Glennon Magazine Fall/Winter 2018

Glennon S S M H ealth C ardinal G lennon Children’s Foundation

glennon.org

Lily: Larger than Life! page 28

Fall/Winter 2018, Volume 37, Number 2

VIEWPOINT

S

ince 1987, it has been my pleasure to host and support the Dierdorf-Pronger Golf Classic. Over the last 32 years, this tournament has raised $5.7 million for the Dan Dierdorf Emergency and Trauma Center at SSM Health Cardinal Glennon Children’s Hospital.

As a Level I pediatric trauma center, designated by both Missouri and Illinois, the center is equipped to handle any type of emergency, any time of day, seven days a week. More than 60,000 children each year benefit from a team of skilled physicians, nurses and other professionals who are committed to providing the highest level of care for everything from asthma attacks to severe traumas and seizures.

In addition to exceptional clinical care, SSM Health Cardinal Glennon is dedicated to the prevention of childhood injuries. Through the Injury Prevention program, specially-trained educators offer a variety of educational opportunities for medical professionals and the community alike, keeping our kids safe at home, at play and on the road.

Funds raised at the tournament have enabled SSM Health Cardinal Glennon to partner with community organizations that also provide valuable safety education to local children and their families. Through their partnership with the West County Safety House, children learn about home safety topics, such as what to do in case of a fire or severe storm. They even get to learn about the tools used by firefighters and paramedics hands-on.

All of this is possible through the generosity of those who have supported the Dierdorf-Pronger Golf Classic over the years, many of whom have either contributed or participated every year since 1987. I also want to express my heartfelt gratitude to Chris Pronger for hosting this tournament with me, and to our sponsors, donors and friends who help make this event a success. I am truly honored to be part of such a great event that makes a difference in the lives of the children of our community.

Dan Dierdorf Board of Governors

Contents Glennon Volume 37 Number 2

Published semiannually by SSM Health Cardinal Glennon Children’s Foundation 3800 Park Avenue • St. Louis, MO 63110

BOARD OF GOVERNORS Most Reverend Robert J. Carlson Chairman Of The Board Brian C. Behrens President James G. Koman First Vice President

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28

James G. Castellano Second Vice President Jack Schreiber Chairman, Investment Sub-Committee James F. Whalen Chairman, Finance Molly N. Cline, PhD Secretary Sandy Koller Vice President, Philanthropy June L. Pickett Assistant Secretary Steven Burghart Hospital President Allen D. Allred Margaret Barrett Galen D. Bingham Cheryl Boushka James G. Brennan Clayton Brown J. Michael Bruno Anthony J. Caleca Julian L. Carr, Jr. Sherri Cliffe William M. Corrigan, Jr. Bob Costas Timothy Danis Dan Dierdorf John F. Eilermann Douglas Fabick Mark Fronmuller Msgr. Vernon Gardin Dennis G. Gipson Kristin Guehlstorf Shawn Hagan Sherlyn Hailstone John F. Hefele Edward T. Hempstead John F. Herber, Jr. Edward D. Higgins Thomas E. Hilton Nicole Holland-Hong

Leslee Holliday Dennis J. Jacknewitz Candace Jennings Rusty Keeley Craig E. LaBarge James B. Lally John D. Lee Bob Leonard W. Dudley McCarter Thomas McMillin Chrissy Nardini Dennis O’Connor Christopher R. Pronger Doug Ries Jerry E. Ritter Sr. Mary Jean Ryan, FSM Farouk Sadiq Shermini Saini Steve Smoot Daniel J. Sullivan Bryan M. Swift David L. Taiclet Gregory J. Twardowski Sumit Verma Raymond T. Wagner, Jr. Todd Weaver Jim Woodcock

ON THE COVER: Lily LaMartina To share a grateful patient experience, a donor story or a volunteer effort, please contact Todd Wise, Interim Director of Marketing, Communications and Media Relations at 314-577-5605 or todd.wise@ssmhealth.com

FEATURES

16 18 24 28 32 34 38 42

18

38 DEPARTMENTS

2

AROUND GLENNON

6

GLENNON GATHERINGS

14

CORPORATE CORNER

Glennon Sunday By the Numbers

Glennon Gallop

A Success for Our Patients!

Sun Run

Second Annual 5k and 1-Mile Fun Run

Lily LaMartina Larger than Life!

Crystal Wagon Awards 2018 Recipients

Dr. Jain

Nutrition Research

Homers for Health Home Run Derby and Season Recap

Telemedicine

Specialty Care for Rural Communities

Find out the latest news

Pictures from recent events

McKelvey Homes

46

GLENNON AMBASSADORS

50

GLENNON KIDS

2018 Ambassador Choice Awards

Jamierson Montgomery

52

PARTNERS in PARENTING

56

GLENNON CIRCLE

58

GLENNON FRIENDS

70

WHERE are they NOW?

Positive Parenting

Become a member today!

Supporting Cardinal Glennon Kids!

Michelle Mitchell, MD

AROUND GLENNON /

FIND OUT THE LATEST NEWS

Polar Express Stops at Cardinal Glennon

T

his year, THE POLAR EXPRESS™ Train Ride at St. Louis Union Station is partnering with Children’s Miracle Network Hospitals of Greater St. Louis (CMN-STL) to raise awareness of the organization’s work and to bring holiday experiences to kids undergoing treatment at CMN-STL’s two member hospitals.

On September 10, THE POLAR EXPRESS™ made a stop at SSM Health Cardinal Glennon Children’s Hospital! Characters from the classic children’s story met and performed for kids.

Santa Claus, his elves, THE POLAR EXPRESS™ chefs and the conductor were all on hand for the special event.

CMN-STL is a nonprofit organization dedicated to raising funds and awareness for SSM Health Cardinal Glennon and St. Louis Children’s Hospital. Since its inception in 1988, CMN-STL has provided over $50 million dollars in support. All of the money raised stays local, equally benefits these two amazing local hospitals and helps them acquire new programs, equipment and facility renovations to meet the needs of area kids.

Upcoming Events Join us for our upcoming events in 2019!

February 2 February 22

Heart & Soul Glennon Style

April 4

Homers for Health Game Ball Relay

May 18

Scoops of Fun

July 25

Ambassador Choice Awards

September 6 September 21 October 12

Glennon Golf Classic Glennon Gallop Sun Run 5k & 1-Mile Fun Run

For more information, call 314-577-5605 or visit glennon.org.

2 • SSM Health Cardinal Glennon Children’s Foundation

2019 Events

January 27, 2019 - Dazzling Divas For A Day Dazzling Divas For A Day is a day to make all little girls feel special. Girls ages 4-12 are invited to join the Miss America titleholders for a day of glitz, pageantry and glamour. Being a Dazzling Diva means getting your hair and makeup done by professional stylists from Belleza Salon, wearing your very own sash, learning a dance routine, receiving your diva crown and more! The girls will enjoy lunch with their new friends and end the day performing their dance routine for their parents!

March 12, 2019 - IHOP® National Pancake Day IHOP will generously give away one free plate of short stacks. In return, volunteers and servers alike will be asking for a donation to be made to benefit Children’s Miracle Network Hospitals of Greater St. Louis.

March 20, 2019 - Dairy Queen® Free Cone Day Customers who visit a local participating location will receive a free small vanilla soft-serve cone just for visiting.

Dairy Queen will be asking for a general donation to be made to benefit Children’s Miracle Network Hospitals of Greater St. Louis.

FIND OUT THE LATEST NEWS

/ AROUND GLENNON

Gift Shop Renovation

U.S. News & World Report Ranks SSM Health Cardinal Glennon in three specialties

U

.S. News & World Report has ranked SSM Health Cardinal Glennon Children’s Hospital in three specialties in the new 2018-19 Best Children’s Hospitals rankings.

SSM Health Cardinal Glennon ranked 35 in Pediatrics: Gastroenterology and GI Surgery, 38 in Pediatrics: Cardiology and Heart Surgery, and 47 in Neonatology.

The 12th annual Best Children’s Hospitals rankings recognize the top 50 pediatric facilities across the U.S. in 10 pediatric specialties: cancer, cardiology and heart surgery, diabetes and endocrinology, gastroenterology and gastrointestinal surgery, neonatology, nephrology, neurology and neurosurgery, orthopedics, pulmonology and urology.

“At SSM Health Cardinal Glennon, our entire team is dedicated to providing exceptional care to all of our patients,” said Steven Burghart, president of SSM Health Cardinal Glennon. “These rankings are proof of the high quality, safe, exceptional care we provide to our patients every day as we live out the SSM Health Mission to reveal the healing presence of God.” “These esteemed rankings showcase the amazing medical care SSM Health and SLUCare physicians provide to children throughout the St. Louis region and beyond,”

said Blake Noyes, MD, interim chief of pediatrics at SSM Health Cardinal Glennon. “The Department of Pediatrics at Saint Louis University is proud to be part of SSM Health Cardinal Glennon’s work as a recognized regional leader in pediatric care.”

glennon.org Fall/Winter 2018 • 3

AROUND GLENNON /

CELEBRITIES GIVING BACK

Celebrities Giving Back Twenty One Pilots Visits Cardinal Glennon!

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fter many video pleas from our patients, the band made a SURPRISE visit to the hospital before their St. Louis concert on October 19, 2018.

Florida Georgia Line’s Drummer Sean Fuller Visits Our Patients

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ean Fuller stopped by the hospital on Monday, September 17 to play drums for our patients. He also shared his message of faith with the crowd and took photos with them afterwards.

Fuller regularly stops by children’s hospitals as a way of giving back to the community.

4 • SSM Health Cardinal Glennon Children’s Foundation

CELEBRITIES GIVING BACK

/ AROUND GLENNON

Cardinals Build-A-Bear Visit

Gateway Grizzlies Visit

glennon.org Fall/Winter 2018 • 5

GLENNON GATHERINGS

Ambassador Choice Awards July 26, 2018 Joseph Schulte Theatre, St. Louis University High School

PRESENTED BY:

Jodi Allen, Rick Gordon

Cassandra Gaddis, Eric Williamson

Juanita Allmon, Janna Webber

Dr. Aline Tanios & family

Glennon Ambassadors pictured left to right: Mitzi Jackson, Missy Sweeney, Cheryl Hayes, Heather Morgan, Jenny Pekny, Amy Wagner

Angela Porter, Asia Porter

Mary & Dr. John Peter

6 • SSM Health Cardinal Glennon Children’s Foundation

Collin Chen, Molly Rozier Chen

Brandon Smith & son Clayton

Bethany Adams & daughter Mackenzie

Kimberly Derque, Kathryn Derque, Hope Cooper, Abbigale Derque

GLENNON GATHERINGS

Scoops of Fun May 19, 2018, The Magic House TRIPLE SCOOP SPONSORS:

GLENNON

Glennon Golf Classic September 7, 2018 Columbia Golf Club, Columbia, Ill. PRESENTED BY: Tim Smith, John O’Brien, Brad Thompson, Armin Muhamedagic

Pat Heinrich, Beckham Bass, Kelli McKee

Pat Komoroski, Rachel Donlan, Sherlyn Hailstone

Chris Meinhardt, Ellyn Rosenblum, Dr. Matt Broom

Bill & Martha Hawn, Steven Burghart

glennon.org Fall/Winter 2018 • 7

GLENNON GATHERINGS

Glennon Gallop September 22,2017 2018 Saturday, September 16, Kräftig Polo Club

PRESENTED BY:

Claire & Michael Todorovich

Dr. Ken Haller, Dr. Matthew Broom

Laura & Brian Behrens

Sandy & Al Koller

Jim & Dana Whalen, Bob & Kim Brinkmann

Tim Danis, Candace Jennings

Michelle & Steven Burghart

Bob & Marcia Leonard

Dr. Robert & Cathy Wilmott, Dr. Katherine Fuh, Dr. Alexander Lin

8 • SSM Health Cardinal Glennon Children’s Foundation

Peter & Susie von Gontard

Charles & Julie Rea, James & Kim Heffner, Ashley & Matt Carr, Melissa & Chris Swank

GLENNON GATHERINGS

Sun Run September 30, 2018 Streets of St. Louis

PRESENTED BY:

glennon.org Fall/Winter 2018 • 9

GLENNON GATHERINGS

Dierdorf Pronger Golf Classic October 15, 2018 Boone Valley Golf Club, Augusta, Mo. PRESENTED BY:

Mike Basler, Jim Mosby, Greg Twardowski, Brian Bjorkman, Dean Mueller

Steven Burghart, Kevin Williams, Gregory Hesser, Mike Shanahan, Chuck Bryant

Trent Toone, Jim Zemlyak, Barrett Jackman, Josh Bledsoe & Jim Marischen

Joe DiMartini, Joey Danis, Jay Williamson, Bill Lochmoeller & Steve Williamson

Robert Gassoff, Jim Holtgrieve, Chris Pronger, Eric Kittner & Michael Murphy

Thom Sehnert, Doug Albrecht, Ozzie Smith, Tom O’Toole & Rick Rames

First Place Team from Anheuser Busch with Chris Pronger

10 • SSM Health Cardinal Glennon Children’s Foundation

Fold

November 17, 2018

The Ritz-Carlton, St. Louis

T H A N K YO U TO O U R S P O N S O R S PRESENTED BY:

LUMEN SPONSORS:

SUNBEAM SPONSORS:

Allen D. Allred

Karen & Jim Castellano

The Julian & Eileen Carr Family Foundation

Andrea & Craig LaBarge

The Pantanella Family

Peggy & Jerry Ritter LIGHT SPONSORS:

Anders, Minkler, Huber & Helm, LLP

Diversified Packaging

BMO Harris Bank

Edward Jones

Murphy Company

Fifth Third Bank

PricewaterhouseCoopers LLP

Greensfelder

Renaissance Financial Corporation

Christner Inc. Commerce Bank, N.A. Deloitte & Touche LLP

Koller Enterprises

HBM Holdings

St. Louis Cardinals LLC Vee-Jay Cement Contracting Company

Proceeds benefit inpatient and outpatient cancer services at The Costas Center at SSM Health Cardinal Glennon Children’s Hospital.

GLENNON CARD

THANK YOU to our 2018 Sponsors PRESENTED BY:

PROCEEDS BENEFIT:

T om & B rigette M c M illin Consul'ng S ervices

GlennonCard.org

#GlennonCard

WE’RE

HOMEGROWN A COMPLETELY INDEPENDENT ST. LOUIS PUBLICATION connecting our community ▶

UM O ALB PHOT card ennon

+ gl TALK TOWN

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A Proud Dazzling Sponsor of the Glennon Card

314.657.2100 | townandstyle.com

LOCAL

, S AV E

L

SUPP O CA L ,

O CA L

ORT L

KIDS

CORPORATE CORNER

McKelvey Homes Shares Its Energy and Passion With Glennon’s Kids

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couple of decades ago Jim Brennan was leaving a meeting of the Cardinal Glennon Children’s Foundation Development Board and wondering if he could contribute the time that the hospital deserved. “I left the meeting early because I had another appointment. I was thinking, ‘I don’t know if I have the time to do all this,’” he recalls.

