IBD & Me Activity Book

Hi Kids,

arn a little more le u yo e p o h e W D & ME! u activity book, IB r u o g etimes makes yo in m d a so re it r y fo h w ks n d a n h a T colitis “IBD” and ulcerative se ea is d ’s n sometimes called h th ro o C b re a s about ti li erative co Bowel Diseases. disease and ulc ry ’s to n a h m ro m C a . fl ck In si feel y than to nd quicker to sa a er si ea is n help you learn h ca ic s h ti li w , co rt o ve ti sh a r er fo and ulc Crohn’s disease t u o ell. b a re o m g not feeling so w Learnin is u yo f o rt a p day, even when get through the : ook to help you b and is th te ro w e W ear your doctor h t h ig m u yo s e of the word understand som ut; parents talk abo ith what you’re w l ea d to ys a w d and find out feel less worrie f you going through; your teachers (i r o s d n ie fr r u ords to tell yo find the right w . w you’re feeling with want) about ho do the activities r o f, el rs u yo y b the book ut IBD is good the activities in o b ll a a n re o o m rk o g w in n w You ca o. Kno n arn about IBD to le n ca ey g about your ow th in rn so a se Le el s. e d n ki eo t n som r differe n be different fo ca D IB t u b e, n rself. for everyo take care of you to ys a w t es b e th health is one of

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*

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ation d n u o F s ti li o C & ’s n h o r C

About the Crohn’s & Colitis Foundation Established in 1967, the Crohn’s & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn’s disease and ulcerative colitis, and improving the quality of life of children and adults affected by these diseases. Since our founding, the Foundation has remained at the forefront of research in Crohn’s disease and ulcerative colitis. Today, we fund cutting-edge studies at major medical institutions, nurture investigators at the early stages of their careers, and finance underdeveloped areas of research. In addition, the Crohn’s & Colitis Foundation provides a comprehensive series of education programs, printed and online resources, support services and advocacy programs to members of the IBD community, including patients and caregivers.

Original Content Reviewed by:

Writer: Hilarie Staton

Joel Rosh, MD Janis H. Arnold, LCSW Sandra Kim, MD Neera Gupta, MD Jacquelyn Spencer, MSW

Artwork: Joe Staton Design and Layout: Victoria Ettlinger Colorist: Matt Webb Letterer: Janice Chiang Proof Reader: Maria Goodiss Crohn’s & Colitis Foundation

Copyright © 2020. This information is protected by copyright and may not be reproduced in whole or in part without written permission of the Crohns &Colitis Foundation.

733 Third Avenue, Suite 510 New York, NY 10017 888.MY.GUT.PAIN (888.684.8872) info@crohnscolitisfoundation.org

This book belongs to ME:____________________________________________________

1

A Slice of Life with IBD

2

The GI Tract The gastrointestinal tract is the name of the path food takes through your body. The first word is a long one, but is very easy to say. You can say it like it is a lot of little words: gas

tro ō in

Most people call the gastrointestinal tract the GI tract .

test

in әl

A healthy GI tract

GI tract t GI Gswallow I tract food, it moves acttrac GI tr When you down the throat ct el Disease tra w GI t B ac tr GIstomach tory oDisease Inflammatory ammaBowel fl In into the stomach .

Diesease GI tract el as wse BoDi y el orw myatBo mor fla In h ac at m m m sto fla Inwel Disease asyeBo stomach h Di seor ac mfla el wmm sto Bo at yIn or atfl flammIn Inch stoma ach am stomsmall mat or se y B diseaowel Disease Crohn’s disease hn’slong Cro all long tubes.

Then it goes into The first tube stom sm intestine achis sease dieor sas e In in flsoh l am st Cr al te m sm at se din’ y Bowel Disease n’ oh l Cr al sm called the insmall sm. all se e te nedisea sti seas n’s oh in Cr Crohn’sCdi small intestine ne sti te inhn’s ro colitis divse e as ati intestine ulcerative colitis ulcer stine eum inteileum smaell il e colitis tivlit inte ce ul stine Ctiv rora co um en h ile At the end il ofeu the small intestine is ile theum ’s diis cera ul sease is m lit is co lit era tive co ulc edtive m a ileum ulcera fl in inflamed um ile ulcerainto (il ē uhm).

