Skip to main content

Crossing For A Cure 2018 Recap

Page 1

BAHAMAS TO FLORIDA EPIC PADDLE CHALLENGE & INTERNATIONAL CHAMPIONSHIP FOR CYSTIC FIBROSIS

Photos By: Tallymark Productions

2018 Annual Program | 2nd Edition

#InspireEveryBreath


Photos By: Tallymark Productions

Piper

Our angel & inspiration Piper’s Angels Foundation’s mission is to support and improve the lives of families in the cystic fibrosis community through heightened awareness and providing education, life expanding activities, urgent financial support, and funding critical research.


Table

OF CONTENTS 2 Mission Statement

40-41 65 Roses - Julie Allen

6-7 Special Thanks

42 CF Warrior - Ben Mudge

8 Founder’s Letter - Travis Suit & Note from Piper

44-45 Courage, Love & Light - Elizabeth Suit

10-11 Send Off

46-47 Appreciation Party

12 Getting to Know Piper

48-51 Community Impact & Salt Supply

13 Paddle Out Ceremony

52-53 Epic Love Film Premiere

14-15 Bimini

54-55 Media

16-17 Crossing Captains & Crew

56-57 Social Media

18-19 Bimini Launch

58-59 Piper’s Paddle Party

21-27 The Crossing & Crusaders

60-61 Storytelling Night

28-34 Epic Beach Landing

62-63 Cucina Pre-Party Celebration

35 Engagement - Michael Meixner & Gisselle Bader

64-65 Timeline - 2013 & 2017

35 Crossing Sponsorship & Piper’s Angels Donation Information

66 Love Conquers All - Tom Horton 67 2019 Registration Information

36-37 Awards Ceremony

68 Thank you to Our Sponsors

38-39 Father’s Day Tribute

INSPIRE EVERY BREATH

3


Special thank you

Photos By: Tallymark Productions

EXECUTIVE DIRECTOR Travis Suit

CYSTIC FIBROSIS WARRIORS Piper Ackels Joe Mitchell Ben Mudge Brett Street LeeAnn Suit

CROSSING CRUSADERS Aaron Murphy Adriano Teles Alejandro Azcano Alexandre Oconnor Andrew Calhoun Anthony Edwards Ben Mudge Ben Vonderharr Bob Shustack Brett Street Brian Pandiscio Brittany Austin Bryan Hill Carl Ziegler Christopher McDermott Cindy Gibson Dani Diaz Daniel Clark Danny Porcelli David Fletcher David Slemp Donna Catron Drew Goldsmith Dylan Holmes Frank Roper Gabriel McCorry-Henry Gary Rothe George Klein Gisselle Bader Hannah Barreto Heidi Kaye Ian Mussmacher Jaime Smyth James Hugh Jana Ash Jeff Crivello Jen Savaro Jessica Sasser Joe Mitchell Jordan Rude Josef Morera

Joseph Morel Josh Ferris Josh Lanphear Julie Allen Kelly Hilton-Green Kevin Spina Kraig Spina Kris Retherford Lauren Wertepny Lexner May Linh Tang Liz Mirson Luis Aulet Luke Denney Mark Muirhead Matthew Lilly Matthias Fretz Matti Anttila Michael Faulkner Michael Meixner Michael Phillips Nick Ganster Nick O Rourke Nick Olander Pamela Keyes Parker Lake Patrick Walsh Paul Smolchek Paulo Barreto Philip Dickson Ramsey Small Richard Moran Rob Mayhew Robert Sorenson Ross Elder Ryan Burgess Ryan Gibbons Sam English Shane Pompa Shelley Griffith Sherry Griffith Stephanie Nevadunsky Steve Miller Steven Tonkinson Talayna Fortunato Teva Kurth Todd Bourgeois Tom Fogan Tom Horton Travis Suit Trey Mahoney Trey Seibold Warren Heil

ADMIRAL OF THE FLEET Sean Dunleavy

CAPTAINS Adam Whittington Augie Diaz Bob Marvin Brian Reading Carl Dirkes Chris Molinaro Christopher Ball Clyde Morris Cody Howdeshell Colin Page David Ward Derek Schaaf Jake Griffith Jeff Newsome Jim Brown Joel Middlebrooks John Chapman Jonathan Rendon Justin McLane Kyle Shea Martin Rusin Michael Rapf Paul Seaman Renan Aponte Rex Levi Russell Taylor Scott DeHooghe

CREW Alan Gong Angie Azcano Anio Lautsio Austin Grisham Barry Small Bill Buckley Bonnie Dickenson Carlos Austin Cindy Sasser Clayton Smith Curt White Darrell Rioux Enjalene Gunnoe Eric Brush Frank Calas Frank Segui Hector Diaz Jessica Chapman Jill Spina Joe Lawless

6

Kathy Aponte Kelly Bond Lindsay Noga Lisa Rapf Lucas Bocanegra Michael Davis Morgan Gelatt Ngoclinh Tang Olin Hershberger Paul Doppelt Reed Nelson Renan Santos Ro Sammis Robin Henry Scott Keiser Scott Martin Seth Christensen Shaun Arnold Thomas Bagwell Thomas Wellington Travis Wright Vance Mickelson Vanessa Calas

STAFF Aiyana Sugerman Andrew Colton Brittney Nunn Carolyn Stash David Alan Elora Fucigna Gary Stellges Gloria Suit Heidi Fahrenbach Ian Blake Jennifer Napolitano Justin Bruns Landon Akiyama LeeAnn Suit Lori Griffith Nikki Stellges Peter Marcus Piper Suit Robert Suit Sean Dunleavy Talia Schizzano Theo Charmont Tom Fucigna

PHOTOGRAPHY Lori Griffith Leonard Bryant David Scarola


Special thank you

YOGA INSTRUCTOR

DIGNITARIES

BOARD MEMBERS

Julie Allen

Palm Beach County Mayor: Melissa McKinlay Lake Worth Mayor: Pam Triolo Lake Worth Commissioner, District 4: Herman Robinson