“As I was walking through the corridor there was a little girl who was 4 or 5 years old, very pale with thin reddish hair. There was a cart behind her, with all kinds of tubes and wires, that a nurse was pushing. This little girl was walking along, smiling. I stopped and talked with her for a while. She was as happy as she could be.”

Brennan asks the nurse how the girl was doing. “The nurse says, ‘Some days good, some days not so good.

Today is a good day.’”

So, Brennan says, “That was when I decided I had the time to do this.”

He has been dedicated to SSM Health Cardinal Glennon Children’s Hospital for more than 30 years. He has long served as a member of the Board of Governors and is a past board president.

When he purchased McKelvey Homes 18 years ago, it immediately became one of the hospital’s corporate friends.

“My involvement goes back to the first Dan Dierdorf Golf Tournament,” Brennan says.

“ You see so many people who are busy.

They are successful in their businesses and they still devote their time.”

14 • SSM Health Cardinal Glennon Children’s Foundation

“Dan was the spokesperson for a company I was involved in. I played in the golf tournament and was asked to tour the hospital.

Coincidentally the tour was the same morning as a development board meeting and I was asked to stop in and meet the people.”

The encounter, he says, “was contagious. You see so many people who are busy. They are successful in their businesses and they still devote their time. I saw all the energy and passion people had for helping children who are less fortunate, who may not have the ability to pay but have illnesses that need to be cured.

We have a small part in raising funds to help those in need.”

He admits that the Cardinal Glennon Foundation’s activities also are enjoyable. “We were in the early stages of planning the first Bob Costas Benefit. It is a lot of fun working on the special events but

the real benefit is helping people who need help.”

McKelvey Homes has 30 employees and builds 80 to 100 houses across the St. Louis metropolitan area each year. The company has sponsored many foundation events such as the Bob Costas Benefit, Glennon Glow, Glennon Gallop and the Sun Run walk and race.

“Many of our employees attend the events and support the hospital,” Brennan says. “We talk about the hospital a lot in our staff meetings.”

Rose & Jim Brennan

“ Many of our employees attend the events and support the hospital... we talk about the hospital a lot in our staff meetings.”

Brennan’s family also has adopted Cardinal Glennon. “Our sons attend and sponsor events.

My daughter-in-law (Elizabeth Brennan) is a nurse practitioner in the Dana Brown Neonatal Intensive Care Unit. Her children are 7, 4 and

1-1/2 years old. If you ask them what their mommy does, they say, ‘She takes care of sick babies.’”

Brennan and many of his staff and family members spent the summer training for the September Glennon Sun Run, which McKelvey Homes sponsored.

“Last year we had my brothers, sisters, sons, grandchildren in strollers and many of our employees,” he says. “This year my wife and I decided to match whatever our employees and friends raise.”

None of Brennan’s children or grandchildren have required hospital care, but he remembers his visit for a tonsillectomy. “It was 1958 or ‘59. I was 6 or 7. The nurse came in with a needle. I was afraid of shots. She said, ‘Don’t worry.

When you wake up you can have all the ice cream you can eat.’”

The hospital has come a long way since then, he says.

“Look at The Costas Center — state-of-the-art technology and exceptional health care. No one is turned away. When a child comes, the question is not ‘How will the family pay?’ but ‘What does the child need?’

“Archbishop Robert Carlson has done a fabulous job of supporting us as our chairman and on Glennon Sunday. Much of our support comes from people of the Roman Catholic faith. We treat children of all faiths, but the Catholic Church built this hospital,” he continues. “The Glennon Foundation does an exceptional job.”

Brennan also admires the St. Louis Cardinals baseball players who volunteer their time to raise funds and encourage patients.

“You can see how excited they are. Often they go to the hospital quietly just to spend time with the kids.”

Former St. Louis Cardinal Matt Holliday, now playing for the Colorado Rockies, continues to be a friend of Glennon kids. “He has given his cell phone number to kids and asks them to call or text when they are feeling down. He takes the call and gives them hope.

“So many people are involved with Glennon. It is inspiring to see kids who don’t give up. They just keep trying.”

glennon.org Fall/Winter 2018 • 15

2018

GLENNON SUNDAY T HANK YO U FOR YOUR S U PPO RT

$439,000

On behalf of the many children and families who will benefit from your gifts, we sincerely thank you for your prayers and support for God’s precious children on Glennon Sunday.

The amount Glennon Sunday raised to date in 2018. Thank you!

John Cardinal Glennon was the Archbishop of St. Louis from 1903 to 1946. It was his vision to see a hospital open to all children in need of medical care.

“Where Faith and Healing Unite”

18 The number of states that contributed to the Glennon Sunday Appeal in 2018.

$6.2 million 16 • SSM Health Cardinal Glennon Children’s Foundation

96% The percentage of St. Louis Archdiocese parishes that participated in collecting donations for Glennon Sunday this year. Thank you!

Believe it or not, this was the amount of money the St. Louis Archdiocese community raised in the 1950s to fund the building which led to the opening of the hospital. That’s equivalent to $54 million today!

2 018 G LE N N O N S UN DAY

193 The number of parishes in the St. Louis Archdiocese.

40

THE NUMBER OF SPEAKERS

for Glennon Sunday 2018!

Will you speak and be a Glennon Sunday ambassador at your parish in 2019?

For more information please contact Colleen Dolnick at 314-678-6626 or colleen.dolnick@ssmhealth.com.

“ Without the support of our Cardinal Glennon family, we would not have been able to make it through this journey with the knowledge we now have, our faith, and most importantly, our sanity.” — Sarah Loness, Mom

200 , 000

The number of children your dollars impact each year at SSM Health Cardinal Glennon Children’s Hospital. We serve all children, regardless of the financial circumstances of their families. In the early days of the hospital when a family could not pay, it was noted in the ledger books as “ODL,” which means Our Dear Lord’s Care.

S AV E T H E D A T E

2019 Glennon Sunday June 2 glennon.org Fall/Winter 2018 • 17

GLENNON GALLOP

Saturday, September 22

KRÄFTIG POLO

CLUB

Dine and | A AWine, SUC CES S Divots FOR O U White R P AHot T I EAffair NTS!

PROCEEDS BENEFIT:

DANIS PEDIATRIC CENTER

PRESENTING SPONSOR:

T. Danis Charitable Trust

AT

GLENNON GALLOP

T

he Sixth Annual Glennon Gallop was held Saturday, September 22 at Kräftig Polo Club in Defiance, Mo. This memorable event, presented by T. Danis Charitable Trust, drew a crowd of more than 850 guests to the VIP party, who enjoyed live music by Pik’n Lik’n, fine wines from A. Bommarito Wines, delicious food from Bartolino’s Family of Restaurants and field-side shopping from a dozen luxury retailers.

This year’s co-chairs were Chrissy and Mike Nardini and Molly and Doug Sansone. Claire and Michael Todorovich served as lunch chairs for the event.

Mike and Chrissy Nardini

Molly and Doug Sansone, Dr. Robert Wilmott, Dr. Matt Broom

Glennon Gallop benefits the Danis Pediatric Center at SSM Health Cardinal Glennon Children’s Hospital, our primarycare pediatrics practice. Named in honor of Dr. Peter Danis, the Center is home to more than 22,000 visits per year. As roughly 85% of the families served by Danis Pediatrics live in poverty, the Center is one of the hospital’s most valuable and mission-focused programs.

After a welcome from Sandy Koller, vice president of philanthropy for SSM Health Cardinal Glennon Children’s Foundation, event cochair Doug Sansone thanked the crowd and spoke of his family’s longstanding history of gratitude

Laura Kaiser, Tim Danis, Dr. Heidi Sallee, medical director of Danis Pediatrics

and support, including numerous family members having served on the foundation board and dedicating their time to volunteering for the hospital and at events.

glennon.org Fall/Winter 2018 • 19

GLENNON GALLOP

GLENNON GALLOP Polo event benefiting Danis Pediatric Center

2018

S c a n to w at c h !

The program also included a tribute to former Glennon Gallop co-chair Steve Orthwein, who passed away earlier this year. Steve held numerous accomplishments as a polo player, but was also a valued supporter of the children Steve Orthwein at SSM Health MVP Trophy Cardinal Glennon.

In his honor, the Steve Orthwein MVP trophy was unveiled, which

will be presented each year to the Glennon Gallop’s Most Valuable Player. This year’s honoree was Del Walton.

Auctioneer Adam Jokisch, assisted by Cardinal Glennon patients Hannah and Hailey Schilly, closed out the program with a live auction and Fund-ANeed, which raised additional support for Danis Pediatric Center, thanks in part to a challenge gift from the Jerry and Judy Kent Foundation.

The Field-Side party continues to grow in popularity each year. This year, Field-Side

20 • SSM Health Cardinal Glennon Children’s Foundation

Glennon Gallop

Field -side Party Wine, Dine and Divots | A White Hot Affair

was full of energy, with a live DJ, a photo booth, food and beverages thanks to Super Smokers, Ice Shack and Major Brands, and a family section with bounce houses and games.

To meet the growing need for programs like Danis Pediatric Center, SSM Health Cardinal Glennon Children’s Hospital relies on the support of our donors, sponsors and friends. This support has enabled Danis Pediatrics to increase their capacity through a second location, enhance care through numerous supportive services and update technology that assists their dedicated

caregivers in providing the very best health care to all children, regardless of their family’s ability to pay.

We wish to thank everyone who contributed to making this event a

success year after year, and congratulations to Team Kräftig on their win! Mark your calendars to join us on September 21, 2019 for the Seventh Annual Glennon Gallop!

glennon.org Fall/Winter 2018 • 21

GLENNON GALLOP

s

S AT U R D AY,

FEBRUARY 2,

2019

T H E C H A S E PA R K P L A Z A R O YA L S O N E S T A S T. L O U I S P U R C H A S E T I C K E T S A T G L E N N O N . O R G / H E A R TA N D S O U L

PROCEEDS BENEFIT: THE DOROTHY AND LARRY D A L L A S H E A R T C E N T E R AT

PRESENTED BY:

GLENNON

COCKTAIL PARTY, FASHION SHOW & CONCERT featuring Erin Bode

FEBRUARY 22, 2019

HILTON ST. LOUIS FRONTENAC

5 - 9 PM PROCEEDS BENEFIT: THE MUSIC THERAPY PROGRAM AT

PRESENTED BY:

SUN RUN 5K/FUN RUN

Sun Run Watch the Video

S c a n to w at c h !

P R E S E N T E D BY:

S U N D AY, S E P T E M B E R 3 0 , 2 0 1 8 Ballpark Village

SUN RUN 5K/FUN RUN

Second Annual Sun Run Crosses the Finish Line for Cardinal Glennon Kids!

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n Sunday, September 30, more than 1,700 runners and walkers of all ages came to Ballpark Village for the Second Annual Sun Run to support the kids at SSM Health Cardinal Glennon! The event was kicked off by emcee Julie Tristan from Billy and Julie in the Morning on 103.3 KLOU, followed by warm-up music provided by Utopia.

Grateful parents Kristyn and Kevin Newbern, whose son Luke is a patient at Cardinal Glennon, led the group in an opening prayer. Last January, Luke was born with congenital heart disease and underwent his first corrective heart surgery when he was just nine days old. For the month that followed, the staff at Cardinal Glennon became a second glennon.org Fall/Winter 2018 • 25

SUN RUN 5K/FUN RUN

SUN RUN 5K/FUN RUN 2018

family. Kristyn remembers Luke’s surgeon, Dr. Fiore, staying up late with them in the NICU to draw diagrams explaining the surgery.

She remembers one of Luke’s nurses, Lauren, arranging his many IVs and monitors so that they could hold him.

Today, Luke is a thriving toddler.

His parents find great comfort in knowing that SSM Health Cardinal Glennon has the technology and people that make it possible for Luke to not only have his heart defects corrected, but also to live a wonderful, healthy life. To express their sincere gratitude and celebrate the exceptional care that their son received, Kristyn and Kevin formed a fundraising team for the inaugural

Sun Run in 2017, and again this year.

Proceeds from the Sun Run benefit the Children’s Fund, which provides unrestricted support needed for the hospital to invest in new or enhanced programs, update technology and facilities and create family-centered, healing spaces where children and their families receive stateof-the-art, compassionate care, regardless of their ability to pay.

“The experience of having your child in a hospital, of counting heart beats, is overwhelming for parents and families,” Kristyn says. “The ability to pay for these expensive, lifesaving procedures, should not be a factor in a parent’s already unimaginable level of stress.”

26 • SSM Health Cardinal Glennon Children’s Foundation

Donations to the Children’s Fund have helped update and expand the hospital’s Imaging Center and Interventional Radiology Suite, renovate the Inpatient Cancer Unit, launch a Music Therapy program and much more.

Following the race, participants were invited to enjoy refreshments and a host of activities for children, including face painting, a soccer kick and hockey shoot, a duck pond and ring toss and the Bubble Bus! Current and former patients were given a cape to wear during the race. “When I see these patients out here it is worth every second of it,” says Anne Gildehaus, Pediatric Nurse Practitioner. “I

SUN RUN 5K/FUN RUN

Congratulations to our Top Fundraising Teams!

Of the 102 teams formed for the Sun Run below are our top fundraising teams:

PwC $10,429 Luke’s Skywalkers

$8,853

McKelvey Homes

$8,264

remember babies that were in the ICU for weeks at a time and I get to come out here and see them dancing and running and playing – it just warms me from head to toe.”

The Sun Run was presented by Walgreens with additional support from The Gatesworth, McAlister’s, Fogarty Services, McKelvey Homes, McBride and Son and our media sponsors, KTVI Fox 2, iHeart Media and the St. Louis Post-Dispatch.

Thanks to these and all of our runners, walkers, donors and supporters who helped make this second annual event another huge success!

MEN’S DIVISON:

OLLIE KOEHLER

WOMEN’S DIVISON:

KATHE MYER

Join us next year for the Sun Run on October 12, 2019!

glennon.org Fall/Winter 2018 • 27

LILY LAMARTINA

Lily LaMartina

S c a n to w at c h !

Lily LaMartina

How are we so lucky?

