Page 1

Cardiac Risk in the Young News and Events | Raising Awareness | Our Fundraisers

Update 66 | January to April 2015

In this

Newsletter How CRY started...

| 14

myheart presentation on exercise

| 17

Interview with Dr Greg Mellor

| 19

CRY Manifesto launch

| 20

Virgin Money London Marathon 2015 | 22

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

/CardiacRiskintheYoung


CRY Update 66 January to April 2015 Editor Alison Cox MBE

Founder and Chief Executive

Deputy Editor James Slade

Newsletter Coordinator

As Deputy Editor of the Update it is my responsibility to put together this newsletter, and it is my ambition that you should find all the CRY news, events and fundraising in the following pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would appreciate hearing from you at james@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Dr Steve Cox

Deputy Chief Executive

Kanika Bhateja

myheart Coordinator

Inside Update 66 Meet Our Representative News from the Chief Executive Extra CRY News Newsletter from the Deputy Chief Executive CRY Screening Report myheart News Report from the CRY Centre for Cardiac Pathology (CRY CCP)

3 4 12 14 16 17

Research News CRY Manifesto Virgin Money London Marathon 2015

19 20 22

Our Fundraisers Raising Awareness in the Media Fundraising Events 2015/16

29 82 90

Professor Mary Sheppard Consultant Cardiac Pathologist Azra Loncarevic-Srmic Screening Programme Manager Rebecca Zouvani Fundraising Manager Head office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. If you could supply a write-up or photos for any fundraising activities that you have taken part in, please email the deputy editor at james@c-r-y.org.uk. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. Articles can only appear in the “Raising Awareness in the Media” section if we receive permission from the publishers to reproduce the article. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

2

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

18

On the cover – for more details regarding the events shown, please turn to the corresponding page references below. Images are listed clockwise from top left: • St Edward’s College pupils take part in various fundraising events in memory of former pupil Kevin Wilson, page 73 • CRY screens nearly 8,000 people before May for conditions that can cause sudden cardiac death, page 16 • Former Hull City FC footballer Dean Windass auctions Wembley trophy in memory of Representative Rich Fell’s son, Josh, page 9 • Vikki Stanley and family organise a football cup tournament and fun day in memory of her husband, Shane, page 66 • Mark Tipping’s The Big Switch On, a Christmas lights and fireworks event, raises funds in memory of Jordan Grant, page 43 • The family and friends of Gary Stewart hold the third annual darts competition in his memory, page 67 • Seven CRY riders take part in the 2015 Big Heart Bike Ride in India, page 13 • A record 133 CRY runners including Patrons Bill Neely and Ben Brown take part in the Virgin Money London Marathon 2015, page 22 • National Representative Ruth Lowe receives a Department of Health award from Jane Ellison MP, page 7 • Team B Natural take part in a yacht race around the Isle of Wight in memory of Claire Reed, page 62 • The families of Matthew Dewhirst and Harry Dubois, as well as CRY supporter Chris Smith, talk to the BBC on Inside Out North West, page 6 • Representative Garry McGrotty runs 10 marathons in 10 months in memory of his friend, Aaron Lundy, page 52 • The Hebridean Cycle Challenge 2014 raises funds in memory of Andrew Macleod, page 53

Issue 66 | January to April 2015


Meet Our Representative for the county and North Midlands teams. He trained five times a week and loved everything that he did.

Sue Dewhirst Representative in Shropshire I found out about CRY on 20 July 2012, the day after my only son Matthew died aged 17½. It was the county coroner who suggested my husband Chris and I Google “Cardiac Risk in the Young” to find out why our extremely fit boy should suddenly go, though I think we’d kind of known for eight years that all was not right – but after years of him passing out on the rugby pitch to be told every time by the emergency doctors that it was either stress, migraine or dehydration and that “you only had to look at him to know that there was nothing wrong with his heart”, what are you supposed to do? Matthew was our only son, conceived on the ninth IVF attempt, so he was a very wanted child. He was active from day one of his life and at 11 he decided that rugby was his game. He played for his school, Ellesmere College, as well as his club, Whitchurch RFU, and also

www.c-r-y.org.uk

The couple of months leading up to Matthew’s death were possibly the most enjoyable of his whole life. He’d been to Wembley to see his beloved Crewe Alexandra win in the play offs; he’d sung at Westminster Abbey as part of Ellesmere College’s chapel choir; he’d passed his driving test; he’d completed his Duke of Edinburgh Gold activity, rowing from Hereford to Shrewsbury; and he’d had his eureka moment when he suddenly realised what he wanted out of life after being asked to mentor a group of Italian students as a volunteer for his Duke of Edinburgh award. Life was good. That summer Matthew had asked if he could join a pre-season rugby training group and, for whatever reason, four days into the course he collapsed and died. He’d come home the evening before complaining of chest pains and I can still hear myself saying: “Well, you know what you have to do; drink more.” What a stupid thing to say, but for years that’s what we’d been told. I don’t blame anyone for what happened, even though it was suggested that I complain about the advice we’d been given. What’s the point, he wasn’t coming back, so I did what I usually do: go into organising mode. I was now a “Mother on a Mission” and I was determined that his death wouldn’t be forgotten and others would know why he died so that it would raise awareness to stop other families being ripped apart as ours had.

through a lot for us to have Matthew and we were going to have to go through a lot more now. Having our own architectural design business has afforded me the time to give to promoting CRY at schools and sports clubs. We both now work with students at the local technical college on an enrichment programme which helps them offer some of their time to promote charities and this has offered the benefit of contact with teenagers again, something we both miss. Life will never be the same again, but CRY is helping us achieve something in Matt’s name.

I’m very lucky to have a strong marriage with Chris. We’d been

3


News from the Chief Executive

Alison Cox (MBE) CRY Founder & Chief Executive

January Interview with Graham and Anne Hunter on BBC Radio Solent January 15 Graham and Anne Hunter were interviewed by presenter Julian Clegg on regional BBC Radio Solent regarding the death in March 2013 of their 22-yearold daughter Claire Reed (pictured). Claire’s husband Andy Reed and father Graham had previously spoken to Julian shortly after the tragedy. Anne described meeting Samantha Cameron that week at 10 Downing Street with Claire’s brother Peter as a result of their awareness and screening campaigns, saying, “They made us very welcome.” Graham said that £40,000 had been raised in memory of his daughter and CRY has been able to screen nearly 700 young people through the Claire Reed Memorial Fund. The parents said their ultimate aim is for the government to routinely screen teenagers for heart defects at the same time they receive their school vaccinations. Graham and Claire’s husband Andy were due to meet Prime Minister David Cameron on an undisclosed date a short time later to further discuss their proposals.

Final donations come in as Owen’s Ride raises over £51,000 January 19 Around 160 people took part on 5–6 July 2014 in this

4

fantastically well-supported event that so brilliantly raised both awareness and funds in Wales in memory of young Owen Morris (pictured), who died in September 2013 aged 13. The ambitious 100 mile sponsored bike ride from Cardiff to Brecon and back was primarily organised by Judith Hassey, a friend of the Morris family, and took place less than a year after Owen’s death. The last donations for Owen’s Ride were received at the beginning of 2015, with £51,596.08 being raised. CRY Patron John Barrowman MBE, who has special connections to the community, gave starter’s orders for the bike ride, making a personal donation of £1,000. His support is hugely appreciated by us all. Owen’s memorial fund has raised over £85,000 with another ride planned for 4–5 July 2015.

Hillary and Bill Durrant interviewed for BBC Radio Somerset January 26 Hillary and Bill Durrant discussed the death of their granddaughter Dr Jennifer Bucknell (pictured) in an interview with Ben McGrail from BBC Radio Somerset. Jenny was a 23-year-old medical student at Cardiff University only a few weeks from her final exams when she suddenly died in April 2011. Following her death, the university posthumously awarded her doctorate. Hillary and Bill described their fundraising for CRY at dozens of county fairs and events every year since Jenny’s

Issue 66 | January to April 2015


News from the Chief Executive death, and said, “If by fundraising we can stop other youngsters from having to die so unnecessarily it will be worthwhile.” The annual “Dr Jennifer Bucknell Community Responder Award” was introduced in 2013, in recognition of Jenny’s five years of volunteering as a community first responder with the Welsh Ambulance Service.

February Signed Pixie memorabilia raises funds February 7 Patron Pixie Lott generously donated a rare signed T-shirt from her 2012 performance at Springroove festival in Japan to raise funds for CRY. The memorabilia was raffled at an event held at a British Forces base in Germany by Jane Ewen in memory of her daughter Amy Evans (pictured left), helping to raise a total of €3,000.

myheart story featured in the British Journal of Cardiac Nursing February 10

myheart member James Bailey carries the Olympic Torch in 2012

myheart member James Bailey was stunned to be diagnosed with Wolff-Parkinson-White syndrome (WPW) aged 17 when the CRY screening team visited his school in Bristol in 2009. The British Journal of Cardiac Nursing contacted us late last year specifically requesting to use his contribution to CRY’s myheart booklet for a full page feature in their February 2015 issue.

James, who considers himself “one of the lucky ones”, tells of how he suffered what he thought was a “panic attack” while playing school football. Already signed up for the CRY screening two weeks later he was promptly diagnosed with WPW, but struggled to come to terms with his diagnosis, medication and initially unsuccessful surgery. However after a successful second operation cured his condition he

www.c-r-y.org.uk

became a strong advocate for CRY, attending myheart meetings, representing CRY at events and achieving success with his application to be a torch bearer for the London Olympics in 2012. For James’s story of coming to terms with WPW in the myheart booklet please visit www.myheart.org.uk/ booklet

Miccoli end their CRY tour in Hertfordshire February 14 British band Miccoli’s “Hit the Malls” tour came to an end at the Howard Centre in Hertfordshire in the second week of February. The band performed throughout the Saturday and were amazed with the response they received. “The Howard Centre in Welwyn Garden City was the final stop on our CRY awareness tour. The highlight of the weekend was meeting a couple called Ian and Ingrid who shared their story about their young daughter’s struggle after a traumatic heart operation at a very young age. To our surprise the couple returned later on in the day with a generous donation of £500. It made for an amazing final weekend on our CRY awareness tour. ” Miccoli. Alessandro, Francesca and Adriano raised nearly £2,000 having dedicated 13 weekends from the end of August to raise awareness of CRY. We wish them every success for the future and look forward to working again soon with these talented and very personable musicians.

Professor Sanjay Sharma granted the inaugural Viviane Conraads Award and NHS Silver Award February 20 We were very proud to learn that the European Association for Cardiovascular Prevention and Rehabilitation (EACPR) had decided that CRY’s Consultant Cardiologist Professor Sanjay Sharma would be the first recipient of the Viviane Conraads Outstanding

5


News from the Chief Executive Achievement Award for Established Researchers presented at the EACPR’s 2015 EuroPRevent Conference on May 16 in Lisbon. This award was dedicated to “an exceptional scientist” and “distinguished EACPR nucleus member”. The EACPR cited Sanjay’s extensive research accomplishments in the fields of inherited cardiac disease and sports cardiology as well as his massive contribution to the development of CRY’s national screening programme for young people. We are hugely indebted to Sanjay for his leadership and commitment to CRY’s research and screening initiatives. CRY’s Research Fellows have established a significant reputation and many doctors aspire to be selected and become a part of this group. Another outstanding award for Sanjay, that was confirmed at this time, was the Clinical Excellence Award (CEA) which is a scheme designed to recognise NHS consultants who particularly excel in their quality of patient care. Sanjay’s NHS Silver Award for clinical and academic work at St George’s Hospital in London is a brilliant achievement and given only to the most outstanding medics nationwide.

BBC build up to Inside Out feature includes a report on calls for NHS heart screening February 23 The BBC published an online news article on the morning of February 23 in preparation for a regional BBC One feature on cardiac death in the young to air in the northwest of England later that evening. The article described how bereaved parents have been campaigning for the implementation of routine NHS heart screening for young people to reduce the incidence of young sudden cardiac death. For the BBC News article, please visit www.bbc.co.uk/ news/uk-england-31454074

BBC Radio Manchester interview with Debbie Dubois February 23 On February 23 BBC Radio Manchester interviewed CRY supporter Debbie Dubois about the sudden death of her 17-year-old son Harry. He had died at home while with his father Mario in April last year, and she articulated the shocking nature of her son’s death and its indescribable impact on her family.

6

BBC Inside Out North West on young sudden cardiac death February 23 A lengthy segment on BBC One discussed the incidence and prevention of cardiac death in the young prominently featuring CRY. Dianne Oxbury opened the programme with CRY’s message that every week in the UK, 12 young people die from undiagnosed heart conditions. The report also featured clips from “Beaten”, the live-action film we launched last November, and Dianne went on to interview three affected CRY families. Sue Dewhirst, CRY Representative, talked about her son Matthew (pictured), who first collapsed during a football game aged eight, when migraines and dehydration were given as diagnoses. Over the next nine years Matthew fainted another eight times before he collapsed and died aged 17 whilst playing rugby in July 2012, after doctors had repeatedly reassured his parents that “you only have to look at him to know there’s nothing wrong with his heart.” By contrast, Debbie Dubois recalled fondly that her son Harry (pictured) “absolutely hated sport with a passion”; demonstrating that it is not just young athletes at risk. Harry Dubois, also aged 17, became ill with severe back pain in April 2014 but no one considered it might be a heart problem. Harry died of an aortic dissection whilst watching television with his father, Mario, two days later. Harry’s sister Emily stressed that there had been no symptoms before that week and so no signs of a problem – and the NHS won’t screen unless you have symptoms or a sudden death in the immediate family. The programme featured extended footage of a CRY screening in Garstang, Preston, and highlighted that our screening programme is specifically for fit and healthy young people, both sporty and unsporty. It was described as “a really well-oiled machine” and “very much valued within the community”, and we hope that this will have encouraged young viewers to consider getting themselves checked.

Issue 66 | January to April 2015


News from the Chief Executive ventricular hypertrophy (LVH). Ruth was invited to attend a prestigious ceremony held at the Terrace Marquee at the House of Commons to accept a Department of Health Recognition Award. With the help of friends and other local bereaved families £110,000 has been raised for the Andrew Parr Memorial Fund which has funded CRY screening for nearly 2,000 young people in the community.

Dianne Oxbury and CRY Representative Sue Dewhirst

During an interview with 22-yearold Chris Smith (pictured), his mother Julie spoke of her shock at his diagnosis at a CRY screening in 2009. He underwent three hours of surgery to correct his heart defect and his condition was cured. Subsequently Chris served as a lifeguard for the Olympics and Paralympics and now raises money for CRY. Julie made the point that those who do suffer symptoms and go to doctors are not always treated seriously “because they’re young, fit and healthy” – the doctors dismiss them and don’t check their heart. Following the broadcast, the programme was available for a month on BBC iPlayer and BBC Action Line offered advice about accessing free heart screening and links to both www.c-r-y.org.uk and www.testmyheart.org for any viewers who had been affected by a young sudden cardiac death.

March

Jane Ellison MP, Parliamentary Under Secretary of State for Public Health, with CRY Representative Ruth Lowe

Ruth is also a trained Bereavement Supporter and has been instrumental in forming “Heartfelt”, a local fundraising and support group in Preston where families who have experienced a young sudden cardiac death meet, share their stories and support each other’s fundraising events, as well as promoting the work of CRY.

Ruth said of the award: “I was totally amazed to find out that I had been nominated by my MP for a Department of Health Recognition Award, let alone chosen to receive one! I feel honoured and hope that Andrew would have been proud. I would like to accept and acknowledge the award on behalf of all the other CRY supporters I have befriended over the years.”

CRY Information Day March 7 Our 2015 Information Day was held at the Holiday Inn, Sutton, with 31 Representatives and Bereavement Supporters in attendance. CRY staff attending were myself, Deputy CEO Dr Steve Cox, Fundraising Manager Rebecca Zouvani, Community Fundraising Manager Ben Robinson, Maria Carter and Sue Kelly.

Ruth Lowe honoured at the Houses of Parliament March 3 Ruth Lowe, CRY’s National Representative, first became involved with CRY after her only child Andrew (pictured) died aged 21 in April 2004 whilst out with friends. Investigations showed he had suffered from left

www.c-r-y.org.uk

The CRY Information Day is a chance for our Representatives and Bereavement Supporters to meet, get

7


News from the Chief Executive together and receive an update on the progress we have made the previous year, as well as our plans for the future. I greatly enjoyed catching up with everyone and having the opportunity to talk about our initiatives.

National myheart Meeting March 8 The National myheart Meeting was held the following day at the same venue with 11 young people aged between 14 and 35 registered to attend. This was the first myheart meeting for four new members, one of whom had joined myheart just a few days before the meeting. myheart Representatives Tim Butt and Joseph Tanner were also amongst those in attendance. Counsellor Alan Jones led the group in the morning to help address any social problems caused by their conditions, and then in the afternoon myheart Cardiologist Dr Michael Papadakis offered the opportunity for those attending to informally discuss any medical queries. Members all gave detailed feedback afterwards and I was delighted that all attending found both the support and medical sessions helpful, whilst some suggested constructive ideas for how they could link up more often.

BBC Radio Bristol interview with June Boulton March 13 CRY supporter June Boulton was interviewed by both BBC Radio Bristol and the Bristol Post two days before the publication of CRY’s new Grief booklet, “A Mother’s Grief”, of which she is one of the co-authors. June’s son Jack (pictured) died aged 17 in August 2009 after collapsing during training with his football team. The pathology investigation following Jack’s death unfortunately mirrors that of many other cases of sudden arrhythmia death syndrome (SADS), with no answers and no sense of resolution provided by the inquest when “natural causes” was the verdict. Jack’s story in “A Mother’s Grief”, like the other unique yet all too familiar stories in this booklet, courageously tells of the sickening shock

8

of his sudden death, the harrowing experiences of both inquest and funeral, and then as June eloquently described for our booklet, “putting one foot in front of another and finding another day had gone by, then a week, then a month, even though none of us could remember how.”

“A Mother’s Grief” booklet launch March 15 It seemed appropriate to launch the fourth booklet in our Grief series, “Young Sudden Cardiac Death: A Mother’s Grief”, on Mothering Sunday. This booklet presents the testimony of 10 mothers who were plunged into the terrible abyss of the sudden death of their child. Their stories are told in the hope that they will help other mothers to learn to live with their tragedy. The first of our Grief booklets, “Sibling Grief”, was launched at our Parliamentary Reception in November 2012; “A Father’s Grief” was published on Father’s Day in 2013; followed by “A Partner’s Grief” on Valentine’s Day 2014. To receive a copy of “A Mother’s Grief”, or any of our previous Grief booklets, please call the CRY office on 01737 363222 or email cry@c-r-y.org.uk. To view “A Mother’s Grief” online please visit issuu.com/ cardiacriskintheyoung/docs/mums_booklet

Nicola Merriman interviewed on BBC Radio Three Counties March 16 Richard Merriman (pictured) died in July 2012 aged 27, a few weeks before his wedding and two days after his birthday, from undiagnosed arrhythmogenic right ventricular cardiomyopathy (ARVC).

Issue 66 | January to April 2015


News from the Chief Executive His mother Nicola was interviewed by Nick Coffer on BBC Three Counties the day after “A Mother’s Grief” was published. Nick recalled the shocking death on the pitch of Premier League footballer Marc-Vivien Foé in 2003 as the first time a lot of people had heard of cardiomyopathies, and went on to ask Nicola about Richard’s health prior to his death. Her son had complained of minor symptoms in the past but these had been dismissed by his GP as asthma. Like the overwhelming majority of cases, he showed no signs of serious illness until the time of his collapse. Nicola discussed her story in “A Mother’s Grief” and her hesitation when I asked her to contribute, but said she had found it had proved therapeutic to recount the horrendous experiences of the inquest, post-mortem and the long wait for Richard’s funeral – as well as the harsh impact it had on family, fiancée and friends. “It’s always there,” she said.

