Glennon Magazine Fall/Winter 2017

Glennon S S M H ealth C ardinal G lennon Children’s Foundation

glennon.org

D.J.’s love for life, friends and math! page 48

Fall/Winter 2017, Volume 36, Number 2

VIEWPOINT

M

y father, Dr. Peter Danis, was born in Ottawa, Canada and faced tremendous loss at a very early age.

He lost his father when he was 4 years old, and his mother when he was 7. He moved in with his grandmother, who died when he was in high school, so he moved to Spokane, Washington to live with his aunt. He worked summers as a lumberjack and looked forward to studying medicine after high school. Because there were no medical schools in the Northwest, he came to Saint Louis University where two distant cousins were enrolled.

Through much hard work and perseverance, he received his medical degree in 1931. He intended to become a surgeon, but he was attracted to pediatrics while a resident at SSM Health St. Mary’s Hospital.

Cardinal John Joseph Glennon led the Archdiocese from 1903 to 1946. Before his death in 1946, he asked my father in a private meeting “God has some reason for you being here. Do you know what it is?” My father replied, “Yes sir, I am going to build you a children’s hospital.”

After Cardinal Glennon’s death, then Archbishop Joseph Ritter was considering a tribute to him. At the time, my father was chairman of pediatrics at Saint Louis University and a renowned St. Louis pediatrician. He enlisted the city’s most prominent Catholics and approached Ritter with a proposal. He urged Ritter to build a memorial hospital that would meet the needs of young people and enhance educational programs and research in the emerging field of pediatrics.

In 1956, the doors to Cardinal Glennon Memorial Hospital opened and in its first year cared for 43,021 children. Today, we serve more than 200,000 children each year, from Missouri, Illinois and around the world.

Danis Pediatric Center, named after my father, is home to 21,000 patient visits annually, but was built to accommodate 5,000 visits annually. Thanks to the generous and compassionate support of our donors, Danis Pediatrics has added programs, services, staff and physicians to build a high-quality service for all children in need. Programs like Foreign Adoption Clinic and Educational Services, Fostering Healthy Children, Reach Out & Read and more would not be here without your continued support.

Starting with my father, my family has been involved with the hospital since its inception, and my sister and brother were active medical professionals for many, many years. As a member of the Board of Governors, I was proud to serve as Glennon Gallop co-chair, along with my wife Jackie, who used to serve on the board as well. T. Danis Charitable Trust was a proud presenting sponsor of the event, with proceeds supporting expanding Danis Pediatrics, improving the patient care experience, clinical education and medical outreach footprint across the region. We are grateful to all who have supported the Glennon Gallop over the last five years.

I know that my father is looking down on all of us and amazed to see how Cardinal Glennon has grown into a world-class pediatric hospital. It is your support that allows us to continue to serve all children in need, regardless of their family’s ability to pay.

Thank you for your continued support throughout the year and we look forward to another successful year of helping Cardinal Glennon kids in 2018.

Tim Danis Board of Governors

Contents Glennon Volume 36 Number 2

Published semiannually by SSM Health Cardinal Glennon Children’s Foundation 3800 Park Avenue • St. Louis, MO 63110

BOARD OF GOVERNORS Most Reverend Robert J. Carlson Chairman Of The Board Craig E. Labarge President

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Brian C. Behrens First Vice President James G. Koman Second Vice President James F. Whalen Chairman, Finance Jack Schreiber Chairman, Investment Sub-Committee Molly N. Cline, PHD Secretary Sandy Koller Vice President, Philanthropy June L. Pickett Assistant Secretary Allen D. Allred Margaret Barrett Galen D. Bingham Cheryl Boushka James G. Brennan Clayton Brown J. Michael Bruno Steven Burghart Anthony J. Caleca Julian L. Carr, Jr. James G. Castellano Sherri Cliffe William M. Corrigan Bob Costas Timothy Danis Dan Dierdorf John F. Eilermann Douglas Fabick Monsignor Vernon Gardin Dennis G. Gipson Shawn Hagan Sherlyn Hailstone John F. Hefele

Edward T. Hempstead Edward D. Higgins Thomas E. Hilton Nicole Holland-Hong Leslee Holliday Dennis J. Jacknewitz Candace Jennings Laura Kaiser John D. Lee Bob Leonard Thomas McMillin Chrissy Nardini Dennis O’Connor Christopher R. Pronger Jerry E. Ritter Mary Jean Ryan, FSM Farouk Sadiq Shermini Saini Daniel J. Sullivan Bryan M. Swift David L. Taiclet Raymond T. Wagner, Jr. Robert J. Witterschein Jim Woodcock

ON THE COVER: D.J. Adams To share a grateful patient experience, a donor story or a volunteer effort, please contact Rose Fogarty, Director of Marketing, Communications and Media Relations at 314-577-5605 or rose.fogarty@ssmhealth.com

44 FEATURES

18 22 28 38 42 44

Homers for Health Home Run Derby

Glennon Gallop

Fifth Annual Polo Match

Complex Care

Offering Peace of Mind, Breathing Easy

38 DEPARTMENTS

2

AROUND GLENNON

6

GLENNON GATHERINGS

14

CORPORATE CORNER

48 51

Find out the latest news

Pictures from recent events

Sandberg, Phoenix & von Gontard

GLENNON KIDS D.J. Adams

GLENNON AMBASSADORS Ambassador Choice Awards

Sun Run

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PARTNERS in PARENTING

Integrative Medicine

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GLENNON CIRCLE

60

GLENNON FRIENDS

70

WHERE are they NOW?

Inaugural 5K/Fun Run

Modern Medicine + Time Honored Practices

Music Therapy

Raising the spirits of Cardinal Glennon kids

A New View from the NICU

Become a member today!

Supporting Cardinal Glennon Kids!

Angela Sharkey, MD

AROUND GLENNON /

FIND OUT THE LATEST NEWS

Anita Sue Gregorich Tranquility Healing Garden Opens

T

he Anita Sue Gregorich Tranquility Healing Garden opened on Tuesday, June 27, providing a healing environment and comfort for families at SSM Health Cardinal Glennon Children’s Hospital.

The garden, located in a fenced area along Grand Avenue, offers a peaceful place for families to retreat while their child is being cared for at the hospital.

The garden features space for reflection, including several seating areas with beautiful flowers and plants unique to each area. This area will provide a much-needed distraction and stress-free environment for parents whose children are facing serious illness or injury.

The garden is named after longtime Neonatal Intensive Care Unit (NICU) nurse Anita Sue Gregorich, who passed away from cancer in March 2016. Anita enjoyed places with quiet, peaceful and serene atmospheres, as she regularly went on long walks in local parks. When she passed away, she bequeathed $150,000 to the hospital’s NICU team and the group fittingly decided to use the money to create a hospital garden in Anita’s memory.

Upcoming Events Join us for our upcoming events in 2018!

February 3 February 16

Heart & Soul Glennon Style

April 5

GBR18

May 19

Scoops of Fun!

June 3

Glennon Sunday

July 26

Ambassador Choice Awards

For more information, call 314-577-5605 or visit glennon.org.

2 • SSM Health Cardinal Glennon Children’s Foundation

2018 Events February 27, 2018 - National Pancake Day

From 7 am to 7 pm enjoy a FREE short stack of pancakes. Make a donation to CMN-STL at participating IHOP locations and support our member hospitals.

April 21, 2018 - Bocce For Bambinos

Bow-chee or botch-ee? However you pronounce it, the Bocce for Bambinos event at Milo’s Tavern on the Hill is a wonderful opportunity to give back and have fun! Join the STL Champions for Children, CMN St. Louis’ Young Professionals Board, for a bocce ball tournament and happy hour. Thirty-two, two person teams will compete head-to-head in a bracket style tournament for a chance to win big for the kids.

FIND OUT THE LATEST NEWS

/ AROUND GLENNON

Mid-America Transport Unveils Inspired by Life Wall

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n July 21 Mid-America Transplant unveiled their Inspired by Life wall, designed to offer hope to those whose loved ones are receiving medical care at SSM Health Cardinal Glennon Children’s Hospital. Located near the Pediatric Intensive Care Unit (PICU), the wall includes a monitor that features healthy kids enjoying life after receiving an organ transplant at the hospital. Mid-America Transplant is grateful for the opportunity to collaborate with the hospital and the Foundation to bring this inspiring project to life.

U.S. News & World Report Ranks SSM Health Cardinal Glennon in three specialties

U

.S. News & World Report has ranked SSM Health Cardinal Glennon Children’s Hospital in three specialties in the new 2017-18 Best Children’s Hospitals rankings.

SSM Health Cardinal Glennon ranked 44 in Pediatrics: Gastroenterology and GI Surgery, 45 in Pediatrics: Cardiology and Heart Surgery, and 48 in Pediatrics: Nephrology.

The 11th annual rankings recognize the top 50 pediatric facilities across the U.S. in 10 pediatric specialties, including cancer, cardiology and heart surgery, diabetes and endocrinology, gastroenterology and gastrointestinal surgery, neonatology, nephrology, neurology and neurosurgery, orthopedics, pulmonology and urology.

“At SSM Health Cardinal Glennon, our entire clinical team is dedicated to providing exceptional care to all of our patients,” said Steven Burghart, president of SSM Health Cardinal Glennon. “We are proud of these rankings that prove the quality care we provide to our patients every day as we live out the SSM Health Mission to reveal the healing presence of God.”

glennon.org Fall/Winter 2017 • 3

AROUND GLENNON /

CELEBRITIES GIVING BACK

Celebrities Giving Back St. Louis Cardinals Visit

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omers for Health and K’s for Kids co-chairs Matt Carpenter and Trevor Rosenthal visit patients with their wives Mackenzie and Lindsey.

Billikens Basketball Visit

4 • SSM Health Cardinal Glennon Children’s Foundation

CELEBRITIES GIVING BACK

/ AROUND GLENNON

Trevor Rosenthal Visits Katherine Cook

K

atherine Cook, from Lebanon, Ill. was diagnosed with terminal brain cancer. This summer, when asked what one thing she wanted to cheer her up, she asked for a Trevor Rosenthal jersey. When Trevor heard about this he made the 45 minute drive to her house and hand delivered her jersey and signed it for her.

Sadly, just two weeks after the visit, Katherine passed away on July 16 surrounded by her family. Friends, family and the community raised funds to cover her funeral expenses.

Gage Meets Adam Wainwright

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n our last issue we shared how Adam Wainwright signed cancer patient Gage Dugan’s mask, so he would wear it to prevent him from infectious diseases. Well, we are happy to report Gage started wearing his mask and got healthier and he finally got to meet Adam on field before the Cards/ Red Sox game on May 17. Not only did he get to meet his idol Wainwright - Matt Carpenter, Jedd Gyorko, Trevor Rosenthal, Matt Adams, Randal Grichuk, Greg Garcia and Kolten Wong also stopped by to meet Gage and sign his baseball. Our Cardinals love to support Cardinal Glennon kids!

glennon.org Fall/Winter 2017 • 5

GLENNON GATHERINGS

Ambassador Choice Awards July 27, 2017 Joseph Schulte Theatre, St. Louis University High School

PRESENTED BY:

Cassie Gladdis, Anne Theiling, Janna Webber, Jessica Bickel, Elizabeth Syberg

Andy & Jill Bollwerk

Jenny Pekny, Mitzi Jackson, Missy Sweeney, Joe Rohatsch, Laura Wulf, Stephanie Hall, Cheryl Hayes

Shari Gentsch, Laura Wasson

Bernita & Clint Fowler

Loretta Laurent, Kate Madden

Fay Hwang, Nick Anglin

Lisette Ramsey, Kim Perry, Kylene Tierney

Jenny Reschke, Reverend June Pearse, Judy Stanfield

Chris West, Susan Vasel, Jody Grizzel-West

6 • SSM Health Cardinal Glennon Children’s Foundation

Clarice Lewis-Patterson, Mike Patterson, Mary Grace Dunham

GLENNON GATHERINGS

Scoops of Fun May 13, 2017 St. Louis Magic House TRIPLE SCOOP SPONSOR:

GLENNON

Glennon Golf September 8, 2017 Columbia Golf Course, Columbia, Ill. Steven Burghart, Damon Harbison, Clayton Nowicki, Chad Wunsch, Nick Hernandez

Brad Thompson

Sandy Koller, Bill Hawn

Patrick Van Cleave, Ben Albers

St. Louis Blues Towel Man Ron Baechle

glennon.org Fall/Winter 2017 • 7

GLENNON GATHERINGS

Glennon Gallop September 2017 Saturday, September 16,16,2017 Kräftig Polo Club

PRESENTED BY:

Matt & Ashley Carr

Mike & Chrissy Nardini

Dr. Katherine Fuh, Dr. Alexander Lin

Mike Bowers, Candace Jennings

Tim & Jackie Danis, Vicki Geller, John Tramelli

Tricia & Tad Davies

Laura & Chuck Kaiser

Dr. Robert Wilmott, Dr. Matthew Broom

Drs. Robert & Susan Heaney, Julie & Joe Fingerhut

8 • SSM Health Cardinal Glennon Children’s Foundation

Michelle & Damon Harbison

Al & Sandy Koller, Peter & Susie von Gontard, Steven Burghart

GLENNON GATHERINGS

Sun Run September 24, 2017 Streets of St. Louis

PRESENTED BY:

glennon.org Fall/Winter 2017 • 9

GLENNON GATHERINGS

Dierdorf Pronger Golf Classic October 16, 2017 Boone Valley Golf Club, Augusta, Mo. Steven Burghart, Charles Bryant, Chris Pronger, Ken Cates, Dan Dierdorf, Greg Hesser, Kevin Bocek

Kenneth Striker, John Eilermann, Mike Johnson, Jeff Todt, Alan Cooke

Billy Sapp, Pete Grathwohl, Doug Fabick, Billy Sapp, Doug Weible

Gordon Wade, Sean Fitzgerald, Brian Hamilton, Matt Schuster, Joe McCormac

Robert Flood, David Taiclet, James Brennan, Steven Laffey, Greg Twardowski

Doug Croghan, Chris Wong, Rob Etter, David Stokes, Chris Williams

Richard Rames, Tom O'Toole, Doug Albrecht, Ozzie Smith, Tom Sehnert

10 • SSM Health Cardinal Glennon Children’s Foundation

GLENNON CARD

THANK YOU to our 2017 Sponsors PRESENTED BY:

PROCEEDS BENEFIT:

T om & B rigette M c M illin

GlennonCard.org

#GlennonCard

OCTOBER 28, 2017

The Ritz-Carlton, St. Louis

T H A N K YO U TO O U R S P O N S O R S PRESENTED BY:

LUMEN SPONSORS:

Allen D. Allred

SUNBEAM SPONSORS:

Karen & Jim Castellano

The Julian & Eileen Carr Family Foundation

Proceeds benefit inpatient and outpatient cancer services at The Costas Center at SSM Health Cardinal Glennon Children’s Hospital.