Food goes through the ileum another tive co large litis ileum intestinelarge ed med mfla inflain tube. e in d u st e lc me te ed b erative colitis mla in inrg infla rbfla ela sorg la a e absorb inflrg ne a sti m te ed in e testine large largin ne intesti ab Thisin tube is the intestine . digested rb sorb testine absoin la rg e d flamed sorb digeste absorb intestab in e hstea rr abs dia ed or diarrhea b ge di sted . igestechewed In therectum GIdtract, d digestup ed food is dige rhea diar digested diarrh aea ctumso the body can absorb, bsorb ea Food is brokenre down or take rrh ea dia rh digct diar ested re dia rr rectum um ea um cth re tumrepair itself. What it doesn’t what itrebowel needs recand ctum to build movementbowel diarrhea ent or through the rect mel use is pushed m out asmpee ove bouw Can you trace the path that food wel bowel bo mov elemen. t bowel t ent mw enem bo ov em ov m as a takes through the GI tract? movement movement bowel movement

Use the information on these two pages to match these key terms with their meaning.

1.

5. a. swollen gastrointestinal diarrhea b. illness when the GI tract is swollen tract 6. c. waste that leaves the body 2.

Inflammatory bowel Bowel Diseases d. the path food takes inside the body movement 7. e. take what is needed 3.

Crohn’s disease f. two Inflammatory Bowel Diseases inflamed and ulcerative colitis g. changed to a form the body can use 4. absorb 8. h. frequent and watery bowel movements digested

GI tract

GI tract

stomach

GI tract

3 el Disease Inflammatory Bow

What is IBD all about?

stomach GI tract Inf lamma

GI tract

ase

y Bo dise Crohn’s(IBD). alll Diseas e smwe Inflammatory Bowel Disease Problems in the GI tract canstomach be caused by an tor

intestine stomach Bowel Disease Inflammatory Bowel Inflammatory Disease Crohn’s diseaseum e colitis tiv ra ce ul ile Crohn’s disease

small stomach small intestine intestine GI tract Crohn’s small (krōnz) disease is an IBD. Ulcerative small The GI tract ofileu am person med Crohn’s disease infla Crohn’s disease intestine ulc era intestine tiv e col itis ileum (ul sәr ā tiv) colitis (kō lī tis) is another IBD. large ulcerative colitis with Crohn’s disease ne sti te in stomach Inflammatory Bowel Disease These two diseases are not exactly the sorb but absame, ileum ileum inflamed ulcerative colitis large ulcerative colitis are very close.inflamed large intestine digested intestine small Crohn’s disease diarrhea , or When parts of the intestines get inflamed absorb inflamed intestine large absorb large digested intestine intestine swollen, the tract does not work right and the ctum reGI digested ileum body can not absorb , or take whatabsorb it needs, ulcerative colitis diarrh ea Inflamed diarrhea rectum digested bowel digested from food. area rectum movement inflamed diarrhea diarrhea large The inflamed places can be spread out over bowel rectum intestine movement rectum bowel GI tract or may be all in one area. movement the absorb bowel bowel digested People movement with an inflamed GI tract can have movement diarrhea (dī ә rē ә). These are bowel rectum bowel movement

movements that are watery and happen often.

They may also have pain and fever.

These problems have to be fixed so that the body can use food again to grow and be

Not every person has IBD in the same place.

healthy.

Use the GI tract above to tell which part is inflamed with IBD.

Part of the GI tract

Inflamed (swollen) or not inflamed with IBD?

Stomach Small intestine Ileum Large intestine Rectum

Read more about IBD— it will help you understand what’s happening in your body, and that makes life less scary.