April Sky News article on “one of the biggest killers of young people” April 3 An article on Sky News featuring National Representative Ruth Lowe and Consultant Cardiologist Professor Sanjay Sharma was published online at the beginning of April. Importantly, the video report showcased a CRY screening in Gloucestershire as well as the key CRY messages that sudden cardiac death is one of the biggest killers of people aged 35 and under, 80% show no warning symptoms, and that at least 12 young people die every week as a result of undiagnosed heart conditions in the UK. Ruth spoke of the terrible pain of losing her son Andrew, before Professor Sharma revealed why he believes his CRY research-backed “12 a week” figure might easily be an underestimate, with many unexplained deaths potentially attributable to sudden cardiac arrests. He said, “These deaths are underestimated because many such catastrophes can present in different ways, for example; unexplained road traffic accidents, unexplained drownings and even epileptic seizures.” The article also mentioned the contradictory conclusions drawn by the UK National Screening

www.c-r-y.org.uk

Committee (NSC) in 2008 and 2014, despite mounting evidence supporting national screening. Following the UK NSC’s review of cardiac screening policy in the UK, it became clear they have continued to grossly underrepresent the prevalence of sudden cardiac death in young people, even by our conservative estimate – and the contributions of Ruth and Sanjay to a very positive Sky report are greatly appreciated. To view the article, please visit news.sky.com/ story/1458141/cardiac-arrest-hidden-killer-of-theyoung

Rich and Donna Fell interviewed on Estuary TV April 7 Representatives Donna and Richard Fell visited Estuary TV News to speak to anchor Hugh Riches, who had previously talked to Richard in November last year prior to his and Donna’s attendance at the CRY Parliamentary Reception 2014. Josh Fell (pictured), their son, was out playing football with friends when he suddenly died aged 15 in June 2011. Rich and Donna described the importance of raising awareness of undiagnosed heart conditions and precautionary cardiac screening – especially if symptoms present – before they advertised their highprofile May 3 fundraiser at local football club Hull City. The annual event features a football match between former Hull players and a “CRY team” including Richard. Remarkably, after the Fells won the support of former Hull legend Dean Windass, he offered to auction his man of the match trophy from Hull’s promotion victory at Wembley in 2008, and had already received an astonishing bid of £3,500 for the trophy. To view Rich and Donna’s interview, please visit www. youtube.com/ watch?v=1xspe W5f7lc

Richard Fell and Dean Windass with the donated trophy for auction

9


News from the Chief Executive CRY Manifesto launched before the UK General Election April 13 In the build up to the UK General Election in May we knew that it was crucial to make CRY’s voice heard by the parties which would go on to form the next government, and so for the first time we assembled a “CRY Manifesto” to bring together our key messages and call for action from MPs and policy makers on young sudden cardiac death (YSCD). Our Manifesto sets out clear and achievable objectives for the next government to deliver, which are based on CRY’s experience of leading the way in awareness, support, screening and research for these conditions. The Manifesto provides the blueprint for a national strategy for prevention of YSCD which will synchronise health and screening policies and lead to a dramatic reduction in the number of young sudden deaths in the UK. To read more about the CRY Manifesto and our call to action please see the article, or visit www.c-r-y.org.uk/ manifesto for a full copy of the document.

National Mums Bereavement Support Day April 18 The National Mums Bereavement Support Day was held on April 18 at the Macdonald Burlington Hotel in Angela Butler and Diane Tolley Birmingham and nine mums registered to attend. I led the day, assisted by Bereavement Supporters Angela Butler and Diane Tolley, and counsellor Jayne Slack.

10

Donated Pixie top auctioned for mayoral ball April 18 A designer Phillip Lim top donated by Patron Pixie Lott was auctioned at the East Grinstead Mayor’s Ball on April 18, raising £150 for CRY. Town Mayor Nick Hodges had chosen CRY to be one of two charities to support during his term in office, with half of the total proceeds from the ball going to CRY and a cheque presentation for £5,000 due at the close of his term of office in May. Pixie’s generously donated clothing and apparel has so far raised over £4,000 for CRY.

ITV News report on Hull screening and football match April 20 A video report from ITV News showed Richard Fell, whose 15-year-old son Josh died in June 2011, talking to pupils at Josh’s former school to raise awareness of conditions which can cause young sudden cardiac death. The Fells were due to hold a screening at the school from May 9–10, which they have done every spring since 2012. The report also promoted the fundraiser on May 3 which would see ex-Hull players including Dean Windass take part in a memorial game for Josh.

Richard, Donna and Jasmine Fell with Dean Windass at Hornsea School

Television presenter Gabby Logan was also interviewed for the report in relation to the Fells’ fundraising. Her brother Daniel died of hypertrophic cardiomyopathy (HCM) in May 1992 aged 15 whilst playing football with

Issue 66 | January to April 2015


News from the Chief Executive their father. She said, “All we can do is keep looking into the science, the research, and hopefully one day it won’t happen.” To view the report, please visit www.itv.com/news/ calendar/update/2015-04-20/tigers-help-raiseawareness-of-genetic-heart-condition

Over 130 CRY runners take part in the Virgin Money London Marathon April 26 There were a record 86 runners with CRY charity places and 47 who ran for CRY with their own places at this year’s Virgin Money London Marathon, and we wish to offer our thanks and congratulations to everyone who took part in making such a successful day. I was delighted to have the opportunity of talking to many of our runners and their families who came to the Green Park Hilton Hotel where we again had our post-race rendezvous. We are most grateful, as always, to our massage therapists who donate their time to helping revive the muscles of our exhausted runners, and also the Hilton, who generously donated an additional two suites for our massage teams which made it so much more comfortable for the increasing number of runners who avail themselves of our very welcome service.

Our runners notably included two celebrated broadcast journalists and CRY Patrons: Ben Brown, who was running his first marathon for CRY in memory of Tom Clabburn and Claire Prosser; and Bill Neely, who was running his

www.c-r-y.org.uk

sixth consecutive London Marathon for CRY in memory of Katrina Brown. It was also great to see Ruth Hobbs-Scott, the wife of Patron Andy Scott, who was inspired to run for CRY in memory of Rebecca Gapes, the daughter of CRY AllParty Parliamentary Group member Mike Gapes MP, after hearing Mike speak at the CRY Parliamentary Reception 2013. Ruth had been writing a captivating “log” about her training travails and successes for our website, and we were all able to celebrate the very successful outcome of her dedication.

Patron John Inverdale with CRY runners Suzy Kerton and Fiona Barnes – we were most grateful to John for hosting a quiz at the BBC, where Fiona works, helping to raise over £3,000 to support their marathon fundraising in memory of Fiona’s partner James Phillips

Patron Andrew Trimble shared this photo on Twitter of himself with CRY marathon runner Éireann Kerr at Ulster Rugby’s Kingspan Stadium, where Andrew is a teammate of Éireann’s partner

Again, and as always, a huge thank you to everyone who took part for CRY this year. For more details and photos of our runners from the day, please turn to the article or visit www.c-r-y. org.uk/londonmarathon-2015

11


Extra CRY News “A Mother’s Grief” booklet launched

held a Bereavement Support Day exclusively for mums. The event gave attendees the chance to listen and talk to other bereaved mothers about their tragedy as well as sharing feelings and emotions from their own personal experience. Another Bereavement Support Day for mums and dads is due to be held later in the year. To receive a copy of any of our Grief booklets, please call the CRY office on 01737 363222 or email cry@c-r-y.org.uk. To view “A Mother’s Grief” online, please visit issuu. com/cardiacriskintheyoung/docs/ mums_booklet

Number plate in memory of Luke Morris On 15 March 2015, Mother’s Day, CRY published a new volume in its series of Grief booklets for mothers whose child has tragically died from young sudden cardiac death. “Young Sudden Cardiac Death: A Mother’s Grief” was compiled by CRY Founder and Chief Executive Alison Cox MBE, a former bereavement counsellor, and features 10 stories from women who recount and talk through their personal experience of suddenly losing their son or daughter to a previously undiagnosed heart condition. Mothering Sunday is an important and special day for mothers across the UK, yet is one which will forever be unbearably hard for those women whose child has suddenly died young and without warning. Alison said: “It is my hope this booklet will not only help affected mothers, but also help others to better understand why Mum has such a massive battle to reinvent herself.” On Saturday 18 April 2015, CRY

12

“This was a picture from my daughter’s wedding – Laura (Luke’s sister) with my new number plate. “Luke was 15 when we lost him, so you will see the significance.” Ian Morris.

Custom scooter in memory of Paris Holden “I lost my daughter, Paris, suddenly a few years ago and I found that the help and support I got from yourselves and especially my counsellor, Bruce, helped me get through what was and still can be a very hard time. As a way of a thank you I rather foolishly ran/walked the 2013 London Marathon in aid of the charity and it too was another,

albeit rather painful, way of dealing and coping with what I was going through. “My great passion in life is restoring and riding vintage scooters, namely Lambrettas, and having something positive to focus on I’ve found has helped me enormously to carry on since the loss of my daughter. So the Lambretta chopper you see in the photos is my latest and now finished project and I wanted just to share with you my thoughts and reasons behind the designs and theme of the scooter. “The name ‘Cry no more’ for me has two meanings: firstly it says to me I’m stronger now and although eternally grateful to yourselves I feel able to cope more on my own; and secondly it says to me that I’m moving on with my grief and that I should celebrate life and all it offers! The heart logo on the tank is a faint reference to yourselves and also

Issue 66 | January to April 2015


Extra CRY News shows that broken hearts can heal and be stronger for it! Hopefully as I get out and about on my scooter people will ask, as they do, about the meaning behind the design and I can spread the word and awareness of what your excellent charity is all about and the work that you do!” Paul Marshall.

Big Heart Bike Ride in India “On 6 February 2015, seven CRY supporters took an overnight flight to Delhi to take on the challenge of a lifetime. They formed part of a group of 63 cyclists of all abilities who had one thing in common – to raise funds for heart charities. This was the Big Heart Bike Ride 2015, cycling 390km in five days through rural Rajasthan. “Ages ranged from 15 to 68, and all completed their challenge with nothing more than a few grazes and the odd queasy tummy. They rode through sand dunes and fields of mustard flowers, negotiated camels, cows, goats and boar, all the while cheered on by smiling schoolchildren who appeared from seemingly nowhere. “Accommodation was in the faded grandeur of old Indian palaces – the shower may have had to be fixed with surgical tape, nearby wedding celebrations complete with fireworks continued till the early hours, jackals barked throughout the night, but the

www.c-r-y.org.uk

food, the laughter and the company made up for all that. “The CRY party of seven may have returned with temporary aches and blisters, but with permanent friendships and memories. But more importantly than all of that, together they raised over £17,000 for CRY.” Alison Howard, Dream Challenges. Simon Goodwin, Dianne and

Peter Mendham (in memory of Ben Daniels), Julie Thompson (in memory of Josh Fell), Karen Winfield, Zoe Chamberlayne (in memory of Melissa Watts) and Richard Gill (in memory of Chris Parr) took part for CRY in 2015. If you are interested in taking part in the Big Heart Bike Ride in Africa in 2016, please contact events@c-r-y. org.uk.

13


Newsletter from the Deputy Chief Executive How CRY started... Over the years many people have asked how CRY started. This is how I came to be involved and why I think specialist units are so important. In 1990, having just turned 16, I relocated to the Dr Steve Cox US to take up a CRY Deputy Chief Executive tennis scholarship. In 1992, I moved to a university where I was required to have a full medical with a battery of different health checks (including an ECG) as part of the scholarship agreement. The ECG was identified as abnormal so I was referred for further tests. This was not taken seriously within the team as I was one of the fittest athletes and no one had heard of young sports people being affected by heart conditions. At the meeting with the cardiologist he apologised for the inconvenience and said, “This will just take a few minutes, the nurse who took your ECG put the leads on the wrong way round,” – then, “Oh,” he paused, “she didn’t put the leads on the wrong way round.” After many tests over the following month the cardiologist enthusiastically approached me in the lobby, asked a few seemingly meaningless questions and then said, “I’ve finally found out what is wrong, you have arrythmogenic right ventricular cardiomyopathy – ARVC.” I smiled and said, “Great, so what does that mean?” to which he replied, “You’ll never be able to exercise or sweat again.” The cardiologist didn’t appear to understand the impact such a statement could have on an 18-year-old who for 10 years had been aspiring to be a professional tennis player. I was not allowed to step foot on the university tennis courts for legal reasons and my aspiration to be a great athlete was now in question. Thankfully, an

14

ex-tennis player and cardiologist at the hospital heard about my story and took me under his wing to explain what had happened and why sport and certain lifestyle decisions were dangerous. The difference this doctor made to my life was transformational. While I was still in the US, Alison, my mother, researched who was the leading specialist in this area, and found that Professor Bill McKenna was based at St George’s Hospital, 30 minutes from where we lived. When I returned to the UK from the States I had my first appointment. Alison asked Professor McKenna to write up ARVC in layman’s terms so that she could understand it, and this became the first patient information for ARVC. After a battery of further tests the doctors were still not happy for me to return to sport. At the same time, John Marshall died suddenly aged 16 of ARVC. John was one of England’s most promising young footballers and had just signed for Everton. John’s story and my story led to a media storm and families reading the stories in the newspapers started to contact my mother saying how lucky I had been because their child had died suddenly for no apparent reason. Alison had recently finished her training to become a counsellor for children who were terminally ill and found herself supporting the families that contacted her. A year later, in 1993, she held the first screening in the UK for the Lawn Tennis Association players at the National Championships. Alison collated and printed information written by experts so that she could understand ARVC, WPW (Wolff-Parkinson-White syndrome), long QT syndrome and other difficult diagnoses, and these also acted as a resource for bereaved families. She started fundraising for an echocardiogram machine that could be used at the first “family clinic” for young sudden cardiac death in St George’s Hospital, and at the weekends be used for screenings around the country on request. In 1995, Alison officially founded and launched Cardiac Risk in the Young (CRY) as a charity to support bereaved families and offer a screening service to proactively identify young people, aged 35 and under, at risk of sudden death. I was unable to stay in the US and returned to study applied psychology and sociology at the University of Surrey – quite different from my business and

Issue 66 | January to April 2015


Newsletter from the Deputy Chief Executive

Used by courtesy of Wandsworth Guardian: “Professor William McKenna, John Curry, Chairman of The All England Lawn Tennis & Croquet Club and Alison Cox, Founder and Chief Executive of CRY, at the opening of the Specialist Unit at St George’s Hospital, Tooting, on 3 May 1995. They are watching technician Gill Smith perform an echo on an 18 year old patient with hypertrophic cardiomyopathy, who has a pacemaker.” (Reproduced from CRY newsletter issue 4, October to December 1996)

accountancy major in the US! I was fortunate to be given the opportunity in my third year to have a placement with Professor Bill McKenna and Professor Andrew Steptoe to work in the specialist unit at St George’s, evaluating the specialist cardiology referral service they operated there. The work I conducted became the focus of my undergraduate thesis on understanding the role of specialist units in helping families adjust after a diagnosis. I was very passionate about the important role of specialist units when making a diagnosis of a “rare” condition, especially after a young sudden cardiac death or when there are implications for lifestyle and profession. The research we conducted showed patients were able to adjust to the diagnosis much better when seen at a specialist unit. The specialist unit had a massive impact on changing people’s lives and it was clear this was in part due to the team at St George’s developing strong relationships of trust with their patients, providing time and reassurance. The research also resulted in the first paper to look at the quality of life of those living with hypertrophic cardiomyopathy. Most families affected by young sudden cardiac death or a young person diagnosed with a condition have

www.c-r-y.org.uk

to accept there will be a level of uncertainty in the diagnosis. The way a diagnosis is made after a sudden death is a bit like a jigsaw puzzle where one or more of the pieces will always be missing, but everything we do helps to fill in the picture as much as possible, starting with Professor Mary Sheppard’s investigations at the CRY Centre for Cardiac Pathology. Through research we are learning more about these conditions all the time, however, much of what we know now is very different to 20 years ago. This is the nature of medical science. Patients are diagnosed and treated with current knowledge, and the decisions made today are likely to be different to the decisions made in the future. Our understanding of many of the cardiac conditions we are concerned with is in its infancy and therefore the changes in our understanding are likely to be more rapid. I have always felt very strongly that if someone is delivering a diagnosis which will carry inevitable uncertainty then they need to be an expert. If not, it is natural for the patient to want to see someone else, someone who knows more. That is why at CRY we try to ensure that every person, whether they are seen in the screening programme, or they are referred for further tests in the NHS, has access to the highest level of expertise.

15


CRY Screening Report Between January and April 2015 CRY screened nearly 8,000 people, mostly through family memorial screenings. At our regular CRY clinics 1,333 young people were screened. Clinics were held at Newry Shamrocks Clubhouse, Newry; the University of Ulster, Coleraine and Jordanstown campuses (funded by the Northern Ireland Fund); and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital, London. Sports screenings included: Brighton & Hove Albion FC, London Broncos RLFC, Wigan RLFC, Huddersfield Giants RLFC, Wakefield Wildcats RLFC, Castleford RLFC, Leeds Rhinos

RLFC, Hull Kingston Rovers RLFC, England Rugby Women’s Seniors, England Rugby U16s, Leigh Centurion RLFC, Bradford Bulls RLFC, British Fencing TASS, One Cycling Team, England Rugby U17/18s, Lee Valley EIS, Loughborough EIS, Worcestershire CCC, Middlesex CCC, Manchester EIS, Kent CCC and Bisham Abbey EIS. A total of 1,019 athletes were screened. There were two further private screenings with 274 young people screened. These were held in Marlow, Buckinghamshire; and Heaton Moor, Stockport. At 25 family memorial screenings 3,683 people were screened. These were held in memory of Claire Reed (Eastleigh), Josh Merrick (Manchester and Cambridge), Joseph Halliwell (Stockport), Adam Pearmine (Tadley), Matthew Hesmondhalgh (Garstang), Jack Thomas (Blackwood), David Moss (Stoke-on-Trent), Tom Hardman (Heywood), John

Marshall (Ormskirk), Ben Daniels (Hayes), Dave Bramwell (Egham), Martyn Luckett (Barnstable), Gregg Shoults (Sittingbourne), Andrew Gard (Colchester), Phil Standing (Romsey), James Nicholas (Merseyside), Andrew Parr (Preston), Aaron Dixon (Macclesfield), Tom Clabburn (Ealing), Shane Stanley (Poole), Dean Mason (Carmarthenshire), Sam Wright (Derby), Yasmin Caldera (Portsmouth) and Zoe Teale (Stourbridge). A total of 1,452 young people were screened at 12 school screenings, which were held at Channing School, London; University of Surrey, Guildford; Nottingham High School, Waverly Mount; Eton College, Windsor; Hartpury College, Gloucester; Bishop’s Stortford High School, Hertfordshire; Bishop’s Stortford College, Hertfordshire; Wellington College, Berkshire; University of Gloucestershire, Longlevens; Havant Sixth Form College, Hampshire; Cheltenham Ladies College, Gloucestershire; and Millfield School, Somerset.

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. The ECG involves lying down quietly and only takes five to ten minutes. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used on a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

16

Issue 66 | January to April 2015


News Presentation on “Cardiac Rehabilitation into Exercise” myheart member Paula Beck Simmonds gave a presentation on exercise for people implanted with an internal defibrillator at St Peter’s Hospital, Chertsey, on Saturday 11 April 2015. The families and carers of people with ICDs (implantable cardioverter defibrillators) were also invited to attend. ICDC Surrey, a support group for Surrey patients with an ICD, held their annual members’ education day at St Peter’s Hospital and Paula was there to speak about the importance of exercise as part of their rehabilitation. She is a personal trainer and fitness instructor who was diagnosed aged 30 with Brugada syndrome, a condition found in her family’s genes after her brother, Craig Beck, suddenly died aged 31 in Australia in April 2010. Her family, including four siblings and two children, were screened at St George’s Hospital,

London, and both parents as well as her sister were found to have the condition. Paula supported Dr Michael Papadakis, CRY myheart Cardiologist and a clinical lecturer in cardiology at St George’s Hospital. Dr Papadakis spoke about the types of cardiac disease that affect young people and the challenges associated with ICD implantation. He gave an overview of CRY’s screening and support services – including the importance of screening the immediate family of young victims of sudden cardiac death, which is what led to Paula’s diagnosis – as well as CRY’s support for medical research. Paula’s presentation was aimed at introducing a positive approach to exercise amongst ICD patients and encouraging a controlled return to healthy exertion, taking advantage of the physical and psychological health benefits that moderate exercise offers. She hopes her presentation will give patients the confidence to return

to regular individual or communitybased exercise and increase their understanding of the limitations of living with an ICD. Paula has an ICD herself and wanted to emphasise to the patients that muscle can be built around the device, so from personal experience was able to inform them about how soon to safely and comfortably resume exercise following the implantation of the ICD, which exercises they should avoid and how to prevent injury or damage to their ICDs and leads. Paula felt that following her ICD’s implantation there had been a lack of information and often conflicting advice from doctors regarding the type and extent of exercise she could safely undertake. She spoke to patients about the sensible limitations to impose on an exercise regimen and of gradually increasing exercise intensity. Arrhythmia nurses took CRY leaflets to display for their younger patients following Paula’s presentation, while many in attendance were interested in CRY and their work and took information on the upcoming CRY Heart of London Bridges Walk in June 2015. Paula will lead the warm up for the walk, as she did for the first time in 2014.

Paula (centre) and her team from PB Fitness Training led the warm up at CRY Heart of London Bridges Walk 2014

www.c-r-y.org.uk

17


Report from the CRY Centre for Cardiac Pathology (CRY CCP) Professor Mary Sheppard, Consultant Cardiac Pathologist

The CRY pathology laboratory is now fully functioning with the CRY National SADS Database based at St George’s, University of London. We are now fully computerised to produce rapid reports for coroners and families. We had 88 cases from January to April 2015. This is an increase from the same period in 2014, in which we had 65 cases. Visitors We are establishing the unit as a national training centre for cardiac pathologists and forensic pathologists. • Dr Elizabeth Webb, a pathologist from Leicester, had a four week attachment for training in January. • Dr Stine Kristofferson, a pathologist from Norway, had a one week attachment for training in February. • Dr Haranti Sara Razali, a forensic pathologist from

18

Struan Bourke, Senior Laboratory Technician Fiona Maleady Crowe, Laboratory Technician Zoha Hamza, Database Manager Devika Dyal, PA to Professor Mary Sheppard

Malaysia, joined the team from March to April as an attachment from Queen Mary’s University. Awards Professor Sheppard received a Merit Award from the Society for Cardiovascular Pathology in March. Teaching • Training course on sudden cardiac death for pathologists, Amsterdam, March 13. • Training course on arrhythmogenic cardiomyopathy and echocardiography, Royal Society of Medicine, London, April 17. Inquests Professor Sheppard attended four inquests throughout the UK from January to April, speaking to relatives and helping families through their bereavement, which is a vital part of her work with CRY.

