People with Down’s syndrome have varied abilities, but, like everyone, they also have their own personalities, things they like and dislike, things that make them who they are!

“We want to raise awareness and spread the word of disability inclusion so others can be accepted and included for who they are.”

FOR MORE INFORMATION Learn more about World Down Syndrome Day from the dedicated website (www.worlddownsyndromeday.org) and from the Down’s Syndrome Association (www.downs-syndrome.org.uk).

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Understanding

PREGNANCY AND FIBROMYALGIA It is estimated that fibromyalgia could affect as many as one in every 20 people in the UK, but despite the prevalence of the condition, there is little research to understand how it affects different aspects of everyday life

F

ibromyalgia is a chronic condition characterised by widespread pain and high levels of fatigue. It is thought that the condition is more common in women than men, typically developing between the ages of 25 and 55. Whilst studying towards her doctrine in clinical psychology at the University of Liverpool, trainee clinical psychologist Lucy Smith turned the focus of her thesis to this topic, specifically looking at fibromyalgia during pregnancy and after birth.

“At the minute, it just seems like there’s not a lot of literature out there, especially when we look at pregnancy,” highlights Lucy. “It’s really important that we understand this because it might mean that people can benefit from additional support.”

CARE

Having previously worked within parental mental health services as an assistant psychologist, Lucy met multiple parents living with chronic pain conditions. Armed with her experiences, Lucy wanted to be part of growing research around the condition, and set out to interview people living with fibromyalgia who have recently had a baby. The study sees participants undertake a confidential interview, discussing their experiences of pregnancy, birth and the 12-month postpartum period.

“We know that it’s different for everyone and so we talk a little bit about pregnancy including your experience of antenatal care and how pain was managed, did pain get worse or did it improve, how did that affect everyday

Lucy

tasks and work,” highlights Lucy. “We also talk about the birth experience and how you felt healthcare services kept your chronic pain condition in mind, then that transition when you go home. There’s this really acute period of time where you get home with your new baby that can be especially hard physically and emotionally.

“Then we also talk about things like breastfeeding and infant weaning, and the post-natal support through all of that as well.”

SEEN

With a distinct lack of research in this area, the study is not only important for the future of care, but also in helping parents living with fibromyalgia to feel seen and heard.

“There’s already been some responses and the feedback has been really positive,” enthuses Lucy. “People have emailed me saying how brilliant it is that a study like this is happening.”

The study will last until September 2024, but currently, it is still in the recruitment phase, looking for first-time parents over the age of 18 who are living with fibromyalgia and have given birth in the last 12 months. Once this data is collected, key themes will be identified with the hopes of influencing further research and practice in the future.

FOR MORE INFORMATION To find out more about the study or to share your experiences, email lucy.smith@liverpool.ac.uk

20 enablemagazine.co.uk

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17/06/2022 13:10

On the frontline of

AMPUTEE SUPPORT

As the people of Ukraine continue to face conflict and violence, one project is helping the humanitarian effort and ensuring the growing number of amputees in the country receive the care and support they desperately need

I

n February 2023, the world marked a year since Russia invaded Ukraine, but this conflict dates back further than how it has been showcased on the world stage. In 2014, the Russian military intervention in Ukraine resulted in both military and civilians being wounded by shelling and landmines and losing one or more limbs.

Professionals in the country were not prepared for this influx, leaving high numbers of amputees and people with war-related injuries in a desperate situation. Due to the situation, high numbers of amputees were being sent abroad for expensive assistance, making it hard to pursue the appropriate medical follow-ups.

ACCESS

In the face of hardship, there had to be a solution. After speaking to wounded Ukrainian soldiers, Antonina Kumka – a high school teacher who immigrated to Canada from Ukraine – wanted to take action. Antonina reached out to experts around the world, notably Jon Batzdorff, president of the American branch of the International Society of Prosthetics and Orthotics. Jon also runs nonprofit ProsthetiKa, giving him the knowledge base necessary to help humanitarian aid and education around prosthetics in countries that need it most.

“Often people from our community who are living in Ukraine

22 enablemagazine.co.uk

can’t access these essential services as easily as they need to,” stresses Antonina. “The prosthetics industry in Ukraine was not doing very well in terms of the services that were available and the training for specialists.

“I realised that this was not sustainable and started to look for ways to make it more effective within the country and that’s when I found Jon.”

MISSION

In just a matter of months, Antonina and Jon had established a team of specialist volunteers, made up of certified prosthetists, physiotherapists and occupational therapists, along with professionals across Ukraine and Ukrainian amputees with complex cases.

The group formed the Ukraine Prosthetic Assistance Project, with the first of multiple missions taking place during May 2015 in Kyiv. A key focus of the project is teaching the importance of a multidisciplinary approach which leads to better outcomes for amputees.

Even just knowing how much people care makes a difference

“Our goal has always been to improve the quality of care and access to different technology and techniques within the country,” explains Antonina.

In a time of ongoing conflict, the work of the project is more important than ever and it is also going through a period of change. Now, the project is adopting the name Protez Hub and launching a new website which has an educational aspect.

“We’re building a new website that will be available in both Ukrainian and English and it will have so much information because we realised that’s the gap we need to bridge,” offers Antonina. “We will have an online learning platform for Ukrainian specialists which will teach them about rehabilitation, prosthetics and using a multidisciplinary approach.”

When the full-scale invasion of Ukraine happened in 2022, the project started looking for partners to further their efforts. With support from Ossur and the Government of Iceland, and in partnership with ProsthetiKa, the project was able to launch a humanitarian project providing prosthetic components for amputees and more education for specialists.

“They have the same vision as we do and the same attitude towards the importance of sustainability,” offers Antonina. “We’ve been supporting specialists with the components they require that are not readily available to them in Ukraine which is very important because of how many amputees there are now compared to what they expected.”

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spotlight

SUPPORT

The current situation has brought innovation in the prosthetics space, allowing the project to work with their partners, including Ossur, to use new techniques and ensure amputees receive the highest quality of care and support.

“There is a technique that Ossur has developed which is a direct socket fit and it truly is a lifesaver for the facilities right now because this technique doesn’t use machines or ovens, or any of the equipment that requires electricity,” reveals Antonina. “Even with power outages in Ukraine a patient can still be fitted with quality prosthetics, it’s done very quickly whilst preserving the quality.

“When someone hears about it, it spreads like wild fire: everyone wants to learn about it.”

Implementing the technique also saw groups of specialists travel to other locations in Europe and Scandinavia to get proper training.

While this has made a life-changing difference to many people in Ukraine, there are also cases where such techniques can’t be used. To combat this, specialists from other countries around the world have helped hold training webinars, or offered advice on complex cases.

“Sometimes the specialists in Ukraine are working at 11pm or 1am because that’s when there is power, unfortunately they can’t always use this technique and so they have to use traditional plaster technology,” highlights Antonina. “It is challenging but they’re doing it.”

The outpouring of support during this time hasn’t gone unrecognised or underappreciated, and Antonina

believes it is making a difference for the specialists in the country and the people they are treating.

“They see the support and even just knowing how much people care makes a difference,” explains Antonina. “Even from our partners: they have never wanted to treat this as a business opportunity, it is one neighbour helping another. That’s how we feel about this project overall.

“It’s been very rewarding to understand that people feel for you and for Ukrainians in general, even if they have no connection with Ukraine themselves. There’s this emotional and peer support that really inspires the specialists to keep it up.”

FOR MORE INFORMATION To find out more about the project visit www.protezhub.com

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BAKE FOR

Dementia

Gather your loved ones for a sweet treat and help raise money to support people living with dementia during April and May

T

his April, it’s time to stand united against dementia as the annual Bake for Dementia event takes place from 25 April to 1 May.

BAKE

Every April, the Alzheimer’s Society invite people to gather their family, friends and colleagues and get baking. Whether you’re a seasoned baker or you grab a pack of cakes from the local supermarket, the event provides a chance to raise vital funds whilst also sharing information about the impact dementia has on families.

Getting involved is easy: sign up for your free fundraising kit, pick a date to host your event between 25 April and 1 May, then get baking to raise some dough for people living with dementia.

Money raised during the event can make a big difference for people living with dementia and their families.

Just £20 helps pay for two people to receive an hour’s support from expert advisors, and £40 helps pay for essential companion calls for people

24 enablemagazine.co.uk

who are isolated and affected by dementia.

DIFFERENCE

Baking can be beneficial for people living with dementia in more ways than just fundraising: getting into the kitchen is a great way to bring enjoyment to someone as dementia progresses. Supporting a person with dementia to bake or cook can help them maintain vital skills, or they might want to watch and chat as a loved one prepares a meal or treat.

Having the person involved with cooking or baking could also help their appetite if they are eating less.

If you are supporting someone with dementia in the kitchen, the Alzheimer’s Society recommend different adjustments that can help your loved one get involved. Choosing a recipe that can be followed one step at a time, breaking down tasks into simple steps, giving clear written or verbal instructions, and turning baking into a fun event by decorating or adding finishing touches like their favourite sprinkles can all be helpful.

You could even take inspiration from a cooking show they like or play their favourite music in the background while you bake to create a soothing and familiar environment.

GRAB A CUPPA

If cake isn’t your go-to, there’s still more chances to help fundraise and increase awareness of dementia. As May begins, Dementia UK (www.dementiauk.org) will host Time for a Cuppa: an occasion to get together with friends, loved ones or colleagues over your favourite brew whilst raising money for families facing dementia. Taking place between 1 and 8 May, any money raised will help families get the help they need whilst starting a conversation about the condition.

FOR MORE INFORMATION Take part in Bake for Dementia and order your free fundraising kit from the Alzheimer’s Society (www.alzheimers.org.uk).

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20/02/2023 11:41

Knowing your gut When you hear the phrase gut health, what do you think of?

Your mind might go straight to your digestive system or bowel movements, but few people know how the gut really works and the massive impact it has on both your mental and physical health 26 enablemagazine.co.uk

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L

ooking after your gut and its microbiome – made up of trillions of bacteria, fungi and other organisms in your large and small intestines – can be hard to understand, and it’s normal if you don’t know where to start.

In 2015, identical twins, DJs and now presenters Alana and Lisa MacFarlane volunteered to be part of the TwinsUK research at King’s College London, becoming the self-proclaimed chief guinea pigs for the British Gut Project.

As a result of the research, the duo, dubbed the Mac Twins, was shocked to learn that despite sharing the exact same DNA, their gut microbiomes were only about 30 per cent the same.

Previously fuelled by a love for Scottish fried food and fad diets, Alana and Lisa set out to learn more about nutrition and the gut.

PIC: ©AMY BRAMMAL

KNOWLEDGE

“Before we went through these studies we had no idea what our guts were, about the microbiome and how closely they were linked to so many different health outcomes,” reveals Alana. “When we started going through the research we were like why does no one know about this?

It then led us to setting up The Gut Stuff.”

The Gut Stuff is an online resource, helping people understand what gut health is and how to look after it. The more the twins learned, the more they wanted to find a new way to share their knowledge with the world.

“We used to do things like the cabbage soup diet pre-Magaluf 2005 and nutrition was very much what was on the outside and something you did two weeks before you went on holiday, but what we were starting to realise - and what seems so obvious now - is that what we put inside of our bodies is so crucial to our health,” emphasises Lisa. “That wasn’t an overnight realisation for us. Our dad died of a heart attack in his 50s which happened about the time we were going through the research, so I think it was a sort of imperfect storm at the time.”

Armed with their new knowledge and growing curiosity, Alana and Lisa made the decision to pitch a TV show focused on gut health. Nearly four years from their first pitch, Know Your Sh!t has hit screens around the UK on Channel 4.

It was really important for us to have that feel of being inclusive BACK TO BASICS

Over recent years, the way we talk about and approach gut health has changed, but not always for the better: the digestive health industry is expected to be worth 71.95 billion dollars by 2027. Alana and Lisa wanted to take it back to basics on the show, enlisting the help of experts: gastroenterologist Dr Rabia and dietician Sophie Medlin.

“It has been commercialised in a weird way through superfoods and detoxes, whereas we’re just talking about everything our granny used to tell us like drink water, have more fibre, eat fruit and veg,” explains Lisa. “It’s nothing that we didn’t know, but now it’s time to start shining a light on why it’s so important.”

By going back to basics, the show is helping shift the poo taboo as Alana and Lisa meet different people who live with health conditions or gut issues.

“The reality is it isn’t cool or sexy to talk about it, but educating yourself is so important,” offers Lisa. “Alana and I are testament to the fact that everyone’s bodies are completely different and unfortunately there is no quick fix.”

Offering tips and advice on how often you should go to the bathroom, the best ways to increase your fibre intake and how to beat the bloat, the show is also covering important topics like living with a colostomy bag and spotting the signs of inflammatory bowel disease.