4 2

What is it Called?

Using the clues below, decide which one of the words in the box will fit in the squares below. Then use the letters in the circles to spell a word that finishes the riddle. colitis disease

diarrhea rectum

food intestinal

bowel ileum

CLUES 1. One type of IBD is called ulcerative _____.

5. A person with frequent watery bowel movements has _____.

2. With IBD there is often _____ swelling.

6. The end of the large intestine is the _____.

3. The _____ you eat goes through your GI tract.

4. The last part of the small intestine is the _____.

7. Waste leaves your body in a _____ movement.

8. One type of IBD is Crohn’s _____.

1.

2.

3.

4.

5.

6.

7.

8.

RIDDLE: I feel crummy when my intestines are __________________________________.

Feelingsad sadabout aboutbeing beingsick sickisisOK. OK.Draw Drawor orwrite writeabout aboutititto tohelp helpyou you Feeling feelbetter. better. feel

5

A Slice of Life with IBD, part 2

2 6

My Healthcare Team You have a healthcare team. It includes members of your family. It might have one or two doctors and a nurse or two. Sometimes, a team will have a social worker or a dietician.

Your healthcare team wants to keep you strong. They want to keep your symptoms under control.

Fill in the names of your own healthcare team.

Then write or draw how each one helps you.

A picture of Me!

My name

Be honest with your healthcare team. Their goal is to help you!

7

A Slice of Life with IBD, part 3

8

My Diagnosis Talk to your doctor. Then finish each sentence with words or a picture to tell about your diagnosis and how you feel about it.

Color where the doctor found the inflammation in your GI tract.

The doctor says to deal with my IBD I must: ___________________________________________ ___________________________________________ ___________________________________________ ___________________________________________

The doctor said I will need to pay attention to my illness by watching for certain changes.

Red flags will be the code words for these changes. I need to tell someone immediately when these red flag changes happen. ______________________

______________________

______________________

______________________

______________________

______________________

______________________

______________________

______________________ ______________________ ______________________ ______________________

My Red Flags Know your “red flags” and tell someone when they happen!

9

What About Medicine?

There are 5 classes of medicines used to treat the symptoms of Crohn’s disease and ulcerative colitis.

The medicines can be pills, liquids, intravenous (put directly into the blood), and suppository (through your rear).

Some of the medicines are used to treat the symptoms of both diseases.

The medicines help you go into remission (ri mish en). This is when your symptoms disappear for a period of time.

No medicine has been invented that cures IBD. Check with your doctor or ask your parents more about your medicine.

Aminosalicylates

Biologic Therapies

(a mē nō sal ә sī lāts)

(bī ō log ik ther ә pēs)

• Reduces inflammation

• Used for maintaining remission

• Prevents flares

• Usually used after other medicines have been tried

Antibiotics

Corticosteroids

(an ti bī ot iks)

(kor tә kō stâr oids)

• Reduces the bacteria in the GI tract to control symptoms, like diarrhea

• Reduces inflammation • Used to treat flares

• Usually used for a short time

Immunomodulators (im ū nō mod ū lā tors) • Stops inflammation • Used to help maintain remission

WORD FIND Each line contains the name of one of these classes of medications.

Can you find them?

b r b n a

a b i i c

m o o m o

i d l m r

n a o u t

o n g n i

s t i o c

a i c m o

l b a o s

i i t d t

c o h u e

y t e l r

l i r a o

a c a t i

t s p o d

e y i r s

s l e s y

l e s t r

Problems taking pills? Check with your doctor. Ask if they can be cut, crushed, or be taken with something slippery to help them slide down.

10

Bathroom Tracker Germaine’s mother kept embarrassing her with questions about what went on in the bathroom.

Germaine and her mother created a Bathroom Tracker, so her mother would stop asking so many questions.

They decided to use color coding, so no else knows the details. Germaine used a crayon to mark the tracker each time she went to the bathroom. You and your folks can come up with your own tracker or use the one below.