“Lots and lots of wonderful kids come into The Costas Center every day. Most of them are doing well and it is a really positive, upbeat place. Lily takes that up one or two notches,” says Christopher Hugge, MD, SLUCare physician of pediatric hematology/oncology at SSM Health Cardinal Glennon Children’s Hospital. “Seeing her makes your day a little bit better.”

LILY LAMARTINA

I

“

t is always great to see Lily,” adds Brittanie Shetterly, R.N. “She has a very large personality in such a tiny little body.”

Lily LaMartina is a 5-yearold from a large family who has spent the past two years with an extended family at SSM Health Cardinal Glennon. Now in the last year — the maintenance phase — of chemotherapy, the little redhead confidently marches into The Costas Center for her appointments and immediately begins greeting staff members by name and chattering at them as if she is giving them directions.

“Glennon has been amazing.

How are we so lucky?” says Anne LaMartina, Lily’s mom.

Two years later, Lily returned to the hospital, this time for admission to the pediatric intensive care unit.

“I don’t often see patients as sick as Lily was,” said Dr. Hugge.

“She was in the midst of an overwhelming infection. Her kidneys had shut down, her lungs weren’t working well and she had pockets of infection in her skin and some of her muscles.”

“Most patients who are that sick honestly don’t make it,” Dr. Hugge said. “The fact that she is now well and thriving is pretty remarkable.”

Lily spent weeks in the pediatric intensive care unit while undergoing kidney dialysis and breathing with ventilator assistance. She spent another eight weeks overcoming the infections and recovering her strength.

“ The fact that she is now well and thriving is pretty remarkable.”

Before the beginning

Lily is the sixth child for Anne and husband Jay. Lily’s complex medical history began in December of 2012 at the 20th week of pregnancy when an ultrasound exam found a major heart defect.

There also was a 95-percent probability of Down syndrome, a genetic disorder that results from abnormal cell division early in fetal development. It causes a distinct facial appearance, intellectual disability and developmental delays.

It may be associated with thyroid or heart disease.

Lily visited SSM Health Cardinal Glennon when she was a year old for heart surgery. Her heart defects were corrected by surgeon Charles Huddleston, MD, a professor in the Department of Surgery at Saint Louis University School of Medicine.

The infection arose during treatment for acute lymphoblastic leukemia. Lily began walking with a limp in 2016. Her parents first thought she had pulled a muscle.

Her doctors initially thought she may have had a bone infection.

The diagnosis was cancer.

“Dr. Hugge came to see us everyday even though her chemotherapy was on pause,” Anne says. “I was so frazzled. I think I asked him the same dumb questions every day and every day he acted like they were fresh questions.

glennon.org Fall/Winter 2018 • 29

LILY LAMARTINA

LILY LAMARTINA How are we so lucky?

“He just came to be with us.

That is something about Glennon that you don’t get everywhere. I am now coming to the end, but it was a horrible situation. Sometimes we needed people who would just sit with us and talk. When we needed emotional support it was there.”

She shakes her head while reflecting upon all the challenges Lily has faced. “And she survives it all.”

Complex care

Lily probably received a dozen medications while overcoming her infections and complications, Dr. Hugge says. “She probably received at least 10 medications as part of her chemotherapy. We had to modify her chemotherapy at first to allow her immune system a chance to recover. That is always scary. When you are treating something like leukemia and have a plan in place, you don’t like to deviate from the plan.”

Childhood cancers account for less than 1% of all cancer diagnoses but about 10,590 children under the age of 15 are diagnosed annually, according to the American Cancer Society. Cancer is second to accidental injuries as the leading causes of death in that age group.

Leukemias — cancers of the blood and bone marrow — are the most common childhood cancers and account for about 30% of all cases.

“We see about 60 new patients with malignant tumors each year,” Dr. Hugge says. “Some require surgery only so at any point in time we have about 30 to 40 kids receiving active therapy. About one-third of our kids are leukemia patients which equates to 15 to 20 patients a year.”

There are many treatments available now for patients such as Lily, Dr. Hugge says. “In 1940, leukemia was universally fatal.

“ About one-third of our kids are leukemia patients which equates to 15 to 20 patients a year.”

By 1970, there was a 50-percent chance of survival. Now the chance of survival would be 90 to 95%.”

“The people at Cardinal Glennon are so smart!” Anne says. “They know what to look for, recognize the symptoms and respond quickly and appropriately.”

“There was a lot of good, supportive care from the staff here at Glennon,” Dr. Hugge says.

“Having such a wonderful, extensive

30 • SSM Health Cardinal Glennon Children’s Foundation

family is always helpful, too.”

Anne is thankful for Lily’s older brothers and sisters who assist in taking care of her and boosting her social development. “What a blessing they have been in loving and supporting Lily.”

Early in her treatment Lily sometimes was not her usual bundle of laughter and energy.

“When she was sick she was very sick,” said her nurse Brittanie, who Lily calls “Bee.”

LILY LAMARTINA

out. It makes it possible to do the hard days when you see them when they are smiling and have hair.”

Lily’s good days encourage The Costas Center staff, Dr. Hugge says. “She has made the entire office her personal playground. That is how I know she is doing well — she comes in and takes over and directs people

“It was hard to see her when she was that sick. One time she just sat on my lap and leaned against my chest for an hour. But that is one of the things I love about my job — being able to take care of them in their times of need and knowing the things I do can make them feel better. It might just be holding their hand while their IV is started,” she says.

“It is so rewarding to see kids who were so sick come back five years later. You can’t tell that at one time cancer had them down and

Last summer Lily finally was able to go on her first family vacation to Michigan City, Indiana.

“She got to swim in the water for the first time. She was wearing floaties and had a really good time,” her mother says. “There were a lot of firsts for Lily this summer.”

“ It is so rewarding to see kids who were so sick come back five years later.” to go here and there. She loves to laugh and giggle. You definitely look forward to seeing her.”

“Lily is spoiled by the staff at Glennon,” Anne says. “This place is like family to us.”

glennon.org Fall/Winter 2018 • 31

CRYSTAL WAGON

Awards THE

CRYSTAL WAGON

T

he Crystal Wagon Awards were held Wednesday, September 5 at the St. Louis Club in Clayton, Mo. The 2018 winners were Missouri State Senator Jeanie Riddle, Missouri State Representative Diane Franklin, Damon Harbison, President of SSM Health St. Mary’s Hospital in Centralia, Illinois, Dr. Robert Wilmott, IMMUNO Professor and Vice Dean of Medical Affairs, Board of Governors member Dan Dierdorf and former Homers for Health Chairman Matt Holliday. Dan Dierdorf and Matt Holliday were unable to attend and will receive their awards in the near future.

Jeanie Riddle - Missouri State Senator Republican Senator Riddle represents the 10th Senatorial District. In 2008, she was elected to the Missouri House of Representatives, serving the 49th district.

During her service there, she was elected by her colleagues to serve as assistant majority floor leader for the 2011-2012 session, then served as chair of the rules committee for the 2013-2014 session. Sen. Riddle was elected to the senate in the 2014 general election.

Born and raised in Missouri, Sen. Riddle earned her bachelor’s degree in Education from Drury College in

Springfield and further teaching certification from the University of Missouri. In 1977, she moved to Callaway County, where she taught and coached the community’s youth in the South Callaway School District for 28 years.

Within this time, she was able to gain first-hand knowledge of the education process, as well as an understanding of the needs of Missourians and, most importantly, their children.

Sen. Riddle is a member of the Missouri Farm Bureau, Missouri Retired Teachers Association, Missouri Cattlemen’s Association, Rotary Club of Fulton and a lifetime member of the National Rifle Association.

Dr. Robert Wilmott – IMMUNO Professor and Vice Dean of Medical Affairs Dr. Wilmott has improved the depth and breadth of pediatric services at SSM Health Cardinal Glennon by significantly increasing the number and expertise of faculty.

He has worked with the Foundation to expand the educational, clinical and research services of the hospital by increasing the number of subspecialty fellowships.

He also helped initiate Glennon’s entry into the U.S. News and World Report rankings.

The Department of Pediatrics has consistently been a leading performer at SLUCare since he has been its chairman.

32 • SSM Health Cardinal Glennon Children’s Foundation

He was chosen by the School of Medicine to become the Vice Dean for Medical Affairs – to have oversight of the functions, structures and operations of SLUCare and medical research.

He also facilitates charity care for children at Glennon via the Mission Charity Care Committee as well as personally performing mission care in Central America.

He is also an acknowledged expert in pediatric pulmonary medicine and cystic fibrosis and a past editor of the Journal of Pediatrics.

Despite lucrative offers from other children’s hospitals, Dr. Wilmott has chosen to remain at Glennon because of his dedication to our mission.

Diane Franklin - Missouri State Representative As a Republican, Congresswoman Franklin represents parts of Camden and Laclede Counties in the Missouri House of Representatives. She was elected to her first two-year term in November of 2010.

In addition to her legislative activities, Rep. Franklin is a fifth-generation farmer.

She served on the Camdenton R-III School Board from 1993 to 1999 and served as Board Representative to Lake Career and Technical Center, Parents as Teachers and the Dorothy Blair Scholarship Fund.

She is a lifetime member of the National Rifle Association, National Wild Turkey Federation and Missouri Farm Bureau. She is also a member of the Amateur and Missouri Trap Shooting Associations where she was one of four women on the Missouri State Trapshooting Team.

She also serves as a board member for the Missouri Youth

Sport Shooting Alliance.

An active member of her local church, she is also an involved member of lake area Camdenton and Lebanon Chambers of Commerce, Kiwanis International and Rotary International. Rep. Franklin has served as both President and Vice President of the Lake Masters Area Gardeners.

Rep. Franklin is a graduate of Camdenton R-III schools, a graduate of Ozarks Technical Community College and recipient of their Distinguished Alumni Award. She has also completed course work at Southwest Baptist University and Truman State University.

She is Chair of the Children’s and Families Committee for the Missouri House of Representatives and has sponsored numerous pieces of legislation that has served children across the state through foster care improvements, telehealth and Show-Me Healthy Babies.

Damon Harbison – President SSM Health St. Mary’s Hospital, Centralia, Illinois Damon came to SSM Health Cardinal Glennon in 2011 as executive director for Pediatric and Ambulatory Care and in 2014 was named chief operating officer of our 195-bed pediatric hospital.

In these roles, Damon played a key part in overseeing capital improvement projects ranging from the renovation of the hospital’s Emergency Department and atrium to the redesign of the Pediatric Intensive Care Unit.

Damon also served as interim president between

the retirement of the hospital’s former President Sherlyn Hailstone, until current President Steven Burghart took on the role in March of 2016.

Over the six years that Damon was with SSM Health Cardinal Glennon, the hospital saw a 7% growth in inpatient visits and 22% growth in outpatient visits. But what Damon is most proud of is that the engagement and satisfaction of our 1,680 employees ranks in the 95th percentile.

Damon serves on several boards in our community and is also actively involved in his children’s school.

Dan Dierdorf - Board of Governors Dan has been on the Board of Governors for 32 years. He joined the board in 1986, and in 1987 he chaired the first Dan Dierdorf Golf Classic. The tournament has raised $5.8 million through a combination of cash and in-kind gifts.

The most obvious product of the revenue from the tournament is the Dan Dierdorf Emergency and Trauma Center. Because of Dan’s support, the center is able to serve approximately 60,000 kids each year and is one of the busiest in the region.

Thanks to funds raised from the tournament, the Emergency Department has undergone three major renovations—2003, 2013 and 2017. In 2013, the lobby was redesigned to include a safety treehouse and other activities for children. In 2017, five exam rooms were added and two new triage areas were created, which has

increased efficiency and reduced the time families have to wait in the waiting room.

In addition to the Emergency Department at the hospital, funds from the Dierdorf-Pronger Golf Classic have also supported our partnership with the West County Safety House. This partnership allows us to reach children across the metro area and teach them about various safety topics, including fire evacuation, severe storm/weather and basic first aid, poison control and car seat safety.

Additionally, the Dierdorf-Pronger Golf Classic has supported the Telemedicine Program. Our Telemedicine Program gives SSM Health Cardinal Glennon and SLUCare physicians the ability to talk to and collaborate with doctors in real time in more than 20 partnering hospitals.

This gives them the opportunity to discuss cases, prevent unnecessary transfers or receive immediate care from a SSM Health Cardinal Glennon/SLUCare pediatrician if there isn’t one available at the partnering hospital. glennon.org Fall/Winter 2018 • 33

CRYSTAL WAGON

Congratulations to all the winners!

CLINICAL RESEARCH

Advancing Medicine NICU Clinical Research Under Way

P

ediatric gastroenterologist and hepatologist Ajay Jain, MD, stands in the middle of the neonatal intensive care unit (NICU) at SSM Health Cardinal Glennon Children’s Hospital. An internationally renowned expert on pediatric digestive disorders, Dr. Jain is on the hunt for new ways to provide nutritional support to treat young patients who have a major health complication, such as a gut injury or disorder that prevents a child from being able to receive food or fluids by mouth. This year at SSM Health Cardinal Glennon, Dr. Jain and his colleagues have started human trials to help them identify novel therapies.

“Sick or premature infants might have difficulty eating food by mouth. Other children may have a serious condition that prevents them from absorbing food from the gut,” says Dr. Jain.

“In these cases, we have to use a process called total parenteral nutrition, or TPN, that gives them nutrients through an intravenous line (IV).”

34 • SSM Health Cardinal Glennon Children’s Foundation

regulate the gut environment and are also linked to liver health.

“We are looking at gut growth promoters and molecules that can preserve liver health,” he says. “If you are on regular food, certain key signaling molecules get released in the body, but when you are on TPN, they are not adequately produced.

Complementing this research, we also are looking at the exciting role of gut microbes as they impact TPNassociated injury.”

His laboratory research initially received funding through pilot funding from the SSM Health Cardinal Glennon Children’s Foundation. As he continues to make groundbreaking discoveries and has been able to translate the knowledge gains to help human babies in the NICU, that seed money has grown into more than $1 million in research funding from the National Institutes of Health (NIH), the American Society of Parenteral and Enteral Nutrition and several other local and national funding agencies. This attests to the

In the United States, it is estimated that more than 30,000 people are fully dependent on TPN, with even more requiring TPN for varying periods to sustain survival. blood stream, leading to cascading problems, including significant liver damage that can progress to the point that a patient needs a liver or multi-organ transplant. What is even more worrisome and disheartening is that one of our most precious populations, premature babies, are affected the most.”

For more than a decade, Dr. Jain, who also is the medical director of pediatric liver transplantation at SSM Health Cardinal Glennon and chairs the nutritional advisory committee, has been researching mechanisms that cause gut and liver function to decline as a result of TPN therapy.