“It was really important for us to have that feel of being inclusive and that it was for everyone, an open forum to talk about these sorts of things,” enthuses Alana.

“A lot of the themes that come up in the show will probably resonate with Enable readers, especially when we talk about physical and non-visible disabilities,” adds Lisa. “A lot of the contributors that come on feel a lot

of anxiety and isolation while trying to get to the bottom of their symptoms.

They’re often trying to marry clinical practice and lifestyle techniques in order to manage symptoms.”

IMPACT

Gut health is linked to everything from mental health to immunity and skin, so awareness around its importance is essential, but having contributors’ stories broadcast to the nation has also brought a sense of community.

“To come on national television and to speak about these issues that sometimes they hadn’t even spoken to their partners about was incredible and so brave,” offers Alana. “We had an episode that touched on Crohn’s and we’ve had so many messages saying I’ve had a stoma from a really young age and this has made me feel so much better about it.”

The breadth of people involved is part of the reason why the show has been so successful, offering something that almost anyone can relate to, even in just a small way.

“It was important for us not to sensationalise,” states Lisa. “Yes, a lot of the problems are really serious and the implications of what they have are, but it was important for us to have this sliding scale so that there was something everyone could relate to.

“That’s also why it’s brilliant to have such a broad team of experts on the show: that’s a kind of money can’t buy situation where you have that kind of holistic approach.”

Conversations about gut health are increasing, but people need the right information for them to really make a difference.

“Your gut is everything from mouth to bum, it’s a massive long tube, there’s loads of different organs involved and it’s not just your stomach,” highlights Lisa. “It’s the main gateway to the inside of your body so we should be treating it with the importance it deserves.”

“With the show we want to keep dragging this topic into the mainstream because everyone deserves to know about it.”

FOR MORE INFORMATION Catch up on episodes of Know Your Sh!t on All 4 (www.channel4.com) and find out more about The Gut Stuff at www.thegutstuff.com

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Tim Rushby-Smith Originally from London, writer, artist and paraplegic Tim Rushby-Smith is now based in Australia. He is the author of two books: Looking Up and Beyond the Break.

Follow Tim on twitter @trushbys

GO GO TOKYO! In his latest column, Tim takes us with him on a trip to Tokyo as he considers the Japanese city’s accessibility and approach to disability inclusion

This kind of detail is in keeping with much of Japanese culture

ADVENTURE

I can now report that Japan is a great adventure. Three nights in Tokyo is barely scratching the surface, but we have come away with a strong desire to return, and a confidence that Tokyo is ‘do-able’.

The visit began with anxiety when I opened the door to my first Japanese accessible bathroom, only to be greeted with what appeared to be a ransacked plumbing and electrical spares cupboard.

The toilet was surrounded with 14 different buttons, three sinks, and a seemingly endless array of instructions, symbols and warning signs. I will not lie: I was scared.

It turns out that automated toilets are the norm in Japan. Heated seats and angled jets of water that hose down any orifice come as standard.

This kind of detail is in keeping with much of Japanese culture when it comes to expectations around service. This is also the case when it comes to accommodating people with a disability.

CONFIDENCE

Asking for help in Tokyo is easy, and such is the desire to be of assistance that any staff member

(on the metro, for example) will drop every other task and devote themselves to finding a solution.

Sometimes this would take a considerable amount of time, and involve phone calls, screens held up with messages in English displayed on them and printed maps crisscrossed in highlighter pen arrows and dotted lines (most stations have lifts, but their precise location is shrouded in mystery).

Having confidence in the level of assistance available makes exploring the city feel like a safe adventure. Access to shops and restaurants is as much of a mixed bag as the average UK high street, but there’s just so much to look at, and the kids loved it. It wasn’t quite ‘Lost In Translation’, but the feeling of being immersed in a very different culture made our short trip very stimulating.

I’ll be the first to admit that three nights is barely a snapshot of a huge city in a large country with a complex culture, but it has certainly whetted our appetites. It’s also good to be reminded that there are many destinations in the world that the disabled traveller can approach with confidence.

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PIC: © TIM RUSHBY-SMITH

L

ong haul is daunting. When flying to and from the UK from Australia, breaking up the journey is essential for me. Pain and the risk of pressure sores makes 24hr journeys near impossible.

Instead, we have embraced the opportunity for our family to have a quick peek at somewhere new. These little tasters usually result in a desire to spend more time exploring, as is certainly the case after our recent ‘flying visit’ to Japan.

As part of my research, I asked a friend who competed at the Tokyo Paralympics in 2021.

“How was Japan? Any tips on travelling around Tokyo?”

“We weren’t allowed out of the athlete’s village because of Covid,” came the reply. Should’ve thought of that.

29

OPENING DOORS TO SUPPORT With disabled women at a higher risk of abuse, increased funding for more accessible services is necessary to improve support

W

omen with a disability are nearly three times more likely to experience a form of abuse than non-disabled women. In situations where a disability makes it hard to use self-defence, or to recognise and report abuse, it can be harder to escape this situation.

When disabled survivors of abuse are able to leave, they can face additional barriers to accessing support Kat has worked at Women’s Aid for seven years, supporting domestic abuse survivors through a range of services including the Survivors Forum, live chat and via email.

“For disabled survivors, their abuser may also be their carer, and they might rely on them for personal care or mobility,” explains Kat. “This increases their vulnerability to an abuser’s controlling behaviour, as well as creating additional barriers to leaving.”

RECOGNITION

Abuse can be physical, psychological, sexual or financial, or a combination of these, but disabled women may experience additional forms of abuse.

This could be their abuser withholding care, removing mobility or sensory devices, carrying out care in an abusive way, or an abuser using their disability to degrade them. Financial abuse can also become more complex if someone is claiming state benefits.

“If you have a disability or chronic health condition, an abuser may use this as part of the abuse. However, abuse is never your fault,” advises Kat. “Only the abuser is responsible for their actions. If someone takes advantage of the power they have as a

30 enablemagazine.co.uk

caregiver, this could be abuse.”

Withholding care or essential equipment can come in many forms.

This could be hiding, manipulating or destroying devices or tools like a walking stick, hearing aid or wheelchair; refusing to help someone attend important medical appointments; refusing to interpret what people are saying to you if you are deaf or hard of hearing; overmedicating or under-medicating and more factors.

“Disabled women can encounter differing dynamics of domestic abuse, which may include more severe coercion, control or abuse as their perpetrator may be the person who is supposed to be their carer,” adds Abigail, director of service delivery at Refuge.

SUPPORT

If you are in an abusive situation, or you are concerned that someone you know is, there are different ways to seek support to help you leave. Contacting an organisation like Women’s Aid or Refuge could be the first step. This can be done in person, over the phone, through email or via live chat.

Often, disabled women can face additional barriers to support. To help combat this, new services have been developed with these barriers in mind.

“Disabled survivors will often face increased isolation due to physical inaccessibility, stigma and discrimination,” stresses Kat. “They may also have less chance to disclose abuse, as they are less likely to be seen by professionals on their own.

“A lack of in-depth understanding

of the dynamics of abuse and the specific experiences of disabled women also means that healthcare professionals can view both physical and mental ill health as the consequence of a woman’s disabilities, rather than the result of domestic abuse.”

The No Woman Turned Away Project from Women’s Aid aims to support women with additional barriers to accessing safe accommodation. Through the service, a specialist team offers personalised advice to support survivors in finding a safe place to live. In an emergency situation, the emergency SMS service allows deaf, hard of hearing and speech-impaired people to text 999 to receive support.

For disabled survivors, their abuser may also be their carer

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spotlight

Recently, Women’s Aid released a short film called The Road We’ve Had to Walk, focused on the barriers that the most marginalised abuse survivors face when trying to access support.

This film is also available in British Sign Language.

“When you decide to leave, it is best to plan your exit carefully if you are able to do so,” offers Kat. “Some abusers can become more violent and controlling if you try to escape, so try to plan to leave at a time when you know they will not be around.

“If you can, take everything you need with you – especially important documents for yourself and your children. It’s important to remember that you may not be able to return later.”

Whilst some specialist support does exist, there has to be more before the

situation can improve.

“Survivors with disabilities do currently face a shortage of accessible support and increased funding is urgently needed to ensure that specialist services are commissioned, and more services are accessible to survivors with disabilities,” highlights Abigail.

CHANGE

Until there is a greater focus on support for disabled women from policymakers, it will be difficult for services to improve their provision.

“Specialist services led by and for disabled women are uniquely placed to understand and effectively respond to the needs of survivors with disabilities,” stresses Kat. “We need to see dedicated ring-fenced funding for these specialist services to sustainably

deliver the services that women so desperately need.

“We also need to see the government introduce mandatory training for all health professionals delivered by domestic abuse specialists – so that professionals can spot the signs of domestic abuse, and respond in the most effective way.”

FOR MORE INFORMATION You can access free, impartial support from domestic abuse charities.

REFUGE National Domestic Abuse Helpline: 0808 2000 247 www.refuge.org.uk WOMEN’S AID helpline@womensaid.org.uk www.womensaid.org.uk

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31

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WE’VE GOT THIS

What motivated you to create We’ve Got This?

I have a disability that’s called Charcot-Marie-Tooth so it affects the way that I walk, I fall over and I break bones very easily. I always wanted to be a parent but when I went to my doctor and said I met somebody and I want to start a family, I was met with discrimination. He said to me ‘I don’t think that’s a good idea and I don’t know how you are going to manage’.

I realised that we really need to change how we view disability and parenting, especially in the medical system. A couple of years later and I was pregnant with my first child. I wanted a book to have as a resource and to feel less alone. I searched far and wide but it didn’t exist so I decided to release it. These are interesting, human stories and I also hope it really reaches the spaces that need to change. Whilst it shows the barriers that disabled parents face, it also highlights how parenting with a disability can also be really funny and humorous and it shows that we are really great problem solvers.

How did you ensure a wide range of disabilities were represented within the book?

I have a physical disability whereas in the book you find deaf parents,

PIC: © PENNY RYAN

A new book of essays by disabled parents is challenging perceptions, sharing experiences and providing a relatable resource. We catch up with Eliza Hull who created the new book, We’ve Got This, to find out what motivated her and what needs to change for disabled parents in medical settings Eliza with her children

there are blind parents, there are wheelchair users who are parents, parents with intellectual disabilities, non-visible disabilities like chronic illnesses, parents that are autistic.

I think it just shows that disability doesn’t look like one thing. I’m on big disabled parenting groups online that have thousands of members and I put it out there, I reached out to various organisations and then I also went to parents that I knew online that are already in the disability advocate space. There’s a cross-section of location, gender, disability and also a cross section of different minorities.

Why was it important to highlight the barriers disabled parents face?

There’s discrimination that people with disabilities face even before they’re pregnant, when they are told they shouldn’t become a parent, when they’re told that they can’t be given accessibility measures for their appointments for instance. I think that ultimately people in the medical space really just need to become disability aware. If they were actually taught the appropriate skills and given disability awareness

People in the medical space really just need to become disability aware training, that would be the first real step in changing attitudes and the way that they treat people with a disability when they come through the hospital.

I think we are seeing change, there’s books like this giving representation, even just in movies and on TV, I think that stories have the power to change attitudes and what we’re seeing is diversity being celebrated, being talked about, more prioritised, but I still feel like we have a long way to go.

FOR MORE INFORMATION We’ve Got This: essays by disabled parents, published by Scribe, is available to purchase now.

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33

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Celebrating

AUTISM ACCEPTANCE Discussions about autism are growing around the UK with many autistic celebrities embracing the opportunity to talk about their diagnosis and experiences. As World Autism Acceptance Week approaches, there’s a chance to celebrate the achievements of autistic people and better educate the public

I

n the UK, there are an estimated 700,000 autistic adults and children, but still much of the public don’t know how to best support people on the spectrum. At the end of March, a global event is helping to celebrate autistic people’s achievements, teaching others about what autism is, and making sure that autistic people feel more accepted.

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This year, World Autism TAKE PART Acceptance Week will take place The impact of the week doesn’t from 27 March to 2 April, and the UK’s stop after seven days or on World leading autism charity, the National Autism Acceptance Day: as April Autistic Society, is celebrating begins, people around the world the theme of colour. One of the will mark Autism Acceptance most common symbols or colour Month. Throughout the week itself, associations used to represent and as we move into April, there’s autism is the rainbow plenty of ways to be part of the spectrum, portraying celebrations. the range of abilities World Autism The National Autistic and diagnoses on the Society are highlighting Acceptance autism spectrum three fun ways to get Week takes and also the variety involved: taking part place from of experiences that in a Spectrum Colour 27 March to autistic people have.