Germaine’s Bathroom Tracker

O 4 -10

Week____________________ ct

Sunday Time of Day

8:30 1:00 3:30 7:15 9:10

I

had:

ThurSday Time of Day

8:00 11:40 3:50 8:30 9:45

I

had:

Blue = normal b.m Red = bloody b.m.

Yellow = just gas Green = diarrhea Blue = normal b.m Red = bloody b.m.

Purple = other Yellow = just gas Green = diarrhea Purple = other

My Bathroom Tracker sunday Time of Day

I had:

tuesday Time of Day

I had:

thursday Time of Day

I had:

Monday Time of Day

I had:

Wednesday Time of Day

I had:

Friday Time of Day

I had:

saturday Time of Day

notes

If your rectum’s sore, use a moist wipe instead of toilet paper.

I had:

3 11

Code Words Some topics are difficult to talk about, but you have to. Parents often ask about what happened in the bathroom, and how you feel, and they want you to describe these things in detail, sometimes in front of other people!

Using code One way to get around this problem is to talk in code. You can make your own code words. For example, use the word bottom instead of rectum. Encourage the people you know to use these code words with you. Explain to them that it will be easier for you to talk about your IBD if they use code.

Here are some ideas. Add your own code words to this list!

Words or Ideas diarrhea rectum, anus pain in the gut nauseous bowel movement vomiting bathroom

Code Words runs, goop, bottom, butt, down there, pang, twitch, cramp, queasy, unsettled, sick, b.m., a drop, hurling, tossing cookies, throne room, other place, second home, john,

Can you break this code? Figure out the coded sentences below.

HINT: Start at the letter given and count three down the alphabet. Write that letter in the blank below. (If you see an f, count three letters and write an i in the blank.)

Q e f p

F

f p

t l r i a

p f q q f k d

x mx f k

o x q e b o l k

q e b

f k q e b

y b

y r q q.

m i x v f k d

q e x k

q l f i b q.

Parents can embarrass you without realizing it, but remember— it’s just because they care!

oses IBD gn a e di her y r a St

b

fo

v

Do ib 2 cr ad s pre Ahe

c es to r m sp edic ine ac es

ace

st

journey!

IBD HERO by

Players each choose a piece and put it near START.

The goal of the game is to become an remaining in remission!

On the inside back cover, cut out the player pieces and the number card.

Fold up the sides on the number card and tape the corners together to make an open box. Find a small coin, stone, or button to toss into the box to determine how many spaces to move.

How to Play

The youngest player begins the game by tossing the coin into the number box. That player moves the number of spaces shown. If the coin lands on more than t i t s one number space, o i is v GI it h e use the number on a ad ah to d 2 which most of coin octor ea d1 lands. The player Space moves their piece that number of spaces, reads aloud what it says on that space, and follows the directions. The te Co d lo c o player moves ahead a o no ah Sp Bl sco 2 or back, and remains ea d d1 py ea on the new space. sp ah

ual Contin ea diarrh es ac BACK 2 Sp

It’s a

Bad stomach cramps Back 1 Space or ct o d aces Sp

IBD HERO,

The game continues until each player has become an too.

IBD HERO

The first player to reach the end and gets to perform a becomes the first victory dance.

Then the next player (moving clockwise) tosses the coin and moves accordingly.

es

Life with IBD Do ct o

S ta r t

12

ake to t t e ne rg edici m pace k1s c a

Docto r Id Fla en re Stay h

Warning flag symptoms appear

Back 2 spaces

wi St t

to r s

e er

Take new meds regularly Ahead 2 Spaces

Go to fri end ’s par

s ed m g c takin do p g o e tellin ac ut 5 sp o k c a B h

aps is ApCaom CCaFm C ! un! nd ave hafvuenf e t h e At asis d 1 spac o Ahea Remission continues with good health!

You’re an.........

ty

u tin m n Co ea Ah

!