In the lab, he and his colleagues have identified molecules that

importance of the research and Dr. Jain’s ongoing contributions to the field.

In the NICU, Dr. Jain’s team is working with medical specialists and families to collect blood and stool samples from babies who are on TPN and who have gut injury. “We want to know if babies also have similar deficiencies of key molecules as noted in our lab research,” he says. “This is very exciting, as such research could lead to a paradigm shift in our understanding of injury secondary to TPN and allow us to develop and treat such patients with engineered molecules and other therapeutics to halt the injury.”

Dr. Jain recently received a prestigious national award from the

CLINICAL RESEARCH

T

PN uses a mixture of fluid, electrolytes, sugars, vitamins, minerals and fats that can be delivered through a vein. It is a lifesaving therapy that is given to thousands of children and adults each year across the country and around the world. Some will need TPN for a short period of time as they recover from an infection or get stronger after premature delivery.

Others, however, will need the therapy over a lifetime because they can’t eat by mouth due to a chronic bowel or gut disorder. In the United States, it is estimated that more than 30,000 people are completely dependent on TPN, with even larger numbers requiring TPN for varying periods to sustain survival.

“It is a lifesaving therapy, yes, but there is a very big downside,” says Dr. Jain. “If food doesn’t flow down to and inside the gastrointestinal tract, the tract seems to get atrophic. It also loses its protective barrier function and allows bacteria to travel to the

American Society for Parenteral and Enteral Nutrition recognizing his novel research. His group also has received accolades and awards from the North American Society for Pediatric Gastroenterology and Hepatology, the American Liver Foundation and the NIH resulting in several scientific industry collaborative partnerships. He also serves in leadership roles on national liver and nutrition focused organizations to advance research and clinical medicine.

Complementing basic science research, SSM Health Cardinal Glennon has a worldclass multidisciplinary team of GI physicians, surgeons, dietitians, nurses, pharmacists and therapists who focus on nutritional management. The Division of Gastroenterology and Hepatology at SSM Health Cardinal Glennon Children’s Hospital is ranked among the best in the nation by U.S. News & World Report.

Dr. Jain says, “The goal, as with any medical research, is to translate our discoveries in the lab into better treatment for patients. That’s what I want to do at SSM Health Cardinal Glennon.”

Are you interested in advancing clinical research at SSM Health Cardinal Glennon Children’s Hospital? To make a donation, contact the SSM Health Cardinal Glennon Children’s Foundation at 314.577.5605 or 1-800-269-0552.

To donate online, visit glennon.org.

glennon.org Fall/Winter 2018 • 35

Luke, Glennon Kid Heart Patient

GIVE HOPE to a child this Christmas W

hile most kids are waking up on Christmas morning opening presents in their homes, remember there are some kids in the hospital who won’t be able to open presents around their family tree. You have a chance to give the best gift of all – hope!

Your gift can make a difference in the lives of Cardinal Glennon kids who won’t be able to come home for the holidays. Just go online and make your gift today at glennon.org and give hope to a child this Christmas.

GIVE TO GLENNON at glennon.org

Meet Averi. Her story began when her parents learned through a prenatal ultrasound that they would have twins, but Averi would have a combination of serious heart defects along with a rare Chromosomal deletion causing multiple life-threatening illnesses.

Since birth, Averi has undergone multiple surgeries which include five cardiac surgeries, four cardiac caths, three eye surgeries, two major abdominal surgeries that removed three feet of her small intestine and countless other procedures.

At age 4, tests determined Averi had another serious health hurdle — hypogammaglobulinemia — an immune deficiency caused by low immunoglobulin antibody levels in the blood. The condition requires her to visit the infusion center at SSM Health Cardinal Glennon Children’s Hospital for monthly treatments to keep her infection free.

Most recently, Averi has been diagnosed with Peutz-Jeghers syndrome, which allows polyps to grow quickly in the intestines. Averi will need lifelong surveillance to ensure no further damage is done to her abdomen, and she relies on a multi-disciplinary team at SSM Health Cardinal Glennon to monitor her.

Glennon gave me “a chance to cheer! ” — Averi Glennon Kid & Cheerleader

GLENNON GIVES

passion

GIVE TO GLENNON at glennon.org

Another Successful Year of Helping Kids!

Our seventh year of Homers for Health has wrapped up, and it was another great year for the kids at SSM Health Cardinal Glennon Children’s Hospital!

Matt Holliday and his wife Leslee began Homers for Health in 2011 to support the patients and families of SSM Health Cardinal Glennon.

2018

PRESENTED BY:

HOMERS FOR HEALTH

Steven Burghart, Sandy Koller, George and Vicky Eblee, Shawn Anderson

T

hanks to the support of our presenting sponsor, Heartland Coca-Cola, we collected pledges from 27 states and Australia!

Proceeds from this year benefit the Children’s Fund, which meets the immediate needs of the

hospital. Funds raised helped us open our new inpatient cancer unit, which is decorated in a beach theme to complement the underwater-themed Costas Center.

We’d also like to thank our additional sponsors, Phillips 66, Petro-Mart, Mach 1 and FastLane stores, Alberici Healthcare Constructors, The Gatesworth, Fabick Cat, Dierbergs and Johnny Mac’s Sporting Goods. And thanks to all the support we get from our media sponsors throughout the year, Fox Sports Midwest, KTVI Fox 2, KPLR 11, FM NewsTalk 97.1, NOW 96.3, KSHE 95 and the St. Louis Post-Dispatch.

On September 12 we had our sponsor appreciation day at Busch Stadium as the Cards faced the Pittsburgh Pirates.

Shawn Anderson, Area Sales Manager for Coca-Cola, threw

out the first pitch and presented a check to the hospital for $100,000.

Petro-Mart also presented a check in the amount of $30,000 for all their store collections this season.

To all the new donors and donors who come back year after year, thank you for your continued support of Homers for Health and K’s for Kids. We are looking forward to another exciting season in 2019!

HOME RUN DERBY CHAMPIONSHIPS Matt Carpenter was honored to lead the program as chairman, along with his 2018 co-chairs Jedd Gyorko, Adam Wainwright and Tyler Lyons.

They came out to the Home Run Derby on Friday, May 4 and helped kids in the batter’s box while they each took a turn hitting the wiffle ball.

glennon.org Fall/Winter 2018 • 39

HOMERS FOR HEALTH

Homers for Health ANOTHER SUCCESSFUL YEAR OF HELPING KIDS!

2018

“Being able to go into Cardinal Glennon and spend time with a child and their family who are struggling has been inspiring for me on many levels,” says Carpenter.

“You would never know what they are going through by their smiles on their faces.”

S c a n to w at c h !

Thanks to the International Association of Firefighters Local 2665 for helping to barbecue hamburgers and hot dogs Home Run Derby donated by Dierbergs. A huge A big thanks to the forty five thanks to the City of St. Louis for area schools who participated waiving our rental fee and spraying in Homes for Health fundraising the fields. We also are grateful to activities, raising $35,029.

Heartland Coca-Cola for donating the beverages, Johnny Mac’s Sporting Goods for donating 45 schools participated in Homers for the T-shirts and the Gateway Health fundraising activities, raising Squad for bringing out Star $36,381 for Cardinal Glennon kids.

Wars characters in honor of Below are schools that raised $1,000 Star Wars Day. or more.

The Vianney baseball Hancock Elementary School............$2,334.18 team came out to help with Holy Infant Catholic School.............$2,045.00 the Derby on their day off Sacred Heart..........................................$1,837.00 school. “They spend so much St. Paul Catholic School.....................$1,824.90 time on the baseball field Our Lady of Lourdes School............$1,466.00 it is nice for them to get Most Sacred Heart School................$1,193.45 together in another setting,” Douglas Elementary............................$1,150.00 says varsity baseball coach St. Vincent de Paul Scott Brown. “It’s also nice to Catholic School (Perryville)........$1,128.66 give back to the community Brennan Woods....................................$1,121.00 as well. Cardinal Glennon Robinson Elementary.........................$1,100.00 does a great job in the St. Immaculate Conception of Louis area and any little bit Dardenne Catholic School...........$1,052.30 we can do to help them out Stanton Elementary............................$1,050.00 is great for us.”

St. Joseph Cottleville..........................$1,043.00 St. Gertrude School.............................$1,006.00

40 • SSM Health Cardinal Glennon Children’s Foundation

HOMERS FOR HEALTH

2018 HOME RUN DERBY

CHAMPIONSHIPS Thank you to all the schools who participated in helping Cardinal Glennon Kids!

Hancock Elementary School

Stanton Elementary

(Old Monroe)

Holy Infant Catholic School

St. Joseph Cottleville

St. Justin Martyr School

Sacred Heart

St. Gertrude School

St. Patrick School (Wentzville)

St. Paul Catholic School

Our Lady of the Pillar School

St. John The Evangelist

Our Lady of Lourdes School

St. Margaret of Scotland School Lovejoy Elementary

St. Francis of Assisi

St. Raphael School

Most Sacred Heart School

Mascoutah Middle School

Douglas Elementary

St. John the Baptist Catholic School

St. Vincent Elementary School Brennan Woods Elementary Robinson Elementary Immaculate Conception of Dardenne Catholic School

Christ, Prince of Peace Catholic School

St. John Neumann Catholic School Sts. Joachim and Ann Catholic School Our Lady School St. Joachim and Ann Catholic School

St. Joseph School

Holy Rosary Catholic School

Point Elementary School

St. Joseph School

St. Mark Catholic School

St. Theodore Catholic School

Good Shepherd School

St. Ambrose Catholic School

St. Rose of Lima

Saint Mary Magdalen Catholic School

St. Alphonsus School

Christ The King Catholic School

Immaculate Conception

Abiding Savior Lutheran School

Annunziata Learning Center Parkwood Elementary School

To view photos or make a gift, visit glennon.org/h4h-derby If your school would like to participate in 2019 Homers for Health fundraising activities, please contact Ryan Jennings, Community Outreach Coordinator at 314-678-6622 or ryan.jennings@ssmhealth.com.

TELEMEDICINE

Using a telemedicine robot, Ayoob Ali, MD, assists Tracy Mensing, RN, and Jacqueline Kunz, NNP-BC, in examining a patient at St. Joseph’s Hospital in Breese, Ill.

TELEMEDICINE

Bringing the Human Touch of Pediatric Specialty Care to Rural Communities “I had no idea any hospital had that kind of connection,” says Desirae Bollinger, who gave birth to a son at Ste. Genevieve County Memorial Hospital in 2016.

William was born with his umbilical cord circling his neck. His blood volume was half of normal. Immediately after delivery he stopped breathing. “He was without oxygen for a time,” his mother says.

TELEMEDICINE

A

yoob Ali, MD, a neonatologist at SSM Health Cardinal Glennon Children’s Hospital, joined William’s doctors through a telemedicine robot equipped with audio, video and monitor connections. Ali examined William and watched his vital signs while guiding doctors in Ste. Genevieve through resuscitation and stabilization.

William, now 2 years old, “has zero effects from his trauma at birth,” his mother says. “He has

of telehealth services. “We have so much knowledge and research background here that we can share with satellite hospitals. It costs them nothing to partner with us.

We do it because we want the best outcomes for their patients.”

The most sophisticated telemedicine robots cost up to $50,000. Simpler technology is used for some consultations, such as with social workers and dietitians.

“Telemedicine with enhanced video capabilities has been available for only five or 10 years,” Dietz says.

“Pediatric hospitals have been the earliest adopters because there are fewer pediatric specialists to care for patients, especially in rural communities.”

glennon.org Fall/Winter 2018 • 43

TELEMEDICINE

met every developmental milestone and some well before expected.

If we didn’t have telemedicine, my baby would have died.”

Thanks to the support of our generous donors, SSM Health Cardinal Glennon began developing a telemedicine network across eastern Missouri and southern Illinois in 2012. The network shares the expertise of hospital subspecialists with providers who rarely encounter unusually acute cases.

The growing network now provides maternal-fetal, neonatal, emergency medicine and other services at 52 sites in hospitals and clinics, says Mathew Dietz, manager

TELEMEDICINE

TELEMEDICINE Bringing the Human Touch of Pediatric Specialty Care to Rural Communities Side by side

“About 500 babies are delivered each year at HSHS St. Joseph’s Hospital in Breese, Ill., but few present with high risks,” says Serra Morton, RN, MSN, director of women and infants at St. Joseph’s Hospital, an affiliate of the Hospital Sisters Health

The telemedicine robots are six-foot-tall rolling carts that carry a high-definition monitor, microphone, speaker and a camera that can pan, tilt and zoom to enlarge images up to 12 times.

The camera is controlled remotely by the consulting physician.

Stethoscopes, ultrasound probes

The telemedicine robots are six-foot-tall rolling carts that carry a high-definition monitor, microphone, speaker and a camera that can pan, tilt and zoom to enlarge images up to 12 times.

System. “It is difficult for us to be completely comfortable in caring for those newborns. We consult with the neonatologist at SSM Health Cardinal Glennon anytime there is a situation that is not normal. Telemedicine has been a blessing to our moms and our nurses.”

and other instruments can be connected to the robot. SSM Health physicians can consult through computers at their hospitals, homes or portable telephones.

As the physician in St. Louis observes the smallest details in the patient’s room, the distant staff sees his or her face on their video screen as if they are working side by side.

44 • SSM Health Cardinal Glennon Children’s Foundation

“I can see how the baby is breathing, what the vital signs are.

I can look at the ventilator settings and see how the chest is moving.

I can see the baby’s color. This is critical information,” says Ali, also director of telemedicine services in the Dana Brown Neonatal Intensive Care Unit at SSM Health Cardinal Glennon and an associate professor of pediatrics at Saint Louis University School of Medicine.

A day earlier Ali assisted in the delivery of a baby at 27 weeks’ gestation at Heartland Regional Medical Center in Marion, Ill., where 643 babies were born last year.

“We had a phenomenal outcome using telemedicine. We do not typically care for a baby that small,” says Terri Pursell, MSN, RNC, director of maternal-child services at Heartland.

As the mother went into premature labor, “We had enough time to dial into the robot. Dr. Ali was waiting and was able to guide us through the delivery. The nurses said having him present created a sense of calmness that was just amazing,” Pursell says. “It was a Godsend.”

Ali monitored the delivery in detail — the vital signs monitor, an intravenous line placement, the color of the baby’s skin and the carbon dioxide detector on the breathing line were clearly visible.

“I could clearly see that the child was successfully intubated.

You could see his leg had good circulation,” he says.