Challenge, signing up for The week itself leads 2 April 2023 a Spectrum Colour Walk, up to World Autism or doing it your way. New Acceptance Day on 2 April. for 2023, the Spectrum Colour Two years ago, the week Challenge encourages people to be made the shift from being known bright and bold as they fundraise as World Autism Awareness Week with a colour theme, this could be to Work Autism Acceptance Week running a colour quiz, a rainbow to represent the need for inclusive bake sale, a face painting party communities, rather than just or something else. Two Spectrum recognition of autism. The first week Colour Walks will be taking place on was held in 2007, originally aiming to 2 April in London and Sheffield, each educate people about autism, and hosted in a green space with a 5km celebrating the achievements of route to follow. People of all ages and autistic people continues to be the abilities are invited to take part in focus of the week today. this colourful day out.

Events, information and other Doing something to mark the resources around the dates should week can be more personal to you be focused on autistic people’s voices and the people around you, too: you and stories, each of which are unique could host friends and family and to them. Excluding autistic people start a conversation about autism from discussions about their lives can acceptance; take time to follow lead to misinformation, isolation and autistic creators on social media a lack of what the week is all about: apps like Instagram, Twitter and acceptance.

TikTok; or get involved in a local community group.

EDUCATION

Education settings can also take part in the week, helping to inform young people and staff about autism and how you can support autistic people both in and out of the classroom.

Free resources like Twinkl’s Autism Acceptance Week Assembly PowerPoint (www.twinkl.co.uk) can help aid in teaching and informing pupils, but education staff can also utilise information from autism organisations and charities, or come up with their own ways of celebrating the week in the classroom.

Autism Together also provide resources for schools with prerecorded assemblies, lesson plans, printable activities and more available for free. If you want to get children involved at home, the Acceptance Month Funbook from Autism Together is a great way to keep little ones busy with puzzles, drawing and colouring, all whilst learning about autism, the senses and how to do some Makaton signing.

WIDER IMPACT

Along with educating other people about autism and providing an opportunity to celebrate autistic people and share their experiences, the week provides a chance to highlight services for autistic people to reach out for support.

Due to a lack of understanding, autism is often seen as a blanket term, leaving people feeling misunderstood and alone. This can lead to bullying or hate crimes, with autistic young people more likely to experience bullying than their peers.

Organisations like the Anti-Bullying Alliance (www.anti-bullyingalliance. org.uk) can provide advice and tools to help parents and carers support young people experiencing bullying.

FOR MORE INFORMATION Learn more about Autism Acceptance Week from the National Autistic Society (www.autism.org.uk) and Autism Together (www.autismtogether.co.uk).

36 enablemagazine.co.uk

F R E E D O M

Intelligent Braking System

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WIN

A GARDENING BUNDLE THIS SPRING

Get outside and try a new hobby this spring with the chance to win a gardening bundle with all the tools you need to get started

A

s the weather gets warmer this spring, it’s time to gain your green fingers with some gardening.

Gardening is a great way to fit in physical activity whilst trying something new and offers a range of possibilities depending on your abilities and the space you have available.

Whether you have a garden to plant in, an allotment space, or just a window box, this gardening bundle can help you start planting. The kit contains a kneeling mat; storage bag; pruning shear; garden fork; trowel; weeding fork; hand rake; transplanting trowels; sprayer and gardening gloves.

Made of durable stainless steel, the tools are rust-proof and easy to clean, making them perfect for beginners or people who need to store their tools outside where they could be subject to different weather conditions.

With a waterproof inner layer, the storage bag features pockets for each tool as well as three larger compartments, leaving you space to expand your collection.

38 enablemagazine.co.uk

HOW TO ENTER

BY EMAIL

competitions@dcpublishing.co.uk quoting Spring Gardening Bundle.

ONLINE

www.enablemagazine.co.uk/ gardeningbundle23

BY POST Simply send us your name, contact details and where you picked up your copy of Enable to Competition, 198 Bath Street, Glasgow, G2 4HG All entries must be received by Monday 24 April 2023. Good luck!

PIC: © LBSTP / AMAZON

TERMS AND CONDITIONS: All entries must be received by Monday 24 April 2023.

The prize is one spring gardening bundle which will be sent to the winner. The prize is non-transferable, non-refundable, there is no cash alternative. The contents of the prize may differ from the images and descriptions included here. One entry per household. The publisher’s decision is final. If you do not wish to receive further communications from Enable Magazine, include ‘opt-out’ in your entry.

A holistic approach to

SLEEP

A good night’s sleep is essential to our daily function, but if you live with chronic pain or a mental health problem, it becomes a more vital step to looking after your health

40 enablemagazine.co.uk

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E

ven one night of disrupted sleep can have a detrimental impact on your mental and physical health, and the way you handle pain, but one in seven people in Britain get under five hours of sleep each night, and nearly three quarters don’t get the recommended seven to nine hours. These issues are especially prevalent during the current cost of living crisis with a quarter of adults in the UK being kept awake at night because of money worries.

IMPORTANCE

We all need sleep to function in day-to-day life, giving our bodies and minds a chance to develop, heal from illness and recharge. This can be especially difficult if the symptoms of a disability cause you trouble with sleep, with nearly 90 per cent of chronic pain patients experiencing sleep disturbances.

Poor sleep can also directly affect your ability to cope with pain and your emotional resilience.

Just one night’s poor sleep can deplete the power of your immune system, and over time continuous bad sleep can lead to higher levels of stress, depression and anxiety.

Long-term poor sleep has also been linked to a higher risk of things like diabetes, obesity and stroke. There is often a misunderstanding around how key sleep is to our health. The perfect amount of sleep depends on each individual, but changing the way we approach it can contribute to better mental health and physical health over time.

When we discuss poor sleep, it doesn’t just refer to a lack of shut eye: someone who sleeps for nine hours every night could have a bad quality of sleep due to disruption or stress. This can lead to a reduced attention span, irritability and mood changes, a lack of energy, bad decision making and slowed thinking during the day, with a knock-on effect in every area of your life from school and work to driving and processing information during a conversation.

For most people, there’s no quick fix to get the perfect night’s sleep:

it can take time and effort to find a solution that works for you, but taking a holistic approach to your sleep health could help it improve.

Often referred to as sleep hygiene, a holistic approach helps you set yourself up for a good night’s sleep.

This could include a set bedtime routine you follow every night to signal that it’s time for sleep and relaxation; healthy habits in your daily life; keeping a sleep schedule to ensure you’re getting the right amount of rest.

meditations to aid sleep, whilst subscription-only app Simple Habit has a YouTube channel that has more than 50 free sessions to try.

Undertaking regular exercise and maintaining a balanced diet can also help improve sleep, especially the quality of sleep for adults. Being conscious of factors like this that contribute to your overall wellbeing can in turn aid your sleep thanks to better nutrition, energy levels and less stress.

TOOLS

If poor sleep or insomnia is getting in the way of your daily life, preventing you from carrying out simple tasks or impeding on your education or work, it could be time to speak to a healthcare professional and seek formal support. The first step in successfully speaking to your GP or another healthcare professional about sleep is understanding sleep problems. The NHS Every Mind Matters website (www.nhs.uk/ every-mind-matters) has a helpful section on understanding sleep problems and insomnia featuring information, tips to get a better sleep and signs of sleep problems to help you identify how this is affecting you.

The same webpage lets you access the free Mind Plan tool.

After answering five simple questions, you’ll get a personalised mental health action plan with tips and advice, along with a chance to sign up to a four-week email programme so that you are sent reminders and tips while you implement this. If you have tried implementing different solutions and you still can’t sleep, or your sleep quality is bad, make an appointment with your GP to discuss the next steps and what they can do to help you.

Implementing meditation into your daily routine, especially before you head to bed, can quiet the mind and teach you coping mechanisms if you struggle to get to sleep or constantly find yourself waking up in the night. Meditation can be as simple as practicing deep breathing, but you don’t have to do it alone: there is a host of free and paid-for tools to support you whether you’re trying meditation for the first time or if you are returning to it after using it as a tool previously.

Meditation can also aid stress and anxiety. Although bad sleep can lead to higher levels of stress, it can also be the factor preventing sleep in the first place. Different worries can send the mind racing, preventing sleep or meaning the sleep you do get is of a bad quality.

Popular mobile apps like Calm and Headspace allow you to access limited content for free including

The perfect amount of sleep depends on each individual, but changing the way we approach it can contribute to better mental health

SEEKING SUPPORT

FOR MORE INFORMATION For tips and information around sleep problems, visit www.thesleepcharity.org.uk, www.sleepcouncil.org.uk, www.mind.org.uk

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EMBRACING

ADAPTIVE YOGA After surviving a stroke, yoga teacher Anna Kerry knew she wanted to adapt her practices to help herself and others

W

hen Anna Kerry wanted to relieve stress from her job, she turned to yoga.

She began attending a class every Saturday morning and soon wanted to learn more. After completing a foundation course and a teaching course, Anna became a qualified yoga teacher during August 2020 and starting teaching, but in March 2021 her world changed.

PANIC

“I woke up and everything was fine but then my left arm felt really weird and heavy,” remembers Anna. “I thought I had just stood up too fast because my head started to feel dizzy too. I tried to tell my husband I didn’t feel right but that’s not what I said: I couldn’t talk properly and at that point I really started to panic.”

Anna couldn’t move the left side of her body and her face had drooped to one side. Acting fast, her husband called the emergency services and she was rushed to hospital.

“The doctors said that because I was only 35 it could’ve been a bad migraine and that I didn’t fit the category for having a stroke, but an MRI scan showed damage to my brain and that I did have a stroke,” explains Anna.

Trauma-informed yoga is about giving them agency again, helping people get back into their body

ADAPTING

Anna’s movement started to come back while she was still in hospital, but after returning home she found it hard to stay calm and reached out to her yoga course anatomy teacher who is trained in trauma-informed yoga.

“He helped me to get back into a movement practise from my own bed, to use my yoga practise like a moving meditation,” highlights Anna. “You sort of disassociate from your body after these events because you don’t feel safe, you think your body has kind of turned against you.

“Trauma-informed yoga really helped me, so much that I actually went on to train in it as well as adaptive yoga.”

Going through this experience also shifted Anna’s perceptions of what accessibility really means.

“I always thought that my practises were really adaptable because I was using yoga blocks and things like that,” recalls Anna. “When I was lying on my bed unable to move my left side, I realised that my yoga practice wasn’t so accessible to some people, for example if someone doesn’t have use of one side or another part of their body.”

Anna

ENCOURAGING

Knowing how much both adaptive yoga and trauma-informed yoga can aid people who have had a stroke, Anna launched a six-week programme called the Life After Stroke Programme.

“Trauma-informed yoga is about giving them agency again, helping people get back into their body and showing they can trust their body again,” offers Anna. “Adaptive yoga is more to do with adapting the postures to your body and to what your abilities are.”

Armed with the knowledge of how yoga has helped her own recovery and has aided the people she teaches, Anna would encourage everyone to give it a try.

She says: “You might find something that you absolutely love doing and is really going to help your recovery.”

GET STROKE INFORMED

You can help spot when someone is having a stroke by learning the FAST acronym and calling 999 if you are concerned:

F – facial drooping A – arm weakness S – speech difficulties T – time to call 999 Become stroke aware and learn from the Stroke Association (www.stroke.org.uk).

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RECIPE

DR RUPY’S

SPICY HALLOUMI BAKE

This is spicy, wholesome, warm and inviting, all in a dish. The beautiful spices of ras el hanout work super-well in this simple traybake and you can easily substitute different vegetables for the squash and greens. A moreish dish packed with flavour that everyone will enjoy.

SERVES 4 PREP TIME: 15 minutes COOK TIME: 40 minutes INGREDIENTS ½ butternut squash (300g), scrubbed and unpeeled, deseeded and cut into 2cm cubes 1 courgette (250g), cut into 2cm cubes 1 red pepper (200g), deseeded and roughly chopped

Dr Rupy

2 tsp cumin seeds

1 tsp chilli powder 3 tbsp olive oil, plus an extra 1 tbsp to drizzle 150g spinach, finely chopped 350ml passata 1 x 400g can kidney beans, drained and rinsed 200g halloumi, sliced 1cm thick

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STEPS Preheat the oven to 200ºC fan.

Put the squash, courgette, red pepper and the spices into a large roasting tin.

Pour over the 3 tablespoons of oil and season, then toss well to coat. Roast for 25 minutes, turning the vegetables halfway through the cooking time.

Remove the roasting tin from the oven and increase the temperature to 220ºC fan.

Scrape up any crusty bits from the bottom of the roasting tin for extra flavour, then

fold in the spinach. Tip in the passata and kidney beans and combine with the rest of the ingredients.