OCTOBER 28, 2017

The Ritz-Carlton, St. Louis

T H A N K YO U TO O U R S P O N S O R S SUNBEAM SPONSORS continued:

Jennifer & Jim Koman

Andrea & Craig LaBarge

Peggy & Jerry Ritter

LIGHT SPONSORS:

Anders, Minkler, Huber & Helm, LLP Margaret & Tim Barrett BMO Harris Bank Christner, Inc. Commerce Bank, N.A.

Deloitte & Touche, LLP

Koller Enterprises

Drury Hotels

Carolyn & Larry Meyer

Edward Jones

PricewaterhouseCoopers LLP

Fifth Third Bank J.H. Berra Construction Company, Inc.

Consort Homes

Proceeds benefit inpatient and outpatient cancer services at The Costas Center at SSM Health Cardinal Glennon Children’s Hospital.

St. Louis Cardinals, L.L.C. Stifel Foundation, Inc.

CORPORATE CORNER

Helping kids in the communities we serve Sandberg Phoenix & von Gontard P.C.

M

edical care is about business and family at the law firm of Sandberg Phoenix & von Gontard P.C. One of the firm’s specialties is health care law, says Rodney Sharp, a senior shareholder and member of the firm since 1988.

“It’s also about personal relationships. It would be difficult to find someone in our office whose life has not been touched

by Cardinal Glennon. I’m sure this is true of most businesses in St. Louis. I am a Glennon dad. One of my daughters was cared for at Glennon and we could not have hoped for a better experience,”

he says. “I know first-hand what a difference Cardinal Glennon makes in the lives of children and their families.”

“Sandberg Phoenix & von Gontard has long been a supporter of SSM Health Cardinal Glennon Children’s Hospital through event sponsorships and other activities,” Sharp adds.

“ Our people have given their time and creative energy to Cardinal Glennon.”

14 • SSM Health Cardinal Glennon Children’s Foundation

Rodney Sharp

“Our partnership with Cardinal Glennon Children’s Foundation dates back to nearly the time when the firm was founded in 1979. Over the years our support has steadily increased,” Sharp says. “And our support goes beyond direct financial involvement. Our people have given their time and creative energy to Cardinal Glennon.

For example, one of our founding

partners, Peter von Gontard, and his wife Susie co-chaired this year’s Glennon Gallop.”

“It was so great to be exposed to the great work that Glennon does and see the care that they provide for kids, and certainly for families that can’t afford it,” says von Gontard, senior counsel for the firm that has represented the hospital for years.

“A presentation about the hospital’s care and patients at the Glennon Gallop brought some people to tears,” he says.

“These kids need a lot of care and attention and they are getting it. It makes you feel so wonderful to be helping.”

Members of the firm and their personal experiences with SSM Health Cardinal Glennon illustrate the nature of the partnership between the law firm and hospital. Conner Willmann, 5, started kindergarten this year. He spent the first 10 weeks of his life in the Dana Brown Neonatal Intensive Care Unit at SSM Health Cardinal Glennon.

“My son was born at 27 weeks. He weighed 1 pound and 6 ounces and was 14 inches long,” says his mother Jackie, a legal administrative assistant at Sandberg Phoenix & von Gontard. “We had our anniversary, Easter and first Mother’s and Father’s days there.

The entire staff was absolutely amazing. Naturally we were worried

Susie and Peter von Gontard

Connor, now healthy and happy at the age of 5, spent the first 10 weeks of his life in the Dana Brown Neonatal Intensive Care Unit at SSM Health Cardinal Glennon.

“W e saw a doctor holding back tears as he talked about how he thinks of every patient as one of his own children.” about Conner, but the quality of care was never questioned.

“He’s here today, healthy and happy, because of them. I have a very special place in my heart for them,” she says.

Sandberg Phoenix & von Gontard has grown to employ about 250 people — including 124 lawyers — at seven offices in Missouri and Illinois.

“One of the most rewarding experiences I’ve had was attending Glennon 101 this year,” Sharp says. “One of the things that impressed me most was the broadness of the geographical area that Cardinal Glennon serves.”

‘Glennon 101: A Day at SSM Health Cardinal Glennon Children’s Hospital’ offers community leaders a behind-the-scenes look at daily life in the hospital.

“What I remember most about that day was seeing the smiles — and sometimes tears — on the faces of the people we encountered,” Sharp says. “We saw a doctor holding back tears as he talked about how he thinks of every patient as one of his own children.

I also remember seeing a neonatologist playing with a patient — the smile on his face and the way he talked softly to the child was very endearing.”

“The legacies of care at SSM Health Cardinal Glennon also are enduring,” he says.

The family and friends of Richie Salinardi Jr. established an ongoing memorial fund benefiting the hospital after he was killed in the Sept. 11, 2001, terrorist attack on the World Trade Center in New York City where he was working.

“When he was growing up in St. Louis, Richie was hospitalized at SSM Health Cardinal Glennon for three weeks to remove a blood clot from his brain after he slipped and fell on ice,” says his brother Jason, a lawyer in the Kansas City office of Sandberg Phoenix & von Gontard.

“If it wasn’t for Cardinal Glennon, we would have lost him when he was 5 or 6.”

“ One of our firm’s values is to invest in and improve the communities we serve...”

“One of our firm’s values is to invest in and improve the communities we serve,” Sharp says.

“We are honored to do that. We hope our partnership with Cardinal Glennon allows us, in some small way, to help kids in Missouri and Illinois.” glennon.org Fall/Winter 2017 • 15

2017

GLENNON SUNDAY T HANK YO U FOR YOUR S U PPO RT

SSM Health Cardinal Glennon Children’s Hospital stands up for life daily, protecting and saving children from the womb to 21 years of age. Many children are flown to the hospital experiencing serious trauma; others come with life-threatening diseases; some are victims of abuse and others are battling cancer or receiving organ transplants... and many babies are fighting for their lives as they just enter the world.

$473,087 The amount Glennon Sunday raised to date in 2017. Thank you!

50

The number of speakers for GLENNON SUNDAY 2017!

Will you speak and be a Glennon Sunday ambassador at your parish in 2018?

For more information please contact Colleen Dolnick at 314-678-6626 or colleen.dolnick@ssmhealth.com.

16 • SSM Health Cardinal Glennon Children’s Foundation

193 The number of parishes in the St. Louis Archdiocese.

S AV E T H E D AT E

2018 Glennon Sunday June 3

$6.2 million Believe it or not, this was the amount of money the St. Louis Archdiocese community raised in the 1950’s to fund the building which led to the opening of the hospital. That’s equivalent to

$54 million today!

2 017 G LE N N O N S UN DAY

200 , 000 The number of children your dollars impact each year at

SSM Health Cardinal Glennon Children’s Hospital. We serve all children, regardless of the financial circumstances of their families. In the early days of the hospital when a family could not pay, it was noted in the ledger books as “ODL,” which means Our Dear Lord’s Care.

96% The percentage of St. Louis Archdiocese parishes that participated in collecting donations for Glennon Sunday this year. Thank you!

23 The number of states that contributed to the Glennon Sunday Appeal in 2017.

Up 16 States in just 2 years!

On behalf of the many children and families who will benefit from your gifts, we sincerely thank you for your prayers and support for God’s precious children on Glennon Sunday –

“Where Faith and Healing Unite” John Cardinal Glennon, was the Archbishop of St. Louis from 1903 to 1946.

It was his mission to see a hospital open to all children in need of medical care.

glennon.org Fall/Winter 2017 • 17

HOMERS FOR HEALTH

WRAPS UP SIX YEARS OF HELPING KIDS! e just wrapped up our sixth year of Homers for Health, a program Matt Holliday and his wife Leslee started for the kids at Cardinal Glennon in 2011. While we all know that Matt has gone to the New York Yankees, we are still counting his home runs for Cardinal Glennon kids! Matt Carpenter eagerly and excitedly stepped into his role as Chairman of the program, along with his new co-chair Jedd Gyorko and returning K’s for Kids co-chairs Trevor Rosenthal and Adam Wainwright.

W

PRESENTED BY: PRESENTED BY:

HOMERS FOR HEALTH

T

hanks to the support of our Presenting Sponsor, Heartland Coca-Cola, it’s been a great year for the kids at Cardinal Glennon. Pledges came in from Australia and 41 states from around the country, raising $4.5 million dollars in just six years!

fourth floor being above the center, it’s only appropriate to have the beach-themed environment above the ocean! This new environment is currently undergoing a transformation to include 18 stateof-the-art rooms with individual bathroom and shower facilities,

Pledges came in from Australia and 41 states from around the country, raising $4.5 million in just six years!

Proceeds from this year’s program will benefit various departments and programs, including the inpatient and outpatient cancer services in The Costas Center.

Thanks to Homers for Health donations, The Costas Center boasts an underwater-themed calming environment – with the

comfortable sleeper sofas so parents can spend the night with their children, an expanded and updated playroom and new family lounge. The floor will also feature the Leslee and Matt Holliday wing, along with the Jason Motte Foundation Treatment Room, complete with Rally

Squirrel catching some waves and tossing a baseball!

We’d also like to thank our additional sponsors, Phillips 66 Petro-Mart, UGas, Mach 1 and Fast Lane stores , Fabick Cat, Alberici Healthcare Constructors, The Gatesworth, Dierbergs, Johnny Mac’s Sporting Goods and the Lids Foundation. We couldn’t be successful without our media sponsors getting the word out to Cardinals Nation for us – A huge thanks to Fox Sports Midwest, KTVI Fox 2, KPLR11, FM NewsTalk 97.1, NOW 96.3, KSHE-95 and the St. Louis Post-Dispatch for all they do for us throughout the year.

To all the new donors and donors who come back year-afteryear, thank you for your continued support of Homers for Health and K’s for Kids. We are looking forward to another exciting season in 2018!

glennon.org Fall/Winter 2017 • 19

HOMERS FOR HEALTH

Homers for Health WRAPS UP SIX YEARS OF HELPING KIDS!

2017

S c a n to w at c h !

HOME RUN DERBY CHAMPIONSHIPS This year’s Home Run Derby Championships were held at Forest Park’s Aviation Fields on Friday, May 12 where 261 winners from 39 schools were coached in the batter’s box by Matt Carpenter, Jedd Gyorko, Trevor Rosenthal and Adam Wainwright.

As participants lined up for the group photo, Carpenter grabbed the megaphone and welcomed all the guests to the event with his co-chairs. From there they went on to start the competition.

“There’s nothing that will touch your heart more than a smile on a kid’s face,” says Carpenter. “To be able to support this and help some kids along the way – that’s why we’re doing it.”

The co-chairs have fun interacting with the kids who took part in the competition, and it is a great way for them to say thank you to them for donating. After he was done with his group Adam Wainwright took the time to high-five every kid he helped in the batter’s box, which was a big hit with the crowd!

Big thanks to the City of St. Louis for waiving our rental fee and spraying the fields, and to the International Association of Firefighters who helped BBQ hamburgers and hot dogs donated by Dierbergs. Also

20 • SSM Health Cardinal Glennon Children’s Foundation

thanks to Coca-Cola for donating the Home Run Derby beverages, Johnny Mac’s Sporting Goods for donating the t-shirts and Mo-Fun for providing the bounce houses. But most of all, thanks to all the schools for helping Cardinal Glennon kids!

44 schools participated in Homers for Health fundraising activities, raising $28,735 for Cardinal Glennon kids. Below are schools that raised $1,000 or more at their school.

Holy Infant School................................. $1,920.00 Hancock Place Elementary School �����$1,902.51 Sacred Heart School ��������������������������� $1,859.00 St. Joseph Cottleville ��������������������������� $1,635.65 St. Gertrude School ����������������������������� $1,305.00 St. Vincent Elementary ��������������������������$1,283.11 Most Sacred Heart School – Eureka �����$1,241.00 St. Mary Magdalen �����������������������������������$1,211.75 Our Lady of Lourdes School ������������� $1,207.36 St. Angela Merici ������������������������������������� $1,115.03

HOMERS FOR HEALTH

2017 HOME RUN DERBY

CHAMPIONSHIPS Thank you to all the schools who participated in helping Cardinal Glennon Kids!

Abiding Savior Lutheran School Annunziata School

Mascoutah Middle School Lovejoy Elementary

St. Francis Borgia Regional High School St. Gertrude School

Christ the King School

Most Sacred Heart School- Eureka

Brennon Wood Elementry

Our Lady of Lourdes School

Saint Joan of Arc School

Freeburg Elementary

Our Lady of the Pillar

Good Shepherd

Our Lady School

St. John Neumann Catholic School

Hancock Place Elementary School

Parkwood Elementary

Holy Infant School Immaculate Conception Old Monroe Kennerly Elementary School

Point Elementary Sacred Heart School St. Alphonsus St. Ambrose Catholic School St. Angela Merici

St. Ignatius of Loyola

St. John the Baptist Catholic School

St. Justin Martyr School St. Mark Catholic School St. Mary Magdalen St. Patrick School St. Paul Catholic School St. Peter Catholic School St. Rose of Lima St. Theodore

St. John the Evangelist

St. Vincent Elementary

St. Joseph Imperial

Ste. Genevieve du Bois

St. Joseph Cottleville

Sts. Joachim & Ann Catholic School

St. Joseph Josephville

West Haven Elementary School

To view photos or make a gift, visit glennon.org/h4h-derby If your school would like to participate in 2018 Homers for Health fundraising activities, please contact Ryan Jennings, Community Outreach Coordinator at 314-678-6622 or ryan.jennings@ssmhealth.com.

PRESENTED BY:

glennon.org Fall/Winter 2017 • 21

GLENNON GALLOP

Saturday, 16 Affair Wine, Dine and DivotsSeptember | A White Hot KRÄFTIG POLO CLUB

PROCEEDS BENEFIT:

DANIS PEDIATRIC CENTER

PRESENTING SPONSOR:

T. Danis Charitable Trust

The Julian & Eileen Carr Family Foundation

AT

GLENNON GALLOP

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n a sunny Saturday, September 16, more than 800 guests filled the Glennon Gallop VIP tent at Kräftig Polo Club, with another 250 guests on field side. The fifth annual event, presented by T. Danis Charitable Trust, benefits the 21,000 patients seen each year at Danis Pediatric Center at SSM Health Cardinal Glennon Children’s Hospital.

Danis Pediatrics sees children, newborn to 18 years of age, and provides a wide range of services.

Pik’n Lik’n took to the stage before the program began, filling the VIP tent with bluegrass music. The tent featured images of our patients hanging from the ceiling, boasted delicious food by Mathew Unger and Bart Saracino of Bartolino’s Restaurants and fine wines by A. Bommarito Wines.