“Acute situations are not everyday happenings at these hospitals,” Ali says. “I cannot touch the patient but I can guide the staff.

They do the work. People are so happy that things work out — I tell them that’s because they did an excellent job.”

While telemedicine often assists patients who will be admitted to SSM Health Cardinal Glennon, about 30% of neonatal and emergency cases have not required transport.

TELEMEDICINE

Mathew Dietz, manager of telehealth services

“There are times when our physicians consult with Cardinal Glennon and decide the patient can stay locally. That is a huge patient satisfier,” says Erin Kochan, manager of telehealth at HSHS St. Elizabeth’s Hospital in O’Fallon, Ill. “It is nice to have the backup of a neonatologist at a tertiary care center like Glennon,” says Debbie Martin, NNP, neonatal nurse practitioner at St. Joseph’s Hospital in Breese. “They can tell us when we should consider transfer and when they feel comfortable with us keeping the baby.”

Clinic visits, too

Routine consultations and examinations will become the most common application of telemedicine links with physicians and nurses at smaller hospitals, Ali says. “If they are concerned about the baby’s heart size or hear a heart murmur, they can call us.”

These consultations have become routine at Heartland, says Pursell. “Telemedicine adds another level of knowledge. It is amazing to be able to offer that to our patients.”

Office visits with subspecialists are part of the telemedicine program. Robots allow maternalfetal specialists in St. Louis to participate in ultrasound examinations of pregnant moms.

Radiologists and emergency physicians can read X-rays online.

Pediatric pulmonology is available at SSM Health St. Mary’s Hospital in Jefferson City, Mo., Dietz says. “Mom doesn’t have to take off work, take the child out of school and drive two hours to St. Louis for a 15-minute visit. She can go to her hospital in Jefferson City, where a nurse is trained to connect to the pulmonologist through telemedicine.”

“Mom doesn’t have to take off work, take the child out of school and drive two hours to St. Louis for a 15-minute visit...”

By the end of 2019, the SSM Health Cardinal Glennon Telemedicine Program plans to offer a myriad of new pediatric services to hospitals and outpatient clinics, he says. Patients will be able to visit some providers through their home computers.

Some of the network’s satellite hospitals will become telemedicine providers to their own communities, Dietz adds. “Once you have the equipment, the sky is the limit.”

Hans C. Driessnack, chief operating officer at Heartland, predicts a tiered system of hospitals connected through telemedicine.

First will be rural hospitals with basic services, such as internal medicine and general surgery. In the middle will be regional medical centers, such as Heartland, that offer more specialized services.

In larger cities will be academic medical centers with hospitals, such as Cardinal Glennon, that have very niche pediatric specialties.

“There aren’t enough patients to support those specialty services in a hospital like ours,” Driessnack says. “Telemedicine is the conduit that brings those specialists and a continuity of better care to the rural communities of our country.” glennon.org Fall/Winter 2018 • 45

GLENNON AMBASSADORS

NOMINATE YOUR CAREGIVER!

A M B A S S A D O R C H O I C E A W A R D S • J U LY 2 5 , 2 0 1 9

Help us celebrate and recognize our caregivers!

This special “Oscar-like” evening recognizes the people and the qualities that are exceptional in the eyes of our families.

• Ambassador Choice Honorees are selected

• To make a nomination, visit

from submitted nominations but will not be

GlennonAmbassadors.org or

announced until that evening

return a written nomination card to

(just like the Oscars!).

• ALL nominees will receive recognition, a commemorative pin, complimentary admission to the event, a swag bag and more!

one of the boxes in the hospital.

• For more information, call Grateful Patient Coordinator Laura Wulf at 314-678-6635 or email at laura.wulf@ssmhealth.com.

•C omplete your nomination by April 30 to count toward our 2019 event.

GlennonAmbassadors.org

2018 ACA’s

Scan to watch!

2018

July 26, 2018

2018 AMBASSADOR CHOICE AWARDS G R AT E F U L FA M I L I E S R E C O G N I Z E T H E E X C E P T I O N A L C A R E O F S S M H E A LT H C A R D I N A L G L E N N O N C A R E G I V E R S

“Our parents created this night with the Foundation as a vehicle to recognize and celebrate the heart and care that happens at Glennon – not necessarily the clinical care – but the intangible stuff – the ‘presence’ if you will - that makes Cardinal Glennon such a special place,” says Laura Wulf, grateful patient coordinator at SSM Health Cardinal Glennon Children’s Hospital. “It’s an important layer in the process of healing to be able to express gratitude. We are blessed that our parents and former patients support the hospital in so many ways, but this event is the most visual and public way for them to express what inspires their gratitude in the first place” The Seventh Annual Ambassador Choice Awards were presented July 26 among roughly 500 grateful family members, hospital staff and

friends in the Joseph Schulte Theatre at St. Louis University High School.

“Throughout the year, we encourage our families to let us know, ‘Who or what made a significantly positive difference during your stay?’”

Wulf says. “Their testimonies are submitted as ‘nominations’ for this event, and ALL nominees enjoy an evening that celebrates their careers and commitment to exceptional care.”

All ACA nominees are celebrated in true “Oscar-like” fashion as part of the event evening. They each receive their own “Hollywood star,” swag bag, special recognition pin and envelope that includes their nomination.

“After red carpet photos and a fun cocktail party with heavy hors d’oeuvres, attendees enjoy a unique and intimate program in the theater. Kleenex is not required, but encouraged,” Wulf chuckles.

“We recruit several families to share their testimonies on video to create a ‘movie’ for all in attendance. The snippets of this movie are designed

to collectively represent what matters to ALL of our nominating families and families at the hospital.

No one knows whose stories will be featured that night. Those caregivers are presented with additional ‘Oscarlike’ crystal awards.

“Our Foundation team is so proud to join our grateful families in helping this event come together.

All of our staff deserve recognition for their never-ending commitment,” says Sandy Koller, vice president of philanthropy at SSM Health Cardinal Glennon Children’s Foundation.

“As a Foundation, we are used to fundraising events. This event is different, but just as important.

The compassion, impact and gratefulness expressed through these public testimonies is both cause for celebration and a source of inspiration for anyone who is connected to our hospital.”

The 2018 Ambassador Choice Award recipients are listed on the following pages.

A R E Y O U A G R A T E F U L F A M I LY M E M B E R ?

If you wish to share your story, express gratitude to your caregivers at SSM Health Cardinal Glennon, volunteer, fundraise or support other families, we invite you to be part of Glennon Ambassadors. Ambassadors support the hospital at their own comfort level, interest and schedule. For more information, visit GlennonAmbassadors.org, or contact Laura Wulf at 314-678-6635 or laura.wulf@ssmhealth.com.

2018 AMBASSADOR CHO DR. PETER DANIS AWARD FOR PHYSICIAN LIFETIME ACHIEVEMENT Ellen Wood, MD

“She openly values the input of the entire team and treats each member with dignity. She relates to families with sensitivity and concern, and is stretching me to be a better version of myself.” -Anne Beck, MD Dr. Ellen Wood practiced at SSM Health Cardinal Glennon Children’s Hospital for 34 years. For over 20 years, she served as the director of the Division of Pediatric Nephrology as well as director of the dialysis unit and medical director of transplantation at Saint Louis University and SSM Health Cardinal Glennon.

HERITAGE AWARD FOR LIFETIME ACHIEVEMENT Mary Kay Brasken, MSW, LCSW

“Mary Kay will often be the only person on our team that a family can confide in to share what’s going on at home that has direct impacts to their care. She does that while developing a genuine rapport built from care and concern. She conscientiously works to develop a meaningful relationship with our families so she can be a liaison and is therefore an invaluable member of our team.” -Nisha Mangalat, MD Mary Kay Brasken has been a social worker at SSM Health Cardinal Glennon Children’s Hospital since 1978 and has 40 years of service among various different service lines. Mary Kay has been the recipient of several awards at SSM Health Cardinal Glennon, including multiple “SSMile awards,” the “Pat-On-The-Back Award,” the “Spirit of Glennon Award” and the “Kids Rule Award.” She was one of 13 recipients of SSM Health Cardinal Glennon’s “Best of the Best” award in recognition of acts of selflessness and support of the hospital’s values and mission, and was also a 2012 Mission in Motion nominee.

AMBASSADOR CHOICE HONORS RECIPIENTS Louisa Salvin, BA, RN

“She doesn’t rest until ‘her kids’ are taken care of the way she would care for them. If that means getting on the phone to argue with the medical supply company for us, because we as parents are so mentally exhausted from doing it for hours a day for several weeks, then that’s what she does. She will advocate for her kids to get them exactly what they need. If that means showing up at a daycare or school to speak with administration or teach a nurse or teacher how to catheterize your child, then that is exactly what she will do. It’s just in her heart.” -Kathy Schriver Louisa Salvin is currently the clinical nurse for urology and has worked as a nurse at SSM Healh Cardinal Glennon Children’s Hospital for 39 years.

Justin Josephsen, MD

“With Dr. Josephsen we felt like we had an ally, like there was someone who recognized what we were going through. He asked for our opinions in making decisions and helped us to feel like we had some control over the situation, which as a parent is something you desperately need when your baby spends his first three months of life in a hospital.” -Laura Muckensturm Dr. Justin Josephsen has been a neonatologist at SSM Health Cardinal Glennon Children’s Hospital for four years.

He is certified by the American Board of Pediatrics in pediatrics and is also an assistant professor of pediatrics in the Division of Neonatal-Perinatal Medicine at Saint Louis University School of Medicine.

Michelle Ohlsen, MSN, RN

“We lived in the PICU for three months. Having a complex medical child is tough, and I needed support just as much as he did. I am complimented a lot about how well I take care of Barrett’s medical needs and it has to be known that came from Michelle. The doctors and other medical staff were confident in sending Barrett home with me, without any nursing, because of the skills I learned from Michelle.” -Monica Earnest Michelle Ohlsen is a nurse in the pediatric intensive care unit and has been at SSM Health Cardinal Glennon for six years.

Videos and a photo gallery of honorees as well information on nominating caregivers for the 2018 awards can be viewed at GlennonAmbassadors.org.

I C E AWA R D R E C I P I E N T S AMBASSADOR CHOICE HONORS RECIPIENTS (cont.)

Kaveer Chatoorgoon, MD

“Every time he came in he sat next to us and never stood there looking down on us. He supported my husband and I in the decisions we made, whether they were his first choice or not. He not only took incredible care of my daughter, but made this mom feel like she could breathe.” -Candace Detmer Dr. Kaveer Chatoorgoon is a pediatric surgeon at SSM Health Cardinal Glennon Children’s Hospital and an assistant professor of pediatric surgery at Saint Louis University School of Medicine. He is board certified in pediatric surgery.

Cassie McAllister, M.Ed, CCLS, CIMI

“One of Cassie’s biggest focuses is helping NICU families to embrace ‘their story.’ Our anticipated story certainly never included the loss of a baby and 162 days in the NICU. But Cassie helped us to realize that this IS our story, nonetheless, and that we cannot change it. We owe so much to Cassie for helping us to realize our strength and will never forget her kindness.” -Heather Tegeler Cassie McAllister is a child life therapist and has been with SSM Health Cardinal Glennon Children’s Hospital for two years.

Mary Grace Dunham, BSN, RN

“The pain of having a sick child is very tough and unsettling. The pain of losing a child is only bearable through faith in God. To honor a bereaved mother’s child brings healing to a shattered heart. Through her efforts, donor families who have spent numerous days and nights in the hospital, can continue to feel connected to Cardinal Glennon. We know that Cardinal Glennon not only cared for our child, but is still concerned with our well-being.”

-Cheryl Hayes Mary Grace Dunham is a nurse in the pediatric intensive care unit and has been at SSM Health Cardinal Glennon Children’s Hospital for 14 years.

Donna Marshall, BSN, RN

“Donna has been caring for our son Brendan for over 17 years. We consider her an extended member of our family. She has seen us through all the highs and lows that follow a heart transplant. She has always gone above and beyond what was needed, and there was NEVER a time when she failed to provide exceptional care to Brendan and to our entire family.” -Susan Woods Donna Marshall is a nurse in the cardiology department and has worked at SSM Health Cardinal Glennon Children’s Hospital for 42 years.

Anu French, MD

“Dr. Anu French has fundamentally improved the health and well-being of my daughter, which has now helped her identify as a strong healthy kid that has a positive future ahead of her. For her compassion, her commitment to integrative and holistic medicine, for taking insurance and for her service to children and healing of my daughter...I owe her an unpayable debt.” -Mary McMurtrey Dr. Anu French has been with SSM Health Cardinal Glennon Pediatrics for 17 years. She is double board certified in pediatrics and integrative medicine.

Cindy Jansen

“At 29 weeks Cindy had to tell us one of our baby girls had passed away. She continued to check on us while in the hospital until we delivered our baby girls at 37 weeks. We knew it would be an emotional roller coaster ride to bring one baby home and have a funeral for another. Cindy’s encouragement and friendship pushed me through.” -Shannon Smith Cindy Jansen is an ultrasound sonographer with the St. Louis Fetal Care Institute and has been with SSM Health Cardinal Glennon Children’s Hospital for nine years.

Gordon Gale, MD

“When my condition had continued to worsen, he was secure in himself to be completely honest with me. He was totally transparent and helped me accept what may come. He reminds me of the physician I continue to strive to become every day.” -Luke Weaver, MD Dr. Gordon Gale has been with SSM Health Cardinal Glennon Children’s Hospital for 36 years. He is board certified in pediatrics and pediatric hematology/oncology. He is a professor in the department of pediatrics and Division of Critical Care Medicine at Saint Louis University School of Medicine, and he currently specializes in sedation and pain control for medical procedures performed on children.

SAVE THE DATE • Ambassador Choice Awards • July 25, 2019

Visit GlennonAmbassadors.org for more details or to nominate your caregiver!

COMPLEX CARE

GLENNON KID

Jamierson

“I thank God for the people he places in your life.”

“From a mother’s standpoint — and you know mothers have a biased opinion — I think he is doing great. I think the Lord aligned us with the right doctors and the right people at the right time. They are my family,” says Jamie Montgomery, the mother of 1-year-old Jamierson.

Jamierson was born on August 14, 2017, with a “significant medical history,” says Elizabeth Rhyne, pediatric nurse practitioner and Jamierson’s primary contact in Danis Pediatric Center at

SSM Health Cardinal Glennon Children’s Hospital.

“He has trisomy 21 Down syndrome. He had club feet, congenital cardiac disease that required surgery, developmental delay, some laryngomalacia, hypotonia, obstructive sleep apnea, constipation and a lot of other issues,” Rhyne says.