FuN e v a h d n -a e 1 spac Ahead

Chosen for the school team Ahead 1 space

EAt popcorn and nuts -get major stomach ache Back 1 space

Take MEDS regularly Ahead 3 spaces

Remi ssio n Ahead 3 sp ace s

D atIB sser pa Streov k 1 s Bac

Parent tells teacher about IBD Ahead 1 Space

ing computer games play e g enough sleep ttin Back 1 space

e in xerci sing or Ba g wit h friends ck 2 spa ces

s Mother make changes to diet Ahead 1 Space

Back 2 Spaces

Hospital Stay

p Sto y a pl

up too lat not get

Ho me

ce

spurt Growth spaces Ahead 2

e t d e ak 2 ds ing sp a ce s

ies tif

13

14

A Slice of Life with IBD, part 4

3 15

Sharing Feelings Sometimes we hide how we feel. We smile when we are feeling sad or sit quietly when someone says something that hurts our feelings. That’s okay. This is a way to get through a hard time.

Read each of these short stories. Then draw a face to show what your face would look like to others, and next to it, how you feel inside. You might draw a sad face for what people will see, but a scared face to show what you are feeling.

W

hile at the mall, you rush to the bathroom and realize you’re having some of your problem symptoms. Then you search all the stores to find your mother to tell her what you’ve found.

O

ne of your friends just yelled across the baseball field to ask why you are leaving to go to the bathroom during the game.

My face shows people I’m _____________

But I’m feeling

upset ___________

My face shows people I’m

But I’m feeling

_____________

____________

Now think about how others treat you and what they say to and about you.

Finish each of these sentences with a picture or words.

I wish the people who know about my IBD would _________________ ____________________________________________________

I would be more comfortable if my friends would ________________ ____________________________________________________

My family sometimes embarrasses me when _____________________ ____________________________________________________ Remember, some people just don’t understand you and your IBD.

16

Max’s Friends

M

ax has IBD. He has not told any of his friends. Paul is a good friend, but he teases Max about spending so much time in the bathroom. Don is another friend. He just stares at Max when he gets

back from the bathroom. Wendy calls him “Bathroom Boy.” Max talks to Ms. Klein at the doctor’s office. She helps him make a list of things he can tell his friends.

This is Max’s list. Add your own ideas to it.

WHEN THEY ASK:

I CAN SAY:

What’s wrong with you?

-It’s a stomach thing.

-The part of my body that digests food gets swollen sometimes.

Can I catch it?

-Don’t worry, you can’t catch it!

Are you OK?

-I’m gonna be fine; it just comes and goes.

Why is your face so puffy?

-It’s because of my medicine.

-I must be eating a lot at home to make up for the bad cafeteria food.

-I wish it could have been from eating a lot of candy!

Walk away when you don’t want to say any more.

17

What To Say Look at each story. Think about what a person with IBD might say.

Write what you would say in the balloon to finish the story.

Hey, bathroom boy!

What have you been doing for so long?

Yo, Mom! Gram and Gramps are here!

Maybe you shouldn’t eat that muffin.

Oh, you poor boy! how do you feel? will you be ok?

Your face is getting kinda puffy!

Remember, it’s your choice on how much to tell someone outside your health team.

18

If it were me…

We have to make choices every day. Sometimes we can plan ahead, and sometimes we have to go with the flow. In these stories, each person has to make a choice. None of them are wrong, but some people may feel happier about making one decision than another.

Read each story. Which choice or choices would YOU feel most comfortable with? Add another choice if you have another idea.

Naomi’s dance

class was going to r. In practice at a theate to six weeks they had ance dance in a perform afraid there. Naomi was s she’d have problem t in the theater. Wha le hi with her IBD w to do? would YOU choose all the , check out where a. With your parent e theater. bathrooms are in th teacher. ation to the dance tu si e th in la xp E b. room time.

Ask for extra bath away the theater, sneak c. Once you get to bathroom. to find the closest ___ ________________ d. ______________ ___ ________________ ________________

Nathan’s Little League team won the town championship .