Guests were able to shop Retail Row, featuring fabulous finds from Lularoe, Indigo Homes, The Vault, Hats

by Di-Anne, Giddy Up Jane, Sassy Bull, Great Knots, The St. Louis Fashion Fund Truck, The Normal Brand, Magnolia’s, Hello Dobson and Barrington Saddlery – all who donated a portion of their proceeds to SSM Health Cardinal Glennon.

This year’s lunch chairs were Matt and Ashley Carr and the event co-chairs were Peter and Susie von Gontard and Chrissy and Mike Nardini. Peter von Gontard welcomed the crowd, and celebrated Steve Orthwein’s attendance at the event, who was injured in a polo accident last year. Steve was riding a young horse at his premier Port Mayaca Polo Club in Florida, glennon.org Fall/Winter 2017 • 23

GLENNON GALLOP

GLENNON GALLOP Polo event benefiting Danis Pediatric Center 2017

S c a n to w at c h !

Glennon Gallop

when the horse tripped and both Steve and the horse went down, resulting in his paralyzation from the chest down. Steve and his wife Ginny enjoyed being able to attend the match this year, after a long year of rehabilitation.

Chrissy Nardini shared with the crowd her and husband Mike’s appreciation for Danis Pediatrics after adopting two inner city kids.

It was when she was a Glennon 101 “intern” that she felt her deepest connection to the hospital, a program that brings donors on an in-depth tour, meeting with doctors and caregivers. “From our many years of mentoring inner city kids and adopting our children, we really understand the unique issues that

children growing up in poverty face.

85% of the children served by Danis Pediatrics are in poverty,” she says.

Chrissy Nardini

24 • SSM Health Cardinal Glennon Children’s Foundation

“There is often unimaginable chaos going on in the homes of these children, and these doctors and nurses have to not only address the physical health, but take note of the emotional issues going on in the family as well. And they do all this in a space that was designed for 5,000 patients annually, which is currently being used for 21,000 patients annually instead. Your support of this event is not only much appreciated, it is also much needed,” she continued.

From there, auctioneer Adam Jokisch began the Fund-A-Need, which included a matching gift of $50,000 from the Jerry and Judy Kent Foundation. Guests held up bid cards to bid on amazing live

GLENNON GALLOP

auction items such as a private jet golf trip, an Annie Gunn’s dinner for 8 prepared by renowned chef Lou Rock III, a trip to Tuscany and a private cabaret party by our very own Dr. Ken Haller who gave a performance on stage to promote the party.

After the program the opening ceremonies began with a parade of BMW cars crossing the polo field, courtesy of BMW of West St. Louis.

Tim Danis threw out the ceremonial ball and Team Crenshaw Lighting and Team Sansone Group began the match. Guests enjoyed the always popular Cardinal Glennon Divot

Stomp, sipping champagne brought out to them from a hay-filled wagon.

Congratulations to Team Crenshaw Lighting for winning the polo match!

“There are a lot of people here today that are here for the sole purpose of supporting Danis

Pediatrics,” Peter von Gontard says.

“And the reason for that is because of all the good work that they have done and all the good work they are going to do because of everyone here today. The support has been unbelievable.”

SSM Health Cardinal Glennon Children’s Hospital staff in attendance

glennon.org Fall/Winter 2017 • 25

“ From 3 years old until I was 6, I was in the hospital pretty much all the time.

There are lots of memories — shots, chemotherapy, spinal taps, bone marrow aspirations, total body irradiation and a few surgeries.

Glennon makes a bad situation a little more comfortable. I have known a lot of the nurses for 20 years. They love their jobs. They have had birthday parties for me. I know who is going to see me and I trust them.”

Glennon gave me a “chance to say I do! ”

—J oey Renick, Cancer Survivor & Newlywed

GLENNON GIVES

hope

GIVE TO GLENNON at glennon.org

SAVE

THE DATE

FASHION SHOW, BOUTIQUES & COCKTAIL PARTY 4 - 8 pm FEBRUARY 16, 2018 THE NEWLY RENOVATED RITZ-CARLTON | ST. LOUIS PROCEEDS BENEFIT:

COMPLEX CARE

COMPLEX CARE

Aline Tanios, MD, co-director of the Complex Medical Care Program, plays with Margot Stearns, one of the program’s patients.

Offering Peace of Mind SSM Health Cardinal Glennon’s Complex Medical Care Program Erica Stearns still remembers the profound statement that one of the doctors involved in her daughter’s care told her: “You don’t have to be mom and nurse and therapist 24/7.

We are here so you can focus on just being MOM.” “What she told me was huge, because I was really trying to do it all at home and I finally realized, I just couldn’t,” says Stearns.

Margot Stearns in the NICU at SSM Health Cardinal Glennon Children’s Hospital.

COMPLEX CARE

E

rica’s daughter, Margot, has a rare congenital disorder that, to this day, still has no name. She was diagnosed with congenital brain malformations and had no hair anywhere on her skin when she was born in May 2016. When she arrived after a long childbirth at a hospital in Carbondale, Ill., Erica and her husband, Randy Stearns, knew immediately that something was wrong.

“She was stuck in the birth canal for more than four hours,” says Erica. “When she was finally born, she did not cry and her body was completely limp. Soon after, I noticed that her muscles were contracting in an unusual way. I just knew something wasn’t right.”

Margot started having subtle seizures soon after that progressively worsened over the next 24 hours. “She had only seconds in between her seizures,” Randy recalls. “They occurred almost constantly.”

Margot was transferred three hours away to St. Louis, first to one hospital and then to SSM Health Cardinal Glennon Children’s Hospital. In the early stages of her care, she was on five different seizure medications and her treatment team included multiple

Front Row, Sitting, Left to right: Michelle Piole, CPNP; Aline Tanios, MD; and Mary Howell, CPNP Back Row Standing, Left to Right: Juanita Allmon, RN, BSN; Kurt Sobush, MD; Katy Carter, RD; Nick Anglim, PharmD; Jennifer Reinard,LCSW, MSW; Erin Hooper, MSN; and Whitney Nolden, Complex Care Coordinator Assistant

other families, coordination of complex care plans often becomes overwhelming. That’s why, in April 2016, SSM Health Cardinal Glennon established its Complex Medical Care Program.

The program team includes physicians and nurses as well as a social worker, dietitian, pharmacist, respiratory therapist and care coordinator, all of whom are experienced in complex medical care issues. pediatric specialists in neurology, genetics, ophthalmology, general surgery, dermatology, nutrition and therapy services.

Just juggling the treatment plans, the clinic visits, the therapy sessions and phone calls, as well as everything else in Margot’s young life, is a monumental task for her parents. For them and many

The program team includes physicians and nurses as well as a social worker, dietitian, pharmacist, respiratory therapist and care coordinator, all of whom are experienced in complex medical care issues.

“We can coordinate a child’s appointments and serve as a patient advocate if the family

needs one,” says program manager Mary Howell, MSN, RN, CPNP. “It gives parents the opportunity to go back to being a parent of their sick child without having to spend all of the time and energy that medical scheduling requires.”

For each patient, the team creates individualized health plans (IHPs) that are accessible to all providers. The team also coordinates office visits and laboratory tests as well as medical care services between the hospital, outpatient facilities and home.

“Prior to having an IHP, we would spend an excruciating amount of time reviewing Margot’s history with nurses and doctors who were not familiar with her,” says Erica. “This was devastating in emergency situations when our brains were already running at maximum capacity just trying to keep our baby alive. Now we simply hand over Margot’s IHP and

glennon.org Fall/Winter 2017 • 29

COMPLEX CARE

COMPLEX CARE Offering Peace of Mind Neurology, genetics, ophthalmology, general surgery and dermatology are just some of the subspecialty services that Margot receives.

all pediatricians, subspecialty groups and community colleagues.

With one phone call, we provide a central contact for families to access all of their services.”

“It’s a huge de-stressor and relief,” says Erica. “Margot’s home care requires 100% of our time and attention. It is tedious to carve out time to make multiple phone calls in efforts of finding the right person to get a question answered.

Now, I make one phone call to the Complex Medical Care Program and they quickly handle the rest.”

Erica Stearns created small sensory toys to engage Margot at playtime.

the staff has all the information necessary to quickly and safely facilitate care to our fragile daughter.”

“We are taking advantage of more than a decade’s worth

of research that has focused on how to improve outcomes for children with medical complexity,” says SLUCare pulmonologist Kurt Sobush, MD, medical co-director of the Complex Medical Care Program.

“We know that their care tends to be more fragmented, sometimes is unnecessarily duplicated, more often than not is provided in an emergency, and results in frequent hospital admissions. Our program is designed to help minimize poor outcomes, improve care coordination and potentially help reduce the medical costs associated with such escalated care.”

Families who may be considered for enrollment in the program: • Have a child who is 10 years old or younger • Have a child who has frequent or extended hospital stays • Have 4+ subspecialists involved in their child’s care • Are not already receiving care coordination through a diseasespecific multidisciplinary team “Partnership is the key with this program,” says Aline Tanios, MD, a SLUCare pediatric hospitalist and medical co-director of the program. “We work closely with

30 • SSM Health Cardinal Glennon Children’s Foundation

“It’s been a great program for us,” says Randy. “Comfort for Erica and Margot is important because it’s peace of mind for me.

The specialists here have really been more like an extended family for us and we are so grateful for that.”

Dr. Tanios has been a strong advocate in helping Erica and Randy coordinate Margot’s care.

“We love her!” smiles Erica. “She’s amazing. She was the first doctor that truly looked at Margot as a whole person instead of just focusing on one aspect of her medical care. She’s the one who told me to take the time to be the mom and assured me that the team would help me with everything else.”

Currently, SSM Health Cardinal Glennon has more than 150 kids enrolled in the Complex Medical Care Program. Thanks to the team’s help, Margot has been out of the hospital for the past several months, with Erica and

COMPLEX CARE

Randy caring for her at home. As doctors continue to hone in on the mystery behind all of Margot’s medical problems, Erica savors the moments when she sees Margot’s smile. She even has made special sensory toys that she has found stimulates Margot’s attention.

“I made these after she was discharged from the intensive care unit,” she says as she holds a soft bird made of fabric in front of her child. “The shape helps Margot with grasping things, therapeutically stretching her hand and thumb wide open. The bright contrasting colors and patterns provide excellent visual stimulation, while the subtle sounding rattle inside catches her attention.”

Erica vividly recalls when she received gifts that were donated by other NICU families, such as a quilt or hat. Each came with a story honoring an illness overcome or a memory of a child. “I read those stories often while we were in the hospital,” Erica says with tears in her eyes. “My goal is to deliver enough little birdies for all the families here in the NICU or enrolled in the Complex Medical Care Program. This is my way of paying it forward while also celebrating

Erica and Randy Stearns say the Complex Medical Care Program offers them peace of mind when caring for Margot.

and sharing my daughter’s resilient journey in hopes that it gives families the same comfort that I once found in the stories that were shared with me.”

“It’s been a great program for us,” says Randy. “Comfort for Erica and Margot is important because

it’s peace of mind for me. The specialists here have really been more like an extended family for us and we are so grateful for that.”

For more information about the Complex Medical Care Program, call 314-268-6492.

glennon.org Fall/Winter 2017 • 31

COMPLEX CARE ICU

S c a n to w at c h !

2017

COMPLEX CARE I C U Watch Video

Breathing Easy

New Technology Breathes New Life Into Patients Two-year-old Kevin Lowery smiles as he

before and now we finally are seeing his

reaches for the ball his parents gave him

personality and seeing what he likes and

for his birthday.

what he wants to do. It’s really amazing.”

“This is so awesome,” says Kevin’s father, Dave. “He’s never played with a ball

SLUCare critical care medicine specialist Dr. Jason Werner says charitable donations helped him to buy a special ventilator that turned Kevin Lowery’s life around.

T

he simple act of playing with a ball might not have been possible without the help of a special device that enables Kevin to breathe easier.

Called neurally-adjusted ventilator assist, or NAVA, the system has a unique sensing mechanism that detects electrical activity in the diaphragm whenever a patient wants to take a breath and then helps the patient breathe at exactly the right time.

“It’s a miracle,” says Jennifer Lowery, Kevin’s mother. “It’s lifechanging. It really changed our lives — and Kevin’s — immediately.”

Kevin was born 14 weeks premature when Jennifer had to undergo an emergency cesarean section after she had an abruption, a condition in which the placenta separates from the inner wall of the uterus prior to delivery. That was preceded by a sudden increase in her blood pressure due to preeclampsia.

With underdeveloped and malformed lungs, only one functional kidney and two holes in his heart due to a complex congenital heart condition, Kevin

was critically ill from the moment he was born and was immediately transported to SSM Health Cardinal Glennon Children’s Hospital.

“I almost lost Jen and I almost lost our baby,” says Dave with tears in his eyes.

The game-changer in the design of the NAVA is its ability to sense when Kevin wants to breathe.

Kevin struggled to breathe on his own. He was first placed on a mechanical ventilator, which is programmed to push a breath into a patient’s body at set intervals.

But Kevin frequently coughed or gasped at the same time the ventilator tried to push oxygen into his body.

“As you can imagine, when the machine is breathing in a different manner than what they are trying to do for themselves, it’s very distressing and many children are unable to tolerate that,” explains Jason Werner, MD, a boardcertified SLUCare pediatric critical care medicine specialist at SSM Health Cardinal Glennon.

The game-changer in the design of the NAVA is its ability to sense when Kevin wants to breathe.

During normal, spontaneous breathing, the brain sends an electrical impulse to the diaphragm to contract the muscles and pull in air. NAVA continuously monitors for that signal through special sensors and delivers a breath to Kevin at the same time that the signal reaches his diaphragm. The coordination between Kevin’s body and the machine is so precise that NAVA can customize the amount of air needed based upon his own intention.

glennon.org Fall/Winter 2017 • 33

COMPLEX CARE ICU

Jennifer and Dave Lowery say “Super Kev” is doing great after being transitioned to a pediatric bridge rehabilitation hospital and may go home before the end of the year.

“To keep them breathing regularly, we have to keep patients deeply sedated, which blocks the signal from their brain to their muscles.

It also means that they can’t really interact with the world around them at all.”

For Kevin’s parents, that meant their baby boy was in a medically induced coma for long periods of time just to allow him to breathe.

The cycle went on for months. “If he was awake and trying to exhale while the ventilator was trying to push air in, he would turn blue because he couldn’t catch his breath,” says Jennifer. “But he also couldn’t breathe on his own.”

Just before Kevin turned 1 year old, Dr. Werner brought in a NAVA device on loan from Maquet, the manufacturer. Kevin was the second child to use it.

“Absolutely, there was an immediate benefit,” Dr. Werner says. “With NAVA, Kevin no longer had to be sedated. He was able to be awake and alert, he could move around, smile and interact with his family and play with his toys.”