Publications Papers: • Krexi D, Sheppard MN. “Pulmonary hypertensive vascular changes in lungs of patients with sudden unexpected death. Emphasis on congenital heart disease, Eisenmenger syndrome, postoperative deaths and death during pregnancy and postpartum.” Journal of Clinical Pathology. January 2015. • Krexi L, Georgiou R, Krexi D, Sheppard MN. “Sudden cardiac death with stress and restraint: The association with sudden adult death syndrome, cardiomyopathy and coronary artery disease.” Medicine, Science and the Law. January 2015. • Treacy AD, Norita K, Ingram PJ, Sheppard MN. “Pseudotumour formation in atheromatous coronary arteries.” Journal of Forensic and Legal Medicine. March 2015. • Notari M, Hu Y, Sutendra G, Dedeić Z, Lu M, Dupays L, et al. “iASPP, a previously unidentified regulator of desmosomes, prevents arrhythmogenic right ventricular cardiomyopathy (ARVC)-induced sudden death.” Proceedings of the National Academy of Sciences of the United States of America. March 2015.

Issue 66 | January to April 2015


Research News CRY Research Fellow Dr Greg Mellor had the paper “Clinical Characteristics and Circumstances of Death in the Sudden Arrhythmic Death Syndrome” published in Circulation on 16 December 2014. CRY Screening Programme Manager Azra Loncarevic-Srmic interviewed Dr Mellor to ask about his research.

What was the study about? “Sudden arrhythmic death syndrome (SADS) is an important cause of sudden cardiac death in the young responsible for around a quarter of all sudden deaths under the age of 35. Learning more about the background of these victims – including important facts such as the presence of any previous symptoms that may have suggested a possible problem – may allow better identification of those at risk and potentially prevent future deaths. The circumstances of death may also allow a better understanding of the underlying conditions, such as ion channel disease [which affects the electrical circuitry of the heart], that may be responsible for SADS.”

How did you conduct this research? “We analysed the reports of nearly 1,000 cases of SADS assessed by Professor Mary Sheppard at the CRY Centre for Cardiac Pathology over a 15-year period.

As of April 2015, there are eight CRY Research Fellows and three visiting Honorary Fellows at St George’s Hospital who divide their time between NHS clinics, CRY screenings and research. In February, Dr Greg Mellor completed his fellowship with CRY. Those still with CRY are: Dr Harshil Dhutia, Dr Andrew D’Silva, Dr Gherardo Finocchiaro, Dr Vincent Gabus, Dr Tracey Keteepe-Arachi, Dr Aneil Malhotra, Dr Lynne Millar, Dr Rajay Narain, Dr Stathis Papatheodorou, Dr Keerthi Prakash and Dr Alexandros Steriotis.

www.c-r-y.org.uk

“We looked for the presence of prior symptoms or family history of sudden death, as well as other medical conditions, and any medications the victims were taking. We recorded the activity of the victim at the time of their death and classified these as either resting (sleeping/ no physical activity) or active (during or immediately after physical or emotional stress).”

What did the results show? “We found that 90% of SADS victims had no prior blackouts or family history of sudden death that would have marked them out as being at high risk of sudden death. “Almost 7% of SADS victims had been diagnosed with epilepsy, a much higher rate than in the general population. “The majority of deaths occurred during sleep or at rest with only a minority occurring during exercise or with emotional stress. However, males and those aged under 18 were more likely to die during exertion than females or older individuals.”

What are the implications of the results? “The majority of SADS victims did not have features that would have identified the fact that they were at risk of sudden cardiac death. SADS is caused by a variety of ion channel diseases that can be diagnosed on an ECG. Therefore, screening of asymptomatic individuals with an ECG may identify such conditions that can then be treated; thus preventing sudden deaths. “Individuals, particularly children, diagnosed with apparent epilepsy may be at increased risk of sudden cardiac death. This can be due to misdiagnosis. Therefore, all patients with newly diagnosed epilepsy should have an assessment with an ECG to exclude ion channel disease. “The predominance of death during sleep suggests that particular ion channel disorders may be responsible for these deaths. Brugada syndrome and long QT syndrome (LQTS) 2 and 3 are all known to be associated with death during sleep or at rest and so may be the main causes. In contrast, death during exercise, as seen mainly in young men, may be due to LQTS1 and CPVT (catecholaminergic polymorphic ventricular tachycardia).”

19


CRY Manifesto

The CRY Manifesto was launched online and through social media in early April in the run up to the UK General Election 2015, calling for the next government to establish a national strategy for the prevention of young sudden cardiac death. CRY already directs its resources in each of these four areas, yet with the support of policy makers in Parliament, further progress would dramatically reduce the number of young sudden cardiac deaths (YSCDs) in the UK – currently at least 600 deaths a year. YSCD is one of the most common causes of death in young people, but if national health and screening policies were synchronised this would change.

This strategy will ensure action to increase: • awareness amongst medical practitioners and those at risk • support after a young sudden death, including expert cardiac pathology • screening for young people to identify cardiac conditions • research to inform policy and practice The CRY Manifesto is available to view and download from www.c-r-y.org.uk/manifesto

awareness amongst medical practitioners and those at risk

More must be done to ensure the medical and sporting communities are fully aware that symptoms such as exercise-related chest pain and sudden fainting can be signs of an undiagnosed heart condition, and know they can direct anyone concerned who is aged 14–35 (whether symptomatic or not) to CRY for screening.

It should be widely recognised by the general public and their representatives in Parliament that inherited heart conditions are known to be more common than once thought, are detectable at a high accuracy and low individual cost, and are treatable when diagnosed.

20

Issue 66 | January to April 2015


CRY Manifesto

support after a young sudden death, including expert cardiac pathology

whether the cause was an inherited cardiac disease so that immediate family members can be referred to be screened for the same condition.

Specialist support for any family affected by YSCD is imperative to safeguard both their emotional and physical welfare. The sudden death of a young person, with no warning or immediate explanation, is an intensely traumatic event for their family and adequate bereavement support must be available. Every coroner in the UK should be aware of the CRY Centre for Cardiac Pathology; in the event of young sudden death a specialist pathologist must establish

screening for young people to identify cardiac conditions

Cardiac screening is the key to identifying young people who are at risk of sudden death and ensuring that they receive the necessary treatment to minimise this risk. All young people should have the choice to be tested. Mandatory screening in all Italian organised sport has reduced the incidence of sudden cardiac death in Italian athletes by 90%.

Current UK screening policy (advised by the UK National Screening Committee) must be synchronised with the Department of Health and the National Institute for Health and Care Excellence recommendations, ensuring that a consistent message drives policy forward.

www.c-r-y.org.uk

research to inform policy and practice CRY’s screening of thousands of young people in the UK every year is an unparalleled resource for research doctors to continue to improve diagnostic methods and treatments for inherited cardiac diseases in the general population.

There are a large number of heart conditions which can cause sudden death and many are at the cutting edge of modern cardiology. The true prevalence of YSCD is now beginning to be understood, and through increased support for research initiatives, such as the CRY Research Fellowship Programme, the network of experts in the UK will continue to grow.

21


Virgin Money London Marathon 2015 Congratulations and a huge thank you to the 133 CRY runners who took part in the Virgin Money London Marathon – and the 2 CRY runners who took part in the mini marathon – on Sunday 26 April 2015. The weather was dull and very chilly all day this year, especially for spectators and cheerers around the course, nevertheless there was the same sensational atmosphere as always at the biggest single-day fundraising event in the world. CRY volunteers and supporters and our runners’ friends and families added to the noise as they cheered at miles 18 and 23 and helped to spur the CRY runners to the finish. We are very proud of everyone who chose to run for CRY and very grateful for your fantastic efforts to raise awareness and funds. Among our runners this year were CRY Patrons Bill Neely, Chief Global Correspondent for NBC, who ran the marathon for CRY for the sixth consecutive year; and Ben Brown, BBC News presenter, who ran the marathon for CRY for the first time. Bill’s daughter, Sarah, also took part for CRY for the second consecutive year. We were delighted to have CRY Patron Andy Scott’s wife, Ruth, taking part; and Philippa Hennessey, Editor of Darling Magazine, kindly chose CRY as her charity to run for.

Two of our runners, Laura McMahon and Adam Lawton, got engaged at the finish line. Congratulations from everyone at CRY.

22

Joe Street and Evan Phillips, both Welsh international Australian rules football players, started their marathon run in Swansea, leaving the Liberty Stadium on April 11 and

Issue 66 | January to April 2015


Virgin Money London Marathon 2015 finishing two weeks later and more than 200 miles away at the London Marathon finishing line. The first CRY runner to cross the finish line was Ian Crampton MBE who finished in a fantastic 02:36:08 and the first CRY runner back to the hotel was Keith Preedy who finished in another brilliant time of 02:58:30. As the afternoon progressed, more and more runners came back to the hotel, each receiving a well-deserved round of applause from CRY staff and volunteers. They were then photographed, interviewed and given a much-appreciated leg massage before heading for a shower. The main reception room was, after a while, full of exhausted, emotional and elated runners and their proud friends and family sharing the highs and lows of the day. Alison Cox MBE, CRY Founder and Chief Executive, was available for most of the afternoon and enjoyed meeting everyone and thanking them for their extraordinary efforts. Thank you so much to the runners and their supporters who came back to the hotel to meet us, despite feeling emotionally and physically exhausted; and thank you also to all of our volunteers. A huge thank you to our volunteer massage therapists; Jocelyn de Guzman, Daniel Doyle, Tillie Howard, Carl James, Leonie Lawson, David Piddington, Christine Ravine, Josh Wagner and Ian and Teija Wynn. Thank you to the Hilton Hotel, Green Park, for once again hosting our post-event facilities; providing dedicated

www.c-r-y.org.uk

staff to assist with any queries; offering CRY runners and supporters discount vouchers for food and drink at the bar; and providing many extras for CRY free of charge. Once again, we would like to thank each and every runner for their huge efforts in completing the marathon and fundraising for CRY. Your time, effort and valued support are truly appreciated. Well done! As well as runners taking part in the full marathon, we had two teenagers, Saul and Juliette Westbrook, taking part in the mini marathon. Saul’s time in the U15 boys race was 00:20:30 and Juliette’s time in the U17 girls race, her sixth mini marathon, was 00:25:31. They were taking part in the Brent Team for the Tom Clabburn and Claire Prosser Memorial Fund. To see all our photos please visit our London Marathon 2015 Flickr gallery at www.flickr.com/photos/ cardiacriskintheyoung/sets/72157649967454413

23


Virgin Money London Marathon 2015

24

Issue 66 | January to April 2015


Virgin Money London Marathon 2015

www.c-r-y.org.uk

25


Virgin Money London Marathon 2015

26

Issue 66 | January to April 2015


Virgin Money London Marathon 2015

CRY runners were: Richard Abraham

Ben Brown

Joanna Adamson

(in memory of Tom Clabburn and Claire Prosser)

Nathanael Ahearn

Simon Brown

Maxie Allen

(in memory of John McCall)

(in memory of Alexandra Allen and Jason Nixon)

Dom Bruneau

Scott Appleyard

Hayley Burns

Hannah Babbage

Nichola Burns

(in memory of Ben Daniels) (in memory of John Luxford)

Fiona Barnes

(in memory of James Phillips)

Beth Barron Nick Beale

(in memory of Paul Sheridan)

Suzanne Bellew Glynis Bennett

(in memory of Graham)

Rochelle Bisson

(in memory of Cecilia Barriga)

Paul Bloxham

(in memory of Reece Goodman)

Peter Boultby

(in memory of Matthew Boultby)

Mark Brazier

(in memory of Dale TennentButler)

Elly Brindle

(in memory of Arabella Campbell)

www.c-r-y.org.uk

(in memory of David Nunoo) (in memory of her dad)

Philly Campbell

(in memory of Ethan Jones)

Fiona Carr

Linda Dearnley

Cain Green

Eamon Deighan

Prashan Green

David Dixon

Sheona Griffiths

(in memory of Paul Sheridan) (in memory of Ben Kanfiszer)

Crystal Dolphin Sian Donnelly

Ben Harte

(in memory of Paris Holden)

Fergal Doyle

(in memory of Paris Holden)

(in memory of Oliver Griffin)

Chanel Dykes

(in memory of Matt Cragg) (in memory of Adam Donnelly)

Jane Ewen

(in memory of Amy Evans)

(in memory of Jonathan Picker)

Adam Fraser

Hati Colvin

Tom Freeman

(in memory of Laura Hillier)

Ian Crampton MBE Amy Cunningham (in memory of Andrew Macleod)

Anthony Davies

(in memory of Nathan Butler)

David Davies

(in memory of Austin Keohane)

(in memory of Jay Hart)

(in memory of Adam Donnelly)

Danny Cawley

Dave Chilton

(in memory of Harry Dubois)

Nikky Hart

Maria Drye

(in memory of Paul Marsden)

(in memory of Stevie Jivani)

(in memory of Melodie Holmes)

(in memory of Florence Moore)

Scott Chenery

(in memory of Lee Smith)

(in memory of Paul Sheridan) (in memory of David Smiley)

Karen Gardner

Gemma Harte John Hassell

(in memory of Aaron James Dixon)

Kelvin Hebburn

(in memory of Shaun Whitfield)

Rachelle Henderson (in memory of Steph McLean)

Philippa Hennessy Sarah Henry

(in memory of Stevie Jivani)

Matthew Higgins

(in memory of Aaron James Dixon)

(in memory of Stewart Gardner)

Andrew Hilder

Lianne Garrett

Edward Hilton

(in memory of Lianne Bridget Gould)

Daniel Garrity

(in memory of Emma Broad)

Ruth Hobbs-Scott

(in memory of Steven Bicker)

(in memory of Rebecca Gapes)

Jemma Gosling

Roslyn Holmes

27


Virgin Money London Marathon 2015

Leanne Hooper

(in memory of Nick Thomas)

Peter Hopkisson

(in memory of David Smiley)

Michael Horton David Jackson

(in memory of Matthew Cragg)

Gareth Jackson (in memory of Jack Thompson)

Rosie Jackson

(in memory of Adam Donnelly)

Mark Jones

Isabel Marriage

(in memory of Jennifer and David Paul)

Xena Marshall (in memory of Harry Faulkner)

Joanne Matthews

George Pangborn (in memory of Simon Pangborn)

Damian Pathy

(in memory of Owen Morris)

Dominique Pharoah

Mervyn Smith Michelle Smith Emma Stephenson (in memory of Jennifer and David Paul)

(in memory of Oliver Griffin)

(in memory of Alexander Kaiser)

Maxine Stevens

John McDonough

Evan Phillips

Joe Street

Ashley Popham

Caroline Taggart

(in memory of Matthew Wallbank)

Conor McIlroy

(in memory of his friend)

(in memory of Arabella Campbell)

Sean Power

(in memory of Leo Stevens)

Michael Thomas

(in memory of Mark Price)

(in memory of Stewart Gardner)

Laura McMahon

(in memory of Liam Wood)

(in memory of Kevin Paterson)

Suzanne Thomas

Éireann Kerr

Jamie McRobbie

Keith Preedy

Clare Thornton

Suzy Kerton

(in memory of James Phillips)

Matthew Kiernan

(in memory of Cecilia Barriga)

Andrew King

(in memory of Kevin De Silva)

Phil Lang Ryan Lanham

(in memory of Hanna Pickering and Caroline Johnstone)

Adam Lawton

(in memory of Liam Wood and Nathan Butler)

Stephanie Lazarou (in memory of Stephanie McLean)

Mark Lennox

(in memory of Peter McAvoy)

Ben Miller Liam Mullen

(in memory of Rob Allan)

Mark Murphy

(in memory of Gareth Scott)

Bill Neely

(in memory of Katrina Brown)

(in memory of Paul Beard and Harry Faulkner)

Andrew Quew

(in memory of Gemma Quew)

James Robertson Kathryn Scott

(in memory of Kris Cook)

Karen Scott

Marie Towns

(in memory of Florence Moore)

Michael Treharne

(in memory of Reece Jeffrey)

Clare Watts

Gavin Neill

Alice Sharp

Tony Wheatman

Belinda Nichols

Michael Sharp

Brona Whittaker

(in memory of Peter Medcalf)

Tim O’Donovan (in memory of Adele Cashman)

(in memory of Stevie Jivani) (in memory of Matthew Wallbank)

Chris Simpson

Rob Ostler

Clare Lloyd

Sarah Overington

Emma Sinclair

(in memory of John Luxford)

(in memory of Tom Clabburn and Claire Prosser)

(in memory of Jamie Loncaster)

Kerry Lewis

Kevin Luxford

Lucy Thorpe

Sarah Neely

(in memory of Martyn Luckett and James Tucker)

(in memory of Matthew Daniels)

(in memory of Mark Price)

Gaynor Owen

(in memory of Owen Morris)

(in memory of Melissa Watts) (in memory of Craig Wilson)

Ellen Young Sofia Zagzoule

(in memory of Graham)

David Smith Lydia Smith

The next Virgin Money London Marathon will take place on Sunday 24 April 2016. Please contact events@c-r-y.org.uk for further information.

28

Issue 66 | January to April 2015


Our Fundraisers Corrections and Apologies Apologies to the family of John Chapelhow, as offline fundraising was not included in the amount received in John’s memory in respect of the CRY Durham Riverside Walk 2014.

page 36

Apologies to the family of James Nicholas, as Caitlin Nicholas’s online fundraising was not included in the page 58 amount received in James’s memory in respect of the Carmel College bike ride. Apologies to the family of Neil Schuyleman, as Ann Edwards’ donation was not included in the amount received in Neil’s memory in respect of the CRY Heart of London Bridges Walk 2014.

page 64

Apologies to the family of William Thomson, as Mark McFern’s donation was incorrectly recorded to have page 69 been raised by Stranraer Golf Club.

In Memory of

Cosima and Rosie

Michael and Leonora (Koos) Beckett sent in £100 in memory of their granddaughters.

Christmas charity. Daniel lost his uncle Ronnie to sudden death in April 2008. Daniel really enjoys helping raise money and £417 was raised through the generous parents of Oasis Academy Pinewood.” Amanda Armitage.

In Memory of

Jonny

Rachel Dobson took part in the Ikano Robin Hood Half Marathon and raised £250 in memory of her friend.

In Memory of

Philip Abraham

Mary Abraham held a coffee morning and raised £128.90.

In Memory of

Ronnie Armitage

• Mrs K Hanmore at Oasis Academy Pinewood in Romford sent in £417 raised through a collection by the Year 6 children. “Daniel Launder kindly chose CRY for his school’s annual

www.c-r-y.org.uk

In Memory of

Stuart and Rosemary Attridge

• Marion Poole sent in £152 on behalf of Chairman Elizabeth Horner and the members of Reigate and Redhill Tangent Club. • Graeme Attridge sent in total donations of £2,500 in lieu of floral tributes for his wife, Rosemary.

29


Our Fundraisers In Memory of

Alan Bain

• Inga Cottrill sent in a donation of £100. • Fiona Bain sent in a donation of £100. • Phyllis Brown at Talisman Sinopec Energy UK sent in £500.

different region of France each year, we celebrated the final tour by returning to Compiegne and Reims; the destinations of the very first tour. Always using mainly scenic routes on D roads and stopping off at places of interest en-route, the tour had become a yearly reunion of like-minded Jaguar drivers. Lynne had the assistance of eight marshals throughout the tour, including husband Tony, to make sure everything ran smoothly. Matt had also marshalled on a couple of them as a last-minute stand in and with his charm and constant smile was a great hit with the participants.

• Kathleen Bain raised £655 from a Halloween ball and Valentine’s roses event.

In Memory of

Nicholas Barnes

Peggy June Howard bequeathed £1,564.34 in her will. “Matt welcoming a Jag as it arrives for a lunchtime stop en-route in 2009”

In Memory of

Lewis Barry

• Hilary Philpott and Team LSE took part in Spadger’s Ride and raised £440.25. • Sue Gornall raised a total of £491 through taking part in the Prudential RideLondon-Surrey 100 2014.

In Memory of

“The final tour visited Sericourt Gardens, La Coupole, Chantilly, Pierrefonds, the Palais at Compiegne, and Claude Monet’s gardens. Whilst parked up at each visit the cars made for a spectacular display with the locals flocking to admire and take photos before we moved on. Our final evening found the cars left behind in secure parking whilst coaches took everyone for a champagne gala dinner at Vranken Pommery Champagne House. Excellent food and plenty of Champagne flowed and the evening ended with prize giving and speeches, including a tribute to Matt which resulted in £304 being raised for CRY in his memory.”

Matt Beadle

• Steve Annetts sent in £304 raised at the Entente Cordiale, an annual Jaguar car tour of France organised by Matthew’s parents Lynne and Tony. “6–12 June 2014 was the 20th and final annual Entente Cordiale tour. Lynne (Matt’s mum) was the main organiser of the tour for the last six of the 20 years. Taking approximately 100 classic Jaguars to a

30

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Sarah Booth

Ita Booth sent in £420 raised by the teaching staff at Wellington College, Belfast, through a Christmas raffle, and £50 from Alan Patton in respect of the CRY Heart of London Bridges Walk, making a total raised of £470.

• Kelsey Publishing, Weterham, sent in a matched giving donation of £305 in respect of the Entente Cordiale.

In Memory of

Jack Boulton

• Kye Thompson took part in an Isle of Wight cycle challenge and raised £1,151.