Layer the halloumi on top, drizzle with the extra tablespoon oil and return to the oven for a further 15 minutes until the halloumi is melted and charred in areas.

Extracted from COOKS

by Dr Rupy Aujla (Ebury Press, £22)

PICS: © DAVID LOFTUS

3 tsp ras el hanout or baharat spice mix

Discover unique accessible experiences in Norfolk.

www.benorfolk.co.uk

Hello Spring Get outside and try something new this season with our pick of staycations, days out and hobbies

London

STAYCATIONS London

www.visitlondon.com The UK’s capital city was recently named as one of the top 10 accessible cities in the world by The Valuable 500 and for good reason: survey respondents highlighted its accessible transport network; the proximity of landmarks, retail spaces and hospitality venues to hotels; and the city’s widerange of inclusive and accessible attractions. The Visit London site has a dedicated page on Accessible London and lists of the top accessible attractions for people to visit. Get organised ahead of your trip and use the Transport for London (tfl.gov.uk) accessible journey planner to map your days out to avoid stress and request any necessary assistance in advance.

Cardiff

The Lake District

www.visitlakedistrict.com Covering more than 2,300 square kilometres, the Lake District is one of the UK’s most picturesque areas and is a UNESCO World Heritage site, recognised as being of outstanding universal value. A holiday for lovers of the outdoors, there’s plenty to do all-year-round, but especially as the weather starts to get warmer in the spring. Take a boat trip on Lake Windermere, sample world-famous gingerbread in Grasmere or follow one of 50 easy-access trails mapped out by Miles Without Stiles. Base your stay at an accessible hotel or holiday cottage in the district: you can easily read what accommodation other visitors have found comfortable and well-equipped on sites like Euan’s Guide.

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Cardiff

www.visitcardiff.com Head to the land of castles this spring and visit Wales. The country’s capital city, Cardiff, and its surrounding area are often acknowledged as one of the UK’s most accessible destinations with a host of stays and attractions to suit different needs and requirements.

Pack your days with history-filled visits to Cardiff Castle and the National Roman Legion Museum; get outside at Chepstow Easy Access Walk and Dyffryn House and Gardens; or enjoy a traditional afternoon tea at the Pettigrew Tea Rooms.

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DAYS OUT

The Burrell Collection

The Hepworth Wakefield

West Yorkshire, England www.hepworthwakefield.org, 01924 247 360 With over 1,600 square metres of gallery space, Hepworth Wakefield is the largest purpose-built exhibition space outside of London. Along with the gallery’s exciting events programme, there is an art collection to enjoy alongside the café and learning studios. Accessibility is at the heart of it’s design, with level access via automatic doors, lifts to all floors of the gallery space and a Changing Places toilet.

Fairytale Farm

Southcombe, England www.fairytalefarm.co.uk, 01608 238 014 A perfect day out for the whole family, Fairytale Farm is open to all but was specifically created for disabled children. The farm has a range of animals to visit including goats, pigs and ponies, along with both indoor and outdoor play areas,

and a sensory Enchanted Walk. Both play areas have accessible equipment including a wheelchair swing. Ahead of your visit, you can use the farm’s disabled guide to help plan your day.

The Burrell Collection

Glasgow, Scotland www.burrellcollection.com, 0141 287 2550 Made up of 9,000 different objects, The Burrell Collection is an art gallery like no other. Set within Glasgow’s

HOBBIES

Pollok Country Park, the museum underwent a major renovation before re-opening in March 2022 and now has a range of new accessible features. The attraction has a quiet room for visitors, step-free access from the car park, an accessible lift to all levels, and is the first museum in Scotland with two Changing Places toilets alongside nine other accessible toilets. The museum also has a five-star rating in every category on review site Euan’s Guide.

RDA

PICS: © LOUISE CLARKE PHOTOGRAPHY; CSG CIC GLASGOW MUSEUMS COLLECTIONS

Inclusive horse riding Whether you are a keen horse rider or you want to try the sport for the first time, Riding for the Disabled Association (www.rda.org.uk) have opportunities around the country for you to get started. The charity welcomes people with physical and learning disabilities and autistic people with no age restrictions, running activities like riding and carriage driving alongside therapy, fitness and skills development opportunities. RDA has more than 480 groups around the UK, with the majority run by volunteers looking to make a difference to disabled people’s lives.

Gardening

Community running

Make the most of the longer days and try your hand at gardening this spring. The activity counts as a form of exercise and has a host of benefits for both physical and mental health. There’s a host of organisations and charities ready to offer information and support for disabled people who want to earn their green fingers but aren’t sure where to start. Thrive (www.thrive.org.uk, 0118 988 5688), Gardening with Disabilities Trust (www.gardeningwithdisabilitiestrust.org.uk), and the Royal Horticultural Society (www.rhs.org.uk, 01483 479 700) all offer information and advice.

Every Saturday morning, thousands of people around the UK meet up in their local areas to take part in a free community event: parkrun. The five-kilometre runs are open to everyone whether you are running, jogging or walking, and wheelchair users and people with prams are also welcome to take part. This is a great way to get outside and meet people from your local community whilst also asking runners of all levels for their tips. There is a junior parkrun every Sunday morning with twokilometre courses for four to 14-year-olds. Find out more and discover your local event at www.parkrun.org.uk

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47

Meadowsweet Bungalow Chipping Campden’s history in stone is the Cotswolds’ hidden gem - an idyllic centre for easy access to the local towns and villages, Stratford, Cheltenham, Gloucester, Oxford, Warwick & Worcester, etc.

Beautifully presented modern self-catering bungalow in Scotland with spectacular views. Fully accessible for wheelchair users, with specialist equipment. Sleeps 5.

George Barn is within no more than a 7 to 8 minute walk to the curved High Street, its inns, restaurants, shops & attractions.

Meadowsweet is near Kilmartin Glen, in the Moine Mhor National Nature Reserve.

Heating and linen is provided. Fibre broadband, BT TV and WiFi. • Level drive and ramp • Alerta Low profiling bed • Oxford Mini 140 hoist

• Freeway Tilting Shower Chair • Fully adapted wet room • Wide doors, spacious rooms

Michael Haines George Barn, Blind Lane, AA 4—Star Self catering

Ruth Bebb ruthbebb@btinternet.com

Chipping Campden, Glos. GL55 6ED Mobile/Text: 07889 649812 Email: info@cotswoldcharm.com Visit our website: www.cotswoldcharm.com

www.meadowsweetbungalow.co.uk

Experience the UK’s largest display of vehicles available on the Motability Scheme.

On display at the event

70 +

cars from many different manufacturers

60 +

powered wheelchairs and scooters

NEC, Birmingham

65 +

adapted cars and WAVs

Take a test drive

Cars available to test drive including cars fitted with adaptations*

National Exhibition Centre, (Hall 17,18 &19) Birmingham B40 1NT Friday 19 and Saturday 20 May 2023 9am – 4pm FREE entry and FREE parking Fully accessible indoor venue

Find out more at motability.co.uk/thebigevent or call 0800 953 7000 Please quote MO1042K * To test drive the cars you must bring your full UK driving licence and sign our test drive declaration on the day. Full Terms and Conditions can be found at motability.co.uk/thebigevent. The Big Event is organised and hosted by Motability Operations Limited, which is authorised and regulated by the Financial Conduct Authority.

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The diary

Send your upcoming events to editor@dcpublishing.co.uk

21 MARCH

Rock Your Socks Nationwide Each year Mencap mark the World Down Syndrome Day event on 21 March by inviting everyone to rock their socks at school, work or with family and friends.

This year, the charity has teamed up with a British sock company (learn more on page 18) to release a special edition pair of colourful socks for the day. There are also ways you can get involved in fundraising and raising awareness.

www.mencap.org.uk

19 APRIL

OTAC Leeds Weetwood Hall Estate, Leeds Packed with the latest equipment and adaptation guidance, the OTAC conference can help occupational therapists build on and improve their daily practice.

There will be opportunities to keep up with the latest developments through CPD accredited seminars and training sessions as well as the chance to speak directly with exhibitors. www.otac.org.uk

16 MAY

Kidz to Adultz South

27 MARCH- 2 APRIL

Spectrum Colour Walks London and Sheffield Get your walking shoes on and help make a difference to mark World Autism Acceptance Week with the National Autistic Society.

Taking place in London and Sheffield, the Spectrum Colour Walks are a new, in-person event which sees participants complete a 5K route whilst doing essential fundraising for the charity and the people it supports.

www.autism.org.uk

2 APRIL

London Landmarks Half Marathon London Grab your running shoes and get ready to raise vital funds for people affected by dementia as part of the Dementia UK team for the London Landmarks Half Marathon. Covering 13.1 miles, this event takes you around the closed streets of London starting on Pall Mall and finishing by Downing Street. It is expected that 10,000 runners will take part to explore the capital.

www.dementiauk.org

19-20 MAY

The Big Event The NEC, Birmingham The Motability Scheme’s summer events are back with the return of The Big Event, offering a fantastic opportunity for visitors to find out everything they need to know about the Scheme and see the latest range of vehicles and products available.

www.motabilityonebigday.co.uk

Farnborough International Exhibition & Conference Centre Dedicated to young adults with disabilities and additional needs, this exhibition is perfect for parents, carers and professionals working to support these young people. More than 140 exhibitors will be at the event, offering advice and information on many areas including: funding; mobility; communication; legal matters; sensory and more.

www.kidzexhibitions.co.uk

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We all welcome a little extra assistance now and again, particularly when travelling alone. Thistle Assistance is an initiative to help you feel safer and more comfortable when using public transport.

thistleassistance.com

PIC: ©RESEARCH INSTITUTE FOR DISABLED PEOPLE

enable travel

Access to travel Progress is being made to improve access on transport for disabled people, but we need more immediate action to prevent barriers to essential services

O

n average, disabled adults in England make around 28 per cent fewer trips than non-disabled adults. For the last decade, disabled people have made 38 per cent fewer journeys than non-disabled people. This statistic usually isn’t due to a lack of wants or needs to make journeys, but rather consistent barriers to accessible transport. Accessibility should be seen as a fundamental requirement on all modes of transport, but at the moment this isn’t the case with consistent reports from disabled people of issues accessing rail travel, buses and even taxis across the UK. The UK Government’s Inclusive Transport Strategy, first announced in 2018, aims to create a transport system

offering equal access for disabled people by 2030, but there’s still a long way to go.

PUBLIC TRANSPORT

Since 2019, the stock of accessible trains has been increasing, but this is only of benefit if railway stations are also brought up to standard, and if people working in both these settings are adequately trained in disabled passengers’ needs and rights. In February 2022, just 20 per cent of stations in England had stepfree access between the street and platforms, and just 31 per cent had ‘reasonable’ step-free access. Fewer than two per cent of stations had level access between the train and the platform, meaning a platform ramp

would be required to board. At a third of stations, this gap was greater than 25cm. In the remainder of stations, other physical barriers still exist which can prevent accessible rail travel.

The situation is better on buses with almost all buses in England complying with the Public Service Vehicles Accessibility Regulations that were set in 2000, including things like assistance from bus drivers for disabled people boarding, wheelchair suitability, and audible and visible announcements.

While the situation is improving in some areas, accessibility issues with public transport stretch further than platforms and vehicles into the stations themselves with a distinct

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lack of Changing Places toilets and many platforms being too narrow for a wheelchair to turn on them.

AIR TRAVEL

While disabled passengers or passengers with reduced mobility in the UK have a legal entitlement to support when travelling by air, often people in the disability community highlight that adequate support isn’t provided. Currently, if special assistance isn’t provided by airports and airlines when flying from the UK, you can complain to the UK Civil Aviation Authority (CAA).

Over the last year, airlines and airports have been warned by the CAA that failure to provide necessary support to disabled passengers will come with consequences, and in response, some airlines and airports are finding new ways to educate their staff and improve their systems.

During December 2022, British Airways committed to improving its customer experience for passengers who require additional assistance.

The airline is collaborating with Queen Elizabeth’s Foundation for Disabled People (QEF) to provide training sessions across the country.

This includes assessing and preapproving seat support devices recommended for use on flights.

It’s important to make sure your destination is accessible too. During 2022, the Valuable 500 - a global business collective increasing disability inclusion – revealed their top 10 accessible cities around the world based on research that encompassed both residents and tourists around the world. The research looked at things like transport, disability rights, free or discounted access to landmarks and historic sites, and more. The top 10 list included destinations further afield like Las Vegas, New York,

The new centre could influence the future of transport in the UK

52 enablemagazine.co.uk

Orlando, Shanghai, Singapore, Sydney and Tokyo, alongside ones closer to home like London, Amsterdam and Paris.