Gary Stellges Nikki Stellges Shane Pompa

MEDITATION INSTRUCTOR Matt Cardone

VIDEO PRODUCTION CREW Talia Schizzano Andrew Colton Justin Bruns Kevin Wainscott Ed Pence Jim McGrath

WEB & GRAPHIC DESIGN Brian Pandiscio Ian Mussmacher Cheri Betz Dani Diaz

VOLUNTEERS Abigail Pandiscio Adriano Roman AJ Galiachatos Bobbe Ferguson Bradley Timor Brantley McKnight Brent Lawson Brian Donally Cameron Hammond Casey Berger Curtis Begley Curtis Daniels Cynthia Mitchell David Leavins Frank Fonseca Gary Allen Jeffrey Timor Jess Locasino JetRide Team Jini Papa Jo-Jo Braddock Juliette Gutierrez Justin Hutcheson Kathy Gutierrez Laura Price Lexi Danizo Marlon Gutierrez Melissa Gutierrez Mike Cabral Naresh Merugu Rob Rosario Sharon Allen Trevor Spann

ADVISORY BOARD MEMBERS Chris McDermott David Alan Jennifer Napolitano Joe Mitchell Kevin Spina Lee Heaton Liz Mirson Matti Anttila Megan Hamerdinger Melanie Cabot Patrick Walsh Paul Smolchek Sean Dunleavy Trey Mahoney

CITY OF LAKE WORTH Lauren Bennett Doug Yoakum Mat Botts

VIRTUAL PADDLERS Adam Zinser Brooke Workman Christian Daulong Jay Mahoney Drew Memtsas Kevin Testa McKenzie Cunningham Mike Minot Will Elger

INTERNSHIPS Isabelle Granlund Kebba Nyang

COMMITTEE Julie Allen Aino Lautsio Brett Street Brian Pandiscio Chris McDermott Chris Vincent Dani Diaz George Klein Heidi Kaye Jack Blanchard Joe Mitchell Josh Ferris Josh Lanphear Kyle Igneri Landon Akiyama Liz Mirson Matti Anttila Nikki Stellges Paul Smolchek Peter Marcus Rick Raymond Sean Dunleavy Talia Schizzano Tom Fucigna Tom Horton Travis Kindt Travis Suit Trey Mahoney

ATLANTIC LEVEL SPONSORS Palm Beach Sports Club Town Sports International

GRAND BAHAMA LEVEL SPONSORS Legacy Marine Lifeguard Next Level Fitness Water

BIMINI LEVEL SPONSORS Endless Summer Rum Jupiter Pointe Marina Power Design Tanker Oil Tealixir Tito’s Handmade Vodka

INLET LEVEL SPONSORS C3 Gardens Ed Morse Automotive Gulfstream Boat Club Halo Talks Life Hearing & Tinnitus Health Center MedLab

7

BEACH LEVEL SPONSORS Affordable Landscaping Aino K. Lautsio-Riccitello LMHC Captain Party Hard Coastal Breeze News Dolphin Pools Good Greek Moving and Storage Independent Accounting Office Lee Be Fish Inc Marco Island Outfitters Mulligans Beach House Paddle Marco Paradise Coast Marine Service Pelican Pier Marina Seacor Island Lines The Breakers Palm Beach

ADDITIONAL SPONSORS AND SUPPORTERS Abaco AtlasTrax USA Blueline Paddle & Surf Body Glove Cake & Candy by Mary Lou Chasin A Dream Photography Cheney Brothers Chris Vincent David Scarola Photography Fli Designs Generation UCAN Hamilton Jewelers JetRide.com JFK Medical Center Leonard Bryant Photography LockRack Norm Gitzen One Piece Plan Pandiscio Design Pat Murphy Phase 9 Design Print Web Rock Tape Scripps Research Shark Addicts Shark Attack Productions Spina Group Sunzee SUPIA Tallymark Productions Tropic Sport Wavelength Productions West Marine Xtreme Experience


The Year

of Epic Love AS WE ROLL OFF OF ANOTHER YEAR, with the Crossing For A Cure 2018 in the books, we have a chance to reflect on what we learned and all of the incredible results. It is apparent that the more genuine the introspection and reflection of your love, inversely, an outer manifestation of that reflection occurs and arrives as clear and almost instantaneously as what you see looking in the mirror. When a seed is planted, it is not called a tree because it is merely an organic pebble of possibility. It is the tiny life source that contains within it, a vast and complex life form. From this small beginning emerges what could become a grand Live Oak, towering Sugar Pine, sprawling Cypress, majestic Redwood, or resilient Coconut Palm. All representing the growth of something that was once only contained within, that is now flourishing out into the world. When people stand in awe of an ancient tree, they are admiring the result of a life long at work. It is easy to forget where it all started. In our case, it started with four relentless paddlers, and a steadfast crew of two boats in 2013, and has grown and magnified into a goal of two hundred paddlers and fifty boats in 2019. There is no secret to this growth. It is simply compassionate, open-minded, loving people giving it their all, and they are the source of love that has transcended across borders into a global presence, that is now called Epic Love. All love is powerful, just like all light is powerful, however when you amplify and focus the energy that goes into that light, it burns even brighter with purpose, which invariably intensifies passion, and shines further than ever before. In this mission, there is no ego projecting and promoting, their is only love flowing and attracting. All of this is the fortunate by-product of a family fighting for their loved ones, and fighting for other families going through the same struggles, facing the same challenges, and asking what can we do to help? I’ve heard stories from the Crossing over the last few years that sing a familiar tune of courage, daring, heartbreak, suffering, beauty, strength, leadership, and inspiration. These reverent characteristics come forth naturally as the result of a bold commitment to the cystic fibrosis community. A promise to those who we look to as a model, that carry the burden of a thousand lives, that exemplify human spirit in its greatest glory... CF WARRIORS. They wear the scars of countless battles, that walk a path laden with a diverse set of unimaginable challenges,

Photo by: Tallymark Productions

Photo by: Lori Griffith

and yet, despite getting knocked down, over and over again, rise up and press on because it is a necessity to survive. Paddling 80 miles across the Ocean is a tough challenge, one that begins and ends in the same day. Navigating through the waters of cystic fibrosis, is like sailing out at Sea for your whole life, never realizing the meaning of standing on solid ground, but tending to your ship and doing everything in your power to keep the wind in your sails, weather the storms, and keep hope on the horizon. If you’re looking to rejuvenate your spiritual nourishment, pick up the phone, and talk to a cystic fibrosis parent or patient, and just listen to the words they have to share. I have found no greater source of love, compassion, inspiration, and healing than to hold space for those who fight to make the most of this life, even if only for a single breath.