Laryngomalacia is a larynx abnormality that allows the airway to collapse when air is breathed into the lungs. Hypotonia is decreased muscle tone.

P

renatal genetic testing and an ultrasound had identified Jamierson’s Down syndrome and tetralogy of Fallot, a complex heart defect, so he became a patient at SSM Health Cardinal Glennon before his birth.

Jamie visited the St. Louis Fetal Care Institute for weekly ultrasounds.

After Jamierson was born at SSM Health St. Mary’s Hospital, primary care physicians from Danis Pediatrics began visiting him there.

Nancy McEuen, family navigator for the Bridge4STL program at Danis, also visited and became one of Jamie’s support systems. The program coordinates partnerships between pediatricians, obstetricians and social workers to maximize supportive care for at-risk parents.

“If I did not have Bridge4STL and the people at Danis, I don’t know what I would do,” Jamie says.

“I am a single parent and have no family. We have been here for more than 100 appointments since Jamierson was born. I always thank God for the people he places in your life.”

Jamierson’s complex issues have guided him to many specialists, Rhyne says. “He has seen cardiology, genetics, the feeding team, otolaryngology, orthopedics, gastroenterology, physical and occupational therapy.”

He has undergone heart and foot surgery. He also is enrolled in First Steps, a Missouri program that provides early intervention services to children who have disabilities or

developmental delays.

Jamierson’s Glennon family has given him more than medical and surgical care, his mother says. “They sat with me through labor and all the way through his surgeries. His heart surgery lasted six hours. You don’t know how grateful I am. I don’t know what I would have done without them being there for me.”

Jamie became a mother at the age of 37 and often jokes that

although it is difficult to know about a child with trisomy 21. Their mental and physical abilities might have some limitations. We are watching his development very closely to maximize his potential. Every time I see Jamie I tell her, ‘You are doing such a great job. He is going to be great because of you.’”

One thing Jamierson doesn’t lack is energy, Jamie says. “He goes a mile a minute from 5 a.m. until he goes to bed at 8 p.m. I try to figure out creative things to do all day to keep him busy. If he’s not playing we’ll read. And they have given me therapies we can do at home.”

Jamierson also has taken a liking to the music his mom plays for him.

“He loves Beethoven and Chopin. He sings along with it -- ‘La, La La!’” “They tell me he is doing so well because of the way I love on him,” Jamie says. “I am not working now so I can’t give him a

“I am a single parent and have no family. We have been here for more than 100 appointments since Jamierson was born. I always thank God for the people he places in your life.”

“Jamierson is my first child and my last. I have no clue what I am doing!

I’m just winging it.”

Her devotion, however, is a key to Jamierson’s progress and future development.

“His care, even making appointments, can be very complex,” Rhyne says. “Last week they were here three times because they couldn’t get appointments on the same day. Jamie has no transportation so she relies on medical transport to get her here and get her home. She doesn’t miss appointments unless her ride doesn’t show up.

“It has been such a victory for mom to watch him advance and grow. He is doing very, very well because of her.”

As Jamierson grows up, Rhyne says, “I think he will do quite well,

lot of materialistic things, but what matters now is the love he is getting.

When he is older I will be working and I can get him stuff then.”

Jamierson may need further surgery to address leaky heart valves. Developmental therapies will long be a part of his life. Jamie believes her support network at SSM Health Cardinal Glennon will give her the strength to deal with whatever the future holds.

Jamierson often is met just outside the elevators at the entrance to Danis Pediatrics when he visits. Members of the staff pass him around for hugs and kisses.

“I know people are probably going to treat my son differently due to his Down syndrome,” Jamie says. “They don’t question it here.

They treat us like family.”

glennon.org Fall/Winter 2018 • 51

COMPLEX CARE

Elizabeth Rhyne, pediatric nurse practioner with Jamierson

PARTNERS IN PARENTING

IMPACCT — Improving Mental Health:

Parent and Child Collaborative Treatment

B

abies aren’t delivered with instruction manuals of parental guidance for routine care, let alone for fixing the unique, perplexing behavioral issues that may arise over the next 18 years or so. A promising program for helping parents resolve those quirks is being developed in the Danis Pediatric Center at SSM Health Cardinal Glennon Children’s Hospital.

It is called IMPACCT — Improving Mental Health: Parent and Child Collaborative Treatment.

“A lot of parents don’t know how to be the best parent. You tend to parent the way your parents parented. If your parent wasn’t the

best at it, you are going to model that or do the exact opposite, which isn’t necessarily the best thing, either,” says Heidi Sallee, MD, medical director of Danis Pediatrics and associate professor

good role models also encounter behavioral hurdles when the child adopts an unusual behavior or the parent simply doesn’t match their child’s temperament or personality, says Debra Zand, PhD.,

“You tend to parent the way your parents parented. If your parent wasn’t the best at it, you are going to model that or do the exact opposite, which isn’t necessarily the best thing, either.” in the Division of General Academic Pediatrics at Saint Louis University School of Medicine.

New parents who grew up with

52 • SSM Health Cardinal Glennon Children’s Foundation

a licensed clinical psychologist at Danis Pediatrics and professor in the Division of General Academic Pediatrics at Saint Louis University.

Left: Heidi Sallee, MD, and Debra Zand, PhD visit with “Triple P” participants Hilal YildizAtar, MD, and daughter, Zulal.

Right: Hilal with daughter Zulal

“Some parents struggle in the relationship and those struggles can play out with child behavior problems,” she says. Parental frustration may add another barrier to solutions.

IMPACCT assists parents in identifying the triggers for behavior problems and choosing from an array of positive parenting strategies to resolve them. One step is assisting the parent and child in forming a healthy attachment, Dr. Zand says. “If the child is connected to the parent, that is like cash in the bank -- when you tell your kid it is not okay to color on the walls, they are going to want to please you. We have really good outcomes.

Parents report feeling closer to their child and the disruptive behaviors decline. It is quite moving.”

IMPACCT is a three-year extension of the Positive Parenting Program (Triple P) which was launched in July 2015 with a grant from the St. Louis Mental Health Board. Triple P is a parentmediated, strength-based parenting intervention that is catalogued by the National Registry of EvidenceBased Programs.

Over the first three years of Triple P, 75% (156) of enrolled parents completed all four of its sessions. That outcome was surprising, Dr. Zand says, and probably attributable to the emphasis on parental empowerment, scheduling flexibility and bus passes for parents without transportation.

“We offer them ideas and they pick what they do. We tell them, ‘You have the strength in you. You know your family culture,’’’ she says.

In IMPACCT, the program has been expanded with “Theraplay,” an evidence-based, parent-child attachment therapy, Dr. Zand says.

“We are looking down the road at offering variations, such as group classes,” Dr. Sallee says.

“As part of our new funding we are accepting referrals from outside Danis Pediatrics.”

Zulal was a beautiful one-year old with a cute smile, pretty eyes and long hair. And a bald spot on the right side of her head because of her intractable urge to pull her hair.

“I couldn’t stop her. I thought about cutting her hair short so she couldn’t pull it,” says her mother, Hilal Yildiz-Atar, MD, a pediatric

“I charted the times when she was pulling her hair,” Dr. Yildiz-Atar says.

“She was mostly doing it when she was trying to fall asleep. We started putting socks on her hands while she was sleeping. She loved the socks and didn’t try to take them away.”

Zulal also pulled her hair when she was hungry or frustrated, her mother says. Those times were addressed through closer attention to snacks and reassurance when Zulal became frustrated. After a couple of months, she stopped pulling her hair and the thin patch disappeared.

A common resolution, which makes parents and children happier, is simply spending more time together.

“There are a couple of dozen behavior management strategies that can be tried,” Zand says. “We

“...We start with the minimal strategy needed to get the maximal outcome. We teach parents how to be attuned to the subtle signals of the child” resident training at SSM Health Cardinal Glennon. “I talked to Dr. Sallee — she didn’t like the idea of cutting Zulal’s hair.”

Zulal, now 2, is a primary care patient at Danis Pediatrics. “I’m her pediatrician,” Dr. Sallee says. “This little girl has beautiful, curly hair. We decided Mom should try Triple P.” Parents visit Dr. Zand or one of three accredited Triple P practitioners at weekly intervals to discuss their child’s issues. They plan for tracking likely triggers.

Behavioral management options are discussed, tried and tweaked.

start with the minimal strategy needed to get the maximal outcome. We teach parents how to be attuned to the subtle signals of the child. A ‘time-out’ is the last strategy to try and has to be done properly so it is not used as a punishment.

“Often the strategy is a ‘timein’ — spending more time with the child. It could just be five minutes several times a day, or sitting in the same bubble, without distractions.

Give positive reinforcement when a behavior such as hair-pulling isn’t done — ‘You are doing a great job!

Your hair is so beautiful!’”

glennon.org Fall/Winter 2018 • 53

I N FA N T C A R S E AT A N D S L E E P S A F E T Y E D U C AT I O N

SSM Health Cardinal Glennon

Safety Program

T

he SSM Health Cardinal Glennon Safety Program is dedicated to the prevention of childhood injuries through education and awareness, helping to make sure your baby is free from danger when sleeping and traveling on our roadways.

314-678-5474 or visit glennon.org/safetyprogram to learn more.

Call

SUPPORT PROVIDED BY: 54 • SSM Health Cardinal Glennon Children’s Foundation

Big recognition helps our smallest patients.

As a Level I Pediatric Trauma Center, our team at SSM Health Cardinal Glennon Children’s Hospital is always ready to deliver personalized and compassionate care to pediatric patients and their families; both in St. Louis and throughout the Midwest.

With over 200 SLUCare pediatric expert physicians practicing across more than 60 specialties, we provide: >> Nationally ranked programs in cardiology, gastroenterology and nephrology >> Life-saving organ transplant surgeons for heart, kidney, liver and bone marrow >> The region’s top two pediatric heart surgeons

Where you need us.

Access SSM Health Cardinal Glennon pediatric physicians at these ERs: >> SSM Health DePaul Hospital - St. Louis >> SSM Health St. Clare Hospital - Fenton >> SSM Health St. Joseph Hospital St. Charles >> SSM Health St. Joseph Hospital Lake Saint Louis >> Anderson Hospital - Maryville, IL >> HSHS St. Elizabeth’s Hospital O’Fallon, IL

Nationally ranked for our regional care.

cardinalglennon.com • 55

©2018 SSM Health.

All rights reserved.

STL-STL-16-168874 glennon.org Fall/Winter 2018 4/18

GLENNON CIRCLE /

SPOTLIGHT

Lou and Carol Matustik

L

ou and Carol Matustik have a simple philosophy: live humbly and give generously.

The Sappington, Mo. couple resides in what they describe as a simple home. They have one grown son and no grandchildren of their own, but when you ask them, they smile broadly and say, “We have lots of grandchildren. All the children at Cardinal Glennon and Shriners are our grandchildren.”

The Matustiks created their extended family through charitable giving that focuses primarily on children’s organizations. “I was a patient at Shriners Hospital for the first eight years of my life,” says Carol. “I had club feet and at the time I was there, they did multiple surgeries in several phases. I remember I was in the hospital for months at a time, with 15 months being the longest period I was there.”

was a special night for me for sure.”

What made it even more special was that singer Johnny Mathis was performing that night at Casa Loma.

“I remember we danced together a lot that night!” says Carol.

Five years later, they married, with Lou working in machine maintenance at the Anheuser Busch brewery and Carol working in the credit office of Barnes’ maternity hospital. Over the years, their salaries afforded the Matustiks the opportunity to travel and enjoy life.

“We’ve been on several boat cruises and we used to go to Jamaica a lot, even visiting singer Bob Marley’s home in Kingston,” recalls Lou. As they got older and explored investment opportunities, Lou saw an ad about charitable gift annuities from SSM Health Cardinal Glennon Children’s Foundation. The opportunity to both give generously while also receiving fixed payments

“I was helped so much as a child and we were in a position to be charitable with our savings while also planning for the future,” says Carol. “It made sense to me.”

Thanks to the caring doctors, nurses and therapists that she met, Carol was able to walk — and to dance. “Oh I loved to dance!” she says with a laugh. “When I was 18 or 20, St. Louis had a number of ballrooms, and I went to many of them to dance and have fun. In fact, at that time, the steamboat, SS Admiral, had one of the largest dance floors in the country.”

Lou also loved to dance. At the Casa Loma Ballroom in south St. Louis, Carol caught his eye. “She was with a group of gals and she just looked wonderful to me,” he says as he looks at her fondly. “It

for life appealed to their desire to help children in need. “I was helped so much as a child and we were in a position to be charitable with our savings while also planning for the future,” says Carol. “It made sense to me.”

Lou, at 88, still does his own taxes and keeps up with financial news. To him, SSM Health Cardinal Glennon’s charitable gift annuities have a win-win benefit: helping children while also offering tax benefits and a defined income stream as he and Carol age. “It’s an investment in a worthy cause that pays you a good financial and emotional return,” he stresses. “You are helping young children whose

56 • SSM Health Cardinal Glennon Children’s Foundation

S P O T L I G H T

Carol and Lou Matustik

lives have been changed for the good by everything that is done at Cardinal Glennon while also ensuring that we have income for unforeseen expenses when we need it.”

Adds Carol, “It’s really a privilege to be able to help others, especially children in the hospital.

We may not have our own grandchildren, but we can say that through our charitable giving, we have been blessed a hundredfold or more through the children of Shriners and Cardinal Glennon.”

With up to a 10.5 % return, charitable gift annuities offered

by SSM Health Cardinal Glennon Children’s Foundation can provide you with a stable source of retirement income while supporting our institution.

Want more information?

Contact Rose Brower, Director of Planned Giving, at 314-633-7351.

Will you help Cardinal Glennon kids by becoming a member of our Glennon Circle today?

Members of the Glennon Circle enhance the health care and treatments of those we serve by making annual contributions of $1,000 or more:

RECOGNITION LEVELS Guardians $1,000-$2,499 Heroes $2,500-$4,999 Champions $5,000-$9,999

A gift of $1,000 could provide

an outpatient chemotherapy infusion treatment to help a child battle cancer.

A gift of $2,500 could provide

two laptop computers for kids at our Shining Star School to keep up with schoolwork and interact with peers when hospitalized for long periods of time.

A gift of $1,500 could provide

Bilirubin lights for a baby in the Neonatal Intensive Care Unit who is being treated for jaundice and requires treatment for several days.

A gift of $4,000 could provide a

hospital grade sleeper sofa that will provide much needed comfort and rest for parents who are enduring many long, sleepless nights with their sick child.