In Memory of

Ewan Bellamy and Jenny Boothby

Judie Street sent in total donations of £100 in lieu of floral tributes for her mother, Jenny Boothby.

• Liz Roberts raised £380 through various fundraising events. • June Boulton sent in total donations of £319; Marcus Woodward raised £260 through a charity golf event and £39 was raised from a collection box.

In Memory of

David Bick

In Memory of

John and Ursula Bick sent in £100 donated by friends and family and £50 from Mrs Freda Russell and Eileen, making a total raised of £150.

In Memory of

Lesley Boden

Stephan Boden took part in the Run in Lyon and raised £625.

Ian Bowen

• Sandra Wilkinson sold cakes and bacon and sausage sandwiches and raised £155. • Gary Watson sent in £209.06 raised by The Bull’s Head pub from collection boxes and the National Lottery bonus ball. • Redcar Academy sent in a donation of £196.92.

In Memory of

In Memory of

Howard Dennis at London and Country Mortgages sent in £180 in respect of mufti days held throughout the year.

Guy Earle took part in the TCS New York City Marathon and raised £705.

Matt Bond

www.c-r-y.org.uk

Wesley Bray

31


Our Fundraisers In Memory of

Emma Broad, Luciano Fimognari and Lindsay Klassen

Kristi Woolley sent in a donation of £300.

In Memory of

Ben Broadbent and Craig Burling

Mr W Broadbent sent in £1,046 raised in memory of his son, Ben, who was tragically killed in an accident in January. Ben had previously fundraised for CRY in memory of his friend, Craig.

In Memory of

David Brown

• Laura Miles took part in a Mount Snowdon climb with her friends and sent in a total of £422: “On 1 November 2014 several friends and I climbed Mount Snowdon. There were double celebrations as it was our friend’s 30th birthday and I managed to raise £422 for CRY. The weather wasn’t brilliant; it was cold, wet and very windy, and it got a little scary at times, but we climbed up in three hours – it was a great feeling to get to the top and share the whole experience with my closest friends.”

32

• Emma Mundy took part in the Bupa Great South Run and raised £125.

In Memory of

Karl Browne

Mary Talman raised £120 through taking part in the Brighton Half Marathon.

In Memory of

Leanne Brownhill

Kevin Butcher sent in £315 raised during a northern soul and Motown night.

In Memory of

Alex Buckler

Rosalind Buckler sent in £1,453.55 raised through a carol service in Wells Cathedral for Alex’s sister Charlotte’s Kilimanjaro trek.

In Memory of

Dr Jennifer Bucknell

• Hillary and Bill Durrant sent in £684 raised through Bill’s pole lathe exhibitions and demonstrations at agricultural events throughout 2014.

Issue 66 | January to April 2015


Our Fundraisers • Hillary and Bill Durrant sent in total donations of £597: the South West Folk Group of the Camping and Caravanning Club raised £153 through the sale of books; the Chaffcombe Village Hall Christmas whist players raised £182; an annual quiz raised £242; and £20 was from a family friend. • Liz Wilmott took part in the Bristol Half Marathon and raised £110. • Glenys Rugman sent in £660 raised by the Cardiff City Rowing Club through a rowing ergathlon.

• Blackmore Vales Lions Club sent in £250 in respect of a Valentine’s dance.

www.c-r-y.org.uk

In Memory of

Jordan Bullock

Simon Bullock took part in the Bupa Great South Run and raised £459: “We lost our beloved son Jordan Bullock aged just 22 on 29 July 2014 to sudden adult death syndrome. I decided to run the Bupa Great South Run in honour of him. It was a lovely calm day in Portsmouth and a well-organised event, my wife and eldest daughter came to support me with banners and vocal encouragement to help me round as it was a very “While we were still struggling to come to terms with his sudden death this gave us something positive to focus on, and raising money and awareness for CRY helped us cope with the emptiness we feel. I felt we needed to do something to help raise awareness of this terrible form of young death as this can clearly happen to anyone. Jordan was such a healthy, energetic, fun-loving young man who loved life and was rarely ill.”

33


Our Fundraisers In Memory of

Gerald Burrows

Michelle Burrows sent in a donation of £100.

In Memory of

Richard Butcher

In Memory of

Yasmin Caldera and Harry Dubois

Student members of the Junior Common Room at St Edmund Hall, University of Oxford, sent in total donations of £1,102 in memory of the friends of members Kathryn Reece and Josh Rampton.

Sarah Butcher sent in a donation of £888.44.

In Memory of In Memory of

Nathan Butler

• Simone Worthington took part in the Stoke 10K and raised £303.91. • Angela Butler sent in total donations of £655: family and friends donated £55 in lieu of sending Christmas cards; £130 was raised in respect of a football quiz night at Porthill Cricket Club; £40 in respect of a Potteries Staffordshire Bull Terrier Club social event; and Mrs Ogen donated £10. • Angela Butler sent in £430 raised by Wolstanton Residents’ Association: “This event was an evening of fun held in our village of Wolstanton where there was a fun fair, stalls and Santa. Wolstanton Residents’ Association kindly chose CRY as their charity and invited us along to the event. We had a stall where we sold Christmas cards, CRY key rings, pens, etc. and also did a children’s bran tub. Along with this, a member of their team went round with a collection bucket and in total we raised a further £130, making the total raised from the event £430. “A social event was held on Saturday 17 January where the cheque was presented to CRY – unfortunately I couldn’t be there to accept the cheque as I has a previous engagement, but our friends Joanne and Dave Allison kindly accepted the cheque on our behalf.” • Richard Jones took part in a 24-hour spinning event and raised £130.

34

Arabella Campbell

• Alison Ward took part in the Royal Parks Foundation Half Marathon and raised £655. • Antony Wootton at Basepoint Centres sent in matched giving donations of £1,141.70 and £2,426.70 from the ACT Foundation, making a total raised of £3,568.40. • Basepoint Centres sent in further donations of £1,537.52 and further ACT Foundation matched giving donations of £213.34 and £766, making a total raised of £2,516.86: “Since choosing CRY as their sponsored charity for 2014/15, the team at The Base have been running various different fundraising events, whilst Cheryl Elliott, assistant centre manager, raised money by taking part in the CRY Heart of London Bridges Walk. For every pound that is raised by the centre for their chosen charity, The ACT Foundation, a grant-making charity who wholly own Basepoint, match fund the figure up to £5,000/year. “Receiving the cheque on behalf of CRY was Dave Jennings, who tragically lost his son in 2001. Dave is pictured with Cheryl Elliott and Antony Wootton, centre manager. ‘A huge thank you to everyone who has supported our fundraising events at The Base, especially the licensees who are always so generous. Whilst CRY is a relatively small charity it has a huge impact on the lives of the young people and their families, so every penny that we raise really does make a difference,’ commented Cheryl.”

Issue 66 | January to April 2015


Our Fundraisers Wild Wales Challenge; Lloyds Bank Foundation sent in a matched giving donation of £500 in respect of Mark Walmsley taking part in the challenge; News UK sent in a matched giving donation of £250 in respect of Gary Keating taking part in the challenge; and a further £65 was received from a colleague in respect of the event; making a final total raised by the event of £4,352.90.

In Memory of

John Cawte

In Memory of

James Campbell

• Ashley and Holly Dyne held a Christmas fayre and raised £891.79. • Rachael Campbell took part in a charity abseil down the Transporter Bridge in Middlesbrough and raised £250. • Rachael Campbell raised £385 through sponsorship from the James Campbell Cup.

Leanne Greenwood and Imogen Hogg took part in the Mudderella challenge and raised £140: “This is an obstacle course, created for women and run by women! The course spans over six miles and along the way we tackled 12 muddy obstacles. We found ourselves wading through waist-high mud, balancing on muddy tyres and making our way through underground tunnels. We thoroughly enjoyed our day and were very pleased that we could raise money for your charity along the way.

In Memory of

Jake Carney

Dave Carney sent in a donation of £100.

In Memory of

Michelle Carter

Rory Creffield took part in the Thames Path Challenge and raised £1,030.30.

In Memory of

Mike Casson

Ian Casson sent in an additional £963.20 in respect of the Birkenhead Victoria Cycle Club completing the

www.c-r-y.org.uk

“We both took on the Mudderella in August 2014 in memory of a dear uncle and friend, John Cawte. We completed 12 obstacles that included underground tunnels, balancing beams, wading through mud and ending with a vertical drop slide into muddy water! We really enjoyed our day and even did a bit of yoga after the event! This was a fantastic opportunity and we would recommend that more women take part; grab your friends and get your war paint on, you won’t regret it! We hope to raise even more money for CRY and want to help find the causes of the many undiagnosed heart conditions within the UK.”

35


Our Fundraisers In Memory of

Olivia Chase

Carol Chase’s sewing group made a quilt to raffle and raised £300.

In Memory of

Anthony “Budgie” Child

Stephanie Child sent in £500 raised at a recent coffee morning.

In Memory of

Alison Chandler, Matthew Price and Claire Wind

Jo Davies took part in the Cardiff Half Marathon and raised £270.

In Memory of

In Memory of

Pippa Chowne

Walkers in memory of Philippa took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £271.10, making a total raised of £386.10.

John Chapelhow

Judith Chapelhow, Keith Chapelhow, Mark Chapelhow, Helen Pickup, Emma Pickup, Jerry Pickup, Charlotte Cummins and Eileen James took part in the CRY Durham Riverside Walk 2014 and raised a total of £356.

In Memory of

Cheryl Christopher- Webber

Natalie Sharp sent in a donation of £350.

In Memory of In Memory of

John Chapelhow and John Bell

Keith Chapelhow sent in total donations of £121 in lieu of floral tributes for John Bell.

In Memory of

Luke Chapman

Tammy Turner took part in a swim challenge and raised £506.

36

Katrina Christopher and Cheryl Christopher-Webber

• Katherine Cobham sent in £400 from Spotlights Theatre Group: “The money was raised by a local theatre/youth group from a performance of ‘Chaos in the Castle’ – our version of ‘Sleeping Beauty’. The group consists of approximately 25 children, the youngest being five years old to the oldest who is 16 years old, and is run by three volunteers. We open term time only on Friday evenings in the local Methodist chapel and we try to perform a couple of times a year.”

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Tom Clabburn and Claire Prosser

• Sue Howells sent in £1,605 raised at a BBC book sale: “The funds were raised through a book sale held at the BBC and organised by some of Claire’s old colleagues and friends. Whilst the book sale had been planned some weeks before, and this was to be the next of many such sales we have held, Claire, Tom’s mum, very sadly died on 1 December. As Claire was both passionate about books and about fundraising for CRY, a group of us have promised to continue Claire’s book sale legacy.”

In Memory of

Stephen Connor

• Mr J Connor sent in a donation of £408. • Nicola Connor and Jennifer Dixon took part in the Manchester Electric Run and raised £1,328.

• Paul Clabburn sent in total donations of £2,335.42 in respect of the service in memory of his wife, Claire: a collection at the service amounted to £2,115.42; Edna Prosser donated £30; Mrs A Weller donated £40; and Mrs E Lawlor donated £150. • Paul Clabburn sent in further donations of £775: £148 was donated at a screening; Sheila King and the Ealing Songbirds raised £427; and a further £200 was raised by Munson’s Coffee & Eats in Ealing.

In Memory of

Darren Clark

Vicki Clark-Standley raised £6,669.08 through fundraising events including a bungee jump, paintballing, a raffle draw and the Bupa Great North Run.

In Memory of

Richard Clark

Tracie Clark held a coffee and cake morning to mark Richard’s 25th birthday.

In Memory of

Jane Maxine Coe

Ann Armstrong sent in a donation of £200.

www.c-r-y.org.uk

37


Our Fundraisers In Memory of

In Memory of

Matthew Cragg

Jenny Conway

Dawn Johnson sent in £150 raised by colleagues at Staffordshire Police through a dress down day.

In Memory of

James Andrew Cooper

Carrie-Anne Latham took part in the Color Run 5K and raised £320.

• The McNish family sent in a donation of £200. • Simon and Jane Rogan sent in a donation of £1,000. • Mrs D Adams at Cobham RFC sent in £135 raised at a heads ‘n’ tails event. • Morag Sexton sent in £1,000 in lieu of sending Christmas cards. • Sally Saunders sent in a donation of £100.

In Memory of

Matthew Cooper

Gary Constantine, Simon Hill, Craig Hawkins, Livvy May, Ellie Shaw, Charlie Baker and Enya Sullivan took part in the Tough Mudder challenge and raised £575: “We had a great day and raised money for a great cause. CRY would always be the first choice for a charity, brought home when the family were devastated by the loss of Gary’s cousin, Matthew Cooper; a son, grandson, brother and boyfriend. We only hope that the money raised will help.”

• Chris Mays took part in a Himalayan trek and raised £5,350.

In Memory of

Robert Crozier and Donald Debono

Donald Debono took part in the Midnight Man Triathlon and raised a total of £1,426.62 in memory of his friend and colleague, Rob. Tragically, Donald died shortly after the event and several of the donations were subsequently made in his memory, including £250 from his employers, Ageas Insurance.

In Memory of

Dominic Cullen

Archie Mann took part in a skydive and raised £500.

In Memory of

Bruce Cousins

Jackie Cousins raised £132.50 through a collectibles stall.

38

In Memory of

Simon Cullum

Marilyn Cullum sent in £120 raised at a Christmas sale at St Peter’s Church.

Issue 66 | January to April 2015


Our Fundraisers “He was a wonderful man, husband, dad and granddad. He worked tirelessly in his retirement for many charities. As a family, we have decided that all donations in memory of Dave will go to CRY.”

In Memory of

Stuart Cutler

Natalie Cutler sent in total donations of £1,160: Winterfield Golf Club raised £500 in respect of the CRY Forth Road Bridge Walk; further sponsorship of the CRY Forth Road Bridge Walk amounted to £256; and CRY Halloween party in Livingston raised £404.

In Memory of

Freya Dalrymple

Amy Glover sent in £186 raised by Richard Dalrymple’s friends and colleagues from Glasgow Music Theatre during their production of Flashdance in January 2015.

• Julia Revill sent in a donation of £300 from the Denmead Striders.

In Memory of

Conor Delaney

Colette Conaty took part in the Bupa Great Birmingham Run and raised £487.66.

In Memory of In Memory of

Ben Daniels

• Helen Sims at Ravens Wood School sent in £3,119.13 raised in respect of a screening. • Mark Robinson sent in a donation of £100. • Basepoint Centres sent in a donation of £1,170. • Old Elthamians Youth RFC sent in a donation of £225. • Dianne and Peter Mendham took part in the Big Heart Bike Ride in India and raised £965. • Barclays Bank sent in a matched giving donation of £750 in respect of Peter Mendham taking part in the Big Heart Bike Ride in India.

In Memory of

David Davenport

• Elaine Davenport sent in total donations of £1,323.20 in lieu of floral tributes for her husband:

www.c-r-y.org.uk

Kevin De Silva

Richard Ramsden took part in the CRY Durham Riverside Walk and raised £155.

In Memory of

Matthew Dewhirst

• Sue and Chris Dewhirst sent in a total of £7,720 raised through the CRY for Matthew Dinner & Dance: “The end of CRY Raising Awareness Week saw us back at the Albrighton Hotel in Shrewsbury for the second CRY for Matthew Dinner & Dance; 179 people attended and we were able to raise £7,320 on the evening. “Thanks must go again to Christina Trevanion of Trevanion & Dean Auctioneers in Whitchurch, who helped us to raise £5,100 from the auction. The gifts that had been donated were amazing; jewels from Woodings & Co in Shrewsbury, a signed All Blacks rugby ball and golf days from Mile End Golf Club and Celtic Manor. Thank you to everyone who donated and also to those who bid.”

39


Our Fundraisers In Memory of

Adam Donnelly

• Brian Donnelly sent in a donation of £100. • Julie Donnelly sent in total donations of £2,045: £90 in lieu of gifts for Julie’s mother’s birthday; £25 in lieu of sending Christmas cards; and £1,930 in respect of the fifth Adam Donnnelly Memorial Ball, making a total raised from the event of £4,820.

• Sue and Chris Dewhirst sent in total donations of £1,055: a raffle on New Year’s Eve at The Boat House in Ellesmere raised £800; Richard Burbidge donated £100; and Louis Chaldron raised £155 through taking part in the Total Warrior 10K. • Stuart Barley and Paul Elias cycled from Mold Alexandra FC to Crewe Alexandra FC and sent in a further £670, making a total raised from the event of £1,020. • Walkers in memory of Matthew took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £120.50, making a total raised of £750.50.

• Julie Donnelly forwarded a donation of £2,000 raised by Eleanor Webber, Mary Roberts and Margaret Parry: “This year Adam’s grandmother Eleanor Webber and her sisters Mary Roberts and Margaret Parry have managed to double the collection from their stall at the weekly boot sale in Valley on Anglesey. They have raised £2,000 this year. Thanks to everyone for their donations and especially to Auntie Mary for manning the stall every week.”

In Memory of

Bailey Drew

• Wilds Lodge School sent in £144.15 raised at a Zumba event.

In Memory of

Aaron James Dixon

• Gary Dixon sent in total donations of £1,744. • Adam Knight took part in the Men’s Health Survival of the Fittest event and raised £1,200.

• Robert Sloan, Principal at Charles Read Academy, sent in £103.67 raised at a Christmas fundraising event in conjunction with Wilds Lodge School. • Nicholas Blyth sent in £120 won in a weight loss competition at Spencer Signs.

In Memory of

In Memory of

Pauline Dixon sent in total donations of £147.43 in lieu of floral tributes for her husband, Barrie.

Bishop’s Stortford Squash and Racketball Club sent in a donation of £312.

Craig and Michael “Barrie” Dixon

40

Tom Elton-Barratt

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Sebastian English

• John, Yvonne and Rose Bailey sent in a donation of £100. • Douglas Wright sent in £1,000 raised through a café bridge event in Guildford. • Richard Kimber sent in £250 raised by members of Lord Wandsworth College cycle club when they toured the Italian Alps: “The tour always provides us with a much-needed reminder of how lucky we are to be fit and healthy and also to remember Seb English, who passed away 10 years ago.”

• Bethany Bradbury raised a total of £263 through taking part in the Bupa Great North Run 2014. • “Team Amy” took part in the CRY Heart of London Bridges Walk 2014 and sent in additional funds, making a total raised of £202.

In Memory of

Harry Faulkner

• Nigel Hoff, Headteacher at Ley Hill School in Chesham, sent in £607.97 raised through two days of Christmas performances: “Our children last week presented two days of Christmas performances. Years Reception and One performed ‘The Nativity’, Years Two and Three performed ‘The Twelve Days of Christmas’; which was a story of two warring families and the Partridge Theatre that brought them together for a happy Christmas. The older children, ages from 8 to 12, performed a pantomime called ‘Robin and the Sherwood Hoodies’ which was a great success.” • Stefan Faulkner at GTECH UK sent in £212.16 in respect of the Berkhamsted Squash Club. • Kendall Taggart-Smith forwarded a donation of £250 sent to Berkamsted School following a screening.

• Maggie Hamilton took part in a music video and raised £1,155.25.

In Memory of

Amy Evans

• Lynne Couperthwaite and Helen Albert took part in a Thames Path challenge and raised £4,543.68, including a matched giving donation of £600 from the DHL UK Foundation and £1,481.34 from the BP Foundation. • Mark Nowosielski took part in the Bremen Marathon and raised £1,144.35. • Debbie Bivens sent in £1,000 raised through raffles held at performances of a village pantomime.

www.c-r-y.org.uk

In Memory of

Conor Feeney

Kim Harper sent in £100 including funds raised through Kim’s fiancé taking part in an ice bucket challenge.

In Memory of

Josh Fell

Rich Fell sent in £4,684.29 raised by Father Phil and friends: “Our local vicar, Father Phil, raised this from various events, and himself and a friend of his rode from Land’s End to John O’Groats last year.”

41


Our Fundraisers

In Memory of

Therese Field

“Cadets and adult staff members walk a 13 mile route through the wild mountain scenery of Wester Ross. This year the weather was mixed, but the midge count nil! Everyone really enjoyed the walk and talking to other walkers on the way. This was Robert’s sixth Great Wilderness Challenge, unfortunately he discovered a hole in his boots – the hard way! Taking part were: Plt Off R Kirk, WO ATC C Boyle, plus cadets Robert, Lee, Stephen, Latharn, Somhairle and Lachlan, who between them raised £720 in sponsor money. This amount was topped up to £900 by the event’s organising committee. The cadets’ enthusiasm for taking a part in this adventurous event has never wavered.”

Tara Field sent in total donations of £857: a charity show held at the Granville Theatre raised £372; Minster Playhouse raised £250 in respect of a fun day; and an annual carol concert raised £235.

In Memory of

Joanne Fotheringham

Alex Eaton, Treasurer of 161 (Ullapool) D/F Air Training Corps, sent in £900 raised through the cadets taking part in the Great Wilderness Challenge:

In Memory of

Matthew Gadsby

Emily Moore took part in the CRY Great Cake Bake 2014 and raised £158.71.

“This physically challenging fundraising event has taken place in the Highlands of Scotland every August since 1986. The Ullapool Air Cadets have been involved since 1998 and have so far raised a total of £23,475, specifically for our adopted charity – CRY’s ‘Joanne F Fotheringham Memorial Fund’.

In Memory of

Lauren Gallagher

Blanche Gallagher donated £145 raised from a collection box.