CENTRE FOR INCLUSION

This year, the UK’s first Evidence Centre for Inclusive Transport is set to open thanks to grant funding from Motability. Organisations including the Research Institute for Disabled Consumers (RiDC), Designability, Connected Places Catapult, Policy Connect and WSP UK will work with Coventry University to develop and run the centre. Consulting with disabled people, disabled people’s organisations, transport providers and policy makers, the purpose of the centre will be to undertake research and develop solutions which aim to make transport accessible for everyone. The £20 million in grant funding will be provided over the course of seven years.

Working with a panel of competition

advisors from research, policy, charity and disability sector backgrounds, Motability wanted to award the grant funding to a cause which shared their vision that no disabled person is disadvantaged due to poor access to transport.

RiDC will have a key role in the centre, engaging disabled people to ensure they lead the discussion around the future of transport strategy, policy and practice. This will include developing and managing a Community for Accessible Transport platform and bringing existing research publications to the table.

The new centre could influence the future of transport in the UK, improving the sector’s understanding of disabled people’s needs and the barriers that already exist.

FOR MORE INFORMATION For information on your rights when using modes of transport, visit www.transportforall.org.uk

DECEMBER 2016

PATHFINDER 17

HAVE YOU GOT A PROBLEM WITH ALCOHOL? ONLY YOU CAN DECIDE!

To answer this question ask yourself the following questions and answer them as honestly as you can 1.

2.

Is drinking making your home life unhappy?

Does your drinking make you careless of your families welfare?

3. Do you drink because you are shy with other people?

4. Is drinking affecting your reputation?

5. Do you drink to escape from worries or trouble?

6. Do you drink alone?

7. Have you lost time from work due to drinking?

8. Has your ambition decreased since drinking?

9. Has your efficiency decreased since drinking?

10. Is drinking jeopardising your job or business?

11. Have you ever felt remorse after drinking?

12. Are you in financial difficulties as a result of drinking?

13. Do you turn to or seek an inferior environment when drinking?

14. Do you crave a drink at a definite time daily?

15. Does drinking cause you to have difficulty in sleeping?

16. Do you want a drink the next morning?

17. Do you drink to build up your confidence?

18. Have you ever had a complete loss of memory as a result of drinking?

19. Has your Dr ever treated you for drinking?

If you have answered “YES” to any one of the questions, there is a definite warning…

If you have answered “YES” to any two, the chances are that you have a problem…

If you have answered “YES” to three or more, you most certainly have a problem…

“THE ONLY REQUIREMENT IS A DESIRE TO STOP DRINKING” Take action now and give us a call on 0800 917 7650… We are here to help!

Able_Jan_Feb18_ad_pages.indd 16

19/01/2018 11:53

CALLING FOR

Cost of living support

Across the UK, disabled households are making terrifying choices between heating, eating and essential equipment with little financial support or solutions offered by the UK Government 54 enablemagazine.co.uk

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T

he UK’s rate of inflation reached a 41-year high during October 2022 at 11.1 per cent. While this rate is now dropping, and expected to continue falling throughout 2023, the costs that went up with the inflation rate don’t seem to be coming down. From December 2021 to December 2022, domestic gas prices increased by 129 per cent and domestic electricity prices by 65 per cent.

The Office for National Statistics has also been tracking the price of the lowest-cost grocery items since April 2021. In September 2022 these items had increased by around 17 per cent, with basic items like pasta going up in price by as much as 60 per cent.

The increasing cost of basic items in the UK’s supermarkets is having a worrying effect: almost half of disabled adults say they have had to cut back on energy use, and almost one in three disabled people have had to reduce what they spend on food.

INCOME GAP

The effect of continually increasing costs is compounded by another issue: an income gap between disabled households and nondisabled households. In January 2023, the Resolution Foundation released a report called Costly Differences. The research combines statistical analysis with the results of a YouGov survey of 8,000 working-age adults, more than 2,000 of these adults reported a long-term illness or disability.

The report compared how working-age disabled and nondisabled people’s wages have changed over the last decade, along with how they are coping with the current cost of living crisis.

It’s no surprise that the report found disabled people are facing the current crisis with lower-thanaverage incomes. The underlying disposable income gap between the two groups was at 44 per cent in 2020-21. While this was down from 54 per cent a decade ago, it is still having a detrimental effect on the disability community, especially during this time. One in three adults in the lowest household

The introduction of a social tariff isn’t a new concept: until 2011, this was offered to eligible households by all energy suppliers income category have a disability in comparison to just nine per cent of adults in the highest household income category.

This income gap leaves the UK’s disabled population at an acute risk of material deprivation: where people are unable to afford everyday essentials. The same report found that disabled people were almost three times as likely to live in material deprivation than the rest of the population.

The Resolution Foundation have highlighted that further measures will be needed to tackle the lower living standards often experienced by disabled people in the UK.

HEATING AND ENERGY

Aside from the cost of essential food and drinks, the price of energy has been one of the main issues highlighted by disabled people, charities and disabled people’s organisations. At the beginning of 2023, organisations including Scope, Age UK, Fair By Design, EAS Scotland and more wrote to the government, asking them to provide discounted energy bills for people with higher use.

This would come in the form of a social tariff, offering a long-term solution to the current energy crisis and security to struggling households. A social tariff would mean eligible households get a cheaper deal from their energy provider: their bills wouldn’t be capped but instead there would be a discounted maximum cost for each unit of energy. This would work in a similar way to regulator

Ofgem’s Price Cap and Energy Price Guarantee. The introduction of a social tariff isn’t a new concept: until 2011, this was offered to eligible households by all energy suppliers.

The demand to end sky high energy bills for older and disabled people comes with an open letter that the public can sign, citing the fact that more than 6.7 million UK households have already been pushed into fuel poverty.

COMMUNITY SUPPORT

If you are struggling to afford essentials or run vital equipment during this time, some support exists on top of the cost of living payments provided by the government for those eligible.

Contacting your local authority (www.gov.uk) can be the first step to accessing support from a food bank or additional financial support. They could ask you questions about your situation, who lives in your home and who you support. You can also get an emergency referral from Citizens Advice by calling their helpline on 0808 223 113.

Some disabled people’s organisations are highlighting the support available through charities or local organisations. Sense (www. sense.org.uk) have an information page highlighting support, and Turn2Us (www.turn2us.org.uk) have a frequently asked questions page covering benefits, fuel payments and any financial aid that has been announced by the UK Government.

It is normal for your mental health to be affected by these events. Mental Health & Money Advice (www. mentalhealthandmoneyadvice.org) have launched a dedicated hub, providing advice and signposting to helpful organisations.

FOR MORE INFORMATION Citizens Advice (www.citizensadvice.org.uk, 0808 223 113) and Money Helper (www.moneyhelper.org.uk, 0800 138 7777) can both offer information if you are struggling with the cost of living.

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MONEY

updates In April, a new tax year begins. This is what is often referred to as the ‘financial year’ and comes with changes to the rate at which benefits are paid. This year, the start of the new tax year will also bring additional cost of living payments from the UK Government

BENEFITS CHANGES On 6 April 2023, certain benefits will be uprated in line with inflation, meaning that the amount people receive will increase by 10.1 per cent. Universal Credit, Personal Independence Payment, Carer’s Allowance and Employment Support Allowance will all increase along with other eligible benefits. People claiming Pension Credits will also benefit from the rise.

As benefits increase, other big changes are taking place in the welfare system, most notably with Universal Credit. In January 2023, the Administrative Earnings Threshold rose to the equivalent of 15 hours on National Living Wage, making it £617 for a single claimant. This threshold determines the type of support you receive and people who earn less

Households receiving meanstested benefits will get a new £900 cost of living payment 56 enablemagazine.co.uk

than this amount will now be placed in an intensive work search group with Job Centre staff in order to find ways to increase their pay. Now, people on Universal Credit who work between 15 and 35 hours a week for minimum wage will also be required to meet with a work coach with the aim of increasing their earnings.

COST OF LIVING PAYMENTS The new tax year will also see additional cost of living payments from the government. These were initially announced in the Autumn statement during November 2022.

During the financial update, the Chancellor, Jeremy Hunt, confirmed that households receiving meanstested benefits will get a new £900 cost of living payment during the 202324 tax year.

Further to this, pensioner households will receive an additional £300 payment, and people on disability benefits will receive a £150 payment. These payments will be UK-wide and you don’t need to apply for them. Depending on your circumstances, you could be eligible for one, two or all of the payments totalling £1,350.

The £900 payment will be issued in three instalments, the first during

spring 2023, the second during autumn 2023, and the third during spring 2024. For people claiming certain disability benefits, the £150 payment will be paid during summer 2023, and people over pension age will receive the £300 payment in winter 2023-24.

While this additional financial support is welcome, as many as four in 10 of the poorest households do not receive any means-tested benefits. In response to this, the Chancellor confirmed that the government is working on a new support system which will come into place from April 2024 and will differ from the current one which relies on providing financial aid based on the benefits system.

People who aren’t eligible for the support arriving in the next year could get help from their local authority through the Household Support Fund. This is used to support households in need who may not be eligible for other support.

Currently, the government has committed an additional £1 billion for the fund. To find out more about how to access this, contact your local authority (www.gov.uk).

FOR MORE INFORMATION

Advice and support around the cost of living and benefits is available from Money Helper (www.moneyhelper.org.uk, 0800 011 3797).

REVIEW

MG4

Alistair Suttie reviews the MG4 which makes choosing a good looking EV more affordable while being enjoyable to drive

INSIDE The keen financial deal on the MG4 might lead you to suspect there have been many cost-cutting measures to achieve this. If there have been, it’s not evident in the cabin of the MG as it looks stylish, futuristic even, and there’s plenty of room. Up front, the driver is treated to a good seating position with lots of adjustment, though only the top-level Trophy model comes with electric seat operation.

It’s also the only one with leather upholstery and heated front seats and steering wheel fitted.

The 7.0-inch main instrument display works well enough, though taller drivers may find the rim of the steering wheel can obstruct

58 enablemagazine.co.uk

the view. All-round vision is good and every MG4 comes with rear parking sensors, though again you need the Trophy model to enjoy the handy 360-degree parking camera.

If there is a flaw to the MG4’s interior, it’s the 10.25-inch infotainment touchscreen. The menus are not very logically arranged and the system is slow to react to the touch of your finger, and sometimes doesn’t bother working at all.

Room in the back seats is more than enough to deal with a couple of adults and the boot will carry a wheelchair, though there is a drop from load sill to boot floor.

enable motoring

The boot will carry a wheelchair, though there is a drop from load sill to boot floor

PIP Advance Payment from £999.

Find out more at www.motability.co.uk

EQUIPMENT MG offers two trim levels, the SE and Trophy. The SE can be ordered in standard or Long Range forms, with the latter’s bigger battery extending the combined driving range from the SE’s 218 miles to 281 miles. The Trophy comes with the Long Range Battery as standard. In the SE, you get 17-inch alloy wheels, rear parking sensors, and privacy glass. Fabric seat upholstery is used, and you have the infotainment touchscreen with Apple CarPlay and Android Auto. Climate control cools the cabin, while adaptive cruise control works with a long list of safety features. In the Trophy, you gain a two-tone paint finish, twin rear spoiler, and 360-degree parking camera. You also benefit from leather upholstery, electric seat adjustment, heated front seats and steering wheel, upgraded stereo, and wireless mobile phone charging.

DRIVING Whether you opt for the MG4 in SE trim or Trophy, with the latter demanding a notably higher PIP Advance Payment, the two trims drive in the same manner. The Long Range model adds a useful extra margin of mileage driving and means less frequent recharges, so the SE Long Range is the best compromise with its 281-mile combined ability.

There’s no need to unlock the MG4 or even press a starter button once inside as the car simply ‘wakes up’ as you approach and enter. Select Drive on the rotary controller positioned high on the centre console and off you go. Like most EVs, initial acceleration can be brisk when you need to pull out of a junction into busy traffic. In town,

the MG4 is smooth, quiet, and very pleasant to live with.

On roads that undulate and swap direction more at higher speeds, the MG retains its composure and is fun to drive where a Nissan Leaf just isn’t. The suspension keeps the car from leaning much in corners but yields with suppleness over bumps where most EVs tend to thump along.

SUMMARY

Stick with the SE versions and the MG4 is a cost-effective, practical, and entertaining way to enjoy EV driving.

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Phlexicare generic.qxp_Layout 1 24/06/2022 10:29 Page 1

Solutions designed for everyday living

Kitchens | Bathrooms | Washrooms | Access | Ironmongery | Daily Living | Wall & Floor Tiles 0845 605 1345 | info@nichollsandclarke.com | www.ncphlexicare.com

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MOBILITY

SD Motion Trike This product offers the freedom of assisted or full electric power, conquering all terrains from mud and tree roots, to sand and snow, with the long-range lithium battery reaching up to 30km. With high performance tyres and quick release wheels for easy transportation, taking you to new places.

