CRY Update Magazine - Issue 76

News and Events | Raising Awareness | Our Fundraisers

Update 76 | May to August 2018

In this

Newsletter | 14

Alison’s Column

CRY Heart of London Bridges Walk 2018

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Prudential RideLondon-Surrey 2018

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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An interview with Professor Mary Sheppard | 17

CRY Update 76 May to August 2018 Editor Dr Steven Cox

Chief Executive

Deputy Editor Tom West

Newsletter Editor As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Alison Cox MBE Founder Professor Mary Sheppard Consultant Cardiac Pathologist Rebecca Zouvani

Fundraising Manager

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report Alison’s Column CRY Centre for Cardiac Pathology (CRY CCP) Report An interview with Dr Aneil Malhotra British Cardiovascular Society Conference CRY Heart of London Bridges Walk 2018 Prudential RideLondon-Surrey 2018 Our Fundraisers Raising Awareness in the Media Report Fundraising Events 2019

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Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor.

The Editor welcomes letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Inside Update 76

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. Former CRY Research Fellow Dr Aneil Malhotra giving an interview on BBC News. Page 8.

2. CRY Representative Donna Fell collecting cheques from Marks & Spencer Bridlington. Page 59.

3. CRY Patron Kathryn Harries giving her speech at the CRY Heart of London Bridges Walk 2018. Page 20.

4. CRY screening event at New York Stadium, Rotherham, attended by the Mayor and Mayoress of Rotherham, in memory of Bruce Cousins. Page 35.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

5. CRY cyclists at the Prudential RideLondon-Surrey 46 and 100. Page 23.

6. The Harlow Lawn Tennis Club’s Adult Wooden Rackets Tournament, held in memory of Megan Harding-Jones. Page 47.

7. Walkers at the CRY Heart of London Bridges Walk 2018. Page 20.

8. Lauren Waring and Louise Sibthorpe presented a cheque to CRY Patron John Barrowman.

Page 84.

9. CRY cyclists and supporters after the Prudential RideLondon-Surrey 46 and 100. Page 23.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

10. CRY supporters taking part in the Solihull Half Marathon in memory of Alanna Ketley. Page 54.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

13. CRY Research Fellows Dr Joyee Basu and Dr Chris Miles at the British Cardiovascular Society Conference 2018. Page 19.

11. The annual TH96 run, held in memory of Thomas Hardman. Page 49.

12. Shari Lawrence-Willis’ skydive in memory of her dad, Henry Knight-Willis. Page 54.

Copyright © 2018 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Helmores UK LLP, 13/15 Carteret Street, Westminster, London, SW1H 9DJ

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Issue 76 | May to August 2018

Meet Our Representative

Tim Butt Representative in Essex “Please feel free to send chocolates and make charitable donations to...”

As I lay in ICU moments after waking from an induced coma, these were my words in response to my dad’s question “what do you want to say on social media about your health, as you have been asleep for 2 days and everyone knows and has been praying for you and they will all want to know that you are OK”.

happen to me, as a fit, aspiring sportsman.

I would think, “if only I had known!” Well, that is one of CRY’s aims, to provide young people with the opportunity for heart screening.

I think CRY do fantastic work and I am proud to be a representative for such a great cause.

The “to...” turned out to be Cardiac Risk in the Young, a fitting charity given that I had just suffered a cardiac arrest days before my 24th birthday. My first remarks were intended as bit of light humour into a challenging situation and giving a text book ‘press release’ answer seemed funny.

In reality, shortly after coming out of hospital fitted with an ICD (Implantable Cardiac Defibrillator), it did not take me very long to take raising money for CRY more seriously, taking on a number of challenges which have seen me cycle across South America and actively raise awareness of conditions like mine – hidden, unknown heart disorders with no side effects until I dropped dead.

I found the situation alarming that something like this could

www.c-r-y.org.uk

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News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period.

May

the reason now. We’ve got to educate people and help people, you know, with all the strength I’ve got to get out there and spread awareness about CRY and keep Jord’s legacy alive…

“I think we do anything from cake sales, to tombolas, fun days; any kind of things that we can get some funds from. Swimathons, walking up Snowdon, anything that we just see an opportunity we grasp it. I work as well, so I send a lot of emails during the evening. My husband says I don’t sleep, and just like planning the next venture of what we can and can’t do.”

Nicola and her friends and family have now raised over £75,000 for CRY in Jordan’s memory.

June Screening in memory of Pardeep Nagra on ITV June 3 A Wolverhampton screening in memory of Pardeep Nagra, who died as a fit and healthy 26-year-old in 2008, was featured on ITV News Central.

Nicola Burndred interviewed by 6 Towns Radio May 15 Nicola Burndred (above, left) is “one of the most inspirational mothers in Stoke on Trent”, as her interviewer described her on 6 Towns Radio. It’s because of her work to support CRY, following the death of her son, Jordan, who died when he was just 17 years old during a family holiday.

Nicola spoke about her experience, CRY’s work, her fundraising, and why she’s been offering her support.

“My main reason I put this down to, though,” Nicola said when talking about her motivation to fundraise, “is Jordan was put on this planet for a reason and this is

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“The only way we found out he had a heart problem was after we’d lost him,” said Resham Nagra, Pardeep’s mother. “We just want to make sure it’s picked up and they’re looked after before something does happen to anybody else. We don’t want another tragic loss to another family and that’s our aim.”

Most conditions are only discovered when it’s too late, as 80% of young sudden cardiac deaths occur with no prior symptoms. This is why we need to keep screening, and why raising awareness as much as possible like this is so important.

British Cardiovascular Society conference 2018 June 4-6 This year’s British Cardiovascular Society (BCS) conference was another success for CRY, reiterating our

Issue 76 | May to August 2018

News from the Chief Executive “Members of the Scottish Parliament, thank you for this opportunity to address you,” Abby began. “Today, I want to reflect on an issue I care about, which has motivated me to take action. Young sudden cardiac death is instant, unexpected, and, in most cases, preventable.

“As a carer for my granny who had motor neurone disease, I knew her diagnosis was terminal. I could prepare for her passing. However, families and friends of young sudden cardiac death victims are not afforded this period of psychological adjustment.

CRY Research Fellows Dr Basu and Dr Miles with their research posters

impact in preventing young sudden cardiac death.

This year’s highlight was CRY Research Fellow Dr Joyee Basu receiving an award for “Best of the Best” abstracts in the field – a particularly impressive achievement as another CRY Research Fellow, Dr Chris Miles, was also up for the award with his own well-regarded research into arrhythmogenic right ventricular cardiomyopathy in athletes.

For more on the conference, turn to page 19.

“For my Scottish Baccalaureate in Science Interdisciplinary Project, I researched young sudden cardiac death. I discovered that, shockingly, every week in the UK at least 12 young people under the age of 35 die suddenly from a previously undiagnosed cardiac condition. 80% of these deaths occur with no prior symptoms or family history.

“I’ve been actively raising the profile of national charity Cardiac Risk in the Young, known as CRY, which believes every 14-year-old should have access to optional, free heart screening.

“In March, the British Heart Foundation revealed people with potentially deadly heart conditions are too often not diagnosed until a life-threatening cardiac arrest or sudden death in the family. This highlights the importance of CRY’s screening programme which tests around 27,000 young people across the UK every year.

“Bereaved families normally finance CRY conducted community screenings. As a senior black belt in karate, I signed up for a test as I wanted reassurance I can physically exert myself during cardiovascular activity without the risk of exacerbating a hidden heart condition.

Fortunately, my electrocardiogram, which examines the electrical activity within your heart, was normal.

Abby Lang gives Time for Reflection Speech June 19 On June 19, Abby Lang, 17, head girl at Harris Academy in Dundee, gave the Time for Reflection speech at Scottish Parliament as a result of her work to support CRY, campaigning around Scotland to gain the backing of MPs. Now, all 59 of Scotland’s MPs have signed our pledge to establish a national strategy to prevent young sudden cardiac death.

www.c-r-y.org.uk

“My ECG was paid for by the Peter McAvoy memorial fund. The 22-year-old, talented footballer from Dundee died of an undiagnosed heart condition whilst on a soccer scholarship in America.

“This coming weekend, the memorial fund’s 200 cardiac screenings in Crieff and Dundee are fully booked, confirming the demand for testing. The same number of individuals were screened last year, resulting in six onwards GP referrals, potentially saving these young lives.

“I feel it is fitting in Scotland’s year of young people this issue is addressed. Shakespeare’s King Lear observed: ‘Nothing will come of nothing.’ As a Scottish nation, we are responsible for the health of young hearts, so my hope is we can work together to do something.”

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News from the Chief Executive Foe died soon after, following attempts to resuscitate him. Foe’s sudden death brought more awareness and concern to the footballing world. Since then, West Ham have been especially strong advocates of cardiac screening, supported by the Club’s official private hospital and CRY. In a post on their website, West Ham looked back at the death of Marc-Vivien 15 years on, and how they’re using screening to prevent any future tragedies.

12th CRY Heart of London Bridges Walk June 24 1,375 walkers gathered in London as we returned to Potters Fields Park for our 12th annual CRY Heart of London Bridges Walk. Thank you to everyone who came, making the biggest day of our year another special event.

After CRY Patron Kathryn Harries initially came up with the idea for a bridges walk years ago, we were thrilled to have her back this year to speak before the walk began and lead everyone off the start line. “I think you’re all remarkable”, she said to the walkers. “I think you’re incredibly brave, seriously courageous people, and it’s a privilege to be involved with it.”

After Kathryn’s speech, I was pleased to talk about some of CRY’s progress. In particular, the World Health Organization (WHO) acknowledging SADS deaths and other cardiac conditions in official statistics, and CRY surpassing 100 MPs on our pledge to support a national strategy to prevent young sudden cardiac death.

It’s always incredible seeing so many people in CRY t-shirts, in one place, walking together to remember these young people who died suddenly and raise awareness in London. Thank you so much to everyone who took part in the walk, and to all of our fantastic volunteers for their hard work on the day.

For the full story, turn to page 20.

West Ham United continue to support screening June 27 In 2003, West Ham United midfielder Marc-Vivien Foe collapsed on the pitch during Cameroon’s FIFA Confederations Cup semi-final match with Colombia.

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“The Club screens both youth team and first team players on a regular basis and maintains an avid and active interest in the programme,” said CRY Research Fellow Dr Aneil Malhotra, who helps oversee the Club’s screening. “No test is 100% accurate, but West Ham are one of the leading clubs in carrying out screening to help maintain safety of its athletes, both in terms of screening and in the defibrillator facilities at their training facilities, which is very good.”

We are grateful to be working with teams like West Ham to ensure both professionals and youth players receive the screening they need to ensure their safety.

You can read the full story here https://bit.ly/2w76qUh.

Donna Faulkner interview on BBC Three Counties June 29 Donna Faulkner went on BBC Three Counties to talk about the loss of her son, Harry. Harry, a squash player, was an outstanding competitor, and suffered a cardiac arrest on the court during a match. He died shortly after. Donna has since been fundraising for CRY, doing all she can to get young people screened.

“I am pushing and pushing for this screening,” Donna said. “I, personally, as a family, as other CRY families and other CRY mums, we screen children every year through our own childrens’ charities. So, to date, I’ve screened over 800 children in four years. On average, on every 100th child that we’ve screened one will be diagnosed with a problem for further investigation at St George’s.”

Donna was also joined on the show by Liam O’Sullivan, who made a documentary on Harry and CRY. “We’ve actually had an amazing response since the film launched,” Donna said. “We actually raised over £14,000 in total on the night [the film was launched] and after that through other events we’ve had. Since we’ve

Issue 76 | May to August 2018

News from the Chief Executive been on the radio we’ve actually had a few contacts asking us to come and show the film...

help save young lives. Her unrelenting hard work has led to all 59 of Scotland’s MPs signing up to the pledge.

“We’ve had a contact through a school who supported the Harry’s Heart Foundation and raised money through a charity day. And we’ve also been to a rotary club and showed the film there and had a great amount of support there… We’ve just had an amazing response.”

On behalf of CRY I want to take this opportunity to say a huge “thank you” to Abby for taking such a proactive interest in the work of CRY by helping to raise awareness of YSCD amongst MPs, MSPs and their constituencies – as well as raising awareness of Abby’s work to all politicians via this dedicated portal. What she’s achieved so far will be making a huge impact in our campaign to prevent YSCD and there’s little doubt that her tenacity has played a key role in encouraging parliamentarians to listen to – and become involved in – our cause.

Liam spoke about why he thinks people connected with the film: “I think the overall reaction was that they found it very emotional. They could connect with the subject obviously, because everyone knows somebody who has a young child or a young life and they can’t understand the fact why they die at such a young age. So, they have that emotional connection with it and they automatically want to do something about it because they wouldn’t want that to happen to their child.”

We are grateful to parents like Donna who raise awareness of screening, and we appreciate Liam making a documentary that can resonate with people and encourage them to get their hearts tested.

July Article on Politics Home July 5 In July, I wrote an article for Politics Home to discuss CRY’s growing MP support, as over 100 MPs have signed up to our pledge to establish a national strategy to prevent young sudden cardiac death. This achievement is due, not least, to the incredible efforts of Perthshire teenager, Abby Lang, to encourage MSPs and MPs to pledge their support for a National Strategy for the Prevention of Young Sudden Cardiac Death (YSCD) to

You can read my article here: https://bit.ly/2zmzqMH

Harrogate Town’s Jack Emmitt speaks to ITV News July 16 Screening athletes at a grassroots level is vital. Those at a lower level don’t have the facilities and care that professionals receive, leaving them more at risk even though they may participate in the kind of intense activity that could aggravate an underlying cardiac condition.

Footballer Jack Emmitt, who plays for Harrogate Town, knows this. Jack lost his twin brother, Alex, in 2012 to a diabetes-related cardiac arrest. In 2016, Jack’s best friend, Daniel Wilkinson, collapsed on the pitch and died due to a heart condition.

“We played football together at Loughborough,” Jack said. “It was only a couple of months after we graduated that [Daniel] had a heart attack on the pitch. He was a really healthy lad – very fit, ate really well. But he had an underlying condition with his heart that he didn’t know about, and obviously that had serious consequences. So, this is an important thing for us, to kind of put our minds at ease and just to check there’s nothing wrong... At this level and certainly levels below, it isn’t something that’s really looked at. So, hopefully other clubs will follow our example. If it catches just one player and saves one life, then it’s been worth it.”

Graham and Anne Hunter with Mims Davies MP (middle) at CRY’s 2017 Parliamentary Reception

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News from the Chief Executive CRY’s 12-a-week statistic was mentioned in the ITV report, reinforcing how often undiagnosed cardiac conditions lead to sudden death. All young people must be made aware so they can be screened, including footballers who could be at a higher risk of aggravating an underlying condition through consistent high-intensity activity.

Prudential RideLondonSurrey 2018 July 29 Thank you and congratulations to the 66 cyclists who took part in the 2018 Prudential RideLondon-Surrey 46 and 100, representing CRY in the biggest team for the event we’ve had yet. Unfortunately, a wave of rain hit after weeks of glorious sun, giving our riders tougher conditions in typically English fashion.

But that didn’t stop Team CRY. We are thankful to all of our cyclists for enduring the conditions to complete this challenge for CRY, and to all our volunteers, massage therapists and cheerers for their support on the day. It was a pleasure for me to stand on route at Newlands Corner again to see the riders go by and cheer them on.

You can read the full story of the day on page 23.

August New CRY research featured on BBC Ten o’clock News August 8 CRY couldn’t have sought out a larger audience for our latest research than appearing on the BBC Ten o’clock News. To discuss the major influence of this new

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research funded by CRY and the FA, published in the New England Journal of Medicine (one of the world’s most impactful medical journals), the BBC spoke with lead author Dr Aneil Malhotra, as well as CRY Consultant Cardiologist Professor Sanjay Sharma and CRY Representative Paul Daniels. In addition, Dr Malhotra (above) gave another interview on BBC News as well.

The study screened 11,168 young athletes (aged 16-17) from 1996 to 2016 in the English Football Association (FA) cardiac screening program, with tests including a health questionnaire, physical examination, electrocardiography and echocardiography.

The research found that the incidence of sudden death was much higher than expected. 42 athletes (one in 266) were found to have cardiac disorders associated with sudden cardiac death, while a further 225 had congenital or valvular abnormalities. Following screening, there were eight sudden cardiac deaths – two were advised to stop participating in football but continued, while the other six were originally identified as “normal”.

“It means we need to open our eyes to the fact death rates are higher than we thought,” Professor Sharma said.

This BBC report helped show how essential repeat screenings are, to identify conditions that may not have developed at the time of an initial screening. The value of ECG testing was also shown by the fact that 74% of the athletes were able to continue playing after corrective procedures, something only made possible because of their screenings.

The FA is enforcing repeat screening for athletes at ages 16, 18 and 25 to ensure cardiac conditions that may not have developed at a much younger age don’t go unnoticed.

It is fantastic for CRY supported research to have this kind of impact in the medical community and sporting world, and encourage further screenings for young people.

Issue 76 | May to August 2018

CRY Online As part of the CRY Online segment we will include Facebook posts from Chief Executive Dr Steven Cox (found at drstevenjcox), providing thoughtful responses to news and events from the last few months.

CRY’s research In the UK, Cardiac Risk in the Young are best known for raising awareness of cardiac conditions in young people, for the support we offer to those who have been affected, and for the cardiac screening services we offer to all young people. Throughout the rest of the world we are better known for the research we are publishing, which is having a direct and immediate impact on clinical practice.

CRY’s research, overseen by Professor Sharma, who is recognised as one of the world’s leading experts in this field, is vital in helping us to better understand the prevalence of cardiac conditions, as well as improve our ability to diagnose and manage conditions in young people.

CRY’s research focuses on both athletes and the general population. In 2017, over 27,000 young people aged 1435 were screened through the CRY screening programme.

Approximately 10% represented elite athletes, the other 90% of the people we tested were fit and healthy young people who will enjoy sport at various different levels.

We are sometimes asked why there is a focus on ‘sports cardiology’. What sports cardiology really represents is research and clinical practice applied to fit and healthy young people. Elite athletes who are pushing themselves to the limits represent an extreme and the knowledge gained from studying these athletes then filters through to better inform diagnosis and management of all young people with inherited cardiac conditions.

When most people think of cardiology they think of the elderly, whereas sports cardiology is the opposite – it is about young hearts.

Clinical data obtained through the CRY screening programme, at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology and the CRY Centre for Cardiac Pathology, is analysed and reported by CRY’s research team in peer review journals to influence policy and practice in the UK and internationally.

The knowledge of cardiac conditions in young people has increased enormously since CRY was founded in 1995.

Undertaking important and pioneering research remains one of CRY’s core initiatives, so that our understanding will continue to expand in the future.

www.c-r-y.org.uk

NEJM research supported by CRY The latest research supported by CRY, published in the eminent New England Journal of Medicine by Dr Aneil Malhotra and many of the CRY research team and overseen by Professor Sharma, destroys the myth that young sudden cardiac deaths are rare. For many years people have said these are tragic but rare events, affecting only a small number of young people. Sometimes, they have said 1 in 200,000 people or that they are as rare as being killed by lightening at 1 in 70,000 people.

We have always said this is completely wrong, based on poor science methodology. The fact is eight young people have died with cardiac conditions in a relatively small sample of young people, 11,168. And they died AFTER they had cardiac screening. Had there been no cardiac screening, the number would almost definitely have been considerably higher – potentially much, much higher.

When you look at the evidence and the conditions which were identified in this group the only conclusion that can be drawn is that we need to do so much more to prevent these tragedies, and screening is an essential part of this.

It will not prevent all the deaths, but it will save lives and now we can clearly see just how many people are affected it is the very least that should be done.

Yes, it may be correct to say these deaths are “rare” compared to some of the conditions which will affect older populations. But we are talking about young people in their prime in “perfect” health with 60 or 70 years of life ahead of them. ALL young people, and I would like to repeat the word “ALL”, need to check their heart at least once. Ideally, this would be with an ECG and also an echo ultrasound. But at the moment we need to focus on the ECG because we can reach more people with it. The ECG is an excellent screening test, and the research in this paper has shown it is a powerful tool for picking up clinical heart conditions.

But, of course, those pushing their body to the physical limit, those who are reliant on their hearts to work every day at maximum, through the highs and lows of competition, through heat and cold, through illness, through exhaustion, for their livelihood, must have heart screening regularly. There are too many external factors which can impact the heart and the athlete’s ability to compete for this to be ignored. Athletes have to deal with the prospect of injury every day and their challenge is to ensure they do all they can to care for their body, to be able to perform at their best. Their hearts are not just part of the maximal performance equation, they are central to their athletic ability and cannot be taken for granted.

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CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we’ll look back at the four-month period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

One of CRY’s top Facebook posts from May to August was one of our infographics, which are excellent for providing key information and driving engagement online. This post alone reached over 90,000 people.

We also used social media to increase awareness alongside key fundraising events, such as the Virgin Money London Marathon and Prudential RideLondon-Surrey 46 and 100. 154 people engaged with an Instagram post to wish our cyclists good luck for RideLondon-Surrey 2018.

felt by young people when they experience the death of a friend.

Sometimes friends can feel like it’s not their place to grieve whilst family members are grieving, but it’s so important that friends know they can share their emotions and memories as well.

Our screening programme set a new record for the month of May with 38 screening events, enabling us to screen 3,240 young people. It helped push our total for the May to August period to over 9,200, and unsurprisingly received a big response on Instagram.

Overall through May to August, CRY gained 1,598 followers and recorded 2.88 million impressions (the number of times a post appears on someone’s personal feed) across Facebook, Twitter and Instagram. This continued growth on social media is so valuable in raising awareness.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung We launched the #CRY4Friends campaign in November 2017, but we still want to remind people through social media that it’s something they can continue to engage with. The campaign’s purpose is to highlight the grief

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CardiacRiskintheYoung @CRY_UK

Issue 76 | May to August 2018

CRY Online

CRY’s platform on Twitter is always essential in increasing awareness of screening. Once again, one of our infographics designed for just this was one of our most popular tweets, reaching up to 100,000 people.

One of CRY’s key developments over the May to August period was continued growth in terms of MP support. A host of MPs tweeted about the news of their support on Twitter and shared photos with us, showing them signing CRY’s pledge to establish a national strategy for the prevention of young sudden cardiac death.

MPs such as Sarah Champion (Labour MP for Rotherham) and Dianne Abbott (Shadow Home Secretary) sharing their support on social media – with close to 300,000 followers between them – is another way to bring more awareness to CRY and how vital it is that we work to prevent young sudden cardiac deaths.

www.c-r-y.org.uk

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CRY Screening Report Between May and August 2018 CRY screened over 9,200 people 749 people were screened at our National Screening Centre at St George’s Hospital, London, funded in memory of Gary Pope, and by donations from the Shanly Foundation and the Carval Foundation.

Sports screenings included: Northamptonshire County Cricket Club (NCCC), Royal Ballet School, Colchester United FC, Surrey CCC, Essex CCC, Bisham Abbey EIS, Millwall FC, Somerset CCC, Yorkshire CCC, Bolton Wanderers FC, Doncaster Knights Championship Rugby, Worcestershire CCC, Leicester Tigers Premiership Rugby, Bristol Premiership Rugby, Bristol City FC, Yorkshire Carnegie Rugby (Leeds), Bath Premiership Rugby, Exeter Chiefs Premiership Rugby, Gloucester Premiership Rugby, Northampton Saints Premiership Rugby, Newcastle Falcons Premiership Rugby, Saracens Premiership Rugby, Lancashire CCC, Wasps Premiership Rugby, London Irish Championship Rugby, and Sale Sharks Premiership Rugby. A total of 761 athletes were screened.