His team is going out to celebrate. What w ould YOU choose to do ? a. Join the team. E at anything you w ant, but know where th e bathroom is. b. Join the team, bu t locate the bathro om as soon as you get there, and be a picky eater. c. Don’t go with th e team, but celebrat e with your family at a familiar restaurant. d. ______________ ________________ _ ________________ ____________ his

Walter loves to play video games. He and on George want to spend Saturday afterno

friend about playing them. George does not know to do? ose Walter ’s IBD. What would YOU cho

a. Tell George about the IBD. e and b. Tell George you have a stomach ach ear into the bathroom when app have him come to your house. Dis you need to. bathroom before you settle c. Go to George’s house, but find the hroom when you need to. down to play. Disappear into the bat _________________________ d. ___________________________ __________________ ______________________________

Bring your own food and bring extras for your friends!

3 19

Knotted up over IBD Symptoms!

Nathan’s IBD had not bothered him for several years. One day, his IBD symptoms began reappearing. He decided to take care of himself. Nathan listened to his doctor and took some new medicine. He could no longer play baseball, so he watched games on TV and followed his favorite players on the Internet. After a while, his new medicine worked. He could do more things, but he was still weak. Finally, he got back to his every day life of school, Little League, friends, and computer games.

Below, each gray box has a problem related to how or why your IBD symptoms might bother you. It can be traced to a box on the bottom of the page, where a good way to solve the problem is listed.

See if you can follow the path of each piece of string from the problem to the solution. Use a different color to trace each piece.

1. You ate a meal of fried chicken nuggets and fries.

Then your IBD flag symptoms began.

Be sure to take your medicine according to your doctor’s orders.

Doing this may save you from IBD symptoms.

2. You are on a school field trip and get diarrhea. This is one of your clues that your IBD is starting up again.

Watch to see what foods cause a problem for you. Stay away from them to save yourself the problems of IBD.

3. Your IBD

4. You didn’t take

symptoms have lasted many days. It has made you very tired.

your medicine regularly, so now your IBD is giving you problems.

Do quiet activities until you get your strength back. Text your friends. Read sports magazines instead of playing sports.

Have an emergency kit with you. Include underwear, pants, wipes, and deodorizer.

IBD can have ups-and-downs, so control what you can!

20

A Slice of Life with IBD, part 5

21

IBD can have ups-and-downs, so control what you can!

22

Away From Home Dear Diary,

! ving fun on this trip ha am I t Bu D. IB h it Traveling is hard w so many om fast. There were finally ro th ba e th d fin to At the airport I had while to figure out which way to go. I a signs that it took me it had a line. I JUST made it! t the light found a bathroom, bu d seats near the bathroom. I watched flight.

On the plane, we ha in it. I was VERY glad it was a short had two was to make sure no one e hotel we stopped at a gas station. It ouldn’t On the drive to th get a key to get in. It was gross! I w to bathrooms and I had have to! ’t re which have used it if I didn oking at the restrooms signs. I wasn’t su ss they At dinner, I stood lo e signs can be confusing!! Thank goodne th one to use. Sometimes or. oms, so I do had pictures on the ach and sat in the sand near the bathro We went to the be e had a great time! . W didn’t have to worry , that if I have a plan t ou d un fo I d an s, throom I have seen LOTS of ba !

I don’t have to worry Match the sign to the person who can use the restroom.

GALS

Señoritas

Lassies Lads Señor

Guys

If a sign says “No public bathroom,” ask anyway. Use an “I Can’t Wait” card from the Crohn's & Colitis Foundation. If you explain, people often say yes.