In Memory of

Lyndsey Galligan-McLaughlin

James Galligan sent in a donation of £100.

42

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Sarah Gamble

Glen Jones took part in a London to Paris cycle and raised £957.

In Memory of

Andrew Gard

Paul Crofts took part in the Norwich Half Marathon and raised £290.

In Memory of

Salena German

Jackie German sent in £131 collected in her brother’s shop.

In Memory of

Alexander Goodman

Rosemary and Peter Goodman sent in £750 raised through a Christmas fair and CRY Great Cake Bake event held at their home.

In Memory of

Hugh Grant

Joanne Reihill sent in £100 from Danny Wade Plant Hire and £100 from Alexander Boyd Displays in respect of a tea party, making a total raised of £200.

In Memory of

Jordan Grant

• Mark Tipping organised The Big Switch On, a Christmas lights, music and fireworks event at his home, and raised £6,401.73.

www.c-r-y.org.uk

• Paul Gornall sent in £250 from the FA Premier League. • Claire Walbank sent in a donation of £114.47. • Lisa Grant sent in £3,039 from Cadley Boys FC, £20 from H M Baldwin and £221 from Michael and Thomas Eastham, making a total raised of £3,280. “I (Michael) and my 15-year-old son Thomas walked the Ridgeway National Trail to raise money for the Jordan Grant Memorial Fund. Father and son started the journey on Sunday 20 July and finished on Friday 25 July. “Jordan Grant died in February 2012, the 17-year-old was on his way to his first Saturday job when he collapsed and died from a previously undiagnosed heart condition. Jordan’s parents, John and Lisa, gave Thomas and me their full support in this endeavour.

43


Our Fundraisers “The Ridgeway is an 87 mile long national trail, which runs from Overton Hill, near Avebury in Wiltshire, and runs through the Marlborough Downs and North Wessex Downs Area of Outstanding Natural Beauty (AONB), the Vale of the White Horse and the Chilterns AONB, all the way to Ivinghoe Beacon, above Tring in Hertfordshire. The walk takes in the great henge at Avebury, West Kennet Long Barrow, the Sanctuary and Silbury Hill, Waylands Smithy Long Barrow, a chain of Iron Age hillforts and medieval churches and watermills, together with the Prime Minister’s residence at Chequers. “All of the money went towards scanning young people for heart irregularities. This year, we plan on walking the Cotswold Way, a 102 mile national trail from Chipping Campden to Bath, raising money for CRY.” Michael Eastham.

In Memory of

Adam Green

Tom and Judy Green sent in total donations of £2,257.30: the Ashley Young Farmers summer disco raised £1,000; Liz Prince donated £100 in lieu of Christmas presents; Chrissie Latham donated £20; Mrs J Howard donated £10; and £1,127.30 was raised through the CRY Great Cake Bake and raffle, Judy’s handmade cards, Christmas donations in lieu of presents and cards and a Market Drayton Medical Practice Christmas jumper day and hamper raffle.

In Memory of

Leanne Haddrell

Mike and Mary Haddrell took part in the Men’s Health Survival of the Fittest event and raised £377.76.

In Memory of

James Haggerty

Jackie and Russell Haggerty sent in £7,752 in respect of a cycle ride from Battle to Lille: “Day 1 saw 27 novice cyclists, including James’s dad, teachers and sub-contractors of Battle Abbey School, leaving a rainy Battle in East Sussex to cycle 42 miles on the first leg of their 149 mile journey to Lille in France. The first day saw a grazed knee, a live broadcast with BBC Sussex Radio and a cyclist who went the wrong way, all in a brilliant time of four and a half hours. Surely this was going to be easy!! How wrong can you be? “After camping overnight in Folkestone, then boarding the ferry to Calais on Day 2, a cycle ride of 37 miles to the campsite in St Omer was going to be a walk in the park. What wasn’t accounted for was 28 degree heat, several punctures, a change of route that took in numerous hills and competitive riders who wanted to get there first. Eventually after a gruelling eight hours in the saddle everyone made it to camp.

In Memory of

John Griffiths

Julie Allen and her son Jake ran six miles and raised £200.

44

Issue 66 | January to April 2015


Our Fundraisers “Nobody was looking forward to Day 3 but things always look better in the morning and the last leg was a whole lot better than the day before. After cycling the 37 miles from St Omer to Lille they then had to cycle the 37 miles back to camp again for a night on the same campsite before heading home on the support vehicles. At last the 149 miles was complete. “The last night in France found some very relieved and sore novice cyclists thankful that they had achieved not only a personal goal but had raised funds for CRY in memory of James. All these cyclists had paid for their own expenses on the trip meaning that all monies raised would go towards this worthy cause. In fact on the last night in France, during a few drinks, the conversation turned to what to do next. Watch this space!!!”

In Memory of

Kyle Hancock

Paige Salt held an events night and raised £313.

In Memory of

Mark Ryan Hancock

Angela Hancock sent in total donations of £760 in lieu of floral tributes for her husband.

In Memory of

Richard Haigh

In Memory of

Thomas Hardman

Becky Haigh took part in a 205 mile cycle and raised £175.

In Memory of

Joseph Halliwell

Laura Ward raised £152.60 through a “fizz, chips and quiz night” at StartPoint coffee shop.

In Memory of

Margaret Hardman sent in total donations of £2,849.55: the annual cricket match, Tommy’s Lemons -v- Eggers II, organised by the patio supporters at Heywood Cricket Club, raised £1,444.55; one week’s free of charge accommodation in Murcia, Spain, donated by Eileen Gleave, raised £500; 12-month family membership at The Village Hotel & Leisure raised £405; and a ladies’ sponsored day at Middleton Cricket Club organised by Margaret raised £500.

Shamil Hamid

• The New English School in Kuwait organised a cake sale and raised £1,076.62. • Farah Hamid took part in the CRY Great Cake Bake 2014 and raised £800.

In Memory of

David Hamilton

David Rees at Visual Impact UK sent in £208.50 raised by holding a Christmas jumper charity day in memory of “Big Dave H”.

www.c-r-y.org.uk

In Memory of

David Hargrave

Ann and Ernie Hargrave sent in £100 in lieu of sending Christmas cards.

In Memory of

Josephine Harris

Joy Austin held regular car boot fairs during 2014 and raised £1,412.38.

45


Our Fundraisers In Memory of

Graham Harrison

Pam Woodcock sent in £301 raised at a quiz night held at the Driffield Town Cricket and Recreation Club.

In Memory of

Jennifer Hawes

Helen Real raised £555 in respect of her run across the Lake District.

In Memory of

Joe Herrington

In Memory of

Sarah Hayes and Noreen Robinson

Judith Dixon took part in the Cambridge Triathlon and raised £162.16.

Helen Hayes sent in £100 donated in memory of Noreen, Sarah’s grandma, by her friends.

In Memory of In Memory of

Jon Hayman

• Tony Phillips raised £270 through not shaving for a month. • Marion Hayman sent in total donations of £1,144 raised through the 4 Trigs Run in Sidmouth: “On Sunday 8 February the annual 4 Trigs Run was held in the Sidmouth area. It was a lovely spring day that saw 100-plus runners and a few walkers compete in this gruelling 16 mile race with a massive 3,200 feet of climb. £1,100 was raised by entry fees alone and a further £144 was raised by individual donations.”

Matthew Hesmondhalgh

• Barry and Paula Hesmondhalgh sent in £1,000 from the Great Eccleston Masonic Lodge. • Hillary Ralphs sent in £763 raised by the Garstang United Reformed Church monthly coffee mornings held during 2014. • Paula Hesmondhalgh sent in total donations of £417.17: collection tins at Garstang Timber Supplies, The Card Shop in Garstang, Cock Robin Store and The Roebuck, Bilsborrow, raised £222.06; Frank T, John P and Janet B donated £80; a ride held locally by Lancashire Vintage Motorcycle Club raised £40; and a raising awareness stand at a local gala raised £75.11. • Zoe Catterall sent in £1,008 raised during a virtual race night: “In November 2014 we held our second successful virtual race night, where the public get all the joy of

46

Issue 66 | January to April 2015


Our Fundraisers the races in the warmth of being inside in a cosy pub. The cosy pub in this instance was the Kenlis Arms; who very kindly donated their kit, room and time to us to raise awareness for CRY and money for Matt’s memorial fund. With the Kenlis being one of Matt’s popular choices for a pint of real ale, it seemed more than a fitting venue. So friends, family and new faces gathered for an evening of winnings, losses, laughs and hot pot. The biggest winner of the night had to be CRY, as we can proudly announce the evening raised £1,008 towards local screenings.

In Memory of

Laura Hillier

• Tony Hiller sent in total donations of £1,315: £300 was donated in lieu of Christmas cards and presents to friends and family; Mrs P Hemshall donated £30; Mr and Mrs J Orton donated £25; Jean Tildesley donated £50, including the sale of family soft toys; Bob and Brenda Hughes donated £20; Mrs Constance Lane donated £500; Heather Wilson donated £100; Constance Burbidge donated £250; Roy Barclay donated £20; and Robert Kingston donated £20.

“The evening did not go without the odd hitch however with a few technical difficulties (live animals may have seemed more reliable at times) but despite the winner of the first race being shown three times, the hot pot’s early arrival seemed to smooth things over. Even though our nerves scarcely made it to the end of the night, everyone had a wonderful evening, fun times were had with fab people and all in the name of a great cause. We look forward to the next, thank you all for your continued support!”

• Michael Wreford sent in £100 raised during the annual Blisworth sleigh ride.

• Krystal Catterall took part in “No Drink November” and raised £479.

Michaela Hoggarth donated £2,600 raised through walks from Keswick to Barrow and Coniston to Barrow.

In Memory of

Chris Hoggarth

In Memory of

In Memory of

Ian Hoggarth

Oliver Hewitt

• Mark Archer-Blore and friends at VCBB held a Christmas party and raised £521.86.

The staff at Walsall Benefit Centre sent in £124.12 in lieu of work Christmas cards.

• Edwin Ward at Sherwood Cycling Club sent in a donation of £362.

In Memory of

John Higgins

June Higgins sent in total donations of £204.83 in lieu of floral tributes for her husband.

In Memory of

Nicholas Holland

Gemma Holland sent in £110 raised by Spinney Motorhomes through the sale of Grace Bears.

In Memory of

Richard Hill

Keith and Charlotte Gosling sent in £550 received from friends and family in lieu of gifts for their golden wedding anniversary.

www.c-r-y.org.uk

In Memory of

Nicholas Holland and Carol Hall

Gemma Holland sent in total donations of £100 in lieu of floral tributes for Carol Hall.

47


Our Fundraisers In Memory of

Philippa Holmes

• Paul Deasy and friends took part in the Annapurna Circuit and raised £555: “In early October last year, five of us set out to walk the Annapurna Circuit in the Nepalese Himalayas, accompanied by a guide and two porters. The group was fundraising for various health and education charities including CRY.

“The next morning dawned bright and sunny and we were able, with some difficulty, to walk back to Manang. There we learned that there had been tragic loss of life among trekkers crossing the Thorung La Pass (17,769 feet) in the snow on the previous day. Although the pass had been closed to facilitate recovery of bodies, our guide thought that it might re-open in a couple of days, so we set off towards it, having equipped ourselves with crampons. We stayed in a place called Yak Kharka to await news. “After a couple of nights, it became evident that the recovery work was going to take a long time and the pass would remain closed. We abandoned the Circuit trek and set off down the valley. After five days of walking, we were able to rendezvous with a jeep driver who drove us back to Pokhara. Although we were unable to complete the Annapurna Circuit route owing to a highly unusual climatic event, the trek was the experience of a lifetime, and we are grateful to all those people who generously gave to our chosen causes.”

“After four days of trekking through country of deep valleys, landslides, wonderful waterfalls, temples, prayer wheels and magnificent mountain views, we came to the village of Manang, where we stayed for a couple of nights. One of our party unfortunately had become increasingly weak and with no improvement by the following day, she needed hospitalisation and was flown with her partner by helicopter to Kathmandu. “The three remaining group members, with guide and porters, continued the trek, first making a three-day acclimatisation trip to Tilicho Lake, at 16,139 feet the highest lake in the world! At Shree Kharka, on the morning after visiting the lake, we awoke to snow, so we stayed put. The snow continued falling heavily all day.

• Paul Taylor of the Rotary Club of Belper and Duffield donated £200 in respect of a talk given by John Holmes on his exploits on the Annapurna Circuit in October in memory of his daughter.

In Memory of

Jonathan Hooper

• Diane Hooper sent in a Christmas donation of £100 from family and friends. • Walkers in memory of Jonathan took part in the CRY Heart of London Bridges Walk 2014 and sent in additional funds, making a total raised of £235.

48

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Stewart Howard

Jane Howard sent in a donation of £396 collected at Tesco.

In Memory of

Fay Howell

• Stacey Overton took part in the Color Run 5K Birmingham and raised £117. • Colin Harding raised £1,418 from completing a cross country cycle.

In Memory of

Alex Hubbard

• Robert Hubbard sent in total donations of £190 in lieu of floral tributes for his son. • Michael Markham sent in a donation of £100. • Matthew York sent in a donation of £100.

In Memory of

Howard Jennings

Keeley Ashley sent in £1,800 raised at the 2014 Howard Jennings golf event: “The 19th annual Howard Jennings Memorial Golf Tournament took place on Saturday 13th September 2014 at Bulbury Woods Golf Club in Dorset and raised an incredible £1,800. There were 19 players this year and the day was filled with sunshine and lots of fun! The players included some who have supported the event since the first tournament in 1997. “The trophy was won for the second year running by Mike Lancaster. He was obviously on form that day as he took home the “Longest Drive” medal too! His team accompanied him in his good fortune with Julian Dye 2nd and Marcus McDonnell 3rd.”

• Michael Worthington sent in a donation of £200. • Carolyn Beard sent in total donations of £115 from herself, Mary and Dennis Beard and Derek and Ann Eagles.

In Memory of

Reece Jeffrey

Leah Stafford raised £232 through taking part in a coast to coast cycle.

In Memory of In Memory of

John Jenkins

Kate Pearson raised £571.19 through taking part in “Nuclear Fallout”.

www.c-r-y.org.uk

James and Leon Johnsen

Sue Rowley sent in £1,300 raised at a Valentine dance:

49


Our Fundraisers “I sent in a donation of £1,300 which was raised by my dance group ‘Dancing for Charity’. We had a Valentine dance on February 14 with live music and lots of modern jive dancing. We donate this in memory of James and Leon Johnsen who are the sons of one of my dancers, Margaret Wilson. We donated to CRY last year and will continue this on an annual basis. Our group is based at Forest Hall, Newcastle upon Tyne.”

In Memory of

Joe Kellogg

Carrie Robinson took part in the Dublin Marathon and raised £250.

In Memory of

Jenny Kerwood

• Fiona Clayton sent in a donation of £100. • Martin Kerwood sent in £254 raised through Billericay Catholic Pre School’s quiz night. • Elizabeth Kerwood held a coffee morning and raised £310.

In Memory of

Caroline Johnstone

David McGurk, Ray Ball, Pete Binks, Paul Clark, Jim Shipman and Paul Winspear took part in a Land’s End to John O’Groats cycle and raised £1,145.

In Memory of

James King

• James King Snr sent in £1,000 raised through a race and band night held by Cleland Celtic Supporters Club. • James King Snr walked the Rob Roy Way and raised £1,005.56.

In Memory of

Ethan Jones

Keith Weston sent in total donations of £380 raised through public speaking: Monks Orchard Townswomen’s Guild, £40; Claygate Womens Institute, £80; Great Bookham Belles Women’s Institute, £140; Probus Club of Teddington and Hampton, £50; Weybridge Fuchsia and Pelargonium Society, £30; and the Union of Catholic Mothers, £40.

In Memory of

Claire Keen and Paul Byrne

Emma and Danielle Keen raised a total of £358 when running the Bupa London 10,000 2014.

50

In Memory of

Judith Krish

Jonathan Krish sent in a donation of £250.

In Memory of

Rishi Kukar

Parvin Kukar sent in a donation of £250.

Issue 66 | January to April 2015


Our Fundraisers In Memory of

In Memory of

John Thomas “Jack” Laidler

Paul Leach

David Laidler sent in total donations of £163.15 in lieu of floral tributes for his father.

In Memory of

Philip Lamin

Dr M Kingham at Dartford Grammar School sent in £2,946.68 collected by the students.

• John Tolchard took part in a skydive and raised £195. • Emma Ferrier took part in a skydive and raised £117.

In Memory of

Kris Ledgard

In Memory of

James Lancaster

Adrian Harrop took part in a skydive and raised £395.

In Memory of

• Simon Hollinshead took part in the Royal Parks Foundation Half Marathon and raised £100. • Michael Jones took part in the South Downs Trek and raised £520. • Laura Sutherland raised £385 through taking part in the Milton Keynes Winter Half Marathon.

Robert Lancaster

• McColl’s Retail Group donated £120,000 raised through their 2014 “Treat CRY this Halloween” campaign. “It really is wonderful that we have again raised such a large amount of money for this campaign and the ongoing mission to reduce the incidence of young sudden cardiac death. Seeing such a large amount raised through the hard work of colleagues – many of whom organised some fantastic in-store events – and the generosity of McColl’s customers, makes me immensely proud.” James Lancaster, Robert’s dad and McColl’s Chief Executive.

In Memory of

Peter Lent

Christine Lent sent in donations following her retirement of £300 in memory of her son.

In Memory of

Chris Lester

Isabelle Janssen-Lester took part in the Bristol Half Marathon and raised £370.

• Christine Ellera took part in the Reading Half Marathon and raised £715.

In Memory of

Christine Anne Large

Karen Collins sent in total donations of £425 in lieu of floral tributes for her mum.

www.c-r-y.org.uk

In Memory of

Kevin Lloyd

Marie Lloyd took part in the CRY Great Cake Bake 2014 and raised £250.

51


Our Fundraisers In Memory of

Tom Lovatt

Alyson McCormick held a raffle where she works at Barclays Technology Centre, Cheshire, and raised £725.15.

In Memory of

James Love-Smith and Malcolm Smith

Valerie Moffat sent in total donations of £312 in lieu of floral tributes for James’s dad, Malcolm.

In Memory of

Aaron Lundy

“After the Virgin London Marathon with my son Rocco”

Garry McGrotty successfully completed running 10 marathons in 10 months, including Barcelona, London, Belfast, Amsterdam and New York, and held an “A Question of Sport” night featuring several sports personalities, raising £11,775:

“After the Causeway Coast Marathon, it was on my birthday and my family all made it to the finish line to greet me home”

“My marathon shirt with all my medals”

52

“One of my fundraisers was an ‘A Question of Sport’ night where I had the support of snooker star Mark Allen, Ireland and British Lions rugby player Stephen Ferris and former Manchester United winger Keith Gillespie (all pictured)”

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Andrew Macleod

• Lewis and Harris Youth Clubs Association raised £10,000 in respect of the Hebridean Cycle Challenge 2014 event in June: “The Hebridean Cycle Challenge 2014 has been a great success with 112 competitors taking part in road cycling, MTB, running and walking to raise funds for the Andrew Macleod Memorial Fund. “The Hebridean Cycle Challenge is a competitive road and mountain bike race with the option of running the off-road section instead of cycling it. The challenge begins with a 33.6 mile road cycle from the Creed Enterprise Park outside Stornoway to Miavaig in North Harris. The race then continues with a 10.5 mile off road section through the mountains from Miavaig to Bowglas and ends with a 0.9 mile road section to the finish at the Scaladale Centre, Ardvourlie, North Harris. Competitors can enter the Hebridean Cycle Challenge as soloists or as teams of two with the changeover point in the team event being at the start of the off-road section at Miavaig.

“The cyclists were set off on their gruelling challenges by Convener Norman A Macdonald who also later accompanied the charity cyclists down to Scaladale. It was great to see people putting 110% into their challenge and the community spirit that was amongst the competitors and supporters in encouraging each other right to the finishing line. A huge thank you from the Hebridean Cycle Challenge team to all the participants and to all the volunteers who helped out in both the run up to the event and on the day.

www.c-r-y.org.uk

“The winners of the day were as follows: Road Bike/ MTB Solo – Charlie Greenwood; Road Bike/Run Solo – Carina Convery; Solo cyclist winner Charlie Greenwood Road Bike/MTB with Dolina Macleod Team – Gary Maclean and Connor Maclean; Road Bike/Run Team – Donald Thomson and Anesti Davenhill.” • Laxdale Primary School, Stornoway, raised £3,880 through a sponsored walk in October: “The whole school sponsored walk in the Castle Grounds for the Andrew Macleod Memorial Fund, CRY, took place on Thursday 9 October 2014. Pupils and staff very much enjoyed the walk for this worthy cause.”

• Murdo Macleod sent in total donations of £270: Mr and Mrs Moffat donated £25; Kathleen Macleod donated £40; and Mairi Maclennan, Catriona and Sophie raised £205 at their recent community Halloween party. • Rachel Campbell and Reverend Donnie Macsween organised the “CRY Out for a Ceilidh” event and raised £4,580. • Donald McLeman sent in a donation of £100. • Derek Mackay of the Stornoway Masonic Lodge sent in a donation of £100.

53


Our Fundraisers In Memory of

Lyra Maharaj

Holly Campbell took part in the Alpes-Maritimes Half Marathon and raised £1,890.