At 49 family memorial screenings 7,129 people were screened. These were held in memory of: Charlotte Adams (Maldon), Graeme Blenkinsop (Isle of Wight), Jordan Burndred (Hanley), Nathan Butler (Wolverhampton), Lynne Corden (Derby), Bruce Cousins (Rotherham), Ben

Daniels (London), Matthew Dewhirst (Shropshire), Aaron Dixon (Macclesfield), Rory Embling (Ackworth), Josh Fell (Hornsea), Anthony Fitzgerald (Sidcup), Andrew Gard (Colchester), Jordan Grant (Preston), Oliver Griffin (Shepperton), Jonathan Hayman (Sidmouth), Laura Hillier (Blisworth), Reece Jeffrey (Derby), Kris Ledgard (Loughborough), Adam Lewis (Warrington), Joseph Leyland (Cheadle), Kira Lloyd (Cwmpark, Wales), Jamie Loncaster (North Ferriby), Andrew Macleod (Isle of Lewis, Scotland) John Marshall (Ormskirk), Peter McAvoy (Dundee, Scotland), James McGowan (Godalming), Josh Merrick (Manchester), Richard Merriman (Hemel Hempstead), Bethany Mycroft (Clowne), Pardeep Nagra (Wolverhampton), Ceri Palmer née Howells (Nantwich), Taylor Panton (Airdrie, Scotland), Christopher Parr (Leek), James Patterson (Hornchurch), Adam Pearmine (Tadley), Madeline Siddall (Sheffield), Robert Daniel Smith (Durham), Jack Thomas (Blackwood), Scott and Mike Thurlow (Grantham), Isabelle Tudisca (Essex), Richard Waight (Doncaster), Neil Ward (Derbyshire and Sheffield), Lily Webster (Stowmarket), Neil Wickers (Darwen), Stevie Wiggins (Preston), and Julian Wort (Frome).

312 young people were screened at 3 school screenings held at: Wellington College, Crowthorne; Queen Elizabeth Hospital School, Bristol; and Madeley School, Crewe.

290 people were screened at 2 further screenings held at: Dungannon South West College, County Tyrone, Northern Ireland; and Rolls Royce Derby.

Screening at Grantham Tennis Club in memory of Scott and Mike Thurlow

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby.

Soundwaves echo against various parts of the heart and they are recorded on a screen.

This provides a detailed picture of the heart’s structure and how well it is functioning.

This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma.

Grantham Tennis Club, the Rotary Club of Grantham Kesteven and the Thurlow family came together to hold a heart screening day for 14–35 year olds. The Scott and Mike Thurlow Memorial Fund financed the day through CRY. The fund was set up in memory of Scott and Mike Thurlow. Scott died from an undiagnosed heart condition at the age of 27, as do 12 young people every week in the UK. His father, Mike, unknowingly carried the same condition, leading to his death at the age of 71. 95 young people were screened on Saturday 5th May, with four people being referred for further tests. The memorial fund was financed by Chris Thurlow’s sponsored skydive, the Rotary Club of Grantham Kesteven, which was one of Chris’s chosen charities when he was President in 2015-16, and donations from family and friends.

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Issue 76 | May to August 2018

CRY Screening Report

Screening at Hornsea School in memory of Josh Fell Screening at Great Totham Primary School in memory of Charlotte Adams

Screening at Langley Park Primary School in memory of Robert Daniel Smith

Screening at Sidmouth Sailing Club in memory of Jonathan Hayman

Screening at Harris Academy and Crieff High School in memory of Pete McAvoy

www.c-r-y.org.uk

Screening at the John F Kennedy School, Hemel Hempstead in memory of Richard Merriman

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Alison’s Column The impact of CRY’s Centre for Cardiac Pathology on grieving families I don’t think that anything has had a greater impact on reducing suffering for our bereaved families than when we set up our unique Centre for Cardiac Pathology (CRY CCP).

Prior to this innovative development the length of CRY Founder time that a grieving family had to wait to find out what had killed their apparently fit and healthy child or partner could take anything from several weeks to 18+ months. This was because there were very few pathologists that understood young sudden cardiac death (YSCD) in the 1990s.

Alison Cox MBE

The genetic implications were only just beginning to be understood and the prevailing attitude often seemed to be that there was no rush, because the young person was dead and identifying the cause of death was just a matter of completing the required process. Because it was believed that these conditions were very rare and inexperienced pathologists did not recognise the dangerous abnormalities that were killing fit and healthy young people, there was little urgency, understanding or indeed interest in YSCD.

had happened and what had caused this so suddenly. We found ourselves asking how it could be that someone so seemingly ‘fit and healthy’ could possibly just die for no apparent reason – even our GP friends were unable to offer us any answers.

“It took several weeks for the pathologist to come up with his findings. Eventually the official cause of death given was a myocardial infarction. At the time we knew this might serve as an official answer, although in reality it gave us no comfort, as in no way did it address the reason why this may have occurred.

“In truth it made no sense to us but we felt powerless and lacking in energy to fight for more information. This is something that haunts us still today. We felt we had nowhere to turn for the help and advice we needed – it seemed as though the cause of death had been established for official purposes and we had no choice but to accept it with no consideration for our doubts or desire for elaboration. We had not yet heard of CRY.” Not having any guidance of what had happened to strike dead their apparently fit and healthy child or partner meant that families were not only traumatised, but also left dangerously in Limbo and at serious risk of another sudden death. CRY’s battle at that time was to raise awareness both of the danger of these potentially genetic conditions and the importance of expert pathology which identified whether or not further family testing was required.

Pathology is only useful if it can be purposefully acted upon, but the additional anguish, after their tragedy, for a mother to learn that she could be the carrier of a genetic condition that had killed her child was often too much to bear. Consequently, she was sometimes unable to confront being screened herself, although she would usually support getting any other child/children screened. This was not only treacherous for her family but further inhibited progress, as did the fact that there was no dedicated facility that offered family screening.

One of our first supporters, Caroline Gard (above, second from right), explained: “When Andy (above, right) died 20 years ago, it was a complete shock as we had no warning or awareness that he might have had anything wrong with him at all, least of all a heart problem. In those very dark and dreadful early days after his death, when we were completely shell shocked, we had absolutely no idea what

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CRY’s first fundraising donation of £10,000 in 1995 was to St George’s for the down payment which secured the acquisition of an echocardiogram for the dedicated use of families at risk of the genetic condition cardiomyopathy – the main known cause at that time of YSCD. As a result the St George’s centre was the first to be able to offer screening for all family members together.

When Howard English died in 1993, aged 32, playing rugby, his wife, Stephanie, was emphatically reassured that Howard’s death was due to a faulty mitral valve. The

Issue 76 | May to August 2018

Alison’s Column pathologist insisted that the family were not at risk of a genetic condition. The shock of her eldest child, Sebastian, dying while playing rugby at the age of 15, 11 years after his father caused her indescribable suffering. This time the pathology was correctly diagnosed as cardiomyopathy by Howard and Sebastian English Mary Sheppard, who had built up extensive experience in YSCD with Professor Michael Davies, a leader in this relatively unknown field and a trail-blazing pioneer.

The family then found CRY and embarked on an extraordinary fundraising campaign supported by friend (subsequently one of our Patrons) Simon Halliday, who had been coaching the rugby team that Howard had been playing in when he died. Simon master-minded the launch of the Howard and Sebastian English memorial fund with the Bath Half Marathon in 2006 and was supported by many of the golden oldies of rugby which raised not only considerable awareness in the press, but also in excess of £100,000.

CRY Patron Simon Halliday, standing second from the right, at the Bath Half Marathon 2006

The enormous generosity of family and friends over many years led to the launching of the CRY Centre of Cardiac Pathology in 2004 in memory of Howard and Sebastian. Mary Sheppard says: “I was very pleased to have the opportunity of meeting Stephanie and Rupert and discussing with them the prospect of my leading the unit which has proved to be so hugely important in CRY’s work to reduce the suffering of bereaved families.”

Coroners were appreciative with the new CRY-funded fast-

www.c-r-y.org.uk

track service we were then able to provide for them which made a significant difference – not only to being able to give the family a specific cause of death, but also enabling coroners to close their investigation conclusively and more swiftly than had been possible in the past when they were completely dependent on the waiting time that the pathologist required.

The impact of having a dedicated centre for the pathology of victims of YSCD cannot be overestimated. CRY’s service endeavoured to return the heart to the family in time for the funeral and as a result of this families were no longer reluctant to have their child or partners heart sent away for examination, which was so critical to understanding whether another family member could be at risk of having an inherited condition. The significance of this breakthrough meant that families were able to alert their cardiologist to the condition that caused their tragedy, dramatically reducing the risk of another family member dying.

Unlike many pathologists who often seemed reluctant to communicate with affected families, Mary Sheppard (now Professor Sheppard, above) favoured speaking to the bereaved parent if this was requested. She was pleased to help them understand the cause of death and benefited from being able to discuss the circumstances of the death and whether there was any family history. The considerable experience Mary has now accumulated in this very specialist field has resulted in frequent demands to lecture at international conferences. An unfortunate consequence of this means her ambitious ‘time target’ for the families to receive their pathology results has sometimes been affected as she is the only pathologist in the unit who can report these cases.

Unique research is now being yielded by the CRY Centre for Cardiac Pathology. The better understood these pernicious conditions are the more swiftly we will not only be able to confidently diagnose and treat those affected, but be able to isolate the gene which will pave the way for a long-awaited cure.

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CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard Professor Mary Sheppard, Consultant Cardiac Pathologist

Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician

The CRY Pathology laboratory is a national referral centre for the pathological investigation of young sudden death with an established national database. We have consultant histopathologist Olena Dotsenko working with us part time and a clinical research fellow, Dr Joseph Westaby, in training in cardiovascular pathology.

We had 192 heart cases from May to August 2018. There is a very good turnaround time for issuing a report – which is vital for families who are anxious at such a distressing time – to provide an answer as to what caused the death of a loved one. We also obtained consent to retain cardiac tissue for research in 50% of the cases referred to us, which forms a valuable biobank for clinical research into the causes of young sudden cardiac death (YSCD). Our database forms a valuable source of research within St George’s clinical cardiology team. We are also increasingly getting splenic tissue for genetic investigation of sudden cardiac deaths. Through genetic analysis and clinical follow-up we give valuable information in the future for families. We were able to make a diagnosis of the cardiac cause of death in all cases, with the majority being sudden adult death or cardiomyopathies (75% of cases), all of which are important for family screening.

Congratulations to Dr Westaby for becoming a fellow of the Royal College of Pathologists

Some of the CRY CCP’s other achievements We have reported in 192 sudden death cases, and have stored 173 spleens for future genetic analysis. We also ran a very successful cardiac pathology course this June, attended by 80 pathologists, cardiologists, coroners, coroner’s officers and mortuary technicians. At this course we emphasise the guidelines for the investigation of young sudden deaths with retention of cardiac material as a permanent record of the case, as well as the taking of splenic genetic material for future genetic testing. The pathologists have come from all over the world including Europe, North and South America, Australia and India. Thus we are getting the message across about the correct investigation of YSCD throughout the world. We are established as the leading cardiovascular pathology centre in the world on this topic.

Professor Sheppard received an Honorary Fellowship of the Royal College of Physicians of Ireland, Pathology Section

Visitors

such as Brugada syndrome.

Keneth Chan, Aortic Stenosis Project.

Two students, Paulina Szpyra and Rohan Bhupal, for work experience.

They both shadowed our lab technicians and gained insightful cardiovascular pathology experience.

CRY Research Fellow Dr Chris Miles is studying arrhythmogenic cardiomyopathy and SADS and has obtained a BHF PhD fellowship.

Dr Noel Woodford, Australia.

Michelle Harricharan (Research Data Support Manager) and Kirsten Hylan (Records Manager).

Collaborators at St George’s

Dr Gherardo Finocchario is studying hypertrophic cardiomyopathy and idiopathic left ventricular hypertrophy.

Dr Michael Papadakis is studying the incidence of SADS over time.

Professor Robert Anderson, a member Dr Stathis Papatheodorou is studying of our department studying congenital clinical follow up of SADS families. cardiac anomalies which can cause Dr Belinda Grey from Australia is SCD. studying sudden infant death.

Dr Angeliki Asamaki is doing basic Other collaborators research into pathophysiological mechanisms in arrhythmogenic Marios Margaritus, Leicester. cardiomyopathy and channelopathies

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Invited lectures/meetings • Lecture at Heart Rhythm Society,

Boston – the 39th Scientific Sessions.

• Lecture in Enniskillen.

• Adult cardiovascular course at

St George’s University of London (SGUL).

• Lecture in Maastricht, Holland on

19th on the Pathology of Obesity.

• Lecture and presentation at SGUL

summer school.

• Lecture – 25th to 27th August at

Munich.

Issue 76 | May to August 2018

An interview with Professor Mary Sheppard When and why did you get started in pathology?

I started in pathology because my professor at medical school was a superb teacher who transferred his knowledge and love of the subject to me. I also loved looking down a microscope at the images generated by examining human tissue for evidence of disease.

As you may know, most diagnoses of cancer during life are made by pathologists which determines treatment and prognosis. Therefore, pathology is a very important subject in medicine. Many members of the public do not appreciate the importance of pathology in everyday life and particularly within NHS hospitals.

What are some of your biggest achievements so far?

Setting up a department of cardiac pathology which leads research into the cardiac causes of sudden death, both nationally and internationally. We have established a worldwide reputation in this field with publications in leading medical journals. Pathologists throughout the United Kingdom respect the service that we provide to them free of charge, with a quality report delivered within two weeks of receiving the sudden cardiac death case.

We have co-operated with our European and American colleagues and established international guidelines for the investigation of sudden cardiac deaths. We also provide international guidelines that help pathologists diagnose the causes of sudden cardiac death. We act as a teaching centre as well, training future pathologists in cardiac pathology. Pathologists come from all over the world to learn about cardiac pathology in our department.

How does your work support families looking for more certainty following a sudden cardiac death?

Our work is a vital link for families who are looking for a cause of death in a loved one who has suffered a sudden cardiac death. Pathologists are very busy people working within the NHS and have little time to devote to autopsy work. We offer a free service to these pathologists who have such a case of sudden cardiac death. We offer to examine the heart in detail, take tissue samples, and also accept the genetic material for storage here for future genetic testing on a national basis. Pathologists throughout the United Kingdom use this national service that CRY funding provides. I will always provide a cause of death to the family working together with the pathologist who refers the case, as well as the coroner who is handling the case locally. We guarantee to provide an answer within two weeks of getting the case. We provide the cause of death in this timeframe and avoid anxiety and uncertainty at a very stressful time for the family.

How does your research help further family screenings take place?

After somebody dies following a cardiac arrest, an autopsy is performed to determine the cause of death and this is done by a pathologist. The pathologist takes very small pieces of tissue from the body to determine the cause of death. This tissue is very important and we retain it for www.c-r-y.org.uk

research. In addition, a small piece of tissue is taken for genetic analysis which also helps in determining the cause of death. We are all aware that the majority of causes of sudden cardiac death are genetic and that the family will need screening. A good post-mortem report produced when there has been a tragic sudden cardiac death is vitally important information for the cardiologist who is screening the family. Here at St George’s Hospital, I work very closely as a cardiac pathologist with the cardiologists who are screening the families who suffer a sudden young cardiac death. Determining a specific cause of the cardiac death helps the cardiologists with the screening protocol when the family visits. The cardiologists consider a good autopsy or post mortem report with histology and the genetic material being stored as vital information combined with a detailed family history in helping them make a diagnosis within the family.

How does your work support CRY’s other research, such as the recent NEJM paper on the outcomes of screening in adolescent footballers by Dr Aneil Malhotra?

Our work supports this research in providing the causes of death of the athletes who have been screened in the CRY programme. Obviously it is very important for the cardiologists to know the cardiac causes, so that they can review their screening protocols and improve diagnosis to avoid future sudden deaths in athletes.

Looking forward, what do you hope to achieve and focus on in your research?

In my research I am helping to improve the specific diagnosis in important cardiac diseases such as cardiomyopathies and channelopathies. I have established new disease entities such as idiopathic hypertrophy/ enlargement of the heart. I am providing genetic material to look at genetic mutations in families who suffer a sudden cardiac death. I am looking at new markers to help pathologists make a more specific diagnosis in a sudden cardiac death case. I am also looking at the electrical activity within the heart with examination of the nerves that control the heart rate. I am also helping my cardiological colleagues with imaging techniques in cardiac disease and comparing them to the causes found at autopsy.

Do you foresee changes to how the Pathology Centre functions due to new developments or technology?

Yes, I foresee that we will be able to examine cases over the Internet, avoiding transport costs and delays when a sudden cardiac death occurs. We will be able to use imaging techniques and scanning that will enable us to see cases from throughout the world. We will be able to form an international network comparing cases from the UK and elsewhere which will help us to determine the causes throughout the world. Pathologists will be able to help each other with these high-resolution scanning techniques and use online video conferencing, enabling pathologists to discuss difficult challenging cases.

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Q&A with Dr Aneil Malhotra Former CRY Research Fellow Dr Aneil Malhotra discusses his research into the incidence and causes of young sudden cardiac death in adolescent football players in the UK, “Outcomes of Cardiac Screening in Adolescent Soccer Players”, published in the New England Journal of Medicine.

How did you conduct your study?

This study sought to investigate the incidence and causes of sudden cardiac death in adolescent football players in the UK. The English Football Association cardiac screening programme enabled us to study a well-defined population of over 11,000 scholar footballers in a systematic way.

The study itself was conducted across three sites: St. George’s University of London, Wembley stadium and St. George’s Park in Burton-on-Trent. Between 1996 and 2016, we evaluated 11,168 adolescent athletes aged 16 years, the vast majority of whom were males (95%).

They had all undergone cardiac screening with a health questionnaire, physical examination, ECG and echocardiogram. We were not only able to report the number of conditions identified but also the number of sudden cardiac deaths that ensued, which were confirmed with autopsy reports.

The main findings of the study were: • During screening, 42 (0.38%) athletes were found to

have cardiac disorders associated with sudden cardiac death. A further 225 (2%) minor cases of congenital and valvular abnormalities were identified.

Dr Malhotra talking about his research on BBC News

While 1 in 266 of the footballers having a condition may sound concerning, how much of this is due to a high rate of Wolff-Parkinson-White syndrome in this group?

While a WPW ECG pattern accounted for the largest proportion of serious conditions among football players, the prevalence of a WPW pattern among our study population was 0.23% (26/11,168) which is similar to that reported in the general population which is between 0.1-0.3% (see reference). (Ehtisham J, Watkins H. Is Wolff-Parkinson-White syndrome a genetic disease? J Cardiovasc Electrophysiol.

2005 Nov;16 (11):1258-62.)

Does this research help confirm what we already knew, that athletes are more at risk than the general population?

The focus of the study was on the conditions identified that can be associated with exercise-induced sudden cardiac death. While all those who died did so during exercise, this is an association rather than causality, which is more difficult to prove without a control group of non-exercising individuals with a cardiac condition.

• Following screening, there were 23 deaths from all

Seeing as 74% of those diagnosed with a condition were able to continue playing, can this research reassure other footballers and athletes?

• Cardiomyopathies accounted for 7 (88%) sudden

The majority of these players consisted of those with WPW who underwent a curative procedure. Some with structural abnormalities such as anomalous coronary artery origins and valvular disease also underwent corrective operations and returned to play. This is encouraging for players who have been diagnosed with a condition in that this often does not signify the end of their sporting career.

causes, of which 8 (35%) were attributed to cardiac disease. cardiac deaths.

• Six (75%) athletes who suffered sudden cardiac death

demonstrated a normal cardiac screen at the age of 16 years.

• The mean time between screening and sudden cardiac

death was 6.8 years.

• Based on a total of 118,351 person-years, the

incidence of sudden cardiac death in previously screened adolescent soccer players was 1/14,794 person-years.

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How important is this research in reinforcing the value of cardiac screening, as it’s clear that all athletes need multiple screenings to ensure their safety?

Of the 42 cases identified in this study, only 2 experienced symptoms. Of the 8 deaths none were symptomatic.

Therefore, some form of screening procedures need to

Issue 76 | May to August 2018

Q&A with Dr Aneil Malhotra exist to detect the vast majority of conditions associated with sudden cardiac death. Despite identifying 42 cases, this study shows that some athletes who are predisposed to developing cardiomyopathy in the future will not be identified at 16 years of age. Therefore, serial evaluations are advised.

Walker M, Birt R, Stuckey D, Robinson L, Tome M, Beasley I, Papadakis M, Sharma S. Br J Sports Med. 2017 Jun 14. pii: bjsports-2016-097440.)

Can this research help put better preventative measurements in place, with the FA making a proactive commitment to improve the rates of cardiac screening?

There are a number of avenues to explore based on the findings of this study. There was a 6-fold higher incidence of sudden cardiac arrest among black footballers compared to white footballers. Although there were many more white (90%) than black subjects, this corroborates with findings in the USA among black basketball players. The reasons behind this ethnic variation should be explored further.

In 86% of all serious diseases identified, the ECG was abnormal. This suggests that screening should be implemented not just across the upper echelons of football, but potentially across grassroots football.

We should also highlight that screening is not a substitute for emergency response facilities, including AED provision and usage. Our group recently showed that emergency response facilities including primary and secondary prevention strategies across professional football clubs in England (see reference) was of a higher standard when compared with European counterparts. Training staff and ensuring AEDs are maintained are crucial in ensuring safety of athletes on the pitch too. (Malhotra A, Dhutia H, Gati S, Yeo TJ, Finocchiaro G, Keteepe-Arachi T, Richards T,

What research needs to be carried out next to further these findings?

The paper also highlighted over 250 athletes with abnormal ECG findings but a structurally normal heart. Re-evaluation of these athletes will help further our understanding as to how many of these may have developed a cardiomyopathy.

Finally, longitudinal prospective serial evaluation of footballers will help shed light onto the issue of if and when a cardiomyopathy may manifest. The FA recommendations of an ECG at 18, 20 and 25 years of age, following an ECG and echo at 16 years, will provide data to help investigate this.

British Cardiovascular Society Conference 2018 insights into the differences in the way the heart adapts to exercise based on gender and ethnicity. Winning this award is an amazing achievement, especially considering her main competition came from Dr Chris Miles, another CRY Fellow, whose research into ARVC won him a Young Investigators award earlier in the year at EuroPrevent. Both of these were brilliant presentations, demonstrating the significant impact CRY’s research is having.

Once again the team of Cardiac Risk in the Young doctors, led by Professor Sanjay Sharma, had a massive impact at the British Cardiovascular Society conference.

Some of the highlights included presentations from Professor Sharma, Dr Michael Papadakis, Dr Elijah Behr, Dr Sabiha Gati and Dr Aneil Malhotra. But the real highlight for me had to be seeing CRY Research Fellow Dr Joyee Basu collecting her award on the stage at the end of the conference, having won the prize for “Best of the Best” abstracts in the field. The research provided further

www.c-r-y.org.uk

It is through CRY’s research programme that we are able to continue subsidising CRY’s screening programme.