Inspire Every Breath! — Travis Suit

8

Photo by: Tallyma

rk Produc tion

s


DINING | SHOPPING | BOATING | ENTERTAINMENT | HOTEL

Savor •••••••••••• The Woods Jupiter Subculture Coffee BurgerFi Bravo Italian Tommy Bahama Too Bizaare Another Broken Egg Cafe Johnny Swirls Calaveras Cantina

Shop

••••••••••••

Francesca’s | Chico’s White House Black Market Pucci & Catana | John Craig Native Visions Galleries House of Art’s Gallery Paul Gruner Gallery Broward Design Center Artlantic Fine Art | HMY Yachts Go Coastal | Jofit Marie Antoniette’s Furniture

harboursideplace.com | 561.935.9533 Connect with us: #HarboursideFL

Unwind ••••••••••••

Wyndham Grand Jupiter The Blowzone Venetian Nail Spa Weekly Events Sunday Farmers’ Market Pontiki Jetride Water Activities Splash Pad for Kids


Photo by: Lori Griffith

Photo by: Lori Griffith

Send Off

ER Bradley’s West Palm Beach, FL Photo by: Lori Griffith

Mayor Melissa McKinlay declares

Photo by: Lori Griffith

Photo by: Lori Griffith

June 14th Photo by: Tallymark Productions

Piper’s Crossing For A Cure Day in Palm Beach County

Photo by: Lori Gr

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Tallymark Productions

Photo by: Tallymark Productions

Photo by: Lori


by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith


Getting to Know Piper

Age: 11 Grade: 5th FAVORITES Color: Baby Pink and Gold Hobby: Making Things Sport: Competitive Cheerleading Subject: Science Animal: Dogs and Dolphins Future Profession: Veterinary Technician and YouTuber

12


Photo by: Tallymark Productions

Bimini

Paddle out ceremony

Photo by: Tallymark Productions

Photo by: Tallymark Productions

Photo by: Tallymark Productions

Photo by: Lori Griffith

This year was the first year we had the paddle out ceremony in honor of the cystic fibrosis community. The intention was to come together and unite to recognize all of those people in the CF community that have lost their lives in helping advance the life expectancy so that children are now living into adulthood, and allowing for the incredible and inspiring stories of what people in the CF community are now able to accomplish. We were honoring the past, present, and future and calling out to the Universe for greater strength and hope in the CF community to continue to fight on. Roses are a beautiful symbol of hope in the CF community, and we were grateful to hold space in this way to give thanks for our lives and the purpose we are empowered to achieve together.

Photo by: Tallymark Productions

Photo by: Tallymark Productions

Photo by: Tallymark Productions

Photo by: Tallymark Productions


Photo by: Talia Schizzano

Bimini The Bahamas Most photos by Lori Griffith unless otherwise noted.

Photo by: Talia Schizzano


True Dedication

Crossing CAPTAINS & CREW

Photos by: Lori Griffith, Chasin a Dream Photography

ADMIRAL OF THE FLEET SEAN DUNLEAVY

CAPTAINS ADAM WHITTINGTON AUGIE DIAZ BOB MARVIN BRIAN READING CARL DIRKES CHRIS MOLINARO CHRISTOPHER BALL CLYDE MORRIS CODY HOWDESHELL COLIN PAGE DAVID WARD DEREK SCHAAF JAKE GRIFFITH JEFF NEWSOME JIM BROWN JOEL MIDDLEBROOKS JOHN CHAPMAN JONATHAN RENDON JUSTIN MCLANE KYLE SHEA MARTIN RUSIN MICHAEL RAPF PAUL SEAMAN RENAN APONTE REX LEVI RUSSELL TAYLOR SCOTT DEHOOGHE


Bimini beach launch

Photos By: Lori Griffith, Chasin a Dream Photography


WELL is at the heart of all we do. WELL

WELL

D E S I G N ED

M A N AG E D

WELL

WELL

B EI N G

DONE

welltower.com

| medicaloffice.welltower.com


Photo by: Tallymark Productions

Photo by: Darrell

Crusaders Crossing for a cure

Rioux

BOLD IN THE FACE OF FEAR MOST PHOTOS BY: Lori Griffith, Chasin a Dream Photography unless otherwise noted.

i Griffith Photo by: Lor

Jeff Crivello and Piper

Adriano Teles

Drew Goldsmith

Kris Retherford and Aaron Murphy

Gisselle Bader and Michael Meixner

Dani Diaz

Paul Smolchek, Julie Allen, Ryan Burgess, Phil Dickson and Brian Pandiscio


Crusaders Crossing for a cure BOLD IN THE FACE OF FEAR PHOTOS BY: Lori Griffith, Chasin a Dream Photography

Cindy Gibson

Giselle Bader

Dani Diaz, Michaerl Faulkner, Gary Rothe and George Klein

Anthony Edwards

Daniel Clark

Donna Osborn Catron

Alejandro Azcano

Tom Horton

Jessica Sasser

Steven Tonkinson

Frank Roper, Gabriel McCory and Lexner May


Rob Mayhew

Brett Street CF Warrior

Josh Lanphear

Gabriel McCory and Lexner May

Trey Seibold

Chris McDermott

Kelly Hilton Green

Joe Mitchell CF Warrior and Ryan Gibbons

er

Travis Suit

Josef Morera and Linh Tang

nson

Jen Savaro and Stephanie Nevadunsky

Ben Mudge CF Warrior

Todd Bourgeouis

Carl Zeigler


Alexandre O’Connor, Brittany Austin, Shelley Griffith, and Sherry Griffith Talayna Fortunato