SD Motion, £11,950 01442 212 918 www.sdmotion.co.uk

HYGIENE

SAFETY

Geberit AquaClean Mera Care Shower Toilet

The Assure lifesaving wristband

Launched in 2019 to combine adaptability with clever features the Geberit AquaClean Mera Care puts the user in control. Packed with innovative technology like the one-minute wash cycle and water storage heater, it is also adaptable to the user’s needs and comes with a five-year, free of charge warranty.

Designed to be worn all the time, the Assure provides uninterrupted protection. It has a one-year battery life and is waterproof. You call for help by squeezing the wristband and it also monitors for severe falls so even if you are unable to raise an alert, help is at hand.

Geberit, POA 01926 516 800 www.geberit-aquaclean.co.uk/care

Acticheck, from less than 50p per day 0345 257 5080 www.acticheck.com

editor@dcpublishing.co.uk

PIC: © TTS GROUP

Product picks

Send us details of your products to

HOME

Harmony FE The Harmony FE through floor home lift is suitable for those travelling standing, seated, independently in a wheelchair, or in a wheelchair together with a carer. Choose from three models with optional extras and finishes. Maximum load 325kg.

Maximum travel 3.6m. BS 5900:2012 compliant.

Terry Lifts, from £13,000 01565 752 800 www.terrylifts.co.uk

KIDS

Sensory Cuddle Ball Available in blue or grey, this cuddle ball can be squeezed so that users experience a deep and calming pressure which can help with anxiety and stress.

Gaps located at each side of the ball allow the user’s arms to be placed inside for extra comfort and warmth.

TTS, £32.99 ex VAT 0800 138 1370 www.tts-group.co.uk

MOBILITY

StreetJet Enjoy open-air freedom with the power to go anywhere, combined with a patented one-touch clamp system that docks to your wheelchair with one simple action.

Packed with personalised control features and styling options, the StreetJet allows you to just dock and go.

Sunrise Medical, POA 0845 605 668 www.sunrisemedical.co.uk enablemagazine.co.uk 61 enablemagazine.co.uk 61

enable life

THE POWER OF

ASSISTIVE TECHNOLOGY

Assistive technology can enhance the lives of people who have a disability that limits their mobility, movement or speech, helping them to carry out everyday tasks they would otherwise be unable to do

DAILY LIFE

The phrase assistive technology is routinely used to describe certain medical devices alongside daily living aids, but can be applied to products or systems that support and assist individuals with a disability or restricted mobility. Some manufacturers define products in this way, while in other cases the phrase could be used to describe a product that helps or enhances daily life.

Medical devices classed as assistive technology could include hearing aids and patients hoists, whilst aids for daily living could be chair risers or personal alarm systems that alert family, carers or emergency services when someone has a fall.

Less traditional assistive technology devices can aid people with tasks and management in the home. Smart thermostats, smart assistants like Alexa and Google’s home assistant, smart plugs and video doorbells can all be useful additions to the home for someone with restricted mobility. While these devices can prove helpful, it’s important to note that most of these devices have to be self-funded.

62 enablemagazine.co.uk

HEALTH

Assistive technology to aid health is continually developing, and it’s no longer unattainable. This form of assistive tech is wide-ranging and can be incredibly simplistic, ranging from devices like automatic pill dispensers that release medication at pre-set times for people who may forget to take them, to complex devices like continuous glucose monitors that let you check your blood sugar from a smartphone or dedicated device without having to prick your fingers.

This type of assistive tech can change the day-to-day lives of the people utilising it, but it can also provide support and peace of mind for carers and other loved ones.

Products like the Assure from Acticheck (www.acticheck.com, 0345 257 5080) are the perfect example of this.

The continuously monitored personal alert system comes in the form of a lightweight, waterproof wristband with a 12-month battery that is worn like a watch. The Assure wristband comes with three triggers, alerting family or friends if someone needs help. The band can monitor for severe falls, has reminder calls for medication and appointments, and can connect to a smartphone to help keep people protected when they’re out and about. The device also links with an online dashboard that can be accessed by loved ones, showing if the user is wearing the wristband, staying active and sleeping well.

It can also track the room temperature.

PIC: © ACTICHECK

I

ntroducing assistive technology into someone’s life or home can be a meaningful step, helping them with daily tasks or simplifying processes that have become difficult or hard to manage.

While this technology can be complex and expensive, it can also be simplistic and more affordable.

Less traditional assistive technology devices can aid people FOR MORE INFORMATION Disabled people’s organisations like Scope (www.scope.org.uk) and Business Disability Forum (www.businessdisabilityforum.org.uk) can offer information on assistive technology for the home and for work.

Terry Lifts Disability Advert - 133 x 92 version.pdf 1 22/11/2022 12:21:35

FOR MORE INFORMATION AND A QUOTE PLEASE

CALL 01565 752800

Re-connecting you with your home, garden and community C

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with our range of lifts for wheelchair, standing and seated use.

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Thinking about how your home can meet your needs, now and in the future?

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Proudly designed and manufactured in Cheshire

Comprehensive home survey

Peace of mind when buying British

Full range of internal and external Lift solutions

Installed in as little as two days

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Unit 1-3, Longridge Trading Estate Knutsford, Cheshire, WA16 8PR

Live your best life Wh atever h appens, wherever it h appens, whenever it h appens, help is at h and.

www.terrylifts.co.uk enquiries@terrylifts.co.uk

The Assure® Life-Saving Wristband

SOS Alert A simple squeeze of the wristband calls for help.

Fall Alert Monitors for severe falls.

I’m OK Checks The simple way to confirm you’re OK in the morning and before bed.

Uninterrupted protection in your home, garden and beyond.

4.8

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acticheck.com 0345 25 75 080

REMOVING THE TABUU IN BUSINESS A

fter having a whipple procedure at age 25 to treat pancreatic cancer, Lucy Rout was faced with a new challenge: she not only had to accept her new, different body, but she was also required to take a tablet every time she ate.

The tablet contains enzymes which help Lucy’s body to break down her food and is an essential part of every meal or snack, but as she implemented this into her routine, she wanted a better way to take her medication when out and about.

“Initially as I went back into social settings I felt quite insecure about taking my tablets in front of people to be really honest,” admits Lucy.

“I would go to the bathroom or try to take them very discreetly, then eventually when I became a bit more confident I would sometimes get quite uncomfortable comments.

“I was once at a work dinner with male colleagues and someone asked if I was taking tablets for my bikini body which is completely unacceptable.”

Fuelled by these comments, the

medication bias she had experienced and her own desire to take her tablets in a discreet way, Lucy set out on a search for an attractive pill case. Having hunted in every corner of the internet, she found nothing.

“I searched everywhere for something that was durable and safe while being, dare I say it, cool and stylish. I was really disappointed to find next to nothing on the market designed for people like me: young people living with a disability or chronic illness who just want to make such an important part of their day easier,” remembers Lucy.

“We live in a society where you can google pink nail polish or lipstick and 50,000 shades come up, but there was nothing for this. It got to the point where I decided to do something positive about it, to build a business and help some of the people who need this.”

As she continued working Monday to Friday, nine to five in a corporate role, Lucy’s evenings and weekends were soon filled with research as she set out to create the product she so desperately wanted. Sitting in her bedroom, she started sketching her

At just 28-years-old, entrepreneur Lucy Rout is taking the business world by storm and challenging perceptions after launching a product inspired by her own experiences idea for a stylish pill case and Tabuu was born.

“I quickly learned that I couldn’t afford a product designer and so I learned how to create a computeraided design (CAD) on YouTube,” explains Lucy. “I had no idea how to design a product, how to find a manufacturer or how to do any of this stuff so I had to teach myself.”

INNOVATION

Lucy’s innovative approach soon saw her ordering her first prototype and developing her product until it was ready to launch, at the same time, she took to social media to start a conversation about breaking the stigma around medication.

“I know that physical products can’t change the world, but conversations can and so I decided to try and drive awareness,” highlights Lucy. “I bought a £20 ring light from Argos and got myself on TikTok, I started driving conversations and that did me well in getting my first sales, then before I knew it I was getting asked to be interviewed by huge media outlets about medication stigma.”

Just two months after Tabuu launched, it was already a success and Lucy found herself interviewed by one of the biggest business publications in the world: Forbes magazine. From here, Lucy received a

I decided to do something positive about it, to build a business

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enable employment

call from a producer at Dragon’s Den. After months of due diligence and paperwork, she was given a date for filming her pitch.

“Honestly, when I first got scouted I thought it might be a scam but it wasn’t, and when I got the date for filming I was like ‘ok this is real’,” recalls Lucy. “I called my mum and said I’m not clever enough or good enough to pitch to these five unbelievably successful people, but after a long chat I came to the conclusion that I had to embrace this opportunity.

“Quite early on in creating the business I had a conversation with another founder who gave me the best advice: at some point you have to start and you have to launch because when you do that, you get to find out what your customers love and what they hate and to make your product even better. I still think about that all of the time and I did in that situation, sometimes you just have to go for it.”

VALIDATION

Having aired during January 2023, Lucy’s episode saw her receive not

just three investments, but a job offer from dragon Peter Jones, becoming the first person in 20 years to be in this situation. Showcasing her project to the masses on Dragon’s Den wasn’t just good publicity, Lucy was inundated with messages of support from people who, like her, had been searching for a product like this for years.

“Receiving those responses on that scale almost validated that I was helping to solve a huge problem and it lit a fire in me,” enthuses Lucy.

“I remember being sat at that table with male colleagues and when the comment was made everyone laughed.

I never want someone to feel like that ever again, or to feel like they have to run to the bathroom to take their tablets or to feel shame about it.”

“Changing the perception is going to take more than a product or a few conversations, it’s going to take systemic change and representation, but this can help people feel better and less embarrassed,” adds Lucy. “I’m still a one person team, but I won’t stop until people know they have nothing to be embarrassed about.”

Tabuu is a company with a difference, successfully filling a gap in the market

because its founder needed to for her own health. As a young disabled woman, and with 20 per cent of start-ups failing in their first year, Lucy had barriers stacked against her, but still today, she isn’t letting it stop her success in business or in reducing stigma around taking medication.

“I am a cancer survivor, I have a disability, I’m a younger female,” states Lucy. “All of those things are true, but first and foremost I’m an entrepreneur who has created something cool that is helping people.

“I would have three bits of advice for other entrepreneurs who want to fill a gap in the market: mitigate your risk, understand the market and what people need, and then leap. That could be writing your first blog post or speaking to a friend about your product idea, but you need to find selfbelief and just start.”

FOR MORE INFORMATION Visit the Tabuu website (www.wearetabuu.com) to find out more about the product, or keep up with Lucy on TikTok @WeAreTabuu

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PREPARING FOR

HIGHER EDUCATION If you’re planning to attend higher education this autumn, it’s almost time to start preparing, ensuring you have the right funding and support

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he move to higher education could be one of the biggest changes you ever experience, especially if this comes with changes to your healthcare provider, care and location. It’s a big adjustment and it’s normal to be nervous even if you’re excited, too. Understanding the support on offer for disabled students can help as you prepare for this transition. If you are waiting for an acceptance from your chosen university, starting to research what’s on offer can also act as a positive distraction. Remember, there’s always other options if you don’t get into your first choice.

FUNDING

Whether you are still waiting for that offer or you’ve already recieved

one, you need to know what funding you could be eligible for when the academic year starts. Often, applications for student loans, grants and bursaries close before the college or university year begin. There is a host of support available for students with a disability along with the loans and grants that are available for everyone.

Disabled Students Allowance (www.gov.uk) is the most commonly used financial aid for disabled students and can help with the cost of things that will aid you during your studies like assistive technology. This can be a lifeline if you need specialist equipment to take notes during lectures, or to study.

Many colleges and universities around the UK have their own grants and bursaries for disabled students

to help with the cost of things that aren’t always covered by DSA. These could cover or contribute towards the cost of daily living, study expenses, or even to pursue an extracurricular you’re interested in outside of your classes.

SUPPORT

Leaving home to start university or college can be nerve-racking, that’s why there is so much support on offer to help. Once your place is secured, you can get in touch with your college or university’s student services team to find out more about what they offer. This is usually a team based within the students’ association. Think of these people like a team of experts who can offer help and advice around finances, accessible accommodation,

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enable education adjustments to benefit your learning and more. They should also be one of your first stops if you have any issues with your course or getting around the campus. You can ask to revisit these topics if your needs change throughout your studies, or if what has been implemented isn’t helping you.

Once you’re ready to start your classes, it can be helpful to get in touch with your tutors and lecturers to let them know if you work in a different or specific way, or if there are things that would help you thrive in class. You’ll find that many lecturers have gaps in their timetable to speak with students face-to-face about any queries.