3 23

Living with Challenges “Just leave me alone!” yelled Max. School is starting next week and he is worried about school, his friends, and his IBD. His IBD is giving him problems. For some people, like Max, their bodies react when they get stressed out. So, today, this is making his IBD worse.

r you o nd kt Tal st frie be nd do g a thin e r. som gethe to

ne at Chat onli ns.org ndcroh www.uca h wit s h ot er kid . with IBD

Because everybody is different, some ideas worked for Max and some didn’t. Everyone has to choose the way that works best for them. Max loves to go hiking with his family, so he imagines walking in the woods. He also takes five L to isten deep breaths when he starts getting upset. Max is finding m s he usi oft ad c o ways to help calm his mind and his body. ph n on e c a l es. p a ture al a ke Ta deep o t few aths our bre lm y d. ca min

al journ a p Kee d write an what t abou rs you e h t o b what d an s you e mak py. hap

Tak care e good bod of yo ur yb for y goin exer a walk g , cisi rest ng, or ing.

Do things you love. If you can’t, read abou t it or watch others do it .

W fun atch ny a or r movi e e boo ad a ko jok f silly es.

Max talked to a social worker about controlling his worrying to help calm his IBD. She helped Max find ways to calm his mind when it affects his body. Here are some of the things he learned.

ci Pic is spe ne that i imag and lors, its co and ls, smel ds. soun

Choose the ways that work best for you.

Decorate this t-shirt with those things and activities that make you feel good and could help you calm your mind. Think about them when you begin to get upset.

Get rid of the things that are bothering you by writing or drawing them. Throw away the paper after you are done.

24

Check out our new IBD & ME Activity Center online!

Here, you'll meet some new friends and play some fun games, all while learning about IBD and how to manage it. Get started by going to : www.crohnscolitisfoundation.org/ibd-me Answers PAGE 2 - MATCHING 1.d, 2.c, 3.a, 4.e, 5.h, 6.b, 7.f, 8.g PAGE 3 - GI TRACT Stomach: not inflamed, Small intestine: not inflamed, Ileum: inflamed, Large intestine: inflamed, Rectum: not inflamed PAGE 4: - WHAT IS IT CALLED? 1. colitis, 2. intestinal, 3. food, 4. ileum, 5. diarrhea, 6. rectum, 7. bowel, 8. disease. Riddle: I feel crummy when my intestines are inflamed.

PAGE 9 - WORD FIND

PAGE 11 - BREAK THE CODE FIRST CODE: This is a pain in the butt.

SECOND CODE: I would rather be playing than sitting on the toilet.

PAGE 19 - FOLLOW THE PATH 1.- red box 2.- yellow 3.- green 4.- blue PAGE 22 - MATCH THE SIGNS

Now that you know what IBD is, you need to know some other really important things:

*Nothing you ate or did gave you IBD. *You didn’t catch it from anyone else. *Most people who live with IBD are healthy more often than they are sick.

*Kids with IBD can be whatever they want to be

and do whatever anyone else can do: go to school, date, go to college, have a career, get married, have kids, travel, be a hero — you name it!

You’ll have a ton of questions about your illness, many now and many more as time goes on. That’s okay.

You’ll be doing yourself a big favor if you learn everything you can about your IBD and how it affects your body. Just ask! One place to learn more is:

These are the number box and playing pieces to use with the game board on pages 12-13.

1 Stay Stay where where you you are

4

Cut out one playing piece for each payer. Cut out the number board on the dotted line. Fold the white sides up and tape the board at the corners. This will make an open box into which you can toss a small coin, button or stone.

2

It’s a journey!

#

3

Life with IBD

#

www. crohnscolitisf oundation. org

Number Box Player Pieces

Improving Quality of Life We know living with Crohn’s or colitis can have its ups and downs, but you are not alone.

We are here to help.

INFORMATION AND SUPPORT Toll Free Phone Number

888.MY.GUT.PAIN 888-694-8872

Email

info@crohnscolitisfoundation.org

Website

www.crohnscolitisfoundation.org

Camp Oasis

www.crohnscolitisfoundation.org/campoasis 733 Third Avenue, Suite 510 New York, NY 10017

This book reprint is supported by a donation from the The Stern Family

2020