Lauren Wertepny

Dylan Holmes

Michael Phillips

Steve Miller

Trey Mahoney

Josh Ferris

Hannah Eden and Paulo Barreto

Elizabeth Suit

Paulo Barreto

Brian Pandiscio

Warren Heil

George Klein

Andrew Calhoun

Phil Dickson


reto

Warre

Slemp and Br urgeios, David n Heil, Todd Bo

yan Hill

Crusaders Crossing for a cure BOLD IN THE FACE OF FEAR PHOTOS BY: Lori Griffith, Chasin a Dream Photography

Michael Faulkner

Kraig Spina

Dylan Holmes and Nicholas Ganster

Sherry and Shelley Griffith

Robert Sorenson

Danny Porcelli

Jordan Rude


Crusaders Crossing for a cure BOLD IN THE FACE OF FEAR PHOTOS BY: Lori Griffith, Chasin a Dream Photography

Photo by: Lori Griffith

Ryan Gibbons and Travis Suit

Shane Pompa

Jeff Crivello

Patrick Walsh

Heidi Kaye & Luke Denney

Luis Aulet

Kevin Spina

Pamela Keyes


Teva Kurth, Jaime Smyth, Bob Shustack, David Fletcher, Ross Elder and Tom Fogan

Sam English

Joe Morel

Ramsey Small

Matthew Lilly

Nick Olander

Matti Antilla and Matthias Fretz

Jana Ash

Richard Moran

Luis Aulet

James Hugh

Parker Lake

Ian Mussmacher

Additional Crusaders: Ben Vonderharr, Mark Muirhead and Nick O’Rourke


Photo by: Lori Griffith Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith


o by: Lori Griffith

Epic Beach Landing Lake Worth Beach, FL

Photo by: Lori Griffith

th Photo by: Tallymark Productions Photo by: Lori Griffi

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith’s

Photo by: Lori Griffith


Photo by: Tallymark Productions

Epic Beach Landing Lake Worth Beach, FL Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith Photo by: Lori Griffith

Photo by: Lori Gr

Photo by: Lori Griffith


Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lenoard Bryant Photography


Photo by: Tallymark Productions

Epic Beach Landing Lake Worth Beach, FL i Griffith Photo by: Lor

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Artist Norm Gitzen


Photo by: Lori Griffith

oard Bryant Photo by: Len

Photography

Epic Beach Landing

Photo by: Lori Griffith

Lake Worth Beach, FL Photo by: Lori Griffith

Photo by: Lenoard Bryant Photography

Photo by: Lori Griffith


Epic Engagement

She Said Yes This year The Crossing for a Cure is a once in a life time experience that takes more heart and determination than one knows they have. Everyone faces battles, whether it be Piper and the CF community, my father’s battle with lung cancer, or the continuous grind of any given day. The lesson we learned on this ride was all it takes is one more stroke of your paddle, to get you one more mile, and one more hour into what seems like an endless journey. Until eventually we all emerged from this challenge stronger and ready to take on the next one. For Gisselle and me, the end of our Crossing started the beginning of the next journey in our lives. — Michael Meixner

Congratulations Michael and Gisselle!

Interested in Sponsorship?

Want to make a donation to Piper's Angels Foundation?

We'd love to welcome you aboard! Please contact Liz@pipersangels.org for further details.

Your support is greatly appreciated! Please visit www.pipersangels.org and click the donate button or contact Travis@pipersangels.org.

BAHAMAS TO FLORIDA EPIC PADDLE CHALLENGE & INTERNATIONAL CHAMPIONSHIP FOR CYSTIC FIBROSIS

2019 SPONSOR PROGRAM 35


Awards

Ceremony

Photo by: Tallymark Productions

Photo by: Tallymark Productions

A CELEBRATION TO AWARD ALL COMPETITIVE DIVISION WINNERS AND HONOR ALL CROSSING CRUSADERS AND PARTICIPANTS

Photo by: Lenoard Bryant Photography

INCLUDING THE FIRST CF WARRIORS TO EVER PADDLE IN THE CROSSING JOE MITCHELL BEN MUDGE AND BRETT STREET

Photo by: Tallymark Productions

THANK YOU TO LAKE WORTH MAYOR PAM TRIOLO AND LAKE WORTH COMMISSIONER HERMAN ROBINSON Photo by: Tallymark Productions

Photo by: Tallymark Productions

Photo by: Lenoard Bryant Photography

P


Photo by: Lenoard Bryant Photography

Productions

Photo by: Lenoard Bryant Photography

t Photography

Photo by: Lenoard Bryant Photography

Photo by: Tallymark Productions

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Productions

Photography

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Photo by: Lenoard Bryant Photography

Photo by: Tallymark Productions

Photo by: Tallymark Productions


Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Photo by: Lori Griffith

Celebrating

Photo by: Lenoard Bryant Photography

Father’s Day With Purpose 2018 Photo by: Lori Griffith


by: Lori Griffith

by: Lori Griffith

by: Lori Griffith

Photo by: Lori Griffith


65 ROSES

ART PROJECT BY JULIE ALLEN THE 65 ROSES ART PROJECT was inspired by the 65 Roses moniker created in 1965 by Ricky Weiss and was created as a fundraising marketing strategy that transformed into a touching movement of honor and support. Julie Allen decided to sell “mini-sponsorships” for her fundraising campaign by offering to paint a rose in the name of a business or individual on her 14 foot crossing board. Each donor of $65 or more was given the opportunity to choose a short statement, business or name that would be written across a painted banner, with the goal of “selling” 65 roses. Some of her donors chose to have the name of a CF patient written across the banner, some of her donors chose to remain anonymous and their rose was dedicated to someone with CF, some had business names, some had their own names, some honored their mothers and some chose moving phrases, the two most remarkable donations stated “To All CF Warriors” and “For this We Will Endure.” Julie relentlessly campaigned through Instagram and Facebook, giving recognition to each rose donor. She secured 49 rose donations and raised $5,330 by 78 people. The remaining 16 roses honored CF patients in the community. A month and half before the crossing, Julie remodeled her board by fixing soft spots, replacing the deck pad and stenciling the 65 roses along the rails, nose and bottom of the board. The 65 Roses Art Project truly became a group art project when local artist Paul Seaman donated the paint; Julie’s father donated the work space and hours of time; & several crossing crusaders, their supporters and families gathered to outline each stenciled rose as Julie hand wrote each donors requested banner message. The result was magnificent and a few days later a blessing ceremony was held to launch the 65 Roses Art Project into a local waterway.