Contacting these teams and your tutors can be draining, but it will set you up for success during a big change in your life.

ORGANISATION

As you prepare for this change, you should also think about things outside of your studies. If you will be moving to a new area, finding a new GP, dentist and any other health or social care providers you need is essential. You want to move feeling

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confident that you already have the necessary support network in place.

Registering with a new GP could make it easier to access treatment if there was a change in your needs, or if you require regular appointments, it means not having to travel home to see your usual healthcare team.

Once you have your class timetable, make a note of when you can attend appointments, or speak to someone if this will clash with your studies.

SOCIALISING

One of the best parts about starting a new chapter is meeting new people, and you might have a chance to do this before your classes start. Check the freshers schedule for events and mixers or look for a student fair in your city.

Connecting with other students using social media is a great way to meet people, or your higher education instituion might have a disabled students’ network that you can join.

This could give you the opportunity to speak to people who have similar needs about what has helped them and how they have accessed worthwhile support.

Once you start studying, one of the

best ways to meet new people is to join a club based on your interests, or you could try something new.

LEARN FROM HOME

Moving away from home or attending classes in person isn’t the right fit for everyone, but this doesn’t have to mean not pursuing higher education.

There’s more online courses and remote degrees available than ever before.

Courses from providers like the Open University (www.open.ac.uk) and FutureLearn (www.futurelearn. com), can be short, but they can also see you gain a full Honours degree from the comfort of your own home.

These courses give students the opportunity to study at a time and place that suits them, often with a dedicated support tutor and access to high quality disabled students’ support.

FOR MORE INFORMATION Contact your university’s support office for further advice or information, or call the Disabled Students Helpline on 0330 995 0414

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INCLUSION AT THE HEART OF THE WORKPLACE Aerospace and defence company Raytheon UK might be known as one of the country’s largest providers of intelligence services, but behind the scenes the company is focused on creating an inclusive workplace with a culture of acceptance and support

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cross the country, Raytheon UK has more than 8,000 jobs in the supply chain, focused on defence, aerospace, cyber and intelligence. The company’s work is essential to our country, but at its heart, there is a focus on diversity, equality and inclusion.

This commitment makes Raytheon UK a brilliant place to work for disabled people, with strategies and systems to make everyone feel welcome and valued.

ONGOING

From having an internal ability/disability employee resource group which focuses on championing the voices of disabled colleagues, to working in partnership with notable disabled people’s organisations, Raytheon UK is continually working to improve.

This ongoing work has included becoming the first UK defence company to be part of the government’s Disability Confident Scheme, and being named as a Business Disability Forum (BDF) Partner, working in collaboration to help understand the lived experience of disabled people and evolve how they work.

“Here at BDF we are extremely proud to be supporting Raytheon UK with its disability inclusion priorities,”

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highlights Adrian Ward, head of business partnerships at BDF. “It has been wonderful to see and be involved in a number of disability inclusion activities over recent months including the development of a workplace adjustments policy and process and the formation of a specific disability action plan.”

Developed with input from disabled colleagues, the disability action plan has four key parts: ensuring Raytheon UK’s property portfolio, both physical and virtual, is accessible above what legislative requirements are; building an inclusive and supportive recruitment process; implementing a selfassessment process for adjustments at work; launching a new policy around supporting colleagues with a disability.

CULTURE

“Having a disability action plan is like stepping stones to transforming the culture of a business,” highlights John Dickinson, head of diversity, equity and inclusion at Raytheon UK. “Disability is often overlooked when companies focus on DEI, and so we really want to put it front and centre in the work that we do, there’s a lot of opportunities to do great work and improve company

culture by understanding what it’s like to work here and how to build a better experience.”

Shifting the culture within a workplace takes more than policy and that’s why Raytheon UK is providing disability awareness training for all managers, giving them a deeper understanding of team members’ needs and the solutions that could aid their work and wellbeing. This is furthered by the company’s selfassessment adjustments process that allows employees to identify barriers and challenges before offering them guidance and adjustments. Colleagues don’t need a diagnosis to use this service, removing the need to disclose a disability in order to work to the best of your ability.

Raytheon UK is continually building a culture that welcomes open conversation and offers support. With a host of opportunities available in cyber security and other areas, this could be the right fit for your next career move.

FOR MORE INFORMATION Discover career opportunities with Raytheon UK at www.raytheon.co.uk

Neurodiversity at work

Finding the right role and making sure you receive the support you are entitled to can help you thrive in the workplace

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or people who are neurodiverse, finding the right job role and employer can come with additional barriers. It is estimated that more than 15 per cent of the UK population are neurodivergent.

While this group can face extra challenges to finding and staying in work, the conversation is growing, bringing with it awareness of how to help people succeed in the workplace. With support available from employment organisations, some specific to the disability

community, there is help to remove these barriers and to better inform employers.

BARRIERS

One of the main barriers to employment can come during the job search: online applications. From the need to upload a traditional CV to vague language in job descriptions, there are a range of reasons why online applications can exclude people who are neurodiverse. While you could ask for adjustments to the recruitment process or how you

enable employment

Greater diversity in the workplace can only be a positive

apply for a particular role, this can be daunting. Both you and the employer lose out if reasonable adjustments aren’t made from the first steps of the application process. To help combat this, support is available for people who are looking for employment, and for employers who want to become more educated and inclusive. BASE the British Association for Supported Employment - can help member companies adapt their policies and processes, while organisations including Discovery UK and parent company Dimensions (www. dimensions-uk.org) are providing solutions for jobseekers who are neurodivergent. After a referral, the team at Discovery UK get to know the person looking for employment and what support they have around them.

They can then offer advice on how they would work best and where.

RIGHTS

DISCLOSE

VOICES

Disclosing a disability to your employer is a personal choice and you are not required to do this, but it could be beneficial if your disability affects how and when you are able to work, or if you need specialist equipment to work effectively. By law, you are not required to disclose a disability to your employer, but you won’t have a legal entitlement to reasonable adjustments if you decide not to.

You don’t have to disclose your disability at the start of your employment: if your situation, requirements or decision changes, you can speak with your employer to do this at any point.

Before you make a decision on whether to disclose, it can help to check if your employer has any existing policies that could benefit you if you decide you should. Some employers have internal disability networks, you could speak to someone in this network privately about what they have been offered before approaching your manager.

This can also give you a better idea of what adjustments could help you at work, especially if you have never been through this process before.

Once you understand what could help you to do your job better, it’s time to start a conversation.

The main legal benefit to disclosing your disability is that your employer then has a responsibility to make reasonable adjustments to ensure you aren’t substantially disadvantaged when doing your job in comparison to your colleagues. This could include letting you work somewhere else, such as on the ground floor for wheelchair users, adapting the recruitment process, or offering flexible working hours.

Flexible working could mean you don’t have to take time off to attend any appointments, you could travel to and from work at quieter times.

The UK Government’s Access to Work scheme (www.gov.uk) can cover the cost of help you need around work. This could be special equipment, support worker services or help getting to and from work.

If you’re looking for employment for the first time, or for the first time since receiving a diagnosis, connecting with influencers and public figures who are talking about their experience at work can be a source of comfort and advice. This can also be a great step for employers looking to learn more about neurodiversity and how this can change the ways that someone works.

Greater diversity in the workplace can only be a positive for both employees and employers, but there still has to be more understanding of neurodiversity before the right solutions are in place in every workplace. As stigma reduces thanks to more public awareness, we still need more information and resources for employers, and more inclusive recruitment processes, to better support people at work and entering a new workplace.

FOR MORE INFORMATION For more information on your rights at work speak to Disability Rights UK (www.disabilityrightsuk.org) or Citizens Advice (www.citizensadvice.org.uk).

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National Accessibility, Inclusion & Disability Expo 22-23 March NEC Birmingham

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Shani Dhanda Disability Inclusion & Accessibility Specialist, Social Entrepreneur and Broadcaster

Samantha Renke Actor, author, journalist and disability rights campaigner

Isaac Harvey MBE Disability Advocate / President Wheels and Wheelchairs

Celia Hensman Co-Founder & Director, The Disability Policy Centre

Aaron Simmonds Award winning comedian with cerebral palsy

Lee Ridley 'Lost Voice Guy' Comedian and winner of Britain’s Got Talent in 2018

Steve Ford CEO of Royal College of Occupational Therapists

Ian Taverner Mr Cookfulness, chef and chronic illness survivor

Register free

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enable employment

Jane Hatton Jane is the founder of Evenbreak, a social enterprise run by and for disabled people, with a specialist job board and a career hive.

Send your questions to editor@dcpublishing.co.uk

EMPLOYMENT Q&A

ASKING FOR WHAT YOU NEED

In her column Jane Hatton, founder of Evenbreak, answers your employment questions

Q

I feel embarrassed asking for the adjustments I need in the recruitment process.

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Finding suitable work can be a challenge for most people, but for disabled people there are often additional aspects to be considered in terms of accessing the recruitment process on an equal basis and the nature of the role itself. Asking for what you want or need is important.

There are a number of things that disabled candidates are allowed to ask for. In law (Equality Act 2010),

Don’t be afraid to ask for any relevant adjustments that you need

employers must provide any ‘reasonable adjustments’ requested by disabled applicants which will help them access the recruitment process.

The definition of ‘reasonable’ is open to interpretation (and case law), but can include a range of measures depending on the circumstances, including: a British Sign Language interpreter; additional time to answer questions; relevant assistive technology for assessment tests.

An accessible venue for interviews and prior knowledge of the type of questions you will be asked can also be included.

Don’t be afraid to ask for any relevant adjustments that you need.

If you don’t, you may be less able to demonstrate your true abilities.

For example, if you would normally utilise assistive technology to use a computer in the workplace, this should be provided if you are given a test on a computer at interview.

In addition to the ‘standard’ reasonable adjustments, you may have requirements for a particular way of working. Many disabled people would prefer to work part-time or flexible hours, or to work from home

for all or part of the time. When looking for jobs, most are still advertised as full-time. For some roles, one full-time person may be ideal, but for many roles, those hours and/or tasks could be divided between two or more people. It may be that some or all of the role could be carried out remotely.

If you find a role that you know you could do, and that you like the look of, there is nothing to stop you asking if the role could be considered for job share, reduced hours, remote or flexible working.

The worst that can happen is that they say no – nothing is lost. And, it brings your skills to their attention should other roles be available now or in the future. Quite often, however, the employer may well be willing to look at alternative working patterns, especially if you have the skills they need.

Ask for what you need – after all, what do you have to lose?

Visit the Evenbreak website to access candidate resources free of charge. www.evenbreak.co.uk hive.evenbreak.co.uk

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enable employment

A WELCOMING

WORKPLACE At Registers of Scotland, there is a commitment to inclusion and flexibility, allowing all employees to feel valued when they come to work

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hoosing an employer that values you, your needs and your talents should be paramount when looking for your next job role. Registers of Scotland (RoS) works across the organisation to create a welcoming, inclusive and flexible environment to support current employees.

RoS has been recognised as a Disability Confident employer and embraces an equal opportunities approach to employment. This comes alongside benefits and rewards that every employee can access like a generous annual leave entitlement, the chance to train and develop throughout your career, and access to counselling and legal advice.

“RoS are an inclusive employer which values, respects and promotes diversity, and we provide innovative customer services that are accessible

to all. Our commitment to achieving this is set out in our Equality, Diversity and Inclusion Strategy,” highlights Laura McGibbon, head of talent and enablement at RoS.

EQUAL

RoS believe that their people are a vital asset to the organisation’s success, and in turn promote wellbeing to support a healthy and energised workforce who are excited about their roles. As a public sector organisation, RoS believes they can provide the best possible service if they are representative of the people they serve. They want to be an employer of choice, attracting and retaining the best and widest possible pool of talent.

“At RoS, we want our colleagues to be able to bring their whole self to work and to feel supported and included when they do,” highlights Laura. “We

recognise that far too often disabled people are excluded from the work of their choice or from workplaces entirely. We actively listen to those with lived experience and make changes, when needed, to ensure we’re part of the solution to reducing this inequality.”

The flourishing workforce is driven by a professional, flexible and customerfocussed environment, with a spotlight on inclusion, diversity and growth.

Flexible working hours can be of great benefit if you have healthcare, social care or childcare commitments to attend to, or you would benefit from the chance to work varied hours depending on how you are feeling. Managers at RoS are also trained to understand the most effective ways to support disabled colleagues.

DEVELOP

RoS are continually developing and diversifying the ways they support both employees and customers. This commitment is at the centre of the organisation’s Equality Diversity and Inclusion strategy which was first launched in 2019 and sets out a clear framework and intentions from 2020-25.