Without our doctors’ commitment to research we would be unable to do the screening. That is why events like these are so important, providing a platform for CRY’s team of doctors to present the research and raise awareness within the cardiology community.

It is the research which is changing the way medicine is practiced and that is only possible because of all of the support we receive from families throughout the country.

Every time I am told we punch above our weight when it comes to research, it gives me a great sense of pride to know everything which is done in memory of all those who have died will help to save young lives.

By CRY Chief Executive Dr Steven Cox

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CRY Heart of London Bridges Walk 2018

1,375 walkers attended CRY’s 12th Heart of London Bridges Walk There are 12 young sudden cardiac deaths in the UK every week. It’s why the number 12 is such an important figure to CRY and everyone who supports us. And as CRY staff, volunteers and 1,375 walkers gathered together in London on June 24th, we held our 12th annual CRY Heart of London Bridges Walk.

memory of someone and support CRY, surrounded by the stunning backdrop of Tower Bridge.

The day started early for CRY staff members and our eager volunteers, with a team arriving at Potters Fields Park at 8am to set up marquees, assemble the registration tent, and ensure the venue was ready.

“I think it’s fantastic that an idea I had when I met the people at CRY back in 2006 turned into this annual event, which is a flagship event for this most magnificent charity,” Kathryn said to open her speech before the walk began. “I think you’re all remarkable. I think you’re incredibly brave, seriously courageous people, and it’s a privilege to be involved with it.”

As everything took shape, walkers started filling up Potters Field Park in their white CRY t-shirts. It was very moving to see so many people gathered in one place to walk in

CRY Patron Kathryn Harries speaking before the start of the walk

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CRY Patron Kathryn Harries first had the idea for a bridges walk all those years ago, and it was wonderful to see her again this year offering her support.

After Kathryn’s speech, CRY Chief Executive Dr Steven Cox spoke about how far the event has come and important changes that will help CRY’s fight against young sudden cardiac death: “It is incredible how this event has changed and how it has developed over the years to now be the most important event in our year, to bring together families from all over the country.

“In 2007, when we held our first walk, CRY was in a very different position to where we are now. Back then, most people would not have been aware that young people could die suddenly of heart conditions. Now, when I talk to people about what I do, they’re almost always aware of young sudden deaths. They’ve heard about the stories, they’ve heard about your experiences. Often they will

Issue 76 | May to August 2018

CRY Heart of London Bridges Walk 2018

even tell me that they’ve heard about CRY’s screening programme.

“On Monday of this week we reached a major milestone as the World Health Organization (WHO) acknowledged that when a young person dies of SADS, as well as all the other conditions, this should be recognised by official statistics and the policy makers. This change has only been possible because of the research that you are helping us to publish, showing what needs to be done and why it is so important.

“And this announcement from the WHO coincides with the 100th MP signing up to support a national strategy to prevent young sudden cardiac deaths, and at the same time they are saying they are going to review the cardiac screening policy in the UK,” Dr Cox said to a round of applause.

Dr Cox also mentioned that families would often go without support after a tragedy. Now, a referral to a specialist cardiologist is the norm, which helps families find clarity about what happened to their loved one and what testing they may need to undergo themselves.

“There are many young people alive today because of what

www.c-r-y.org.uk

you are doing,” Dr Cox added. “None of these changes would have happened without the incredible support we receive from CRY families, from your support all over the country.”

Following the speeches and a minute’s silence, walkers made their way across the green and set off at 11am.

The main route was approximately seven miles, while the shorter, wheelchair friendly route was 2.5 miles.

The walk finished at Hay’s Galleria where CRY Founder Alison Cox MBE (right) gave her speech and the Rock Choir filled the area with music to draw in everyone’s attention, both walkers and passers-by.

“The Walk is the most important event in our calendar,” Alison said. “It brings families together along with

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CRY Heart of London Bridges Walk 2018

all our resources that we offer to try and reduce your suffering. Facebook, the telephone support we offer, the bereavement support days we put on specially for you, and also the Aspects of Grief booklets we have over there.

“What today is about is actually grieving for you,” Alison added. “This is a day where everywhere you look you’ll see somebody that has had the same aspect of grief as you.

And if you have the courage to go and say hello, you’ve got another person to talk to. That’s how actually articulating, speaking to others really makes a difference. People find it difficult to understand in the beginning that it could, but for those of you that have done it I think you’ll agree that talking to others really helps.”

these make us see we are not alone,” it is clear just how valuable this annual event is.

There is no way this day could happen, let alone be such a success, without the stellar efforts of our volunteers.

Thank you for all you did on the day!

We would also like to thank all of our sponsors for their support: Chubb, UNUM, ServiceMaster, Hippeas, Eat Natural, JDs Food Group and London Bridge City.

All of the photos from the event can be viewed on our Flickr page here https://bit.ly/2Mf5vI0

The walk wasn’t easy in the heat, and we are hugely grateful to everyone who made the journey to London to take part in the event, raising so much money to support CRY and also to spread awareness across the heart of England’s capital.

It is always an emotional day, but it was amazing to see everyone come together and hear from our supporters after the walk and see their messages on social media.

With comments like “such an inspiring day”, “great day for a fantastic cause, our first Heart of London Bridges Walk but most definitely not our last”, and “events like Thank you to all of our CRY volunteers!

Tony Beadle, Lynne Beadle, James Boag, Jenny Boag, Lucy Bowyer, Krisztina Cserhalmi, Simone Davis, Lorraine Dunbar, Antonia Fallows, Francesca Fallows, Kerry Ferne, Suzanne Fletcher, Laura Frost, Lianne Frost, Ayda Frost, Freja Frost, Caroline Gard, Peter Gard, Shelagh Green, Sheila Hammond, Wendy Harrington, Barbara Holland, Jim Holland, Kelvin Holt, David Jewell, Gerry Johnston, Pat Jones, Julie Lockton, Alexandra MacLeod, Remy Malvy, Elizabeth Merritt, Helen Merritt, Wendy Moss, Tim Munyanyi, Anna Murphy, Grant Nivett, Jo Pickard, Joanne Quirk, Ramila Raval, Elizabeth Rigney, Pete Robinson, Sue Robinson, Maureen Ross, Sara Sheridan, Joseph Smith and Matt Wilson.

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Issue 76 | May to August 2018

Prudential RideLondon-Surrey 46 and 100 2018

Thank you and a massive congratulations to the 66 cyclists who braved the wet and windy weather on Sunday 29th July, taking on what is known as the world’s greatest festival of cycling; the Prudential RideLondon-Surrey.

51 cyclists took part in the 100-mile event and 15 cyclists were in the 46-mile event.

About 25,000 cyclists took part, starting from the Olympic Park in Stratford as early as 5.45am, continuing south west to Hampton Court, then down through the Surrey boroughs of Woking and Guildford, before taking on the hill climbs of Mole Valley on the way to the spectacular finish line at The Mall, Westminster.

Dedicated spectators took to the roads to cheer on the participants, including CRY volunteers and staff who were encouraging Team CRY. They supported along the route early in the morning at Piccadilly, Dorking, Oxshott, Wimbledon and near the finish line down The Mall, in Westminster. CRY’s Chief Executive, Dr Steven Cox, was supporting on the route at Newlands Corner.

The cyclists were congratulated and welcomed back at the meet and greet area in Green Park and then taken to the Hilton Hotel for a well-deserved shower and massage.

The massages were given by our terrific volunteer massage therapists. Team CRY riders were given a #CharityHero medal along with some snacks and refreshments.

After taking their photos and meeting the friends and families of Team CRY, it was brilliant to actually speak to them about their experiences and great to meet so many of the team.

We are so very grateful to all of our cyclists for taking on this challenge and for choosing to do so for CRY. Thank you also to the Hilton, Green Park Hotel for hosting our post-event reception.

All the photos from this year’s event can be viewed on our Flickr account here https://bit.ly/2nnnelW

Thank you to all of our volunteers for their fantastic efforts on the day!

Andy Clarke, Krisztina Cserhalmi, Samantha Hack, Diana Hunt, Ben Leamon, Hollie Montague, Becci and Arthur Robinson, Josh Skelding, Julien and Rowena Upson and Sarah Wright.

www.c-r-y.org.uk

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Prudential RideLondon-Surrey 46 and 100 2018 CRY cyclists: Roger Ardley Paul Barnes (in memory of James Phillips) Nick Blomfield (in memory of Anthony Fitzgerald) Anthony Britch (in memory of Anthony Fitzgerald) Pete Chapman (in memory of Oliver Griffin) Andrew & Kate Clough (in memory of Charlie Craig) Mike Cox (in memory of Freya Cox) Darren Davies (in memory of Danny Brown) Marco Del Toro (in memory of Rob Crozier and Simon Tweedie) Darsh Dhillon (in memory of Anthony Fitzgerald) Enda Duffy Jeanne Edeam Wayne Edgecock (in memory of Kris Cook) Christopher Ellis-Keeler (in memory of Anthony Fitzgerald)

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Issue 76 | May to August 2018

Prudential RideLondon-Surrey 46 and 100 2018 Robert Field (in memory of Ethan Jones) Dermot Fisher (in memory of Michael Fisher) Alison Fitzgerald (in memory of Anthony Fitzgerald) Kiley Ganderton (in memory of Anthony Fitzgerald) Hayden Green Matthew Green Steve Halkyard Peter Hannant (in memory of Freya Cox) Joshua Hayman (in memory of Oliver Marsden) Jon Hedge (in memory of Alex Hubbard) Andy Hunt (in memory of Matt Hadfield) Costas Ioannou (in memory of Isabelle Tudisca) Ben Jacobs (in memory of Anthony Fitzgerald) David Leigh (in memory of Jonathan Andrew Leigh) David Lloyd (in memory of Anthony Fitzgerald)

www.c-r-y.org.uk

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Prudential RideLondon-Surrey 46 and 100 2018 Samantha Manning (in memory of Lily Webster) Alan & Alison Mayger (in memory of Claire Mayger) Iain McArthur Pat McEnaney (in memory of Freya Cox) Gary & Paul Murgatroyd (in memory of James Murgatroyd) Steven Murphy (in memory of Anthony Fitzgerald) Gary Nestor Annie & John James Ogilvy (in memory of Angus Ogilvy) Mark Openshaw Simon Potashnick Richard Quin (in memory of Danny Brown) Sandie Robertson (in memory of Kris Cook) Becky & Ian Robson John Hayman Mark Rose (in memory of Freya Cox) Samuel Saunter

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Issue 76 | May to August 2018

Prudential RideLondon-Surrey 46 and 100 2018 Kim, Nancy & Pete Shaw (in memory of Freya Cox) Kate Sheehy (in memory of Ralph Murwill) Helen Sinden Richard & Russell Smith Joseph Stuart (in memory of James Murgatroyd) Jack Sutherland (in memory of Gideon Baws) Andy Tait (in memory of Kris Cook) Paul Turnham (in memory of Freya Cox) James & Simon Vevers (in memory of Anthony Fitzgerald) Andrew Warner (in memory of Phillip Goillau) Andy Wilding (in memory of Freya Cox) Daniel Wilson

CRY has charity places for next year’s Prudential RideLondon-Surrey 46 & 100 event. If you would like to cycle for CRY next year, please email events@c-r-y.org.uk. The ballot will close for the 100-mile event on Friday 4 January 2019 or when 80,000 registrations have been received, whichever is sooner.

To enter the public ballot, please visit the RideLondon website at https://www.prudentialridelondon.co.uk/events/100/entries/

www.c-r-y.org.uk

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Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2018.

Corrections from last issue Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes.

We always strive to enforce new methods to eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.

Here are corrections from issue 75.

In Memory of

David Aitchison

Jenny Aitchison sent in £100.

In Memory of

Leigh Aldridge

Allen and Clare Aldridge organised a charity event at their local pub and raised £100.

In Memory of

Alexandra Reid

A photo of CRY Patron Joe Root and his mother, Helen, was featured with the wrong caption. We apologise for this mistake, and would like to thank Joe and Helen again for their support.

In Memory of

Matthew Beadle

James Cunningham took part in the Virgin Money London Marathon 2018 in memory of Matthew Beadle and raised £3,084.

We apologise for not mentioning that James participated in memory of Matthew in issue 75.

In Memory of

Marcus Armstrong

• Tony and Jackie organised a race night at Harwick & Parkeston Football Club and raised £420.

• Jennie Armstrong donated £200, in lieu of wedding favours at her recent wedding, in memory of her cousin.

In Memory of In Memory of

Paul Amor

Rachel Amor took part in the Great Bristol Half Marathon and raised £170.

Jack Atkinson

Matthew Atkinson raised £1,249 from the Virgin Money London Marathon 2018.

In Memory of In Memory of

Shaun Appleby

Chloe Appleby took part in a Boxing Day swim and raised £325.

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Adrian Badon

Julie Badon sent in £800 raised through a live band fundraising evening; a speech given in March; and a coffee morning.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

Peter Bailey

Michael Bovington sent in £156 in lieu of floral tributes, in memory of Peter Bailey and Tom Bovington.

In Memory of

Roslyn Frances Bailey

Mr M Bailey sent in £345, representing donations received in lieu of floral tributes, in memory of his mother.

In Memory of

Cecilia Barriga

Mike Fleet organised a Roger Bannister signed book auction and raised £440.

In Memory of

Matthew Beadle

Lynne and Tony Beadle sent in £696.01 raised through selling refreshments at the National Garden Scheme.

In Memory of

Brett Beasey-Webb

• June Beasey sent in £1,000 in memory of her grandson.

• Alison, George and Todd organised a memorial football match and raised £3,560:

“There was a terrific turnout in support of the two teams of footballers, who really had taken the match seriously beforehand by arranging a number of training sessions.

Fortunately, the weather had taken a turn for the worse and was much cooler.

“Adam Moss (right), the man on the BBQ, did a roaring trade.

“Both teams were captained by two of Brett’s closest friends. The ‘white’ team with Ashley Truscott were narrowly beaten (11-2!!) by Scott Barden’s ‘orange’ team.

“Ian Morey (right), who was instrumental along with Scott Barden in organising the event, is shown here proudly displaying the match trophy on behalf of the winning team. The plan is to make this an annual event at Crawley Green Sports & Social Club who have kindly offered their ongoing support.

“There were many generous raffle donations, including a driving experience given by Brett’s work colleagues at Hitchin Audi. Brett was a keen Luton Town FC fan and the club kindly supported this event.

“On the day the total raised from entrance fees, raffle ticket sales, BBQ takings and personal donations was £4,580. The JustGiving page is currently £1,510, but this figure is steadily creeping up.

“We are so very grateful for what these young people have achieved, not only in raising such a marvellous amount of money for the charity Cardiac Risk in the Young, but also for raising awareness of potentially life threatening health issues and keeping the name of our beloved son Brett very much alive.

“Speaking to Scott after the event he said that, ‘me and the lads that took part in the match were grateful for the support we received and are looking forward to next year.

We were all proud to be playing in the memory of Brett’s name and raising money for the charity.’”

“This team of persuasive young ladies sold well over 1,000 raffle tickets.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Graeme Bell

Gemma Cannell sent in £670 on behalf of West Denton Fire Station Social Club.

In Memory of

Carina Boddy

Antony and Lloyd raised £3,135 from the Brighton Marathon 2018.

In Memory of

In Memory of

Phillip Arthur Betts

Rachael Betts raised £650 through her JustGiving page.

In Memory of

Dhara Bhatt

Sarah Booth

• Robert Booth sent in £350 from his former colleagues at Invest N.I. raised from the proceeds of their Premiership Score Predictor League.

• Ita and Robert sent in £500 from the staff at the

Belfast nursery Kids@BT9.

Georgina McCluskey took part in the Virgin Money London Marathon 2018 and raised £3,275.

In Memory of

Ben Birch

Emma Duncan took part in the London Landmarks Half Marathon and raised £475.

In Memory of

Steven Blair

Susan Blair sent in £515, including: £255 raised from collection boxes and a further £260 donation.

In Memory of

In Memory of

Daniel Boreham

Helen Bradley sent in £215.22 raised at a charity football match at Chelmer Valley High School.

Graeme Blenkinsop

Lesley Bryant sent in £100.

In Memory of

Jack Boulton

• June Boulton sent in £250 donated by the Bird in Hand, Saltford, through their annual cider festival.

In Memory of

Lucy Boddice

Roy Harrison sent in £200 in memory of his granddaughter.

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• David and June sent in £500 raised through the annual ‘Jack’s Day’:

“The annual Jack’s Day was held on 26th May, with thunder and lightning lurking in the distance… but luckily

Issue 76 | May to August 2018

Our Fundraisers it didn’t reach us.

Saltford AFC played against KCCFC with the usual passion, with Saltford AFC winning the match 2 goals to 1.

There was a raffle and a barbeque and altogether £1,560 was raised for CRY.” June Boulton.

• Kieran Asquire

completed the ‘Bonzo goes Biking’ challenge and raised £330.

In Memory of

David Bramwell

Mary Adlie sent in £757.23, in honour of Leah and Daniel’s marriage and in memory of her grandson.

In Memory of

Harley Curtis Brandon

• Freda Bourne completed an abseil of the ArcelorMittal Orbit and raised £903.

• Kluman & Balter Ltd donated £400 in respect of Stephen Bourne taking part in an abseil of the ArcelorMittal Orbit.

• Susan Wiles donated £120 in respect of Stephen

Bourne’s abseil of the ArcelorMittal Orbit.

• Michael Bourne took part in an abseil of the

ArcelorMittal Orbit and raised £300.

• Megan Bourne took part in an abseil of the

ArcelorMittal Orbit and raised £300.

In Memory of

Wesley Bray

• Richard Wicks sent in £100.

• Mark Dickinson sent in £100.

• John Saunders sent in £100.

In Memory of

Richard Brember

• Catherine Campkin sent in £100.

• Vicky Rock sent in £100.

In Memory of In Memory of

Tom Bovington

Joanne McAllister took part in the Virgin Money London Marathon 2018 and raised £2,592.

www.c-r-y.org.uk

Emma Broad

• Judy Broad organised a charity ball and raised £24,220 in memory of her daughter.

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Our Fundraisers • Keith Wallis organised a raffle and raised £686.50

during the EuroHockey Club Cup held at Surbiton Hockey Club.

• Keith Wallis sent in £822.21 raised at Surbiton

Hockey Club’s annual charity day.

In Memory of

Alex Brown

Denise Cummons sent in £842 raised by residents and volunteers of Abbeyfield Society: “The Abbeyfield Society is sheltered accommodation for the over 55’s. We are based in Wednesfield, Wolverhampton but we have homes all over the country. Over two weekends, we raised a fantastic amount of £842 through a sponsored walk by Christopher Hands and Paul Cummons (please see photo) and a fun day at the home in Wednesfield. We had a fantastic day with wet sponges, games and a cake stall.

“The Alex Brown memorial fund is special to us because, as the manager of the sheltered home in Wednesfield, I watched Alex grow up into a fine young man and wanted to help with the fantastic work CRYALEX is achieving through his sister Rachel and Alex’s friends and family.

Cardiac Risk in the Young is a very deserving charity who is doing excellent work to save young lives.” Rachel Dingle.

In Memory of

Danny Brown

• Andy Walker took part in the London Landmarks Half Marathon and raised £1,660.

• Trevor Quin took part in the London Landmarks Half Marathon and raised £935.

• Richard Quin took part in the London Landmarks Half

Marathon and raised £890.

• Jack Lyons took part in the Virgin Money London

Marathon 2018 and raised £1,198.

• Grant Mills took part in the London 10k and raised

£705.

In Memory of

David Brown

• Sarah Moth sent in £520 raised from a charity event.

• Laura Pottle sent in £441.48 raised through various activities, including: a cake sale; a heart themed quiz; a bracelet sale; and a game of ‘pop the balloon’ at a charity day at Ageas Insurance:

In Memory of

Connor Brown

Team “Connor’s Angels”; Pauline Brown, Kim Brown, Janet Palmer, Lorraine King and Lauren Smith, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,775.

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“On 27th June 2018, Sarah Jones and I held an event at work, Ageas Insurance, in memory of Dave to raise awareness and funds for CRY. Our colleagues each paid £1 to dress casual for the day, and we held a cake sale, a heart themed quiz, a bracelet sale, and a game of ‘pop the balloon’ to win a prize every time.

“We also got our manager involved; he agreed to a

Issue 76 | May to August 2018

Our Fundraisers on the Levels event; £100 raised through holding an awareness morning; £600 raised through Bill’s pole lathe event; £430 raised from Bill’s Pole Lathe Skills at the Priddy Folk Festival; and a £490 donation.

In Memory of

Jordan Burndred

• Margaret Ellsmore sent in £180 raised at her wedding.

sponsored head and beard shave! The day was very successful and we managed to raise a total of £961.48.”

Laura Pottle.

In Memory of

Kayla Brown

• Nicola Burndred sent in a

total of £674, including: £200 from the Biddulph

By The Sea raffle; £200 from Leek Town Football Club; £140 raised from a collection box; and a £134 donation.

Perth Grammar School sent in £169.57 raised by Kayla’s fellow pupils.

In Memory of

Alex Buckler

Jan and Colin Juneman sent in £510, including: £260 raised through a coffee morning, and £250 donated by Caroline Macpherson.

In Memory of

Carl Buckley

Graham Butler took part in the London Landmarks Half Marathon and raised £1,685.

In Memory of

Robert Burns

Doreen, Jimmy and Paul took part in a 5-a-side football match, tombola and cake stall and raised £1,300.

In Memory of

Jennifer Bucknell

• Harry Smallman sent in £1,122.31

raised by Cardiff University Rowing Club through breaking three world records on the rowing machine.

• Hillary and Bill Durrant sent in a total of £2,320,

including: £500 raised through fundraising over the bank holiday weekend; £200 in respect of the Steam

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Nathan Butler

• Phil Butler organised a sports quiz at

Porthill Cricket Club, attended by Nathan’s friends and family, and raised £115 in memory of his son.

• Matthew Farr sent in £141 raised through a dress

down day at Environmental Essentials.

• Lynne Sutton sent in £451 representing donations

received in lieu of floral tributes in memory of her husband, Lindsay.

• Soroptimist International Bilston & District donated

£4,500 to fund a screening day and further donations totalling £315.69 received on the day.

In Memory of

Ally Calvert

James Shaw took part in the London Landmarks Half Marathon and raised £605.

Malone products, half a case of prosecco, luxury hampers and many more.

“Everyone thoroughly enjoyed the afternoon – we all felt that Arabella was with us and we have raised over £2,300 for CRY. Huge thanks to everyone, especially Jo and Mark Barden for hosting the tea and for those who baked, helped set up and clear away, and all those who donated so generously.

“It is wonderful that so many of Arabella’s friends and family want to celebrate her life in this way.” Clare Northcott.

• Emily Thomas organised a 12-hour netball event and

sent in £226:

“MMUC Netball did their annual 12-hour netballathon in aid of CRY this year! We started at 8am and finished at 8pm on January the 20th, and the event was very successful as we raised £283.60 from sponsorships and a tombola. Our girls were extremely tired throughout the day, however, we got lots of encouragement and support from each other, friends, family and the other students that visited us at the event! We are grateful for everyone that donated and can’t wait to keep fundraising for such a wonderful charity!” Emily Thomas.

In Memory of

Arabella Campbell

• Chris Sampson took part in the London Landmarks Half Marathon and raised £751.08.