Photo by: Lori Griffith

Photo by: Julie Allen

JULIE SECURED 49 ROSE DONATIONS AND RAISED $5,330 BY 78 PEOPLE. THE REMAINING 16 ROSES HONORED CF PATIENTS IN THE COMMUNITY. Photo by: Julie Allen

Photo by: Julie Allen


CF Warrior

follow your heart THIS YEAR I was invited by the Piper’s Angels Foundation to participate in the Crossing for a Cure, a paddle from the beautiful beach of Bimini, Bahamas to Lake Worth, Florida. I was invited only two weeks out, giving me just two weeks to prepare for the daunting 80-mile paddle (Yes, I’m crazy, but in a good way). But sometimes in life you have to go against logic and follow your heart – and the challenges of cystic fibrosis are something I know all too well. I used every tool and piece of knowledge I had available to prepare myself for this test of my will. At the midnight launch on paddle day on the Bimini beach, I finally experienced first-hand what it meant to say that energy is electric. There was anticipatory energy everywhere and in everyone – it was in the air, my chest and left my lips and nose tingling. This was the energy of all of my fellow crossers who were nervous, exhilarated, and ecstatic to be on a mission for something greater than ourselves. It made us feel ten feet tall! I felt especially proud that I had defied stereotypes of someone with CF by participating in the Crossing. Gravity was on my side and I felt light as a feather. Paddling into the moonlit darkness over the clear waters of Bimini created a sight nothing short of beautiful. I felt the warmth in the lights of our guide boat. I could feel the strength and happiness of the moment pounding through my chest. To have such a perfect moment with great people supporting me was more than I could have ever envisioned. As the sun rose, it set the water ablaze and revealed the endless stretch of deep blue waters. Without anything in sight, you could think we were moving in place. If it hadn’t been for my great team beside me every stroke of the way, the beautiful horizon on the water would have not only stolen my heart away, but eventually my hope.

Photo by: Talia Schizzano, Tallymark Productions

As soon as I caught a glimpse of the beach I felt the energy rush back into my body. All of the people waiting for our arrival gave me an unimaginable boost, mentally and physically. With every stroke I took, I was focused on inching my way closer and closer to that beach. As I got closer the heat became more bearable, each breath got easier and the cheers got louder. Touching down on the beach overwhelmed my crew and I with a deep happiness that Photo by: Lori Griffith radiated within our chests, down to our legs. Each breath we took had a life if its own. The feeling of the sand beneath my feet felt like I was walking on water. We made an amazing team effort for amazing reasons and had completed the Crossing of a lifetime. Whenever I think back to each stroke of that paddle, I am filled with pride as each one culminated into one of my greatest achievements of my life. I would like to send an enormous THANK YOU to the Piper’s Angels Foundation for allowing my crew and I the opportunity to go on an adventure and experience of a lifetime.

Experience of a Lifetime! — Ben Mudge


PROUD SPONSOR OF THE 2019

Med-Lab has been the exclusive provider of Siemens Healthcare solutions to South Florida since 1967. Med-Lab is committed to exceptional professionalism as it adapts to changes in the Medical Imaging industry. Two-thirds of our employees are field engineers, all trained by Siemens and with an average tenure of 17 years. We truly believe that our educated and experienced team is what makes our company so valuable.

EdMorse.com

North Naples 11121 Health Park Plaza Ste.100 (239) 596-0050 South Naples 720 N. Goodlette Road Ste.200 (239) 649-5433

Marco Island 535 Bald Eagle Drive (239) 649-5433 Fort Myers 13720 Cypress Terrace Circle Ste.301 (239) 334-0631

www.med-lab.com 1-800-330-5144 Lucas.Diaz@med-lab.com


Live a Life of

Courage, love and light CONTRARY TO WHAT SOME MAY BELIEVE, courage is not a quality you are, or are not, born with. It is one that can be cultivated and honed. Acquiring courage doesn’t necessarily entail doing something dramatic or astoundingly heroic. On a day-to-day basis many people summon courage to overcome both physical and psychological barriers in order to accomplish simple tasks. Courage is the mental and emotional preparedness and ability to deal with difficult, challenging, and sometimes seemingly impossible circumstances. It is the ability to confront fear, pain, danger, uncertainty and intimidation. When we work to develop courage, we both empower ourselves with the ability to confront problems head on, as well as, acquire the skills required to deal with life’s inevitable challenges. Think of courage as a psychological muscle. When we build any muscle, we do so in order to build strength and resilience. In building strategies for living a more productive, happy and meaningful life, developing courage is yet another way to take responsibility for your state of mind, your circumstances and your well-being. So why am I talking about courage? There was a time in my life where I thought I was living the best life I could. Where I thought I was living an honest, courageous life. Boy was I wrong. I didn’t know just how wrong I was until Travis and Piper came into my life along with the entire Crossing For A Cure community! I have supported Travis in his endeavors since the first Crossing in 2013, but it wasn’t until the 2018 Crossing For A Cure that I really was shown what love truly meant. Love is all about giving without expecting much in return. It is beyond materialism or any conditions. Love knows no bounds. It’s about lifting people up and supporting one another. Now that I’ve given you the definitions of courage and love…

Photo by: Talia Schizzano, Tallymark Productions

let’s talk about Piper. Piper is a perfect reflection of courage and love. When Travis and I started dating in 2017, Piper welcomed me into her world with open arms. She made it so easy to love her and brought more happiness and joy to my world than I could have ever dreamed of. She shines so brightly, it’s infectious, and to be around that light, love and positivity brings me nothing but pure enjoyment. She teaches me so much. She inspires me to be the best human I can be. To do my best to lead by example, to show her how to be a strong woman, and to be here for her in every way I can when she needs me to be and even when she doesn’t. I watch her face adversity like it’s nothing. It’s easy to get wrapped up in the daily routine of helping her to live with cystic fibrosis. Drink your Pediasure, take your pills, do your puffers, do your IPV, do your nebulizer…the list goes on…but she never complains, she never minds, and her strength never waivers. Now that’s courage. Take a hard look at the life of a little girl dealing with cystic fibrosis and you’ll know courage. It was only a few short months of getting to know Piper and