“RoS engages with customers, citizens, colleagues, stakeholders and other public bodies to develop its understanding of diverse needs, share best practice, and identify opportunities for continuous improvement,” reveals Laura.“RoS employs people in a wide range of roles, including registration, customer services, innovation, digital and finance so it could be the perfect place for the next step in your career.”

FOR MORE INFORMATION Find out about career opportunities with Registers of Scotland at www.ros.gov.uk

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We’ve equality at our core.

We’ve been named as a disability confident employer by Jobcentre Plus and have a positive attitude towards job applications from disabled people.

As we progress, we’ll continue to improve the way that we support our staff, customers, and stakeholders, regardless of disability, gender, ethnicity, age, religion, or sexual orientation.

Unite is the union for the 21st century, meeting the greatest challenges facing working people with Disabilities.

It is a democratic and campaigning union, which fights back for employees in the Our Equality, Diversity, and Inclusion strategy is a priority at RoS. It’s not a one off or an event, it is an ongoing process, and we will work for our colleagues to feel safe, supported and included at work.

workplace, protects worker’s rights and takes trade unionism out to millions of unorganised workers.

We want to be an employer of choice, attracting and retaining the best and widest possible pool of talent.

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YOUR FUTURE CAREER W

hether you’re ready to look for your first job or you want to return to the workforce after a period of not working, there’s plenty of ways to do your research and discover new roles. Throughout 2022 and as we move through 2023, diversity and inclusion are a priority for many employers with some recruiting diversity and inclusion officers or equivalent roles. In many cases, disability inclusion is still waiting to get the attention it deserves, but as it comes on to the radar of big businesses, more accessible opportunities are being created. Before embarking on the job search, doing thorough research is essential to ensure you choose a role and company that is right for you.

If your disability will affect how or where you work, or even how you get to work, you should consider how inclusive and adaptable a company is. Workplace review sites like Glassdoor (www.glassdoor. co.uk), Indeed (uk.indeed.com) and The Job Crowd (www.thejobcrowd. com) are a great way to find out about what it’s like to work there, or check if the company is involved with organisations like Business Disability Forum, The Valuable 500 or is part of the Disability Confident Scheme.

Speaking with current and previous employees, or people who have been through a company’s recruitment process, is a good way to better understand their approach to adjustments in the workplace. Remember, you could have a legal entitlement to reasonable adjustments or support through the Access to Work scheme (www.gov.uk).

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As disability inclusion is put on the agenda at companies around the country, its time to get informed and discover opportunities in the workforce

NATIONAL CAREERS WEEK

VIRTUAL CAREERS FAIR

Every year, National Careers Week presents an opportunity for young people to embrace work opportunities, and to help them build an awareness and excitement about their future career. Developed specifically for schools, colleges, universities and alternative provision settings, the event – taking place from 6 to 11 March 2023 – provides a range of high-quality resources in print, digital and video formats.

Organisations are also invited to take part, helping them reach future jobseekers.

All of the information posted during the week will be available online year-round and is free of charge, so you can refer back to helpful advice and resources when you need to. For educators and parents, there is also a downloadable resource packed with news, information, campaigns and other content to help support young people into a fulfilling career.

The week is sponsored by some big names like NatWest, the NHS, the UK Space Agency and the BBC, alongside disabled people’s organisations including Ambitious About Autism and the Royal Association for Deaf people.

To help you connect with different organisations and to find out more about specific careers, or even to apply for a job role, the week also involves a virtual careers fair. The online event was first launched during the coronavirus pandemic in March 2021 to ensure young people didn’t miss out on opportunities, with over 100 sponsors taking part each year. This online alternative to in-person events can be especially helpful if it is difficult to leave your home or travel.

The fair will launch on the first day of the week and will last the duration: you don’t have to register to take part and it is open to everyone, simply visit the dedicated Virtual Careers Fair website at www.ncw2023.co.uk Outside of this week, similar fairs take place online and inperson, allowing you to discover and consider different job roles.

Organisations like UK Careers Fair (www.ukcareersfair.com), Youth Employment UK (www. youthemployment.org.uk), Jobs Fair (www.thejobfairs.co.uk) and Eventbrite (www.eventbrite.co.uk) all list job fairs happening around the country or virtually.

All of the information posted during the week will be available online year-round and is free of charge, so you can refer back to helpful advice and resources when you need to

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NEURODIVERSITY CELEBRATION WEEK This March, people around the country will also be marking Neurodiversity Celebration Week: an international event that challenges stereotypes and misconceptions about neurological differences. Taking place from 13 to 19 March 2023, schools, higher education institutions, parents and organisations in the UK are encouraged to get involved and use this opportunity to learn about the barriers that exist whether these are in society, in education settings, or in the workplace.

SUPPORTING EMPLOYERS Some employers might not know where to start when creating a diverse and inclusive workplace, but there’s different organisations that can help to educate and support staff to achieve this. Inclusive Employers (www.inclusiveemployers.co.uk) is a membership organisation for employers who are committed to prioritising inclusion, allowing all employees to feel valued at work. The organisation uses their expertise to guide and educate members, and to challenge and support organisations to become more inclusive and diverse.

Also a membership organisation, Business Disability Forum (www. businessdisabilityforum.org.uk) works in partnership with businesses, government and disabled people to remove barriers in the workplace, but they also provide a host of advice and resources that can be helpful for employers. Members have unlimited access to an Advice Service for support on specific situations or ideas.

FOR MORE INFORMATION To find out more about National Careers Week, and to access resources year-round, visit www.nationalcareersweek.com

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Dynamic Compression: As Easy as SDO®!

Many thousands of people have medical conditions that affect their movement, posture and coordination, which in turn can prevent them from enjoying a happy, fulfilled life.

Medigarments Ltd, which has grown to become the UK’s largest manufacturer of specialist compression garments since it was founded over four decades ago, created the SDO® (Sensory Dynamic Orthosis) collection to combat these issues. Made using advanced engineered fabrics and incorporating genuine Lycra®, each garment is a Class I medical device. There are two ranges in the SDO® collection.

SDO® Lite

The SDO® Lite collection comprises a comprehensive range of compression garments which is supplied ready-towear. SDO® Lite provides immediate therapeutic value from the moment it is donned. The premium-quality garments are available in a full range of sizes for both adults and children.

While wearing an SDO® Lite garment, the patient experiences constant, consistent therapeutic pressure.

The effects of this pressure are immediately noticeable, providing improvements in posture, stability and function. The feedback delivered by the garments helps to enhance the fluency of the wearer’s movements, reducing those that are involuntary.

With conditions like autism and ADHD, the garments have been repeatedly shown to improve calmness and heighten levels of concentration and focus.

Clinical evidence and a observation has shown that SDO® Lite garments provide improvements for many conditions, they are also used by clinicians as an assessment tool to decide if a made-to-measure garment from the SDO® Original collection could be suitable

SDO Original ®

These are complex made-to-measure garments, with specific panelling designed to address the exact needs If you believe that you or someone you care for could benefit from wearing one of these garments, please speak to your therapist or other medical professional.

Alternatively, you can contact the clinical team at Medigarments Ltd on +44 (0)115 973 4300.

We will be happy to assist you with contact details of specialist therapists in this field.

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of a patient and their condition.

These garments provide therapeutic benefits to patients with a wide range of neurological and musculoskeletal conditions.

Clinical observations and the evidence available shows that wearing the SDO® leads to an improvement in positioning, postural control and function because it provides musculoskeletal support, alignment, stability and sensory and proprioceptive feedback.

More detailed information about the unique SDO® range of compression garments can be found on the Medigarments Ltd website at: www.jobskin.co.uk

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DEMANDING RIGHTS ON FLIGHTS Disabled TV presenter and author, Sophie Morgan, is calling for changes to the treatment of disabled air passengers in a new campaign

A

t the end of January 2023, TV presenter Sophie Morgan shared a travel experience on Instagram that resonated with thousands of other disabled people, garnering more than 5,600 likes and over 600 comments.

After travelling back from a trip to Los Angeles and landing at London Heathrow with British Airways (BA), Sophie discovered that a crew member had tried to attach her wheelchair and battery together while in transit and without her permission. This caused damage that meant Sophie’s chair wasn’t safe to use, but she had no alternative but to transfer into it in order to get home.

The outpouring of support, and people sharing their own experiences of wheelchairs or other essential equipment being damaged during air travel, made one thing clear to Sophie: it was time to take action and use her platform to influence change.

“Enough is enough,” states Sophie.

“This is a short-term solution to an ongoing problem and the beginning of a long journey towards a whole system overhaul of the entire airline industry.

“Disabled people need to be able to have the confidence to trust air travel.

And this campaign is the first step for that.”

PIC: © TOM D MORGAN

PLATFORM

The airline apologised and agreed to cover the cost of the damage, but Sophie didn’t want events like this to keep happening to disabled people.

Over the three weeks following the incident, Sophie used her social media presence, connections in the disability community and her position as a panellist on Loose Women to highlight

the barriers and problems that disabled people face when using air travel. This launched a whirlwind of meetings and calls with a member of parliament to discusses an accessible aviation campaign, the British Airways accessibility team, conversations with the Civil Aviation Authority and interviews with media outlets around the UK.

RIGHTS ON FLIGHTS

On 21 February, her weeks of work came to fruition and now, Sophie has launched the Rights on Flights campaign with support from Marion Fellows MP and Disability Rights UK. The campaign is demanding that the government grants the Civil Aviation Authority the powers to fine airlines and other actors if they fail to look after disabled passengers and their equipment. This move would hold airlines to account for damage to wheelchairs or essential mobility devices, but also if disabled passengers are left onboard for a prolonged period of time after a flight has landed.

“We are not asking for special treatment,” stresses Sophie. “We are asking for our experiences to match those of non-disabled people. How many more people need to get hurt, lose vital mobility equipment or even die before we see change?”

To add more voices to the campaign, Sophie is inviting the public to use #RightsOnFlights on social media, and to write to their MP demanding action using two templates that have been created as part of the campaign.

Disabled people need to be able to have the confidence to trust air travel

FOR MORE INFORMATION Access the letter templates and learn more about the campaign on the Disability Rights UK website (www.disabilityrightsuk.org/rightsonflights).

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enable life

Shining a golden torch on

BRAIN INJURY

In his first book, Jayben and the Golden Torch, author Thomas Leeds draws on his own experiences of brain injury, memory loss and epilepsy to shine a light on disabilities that are under represented in children’s literature

Thomas

Jayben and the Golden Torch was published. The first in an immersive fantasy series for kids, the book follows Jayben, a boy who has epilepsy and experiences memory loss, as he sets out to save his world.

How did you start writing your first children’s book?

It began as almost like a therapy for me, I was writing for myself because it felt therapeutic talking about all of the things I’d been through and then it turned into something new and exciting, a new story. In the beginning I never imagined I would actually write a book or that it would go on to be published, that it could go on to make a difference for children.

It was the sort of main character I had wanted to see for a long time: someone living with a brain injury and epilepsy like me, who could be the hero as well. I wanted to show everybody, but particularly kids who are living with disabilities and illnesses, that they can be the hero of their own story.

Why was it so important that this was a children’s book?

There are so many fantastic non-fiction resources to help

Because of what he’s going through he’s very kind and he has this great sense of empathy

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after a brain injury but I think for children it’s so important that they see themselves in fiction. I was very passionate about making sure that this story wasn’t just about brain injury and epilepsy though, I didn’t shy away from the realities of that but this is an adventure story where the main character could be a hero and has a quest. At the same time, I hope that some kids can see themselves in this character, and hopefully kids who don’t have a brain injury can enjoy it just as much and maybe get some understanding at the same time.

How does the story relate to your own experiences of brain injury?

I can almost see my own experiences through the story: it’s all about the unknown and when you have memory problems the real world can be quite mysterious and confusing, even frustrating, so I think that’s why I loved the idea of this being a fantasy story, too. The book is a real story of discovery of who Jayben is and he’s finding out where he came from. It’s a journey where he has to learn to be brave, to value friendships and he realises what matters to him most. Because of what he’s going through he’s very kind and he has this great sense of empathy.

FOR MORE INFORMATION Jayben and the Golden Torch by Thomas Leeds published 2 February 2023 with Hodder Children’s Books.

PIC: © MICHELLE LOCKWOOD PHOTOGRAPHY

A

fter being hit by a black cab at age 19, Thomas Leeds lost his memory and had to learn to read and write again. He wasn’t able to remember the places he used to love or recognise faces, and was now living with severe epilepsy. Fast forward 11 years and Thomas heard the first line of The Waterboys’ song, The Whole of the Moon. In that moment his childhood memories came flooding back, and with them, the idea for a children’s book series.

In February 2023, Thomas saw his idea come to life as his first book,

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