COMPLEX CARE ICU

COMPLEX CARE ICU Breathing Easy Music’s going to be a big part of his life, I think!”

Adds Jennifer, “To have that opportunity to be on the NAVA ventilator changed Kev’s life. He’s here today, able to do what he can do because of that. He gets to be a kid now.”

Dr. Werner agrees. “If anyone wants to know if their donations to the Foundation ever make a difference, they only have to look at Kevin.”

Dave looks fondly at his wife and son. “With all of the things Kevin had going on, we didn’t know when, or even if, he was going to come home,” he says softly. “We now have a lot to look forward to.

Kev’s got his whole life ahead of him.”

Thanks to the NAVA device, Kevin Lowery’s lungs got stronger and he was able to transition to a traditional ventilator and play with his toys.

“For example, if a baby is asleep and wants to take a nice, deep breath, the ventilator gives him that,” explains Dr. Werner. “Or, if I go, ‘Boo!’ and the baby gasps, the ventilator gives them a nice sharp breath.”

patient in the intensive care unit because it’s more comfortable and is significantly better than the mechanical ventilators we otherwise have.”

After celebrating his second birthday while in the hospital,

“If anyone wants to know if their donations to the Foundation ever make a difference, they only have to look at Kevin.”

The device worked so well that Dr. Werner and his colleagues applied to the SSM Health Cardinal Glennon Children’s Foundation for funds to purchase a NAVA unit, which costs about $65,000 each.

They also have rented or borrowed additional devices as needs arise.

“We see several patients with chronic lung disease each year, so our NAVA hasn’t been out of use for more than a few days since we acquired it last year,” says Werner.

“If money were no object, I would provide this technology to every

Kevin has transitioned to Ranken Jordan Pediatric Bridge Hospital.

He has been weaned off of the NAVA device and now is learning to use a traditional ventilator as he continues to recover and gain strength to go home.

Jennifer and Dave now have big plans for their young son.

“He’s going to be a musician,” says Dave with a laugh. “My wife and I met in band and we both play instruments. We’re going to teach him to play the piano and guitar.

34 • SSM Health Cardinal Glennon Children’s Foundation

“Super Kev” spent his first two years at SSM Health Cardinal Glennon.

Nationally ranked care for kids.

SSM Health Cardinal Glennon Children’s Hospital has over 200 of the best pediatric experts in St. Louis, practicing across more than 60 specialties.

Children across the St. Louis region have access to the best care possible, with the region’s top two pediatric heart surgeons and nationally ranked programs in cardiology, gastroenterology and nephrology.

Here if you need us.

In case of an emergency, SSM Health Cardinal Glennon pediatric experts can be found at the following hospitals: >> SSM Health DePaul Hospital - St. Louis >> SSM Health St. Clare Hospital - Fenton >> SSM Health St. Joseph Hospital - St. Charles >> SSM Health St. Joseph Hospital - Lake Saint Louis >> Anderson Hospital - Maryville, IL >> HSHS St. Elizabeth’s Hospital - Belleville, IL

cardinalglennon.com

glennon.org Fall/Winter 2017 • 35 ©2017 SSM Health. All rights reserved. STL-STL-16-168874 8/17

Bring joy to thousands of kids this Christmas

E

ach day during the holidays, wide-eyed kids rise from their beds and head to our atrium with their caregivers to receive a message from our Tree of Hope. These inspirational messages, held in a sparkling treasure chest, scrolled in colorful thumb bands and handwritten from thousands of members in our community, bring joy and hope to the children in our care. e hope you will take a moment to write a message of hope and make a gift.

W Learn more at glennon.org.

GIVE TO GLENNON at glennon.org

POWERED BY:

Help us bring HOPE to our patients and their families!

While kids and parents are in the hospital dealing with injuries, illness or recovery, big hopes are often replaced with hope for some simple things, like a good night’s rest, a day with less pain, or just to know that someone is thinking of them. In your own words below, write a simple, uplifting “Message of HOPE”. It can be for a child OR a parent, and feel free to decorate it! Your creativity and positive thoughts may be just what the doctor ordered!

Thank you for your Message of HOPE!

glennon.org

Help us bring HOPE to our patients and their families!

While kids and parents are in the hospital dealing with injuries, illness or recovery, big hopes are often replaced with hope for some simple things, like a good night’s rest, a day with less pain, or just to know that someone is thinking of them. In your own words below, write a simple, uplifting “Message of HOPE”. It can be for a child OR a parent, and feel free to decorate it! Your creativity and positive thoughts may be just what the doctor ordered!

Thank you for your Message of HOPE!

GIVE HOPE to a child at

g l e n n o n .o r g

glennon.org

SUN RUN 5K/FUN RUN

Sun Run Watch the Video

S c a n to w at c h !

P R E S E N T E D BY:

S U N D AY, S E P T E M B E R 2 4 , 2 0 1 7 Ballpark Village

SUN RUN 5K/FUN RUN

T

he inaugural Sun Run for Cardinal Glennon kids was a huge hit, thanks in part to our presenting sponsor, Walgreens. On Sunday, September 24, more than 1,600 runners came out to participate in the first year event, a 5k and 1 mile fun run to benefit the patients and families of SSM Health Cardinal Glennon Children’s Hospital.

The day started off with Utopia Entertainment spinning the tunes for the crowd as they gathered to get ready to start the race. Emcees John Brown of KTVI Fox 2 and Julie Tristan of 103.3 KLOU took to the stage to welcome and introduce honorary chairperson Olympic Gold Medalist Lori Chalupny.

Chalupny, a native St. Louisan, shared her story of her high school friends Mary and Colleen McDermott, twin daughters of Board Member Bill McDermott, who were born prematurely and underweight.

After birth, they were transported to SSM Health Cardinal Glennon. Mary underwent three heart surgeries and two liver operations as a child and

SUN RUN 5K/FUN RUN

SUN RUN 5K/FUN RUN 2017 passed away in December of 2008 at the age of 24.

“I think it speaks to just how important Cardinal Glennon is to this city,” said Chalupny. “There are so many people impacted by the great work that they do.”

Utopia DJ’s led the crowd in dance, leading up to the countdown by patient Evie Morgan and her brother Gavin to kick off the race. The 5k route started at Ballpark Village, made its way through downtown and Laclede’s Landing and along the beautiful St. Louis riverfront, ending back at Ballpark Village for the awards ceremony. Water stations were placed throughout the route and patient families and volunteers kept the runners well-hydrated, while

also encouraging them along the way. The highlight of the day was watching the kids play with the bubble machines at the finish line and in front of the stage, thanks to C. Joseph Dodge Chrysler Jeep.

SSM Health Cardinal Glennon grateful mom Jen Lowery says, “Cardinal Glennon has done so much for our son Kevin and it has been such a part of our life for the last two years, so how could we not be a part of the first ever Sun Run when they have done so much for us?” Her husband David adds, “It will be a new tradition for us every year.”

We couldn’t pull this day off without our tremendous sponsor support. Along with Walgreens, we are grateful to our additional

sponsors, The Gatesworth, McBride & Sons, McKelvey Homes, Kaiser Electric, Dewey’s Pizza, Orangetheory, Simmons Foundation, Site Systems, First Bank, Northwestern Mutual, Agape Construction Company, C. Joseph Dodge Chrysler Jeep, Phoenix Home Care and the Lawrence Group.

A huge thanks to Sodexo for donating bagels, granola bars and fruit, Prairie Farms for donating dairy products, Companion for donating pretzels and AnheuserBusch for donating Michelob Ultra. And special thanks to Fleet Feet Sports and the Sun Run Committee for helping us pull of this spectacular day for Cardinal Glennon kids!

Of the 90 teams formed for the Sun Run below are our top fundraising teams:

PwC $7,603 Luke’s Skywalkers

$6,750

Team TCU

$2,801

CONGRATULATIONS!

WOMEN’S DIVISON:

BARB LEONARD

SUN RUN 5K/FUN RUN

MEN’S DIVISON:

MIKE FERGUSON

INTEGRATIVE MEDICINE

S c a n to w at c h !

Watch the video

Dr. Anu French checks Meredith Schwalb during her latest “whole health” appointment.

Integrative Medicine

Modern Medicine

+ Time Honored Practices I N T E G R AT I V E M E D I C I N E

Many health and healing practices, some quite ancient, have long co-existed outside the definitions of modern Western medicine. An emerging specialty called “integrative medicine” combines Western medicine with proven aspects from complementary and alternative fields.

42 • SSM Health Cardinal Glennon Children’s Foundation

Photo Credit: Arizona Center For Integrative Medicine

INTEGRATIVE MEDICINE

A

nu French, MD, FAAP, ABOIM, a pediatrician at SSM Health Cardinal Glennon Pediatrics at the SSM Health DePaul Hospital campus in Bridgeton says, “Holistic medicine is based on anecdotal evidence, which is not bad but is simply not enough. Integrative Medicine is practiced with research and evidence behind it.”

“In integrative medicine we take the best of research and evidence-based complementary, holistic or alternative medicine and integrate it into the practice of modern pediatrics,” she says.

“We look not just at symptoms but at root causes so we don’t have a revolving door of treating symptoms that keep coming back.”

Dr. French, in practice for 22 years and a SSM Health Cardinal Glennon Children’s Hospital pediatrician for 17 years, is boardcertified in pediatrics by the American Academy of Pediatrics

Andrew and Aiden Ruff benefit from Dr. French’s healthy lifestyle practices.

The National Center for Complementary and Integrative Health, formed in the US National Institutes of Health in 1992, defines complementary therapies as evidence-based health care approaches developed outside of conventional Western medicine

“Integrative medicine is healing-oriented medicine that takes account of the whole person — mind, body and spirit — and includes all aspects of lifestyle.”

(AAP) and completed a fellowship at the Center for Integrative Medicine at the University of Arizona. She is also board-certified in integrative medicine by the American Board of Physician Specialties and was one of the first 120 doctors to sit for that examination in 2014. Dr. French is a member of the AAP Section of Integrative Medicine and a contributing author of its clinical policy statement, “Mind-Body Therapies in Children and Youth.”

“Dr. French is on the cutting edge of medicine,” says David Lloyd, director of SSM Health Cardinal Glennon Primary Care Services. “There is more medical literature about complementary practices being successful. It is amazing what things like lifestyle and diet can do for health.”

that are used in conjunction with conventional care.

“Integrative medicine is healing-oriented medicine that takes account of the whole person — mind, body and spirit — and includes all aspects of lifestyle,” Dr. French says. “It emphasizes the therapeutic relationships and makes use of all appropriate therapies, both conventional and alternative, to achieve optimal health.”

Andrew Ruff appreciates the benefits his children have received from Dr. French’s integrative approach. “The boys are in excellent shape with the suggestions we have been given and also with not going too far with it.”

Sons Andrew, 10, and Aiden, 6, play football, wrestle and run track. Daughter Aubrey, 1, recently suffered an ear infection and was prescribed antibiotics, probiotics and dietary changes.

“There are more options now than just running to the pharmacy. I also run to the grocery store,” says their mother, Dominique Wilford.

“When Andrew was having trouble focusing she suggested meditation.

Her approach is to go holistic before she goes anywhere else.”

Entire families often adopt her recommendations. “We try to encourage a healthy lifestyle from the beginning. The focus is on nutrition, sleep and exercise,” Dr. French says. “We then build on that with herbs, botanicals, supplements and vitamins that are Consumer Lab-approved. We can use essential oils, massage, yoga, mindfulness, acupuncture, acupressure, guided imagery, music therapy, art therapy, pet therapy, homeopathy, Ayurveda and Chinese medicine.

“There is a whole other toolbox we can bring with evidence for those tools in the literature.”

If you would like to learn more about Integrative Medicine contact Dr. French at 314-344-6021.

glennon.org Fall/Winter 2017 • 43

MUSIC THERAPY

Sing with me!

Music therapy raises the spirits of Cardinal Glennon kids

When Daniel Stone is feeling well, “He enjoys opportunities to be with his friends,” says his mother, Linda Stone. “At Triad High School, he is involved in student clubs, manages the boys’ basketball team and plays on the tennis team. During Daniel’s illness, this all changed. He was very withdrawn and not connected with reality. This isolated us from him.”

During a visit with music therapist Kelli McKee, Daniel was encouraged to tap a percussion line as she played a ukulele and sang a song.

“He played right along, lost in the music,” his mother says. “He was smiling.

He was making eye contact and staying engaged. He isn’t with us all the time. She was able to bring him back out.”

D

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Musical magic

glennon.org Fall/Winter 2017 • 45

MUSIC THERAPY

She visits patients with a cart loaded with percussion instruments, electronic drums and keyboards, a guitar and banjos.

Her mini-concerts emphasize family participation.

“They are encouraged to play anything they are drawn to. I love seeing them experiment and explore instruments they likely have never seen before,” McKee says. “They’re so curious and so engaged they want to try every single Music Therapy instrument and we often do. That’s really fun. When the kids are singing songs and playing instruments I often see a difference Kelli McKee and her ukulele bring fun and diversion to D.J. Adams in their affect from during one of his morning dialysis treatments. when I walked in.”

The music with a child because their levels aniel, 19, is one of hundreds therapy program of patients who have been of interest and enthusiasm and was stocked with visited by music therapist energy are amazing. Some of them a wide variety of Kelli McKee, MA, MT-BC, who have been sitting in a dialysis instruments through donations joined the staff of SSM Health chair for hours or a hospital room to SSM Health Cardinal Glennon Cardinal Glennon Children’s for months. Being able to offer Children’s Foundation. Some Hospital last year. something that may improve their patients are given their own CHARGE syndrome is a set of quality of life is an honor.” instruments thanks to gifts from birth defects, medical problems McKee is the Midwestern two national organizations, and developmental issues caused representative to the national The Ukulele Kids Club, based in by a genetic mutation. It occurs Plantation, Fl., and The Blue Star advocacy committee of the about once in every 10,000 births.

Connection, a charity started by American Music Therapy Daniel has been visiting doctors at the Grand County Blues Society Association. She plays piano, SSM Health Cardinal Glennon since in Colorado. guitar, ukulele and percussion his family moved to nearby Troy, Ill. The music therapy program will instruments and is learning to play 12 years ago. benefit from proceeds of the 34th mandolin and harp.

A special moment in Daniel’s Annual Glennon Golf Classic held “I have a fairly gentle, soft life unfolded during a visit with September 8 at Columbia Golf Club voice which seems to lend itself McKee, Linda says. “There was in Columbia, Ill. pretty nicely to a a refrain in a song that kept bedside situation,” repeating. Kelli said, ‘Come on she says. “I use my Daniel, sing with me.’ And he did! That was the first time I voice and ukulele most have ever seen him sing. I will often. Ukuleles have always remember the soothing a timbre that seems sound, seeing him participating to lift spirits and it’s and smiling.” so small I can easily maneuver around a bedside or a floor mat.