In Memory of

Karl Mansfield and Ben Creswell

The Ackers family; Lynn and Keith Parry, Natalie Manderson, and Brian and Joan Moss, sent in a donation of £115 in lieu of floral tributes for Karl’s great uncle, Ben Creswell.

In Memory of

Marie Manhire-Clark

Adam Reynolds at Springfit Gymnastics and Trampoline Club sent in £575 raised during a fundraising week.

In Memory of

Rosemary Manktelow

Kevin Manktelow sent in total donations of £290 in lieu of floral tributes for his mother.

In Memory of

Peter Manlove

Lorraine Manlove took part in the Chelmsford Marathon and raised £1,022.42.

In Memory of

James Markham

Emma Butler took part in the Insane Terrain event and raised £358: “I completed the race in 50 minutes. I am really proud to let you know I have raised £358 for CRY and although this was a really hard race for me to do as I wasn’t completely back to full health I am so glad I decided to go ahead and do my best as I know this money will mean so much to the people who use this charity. I am so glad that I could raise money for CRY and I know James will be proud of the money I raised in his memory.”

In Memory of

Darren Mannering

Amanda Jacobs and Julie Platt took part in the CRY Heart of London Bridges Walk 2014 and raised a total of £632.

In Memory of

Paul Marrs

Anna Dasey sent in £105 in respect of her work’s dress down day.

In Memory of

Karl Mansfield

Susan Mansfield sent in £630 raised by Michelle Murray in respect of a Manchester to Blackpool bike ride and £50 donated by a colleague in lieu of sending Christmas cards, making a total raised of £680.

54

In Memory of

Ollie Marsden

Alex Boyd took part in the Bupa Great Birmingham Run and raised £733.16.

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Lewis Marsh

In Memory of

Amanda McCarthy

• Sammy Chalk took part in the Thames Meander Marathon and raised £620.07. • Graeme Stevens took part in a London to Brighton off-road bike ride and raised £325.

Pete McCarthy took part in a London duathlon and raised £2,146.25.

In Memory of

Charlene McCoy

In Memory of

John Marshall

Cate Doyle at Bunzl Rafferty Hospitality Products in Newry sent in £450 raised by the Honesty Tuck Shoppers in memory of their colleague.

• Maureen Marshall sent in £250 raised through collection boxes at Edge Hill School and £106.84 at Marie Court High School, making a total raised of £356.84.

In Memory of

Oisin McGuinness

Siobhan McCaffery sent in £275 raised by a quiz held at the Newry Shamrocks Hurling Club.

• Maureen Marshall sent in a further £127 from Marie Court High School.

In Memory of

In Memory of

Dean Mason

Stephanie McLean

Gwenfair Mason sent in £3,000 raised by the Whitland Fire Service’s firework display.

In Memory of

Pete McAvoy

Staff and pupils at Craigie High School in Dundee sent in £446.40.

Julie Carter at the Inner Wheel Club of Harton sent in £100 collected in lieu of sending Christmas cards.

In Memory of

Simon McNamara

Neil Giblin, Nottingham Moderns RFC, sent in £500 in respect of a real ale fest.

In Memory of In Memory of

John McCall

Janette Pollard sent in a donation of £100.

www.c-r-y.org.uk

Josh Merrick

• Eileen Prendergast sent in total donations of £200.77: Miller Newsagents, Didsbury, raised £128.98; The Royal Oak, Didsbury, raised £19.05;

55


Our Fundraisers Fletcher Moss, Didsbury, raised £17.74; and Sharon and Raj donated £35. • James Donegan took part in the Cotswold 226 Challenge and raised £1,461.28.

In Memory of

Josh Merrick and Roy Wesley

Eileen Prendergast and Karen Merrick sent in total donations of £527.97 in lieu of floral tributes for Josh’s granddad, Roy.

In Memory of

Jonathan Morgan

• Janet Hodgson at Janet Dickinson School of Dance in Stockton-on-Tees sent in £100 raised at fundraising activities throughout the year. • Dr Ian Russell at the Lodge of Freedom raised £400 by hosting a Sunday lunch.

In Memory of

Levon Morland

In Memory of

Adam Middleton

Amanda Austin-Jones sent in £419.50 raised through a charity event at Warwickshire College.

• Jeff Morland sent in total donations of £164.86: Elsie Morley donated £28; the local post office customers donated £16.86; and Mr Park raised £120 after completing a “Dry January”. • The Angel Inn organised a sponsored walk and raised £360:

In Memory of

John Millar

• Stacey Hunter took part in the Tough Mudder challenge and raised £1,105.01. • Kirsty MacMillan sent in a donation of £130.

In Memory of

Shelly Mills

Leoni Brooks and Mandy Clew held a Christmas fayre and raised £1,400.

“The streets of Durham City were awash with flesh-eating zombies who couldn’t wait for Halloween to come round so decided to go six months early. What started, as most good ideas do, as a chat in The Angel pub turned into a ‘half Halloween’ day out dressed as zombies. Not only did we enjoy it but the second and third glances we got from people made us smile even more. After all, it’s not very often you see a gang of blood-spattered undead wandering round this great historic city! “The marathon day saw dozens of people come and go – starting off at noon and finishing later that evening. Yes, we all had a good time but more satisfying was that we raised money for our charity, CRY.” Jo Ferry, Manager.

In Memory of

Florence Moore

Stewart Moore, Stuart Sword, Darren Martin, Neal Lacy, Darren Powell and Beatrice Coldwell took part in the Tough Mudder challenge and raised £1,365.

56

Issue 66 | January to April 2015


Our Fundraisers In Memory of

In Memory of

• Judith Miller sent in £18,300 from Owen’s Ride 2014 and £260 from Waitrose’s Community Matters scheme, making a total raised of £18,560.

Suzanne Morton sent in total donations of £500 in lieu of floral tributes for Luke’s step-granddad, John “Pops” Bradshaw.

Owen Morris

Luke Morton and John Stuart Bradshaw

• Roger and Mel Morris sent in total donations of £900 from Owen’s Ride 2014. • Alun and Caitlin took part in Owen’s Ride 2014 and raised £1,105. • Philippa Lovering, Chris O’Shea, Nicholas Palmer, Nicholas Ling, Lorraine Williams and Andrew Whittaker took part in a Cardiff 10K and raised £250. • Gerard Ryan sent in £4,745 in respect of Llanishen RFC’s cycle from John O’Groats to Land’s End. • John Andrews sent in £2,440 in respect of Llanishen RFC’s cycle from John O’Groats to Land’s End. • Debbie Collings-Wells took part in the Bupa Great South Run and raised £1,145.

In Memory of

Owen Morris and Maxwell Biles

Ben Spicer took part in a cycle from Llanishen RFC to North Dorset RFC and raised £1,329.16.

In Memory of

Luke Morton

Suzanne Morton sent in £1,422 raised through a charity cyclathon held at Sutton-in-Ashfield Asda: “A team of around 12 people cycled 606 miles (equivalent of Land’s End to John O’Groats) in just less than 12 hours.”

www.c-r-y.org.uk

In Memory of

David Moss

• Joe Shaw sent in £998.81 raised at a football match. • Dawn Moss sent in total donations of £2,879.16: Mrs L Heaps (Sainsbury’s) donated £272; W G Tankers donated £500; Mrs S Jukes donated £100; Mr T Lythgoe donated £83.66; Mrs T Lythgoe donated £90; Mr J Garside donated £115; Mr M Garside donated £140; screening donations amounted to £246.84; the Glebe Farm Spooktacular raised £831.66; and £500 was raised in respect of the Three Peaks Challenge. • Dawn Moss sent in £600 donated from her local town councillors from their end-of-year budget. • Simon Woodward, Sarah and Mark took part in the Three Peaks Challenge and raised £877.35. • Shawn and Caroline Beardmore took part in the Three Peaks Challenge and raised £493. • Billy Turner took part in the Three Peaks Challenge and raised £120. • Natalie Ward took part in the Three Peaks Challenge and raised £200. • Sherry Daniels took part in the Three Peaks Challenge and raised £270. • Becky Woodward Johnston took part in the Three Peaks Challenge and raised £198. • Joe Shaw sent in £150 raised at a football match held on November 28.

57


Our Fundraisers In Memory of

In Memory of

David Moss and Mr D Proctor

Kerry-Anne Offord

Dawn Moss sent in total donations of £225 in lieu of floral tributes for Mr D Proctor.

Emma and Leon Ross took part in a coast to coast challenge and raised £1,260.

In Memory of

Wendy Anne Naisbett

Mr B Naisbett sent in total donations of £255.10 in lieu of floral tributes for his wife.

In Memory of

Martin John Palmer and John Ibbotson

Mr E Palmer sent in donations of £200, collected from club members at the Redmond Cycle Club.

In Memory of

James Nicholas

Caitlin, Kevin and Lesley Nicholas sent in a total of £3,231.40 raised by the Carmel College bike ride and £2,020 raised through a charity night, making a total raised of £5,251.40.

In Memory of

Simon Pangborn

• Dan Tardif took part in the Bupa Great South Run and raised £205. • Tom Tardif took part in the Bupa Great South Run and raised £290.

In Memory of

Barry Nivett

Jenny Boag and Wendy Harrington raised a total of £615 through taking part in the Sure Run to the Beat 10K 2014.

In Memory of

James Paterson

Jennifer Locke sent in £100 in lieu of a gift for Amanda and Jay’s wedding.

In Memory of

Jason Nixon

Richard Clifton sent in £100 donated in the name of Mrs Victoria Dixon.

In Memory of

Richard Northedge

Pat and Derek Northedge sent in a donation of £100 in memory of their son.

58

In Memory of

Kevin Paterson

• Kathryn Paterson raised £300 at a recent wine tasting event: “I recently hosted a wine tasting event in memory of my husband Kevin Paterson. As part of the event I asked all the attendees if they would like to make a donation to CRY. I am pleased to say that we raised £300!”

Issue 66 | January to April 2015


Our Fundraisers “The first half featured the tenor Robert Murray who sang a selection of English songs including works by Purcell, Butterworth, Gurney, Britten and Andrew Wright’s ‘The Bliss of Solitude’. Robert, who was accompanied by pianist Joanna Smith, is well known in the classical world, performing at the Proms and with the English National Opera as well as in numerous concert halls in Europe. He was a school friend of former MHR parishioner James Patterson in whose memory the concert was held, James having died suddenly at the age of 28 in September 2005.

• Rachel Dobbs took part in the Birmingham Half Marathon and raised £213. • Karen Chandler took part in the Birmingham Half Marathon and raised £159.85.

In Memory of

James Patrick Patterson

• The Campion Old Boys Rugby Club held a raffle and raised £315. • Father J McGrath at The Most Holy Redeemer (MHR) Catholic church in Billericay donated £1,515 raised at a choral concert.

“In the second half the combined chorus of 60, incorporating both MHR choirs plus church and choral society singers from all over Essex, sang Andrew Wright’s beautiful “A Requiem of Peace”, directed by Kathy Underhill and accompanied by the composer on the organ. The principal soloist was Pippa Moreton. All photos by Paul Abbott.”

“A packed audience recently witnessed some of the most superlative singing in our church during this concert in aid of the charity. At the start of the evening MHR Director of Music, Kathy Underhill, introduced CRY supporter Phil Eastty who described the important work of this organisation.

Kathy Underhill, Robert Murray, Joanna Smith and Andrew Wright

In Memory of

Jenni and David Paul

Phil Eastty, Kathy Underhill, Peter Patterson, Robert Murray and Gill Patterson

www.c-r-y.org.uk

Cheryl Baptie took part in a skydive and raised £625.

59


Our Fundraisers In Memory of

In Memory of

Andrew Chapman donated £100 raised at a memorial golf day.

Meera Shah nominated CRY for a Smith & Williamson donation of £200 in memory of her friend.

Ben Peacock

In Memory of

Adam Pearmine

• Craig Selby took part in the Tough Mudder challenge and raised £228.16. • David Box, Nik, Terry, Paul, James and Mike took part in the Tough Mudder challenge and raised £330. • Nikolas Pearmine took part in the Tunbridge Wells Half Marathon and raised £895.19.

In Memory of

Alexander Peck

Lotte Uttley took part in the Bupa Great Birmingham Run and raised £159.85.

Hannah Pickering

In Memory of

Sara Pilkington

• Penny Gillman sent in £250 raised by the Feering Singers through various events during 2014. • The Cubbinton Players, Leamington Spa, sent in a donation of £244.89. • Kalini Kent sent in £600 from a charity concert held by the Cheshire Youth Group for new and emerging talent on stage and a £100 donation from the Macclesfield and District Lions Club, making a total raised of £700.

In Memory of

Gary Pope

In Memory of

Duncan Phillips

• The Louth Spiritual Community Centre sent in £225 raised by its members. • Bethan Phillips took part in a run, walk and fun day and raised £2,584.32.

David and Leisa Simmons at The Thatched Inn, Hassocks, donated £150 raised through a collection pot.

In Memory of

Alan Porter

In Memory of

Helen Porter sent in £100 raised through Christmas donations and a collection box.

• Philipp Lukas sent in a donation of £500.

In Memory of

James Phillips

• Catriona Pickard took part in the Bath Half Marathon and raised £370. • Claire Rollason took part in “Shut Up and Tash Off” and raised £175.

60

Craig Daniel Powell

“Team Pringle” took part in the CRY Heart of London Bridges Walk 2014 and sent in additional funds, making a total raised of £265.50.

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Shannon Powell

Melanie Choudhury took part in the London Santa Run and raised £419.53.

In Memory of

Robert Poysor

Diane Tolley sent in £200 raised through two car boot sales and in lieu of sending Christmas cards.

In Memory of

Ron Presley

Jake Presley, Freddie Fitz-Gibbon, Hugo Gateley, Fred Evans, Louis Timpany and Andy Wilson took part in a London to Paris cycle and raised £3,565.

In Memory of

Olivia Raby

Rebecca Anderson sent in £1,700 raised at Olivia’s 21st birthday fundraiser: “Olivia’s 21st birthday went extremely well, a lot better than we expected. The room was packed and we got a lot more donations than we thought. We did a silent auction with three main prizes: a Manchester United shirt, Salford rugby shirt and Ricky Hatton boxing gloves. We also had around 30 raffle prizes with donations ranging from hair and beauty products, golf, restaurant vouchers, alcohol and days out. Overall we raised £1,700, which we are so proud of and happy to raise this amount for CRY as it is so close to all of our hearts, I’m sure Olivia would be proud. Thanks so much for everything you helped with, we are all so pleased with how it went and know it will go to amazing use!” Rebecca, Mollie and friends.

www.c-r-y.org.uk

In Memory of

Craig Rawlinson

Danny Attias raised £600 through taking part in a birthday morning swim.

In Memory of

Nick Read

• Jenny Applewhite took part in the Dublin Marathon and raised £1,006.68. • Paul Dando took part in the Bristol Half Marathon and raised £115.

61


Our Fundraisers In Memory of

Timothy and Kenneth Read

Mr J Bear sent in total donations of £271 in lieu of floral tributes for Timothy’s father, Kenneth.

In Memory of

Claire Reed

• Graham and Anne Hunter sent in £6,532.24 raised through a ball held at Claire’s former workplace, The Ageas Bowl, Hampshire: “Hampshire wicketkeeper-batsman Michael Bates auctioned a signed Royals shirt at an event at The Ageas Bowl. Bates, along with nearly 200 other guests, attended the Black Tie Ball at the venue on Saturday 31 August 2013. The event was organised by Andy Reed (Claire’s husband) and Graham Hunter, whose daughter sadly passed away on 9 March 2013, aged 22, of sudden adult death syndrome (SADS). Claire had only been married to husband Andy for five months.

“Bates said: ‘Despite having left the company a few years ago, Claire was a very popular member of staff at the Ageas Bowl and one who is still remembered and missed by many around the ground. When I heard Claire’s story and was asked to help support this event, I was only too happy to do so. I hope that in helping to raise awareness of SADS many more people will donate to CRY so that they can increase screening for the disease and save more lives.’”

62

• Helen Cleare took part in Walk the Test Way and raised £250. • Team “B Natural” took part in a yacht race around the Isle of Wight and raised £5,385.11. “B Natural entered the annual Round the Isle of Wight Yacht Race to raise money and awareness for Cardiac Risk in the Young, with all funds raised going towards their screening programme. We were racing in memory of Claire Reed who died suddenly in 2013 from an undiagnosed heart condition.

“1,584 boats entered the race on 21 June 2014. It was a beautiful morning with light winds. Unfortunately the winds remained light and faded completely later in the day. Because of these conditions only 718 yachts finished the course; 788 abandoned the race, some as early as lunchtime. We were one of a few who struggled on until the 10pm deadline but did not reach the finishing line. We were 7 nautical miles short of the 50 mile course and motored into Cowes at midnight.

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Malcolm Reed

• Lisa Hunter raised £525 through taking part in the Windsor Half Marathon 2014. • Will Berney raised £2,422.56 through taking part in the Prudential RideLondon-Surrey 100 2014. “Nevertheless, B Natural and its crew of eight had a wonderful event, wearing our special, bright pink T-shirts. We attended two press conferences to publicise the charity, including the official race press launch, and met a number of celebrities. We had wonderful support from Claire’s parents and brother Peter. We were sponsored by over 100 people and received hundreds of collection box donations. A big thank you to Mike Sisley, our skipper, to Ros, who was tireless in driving the project, and our crew, Andy, Don, Lynda, Matt, Pete and Tess, who gave of their time.

In Memory of

Keith Rees

Martin Rees took part in the London to Brighton cycle and raised £145.

In Memory of

Alex Reid

• Louise Cline took part in Chillswim Coniston and raised £435.50. • Sarah Allott took part in the Yorkshire Marathon and raised £253.48.

In Memory of “A very big thank you to everybody who encouraged us and to those who donated to our website or charity boxes.” Pete, Ros and Tess Henshaw.

Thomas Reid

CRY Patron John Barrowman MBE sent in a further £503.88 in respect of the opening night of his Aladdin pantomime, making a total raised of £1,531.

In Memory of

Debbie Rendle

• Andy Wingham sent in £200 raised at Mousehole Carnival 2014. • Sylvia Pezzack sent in £3,000 raised by the Newlyn Gaiety Girls in respect of a pantomime.

www.c-r-y.org.uk

63


Our Fundraisers In Memory of

Scott Rennie

Jo Wootton from the boat club at The King’s School, Worcester, sent in £1,158.91 raised through the 24-hour rowing challenge.

In Memory of

Kevin Sayer and Matthew Green

Mrs S Forder sent a cheque for £304 raised at the 10th annual Kev Sayer XI vs Matt Green XI charity football match held on 24 August 2014.

In Memory of

Evan Robertson

Malcolm Burton at Kier London sent in a donation of £400.

In Memory of

Liam Ross

Tony and Alex White took part in the Liverpool Santa Dash and raised £130.

In Memory of

Stuart Ross

• David Ross sent in £955 raised at a golf day held at Carrickfergus Golf Club.

In Memory of

Neil “Kymatik” Schuyleman

“Team Neil Schuyleman”; Helen Davies, Peter Davies, Anna Georgakakos, Minas Georgakakos, Ann Edwards and Margaret Kiley, took part in the CRY Heart of London Bridges Walk 2014 and raised a total of £946.

• Diane Lavery at Meadowbridge Surgery in Carrickfergus sent in £300 raised through the surgery’s charity book table in memory of the son of their colleague and friend, Janet.

In Memory of

Mike Scott

• Michael Montgomery and Colin McCluskey took part in Ironman 2014 in Bolton and the Wasdale Half Marathon and raised £800.

Lady Lumley’s School in Pickering, North Yorkshire, held a non-uniform day and raised £413.

In Memory of

Chloe Sary-Bool

Annabel Bool, Lady Captain at St George’s Hill Golf Club, sent in £547 in respect of the club’s Christmas lunch and £2,335 raised at the St George’s Hill Golf Club in respect of a bridge day, making a total raised of £2,882.

64

In Memory of

Wendy Scourfield

Katy Farmer took part in the Tough Mudder challenge and raised £770.23.

Issue 66 | January to April 2015


Our Fundraisers In Memory of

In Memory of

Sarah Simpson

Demi Louise Sharif

Colin Simpson sent in £120 in respect of various donations received over the Christmas period.

Vicky Porritt sent in £704.50 raised at an Elvis tribute night.

In Memory of

Paul Sheridan

• Sara Sheridan took part in the Royal Parks Foundation Half Marathon in memory of her brother as part of the MTM Team and raised £1,000. • Matthew Cain took part in the Royal Parks Foundation Half Marathon as part of the MTM Team and raised £260.

In Memory of

Jack Sheriff

Matilda Henry raised a total of £490 when taking part in the Sure Run to the Beat 10K 2014.

In Memory of

Sukhwinder Singh-Digpal

Gurtek Singh sent in £103.24 in respect of the Bupa Great South Run.

In Memory of

Aashi Sinha

• Anne Opute took part in a double marathon challenge and raised £100. • Pranav Bhanot took part in the Vitality British 10K London Run and raised £417.

In Memory of

Aubrey Smith

• Ashley Le Vin took part in the Bank of Scotland Great Scottish Run and raised £240.

In Memory of

Gregg Shoults

Kathy Gambell sent in total donations of £848: The Church in Hope Street, Sheerness, raised £16 at a coffee morning and £237 through holding a lunch on behalf of Kathy’s 80th birthday; friends and county bowlers raised £380.35; collection boxes raised £144.65; and family and friends raised £70 through taking part in a charity run around Silverstone race track.