President’s Circle $10,000 and above Guardians enjoy the following benefits with their generous donation: •S pecial recognition on the donor statue wall located in the hospital • Glennon Magazine and Impact Report • Glennon Gram E-Newsletter • Invitation to the Donor Holiday party Heroes enjoy the following benefits with their generous donation: • All Guardians benefits • Private tour of SSM Health Cardinal Glennon Children’s Hospital Champions enjoy the following benefits with their generous donation: • All Heroes benefits • Two tickets to the Ambassador Choice Awards

A gift of $5,000 could provide

an echocardiogram exam table which assists in the diagnosis of heart related conditions.

A gift of $10,000 could allow

13 children with kidney disease to attend Camp Okawehna and receive dialysis treatment three times a week from medical staff while attending the week-long camp.

President’s Circle members enjoy the following benefits with their generous donation: • All Champions benefits • Invitation to participate in Glennon 101 - a behind the scenes opportunity to experience the hospital up close and personal alongside our physicians

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT

Sister Jane Reflects on a Lifetime in the "One Big Family" of Glennon

GLENNON FRIENDS Glennon Friends celebrates the faith, commitment and generosity of our supporters.

I

"

Sister Jane Watch the Video

S c a n to w at c h !

've had a very meaningful and fulfilling life," says Sr. Jane Rombach, FSM, MSW, who celebrated her 90th birthday this summer with a party at SSM Health Cardinal Glennon Children's Hospital.

Sr. Jane entered the Franciscan Sisters of Mary in 1948 and moved in 1951 to the Saint Christopher's Convent that served Firmin Desloge (Saint Louis University) Hospital. She lived there when construction began next door on the new Cardinal Glennon Memorial Hospital for Children.

She attended Saint Louis University and briefly served as the medical records librarian at SSM Health Cardinal Glennon in 1959 before moving to assignments in Wisconsin and South Carolina.

Along the way she became interested in social work. "I saw the needs of the elderly and poor," she says.

Sr. Jane returned to St. Louis and began studying social work at Saint Louis University while setting up a medical records system for the new Cardinal Ritter Senior Services. As a social worker she assisted clients there for 15 years.

Through most of that time she lived in the convent next to SSM Health Cardinal Glennon. That land now is occupied by the hospital's West Wing.

In 1982 an opportunity arose for Sr. Jane to practice social work for hematology-oncology patients at SSM Health Cardinal Glennon. "My job was to be supportive and make sure the patients knew their options and alternatives. I tried to find all the resources that were available to them."

She retired in 2010 but visits the hospital several days a week to prepare the chapel for daily Mass. "I have been on the campus for 65 years,"

58 • SSM Health Cardinal Glennon Children’s Foundation

says Sr. Jane, who now lives nearby.

"The hospital has grown so much. It is beautiful and makes care available for more patients."

She has no idea how many children she served. "I usually had a case load of about 50 patients. I never tried to count them. I still hear from two of my students. This is a teaching hospital and I liked teaching -- your students are going to carry on your work."

It often has been said that the "Spirit of Glennon" was sparked by the sisters who supervised nearly every department in the early years.

"We called it the 'Family of Glennon,'" Sr. Jane says. "The sisters have passed on our mission -- our work and service is in your hands."

That mission, she says, "Is for the glory of God and the care of all of God's people, especially the sick and suffering.

I liked the diversity and ecumenical atmosphere here -- all religions, all races, all different countries. We are one big family."

Jane Rombach grew up in Washington, Mo.

Why I Give » “Our Uncle Joe was a volunteer at Cardinal Glennon for over 30 years. His love of the hospital and its patients touched a soft spot in our hearts as well. We are impressed by the Cardinal Glennon Hospital mission and all the children who have benefited. It is very satisfying to know that any donation made to Cardinal Glennon is put to excellent use.”

Mike & Joyce Bytnar

“As a 40-year employee of Cardinal Glennon, I have seen the needs of our patients and families grow over the years. I truly feel called to give back not only to our patients, but to our community. This truly reflects the mission of Glennon.”

Lisa Griebel

“As we raised our children, it was always of great comfort to know that Cardinal Glennon was there if a medical need or an emergency arose. Although we never had to utilize the exceptional care provided at Cardinal Glennon, we give to Cardinal Glennon to make sure that all children are cared for, regardless of their family's ability to pay.”

Rosalyn & Vernon Pursley

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT

THANKS to the Development Board for their continuous support of our events and programs.

President

Hannah Castellano President-Elect

Joe Stroot

Public Relations

Stephanie Moll Secretary

Lacie Good Treasurer

Ben Albers Board Members

Teresa Braeckel Matt Carr Jeremiah Dellas Jake Eilermann Dana Ferrick Marcy Handlan Zach Kratofil Rick Kuhlman Brian Lamping Chris Leonard John Marino Serafina Nicolais Michael Niemann Declan O'Neill Craig Pacheco Andrea Ramsey David Rath Nathan Riner Matt Sartori Patrick Sheley Tracey Swabby Lauren Vandegriffe Patrick Van Cleave John Vitale Brandon Wappelhorst Alex Wasson

Fourth Floor Unveiling

T

he Fourth Floor unveiling ceremony was held Thursday, June 7 in the atrium. Former K’s for Kids Chairman Jason Motte was on hand to celebrate with cancer survivors Maggie Bohannan and Joey Renick. Maggie and Joey both spoke from the podium and shared how much the renovations mean to them.

The floor boasts a colorful beachthemed environment with 18 private rooms with individual baths and showers. The Jason Motte Treatment Room features rally surfing on a surfboard and colorful circles for the kids to step on, along with a television in the ceiling.

“This is fantastic, it is so patient friendly,” says Board of Governors member Allen Allred. “Mom and Dad can stay with their baby or young child and comfort them.”

Guests enjoyed cocktails, food and music in the atrium before

The Development Board is a group of professionals in our community who want to make a difference in the lives of patients at SSM Health Cardinal Glennon Children’s Hospital through supporting fundraising events throughout the year.

To learn how to become involved, contact Erin Hentz at 314-678-6639 or erin.hentz@ssmhealth.com.

60 • SSM Health Cardinal Glennon Children’s Foundation

going upstairs to see the beautiful renovations.

"This becomes a second home and things that might not be important for a day or two become really important in your second home,” says Bill Ferguson, SLUCare physician and division director of The Costas Center. “Things like having a place where both parents can sleep and stay with you at night and having a place to charge your cell phone."

"It means everything having the atmosphere being uplifting and adds positivity to your treatment," says patient Joey Renick. "You are less stressed out and you’re more comfortable. All of those factors really influence how you react to your treatment."

Thanks to all the donors who helped make these renovations happen for Cardinal Glennon kids!

SPOTLIGHT

/ GLENNON FRIENDS

SPOTLIGHT

The George & Patricia Erker Endowed Chair in Pediatric Pulmonary Medicine

A

n endowed pediatric chair is a permanent gift to the children of today, tomorrow and years far into the future. George H. Erker died in 2015 at the age of 93 and provided in his estate for an endowed chair at SSM Health Blakeslee Noyes, MD Cardinal Glennon Children's Hospital and the Department of Pediatrics at Saint Louis University School of Medicine.

Mr. Erker was a pilot in the Pacific theater during World War II and eventually became a stockbroker. His funds are invested permanently in the George H. and Patricia S. Erker Endowed Chair in Pediatric Pulmonology. Income earned from that principal will support the salary and activities of the director in perpetuity.

"An endowed chair benefits the department financially and is a huge contributor to our visibility," says Blakeslee Noyes, MD, director of the division of pediatric pulmonology at SSM Health Cardinal Glennon and professor of pediatrics at Saint Louis University.

"I am, frankly, toward the tail end of my career, so the endowment is going to have a bigger impact on our ability to recruit a high-quality, younger faculty member to take over the director's position in the future.

An endowed chair will help offset the salary costs of recruiting a candidate who is strong and has a national reputation."

Dr. Noyes has been a member of the hospital staff for 25 years. Mr. Erker was his stepfather. Noyes' mother, Patricia, passed away in 1995.

After Mr. Erker retired, "he started getting more interested in the pulmonary division and the advances that were taking place

for children with respiratory disorders," Dr. Noyes says. "He began donating to a fund in my mother's name. That helped us in a variety of ways. As he learned more he decided to endow this chair."

The Erker chair will be the sixth endowed at the hospital. Previous gifts support the directors of gastroenterology, plastic surgery, oncology, cardiology and pediatric surgery.

"The Foundation is proud to support academic chairs through our generous donors,” says Sandy Koller, vice president of philanthropy for SSM Health Cardinal Glennon Children’s Foundation. “With their support, our physicians have the opportunity to conduct additional research and give presentations around the world.

As a teaching hospital this allows Cardinal Glennon to stay at the forefront of exceptional pediatric health care.”

The pulmonology division is staffed by six physicians who care for children from much of Missouri and southern Illinois.

"Our major groups are patients with asthma, cystic fibrosis and sleep disorders," Dr. Noyes says. "Most kids with asthma do extraordinarily well. In cystic fibrosis there have been huge advances in mortality rates, lung function and nutritional status. We are on the cusp of further extraordinary advances in this lifeshortening disease."

SSM HEALTH CARDINAL GLENNON

Teen Board

Are you a local high schooler who is looking to make a positive impact on our community? If so, consider joining the SSM Health Cardinal Glennon Teen Board!

The Teen Board meets twice a month to plan and develop methods of support for the hospital. Recruitment is ongoing, and interested individuals are encouraged to submit an application at any time.

For more information about the SSM Health Cardinal Glennon Teen Board, please contact Ryan Jennings, Community Outreach Coordinator at 314-678-6622 or ryan.jennings@ssmhealth.com.

Young Friends of Cardinal Glennon

The Young Friends of Cardinal Glennon is a group of professionals between the ages of 21-30 who are committed to supporting SSM Health Cardinal Glennon Children’s Hospital and the children and families it serves through fundraising, volunteering and spreading awareness. Young Friends give a monetary donation yearly, spread awareness of the hospital’s mission on social media platforms and have the opportunity to attend quarterly networking events with other local young professionals. They will also be the first to know about upcoming volunteer opportunities and upcoming events with the Foundation. For more information or to join Young Friends of Cardinal Glennon, visit glennon.org/young-friends.

glennon.org Fall/Winter 2018 • 61

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT BRAVE BEGINNINGS

Brave Beginnings

T

hanks to a $30,000 grant from Brave Beginnings, a program of the Will Rogers Motion Picture Pioneers Foundation, we were able to purchase a new Giraffe OmniBed for our 65-bed, Level IV Neonatal Intensive Care Unit. From delivery to discharge, these beds address the changing and complex demands of the NICU by utilizing advanced technology to provide consistently controlled thermal environments that promote natural, peaceful healing for premature babies. With the support from Brave Beginnings, our highlyspecialized team is able to offer the most advanced neonatal technology and treatment options, along with hope and healing with compassion each day.

Brave Beginnings Mascot, Doctor Clemens, enjoyed a tour of the NICU and meeting one of our tiniest patients!

62 • SSM Health Cardinal Glennon Children’s Foundation

SPOTLIGHT GLORY RIDERS

Glory Riders

T

he Glory Riders are a faith-based motorcycle group making a difference in the St. Louis community! Each year this group collects donations throughout the spring to support inpatient and outpatient cancer service at The Costas Center at SSM Health Cardinal Glennon Children’s Hospital. In June, the group rode from their ministry in Troy to the hospital to present their donation. This year’s motorcycle ride raised more than $3,000 for Cardinal Glennon kids!

While they were here, they took a moment to say a prayer for health and wellness for the children we serve.

Donated $3,000+

SPOTLIGHT

SPOTLIGHT KIDS4KIDS SOCCER TOURNAMENTS

Kids4Kids Soccer Tournaments

K

ids4Kids mission is to support kids and families in St. Louis dealing with cancer.

They host 3vs3 soccer tournaments to raise awareness and funds for this cause.

Proceeds from their fundraising efforts benefit SSM Health Cardinal Glennon Children’s Hospital and Friends of Kids with Cancer. This year, Kids4Kids made a $10,000 donation to support the renovation of the inpatient oncology unit at SSM Health Cardinal Glennon.

These renovations included making patient rooms more spacious so both parents could stay overnight, private bathrooms in each room, a brand new playroom, reading nooks and much more!

/ GLENNON FRIENDS

SPOTLIGHT KEVIN'S BOOK DRIVE

Kevin’s Book Drive

G

rateful patient family, Kevin and his parents, hosted a book drive in partnership with Usborne Books to donate new books for Cardinals Glennon kids!

Usborne Books matched 50% of the donations made towards this book drive, which meant more books for the kids. Kevin loves books and was super excited to make this donation to help other kids who have to spend time in the hospital.

Donated $10,000

glennon.org Fall/Winter 2018 • 63

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT COMPANION BAKERY

Companion Bakery Shining

Star School Supplies Drive

S

pecial thanks to Companion Bakery for holding a school supplies drive for our Shining Star School. During September, the Ladue and West STL Cafe locations collected donations from customers and all of the items were given to one of our Shining Star School teachers, Brenda Wilson.

Also, Companion Bakery hosted the Glennon Card Kickoff Party again this year at their West STL Cafe location. The night is meant to acknowledge the support of Glennon Card sponsors, merchants, restaurants and volunteers.

Food, drinks and fabulous door prizes were enjoyed by almost 150 guests!

64 • SSM Health Cardinal Glennon Children’s Foundation

SPOTLIGHT HUEY BLAKE

Huey Blake has 10,000 Volunteer Hours in 10 Years

W

hen Huey was 4 years old he was diagnosed with a stage 5 brain tumor (rhabdomyosarcoma). He received two years of treatment at SSM Health Cardinal Glennon Children’s Hospital and underwent four brain surgeries. While he was in the hospital he received several gifts from different families which made him decide he wanted to give back when he got back on his feet.

He was diagnosed with a schwannoma nerve tumor and two peripheral tumors in 2012, 2014 and 2015. He underwent eight eye surgeries and six weeks of radiation.

Huey is now in remission and has given 10,000 hours of his time to the hospital that saved his life.

SPOTLIGHT

SPOTLIGHT LOVIN' FROM THE OVEN

Lovin' from the Oven

F

or eight years now, Grace Pund and her family have hosted a pancake breakfast around Valentine's Day to support the sick and injured children treated at SSM Health Cardinal Glennon Children’s Hospital. They invite all their friends and family into their home for homemade pancakes and ask for donations which go straight to help Cardinal Glennon kids.

Over the years, Grace has recruited her friends to join her by hosting their very own Lovin' from the Oven. With this increased support, Lovin' from the Oven has been able to donate more than $23,000 to the hospital. This year the Pund, Larkin, McBride, Willbrand and Mannebach families (pictured here) raised a combined total of nearly $7,000!