“It gives me goosebumps It’s also small enough sometimes,” says McKee, who to be accessible and earned a master’s degree in music not intimidating to a therapy at New York University.

“There’s nothing like making music small child.”

MUSIC THERAPY Kelli has found that children enjoy hearing and playing the ukulele for its small size and sweet sound.

The ministry of healing

“Cardinal Glennon was engaged in family-centered care from its earliest days. Familycentered care didn’t become a big thing in health care until quite recently, but Glennon’s founders, early physicians and caregivers and leaders identified engaging the family as a critical component to the ministry as well as the medical healing,” says Steven Burghart, president of SSM Health Cardinal Glennon and a member of the board of directors of the Ukulele Kids Club.

“Music therapy is a priority because children live in the hospital on average for a week to 10 days. Many children are with us for months at a time or come intermittently so music can provide an occupational, tactile therapy for children with injuries,” he says.

“Many children use it as therapy for talking through their illnesses or injuries and coping. They can write their own songs or just listen to and play songs that are meaningful for them.”

“Empirical experience has shown that music therapy does make a difference in the quality of life of the kids we serve,” McKee says. “The definition of

Hospital leaders join Kelli to jam with instruments donated to the music therapy program.

music therapy is the use of music by an acredited professional in establishing a therapeutic relationship to work on things like normalizing the hospital experience and assisting with depression, anxiety or pain management and reducing isolation.”

Shermini Saini, MD, SLUCare pediatric hematologist/oncologist at SSM Health Cardinal Glennon and assistant professor of pediatrics at Saint Louis University School of Medicine, personally believes in the value of music.

“When life gets really stressful, there are some types of music that can help me relax and take me to a peaceful place and a calmer state of mind,” she says. “Kids who are in the hospital for a long period of time miss their family, they miss their school, they miss their friends.

Having a music therapist spend time with them one-on-one helps the time go by faster. It gives them a creative outlet and a distraction and makes being in the hospital a little more fun.”

Performing solo

McKee encourages patients to write their own songs and play instruments in her cart.

She integrates their lyrics into a recognizable tune. Music therapy

46 • SSM Health Cardinal Glennon Children’s Foundation

may impact children long after they have departed SSM Health Cardinal Glennon.

“We’re not necessarily trying to teach kids to become the next Beethoven,” McKee says. “However, gifts to our program enable us to occasionally give patients instruments they can take home and keep. Some children seem particularly drawn to music or have expressed interest in learning how to play. It is hoped that when they are given an instrument of their own, some encouragement and a handful of basic chords, it will inspire an ongoing love for music.”

“Cardinal Glennon has been wonderful for us,” Linda Stone says.

“People have a genuine interest in Daniel. They truly care for him.

That means the world when you want your child to feel better. The medicine is fantastic, but I think they also are caring for our souls and connecting with whom we are deep down.

“Music therapy helps to take care of the full person. It makes connections that medicine and doctors and family members can’t reach. Music is the rhythms and beats of life. Music therapy keeps us moving forward.”

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GLENNON KIDS

D.J.’s Second Family

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hird-grader D.J. Adams is great at math. “He has won trophies and certificates in math. I don’t know where he gets that — his parents hate math!” says his mother, Andrea Dodd.

But she knows the source of another of his outstanding traits.

“He talks A LOT. He picks that up from me because I never could be quiet when I was a kid, either!”

D.J., 9 years old, also runs like the wind with a prosthetic leg below his right knee, his mother says. “He has been walking on it since he was 15 months old. He can go where he has to go and he is very quick.”

D.J. visits the hospital three mornings a week for kidney dialysis. Eventually he will receive a kidney transplant.

SSM Health Cardinal Glennon Children’s Hospital has been the family’s second home since D.J. was born with a number of issues, including a cerebral hemorrhage, a

births. “We were in the neonatal intensive care unit for three months.

He has at least seven specialists here,” Andrea says. “All of our doctors are little angels. The nurses

“ All of our doctors are little angels. The nurses will go the extra mile to make sure your baby is comfortable and they take care of you as well.” perforated anus and scoliosis. His right leg ended below the knee.

His major diagnosis was caudal regression syndrome — abnormal fetal development of the lower spine, which occurs once in 25,000

48 • SSM Health Cardinal Glennon Children’s Foundation

will go the extra mile to make sure your baby is comfortable and they take care of you as well.”

For two years D.J. has been visiting the hospital Monday, Wednesday and Friday mornings

for kidney dialysis. “This is his life,” his mother says. “He has no kidneys. He will need a kidney transplant but he is not listed yet.”

D.J. is one of 15 or 16 patients who visit the dialysis unit regularly, usually three days a week, says Lynn Yates, RN, unit coordinator. “Our goal is to get them to transplant, which usually takes a year and a half to two years. We develop relationships with our families that are very deep and special.

The relationships really don’t end after they go on to transplant.”

By the grace of God D.J.’s anomalies were diagnosed 31 weeks into pregnancy. “It was overwhelming. I didn’t know what to expect and I didn’t know how we

were going to adapt to this,” Andrea says. “More importantly, we didn’t know how we were going to live our lives and give him a good quality of life. It was emotional and stressful, D.J. with his mother, Andrea but by the grace of God he made it. If it wasn’t for Cardinal Glennon I don’t believe he’d be alive today. They’re not only good healers but they’re good at keeping a family upbeat and together.”

Ronald Adams, D.J.’s dad, agrees. “We go through a lot with him but we know we could’ve seen much worse. I thank God and Cardinal Glennon for helping him so it isn’t as bad as we thought it would be.”

around other children. He likes school work,” she says.

“He knows he’s different. We try to do our best, without getting too emotional, to explain what he is going through and why. We try not to shelter him. We let him live normally and do what other kids do.

He likes to have fun. He likes to play video games. When other kids are around he is playing with them.”

Other kids can be curious about that prosthetic leg, Ronald adds. “Sometimes he wishes he didn’t have it, but they’re kids

“ If it wasn’t for Cardinal Glennon I don’t believe he’d be alive today.

They’re not only good healers but they’re good at keeping a family upbeat and together.”

Despite all the odds he has faced, his mom says, D.J. loves his life, his friends and his school, Dunbar Elementary in East St. Louis, Ill. “God gave him to us. We didn’t think we could handle it but we’re handling it well. Everything he does is normal to us. He likes being With or without his prosthetic leg, D.J. has learned how to get around — fast.

so there really isn’t anything you can say. But he’s popular and the whole school loves him.”

D.J. also is popular at his hospital. Susan Fleming, RN, and Francine Graham, RN, have been his dialysis nurses throughout his treatment.

“Our kids worry about our nurses sometimes,” Yates says.

“I have seen D.J. ask his nurse if she was doing okay when he thought she wasn’t feeling well.”

“This is our second family,” Andrea says. “They saved our baby.

They mean everything to us.”

glennon.org Fall/Winter 2017 • 49

COMING FEB RUARY 3, 201 8 TO T HE HYATT R E GEN CY ST. LO UIS AT TH E A RCH

STARRING: THE DOROTHY AND LARRY DALLAS HEART CENTER

DIRECTED BY:

2 017 AM B ASSA D OR C H O ICE AWA R DS

Ambass on

patient coordinator at SSM Health Cardinal Glennon Children’s Hospital.

“It’s an important part of healing to be able to express gratitude. Our parents and former patients give back to the hospital in a variety of ways, but this event is the most public and impactful way that they have chosen to express gratitude.”

BA CK

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“Tonight we celebrate the people behind our Mission – the people behind the care and the healing presence of God - that make Cardinal Glennon a special place,” says Laura Wulf, grateful

2017 ACA’s

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For more information, visit glennonambassadors.org

Glenn

G R AT E F U L FA M I L I E S R E C O G N I Z E T H E E X C E P T I O N A L C A R E O F S S M H E A LT H C A R D I N A L G L E N N O N C A R E G I V E R S

NG FAM IVI ILIES G

The sixth annual Ambassador Choice Awards were presented July 27 among more than 500 grateful family members, hospital staff, and friends in the Joseph Schulte Theatre at St. Louis University High School.

“Throughout the year, we encourage our families to tell us, ‘Who or what was above and beyond and made a significantly positive difference during your stay?’” Wulf says. “It’s these stories that take the form of ‘nominations’ for this event, and ALL nominees enjoy an evening of gratitude that celebrates their careers and commitment to exceptional care.”

All ACA nominees are celebrated

Scan to watch!

in true “Oscar-like” fashion with a walk of fame, swag bags and more; however, special awards are also given in various categories and are revealed during the program.

“I am so proud to join our grateful families in helping this event come together,” says Sandy Koller, vice president of philanthropy for SSM Health Cardinal Glennon Children’s Foundation. “The Ambassador Choice Awards gives our families a very public opportunity to acknowledge the caregivers that have impacted their lives so deeply.”

The 2017 Ambassador Choice Award recipients are on the following pages.

ARE YOU A GRATEFUL FAMILY MEMBER? If you wish to share your story, express gratitude to your caregivers at SSM Health Cardinal Glennon, volunteer, fundraise, or support other families, we invite you to be part of Glennon Ambassadors.

Ambassadors support the hospital at their own comfort level, interest and schedule.

For more information, visit glennonambassadors.org or contact Laura Wulf at 314-678-6635 or laura.wulf@ssmhealth.com.

2017 AMBASSADOR CHO HERITAGE AWARD FOR LIFETIME ACHIEVEMENT Mary Howell, MSN, CNS, CPNP

“Last year we were in a terrible wreck. I called the hospital and asked for my son’s team of doctors to be notified. It was a hour or a little more drive for us. I got a call from Mary Howell. She got dressed and came back to work to be there when my son was flown in. She stayed by his side, and when I got to ER she was there to meet me. Our son was rushed into emergency brain surgery, and Mary sat with us in the waiting room forever. Even after she left that night she called back to check on us. Mary has been in our life for eight years now, and I couldn’t ask for a better person to be by our side!!” - Jamie Simpson Mary Howell has over 35 years’ experience as a nurse and a pediatric nurse practitioner at SSM Health Cardinal Glennon. Mary has provided exceptional care of patients and families in many different roles: as a PICU RN, nursing supervisor, Pulmonary Advanced Practice Nurse and now as the nurse manager of our newly developed Complex Medical Care Program. Mary shows great compassion for patients and families and is an exceptional role model and team leader to staff for her leadership and determination in initiating a much needed new program.

DR. PETER DANIS AWARD FOR PHYSICIAN LIFETIME ACHIEVEMENT Farouk Sadiq, MD

“Kara is now 32 years old, but spent most of the first 24 months of her life at Cardinal Glennon. Dr. Sadiq served as her primary physician and honestly as the mother’s support. Kara’s father joined the Army so that they would have health insurance and he was deployed on military assignment much of this time leaving mother here with Kara by herself. To this day, Dr. Sadiq is still closely connected to Kara and her parents. There is a bond there that is special and can never be broken.” - Michelle Hawk Dr. Sadiq came to SSM Health Cardinal Glennon as a pediatric resident and completed his residency and fellowship there as well. He has been an attending neonatologist at the hospital ever since, and currently serves as the Division Department Director. His colleagues describe him as compassionate with families, but always forthright, an honest and fair leader and a clinician that other clinicians aspire to become. They add that he is always humble when his interventions work, and that he is a trusted, firm foundation upon which we lean.

EXCEPTIONAL SERVICE Pam Miller, PT

“My daughter had to have whirlpool baths twice per day. She was the first one to give her the whirlpool bath.

She took the time to explain everything, turned on cartoons for her and made a game out of it. Pam was able to ease my daughter’s fears and quickly had my daughter laughing without realizing she was getting the treatment she needed. Those first experiences are so important” – Andrea Scott Pam has been a physical therapist at SSM Health Cardinal Glennon since 1985. Pam works with both inpatients and outpatients, and has also been the sole therapist working with the hemophilia group.

Aimee Roddy, MSN, RN, Footprints Care Coordinator

“Aimee entered my daughter’s room and was able to make a connection immediately. She offered her help, not even knowing our situation. Aimee knew exactly what our daughter and our family needed…. From offering my daughter peppermint for nausea…to Starbucks gift cards, to placing notes on the door stating: Shhh...please DO NOT disturb! It’s the weekend, I need REST! …… She consistently reconnected with us on several different occasions, and she always follows up with a huge hug… like she is my lifetime friend. Aimee was also able to work on getting me connected with MyChart. For whatever reason, I struggled for several weeks applying for this …..but AImee was very successful and followed through for me immediately. What a game-changer. She is the biggest advocate I know.” - Pamela Meine Aimee has worked at SSM Health Cardinal Glennon since 2010. She is a part time staff nurse on 4 North – the inpatient hematology/ oncology unit, and part- time care coordinator for the Footprints Program.

Linda Thomas

“The power of prayer is something I couldn’t relate to until we were at Cardinal Glennon. We are not a very religious family. Linda would pray at the end of my daughter’s bed each time she cleaned her room. She worked while she whistled God’s word and shared stories in the time it took her to clean the room. That time was usually brief but it certainly made an impact on each day. Linda is a living angel touching many lives every day while she is cleaning at Cardinal Glennon. She takes pride in all she does, and she is a delight to see and know.” – Pamela Meine Linda has worked at SSM Health Cardinal Glennon since 2008. She is the daytime “face” of Environmental Services on 4 North – the inpatient hematology/oncology unit.

I C E AWA R D R E C I P I E N T S EXCEPTIONAL NURSING CARE Amanda Cox, RN, BSN

“Amanda was in tune to EVERY subtlety with our baby, and always on top of every item advocating for further evaluation or testing if necessary. She knew when I may have been a little ‘nutty’ from being in the NICU. She would purposely change shifts around, making sure she did extra shifts solely to give me peace of mind and a break at night.

Having her there allowed me to sleep well at night and that was a priceless gift.” – Nicole Holland-Hong Amanda is a nurse in the Neonatal Intensive Care Unit and has worked at SSM Health Cardinal Glennon since March of 2016.

Anne Gildehaus, MSN, APRN, CNRN, CPNP-AC

“Following Evie’s last surgery, Anne was in our room throughout the entire day. She would sit in the rocking chair next to Evie’s bed, rub her head and run her fingers through her hair just to make her feel more comfortable. If Evie’s needs are tended to Anne will always make sure mommy and daddy are doing ok, as well. Once, before Anne left for a much deserved vacation, she stopped at the hospital on her way to the airport to make sure that we were squared away. She proceeded to text us and email us from out of the country to make sure we were doing ok.” – Heather Morgan Anne has held many roles, between her start at SSM Health Cardinal Glennon from 1998 through 2012; then again from 2014 to the present.

Anne is currently the nurse practitioner for pediatric neurosurgery.