Photo by: Lori Griffith


falling in love with both her and her father Travis that I knew I wanted to help the Piper’s Angels Foundation in any way I could. My first step in doing so was registering for the 2018 Crossing For A Cure. Little did I know that I was about to meet hundreds of individuals that would change my life forever. The journey from the time I registered to the moment I stood on that beach in Bimini was some of the most life changing months I have ever lived. From committee members, to volunteers, to crusaders and captains… my life was now full of LOVE, LIGHT, and COURAGE. As I was standing on the beach in Bimini, in the dark, preparing to paddle across the ocean alongside other paddlers, captains, and crew… I looked around. I could feel the intensity, the sincerity of what we were all there to really do…to stand together for a purpose… to be a part of something greater than ourselves. There was something different in the air that night and I guarantee every single person on that beach could feel it. When I think about the crossing…that’s the moment I’m taken back to. It reminisces

through my core and will continue to do so for the rest of my life. That’s what I want more of and I will continue to cross for that reason until I can’t anymore. Accomplishment typically describes an internally motivated goal. The Crossing was motivated by a little girl…Piper. So what does that make completing the Crossing For A Cure? To me…it’s simple. It’s an act of love. Every single person who participated in any form performed an act of love whether they recognize it or not. Now that’s love. I can proudly and confidently say I now know what it means to live a courageous life full of love. My heart will forever go out to all of the crossing Crusaders and those involved. Thank you from the absolute bottom of my heart for supporting my family and I in this epic adventure we like to call the Crossing For A Cure! Photo by: Lori Griffith

See you on the water. With courage, love, and light, — Elizabeth Suit

New

The Craft Of Brewing Meets The Art Of Herbal Health

• Probiotic • 60 calories • 9g of sugar • Vegan • Gluten-Free • Non-Alcoholic

New Fish Friendly Edible Six Pack Rings!

www.BuyTealixir.com 45

Herbal Sparkling Waters 0 Sugar 0 Calorie 0 Caffeine 0 Sodium Available on


Time to Celebrate! Appreciation party


2018

Community Impact & Salt Supply

MEASURABLE OUTCOMES TO DATE DECEMBER 2018

★ Crossing For A Cure event has raised $430,000 to date in support of the cystic fibrosis community and establishing the Piper’s Angels Foundation. ★ Crossing For A Cure event has been featured in USA Today, ESPN, and over 50 media articles online and print, raising awareness and reaching millions of people through traditional and social media ★ Piper’s Angels Foundation and Crossing For A Cure event has donated $22,410 to the Cystic Fibrosis Foundation chapters of Fort Lauderdale and Palm Beach in support of their mission for a cure. ★ Piper’s Angels Foundation has partnered with St. Mary’s Medical Center and BJ’s Restaurants to establish the CF Dining Days Program at St. Mary’s to deliver meals to patients in the hospital.

During my recent vacation to Florida I was so so excited to hear about this organization! Travis helped set up an awesome afternoon for me and my friend on a wave runner and I was impressed with how fast and easy the process was. I was thrilled to get on the water and let the salt water do its thing with my CF lungs. We were screaming and laughing the entire time and 10/10 would do it again! Thanks Travis!! Sarah Boylan, CF Warrior / Salt Supply Program

★ The Piper’s Angels Foundation Urgent Financial Assistance Program has been listed on the national directory for the Cystic Fibrosis Foundation Compass Program. ★ # of CF patients awarded Forever Stoke Scholarships: ★ # of CF participants in Crossing For A Cure:

4

5

★ # of CF participants ‘salt sessions’ in the Salt Supply Program: 150+ ★ # of CF families/patients supported with Urgent Financial Assistance locally and nationally: 30 ★ # of CF families/patients that have participated in the CF Dining Days Program: 5 ★ # of CF families/patients featured on our educational based Epic Love Radio Show podcast: 9 ★ # of CF social workers with access to our assistance in the US: 200 ★ # of views of our “Inspire Every Breath” inspirational video series: 2,000+

Dear Travis, Piper, and Piper’s Angels Foundation, I want to sincerely thank you for the assistance you were able to provide to one of our Arkansas families who has a young teen with Cystic Fibrosis. I know the temporary lodging for this family during the storm power outage was a huge help to make sure she was able to continue her CF care. Thank you again –until a cure is found. Sincerely, Sarah Luz LCSW, CF Social Worker / Urgent Financial Assistance Program

48


Photo by

: Tallym ar

k Produc

tions

Piper

Photo by: Tallymark Productions

CF Warrior Salt Supply Program

Photo by: Tallymark Productions

Ohana Surf Shop

Salt Supply Vendor

JASMINE SINGH

CF Warrior / Urgent Financial Assistance Program

49


2018

Community Impact & Salt Supply

Brett Street CF Warrior Crossing Crusader

Photo by: Lori Griffith

Alexis Conklin CF Warrior Salt Supply Program

Travis & Piper’s Angels, I want to say a big Thank You for all you have done for Tyler and my family. We got the dinner from BJ’s and the food was amazing. Such a nice treat from the hospital food. What you and Piper’s Angels are doing for children with CF is a blessing from God. I’m sure the other CF families you have helped are just as thankful as we are. You are truly doing some amazing stuff to help. Somehow you manage to put a little sunshine in everyone’s life. Travis you are truly a special person and doing some special stuff for us all. Again, Thank you! Look forward to seeing you at surf camp. Much love from us. Mark, Apollonia, Nicolas & Tyler / Dining Days Program Again, Thank you for everything. May God Bless you in everything your doing. We love you and are very thankful for getting to meet you. The Stackpole, Vivona Family / Care Package Program

50

Photo by: Lor


2018

Community Impact & Salt Supply Dear Crossing For A Cure, (Board Members, Participants, Organizers, Volunteers and Everyone else who supports the cause) I want to thank each and every one of you from the bottom of my heart. Words are tough for me to explain the deep gratitude I feel for each and every one who made this event a success. I will remain grateful for the loving, caring, nurturing group of angels that you all are. I wish I had a chance to meet each and every one of the participants. It was a pleasure meeting the ones I did. Thank you again for all that you are and for the wonderful support you have shown to Joe. You are all a Blessing!