• Rosie Northcott raised £4,604 through her JustGiving Page.

• Clare Northcott organised a strawberry tea and raised

£1,250.92:

“We had a beautiful day for the 4th Strawberry Tea on 15 July 2017. There were dozens of cakes, scones with cream and handmade strawberry jam, strawberries and cream accompanied by prosecco, Pimm’s, and tea. Apart from the tea we had a plant stall, handmade crafts for sale, vintage clothes and a lucky dip.

“For those unable to join us on the day Suzy Dury organised a bring and buy sale at Morley College.

Arabella’s cousin, Amy Dury, raised money from face painting at a family party and many friends donated via JustGiving.

“As always, the raffle was hugely successful with very desirable prizes kindly donated by friends and family; Jo

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Issue 76 | May to August 2018

Our Fundraisers In Memory of

Simon Carloss

Michelle Carloss sent in £355.56 on behalf of The Kangeroo Inn.

In Memory of

Matthew Carscadden

“Team Matt”; Kirsty-May McKie, Sarah McKie, William Hyndman, Daphne Hyndman, Sean Hyndman, Anna Hyndman, Sam Carscadden, Stacey Dewan, Chloe Carpenter and Bryan Pellatt, took part in the CRY Heart of London Bridges Walk 2018 and raised £100.

In Memory of

Philippa Chowne

Lisa Chowne and Andrew Chowne took part in the CRY Heart of London Bridges Walk 2018 and raised £200, in memory of their daughter.

In Memory of

Katrina Christopher and Cheryl ChristopherWebber

• Chris Merchant completed the

Tour de Trending Cycle and raised £260, in memory of Cheryl.

• Ellen Hinton took part in the Admiral Bay Swansea

10k and raised £590.

In Memory of

Tom Clabburn and Claire Prosser

• Gordon Prosser sent in £100.

• Helen Barnes celebrated her 50th

birthday and raised £300 in lieu of gifts.

• “Team Tom”, “Team Tom and Claire”, “Team Tom

www.c-r-y.org.uk

X1”, “Team Tom + Claire 2018”, “Team Tom + Claire 2019”, “Team Tom + Claire 2020” and “Team Tom + Claire 2020”; Chris Pearson, Gordon Prosser, James Ballantyne, Anne Marie Reilly, Sophie Manser, Hannah Langan, Alan Rodney, Helen Lewis, Joshua Rodney, Louis Rodney, Mike Scott, Alison Montgomery, Helen Scott, Nick Scott, Timur Onder, Megan Lilian Jones, Tim Carpenter, Baerbel Carpenter, Julie Lefebve, Emma Amrose, Joely Langston, John Stanton, Laura Bolus, Jamie Sandlers, Nema Hafezi-Bakhtiari, Aaron Pearce, Lisa Neaverson, Greg Mould, Helen Barnes, Steve Barnes and Richard Prosser, took part in the CRY Heart of London Bridges Walk 2018 and raised £300.

In Memory of

Brian Collis

Alex Tweedie took part in the Greater Manchester Marathon and raised £890.

In Memory of

Stephen Connor

Frank McMahon sent in £300 from the Connor Cup cricket match between Whittle & Clayton le Woods and an invitation XI.

In Memory of

Daisy Cope

Harriet Lovell completed a sponsored mud run and raised £250.

In Memory of

Lynne Corden

Edna Beadsmore sent in £387.03 raised at a recent screening.

In Memory of

Bruce Cousins

• Jackie Cousins sent in a total of £874 in memory of her son, including: £485.50 raised from her market stalls; £190 from

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Our Fundraisers a spring plant sale and market stall; and £198.50 raised through a bucket collection at her screening event.

• Jackie and Alan sent in donations totalling £195.35,

raised as follows: £16.55 from a collection pot at The Monkwood Pub, and £178.80 from market stalls.

• Vivien Jenkinson sent in £700 on behalf of

Sprotbrough W I.

Vaughan Wilcox, Katie Hannant, Beth Ballantine, Diane Matthews, Ali Redford Stickland, David Stickland, Coby Stickland, Demi Stickland, Kirstie Young, Craig Young, Peter Hannant, Fergus Hannant, Jack Turnham, Kate Zucconi, Ronnie Maddox, Stephen Brown, Liz Brown and Toni Maddox, took part in the CRY Heart of London Bridges Walk 2018 and raised £440.

• Richard Hawkes swam the Bosphorus Strait and

raised £250:

“On Sunday 22 July, I swam 6.5km from Asia to Europe across the Bosphorus Strait in memory of my 19-year-old goddaughter, Freya Cox, who died suddenly and tragically in December. I was fundraising for two charities, one of them being CRY, and have so far raised more than £22,000.

In Memory of

Craig Cowland

Stephen Piacentini organised a charity football match and raised £1,655.38.

In Memory of

Freya Cox

• Team “Laceys”, “Team Cox”, “Team Freya” and team

“Crossing Bridges for Freya”; Charlie Lacey, Alison Lacey, Rebecca Lacey, Beth Lacey, Rebecca Skingle, Richard Skingle, Milly Skingle, Eliza Skingle, Alison Cox, Mike Cox, Ollie Cox, Matilda Cox, Gareth Thomas, Ferlin Thomas, Odhran Thomas, Angus Thomas, Alice Williams, Joel Williams, Noah Williams, Eve Williams, Jenny Beck, Melanie Gay, Sophie Gay, Lily Gay, Emily Hawkes, Katie Hawkes, Sasha Hawkes, Lucy Simmonds, Olivia Simmonds, Sian Turnham, Paul Turnham, Elinor Turnham, James Turnham, Eliza Keeping, Roxana Dallamy, Tayte Moon, Margot Hodgkinson, Wendy Brown, Rennie Chadwick, Deborah Chadwick, Henry Chadwick, Kate Watts, Alex Maries, Karen Wilcox, Adrian Wilcox, Lillian Wilcox,

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“In 1996, I was best man for two of the closest friends anyone could ever have – Mike and Alison Cox. They had three amazing children and I was privileged to be asked to be a godfather for their eldest, Freya. Freya was an amazing girl who achieved far more in 19 years than many of us achieve in a lifetime. Her sudden death has affected so many people, as they are the closest and most popular family any of us know. Freya is missed and talked about every day and we will never forget the impact she had on us.

Mike and Alison have received a lot of support from CRY and we have all been really impressed by the charity.

“It was a privilege for me to do this challenge in memory of Freya and in support of CRY. I absolutely hate swimming and it was not an easy challenge – six months of training in pools and lakes and then a 6.5km swim across the Bosphorus Strait in Istanbul. But thinking about Freya and her family throughout made it much easier and kept reminding me how much I love them and that there is nothing at all that I wouldn’t do for them.

I look forward to doing more things for Freya and for CRY in the future.”

Issue 76 | May to August 2018

Our Fundraisers In Memory of

Matthew Cragg

• Paula-Jane Shepherd forwarded a donation of £272.50 on behalf of Ewa who organised a Choice of Scandanavia Charity Spring Event.

• Lisa Chambers sent in £150 in respect of Mattfest.

• Fleur Adderley took part in the Virgin Money London

Marathon 2018 and raised £4,081.22.

In Memory of

Charlie Craig

• Annabel Millington sent in £391.91

raised by the students of Hope Valley College through their dance show.

• Katie and Sophie took part in the Newport Marathon and raised £220.

• Caroline Goward completed the Land’s End to John

O’Groats challenge and raised a further £180:

“On 24th June, I completed Land’s End to John o’ Groats – 874 miles in nine days and what an adventure! Even better, I have exceeded my JustGiving target! Here are a couple of photos – looking very nervous on day one and very happy on day nine.”

In Memory of

Hayley Crook

• Deb and Rod Crook ran a local charity shop and

raised £1,200.

• Elizabeth Crook donated £250 in memory of Hayley,

to commemorate her 32nd birthday.

In Memory of

Tim Daines

Ann Daines organised a coffee morning and bring and buy event and raised £525.

In Memory of

Freya Rose Dalrymple

• Ingrid Dalrymple sent in £1,450,

including: £200 donated by staff and customers of Papdale Stores, Kirkwall; £750 raised by the Rotary Club of Orkney; and £500 from members of the Kirkwall Masonic Lodge.

In Memory of

Ben Daniels

• Jackie Baker took part in ‘Why Not Run’ and raised £10,000.

• Helena Daniels sent in £752.50 from the Old Elthamians RFC. • Jeremy Ridley sent in £3,026.44 through his

JustGiving page.

In Memory of

Neil Darby

Robert Wood completed the Yorkshire Three Peaks Challenge and raised £754: “I was getting a little emotional going round. The total is nearly £750 pounds.

I did it in 8 hours 59 minutes and I’m keeping the t-shirt.”

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Thomas Day

• Leeds Grammar School organised their annual Santa Run and raised £1,400.

• Rosalyn Day took part in the London Marathon 2018 and raised £2,066.

In Memory of

Patrick Dinsmore and Mike Taylor

Darren and Aisling White donated £100 on behalf of guests at their wedding, in memory of their cousins.

In Memory of In Memory of

Thomas Demaine

• Ann Demaine sent in £189.88 raised as follows: £30 from Dr Anwynne Houldsworth, and £159.88 from Mia and Carmen Vitkovic.

• Katherine Harper sent in £100.

• Alison Treharne raised £280 from a coffee morning.

• Ann Demaine sent in donations totalling £2,570

raised as follows: £70 from the St Germans Primary School Fete, and £2,500 from the Mel Cotton Charity.

Aaron Dixon

• Gary Dixon sent in £1,652.14 in memory of his son, including: £180 representing donations raised at a CRY charity event at Nunsmere Hall; £386.29 raised at his recent screening event at Ash Grove Academy; and £1,085.85 in donations.

• Deborah Dixon forwarded £250 donated by Jono, Sal,

Rorie, Harry and Pippa.

• Cuddlington AFC organised a football tournament and

raised £636.06.

• Ben Dingwall sent in £105 in lieu of gifts to celebrate

his wedding.

• Karen Field at Groundwork UK donated £2,625.

In Memory of

James Devlin

Lisa Power sent in £100 collected at her mum’s funeral, in memory of her brother.

In Memory of

Matthew Dewhirst

• Chris and Sue Dewhirst raised £5,305 through their JustGiving page in memory of their son.

• Chris and Sue Dewhirst sent in donations totalling £3,410, including: £910 raised at the recent Wrekin College screening event; £2,000 from Cae Glas Masonic Lodge; and £500 from North Shropshire College Funday.

In Memory of

Junior Dian

George Apps raised £2,582.50 from the Virgin Money London Marathon 2018.

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In Memory of

Adam Drawbridge

• Sarah Drawbridge sent in £111 on behalf of Rotaract.

• “Team Adam”; Sarah Drawbridge and Les Drawbridge, took part in the CRY Heart of London Bridges Walk 2018 and raised £600.

In Memory of

Andrew Drysdale

Lizzie and the team took part in the Edinburgh Marathon Relay and raised £2,812: “In June last year we lost our friend and colleague Andy Drysdale at the age of just 49. A team of us ran the Edinburgh Marathon Relay in his memory on Sunday 27 May 2018, raising money for CRY. “Andy’s All-stars all had different running abilities and

Issue 76 | May to August 2018

Our Fundraisers trained hard for the big day. Sadly, one of the team, Ross, fell and broke his ankle with just two weeks to go! Lizzie, Lesley, Kata and Ashley got around in a great time and thoroughly enjoyed the day.

“The support has been incredible – the team and Andy’s family would like to thank all our supporters. At the moment we are at £2,800 which we are thrilled with.”

Lizzie Lundy.

In Memory of

Annie Edwards

Luke Jones raised £1,234 for the Brighton Marathon 2018.

In Memory of

Gary Edwards

• Sammy and Kim Cross took part in the Jurassic Coast Challenge 2018 and raised £600.

• Hilary Edwards sent in £1,020:

“We finally held the third football match and raffle in memory of our son on Sunday 15th April. The weather wasn’t as good as the first two years and we therefore worried if people would turn up. We needn’t have worried!

Gary’s twin brother, Rob, and friends enjoyed a great game on Taunton Town FC’s football ground, with a total of six goals being scored.

“Afterwards, family and friends enjoyed an afternoon in the Peacock Club where our annual raffle was held. We are really proud to have raised £1,020 with an additional £135 online. Our aim is to hold a local screening and awareness session in the town.”

In Memory of

Harry Dubois

Emily Dubois and Jonathan Mamczynski took part in the London Landmarks Half Marathon and raised £997.

In Memory of

Christine Dunbarton

Emma Piper sent in £493.60 representing donations received in lieu of floral tributes in memory of her mother.

In Memory of

Annie Eaton

Dawn Harvey sent in £125 donated by family in memory of Annie.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Rory Embling

• Chris Embling sent in £340 raised from a presentation evening with Ackworth Junior Ladies Football.

• Chris Embling sent in £114 raised by the Ackworth Junior Ladies Football team from holding a raffle.

• Chris Embling sent in £227 from the Ackworth Junior

Football Club’s under 10s.

• Chris and Anne organised a World Cup Sweep and

raised £425.

• Chris Embling sent in £227 raised through a Take

That tribute evening at the Wakefield Trinity Rugby League ground.

• Team “Rory’s Return”; Chris Embling, Anne Embling,

Francesca Embling, Amanda Roberts, Susan Wright, Joanne Mills, Wayne Mills, David Gaythorpe and Helen Gaythorpe, took part in the CRY Heart of London Bridges Walk and raised £160.

• Chris Embling sent in

£100 raised through the sale of his hen’s eggs:

“This photo is of Anne and Chris with Bathsheba, one of Chris’ hens who lay eggs for CRY. The sale of eggs has now raised £700.00 for Rory’s Foundation at CRY. If you look closely, you can see that Bathsheba, our only hen that lays white eggs, recently laid an absolutely giant egg. Compare the sizes!”

• Chris Embling sent in £676.37 raised at his recent

screening event:

“These photos were taken at our third screening event at Rory’s Return.

“1st photo (top left): volunteers on the day with the amazing CRY team who, as always, were so professional and competent – it made our work easy!

“2nd (top right): Diane and Grace Blakeley with Rory’s sister, Francesca, who ran a tombola stall for us.

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“3rd (bottom left): Chris with Rory’s canvas which every young person screened on the day signed.

“4th (bottom right): CRY buns donated for our cake and coffee stall.

“Over 100 young people were screened on the day with one referral for further investigation. We raised £676.37 which will go towards our next screening.” Anne Embling.

• Chris Embling sent in £526.75 raised at the Tateshall

Lodge charity dinner:

“The ball was organised by John Duncan, our neighbour.

We had a wonderful four course meal and were royally entertained by brilliant singer and great CRY supporter Joseph O’Brien. The lodge raised £526.75 for Rory’s Foundation for which we are so grateful.” Anne Embling.

• Chris Embling

organised the third annual University Challenge Quiz and raised £565:

“The first photo (right) shows Chris, Rory’s dad, with the organisers of the evening; Quizmaster John Duncan with his able assistants, wife Kathryn and daughter Ellanna, who all worked so incredibly hard in organising the event and conducting proceedings on the night. The second photo shows unbeatable team, Simple Minds, who were victorious for the third year in succession.

“Thanks to the hard work of the Duncans and the

Issue 76 | May to August 2018

Our Fundraisers and we were all buzzing afterwards,’ said Louis. Richard added that ‘the lads rose to the training challenge, developing good technique and stamina, improving their skill and fitness. Everyone is so proud of them for their determination and sheer physical courage, which made for an excellent boxing show enjoyed by about a hundred people.’ “‘We were cardiac tested recently at a screening in Doncaster,’ explained boxer Jake, ‘and we’re delighted that people enjoyed our event which will make it possible for more young people to be screened’. Jake’s mate, Ben Stephenson, added, ‘it’s also made us all more confident and we’re all just so proud to have risen to the challenge and hopefully helped others.’ wonderful support of all who attended, we were able to raise £565 for Rory’s Foundation at CRY.” Anne Embling.

• Chris Embling sent in £700 raised through Ben, Jake,

Louis and Travis taking part in an amateur boxing event, organised by James Bovington held at the Bad Company Gym in Leeds:

“What started as banter in a sixth form common room recently led to two amateur boxing bouts between four young men from Horsforth and Cookridge, raising £700 for CRY, a charity which funds heart screening for young people aged between 14 and 35 and campaigns for a free, nationwide screening programme.

“The four 17-year-olds – Travis Filono, Ben Stephenson, Louis Dennison and Jake Uren – arranged training with Richard Smith, who runs Bad Company Gym in east Leeds. ‘We had four months of intense training,’ explained Travis. ‘But Richard and Joe Craven, a young but already experienced fighter, really encouraged us to take it seriously. We were nervous before our bouts but also excited and keen to show what we’d learned while raising money for a charity that does loads for young people like us.’ “‘The fights were tough. None of us were just playing at it

“The event was also attended by local CRY representative Chris Embling, whose son, Rory, died suddenly aged 26 in 2014. ‘The boxing was an epic event and a very novel way to raise finance for us, so we’re grateful to the lads who put in so much effort, and Richard and Joe who gave so generously of their time’. The money raised is being donated to the Rory Embling Foundation, to fund more potentially lifesaving screenings. The boxers also want to thank Horsforth Fitness gym for training facilities, and The Yorkshire Mafia Company and Gables Building Services for sponsorship.” James Bovington.

In Memory of

John Emery

Mrs H Emery sent in £495, representing donations received in lieu of floral tributes, in memory of John and in remembrance of Andrew Emery.

In Memory of

Sebastian English

Alice Currell took part in the London Marathon 2018 and raised £2,301.

In Memory of

Guy Evans

• Beth Chesney-Evans sent in £1,735.42, including:

£885.42 raised through various fundraising activities, and a £850 donation.

• Hannah Harris took part in the Bath Half Marathon

and raised £320.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Morgan Evans

Peter McAvoy collected £575 on behalf of East of Scotland Universities Air Squadron raised through a charity day at their workplace.

We were very sorry to learn that Peter McAvoy died in August 2018 following a short illness. Peter supported CRY following the death of his son, Peter, in 2014. We are so grateful for his tireless support in raising funds and awareness, and hosting local screening events.

In Memory of

Clare Everett-Allen

Kate Everett-Allen organised a Ceilidh event in Bishopthorpe and raised £406.15.

In Memory of

• Rotary Club of Wolverton & Stony Stratford sent in

£200 in respect of a talk given by Donna and Liam:

“The Wolverton and Stony Stratford Rotary Club were both inspired and moved by the visit from Donna Faulkner and Liam O’Sullivan on 24th April. The DVD explained the impact of sudden cardiac death in young adults and how knowledge of preventative screening tests can save lives.

We enjoyed meeting Donna and Liam and will certainly spread the word about CRY amongst our peers. We support several local charities, but wanted to support CRY in its work, so have donated £200 towards the excellent work in Harry Faulkner’s memory. The photo shows Donna, Liam and Tom, the President of the Rotary Club.”

Ann Waters.

Harry Faulkner

• Julian Craxton sent in a further £177 in respect of the latest Radlett Junior Squash Tournament.

• Gerald Bruce took part in the London

Landmarks Half Marathon, Lisbon Half Marathon, Hastings Half Marathon and the Berkhamsted Half Marathon and raised £2,123.

• Donna Faulkner sent in £45 raised by Jack

and Holly Wilkinson, two children at her school who made and sold ice lollies and drinks to raise money for CRY.

• Team “Harry Faulkner”, “Team Faz”, “Our Handsome

Harry”, “Harry’s Heroes” and “Team Faulkner”; Julie Bruce, Gerald Bruce, Freddy Bruce, Nick Fazakerley, Tom Fazakerley, Gwen Beese, Ken Beese, Donna Faulkner, Stefan Faulkner, Charlee Faulkner, Kathryn Harvey, Nicola Dorman, Sophie Crook, Maureen Hartman, Alan Hartman, Joanne Hartman, Stephen Hartman, Charlotte Hartman, Abigail Hartman, Kate Heseltine, Eleanor Heseltine, Lily Hann, Keira Vaites, Ewan Vaites and Helen Vaites, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,070.

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In Memory of

Jeremy Feakes

“Team Jez”; Vivienne Hynam, Victoria Hynam, Allison Hynam and Len Benton, took part in the CRY Heart of London Bridges Walk 2018 and raised £589.78.

In Memory of

Conor James Feeney

“Team Feeney”; Maria Feeney, Aiden Triggs, Sean Feeney and Declan Feeney, took part in the CRY Heart of London Bridges Walk 2018 and raised £935.

In Memory of

Josh Fell

• Jonathan and Kathy Sykes organised a garden party and raised £650.

• Donna Fell sent in £100 raised by Pat Chew at the Masonic Lodge.

Issue 76 | May to August 2018

Our Fundraisers • Rich and Donna Fell sent in £325, including: £100

from the Hornsea Trebles Darts League, and £225 donated by Mr and Mrs Folds from the Brandesburton Darts League fundraising.

• Rich and Donna Fell sent in £500 from Cranswick

Foods’ chairman in relation to sponsorship for Joe and Leigh taking part in their 200 Holes of Golf.

In Memory of

Richard John Field

Jodie Field sent in £336.97, representing donations received in lieu of floral tribues, in memory of her husband.

In Memory of

Anthony Fitzgerald

• Marie Fitzgerald sent in donations totalling £2,967.20, including: £495 from a Rugby 7’s day; £1,800 from a quiz night; a £70 donation from Marie and Bridget; £516 from a race night; and £86.20 from other activities.

• B Landen sent in £2,000.

• The Capital Group sent in a matched fund donation

of £335 in respect of Habib Annous’s fundraising efforts.

• Blackfen School for Girls sent in £600.

• Noel Fitzgerald took part in the London Marathon

2018 and raised £2,580.

• Kevin Watts took part in the Richmond RunFest Half

Marathon and raised £592.94.

• Rebecca Brannigan took part in the Richmond

RunFest Half Marathon and raised £500.

• Graham Cox sent in £1,083 raised by Blackheath

Football Club.

In Memory of

Andy Forbes

Team “Image Plus”, team “Family Forbes and Friends”, “Team Andy” and team “Forbo”; Steve Smith, Rebecca

www.c-r-y.org.uk

Smith, Tilly Smith, Jac Jones, Elin Treharne, Georgia Coles, Julie Kemp, Neil Kemp, Louis Kemp, Maisie Kemp, Sophy Forbes, Olivia Forbes, Harry Forbes, Becky Alexander, Liz Bottomley, Claudia Bottomley, Diane Burnham, Joel Burnham, Hannah Burnham, Mel Mully, Kevin Mully, Alice Mully, Alex Salter, Theo Salter, Andy Hesp, Sinead Hesp, Sophie Hesp, Aveen Hesp, Paul Stedmon, Monique Stedmon, Rachel Thompson, Steve Thompson, Macey Thompson, Ethan Thompson, Rowenna Clifford, Elliot Clifford, Lisa Barclay, Sam Barclay, Donna Irving, Mark Irving, Megan Irving, Sam Irving, Sarah Burgess, Joanna Bennison, Pip Bennison, David Graves, Chris Graves, Helena Graves, Emma Nelson, Laura Catterall, Matthew Catterall, Gill Carter, Archie Catterall, Sophie Catterall, Nikki Ponton, Mike Ponton, Sam Ponton, Ben Ponton, Kayleigh Dooley, Tom Bladen, Jess Bladen, Richard Taylor, Donna Taylor, Jacob Taylor, Millie Taylor, Kate Telford, Eliza Telford, James Stevenson, Dominic Wireman, Martin Lanchester, Rachel Graves, Laurie Horwood, Paul Hammett, Charlie Hammett, Hollie Hammett, Jamie Chrispin and Natalie Hammett, took part in the CRY Heart of London Bridges Walk 2018 and sent in £190.