In Memory of

Madeline Siddall

Helen Duffy at Sherwood Junior School in Warsop sent in total donations of £230.10 in lieu of staff sending Christmas cards.

www.c-r-y.org.uk

• David Sherman took part in the Bank of Scotland Great Scottish Run and raised £1,076.23.

In Memory of

Lee Smith

• Lucy Smith at Vitality Beauty Salon sent in a donation of £185. • Sally Smith sent in total donations of £3,348.66: Sally and members of the Little Fishes parent and toddler group raised £600 through taking part in a sponsored toddle in June 2014; Jodie Reilly raised £403.66 from a non-uniform day at her school, Barnsley Academy, in July 2014; and Sally and members of Fitness Zoo Gym in Sheffield raised £2,345 through taking part in the Tough Mudder in Skipton in August 2014.

65


Our Fundraisers In Memory of

In Memory of

Shirley Hart and customers of the Pewter Pot pub, Kimberworth, raised £1,031.50 in memory of Lee Smith and her son, Daniel; Shirley organised a charity football match and collected donations at the pub afterwards.

• Vikki Stanley sent in £10,230 raised in respect of the Stanley Cup football tournament and family fun day held in Poole in memory of her husband:

Lee Smith and Daniel Hart

Shane Stanley

In Memory of

Matthew Smith

Mr SC Whitney took part in an ice bucket challenge on New Year’s Eve 2014 and raised £120.

In Memory of

Robert Daniel Smith

• Linda Smith sent in total donations of £1,506: a coffee morning held by family and friends raised £556; a Langley Park Cooperative collection pot raised £126; a cake sale raised £380; and £444 was collected by family and friends. • Margaret McNeal at Lloyds Bank in Sacriston sent in £242 raised by customers, with a matched giving donation of £242 from Lloyds Bank, making a total raised of £484.

“We did a football tournament with 32 teams of six-a-side, all Shane’s friends and family, plus it was also a fun day. We are doing it again for 2015 – fingers crossed it goes as well as last year’s.”

In Memory of

Rupert Spurling

Emily Walters at B1 Creative in Kingston upon Thames sent in £1,000 in lieu of Christmas gifts.

In Memory of

David Staff

Rebecca Simms sent in £621 in respect of the David Staff Memorial Race.

66

Issue 66 | January to April 2015


Our Fundraisers • Ben Hunt raised £125 through taking part in the Bournemouth Marathon

In Memory of

Hannah Stanton

Joe Williams took part in the Bupa Great South Run and raised £265.

2015 with the ultimate winner being Peter Mitchell. This year was another great success with local firms sponsoring the event and memorabilia being donated from various sports clubs following Scott Cruickshank and Michael Bain’s charity bike run to all Scottish football grounds. With the funds raised to date we were able to hold a heart screening day at MACBI community centre, Mintlaw, with over 100 people attending the screening event. The committee would like to thank everyone for supporting the event to date.” Wayne Stewart.

In Memory of

Ben Steele

Hilary Steele sent in £500 received from the CBRE Charitable Trust.

In Memory of

Blaine Steinberg

Jessica Baker took part in the Tough Mudder challenge and raised £630.05.

In Memory of

Gary Stewart

• Olive Stewart sent in a total of £1,435.45: Superior Wild Well Energy Services donated £350; Ellon Darts League donated £102; Kevin Michie and John Robertson took part in a sponsored diet and raised £200; Tanya Michie’s jewellery party raised £123.45; The Howe Bar, New Deer, held a Boxing Day darts and pool event and raised £600; and Garret Bar, Mintlaw, donated £60. • Gary’s annual darts and auction, held in Fishie Hall, raised £5,000. “A committee of family and friends have organised a darts and auction event every year in memory of Gary Stewart. This year was the third event following the success of previous events. A total of 90 local darters took part in this year’s event on Saturday 4 April

www.c-r-y.org.uk

In Memory of

David Stier

Richie Lesbirel took part in the Men’s Health Survival of the Fittest event and raised £100.

In Memory of

Benjamin Stokes

Zoe Stokes sent in a donation of £1,135.

In Memory of

David Styles

Michael Styles sent in a donation of £200.

67


Our Fundraisers In Memory of

Patrick Swinson

• Emily Phillips and Rob Sims, House Captains at Wheeler House, The King’s School, Gloucester, sent in £2,076.83 which is the culmination of a year’s fundraising at the school in memory of their classmate. • Joanna Claire Joyce raised a total of £925 through taking part in the Bupa Great North Run 2014.

Taylor, who sadly passed away in November 2013. The match took place at The Villa Fisheries in Carnforth on 22 November 2014 with all the entrance fee monies donated to CRY. In addition, the young anglers were fed and watered by a breakfast stall, who also donated all of its takings on the day. The match ran for six hours and all the anglers were keen to win the Peter Taylor Memorial Trophy donated to the club by his parents. After the weigh in took place, Jamie Johnson was awarded the trophy with a winning match weight of 12lb 10oz. Prizes were awarded to everyone that entered and a total of £266 was raised for the charity. The club are hoping to run the event on a yearly basis.” Sarah Jones, Chairwoman.

In Memory of

Matthew Swordy

Barbara Swordy sent in £2,030 raised by family and friends.

In Memory of

Paul Sykes

Rob Hazell took part in the London to Brighton cycle and raised £100.

In Memory of

Hannah Taylor and Darren Blanchard

Jim Somerville at Vindicatrix Association, Suffolk, sent in a donation of £125.

• Clare Kay-Shuttleworth sent in a donation of £100.

In Memory of

Suzanne Taylor

• Beryl Ewing made Christmas cards and raised £160. • Beryl Ewing’s friends and colleagues at Royal Mail Chester held a Christmas jumper day with a raffle organised by Claire Speer and her friend Amanda and raised £1,851.

In Memory of

Peter Taylor

• Morecambe and District Junior Anglers held a fishing competition and raised £266. “Morecambe and District Junior Anglers held an open fishing match in memory of a former member, Peter

68

Issue 66 | January to April 2015


Our Fundraisers In Memory of

In Memory of

Sarah Tenwick

Oliver Thompson

• Thomas Lea and members of the Temple of Uxbridge Lodge donated £1,750. • Dean Sayles took part in a skydive and raised £190.

In Memory of

Gareth Llywelyn Thomas

Anne Thomas sent in £180 from Tesco in Talbot raised during CRY’s Raising Awareness Week and friends and family donated £55, making a total raised of £235.

In Memory of

Jack Thomas

• June Thomas sent in £100 from Miss C Hinder of Greenhill Stores and Daisy Wilkins raised £50 from taking part in a skydive, making a total raised of £150. • Ryan Morley sent in a donation of £200.

In Memory of

Jack Thompson

Online donations amounting to £3,250 were received from: Grant Parnaby, £100; James Hall, £100; David Caplin, £500; Philip Luff, £100; Nicholas Westcott, £100; Martin Chrispin, £100; Derek Stewart, £100; David Evans, £100; Gary, Ashley, Harry, George and Henry, £100; Pat, Natalie, Jess, Josh and Joe, £100; Anoop and Radhika Aggarwal, £250; Steven, Amanda, Tom and Ben Hemmings, £200; Darren Oliver, £100; Simon Larner, £100; Andrew Manston, £100; Paul Bell, £100; Arthur McNally, £100; Lee Bryant, £100; Lee Pollott, £100; Andrew Sacre, £150; Richard Marling, £200; Jonathan Silcock, £250; and Caroline Elsom, £100.

www.c-r-y.org.uk

Graham and Cheryle Thompson sent in a donation of £250.

In Memory of

William Thomson

Mark McFern sent in a donation of £953.30 raised through organising a golf day at Stranraer Golf Club in memory of his cousin.

In Memory of

Matthew Thoppil

Simone Sansom sent in donations of £1,431.25 raised at the black tie charity ball held at Newcastle Falcons Rugby Club.

In Memory of

Christian Thunhurst

The Royal Grammar School (RGS) in Guildford sent in a donation of £1,500. “To help raise money for CRY, RGS Guildford teamed up with Guildford District Rotary Club to put on a vibrant Christmas fair held at the school in December. CRY is a charity with which the school has a long association, as the Headmaster Dr Jon Cox noted: ‘The RGS maintains a strong commitment to offering the opportunity for every single student to be tested for heart conditions. It is a charity which has very personal and poignant significance for us and we are delighted to give our full support to CRY.’

69


Our Fundraisers “A wide selection of stalls included art, cakes and baking, candles, canine novelties, ceramics, charity, cheese, children’s clothes, cushions, decorations and gifts, fashion, food and drink, garden craft, glass art, jewellery, leather goods, millinery, photography, tableware, textile art and toiletries. In addition, Father Christmas kindly agreed to attend the event and he – predictably – proved to be a popular attraction for young and old alike as they took the advantage of last-minute Christmas shopping. The event was a great success and allowed the RGS to provide a donation of £1,500 to the Christian Thunhurst Memorial Fund.” Jimmy Pressley, Assistant Head.

In Memory of

Richard Tomkins

Becky Tomkins and NCS Team Five raised £170 through a coffee morning.

In Memory of

Hannah Turberville

Brian Turberville sent in £4,237.28 raised at a ball held in December 2014: “Over £8,000 was raised at a charity ball on 6 December in Harpenden, Hertfordshire, to raise funds for Cancer Research UK and CRY. Nearly 200 guests enjoyed a successful evening starting with a great four course dinner, a fabulous raffle, and an auction which itself raised £5,000. Chapter Eight, a band, played until midnight. The proceeds are shared equally between the two charities. We thank all those who were so generous and helped to raise this money.”

In Memory of

Vincenzo “Chinni” Vetere

Will Ascott organised the “Chinstock” concert and raised £326.56: “A good friend of mine, Chinni Vetere, passed away five years ago and each year we celebrate his life with a gig. Featuring bands that almost all knew Chinni personally, Chinstock brings together old friends to remember Chinni for Cardiac Risk in the Young at The Horn in St Albans. This year was a real success, raising £326.56 and seeing a big turnout with people travelling across the country. It is a pleasure to be supporting such a hard-working charity in memory of our much-loved friend.”

In Memory of

Chloe Waddell

• Headteacher Mr R Partington of New Moston Primary School in Manchester sent in £387.59 raised through a cake sale. • Ian Roberts at Altrincham Methodist Church, Cheshire, sent in £700 collected at a recent service. • Fiona Waddell sent in £1,205.31 from a recent bag pack.

70

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Neil Ward

• Elaine Ward sent in total donations of £2,915.61: a raffle at Dronfield Floral Art Club raised £300; Judy Gill donated £25; Dronfield WI raised £359 through a raffle and a personal donation from the Trustees of Derbyshire Federation; Dronfield Singers raised £75; a CRY Great Cake Bake coffee morning raised £448; Joan Marrison donated £50; a Dronfield Parish Church carol service raised £100; Freemasonry in the Community donated £50; a ladies’ group’s events including coffee mornings and a Burns supper raised £1,300; and a Christmas tree festival at the Masonic Hall in Sheffield raised £208.61.

squads!) and does it all with a smile on his face. Last spring, Roy reached a personal milestone of having raised £100,000 for numerous charities over the years.” Bob Street. • Dronfield Woodhouse Townswomen’s Guild sent in a total of £824, including £54 from a pennies collection.

In Memory of

Neil Ward and Colin Ellis

Miss D Ellis sent in total donations of £516.14 in lieu of floral tributes for her father, Colin.

In Memory of

Alex Watley

• The Miners Arms Charity Circle donated £4,500 raised in respect of a regular Sunday quiz night and an auction in November organised by Roy Cutts. “Roy raises these funds by running a quiz night and raffle at the Miners Arms pub in Dronfield Woodhouse, Derbyshire, every Sunday evening. He also holds a Christmas auction each November which further boosts the funds. Each year, two charities are nominated as the beneficiaries of his fundraising, and CRY were selected as one of our charities for 2014. The total amount raised for the year was £10,340, with CRY and the Sheffield Sick Children’s Trust each receiving £4,500; the balance of the funds was kept in reserve in case of any emergency requests being received. “Roy has been doing this charity work for around 20 years now, and although he still works full time (he is now in his 60s) he still works tirelessly to raise funds. He sets the quizzes himself, he seeks out and sources all the small raffle prizes and the larger, more expensive items for the auctions (last year he obtained football shirts signed by the full Real Madrid and Barcelona first team

www.c-r-y.org.uk

Lucy Chatwin raised a total of £1,260 through taking part in the Bupa Great South Run.

In Memory of

Melissa Watts

Zoe Chamberlayne raised £1,715 in respect of the Big Heart Bike Ride in India: before the ride, a tennis tournament raised £200 and an evening of Ceroc dancing raised £700; and a further £815 was raised through sponsorship: “A young girl in our village died of a heart disease very suddenly earlier in the year and with three children of my own I was very moved. I have raised the money so far by organising a tennis tournament and an evening of Ceroc dancing, where the Ceroc teachers were incredibly kind and donated their fee to the charity too! “I completed the Big Heart Bike Ride in India in February and had a truly wonderful and memorable trip.”

In Memory of

Jason Webster

Rebecca Webster took part in the Ikano Robin Hood Half Marathon and raised £1,146.

71


Our Fundraisers In Memory of

Lily Webster

• Junior Captain Jack Forgan of Stowmarket Golf Club sent in £1,039 raised at a recent charity day.

“Our team Jo, Kim, Eva, Sarah, Yasmin, Demi, Sue and Amber ran the 5K in memory of Kim’s sister Clare who sadly died at the age of 39 from suspected sudden adult death syndrome.”

• Lynne Bennett at Stowupland High School sent in a donation of £150. • Jo Forgan forwarded matched giving donations from DHL of £430 in respect of a cake bake and £515 in respect of a golf day, making a total raised of £945. • Walkers in memory of Lily took part in the CRY Heart of London Bridges Walk 2014 and sent in an additional £115, making a total raised of £275.

In Memory of

Sally Wells

Francesca Clements took part in the Bupa Great South Run and raised £400.

In Memory of

Clare Wheeler

Joanna Lee, Kim, Sarah, Eva, Yas, Demi, Sue, Izzy and Amber took part in Run or Dye at Hever Castle and raised £695:

In Memory of

Kathryn Wheeler

• Lucy Wheeler took part in a skydive and raised £1,121.16. • Helena Cottom took part in a skydive and raised £535. • Christopher Young sent in £100 in respect of Lucy Wheeler’s skydive.

In Memory of

Richard Whitehead

John and Pam Whitehead sent in £100 raised at a fundraising event.

In Memory of

Neil Wickers

Irene Wickers sent in £130 from Bar 39 and £56 from The Heifer Inn, making a total raised of £186.

72

Issue 66 | January to April 2015


Our Fundraisers In Memory of

Paul Wilkins

Amanda Grover took part in a trek in Iceland and raised £100.

In Memory of

Joe Williams

Nationwide Building Society, Feltham, sent in £500 in memory of their friend and colleague.

In Memory of

Peter Williams

• Tracy Moore was locked in a police cell for 24 hours and raised £1,719.

In Memory of

Kevin Wilson

• Margaret Wilson at St Edward’s College, Liverpool, sent in £9,000 raised by pupils. “St Edward’s College has had a longstanding relationship with CRY since the tragic death of 23-year-old Kevin Wilson, a former pupil and member of staff of the college who died in school in September 2006 as a result of sudden death syndrome. CRY is the college’s nominated charity for advent term and each November, the college holds its ‘Light a Life’ campaign where pupils, staff and parents sponsor hearts that are hung in memory of loved ones on the two remembrance trees at the front of the school.

• Vicky Williams took part in the Bupa Great South Run and raised £1,435.

In Memory of

Siobhan Williams

Marc Bennett sent in total donations of £388.80 in lieu of floral tributes for his partner.

In Memory of

Sarah Williamson

Kathryn Williamson took part in the Bupa Great South Run and raised £262.96.

“A service of remembrance takes place where the two trees are lit, which involves readings and hymns performed by pupils. This year’s Light a Life campaign raised over £1,250 through heart nominations. With help from staff and pupils’ family members, the two remembrance trees were also ‘yarn bombed’ this year, keeping the trees warm and snug in their woolly jumpers during the winter months!

In Memory of

Kay Wilson

Amy Taylor took part in a skydive and raised £323.

www.c-r-y.org.uk

73


Our Fundraisers “For three nights during Raising Awareness Week, Lower School pupils gave a fantastic performance of Beauty and the Beast, with ticket and collection proceeds going to CRY. At the end of the week, pupils enjoyed a cake sale and raffle on a non-uniform day with proceeds from all three activities raising over £1,800. “This year, pupils entered a ‘design a Christmas card’ competition with the three winning designs going on sale during Raising Awareness Week until the end of term. As a school community we were pleased to send a cheque for £9,000 to CRY, combining our fundraising efforts; the college is proud to support this fantastic charity and hopes this money can in some way support the valuable work CRY carries out.” Emma Quayle, Communications Manager.

In Memory of

Dave Wood

Sarah Edgcumbe took part in the Cornish Marathon and raised £145.

In Memory of

Julian Wort

Shirley Wort sent in total donations of £178: three collection boxes raised £110; three screening donations amounted to £48; and Jean Rumming donated £20.

In Memory of

Sam Wright

Angela Hall of the University of Derby sent in a total of £1,230.08 raised at the Red and Black party for staff, family and friends.

In Memory of • St Edward’s College pupils took part in carol singing and raised nearly £100.

Michael David Yendall

Tracy Yendall took part in the Cleveland Way charity walk and raised £250.

In Memory of

Daniel Young

• Oliver Brown at Rhein AFC sent in a donation of £200.

74

Dionne Young sent in total donations of £135 from Wendy Whitbread, Jean Warrington, Carole Woods, Jane Moorhouse and Mrs Farnworth and family.

Issue 66 | January to April 2015


General Fundraising • Clare Purcell and Ashley took part in the Henley Half Marathon and raised £105.

• David Brambley took part in the Vodafone Big Bold Challenge and raised £200.

• Richard Adams sent in a donation of £100.

• Lynn Brannan raised £171.14 from a bag packing event.

• CC King sent in £300 on behalf of the Angrove Singers in Stokesley raised through taking part in a Christmas concert. • Malcolm Burne at Arlington Group Asset Management sent in a donation £100.

• British Telecommunications in Southampton sent in a donation of £1,737.50.

• Luke Ashworth sent in a donation of £250.

• Charlotte Pattison-Rideout, Director at HMP & YOI Bronzefield in Ashford, sent in £688.89 raised through holding a number of fundraising events during 2014.

• Simon Abdel-Nour of the Antiochian Orthodox Society of Britain sent in a donation of £100.

• Simon Brown raised £153 through taking part in the Tough Mudder South West challenge.

• Mr Malik at Ayah Villa guesthouse sent in a donation of £140.

• Caroline Buck sent in £459 raised at a craft fair and £123 collected during a Sunday evening service, making a total raised of £582.

• Claire and Rajiv at Baker Tilly Corporate Finance sent in a donation of £250. • Faith Wright at Barclays Bank sent in a matched giving donation of £1,000 in respect of Janice Brown taking part in a fundraising walk on September 13. • Linzi Mackell sent in £2,700 raised by pupils of Bearsden Academy who organised a fashion show: “A committee of our S6 pupils formed to organise our annual fashion show. This is always a highlight of our school year. Our show was called ‘Young Hearts’, and everything from the music to the décor was heart-themed in support of CRY. The pupils wanted to highlight the work of your charity and we are delighted with the total we are donating to you.” • Jenny Jarvis at Bilston Job Centre raised £170 raised through a charity raffle and other fundraising events during December 2014. • Bella Binns took part in the CRY Heart of London Bridges Walk 2014 and sent in additional funds, making a total raised of £195. • Chris Dugan at BlackRock in Edinburgh sent in a donation of £2,000.

www.c-r-y.org.uk

• Avril Burns sent in a donation of £150. • The staff at Carat Media held a bake sale and raised £547.12. • Aileen Carrington sent in total donations of £325 in lieu of floral tributes for her father. • Mark Chadwick and his fellow instructors organised a charity taekwondo competition and raised £500. • Roz Chandler raised £755.08 through taking part in a cycle from Vietnam to Cambodia. • Paul Chawner sent in £161 raised at a New Year’s Eve charity event in Shearsby. • Abby Hydes sent in £108 raised through a Zumbathon held by the University of Chester dance team. • Rev Dawn Harrison at Christ The Servant Church, Digmoor, sent in a donation of £100. • Kerry Thackray at Connect PHC sent in a donation of £100. • Laura Cowper took part in an Isle Of Wight swim and raised £437.50.

75


General Fundraising • Ed Creedy took part in the Ikano Robin Hood Half Marathon and raised £196. • Christine Ross, Headteacher at Crieff High School, sent in £320.11 raised at a recent swimming gala. • Mark Crossan sent in a donation of £100. • Daniel Curtin, Mike and Thomas took part in the Cardiff Half Marathon and raised £146.20. • Noel Curtis raised £640 through taking part in the Helvellyn Triathlon. • Lorna Dane, Managing Director of the Dane Partnership, sent in a donation of £250. • Tina Dawson and Danielle Cummings took part in the CRY Great Cake Bake 2014 and raised £405. • Mrs S Jackson at de Stafford School in Caterham sent in £113.45 raised by the pupils of Andrew House holding a mufti day and sweet raffle. • Derbyshire County FA sent in a donation of £100. • Luigi Dodi at Feltham/Hounslow 41 Club sent in £320 raised at a Kempton Park fireworks event. • Susan McMurty sent in £1,589 raised by Dromore Amateurs Youth FC. • Annie Houghton sent in £130 raised by Dukeries Dragons, a knit and hatter group based in Nottinghamshire. • Lisa Dyson sent in £100 raised at a horse show held in October 2014.