EXCEPTIONAL TEAM The Pediatrics Genetics Team

“The Genetics team at Cardinal Glennon is a small, but mighty, team. The amount of care and assistance they provide would make one believe that they were a team of many. They are available at a moment’s notice, whether by phone, email or text. When calling them to discuss care for your child, you would never know that they were……. test driving a car, taking a kid off to college, missing out on a family event, or just having a trying day. They are constantly problem solving, talking with other geneticists and trying new treatments to help increase their patients’ and their families’ quality of life. They celebrate both the small hurdles and monumental milestones, and they are truly the most compassionate group of people that I have ever met.” – Amber Moss The Medical Genetics Department at SSM Health Cardinal Glennon provides comprehensive clinical genetic services including evaluation, diagnosis, treatment and genetic counseling. The team is made up of medical geneticists (physicians), genetic counselors, a clinical genetics nurse and a registered dietician. Together they provide education and assist families with the management of genetic and congenital disorders. In addition to seeing patients and offering genetics counseling at our main campus, They also see patients and offer inpatient counseling, cancer genetic counseling and prenatal genetic counseling at other locations throughout the St. Louis area.

EXCEPTIONAL MEDICAL CARE Jeremy Garrett, MD

“Dr. Garrett stayed at the foot of Vincent’s bed until well past he was stabilized, and then turned to me and said, ‘If what we doctors and nurses do doesn’t work, it doesn’t mean that your son has failed. It means that we were wrong. Is there anything we can do for you?’ More than once during that admission, Dr. Garrett’s calm, yet confident advocacy and action saved my son’s life. His watchful eye on my son, his concern and compassion for me, and his genuine humility, love and hope for the healing of his patients, earned by heartfelt respect and proved what exceptional care and presence looks like.” - Jenny Pekny Dr. Garrett is a critical care physician at SSM Health Cardinal Glennon, and a Professor of Pediatrics at Saint Louis University School of Medicine. He has been practicing now for over 30 years.

Jennifer Brinkmeier, MD

“What should of been a short five day stay turned into six+ weeks over Christmas. For those six weeks over the holidays, Dr. Brinkmeier came in EVERY DAY. Even when she was at other facilities or off work she stopped by just to check on JADE and I, and would even personally call me to check on us to see if there was anything we needed from her. I happened to mention that I wished I had brought nail clippers - and the next day she showed up with nail clippers. Especially over holiday time in the hospital, it was so amazing to see how above and beyond she went for my daughter with the smallest of things” - Dana Beshears Jennifer Brinkmeier is a board-certified otolaryngologist and assistant professor of otolaryngology at Saint Louis University School of Medicine.

Gary Albers, MD

“In the beginning, Dr. Albers had the tough job of telling two very young parents that our baby daughter had a devastating diagnosis of cystic fibrosis. In his calm and reassuring ways, on that day - and on countless occasions through her 17 years of life - he always made sure we knew that he was going to do everything he could to keep her as healthy and as ‘normal’ as possible. When my daughter was a teenager, she used to have to be in the hospital for several weeks at a time. When Dr. Albers found out that her beloved iPhone’s screen was cracked, he made a call and immediately got her phone fixed. She was so thankful to him and it helped make her so happy carrying her through those next several weeks of her stay! It gave her quality and when your life – year after year – involves weeks of hospital stays, it’s those things and that kind of attentiveness that get you through the day.” – Missy Sweeney Dr. Albers is the Executive Director of Ambulatory Care at SSM Health Cardinal Glennon. He is also an Associate Professor of Pediatrics at Saint Louis University School of Medicine with special clinical research interests in asthma and cystic fibrosis.

SAVE THE DATE

Ambassador Choice Awards • July 26, 2018 Visit GlennonAmbassadors.org for more details or to nominate your caregiver!

PARTNERS IN PARENTING

Innovative technology allows NICU families to see their children via a secure camera 24/7.

Inset: Henry Kaltenbach peers up at the camera in his room as his mom, Samantha, shows the live video feed on her phone.

A New View From The NICU

A

lmost three thousand miles away on the remote Chichagof Island in Alaska, Casey Collins tapped a link on his cell phone and, for the first time, saw his newborn son Aiden, born 10-weeks premature and in the neonatal intensive care unit (NICU) at SSM Health Cardinal Glennon Children’s Hospital.

“It was pretty cool to be able to see him right away and on my phone,” Casey says. “I couldn’t wait to see him in person and hold him.”

Collins was able to view a live video feed of Aiden thanks

to a new program called NicView.

The program serves as an online window into the NICU thanks to the placement of a camera above each bed. Implemented last May, the service is now available in all 65 neonatal intensive care rooms.

“We have 100% utilization of the system and hundreds of people already have accessed it,” says Mathew Dietz, MHA, manager of the hospital’s telehealth services.

“The wonderful benefit is that the technology has no geographic boundary, so families can log in from anywhere in the world.“

54 • SSM Health Cardinal Glennon Children’s Foundation

Casey Collins demonstrates how he first saw his newborn son through the NicView portal while working in Alaska.

to see his son. “One night he called me and said, ‘Hey, Aiden moved his arm, you have to log on to see that,’ ” says Karissa. “It was so great that he was checking the video whenever he could.”

“I have about a billion pictures of him and I watched him on the NicView every chance I got on the way home,” adds Casey, who spent 12 hours getting from Hoonah to Juneau, Alaska, before driving to Bellingham, Wash. There, he took a ferry and then drove the rest of the way back to St. Louis. Adds Casey, “I tried to get here as soon as I could, but it took more than 50 hours to get back.”

Family Bonding and Reassurance

Karissa Kanter shows her grandparents Jim and Sue Hays, live video of her son Aiden, who was in the NICU at SSM Cardinal Glennon.

The system starts with a small camera that is placed above each child’s bed. The camera is connected to a secure, passwordprotected tele-link portal that parents can then access from a computer, laptop, or cell phone to see their baby. Parents can share the log-in information with other family members. Once a baby is discharged, the system automatically cancels the log-in privileges and generates a new user name and password for the next family admitted to the NICU. Aiden’s mother, Karissa Kantner, lives in Salem, Ill. She developed preeclampsia during her pregnancy and was rushed first to a hospital in Mt. Vernon, Ill., and then transferred to SSM Health St. Mary’s Hospital in St. Louis where she underwent an emergency cesarean section in September. Soon after birth, Aiden was rapidly transported to SSM Health Cardinal Glennon for care.

As Karissa recovered at SSM Health St. Mary’s, she was connected to the NicView system.

“It was really awesome,” she says with a smile. “I gave the password to Casey and our parents and now we all can check on Aiden at any time.”

Going back and forth from their home in Salem, which is two

In the NICU, around the corner from Aiden’s room, Samantha Kaltenbach of Lake St. Louis, Mo., checks in on her son, Henry, born seven weeks premature. He’s been in the hospital since late March.

His twin sister, Eleanor, was able to go home after one month in the hospital, but Henry has been battling chronic lung disease and other serious medical concerns while in the NICU for the past seven months.

“The wonderful benefit is that the technology has no geographic boundary, so families can log in from anywhere in the world.” hours away from the hospital, Karissa and her mother, Lana, have tapped into the video portal at all hours of the night and day.

“He’s my first grandchild,” says Lana as she shows off the video of Aiden on her cell phone. “Knowing that I can’t be here all the time with Karissa because I work, I am thrilled that I can pull up the video on the phone whenever I want. It’s really exciting.”

As Casey started on the long journey back home from Alaska, he continued to log into NicView

“When the twins were first here, there was no camera available,” says Samantha. “But after Eleanor went home, the staff told us about the new NicView program and they set it up in Henry’s room. I was able to look at the video at home, even in the middle of the night. It gave me a feeling of amazing reassurance and I think it’s a great service.”

Now the elevator at work often becomes Samantha’s refuge during the day to check on Henry. “I take

glennon.org Fall/Winter 2017 • 55

PARTNERS IN PARENTING conferencing for urgent cases and “tele-touch” services that give maternal-fetal medicine specialists the ability to oversee Level 2 ultrasounds in other facilities. There also are robust hospital-to-hospital Tele-ED and Tele-NICU consultation services available. All totaled,

Samantha Kaltenbach calls NicView a lifesaver and an “amazing reassurance”.

those few seconds in the elevator just to see his face and then I know how he’s doing,” she says. “It’s a lifesaver to see him.”

Samantha, her husband, and her mom rotate staying at the hospital with Henry every day.

On Sundays, the entire family, including Henry’s sisters, Scarlett, age 3, Elizabeth, age 4, and Eleanor come to the hospital.

In between the visits, NicView becomes their eyes to see Henry.

“I can’t explain how great it is for the girls to bond this way with Henry before he comes home,” says Samantha. “It’s hard for them to understand why one of the twins can come home but the other baby is still in the hospital. I show them the video of Henry all the time and they have started asking me to see him on my phone.”

Dietz, who continually seeks ways to expand the connectivity and interactions between patients, families and caregivers.

“Aiden looked so much bigger in the picture on my phone than he did when I got to the hospital,” says Casey, who was delighted

“It really is an opportunity for us to offer some peace of mind to parents and give them a way to connect with their child in a completely new way,” says Mathew Dietz.

SSM Health Cardinal Glennon has more than 30 hospitals in Missouri and Illinois enrolled in telehealth services. NicView, however, is the pediatric hospital’s first telehealth portal designed specifically for families.

“It really is an opportunity for us to offer some peace of mind to parents and give them a way to connect with their child in a completely new way,” says

to hold his son. “It was awesome; amazing, really. He’s gaining weight pretty quickly and we’re hoping he gets out of the hospital soon.”

As he looks at his phone, Casey says, “I love being a dad.

I can’t imagine anyone not liking this NicView program. This gave me a way to see Aiden when I wasn’t here and I’m so happy it was available.”

Far-reaching Connections SSM Health Cardinal Glennon has been broadening its telehealth services for the past several years.

It started first with tele-medicine — connecting rural hospitals and doctors via the internet to the specialists at the hospital. In the early stages, the connection allowed for the transfer of digital medical images, such as MRIs, EKGs, ultrasounds or X-rays as well as phone consultations between physicians and pediatric specialists. The hospital broadened that to include real-time video-

Casey Collins and Karissa Kantner in the NICU with their son, Aiden.

56 • SSM Health Cardinal Glennon Children’s Foundation

I N FA N T C A R S E AT A N D S L E E P S A F E T Y E D U C AT I O N

SSM Health Cardinal Glennon

Safety Program

T

he SSM Health Cardinal Glennon Safety Program is dedicated to the prevention of childhood injuries through education and awareness, helping to make sure your baby is free from danger when sleeping and traveling on our roadways.

314-678-5474 or visit glennon.org/safetyprogram to learn more.

Call

SUPPORT PROVIDED BY: glennon.org Fall/Winter 2017 • 57

GLENNON CIRCLE /

SPOTLIGHT

Kenneth Haller, MD

President, Missouri Chapter of the American Academy of Pediatrics

K

enneth Haller, MD, FAAP, has always felt called to serve where the need is greatest.

That’s why he not only serves as a SLUCare primary care pediatrician at SSM Health Cardinal Glennon Children’s Hospital, he also uses his voice to advocate for critical health care issues impacting children and families.

“I’m especially interested in issues such as toxic stress in children, health literacy, vaccine hesitancy and the special health needs of LGBT youth,” says Dr. Haller. “I also firmly believe in the importance of reading to children.

I serve as the physician coordinator for our Reach Out and Read program, which provides new, free, age-appropriate books to children at wellness visits as a way to encourage family bonding and reading.”

underserved populations in the state. The two positions allow him opportunities to influence health policy as part of his efforts to improve access to health care services. He has been recognized as an Outstanding Community Leader by the American Medical Association and, in 2014, he received the St. Luke’s Faithful Healer Award at SSM Health Cardinal Glennon for his devotion to his pediatric patients and their families.

When asked why he supports the hospital with not only his time and talents but also through charitable donations, Dr. Haller describes the visit of a father and son to his pediatric clinic. After finding out that the father risked losing his job if he stayed home to care for his two children, Dr. Haller arranged for a social worker to find preschool and day care services.

He also handed the father a Reach Out and Read book to read to his

S P O T L I G H T

Kenneth Haller, MD

smart kid.’ And I said, yes he is.”

He adds, “To those who ask why I support the hospital, I say we all work hard to keep healthy kids

“We are always there to be a healing presence... I cannot imagine a Mission that is more worthy of our support and care.”

Dr. Haller advises how to feel safe during a disaster with The Shepard Family.

Dr. Haller currently serves as president of the Missouri Chapter of the American Academy of Pediatrics and is on the board of the Missouri Foundation for Health, an organization dedicated to improving health among

son. “As I watched them read together, I told the father that he was the most important person in his son’s life,” says Dr. Haller. “I told him that what he did and said to his child now would make him the man he’s going to become. He finally looked at me and nodded.

A week later, the father came back with his daughter for a well care visit and he told me that he was reading the book to his son every night. He said, ‘my son’s a really

58 • SSM Health Cardinal Glennon Children’s Foundation

well and to cure kids who are sick.

And with every child, every family, every circumstance, we work hard to be healers. We see children and families who are seeking to become and to stay whole. Sadly, not every child who is sick will get well. But we are always there to be a healing presence even when there is no cure. I cannot imagine a Mission that is more worthy of our support and care.”

Will you help Cardinal Glennon kids by becoming a member of our Glennon Circle today?

Members of the Glennon Circle enhance the health care and treatments of those we serve by making annual contributions of $1,000 or more:

THE GLENNON CIRCLE LEVELS President’s Circle $10,000 and above Champion $5,000-$9,999

A gift of $1,000 could provide an outpatient chemotherapy infusion treatment to help a child battle cancer.

A gift of $1,500 could provide Bilirubin lights for a baby in the Neonatal Intensive Care Unit who is being treated for jaundice and requires treatment for several days.

Heroes $2,500-$4,999 Guardians $1,000-$2,499

Members of the Glennon Circle enjoy the following courtesies: • Private tour of SSM Health Cardinal Glennon Children’s Hospital • Two tickets to Ambassador Choice Awards

A gift of $2,500 could provide two laptop computers for kids at our Shining Star School to keep up with schoolwork and interact with peers when hospitalized for long periods of time.

A gift of $4,000 could provide a hospital grade sleeper sofa that will provide much needed comfort and rest for parents who are enduring many long, sleepless nights with their sick child.

• Glennon Magazine and Impact Report • Glennon Gram E-Newsletter • Invitation to Holiday Party

President’s Circle members only: • Private tour of SSM Health Cardinal Glennon Children’s Hospital • Two tickets to Ambassador Choice Awards

A gift of $5,000 could provide

A gift of $10,000 could allow

an echocardiogram exam table which assists in the diagnosis of heart related conditions.

13 children with kidney disease to attend Camp Okawehna and receive dialysis treatment three times a week from medical staff while attending the week-long camp.