In Memory of

Ben Forsyth

• Margaret Strang sent in £100 in memory of her grandson.

• Keith and Margaret Forsyth sent in £2,500 representing donations received in lieu of floral tributes in memory of their son.

• Jonathan Entwistle sent in £100.

In Memory of

Joanne Fotheringham

Alex Eaton organised ‘The Great Wilderness Challenge’ and raised a further £1,700: “This physically challenging fundraising event has taken place in the Highlands of Scotland every August since 1986. The Ullapool Air Cadets have been involved since 1998 and have so far raised a total of £27,325, specifically for our adopted charity – CRY’s Joanne F. Fotheringham Memorial Fund.

“Cadets, adult staff members and other supporters walk a 13-mile route through the wild mountain scenery of Wester Ross. The Highland weather can more often than not be very changeable, with rain, deep mud and

43

Our Fundraisers In Memory of

Andrew Gard

Ladies Inner Wheel Club of Clacton on Sea sent in £2,000:

swarms of midges providing quite an additional challenge to the walkers negotiating the difficult terrain. Despite the difficulties, all involved really enjoy taking part in the challenge and meeting other walkers along the way. There are plenty of cheery smiles in the photographs anyway!

“Taking part in the 2017 event were Warrant Officer Colin Boyle; civilian instructors Kevin Whitelock and Ruairidh Macrae; Cadets Jonathan Angell, Latharn Macdonald and Somhairle Macdonald; and supporters Adrian Mackenzie and Alan MacCormack, who between them raised £1,155 in sponsor money. This amount was topped up to £1,700 by the event’s organising committee.

“Alex and Fraser Fotheringham accepted the cheque on behalf of CRY from W.O. Colin Boyle RAFAC. Alex gave a very appreciative speech, commending the Ullapool Cadets for their ongoing loyalty and effort in completing the challenge and for continuing to raise such outstanding amounts for CRY. She also explained what will happen at the next heart screening event due to take place in Ullapool later this year, and strongly urged the youngsters to attend and to bring their friends along.

“I am pictured being handed a cheque for £2,000 by Chris Bareham (right), the outgoing President of the Clacton Inner Wheel Ladies Group. She wanted to raise money for CRY as her son, Nick, was great friends with our son, Andy. He’s also raised many thousands of pounds through his many exploits over the years! His latest was Marathon des Sables!!” Caroline Gard.

In Memory of

Salena German

Jackie German donated £100 in memory of her daughter on the anniversary of her birthday.

In Memory of

Prithiv Ghosal

Taracayani Prebagaran sent in £2,484.33, in memory of her boyfriend.

In Memory of

Joshua Gilbert

Howard Gilbert sent in £265 raised from Stowmarket YFC, in memory of his son.

In Memory of

Ashley Goodwin

“The Cadets’ enthusiasm for taking part in this adventurous walk has never wavered throughout the 19 years of the Unit’s involvement. We are very proud of their endeavours.”

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• Linda Goodwin organised a car boot sale and raised £105.

• Linda Goodwin sent in donations totalling £360 raised as follows: £160 from recent car boot sales, and £200 from Abacus Upholstery.

Issue 76 | May to August 2018

Our Fundraisers • Pam and Robert Price took part in a Ben Nevis Trek

and sent in £254:

In Memory of

Adam Green

“On Sunday June 10th, Rob set off walking in memory of our wonderful and dearly loved nephew, Ashley. After four hours Rob eventually reached his destination, the summit of Ben Nevis.

Tom and Judy Green sent in £247.88, including: £26 from Judy’s jams; £60.38 from a Buttercross Farm collection pot; and £161.50 from the Market Drayton 10k:

“On the way down from the summit he was approached by a couple of walkers who had noticed his CRY t-shirt.

They asked whether he was fundraising for the charity and when he said yes they handed over a generous donation.

Three hours later he arrived back at the campsite, tired but very happy with his achievement. He would like to thank all of his supporters for their fantastic donations with a particular mention to ‘Linda and Stuart’ who he met on the mountain.” Pam Price.

“We are all of differing ages, from early 20s to me at 61 (bottom left) and very different abilities. The best time was 47 minutes, with another three under the hour and I brought up the rear at 1hr 11min, which I was personally very pleased with as I hadn’t done any distance training at all (although I can feel the effects now).

In Memory of

In Memory of

Alan Gore sent in £1,977.40 raised from a tribute night.

• Rosie Murphy took part in a skydive and raised

Matthew Gore

In Memory of

Jordan Grant

• Mark Tipping organised The Tipping’s

2017 Charity Christmas Lights and raised £1,653.30.

• Adrian Phillips donated £100.

“We have some cash donations to pay in as well, so all in all I think it was a great day. Lots of attention from Facebook friends and a few new ones who have liked and shared the story, so good PR as well.” Tom Green.

Tom Greenwood

£1,637.88.

In Memory of

Sian Griffin

“Team Sian”; Katie Collins, James Collins, Marie Collins, Thomas Browne, Michael Browne, Molly Browne and Jen Wilson, took part in the CRY Heart of London Bridges Walk and raised £300.

In Memory of

In Memory of

Jo Spray took part in a 34km exercise bike challenge and raised £868.06.

• Wendy Griffiths sent in £2,515 raised at a quiz night

Natasha Gray-Cowley

www.c-r-y.org.uk

Kayleigh Griffiths

and raffle at Witham Rugby Club.

45

Our Fundraisers • Wendy and Leon sent in £219 raised through a race

night at Maldon Golf Club.

• “Team Kayleigh”; Leon Griffiths, Wendy Griffiths,

Bill Shelley, Corinne Shelley, Ryan Griffiths, Danielle Marven, Clare Lapwood, Archie Griffiths, Kerry Marven, Tracy Hendry, Corina Inca, Ash Eames, Jody Hopkins, Vanessa Caulkett and Dannielle Moore, took part in the CRY Heart of London Bridges Walk 2018 and raised £800.

In Memory of

Nicola Griffiths

Barney and Trish sent in £290.30 raised at a memorial concert in memory of their daughter.

In Memory of

Matt Hadfield

• Oliver Hunt took part in the London Marathon 2018 and raised £4,540.93.

• Squadron Leader Garretts sent in £205, representing donations received in lieu of floral tributes in memory of his wife, Johnnie.

• “Team Matt” and “Team Matt Hadfield”; Diana Hunt,

Andy Hunt, Marc Hadfield, Eraldo d’Atri, Dan WattsRead, Críona Watts-Read, Julia Arkell, Will Arkell, Laura Arkell, James Arkell, Haidee McAughtrie, Michael McAughtrie and Angela Hadfield, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,505.

In Memory of

Shamil Hamid

Farah Hamid sent in £2,430.82 from the New English School, Kuwait.

In Memory of

David and James Hamilton

”Team Hamilton”; Claire Lawrence, Wayne Lawrence, Molly Su Lawrence, Robbie Lawrence, Rachel Hamilton, Stephen Connolly, Luke Davies and Thomas Davies, took part in the CRY Heart of London Bridges Walk 2018 and raised £160.

In Memory of

Jonathan Hamilton

Margaret Gault collected a cheque for £1,717 on behalf of Meta and Mervyn Hamilton raised from a family walk from Belfast to Carrick Fergus and a charity football match held by Ballysillen Swifts, in memory of their son: “These are some photos from our walk and cheque presentation in memory of my son, Jonathan Hamilton.

Our walk was from Belfast to Carrickfergus, approximately 10 miles, and there was also a charity football match held

by Ballysillan Swifts.

In Memory of

Theo Hadji-Michael

Myroulla Hadji-Michael sent in £370 representing donations received in lieu of floral tributes for her husband.

In Memory of

Richard Halliday

Sue Halliday sent in £100 in memory of her son.

46

“Together we raised a total of £1,717 in memory of Jonathan, who died aged 34 on 27 March 2016 from a pulmonary embolism. His death was so sudden we just can’t come to terms with it and I keep wondering if he had availed himself of a screening he would still be with us.

Issue 76 | May to August 2018

Our Fundraisers screening team on Saturday and one of the local pubs, The Shoulder of Mutton, provided lunch for the screening team on Sunday. The tea, coffee and cakes were all free – all we asked was for a donation and the generous people in the Hope Valley supported us well.” Ian and Debbie Hancock.

In Memory of

Megan Harding-Jones

“We wanted to do this for the charity to make other young ones aware of CRY, as I had never heard of them before, as have many others here in N. Ireland. Thank you for all your good work. It was an honour to have done this for CRY.” Meta Hamilton.

In Memory of

Ben Hammond

• Lucy Hill took part in the Brighton

Mini Mile and raised £375.

• Stephen and Sheralyn donated £10,000.

In Memory of

Alexander Hampshire

Julia Hemprich-Bennett took part in the Hampton Court Half Marathon and raised £400.

In Memory of

Kyle Hancock

• Matthew White raised £2,470 from the Virgin Money London Marathon 2018.

• Karen Lewis sent in £2,012.89 raised from the Harlow Lawn Tennis Club’s Adult Wooden Rackets Tournament:

“The fundraising wooden rackets tournament, charity raffle and auction was a fantastic event on Friday 8th June at Harlow Lawn Tennis Club and was supported by members, friends and colleagues on a warm summer evening.

“The evening started with a fun filled, action packed tournament played with wooden rackets! Everyone got into the spirit of playing with the wooden rackets, although there were not too many John McEnroes or Virginia Wades present, but the club Performance Coach managed to handle it brilliantly. The tournament progressed with over 30 matches being played to result in a final with some enjoyable tennis being played. The winning pair of Richard and Pat claimed their silver champagne bucket trophies, kindly donated and presented by Katherine and Perry Harding-Jones.

“The evening progressed with a superb barbeque cooked

by Jay, with the food being donated by a local company and friends. Many drinks were enjoyed at the outdoor Duece Bar.

Ian and Debbie Hancock sent in donations totalling £1,200 raised at their recent screening event, in memory of their son: “The cheque of £1,200 has been raised through kind donations at our first CRY screening weekend in memory of our beloved Kyle, at Bradwell in the Hope Valley, Derbyshire on the 14th and 15th of April this year. It was a very successful weekend with over 200 young people getting screened with 6 referrals.

“It was a bit of a village and local event as local people baked cakes and the local Co-op provided the tea, coffee, sugar and milk. The Bakehouse provided lunch for the

www.c-r-y.org.uk

47

Our Fundraisers In Memory of

Thomas Hardman

• PHS Group Ltd sent in a matched fund donation of £927 raised through Gemma’s participation in the TH96 Fun Run. • John Lloyd sent in £614.40 from The Pennine Cricket

League Umpires Association.

• Shelley Sullivan took part in the 2017 TH96 Fun Run

and raised £445.

• Reece Jones organised a charity golf day and raised

£430.

• Gwen Edwards sent in £100 raised through a

Memorial Cricket Match at Heywood Cricket Club.

• Margaret and Richard Hardman organised a T20

Cricket Match and evening event and raised £2,100:

“The charity raffle, with over 40 prizes being donated by local businesses and members, was thoroughly enjoyed by all who took part.

“The weather remained fine for the 8th September 2017 as many of the old players returned to Middleton Cricket Club, many for the first time in a long while. They were only returning for one reason, and that was to remember their old teammate and extremely talented friend Tom Hardman, who tragically passed away five years ago.

Players such as Dale Heighton, Ricky Valentine, Jim Ryan and Scott Stansfield were only too happy to give up their time and raise money for the charity CRY, which raises awareness and researches into cardiac risk in the young.

“The final item for auction was the football pennant kindly donated by Tottenham Hotspur and signed by the current first team. Bidding started at £20 and a couple of telephone bids were received, but the pennant ended with a late bid of £100 by the winning recipient, Amy Calvert.

“The current Middleton team were to play against a team of former players and it had been a successful year for Middleton winning the Pennine Cricket League before switching to the Lancashire League in 2018 where a fresh challenge awaits – a challenge that would be easier if the extremely talented Tom Hardman was still in the ranks. As Captain George Walker explained, ‘Tom was an amazing talent as he could do everything from opening the bowling, to holding together the batting in the middle order. In addition to that, he was also an excellent fielder but more importantly a great friend’. Indeed, everyone I spoke to, in addition to praising Tom’s excellent cricketing abilities, focused on the fact that he was a thoroughly decent person and loyal friend. Hence why he is missed by so many and why five years on there are several local events every year to remember his name and raise money for charity.

“The whole event raised £2,012.89 and was thoroughly enjoyed by all. Our thanks go to all those who took part and to all those who kindly donated prizes and food and have supported this worthwhile event, helping to continue raising awareness of CRY.” Karen Lewis.

“The Middleton team consisted of Hughes, Holland, Rutter, J Tierney, Morley, Williams, Nichols, Collins, Le Carpentier, R Tierney and P Foden. In their twenty overs, the bulk of the runs were scored by Australian Harry Nichols with 47 and Rhys Tierney with 40 as they reached

“The evening ended with the charity auction. The All England Lawn Tennis Club kindly donated a framed poster celebrating 90 years of British Broadcasting signed by 2017 Ladies Wimbledon Champion Garbine Muguruza, and top ladies Karolina Pliskova, Simona Halep, Angelique Kerber and Johanna Konta. The bidding started at £50 and very quickly got into a bidding battle with the final bid and the hammer going down at £250. The lucky owners were Katherine and Perry Harding-Jones.

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Issue 76 | May to August 2018

Our Fundraisers of Clitheroe Cricket Club and the bench that we have in his honour is a constant reminder of the impact he had on all those that were fortunate enough to meet him and play with him’.

“He will never be forgotten.” Phil Hamnett.

• Margaret and Richard Hardman sent in a further

£7,177 raised through the annual TH96 Fun Run:

“Preparation for the annual TH96 Challenge commenced in November 2017 when the TH96 committee came together to organise the 2018 event. The date was set for 24th March 2018 and a number of subsequent meetings were held to plan and organise what has become a key date in the calendar for many. The support was amazing again and this year we had four main sponsors of the t-shirts and people were asked to vote on this year’s colour from lightning yellow, pea green or rainy cloud grey – lightning yellow received the most votes.

120 runs. I watched the match alongside scorer and Middleton stalwart Linzi Hughes, whose memories of Tom were that he was a polite and respectful individual at all times. Indeed, another key figure at Middleton, coach Mark Tierney, advised that Tom was one of the easiest people to get along with and an amazing talent.

“The legends team consisted of both Jones brothers, Stanworth, Purser, Highton, Astley, Zafar, Buckley, Valentine, Ryan and Travis. All of the batsmen chipped in with runs, with Grant Jones top, scoring 21 as the legends just eased home with a few balls to spare. It was a great evening’s cricket, played in great sporting spirit and with the added bonus that the rain held off. The evening was then completed with the Newcastle band 10cclo entertaining the crowds with a great music set and the bar taking record receipts. The event itself raised over £2,000 for the charity CRY and in memory of Tom. “It was a great night and as the season came to a close I travelled to the few remaining games and took the opportunity to ask individuals about their memories of Tom. At Littleborough I met Rob Statts, who advised me that when he switched to Heywood the first person to welcome him and make him feel at home was Tom. “I travelled to Clitheroe, who had just had an incredibly successful season, and met the Vice Captain, Peter Dibbs. Peter commented that ‘Tom was an outstanding professional for Clitheroe and part of the 2010 titlewinning team. A fantastic talent on the field playing a key role in many match-winning moments, including a hattrick against Earby as he signed off with us winning the league. Off the field Tom was a joy to be around – always jovial and always had words of encouragement for those around him. Tom will always be considered a close friend

www.c-r-y.org.uk

“The annual TH96 Charity Challenge involves a 10-mile route between Rochdale, Norden, Heywood and Middleton cricket clubs, and along the way 40 volunteers acted as marshals with a lead person at each cricket club, with water kindly donated by a local company. This year 215 family and friends registered and after taking part in the warmup carried out by One PT, off they set; running as part of a team, as individuals, dog walkers or pram pushers – and Charlotte Burill, the pink fairy on her bike.

Charlotte was a close friend of Tom’s and organised for 40 members of her local boot camp, Change N Achieve, including family members, raising a massive £2,550.

Chris Hardy promised to run in a pink tutu, as well as agreeing to take part in his daughter Mia’s dance show if he raised £1,000, which, of course, he did thanks to family, friends and other dance mums who all wanted to see his dance moves later on in the year.

“Conditions were again dry, the atmosphere was brilliant

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Our Fundraisers In Memory of

Andrew Hart

Henry Bright sent in £500.

In Memory of

Richard Harwood

David Gee sent in donations totalling £750.

In Memory of

Jonathan Hayman

Marion Hayman forwarded donations totalling £260.50, raised from a recent screening day, in memory of her son.

and all finished the route with a smile on their face (most did smile) where they were treated to a hot dog and drink provided by WM Morrisons and served by Christine and her volunteers. Some spot prizes were also awarded.

“Celebrations were held in the evening at Rochdale Football Club. All received a glass of bubbly, various awards were made and entertainment was provided by the excellent band The Middletones. Over 25 fantastic prizes were donated by local business/family/friends for the raffle.

“Every year it is amazing to see so many people taking part and raising money for CRY. We know Tom looks down with pride at what is being achieved in his memory, no doubt with a big smile on his face.

“Due to the overwhelming support received, a massive £13,000 (including online donations) was raised in memory of Tom for the charity. In March 2018 a third heart screening was paid for out of the memorial fund set up in Tom’s name and as a family we are so proud to be able to do this.” Margaret Hardman.

In Memory of

Matthew Hesmondhalgh

• Paula Hesmondhalgh sent in £5,693.42, including: £1,712.05 raised at the Azcend Fitness Family Fund Day; £300 from the PCC of Garstang St Helen’s at Churchtown; £557.37 from the cider festival at ‘Owd Nells; £270 from the estate of Barbara Richmond; £50 from Mark & Marion Flaherty from Best Wishes in Garstang; £50 from Annalee Brooke; £106 from Quillters Craft magazine sale; £10 from the GPQ Open Day; £30 from the ‘Meat’ Quiz proceeds; £548 from the CRY babies cake stall; £1,100 from The Garstang Ladies NFU; and £960 raised at the Choir 1 summer concerts, organised in conjunction with David and Jo Kennedy.

In Memory of

David Harrop

Mike Harrop sent in £100 from G.M.P South Manchester.

• Sarah Taylor sent in £162.52 raised at the Catterall

Gala.

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Issue 76 | May to August 2018

Our Fundraisers • Nathan’s Wastesavers sent in £144 raised from the

In Memory of

• Garstang United Reformed Church sent in £200.

Robert Holden sent in £600.

‘Rag Bag’ donations.

Mark Holden

• The Inner Wheel Club of Garstang held a quiz night

and raised £750.

• Mark Pugh and Alison Sykes took part in the Yorkshire

Three Peaks Challenge and raised £200.

• Emma Wright raised £267 from a sponsored hair

shave.

In Memory of

Paris Holden

Julia Upton sent in £150 raised through The Warwickshire Scooter Alliance.

• Ruby Briggs sent in £120 raised from ticket sales at a

recent production, ‘Beside the Seaside’.

In Memory of

Damian Hole

In Memory of

John Higgins

David Swaffield raised £356 from a sponsored hair cut.

In Memory of

• Sian Johnson sent in £290 from the Telephony Department at Lloyds Banking Group, raised through their tuck shop.

• Lloyds Bank Foundation sent in a matched giving donation of £420 in respect of Rachel Hole’s tuck shop.

Laura Hillier

Tony Hillier sent in £263.18, including: £20 from Mr and Mrs J Orton; £233.18 from screening donations; and £10 from Lisa Noble.

In Memory of

Ian Hoggarth

“Team Hoggsa”; Barbara Hoggarth and Geoff Hoggarth, took part in the CRY Heart of London Bridges Walk 2018 and raised £487.

Nicholas Holland

Gemma Holland took part in her annual caravan rally and raised £195.

In Memory of

Rachel Holmes

Mark Holmes sent in £510 in memory of his wife.

In Memory of

In Memory of

Andy Holcombe

Jane Turner held a car boot sale and raised £100.

In Memory of

Charlie Holden

Yasmini Patel sent in £200, including a £100 donation and £100 on behalf of AJ Bell.

www.c-r-y.org.uk

In Memory of

Jonathan Hooper

Diane Hooper, Peter Hooper, Doreen Jolly and David Jolly took part in the CRY Heart of London Bridges Walk 2018 and sent in £200.

In Memory of

Joseph Horkan

Sean and Beverley Horkan raised £12,035.59 through their Wiggle Dragon Ride Event.

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Our Fundraisers In Memory of

Stewart Howard

Jane Howard sent in £1,100 raised through an Easter car boot sale at Tesco.

In Memory of

Daniel Hughes

• Sir Thomas Boughey Academy sent

in £500 raised from applying for a grant from First Give.

• David and Susan Hughes sent in donations

In Memory of

Christopher Hynd

Nicola Blair raised £1,115 from the Virgin Money London Marathon 2018.

In Memory of

Charlie Ibrahimi

• Cathy Ibrahimi organised a Ceilidh and raised a

further £200.

• Simon Elvidge sent in £5,000 on behalf of 3 Lines of

Defence Consulting Ltd.

totalling £3,603.

• David Hughes forwarded a donation of £5,000 from

In Memory of

• David Hughes sent in £1,600.

Eleanor Mason took part in the Virgin Money London Marathon 2018 and raised £2,660.

Unite the Union.

• Jo Glover took part in the 1,000ft Labyrinth Challenge

Camilla Irvine

and raised £814.

In Memory of

Reece Jeffrey

In Memory of

Matthew Hughes

Lloyd Jones raised £500 when taking part in the Brighton Marathon 2018.

• Robyn Bibby sent in £300.

• Daniel Arnold took part in the Liverpool Marathon and raised £642.20.

• Mr Allsop sent in £1,100.

• David and Karen Hacking sent in £100.

In Memory of

Polly Hughes

Alison Johnson sent in £100 in celebration of Polly’s sister Sophie’s wedding.

In Memory of

Leigh Jepson

Carole and Andrew donated £200 in memory of their son.

In Memory of In Memory of

James Huxley

Laura Lloyd sent in £675 raised at the Koyuki and Amber Birch Tribal Dance Show.

52

Lucy Adena Jessop

• The Deepings School sent in £113.45 raised by the 6th Form students.

• Tracey and Stephen Jessop-Thompson sent in £4,005:

Issue 76 | May to August 2018

Our Fundraisers In Memory of

Damien Jewell

W A Handley donated £500 in respect of the North Tyneside Seaside Walk.

In Memory of

Ejler and Craig Johansen

Pat Johansen sent in a further £150, in memory of her husband, Ejler.

“On the 30th June 2018, Sharon Roberts and Jackie Wayte organised the 6th Annual Deeping Summer Ball which was held in the marquee at The Deeping Sports and Social Club.

“During the evening we were fundraising in memory of our late daughter Lucy Adena Jessop. The money raised through a tombola, raffle, stand up bingo, photos taken at the event and the auction of a sports car hire for the weekend was towards Lucy’s memorial fund within the CRY charity (for local screenings).

