“A Real Picture of Health”

from AFTCC 2023 Social Media Toolkit

Social Media Toolkit for Advocating for the COCCI Culture 2023 (AFTCC)

Color of Crohn’s and Chronic Illness (COCCI) is heading to the U.S. Capitol and meeting with Members of Congress to help get important bills passed that would benefit our community and their quality of life. BIPOC patients deserve equitable, accessible, and affordable care and understanding how policy affects patients is critical.

Our hope is that this campaign will amplify BIPOC patient voices, especially patients that are just realizing the power of their voice, and spreading awareness. Through this social media toolkit, help us spread awareness and build more advocates for change.

Get Started

Here are COCCI’s social media profiles. You can mention us in your posts or refer your followers to our social channels for more information:

• Facebook: @ColorofCrohnsandChronicIllness

• LinkedIn: @ColorofCrohnsandChronicIllness

• Instagram: @ColorofCCI

• Twitter: @ColorofCCI

Hashtags: #ARealPictureOfHealth, #AFTCC23 #PolicyAffectsMe, #COCCI

Helpful Hints

1. Add an image to your post. You can use one of the assets that we’ve created OR get creative. Have fun with it! You can share a video of yourself or your family to really connect with your viewers as well.

2. Tagging followers, public figures, leaders, celebrities, and more will encourage additional participation and engagement. If you know someone who may be interested in participating in the campaign, tag them, and spread the word. Social media should be social! Try to engage with your followers as much as you can. If you are getting questions and comments under your posts, respond and interact with them.

3. If you can, include a call to action in your post encouraging people to follow COCCI on social or subscribe to our newsletter to learn more about our advocacy efforts. The best way to raise awareness and gather interest is to spread the word and encourage others. Make sure you use clear wording, so your followers know what you are asking of them and how they can join in on this critical work.

4. Engage with COCCI! We’ll be posting frequently on our social media channels to promote our advocacy work. We would love to see you commenting under posts, sharing the post with friends and family, or tagging your elected officials under our posts. Your incredible efforts do not go unnoticed, and we rely on you to help bring awareness.

5. Use the “Live” feature on your social media platforms! Go live for a few minutes to share your IBD story or how this work is important to you/your family/organization.

6. A character limit is the maximum amount you can write in your post. Spaces, letters of the alphabet, numbers, and punctuation all count toward a character limit. Here is a quick character limit guide, though posts that are shorter tend to perform better: a. Twitter: 280 characters b. Instagram: 2,200 characters c. LinkedIn: 3,000 characters d. Facebook: 5,000 characters

Sample Posts

Twitter

@ColorofcciheadstotheU.S.CapitoltodaytomeetwithMembersofCongressanddiscuss AccesstoCare.WeneedtheirhelptoensurethatIBDpatientshaveabetterqualityoflife throughpolicychange.Share#ARealPictureOfHealth!Learnmore: https://cocci.org/events/aftcc23/

@ColorofcciheadstotheU.S.CapitoltodaytomeetwithMembersofCongressanddiscuss passingtheMedicalNutritionEquityAct.WeneedtheirhelptoensurethatIBDpatientshavea betterqualityoflifethroughpolicychange.Learnmore:https://cocci.org/events/aftcc23/

@ColorofcciheadstotheU.S.CapitoltomeetwithMembersofCongressanddiscusspassing andenforcingcomplianceofAlly’sLaw.WeneedtheirhelptoensurethatIBDpatientshavea betterqualityoflifethroughpolicychange.Learnmore:https://cocci.org/events/aftcc23/

LinkedIn/Facebook

(tag Color of Crohn’s and Chronic Illness (COCCI)) is heading to the U.S. Capitol today to meet with Members of Congress like (add member of congress’ name if you have meetings) about (add advocacy priority of your choice). We need their help (and yours!) to ensure that IBD patients have a better quality of life through policy change. Join us by sharing what #ARealPictureOfHealth looks like for you! Learn more: https://cocci.org/events/aftcc23/

For me, #ARealPictureOfHealth looks like (explain your story).

As (tag Color of Crohn’s and Chronic Illness (COCCI)) heads to the U.S. Capitol to meet with Members of Congress about (add advocacy priority of your choice), I encourage you to share your story too. We need their help (and yours!) to ensure that IBD patients have a better quality of life through policy change. Learn more: https://cocci.org/events/aftcc23/

Advocacy Priorities for 2023:

• Access to Care/Utilization o CoPay Accumulator Programs: HELP Copays Act o Step Therapy o Non-Medical Switching o Prior Authorization o Protect Minorities from Discrimination

Advocacy Priorities for 2023:

• Medical Nutrition Equity Act: Help pass the Medical Nutrition Equity Act

• Ally’s Law (Restroom Access Act): Help pass Ally’s Law in more states!

Instagram

Have you heard of Color of Crohn’s and Chronic Illness (@Colorofcci))? They’re a non-profit supporting BIPOC patients with IBD and other chronic GI related illnesses and on Tuesday, COCCI is heading to the U.S. Capitol to meet with Members of Congress like (add member of congress’ name if you have meetings) about (add advocacy priority of your choice). We need their help (and yours!) to ensure that IBD patients have a better quality of life through policy change.

Join us by sharing what #ARealPictureOfHealth looks like for you! Learn more by clicking the link in their bio.

For me, #ARealPictureOfHealth looks like (explain your story).

Advocacy Priorities for 2023:

• Access to Care/Utilization o CoPay Accumulator Programs: HELP Copays Act o Step Therapy o Non-Medical Switching o Prior Authorization o Protect Minorities from Discrimination

• Medical Nutrition Equity Act: Help pass the Medical Nutrition Equity Act

• Ally’s Law (Restroom Access Act): Help pass Ally’s Law in more states!

“A Real Picture of Health”

Social Media Toolkit for Advocating for the COCCI Culture 2023 (AFTCC)

Get Started

Helpful Hints

Sample Posts

Other Links

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AFTCC 2023 Social Media Toolkit