• Glennon Magazine and Impact Report • Glennon Gram E-Newsletter • Invitations to Holiday party, donor appreciation events, lectures and receptions

GLENNON FRIENDS /

SPOTLIGHT

TRIBUTE

GLENNON FRIENDS Glennon Friends celebrates the faith, commitment and generosity of our supporters.

THANKS to the Development Board for their continuous support of our events and programs.

President

Hannah Castellano VP of Public Relations and Marketing

Stephanie Moll Treasurer

Ben Albers Secretary

Lacie Good Board Members

Teresa Braeckel Matt Carr Jake Eilermann Dana Ferrick Marti Gurley Marcy Handlan Zach Kratofil Rick Kuhlman Brian Lamping Chris Leonard John Marino Serafina Nicolais Michael Niemann Andrea Ramsey David Rath Nathan Riner Patrick Sheley Michael Sluhan Joe Stroot Tracey Swabby Patrick Van Cleave Alex Wasson

Mildred L. Mulcahy

S

SM Health Cardinal Glennon Children’s Hospital now has a stronger telemedicine connection to some rural hospitals, thanks to the generosity of a woman who quietly saved her money and then donated much of it to charity.

Mildred Lillian Mulcahy was passionate about being independent and frugal. The former St. Louis Hills resident, who lived through the Great Depression and died last year at the age of 98, spent little on herself but eagerly embraced supporting community organizations that aligned with her interests.

“She wasn’t one to buy a lot of things for herself and she definitely watched every penny,” says Richard Lanigan, Mulcahy’s cousin. “For years, she lived in a small 900-square-foot bungalow in south St. Louis. I think that was a result of the times in which she grew up, through the Depression and World War II.” As a young woman, Mulcahy worked in a Wagner manufacturing plant, as did many women during the war. In the 1950s she joined Maritz in St. Louis, where she rose to become the company’s first female vice president. Along the way, she participated in Maritz’ employee stock ownership plan, selling the stock back and re-investing the funds after she finally retired in the 1980s.

“She always took an interest in her finances and made sharp investment decisions,” says Frank Richter, CPA, Mulcahy’s long-time friend and accountant. “Her portfolio grew as a result of that and she started to make charitable donations.”

She supported organizations that focused on animals as well as health care. When she was told that some rural hospitals needed financial assistance to obtain pediatric consultative services, she donated funds to SSM Health Cardinal Glennon Children’s Foundation for the hospital’s telemedicine program.

60 • SSM Health Cardinal Glennon Children’s Foundation

“She wanted her money to be given and used in an area that would have the most benefit,” explains Lanigan, who took care of his cousin for many years. “The hospital had a need to fund services in rural areas, so that’s what she decided to do.”

Mildred L. Mulcahy

In addition to donating dollars, Mulcahy volunteered for many organizations, including animal shelters.

For an annual fundraiser in Kirkwood, she used to can hundreds of jars of jelly for sale. “She’d sell them all,” smiles Lanigan. “She made blackberry jelly, grape jelly, and other flavors and she called them all Millie’s Jelly.”

She was a great fan of the St. Louis Cardinals, and both Richter and Lanigan would often visit with Mulcahy and watch the games on television, mostly in black and white until she was finally convinced to buy a big screen color television set in her 90s. Up until the day before she died, she also played the piano. “She told us that when she died, her piano should not be sold, but rather, be given to a needy family,” says Richter.

“We did that in her memory.”

Adds Lanigan, “That’s the way she was — generous to others. There are a lot of people who will remember her that way.”

Why I Give » “We initially became familiar with Cardinal Glennon several years ago by supporting the Homers for Health program. We loved cheering on the Cardinals and actively supporting Cardinal Glennon. Over time, we have realized the tremendous impact Cardinal Glennon has in the lives of the children they treat and their families. We have witnessed the great care and compassion from the doctors, nurses and staff.

We have heard from parents, who, despite their tough circumstances, speak so highly of the treatment and the care their children receive. We are proud to donate to Cardinal Glennon and support their Mission any way we can.”

Brad Aden and Susann Sullivan-Aden Brad Aden and Susann Sullivan-Aden

“Cardinal Glennon is a great part of our community. I chose to have a bake sale for Cardinal Glennon because it is inspirational to see happy kids get better and go home. I broke my femur on November 6, 2016 and Cardinal Glennon was there to help me get better. The doctors and nurses at Cardinal Glennon save kid’s lives every day and I wanted to do whatever I could to help sick kids get better. I am so glad that I was able to meet my goal (and more), and donate to this awesome hospital!”

Corbyn Legendre

Corbyn Legendre (3rd from left in photo) with Friends

“I went into Nursing because I love helping others. I have been working at Cardinal Glennon for 14 years now. I am also Catholic and value our Mission, ‘Through our exceptional health care services, we reveal the healing presence of God.’ Of the many things I have learned, the knowledge I value most is how many families truly need the help and support throughout their child’s sickness.

I get to see how we help these children and families everyday.

This is why I choose to support this wonderful hospital!”

Brooke Brothers, RN, BSN, Care Coordinator Brooke Brothers

GLENNON FRIENDS /

SPOTLIGHT

Mary Irene Dunne Tribute

M

ary Irene Dunne was a dancer, even after an automobile accident crushed her ankle and forced her to undergo numerous surgeries.

She never had children, although she had hoped to become a mother. Before her death on January 20, 2016, at the age of 88, Mrs. Dunne arranged to bequeath part of her estate to SSM Health Cardinal Glennon Children's Foundation.

"I think she was concerned about crippled children because she was crippled. She had a lot of major surgeries," says her older sister, Thelma Hornaday.

"She was in a terrible automobile accident about 52 years ago on Christmas Eve. She had a lot of health problems and recovered from all of that.

The next June my son got married and she wore high heels and danced at the wedding. That was remarkable, unbelievable. She was very much of a dancer. She did ballroom dancing and square dancing. She went to the Casa Loma Ballroom and all of those places in St. Louis."

“She was concerned about crippled children because she was crippled. She was always partial to children.”

Thelma and Irene, as family referred to her, spent part of childhood living on a rural Missouri farm. "We had to travel 19 miles to high school on a bus," Thelma says.

The family also lived on Lincoln Avenue in St. Theresa's Parish and north St. Louis, a few blocks from Sportsman's Park - the home of the St. Louis Cardinals of the National League and the St. Louis Browns of the American League.

"Cars would be lined up and down the streets during games. I don't know how it started, but we would stand by the cars after the games. People would give us a nickel or a dime for watching their cars for them," Thelma says. "Can you believe that?"

Irene was the second of five children in the Gauzy family. "We had three younger brothers - Jimmy, Wilbert and Jerry," Thelma says. "Irene was very smart and always helped them with their homework."

After graduating from high school Irene became a legal secretary. "She was very smart and made very good grades," her sister recalls.

"She worked in a number of places in St. Louis and Clayton. She had good jobs and always

62 • SSM Health Cardinal Glennon Children’s Foundation

Mary Irene Dunne

wore nice clothes. I can still remember how well Irene was dressed when she went to work. She always dressed nice up to the day she died."

After Thelma retired from McDonnell Douglas in 1988, the sisters moved to Springfield, Mo. "We wanted to live in a smaller town," Thelma says.

Irene worked in the finance department of the City of Springfield for five years. She spent her last five years in an assisted living center.

Children never became a part of Irene's life. "When she was younger she talked about children," Thelma says. "She was married over 25 years before she was divorced. She couldn't have children and wanted to adopt but that didn't work out. She was always partial to children."

SPOTLIGHT

SPOTLIGHT PETRO-MART /COCA-COLA CHECK PRESENTATION

Petro-Mart / Coca-Cola Check Presentation

B

efore the Cards vs. Reds game on September 14, George and Vicky Eblee of Phillips 66 Petro-Mart stores presented a check for $30,000 to Homers for Health. Fifty Petro-Mart stores collected donations to benefit Cardinal Glennon kids.

Also on hand were Chuck Wyant and Travis Sarich of Heartland Coca-Cola, presenting sponsor of Homers for Health. They presented a check in the amount of $100,000 to the hospital. Travis then took the mound to throw out the first pitch to start the game!

/ GLENNON FRIENDS

SPOTLIGHT MUNGENAST VAN

Mungenast Van Donation

O

ur friends at the Mungenast Automotive Family wanted to find a unique way to help Cardinal Glennon kids, so they donated a van to the Foundation to help transport items to and from events. But not just any old van – a Homers for Health and K’s for Kids van! This beautifully designed van will boast our brand throughout the streets of St. Louis for years to come, so if you see it driving by, be sure to honk and wave! Thanks to Mungenast for their support!

Donated $130,000

glennon.org Fall/Winter 2017 • 63

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT BECOME A GLENNON ROCK STAR!

Become a Glennon Rock Star!

G

enerosity is around every corner at SSM Health Cardinal Glennon Children’s Foundation, thanks in part to the beloved group of Glennon Rock Stars. This group consists of people from all walks of life — from high school and college students, to corporate America employees, hospital staff, retired individuals and many others who give selfishly of their time and talent to support our programs and events.

This year marked a milestone in our Glennon Rock Star community, as we now have more than 500 volunteers helping to spread our mission throughout the community. Volunteer activities include in-office assistance — stuffing envelopes, making thank you phone calls, delivering toys — and support and assistance at one of our many large fundraising events, including registering guests, auction support and set-up and tear down assistance just to name a few. Regardless of the tasks at hand, our passionate Rock Star’s personalities always shine through. The volunteers help us to raise the much-needed funds for the hospital and the entire Foundation staff is grateful to the hundreds of individuals that volunteer.

How can you become a volunteer?

Visit glennon.org/volunteer or email ryan.jennings@ssmhealth.com.

64 • SSM Health Cardinal Glennon Children’s Foundation

SPOTLIGHT BUILD-A-BEAR DONATION

Build-A-Bear Donation

O

n October 4, Build-A-Bear Foundation donated 2,000 teddy bears to SSM Health Cardinal Glennon Children’s Hospital as part of its 20th birthday celebration.

Patients had the opportunity to attend a celebration in the atrium where they received a bear and met Bearemy, the Build-A-Bear mascot. Over 20,000 teddy bears will be distributed among two dozen children’s hospitals across the United States.

SPOTLIGHT

SPOTLIGHT TEEN BOARD BUMP DAY VOLLEYBALL TOURNAMENT

Teen Board Bump Day Volleyball Tournament Donated $900+

T

he SSM Health Cardinal Glennon Children’s Foundation Teen Board hosted the second annual Bump Day volleyball tournament on April 1 at Calvary Church in St. Peters, Mo. The Teen Board managed the event from start to finish including securing donations of food and beverages to sell, raffle items and the participating teams.

This year’s tournament included over 84 participants from eight St. Louis area high schools.

The event raised more than $990, while providing an opportunity for teens to serve their local community and meet students from other schools.

Each member of the first place team won tickets to a summer Cardinals game and a medal. Raffle prizes included gift cards to local restaurants, boutique items and autographed Cardinals memorabilia.

The Teen Board consists of local St. Louis high school students, ranging from freshman to senior class level. The group meets once a month during the school year to discuss fundraising initiatives held in their own schools and in the community.

For information about the SSM Health Cardinal Glennon Teen Board, please contact Ryan Jennings, Community Outreach Coordinator at 314-678-6622 or ryan.jennings@ssmhealth.com.

/ GLENNON FRIENDS

SPOTLIGHT SUMMER KICKOFF PARTY

Summer Kickoff Party

T

he 8th Annual Summer Kickoff Party was held on Thursday, May 18 at Quintessential Dining and Nightlife in St. Charles, Mo. The party, hosted by David Baker and Brian Scheidegger raised $57,150 for Cardinal Glennon kids and SSM Health Cardinal Glennon Pediatric Specialty Services at SSM Health St. Joseph Hospital - Lake Saint Louis.

Guests enjoyed drinks, appetizers and music from Tom Kelly. A special moment was held when Joyce Smith spoke to the crowd, sharing the story of her son John’s life being saved after he was underwater for 15 minutes in Lake Saint Louis. Today, John is back to being a normal kid and playing basketball again.

Thanks to all who attended the Summer Kickoff party and we hope to see you again next year!

Donated $57,150

glennon.org Fall/Winter 2017 • 65

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT DR DONAHOE

SPOTLIGHT KNIGHTS OF COLUMBUS MASS

Katie-Do

Knights of Columbus

M

I

Kare Kits 4 Kids adeline Domian remembers how sick her Aunt Kathi looked when she would visit her in the hospital.

"I didn't think anyone would ever want to be that sick, especially kids, because all they want to do is play and have fun," Madeline said.

After her aunt — Kathi Reinhold, aka "Katiedo" — passed away from gastric cancer at 65 years old, Madeline came up with the idea to create chemotherapy kits for kids fighting cancer.

Madeline held a contest between the grades at her school to see who could collect more items.

Students in kindergarten through second grade were in charge of comfort items, such as socks and blankets, while third-, fourth- and fifth-graders focused on activity items, such as colored pencils and games.

On April 25 Madeline delivered her kits to Cardinal Glennon kids. In the kits she also included items such as gum, mints and lotion to help kids cope with the side effects of chemotherapy.

135th Annual

Supreme Convention n August 2017, the Knights of Columbus held their 135th Supreme Convention in St. Louis.

Following an opening Vigil Mass at the Cathedral Basilica of St. Louis, the Knights of Columbus Supreme Council received recognition for their generous support of the Knights of Columbus Developmental Center at SSM Health Cardinal Glennon Children’s Hospital.

Pictured above (left to right): Supreme Board of Director Mick Gilliam; Archbishop Lori, Bishop of Baltimore and Supreme Chaplain of the Knights of Columbus; Supreme Knight Carl Anderson; Missouri State Deputy Joseph Rosenthal; Missouri State Secretary Bob Hawkins and Colleen Dolnick from SSM Health Cardinal Glennon Children’s Foundation.

66 • SSM Health Cardinal Glennon Children’s Foundation

SPOTLIGHT

SPOTLIGHT DON WEIS DAY

/ GLENNON FRIENDS

SPOTLIGHT THIRD PARTY EVENTS LIST

Don Weis Day

O

n July 27 we celebrated our first annual Don Weis day.

Don volunteered his services for more than 20 years and and served as our toy patrol captain, collecting and sorting toys and delivering them to the hospital.

Friends, staff and family stopped by Danis Auditorium to visit Don and thank him for his many years of service.

Sadly, Don passed away on August 24 after a long battle with cancer. Each year on July 27, we will celebrate Don and his dedication to Cardinal Glennon kids.

THANK YOU!

to all who participated in our supporting events.

618 Slamball Carnival Amazon Smile Anthony Ritter Memorial Run Ballwin Day's Pretty Baby Contest Barron Gymnastics Champions Against Cancer Brad Hahn Toy Drive Children's Miracle Network Clay County Cancer Crusaders Dalanee’s Birthday Fundraiser Delta Sigma Pi of Washington University Fundraiser Dieterich Bank Bake Sale Drake Westcott's Power Showcase Edgeless Productions Evansville Jeep Rally Bake Sale Evansville Knights of Columbus Rally on the River Firetruck of Toys Fleur de Lis Ball Florissant Dental Candy Buy Back Glennon Guild Fundraisers Glory Riders Motorcycle Ride Gotsch Intermediate School Genius Hour Projects Holly Krieg Memorial Golf Tournament Holy Rosary 3rd Grade Class Fundraiser Hope for Liam, Wings for Noah Jackson County Tractor Drive James Carlton Gift Wrapping John Thomas NKH Foundation Golf Tournament Kash Dean Golf Tournament Kids 4 Kids

Kirkwood High School Fundraiser Koenemann Whiskey Tasting Fundraiser Kozeny Wagner Charity Golf Tournament Lone Riders Poker Run Lovin’ from the Oven Pancake Breakfast Mariachi’s Family Restaurants Mary Carroll Alonso Golf Tournament Mary Hilton & Friends Gift Tags Mary McDermott 3rd Grade Basketball Tournament Mascoutah Middle School Running Club Pasta Dinner Miles of Pennies by Methodist Youth Miles of Smiles for Kennedy Mission Carnival Monsignor Sullivan Benefit Rae of Sunshine Foundation RBO Printlogistix Jean Day Richard L. Salinardi Golf Tournament Ride for Rocky Riegel/Schultz Family Silent Auction Rocking A Stocking Ryan Kelley 50/50 Fundraiser Sarah Reecht’s Family & Friends Fundraiser St. Dominic Charity Soccer Game St. Joseph School Collections Summer Kick-off Party Team Noah Foundation Tee Off for Kids Teen Board Bump Day Toys for Tots TTTS Awareness Game at Busch Stadium TTTS Dine Out for a Cause Wendy's Bonus Bucks Program

glennon.org Fall/Winter 2017 • 67

GLENNON FRIENDS /

SPOTLIGHT

SPOTLIGHT GRANTS

Grants Meet Multiple Needs

S

o far in 2017, SSM Health Cardinal Glennon Children’s Hospital has benefited from more than $1.5 million in grants. Thanks to the generosity of our numerous donors, we are able to expand programs, innovations and research that benefits our patients and their families.

• Mental Health Services – St. Louis County Children’s Service Fund, Missouri Department of Economic Development Youth Opportunities Program, John Allan Love Charitable Foundation

SPOTLIGHT COMPANION BAKERY DONATION & GLENNON CARD

Companion Bakery Donation

S

pecial thanks to Companion Bakery for holding a School Supplies Drive for our Shining Star School. For the entire month of September, the Ladue and West STL Café Companion locations collected donations from their customers and all of the items were presented to our Shining Star School teachers Brenda Wilson and Shelly Goedde.

• Cancer Research – St. Baldrick’s Foundation • Danis Pediatric Center – Satter Foundation, Kent Family Foundation • Reach Out and Read – Walmart Community Grants • Maternal/Infant Health and Child Safety – Kohl’s Cares, Herman T. and Phenie R. Pott Foundation, General Motors, Safe Kids Worldwide, Missouri Department of Transportation

(L to R) (back)Donna Wolfersberger, Shelly Goedde, (front) Siena Cargas, Jodi Allen, Brenda Wilson

• Social Services - St. Louis Affordable Housing Trust Fund, Mary Ranken Jordan and Ettie A. Jordan Charitable Foundation, Pillsbury Foundation, Frank Adam Foundation, J. W. and Mildred A. Kisling Foundation, Echo Valley Foundation, Southwest Airlines

That wasn’t the only generosity Companion showed our hospital this fall; they also hosted the Glennon Card Kickoff party at their West STL Café location. With nearly 100 attendees, the party was held to thank all of the Glennon Card sponsors, merchants, restaurants and volunteers.

• FACES International Adoption and Refugee Clinic – Lutheran Foundation of St. Louis, Episcopal Presbyterian Health Trust • Baby Steps Program – Children’s Trust Fund of Missouri, Herbert and Adrian Woods Foundation • Child Life – Tri Sigma Foundation • Shining Star School – The William Kallaos Family Foundation • Kidney Camp – American Kidney Fund • Light Up Glennon (Holiday Lights) – Ameren Missouri Tricia Davies, Brigette McMillin, Traci Ragsdale (Glennon Card Co-Chairs and Advisory Chair)

68 • SSM Health Cardinal Glennon Children’s Foundation

SPOTLIGHT

SPOTLIGHT FABICK 100TH ANNIVERSARY

Fabick 100th

Anniversary

/ GLENNON FRIENDS

SPOTLIGHT KOC EVANSVILLE COUNCIL 1952

Knights of Columbus 4th Annual Rally on the River

Donated $17,587

J

ohn Fabick Sr. founded Fabick Cat in 1917 with the vision “to ever serve our customers better.” His vision extended to the entire community and serving others is still a critical part of their mission today: “Being actively involved in supporting the communities where we live and work.”

K As the company celebrated its centennial anniversary, the Fabick Family continued its great tradition of giving back to the community by honoring some of their favorite charitable partners. On July 28, during an open house at the corporate headquarters in Fenton, thousands of guests were stunned and delighted, including Sandy Koller who was on stage when they announced a $100,000 donation to the patients and families of SSM Health Cardinal Glennon Children’s Hospital. Doug Fabick, CEO of Fabick Cat and hospital board member, said “The family felt there was no better way to celebrate 100 years than to honor those charitable partners who truly make our community a better place!”

nights of Columbus Evansville Council 1952 held the 4th Annual Rally on the River on Saturday, May 27. The day started off with sunshine and a Salute to Veterans at noon. After the signaling by Grand Marshal Corbyn Legendre, a patient from SSM Health Cardinal Glennon Children’s Hospital, over 150 vehicles were off and running. A huge thank you to everyone who donated their time and efforts to putting this fun event on including Rally Co-Chairmen, Bob Myerscough and Mark McConachie. Thanks to the generosity of the Knights of Columbus Council 1952, a check in the amount of $17,587 was presented to SSM Health Cardinal Glennon Children’s Foundation to benefit the Knights of Columbus Developmental Center. More than $52,000 has been raised since the inception of the Rally on the River event in 2013.

glennon.org Fall/Winter 2017 • 69

WHERE ARE THEY NOW? /

TRAINED AT THE BEST

Trained at the Best Angela Sharkey, MD / 1986:

Pediatric Resident at SSM Health Cardinal Glennon Children’s Hospital now Senior Associate Dean of Academic Affairs, University of South Carolina

A

ngela Sharkey, MD, remembers one thing clearly about her pediatric mentors when she was a resident at SSM Health Cardinal Glennon Children’s Hospital in the 1980s.

“They were incredibly talented clinical faculty who were committed educators, clinicians and researchers and who taught us how to recognize, evaluate and treat children with acute and chronic presentations of complex health care issues,” she says. “At the time, Dr. Rick Barry oversaw the residency program and his devotion to the trainees was beyond comparison.”

After completing her pediatric residency, Dr. Sharkey headed to The Children’s Hospital of Philadelphia for subspecialty training in pediatric cardiology.

“I was fortunate that Dr. Soraya Nouri, the head of cardiology while I was a student and resident, had a

national network that enabled me to obtain a fellowship at one of the top pediatric cardiology programs in the country at the time,” says Dr. Sharkey.

Both her father and father-in-law were family physicians and she says they were great role models for how satisfying a career in primary care could be. As she went through residency, however, she realized she wanted to subspecialize — to learn and understand a lot about a smaller area of the body versus being a generalist. She found her ideal role in pediatric cardiology and now has a special research interest in Marfan syndrome.

Her career path returned to Saint Louis University School of Medicine in 2010 where, for seven years, she served as Associate Dean for Faculty Affairs and Development. “It expanded my role within and beyond the department of pediatrics and allowed me

70 • SSM Health Cardinal Glennon Children’s Foundation

to impact the recruitment and retention of a talented pool of scientific and medical faculty. I also have served as the chair of the Association of American Medical Colleges’ Group on Women in Medicine and Science and, through that, have been able to enhance awareness of women in medicine on a larger scale.”

Now at the University of South Carolina and active in leadership as well as patient care and pediatric research, Dr. Sharkey adds, “When I graduated from my residency program, I hugged my husband and told him how much I liked the person I had become as a result of my training at Cardinal Glennon — a caring, compassionate, confident physician who could readily recognize and care for the sickest of the sick. We really were so fortunate to be surrounded by talented, compassionate physicians who were amazing role models.”

WHERE ARE THEY NOW?

WHERE ARE THEY NOW? Kara Alsup / Former NICU patient, SSM Health Cardinal Glennon Children’s Hospital now Pharmacy Technician, Fort Campbell, Ky.

THEN

E

arlier this summer, Colin Harris stood around the corner from the new Tranquility Garden at SSM Health Cardinal Glennon Children’s Hospital. Nervous, but excited, he turned to a hidden camera and said, “Thirty-two years ago, Dr. Farouk Sadiq saved the life of a little girl named Kara Alsup.

That little girl is now the woman that I love so today we are at the place where Dr. Sadiq gave Kara her second chance in life because I have something very important to ask her.“ Colin then walked into the garden where Kara was waiting, dropped to one knee and proposed. “I didn’t have a clue he was going to do this, not even an inkling,” Kara said with a laugh afterwards. “But it really was so appropriate that he proposed here because this hospital has been such an important part of my life since the day I was born.”

Eight weeks premature when she was born in 1985, Kara had underdeveloped lungs and two rare medical anomalies — an omphalocele, in which intestines and organs remain outside of

NOW the abdominal cavity during fetal development, and Poland Syndrome, which results in missing or underdeveloped chest muscles. Her first few years were filled with life-threatening moments. By the time she was five years old, she also developed a curved spine that progressed so rapidly, she had to have three spinal surgeries to straighten it out before she completed the third grade.

Though she had many doctors and nurses caring for her, including SLUCare pediatric spine specialist Howard Place, MD, and nurse Michelle Hawk, RN, she formed a close, paternal bond with SLUCare neonatologist Farouk Sadiq, MD, who oversaw and coordinated all of Kara’s care.

“By the time I was 2 years old, I had exhausted all of my dad’s health insurance, so he joined the army. When he finished basic training, he went on to flight school to become a helicopter pilot. He did that for 20 years. I just bonded with Dr. Sadiq during that time. He really cared for me like I was part of his own family.”

Kara laughs as she recalls how Dr. Sadiq would quietly slip her some chocolate when she was in the hospital. He also gave her a small stuffed cat that she named Sadie. “I own a real cat now that I’ve also named Sadie in honor of Dr. Sadiq,” she said.

The family nominated Dr. Sadiq for an Ambassador’s Choice Award for Lifetime Achievement and Kara’s parents came to help present the award when he received it in July.

“Dr. Sadiq is the most compassionate, caring physician I have ever met,” said Kara. “I’m having both him and my father walk me down the aisle at my wedding next March!”

Now working at Fort Campbell as a pharmacy technician and civil service employee for the US Army, Kara said, “I get to help children, families and veterans. I always thought I would work in a hospital setting.”

glennon.org Fall/Winter 2017 • 71

There are many ways to

create your legacy.

We invite you to join those

who have created their personal legacy to benefit our precious young patients.

Ways to support Cardinal Glennon kids: • Charitable Gift Annuities Fixed income for life • Gifts of Appreciated Assets e.g. stocks, bonds and/or mutual funds • IRA Charitable Rollover If you are age 70 1/2 or older • Wills, Trusts and Bequests Beneficiary giving

THANK YOU if you already have included SSM Health Cardinal Glennon Children’s Foundation in your will or trust.

Contact us to learn more about tax benefits through Philanthropy: SSM Health Cardinal Glennon Children’s Foundation Rose Brower, Director of Planned Giving 3800 Park Ave., St. Louis, MO 63110 Toll free: 1-800-269-0552 or 314-577-5605

• Life Estate Agreements A personal residence or farm

The best gifts under the sun

for America’s only free-standing Catholic children’s hospital.

Return tear-off for more information

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1-800-269-0552

❑ I have been impacted by the exceptional care provided by SSM Health Cardinal Glennon Children’s Foundation.

Address______________________________________________________

❑ I would like more information on how to make a gift today and/or after my lifetime to help children in need.

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Phone_______________________________________________________ Email________________________________________________________ PLEASE RETURN TO: SSM

❑ If you already have included SSM Health Cardinal Glennon Children’s Foundation in your will or trust, thank you!

We want to acknowledge you if we haven’t already done so.

Health Cardinal Glennon Children’s Foundation, 3800 Park Avenue, St. Louis, MO 63110

GLENNONMAG2017

Name _______________________________________________________

Dear Friends and Supporters of SSM

Hospital: Health Cardinal Glennon ChIldren’s

with SSM Health Cardinal Glennon supported the FOOTPRINTS program ely activ has nts aura Rest ily Fam ino The Gian s ago. We have partnered g Memorial Golf Tournament, 14 year Krie ly Hol the of g nnin begi the e sinc Children’s Hospital ious girl, Holly, 15 with the Krieg family, who lost their prec phalus and cerebral years ago, who was born with hydroce t years but, actually, palsy. She was expected to live a few shor she received from lived 24 years, due to the excellent care doctors, nurses and Cheryl, Dennis and Heather Krieg, her gs met Sister Judy many others. Along the way, the Krie the day to day with Cardinal Glennon. Sister Judy knew ily and the need for challenges of Holly and her entire fam gral role in helping palliative care. The Kriegs played an inte such as theirs must Sr. Judy determine the needs a family wish for their whole have to continue the level of care they (Billy) Gianino, Dennis Krieg, William (Bill) Gianino, William and rded awa was t gran a y, Krieg man her of Heat Cheryl Krieg and family. With the help n. bega S INT TPR FOO

d the Krieg-Gianino ily Restaurants together starte The Kriegs and the Gianino Fam S. We are over $600,000 for FOOTPRINT ed rais e hav we and on ati Family Found FOOTPRINTS Glennon Children’s Hospital and the of SSM Health Cardinal committed to continuing our support family, employees and great support of our purveyors, friends, the had have We e. com to s year y program for man of us involved and it is our hope it will rding and gratifying experience for all many, many more. It has been a rewa continue for many years to come.

inal Glennon and ng to worry about such things as Card havi r neve lives our ugh thro go we us, For most of e are imperative to the survival ever, hospitals and programs such as thes FOOTPRINTS. For those that do, how contributors and supporters ianino Foundation cannot thank our g-G Krie The . ilies fam r thei and ren of these child possible. of you, none of this would have been enough. Without each and every one Best regards,

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William Gianino, Owner and Board Mem Gianino Family Restaurants Krieg-Gianino Family Foundation

Children’s Foundation

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