In Memory of

Cathryn Eluned Jones

Sarah Morgan at Lloyds Banking Group sent in £120.

In Memory of

Ethan Jones

Keith Weston sent in £180 raised through giving talks.

In Memory of

Stephen Joyce

• Alison Meek raised £290 at a cricket fundraiser.

• Alison Meek and Rachel Timberlake raised £400 from

the CRY Heart of London Bridges Walk 2018.

In Memory of

Matthew Kamis

Trina and Albert Kamis, with help from their granddaughter, Ellie, raised £150 from a car boot sale.

“Lucy’s friends, Sophie Stone and partner Jordan Graham, and our other friends, Alison Jakeman and Ian Denton, along with myself and my husband, Stephen, were there fundraising on the evening.

“We had an amazing evening and we raised a fab £4,005 for Cardiac Risk in the Young.” Tracey Jessop-Thompson.

www.c-r-y.org.uk

In Memory of

Eleanor Keeler

Team “The Keelers”; Annette Keeler, Michelle Keeler, Joseph Keeler and Zoe Keeler, raised £250 from taking part in the CRY Heart of London Bridges Walk 2018.

53

Our Fundraisers In Memory of

In Memory of

Neil Kellogg forwarded £265 representing donations received in lieu of floral tributes in memory of Joseph’s grandmother.

• Danielle McKay organised a family fun day and raised

Joe Kellogg

In Memory of

Alanna Ketley

• Walsgrave C of E Academy sent in £187.25 raised

through parent donations for the Coventry Mile event.

• Nicola, Laurie and team took part in the Solihull Half

Marathon and raised a further £3,827.37.

Graeme Kilpatrick

£1,605.

• Janice Maxwell raised £2,238.51 through taking part

in the following events: the Forest Run; the Gosford 10k; the Belfast Telegraph ‘Run Forest Run’ Antrim Castle 10k; the SPAR Craic St Patrick’s Day 10k; St Patrick’s Day Belfast; Subway Holywood Exchange 10k; the Belfast City Marathon; and the Coca Cola Lisburn 10k.

In Memory of

Henry Knight-Willis

Shari Lawrence-Willis completed a skydive and raised £450 in memory of her dad: “I lost my dad, Henry KnightWillis, 49, suddenly last October to a heart condition. In celebration of what would have been his 50th birthday this June, I was keen to face my fears and do something big to raise money for a related cause. I chose to do a sponsored skydive in his memory on May 19th 2018 for CRY, and it was unbelievable! My target was £300, so I was glad to surpass that and raise £450 for the charity.”

In Memory of

Richard Keys

Kieran and Tristan took part in the Dublin 10k and raised £160.

54

In Memory of

Rishi Kukar

Parvin Kukar sent in £250 in honour of Rishi’s 21st birthday.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

In Memory of

Rothmans Chartered Accountants forwarded a further donation of £3,454.56 in respect of the legacy of Patricia Angela Laird.

• Frazer Land sent in £501, representing donations received in lieu of floral tributes in memory of his father, Gary.

Patricia Angela Laird

In Memory of

Jannik Lam

• “Team Jannik”; Birte Harlev-Lam, Mun

Seng Lam, Casper Lam, Susanne HarlevKing, Marie Batey, Clive Sparkes, Kathy Branson, David Branson, Alex Branson, Ida Harlev, Susan Higginbotham, Apollon Leontas, Melanie Cook, Nora Lucey, Michael Harvey, Beth Harvey, Katie Harvey, Tom Harvey and Jennifer Woods, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,055.40.

Michael Land

• David Leece raised £1,402.50 from a memorial football match in 2013.

• Allen Haywood completed a skydive and raised

£3,020:

“The experience was just amazing and I am so pleased I plucked up the courage to take the plunge. £3,020 was raised in memory of Michael Land.” Allen Haywood.

• Burston Garden Centre sent in £347.54.

• Burston Garden Centre organised a raffle in light of

their 40th anniversary and raised a further £698.21:

“I am happy to inform that once again Burston Garden Centre and its customers have demonstrated their generous support for CRY. “The donations came from a raffle held on 23/06/2018 to celebrate their 40 year anniversary in business. Donations were also made by customers putting money directly into the collection boxes. Customers are also asked to donate £1 each time they request a gift to be wrapped. Burston GC supplies the gift wrapping material free of charge.

“The photo shows the celebration raffle sale on the day.”

Birte and Lam.

In Memory of

In Memory of

Anne Chambers took part in the London Landmarks Half Marathon 2018 and raised £1,165.

Jacqueline Battle sent in £236.63 representing donations received in lieu of floral tributes in memory of her father.

Andrew Lancastle

www.c-r-y.org.uk

Roy Deland Landry

55

Our Fundraisers In Memory of

Carli Lansley

collected a donation of £2,005.70 from Andy Lintin, raised from a football tournament, in memory of his wife.

• Karl Lansley took part in the CRY Heart of London

Bridges Walk 2018 and sent in £1,250 in memory of his wife.

In Memory of

Jamie Loncaster

• Karl Lansley sent in £5,000.

• South Hunsley School organised their annual memorial football match and bun sale and raised £600.30.

In Memory of

Kris Ledgard

Sean Maloney took part in ‘Go Dry for CRY’ and raised £139.

• Dan Toffolo took part in the Hull Marathon and raised

£650.

• Graham Loncaster sent in £318 raised at his recent

screening event.

In Memory of

• Matthew Cunliffe sent in £100.

Miriam Lee

Team “Miriam’s Marchers”; Nicola Lee, Kate Martin, Paul Martin, Eleanor Martin, Charles Pearson, Eleanor Lee and Nathanael Crisp, took part in the CRY Heart of London Bridges Walk 2018 and sent in £1,546.55.

In Memory of

Jonathan Leigh

• James Evans took part in the Nos Galan road race and raised £225.

In Memory of

Rachael Lord

Bruce Lord and Sandra Lord took part in the CRY Heart of London Bridges Walk 2018 and raised £240.

In Memory of

Tom Lovatt

Lucy Goodwin sent in £6,004.12 raised by Alsager Satellite Club.

• Rebecca Leigh raised £4,072 from the Virgin Money London Marathon 2018.

In Memory of In Memory of

Joseph Leyland

• Maria Leyland forwarded £350 from the town’s Mayor, Mr Philip Routledge.

Matthew James Luke

Katherine Luke sent in £320.21, representing donations received in lieu of floral tributes in memory of her husband.

• Maria Leyland sent in £275.

In Memory of In Memory of

Kate Lintin

CRY Represenentative Jackie Cousins gave a talk and

56

Alan Lumley

Jenny Lumley sent in £3,500 from the Darlington Lions.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

Caroline Macdonald

Steven and Vicky Macdonald completed the Bank of Scotland Great Scottish Run and raised £2,102: “In December 2012, our beautiful mum, Caroline Macdonald, passed away at the age of 38. We wanted to do something in her memory and to help save others who are at risk.

“We challenged our dad and step-mum to run a half marathon and 10k as part of the Great Scottish Run on October 1st 2017. We helped them to train by cycling alongside them, and made banners to cheer them on during the races. We were thrilled they ran so well and super proud to have raised £2,082.

We hope that this money can help to save others.” Ellie and Sam Macdonald (aged 11 and 8).

“An Cotan Childcare Centre recently took part in their annual sponsored toddle. This year they had over 80 children, families and staff all toddling round the grounds, with plenty of sunshine and not a spot of rain in sight!

“The fantastic amount of £2,383 was raised with half of it, £1,191.50, going to CRY (to the Andrew Macleod Memorial Fund), which offers free heart screening to the young on the island.

“In the photo is Murdo Macleod, Andrew’s dad, accepting the cheque on behalf of CRY, along with some of the children who toddled.

“Very well done to everyone who took part and to those that supported the children by sponsoring.”

In Memory of

James Markham

• Lisa Evans took part in the Windsor Half Marathon and raised £469.

In Memory of

Connor Mackness

Geoff Jones sent in £100 from West Wickham Lodge No 2948.

• Mark Butler at Blueprint Recruitment Solutions Ltd sent in £164.40.

• Dan Foote took part in the Milton Keynes Half

Marathon and raised £527.

In Memory of

Andrew Macleod

Erica Gearty sent in £1,191.50 raised through a sponsored toddle by the children at An Cotan Childcare Centre at Lews Castle College:

www.c-r-y.org.uk

In Memory of

Oliver Marsden

Kevin Marsden sent in a screening donation of £300.

57

Our Fundraisers In Memory of

John Leonard Marsh

John Marsh sent in £103 received in lieu of floral tributes, in memory of his father.

In Memory of

In Memory of

Pete McAvoy

• Robbie Singer sent in £250 from the Rotary Club of Perth.

• Barry Millar sent in £155.95 on behalf of Harris Academy in Dundee.

Lewis Marsh

Wokingham Tennis Club held a charity tennis tournament and raised £193.

In Memory of

In Memory of

John McCall

John and Christina Faloon sent in £200 in lieu of gifts to celebrate their recent wedding.

John Marshall

• M & S Ormskirk sent in £891.67.

• Gareth Williams completed the Rainford

10k and raised £350.

• Maureen Marshall forwarded a donation of £250

raised at Edge Hill University from collection boxes.

In Memory of

Dean Mason

• Pembrokeshire County Council donated £5,000 raised from the ICCM’s ‘Recycling of Metals Scheme’.

In Memory of

Paul McCann

Michael D’Santos organised the 2018 Paul McCann Memorial Trophy Game and raised £575.

In Memory of

Allyn McCluskie

June McGraw sent in £610 collected at her workplace, in memory of her nephew.

• Gwenfair Mason sent in £4,500 raised by the Celtic Classic Car Rally Committee.

In Memory of In Memory of

Daniel Matthews

Shaun Gluyas sent in £462.35 raised by the football students at Hartpury College.

Michael McCullough

Stephen Kelly took part in the Belfast Marathon and raised £773.

In Memory of In Memory of

Amy Maynard

Paul and Barry forwarded £1,112.75, representing donations received in lieu of floral tributes.

58

James McGowan

Joanne Meusz sent in £160 donated on behalf of Mr and Mrs Dignan as their wedding gift from colleagues, in memory of James McGowan, and Rob Evans.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

Stephanie McLean

Lesley McLean sent in £100 to commemorate Stephanie’s 28th birthday.

In Memory of

John Millar

Scott Wallace and the Crazy Wanderers raised £1,936 through their Virgin Money Giving Page in memory of John, and Samantha Henry.

In Memory of

In Memory of

Ann and Tony Meek forwarded a donation of £100 received in lieu of gifts to celebrate Justin’s daughter Bryony’s 19th birthday.

• Jessica and Daniel took part in a Santa Run and

Justin Meek

James Moorfoot

raised £1,458.

• Emily Metcalf took part in the Pittaway Beverley 10k

and raised £120.

In Memory of

Josh Merrick

• Miller Newsagents sent in a further £169.30 raised from a collection box.

• CRY Representative Donna Fell collected cheques

totalling £5,475.35 raised from fundraising efforts at Marks & Spencer Bridlington.

• Karen and Andrew organised ‘The Mad Hatter’s Midnight Tea Party’ and raised £10,230.15.

In Memory of

Richard Merriman

Nicola Merriman sent in donations totalling £580 raised through her screening weekend.

• Ellie and Colin Deslow raised £1,043.40 from the

Brighton Marathon 2018:

In Memory of

Joseph Merritt

“Joseph’s Team”; Jane Currell, Jim Currell, Felix Currell, India-Rose Currell, Amanda Merritt, Richard Merritt and Olivia Merritt, took part in the CRY Heart of London Bridges Walk 2018 and raised £580.

In Memory of

Adam Middleton

Donna Mayall sent in £236.41 raised through collection pots displayed in Londis, Meon Vale.

www.c-r-y.org.uk

“We started fundraising for CRY in spring of 2017. At this point we had signed up for three 10km runs across the summer. We chose CRY following the sudden death of James Moorfoot (aged 28) whilst playing football. This was due to an undiagnosed heart problem.

“After our first 10km the running bug had really bit me; and my husband, who had been running for a year, wanted a bigger challenge. My husband had started running following the sudden passing of his father due to a heart attack.

“A drunk conversation occurred when I was on a hen do and my husband was out with the boys off doing the ‘big one’. We followed a ‘running plan’ for three weeks and decided to go for it! Brighton 2018 was booked!

“The last year has been mentally and physically

59

Our Fundraisers exhausting, and has been far from an easy journey. For the first time in both of our lives we were running on holiday! Three weeks before race day, my marathon dream was nearly over; a nasty fall (whilst running), the result was a broken nose and a deep cut under my eye requiring six stitches.

“Thankfully, I was given the all clear to run once my stitches were out, but I had lost a week’s training. And my husband injured his calf 10 days before the marathon whilst swimming; thankfully nothing a sports massage and some KT couldn’t fix.

“So, after the best part of a year’s training, it was race day. For both of us it was a gruelling journey around Brighton. My husband posted a respectable 4:25:08 and I finished on 6:02:10. Our first marathon is done, but it won’t be our last.”

In Memory of

George Morgan

Team “Walking for George”; Sarah Morgan, Harriet Morgan, Melanie Barlow, Megan Price, Aimee Irons, Megan Price, Eva Lofvenberg, Rhett Lezama, Lucie Lincoln, Peta Campbell, Ellie Hamilton and Adam Colvin, took part in the CRY Heart of London Bridges Walk 2018 and raised £375.

In Memory of

Luke Moss

Yvonne Moss sent in £8,000 raised through a Mount Snowdon climb, an Isle of Man cycle and a Yorkshire Three Peaks climb.

In Memory of

Paige Moth

Emma Moth organised a tea and coffee cake sale and raffle and raised £500: “On Saturday 2nd June, myself and Charlotte Vincent held a tea, coffee and cake sale with a raffle. This was in memory of my daughter Paige Moth’s 2nd anniversary. On that day we raised £500.” Emma Moth.

In Memory of

Jodie and Taylor Muir

Wendy Selfridge sent in £100 on behalf of The Peter Vardy Foundation.

In Memory of

Paul Mulford

• Colin and Sandra Mulford sent in £1,225 raised in lieu of gifts for their 50th wedding anniversary.

• Colin Mulford and Sandra Mulford took part in the CRY Heart of London Bridges Walk 2018 and sent in £300.

In Memory of

Owen Morris

• Gillian Olsen completed the Cardiff Half

Marathon and raised £745.

• Rhiannon Jones took part in the Bath

Half Marathon and raised £385.

• Judith and David Hassey organised a quiz night and

raised £625.

60

In Memory of

Andrew Murch

• Mrs P McDiarmid sent in £200 on behalf of Dull and Weem Parish Church Guild.

• Angus Hulbert raised £30 from the sale of his study books.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

James Murgatroyd

• Derby North District Scout Council donated £300 in respect of their St George’s Day Service.

• Gary and Rose Murgatroyd sent in £2,845 in respect of the Jim-Jam music event.

• Gary and Rose Murgatroyd organised a Sportsman’s

Evening at Burton Albion Pirelli Stadium and raised £7,000.

• The Rotary Club of Burton on Trent donated £100.

In Memory of

Bethany Mycroft

• Angela Lindley sent in a total of £201.50 raised by the students at Heritage High School.

• Paul Andrews completed a marathon and raised £450.

In Memory of

James Nicholas

Lloyds Banking Group sent in donations totalling £2,500 relating to fundraising by Evangelos Demetris, Christopher Aldred, Ann Traynor, Terence Renshaw and Liam Studders.

In Memory of

Andy Ninham

Kirk Wilson took part in the Hampton Court Half Marathon and raised £1,670: “We ran together in memory of our great friend/colleague Andy Ninham (‘Ninners’), who tragically collapsed and died at the same event last year.

“Although it was an emotional day – especially as we had Kerrie, Ninner’s wife, running with us – we went out in great spirits and in various levels of fitness to all complete the course. Some hobbled, some walked a bit, some got PB’s and some were running their first ever half.

“We raised nearly £1,500 for the charity and looked great in our matching CRY tees. The photo sums up the day.”

In Memory of

William Myers

Alexandra Griffiths sent in £315.

In Memory of

Pardeep Nagra

Resham Nagra sent in £1,200 raised by BJ’s Bikers and Walkers.

In Memory of

Dominic Newton

• Katie, Karl and Corrie-Beth completed the Cardiff Half

Marathon and raised £1,200.

• Harvey McKennon-Jones sent in £120.

www.c-r-y.org.uk

In Memory of

Jason Nixon

• Victoria Theaker raised £781.54 through her

‘Buggathon’ event.

• Rebecca Allkins took part in the ‘Buggathon’ event

and raised £256.40.

61

Our Fundraisers • James Nixon sent in £552 through the ‘Buggathon’

event.

• Julia Thompson took part in the ‘Buggathon’ event

and raised £315.

• Clare Skinner raised £1,265.53 through the

‘Buggathon’ event.

• Gillian Mackowski sent in £100.

• Chris and Judith sent in £600 raised at a craft stall at

their local church garden party.

• Judith Oliver sent in £130 raised at The Andrew Oliver

Memorial Cycle Race/Ferryhill Wheelers through selling teas, coffees and cakes.

• David Halladay took part in the Buggathon and raised

£307.72.

• Joanne Morris took part in the Buggathon and raised

In Memory of

• Laura Krasnic took part in the ‘Buggathon’ event and

• Miranda Osborne sent in a further donation of £2,960

£205.28.

raised £150.

• Alex Williamson took part in a 60-mile Suffolk coast

bike ride and raised £870.

Amy Osborne

in respect of the Ladies Rose Lunch, in memory of her daughter.

• Sophie Osborne sent in £100.

• Louise Keeley and family built a show garden at the

In Memory of

Richard James Northedge

Derek and Pat Northedge sent in £100 on the occasion of their son Richard’s birthday.

Sandringham Flower Show and raised £1,250.

• Melanie Godder sent in £230 raised through the wine

lunch at Bon Coeur Fine Wines.

• Emma Barlow sent in £684.69 raised by

Aysgarth School’s Pre-Prep Nativity Play and wear yellow day.

In Memory of

Stephen O’Connor

Vincent O’Connor completed part of the Camino Trail and raised £2,365.45.

In Memory of

Robert Palmer

In Memory of

• Andrew Watkin sent in £1,700 from the Commissioning Specialist Association’s (CSA) Gala Awards Evening 2018.

Andrew Oliver

• Tony McCullagh completed a Land’s End to John O’Groats cycle and raised £512.

62

• James Vigurs at Libra Mechanical Services Ltd sent in

£100.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

In Memory of

Ceri Palmer née Howells

Daniel Parry

• Shaun Ellison donated £5,000 in

Edward Parry sent in £1,190.

appreciation of his son’s screenings.

• Alison Howells sent in screening donations totalling £449.

In Memory of

Kevin Paterson

In Memory of

Robert Bass raised £252 when taking part in the Great North Run 2017.

Simon Pangborn

• George Pangborn raised £812.50 from the Brighton Marathon 2018.

In Memory of

• Pat Fisher organised a coffee morning and raised £159.

James Patrick Patterson

• George Pangborn raised £2,825 from the Virgin

• David Mullen sent in £347 representing the surplus of funds from a lunch to mark the end of his Presidential Year.

Money London Marathon 2018.

In Memory of

Taylor Panton

• Wendy Panton sent in £2,000.

• Robert Panton sent in £455 raised by St Aloysius Primary School in Chapelhall.

• Robert Panton sent in £350 raised by Drumpellier

Golf Club through their 2017 Pro-Am Tournament.

• Peter Patterson sent in donations totalling £1,080

raised by the Billericay Catenian Association.

• Mr O’Gorman sent in £613.30 raised from raffles

and events at the Brenwood Circle of the Catenian Association.

• Kevin Wilson organised a charity golf day and raised

£3,015.

• Kevin Wilson sent in £200.

• Mr R Keithy sent in £1,080 raised through his

Presidential year at Billericay Circle of the Catenian Association.

In Memory of

Matthew Parker

Andy Park completed the Lyke Wake Walk and raised £120.

In Memory of

Christopher Parr

Dianne Parr sent in £150 raised through a recent CRY day organised earlier in the month.

www.c-r-y.org.uk

63

Our Fundraisers In Memory of

In Memory of

Mrs Gallagher sent in £100.

Louise Phillips raised £5,478.79 through her JustGiving Page.

Jenni and David Paul

Jack Phillips

In Memory of

In Memory of

Adam Payne

Hannah Pickering and Ollie Thompson

Ben Radstone sent in £200.

Alistair Pickering took part in the London Marathon 2018 and raised £7,008.84.

In Memory of

Connor Pearce

Alison Bell at ABC Swim School sent in £140 raised through an end of year gala.

In Memory of

Sara Pilkington

• Lilli McGeehan raised £3,231.10 from

In Memory of

the London Marathon 2018.

Joe Pearce-Willis

• Lilly and Grace took part in the Richmond Running Festival 10k and raised £305.

Khimara Naidoo sent in £200.

In Memory of

Richard Ponting

In Memory of

Adam Pearmine

• Karen and Charles Pearmine organised a 13-mile

winter walk and raised £425.

• Karen Pearmine forwarded donations totalling £593

• Rita Ponting sent in £120 in lieu of gifts to celebrate

her birthday and Christmas, in memory of her son.

• Rita Ponting sent in £150 from the Tytherington

Gymkhana Committee.

in respect of the recent screening event at Tadley Community Centre.

In Memory of

Craig Powell

In Memory of

James Pedersen

Cath Walker took part in the CRY Heart of London Bridges Walk 2018 and raised £1,201.69.

In Memory of

Duncan Phillips

Jeremy Jackson organised a memorial football match and raised £180.

64

£547.

“Team Pringle”; Helen Fleming, Mark Powell, Luke Powell, Holly Grumley, Marlene Upham, Rodney Upham, Anne Rowe and James Rowe, took part in the CRY Heart of London Bridges Walk 2018 and raised

In Memory of

Shannon Powell

Ria Rughani completed a skydive and raised £360.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

Robert Poysor

through Ellie’s cake sale at Felixstowe Academy in May.

Diane Tolley sent in £3,000.

• James Ramsay sent in £210 raised by the local darts

team Ben played for in Felixstowe.

• James Ramsay sent in £11,150 raised from a Freight

Club Gala Lunch.

In Memory of

Alden Price

• Stephen Price sent in donations totalling £27,177.60 in memory of his son.

• Team “Alden Price”, team “Busy Women

Walking”, team “Stone” and “Team Alden”; Bernadette Edwards, Jeremy Edwards, Rachael Maywood, Caroline Law, Carol Wright, Lisa Delaney, Chris Delaney, Lesley Window, Jennifer Window, Angela Price, Ian Rickhuss, Jack Baverstock, Ellise Stone, Harry Levine, James May, Stefanie Price, Karen Jacobs, Emma Jepps, Steve Luckett, Patricia Watkins, Brenda Stone, Jason Stone, Mathew Stone, Rachael Stone, Isabelle Stone, Charlotte Stone, Gary Stone, Haydn Knox, Paige Jacquest, Lucia Carter, Oscar Price, Todd Brewer and Jack Wilmer, took part in the CRY Heart of London Bridges Walk 2018 and sent in £480.

• Alice Deveney sent in £175 raised from a beer sale at

Naked Wines in Norwich.

In Memory of

Elizabeth Ransom

• Emma Greensted took part in the MK Half Marathon

and raised £851.70.