Crossing Committee, I have never met such a selfless, impassioned group of people in my life. Thank you so much for all of your time and sacrifices that you have made to make this the best paddle event in the Universe!!! I LOVE YOU ALL! – Cup of Joe

Joe Mitchell aka ‘Cup of Joe’ CF Warrior Crossing Crusader

Cindy Mitchell / CF Mother

Dear Piper’s Angels Foundation, Thank you very much for your donation and ability to help families like us in need. There are already an abundance of expenses as a CF patient and everything helps. We are very appreciative of what you did for us and what you do for others. Thank you!! – The Carallos

Ben Mudge

CF Warrior Forever Stoke Scholarship Recipient Crossing Crusader Photo by: Lenoard Bryant Photography

51

Photo by: Lori Griffith


PRODUCTIONS Talia Schizzano is the Director and Editor of the Crossing For A Cure short film documentary ‘Epic Love’ that was produced by the Piper’s Angels Foundation and premiered at Cinepolis in Jupiter, FL

Epic Love

Film Premiere CINEPOLIS IN JUPITER, FL PHOTOS BY: David Scarola Photography


2018 media

54


55


Social Media Bulletin


Social Media Bulletin

Listen up and tune-in to our

LIVE Epic Love Radio Show!

Each week on Wednesdays at 6pm on W4CY Internet Radio at www.w4cy.com, watch LIVE on our Facebook Page, or listen to playback on iHeart Radio. We feature incredible guests and share inspiring stories of love through action! Promote the positive!

57


Piper’s

paddle party picnic


Storytelling Night STORIES FROM THE CROSSING! THE BREWHOUSE GALLERY LAKE PARK, FL

PHOTOS BY: Lori Griffith, Chasin a Dream Photography


Cucina pre-party celebration PALM BEACH, FL


“Horizon of Hope” Artist Paul Seaman

“Warrior Sunrise” Artist Paul Seaman


2013 TIMELINE

It all started with an idea. Travis, Piper’s Dad was told by Doctors that the Ocean has healing benefits for CF patients. Travis decides he is going to cross from the Bahamas to Florida on a standup paddleboard to raise awareness about Piper’s new medical diagnosis Cystic Fibrosis. Travis had never been on a paddleboard before.

Photo by: Lori Griffith

He builds a small team who love and support him and Piper – the very first Crossing Crusaders and Crew. They had two support boats – Captains Lee Heaton and Brad Nolin with Crew Lori Griffith, Ed Pence, Tony Cinilia and Robert Suit.

PIPER, 5 years old, her first interview about the Crossing. The first Crossing For A Cure logo. $15,000 is raised for the Cystic Fibrosis Foundation.

2017 TIMELINE

Travis envisions an evolution of what The Crossing For A Cure could become and what it would mean to helping people in the Cystic Fibrosis community. He develops and forms The Piper’s Angels Foundation.

The Crossing Crusaders depart Bimini at 3am. It is June and conditions are good.

Piper is 9 years old. Photo by: Tallymark Productions

Photo by: Lori Griffith

The love and support grows and is overwhelming – 34 paddlers, 10 support boats and Captains, a huge number of Crew, volunteers and sponsors to make this Crossing possible. $132,000 is raised for the Piper’s Angels Foundation to benefit CF patients and families.

No Fe w 201 aturin 9M gN ode e lB w oat s!

Members have the exclusive use of a fleet of new boats including center consoles, pontoon & deckboats. Different boats for different activities! At last you can enjoy all the benefits of boating...Without the hassles!

64


A gorgeous sunset before a long night of paddling ahead. A pod of porpoises visits the group as they take their final break before heading off into the darkness.

They depart Bimini at 5pm. It is August and weather conditions were extremely poor, but they are committed to go in honor of all those battling CF everyday.

Photo by: Lori Griffith

Photo by: Lori Griffith

THE FIRST CROSSING CRUSADERS (left to right) Kyle Igneri, Travis Suit, Shane Pompa, Joseph Morel.

They battled 6-8 foot swells, seasickness, vertigo, but chose to continue on.

Photo by: Lori Griffith

Piper and all their supporters welcome them home at the landing in Riviera Beach, FL after they paddled 90 miles. The media coins the term for the Crusaders Piper’s Angels

Time to celebrate this amazing landing.

Photo by: Lori Griffith

Both Travis and Piper are warriors – fighting a battle together and for each other.

Photo by: Lori Griffith

Photo by: Lori Griffith

Father’s Day weekend forever becomes the date of this epic event.

Photo by: Tallymark Productions

They do encounter storms, but were prepared to maintain their perseverance, and make their way.

Photo by: Paulette Martin

The incredible determination of each paddler is amazing. Piper’s Dory takes the entire journey across with Josh Ferris and reminds every CF patient and every Crusader to “Just Keep Swimming”.

TR-1858_Standard_Half_Quest.indd 1

Travis is a Dad who would do absolutely anything for his daughter including cross an entire ocean!

Photo by: Lori Griffith

65

The bells are ringing at the beach landing! Families are excited to welcome the Crusaders home.