/ GLENNON FRIENDS

SPOTLIGHT TRALALA EXPRESS

All Aboard The Tralala Express!

P

atients at SSM Health Cardinal Glennon are excited to board the Tralala Express!

Through the generous support of Mae Skubiz, patients and families can now rest and relax in a replica of an Old London double-decker bus!

Mae made the gift because she wants to help children and brighten their lives in difficult times.

Donated $7,000

Pictured are Mae and Ray Skubiz and some happy kids!

glennon.org Fall/Winter 2018 • 65

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT TEAM NOAH FOUNDATION

Team Noah Foundation

M

eet the Team Noah Foundation! Started in memory of baby Noah, who was born in 2011 with multiple complications including a congenital heart defect (CHD).

Noah underwent two heart surgeries, multiple treatments and was on extracorporeal membrane oxygenation (ECMO) for 23 days until he passed away in his parents' arms. The Team Noah Foundation was created in Noah’s memory to help other families dealing the CHD. They host multiple biking events and a trivia night each year to raise funds to support the Footprints program at SSM Health Cardinal Glennon Children’s Hospital. This year’s trivia night raised $10,900! A portion of these proceeds were used to purchase therapy pillows which are given to children after they undergo open heart surgery.

Donated $10,900

66 • SSM Health Cardinal Glennon Children’s Foundation

SPOTLIGHT ST. CHARLES ROSARY RIVER RUN

St. Charles Rosary River Run

F

aith, Fitness and Family! That’s what the St. Charles Rosary River Run is all about and this year's inaugural event was a huge success! This 5k and 1 Mile race took place on June 9 along the scenic Katy Trail and featured Hail Mary’s and a Magnificat section of supporters praying the rosary beside the route.

This year’s run raised more than $5,000 for Cardinal Glennon kids in conjunction with the St. Louis Archdiocese Glennon Sunday campaign!

Donated $5,028.30

SPOTLIGHT

SPOTLIGHT RIDE FOR ROCKY

Ride for Rocky

T

he 18th Annual Ride for Rocky took place on a sunny day in August. This year’s event raised $26,000 in honor of Raquel Rose Rankin, “Rocky,” who was airlifted to SSM Health Cardinal Glennon Children’s Hospital in May of 2001. Rocky later passed away from injuries suffered in a tragic car accident. To honor her life, her parents, Pat and Vicky Rankin, started Ride for Rocky. Proceeds from this event are split between the Benevolence Fund at Have Bible Will Travel and SSM Health Cardinal Glennon. To date, Ride for Rocky has raised nearly $400,000 which has helped continue Rocky’s legacy of helping others.

Donated $26,000

/ GLENNON FRIENDS

SPOTLIGHT MAKE A WISH FOUNDATION

Make-a-Wish Foundation

M

eet Milo. Milo began his baseball career when he was only 3-years-old. During an off-season, his parents discovered a lump on his neck, which eventually led to his diagnosis of non-Hodgkin's lymphoma. In January of 2018, the year of Milo's 7th birthday, he was pronounced cancer free. Milo traveled to Busch Stadium where he met some of the St. Louis Cardinals players and wives, threw out the first pitch and found out his one true wish was coming true: to play ball with Carlos Martinez.

We can't thank the St. Louis Cardinals and their wives enough for what they do for us and our wish kids. During the pre-game ceremony, the Cardinals wives were presented the 2017 Chris Greicius award, recognizing them for their outstanding efforts and support of the Make-AWish mission. Wishes take a community and this one was no different.

glennon.org Fall/Winter 2018 • 67

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT GRANTS

SPOTLIGHT BARRON GYMNASTICS

Grants Meet Multiple Needs

Champions

S

B

o far in 2018, the programs and services of SSM Health Cardinal Glennon Children’s Hospital have benefited from nearly $500,000 in grants and contributions from foundations and other partners, including:

• Support from the Optimist Club of St. Louis and the William S. Kallaos Family Foundation for the Shining Star School.

• The Guth Foundation provided a generous gift to our Cancer Services.

• More than a dozen kidney patients had a unique summer camp experience thanks to the American Kidney Fund and Amgen.

• Our NICU purchased equipment thanks to Brave Beginnings and continues to provide much-needed support to families with the support of the Pott Foundation.

• The Cardinal Glennon Safety Program received support from Kohl’s Department Stores, Safe Kids Worldwide and Wellcare.

• St. Baldrick’s Foundation supports our cancer research efforts.

• Mothers and families are being connected to mental health resources thanks to Generate Health.

68 • SSM Health Cardinal Glennon Children’s Foundation

Against Cancer

arron Gymnastics hosted their annual Champions Against Cancer event to raise funds for The Costas Center at SSM Health Cardinal Glennon Children’s Hospital.

Kids gather for a fun night of gymnastics and in support of Cardinal Glennon kids. Barron Gymnastics sold t-shirts too which helped them donate a total of $7,400 this year!

SPOTLIGHT

SPOTLIGHT GATEWAY GRIZZLIES

Gateway Grizzlies

T

he Gateway Grizzlies dropped off a check in the amount of $8,046.78 from their fundraising efforts at their stadium for the 2018 season. Thanks to the Grizzlies for all their help to support Cardinal Glennon kids!

Donated $8,046.78

/ GLENNON FRIENDS

SPOTLIGHT COLLEEN KASTRUP

Colleen Kastrup

B

orn on Christmas Eve in 1987, Colleen Kastrup began her journey with SSM Health Cardinal Glennon Children’s Hospital at birth, and spent the next 30 years making frequent trips to see the doctors and staff in the Dorothy and Larry Dallas Heart Center.

“Colleen was always happy to see the staff at the heart center,” says Mary Jo Kastrup, Colleen’s mother. “They really work with the families and took great care of all of us.”

As she grew, so did the hospital, allowing Colleen to have many unique experiences, including meeting Sammy Davis Jr. when the PICU was named in his honor in 1989. Over the years, SSM Health Cardinal Glennon became a second home to Colleen and her family as they developed lasting relationships with the staff.

Colleen passed away in 2018 prior to Valentine’s Day, but shortly before, she told her mom all she wanted for the holiday was a stuffed animal. In her honor, her family held a stuffed animal toy drive for the heart center, and were able to collect hundreds of fuzzy friends to be given to patients. The family hopes to continue to collect items for the hospital and give them in honor of Colleen.

glennon.org Fall/Winter 2018 • 69

WHERE ARE THEY NOW? /

TRAINED AT THE BEST

Trained at the Best Michelle Mitchell MD, / 2006-2010 Pediatrics resident and then Chief Resident, SSM Health Cardinal Glennon Children’s Hospital now Pediatric infectious diseases specialist at the Children’s Hospital of Wisconsin

M

ichelle Mitchell, MD, was in the middle of her pediatrics residency at SSM Health Cardinal Glennon Children’s Hospital when she realized she wanted to be a medical detective. “I was on my rotation in infectious diseases and I felt like a kid in a candy store,” she says with a laugh. “We’d see interesting cases all of the time and I thought to myself, I could do this every day!”

What she liked was the process of figuring out a cause for a medical problem. “I remember going with (pediatric infectious diseases specialist) Dr. Stephen Barenkamp to the emergency room and examining a child with a fever, joint pain and an unusual rash,” she recalls. “He knew immediately it was rat bite fever. A couple of days later, a child with Rocky Mountain spotted fever came into the hospital and I thought it was so cool that he methodically figured out the disease and then knew the medical approach to treat it.”

She likens that process to working on Sudoku puzzles, which she does as a hobby. “I love

discovering clues,” she says. “You look at a medical problem from all angles, like a Sudoku puzzle, and then try to figure out the right diagnostic work-up and treatment.”

A graduate of Saint Louis University School of Medicine, Dr. Mitchell says she was drawn to SSM Health Cardinal Glennon during her pediatrics rotation in the hospital. “In undergrad, I was a biology major with a minor in religious studies,” she explains.

“The hospital does a good job of integrating spirituality with medicine. It felt right there because you sensed that everyone felt there was a higher calling to take care of kids.”

It felt so right that SSM Health Cardinal Glennon was her first choice when she was deciding on residency programs — a surprise to her parents who thought that she’d return to her home state of Arizona.

In addition to Dr. Barenkamp, Dr. Mitchell says that another pediatric infectious diseases specialist, Dennis O’Connor, MD, made a big impact on her choice of a subspecialty field. “Dr. O’Connor

70 • SSM Health Cardinal Glennon Children’s Foundation

embodied all of the qualities of an exceptional physician and person.

He was a huge role model and inspiration to me.”

Dr. Mitchell went on to complete a fellowship in pediatric infectious diseases at the University of Colorado School of Medicine before moving to West Virginia with her husband, Jon, who she met while in St. Louis. Last year, she accepted a position at the Children’s Hospital of Wisconsin.

“I had the opportunity to focus on antimicrobial stewardship, which is basically a program that hospitals across the country are focusing on to improve antibiotic use and minimize antibiotic resistance. It’s also an opportunity to transition to a leadership role.”

With three children of her own, all under the age of 8, Dr. Mitchell is very much focused on keeping kids healthy. “An ounce of prevention is worth a pound of cure,” she says. “Intervene early or work on preventive measures and you can make all the difference in helping them grow up healthier.”

WHERE ARE THEY NOW?

WHERE ARE THEY NOW? Katie Postal / 2002 Kidney Transplant Recipient

now Animal and customer service specialist, Humane Society of Missouri

THEN

K

atie Postal laughs as she takes a photo while surrounded by her pets. “I have two dogs and two cats right now,” she says. “I can’t remember any time in my life when I haven’t had a pet.”

The 31-year-old has served as an animal and customer service specialist for the Humane Society of Missouri for the past nine years and loves working with animals.

When asked about special moments with the pets in her life, Katie can list many, but what she recalls vividly from her teenage years is when her dad made regular trips from their home in Festus to SSM Health Cardinal Glennon Children’s Hospital to bring her beloved miniature dachshund for visits.

“He would pull alongside the curb and bring Eula Belle to the hospital’s entry doors so that I could hug her and sit with her for awhile,” says Katie. “It made the days at the hospital better when he did that.”

Katie was admitted to the hospital when she was in 7th grade. She had been having vision and joint problems, but nothing major was diagnosed until her eye specialist happened to be at dinner

NOW with colleagues and brought up some of the symptoms. “She called my mom and asked her to take me to Cardinal Glennon for some blood work,” recalls Katie. “It was Good Friday and I was dyeing Easter eggs at home, but my mom stopped everything and took me to the hospital.”

What doctors found shocked the family. Katie’s kidneys were shutting down due to vasculitis, or an inflammation in the blood vessels. Although she wanted to go home for Easter, she was immediately admitted and put on dialysis. Soon after, she learned how to do dialysis at home. “With peritoneal home dialysis, which I did for two and a half years, I really couldn’t do a lot of nighttime activities with my high school friends because I was attached to a dialysis machine for up to eight hours at a time,” she says.

As Katie developed end stage renal failure, talk in the family turned to a living kidney donation.

Her parents both got tested, but neither was a good match. Her older sister, Angie, however, also asked to get tested. She was a perfect match.

“My sister never hesitated and she said she’d give me one of her kidneys,” says Katie.

On August 28, 2002, Katie and Angie went in the hospital. In what pediatric nephrologist Craig Belsha, MD, said was a textbook case, Katie received the donor kidney from her sister. “My mom was in the recovery room and Dr. Belsha came in with a big grin on his face. He said the kidney started working right away.”

For Katie and her family, the transplant team became part of their family before, during and long after her transplant. For many years, the family would host a large barbeque on the anniversary of the transplant. Dr. Belsha and several nurses would make the drive all the way to Festus to join in the celebrations. Grateful for their care, compassion and expertise, Mary Postal nominated Dr. Belsha and another pediatric nephrologist, Ellen Wood, MD, for Glennon Ambassador awards.

“I know it was a hard time for my parents, but I have a lot of good memories from my time at Cardinal Glennon,” says Katie. “For example, I remember Dr. Belsha calling in from an event after I got upset in the hospital because the team was having trouble giving me an IV. He talked me through it and changed my state of mind to one of ‘I can do this.’ He really cared.

And the nurses, Amy in particular, and all the rest of the team were wonderful too. They even came to my high school graduation party!”

She adds, “Cardinal Glennon really is a special place. I wasn’t just a patient or a number; they knew ME as a kid. And I’ll always be grateful for that.”

glennon.org Fall/Winter 2018 • 71

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by SSM Health Cardinal Glennon Children’s Hospital. ❑ I would like more information on how to make a gift today and/or after my lifetime to help children in need. ❑ If you already have included SSM Health Cardinal Glennon Children’s Foundation in your will or trust thank you!

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Dear Friends and Su

pporters of SSM He

alth Cardinal Glennon Children’s Hospital, American Metals Su pply and my family ha ve be en supporters of Cardinal Glennon Children’s Hospital for several years.

As the only free-stan ding Catholic pedia tric hospital in the country, the care an d compassion are ev ide nt as you walk the halls. Among all the departments of the hospital that deserve our support , Danis Pediatrics is es pecially close to my heart and is why I have co-chaired Gle nn on Gallop for the past two years.

The dedicated careg ivers at Danis Pedia trics serve some of our region’s most vulnerable child ren. Out of the 22,000 children served at Danis Pedia trics, 85% live below the poverty line. In addit ion , the y face a unique set of challenges, including fam ilia l issues and toxic stres s. As adoptive paren ts of two boys, my husban d Mike and I have firs t-hand experience with some of the unbelievable barriers that many of these children have to overc om e. The fact that Danis Pedia trics has special pro gra ms to address these issue s – and they do it in a sp ac e that was meant to accomm odate only 5,000 pa tie nts a year – is nothing sh ort of a miracle in my eyes.

I consider it a blessi ng that my employe es have also become engaged in support ing Cardinal Glennon over the last few ye From a team in the ars.

Sun Run to playing in the Glennon Golf Classic, several of the American Metal Supp ly family have been inspired to become supporters of the ho spital.

On behalf of our fam ily and American Me tals Supply, we thank you for your continu ous support of the ch ildren who receive ca at Cardinal Glennon re . Without each and every one of you, no of it would be possi ne ble.

Chrissy Nardini President, American

Metals Supply

Non-profit Org. U.S. Postage PAID Saint Louis, MO Permit No. 2412

Children’s Foundation Published by SSM Health Cardinal Glennon Children’s Foundation 3800 Park Avenue St. Louis, MO 63110 314-577-5605 • 1-800-269-0552 email: info@glennon.org glennon.org

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