• Michael Ransom took part in the London Marathon

2018 and raised £1,840.

In Memory of

Craig Rawlinson

In Memory of

Mark Richard Price

Tina Whincup completed a skydive and raised £205.

friend.

Kay Rawlinson sent in donations totalling £640, raised as follows: £300 from a cake bake weekend; £118 from the Chip Shop collection pot where Craig had a Saturday job; and £220 from the funeral of a family

In Memory of In Memory of

David Quinney

• Bill and Maureen Collinson organised a coffee morning and line dancing event and raised £885.

• Dot and Michael sent in £1,570 raised by

the GT. Eccleston and District Ladies N.F.U. through their charity night.

In Memory of

Ben Ramsay

• Sarah Gilder forwarded a donation of £560 raised

www.c-r-y.org.uk

Claire Louise Reed

• Peter Hunter sent in a donation of £203.13 raised through organising the Arcadia Crossing the Pond Ship Spotting Competition.

• Paul Boyd completed the Nettle Warrior 2013 and

raised £100.

• Andrew Reed sent in a total of £2,510.98, including:

£150 from a cake and coffee morning; £1,982.42 from a race night; and £378.56 from the Heads or Tails game at the RSM Tenon Summer Ball.

• Peter Hunter sent in £3,312 raised through a slave

auction and charity raffle.

65

Our Fundraisers In Memory of

Alexandra Reid

• Chris Rooke took part in the Strictly Dancing for CRY event and raised £534.50.

• Jenna Judd took part in the Strictly Dancing for CRY event and raised £1,195.

• Josh and Liz took part in the Strictly Dancing for CRY

event and raised £2,020.

• Laura Houten took part in the Strictly Dancing for CRY

event and raised £360.

• Meghan Howitt sent in £1,020 raised from University

of Nottingham Physiotherapy and Sport Rehabilitaion Summer Ball.

In Memory of

Debbie Rendle

Staff and students at Cornwall College Camborne sent in £439.04 raised through various fundraising events.

In Memory of

Stan Richardson and Katherine Wilcock

Jane Horder sent in £100.

In Memory of

Stephen Ridgley

Sarah-Jane Ridgley organised a charity BBQ and raised £1,211.82: “On Saturday 18th May 2018 to celebrate what would have been Steve’s 32nd birthday weekend, we gathered our friends and family together and held a BBQ and did a raffle to raise further funds for CRY. It was a very successful event which was completely overwhelming. Initially it was more about remembering Steve and celebrating him as opposed to a fundraiser, however, it was a perfect opportunity to raise more funds for CRY. “My sister, Louise, suddenly had an idea of a raffle. At first

66

I wasn’t too sure, however when Louise, my best friend Kelly-Ann and I shared Steve’s story and told companies all about Cardiac Risk in the Young, we were astounded at the genuine heartfelt response.

“Suddenly I was selling tickets so fast it was hard to keep track! I was keen to keep the prizes to mainly centre around a car theme as Steve was so car mad, but I quickly realised it was then more targeted to a specific group of people, so we opened it up and had more family activities as well.

“My family and friends, along with Steve’s friends – some of whom had dropped their plans and travelled a long way – all came along on the most beautiful, hot, sunny day; it was perfect.

Having all of us together made it really feel like Steve was still here! The day was full of laughs (and lots of alcohol – a whole wheelie bin full of empty bottles) and we celebrated until the early hours.

“The most special moment of the day was when my sister announced she had a surprise for me – she had arranged for 32 helium balloons in Steve’s favourite colours! Louise, along with a few others, escorted them out into the garden and some of us held one whilst a special song played and we all counted down and let them off! Tears streamed down our faces as we watched the balloons float up together into the sky. It was an emotional but amazing moment! A few minutes passed and it seemed like the balloons in the sky created an ‘S’ shape.

We were all very proud.

Issue 76 | May to August 2018

Our Fundraisers Print Solution Ltd in High Wycombe who created the lovely (massive) ‘Steevo’ banner for us.

“Also, local independent people: Sue for vouchers for her yoga classes in Naphill; Jade for her beauty voucher; and Charlie for various vouchers for Hair At Home by Charlie Brown.

“A very special thank you has to be said to Paul Krawczyk, head of Marketing & Communications at Snap-on UK. Being a mechanic, Steve absolutely loved anything Snapon and even referred to himself as ‘Snap-on-Steve’.

“In total, with very kind donations on the day and proceeds from the raffle, we managed to raise £1,211.82!!

“I would like to say a very special thank you to the following people and companies, as without them we couldn’t have made such a special and successful day: “Dennis Prince at Euro Car Parts in High Wycombe for donating such a fantastic selection of car related products.

“Ian Basden at Mr Clutch Autocentre’s head office for arranging a voucher for a free silver service and MOT. “Santa Pod Raceway for their kind family ticket donation.

“Odds Farm Park in Beaconsfield for donating a family voucher.

“Kew Little Pigs in Amersham for donating a ‘meet the piglets’ voucher.

“Andrew at Slims Detailing for the fantastic car cleaning products.

“I was in tears at the heartfelt response of this lovely man. Paul very kindly arranged lots of Snap-on branded items, including clothing, signed WRC frames and ceramic money boxes, along with a very special pair of limited edition giant Snap-on pliers!

“Lastly, a huge thank you to all of my family and our friends who helped and came along and made the day absolutely fantastic, and every single person that donated and purchased tickets!” Sarah-Jane Ridgley.

In Memory of

Edward Ridgway

The Inner Wheel Club of Stoke-On-Trent sent in £500.

In Memory of

Gareth Roberts

• Andrea Roberts sent in £1,800 representing

donations received in lieu of floral tributes, in memory of her husband.

“Simon at Classic Ford magazine for providing another array of car related goodies.

• Mark Price took part in the Manx 100 and raised

“Leighton Buzzard Railway for donating vouchers.

• Graham Weigh Racing Team donated £250, the

“Kimberley at High Wycombe Sports Centre for a huge selection of family based vouchers.

“Tesco in Slough and Tesco in Gerrards Cross for the trolley load of champagne, wine, kids toys and other gifts, along with Gail Gibson for collating them and creating the most beautiful hampers.

“Sarah Pengelly for the Boogie Bounce vouchers.

“The lovely Bob Vincent and everyone involved at Your

www.c-r-y.org.uk

£902.75.

proceeds from their race.

In Memory of

Joe Robins

Team “Joe’s Mummas” and team “Mums in Memory of Sons”; Jacki Godfrey and Louise Fitzpatrick, took part in the CRY Heart of London Bridges Walk 2018 and sent in £1,155.17.

67

Our Fundraisers In Memory of

Patricia Margaret Robinson

Mr D Robinson sent in £158.41, representing funeral donations received in lieu of floral tributes, in memory of his mother.

In Memory of

Sabrina Roddy

colleagues had a collection and bought me flowers, chocolates and wine. A request was made that the remaining £100 from the collection be donated to the memorial fund of my daughter, Danielle, who lost her life to sudden cardiac death in May 2016. I was touched that they wanted to do this and immediately agreed. Thank you to all those who donated, I will miss so many of you.”

In Memory of

Nathan Rudy

Carol Roddy and Terence Roddy took part in the CRY Heart of London Bridges Walk 2018 and raised £300.

Heidi Rudy raised £1,036.86 through her JustGiving page.

In Memory of

In Memory of

Team “Sian Roger” and team “Sian”; Katherine Campion, Patrick Griffin, Susan Griffin, Anna Griffin, John Braine, Joan Braine, Jean Wyatt and Julie Jones, took part in the CRY Heart of London Bridges Walk 2018 and sent in £760.

Sophie Butterworth took part in the Virgin Money London Marathon 2018 and raised £2,741.

Sian Roger

Tom Russell

In Memory of

Paul Salem

In Memory of

Danielle Rowe

Caron Coates sent in £100 collected by colleagues, representing a leaving gift: “Friday 29th June 2018, was my last day at Idsall School before I left for another job. My

James Hazell raised £697 from the Brighton Marathon 2018.

In Memory of

Chloe Sary-Bool

Mrs Picker sent in £100.

In Memory of

Mair Schmeinck

“Team Mair”; Alison Schmeinck, Ruth Bartley, Sarah Sutherland, Wendy Crossley and Vicky Bartley, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,595.

In Memory of

Neil Schuyleman

Team “Neil ‘Kymatic’ Schuyleman”; Helen Davies, Peter Davies, Alexia Georgakakos, Rose Georgakakos, Erin Georgakakos,

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Issue 76 | May to August 2018

Our Fundraisers Anna Georgakakos and Minas Georgakakos, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,060.

In Memory of

Andy Shaw

Stephanie and Ben Turner sent in £108.25 raised by Stanton-by-Dale Cricket Club.

In Memory of

Mike Scott

Anthony Thompson raised £145 when taking part in the Brighton Marathon 2018.

In Memory of

In Memory of

Max Sheppard

• John Sheppard played a gig in a central London pub

and raised £1,000 in memory of his son.

• John and Suzanne raised £100 from a lake swim.

Matthew Seymour

• John Watt took part in the Ultra Tour of Arran 100km and raised £1,439.50:

“457 miles done in training runs since January. £3,262.50 raised for two very worthwhile causes. I completed yesterday’s race in 6hrs 29mins, 109th out of 350, so I’m well happy with that. And 10hrs on the hill based part today over Goat Fell.

100km completed over an amazing but savage weekend on Arran.

“Thanks to all of you who have donated and supported me through my training. Love you all. Soz for the love bit… I’m a bit euphoric.

In Memory of

Jack Sheriff

• Margaret Ward sent in £780 from

Ryston Park Golf Club’s Captain.

• Elizabeth Sheriff, Marilyn Henry, Matilda Henry, Liberty Henry, Yvonne Faux, Rita McSweeney, Jackie Wright, Hollie France, Tanya McSweeney, Frances Gridley and Jane took part in the CRY Heart of London Bridges Walk 2018 and sent in £850.

In Memory of

Evan Shonfield

• Tina Baker sent in £100 from Unicorn Primary School.

• Mike and Tina Baker sent in £100 from East Kent Scriveners Lodge 9622.

“I’m now away to hoover as many beers as humanly possible before the bar shuts.” John Watt.

• Peter Firmin sent in £1,000.

• Suzi, Lesley and Chris

• “Team Evan”; Peter Shonfield, Sharon Shonfield,

completed a 66-mile cycle around Loch Ness and raised £2,575:

“WE DID IT!!!!!! And Chris… we weren’t last!! The weather has been very kind to us and the scenery was amazing… Thank you all so much for your kind donations!!! #etapelochness #cardiacriskintheyoung #66miles”.

www.c-r-y.org.uk

Monique Todd, David Shonfield, Lauren Cooper, Dean Moston, Ben Moston, Mia Moston, Christine Morley, Alan Ainsworth, Donna Ainsworth, Tom Ainsworth, Jess Ainsworth, Carol Schembri, Beverley Smith, Abigail Smith, Catherine Medina, Sue Morrison, Heather Costas, Jade Costas, Lynn Culver, Selina Moss, Remi Moss, Amy Schembri, Gary Prescott, Lisa Best, Emma Collins, Charlotte Lawrence, Clare Saward, Amanda Courtney, Lawrence Langdon, Christina O’Loughnane, Katherine Clarke, Caroline Shonfield and Alieia Perry, took part in the CRY Heart of London Bridges Walk 2018 and sent in £3,084.

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Our Fundraisers In Memory of

Aashi Sinha

• Andrew Coombe raised £4,336.89 through his

JustGiving Page.

• Ajay and Suman organised a cake sale and raised

£4,924.27 in memory of their daughter.

In Memory of

Andrew Skinner

• Trevor Wood organised a coffee morning at Eynsford

Baptist Church and raised £233.43.

In Memory of

Madeline Siddall

Andy Marrison took part in the Coniston 14 and raised £260.

James Skinner took part in the Virgin Money London Marathon 2018 and raised £2,680.

In Memory of

Benjamin Michael Smith

• Michael and Caroline sent in £1,000 in memory of their son on the first anniversary of his death.

• Directors and staff at Warwick Martel based in Romsey held various charity events in 2017 and raised £2,600.

In Memory of

• King Edwards VI School in Southampton

Neil Hindle took part in the Edinburgh Marathon and raised £424.20.

“The first donation I want to make you aware of is that which was collected by King Edwards School, Southampton, where Ben attended as a pupil. This was kindly collected at the end of the school annual carol service, held at Romsey Abbey on the Monday 11th December 2017.

Tom Sievert and Savannah McDonald

In Memory of

Hilary Charlotte Simpson

Colin Simpson sent in £416.50, representing donations received in lieu of floral tributes, in memory of his wife, Hilary.

In Memory of

Martyn Simpson

GE Money Servicing Ltd donated £17,624.79 after Adam Smith nominated CRY to receive the award, in memory of his close friend.

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organised a carol service and raised £1,388.72:

“The service is an annual event held at Romsey Abbey by the school, attended by all pupils as well as friends and family. At the end of the service of hymns, readings, prayers and a blessing were read by the Reverend Jonathan Watkins of Romsey Abbey.

“A retiring collection was made at the request of the School’s Charity Commission, in

Issue 76 | May to August 2018

Our Fundraisers support of CRY in memory of Ben. Ben tragically died suddenly in May 2017 whilst in the fifth year.

In Memory of

“The school were very successful in raising £1,388.72.”

Caroline Smith.

Amy Burke held a fancy dress event and raised £652.55.

• The Stagecoach Performing Arts Schools of Eastleigh

and Southampton sent in £1,350 raised through their charity concerts in the summer of 2017:

“The staff, pupils, family and friends of The Stagecoach Performing Arts Schools of Eastleigh and Southampton dedicated their summer 2017 performances in memory of their dear friend Ben Smith. Ben had been a well-liked and respected student of the school for nine years and had made an impression on many of the students, young and old. Being incredibly touched by the loss of Ben in May 2017, they carried out a collection at the end of their performances in support of CRY in memory of Ben. They raised £1,350.” Caroline Smith.

In Memory of

Sam Standerwick

Adam White and Daniel Harrison completed the Commando X Fit Challenge and raised £2,180.

In Memory of

Philip Standing

• Vi and team at Mountbatten School

took part in the Romsey Relay Marathon and raised £110.

• Mountbatten School Teams took part in the Romsey Relay Marathon and raised a further £666.

• Martin Parsonson Smith at Shepperton Freemason’s

In Memory of

Mark Smith

Jonathan Bownes and team took part in the Liverpool ‘Rock n Roll’ Half Marathon and raised £1,265.

In Memory of

Robert Daniel Smith

• Linda Smith forwarded donations totalling £2,930, raised as follows: £30 from Langley Park Slimming World; £250 from donations in memory of Michael Robinson; £320 from David Barber & Friendly Club; £2,130 from charity night donations; and £200 raised by the Hetton Hawks Cycling Club.

• Donna Levin sent in £150.

In Memory of

Timmy Spooner

Alice Spooner took part in the London Marathon 2018 and raised £1,932.

www.c-r-y.org.uk

Claire Squires

organised a BBQ and raised £275.

In Memory of

Ian Strange

Patricia Strange sent in £200 on behalf of North Chingford Townswomens Guild, on the occasion of Ian’s birthday.

In Memory of

Paul Sykes

Herbie Tyler sent in £545.15 raised by Folkstone Invicta Supporters Club.

In Memory of

Robert Taylor

Rebecca Sperry sent in £191 representing donations received in lieu of floral tributes.

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Our Fundraisers In Memory of

Zoe Teale

Peter Teale sent in £354 raised by Waitrose.

• June and Grant Thomas sent in donations totalling

£5,891.10, including: £690 from Allan and Carol Martin’s 50th wedding anniversary; £83.21 from Daniel Martin’s cupcake sale; £4,213.65 from John Bevan Caerphilly Borough Council; £358.36 from screening donations; and £545.88 from Jack’s memorial 22nd birthday charity night.

• Dean Tucker completed the Tri 4 Jack Ironman and

In Memory of

Adam Tennant

Steve Kilroy took part in the Adam Tennant Memorial Trophy and raised £2,855.

raised £988.90.

• Monmouthshire Provincial Grand Lodge Charity sent

in £500.

• Kimberley Davies took part in 12 Walks for Jack and

raised £160.

In Memory of

Dale Tennent-Butler

• Matt Allcock sent in £405 raised in

respect of sponsorship for his 10k run.

• Warren Daly organised a charity football

match and raised £1,600.

• Lee Butler took part in the Liverpool Rock ‘n’ Roll Half

Marathon and raised £2,562.

In Memory of

Nicholas Thomas

• Jenny Thomas sold handmade greetings cards and held a cosmetic pamper party and raised £158.

• Jenny Thomas organised a raffle at the Afro Caribbean Ex Servicemen and Women Reunion and raised £205.

In Memory of

Jack Thompson

CRY Representative Jeff Markham collected a donation of £1,460 raised by The Plough Pub in Amersham through a St George’s Day event.

In Memory of

Ollie Thompson

• Kelly Cheney took part in the London Marathon 2018 and raised £3,145.21.

• Tim Thompson took part in the Double Trail Run Challenge and raised £275.

In Memory of

Jack Thomas

• Pontllanfraith Rotary Club sent in

£500.

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In Memory of

Matthew Thoppil

Julie Malpiedi took part in the Great North Run 2013 and raised £2,655.01.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

In Memory of

Allan Thorpe

Richard Tomkins

Caroline Thorpe took part in the Monmouth Half Marathon and raised £970.

In Memory of

Scott and Mike Thurlow

Chris Thurlow forwarded donations totalling £610 raised at a recent screening event.

In Memory of

Ryan Tilley

Hannah Mcleavey sent in £150 on behalf of The Billington Group in Liverpool.

Carl Rattley raised £2,205 from the Virgin Money London Marathon 2018.

In Memory of

Luke Towers

David Hutchings raised £1,107 from the Brighton Marathon 2018.

In Memory of

Ty Townsley

Amelia, Liam and Michelle took part in the Tewkesbury Half Marathon and raised £138.

In Memory of

In Memory of

Maria Titley

Olly Tucker

Ffion Williams raised £3,678 from the Virgin Money London Marathon 2018.

Katharine Hodge sent in £100.

In Memory of

Isabelle Tudisca

• Leo and Della sent in a total of £1,676.61, including: £1,365.45 raised at their screening event; £146.16 raised through holding a tuck shop at their recent screening event; and a £165 donation.

• Laura Marks raised £3,635 from the Virgin Money

London Marathon 2018.

• David Collinson donated £100 on behalf of Denise

Lennon.

• Steve Halkyard sent in £563, including: £398 from

Waitrose, Enfield Town, and £165 raised at Waitrose, Enfield Chase.

• Grant Read took part in the Virgin Money London

Marathon 2018 and raised £2,796.05.

• The Blue Rooms held a raffle and raised £235.

www.c-r-y.org.uk

73

Our Fundraisers • Miss Shaheen (one of Isabelle’s teachers) raised

£400 in respect of Ramadan.

In Memory of

Hannah Turberville

• John Thomas forwarded a donation of £200 from Rags and Fenella.

• Mary Young sent in £1,425 on behalf of

Harpenden Inner Wheel.

• Rebecca Sannick sent in £580 raised from the

Sotterley Charity Horse Show.

In Memory of

Chloe Waddell

Emma Thomas forwarded a donation of £2,315.50 collected at Chloe’s funeral by Trafford Leisure.

In Memory of

Richard Waight

Ken Waight sent in £5,710.37 in memory of his son, including: £210.37 raised during a recent screening day; £3,000 raised through a charity golf day; and a further £2,500 raised from the Richard Waight Memorial Golf Day.

In Memory of

Adrian Turl

Sarah Turl took part in five 10k runs and raised £320.

In Memory of

Sian Turnbull

John Turnball sent in £100.

In Memory of

Gerald Turner

Doreen Turner sent in £126, representing donations received in lieu of floral tributes, in memory of Gerald and Daryll Turner.

In Memory of

Darren Uscroft and Daniel Wilkinson

Kerri Dawson took part in a Boxing Day Dip and raised £467.

In Memory of

Matthew Vere

Shirley Vere completed the Colour Run Brighton and raised £565.

74

In Memory of

Benjamin Walker

• Steph Newman sent in £352.75 raised from the Step N Grooves Dance School’s fundraising week.

• Lewis Horne took part in the Pembrokeshire Half Marathon and raised £3,500:

“Hello, everyone. My name’s Lewis Horne and I completed the Pembrokeshire 15.3 mile run on the 28th April 2018.

“It was an emotional day for myself and friends.

It was the one year anniversary of the passing of a close friend of mine, Ben Walker. To remember Ben I decided to take part in a half marathon event. The reason being was Ben was a very sporty person, so this run was the best way to remember him.

“It was a beautiful day and great weather to run in. It was a coastal path, so I knew it was going to be hard, but some of them hills!!! They felt like mountains!!!

I completed the race in just over 3 hours, however I finished first in the under 20’s males, which I am very proud of.

Issue 76 | May to August 2018

Our Fundraisers In Memory of

“It was never about what time I finished in, though – it was about remembering such a young, kind, generous person, who always had time for others.

He is the perfect definition of a best friend, and I couldn’t have asked for anyone better.

George Watson

• Shamim Mackay sent in

donations totalling £534.89 raised through fundraising at Littleover Community School.

• Marie and Dave Watson’s niece, Violet, organised a

cake sale at their screening event and raised £480.

• 8-year-old Paisleigh Twiggs raised a

further £255 from her handmade wands.

“Thank you all for reading and I hope you enjoy the pictures and this part of the article. I hope you all have a great day!”

In Memory of

• Mary Poppins Nursery held a raffle and

raised £175.

In Memory of

Ian Watt

“Team Watty”; Helen Neale, Michael Neale, Robert Watt and David Akroyd, took part in the CRY Heart of London Bridges Walk 2018 and raised £230.

Thomas Wall

Derek Gammage cycled the Alps and raised £250.

In Memory of

Lily Webster

Sally, Lesley and Andy took part in the Blenheim Bloodwise Triathlon and raised £1,075:

In Memory of

Neil Ward

• Santander Foundation sent in a matched fund donation of £1,500 in respect of monies raised by William Fairclough at his fancy dress touch rugby charity tournament.

“We completed our team triathlon on Saturday and have enclosed some photos of the day. It was a very hot day but we worked hard and we were pleased to have achieved our first team triathlon in 2 hours and 6 minutes.” Sally, Lesley and Andy.

• UK Online Giving Foundation held a fancy dress touch

rugby tournament and raised £169.19, in memory of Matthew Wright.

• Elaine Ward sent in donations totalling £2,640,

including: £1,000 from the Provincial Grand Charity (Derbyshire) Freemasons; £100 from the Inner Wheel Club of Church Wilne; £600 from two screenings at Long Eaton and Abbeydale; £560 from screening donations; and further donations of £380 from talks.

www.c-r-y.org.uk

75

Our Fundraisers In Memory of

David White

• W A Handley donated £500 in respect of the North Tyneside Seaside Walk.

In Memory of

Neil Wickers

Irene Wickers sent in £325 collected at a recent screening event.

• Lisa Steel took part in the North Tyneside Seaside Walk and raised £329.

• Harry Steel sent in a total of £1,748, including:

£214 from taking part in the North Tyneside Seaside Walk; and £1,534 from a sponsored abseil from the Middlesbrough Transporter Bridge:

“Harry’s abseil on Sunday was amazing. Harry abseiled twice! Everyone had a great day and it looks as though £2,000 was raised to split between Harry’s two charities.”