Photo by: Lori Griffith

9/28/18 10:01 AM


Love

conquers all HAVING A twelve year old nephew with Cystic Fibrosis (Justin Horton) – this cause & event brought on deep meaning for me. Since Justin’s CF diagnosis at birth I knew that I could never cure CF. Heck, I had never even heard of CF. Since his birth, I have tried to do things that promote awareness of CF & raise money towards assisting the CF community. I will continue to do so. When I first learned of Crossing For A Cure I was so excited to learn more and be a part of it. I eagerly waited until the next Crossing was announced. The decision to participate was one of the greatest decisions of my life. Life changing! Being on the committee & meeting the people I have met has been very special to me. I simply cannot say enough about how I feel about this group of people. Family! I sincerely thank Travis Suit for having the drive & vision to orchestrate this. I love you brother. The Piper’s Angels Foundation is helping move the needle. I encourage all to support it. For those interested in participating or paddling - don’t let fear & uncertainty

cloud your interest. Follow your heart. Do it! If you don’t want to paddle, volunteer! Ask questions. Get involved. Spread the word. You will not regret it. I am in my late 40’s and had very limited experience with SUP. I dove in head first, asked questions, ordered a custom 14 foot stand up paddleboard, had Justin’s signature put on the front, bought the surrounding equipment necessary & started practicing. Along my way, convinced a few others to join the event too! Less than twelve months later, I paddled across the Gulf Stream with an army of angels from all walks of life. Different ages, different skill levels, different ethnicities. The selfless support of each other was heartfelt. It was a thing of beauty on so many

different levels. That weekend in Bimini was electric. There was a positive buzz in the air. Contagious. Friendships were formed. Sharing a room & paddling alongside a friend with CF is something I will never forget. Joe Mitchell – so damn proud of you. EPIC! For many including myself – this was not about competition. Much bigger than that. We all were pulling for each other. Was it challenging - yes. Was it worth enduring – yes! Our brothers & sisters living with CF endure so much more. When I hit that beach – the emotion poured. Something that I will live with for the rest of my days. It was about supporting a meaningful cause & all the CF warriors. Their lives matter. Their struggle teaches us all. Their mark will not be forgotten. Love conquers all. — Tom Horton


2019 REGISTRATION INFORMATION ( ) Â Â? Â?

PARTICIPANT CATEGORIES & PRIZE STRUCTURE COMPETITIVE CATEGORIES* RECREATIONAL SOLO PADDLERS -$250 Registration Fee - Limited to 60 participants - Boat support provided

(Entry fee includes covering the cost of providing fuel, rooms, and Bahamian entry fees for support boat captains). Rec Solo paddlers will be grouped by experience level.

RECREATIONAL TEAMS -$50 Registration fee (Requires securing your own support boat). NON-PROFIT TEAMS - $50 Registration fee. (Requires securing your own support boat). Please inquire about non-profit 50/50 fundraising share.

COMPETITIVE CATEGORIES* -$50 Registration fee (Requires securing your own boat) TOTAL GUARANTEED CASH PURSE: $30,000 | TOTAL POSSIBLE CASH PURSE: $88,000 SUP 14 MEN & WOMEN

(Age Brackets, 18-29, 30-39, 40-49, 50-59, 60-up, prizes allocated to overall winners)

• 1st: $5K • 2nd $3K • 3rd $1K • 4th $500 • 5th $250

SUP UNLIMITED (*Cash prizes assigned

once the category reaches 5 participants)

• 1st: $3K

• 2nd: $2K

• 3rd: $1K

OC-1 (*Cash prizes assigned once the

category reaches 5 participants)

• 1st: $3K

• 2nd: $2K

• 3rd: $1K

OTHER REGISTRATION CATEGORIES* (No registration fees, all event participants including captains, crew, and spotters must register online through Crowdrise by registration deadline).

CAPTAINS & CREW MEMBERS VIRTUAL PADDLERS ($250 Minimum Fundraising)

SPOTTERS (assigned randomly to competition boats for observation of rules)

OC-2 (*Cash prizes assigned once the category reaches 5 participating teams)

SURF SKI (*Cash prizes assigned once the category reaches 5 participants)

OC-6 SPEC (Cash prizes assigned once the category reaches five teams participating, shipping of OC-6 to Bimini provided by Crossing, limited to 9 paddlers)

PRONE STOCK (*Cash prizes assigned once the category reaches 5 participants)

• 1st: $4K

• 2nd: $2K

• 1st: $10K • 2nd: $5K

• 3rd: $1K

• 3rd: $3K

DORY (4 person relay, co-ed optional but not

required. Cash prizes assigned once the category reaches five teams participating, shipping of Dory to Bimini provided by Crossing)

• 1st: $4K

• 2nd: $2K

• 3rd: $1K

BONUS PRIZES FIRST RESPONDERS CHALLENGE

• 1st: $3K

• 1st: $3K

• 2nd: $2K

• 2nd: $2K

• 3rd: $1K

• 3rd: $1K

4-PERSON SUP RELAY (*Cash prizes assigned once the category reaches 5 participating teams) • 1st: $4K

• 2nd: $2K

• 3rd: $1K

2-PERSON SUP RELAY (*Cash prizes assigned once the category reaches 5 participating teams) • 1st: $2k

• 2nd: $1k

• 3rd: $500

MILITARY CHALLENGE

(Police Officers, Firefighters, EMTs, Ocean Rescue)

(Army, Navy, Air Force, Marines, Coast Guard)

$1,000 PRIZE & TROPHY

$1,000 PRIZE & TROPHY

First to cross the finish line. Only competitive paddlers are eligible. The individual must be an active member of a first responders unit.

First to cross the finish line. Only competitive paddlers are eligible. The individual must be an active member of a first responders unit.

Entry Includes: Crossing For A Cure 2019 Event High Performance Shirt - Crossing Crusader 2019 Medal - Event Gift Bag - Food & Beverage Hospitality - Chance to win numerous prizes!

www.crossingforacure.com | travis@pipersangels.org | 561.246.0205 *Please see official event rules on the Crossing For A Cure website. *By registering for the Crossing For A Cure all participants acknowledge they have read and abide by all event rules. They further acknowledge a complete understanding and agreement to the insurance wavier 'hold harmless' in the official rules overview found at www.crossingforacure.com. All participants further consent to polygraph examination as deemed necessary by the event officials.


PIPER’S ANGELS FOUNDATION

Photos By: Tallymark Productions

P.O. Box 1104 Jupiter, FL 33468

Thank You

to our sponsors

Prsrt Std U.S. Postage Paid Permit #1169 Ft. Laud., FL


Turn static files into dynamic content formats.

Create a flipbook
Crossing For A Cure 2018 Recap by cbetz222 - Issuu