• Richard Franklin sent in a donation of £100. • Bob Johnson at Godalming and Villages Lions Club sent in £100 in respect of the town bonfire night. • Christine Goodship took part in the Munich Marathon and raised £230. • Simon Goodwin took part in the Big Heart Bike Ride in India and raised £1,780. • Jane Gransden sent in £200 in respect of a carol concert: “In December we held our annual carol concerts on board the barge. These evenings are led by local shanty band Swinging the Lead. Mulled wine and mince pies were served beside our roaring log fire as everyone joined in this very festive evening. CRY leaflets and posters were on display and the band sported their CRY T-shirts. A collection raised £200. I would especially like to thank Swinging the Lead for their continued support.” • Josh Gregory took part in the Bristol Half Marathon and raised £219. • Phil Sandford from the Guisborough Parish Pantomime Group sent in £333 in respect of a raffle held during their recent production: “Each year we select one charity to support and donate all the proceeds from the week’s raffle draws, which included raffling off Rene – a three foot tall teddy bear who took part in the pantomime as Alphie’s treasured toy. This year we chose to support CRY after one of our cast tragically lost a teenage daughter suddenly and without warning in the autumn of 2014. Thanks to the generosity of the people who came to see the show we raised £333 for CRY.”

• Luke Bowdery at the University Of Essex Students’ Union sent in £110.94 raised through the “UEFC in the Stocks” event held at the university.

• John Higson and Ant Clifford, Team H2Row, took part in Ironman Wales and raised £271.20.

• Sarah Faber raised £117 through sponsorship from a boxing match.

• Nick Hallwood raised a total of £400 through taking part in the Prudential RideLondon-Surrey 100 2014.

• Joe Harbour of The Fellaship of St Wilfrid’s Church sent in a donation of £282.75.

• Helen Rehm at Hampson Hughes sent in £2,500 raised through fundraising in 2014.

76

Issue 66 | January to April 2015


General Fundraising “Staff from Hampson Hughes Solicitors donned their Santa suits last weekend in aid of CRY. A team of 10 participated in the Liverpool Santa Dash to fundraise for the firm’s charitable foundation. CRY is one of four charities being supported by the Hampson Hughes Charitable Foundation this year and this latest 5K fun run is one of a series of fundraising events that the local solicitors have taken part in. The participating staff were: Chris Lackner, Natasha Collins, Stephanie Gilligan, Dean O’Brien, Rachael Sheffield, Niamh Forbes, David McCulloch, Jessica Jones, Kesiena Ovien and Roxanne Walsh, so a big thank you goes out to them.” Laura Hampson, PR and Media Relations Manager.

• Jake Baybutt sent in £238.26 received from Karen Marie Johnson in respect of the Helping Hands NCS band night. • Molly Hilton sent in £687.30 raised at a charity ball she organised: “My name is Molly Hilton and I am the current Junior Miss Preston. On 11 October 2014, I and Junior Miss Preston Guild, Ivy Kusaloka, held a charity ball to raise money and awareness. The event was held at Tarleton Bowling Club from 7pm till late. On the evening I decorated the entire function room; we had gorgeous table and chair covers and stunning table decorations. I had made evening programmes for all of the guests and a table plan with assigned seating.

“On the evening we had an open licensed bar, a buffet, a live DJ, two illusionists/magicians, a huge raffle, an incredible auction and a speech by myself and Ivy Kusaloka. Everyone who attended our event said they had an excellent time and that it was a massive success. I was and still am over the moon with the success of my charity ball in aid of your charity. I believe your charity is absolutely incredible and you do amazing things for many people every single day. Thank you for all that you do for many children and their families and I hope that this money makes a difference.” • Hornsea School and Language College held a non-uniform day and raised £300.

• Sally Watson of Harris Primary School in Preston sent in £167.95 raised from a collection box at the school and Karen Hindmoor sent in £150.90 raised by pupils and staff through Christmas events, making a total raised of £318.85.

www.c-r-y.org.uk

• HSBC Bank sent in a matched giving donation of £500 in respect of Bryony Chippendale’s fundraising. • Sarah Harris at IGO4 sent in £158.25 raised at her company dress down day. • Thomas Inett ran the Windsor Half Marathon 2014 and raised £235. 77


General Fundraising • Jerrod Hartley at Inspire VCUK sent in £100 in respect of a Tour de France team card. “The idea for the card came from the old pub-style footy cards that Sunday League teams hand around the bar after the game to help to pay for catering. We wanted to raise funds for the team and also to raise money for our chosen charities. The team supports the Lewis Balyckyi Trust and Cardiac Risk in the Young. “From the Lewis Balyckyi Trust, Jacqui Balyckyi (mum to Lewis) attended, whilst on behalf of CRY, Ian and Lynne Scanlan attended. The purpose of the meeting was to present a cheque to each charity for £100. In addition to these charitable contributions, the owner of the card drawn from a hat also received £100.”

• Sue Hole at JLT Benefit Solutions, Exeter, sent in a total of £108.61 raised through various events held at the office.

Patel’s fundraising walk on 15 September 2014. • Dean Loader took part in a skydive and raised £523. • David Lock took part in the TCS New York City Marathon and raised a total of £743.78. • Wendy Loveridge-Rees sent in £115.05 from the “Llanederyn Goes Red” health awareness and cake selling event. • John Lundy forwarded a donation of £2,000. • Peter and Catherine Macey took part in the Bank of Scotland Great Scottish Run and raised £826.39: “Well that’s the Great Scottish Run out of the way for another year and I am delighted to say that so far we have raised more than £750 for CRY. I completed the 13.1 miles in 1 hour and 59 minutes whereas Catherine came in looking a lot fresher than me in 2 hours and 11 minutes. Considering she has only been running for four years and turns 50 next year, that in itself is a fantastic achievement. We would have done an ‘after the race’ photo too but I would hate to frighten your website viewers.”

• Michaela John raised £899.50 through shaving off her hair. • Louise Kalling-Smith took part in the Sumatra Jungle Trek and raised £805. • Charlene Kelly, Olivia, James, Sean, Barry, Chrissy, Sinead and Maurice sent in £2,680 in respect of various fundraising in 2014. • Lakeland in Chelmsford sent in a donation of £225.19. • Ruth Lester sent in £1,312 in respect of the B3 programme team’s beard competition. • Alf Lindsay took part in a Lake District trek and raised £154. • Tina Claeys at Lloyds Bank Foundation sent in a matched giving donation of £340 in respect of Dipta

78

• Siobhan McCaffery sent in donations of £300 collected at a Newry screening. Issue 66 | January to April 2015


General Fundraising • Rosemary McGinness sent in £500 raised at the Values Challenge held at William Grant & Sons; CRY was nominated by the winning team which included Tina Moxon, Emma Humphreys, Katrina Wateridge and Charlotte Payne. • Victoria McKee took part in the Twilight Run and raised £175. • Chris Mellers sent in £200 raised at his 60th birthday celebrations. • James and Ethel Merry took part in the CRY Heart of London Bridges Walk 2014 and sent in additional funds, making a total raised of £170. • myheart member Alessandro Miccoli sent in a total of £1,911 in respect of his band Miccoli’s 2014 tour to raise awareness of CRY, including a donation of £500 from Ian and Ingrid at The Howard Centre in Welwyn.

• Mark Oliver took part in the Great Yorkshire Pieathlon and raised £745: “At the start of 2014 I wanted to do some running and try to raise money for a great cause; a friend suggested Cardiac Risk in the Young. After looking at the website and finding out what they did I realised I had found my charity. I started my running adventure at the Southport Mad Dog 10K on 9 February 2014 on a very chilly and windy day, throughout the year I took part on my first half marathon at Anglesey and a further four along the way. I took my first steps at off-road running at the Dovestone Diamond 10K where a lady shouted to me that she’d had a heart bypass, she was the first person that had heard of CRY. “My year had some great highs, stopping near the finish at the Rock & Roll Half Marathon to help a fellow, running to lows of struggling to find people to sponsor me – I took part in some -athlons (Chocolate, Wine and Pie) which are so much fun. My final run of the year in December was at the Great Yorkshire Pieathlon, a short 6K run through fields, mud and deep puddles. I was joined at this with some of my running buddies and we all wore fancy dress. Having now found out more about CRY I know that I will support them as often as I can and am thinking of my next challenge to raise more for them next year.”

• David Game at Mid Essex Casuals Running Club sent in £100 raised through the Braintree Boggle Marathon trail race, organised by Sue and John Clarke. • Mark Mills sent in a donation of £125. • Janice Morgan sent in £1,100 raised at a fundraising walk on September 13. • Becky Rogers from the Physiotherapy Department at Nevill Hall Hospital in Abergavenny sent in £170 collected by patients and staff. • The Head Girls Team at Northwood College for Girls in Middlesex held a surf simulator and cake stall at their Christmas fayre and raised £165. • Paul O’Garr sent in a donation of £492.20.

www.c-r-y.org.uk

• Karen George at Orbis Investment Advisory sent in £1,200 after CRY was nominated by two employees. • Loredana Pace raised a total of £375 through taking part in the Windsor Half Marathon 2014.

79


General Fundraising • Nicandro Pacitti took part in the Jedburgh Half Marathon and raised £400. • Sandra Popp sent in £500 on behalf of CBRE Global Investors, London. • Lisa Sinclair at Precision Profiles held a dress down day and raised £400. • Morwenna Marshall sent in £250 on behalf of Pulborough Rugby Club raised at a recent rugby tournament.

day at the London Collection and Compliance Centre. • Barbara Sanderson, Soroptimist International in Skipton, presented CRY supporter David Leigh with a cheque for £200 following recent fundraising. “I spoke to the ladies for half an hour about CRY, our personal experiences, screening and fundraising. It was very well received and there was a lot of interest afterwards.” David Leigh.

• Anthony Rigden took part in the Yorkshire Three Peaks Challenge and raised £155. • Polly Lewis at Roehampton Golf Club sent in £4,340 raised during her year as Lady Captain: “We have a very generous ladies section who contributed to various raffles and Lady Captain’s Day to make up this sum of money.” • Jamie Dews at Rolls-Royce, Derby, sent in a donation of £750. • John Lawrenson, ACT Chairman at Rolls-Royce DGS, sent in £1,179.78 raised through fundraising including a canoe trip, raffles, a cake sale and various other events. • Ian Lewis sent in £370 from Rolls-Royce, Winsford. • Staff at the Royal Bank of Scotland Thanet Grange, Westcliffe-on-Sea, held a casual dress day and raised £208.70. • The Right Worshipful Mayor of Sandwich sent in a donation of £100. • Angie Savage took part in the Salford Triathlon and raised £187. • Claire Woolham sent in £289.74 raised by the Severn Vale Housing Society in Ashchurch through dress down Friday collections. • Stephanie Snart sent in a donation of £100. • Rebecca Solan raised £100 after nominating CRY to received the proceeds from a company dress down

80

• Sarah Norris at SS Pumps, Reading, sent in a donation of £150. • Mrs C Gambrell at St Bede’s School, Redhill, sent in £255.80 raised by tutor group 10NE nominating CRY as their charity to receive the profits from an enterprise challenge. • Bruce Bower at St Michael’s Parochial Church Council sent in £450 in respect of choosing CRY to benefit from their regular tithing. • Mrs A Giblin at St Peter’s Catholic School in Solihull sent in £353.86 raised by students and staff during recent charity events. • Jason Stewart took part in the TCS New York City Marathon and raised £180. • Cat Convery at Stockton Riverside College sent in a donation of £101.20. • Stowmarket High School sent in a donation of £160.07. • Kevin Price of the Stragglers Running Club sent in £666.67 raised by Ealing Southall Middlesex, who came second in a Stragglers river relay in September 2014.

Issue 66 | January to April 2015


General Fundraising • Audrey Nice at Surrey Satellite Technology, Guildford, sent in £3,689.70 raised through various fundraising activities held throughout the year. • Magda Szlenkier held a clothing exchange at her home for her birthday and raised £200.

was a nice cool breeze and there were another 600 or so fun runners out there as well. Plus, I did get a mention at the end with the announcer and they mentioned the charity over the speakers.”

• Dennis Tailor sent in £699.28 raised through a “Just Dance” event and £513 through a “Havoc in the Kitchen” event, making a total raised of £1,212.28. • Chris Scott at the Telford College of Arts and Technology sent in £192.35 raised through an endof-year staff Christmas raffle. • Louise Biffin at Telford Junior Youth Football League sent in £500 raised through various fundraising activities held throughout the year. • Mel Moorehouse at Tesco, Welwyn Garden City, sent in £500 raised by the Tesco supply chain team. • Topsoil in Peterborough sent in a donation of £250. • Total Gas & Power in Redhill sent in a donation of £520. • Stephen Tully took part in the Tough Mudder challenge and raised £215.50. • Monica Crawford at Turriff and District Junior Agricultural Club sent in £200 raised through a number of events throughout the year.

• Kate Vandamme sent in a donation of £100. • Staff at Vantec Europe raised £605 through various fundraising events. • Vantec Europe sent in a donation of £1,364.90. • Marian Stipetic at Waco UK sent in £106.50 raised in lieu of sending Christmas cards.

• Jennie Turner took part in the Drax Triathlon and raised £535.

• Waitrose in Sanderstead sent in a donation of £430.

• Laura Balcombe sent in £977 in respect of Unum’s summer charity ball.

• Joseph Weavers took part in a 200 mile cycle ride and raised £251.

• Susan Sanderson at Unum sent in £110.10 raised at an on-site raffle arranged by Julia Bridgman.

• Mike Willenbruch sent in £100 in lieu of sending Christmas cards.

• Paul Staples at Unum sent in a donation of £150.

• Fiona Wilson took part in X-Runner Winter Warrior and raised £100.

• Andy Thomas, Unum, took part in the Birmingham Big Fun Run and raised £150: “I am pleased that I completed my 5K run as I suffered from pneumonia in June/July 2014 and I managed to beat my personal best by finishing in a time of 20 minutes 26 seconds. Conditions were great as there www.c-r-y.org.uk

• Sharon Vaughan from the Windsor Lions Club sent in a donation of £500. • Nicola Hazelton at York House School in Rickmansworth sent in £179 raised through pupils taking part in a triathlon. 81


Fundraising Events 2015/16 Please contact Ben, Cara or Nicola on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events, visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their “own place” or a CRY charity place) will receive a “welcome pack” containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

2015 Newcastle to London 24

Sure Run to the Beat

CRY Awareness Week

Central London is the target and it’s 300 miles due south! 300 miles in 24hrs – the route is broken down into seven stages of approximately 40 miles – with rest stops at the end of each leg to take on food and drink supplied by a specialist catering team, and to sort any repairs to bike and body!

The Sure Run to the Beat 10K is London’s unique music running event set at Wembley Park. CRY welcomes any “own place” runners who would like to join the CRY team.

The perfect opportunity to increase the charity’s profile and the hard work of our supporters. If you would like to be involved in CRY Awareness Week 2015 please email ben@c-r-y.org.uk. As well as the opportunity raise awareness or hold an event, we are looking to continue to build on the success of our Great Cake Bake. We are holding our fourth annual Great Cake Bake on Friday 27 November. We will have special packs to send out which include recipes by top chefs, hints and tips, and other goodies to help with your event.

August 22 – 23

London 2 Cambridge August 29 – 30

The London 2 Cambridge 100km Ultra Challenge run starts near the Olympic Park and heads up the fascinating Lea Valley – past locks, parkland and wetlands – and continues on through picturesque countryside up to Cambridge. With support and hospitality every step of the way, through day and night, this could be one of the most rewarding August bank holiday weekends you’ve ever had!

Thames Path Challenge September 12 – 13

You’ll follow England’s greatest river – which meanders from its source in the Cotswolds and on through London, with the city section voted one of the world’s best urban treks! The route heads upstream from Putney Bridge to Runnymede of Magna Carta fame at 50km, then on past some wonderful scenery to Henley.

Morrisons Great North Run September 13

The Great North Run is firmly established as the world’s greatest half marathon! CRY welcomes any “own place” runners who would like to join the CRY team.

90

September 13

Windsor Running Festival September 26 – 27

The setting for the Windsor Running Festival is one of the most beautiful in the UK, the start and finish being the Long Walk with Windsor Castle as the backdrop. CRY has a limited number of charity places for the Running4Women Windsor 10K which takes place on Saturday 26 September and the Windsor Half Marathon which takes place on September 27. CRY also welcomes any “own place” runners who would like to join the CRY team.

CRY Durham Riverside Walk October 3

The sixth CRY Durham Riverside Walk will start and finish at Durham Amateur Rowing Club. The 7km (4 mile) walk is in the beautiful Wear Valley, following the river, with views of the city and cathedral. Please get in touch to register your interest and we will advise you when online registration opens.

Bear Grylls Survival Race October 3

With two distances, this is perfect for the first-timer or anyone who feels like a real challenge. Not your average obstacle race; with a number of survival-like twists, supporters can take on this event on their own or in a team.

November 21 – 29

2016 Brighton Marathon April 17

The Brighton Marathon is one of the UK’s favourite 26.2-milers. With the stunning backdrop of the sea in one of the country’s most vibrant cities, the race gets bigger and better every year. CRY has a number of charity places and also welcomes any “own place” runners who would like to join the CRY team.

Virgin Money London Marathon April 24

CRY has limited charity places available and welcomes anyone who has been successful in the public ballot who would like to run for CRY. Please get in touch if you are interested in a CRY place for 2016 or 2017 and we will advise you when the public ballot opens for the 2017 marathon and when we are taking applications via CRunCH (www.crunch.org. uk). Demand for Golden Bond places always exceeds the number of places we have available so please apply early.

Parachute Jumps Assorted dates

For further details, please visit www.c-r-y.org. uk/charity-fundraising-challenge-events

Issue 66 | January to April 2015


CRY Update 66 January to April 2015 Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about young sudden cardiac death (YSCD). By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support Programme; the CRY Centre for Cardiac Pathology (CRY CCP) and the CRY Centre for Inherited Cardiac Conditions and Sports Cardiology at St George’s Hospital; and the CRY myheart Network to support young people

living with potentially life-threatening cardiac conditions. CRY also requires funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the Virgin Money London Marathon or the Morrisons Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge

Our Patrons

The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our charity.

Current Patrons of CRY: Rob Andrew MBE,

John Barrowman MBE, Jeremy Bates, Ben Brown, Clive Clarke, James Cracknell OBE, Brian Dooher, Nick Easter, Jonny Evans, Baroness Ilora Finlay, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Tom James MBE, Pat Jennings OBE KSG, Rob Key, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell MBE, Professor William McKenna, Lee Mears, Bill Neely, Lawrence Okoye, Phil Packer MBE, Sir Steve Redgrave CBE, Joe Root, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, Andrew Trimble, David Walliams, Alison Waters, Matt Wells, Ray Wilkins MBE, Sir Clive Woodward OBE.

events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/charityfundraising-challenge-events or contact the CRY office to request a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to www.c-r-y.org.uk/donations All your help is greatly appreciated.

We can send regular information to CRY supporters via two distribution/mailing lists: 1. CRY Update magazine – postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Deputy CEO; many pages of supporters’ fundraising; articles about screening, research, pathology, raising awareness initiatives, mass participation fundraising events, etc; and much more 2. CRY enewsletter – sent monthly via email; includes a link to an electronic version of the CRY Update magazine, as-andwhen each new issue of the Update is published If you would like to subscribe to, or unsubscribe from, either of these two distribution/mailing lists, please let us know by: • Visiting the CRY website and completing the online subscribe/ unsubscribe form at www.c-r-y.org.uk/contact-form • Calling the CRY office on 01737 363222 • Emailing the CRY office at cry@c-r-y.org.uk

Sir Ian Botham OBE Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.” For more information about CRY’s Patrons, please go to www.c-r-y.org.uk/about-us/patrons

www.c-r-y.org.uk

91


Cardiac Risk in the Young Registered Charity No. 1050845

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency

of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. The charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD.

In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.cr-y.org.uk/medical-information

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Biggart Trust • The Black Family Charitable Trust • Cecil Rosen Foundation • The Celtic Charity Fund • Charlotte Marshall Charitable Trust • The Christopher H R Reeves Charitable Trust • The Davey Foundation • E C Graham’s Charitable Settlement • Fitton Trust • The Freemasons’ Grand Charity • Global’s Make Some Noise • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • The Kirkby Foundation • Ladbrokes in the Community Charitable Trust • Mrs H C Beer Charitable Trust • Munro Charitable Trust • Pennycress Trust • Pharsalia Charitable Trust • Sir Cliff Richard Charitable Trust • Sir Jules Thorn Charitable Trust • The Sobell Foundation • Tudor Foundation Inc • The Whitehead Monckton Charitable Foundation

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

/CardiacRiskintheYoung

Profile for Cardiac Risk in the Young

CRY Update Magazine - Issue 66  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Some pages have not been reproduced in this...

CRY Update Magazine - Issue 66  

CRY’s quarterly update magazine with news and information about the charity and our supporters. Some pages have not been reproduced in this...

Advertisement