Lisa Steel.

In Memory of

Katherine Wilcock

• Mrs Richardson forwarded £525, representing donations received in lieu of floral tributes, in memory of her husband, Patrick, and daughter, Katherine.

• Linda Kaye sent in £100.

In Memory of

David Williams

Mike and Lyndsay Armitage organised the Ash Music Festival and raised £2,000.

In Memory of

John and Dean Williams

“Awareness in a bottle” made by Harry Steel

In Memory of

David White and Damien Jewell

David Jewell took part in the North Tyneside Seaside Walk and raised a further £761.75.

In Memory of

Joseph Williams

Heather Hermes sent in £400.

In Memory of

In Memory of

Emily Young, Sue Young and Bronwynn Villet took part in the CRY Heart of London Bridges Walk 2018 and sent in £309.

Rob Williams, Daisy Williams, Fin Williams and Sharon Williams took part in the CRY Heart of London Bridges Walk 2018 and sent in £420.

Emlyn Wibberley

76

Joyce Williams sent in £680, representing donations received in lieu of floral tributes, in memory of John and Dean Williams.

Suzanne Williams

Issue 76 | May to August 2018

Our Fundraisers In Memory of

In Memory of

Steve Byron-Cooper took part in the St Albans Half Marathon and raised £330.

Jason Mitchell raised £345 when taking part in the Brighton Marathon 2018.

Chris Williamson

In Memory of

Jemima Wilson

Team JKR took part in a Tough Mudder and raised £3,015.

Jake Wood

In Memory of

Nathan Woodcock

Maureen and Vernon Elmes donated £144 raised at a charity day held by Teddington Bowling Club, in memory of their nephew.

In Memory of

Olivia Woodward

Simon Proctor took part in the Robin Hood Half Marathon and raised £280.

In Memory of

Seth Woolley

In Memory of

Kevin Wilson

• Michele Pilling took part in the Beast Race and raised £1,584.74.

• Andrew Pilling organised a raffle at his

work’s Christmas party and raised £2,227.

• BP Foundation, Houston Texas sent in £1,113.50.

• Andrew Greene sent in £200 raised by Rhein FC’s

Memorial Match, in memory of Kevin.

In Memory of

In memory of Emily Windus, Harry Richards and Robert Allen

• Arthur J Gallagher Financial Risk Tech Operations

donated £5,003.50 raised through various events in memory of their colleagues.

• Mark Coultrip sent in a further £1,849.40 raised at

Arthur J Gallagher, in memory of their colleagues.

www.c-r-y.org.uk

• Mia Parsons sent in £610 in memory of her best friend.

• Liz Woolley forwarded donations totalling £865.54 raised through various events and a charity box in Coffee Drop in Wirksworth:

“Team Seth at the inflatable 5k in Leicester on 2nd June.

Liz, Katie and Ellie Ovenden, and friend Lydia, all ran to raise money for CRY, remembering Seth Woolley who died suddenly on 7 December 2017, aged 17. Seth, who had known them all for many years, would have loved watching them all and would have been in stitches at Liz’s many sound effects through the obstacles. A keen photographer, he would have been waiting for ‘that embarrassing’ picture of Katie (his partner in crime for many years), to upload onto social media.” Liz Woolley.

77

Our Fundraisers In Memory of

Robert Worboys

Broadland Properties Limited donated £250 in respect of Nick Ball’s participation in the 2018 Rob Worboys Challenge.

In Memory of

Julian Wort

• Sarah Paniccia organised a coffee morning for her 50th birthday and raised £150.

• Shirley Wort sent in £218.84 raised at her recent screening event.

category; positions he wasn’t expecting to finish in, as he was doing it for the experience having only started training in two of the disciplines recently due to A Level exams.

“We hope the money raised will go some way to help Elaine in hosting another screening day in the future.”

David Lear.

In Memory of

Esther Wyllie and Alasdair McFadzean

Angela McFadzean sent in £150, representing donations received in lieu of foral tributes, in memory of her mother and son.

In Memory of In Memory of

Sam Wright

Matthew Lear took part in the Staunton Harold Triathlon and raised £500: “CRY is a charity that we as a family have supported for a few months now, following both Matt and my daughter having been screened at an event at Derby University in memory of Sam Wright. I admired Sam’s mum who was at the screening day. In the face of losing her son she was passionate about hosting screening days so others wouldn’t have to suffer a loss.

“I said that going forward I would support CRY and Sam’s memorial fund as and when I could. This was an opportunity to do a sponsored event and as my son was happy to do this he entered his first triathlon at Staunton Harold. Matt is committed to train to achieve an ambition he has, and today showed he could one day achieve this.

He finished 3rd overall and was 1st in the under 20 age

Mark Wynn

• Leila Wynn sent in £250.

• Mike Akers sent in £300 donated by Re-Union FC

from the Bristol Corinthians League.

In Memory of

Michael Yendall

• Ashbrook Lodge sent in £500 donated at the Middlesbrough Freemasons.

• North York Lodge sent in £250 donated at the

Middlesbrough Freemasons.

• Craig Meaburn raised £150 through his JustGiving

page.

In Memory of

Michael Yorston

• Andrew Ronald took part in the

Highland Perthshire Half Marathon 2017 and raised £400.

• Hazel Donaldson took part in the Highland Perthshire Half Marathon 2017 and raised £576.

78

Issue 76 | May to August 2018

General Fundraising • Cheryl Cairns took part in the Liverpool Marathon and

raised £660.

• Calastone Ltd sent in £1,593.86 raised from various

activites.

• Campion School sent in £68.51.

• Sarah Carter took part in the

Virgin Money London Marathon 2018 and raised £500.

• Mona Chander sent in £350 in appreciation of

Professor Sharma and the team at St George’s.

• Caroline Colley sent in £105 raised through the

Cottam Charity Spring Fair.

• James Allmon-Chubb completed a skydive and raised

£295.

• Mohammad Amin sent in £100.

• Joanna Appleby sent in £100 in appreciation of her

son’s screening.

• Sandra Atkinson sent in £1,103.51 raised though

various activities at Waters Edge Caravan Park.

• Simon Barton sent in £100 raised from a weekly

lottery competition.

• John Bell sent in £500 from Glenny LLP. • Vernon Bouch sent in £100 raised through their Minor

Grants Initiative.

• Natan Braude at Goldman Sachs International sent in

• Thomas Coulter sent in £260.20 raised by the

• Lily Bristow sent in £2,000 on behalf of Beechbrook

• Tina Claeys, Grants Administraition Manager at Lloyds

• Abigail Cackett had 11 inches cut from her hair and

• Jamie Clarke took part in climbing Snowdon and

£100.

Capital.

raised £116.

www.c-r-y.org.uk

members of Fram Farmers.

Bank Foundation, sent in £248.

raised £2,704.50 in memory of his friend.

79

General Fundraising • Samantha Clarke took part in Sainsbury’s Christmas

Auction of Promises and raised £843.

• CRY Patron Jack

Clifford (right) donated £300 from the sale of his unwanted kit.

• Simon Cole sent

in £241.31 raised through various events for CRY.

• Lorraine Cooper

sent in £600 raised by the customers of Milo’s Bar and Restaurant through holding a charity golf day.

• Jean Coote sent in £200 in recognition of her

grandson’s screening.

• Tracey Cotton sent in £100 in appreciation of her

son’s screening.

• Carolyn Crank sent in £100 on behalf of Jackie

Zumba.

• Mel Crighton sent in a further £400.99

raised at St Bede’s School through their Rag Week.

• Joseph Cullen sent in £300.

• James Cunningham took part in the Virgin Money

London Marathon 2018 and raised £3,084.

• The Reverend Brian Cunningham sent in £834.38

raised from recent collections in the Chapel at Oundle School.

• Adam Davidson sent in £5,000 from Nationwide in

respect of sponsorship for his Hacks vs Flacks event.

• John Davison at Redhill Bowling Club donated

£141.78 in respect of the collection boxes at their club.

• Sheryl Dolan at Applied Graphene Materials sent in

£251.78.

• Lesley Drew at Shrewsbury School

sent in £460 in respect of their ‘commendations for charity’ scheme.

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• Eden Springs UK Ltd sent in £500.

• Eltham College sent in £1,000 raised through

fundraising activities.

• Ernesford Grange Community Academy donated

£150.

• Stuart Freeman sent in £123.24 in respect of a 5k

run.

• The Grange School sent in £1,941.24

raised by staff and students.

• James Gardiner of Teeside High School

raised £113.23.

• Laura

Godtschalk (right) took part in the Virgin Money London Marathon 2018 and raised £3,690.

• James Hall

sent in £403.63 from the Sandhurst Town Rangers team.

• Ruth Hamlett sent in £100.

• David Hay sent in £100.

• James Henry sent in £150.

• Hey Potato, Brierley Hill, sent in £179.

• Kate Hopkins sent in £1,110 in memory of Loved

Ones of Cuckoo Pint Customers.

• Julian Houghton wore a Christmas jumper in the

summer heat and raised £200.

• Howdens Joinery Northampton sent in £200 raised

from the company’s away day.

• Ray Hughes sent in £972 raised at The Corner Post

Micro Pub.

Issue 76 | May to August 2018

General Fundraising • Jaydeep at Total Yoga UK sent in £400 raised in

celebration of International World Yoga Day.

• David Jewell sent in £200 raised by Lowes Financial

Management Limited through the North Tyneside Seaside Walk.

• Brandon Johnson raised £2,200 from the London

Marathon 2018.

• Stephen Johnson sent in £100.

donations for CRY. “Other members of our team donned fancy dress, which was kindly loaned to us and paraded around the hospital with buckets in hand, where they were very well supported by other departments and members of the public. All the BBQ equipment was kindly lent to us by Bignall End Cricket Club for which we are also grateful.”

• Ciaran Judge took part in the London Marathon 2018

and raised £1,927.

• Joey Junarta sent in £508.89 raised at the

Cardiovascular Medicine and Cardiothoracic Surgery Conference and Bake Sales.

• Simon Kay sent in £2,500 raised following family

members taking part in a 10k run.

• Owain Keeley completed the Cheltenham Half

Marathon and raised £360.

• John Leeson sent in £500 from the Ladies Festival at

St Mary’s Masonic Lodge (No 63).

• Mark Lennox forwarded a donation of £400 collected • Barry Jones held a BBQ in celebration of the NHS’

70th birthday and raised £281.31:

“The staff from the Estates and Facilities team at County Hospital Stafford were tasked with doing something to celebrate the NHS’s 70th birthday.

“Being a keen follower of local cricket and having local knowledge of what your charity does regarding your sessions run around my area, to check for heart defects in the young – which my son attended a few years ago at Leek Cricket Club where he was thankfully given a clean bill of health – I decided to do a BBQ at work and ask for

at team manager Steve Hodgson’s testimonial football match.

• Donna Levin sent in £150.

• Maria Leyland collected a cheque from Alan Smith

who organised a motown evening and raised £455.

• Paul Lote-Williams raised £2,494.40 from the Virgin

Money London Marathon 2018.

• Angela Lowe forwarded a donation of £173.26 raised

from a DVD sale at the Hanley Branch of Nationwide Building Society.

www.c-r-y.org.uk

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General Fundraising • Louise Poole sent in £200 raised from a raffle at

Stoke City FC Golf Day.

• Alisha Porter held a raffle at her local church and

raised £150.

• Preston Muslim Girls High School sent in £1,029.32

raised through various fundraising activities.

• Prior’s Mill C of E Primary School sent in

£403.46 raised by year 6 pupils through various events throughout the year.

• ProPlay Sports Events sent in £711.

• Kelly Richards sent in £300 raised through a concert • CRY Representative Ruth Lowe collected a cheque for

£456 from John Turner Construction raised through their Easter fundraising.

• Sam Lowe raised £1,033.20 when taking part in the

Brighton Marathon 2018.

• Laura Marden sent in £100.

• Gareth Mason at Psigma Investment Management

sent in £3,054.26.

• Matt and Justin completed the Race2Berlin event and

raised £168.75.

• Sarah McJannet, John McJannet, Alex McJannet,

Edward McJannet and Benjamin McJannet took part in the CRY Heart of London Bridges Walk 2018 and raised £275.

• Samuel McMillan sent in £148.49 in honor of Tom

by South Downs Singers Community Choir.

• Laura Richardson completed a ‘100 miles in June’

challenge and raised £455.

• Paul Richmond sent in £100.

• Joanna Rowland sent in £100.

• Ms K Rueegg sent in £100.

• Steve Rush sent in £100 on behalf of Anderson of

Cormeton Electronics Ltd. CRY was nominated to receive the donation by employee Alan Anderson.

• Steve S took part in the giffgaff Ride and Stride event

and raised £200.

• Chris Scott sent in £620 in respect of Stoke City FC

shirts donated for auction by Jack Butland and Joe Allen.

Chadwick.

• Jack Milligan completed a skydive and raised a further

£250.

• Monmouth School held a Mufti Day and

raised £68.12.

• Christopher Myhill took part in the Virgin Money

London Marathon 2018 and raised £1,904.30.

• Caroline Oppido took part in the CRY Heart of London

Bridges Walk 2018 and raised £165.

• Ms V Patel sent in £100.

• Michele Payne sent in £237 raised through tips

collected at Sweat Pea’s Tea Room.

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Issue 76 | May to August 2018

General Fundraising • Richard Seward sent in £140 raised from a rugby tour

to Wales.

• Alan and Sarah Shawyer sent in £1,285 raised in lieu

of gifts at their wedding.

• Kevin Short sent in £425 raised on the occasion of

the marriage of Michael and Charlotte Cottage.

• Sir William Borlase’s Grammar School

organised a Mufti Day and raised £1,538.50.

• Harriet Slatter took part in the CRY Heart of London

Bridges Walk 2018 and raised £510.

• Slimming World St John’s sent in £100.

• Luci Smith gave up eating chocolate, sweets, cakes

and biscuits for a month and raised £111.73.

• Spondon Flames Basketball Club sent in £101.

• St Bede’s School, Redhill, sent in

£1,925.38 raised from their Rag Week.

• St Catherine’s School, Twickenham,

sent in £662.82

• Richard Steele took part in the ‘Car

Take Back’ scheme and donated £1,094:

“On January 3rd of this year I suffered a cardiac arrest, despite no reported problems with my heart previously (I’m only 39!). I was taken to hospital where I was put in an induced coma. There’s no doubt that my girlfriend saved my life, managing to perform CPR for nine minutes until the ambulance arrived.

“After two and a half weeks I awoke in intensive care in the Royal Stoke Hospital, where I recovered until I was discharged at the end of January, with an ICD fitted.

“The level of care I received was second to none throughout the whole process, and once home my girlfriend found an article in The Telegraph about CharityCar.co.uk and the numerous charities it can help to support.

“Upon seeing that CRY was one of the charities and reading its brief, we both realised that this was a unique opportunity to help a charity that helps similarly-afflicted people, especially as in the hospital I was told that this can happen to younger people than me.

“The idea of CharityCar.co.uk is brilliant, as although it’s

www.c-r-y.org.uk

possible to try and sell a car to commercial dealers in order to make money personally, it is such a worthwhile endeavour to know that you can donate to charity this way. As a cardiac arrest victim I can’t drive for six months anyway, so it’s great to know there’s a practical way in which charities can benefit from the sale of a car.

“I’m immensely pleased that over £1,000 was raised for CRY simply from donating my car, and I would urge other people to do the same.”

• Stockton Group Charity Sports Social Club sent in

£230.77 raised from fundraising activities.

• Lara Strugnell held a family variety night and raised

£300.

• Lisa Stubbs (right)

took part in the London Marathon 2018 and raised £491.20.

• Student Finance

Wales (SFW) Charity Team sent in £481.68 raised through their Easter fundraising events.

• Paul Thurston and

his team took part in the Brighton 10K and raised £6,914.26.

• James Topping sent

in a matched fund donation of £1,565 from The Apax Foundation in respect of a white collar boxing match.

• Sarah Trelford sent in £100 in appreciation of her

son’s screening.

• Sara Turkington sent in £1,211.20.

• Kevin Turner sent in £100 on behalf of the Sevenoaks

Charity Cup from proceeds of this year’s Sevenoaks Charity Cup Competiton.

• United Benefice of Lockerley sent in £125.25 raised

through a collection.

• Ben Vulliamy sent in £106.56 raised through

fundraising activities carried out by the York University Men’s Football Club.

• Gillian Walker and Richard Walker took part in the

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General Fundraising CRY Heart of London Bridges Walk 2018 and raised £535.

• Alison Walton took part in the CRY Heart of London

Bridges Walk 2018 and sent in £100.

• Stewart Ward sent in £250.

family game show ‘Family Fortunes’. Questions were used from the show and some also had a MMU Cheshire twist on them.

“The event was successful, with lots of laughing and winners from the additional raffle. From the All Star Society Fortunes event we raised an amazing £334.11, making our overall total raised for CRY £1,365.88.

• Lauren Waring

and Louise Sibthorpe presented a cheque for £524 to CRY Patron John Barrowman during his appearance at Heroes and Villains Fan Fest in London.

“We are so proud as a team that we have been able to raise this amount and can’t wait to raise more!” Emily Thomas.

• Danielle Whitworth took part in the Greater

Manchester Marathon and raised £605.23.

• Carys Williams took part in the Cardiff Half Marathon

and raised £130.

• Steven Yates donated £300 raised through two raffles

held at Business And National Government (BANG).

• Susan Young took part in the North Tyneside Seaside

Walk and raised £231.

• Fiona Watters raised £3,081.90 from the Virgin

Money London Marathon 2018.

• Louise White sent in £334.11 raised by Manchester

Metropolitan University Netball’s Family Fortunes event:

“MMUC Netball did a student twist on the well-known

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Issue 76 | May to August 2018

Raising Awareness in the Media Report Between May and August CRY featured in 321 print articles, including 7 national articles and 14 magazine articles. CRY also featured in 230 online articles.

Headlines from May to August in the press...

‘Sports stars Botham and Johnston “beef” things up for charity’ Worksop Guardian CRY Patron Sir Ian Botham and pro golfer Andrew ‘Beef’ Johnston completed an 18-hole golf challenge around the country to support several charities through the Beefy Charity Foundation, including CRY. Published 15 June 2018

‘Family join walk to highlight heart risks’ Shropshire Star Chris and Sue Dewhirst joined over 1,300 other supporters for the CRY Heart of London Bridges Walk 2018.

Published 28 June 2018

‘Rugby teams to attempt longest match record for good causes’ Thetford, Brandon & Walton Times Mark Laws organised a record attempt for the longest rugby match at Thetford Rugby Club and raised money for six charities, including CRY. Published 15 August 2018

Online...

We received a host of national coverage on our research (supported by CRY and the FA) published in the New England Journal of Medicine this August, including:

‘New study finds that young players at increased risk of dying suddenly from an underlying heart condition’ The Telegraph, 8 August 2018 Read online at https://bit.ly/2vLymg6

‘More young footballers dying of heart problems than thought, FA study finds’ The Guardian, 8 August 2018 Read online at https://bit.ly/2MuhFgl

‘Footballer heart death risk “underestimated”’ BBC, 8 August 2018

Read online at https://bbc.in/2vYvs83

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia www.c-r-y.org.uk

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Fundraising Events 2019 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Rough Runner

Edinburgh Marathon Festival

Rough Runner is an obstacle course like no other; combining distance running (there’s a 5km, 10km and 15km run) with a variety of obstacles along the way, each inspired by game shows such as Total Wipeout, Takeshi’s Castle, Gladiators, and Fun House. Expect a punching wall, giant pigeon battles, sweeper arms, big balls and yes, The Travelator!

The Edinburgh Marathon Festival includes a marathon, a half marathon, a 10K and a 5K. Fast & flat, this course takes in some of Edinburgh’s most iconic landmarks as well as offering the marathon runners picturesque views along the East Lothian coastline.

Parachute Jumps

Starting and finishing in St. James’s Park, runners will enjoy the sights of the city and pass some of London’s most iconic landmarks, including Nelson’s Column, St Paul’s Cathedral and Big Ben.

Throughout 2019

Assorted dates

London Landmarks Half Marathon 2019 March 24

Back for its second year, the London Landmarks Half Marathon is a closed road, central London run and is the only half marathon to go through both the City of London and City of Westminster.

Brighton Marathon 2019 April 14

With a stunning backdrop in one of the country’s most vibrant cities, the race gets bigger and better every year.

Virgin Money London Marathon 2019 April 28

Every year, more than 40,000 people run the 26.2-mile (42.2km) marathon through London, the largest annual fundraising event on the planet. The course follows an iconic route taking in many of London’s landmarks, from the Cutty Sark and the City to St James’ Park and The Mall.

CRY’s places for the event are now filled, but we welcome own place runners to join CRY’s team.

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May 26-27

London 10,000 2019 May 27

CRY Heart of London Bridges Walk 2019 June 23

Join CRY for the 13th annual CRY Heart of London Bridges Walk. This event offers the opportunity to show support for CRY, remember young people, raise funds and help raise awareness of young sudden cardiac death.

Prudential RideLondon-Surrey 46 and 100

August 4

This cycle was introduced after the success of the race event for the London Olympics. The event comprises a 100mile or a 46-mile cycle route on closed roads through the capital into Surrey’s countryside.

Simplyhealth Great North Run 2019 September 8

The Great North Run is the world’s leading half marathon. The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many world-

class athletes.

London Marathon Walk 2019 September 28

A 26.2 mile movie themed walk around London, taking in some of the capital’s iconic sights and less-visited corners.

CRY Heart of Durham Walk October 5

Join CRY for the 10th annual Walk in Durham. The 5-mile route starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham. The walk is suitable for all.

Cardiff Half Marathon October 7

Cardiff Half Marathon boasts one of the most stunning 13.1 miles courses around. The route takes runners past the capital’s most iconic landmarks with beautiful scenery and historic buildings.

The predominately flat and fast course makes it ideal for beginners and elites.

Royal Parks Half Marathon October 13

This stunning central London half marathon takes in the capital’s worldfamous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens.

CRY Great Cake Bake November 22

This is a fun and simple way for our supporters to get involved in Raising Awareness Week. Get your family, friends, colleagues and children involved in baking, eating and raising money for CRY. And compete to see who will create this year’s showstopper!

Issue 76 | May to August 2018

CRY Update 76 May to August 2018 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons.

For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims.

Without the fantastic support we receive this wouldn’t be possible.

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Fundraising Awareness 15% 14% Governance Support 2.5% 7%

Screening 35%

Research 26.5%

CRY is grateful for grants or donations from trusts and foundations.

We would like to thank the following for the generous support they have given us:

n io rs ve it: e vis lin e, / on at k e d .u th Up .org e ive RY r-y rib ce C c- c re the w. bs To of ww su

A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • Carval Foundation • The Charles Wolfson Charitable Trust • The Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • The Geoff and Fiona Squire Foundation • The Hospital Saturday Fund • James Tudor Foundation • The John Cowan Foundation • The Joyce Kathleen Stirrup Charitable Trust • The Lady Forester Trust • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The Oakdale Trust • The Oliver Stanley Charitable Trust • The Rachel & David Barnett Charitable Trust • The Rest Harrow Trust • Rogers Stirk Harbour + Partners Charitable Foundation • The Stanley Grundy Foundation • The Steel Charitable Trust • Tudor Foundation Inc • UKH Foundation • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK